WHV Partners Give Thanks - National Hospice and Palliative Care
Transcription
WHV Partners Give Thanks - National Hospice and Palliative Care
The Monthly Membership Publication of the National Hospice and Palliative Care Organization November 2012 WHV Partners Give Thanks W e Honor Veterans is a program that NHPCO and the Department of Veterans Affairs launched together in September 2010, with one simple goal: To focus more attention on the needs of Veterans and support hospices in meeting those needs. The single most important way to meet this goal is by encouraging all hospices to participate in WHV—by signing on as a “Recruit” and moving up in status (e.g., Partner Level One, Two, Three and Four) by performing specific Partner-level activities. So how is the WHV program doing? What impact is it making on the care provided to Veterans and their families? There are now 1,500 hospices which participate in the program and are recognizing Veterans in a variety of creative and, often heartfelt, ways. Inside In this article, six WHV Partners discuss the initiative they’re most proud of and how it is succeeding in recognizing Veterans for their service while also improving their quality of life at life’s end. ACOs: Are You Ready? Accountable Care Organizations are one part of a national health care overhaul to cut costs and increase quality—and their numbers are growing! This article reviews the basic structure of ACOs, but devotes more discussion to the role your hospice can play and a suggested plan of action if that’s the path you wish to pursue. How a Veteran’s Experience Can Inform Bereavement Practice continued on next page Short Takes: • Serving Veterans: A Tool to Help Evaluate Your Performance Through the stories of George, Jim and Mike, Bereavement Services Director Beth McGuire shows us how a Veteran’s military service can help the hospice clinician better assess and understand the grief reactions that may need to be addressed as part of a plan of care. A Message From Don Hospice in the Continuum Member News and Notes Since 2003, Kansas City Hospice and Palliative Care has launched a range of specialized services that were lacking in its service area, including Palliative Home Care and Palliative Medicine programs. President/CEO Elaine McIntosh discusses the ambitious expansion as well as the fiscal challenges of providing palliative care. Compliance Tip of the Month • Now Live—ehospice.com Videos Worth Watching News From FHSSA continued from previous page Pikes Peak Hospice & Palliative Care Colorado Springs, CO A Small Gesture That Opens Doors By John Bauer, DMin Several years ago, Pikes Peak Hospice & Palliative Care (PPHPC) staff members who are Veterans themselves, or had served in the uniformed services, initiated a special effort to formally thank the distinguished Veterans receiving our care. Each Veteran patient is presented with an heirloom-quality coin, created in the shape of a “dog tag,” and a certificate of appreciation that bears the seal of his or her branch of service. These heirloom-quality dog-tag coins are patterned after the “coins of excellence” that nearly all service members have received while in uniform. While just a piece of metal, the coins of excellence are treasured by all soldiers, sailors, Marines, or airmen who had one pressed into their hands as a “thank you” for service rendered, so it was fitting to model our small gift after them. On March 1, 2007, I had the privilege of being part of PPHPC’s first presentation to 92 year-old Norman Brown (pictured above). Norman was a combat Veteran of World War II—a gunner on one of the B-29s that flew over Japan. Modest as ever during the presentation, Norman said “I’m no hero. People may think that I am, but that’s just because there’s not many of us left.” Initially, we didn’t know how this expression of gratitude would be received by our Veteran patients—and we were both heartened and surprised. Heartened when one of the first responses we received was a simple, “thank you for saying thank you.” And surprised that many Veterans from all of our wars (including the War in Afghanistan) appreciated that we were making the effort. We were also grateful that so many family members have appreciated the simple gesture as well. Many of these family members had endured the worry and loneliness of having their loved ones far way from home in harm’s way, so the coin and certificate have become heirlooms to them when their loved ones have died. continued on page 4 2 NewsLine November Means Many Things It has been a particularly busy fall, not only for us here at NHPCO but for everyone across the nation. As we go to press, we are two weeks away from a presidential election. While it may occur every four years, it is always significant. Regardless of the outcome, I think it’s safe to say that the hospice palliative care community will be facing some challenging times ahead. A big part of this involves the ever-increasing regulatory and compliance scrutiny facing our field as well as ongoing threats to reimbursement. Please rest assured that NHPCO and our colleagues at the Hospice Action Network are keeping a close eye on all the factors that might have an effect on hospice and palliative care providers. A new Congress will be coming to Washington in the months ahead and that always brings the opportunity to cultivate new Congressional champions. You play an important part in that critically important work and I encourage you to make sure that you, your coworkers, and your organization’s supporters are part of the Hospice Action Network. It’s free to register at www. hospiceactionnetwork.org and this will connect you with the largest hospice advocacy effort in the U.S. And it would not be November without wishing you a happy National Hospice and Palliative Care Month. I am always profoundly touched when I read of the amazing outreach efforts and events that happen every year during this time. To help shine the light on this work, we will be encouraging hospice supporters to share photos and news of special events on Twitter (using the hashtag: #hospicemonth). Throughout the month, I encourage you to join NHPCO in filling the Twitter-scape with positive messages about hospice! We will also honor our nation’s Veterans on November 11. As we share in this month’s cover story, there are now more than 1,500 hospices registered with our unique We Honor Veterans campaign. If your program is not one of them, please visit the We Honors Veterans website to join us. As the month moves forward and we focus on the holiday season that so often draws family and loved ones near, I encourage you to spend some time thinking about the many things we have to be thankful for. J. Donald Schumacher, PsyD President/CEO NewsLine 3 continued from previous page Those who served in World War II are now dying by the thousands. They have been called “The Greatest Generation,” but they were also members of “The Silent Generation.” They went off to serve their duty, often for the entire length of the conflict. Then, when they came home, more often than not they said nothing, keeping the horrors of war to themselves, much like Norman. “I make it a rule not to talk about it,” he said. “There were too many guys who went through a lot worse than I did.” We have found that this simple act of gratitude opens the door for these Veterans’ untold stories. Our hospice care teams report again and again that when the coin and certificate are presented, a pent-up dam of emotion bursts. I have personally found it profoundly moving to look into the eyes of a Veteran whose buddies didn’t come back or who has seen what the weapons of modern technology can do to a human body, and see the light begin to shine again. Norman Brown was our first recipient, and on August 31 of this year, we presented our 1,400th coin and certificate. John Bauer retired from the U.S. Army in 2003 and has served as a chaplain for Pikes Peak Hospice and Palliative Care since 2004. Hospice & Palliative CareCenter Winston-Salem, NC Creating a Lasting Tribute By Tina Stearns A very special event to honor Veterans is taking place this month, in celebration of Veterans Day. The staff, volunteers, and patients and families of Hospice & Palliative CareCenter will be joined by invited guests to unveil our Veterans Garden. The dedication ceremony promises to be a memorable one, punctuated by the Oak Ridge Military Academy’s Color Guard and the VFW Memorial Honor Guard, and a three-volley rifle salute to honor all deceased military Veterans, followed by a 4 NewsLine bugle performance of Taps. At the conclusion of the formal program, “Amazing Grace” will be played on bagpipes while the Patriot Guard Riders surround the Veterans Garden, each holding a flag. The garden is situated in front of our Hospice House, which is located on the CareCenter’s 14-acre wooded campus. Its centerpiece is a flagpole that is embedded in a large boulder, upon which the emblems of the five branches of military service are engraved. The flagpole is surrounded by a raised flower bed and four custom benches, designed and handcrafted by sculptors from our community under the guidance of local artist, Jan Detter. The benches feature beautiful mosaic designs (Jan’s specialty), some made from actual bullet casings. The garden is designed for wheelchair accessibility, with the goal of being a special place for reflection and respite while also being a tangible expression of thanks to all Veterans who have served our country. Opposite: The Garden’s centerpiece as it takes shape. Above: The back of one of the benches where bullet casings were used to create a starburst design. Of special note was the overwhelming support we received from the community. The fundraising efforts were swift and successful, illustrating our community’s shared passion for this project. A significant portion of the funds were raised by reaching out to local Veteran organizations like the VFW, Patriot Guard Riders, Oak Ridge Military Academy and the American Legion. I presented “Hospice 101” sessions during their meetings and received donations for the garden afterwards. We also reached out to the families of the patients we have served. Additional donations were made by corporate donors, including a major corporate grant from Wells Fargo. As we look upon the finished garden, we see so many benefits that have come from it. Our president/CEO, Brian Payne, wanted a way to openly demonstrate our support of all Veterans, and it surely accomplishes that. But it has also served as a way for many members of our community to express their thanks through donations and has helped us, as an organization, develop valuable relationships with the VA, the VFW, Patriot Guard Riders and the Oak Ridge Military Academy. Tina Stearns is the director of community outreach for the Hospice & Palliative CareCenter, where she has worked since 2005. continued on next page NewsLine 5 continued from previous page Stein Hospice Sandusky, OH An Honorable Send-off By Julie Yeager During a brief ceremony at one of Ohio’s two Veterans Homes, a U.S. flag was draped over the body of a Veteran who had just died as staff members gathered around for a short but meaningful tribute. This ceremony took all of 15 minutes, but the staff members of Stein Hospice, which has offices in both Veterans Homes, were so moved by it that they decided to create a similar ceremony for Veteran patients at Stein Hospice’s 18-bed Care Center in Sandusky. Since March of 2011, we have conducted this “Escort Ceremony” for 36 Veteran patients and it has become especially important to both the families and hospice staff. When we launched the initiative, Rev. Charles Odums, a chaplain at one of the Veterans Homes and a parent of a slain soldier, helped us conduct training on how to properly fold the U.S. flag, and the training was taped for future hires. We then created a formal policy, established procedures, and notified the area funeral home directors. A Stein Hospice chaplain donated a U.S. flag (that had been flown over the U.S. Capitol years ago) and a storage case was purchased. When a Veteran patient dies, a “Code Stars and Stripes” intercom announcement is made. During the day, as many as 25 staff members are able to gather outside the patient’s room. In the middle of the night, only one or two staff might be available. Regardless of the number of participants, the ceremony is essentially the same: • After the funeral home director has moved the Veteran from the bed to a gurney, a flag is placed over the body (stars over the head and to the left side, and stripes at the feet). • If a Veteran is available, he or she leads the procession, followed by a chaplain, family members and Stein Hospice staff and volunteers. (At Stein, the Veteran might be our senior medical director, Dr. William Inglis, a Veteran volunteer, a family member of the deceased, or a family member of another patient.) • The procession stops at our chapel, where the flag is folded. • One of the participants offers words of appreciation for the Veteran’s service to our country and condolences to the Veteran’s loved ones. 6 NewsLine While the ceremony is simple, it is meaningful. Families often tell us, with tears in their eyes, that it is just what their deceased loved one would have wanted. William “Bill” Brown was one of our first Veteran patients to be honored with an Escort Ceremony. He was a gentle giving man who joined the U.S. Army during World War II, had witnessed the liberation of a German concentration camp, and had earned several ribbons and medals. As Bill’s family waited for the funeral home director to arrive, Stein Hospice staff members were notified that a Veteran had died and by midnight the ceremony was conducted. “It was brief but reverent, and fitting respect for a warrior, a loving family man, and a wonderful citizen of the universe,” Bill’s son, Joe, told us. “In a final simple act of unconditional love and respect, he was escorted from the facility for his final ride home.” [Since instituting this Escort Ceremony for Veterans, families of nonVeteran patients have asked that a similar service be conducted for their loved ones, so Stein has created a generic policy and performs a nonmilitary ceremony on request. A copy of this policy is available on the WHV website.] Julie Yeager is the Veterans Service director for Stein Hospice, a role she has served since 2010. continued on next page NewsLine 7 continued from previous page Mercy Care Myrtle Beach, SC Public Recognition Through Community Pinnings By J. Michael Neal, MABC “We Love Our Vets” read the sign at the Inlet Square Mall in Myrtle Beach, South Carolina. It was Valentine’s Day 2012, and Mercy Care had been asked by the Mall promotion director, along with other local businesses, to collaborate on a special event to honor and thank the Veterans in our community for their service to the country. Our ambition was to make this the largest pinning to take place in our county! When Valentine’s Day arrived, so did our country’s finest. Flags representing all branches of service were carried into the Mall’s central court where over 300 hundred family members and guests were seated and watched with pride as their loved ones entered and took their seats. All the while, there were bands playing, a barbershop quartet singing patriotic songs, and appearances by the JROTC drill team, Rolling Thunder and the Patriot Guard. Short speeches were made to express the community’s gratitude for their service, with the highlight being a poem that was written and read by a Veteran of the Korean War. The Veterans from each branch were then asked to stand and, with the swiftness of a well-trained military squad, 12 Mercy Care Veteran volunteers walked through each aisle and carefully placed a specially designed “Mercy HONORS” pin on the lapel of each Veteran standing at attention. After Veterans from each branch received their pins, the Mercy Veteran volunteers stood at attention and saluted each group, from the Army to the Merchant Marines. Watching from the front of the room, I saw one Veteran after another smile with appreciation while others had tears streaming down their cheeks. I was to learn that for many, this was the first time anyone had thanked them for their service. From personal experience, I knew there were only two items left to do before the event concluded. Great care must always be taken to recognize our living Veterans, but greater care must be provided to recognize families that have lost a 8 NewsLine loved one in times of armed conflict. I have made it a practice to invite these family members or close friends to stand and be recognized for their sacrifice and loss. To those who stand, I will say “I am sorry for your loss and I thank you for your family’s sacrifice to help protect our freedoms.” I also always invite all Vietnam Veterans to stand, and ask everyone in the room to voice in unison, “welcome home.” There is usually a standing ovation that follows. I encourage the Veterans to look around and absorb the genuine appreciation that’s always palpable. It is then that healing begins. After this event concluded, we discovered that over 350 Veterans had been recognized, from Word War II through our present conflicts in Afghanistan and Iraq. While this is not yet an annual event, we would gladly participate if it were. As part of our commitment to honoring Veterans, Mercy Care participates in dozens of community pinnings each year and finds them to be a poignant way to express our gratitude and foster healing. J. Michael Neal has served as director of counseling for Mercy Care since 2010. continued on next page NewsLine 9 continued from previous page Covenant Hospice Pensacola, FL The Gift of Veteran Volunteers By Brian Ranelli Early last summer, Randy Barbour told Jim Kirby, “All I want to do is go to the Naval Aviation Museum. Then I’ll never have to leave my home again.” Randy is an Army Veteran and Covenant Hospice patient and Jim is a Navy Veteran and Covenant Hospice Volunteer. And voicing that wish was all that was needed. Within a month of that conversation, Randy was at the renowned museum and received a special two-hour tour from Vice Admiral Gerald Hoewing. He was also given a medallion commemorating the 2012 opening of the National Flight Academy and a book detailing the history of the museum. It was a special day and as Randy’s handwritten note later expressed, the tour was an experience he will cherish forever. Jim was the catalyst that made it happen. For John Christy, a Navy Veteran and Covenant Hospice patient, it was camaraderie that was missing from his life. He had served his country as a chaplain and, after his retirement, was an active member of his church and its choir. Covenant asked Veteran volunteer, Ray Wann, to provide John with the support he needed since Ray was also a chaplain and the two had attended the same church for years. As time went on, Ray noticed how John had become more and more withdrawn, as he was now largely confined to his home. To help support his friend, he planned a special ceremony and invited several of John’s friends. Because music was so important to John, Ray also invited Covenant’s music coordinator who played some of John’s favorite patriotic music and spiritual hymns. It was a poignant way to honor John for his many years of service as well as a time of fellowship. 10 NewsLine Veterans have made many sacrifices that undeniably leave a lasting impact on their lives years after they have taken off the uniform. While Covenant Hospice’s staff are taught the special needs of Veterans through trainings and our close work with the Department of Veterans Affairs and local Veteran Service Organizations, our Veteran volunteers can be our best teachers, and can make an invaluable contribution in the care we provide to our nation’s finest at the end of life. Brian Ranelli is the special projects manager for Covenant Hospice, a role he has served for two years. VITAS Innovative Hospice Care of Atlanta Metro Atlanta, GA Advocating for the Veteran and Family By Paula Sanders Jerry, a World War II Army Veteran with heart disease and dementia, loved to reminisce about his military days, especially as his health diminished toward the end of his life. His daughter, Debbie, heartbroken as she watched her father’s deterioration, promised him at least one thing would always be true: he would spend his final days at home surrounded by his loved ones. Eventually, however, Jerry’s heart condition worsened to the point where he needed professional care, which Debbie simply could not afford. Join Us! There are now 1,500 hospices which participate in We Honor Veterans at Partner Levels One, Two, Three or Four. Many hospices which are not yet partners may already be doing work that would qualify them for this distinction. To learn more about joining the initiative, visit the WHV website—and see Enroll Your Hospice. That’s when the VITAS Veterans Program team came in. They helped Debbie receive an eligible Veterans special monthly pension for her dad and, in addition to providing medical care, provided Debbie with emotional support during his illness and after his death. In Atlanta’s metropolitan area, Larry Robert, the Veterans’ liaison for VITAS, works closely with the Veterans Administration (VA), Medicare, Medicaid and other local organizations to help ensure that Veterans and their families receive the care and benefits they’re entitled to. When admitting patients to the hospice program, Larry, who himself served 13 years as a Navy chaplain, conducts a special assessment for every Veteran patient to determine the specific level of support they need. continued on next page NewsLine 11 continued from previous page Robert, who is also one of Georgia’s 15 accredited claims agents with the Department of Veterans Affairs, files claims for Veterans directly. “Many veterans aren’t aware that they’re eligible for benefits from the VA, and we work hard to ensure they receive the specialized care they need,” he said. As part of this commitment, Robert and his colleagues at VITAS work closely with other Veterans’ organizations that VITAS supports. This includes: • Sponsoring Keep the Spirit of ’45 Alive, the Tuskegee Airmen, and Honor Flight, which all work to celebrate and honor Veterans • Working with state and local Veterans’ groups and organizations to advocate for Veterans and ensure they receive the support they need at the end of life • Participating in the Veterans History Project, which seeks to record and document a living legacy of Veterans’ stories that are archived at the Library of Congress as living legacy. These specialized programs and others are critically important for Veterans, Robert said. “As they near the end of life, many become almost obsessed with their military history, regardless of whether they spent one year or 60 in the military.” For this reason, in addition to providing medical care and emotional support, Robert and the Veterans Program team also provide something very important that veterans need: recognition. “It may be difficult for those who are not Veterans to understand this because it might not seem like much, but Veterans really need to make peace with their military experience,” Robert said. “They just want someone to recognize their service and sacrifices.” Paula Sanders is the general manager for VITAS Innovative Hospice Care of Atlanta Metro. 12 NewsLine Free Distance-learning Sessions on Serving Veterans NHPCO’s E-OL (End of Life Online) offers a range of distance-learning courses for staff and volunteers at all levels. Among the offerings are six short sessions on serving Veterans at the end of life—available to NHPCO members free of charge: Understanding Veteran Benefits 30 minutes Having knowledge of Veteran benefits rates high on Veteran and family hospice satisfaction surveys. While this short session won’t make you an expert, it will help you become familiar with the VA benefits that are most likely to be relevant to Veteran patients under hospice care. Service-related Diseases, Illnesses and Conditions 20 Minutes Provides an overview of the various military eras, and their servicerelated diseases, illnesses and conditions—from both the clinical and benefits perspectives. Understanding the VA 30 minutes Provides a basic understanding of the philosophy and structure of the Department of Veterans Affairs and some of the benefits that are available to Veterans. Wounded Warriors: Their Last Battle 1.25 hours Deborah Grassman, the author of Peace at Last: Stories of Hope and Healing for Veterans and Their Families, delivered this powerful plenary at NHPCO’s 11th Clinical Team Conference. She discusses how the experience of war manifests itself in many intricate ways, offering invaluable perspective to those serving Veterans at the bedside. Building a Veteran-centric Culture 30 minutes Provides a context for joining We Honor Veterans in transforming the hospice and palliative care culture to recognize our nation’s Veterans. Hospice Veteran Partnership Program 26 Minutes Provides information about starting a Hospice-Veteran Partnership, as well as how to keep it going and evaluate its success. Visit E-OL on the NHPCO website for general information about NHPCO’s distance-learning program. NewsLine 13 C ACOs Today: Are You Ready? By Lisa Lapin, Michael Ferris, Kara Osborne, Ted Ferris, and Katherine Northcutt, RN reated by the 2010 Patient Protection and Affordable Care Act, Accountable Care Organizations (ACOs) are one part of a national health care overhaul that is designed to cut costs and increase quality. And their numbers are growing. When first initiated, there were 32 ACOs across the country. Today, there are 153 in 40 states, serving 2.4 million Medicare patients. Simply put, ACOs are a group of doctors, hospitals, and other health care providers who come together voluntarily to give coordinated care to their Medicare patients. Their goal with these patients, especially the chronically ill, is to give the right care at the right time, avoid duplication of services, and prevent medical errors. Due to the many restrictions and the complexity of the Affordable Care Act regulations, it is unlikely that hospice providers will be able to serve as an organizing or founding partner of an ACO. However, a hospice can provide its expert services to the ACO—which can be an excellent way to increase its referrals and broaden its reach within the community. This article reviews the basic structure of the ACO, but most of the discussion is devoted to the roles that hospices can play and a suggested action plan if participation is a path the hospice wishes to pursue. 14 NewsLine The Basic Structure of ACOs Today’s ACOs are taking on different configurations depending on local markets, their conditions, and the competition between providers. There are small physician-led ACOs which are usually found in rural areas, and there are large hospital- and health-system based ACOs which are usually found in urban areas (and include both for profit and nonprofit entities). Healthcare systems have emerged as the early adopters by being accountable for the quality, cost and overall care provided by the ACO to the defined patient population assigned to it. Now, more than ever, these healthcare systems are focused on providing higher-value, post-acute care that will result in improved risk management and the control of outcomes that impact Medicare reimbursement, particularly for rehospitalizations. In the coming months, hospices can control their own destiny by becoming proactive and participating in the development of a local ACO, and by forging alliances with those ACOs that fully utilize hospice and palliative care programs as the lowest-cost, highest-quality venue of care for select patients. Hospices can control their own destiny by becoming proactive and participating in the development… Hospital SNF Behavioral Medicine Pharmacy Outpatient Clinics ACO Hospice Home Health & Rehab Physicians continued on next page NewsLine 15 continued from previous page The Roles Hospice Can Play Hospice providers can play various roles in the ACO, including: • Providing care for the terminally ill • Providing care for the highestacuity patients, without regard to terminal diagnosis • Reducing costs by keeping high-need patients in the most economical venue of care. The value hospice brings to the ACO relationship include: • Reduction in hospital readmissions • Care coordination across the continuum • Reduction in costs for postacute episodes • Reduced emergency room visits and hospitalizations • Shared payment risk based on outcomes • Decreased in-patient hospital mortality rates • End-of-life care expertise • Palliative care expertise. A hospice’s participation in the ACO can contribute significantly to the alleviation of patient and family suffering and, at the same time, ease some of the ACO’s 16 NewsLine challenges, including readmissions and length of stay. As well, with appropriate recognition and support, the emerging field of palliative care will relieve symptoms, including physical and emotional pain; improve patient– professional communication and decision-making; and coordinate care across the spectrum of health care settings. As you can see, hospice and palliative care providers can offer a very attractive range of benefits to the ACO and its patients. And as we already mentioned, they, in turn, will gain the ability to broaden their reach within the community. It can clearly be a win-win situation. Taking Advantage of the Opportunity If you can prove to your local ACO that your hospice can provide care coordination to its sickest patients while decreasing hospital lengths of stay, admissions/readmissions and infections, you will be providing the obvious solution to the ACO’s biggest challenges. (As we already know, reimbursement rates for hospitals are being tied to readmissions.) The eventual goal, of course, is to collaborate so well with the ACO that your services become the logical extension of the care it provides to patients. Disease management programs are a good example. Those that reduce hospital readmissions would be invaluable to ACOs, such as a CHF program that focuses on reducing the readmission rates of that population. Other examples are using adult learning techniques for better patient and family education; closer collaboration with case managers to get patients home faster; and working with the emergency room department to implement processes that will prevent readmissions. What to Do Today First, Recognize There May Be Risks A key consideration for participation in an ACO will be the risk assumed by the provider. For hospices, this becomes an entirely new paradigm. In the current fee-for-service (FFS) payment environment, incentives to providers are not aligned with the goal of payers to manage costs, or with the goals of patients to receive high-quality, patient-centered care. Our silo-based payment system encourages inefficiency and waste, as providers are not encouraged to share information and coordinate care. Accountability in the ACO model is based on aligned incentives across silos while still maintaining a FFS payment structure (at least in the short term). There are a few mechanisms that are being used to increase accountability, including shared savings arrangements, in which providers get to keep a portion of savings; shared savings plus risk, which generally refers to providers who not only have the opportunity to share in the savings but are also at risk for some portion of overspending; and partial capitation, which allows providers to receive upfront payments for a portion of care for which they bear the financial risk. Participation in an ACO may, thus, require a willingness to be part of a “less-than-traditional” relationship—and bear some financial risk. Get to Know the Local Players It’s important to learn who the local players are and where they are in the process of an ACO’s development: • Keep tabs on any ACOs that are announced in magazines, newspapers, or online. A helpful resource are publications such as Becker’s Hospital Review that actively track the announcements of ACOs around the country. • Once you learn an ACO exists in your service area, you need to get access to its data (e.g., mortality rates, lengths of stay, top chronic diseases that are causing readmissions). Knowing this information will help you when it is time to approach the ACO about how your organization can help solve its problems. 7 Smart Questions to Ask When You’re at the Table When you’re ready to meet with your local ACO to discuss how your organization can help serve its most frail and medically complex patients, start by asking good open-ended questions to understand its needs: 1. What are the ACO’s plans for providing care for patients with terminal diagnoses? 2. Which patients will the ACO be targeting for care transitions? 3. How will the ACO use hospice and palliative care services? 4. How will the ACO select a hospice and palliative care provider to meet its patients’ needs? 5. What is the plan for those patients who are frequent flyers at the ER? It is also important to “get plugged into” 6. your community and maintain regular dialog with local leaders so 7. you are in the know on any new ACOs which may be forming. The more time you have to prepare, or stay ahead of the curve, the better. As with most changes in our industry, being proactive about this entire process, from the C Suite down, is key. How will the ACO manage chronically ill patients with no further treatment options? What is the ACO’s model for care management related to hospice and palliative care patients? continued on next page NewsLine 17 continued from previous page Develop a Strategy As an organization, you need to formulate goals that dovetail with the new reality of ACOs, and how they will affect you and your community. Creating a strategic plan to compete and win when opportunities arise is an important part of this process. The plan should address how you are going to (1) increase admissions without increasing costs; (2) improve profitability and effect the case mix; and (3) build marketing and education campaigns that efficiently and effectively communicate your service’s value to patients. You will need to perform a thorough GAP analysis of your current capacity to process referrals and its ability to fit together with the needs of the ACO. A solid understanding of where you are now will be a baseline for determining exactly what you need to do in order to provide the ACO’s patients with the highest quality care at a reasonable and sensible cost. The opportunity for your organization, and our industry as a whole, lies in managing the care of the most fragile, highacuity patients in the home setting. Today we are seeing hospitals approaching hospice 18 NewsLine and home care seeking solutions that parallel their own efforts to reduce admission/readmission rates and inpatient mortality rates. Hospices are uniquely positioned to provide the best solutions for many of these highest-cost patients within the post-acute continuum, with a focus and understanding of how to honor the patient’s and family’s preferences at the end of life. However, the demands for measurable outcomes will be high, so you will need to be prepared with hard data to support your case as the best provider to serve these patient populations. There also needs to be early consideration as to how our information technology will integrate with and serve the needs of the ACO. Know how it currently works versus how it will need to work into the future. Effective electronic information exchange with your referral partners and ACOs, as well as with patient and family/caregivers, may be a deciding factor in future referral relationships. Hospices will need real-time data management in order to possess the best information available for decision making related to both the cost and quality of care. Prepare for Growth In today’s world of ACOs, growing hospice referrals takes on a whole new level of complexity. “Care transitions” is one of the hottest buzzwords in medicine and will be at the core of successful ACO operations. How your hospice positions itself as a key component in this process will carry great value, especially among referral partners who are themselves ACO participants (e.g., physicians, hospitals). Marketing campaigns and educational programs will need to be clear on how to communicate the value of the hospice program in this process. Your marketing team needs to become more sophisticated, and must be able to communicate the hospice’s value to referral partners. The idea of selling to the C Suite now enters into the equation as the ACOs become key accounts. The team will also have to develop relationships with more people in each ACO, including nurses, case managers/ discharge planners, pharmacists, care coordinators, hospitalists, and palliative care clinicians. As their ultimate goal, the team will want to become health care system “navigators.” To be successful, your marketing team should be looking for prime opportunities to present case studies and other data that illustrate where your organization can reduce readmissions or help to lower the hospital’s length of stay. Because ACO savings will hinge upon factors like those, it is time to start accumulating data and creating data-driven printed materials to help them reinforce the idea that hospice can take care of those issues. This should go without saying, but make sure your printed materials are easy to read, self-explanatory, and include graphics that reinforce your points at a glance. Now more than ever, your marketing team should be focused on being effective and efficient, and making sure their accounts are rated and organized so that their territory consists of the top 25 best accounts with the highest probability of producing referrals and admissions. Also make sure that you are tracking the right metrics and making the expectations for productivity clear. Your marketing team should also be sure to use the most effective messaging for each audience, be that your referral partners, the ACO, or members of your community. Each subsection responds to a different message because they each have different needs and challenges, so your As their ultimate goal, the marketing team will want to become health care system ‘navigators’ continued on next page NewsLine 19 continued from previous page marketing team should be careful about matching the messaging to those individually unique needs and problems. Your hospice also needs to be easy to work with—from the person answering the phone, to the marketing representative, to the nurse in the home. And above all, don’t allow a new focus on ACOs to distract staff from adequately supporting traditional Medicare and other non-ACO patients. When You Don’t Want to Participate What if your hospice decides not to participate in an ACO, or doesn’t have the opportunity to? As a long-term strategy, you should analyze your service area to determine the needs of the non-ACO referral partners and patients. You should also focus and expend resources to secure the segment of the market that you are able (and willing) to serve. There should be many opportunities to serve patients within your community, regardless of your involvement in ACOs. 20 NewsLine Time is of the Essence Working with ACOs can be a “win-win” situation. You bring a great many benefits to the table and, in return, you will broaden your reach in the community. But time is of the essence since competition to be the ACO’s provider of choice will be great. Lisa Lapin and Michael Ferris are principals in Simione™ Healthcare Consultants, while Kara Osborne and Katherine Northcutt serve as senior managers, and Ted Ferris serves as a consultant. Simione was the first organization of its kind dedicated entirely to home care and hospice, a commitment it maintains today. Lisa Lapin and Mike Ferris presented on this topic at NHPCO’s 2012 Management and Leadership Conference and the session is now available for purchase on CD or as an MP3 file. Visit DC Providers Online, select 2012 MLC, and enter “5F” in the Keyword Search. Then scroll to the session listing, “Accountable Care Organizations as Part of Health Care Reform.” Introducing the rewards program... Your National Hospice and Get Palliative Care started Organization with membership 500 FREE entitles you to Links at exclusive access to sign-up AchieveLinks®¸ the rewards program that’s as unique as you. Just visit www.AchieveLinks.com to activate your FREE membership. Then, your everyday purchases will earn LinksSM reward points towards must-have merchandise and once in a lifetime experiences. Advertisement Advertisement Don’t miss out on your rewards! Activate your FREE account now. ...that’s as unique as you! www.AchieveLinks.com HEALTHCARE CONSULTANTS NewsLine 21 In this monthly feature, NewsLine shines the light on a hospice organization which has expanded services or has partnered with other community organizations to reach patients earlier in the illness trajectory— before they may need hospice care. In a Q&A format, members hear firsthand from the organization’s senior leaders who speak directly to the challenges, the benefits, and the lessons learned. 22 NewsLine Kansas City Hospice and Palliative Care (KCHPC) was founded in 1980. During its 32-year history, it has operated as both an independent, community based program and, between 1995 and 2003, as part of a notfor-profit, multi-hospital system. “When the hospitals were sold in 2003, we regained our independence and, over the next years, introduced a range of specialized services that were lacking in our area,” says president/CEO, Elaine McIntosh. “Our organization has a wide-angle lens on the subject matter. We are committed to providing services that meet whatever people’s real needs are, even when those needs don’t always fit neatly into a certain box, such as hospice or home health.” That philosophy and approach to patient care was one of the reasons that KCHPC received the prestigious Circle of Life award in 2010. In the following interview, McIntosh discusses the program developments of the past few years, including KCHPC’s focused attention on educating the community about its breadth of services. Between 2008 and 2011, your organization introduced several specialized programs. Why such ambitious expansion? The hospice model is a beautiful thing, but most certainly does not address the needs and circumstances faced by everyone with a life-threatening diagnosis. Quick Facts About KCHPC • Founded in 1980. • Serves three counties in Kansas and six counties in Missouri. • Employs 300 FTEs and 525 volunteers. • Opened Kansas City Hospice House in 2006, a 32-bed inpatient facility. • Average Daily Hospice Census: 289. • Offers a range of non-hospice services: 2008: Launched Palliative Home Care. 2009: Acquired Solace House Counseling Center, providing grief and bereavement support for children and adults. 2009: Opened Passages, providing counseling services for difficult life transitions. 2010: Introduced Kansas City Palliative Medicine, providing physician consultation services to anyone in the community. Also serves as a clinical site for the University of Kansas Hospice and Palliative Medicine Fellowship. We know that some people will never make the emotional leap it takes to say yes to hospice, which is a major reason for palliative home continued on next page NewsLine 23 continued from previous page care. We also realize that grief and bereavement has it own specialized knowledge base, and that the type of services which really are effective for people are often not paid for. This prompted us to acquire Solace House and offer the counseling services free of charge. There are also many challenges associated with the transitions that come with an illness— loss of a loved one, becoming a caregiver, aging, or the accompanying financial issues— so the Passages program was introduced in 2009, extending our specialized expertise and understanding to another group of people. While each of our programs has its own story, underlying them all is a mission that’s broader than the Medicare hospice model. Our mission—to bring peace of mind, comfort, guidance and hope to people who are affected by lifethreatening and life-limiting illness—encompasses the continuum of the ill person’s experience, from diagnosis to outcome, and beyond for loved ones. 24 NewsLine What are some of the key factors that contributed to your success? Having a smart and willing board of directors, all of whom know our mission and are not afraid of having us take on new initiatives has certainly been key. We have a lot of longevity on our board, which makes for deep knowledge and deep thinking at the governance level. We have also been fortunate to retain sharp staff who feed information to the organization about what they see in the community and are willing to take on difficult challenges— of working through the conundrums and staying flexible in spite of rigid regulatory and financial pressures. But above all, an organization can’t be afraid to fail, which we have done many, many, many times. Palliative Home Care was one of the first programs introduced. How is it staffed? What services are provided? We had a service that vaguely resembled palliative home health for a number of years. But it became clear that if we were really going to serve the patient populations we envisioned, we had to put a lot more behind it. Formalizing the team, staffing it, understanding the differences between palliative care and hospice were very important. The PC Home Care Team looks a lot like a hospice team, although there are some significant differences. It has a team manager, registered nurses, home health aides, social workers, a chaplain, and a medical director. We contract for the therapies, although all KCHPC staff is available to patients. Our art and music therapists, child/teen specialist, and lymphedema therapist all help when needed. Our services also bear great similarity to those in hospice— symptom management and related teaching, counseling, case management and so on. However, because many of these patients are at an earlier stage of their disease and receiving aggressive treatments, their care is very complex. The nursing staff is often dealing with multiple specialists who are involved with one patient’s care. There could easily be an oncologist, a nephrologist, and an internist still quite involved in the patient’s care. While palliative care allows us to reach people earlier in the disease process, it also gives them the opportunity to be in the ambiguous zone when treatment choices are being explored and made. One day it’s full steam ahead with treatment, the next day it’s not, and so it goes, back and forth. There is a tremendous amount of teaching involved to help the patient and loved ones understand the disease, the treatments, and various complications, so they can then make decisions that are right for them. What type of patients does Palliative Home Care serve? Our patients have all diagnoses, but we see a preponderance of people with cancer. Many are in treatment, and many are going through the transitions associated with diagnosis and treatment— the transition from being a well person to a patient and all that involves. From being independent to dependent, from going home and returning to the hospital and back again, from receiving cureoriented care to comfort-oriented care and, sometimes, being discharged altogether. In terms of age, all our patients are over 18, but the skew is to the younger patient, often with both children and parents living, which makes continuing aggressive treatment the more desirable course. It also makes these patients more resistant to hospice, which unfortunately has become a proxy for the end. (The phrase “end-of-life care” is not helping us in this regard. I’d like to vote the phrase off the island!) We also have a pediatric program which sees newborns to 18-year-olds. Although a certain percentage of patients are clinically appropriate for hospice, they are not quite “there” in their hearts, and some never get there. A certain number of patients die in the program, some transfer to hospice and some are discharged when they stabilize. You introduced a Palliative Medicine program in 2010 as a clinic within your hospice inpatient facility. How is that going? Patients with all diagnoses, including the frail elderly in decline, are seen under this program, and the majority are often in transition regarding their goals of care. Although a certain percentage of patients are clinically appropriate for hospice, they are not quite ‘there’ in their hearts… We have five physicians on the staff and one advance practice continued on next page NewsLine 25 continued from previous page nurse who rotate through the various sites of care, including the clinic, but we are seeing an increasing number of palliative consults at home. Our consults, however, also extended to some oncology practices. These practices were recently acquired by the large academic medical center in our area and the University’s Palliative Care physicians have taken over those visits. We actually think this will improve access to the palliative care consults at the oncology clinic level, because of the overall integration of the oncology practice with the medical center. How many patients are you serving under each PC program? Palliative Home Care has a census of about 35 and can admit about 250 patients annually. Our Palliative Medicine program will see about 100 patients annually. Has offering these services helped increase referrals and earlier access to your hospice? Palliative home care definitely opens the door earlier to some patients. It has not impacted our hospice length of stay 26 NewsLine and it’s hard to say about increasing referrals as there are so many variables that impact this. Roughly one-third of our palliative home care patients ultimately transition to hospice, but sometimes that is only because they are at the end of life and need access to the Hospice House. How are these programs funded—and is it a challenge? Both palliative care programs are subsidized through charity events, grants, and donations that come to us through our Foundation. In the Palliative Home Care program, reimbursement does not cover the per-visit costs, or the range of services needed. Some commercial insurers recognize the value of palliative care and readily make coverage exceptions, but this does not address the shortfall. In the Palliative Medicine program, the physician visits are extremely expensive and sorely under-reimbursed. A consult may well take a physician an hour or more. The medical discussion and the family meeting are very time intensive. The reimbursement for this does not even cover the physician’s direct time, let alone all the other associated costs. Then, make it a home visit with travel time and you are really in the red. It should also be understood that the back-office costs of all these palliative programs are fairly high. Credentialing, billing, communication with the payers, etc., can be expensive. Has the location of the Palliative Medicine program within the hospice inpatient facility created any confusion or been a deterrent? Not so far as we can tell—and it does have a separate entrance. That said, we have not yet marketed the program heavily, primarily because the medical staff is already quite busy. In 2010, you hired a new marketing team to bring greater awareness to your services. How is that going? As is true in other places, our local market is quite glutted with hospices and it is increasingly difficult to reach physicians and others. We have certainly found that many of our traditional referral sources did not know of all the services which could be obtained from KCHPC. We do continue to focus on the traditional referral sources as well as the general public. A television campaign was launched in 2011 to bring awareness to all of our programs, and to begin to define palliative care to the general public. However, it’s a bit too soon to tell its effectiveness. Any words of advice for hospice providers which are looking to expand in the current climate? Have a strong balance sheet. Palliative care, in any form we have tried, is not profitable and requires considerable subsidy. But, we should all keep our eyes on how things are evolving. In our worst nightmare—an unbundled per diem—we are going to need to think long and hard to figure out ways to make sure people still receive the magnificent care which is currently known as hospice. Any final thoughts? The very idea of dying is of course not easily accepted by most people, and that’s where palliative care becomes especially important. It is incumbent on us to bring support to people in a way that respects where people are coming from, rather than trying to convince them to accept hospice. One of the promises of palliative care, which is also potentially true of the as-yet-untested “concurrent care” model, is that it allows people to hold seemingly contradictory notions—to focus on the possibility of getting well and the possibility of death; to obtain aggressive and expert management of symptoms as well as treatment aimed at curing the disease; to have hope for extended life as well as having the benefits of hospice/ palliative care. It’s incumbent on us to bring support to people in a way that respects where they are coming from… Are you offering a non-hospice service? And would you like your work spotlighted in NewsLine? Complete our brief questionnaire. NewsLine 27 28 NewsLine NHPCO’s National Council of Hospice and Palliative Professionals (NCHPP) is comprised of 48,000 staff and volunteers who work for NHPCO provider-members. Organized into 15 discipline-specific sections that are led by the NCHPP chair, vice chair and 15 section leaders, NCHPP represents the perspectives of the interdisciplinary team—the very essence of hospice care. These individuals—together with each Section’s Steering Committee—volunteer their time and expertise to a variety of NHPCO projects to help preserve and develop the “interdisciplinary model” within the evolving world of Featured This Month: Bereavement Professional Section hospice and palliative care. In this NewsLine feature, we shine the light on a different NCHPP Section each month, so all members can benefit from each discipline’s perspective on important topics. It will also help members learn more about the work of NCHPP and how to get more involved—whether it’s taking better advantage of some of the Section’s free activities or joining a Section’s Steering Committee. This month we spotlight the Bereavement Professional Section, and an article by Beth McGuire.… continued on next page NewsLine 29 continued from previous page How a Veteran’s Experience Can Inform By Beth McGuire, MDiv, NCBF, CT W hile in the lobby of a hospice inpatient facility, George, a Veteran of World War II, reflected on the impending death of his wife, Olivia. “This reminds me of the time when my ship was stationed off the shore of Japan,” he said. “We were aiming and firing at the Japanese on shore who were hiding inside graves on the side of the hill and firing on our ships. My bunk was on top of four boxes of super-quick fuses that were designed to explode immediately. I slept on top of them. It was hurry up and wait. You work your ass off, retire a little bit and then go back and do some more waiting. It’s the waiting that gets you. You know the outcome is inevitable. It’s a matter of time. There isn’t much to occupy the time and you try to make the most of it you can.” George’s story reminds us as hospice professionals that we cannot ignore the significant context of the hospice patient or client as a Veteran and how their military service may impact their views of life and death. And while Veterans share a unique culture, their military service experience varies greatly depending on whether their service experience was during war or peace time, what war or conflict they may have served in, and how they were received when they returned home. These different experiences are very apt to affect their view and the views of their family members concerning end-of-life care. To serve George well, the hospice clinician will need to empathically grasp those courageous and anxiety-filled events off the coast of Japan that were the context of his moment-tomoment experience. Today the imprint of those experiences are measured in both the anticipation that he feels as he faces his wife’s impending death and in a strong new awareness of his own mortality. 30 NewsLine Bereavement Practice NCHPP Bereavement Professional Section Steering Committee Section Leader: Getting at the Experiences Sometimes our understanding of the complexity of a Veteran’s grief response can come from unexpected places. For example, a Family Evaluation of Bereavement Services (FEBS) survey that was sent to a grieving Veteran and his spouse was returned with some eye-opening commentary from the spouse. She first related that her husband, Jim, was a combat Veteran and that “he grieves alone.” Later she went on to speak of her own distress in living in a home with multiple urns of cremains that Jim could not bring himself to bury, scatter or otherwise distribute. The military teaches its soldiers to be stoic or indifferent to pleasure or pain. While this is essential on the battlefield, it may interfere with a peaceful death or effective bereavement. The We Honor Veterans website suggests many ways to engage Veterans in conversation to understand their military experience and identify their needs: Tell me about your military experience? When and where did you serve? What did you do while in the service? How has military service affected or imprinted you? A few basic questions like these can begin to help the hospice clinician to more fully comprehend the multiple “colors” of the Veteran’s military context. Recognizing What’s Important to Them Proud, stoic, and of strong faith, 59-year-old Michael was admitted to his local hospice with a diagnosis of metastatic lung cancer. Mike was a Veteran of the Vietnam War and his military service had affected his entire life ever since returning home. Emily, his wife of 15 years, readily described their chance meeting and deep commitment to each other. As Mike’s condition deteriorated—with his cognitive, motor and communication skills becoming compromised—Emily became his spokesperson as well as his caregiver and protector. continued on next page Rex Allen Providence Hospice Seattle, WA [email protected] Committee Members: Patti Anewalt Hospice and Community Care Lancaster, PA Diane Snyder Cowan Hospice of the Western Reserve, Inc Cleveland, OH Robin Fiorelli VITAS Innovative Hospice Care San Diego, CA Brenda Kenyon St. Vincent Hospice Indianapolis, IN Beth McGuire, HMC Hospice of Medina County Medina, OH Terri Ray Gaston Hospice, Inc. Gastonia, NC Brian Shaffer Odyssey Hospice Gahanna, OH NewsLine 31 continued from previous page He slept most of the day, waking only at mealtimes to be fed by Emily. Each tiny spoonful that Mike was able to swallow was served with patience and large amounts of love. Each meeting with Mike and Emily brought the hospice team new insights related to his military service. It soon became apparent that Mike had been experiencing Post Traumatic Stress Disorder for some time. Yet, no matter how debilitating the manifestations of PTSD had been, the foundation of his self-esteem and identity were rooted in his military service. Mike wore his Veteran cap proudly and kept the American flag over his bed. His trips to the VA hospital were viewed as homecomings as he cherished his time with the Veterans who understood his experience. Over the years, the service medals Mike had earned while serving as a rifleman in the Marines had somehow been lost. At Emily’s request, the hospice team worked successfully to replace Mike’s medals and 12 days later presented him with new ones. No longer able to see, Emily described the medals and handed them to him. Mike held the two medals up to his eyes, turned them over in his hands and, to Emily’s surprise, saluted her. He said, “God Bless You”—the first clear words she had heard from him in weeks. In addition to replacing his medals, the hospice team managed Mike’s symptoms, supported his family and continues to offer bereavement assistance to Emily. In Summary The stories of George, Jim and Mike remind us that understanding the impact of the patient’s military service on family and life can help the hospice clinician better assess and understand the assortment of grief reactions that may need to be addressed and held as part of a plan of care——from anger to relief to ambivalence to confusion. By always meeting our Veteran clients and families where they are, and respecting the contexts of their life experiences, we will provide a level of service that is truly empathic and filled with a compassion that is so richly deserved. 32 NewsLine As the We Honor Veterans website reminds us, simple acts of gratitude, whether at the end of a Veteran’s life or as we support them through their bereavement, can make all the difference. Be sure to visit the website for more guidance: www. wehonorveterans.org. Beth McGuire is the director of bereavement services at HMC Hospice of Medina County, a position she has held since 1997. She is also an ordained elder in the United Methodist Church, and certified in Thanatology and Critical Incident Stress Management. She is serving her first term as a member of the NCHPP Bereavement Section Steering Committee. The author extends special thanks to members of the Bereavement Professional Steering Committee for their contributions to this article. Turn the page for details on the Section’s Free Activities... Resources for Further Information: We Honor Veterans Gold Star Wives Department of Veterans Affairs—Mental Health Gold Star Moms Society of Military Widows U.S. Department of Veterans Affairs—Trauma and PTSD Vet Centers Military One Source Veterans Families United Foundation Tragedy Assistance Program for Survivors (Taps) Hospice Foundation of America Peace at Last: Stories of Hope and Healing for Veterans and Families by Deborah L. Grassman continued on next page NewsLine 33 continued from previous page Free Section Activities Monthly Chats The NCHPP Bereavement Professional Section holds monthly chats—or conference calls—which are open to NCHPP members. Each chat, which is facilitated by a member of the Section’s Steering Committee, is held on the first Wednesday of the month, from 2:00 to 3:00 p.m., ET. Note: Due to the NHPCO Clinical Team Conference, no call will be held in November. Joining the Chats: Call 605-475-4825, and enter the Participant Access Code when prompted: 699517#. (Please do not dial in earlier than 1:55 p.m. on the day of the call.) Coming Up: On December 5, “Social Media and Bereavement Support” will be discussed. Quarterly Bereavement Coordination Chats For those new to bereavement coordination, the Section has also introduced quarterly chats that will focus on issues related to program development and structure. These quarterly chats are held on the third Thursday of January, April, July, and October from 3:00 to 4:00 p.m. (ET). For details, contact Bereavement Section Leader, Rex Allen. 34 NewsLine Section eGroup on My.NHPCO One of the best ways to exchange ideas and tips with your colleagues is through the NCHPP Bereavement Professional Section eGroup on NHPCO’s professional networking site, My.NHPCO. (It’s free for staff and volunteers of NHPCO provider-members.) Each NCHPP Section has an eGroup on My.NHPCO (much like the former listserves, but better), plus an eLibrary where members post helpful information and resources to help one another. If you’re not already a My.NHPCO user, visit the homepage and see “Getting Started” in the top right corner. For specific questions, contact the NHPCO Solutions Center at 800-646-6460 (Monday through Friday, 8:30 a.m. to 5:30 p.m., ET). NewsLine 35 Short Takes eHospice Now Live! In his October NewsLine message, NHPCO president/CEO, Don Schumacher, announced a new and exciting collaborative venture to serve professionals and consumers around the globe: ehospice. Organized into country editions… What it is… On October 1, the UK as well as Australia, Canada Africa, Kenya, South Africa, India and International Children launched their editions. The U.S. version, which is being spearheaded by NHPCO and geared specifically for health care professionals, will launch later this year. It’s a digital resource that will feature an app for mobile, web and tablet devices. Its goal is to serve as a single point of access to information, best practices, and hospice and palliative care providers around the globe. What it features… • Free access to news, commentary and analysis from hospice and palliative care professionals worldwide. • Best practices, inspirational stories, photo galleries, job announcements, and events. There will be specific country and regional editions as well as an international edition and an international children’s edition. All will be accessible via the website and a single app. Register, sign up for alerts, submit content… Take a few minutes to explore the new website, register, and sign-up for alerts by country and/or topic. (Once the U.S. edition is launched, it will be listed among the options.) • An interactive directory listing hospice and palliative care providers worldwide. (With the touch of a button, readers will be able to access the expertise and experience of the global hospice and palliative care community.) NHPCO extends special thanks to David Praill, the CEO of Help the Hospices and the international representative on the NHPCO board of directors, for leading this collaborative venture. His welcome message offers insight on the vision and rationale behind it. 36 NewsLine Serving Veterans: A Free Tool to Help Evaluate Your Performance Last year NHPCO introduced a “Veterans-specific” version of the post-death survey, the Family Evaluation of Hospice Care (FEHC), to help hospices evaluate the care they provide to Veterans. This version, called “FEHC-V,” includes six questions (as the last section of the survey) that relate to the care specifically provided to Veterans and their family caregivers. Using FEHC-V The FEHC-V survey is available, free of charge, to any organization that wishes to use it—and all of the necessary materials are available online: FEHC-V Fact Sheet FEHC-V Survey (recommended format) FEHC-V Survey Compressed Version (different format with fewer pages) Tracking and Analyzing Results While NHPCO prepares personalized quarterly reports for provider-members which submit their FEHC data to NHPCO, as well as an annual, national-level summary report, these reports do not yet include results for the Veterans-specific questions. Because FEHC-V is still relatively new, there is not sufficient volume to allow for that level of analysis. Not Familiar With FEHC? The Family Evaluation of Hospice Care (FEHC) survey is the most widely used tool for measuring and tracking the quality of hospice care being provided to patients and families. During development, the survey was tested and validated for consistency and accuracy in capturing the perception of quality from the bereaved family’s perspective. With nearly a decade of use by the hospice community, the FEHC tool has proven to be invaluable for identifying, assessing, and tracking quality indicators as well as setting performance improvement priorities. Last year, over 200,000 FEHC surveys were submitted to NHPCO by providers nationwide. Visit the NHPCO website to learn more about FEHC. However, to assist provider-members in tracking and analyzing results from these Veterans-specific questions, NHPCO created a FEHC-V Data Analysis Workbook. Specific questions concerning FEHC and the new FEHC-V tool can be directed to [email protected]. NewsLine 37 Member News and Notes HPCANYS Receives Health Foundation Grant The Hospice & Palliative Care Association of New York State (HPCANYS) has been awarded grant funding from the New York State Health Foundation to support the expansion of pediatric palliative care services. The two-year venture will design and implement a faculty development program to support further strategic dissemination of the HPCANYS Interdisciplinary Pediatric Palliative Care curriculum. By increasing the size of a qualified faculty in identified regions of New York State, HPCANYS seeks to increase the number of health care professionals who are trained in the core precepts of pediatric palliative care and, in so doing, expand access to this underserved population. Kafi Wilson Appointed Assistant Medical Director Unity (Green Bay, WI) has appointed Kafi Wilson, MD, to its clinical team as an assistant medical director. Prior to joining Unity, Wilson practiced as a hospitalist for six years. She is a graduate of the University of Alabama’s School of Medicine where she completed a rotation at the Balm of Gilead, the first inpatient palliative care unit in Alabama—an experience that she says deeply influenced her career. Margaret Conklin Appointed to NC Board of Nursing Margaret Conklin, BSN, MPH, has been appointed to the North Carolina Board of Nursing for a three-year term, beginning in January 2013. Conklin currently serves as vice president of clinical services at Hospice and Palliative Care of Greensboro (Greensboro, NC) and has led a successful and passionate career in nursing and home care. Kenneth Zeri Receives Leadership Award The Aloha Chapter of the Association of Fundraising Professionals has selected Kenneth L. Zeri as the recipient of the 2012 Paulette V. Maehara Leadership Award. Zeri, who is the president/CEO of Hospice Hawaii and a member of the NHPCO board of directors, was recognized for his work in spearheading the passage of key legislation, including The Uniform Healthcare Decisions Act in 1999 and the POLST Act in 2009, as well as negotiating with the University Health Alliance insurance company to launch a concurrent care model. 38 NewsLine iative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continuum bereavement hospital nursing hom unity-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continuum bereavement re planning community-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continu ng home advance care planning community-based care palliative care 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planning community-based care palliative care hospice care continuum bereavement hospital nursing hom unity-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continuum bereavement re planning community-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continu ng home advance care planning community-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care avement hospital nursing home advance care planning community-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-base are continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continuum bereavement hospital nursing home advance care plann iative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continuum bereavement hospital nursing hom unity-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continuum bereavement re planning community-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continu ng home advance care planning community-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care avement hospital nursing home advance care planning community-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-base are continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continuum bereavement hospital nursing home advance care plann ative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continuum bereavement hospital nursing hom unity-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continuum bereavement The National Hospice and Palliative Care Organization presents: COLLABORATE ASSESS RELIEVE EVALUATE It’s About How We CARE NHPCO’s 13th Clinical Team Conference and Pediatric Intensive NHPCO gratefully acknowledges the following organizations for providing support for the 13th Clinical Team Conference and Pediatric Intensive: re planning community-based care palliative care hospice care continuum bereavement hospital nursing home advance care planning community-based care palliative care hospice care continu Platinum Conference Supporter: Gold Conference Supporter: Silver Conference Supporter: Bronze Conference Supporters: NewsLine 39 Tip of the Month The Comprehensive Assessment and Initial Plan of Care The NHPCO Regulatory team has received many questions from providers about the timing of the comprehensive assessment and the development of the initial patient plan of care, so this brief review may be helpful. Comprehensive Assessment Per the Centers for Medicare and Medicaid Services (CMS), the comprehensive assessment must be completed no later than five calendar days after the effective date of the hospice notice of election. In other words, the effective day of hospice election does not count as one of the five days. As an example: If the patient’s election of hospice is effective on a Monday, then the hospice has until Saturday to complete the comprehensive assessment. Initial Plan of Care All members of the interdisciplinary team must be involved in the comprehensive assessment process in order to identify the patient and family’s “physical, psychosocial, emotional and spiritual needs” and be in the position to contribute to the plan of care that will address those needs. The RN, in consultation with the other team members, must consider the information gathered from the initial assessment as the team develops the plan of care and determine who should visit the patient and family during the first five days of hospice care, in accordance with the patient and family’s needs and desires and the hospice’s policies and procedures. [Medicare Hospice CoPs (418.54(b)] There is no specific timeframe for development of the initial patient plan of care in the Medicare Hospice CoPs. However, since the comprehensive assessment must be completed within five calendar days after the effective date of the hospice notice of election, the initial plan of care should be developed from the outcomes of the comprehensive assessment shortly thereafter. Other Questions for the Regulatory Team? Email [email protected]. 40 NewsLine Where can hospice palliative care leaders engage with… Don Berwick Ellen Goodman Dan Heath ■ The former CMS Administrator and Founding CEO of the Institute for Healthcare Improvement, Don Berwick? ■ Fast Times columnist, best-selling author and Senior Fellow at Duke University, Dan Heath? ■ The nationally-known former Boston Globe Columnist and the CoFounder and Director of the Conversation Project, Ellen Goodman? Only one place… NHPCO’s 28th Management and Leadership Conference April 25-27, 2013 Gaylord National Resort and Convention Center National Harbor, Maryland www.nhpco.org/MLC2013 NewsLine 41 Videos Worth Watching The 3 Winning Videos from the 2012 Creative Arts Contest! ntest Creative Arts Co s a video entrie and social medi of photography and creativity the winning to the talent d to showcase true testament NHPCO is prou Contest…. A try. Creative Arts across the coun all bers from the 2012 NHPCO mem Contes Creative Arts © 2012 NHPCO t Winners On November 5th—at the opening day of the 2012 Clinical Team Conference—NHPCO will announce the winners of this year’s Creative Arts Contest, including three wonderful videos. Be sure to bookmark www.nhpco.org/awards and check out these winning contributions. 1731 King Street, Suite 100 Alexandria, VA 22314 703/837-1500 www.nhpco.org • www.caringinfo.org NewsLine is a publication of the National Hospice and Palliative Care Organization Vice President, Communications . . . . . . . . . . . . . . . . . . . . . Jon Radulovic Editor . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Sue Canuteson Advertising Inquiries . . . . . . . . . . . . . . . . . . . . David Cherry, 703/647-8509 Membership Inquiries . . . . . . . . . . . . . . . . . . . . . . . . . . . 800/646-6460 Copyright © 2012, NHPCO and its licensors. All rights reserved. NHPCO does not endorse the products and services advertised in this publication. All past issues of NewsLine are posted online: www.nhpco.org/newsline. Links to Some Resources on the NHPCO Website Quality and Regulatory Quality Reporting Requirements QAPI Resources Regulatory Center Home Page Past Regulatory Alerts Past Regulatory Roundups Hospice Compliance Calendar Staffing Guidelines Standards of Practice Quality Partners Self-Assessment System Outreach 2012-13 Outreach Materials Resources to Reach Underserved Populations Professional Education 2012 Monthly Webinars 2013 Monthly Webinars End-of-Life Online (distance learning courses) Webcasts NCHPP Home Page Publications Past issues of weekly NewsBriefs Past issues of monthly NewsLine Affiliates: Past issues of ChiPPS Newsletter Quarter 4 – 2012 FOCUS ON COMPASSION a quarterly newsletter Roberto Mansanja and Neema Vesso of Bumbuli Hospice meet some of the generous students of Superior Elementary Superior Elementary Student Council President, Henry Rock Elementary School Students Raise Funds for Hospice in Africa A Special Visit from Hospice Bumbuli Shows Them the Impact of Their Generosity Last Spring, HospiceCare of Boulder and Bloomfield Counties in Colorado received an inspiring donation. The gift came from students of Superior Elementary specifically to benefit HospiceCare’s FHSSA partner, Bumbuli Hospice in Tanzania. The students, who raise money each year for non-profit organizations, decided this year they wanted to make an international impact. Their goal was to raise $1,000 to be divided between another organization and Bumbuli, and they exceeded that goal by $100. The funds were raised through a school-wide competition among grades (with the winning grade earning a Popsicle party and extra recess time) as well as a fundraising concert which opened with a beautiful rendition of the Lion King’s “Circle of Life.” Just last month they were visited by representatives of Bumbuli Hospice, Neema Vesso and Roberto Mansanja, who shared with the students how their generous gift has been used to fund educational materials for orphans and vulnerable children. Using $55 per student, they were able to purchase for each student: • A mathematics set • Exercise books (9) • Ball pens (5) • Pencils (2) • Backpack • For boys: 2 shirts, 2 trousers, cardigan, 2 pairs shoes, 2 pairs socks • For girls: 2 skirts, 2 blouses, cardigan, 2 pairs shoes, 2 pairs socks “These students have given us a great example of the tremendous impact every contribution makes on our African partners,” said Shelley Smith, FHSSA director. “Through this unique partnership, Superior Elementary students are learning about the invaluable role of hospice in communities here and abroad. And last year these students mobilized resources to touch the lives of children who would not otherwise be able to continue in school after the loss of one or both parents. It’s humbling to witness the capable leadership and inspiring passion of students who are committed to a cause,” said Darla Schueth, president and CEO of HospiceCare. August, 2012 | 1 FHSSA | FOCUS ON COMPASSION Quarter 4 – 2012 International AIDS Conference and Reception FHSSA staff attended the XIX International AIDS Conference, held in Washington, DC in July. Over 20,000 participants attended the conference from around the world. In conjunction with the conference, FHSSA hosted an evening reception to provide a networking opportunity for individuals committed to—or interested in—the role of palliative care in HIV/AIDS internationally, with an emphasis on Africa. More than 100 guests attended and enjoyed the opportunity to network both before and after the short program. The program included a welcome and introduction to the event by John Mastrojohn, executive director, FHSSA, a presentation of a new toolkit on “Integrating palliative care into HIV services” by Kim Green, deputy county director/Ghana, FHI 360, and a country perspective of the importance of palliative care services for HIV/ AIDS treatment by Eunice Garanganga of the Hospice & Palliative Care Association of Zimbabwe. FHSSA Director, Shelley Smith with AIDS Conference reception guests Guests represented a wide array of organizations, such as: • Donors • African national associations • International NGOs • Advocacy networks • Community service providers Co-sponsors of the reception were: Foundation for Open Society Institute, America’s Health Insurance Plans (AHIP), the Community Health Accreditation Program (CHAP), FHI 360, and the Worldwide Palliative Care Association (WPCA). FHSSA Partner, Kenya Hospices and Palliative Care Association Receives Prestigious Award at XIX International AIDS Conference KEHPCA’s Work Selected from Over 1,400 Nominees Worldwide During a special session at the XIX International AIDS Conference in Washington, DC, FHSSA partner Kenya Hospices and Palliative Care Association (KEHPCA) received a Red Ribbon Award in the Treatment, Care and Support category. The Red Ribbon Award is presented every two years at the conference to honor and celebrate community-based organizations for their outstanding initiatives that show leadership in reducing the spread and impact of AIDS. The award is a joint effort of the UNAIDS family. KEHPCA was one of 10 winners chosen from over 1,400 nominees from around the world. KEHPCA is a national association that represents all palliative care providers in Kenya. Its mission is to scale up palliative care services to bridge the gap between those who receive services and those in need. KEHPCA advocates for the integration of palliative care for children and adults into health services in Kenya and addresses issues of accessibility, affordability, and quality. Since 2009, KEHPCA has collaborated with FHSSA in a number of ways including partnering with Hospice of Lancaster County as part of FHSSA’s Partnership program. It is also one of the three original countries involved in FHSSA’s Conquering Pain Project, and in that capacity is leading the development of a country-wide plan for the education of hospital-based health professionals in oral morphine use and prescription. “KEHPCA is a true leader in bringing quality palliative care to those in need in Kenya. We have had the honor of working with them for many years on ground-breaking initiatives and are so pleased that their work has been recognized by this internationally-known award. They are so deserving of this distinction,” said John Mastrojohn, executive director of FHSSA. For more on KEHPCA, visit: www.kehpca.org, and to learn more about the Red Ribbon Award, including past and current recipients, visit: www.redribbonaward.org August, 2012 | 2 FHSSA | FOCUS ON COMPASSION Quarter 4 – 2012 People to People FHSSA and NASW lead a delegation to South Africa This August, FHSSA Executive Director John Mastrojohn and National Association of Social Workers Chief Executive Officer, Betsy Clark led a delegation of hospice and social work professionals to Durban and Cape Town, South Africa to learn first-hand about the approach and challenges to providing palliative care in South Africa. The goal of People to People, is to promote global awareness, facilitate the breakdown of cultural misconceptions, and increase global perspectives. The group began their journey in Durban where they received an orientation led by John Mastrojohn who provided an overview of hospice and palliative care in Africa, emphasizing the tremendous need for palliative care on the continent, followed by informative presentation by a hospice physician who described some of the issues facing hospice and palliative care in South Africa including workforce shortages, and changes in the diseases they care for. People to People delegation visits the International Children’s Palliative Care Network Delegates visited hospice programs of varying sizes as well as nongovernmental organizations such as the Big Shoes Foundation which provides palliative care to children with lifelimiting illnesses, and Stellenbosch University to meet with students and faculty in palliative care. During each of their visits, they spoke with nurses, social workers, and other members of the palliative care team to further their understanding of palliative care in South Africa. These visits were interspersed with trips to cultural sites within the country, including a stop in a Zulu village and a visit to Mahatma Ghandi’s compound. These excursions helped deepen their understanding of various aspects of South African culture. “We learned that the hospice concept and philosophy are quite similar to here in the United States, and they face a similar lack of awareness and understanding of palliative care,” said Clark. “However, many of the challenges they face are unique, including the lack of a formal payer source for hospice care, and an increase in multi-drug resistant HIV-related tuberculosis among other challenges.” Both Mastrojohn and Clark felt the visit was extremely successful in providing a vivid glimpse into providing palliative care in South Africa, and allowing both delegates and hosts to share experiences and gain perspective. Conquering Pain—Enhancing Lives in Africa Phase Two of Collaborative Program to Improve Pain Management Begins FHSSA and the African Palliative Care Association (APCA) continue to collaborate to improve pain management among palliative care patients receiving care in hospitals in six African countries. The initiative builds upon ongoing efforts aimed at strengthening pain management and palliative care as a whole within the health system in each of the countries. The second phase of the initiative is underway, adding two new countries: Rwanda,Swaziland, and Zambia. Funding continues to support a physician training in The Gambia and to expand the work in Rwanda and Zambia. A yearly review meeting was held in Kigali, Rwanda in August. The meeting brought together representatives of public hospitals and ministries of health from across seven African countries, as well as international experts in palliative care and pain management. Participants reviewed the progress being made in strengthening pain management, shared experiences and learned from each other about national policies and responses to palliative care and pain management. The six countries participating in the project included: The Gambia, Kenya, Malawi, Rwanda, Swaziland, and Zambia. Representatives from Uganda also attended and described their experience in the distribution and safe use of morphine in their country. In addition, FHSSA has developed a three-year strategy for the program, entitled, “Conquering Pain – Enhancing Lives in Africa.” For more information on this program, contact FHSSA Director, Shelley Smith at [email protected] or (703) 647-6695. August, 2012 | 3 FHSSA | FOCUS ON COMPASSION Quarter 4 – 2012 Public Screening of Okuyamba Held in Los Angeles Hospice Ambassador and Actress Torrey DeVitto Hosts World Hospice & Palliative Care Day Event The award-winning documentary, Okuyamba, was created through a collaboration of the Center for Hospice Care in South Bend, IN, the Palliative Care Association of Uganda, and the University of Notre Dame Film School and tells the story of a group of nurses working to ease the pain and suffering of people facing the end of life in Uganda, where there is little to no access to adequate pain control, and the majority go a lifetime without seeing a doctor. Okuyamba is available at no cost to hospice programs interested in hosting an awareness or fundraising event using the film. For more information, contact Sarah Meltzer at [email protected] or (703) 837-3149. More information about the film is available at www.okuyamba.com. FHSSA Board member, Doug Wagemann; Actress and Hospice Ambassador, Torrey DeVitto; and FHSSA Board member, Mike Wargo attend the Okuyamba screening. In honor of World Hospice & Palliative Care Day, a global day of awareness and outreach, FHSSA hosted a screening of the film on Wednesday, October 10 at the UCLA School of Theater, Film and Television. Torrey DeVitto, actress, advocate and hospice ambassador served as special host for the event. A five- year hospice volunteer, DeVitto has been working to raise awareness of the compassionate care hospice provides people at the end of life. “This powerful documentary shows how hard it is for people struggling with life-limiting illness in a part of the world where resources are few but caring and compassion are abundant,” said DeVitto. “Okuyamba reminds us that there is hope even in the face of death.” August, 2012 | 4 FHSSA | FOCUS ON COMPASSION Quarter 4 – 2012 FHSSA Launches into Crowdfunding In September 2012, FHSSA created a crowdfunding platform as a new means to raise awareness and support for its work. Sometimes referred to as crowd sourcing or social fundraising, crowdfunding describes an effort by individuals who network and pool their resources to support a cause. FHSSA is pleased to work with Launcht, a company that partners with emerging crowdfunding portals as the technology developer of the crowdfunding platform. “We are pleased to help FHSSA make this platform a reality,” stated Freeman White, CEO and co-founder of LAUNCHT. “Personally, I care deeply about hospice and specifically FHSSA’s partners in East Africa, so enabling them to create an online community through crowdfunding has been very gratifying.” ADD SPECIAL MEANING TO YOUR GIFTS Show the ones you love that you really care. Each time you make a purchase from one of these vendors, they will donate $10 to the National Hospice Foundation. FHSSA Partners will create their own, custom crowdfunding campaign pages and connect with their community, encouraging people to get involved and support their work in Africa. In addition to hosting the Partners, FHSSA will create its own campaigns, encouraging support for other important projects. Donors will be able to go to FHSSA’s crowdfunding site, choose the project and location in Africa that is important to them, and donate any amount. FHSSA encourages all Partners to create their own crowdfunding campaigns. Visit [email protected] to learn more. FHSSA will help Your Campaign Here Technical assistance Tell people about your campaign to help your FHSSA partnership in Africa. Let them know the impact you are making with their support. Complete review of your campaign Marketing and promotion Assistance with gift administration Transfer your funds raised to your Partner FHSSA Partners – How to Sign Up? Tell your story. Include the impact with compelling visuals. $500 Raised of $5,000 Goal 3 funders 38 Days remaining Or if gift cards are what you’re looking for, TisBest Charity Gift Cards allow the recipient to make a donation to one of 250 national charities, including NHF! www.nationalhospicefoundation.org/ TisBest Remember also to purchase your greeting cards through Cards for Causes, and 20% of your purchase will go to The National Hospice Foundation! www.cardsforcauses. com. They offer cards for every occasion! These programs will run through 2012 so include NHF for all holidays to add special meaning to your gift purchases. 3 Contact FHSSA: [email protected] www.nationalhospicefoundation.org/Shop 3 703-647-5176 3 $150 investment 3 Develop 60-day campaign(s) Fund This Campaign August, 2012 | 5 FHSSA | FOCUS ON COMPASSION Quarter 4 – 2012 Combined Federal Campaign If you are a federal employee, you can participate in the annual Combined Federal Campaign (CFC), which runs from September 1 through December 15. Support through the CFC will help fund the work of FHSSA and its Partnership Program. The CFC number to use is: FHSSA #11018 Does your employer offer matching gifts? Many employers have matching gift programs that can double or even triple your contribution. Make the most of your donation by requesting a matching gift form from your employer. If you send a completed and signed form with your gift, we will take care of the rest! Not sure? Want to learn more? Contact Sarah Meltzer at: [email protected] or 703-837-3149. The Foundation for Hospices in Sub-Saharan Africa is now doing business as FHSSA. www.facebook.com/FHSSA 1731 King Street, Alexandria, VA 22314 CFC# 11018 • (703) 647-5176 www.fhssa.org • [email protected] www.twitter.com/FHSSA_news www.youtube.com/FHSSA August, 2012 | 6