headliner - Brain Injury Alliance of Oregon
Transcription
headliner - Brain Injury Alliance of Oregon
the HEADLINER Winter 2012 Vol. XIX Issue 1 The Newsletter of the Brain Injury Alliance of Oregon What’s Inside? The President’s Corner Page 2 2012 Brain & Spinal Cord Injury Conference Highlights Board of Directors Page 2 Professional Members Page 2-4 BIAOR Calendar Page 5 The Lawyer’s Desk Page 5 Neuropsychology Page 6 2012 Conference Speakers Page 7 Conference Registration Page 8 Brain Injury 101 Page 9-10 Idaho Update Page 12 Temper Outbursts Page 13 Impaired SelfAwareness Page 15 Valentines Dance Page 16 Stem Cell Transplant Page 17 Fact of the Matter Page 19-20 Silent Stroke Page 21 Books to Order Page 22 Resources Page 24-25 Support Groups Page 26-27 The Headliner Attendees can expect the very latest information on brain injury litigation, medical, research and practical information at this three-day hands-on event considered to be a "must attend" event for all professionals and caregivers working with people with brain and spinal cord injury. The conference will be held in conjunction with the 29th Annual Meeting of the Brain Injury Alliance of Oregon (BIAOR). The conference features an all-star cast of top trial attorneys, medical experts and other professionals who will present a broad array of practical information covering the latest literature, diagnostic testing methods, rehabilitation, case management, trial techniques and cutting-edge demonstrative evidence. Attorneys will also benefit from an overview of the medical science of brain injury from an outstanding faculty of researchers and clinicians presenting the very latest in brain injury science, treatment and testing. The largest educational brain injury conference each year in the Pacific Northwest is the 10th Annual Pacific Northwest Brain & Spinal Cord injury & Disease Conference offering leading experts presenting state-of-the-art information about brain & spinal cord injury treatment, therapies, rehabilitation, technology, latest research findings, best-practice techniques, survivor and caregiver information and trainings. Additionally for professionals, the Annual Conference is the place to meet and network with professionals working in all disciplines related to brain and spinal cord injury. Moreover, for families and people with brain injuries, the Annual Conference is an opportunity to meet with others facing similar issues as well as potential service providers. Combine your drive to put into place new discoveries in technology and protocols in treatment of Brain and Spinal Cord Injury with an exciting opportunity to attend the 10th Annual Pacific Northwest Brain & Spinal Cord Injury & Disease Conference. Despite advances in rehabilitative therapies for brain and spinal cord injury, clinicians are still challenged by many roadblocks in their patients' recovery process. Timely and evidencebased treatments make a difference in functional outcomes. How do you improve treatment? What treatment models are being used by the military? Attend the 10th Annual Pacific Northwest is Annual (Conference Continued on page 7) Joey Harrington Reception, Dinner and Concert Grapes & Two Grands Friday, March 2, Joey Harrington will host a Wine and Cheese Tasting Reception followed by a dinner and a private concert featuring Joey Harrington and Darrell Grant, performer, composer and PSU professor. This event will be raising money for ‘Helmets for Kids’. Register online or see page 7 Winter 2012 page 1 Brain Injury Alliance of Oregon Board of Directors Ralph Wiser, JD/President….....Lake Oswego Chuck McGilvary, Vice Pres..…..Central Point Cheryl Coon, JD Secretary…………...Portland Carol Altman, Treasurer……………...Hillsboro Wayne Eklund, RN.……………………..Salem Curtis Brown…………….….…...…….Cheshire Coleen Carney, RN…………….……..Portland Paul Cordo, PhD ……….......……...…Portland Rep. Vic Gilliam …….…...…………...Silverton Tootie Smith………..……………..…….Molalla Advisory Board Kristin Custer, QLI…………….….Omaha, NE Danielle Erb, MD..............….........…...Portland Dr. Herbert Gross ………….……….. California Andrea Karl, MD …….…….…....….Clackamas Dave Kracke, JD.………….….....……Portland Amy Ream, MD..………..….………....Portland Aleyna Reed, PsyD …………...………...Keiser Col. Daniel Thompson…………....……..Salem Bruce Wojciechowski, OD…….......Clackamas Staff Sherry Stock, MS CBIST Executive Director Jeri Cohen, JD Associate Director Brain Injury Alliance of Oregon PO Box 549 Molalla, Oregon 97038-0549 503-740-3155 • Fax: 503-961-8730 Toll Free in Oregon 1-800-544-5243 Website: www.biaoregon.org Email: [email protected] 501 (c)(3): Fed. ID 93-0900797 Issue Spring Summer Fall Winter Headliner DEADLINES Deadline April 15 July 15 October 15 January 15 Publication May 1 August 1 November 1 February 1 Editor: Sherry Stock, 503-740-3155 Co-Editor: Jeri Cohen, 503-704-6122 Co-Editor: Dave Kracke Email: [email protected] Advertising in Headliner Rate Schedule Issue Annual/4 Issues A: Business Card $100 $ 350 B: 1/4 Page $200 $ 700 C: 1/2 Page $300 $ 1,000 D: Full Page $600 $ 2,000 Advertising on BIAOR Website: $10,000 for Banner on every page $5000/year for Home Page $250 for active link Pro-Members page Policy The material in this newsletter is provided for education and information purposes only. The Brain Injury Alliance of Oregon does not support, endorse or recommend any method, treatment, facility, product or firm mentioned in this newsletter. Always seek medical, legal or other professional advice as appropriate. We invite contributions and comments regarding brain injury matters and articles included in The Headliner. page 2 The President’s Corner By Ralph Wiser, JD The upcoming Brain & Spinal Cord Injury Conference promises to deliver a great deal of helpful information in a tightly packed 2 day event and a technology preconference on Thursday. I would encourage all of you to mark your calendars for attendance on Thursday, Friday and Saturday, March 1 through 3, 2012, at the Sheraton Inn at the Portland Airport. Joey Harrington will open the conference. He is as good behind the podium delivering a message as he was quarterbacking the Duck football team. But he’ll have plenty of support from local media personalities who have first-hand knowledge of brain and spinal cord injury, and from professionals who practice in the field. This should prove to be an interesting and informative event that will set the bar for those to follow on an annual basis. million Americans living with a disorder of the brain or central nervous system and the stark reality that over 300,000 American soldiers and veterans have suffered the combat wounds of Traumatic Brain Injury and Post Traumatic Stress Disorder. The conference vowed to raise $15 billion in the next decade to jump start new and increased research to address these problems. For more information go to www.moonshot.org. BIAOR is interested in learning of any specific area of the brain that you may have a special interest in or care to share. Although space in the newsletter is somewhat limited, we have the expertise and energy to respond to many of your inquiries and the desire to Have you heard of the moonshot for brain research? share information that may benefit the BIAOR 50 years ago President Kennedy challenged community. Let us know if you have some area of Americans to send an astronaut to the moon and back. interest you would like addressed. Last summer, President Kennedy’s nephew, Patrick Kennedy, convened a conference of scientists, Be safe. government, industry, academia, philanthropy, patients and families to harness knowledge and resources to Ralph Wiser, JD, can be reached at hasten the development of treatments and cures for [email protected] or (503) 620-5577. neurological disorders. The conference was convened against the backdrop of an estimated nearly 100 When looking for a professional, look for someone who knows and understands brain injuries. The following are supporting professional members of BIAOR. Attorneys www.stc-law.com Oregon Bend † Dwyer Williams Potter Attorney’s LLC, Bend, 541-617-0555 www.RoyDwyer.com John Warren West, Law Offices of John Warren West, Bend, 541-382-1955 Eugene Area Thomas Cary, Cary Wing Edmunson, PC, Eugene, 541-485-0203 WC Don Corson, Corson & Johnson Law Firm, Eugene, 541-484-2525 Charles Duncan, Eugene, 800-347-4269 † Derek Johnson, Johnson, Clifton, Larson & Schaller, P.C., Eugene 541 484-2434 Tina Stupasky, Jensen, Elmore & Stupasky, PC, Eugene, 541-342-1141, Sisters, 541-549 -1617 Portland Area William Berkshire, Portland 503-233-6507 PI Mark Bocci, Portland, 503-607-0222 ‡ John Coletti, Paulson Coletti, Portland, 503.226.6361 www.paulsoncoletti.com ‡ Cheryl Coon, Swanson, Thomas & Coon, Portland, 503-228-5222 Winter 2012 James Coon, Swanson, Thomas & Coon, Portland, 503-228-5222 Tom D'Amore, D'Amore & Associates, Portland 503-222-6333 ¥ Lori Deveny, Portland, PI 503-225-0440 Wm. Keith Dozier, Portland 503-594-0333 † R. Brendan Dummigan, Portland 503-2237770 Chris Frost, Swanson, Thomas & Coon, Portland, 503-228-5222 Peggy Foraker, Portland 503-232-3753 Sam Friedenberg, Nay & Friedenberyg, 503245-0894 € Bill Gaylord, Gaylord Eyerman Bradley,PC, Portland 503-222-3526 Timothy Grabe, Portland, 503-282-5223 James R. Jennings, PC, Gresham 503-6693406 David Kracke, Nichols & Associates, Portland 503-224-3018 Sharon Maynard, Bennett, Hartman, Morris & Kaplan, Portland 503-227-4600, SSI/SSD Jeff Merrick, Lake Oswego 503-665-4234 The Headliner Looking for an Expert? See our Professional Members here Jeffrey Mutnick, Portland 503 595-1033 Robert Neuberger, Portland 503-228-1221 Cynthia Newton, Swanson, Thomas & Coon, Portland, 503-228-5222 PI/MediMal Craig Allen Nichols, Nichols & Associates, Portland 503-224-3018 Stephen Piucci, Piucci & Dozier, Portland 503-228-7385 Charles Robinowitz, Portland, 503-226-1464 J. William Savage, Portland 503-222-0200 Joshua Shulman, Shulman DuBois, LLC, Portland, 503-222-4411 € Richard A. Sly, Portland 503-224-0436, SSI/SSD/PI Steve Smucker, Portland 503-224-5077 Ray Thomas, Swanson, Thomas & Coon, Portland, 503-228-5222 ¥ Tichenor& Dziuba Law Offices, Portland 503-224-3333, Uffelman, John, Adams & Uffleman LLP, Beaverton, 503-644-2146 Richard Vangelisti, Vangelisti Law Offices PC, Portland 503-595-4131 Ralph Wiser III, Wiser & Associates, Inc., Lake Oswego 503 620-5577, PI & SSI/SSD Lawrence Wobbrock, Portland, 503-2286600 Salem Area Vance Day, Adams, Day & Hill, Salem, 503 399-2667 Daniel Hill, Adams, Day & Hill, Salem, 503399-2667 Roseburg Samuel Hornreich, Roseburg, 541-677-7102 Washington Bremerton Kenneth Friedman, Friedman Rubin, Bremerton, 360-782-4300 Seattle Richard Adler, Adler Giersch, Seattle, WA 206.682.0300 Kevin Coluccio, Stritmatter Kessler Whelan Coluccio, Seattle, WA 206-448-1777 CareGiver & Support Services Micki Carrier, Caregiver Connection, Portland, 503-246-4672 Cy Osborne, Pegasus Social Services, an Oregon Home Care Services Co, Portland, 503.380.4443 Care Facilities/TBI Housing (subacute, community based, inpatient, outpatient, nursing care, supervised-living, behavior, coma management, driver evaluation, hearing impairment, visual impairment, counseling, pediatric) Carol Altman, Homeward Bound, Hillsboro 503-640-0818 Ann Swader Angvick, Uhlhorn Program, Eugene, 541 345-4244 Ashland View Manor-WestWind Enhanced Care, Dan Gregory, Medford, 541-8570700 Linda Beasley, LPN CBIS, Autumn House, Beaverton, 503-941-5908 The Headliner Karen Campbell, Highland Height Home Care, Inc, Gresham & Portland, 971-2274350 or 503-618-0089 £ Casa Colina Centers for Rehabilitation, Pomona, CA, 800-926-5462 Kampfe Management Services, Pam Griffith, Portland, 503-788-3266 Learning Services, Northern CA & CO, 888 -419-9955 Joana Olaru, Alpine House, Beaverton, 503 -646-9068 † Oregon Rehabilitation Center, Sacred Heart Medical Center, Director: Katie Vendrsco, 541-228-2396 Quality Living Inc (QLI), Kristin Custer, Nebraska, 402-573-3777 † Ridgeview Assisted Living Facility, Jolene White, Medford, 541-779-2208 Fabiola Ruiz, All Season’s Care, Salem, 503-588-7470 † Sharon Slaughter, Windsor Place, Inc., Salem, 503-581-0393 Wally & Donna Walsh, Delta Foundation/ Snohomish Chalet, Snohomish, WA 360568-2168 Chiropractic/Massage Therapists Carol Ford, Portland Cranial Sacral Therapy, Portland, 503-608-2372 Thomas Kelly, DC, Chiropractic Neurologist, Kelly Chiropractic, PS, Vancouver, WA, 360-882-0767 Garreth MacDonald, DC, Eugene, 541-3434343 Lawrence Nelson, Wilsonville, 503-7227733 Bradley Pfeiffer, Bend 541-383-4585 George Siegfried, DCPC, Dunn Chiropractic, McMinnville/Portland 503977-0055 Cognitive Rehabilitation Centers/ Rehab Therapists/Specialists Jane Conboy, certified TAT Trainer, Portland 503-703-3703 † Gentiva Rehab Without Walls, Mountlake Terrace, WA 425-672-9219 local contact: Lisa Stember, MS CCC-SLP 503-2500685 † Progressive Rehabilitation Associates— BIRC, Portland, 503-292-0765 Lynne Williams, Lynne Williams Cognitive Rehab. Therapy, Central Point 541-6555925 Counseling Sharon Evers, Face in the Mirror Counseling, Art Therapy, Lake Oswego 503-201-0337 Donald W. Ford, MA, LMFT, LPC, Portland, 503-297-2413 Joyce Kerley (503) 281-4682 Kate Robinson, MA, CRC, Portland, 503318-5878 Dentists Dr. Nicklis C. Simpson, Adult Dental Care LLC, Gleneden Beach 541-764-3113 Winter 2012 Dan Thompson, DMD, Lake Oswego 503675-6776 Educators/Researchers Diana Allen, Linn Benton Lincoln ESD, Albany Paul Cordo, PhD, Senior Researcher, OHSU, 503-223-3442 Sandra Crews, Southern Oregon ESD, Medford, 541-776-8555 Laurie Ehlhardt Powell, CBIRT, Eugene, 541-346-0572 Penny Jordan, TBI Team Liaison, Portland, 503-260-4958 ± McKay Moore-Sohlberg, University of Oregon, Eugene 541-346-2586 Lisa Myers, Portland Community College Expert Testimony Janet Mott, PhD, CRC, CCM, CLCP, Life Care Planner, Loss of Earning Capacity Evaluator, 425-778-3707 Financial Services Kayla Aalberg Eklund, Structured Settlement Broker, Oregon, 503-8696518 Life Care Planners/Case Manager/Social Workers Gerry Aster, RN, MS, Nurse Case Manager, Vida, 541-896-3001 Priscilla Atkin, Providence Medford Medical Center, Medford, 541.732.5676 Rebecca Bellerive, Rebecca Bellerive, RN, Inc, Gig Harbor WA 253-649-0314 Coleen Carney, RN, Carney Smith & Associates, Beaverton 503-680-2355 Wayne Eklund, Wayne Eklund RN CNLCP Salem 888-300-5206 Michele Lorenz, BSN, MPH, CCM, CHPN, CLCP, Lorenz & Associates, Medford, 541-538-9401 Vince Morrison, MSW, PC, Astoria, 503325-8438 Simon B. Paquette, LICSW, LCSW, Vancouver WA 360 903-4385 Thomas Weiford, Weiford Case Management & Consultation, Voc Rehab Planning, Portland 503-245-5494 Karen Yates, Yates Nursing Consulting, Wilsonville, 503-580-8422 Legal Assistance/Advocacy/Non-Profit £ Deborah Crawley, ED, Brain Injury Association of Washington, 253-2386085 or 877-824-1766 £ Disability Rights Oregon, Portland, 503243-2081 Eastern Oregon Center for Independent Living(EOCIL), Ontario 1-866-248-8369; Pendleton 1-877-771-1037; The Dalles 1 -855-516-6273 Independent Living Resources (ILR), Portland, 503-232-7411 ThinkFirst Oregon, (503) 494-7801 Legislators Vic Gilliam, Representative, 503-986-1418 page 3 Long Term TBI Rehab/Day Program’s/ Support Programs Carol Altman, Bridges to Independence Day Program, Portland/Hillsboro, 503640-0818 £ ElderHealth Northwest, Patti Dahlman, Seattle WA 206-467-7033 Benjamin Luskin, Luskin Empowerment Mentoring, Eugene, 541-999-1217 Marydee Sklar, Executive Functioning Success, Portland, 503-473-7762 Medical Litigation Funding Dr. Ihan Rodriguez, Co-Funder, Medical Funding Consultants, LLC, 407-4488988 Medical Professionals Gerry Aster, RN, MS, South Pasadena CA, 541-896-3001 Diana Barron, MD, Brownsville, (541) 4516930 clinic Marie Ekkert, RN/CRRN, Legacy HealthCare, Portland, 503-413-7918 Marsha Johnson, AnD, Oregon Tinnitus & Hyperacusis Treatment Center, Portland 503-234-1221 Kristin Lougee, CBIS, 503-860-8215-cell Carol Marusich, OD, Neuro-optometrist, Lifetime Eye Care, Eugene, 541-3423100 † Kayle Sandberg-Lewis, LMT,MA, Neurofeedback, Portland, 503-2342733 Dorothy Strasser, VA Medical Center, Rehab, Portland, 503-285-6356 Bruce Wojciechowski, OD, Clackamas, Neuro-optometrist, Northwest EyeCare Professionals, 503-657-0321 Physicians Sharon Anderson, MD, West Linn 503-650 -1363 Bryan Andresen, Rehabilitation Medicine Associates of Eugene-Springfield, 541-683-4242 Diana Barron, MD. Barron-Giboney Family Medicine, Brownsville, OR (541) 4516930 Eilis Boudreau MD, Neurologist, OHSU Portland Jeffrey Brown, MD, Neurology, Portland 503-282-0943 James Chesnutt, MD, OHSU, Portland 503 -503-494-4000 Janice Cockrell MD, Pediatric Development & Rehabilitation-Emanuel Children’s Hospital, Portland 503-4134418 Maurice Collada, Jr, MD, PC, Neurosurgeon, 503-581-5517 Danielle L. Erb, M.D., Brain Injury Rehab Center, Portland 503 296-0918 John French, MD, Salem Rehabilitation Associates, Salem 503-561-5976 M. Sean Green, MD, Neurology, OHSU Steve Janselewitz, MD, Legacy Emanuel, Pediatric Physiatrist, 503-413-4505 Andrea Karl, MD, Director, Center for Polytrauma Care Unit, Portland, VA Hospital 1-800-949-1004 x 34029 Michael Koester, MD, Slocum Center, Eugene, 541-359-5936 ± Oregon Rehabilitation Medicine, P.C., Portland, 503-230-2833 Francisco Soldevilla, MD, Neurosurgeon, Northwest Neurosurgical Associates, Tualatin, 503-885-8845 Thomas P. Welch, MD, Psychiatry, Portland 503-292-4382 Gil Winkelman, ND, MS, Alternative Medicine, Neurobiofeedback, Counseling, Portland, 503-501-5001 Psychologists/ Neuropsychologists Tom Boyd, PhD, Sacred Heart Medical Center, Eugene 541-686-6355 James E. Bryan, PhD, Portland 503.284.8558 *Caleb Burns, Portland Psychology Clinic, Portland, 503-288-4558 Patricia S. Camplair, Ph. D., OHSU Dept of Neurology, Portland, 503-827-5135 Elaine Greif, PhD, Portland 503-260-7275 Jacek Haciak, PsyD, Oregon State Hospital, Salem, 503-945-2800 Nancy Holmes, PsyD, CBIS, Portland 503235-2466 Terry Isaacson, PhD, Roseburg Counseling Services, Roseburg 541-957-1290 Sharon M Labs PhD, Portland 503-2243393 Ruth Leibowitz, PhD, Salem Rehab, 503814-1203 Michael Leland, Psy.D, CRC, Director, NW Occupational Medicine Center, Inc., Portland, 503-684-7246 Will Levin, PhD, Eugene, 541-302-1892 Kate Morris, PhD, Salem Rehab Hospital, Salem Wendy Newton, PsyD, Portland, 503.869.9092 Margaret Sutko, PhD, Pediatrics, Portland, 503-413-2880 Jennifer Simon-Thomas, PhD CBIS, Kalispell, MT 406-253-7745 Speech and Language Channa Beckman, Harbor Speech Pathology, WA 253-549-7780 John E. Holing, Glide 541-440-8688 ± Jan Johnson, Community Rehab Services of Oregon, Inc., Eugene, 541-342-1980 Sandra Knapp, SLP, David Douglas School District , Sandy 503-256-6500 Rik Lemoncello, Ph.D., CCC-SLP, PSU, Portland Linda Lorig, Springfield, 541-726-5444 Anne Parrott, Legacy Emanuel Hospital Warren 503-397-6431 State of Oregon Dave Cooley, Oregon Department of Veterans Affairs, Salem, 503-373-2000 Stephanie Parrish Taylor, State of Oregon, OVRS, Salem , (503) 945-6201 www.oregon.gov/DHS/vr/ Technology/Assistive Devices Performance Mobility, Portland, OR, 503243-2940 Second Step, David Dubats, Eugene, 877299-STEP Video/Filming NuVideo Productions, LLC, specializing in “day of the life” films Bend, 541-3128398 Veterans Support Mary Kelly, Transition Assistance Advisor/ Idaho National Guard, 208-272-4408 Vocational Rehabilitation/Rehabilitation/ Workers Comp Arturo De La Cruz, OVRS, Beaverton, 503277-2500 † Marty Johnson, Community Rehab Services of Oregon, Inc., Eugene, 541342-1980 ‡ Paula Fitch, Oregon Completive Employment Project, Salem 503-9475469 www.win-oregon.com Ben Luskin, Launch Employment Mentoring, Eugene, 541-999-1217 Bruce McLean, Vocational Resource Consultants, Ashland, 541-482-8888 † SAIF, Salem, 503-373-8000 Kadie Wellington, OVRS, Salem, 503-3783607 Patrons/Professional Members Sharon Anderson, West Linn OR Carol Berger, Talent OR Laurie Burke, TN Bruce Buchanan William Griffiths, West Linn Debby Hessick, Aloha Linda Longstreet, Bend Bill Morrisette, Springfield James & Janet Moore, Portland Craig Ness, Wasilla Alaska ± Bill Olson, Salem Meg Rawlings & Russ Rudometkin, Medford Charlene Sparlin, Roseburg In Memory Tina Treasurer In Memory of Tom Treasurer Carol Sherbenou in Memory of David Sherbenou Names in bold are BIAOR Board members † Corporate Member ‡ Gold Member € Silver Member ± Bronze Member ¥ Sustaining Member £ Non-Profit ∆ Platinum To become a supporting professional member of BIAOR see page 23 or contact BIAOR, [email protected]. page 4 Winter 2012 The Headliner The Lawyer’s Desk: A Look at TBI Legal Representation By David Kracke, Attorney at Law Nichols & Associates, Portland, Oregon The BIAOR has been honored to work closely with Joey Harrington and the Harrington Family Foundation over the past few months. Joey will be the opening keynote speaker at the upcoming conference, and his NFL experience is relevant to the subject of this column. Joey was fortunate to avoid a serious head injury during his NFL career, but other players have not been so lucky. concussion, something else transpired that was less than responsible. Four minutes after receiving the helmet to helmet hit, Colt McCoy was back on the field playing quarterback with the looming specter of a second concussion, and therefore second impact syndrome, shadowing his every move on the field. This is what happened to Max Conradt, and McCoy’s coaches should have known better. did not return to play this season. Local commentators stated that he seemed “different” in the interview that McCoy held three weeks after the incident. In the discussions in the Oregon legislature leading to the passage of Max’s Law, many people testified The careless decision didn’t that the coaches need to be the ones who recognize go un-noticed. A thorough when a player has been concussed because the review of the situation after players themselves have pressure to stay in the the game led many to believe game after an injury. The NFL found that this attitude that the coaches and the is prevalent at the pro level as did a survey which team’s sideline doctor failed revealed that half of all players interviewed admitted to recognize the seriousness that they would not tell their coaches that they were of the injury and put McCoy feeling the effects of a concussion. back into the game when he What happened next, however, shows how far we had clearly received a concussion from the previous have come since Oregon took the lead in recognizing hit. It was a stunningly risky the dangers of sports concussions: The NFL mandated that an independent certified trainer, not decision to allow McCoy to Joey Harrington affiliated with any team and paid by the NFL, would return to the game, and as The player who hit Colt McCoy sit in the press box and watch for players on the field Warren Sapp, an NFL great himself, said after was suspended for a game which is a blow to that who had suffered concussions, or who needed to be the game, “The doctors dropped the ball.” player’s pocketbook and definitely sends a tested for concussion symptoms. message that this type of head-to-head hit will not be tolerated by the NFL. This is good policy and In the locker room after the game, McCoy said that a loud noise startled him and that the bright The law is about society as much as it is about the everyone who has supported the Brain Injury television camera lights affected his vision. As individual, and the decision by the NFL to have an Alliance of Oregon should feel a sense of independent certified trainer watching the games for anyone who has suffered a TBI knows, noise accomplishment that our nation’s youth see this the express purpose of identifying concussed players and light sensitivity are some of the most type of responsible outcome from a professional recognizes all that we as an organization have done league that influences our young athletes to such common effects of a head injury. to educate the public about the effects of concussions a great extent. both on and off athletic fields. Concussion McCoy showed signs and symptoms of his awareness is in the mainstream now, and there is no concussion for weeks after the incident and he Unfortunately, after Colt McCoy sustained the hiding behind the antiquated belief that if a player gets his “bell rung” he or she just needs to “shake it 2012 BIAOR Calendar of Events off, suck it up, and get back out on the field.” On Sunday December 11, 2011, Cleveland Browns’ quarterback Colt McCoy sustained a concussion when an opposing linebacker used a helmet-tohelmet hit on the quarterback. As I’ve written about before, this type of helmet-to-helmet hit has been outlawed by the NFL largely as a result of the growing recognition of how dangerous this type of “tackle” is, and I believe, a recognition that followed the passage of Max’s Law in Oregon. For updated information, please go to www.biaoregon.org Feb 11 Valentine’s Dance for more information: 503-640-0818 Elsie Stuhr Center, 5550 SW Hall Blvd, Beaverton March 1 Pre-Conference Workshop Behavioral Issues After a Brain Injury March 2 Wine Tasting and Dinner hosted by Joey Harrington www.biaoregon.org/annualconference-2012.htm March 2-3 Annual Pacific Northwest Regional Conference 2012: Living with Brain & Spinal Cord Injury and Disease: Striving for Excellence www.biaoregon.org/annualconference-2012.htm Hotel Registration online at Concussions among our youth and professional athletes are now treated with the seriousness that they demand and there is no more room for ridiculous excuses that would deny either the serious nature of a concussion or the looming threat of second impact syndrome. All of us who have worked in support of the BIAOR have made this societal change happen, and we should feel good about the work we have done. The law is not just about what happens in a courtroom; sometimes it’s about what happens on a football field, a locker room or a press box. David Kracke is an attorney with the law firm of Nichols & Associates in Portland. Nichols & Associates has been representing brain injured individuals for over twenty two years. Mr. Kracke is available for consultation at (503) 2243018. http://www.starwoodmeeting.com/Book/BIAOR The Headliner Winter 2012 page 5 Neuropsychology Frequently asked Questions lack of oxygen, or an infection. • Other medical problems such as prematurity, diabetes, chronic heart or breathing problems, certain genetic disorders, or treatment for childhood cancer • Been exposed to lead, street drugs, or inhalants (carbon monoxide) This understanding, between how someone thinks • Been exposed to alcohol, smoking, or certain and acts and how the brain works, is used to drugs prior to birth. diagnosis and treat brain disorders. • A developmental or work/school problem such as a learning disability, attention-deficit/hyperactivity What is a Neuropsychologist? disorder, or autism spectrum disorder/pervasive Neuropsychologists are licensed psychologists. developmental disorder They have training in both clinical psychology and • Had an evaluation by a psychologist or work/ neuropsychology. They have special training in school, but the treatment following that evaluation how the brain develops and in brain-behavior has not helped. relationships. They use this training to evaluate and help manage people with brain disorders. Your physician may recommend a Such disorders may involve brain injury, medical neuropsychological assessment to: disease, or developmental problems. • Help make or confirm a diagnosis Neuropsychologists are typically called in by • Get a record of the individual’s functioning before neurosurgeons, neurologists, and psychiatrists to treatment with medicine or surgery. assess brain functioning, to help describe how • Record a change in the individual after a medical cognitive processes have changed, and to predict treatment (testing can be repeated to see if the how the patient’s life will now be altered. treatment changed the individual’s functioning) Neuropsychologists are a required member of a • Record the individual’s development treatments brain rehabilitation team under the standards of and expectations can be adjusted to the the Commission on the Accreditation of individual’s needs. Rehabilitation Facilities. A Neuropsychologist provides neuropsychological testing/assessment. What does a Neuropsychological Evaluation Involve? Neuropsychologists help individuals, family, A neuropsychological evaluation involves examining professionals working with the individual, and thinking, behavior, and social-emotional functioning. physicians to: • Understand how problems with the brain may The evaluation uses standardized tests and relate to problems seen at work/school, home, procedures. Examiners work directly with the or with peers individual. They also talk to family and other • Understand how the individual learns best doctors. Tests may be performed using paper and • Understand why the individual may have pencil or on the computer. Your individual will be behavior problems asked many questions and to solve different types • Help the individual deal with thinking or of problems.. behavior problems Neuropsychological evaluations typically include • Identify neurological or psychiatric problems tests that measure the following: • Help match expectations to the individual’s specific strengths and weaknesses • Work with other doctors and professionals to develop the best treatment and work/school plan for the individual What is Clinical Neuropsychology? Clinical neuropsychology is focused on understanding the link between the brain and behavior. For example, how changes in the health of the brain may affect the ability to pay attention, remember, or solve problems. • • • • • • • • • • • • Intelligence (IQ) Problem solving Planning and organization Attention and memory Processing speed Language Employment/Academic skills Visual perception Control over hand movements Depression and anxiety Aggression and impulsive behavior Social skills The neuropsychologist will also review medical records to help understand how the test results relate to daily life. How does a neuropsychological evaluation differ from a work/school evaluation? Neuropsychologists and psychologists often use some of the same tests, focusing on understanding WHY an individual is having problems at work or at home. This is done by examining academic skills but also examining all of the thinking skills needed to perform daily functions – skills like memory, attention, and problem-solving Understanding an individual’s specific thinking strengths and weaknesses helps to better focus treatment plans and medical treatment and understand potential areas of future difficulty. Because neuropsychologists have training in clinical psychology, they are also able to diagnosis emotional problems like depression and anxiety. How do I find a neuropsychologist? A list of board-certified neuropsychologists working with individuals with brazin injury can be found on the BIAOR website www.biaoregon.org/ promembers.htm How do I know if an individual needs a Neuropsychological Evaluation? A neuropsychological evaluation may help if the individual has: • A neurological disorder such as spina bifida, hydrocephalus, cerebral palsy, epilepsy (seizures), neurofibromatosis, tuberous sclerosis, or a brain tumor. • A brain injury from a trauma to the head, stroke, page 6 Winter 2012 The Headliner (Conference Continued from page 1) Pacific Northwest Brain & Spinal Cord injury & Disease Conference to learn timely and evidence-based treatments and make a difference in your patients’ quality of life! Former University of Oregon and Detroit Lions quarterback Joey Harrington, seriously injured when he was struck by an SUV while riding his bike in in Portland in July 2011, will be our opening Keynote Speaker, Friday, March 2, discussing his accident and recovery, helmet safety and professional sports. Joey, hospitalized with a broken collarbone, a punctured lung and a laceration on his head, knows that he is here today because he was wearing a bike helmet. What makes the 2012 conference a must attend event? Pre-conference: Using Technology in Brain & Spinal Cord Injury Rehabilitation – an interactive Preconference using laptop technology and other assistive devices, bringing rehabilitation into the home for individuals with neurological injuries. Expand rehabilitation options for your patients! Certified Brain Injury Specialist Training, • Conference • Living with Brain & Spinal Cord Injury and Disease: Striving for Excellence • Explore the connection between brain injury and addiction, and advance your skills in behavioral management. • Extend treatment and support of brain injured patients via telephone interventions and internet programs. • Discover expanded treatment, including Tai Chi and the power of awareness • Listen to Keynote Speakers: Joey Harrington, UO and Detroit Lions Pro football player, Ken Ackerman, Host, Comcast Newsmakers and News Anchor, Portland's Morning News, NW 32 TV, who was Paralyzed After Minor Surgery, Elizabeth Hovde, Oregonian Reporter and her life after • • • coma, Larry Sherman, PhD, OHSU, on Stem cell-based therapies for the central nervous system, and Jeff Snell, PhD on Behavior and Brain Injury Choose from 43 Concurrent Sessions on a wide variety of topics. Participate in an optional Roundtable Luncheon with the Faculty – a chance to discuss your complex cases with experts Network with experienced clinicians from multidisciplinary backgrounds. Meet and interact with colleagues who can provide new resources for professional support Revitalize yourself to do the work you know and love, and make an even greater difference in the lives of patients and their families Mark your calendar now, share this information with your team members and plan to attend what promises to be a dynamic educational experience! For the program schedule see the BIAOR website: www.biaoregon.org 2012 Conference Speaker Highlights Medical/Legal • • Legal Issues Following Brain & Spinal Cord • • • • • • Injury Panel: Richard Adler, JD, WA; Ralph Wiser, JD, OR, and Cheryl Coon, JD, OR Developing a Cognitive Reserve via Neurogenesis- Dr. John N. Hatfield, PhD Looking at the Overlooked: Employing effective cognitive strategies to maximize emotional recovery after injury - Dr. Jon Pearson, QLI Somatoform Disorders: Dealing with the Difficult Patient - Dr. Gwendolyn Ford, neurologist, Madigan The Neuroanatomy of Attention- Frederick G. Flynn, DO, FAAN, Madigan Sleep Issues Following Brain Injury - Dr. Paul J. Savage, Internal Medicine From Hospital to Home: Best PracticesRussell C. Spearman M.Ed., ID OIF/OEF • An interdisciplinary team approach to treating veterans and active duty service members at the VA - Panel from the Oregon VA Hospital • Suicide Prevention Training - Signs and Symptoms-David Dedrickson • VA benefits for veterans with traumatic brain injury- Cheryl Coon, JD • PTSD and the Problems - What are the Solutions - Eddie Black The Headliner • PTSD and the Returning Military - Eddie Black • Substance Abuse: How to recognize it and where to go for help - Joseph D. Bradford, M.P.A., QMHA Spinal Cord Injury • Sexuality and Spinal Cord Injury - Steve Steins, Seattle SCI Model Systems • Skin and Wound Care- Dr. Stephen Burns, SCI Model Systems-Seattle • Traumatic Spinal Cord Research Review— Paul Cordo, PhD • Autonomic Dysreflexia - Dr. Stephen Burns, SCI Model Systems-Seattle Brain Injury • Anger Management-Learning Self Control Joseph D. Bradford, M.P.A., QMHA • Memory-Dr. Dennis Kelly, neuropsychologist in the Madigan TBI Program • Migraine and a history of TBI- Dr. Beverly Scott, Madigan, Neurology • Sports Concussion and concussion management - Dr.James Chesnutt, MD, OHSU • Spirituality, TBI & PTSD Experiences - Col. Dan Thompson • Visual Prompting & Task Management Thomas Keating, PhD • Sexuality and Brain Injury, Jeff Snell, PhD Winter 2012 • Vietnam Veterans Wife, Caregiver, Advocate: 40 years of Tips on how to Navigate the V.A. - Carol Cristophero Snider Family & Survivor • Healing with Animals- Joy St Peter • Stigma and TBI - Bronwyn G. Pughe, MA, MFA, TBI Education Specialist, Traumatic Brain Injury Program • Transportation-Issues and latest updatesPerformance Mobility • Life Balance/ Attitude and overcoming obstacles others say you can't - Byron Loosli • Disability Etiquette - Ryan Green • Five Stages along the Path of Recovery from TBI - Ben Luskin Pediatric/Legal • The Role of Music Therapy in Rehabilitation - Lillieth Grand, MS, MT-BC • Dealing with Difficult Behaviors following TBI- Christine Clancy, Ph.D., ABPP • Social Security disability benefits for children with brain injuries Cheryl Coon, JD • Transforming the lives of Children and Adults with TBI through practical applications of Brain Plasticity PrinciplesAnat Baniel • Think First Oregon Survivor Panel • Panel: IDEA and Youth Transition • The Federal Landscape: Healthcare Reform and TBI—Gavin Attwood, CO page 7 Registration Form 10th Annual Pacific Northwest Brain Injury Conference 2012 Living with Brain & Spinal Cord Injury & Disease: Striving for Excellence Sheraton Portland Airport Hotel Register before February 20, 2012 for a $75 discount on Conference Registration (Note: A separate registration form is needed for each person attending. Please make extra copies of the form as needed for other attendees. Members of BIAWA, BIAOR, OPVA, BIAID, VA and WSBIA receive member rates) First Name Last Name Badge Name Affiliation/Company Address City State Phone Fax Email Please check all that apply: ____ Zip I am interested in volunteering at the conference. Please call me. ___ Call me about sponsorship/exhibitor opportunities. $600 7 hour Certified Brain Injury Specialist Training/Test for Certification—Thursday Pre-Registration is required: Book, training & exam included-must register before 2/15 __ Pre-Conference Workshop-Technology & Cognitive or Physical Limitations —Thursday $ Member Non-Member $100 $175 Amount $ Conference Registration Fees: Registration fees include: continental breakfast, lunch & conference related materials. Meals not guaranteed for on-site registrations. There are no refunds, but registration is transferable. Contact BIAOR, 800-544-5243 for more information or questions. The following fees are per person: ___ Professional (CEUs) 2 Day Friday & Saturday $350 $450 $ ___ Professional (CEUs)1 Day Only: $200 $300 $ ___ Saturday Survivor/Family (no CEUs) $100 $175 $ ___ Saturday Only 3/3 Courtesy (Brain Injury Survivors with limited means-limited number) $25 $35 $ Friday Saturday $ ___ Scholarship Contribution (donation to assist in covering the cost of survivors with limited funds) Late Conference Registration (Conference Only)—After Feb 20, 2012 Reception & Dinner with Joey Harrington and his Friends Wine Tasting 5 -6:30pm, Dinner begins at 6:45pm Grapes and Two-Grand’s Concert 7:00pm. Separate Charge from Conference $ 75 + $ 75 $100 $ Credit Card Number _____-_____-______-_____ Exp Date ___/___ Sec code ____ Signature ____________________________________________ Pre-conference, Registration & Dinner Total $ ________ CC Address if different than above ____________________________________ (Please add totals from Registration Fee, Reception/Dinner and Scholarship Contribution for final total costs) Make Checks out to BIAOR—Mail to: BIAOR, PO Box 549, Molalla OR 97038 or fax: 503.961.8730 Phone: 503-740-3155 www.biaoregon.org/annualconference-2012.htm [email protected] Wine & Cheese Reception with Joey Harrington and his Friends— Followed by dinner and a small concert featuring Joey playing jazz on the piano 5 pm—8:30 pm page 8 Hotel: Sheraton Portland Airport Hotel 8235 NE Airport Way Portland, OR 97220 503.281.2500 Discount room rate $125 per night Discount good until Feb. 25, 2012 Rooms are limited CEUs: CRC, CCM, APD, DD, AMH,, SW, OT, SLP, CLE pending. Please contact us if you would like one that is not listed Total CEU Hours 20.5 Winter 2012 Agenda Thursday 8 am - 5 pm Pre-Conference Workshop Friday & Saturday 7 am - 8 am: Breakfast 8 am - Noon: Keynote and Break– Outs Noon - 1 pm: Lunch and Networking 1 pm - 5 pm: Keynote and Break-Outs * Friday and Saturday-Breakfast and Lunch provided ** Thursday—lunch and breaks provided The Headliner The occipital lobes received, integrate and interpret visual information relating to color, size, shape and distance The temporal lobes are involved in receiving and processing auditory information (e.g. music & speech), language comprehension, visual perception, organization, and categorization of information. Major functions of the temporal lobes are memory and learning. The temporal lobes are also involved in personality, emotions and sexual behavior. Families are often reassured when a comatose injured relative awakens from a coma and recognizes everyone. This initial recall of old learning lulls some families into a false sense of security, but there may be impaired cognition which can lead to a wide range of problems becoming apparent over time. Also, brain injuries can be very diffuse, so that damage is possible in all the areas shown above. Even in a traumatic brain injury, there can more widespread damage than just where the skull was struck. The brain can bounce inside the skull, so that the worst injuries may be on the opposite side of the skull. These are just a few reasons why it is difficult to predict the kinds of problems that can arise following from a brain injury. The Headliner Winter 2012 page 9 BRAIN INJURY 101 Acquired brain injury is often called the hidden disability because its long- term problems are usually in the areas of thinking and behavior, which are not as easy to see and recognize as physical disabilities are. As a consequence, the difficulties people with brain injuries face are easily ignored or misunderstood, particularly when a person may outwardly appear unchanged. This lack of understanding and awareness in the community can create many problems. A person with slurred speech may be seen as drunk, while another person with poor social skills may be seen as choosing to be rude or self-centered in their behavior. Acquired brain injury is not to be confused with intellectual disability. People with an acquired brain injury do not necessarily experience a decline in their general intellectual functioning. Rather, they are more likely to experience specific cognitive changes that lead to difficulty in areas such as memory, concentration and communication. Acquired brain injury is also not a mental illness. Mental illness is an observable abnormality in the functioning of the brain, but does not arise from a physical condition. Brain injury, although it does alter the functioning of the brain, is an observable abnormality in the structure of the brain — a physical condition that causes a change in function. delicate and will stop working properly or may even die off. The movement of the brain can result in tearing of brain tissue which breaks the connections between neurons. This happens on a microscopic level and may not show on standard medical tests. swells (encephalitis), if the tissue surrounding the brain swells (meningitis), or may kill cells through direct infection. Viral infections may result in diffuse injury which can manifest as fatigue disorders such as chronic fatigue syndrome. The brain can swell in the same way as a damaged muscle does. This pressure pushes down on the brain and damages structures in the brain. If there is too much pressure, this can affect important structures which control breathing or the heart rate. Sometimes, doctors will install a shunt (a kind of relief valve) to let off the excess pressure. Differences between traumatic and non-traumatic injury In a traumatic injury, damage to nerve tissue is usually focused in one or more areas of the brain, although tearing can result in diffuse injury. With a non-traumatic injury, damage is usually spread throughout the brain. Exceptions to this include tumors and an infection that remains localized or that spreads evenly from one starting point. This can make diagnosis difficult because small, scattered areas of damaged tissue may not show up on a CAT scan. An MRI scan will usually show diffuse injury. Some cognitive abilities, particularly short-term memory, are commonly affected. Fatigue is also extremely common, due to the brain having to work harder to work around diffuse areas of injury. Non-traumatic injury is any cause that does not injure the brain using physical forces. Causes include lack of oxygen, glucose or blood, which can occur through stroke, heart attack, nearCauses drowning, strangulation, diabetic coma or The brain can be injured as a result of poisoning, or other chemical or biological assault, an accident, a stroke, alcohol or causes such as alcohol abuse, drug drug abuse, tumors, poisoning, heart overdose, infections, tumors, and attach, high fevers, anoxic injury, infection and disease, near-drowning, chemotherapy. hemorrhage, AIDS, or toxic exposure In a non-traumatic injury, nerve calls may such as black mold. die from the direct action of a toxic How the brain is injured substance or through being starved of Three separate processes work to oxygen, glucose or the blood which injure the brain in a traumatic event: supplies both of those substances. • bruising (bleeding) Tumors, by taking up • tearing space, can restrict ENSEN, LMORE & TUPASKY, • swelling. blood supply to other In a traumatic brain injury, the soft tissue cells or can, through A T T O R N E Y S A T L A W exerting physical of the brain is propelled against the very hard bone of the skull and then bounced pressure on cells, DAVID JENSEN, OF COUNSEL squash them. backwards. Blood vessels may tear [email protected] Infectious which releases blood into areas of the brain. The skull does not expand, so the substances may EUGENE OFFICE SISTERS OFFICE cause cell death 199 EAST FIFTH AVE., SUITE 24 220 N. PINE • P.O. BOX 1408 blood begins to press on softer things EUGENE, OREGON 97401 SISTERS, OREGON 97759-1408 through exerting like brain tissue. Brain tissue is very (541) 342-1141 (541) 549-1617 pressure if the brain J page 10 Winter 2012 E S P.C. The Headliner When you work, you WIN, so call your local WIN staff TODAY! www.win-oregon.com CIL OREGON WORK INCENTIVES NETWORK (WIN) CONTACT LIST HASL (Independent Abilities Center) Director: Randy Samuelson ABILITREE Director: Glenn Van Cise EOCIL (Eastern Oregon Center for Independent Living) Director: Kirt Toombs LILA (Lane Independent Living Alliance) Director: Sheila Thomas LOCATION WORK INCENTIVE COORDINATORS COUNTIES SERVED NELSON FERGUSON [email protected] (541) 479-4275 Josephine, Jackson, DENYS HARTFIELD [email protected] (541) 479-4275 Curry, Coos , Douglas 20436 Clay Pigeon Court Bend, OR 97702 LEONARD PEACH [email protected] 1-541-388-8103 Crook, Deschutes, Jefferson 322 SW 3rd Suite 6 Pendleton, OR 97801 (541) 276-1037 1-877-711-1037 (Toll Free) Gilliam,, Morrow, Umatilla, Union Wheeler 1021 SW 5th Avenue Ontario, OR 97914 JENNIFER BONNELL [email protected] (541) 889-3119 or 1-866-248-8369 Baker, Grant, Harney, Malheur , Wallowa 99 West 10th Ave#117 Eugene, OR 97401 EMMA LEVERT [email protected] (541) 607-7020 Lane 305 NE "E" St. Grants Pass, OR 97526 PO Box 13758 Salem, OR 97301 PO Box 13758 Eugene, OR 97401 ILR (Independent Living Resources) Director: Barry FoxQuamme SPOKES UNLIMITED CHRISTIE RIEHL [email protected] 503-798-1971 LYNELLE WILCOX [email protected] 503-983-4711 Marion, Polk, Yamhill Linn, Benton, Lincoln 1839 NE Couch Street Portland, OR 97232 JAIME HEAD [email protected] (503) 232-7411 Clackamas, Clatsop, Columbia Multnomah, Tillamook, Hood River, Multnomah, Sherman, Washington, Wasco 1006 Main Street Klamath Falls, OR 97601 JENNIFER KASPER [email protected] (541) 883-7547 Klamath, Lake Fabiola Ruiz Traumatic /Acquired Brain Injury PTSD (Posttraumatic Stress Disorder) — All Seasons Care, LLC — 940 Fairview Ave SE Salem, OR 97302 (503) 588-7470 Caring for People in “All Seasons” of Life. Anxiety Biofeedback Trauma Nancy Irey Holmes, PsyD, CBIS Psychologist Office locations: 4511 SE 39th Ave Portland OR 97202 Phone: 503-335-2466 Fax: 503-200-5550 Mailing Address 10824 SE Oak St #212 Milwaukie, OR 97222 UVDN (Umpqua Valley disAbilities Network) • David Fricke, Director • P.O. Box 507, Roseburg, OR 97470 (mailing address) 736 SE Jackson Street, Roseburg, OR 97470 (physical address)• 541-672-6336 (voice) • 541-440-2882 (TTY) ) [email protected] • www.uvdn.org The Headliner Winter 2012 page 11 Idaho Update By Russ Spearman, M.ED. The 2012 Legislative session commenced with the Governor’s State of the State address delivered on January 9th. The Governor's current year budget is projected to end with a balance of $130 million. Although much anxiety awaits the outcome of the Health Insurance Exchange issue, Governor Otter kept his comments brief on the subject. He did indicate he would do his best to explain to lawmakers the consequences of spurning a $20.3 million federal grant to set up the exchange which is envisioned as being a transparent, online marketplace for consumers to compare and purchase insurance. The concept of an Idaho health insurance exchange was endorsed (an 111 vote) by the Legislature's Health Care Task Force. Committee (JFAC), JFAC spent the week hearing agency reports and proposed budgets for the Department of Health and Welfare. H&W is predicting that some 100,000 additional Idahoans, including childless adults who meet income qualifications, will be eligible for Medicaid as the PPACA goes into effect in 2014. Initially the Federal Government will pick up these costs. The state match for Medicaid will then be phased in over 5 years. However, the department anticipates that with increased attention on expanded eligibility, persons who are now eligible but have not signed up will also start participating in Medicaid. The state would share in those costs, estimated to be almost $20 million dollars. This week the Idaho Legislature began its work on specific agency budgets in the Joint Finance and Appropriation Idaho was one of the first eleven states to pass concussion legislation in 2010. This session advocates are planning on amendments that would mandate education outreach to coaches, parents, and athletes; mandate immediate removal from play of any athlete who sustains a concussion or who exhibits signs, symptoms or behaviors consistent with the injury AND to only allow those athletes to return to physical activity after receiving written clearance from an appropriate health care provider who is trained in concussion management; and require parents to sign an acknowledgment form prior to allowing their child to play a contact sport. Contact Russ at [email protected] Have you had an insurance claim for cognitive therapy denied? If so call: Julia Greenfield, JD Staff Attorney Disability Rights Oregon 620 SW Fifth Avenue, Suite 500, Portland, OR 97204 Phone: (503) 243-2081 Fax: (503) 243 1738 [email protected] 1450 Standard Plaza 1100 SW Sixth Ave Portland, OR 97204 1-888-883-1576 www.tdinjurylaw.com Winter Sudoku The object is to insert the numbers in the boxes to satisfy only one condition: each row, column and 3 x 3 box must contain the digits 1 through 9 exactly once. (Answer on page 14) Protecting the Rights of the Injured Personal Injury Practice Areas: Brain Injury Accidents Automobile Accidents Maritime Accidents Construction Accidents Trucking Accidents Medical Malpractice Wrongful Death page 12 Dangerous Premises Defective Products Bicycle Accidents Motorcycle Accidents Sexual Harassment/Abuse Aviation Accidents Legal Malpractice Winter 2012 The Headliner Temper Outbursts Following TBI By Tom Novack, PhD and Jay Meythaler, MD, UAB Traumatic Brain Injury Model Systems Family members of individuals with TBI often refer to the injured person having a "short fuse," "flying off the handle" easily, being irritable or having a quick temper. Families frequently mention temper outbursts because they can be quite startling, and even if infrequent may overshadow other more serious difficulties, such as physical or cognitive deficits. Research on temper outbursts following TBI is sparse. Objective definition of temper outbursts has proven difficult and it is not clear if temper outbursts following TBI present a significant change from a person's premorbid characteristics. In most cases TBI does not help a temper problem and usually leads to some exacerbation of the pre-existing behavior. If a person had temper outbursts prior to the injury they will most likely still have outbursts after TBI. fact, in most cases injured individuals cannot even recall the injury itself). In many cases, particularly with more severe injury, one can assume that a combination of factors is influencing temperament Although research studies have not been instituted to confirm patterns of temperament among individuals with TBI, the experience at UAB suggests that temper outbursts after TBI have several common characteristics. First, the temper outbursts may occur in response to minor events, which have an unpredictable impact on the injured person. A minor problem that seemed to have no effect on the person yesterday may generate a significant response today. The person's anger tends to escalate very rapidly to a point of maximum intensity, which is often characterized by postural tension, angry expression, and verbal output that may include profanity and raising of the voice. The anger may be directed at someone, usually a family member, or something, such as a wall or a door. even remember the temper outburst or why they might have been angry. These outbursts may occur infrequently or several times a day. Certainly there are times when people with TBI will "simmer" and explode in anger with several hours of negative emotion thereafter, but the experience at UAB is that the rapid intense outbursts noted above are much more frequent among this population. Intervention can take place at two levels. First, behavioral intervention is always important and appropriate. Family members need to know how to behave in the presence of a temper outburst. For instance, it is essential that family members not attempt to argue with the person with head injury during an outburst since logic is not a predominant factor in the outburst. It is also important that they not overreact by trying to mollify the head injured person and give in to any demands that are made by the injured The cause of temper outbursts after TBI person. In most cases, the most is a matter of debate. It is possible that appropriate response of family members disinhibition associated with frontal area is to leave the injured person alone for dysfunction, particularly in the orbital and several minutes when an outburst has mesial areas, could be the cause of occurred so that the person can calm increased emotional lability, including the down spontaneously. Having a family expression of anger. It is not coincidental Rarely is there violence, such as hitting member present during an outburst may at others, throwing things, or breaking that one of the primary areas of actually lengthen the outburst by giving a things. Unless there is a history of contusion following TBI is the orbital focus for the anger. After the outburst has premorbid outbursts, families can frontal area. On the other hand, one subsided, discussion can then ensue generally be reassured that physical must also examine the changes in about issues leading up to the outburst harm is not anticipated during temper lifestyle brought about by the TBI. In and the injured person's response. It outbursts. Nonetheless, since the onset cases of severe head injury, individuals should always be emphasized to head is often sudden and there is a rapid who might have been independent prior injured people that their personal control to their trauma may be unable to function escalation, the outbursts can frighten people in proximity. The outburst usually is essential and that the injured person in adult settings, such as employment, can take steps to minimize temper lasts for a brief time and then the anger parenting, marriage, and handling finances. This can generate a great deal dissipates fairly rapidly. After three to five outbursts. For instance, some people with head injury can recognize when they are minutes, persons with TBI may be back of frustration, particularly since there is to baseline and act as if nothing out of no clear idea of when the person might becoming angry and remove themselves be able to resume independent activities the ordinary has occurred. In cases of from situations politely so that they do not and there has been no preparation made severe trauma, when memory is have an outburst in the presence of (Temper Outbursts Continued on page 14) significantly affected, the person may not for the sudden change that occurs (in www.kampfemanagement.com [email protected] 503-224-5077 fax 503-299-6178 The Headliner Winter 2012 page 13 (Temper Outbursts Continued from page 13) others. Having specific outlets, such as taking a walk, going into another room and turning on the radio, or engaging in some other physical activity, is appropriate and can serve as a signal to other family members that the injured person needs to be left alone for a period of time. The second level of intervention involves medication. Experiences at UAB suggest that propranolol is a good first line agent to help control temper outbursts. It appears to have a calming effect when presented at fairly low dosage levels (20-30mg/daily), which do not affect heart rate or blood pressure. It should be stressed that with any medication a trial of at least a week to two weeks is needed to determine effectiveness. During this period of time the family should be keeping track of the number of temper outbursts on a calendar so it can be objectively determined if the medication is having any effect. In fact, if feasible there should be a one/two-week baseline of collecting information about the frequency of temper outbursts before the initiation of medication. Numerous other medications have been used to deal with temper outbursts, including carbamazepine, buspirone, amantadine, and more recently, valproic acid. In general, benzodiazines and major tranquilizers should be avoided due to secondary cognitive effects. Only in extreme cases should medications such as risperidone, haloperidol, olanzapine, or thioridazine be used and then only under the direction of a psychiatrist familiar with TBI. It is important when working with family members of those experiencing temper outbursts to not minimize their concerns. Temper outbursts are a major factor determining whether someone can participate in vocational training and return to employment. In cases where temper outbursts are frequent, it is also important to emphasize to family members that interventions can be aimed at minimizing the problem, but it is unrealistic to expect that any medication or behavioral management strategy will completely do away with the outbursts. References Cardenas, D.D., & McClain, A. Jr. Pharmacologic management of traumatic brain injury. Physical Medicine and Rehabilitation Clinics of North America, 1992;3:273-290. Wood, R.L. & Cope, D.N. Behavioral problems and treatment after head injury. PhysicalMedicine and Rehabilitation: State of the Art Reviews, 1989;3(l):123-142 WinterSudoku (Answer from page 12) 9 2 3 5 7 1 6 5 8 1 5 4 2 9 3 1 4 8 1 6 4 4 9 5 3 7 6 8 4 9 7 8 2 3 2 8 8 9 1 3 7 6 7 4 5 2 3 6 5 3 9 1 Believe in yourself and follow your dreams… I could never convince the financiers that Disneyland was feasible because dreams offer too little collateral – Walt Disney When Other Treatments Fail For Traumatic Brain Injury RALPH E. WISER Attorney Representing Brain Injured Individuals Auto and other accidents Wrongful Death Sexual Abuse Elder Abuse Insurance issues and disputes Disability: ERISA and Non-ERISA, SSD, PERS Dr. Siegfried, Chiropractor Bilateral Nasal Specific Treatment has helped many patients suffering from Traumatic Brain Injury/Concussions since 1945. Dr. Siegfried has been using this method for over 30 years. One Centerpointe Drive, Suite 570 Lake Oswego, Oregon 97035 Phone: (503) 620-5577 Fax: (503) 670-7683 Email: [email protected] For more information go to: www.siegfriedchiropractic.com. Click onto Brain Injury. FREE INITIAL CONSULTATION Portland 503-977-0055 page 14 McMinnville 503-472-6550 Winter 2012 Free Parking/Convenient Location The Headliner We take it for granted, but our ability to analyze our own thoughts, actions and our impact on others is an incredibly complex task for the brain. Lack of self-awareness is a common outcome for people with frontal lobe injuries, and is related to emotional and personality variables. A brain-injured person may not recognize these disabilities, which are so obvious to others. In other cases, people may not realize the extent of their disabilities, and may believe that others are exaggerating these impairments. They often exaggerate their own abilities in terms of social skills or emotional control, and have unrealistic ideas about the future. This lack of self-awareness is not denial: denial involves rejecting knowledge. Where there is lack of self-awareness, there is no knowledge to reject — the brain-injured person is simply incapable of understanding their true situation, because of the brain injury. Not surprisingly, this inability to recognize deficits can cause many problems during rehabilitation. The need for rehabilitation services may be questioned, and there is often a complete lack of understanding of how cognitive problems impact on family and friends. People with low selfawareness may go back to work and not understand why they fail in the workplace. They may be unable to set achievable goals at work, or evaluate their own performance realistically. The family takes the brunt The impact on family members can be immense. If they confront the brain-injured person, there can be angry reactions. The family may try to believe nothing is wrong in their desire to see the family member get well, even though this could lead to dangerous situations such as driving with a visual impairment. A family should set specific goals that have to be met before the brain-injured person can forego medication, treatment or supervision. Ideally, any rehabilitation professionals should be involved. Families should continue to be honest with feedback in a nonjudgmental fashion and, when it is safe to do so, allow the brain-injured person to try a task, even when failure seems certain — but make sure there is encouragement to continue with therapy. It’s your fault, not mine Another impact on the family is that external causes may be wrongly blamed for problems that develop. Linked with lack of selfawareness can be a refusal to own up to having made a mistake. If someone is unaware of their deficits, they may actively seek to find explanations elsewhere. A useful strategy is encouraging them to look at a situation from an outside viewpoint and analyze what happened. Ideally, a problematic situation could be videotaped to aid this process. The hardest part of being blamed for something is to not take it as a personal insult. Arguing will only worsen the situation, so usually it is best to agree to disagree. A good response would be “We both see this from different angles, so let’s leave it there”. If blame is a constant problem, the whole family should look at consistently adopting the most suitable conflict-defusing response. Seeking professional help If lack of self-awareness is treated professionally, the first step is usually a neuropsychological assessment. This will assess the brain-injured person’s cognitive strengths and weaknesses, specify the impaired awareness, and suggest a treatment plan. Usually the family will be included in this process. There are various psychotherapeutic techniques used to help increase a person’s selfawareness. The therapist first gains the survivor’s trust, then gently helps them to see the discrepancy between their perceived and actual level of functioning. The next step is to help the person anticipate and plan for the problems their deficits may bring about, by teaching strategies to deal with them. Treatment methods will vary, depending on the type of awareness impairment. The long road to awareness Lack of awareness can lead to poor recovery. Family members should be on the lookout for this, and seek treatment when required to enhance the quality of life for the brain-injured person. Impaired self-awareness can be one of the most frustrating, even infuriating, deficits to encounter in your loved one, and can take the longest time to overcome. It is important to be realistic about this, and to take care of yourself during this process. With time and commitment, self-awareness will grow. Source: Synapse Autumn 2008 THREE TYPES OF SELF-AWARENESS IMPAIRMENT 1. Impaired intellectual awareness — an inability to understand a deficit exists 2. Impaired emergent awareness — awareness of a problem, but an inability to realize when the problem is occurring, or to compensate for the deficits 3. Anticipatory impaired awareness — awareness of the deficit and recognition of when the problem is occurring, but an inability to anticipate the likely situations in which the problems will crop up. The Headliner HANDICAP VEHICLES AND MOBILITY EQUIPMENT IN CO , OR & WA Performance Mobility is committed to providing the highest quality wheelchair accessible transportation to enhance quality of life for individuals and families. You'll find an informational, no-pressure approach and mountains of experience to meet your transportation needs. 503-243-2940 www.performancemobility.com Winter 2012 page 15 Live c si Mu You Are Invited Valentine’s wit h or w Danci ng it h Ref out res wh hm e ent to a s pr elcha ir ovi de d s Dance Hosted by Brain Injury Survivors Pre-registration is appreciated 503-693-8200 Drop-ins welcome When: Saturday, February 11, 2012 Time: 6:00 - 8:00 pm Where: Elsie Stuhr Center 5550 SW Hall Blvd. Beaverton, OR 97005 Fr tio ee Sug ns acc don ges epte d $3 ation ted Do na Sponsored by the Brain Injury Alliance of Oregon and Bridge to Independence Day Program for the brain injured adult. For day program info call 503-640-0818 Email: [email protected] Where brain injury rehabilitation can be fun! page 16 Winter 2012 The Headliner Stem cell transplantation prevents further traumatic axonal injury For years, researchers seeking new therapies for traumatic brain injury have been tantalized by the results of animal experiments with stem cells. In numerous studies, stem cell implantation has substantially improved brain function in experimental animals with brain trauma. But just how these improvements occur has remained a mystery. the processes by which GDNF and neural stem cell transplantation produced their beneficial effects, Wu enlisted UTMB professors Larry Denner, Douglas Dewitt and Dr. Donald Prough to use proteomic techniques to compare injured rat brains with injured rat brains into which neural stem cells had been transplanted. "We identified about 400 proteins that respond differently after injury and after grafting with neural stem cells," Wu said. suffered damage from trauma; implanted neural stem cells reduced this harm, as well as lowering levels of alpha-smooth muscle actin inside neurons that were raised after trauma. Now, an important part of this puzzle has To probe further into the molecular details been pieced together by researchers at of GDNF's role in reducing traumatic the University of Texas Medical Diffuse Axonal axonal injury, the researchers used a Branch at Galveston. In experiments system in which human neurons were with both laboratory rats and an A Diffuse Axonal Injury can be caused by placed on a flexible membrane that apparatus that enabled them to shaking or strong rotation of the head, as with was then suddenly distended with a simulate the impact of trauma on Shaken Baby Syndrome, or by rotational forces, precisely calibrated puff of gas. Their human neurons, they identified key such as with a car accident. goal was to simulate the sudden molecular mechanisms by which compression and stretching forces implanted human neural stem cells Injury occurs because the unmoving brain lags exerted on brain cells by a blow to the stem cells that are in the process of behind the movement of the skull, causing brain head. developing into neurons but have not structures to tear. yet taken their final form - aid recovery Initial results from this "rapid stretch from traumatic axonal injury. There is extensive tearing of nerve tissue injury model" matched those seen in throughout the brain. This can cause brain rat experiments, with GDNF protecting A significant component of traumatic chemicals to be released, causing additional axons and dendrites from additional brain injury, traumatic axonal injury injury. damage in the period after trauma and involves damage to axons and significantly reducing alpha-smooth dendrites, the filaments that extend The tearing of the nerve tissue disrupts the muscle actin levels boosted by the out from the bodies of the neurons. brain’s regular communication and chemical simulated injury. In addition, they The damage continues after the initial found evidence linking alpha-smooth trauma, since the axons and dendrites processes. muscle actin with RhoA, a small respond to injury by withdrawing back This disturbance in the brain can produce protein that blocks axonal growth after to the bodies of the neurons. temporary or permanent widespread brain injury. Finally, again taking a cue from damage, coma, or death. their proteomic study, they turned "Axons and dendrites are the basis of their attention to one component of a neuron-to-neuron communication, and A person with a diffuse axonal injury could protein known as calcineurin, finding when they are lost, neuron function is present a variety of functional impairments that it interacted with GDNF to protect lost," said UTMB professor Ping Wu, axons and dendrites in the RSI model. lead author of a paper on the research depending on where the shearing (tears) occurred in the brain. "We're quite excited about these appearing in the Journal of discoveries, because they're highly Neurotrauma. "In this study, we found novel - we now know much more about "When we grouped them using a statethat our stem cell transplantation both how GDNF protects axons and dendrites of-the-art Internet database, we found prevents further axonal injury and from further injury and promotes their rethat a group of cytoskeleton proteins promotes axonal regrowth, through a growth after trauma," Wu said. "This kind was being changed, and in particular number of previously unknown molecular of detailed study is essential to one called alpha-smooth muscle actin, mechanisms." developing safe and effective therapies which had never been reported in the for traumatic brain injury." neurons before." The UTMB researchers began their investigation with a clue from their Source: University of Texas Medical Branch at Because so many of the proteins that previous work: they had determined that Galveston (http://www.news-medical.net/ changed were related to axonal their neural stem cells secreted a news/20120113/Stem-cell-transplantationstructure and function, the UTMB substance called glial derived prevents-further-traumatic-axonal-injury.aspx) scientists then focused on traumatic neurotrophic factor, which seemed to axonal injury. Initially working with rats, help injured rat brains recover from they confirmed that axons and dendrites injury. As a first step toward identifying The Headliner Winter 2012 page 17 page 18 Winter 2012 The Headliner The Headliner Winter 2012 page 19 page 20 Winter 2012 The Headliner One in 10 may suffer a silent stroke Taking exercise and eating healthily could cut the risk of memory loss caused by a silent stroke. While most people who suffer a stroke will be aware of it, silent stroke is not associated with any obvious symptoms, leaving the sufferer unaware that he or she has even had a problem. It’s not the same as a mini-stroke, which does cause symptoms, however brief. A silent stroke is a result of a blood clot that interrupts bloodflow to the brain and as a result it can cause damage to the brain as well as increase your risk of future strokes. Routine brain scans led researchers from the Boston University School of Medicine to estimate that one in 10 middle-aged people have had a silent stroke. Researchers at the Taub Institute for Research on Alzheimer’s Disease and the Aging Brain in New York performed MRI brain scans on 658 people aged 65 and over, none of whom had been diagnosed with dementia. The participants also underwent memory and language tests, processing speed tests and visual perception tests. The scans identified 174 individuals who had had silent strokes. When the researchers compared data from the participants’ test performances they found that those who had had silent strokes scored less well. The Headliner This suggests that silent strokes may be a contributing factor towards decreased brain function and dementia, and that it could be worth people making lifestyle changes to decrease their risk. Having a ‘mini stroke’ (or transient ischemic attack, TIA) is not fatal, but according to research from the University of New South Wales, it dramatically increases a person’s future risk of dying prematurely. The good news is that the risk can be reduced with some fairly simple lifestyle changes. The researchers followed the progress of 22,000 adults who had had a mini stroke for several years and compared death rates with those of the general population. They found that having a mini stroke Winter 2012 reduces your life expectancy by 20%. One year after suffering a mini stroke, 91.5% of study participants were still alive – this in comparison to 95% of the general population, matched for age. At five years survival was 13.2% lower than the general population. After nine years, a person who had had a mini-stroke was 20% less likely to be alive compared to the average person. Similar effects were seen regardless of when the stroke occurred – whether the person was young or old – although the older a person was the greater the risk of death. So what can you do if you suffer a ministroke to look after your health? The same changes that improve overall cardiovascular health will help prevent silent strokes: keep a steady healthy weight, getting regular vigorous exercise, eating a healthy low-fat diet with plenty of fresh vegetables and fruit (five portions a day minimum), steering clear of processed foods that are often laden with salt, sugar or fats, stop smoking, and drinking only moderately. page 21 Understanding Mild Traumatic Brain Injury (MTBI): An Insightful Guide to Symptoms, Treatment and Redefining Recovery Understanding Mild Traumatic Brain Injury (MTBI): An Insightful Guide to Symptoms, Treatment and Redefining Recovery Edited by Mary Ann Keatley, PhD and Laura L. Whittemore $16.00 The Essential Brain injury Guide The Essential Brain Injury Guide provides a wealth of vital information about brain injury, its treatment and rehabilitation. Written and edited by leading brain injury experts in non-medical language, it’s easy to understand. This thorough guide to brain injury covers topics including: Understanding the Brain and Brain Injury; Brain Injury Rehabilitation; Health, Medications and Medical Management; Treatment of Functional Impacts of Brain Injury; Children and Adolescents; Legal and Ethical Issues; and MORE! Used as the primary brain injury reference by thousands of professionals and para-professionals providing direct services to persons with brain injury over the past 15 years. $60.00 Recovering from Mild Traumatic Brain Injury A handbook of hope for military and their families. Edited by Mary Ann Keatley, PhD and Laura L. Whittemore This clear and concise handbook speaks to our Wounded Warriors and their families and helps them navigate through the unknown territory of this often misunderstood and unidentified injury. It provides an insightful guide to understanding the symptoms, treatment options and redefines "Recovery" as their new assignment. Most importantly, the intention of the authors is to inspire hope that they will get better, they will learn to compensate and discover their own resiliency and resourcefulness. $18.00 Ketchup on the Baseboard Ketchup on the Baseboard tells the personal story of the authors' family’s journey after her son, Tim, sustained a brain injury. Chronicling his progress over more than 20 years, she describes the many stages of his recovery along with the complex emotions and changing dynamics of her family and their expectations. More than a personal story, the book contains a collection of articles written by Carolyn Rocchio as a national columnist for newsletters and journals on brain injury. $20 A Change of Mind A Change of Mind by Janelle Breese Biagioni is a very personal view of marriage and parenting by a wife with two young children as she was thrust into the complex and confusing world of brain injury. Gerry Breese, a husband, father and constable in the Royal Canadian Mounted Police was injured in a motorcycle crash while on duty. Janelle traces the roller coaster of emotions, during her husband’s hospital stay and return home. She takes you into their home as they struggle to rebuild their relationship and life at home. $20 Fighting for David Leone Nunley was told by doctors that her son David was in a "persistent coma and vegetative state"--the same diagnosis faced by Terri Schiavo's family. Fighting for David is the story how Leone fought for David's life after a terrible motorcycle crash. This story shows how David overcame many of his disabilities with the help of his family. $15 The Caregiver's Tale: The True Story Of A Woman, Her Husband Who Fell Off The Roof, And Traumatic Brain Injury From the Spousal Caregiver's, Marie Therese Gass, point of view, this is the story of the first seven years after severe Traumatic Brain Injury, as well as essays concerning the problems of fixing things, or at least letting life operate more smoothly. Humor and pathos, love and frustration, rages and not knowing what to do--all these make up a complete story of Traumatic Brain Injury. $15 page 22 Brain Injury Alliance of Oregon New Member Renewing Member Name: ___________________________________________ Street Address: _____________________________________ City/State/Zip: ______________________________________ Phone: ___________________________________________ Email: _____________________________________________ Type of Membership Survivor Courtesy $ 5 (Donations from those able to do so are appreciated) Basic $35 Family $50 Students $25 Non Profit $75 Professional $100 Sustaining $200 Corporation $300 Lifetime $5000 Sponsorship Bronze $300 Silver $500 Gold $1,000 Platinum $2,000 Additional Donation/Memorial: $________________ In memory of: ______________________________________ (Please print name) Member is: Individual with brain injury Family Member Other:_________ Professional. Field: _______________________________ Book Purchase ($2 per book for mailing): The Caregiver’s Tale $15 Change of Mind $20 Fighting for David $15 Ketchup on the Baseboard $20 The Essential Brain Injury Guide $60 Recovering from MTBI $18 Understanding MTBI $16 Type of Payment Check payable to BIAOR for $ ________________________ Charge my VISA/MC/Discover Card $ __________________ Card number: _________ __________ _________ __________ Expiration date: _____________ Security Code from back _________ Print Name on Card: __________________________________ Signature Approval: __________________________________ Date: ______________________________________________ Please mail to: BIAOR PO Box 549 Molalla, OR 97038 800-544-5243 Fax: 503– 961-8730 www.biaoregon.org • [email protected] 501 (c)(3) Tax Exempt Fed. ID 93-0900797 Winter 2012 The Headliner Order 2011 Conference DVDs —No CEUs $15.00 Music and the Brain $25.00 Cognitive Rehabilitation: Using research evidence and careful documentation to strengthen the case for insurance funding $25.00 Searching the Cure: Advances in Brain Injury Rehabilitation $25.00 Aggressive Recovery Focused Physical Therapy $25.00 Teaching Executive Functioning Skills: Time Management Tools to Support the Brain Client $25.00 TBI: Introduction & Overview for Families and Caregivers $25.00 Concussion Is Not Just a Bump on the Head: Sequelae Of Mild TBI Associated with Sports and Other Traumatic Injuries $15.00 Toward Universal Access to Health Care $15.00 Improving School Services for Students with TBI $149.99 for all $3 S&H per DVD or $17 for complete set Send Check to BIAOR, PO Box 549, Molalla OR 97038 At Windsor Place, we believe in promoting the self-confidence and self-reliance of all of our residents Sharon Slaughter Windsor Place, Inc. 3009 Windsor Ave. NE Salem Oregon 97301 www.windsorplacesalem.org Executive Director [email protected] Phone: 503-581-0393 Fax: 503-581-4320 The Headliner Winter 2012 page 23 Resources For Parents, Students, Educators and Professionals Returning Veterans Project Returning Veterans Project is a nonprofit organization comprised of politically unaffiliated and independent health care practitioners who offer free counseling and other health services to veterans of past and current Iraq and Afghanistan campaigns and their families. Our volunteers include mental health professionals, acupuncturists and other allied health care providers. We believe it The Oregon TBI Team is our collective responsibility to offer education, support, and healing for the short and long-term The Oregon TBI Team is a multidisciplinary group repercussions of military combat on veterans and their families. For more information contact: Belle of educators and school professionals trained in Bennett Landau, Executive Director, 503-933-4996 www.returningveterans.org email: pediatric brain injury. The Team provides in-service [email protected] training to support schools, educators and families of students (ages 0-21) with TBI. For evidence Center for Polytrauma Care-Oregon VA based information and resources for supporting Providing rehabilitation and care coordination for combat-injured OIF/OEF veterans and active duty students with TBI, visit: www.tbied.org service members. For more information about Oregon’s TBI Contact: Ellen Kessi, LCSW , Polytrauma Case Manager [email protected] 1-800-949-1004 www.cbirt.org/oregon-tbi-team/ x 34029 or 503-220-8262 x 34029 [email protected] 1-877-872-7246 “Brain Injury Partners: Navigating the School System,” an interactive, multimedia intervention, is now available on-line free of charge. The easy-to-use website is designed to give parents of school-aged children with a brain injury the skills they need to become successful advocates. http://free.braininjurypartners.com/. Oregon Parent Training and Information Center (OR PTI) Washington TBI Resource Coordinator Services Washington Traumatic Brain Injury Resource Coordination Services provides resource coordination as a short-term intervention for TBI survivors & their families. This services is to help improve the quality of life for TBI survivors and their families by connecting them with services and supports. Carla-Jo Whitson, MSW CBIS 360-699-4928 [email protected] www. tbirc.org Legal Help A statewide parent training and information center serving parents of children with disabilities. 503-581 -8156 or 888-505-2673 [email protected] www.orpti.org Disability Rights Oregon (DRO) promotes Opportunity, Access and Choice for individuals with disabilities. Assisting people with legal representation, advice and information designed to help solve problems directly related to their disabilities. All services are confidential and free of charge. (503) 243 -2081 http://www.disabilityrightsoregon.org/ LEARNet Legal Aid Services of Oregon serves people with low-income and seniors. If you qualify for food stamps you may qualify for services. Areas covered are: consumer, education, family law, farmworkers, government benefits, housing, individual rights, Native American issues, protection from abuse, seniors, and tax issues for individuals. Multnomah County 1-888-610-8764 www.lawhelp.org Provides educators and families with invaluable information designed to improve the educational outcomes for students with brain injury. www.projectlearnet.org/index.html FREE Brain Games to Sharpen Your Memory and Mind www.realage.com/HealthyYOUCenter/Games/ intro.aspx?gamenum=82 http://brainist.com/ Home-Based Cognitive Stimulation Program http://main.uab.edu/tbi/show.asp? durki=49377&site=2988&return=9505 Sam's Brainy Adventure http://faculty.washington.edu/chudler/flash/ comic.html Neurobic Exercise www.neurobics.com/exercise.html Brain Training Games from the Brain Center of America www.braincenteramerica.com/exercises_am.php page 24 Lewis & Clark Legal Clinic is a civil practice clinic for the Northwestern School of Law of Lewis & Clark College. Representing low-income individuals experiencing a cariety of civil and administrate problems. 503-768-6500 Oregon Law Center Legal provides free legal services to low income individuals, living in Oregon, who have a civil legal case and need legal help. Assistance is not for criminal matter or traffic tickets. http://oregonlawhelp.org Oregon State Bar Lawyer Referral Services refers to a lawyer who may be able to assist. 503-6843763 or 800-452-7636 The Oregon State Bar Military Assistance Panel program is designed to address legal concerns of Oregon service members and their families immediately before, after, and during deployment. The panel provides opportunities for Oregon attorneys to receive specialized training and offer pro bono services to service members deployed overseas. 800-452-8260 St. Andrews Legal Clinic is a community non-profit that provides legal services to low income families by providing legal advocacy for issues of adoption, child custody and support, protections orders, guardianship, parenting time, and spousal support. 503-557-9800 Winter 2012 The Headliner ARE YOU A MEMBER? The Brain Injury Alliance of Oregon relies on your membership dues and donations to operate our special projects and to assist families and survivors. Many of you who receive this newsletter are not yet members of BIAOR. If you have not yet joined, we urge you to do so. It is important that people with brain injuries, their families and the professionals in the field all work together to develop and keep updated on appropriate services. Professionals: become a member of our Neuro-Resource Referral Service. Dues notices have been sent. Please remember that we cannot do this without your help. Your membership is vitally important when we are talking to our legislators. For further information, please call 1-800-544-5243 or email [email protected]. See page 23 to sign up. NEW With support from the National Football League and CDC Foundation, the CDC has created a new FREE online training to provide health care professionals with an overview of what they need to know about concussion among young athletes. The goal of this course, Heads Up to Clinicians: Addressing Concussion in Sports among Kids and Teens, is to prepare health care professionals to diagnose and manage concussions on the sidelines, in their office, training room, or in the emergency department. www.preventingconcussions.org/ Financial Assistance Affordable Naturopathic Clinic in Southeast Portland An affordable, natural medicine clinic is held the second Saturday of each month. Dr. Cristina Cooke, a naturopathic physician, will offer a sliding-scale. Naturopaths see people with a range of health concerns including allergies, diabetes, fatigue, high bloodpressure, and issues from past physical or emotional injuries. Food, Cash, Housing Help from Oregon Department of Human Services 503-945-5600 http://www.oregon.gov/DHS/assistance/index.shtml Housing Various rental housing assistance programs for low income households are administered by local community action agencies, known as CAAs. Subsized housing, such as Section 8 rental housing, is applied for through local housing authorities. 503-986-2000 http://oregon.gov/ OHCS/CSS_Low_Income_Rental_Housing_ Assistance_Programs.shtml Oregon Food Pantries http://www.foodpantries.org/st/ oregon Central City Concern, Portland 503 294-1681 Central City Concern meets its mission through innovative outcome based strategies which support personal and community transformation providing: • Direct access to housing which supports lifestyle change. • Integrated healthcare services that are highly effective in engaging people who are often alienated from mainstream systems. • The development of peer relationships that nurture and support personal transformation and recovery. • Attainment of income through employment or accessing benefits. The Headliner The Southeast Community Church of the Nazarene 5535 SE Rhone, Portland. For more information of to make an appointment, please call: Dr. Cooke, 503-984-5652 Tammy Greenspan Head Injury Collection A terrific collection of books specific to brain injury. You can borrow these books through the interlibrary loan system. A reference librarian experienced in brain injury literature can help you find the book to meet your needs. 516-249-9090 Long Term Care—Melissa Taber, Long Term Care TBI Coordinator, DHS, State of Oregon 503-947-5169 The Low-Income Home Energy Assistance Program (LIHEAP) is a federally-funded program that helps lowincome households pay their home heating and cooling bills. It operates in every state and the District of Columbia, as well as on most tribal reservations and U.S. territories. The LIHEAP Clearinghouse is an information resource for state, tribal and local LIHEAP providers, and others interested in low-income energy issues. This site is a supplement to the LIHEAP-related information the LIHEAP Clearinghouse currently provides through its phone line 1800-453-5511 www.ohcs.oregon.gov/OHCS/ SOS_Low_Income_Energy_Assistance_Oregon.shtml The clinic is located at: Valuable Websites www.BrainLine.org: a national multimedia project offering information and resources about preventing, treating, and living with TBI; includes a series of webcasts, an electronic newsletter, and an extensive outreach campaign in partnership with national organizations concerned about traumatic brain injury. www.iCaduceus.com: The Clinician's Alternative, the premiere web-based alternative medical resource. www.oregon.gov/odva: Oregon Department of Veterans Affairs http://fort-oregon.org/: information for current and former service members www.idahotbi.org/: Idaho Traumatic Brain Injury Virtual Program Center-The program includes a telehealth component that trains providers on TBI issues through videoconferencing and an online virtual program center. www.headinjury.com/ - information for brain injury survivors and family members http://activecoach.orcasinc.com Free concussion training for coaches ACTive: Athletic Concussion Training™ using Interactive Video Education www.braininjuryhelp.org Peer mentoring help for the TBI survivor in the Portland Metro/ Southern Washington area. 503-224-9069 www.phpnw.org If you, or someone you know needs help-contact: People Helping People Sharon Bareis 503-875-6918 www.oregonpva.org - If you are a disabled veteran who needs help, peer mentors and resources are available http://oregonmilitarysupportnetwork.org - resource for current and former members of the uniformed military of the United States of America and their families. http://apps.usa.gov/national-resource-directory/National Resource Directory The National Resource Directory is a mobile optimized website that connects wounded warriors, service members, veterans, and their families with support. It provides access to services and resources at the national, state and local levels to support recovery, rehabilitation and community reintegration. (mobile website) http://apps.usa.gov/ptsd-coach/PTSD Coach is for veterans and military service members who have, or may have, post-traumatic stress disorder (PTSD). It provides information about PTSD and care, a self-assessment for PTSD, opportunities to find support, and tools–from relaxation skills and positive self-talk to anger management and other common self-help strategies–to help manage the stresses of daily life with PTSD. (iPhone) Winter 2012 page 25 Molalla BRAIN INJURY SUPPORT GROUP OF MOLALLA 5:30 pm—7:00, Every Monday Support group and Hydro-exercise - Molalla Pool Sherry Stock [email protected] 503-740-3155 Must Be Pre-Registered Oregon Brain Injury Support Groups Bend CENTRAL OREGON SUPPORT GROUP 2nd Saturday 10:30am to 12:00 noon St. Charles Medical Center 2500 NE Neff Rd, Bend 97701 Rehab Conference Room, Lower Level Joyce & Dave Accornero, 541 382 9451 [email protected] CORIL Thursday Support Group Every Thursday 10:30 am-12pm Fox Hollow Assisted Living Center 2599 NE Studio Rd Bend OR 97701 Rich Zebrowski 541-388-8103 x 203 [email protected] Brookings BRAIN INJURY GROUP (BIG) To be announced 1-877-469-8844, 541-469-8887 Cottage Grove BIG II (Brain Injury Group II ) Thursdays 11 a.m. to 12:30 p.m. Jefferson Park Recreation Room 325 S. Fifth St, Cottage Grove For directions and information, Anna, 541-767-0845. Corvallis STROKE & BRAIN INJURY SUPPORT GROUP 1st Tuesday 1:30 to 3:00 pm Church of the Good Samaritan Lng 333 NW 35th Street, Corvallis, OR 97330 Call for Specifics: Shawn Johnson, CCC-SLP 541-768-5157 [email protected] Coos Bay Traumatic Brain Injury (TBI) Support Group 2nd Saturday August 9th 3:00pm – 5:00pm Kaffe 101, 171 South Broadway Coos Bay, OR 97420 [email protected] Eugene (3) COMMUNITY REHABILITATION SERVICE OF OREGON 3rd Tuesday : Feb, April, June, July, Aug, Sept, Oct, Dec 6:30-8:30 pm Potluck Social Monta Loma Mobile Home Rec Center 2150 Laura St, Springfield, OR. 97477 Jan Johnson, (541) 342-1980 [email protected] COMMUNITY REHABILITATION SERVICE OF OREGON 3rd Tuesday 7:00-8:30 pm Support Group—January, March, May, November St Thomas Episcopal Church 1465 Coburg Rd, Eugene, OR. 97401 Jan Johnson, (541) 342-1980 [email protected] page 26 BIG (BRAIN INJURY GROUP) Tuesdays 11:00am-1pm Hilyard Community Center 2580 Hilyard Avenue, Eugene, OR. 97401 Curtis Brown, (541) 998-3951 [email protected] Hillsboro Westside SUPPORT GROUP 1st Monday 7-8 pm For brain injury survivors, their families, caregivers and professionals Tuality Community Hospital 335 South East 8th Street, Hillsboro, OR 97123 Carol Altman, (503)640-0818 Klamath Falls SPOKES UNLIMITED BRAIN INJURY SUPPORT GROUP 2nd Tuesday 1:00pm to 2:30pm 1006Main Street, Klamath Falls, OR 97601 Dawn Lytle 541-883-7547 [email protected] SPOKES UNLIMITED BRAIN INJURY RECREATION 4th Tuesday Contact Dawn Lytle for additional information: 541-883-7547 [email protected] Lebanon BRAIN INJURY SUPPORT GROUP OF LEBANON 1st Thursday 6:30 pm Lebanon Community Hospital, Conf Rm #6 525 North Santiam Hwy, Lebanon, OR 97355 Lisa Stoffey 541-752-0816 [email protected] Newport BRAIN INJURY SUPPORT GROUP OF NEWPORT 2nd Saturday 2-4 pm 4909 S Coast Hwy Suite 340 South Beach, Oregon 97366 (541) 867-4335 or [email protected] www.progressive-options.org Oregon City 3rd Friday 1-3 pm Clackamas Community College McLoughlin Hall Rm #M226 (2nd floor) Sonja Bolon, MA 503-816-1053 [email protected] Pendleton Inactive at this time. For more information contact: Joyce McFarland-Orr (541) 278-1194 [email protected] Portland (12) BRAINSTORMERS I 2nd Saturday 10:00 - 11:30am Women survivor's self-help group Wilcox Building Conference Room A 2211 NW Marshall St., Portland 97210 Next to Good Samaritan Hospital Jane Starbird, Ph.D., (503) 493-1221 [email protected] BIRC Alumni Support Group On hiatus until further notice Madras (2) Brain Injury Support Group 2nd & 4th Thursday eve 5:30- 7:00 pm 125 SW C Street Madras OR 97741 Through BestCare Treatment Services Contact Dr. Nancy Holmes (617) 617-5366 Fee for Service-OHP included BRAINSTORMERS Il 3rd Saturday 10:00am-12:00noon Survivor self-help group Emanuel Hospital, M.O.B.-West 2801 N Gantenbein, Portland, 97227 Steve Wright [email protected] TBI Support Group for Family and Friends 1st and 3rd Thursday eve 5:30- 7:00 pm Bestcare Treatment Services 125 SW C Street, Madras OR 97741 MUST PRE-REGISTER AT LEAST 2 DAYS BEFORE MEETING Contact Dr. Nancy Holmes (541) 617-5366 Leave the following information: participant name; phone & address Wistar-Morris Room Medford SOUTHERN OREGON BRAINSTORMERS SUPPORT AND SOCIAL CLUB 1st Tuesday 3:30 pm to 5:30 pm 751 Spring St., Medford, Or 97501 Lorita Cushman @ 541-621-9974 [email protected] Winter 2012 BIRRDsong Support Group 1st Saturday, 9:30-11 am Peer Support Group for Survivors & Family 2211 NW Marshall St., Portland 97210 Next to Good Samaritan Hospital [email protected] CROSSROADS (Brain Injury Discussion Group) 2nd and 4th Friday, 1-3 pm Independent Living Resources 1839 NE Couch St, Portland, OR 97232 Sarah Gerth, 503-232-7411 [email protected] Must Be Pre-Registered FAMILY SUPPORT GROUP 3rd Saturday 1:00 pm-2:00 pm Self-help and support group Currently combined with PARENTS OF CHILDREN WITH BRAIN INJURY Emanuel Hospital, Rm 1035 2801 N Gantenbein, Portland, 97227 Joyce Kerley (503) 281-4682 [email protected] The Headliner Brain Injury Support Groups provide face-to-face interaction among people whose lives have been affected by brain injury, including Peer Support and Peer Mentoring. FARADAY CLUB Must be pre-registered 1st Saturday 1:00-2:30pm Peer self-help group for professionals with BI Emanuel Hospital, Rm. 1035 2801 N Gantenbein, Portland, 97227 Arvid Lonseth, (503) 680-2251 (pager) [email protected] HELP (Help Each Other Live Positively) 4th Saturday - 1:00-3:00 pm TBI Survivor self-help group (Odd months) TBI Family & Spouse (Even Months) Cognitive Enhancement Center 15705 S.E. Powell Blvd. Portland Or. Brad Loftis, (503) 760-0425 [email protected] Please contact at least two days in advance PARENTS OF CHILDREN WITH BRAIN INJURY 3rd Saturday 12:30 - 2:30 pm self-help support group. 12:30-1 pm Currently combined with THRIVE SUPPORT GROUP for Pizza then joins FAMILY SUPPORT GROUP Emanuel Hospital, Rm 1035 2801 N Gantenbein, Portland, 97227 Joyce Kerley (503) 281-4682 [email protected] Positive Brain Injury Support Group Must be pre-registered For career persons with brain injury Every other Monday 4:30- 6 pm 4511 SE 39th Ave., Portland, 97202 Call: Don Ford, (503) 297-2413 [email protected] Or Nancy Holmes, PsyD, (503) 235-2466 THRIVE SUPPORT GROUP 3rd Saturday 12:30 - 2:30 pm Teenage and Young adult Brain Injury Survivor support group Emanuel Hospital, MOB West Medical Office building West on N.Graham St Directly across from parking lot 2 2801 N Gantenbein, Portland, 97227 Kate Robinson, 503-318-5878 TBI SOCIAL CLUB Location varies, call for times & locations Meets twice a month - days and times vary call for information Michael Flick, 503-775-1718 Greater Persons Toastmasters Club (for People with Brain Injury) On Hiatus until further notice Caleb Burns, (503) 913-4517 Roseburg UMPQUA VALLEY DISABILITIES NETWORK For survivors of brain injury and family members or caregivers of survivors 2nd Monday 12 noon - 1:15pm 736 SE Jackson St, Roseburg, OR 97470 (541) 672-6336 [email protected] The Headliner Salem (3) SALEM BRAIN INJURY SUPPORT GROUP 2nd & 4th Thursday 4pm-6pm Salem Rehabilitation Center, Conf Rm 2 A/B 2561 Center Street, Salem OR 97301 Megan Snider (503) 561-1974 [email protected] SALEM COFFEE & CONVERSATION Fridays 11-12:30 pm Ike Box Café 299 Cottage St, Salem OR 97301 SALEM STROKE SURVIVORS & CAREGIVERS SUPPORT GROUP 2nd Friday 1 pm –3pm Salem Rehabilitation Center 2561 Center Street, Salem OR 97301 Scott Werdebaugh 503-838-6868 Ruby McEliroy 503-390-3372 VANCOUVER, WA TBI Support Group 2nd and 4th Thursday 2pm to 3pm Legacy Salmon Creek Hospital, 2211 NE 139th Street conference room B 3rd floor Vancouver WA 98686 Carla-Jo Whitson, MSW, CBIS [email protected] 360-991-4928 IDAHO & SURROUNDING TBI SUPPORT GROUPS STARS/Treasure Valley BI Support Group 4th Thursday of each month 7-9 pm Idaho Elks Rehab Hosp, Sawtooth Room (4th Floor), Boise ID Kathy Smith (208-367-8962; [email protected]) Greg Meyer (208-489-4963; [email protected]) Southeastern Idaho TBI support group 2nd Wednesday of each month 12:30 p.m. LIFE, Inc., 640 Pershing Ste. A, Pocatello, ID Tracy Martin (208-232-2747) Clay Pierce (208-904-1208 or 208-417-0287; [email protected]) Twin Falls TBI Support Group 3rd Tuesday of each month 6:30-8 p.m. St. Lukes’ Idaho Elks Rehab Hosp, Twin Falls, ID Keran Juker ([email protected]; 208-737-2126) *Northern Idaho TBI Support Group *For Veterans 3rd Sat. of each month 1-3 pm Kootenai Med. Center, 2003 Lincoln Way Rm KMC 3 Coeur d’Alene, ID Sherry Hendrickson (208-666-3903, [email protected]) Craig Sicilia (509-218-7982; [email protected]) Ron Grigsby (208-659-5459) Quad Cities TBI Support Group Second Saturday of each month, 9 a.m. Tri State Memorial Hosp. 1221 Highland Ave, Clarkston, WA Deby Smith (509-758-9661; [email protected]) Winter 2012 Stevens County TBI Support Group 1st Tuesday of each Month 6-8 pm Mount Carmel Hospital, 982 E. Columbia, Colville, WA Craig Sicilia 509-218-7982; [email protected] Danny Holmes (509-680-4634) *TBI Self-Development Workshop “reaching my own greatness” *For Veterans 2nd & 4th Tues. 11 am- 1 pm Spokane Downtown Library 900 W. Main Ave., Spokane, WA Craig Sicilia (509-218-7982; [email protected]) Spokane TBI Survivor Support Group 2nd Wednesday of each month 7 p.m. St. Luke's Rehab Institute, 711 S. Cowley, #LL1, Spokane, WA Craig Sicilia (509-218-7982; [email protected]) Michelle White (509-534-9380; [email protected]) Valerie Wooten (360-387-6428) Spokane Family & Care Giver BI Support Group 4th Wednesday of each month, 6 p.m. St. Luke's Rehab Institute, 711 S. Cowley, #LL1, Spokane, WA Melissa Gray ([email protected]) Craig Sicilia (509-218-7982; [email protected]) Michelle White (509-534-9380; [email protected]) Spokane County BI Support Group 4th Wednesday of each month 6:30 p.m.-8:30 p.m. 12004 E. Main, Spokane Valley WA Craig Sicilia (509-218-7982; [email protected]) Toby Brown (509-868-5388) Spokane County Disability/BI Advocacy Group 511 N. Argonne, Spokane WA Craig Sicilia (509-218-7982; [email protected]) Moses Lake TBI Support Group 2nd Wednesday of each month, 7 p.m. Samaritan Hospital 801 E. Wheeler Rd # 404, Moses Lake, WA Jenny McCarthy (509-766-1907) Pullman TBI Support Group 3rd Tuesday of each month, 7-9p.m. Pullman Regional Hospital, 835 SE Bishop Blvd, Conf Rm B Pullman, WA Alice Brown (509-338-4507) Pullman BI/Disability Advocacy Group 2nd Thursday of each month, 6:30-8:00p.m. Gladish Cultural Center, 115 NW State St., #213 Donna Lowry (509-725-8123) page 27 NON-PROFIT ORG U. S. Postage PAID PORTLAND, OR PERMIT NO. 3142 How 20.5 CEUs Hosted By: Brain Injury Alliance of Oregon & Oregon Paralyzed Veterans of America Living with Brain/Spinal Cord Injury & Disease: Striving for Excellence The 10th Annual Pacific Northwest Brain Injury Conference 2012 Sheraton Airport Hotel Portland, Oregon Register Now For $75 Discount! March 1-3, 2012 The Brain Injury Alliance of Oregon Formally the Brain Injury Association of Oregon PO Box 549 Molalla OR 97038 David Dubats | CEO Second Step, Inc. | "Helping People Walk Again" P.O. Box 42121 | Eugene OR 97404 [email protected] | secondstepinc.com Toll Free: 877.299.STEP | Direct: 541.337.5790 | Fax: 866.596.0765 To Contact Brain Injury Alliance of Oregon (BIAOR) PO Box 549 Molalla, OR 97038 (503) 740-3155 Toll free: (800) 544-5243 Email: [email protected] Website: www.biaoregon .org Fax: 503-961-8730 BIAOR Open [email protected] BIAOR Advocacy Network [email protected] Vehicle Donations Through a partnership with VDAC (Vehicle Donations to Any Charity), The Brain Injury Alliance of Oregon, BIAOR, is now a part of a vehicle donation system. BIAOR can accept vehicles from anywhere in the country. VDAC will handle the towing, issue a charitable receipt to you, auction the vehicle, handle the transfer of title, etc. Donations can be accepted online, or call 1-866-332-1778. The online web site is http://www.v-dac.com/ org/?id=930900797 This newsletter was sponsored in part by cbirt.org. page 28 Thank you to all our contributors and advertisers. Winter 2012 The Headliner