HEADLINER - Brain Injury Alliance of Oregon

HEADLINER
Winter 2013
Vol. XX Issue 1
The Newsletter of the Brain Injury Alliance of Oregon
What’s The 11th Annual Pacific Northwest Brain Injury
Inside?
Conference 2013
BIAOR Executive
Director’s Update
Page 2
Board of Directors
Page 2
Professional & FY
2012-13 Members
Page 3-5
The Lawyer’s Desk
Page 6
Living with Brain
Injury: Conference
Overview
Page 7
Living with Brain Injury:
Focusing on the Future
The 30th Annual BIAOR Dinner
Dinner Keynote:
Master of Ceremony:
BIAOR Calendar
Page 7
Conference
Registration
Page 8
BI & the Power of
Music
Page 10-11
9 Things Not To Say
Page 12
Fact of the Matter
Page 13-14
Gary Busey
Ken Boddie
Lifetime Achievement Award:
Hillary Clinton
Sustains a BI
Page 15
Challenging
Behaviors
Page 16-17
Potential Future
Medical Problems
Page 18
Students: Returning
to School after BI
Page 21
Resources
Page 22-25
Support Groups
Page 26-27
The Headliner
Dr. Muriel D. Lezak
Hosted By:
March 7 - 9, 2013
Brain Injury Alliance of Oregon &
Brain Injury Association of
Washington
Sheraton Airport Hotel
Portland, Oregon
Winter 2013
21.25 CEUs
page 1
Brain Injury Alliance of Oregon
Board of Directors
Ralph Wiser, JD/President…......Lake Oswego
Chuck McGilvary, Vice Pres..…...Central Point
Carol Altman, Treasurer…...………...Hillsboro
Jeri Cohen, JD. Secretary…………...Creswell
Paul Cordo, PhD ……….......……...…Portland
Lisa Cunningham……………………...Portland
David Dubats ……………….…………Waldport
Nancy Irey Holmes, PsyD, CBIS …..Redmond
Craig Nichols, JD……………………..Portland
Advisory Board
Kristin Custer, QLI………..…….….Omaha, NE
Wayne Eklund, RN.……………………..Salem
Danielle Erb, MD..............….........…...Portland
Dr. Herbert Gross ………….……….. California
Andrea Karl, MD …….…….…....….Clackamas
Dave Kracke, JD.………….….....……Portland
Col. Daniel Thompson…………....……..Salem
Bruce Wojciechowski, OD…….......Clackamas
Staff
Sherry Stock, MS CBIST Executive Director
Jeri Cohen, JD Associate Director
Joyce Phelps, Program Coordinator
John Botterman, Editor
Becki Sparre, SG Facilitator, Admin, Trainer
Brain Injury Alliance of Oregon
PO Box 549
Molalla, Oregon 97038-0549
800-544-5243 • Fax: 503-961-8730
www.biaoregon.org
[email protected]
501 (c)(3): Fed. ID 93-0900797
Issue
Spring
Summer
Fall
Winter
Headliner DEADLINES
Deadline
April 15
July 15
October 15
January 15
Publication
May 1
August 1
November 1
February 1
Editor: Sherry Stock, John Botterman
Co-Editor: Jeri Cohen, 503-704-6122
Advertising in Headliner
Rate Schedule
(Color Rate)
Issue
Annual/4
Issues
The President’s Corner
By Ralph Wiser, JD
BIAOR will celebrate 30 years of
presenting cutting edge information at
this year’s Brain Injury Conference.
The conference will run March 7–9,
2013 at the Sheraton Portland Airport
Hotel. You may register for the
conference by going to the BIAOR
website, www.biaoregon.org.
Keynote speakers include Dr. Muriel
D. Lezak, Ph.D., professor emeritus at
OHSU., Dr. Larry Sherman, Ph.D.,
OHSU, who will lecture on music and
the brain and brain stimulation; Anat
Baniel, M.A., an expert in physical
movement and its promotion of brain
plasticity, and Eddie Black, an
instructor for the National Guard and
Resiliency Program Manager, who will
address issues of TBI and PTSD in the
military. Mr. Black served in Iraq in
2005.
of BIAOR and
honorees who have
provided outstanding
contributions to
BIAOR and the
greater Oregon brain
injury community.
This dinner promises
to provide a
memorable evening
as we reflect on the history of BIAOR and
the contributions of those who have
contributed so much along the way.
On other fronts, the OHSU Brain Institute
is providing its annual Brain Awareness
Lecture series. The series includes 6
evening lectures, beginning on February
25, and ending on May 20. This lecture
series is another avenue to learn cutting
edge information about healthy aging of
the brain, the subconscious mind, deep
brain stimulation, autism, neuroimaging,
and shock therapy. All lectures begin at 7
In addition to the keynote speakers,
there will be informative presentations p.m. at the Newmark Theater in downtown
by a number of experts who serve on Portland. Tickets for one or more lectures
the BIAOR Board, Advisory Board, or may be purchased at
www.ohsubrain.com/bas, or at the box
are members of BIAOR, and experts
offices of the Newmark Theater.
from throughout the United States.
Thirty three vendors from throughout
I hope to see you at the annual BIAOR
the United States will present
products and information concerning conference.
rehabilitation and assistance for those
who suffer from disorders of the brain. Stay safe.
For those seeking professional credit,
the conference provides 21.25 CEUs.
A highlight of the conference is a
dinner honoring the 30th anniversary
Ralph
Ralph Wiser, JD, can be reached at
[email protected] or (503) 620-5577.
A: Business Card $100(125) $350(450)
B: 1/4 Page
$200(250) $700(900)
C: 1/2 Page
$300(375) $1000(1300)
D: Full Page
$600(700) $2000(2400)
E. Sponsor Headliner $2500
This is my simple religion. There is no need
for temples; no need for
complicated philosophy.
Our own brain, our own
heart is our temple; the
philosophy is kindness.
$10,000
Advertising on BIAOR Website:
$10,000 for Banner on every page
$5000/year for Home Page
$250 for active link Pro-Members page
Policy
The material in this newsletter is provided for
education and information purposes only. The Brain
Injury Alliance of Oregon does not support, endorse or
recommend any method, treatment, facility, product or
firm mentioned in this newsletter. Always seek
medical, legal or other professional advice as
appropriate. We invite contributions and comments
regarding brain injury matters and articles included in
The Headliner.
page 2
Dalai Lama
Winter 2013
The Headliner
When looking for a professional, look for someone who knows and understands
brain injuries. The following are supporting professional members of BIAOR.
Attorneys
Oregon
Bend
† Dwyer Williams Potter Attorney’s LLC, Bend, 541617-0555 www.RoyDwyer.com
John Warren West, Law Offices of John Warren
West, Bend, 541-382-1955
Eugene.
Thomas Cary, Cary Wing Edmunson, PC, Eugene,
541-485-0203 WC
Don Corson, Corson & Johnson Law Firm, Eugene,
541-484-2525
Charles Duncan, Eugene, 800-347-4269
† Derek Johnson, Johnson, Clifton, Larson &
Schaller, P.C., Eugene 541 484-2434
Tina Stupasky, Jensen, Elmore & Stupasky, PC,
Eugene, 541-342-1141, Sisters, 541-549-1617
Portland
William Berkshire, Portland 503-233-6507 PI
Mark Bocci, Portland, 503-607-0222 PI
Jeffrey Bowersox, Lake Oswego, 503-452-5858 PI
Tom D'Amore, D'Amore & Associates, Portland 503222-6333
Aaron DeShaw, Portland 503-227-1233
D’Autremont, Bostwick, Carter & Krier, Portland, 503224-3550
¥ Lori Deveny, Portland, PI 503-225-0440
Jerry Doblie, Doblie & Associates, Portland, 503-226
-2300
Wm. Keith Dozier, Portland 503-594-0333
† R. Brendan Dummigan, Portland 503-223-7770
Peggy Foraker, Portland 503-232-3753
Sam Friedenberg, Nay & Friedenberg, 503-245-0894
€ Bill Gaylord, Gaylord Eyerman Bradley,PC,
Portland 503-222-3526
Timothy Grabe, Portland, 503-282-5223
Julia Greenfield, Disability Rights Oregon, Portland
503-243-2081
James R. Jennings, PC, Gresham 503-669-3406 PI
David Kracke, Nichols & Associates, Portland 503224-3018 PI
Sharon Maynard, Bennett, Hartman, Morris &
Kaplan, Portland 503-227-4600, SSI/SSD
Jeff Merrick, Lake Oswego 503-665-4234
Jeffrey Mutnick, Portland 503 595-1033
Robert Neuberger, Portland 503-228-1221
Craig Allen Nichols, Nichols & Associates,
Portland 503-224-3018
‡ Paulson Coletti, John Coletti, Jane Paulson
Portland, 503.226.6361 www.paulsoncoletti.com
Stephen Piucci, Piucci & Dozier, Portland 503-2287385
Charles Robinowitz, Portland, 503-226-1464
J. William Savage, Portland 503-222-0200
Joshua Shulman, Shulman DuBois, LLC, Portland,
503-222-4411
€ Richard A. Sly, Portland 503-224-0436, SSI/SSD/
PI
Steve Smucker, Portland 503-224-5077
The Headliner
¥ Tichenor& Dziuba Law Offices, Portland 503-2243333,
Uffelman, John, Adams & Uffleman LLP, Beaverton,
503-644-2146
Richard Vangelisti, Vangelisti Law Offices PC,
Portland 503-595-4131
Ralph Wiser III, Wiser & Associates, Inc., Lake
Oswego 503 620-5577, PI & SSI/SSDI
Salem
Adams, Hill & Hess, Salem, 503-399-2667
Richard Walsh, Walch & Associates, PC Keizer, 503304-4886 www.walshlawfirm.net
Roseburg
Samuel Hornreich, Roseburg, 541-677-7102
Washington Bremerton Seattle
Bremerton
Kenneth Friedman, Friedman Rubin, Bremerton, 360782-4300
Seattle
Richard Adler, Adler Giersch, Seattle, WA
206.682.0300
‡ Kevin Coluccio, Stritmatter Kessler Whelan
Coluccio, Seattle, WA 206-448-1777
www.stritmatteer.com
Caregiver & Support Services
Micki Carrier, Owner, Caregiver Connectionspecializing in 24 hr care, Portland, 503-246-4672
Cy Osborne, Pegasus Social Services, an Oregon
Home Care Services Co, Portland, 503.380.4443
Care Facilities/TBI Housing
(subacute, community based, inpatient, outpatient,
nursing care, supervised-living, behavior, coma
management, driver evaluation, hearing impairment,
visual impairment, counseling, pediatric)
Stephanie Brooks The Mentor Network, Portland 503258-2440
Kampfe Management Services, Pam Griffith, Portland,
503-788-3266 Apt
Karin Keita, Afripath Care Home LLC, Adult Care Home
Portland 503-208-1787
Learning Services, Northern CA & CO, 888-419-9955
Joana Olaru, Alpine House, Beaverton, 503-646-9068
† Oregon Rehabilitation Center, Sacred Heart Medical
Center, Director: Katie Vendrsco, 541-228-2396
Quality Living Inc (QLI), Kristin Custer, Nebraska, 402573-3777
† Ridgeview Assisted Living Facility, Jolene White,
Medford, 541-779-2208
† Sharon Slaughter, Windsor Place, Inc., Salem, 503581-0393 Supported Apt
Melissa Taber, Oregon DHS, 503-947-5169
Uhlhorn Program, Eugene, 541 345-4244 Supported
Apt
Chiropractic/Massage Therapists
Carol Ford, Portland Cranial Sacral Therapy, Portland,
503-608-2372
Gretchen Blyss, DC, Portland, 503-222-0551
Thomas Kelly, DC, Chiropractic Neurologist, Kelly
Chiropractic, PS, Vancouver, WA, 360-882-0767
Garreth MacDonald, DC, Eugene, 541-343-4343
Bradley Pfeiffer, Bend 541-383-4585
Cognitive Rehabilitation Centers/ Rehab Therapists/
Specialists
† Gentiva Rehab Without Walls, Mountlake Terrace,
WA 425-672-9219
† Progressive Rehabilitation Associates—BIRC,
Portland, 503-292-0765
Lynne Williams, Lynne Williams Cognitive Rehab.
Therapy, Central Point 541-655-5925
Counseling
Heidi Dirkse-Graw, Dirkse Counceling & Consulting,
Inc. Beaverton, OR 503-672-9858
Carol Altman, Homeward Bound, Hillsboro 503-640 Sharon Evers, Face in the Mirror Counseling, Art
-0818
Therapy, Lake Oswego 503-201-0337
Ashland View Manor-WestWind Enhanced Care, Dan Donald W. Ford, MA, LMFT, LPC, Portland, 503-297Gregory, Medford, 541-857-0700
2413
Linda Beasley, LPN CBIS, Autumn House, Beaverton, Joyce Kerley (503) 281-4682
503-941-5908
Kate Robinson, MA, CRC, Portland,503-318-5878
Karen Campbell, Highland Height Home Care, Inc,
Elizabeth VanWormer, LCSW, Portland, 503-297-3803
Gresham & Portland, 971-227-4350 or 503-618Dentists
0089 Medically Fragile
Dr. Nicklis C. Simpson, Adult Dental Care LLC,
£ Casa Colina Centers for Rehabilitation, Pomona,
Gleneden Beach
CA, 800-926-5462
Wally & Donna Walsh, Delta Foundation/Snohomish
Educators/Therapy Programs
Chalet, Snohomish, WA 360-568-2168
Diana Allen, Linn Benton Lincoln ESD, Albany
Care N Love AFH LLC, Corrie Lalangan, Vancouver
Jon Pede, Hillsboro School District, Hillsboro, 503-844WA 360-901-3378
1500
Maria Emy Dulva, Portland 503-781-1170
Paul Cordo, PhD, Senior Researcher, OHSU, 503-223Fe Gutierrez, Everlasting Adult Care Home,
3442
Milwaukie, 503-654-6559
Sandra Crews, Southern Oregon ESD, Medford, 541Deanna Gwin, Portland, 503-238-1406 Medically
776-8555
Fragile-Ventilators
Ruth Jenkins, Providence Portland
Penny Jordan, TBI Team Liaison, Portland, 503-260-
Winter 2013
page 3
Looking for an Expert? See our Professional Members here
4958
± McKay Moore-Sohlberg, University of Oregon,
Eugene 541-346-2586
Lisa Myers, Portland Community College
Laurie Ehlhardt Powell, CBIRT, Eugene, 541-3460572
Expert Testimony
Janet Mott, PhD, CRC, CCM, CLCP, Life Care
Planner, Loss of Earning Capacity Evaluator, 425778-3707
Financial Services
Kayla Aalberg Eklund, Structured Settlement
Broker, Oregon, 503-869-6518
Life Care Planners/Case Manager/Social
Workers
Gerry Aster, RN, MS, Nurse Case Manager, Vida,
541-896-3001
Priscilla Atkin, Providence Medford Medical Center,
Medford, 541.732.5676
Rebecca Bellerive, Rebecca Bellerive, RN, Inc, Gig
Harbor WA 253-649-0314
Wayne Eklund, Wayne Eklund RN CNLCP Salem
888-300-5206
Michele Lorenz, BSN, MPH, CCM, CHPN, CLCP,
Lorenz & Associates, Medford, 541-538-9401
Vince Morrison, MSW, PC, Astoria, 503-3258438
Michelle Nielson, Medical Vocational Planning, LLC,
West Linn, 503-650-9327
Simon B. Paquette, LICSW, LCSW, Vancouver WA
360 903-4385
Thomas Weiford, Weiford Case Management &
Consultation, Voc Rehab Planning, Portland 503245-5494
Karen Yates, Yates Nursing Consulting, Wilsonville,
503-580-8422
WA 206-467-7033
Benjamin Luskin, Luskin Empowerment Mentoring,
Eugene, 541-999-1217
Marydee Sklar, Executive Functioning Success,
Portland, 503-473-7762
Medical Professionals
Gerry Aster, RN, MS, South Pasadena CA, 541-8963001
Diana Barron, MD, Brownsville, (541) 451-6930 clinic
Marie Ekkert, RN/CRRN, Legacy HealthCare,
Portland, 503-413-7918
Marsha Johnson, AnD, Oregon Tinnitus &
Hyperacusis Treatment Center, Portland 503-2341221
Kristin Lougee, CBIS, 503-860-8215-cell
Carol Marusich, OD, Neuro-optometrist, Lifetime Eye
Care, Eugene, 541-342-3100
† Kayle Sandberg-Lewis, LMT,MA, Neurofeedback,
Portland, 503-234-2733
Bruce Wojciechowski, OD, Clackamas, Neurooptometrist, Northwest EyeCare Professionals, 503
-657-0321
Physicians
Sharon Anderson, MD, West Linn 503-650-1363
Bryan Andresen, Rehabilitation Medicine Associates
of Eugene-Springfield, 541-683-4242
Diana Barron, MD. Barron-Giboney Family Medicine,
Brownsville, OR (541) 451-6930
Jeffrey Brown, MD, Neurology, Portland 503-2820943
James Chesnutt, MD, OHSU, Portland 503-503-4944000
Maurice Collada, Jr, MD, PC, Neurosurgeon, Salem
503-581-5517
Danielle L. Erb, M.D., Brain Rehabilitation Medicine,
LLC, Portland 503 296-0918
John French, MD, Salem Rehabilitation Associates,
Salem 503-561-5976
M.
Sean Green, MD, Neurology, OHSU, (503) 652Legal Assistance/Advocacy/Non-Profit
2487
¥ Deborah Crawley, ED, Brain Injury Association of
Steve Janselewitz, MD, Pediatric Physiatrist, Pediatric
Washington, 253-238-6085 or 877-824-1766
Development & Rehabilitation-Emanuel Children’s
£ Disability Rights Oregon, Portland, 503-243-2081
Hospital, Portland Nurse: 503-413-4418 Dept:503Eastern Oregon Center for Independent Living
413-4505
(EOCIL), Ontario 1-866-248-8369; Pendleton 1Andrea
Karl, MD, Director, Center for Polytrauma
877-771-1037; The Dalles 1-855-516-6273
Care
Unit, Portland, VA Hospital 1-800-949-1004 x
£ Independent Living Resources (ILR), Portland,
34029
503-232-7411
Michael Koester, MD, Slocum Center, Eugene, 541£ Jackson County Mental Health, Heather
359-5936
Thompson, Medford, (541) 774-8209
±
Oregon
Rehabilitation Medicine, P.C., Portland, 503
£ ThinkFirst Oregon, (503) 494-7801
-230-2833
Francisco Soldevilla, MD, Neurosurgeon, Northwest
Legislators
Neurosurgical Associates, Tualatin, 503-885-8845
Vic Gilliam, Representative, 503-986-1418
Gil Winkelman, ND, MS, Alternative Medicine,
Neurobiofeedback, Counseling, Portland, 503-501Long Term TBI Rehab/Day Program’s/Support
5001
Programs
Carol Altman, Bridges to Independence Day
Program, Portland/Hillsboro, 503-640-0818
Anat Baniel, Anat Baniel Method, CA 415-472-6622
£ ElderHealth Northwest, Patti Dahlman, Seattle
Psychologists/ Neuropsychologists
Tom Boyd, PhD, Sacred Heart Medical Center,
Eugene 541-686-6355
James E. Bryan, PhD, Portland 503.284.8558
*Caleb Burns, Portland Psychology Clinic, Portland,
503-288-4558
Patricia S. Camplair, Ph. D., OHSU Dept of
Neurology, Portland, 503-827-5135
Amee Gerrard-Morris, PhD, Pediatrics, Portland,
503-413-4506
Elaine Greif, PhD, Portland 503-260-7275
Jacek Haciak, PsyD, Oregon State Hospital, Salem,
503-945-2800
Nancy Holmes, PsyD, CBIS, Portland 503-235-2466
Terry Isaacson, PhD, Roseburg Counseling
Services, Roseburg 541-957-1290
Sharon M Labs PhD, Portland 503-224-3393
Ruth Leibowitz, PhD, Salem Rehab, 503-814-1203
Michael Leland, Psy.D, CRC, Director, NW
Occupational Medicine Center, Inc., Portland,
503-684-7246
Will Levin, PhD, Eugene, 541-302-1892
Susan Rosenzweig, PsyD, Center for Psychology &
Health, 503-206-8337
Recreational/Social Activities
Off the Couch Events, Shauna Perkins, ED,
Portland 503-702-2394
Speech and Language
Channa Beckman, Harbor Speech Pathology, WA
253-549-7780
John E. Holing, Glide 541-440-8688
± Jan Johnson, Community Rehab Services of
Oregon, Inc., Eugene, 541-342-1980
Sandra Knapp, SLP, David Douglas School District ,
Sandy 503-256-6500
Linda Lorig, Springfield, 541-726-5444
Anne Parrott, Legacy Emanuel Hospital Warren 503
-397-6431
State of Oregon
Dave Cooley, Oregon Department of Veterans
Affairs, Salem, 503-373-2000
Stephanie Parrish Taylor, State of Oregon, OVRS,
Salem , (503) 945-6201 www.oregon.gov/DHS/vr
Technology/Assistive Devices
Performance Mobility, Portland, OR, 503-243-2940
Second Step, David Dubats, Eugene, 877-299STEP
Video/Filming
NuVideo Productions, LLC, specializing in “day of
the life” films Bend, 541-312-8398
Veterans Support
Mary Kelly, Transition Assistance Advisor/Idaho
National Guard, 208-272-4408
Belle Landau, Returning Veterans Project, Portland,
503-933-4996
Vocational Rehabilitation/Rehabilitation/Workers
Comp
Arturo De La Cruz, OVRS, Beaverton, 503-2772500
† Marty Johnson, Community Rehab Services of
Oregon, Inc., Eugene, 541-342-1980
Deborah Marino, Oregon Commission for Blind,
To become a supporting professional member of BIAOR see page 23 or contact BIAOR, [email protected].
page 4
Winter 2013
The Headliner
Salem 503-378-6836
‡ Oregon Completive Employment
Project, Salem 503-947-5469
www.win-oregon.com
Ben Luskin, Launch Employment
Mentoring, Eugene, 541-999-1217
Bruce McLean, Vocational Resource
Consultants, Ashland, 541-482-8888
† SAIF, Salem, 503-373-8000
Stephanie Parrish Taylor, State of
Oregon, OVRS, Salem, (503) 9456201 www.oregon.gov/DHS/vr/
Kadie Wellington, OVRS, Salem, 503378-3607
Patrons/Professional Members
Sharon Anderson, West Linn OR
Carol Berger, Talent OR
Laurie Burke, TN
Bruce Buchanan
Jeffrey & Andrea Collins, Colorado
Springs, CO
Sam Friedenberg, Portland OR
George Cohee Jr. Foundation
William Griffiths, West Linn
Debby Hessick, Aloha
Dr. Steven Janselewitz, Portland, OR
Dan & Jan LaVoie
Helen Mills, Milwaukie
Senator Bill Morrisette, Springfield
James & Janet Moore, Portland
Craig Ness, Wasilla Alaska
± Bill Olson, Salem
Meg Rawlings & Russ Rudometkin,
Medford
Charlene Sparlin, Roseburg
Carol Christofero Snider, Lake Oswego
∆ Jane Stewart, JD, Eugene
Ralph Wiser, Lake Oswego, OR
In Memory
Sandra Johnson in memory of
Christopher & Dana Reeve
Helen Mills in memory of Viola Kucera
Sharon Tesch in Memory of Lou Tesch
Tina Treasurer In Memory of Tom
Treasurer
Carol Sherbenou in Memory of David
Sherbenou5925
Names in bold are BIAOR Board
members
† Corporate Member
‡ Gold Member
€ Silver Member
± Bronze Member
¥ Sustaining Member
£ Non-Profit
∆ Platinum
To become a professional member
see page 23 or go to the BIAOR
website: www.biaoregon.org/
store.htm
2012-2013 BIAOR Members
Anonymous
The Headliner
Adams Hill & Hess
Richard Adler
Karen Alexander
Marie & Wilma Alkire
Carol Altman
John Anderson
Bryan Andreson
Richard Arndt
Francine Aron
Betty & Howard Aster
Gaetana Avolio
Jenny Ayers
Bonnie Baker
Elisabeth Baker
Anat Baniel
Richard Banton
Tara Barnes-Brown
Hazel Barnhart
Diana Barron
Linda Beasley
Janis Beauchamp
Rebecca Bellerive
Henry J. Bennett
John Bergeman
Carol Berger
Bill Gaylord, Linda Eyerman,
Todd Bradley
Dan and Janet Blair
Nicole Bockelman
Cindi Bondi
Dave & Joyce BordersAccornero
Tom Boyd
James Bryan
Bruce Buchanan
Caleb Burns
Brenda Cardin
Elizabeth Carlson
Shell Carnes
Micki Carrier
Thomas M. Cary
Judie Champie
Jim Chesnutt, MD
Lauren & Ben Chilson
Carol Christofero-Snider
Jeri Cohen
Maurice Collada
Barbara Colleran
Kevin Coluccio
Ralph Conradt
James Coon
Cheryl Coon
Joseph Cooper
Paul Cordo
Don Corson
Laura Cox
Deborah Crawley
Kristin Custer
Patti Dahlman
Tom D'Amore
Mary d'Autremont
Lina Davis
Arthuro De La Cruz
Heidi Dirkse-Graw
David Dubats
Don Duilio
Maria Emy Dulva
R. Brendan Dummigan
Roy Dwyer
Wayne Eklund
Tami & Criag Ellingson
Danielle L. Erb, MD
Joyce I. Erickson
Sharon Evers
Michael Flick
Peggy Foraker
Jennifer Frank
Chris Frost
Charley Gee
Justin Goe
Sean Green, MD
Dan Gregory
Elaine Greif
Fe Gutierrez
Deanna Gwin
Rainer Haegebarth
Cheryl Hall
Karen Harris
Jay Herzog
Daniel Hill
Werner Hinojosa
Dennis Hogan
John E. Holing
Nancy Holmes
Samuel Hornreich
Joyce J. Huff
Linda Huyler
Ellie Isaacson
Jackson County Mental Health
Steven Janselewitz, MD
Sharon Janzen
Jan Johnson
Terry Johnson
Sandra Johnson
Kampfe Management Services
Geri Karow
Lorna Lee Karwoski
Karin Keita
Mary Kelly
Thomas Kelly, DC
Patricia Kessler
Sandra Knapp
Jane Kucera Thompson
Kevin Kuehn
Sharon M Labs
Corrie Lalangan
Donald E. Lange
Charlie Larson
Dan & Jan LaVoie
Lisa Lee
Michael Leland
Will Levin
Muriel D. Lezak
Linda Longstreet
Michele Lorenz
Kristin Lougee
Heather Ludwig
Mayo Marsh
Carol Marusich
Steve Mathers
Sharon Maynard
Dorothy McClelland
Stewart McCollom, JR
Katharine McDuffie
Winter 2013
Chuck McGilvray
James Meade, Jr
Jeff Merrick
Helen Mills
Jean Minsky
Evelyn Moore
Janice Moore
McKay Moore-Sohlberg
Robert Neuberger
Cynthia Newton
Wendy Newton
Laurie Nicholas
Craig Allen Nichols
Michele Nielsen
Nancy Ocumpaugh
Donna Olson
Barbara Parmenter
John Coletti & Jane Paulson
Jon Pede
Performance Mobility, Inc
Shauna Perkins, ED
Jenny Peters
Robert Pfeiffer
Lynn Pizzo
Susan Powell
Linda Powers
Progressive Rehabilitation
Associates
Kathleen Pugerude
Klara Pustkowski
Amy Ream
Ann Reed
Belle Landau, ED Returning
Veterans Project
Julie Reynolds
Ridgeview Assisted Living
Kenneth Rislow
Charles Robinowitz
Barry Rollins, Learning
Services
Virginia Rondel
Rowan Rosehart Keltz
Susan Rosenzweig
Gregg Rousseau
Dave Rudd
Beth Scarth
Jim & Jackie & Steve
Schwab
Charlotte Shuck
Joshua Shulman
Nicklis C. Simpson
Richard A. Sly
J. Lawrence Smith
Charlene Sparlin
Anne Stacey
Merri Steele
Brian Stephens
Alex Streeter
Sue Subbot
Patricia Suhr
Teresa Swerdlick
Stephaine Parrish Taylor,
OVRS
Bob Taylor
Hank Therien
Kayt Zundel ThinkFirst
Oregon
Ray Thomas
Keith Tichenor
John Uffelman
Richard Vangelisti
Edward Vorholt, Jr
Garry Wall
Dennis & Janet Wallace
Richard Walsh
Wally & Donna Walsh
Kendra Ward
Chris Ward
Gloria & Ed Way
Tom Weiford
Warren John West
Jack West
Wendy Wharton
Fern Wilgus
Peter & Kathy Wilkie
Vicki Williamson
Addison Wilson
Windsor Place
Gil Winkelman
Ralph Wiser III
Dave & Ann Witkin
Holly Wunsch
Linda Ziebell
Who is at the highest risk for
traumatic brain injury (TBI)?
Males are about twice as likely
as females to sustain a
traumatic brain injury
The two age groups with the
highest risk for TBI are 0 to 4
year olds and 15 to 19 year olds
In young adults, aged 15 to 19,
the leading cause of traumatic
brain injuries are motor vehicle
accidents.
African Americans have the
highest death rate from TBI
page 5
The Lawyer’s Desk: A Look at TBI Legal Representation
©
By David Kracke, Attorney at Law
Nichols & Associates, Portland, Oregon
The most important person in a civil
lawsuit is the reasonable person. Every
fact, all the evidence, every decision
made is filtered through the eyes of the
reasonable person, and it is usually
what the reasonable person would do
that is the standard by which all other
decisions and issues presented in the
case are measured.
It is a good standard. It assumes that
we expect others, and ourselves, to
conform to certain standards that, when
objectively measured, essentially ask
that we all observe the golden rule and
treat others as we hope they will treat
us.
In this respect, a lawsuit decides if, and
to what degree, a person’s actions
deviated from the standard
reasonableness. It is the way we
redress actions that have already
happened, and while a result against an
unreasonable person will usually cause
that unreasonable person to modify
their future behavior, the net effect on
our society, in general, is usually
limited in scope.
Max’s Law has resulted in positive
change; more important in our national
discussion on concussion impacts than
arguably any other law in our country
(sharing that distinction with Zach’s
Law in Washington, our neighbor’s
legislative push contemporaneous with
Max’s Law). But that is no reason to
stop advancing, proactively, toward the
goal of reducing the incidence of both
concussions, and most importantly,
second impact syndrome.
Max’s Law requires all high school
athletic coaches to receive annual
concussion symptom recognition
training. It also requires all concussed
players to receive clearance from a
qualified medical professional before
that player can again join the
teammates on the playing field. The
law protects high school athletes, but
that protection is not enough. There
are other vulnerable athletes not
covered by the requirements of Max’s
Law.
High school athletes are generally
between the ages of fourteen and
eighteen, and we all know that before
So what tools do we have to prevent the almost all high school athletes ever
unreasonable action before it happens? play high school sports, they have
As I’ve written before, one of the
played organized sports for years
primary tools is the implementation of
through the youth league ranks. Max’s
new legislation. We have the
Law does not cover youth athletic
opportunity to add a tenet to the code
coaches below the high school level,
governing our collective actions with
nor does it cover the coaches of nonthe hope that when that tenet is
high school recreational league
incorporated into our society’s complex coaches for high school aged athletes
fabric, we will all be less prone to act
who play on organized sports teams
unreasonably, and less prone to cause outside of the high school arena.
damage as a result.
injury, concussions
afflict the very young
as much, and
arguably even more,
than they afflict high
school aged athletes.
Concussions occur
in recreational league
settings, youth
league settings and
city league settings as often as they occur
in high school league settings. Doctors I
know report an increasing incidence of
second impact syndrome among our
youngest athletes, illustrating with
unfortunate force where our next efforts
should be focused.
We need to do more to protect our most
vulnerable young athletes against
concussions, and we need to do more to
educate those coaches who are there
nurturing these nascent athletes as they
begin their athletic endeavors.
Does it matter that the coaches we need to
educate about concussions and second
impact syndrome are more than likely a
player’s mom or dad who may or may not
have any formal coaching training? Does it
matter that some uninformed, un-thinking
critic will cry nanny state? Does it matter
that the concussion education will require
the coach to take a free, on-line course and
test, about a half-hour’s worth of
education?
The answer to all three questions is a
resounding “No!”
Our youngest players deserve to have
educated coaches just like their high
school counterparts. Max’s Law deserves
The problem, however, is that a
We took a legislative step forward with
to evolve into Max’s Law II where we say it
concussion knows no bounds with
Max’s Law, but the law is not a monolith regard to age or athletic league. When it works at the high school level; let’s make it
that can afford to rest on its laurels.
work for all our young athletes.
comes to inflicting its devastating
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page 6
Winter 2013
This session our legislators will consider
this question, and if all goes well, they’ll
decide that the reasonable action is to
protect all our young athletes now that
Max’s Law has given us a blueprint for
doing just that.
David Kracke is an attorney with the law firm
of Nichols & Associates in Portland. Nichols
& Associates has been representing brain
injured individuals for over twenty two years.
Mr. Kracke is available for consultation at
(503) 224-3018.
The Headliner
Living with Brain Injury:
Focusing on the Future
Come join us for the 11th Annual Northwest
Brain Injury Conference and the 30th
Annual BIAOR Conference.
The highlight of this years conference is our
30th Anniversary Dinner. The featured
Keynote at the Dinner will be Gary Busey, a
film and stage actor, and artist. He has
appeared in a variety of films, including
Lethal Weapon, Point Break, and Under
Siege. He was nominated for an Academy
Award for Best Actor in 1978 for his role in
The Buddy Holly Story. On December 4,
1988, Gary Busey was severely injured in a
motorcycle accident in which he was not
wearing a helmet. His skull was fractured,
and doctors feared he suffered permanent
brain damage.
Master of Ceremony will be local news
anchor, Ken Boddie. BIAOR is honored to
present awards for exceptional work on
behalf of people living with brain injuries
over that last thirty years. These will include
an Lifetime Achievement Award to Dr. Muriel
D. Lezak for the numerous books she has
written on brain injury; Outstanding
Advocacy Awards to Tootie Smith, David
Kracke, James Chesnutt, MD, Senator Bill
Morrisette, Representative Vic Gilliam, Max
and Ralph Conradt without their hard work
we would not have passed our sports
concussion legislation which has been
picked up as the model for the National
Legislation; Danielle Erb, MD, who is the
only medical doctor exclusively treating
individuals with brain injury; McKay Moore
Sohlberg, PhD, is a
nationally recognized
leader in the field of TBI
and has worked as a
clinician, researcher, and
administrator in the
development of programs
to assist those with brain
injury; Dr. Bruce
Wojciechowski, OD, is a
neuro-optometrists
2013 BIAOR Calendar of Events
For updated information, please go to www.biaoregon.org
Call the office with any questions or requests
March 7
March 8
Pre-Conference Workshop
Art & Music Rehabilitation After a Brain Injury
BIAOR Conference Dinner, Music, Dancing and
Wine Tasting
March 7-9 Annual Pacific Northwest Regional Conference
2013: Living with Brain Injury Focusing on the
Future www.biaoregon.org/
annualconference.htm
August
Walk For Brain Injury
working to help people with brain injury for
over 20 years; Karen Campbell, who
established the first foster home in the state of
Oregon for people with disabilities, 32 years
ago; Jan Johnson, who established the first
community rehabilitation program for people
with brain injury nineteen years ago; and to
Elizabeth Hovde, a brain injury survivor, for
building the awareness of brain injury in her
columns in the Oregonian.
The Pre-Conference will focus on the matter
in which music, art and physical therapists
take an individualized approach when working
with clients who are living with a brain injury.
The creative arts therapies can be used to
improve associated symptoms through
interactive art-making experiences designed
and adapted to emphasize each client’s
strengths. Sensory stimulation through the
arts promotes increased attention, while the
creation of a story or a song can be used to
memorize and recall personal information.
Neurologic Music Therapy techniques are
utilized to promote rehabilitation of speech
and motor abilities through active instrument
play, singing and movement to music such as
in the case of Congresswoman Giffords.
Therapists will demonstrate and discuss, in
group sessions throughout the day, how
providing music, drama, martial arts and art
therapy can improve positive outcomes.
Therapists will take a collaborative approach
and conduct sessions with speech therapists,
occupational therapists and physical
therapists in a co-treatment model.
Friday and Saturday will focus on the latest
technology and treatment available for brain
injury. These presentations will include:
Keynote Speakers Friday:
Look where we have come in 30 years--what
is in the future? - Dr. Muriel D. Lezak
Breakthrough practical applications of brain
plasticity principles in the recovery from
Traumatic Brain Injury - Anat Baniel, clinical
psychologist, dancer and leader in the field of
(Continued on page 9)
The Headliner
Winter 2013
page 7
Registration Form
11th Annual Pacific Northwest Brain Injury Conference 2013 30th Annual BIAOR Conference
Living with Brain Injury: Focusing on the Future
Sheraton Portland Airport Hotel
Register Now online at www.biaoregon.org
(Note: A separate registration form is needed for each person attending. Please make extra copies of the form as needed for
other attendees. Members of BIAWA, BIAOR, BIAID, VA and OVRS receive member rates)
First Name
Last Name
Badge Name
Affiliation/Company
Address
City
State
Phone
Fax
Email
Please check all that apply: ____
Zip
I am interested in volunteering at the conference. Please call me. ___ Call me about sponsorship/exhibitor opportunities.
7 hour Certified Brain Injury Specialist Training/Test for Certification—Thursday (No
Refunds) Pre-Registration is required: Book, training & exam included-must register before 2/15
__ Pre-Conference Workshop-Music, Art, Cognitive & Physical Therapies—Thursday
$600
$
Member
Non-Member
$100
$175
Amount
$
Conference Registration Fees: Registration fees include: continental breakfast, lunch & conference related materials. Meals not guaranteed for on-site registrations.
There are no refunds, but registration is transferable. Contact BIAOR, 800-544-5243 for more information or questions. The following fees are per person:
___ VIP Special—3 Days of Conference & Dinner
$500
$575
$
___ Professional (CEUs) 2 Day Friday & Saturday
$350
$450
$
___ Professional (CEUs)1 Day Only: ___ Friday ___ Saturday
$200
$300
$
___ Saturday Survivor/Family (no CEUs)
$100
$175
$
___ Saturday Only Courtesy (Brain Injury Survivors with limited means-limited number)
$25
$35
$
___ Membership Professional $100 Family $50 Basic $35 Survivor $5
$
___ Scholarship Contribution (donation to assist in covering the cost of survivors with limited funds)
$
Reception & 30th Anniversary Dinner
Reception 5:30 -6:30 pm, Dinner begins at 6:45pm
Separate Charge from Conference (After Feb 20)
$ 100
($125)
$125
($150)
$
Credit Card Number _____-_____-______-_____ Exp Date ___/___ Sec code ____
Signature ____________________________________Pre-conference, Registration & Dinner Total $ ________
CC Address if different than above ____________________________________________________________
(Please add totals from Registration Fee, Reception/Dinner and Scholarship Contribution for final total costs)
Make Checks out to BIAOR—Mail to: BIAOR, PO Box 549, Molalla OR 97038
or fax: 503.961.8730 Phone: 800-544-5243
www.biaoregon.org/annualconference.htm [email protected]
Online Registration: www.biaoregon/store.htm
Registrations are transferrable but there are no refunds.
Hotel: Sheraton Portland Airport Hotel
8235 NE Airport Way, Portland, OR 97220
503.281.2500
Agenda
Thursday
8 am - 5 pm Pre-Conference Workshop
Discount room rate Ask for BIAOR discount
503-281-2500
Rooms are limited
Friday & Saturday
7 am - 8 am: Breakfast
8 am - Noon: Keynote and Break– Outs
Noon - 1 pm: Lunch and Networking
1 pm - 5 pm: Keynote and Break-Outs
CEUs: AFH, CRCC, CDMC, OT, SLP, CLE.
Please contact us if you would like one that is not listed
Total CEU Hours 21.25
page 8
Winter 2013
* Friday and Saturday-Breakfast and Lunch provided
** Thursday—lunch and breaks provided
The Headliner
(Conference Continued from page 7)
NeuroMovement
Keynote Speakers Saturday:
Music and the Brain - Larry Sherman, PhD.
Senior Scientist, ONPRC, OHSU Brain
Institute, Professor, Department of Cell and
Developmental Biology, Portland, Oregon
The Returning Veterans - What they need,
what are they going through: Cultural,
social, organizational sources of hindrance
and support for returning veterans - Eddie
Black, Oregon National Guard Resiliency
Program Manager
Brain Injury and the Returning Military 101Bronwyn G. Pughe, MA, MFA, TBI Program
Education Specialist, Administrator
Traumatic Brain Injury Program, Madigan
Healthcare System
When War Comes Home: The Emotional
Trauma of Caregiving - Marilyn Lash,
M.S.W.
The Psychology Behind TBI and the
Behaviors That May Be Present- Nancy
Irey Holmes, PhD
Stroke - What is it--Will I recover - John
DenBoer, PhD, Clinical Neuropsychologist/
Psychologist, Casa Colina Centers for
Rehabilitation
Technology – Tomorrow & Today - Jonathan
Gray
Hope and Recovery Principles in the
Treatment of ABI - Jacek A. Haciak, PsyD
Cognitive Curbcuts: Visual Scheduling, Video
Modeling, and Personal Wellness supports
for Self-Management - Dr. Tom Keating
Advances in Stroke Recovery - Paul Cordo,
PhD OHSU
Conducting Mental Status Examinations with
a Traumatic Brain Injury Patient - John
DenBoer, PhD, Clinical Neuropsychologist/
Psychologist, Casa Colina Centers for
Rehabilitation
Acupuncture and Complementary Medicine in
the Management of Traumatic Brain Injury Douglas Wingate, MAcOM, Lac
Brain Injury and Hidden Vision Problems - Dr.
Bruce Wojciechowski, OD
Brain Tumors-Why We Should Care -- Edward
Allen Neuwelt, M.D., Professor of Neurology,
Oregon Health
The Role of Music Therapy in Rehabilitation Lillieth Grand, MS, MT-BC
Using Improv/Theatre Activities with BI
Survivors - Ruth Jenkins, MS, CCC-SLP
Legal pitfalls of presenting a TBI Case - Arthur
Lertiz, JD
Defuse Tensor Imaging and Other Medical
Advances to Identify Brain Injury and Win Your
Case - Dr. Aaron DeShaw, JD
The Future of Prosthetic Cognition - Kathy
Moeller
Assistive technology - low to high assistive
devices to live life to the fullest with brain injury
Susan Powell, MS/P, OTR/L, ATP Madigan
Training Assistive Technology in the
Environment - Laurie Ehlhardt Powell, PhD
(Conference Continued on page 11)
Winter Sudoku
The object is to insert the numbers in the boxes to satisfy only
one condition: each row, column and 3 x 3 box must contain
the digits 1 through 9 exactly once. (Answer on page 15)
The Headliner
Winter 2013
page 9
Brain Injury and the Powers of Music
Neuroscience reports successful
outcomes with specially engineered
music therapy programs. Reports of
music making a difference abound in
science and classical literature. In Bible
days musicians were sent ahead of
Warriors to maintain morale and to set
the climate of victory for battle. Recently
there has been much emphasis given to
the Mozart effect. Every preschooler
effortlessly learns the alphabet by
singing a catchy tune. Both educators
and neurologists have long understood
music’s role in brain development and
memory retention. Song and speech
occupy separate but related areas of the
brain. As demonstrated by research with
the victims of traumatic brain injury
(TBI), far from being merely a method of
rote learning, music may actually open
blocked channels or expose new
pathways in the brain, speeding the
language recovery of accident victims
and stroke and dementia patients. In
some studies music has been
emphasized as being able to even
enhance mathematical ability.
Aphasia is defined as a disability or
impairment in language, whether
written, read or spoken. One of the most
devastating consequences of TBI is
often the partial or complete loss of
language. Sufferers are unable to
communicate even basic thoughts.
Although they know what they want to
say, the trauma to the brain has
destroyed the neural pathways that
make speech possible. People with
aphasia may find it difficult to assign
names to ordinary objects or to
complete simple sentences. Seemingly
miraculously, however, they may be able
to sing the phrases that elude them in
speech.
There is little doubt that music plays an
important role in clinical recovery for
many people with brain injury. Music
has been found to improve many people
with brain injuries ability to hear in noisy
environments and therapists have seen
improvements in auditory processing
speed and attention. In the past, there
has been little hope that a person’s
brain could heal itself. But scientists
today are now looking at music therapy,
specifically something called melodic
intonation therapy, to help with speech
recovery for brain injury victims.
Scientists have found that when they
page 10
slowly bring their patients through four
simple steps of music therapy using
rhythm, pitch, vision and hearing, the
patients’ brains are able to sing words
that they aren’t able to speak.
For example, if a patient were asked to
say the line (or lyrics) from the Beatles
song, “All You Need is Love” they would
not able to do so. Their brains would
simply not be able to remember the
words, or – if they do know the words –
in what order the words should be. But if
the same patient were told to sing the
exact same line using the rhythm and
tune of the song, the patient would be
able to do so, remembering all the
words as they sang, and do so quite
normally.
Impaired auditory processing skills can
be seen with imaging techniques as an
abnormally enlarged auditory cortex is
with the neurons responding over a
greater area producing increased
sensitivity as a compensatory measure.
Unfortunately this also produces a
greater signal to noise ratio in the brain.
This may translate to reduced auditory
accuracy in noisy environments. The
ability to filter extraneous interference
and to accurately discriminate sound is
compromised. This same process takes
place in chronic pain patients who are
slower to feel the initial sensation of
pain but are found to have increased
sensitivity to pain, less tolerance and
this pain is spread over a wider area.
One logical way to solve this problem
would be to help the brain create a new
path, making it less reactive to all
stimuli and more sensitive to
discriminating important stimuli. The
orderly cadence of classical music in its
mathematical formation can act as a
filing cabinet for the auditory cortex. The
frequency filtering allows the brain to
come out of an automatic mode and
learn a new way of hearing. The
stereophonic listening gives the brain
an opportunity to generalize where and
how it will process new sound.
The world reacted with shock when U.S.
Representative Gabrielle Giffords was
shot during an assassination attempt in
January 2011. Giffords’ injuries included
severe brain trauma, and aphasia is one
of the side effects that she struggles
with to this day. The use of music
therapy during her lengthy and
Winter 2013
continuing rehabilitation has made a
significant impact on Gifford’s progress
and quality of life. From being able to
sing only the final word of a familiar
musical phrase, she has progressed to
the point of singing entire songs.
Gifford’s case illustrates the importance
of continuing to seek new therapies for
TBI patients in the quest for recovery.
Scientific advances in the
understanding and treatment of
traumatic brain injury enhance the
benefits for everyone who struggles
with this devastating condition. The
beauty of music therapy is that it
doesn’t require costly equipment or
specialized knowledge to implement.
Patients undergoing extensive and
stressful speech rehabilitation report
that simply listening to familiar music
can relax them, and being able to sing
along with beloved songs gives them a
much-needed sense of accomplishment.
People who suffer from mild or
occasional aphasia can increase their
quality of life by setting common tasks
to simple tunes, or by singing phrases
when spoken words escape them.
Song is often used to awaken dormant
skills in comatose or stroke patient’s,
evoking auditory response and initiating
corrective response. Individuals may be
unable to say words but they can repeat
them when they are sung to them by a
participating therapist. This was the
case for Giffords. After singing, they
then say the same words that were
impossible for them just moments
before. It may be that when people cycle
between speaking and singing the
contour and spacing of musical sounds
may be decoded by additional areas in
the brain which can then act as a
conduit to the language centers of the
brain. This may be because language
(Headaches Continued on page 11)
The Headliner
(Headaches Continued from page 10)
(Conference Continued from page 9)
uses motor, auditory and visual
skills.
What I Wish I Had Known ... The Positive Brain
Injury Support group of Portland
Singing may engage other brain
areas and then cue brain neurons
to act as a construction crew to
make a detour around the
damaged area or to enlist nearby
neurons to build a strong new
path. Recently neuro imaging tools
have advanced so that changes
caused by this kind of learning can
be demonstrated by an increase in
white and gray matter cells in the
brain. Music also serves as a
relaxing way to restore cognitive
reserve and reduce the fight or
flight response created by learning
anxiety.
Many brain therapy patients spend
hours in occupational, speech
pathology, and physical therapy
every day. This concentration is
required to build new paths in the
brain, however in early stages of
recovery the brain is vulnerable
and becomes tired. Music can
provide a restful interlude in the
midst of these other therapies.
People with brain injury report that
using music between other
therapies refreshes them and
allows them to be more
productive. The other major
benefit of music therapy for brain
injury victims that cannot be
undervalued is that the ability of
the patients to remember lyrics
and sing their favorite songs does
wonders for their depression and
frustration after their injuries.
Using Martial Arts for Physical Therapy - Ben
Luskin and Tony Ellis
Two Stories of Survival - Dr. James Meade and
Gordon Viggiano
Video: Brain Injury: Voices of a Silent Epidemic
will be shown each day at lunch
Brain Injury: Voices of a Silent Epidemic - Cindy
Daniel, BRAVE Publications, Andy Palumbo,
Outside the Lab, Harvey E. Jacobs, Ph.D.
Brain Injury: Voices of a Silent Epidemic guides
viewers on a journey about brain injury – its
causes and effects on people who are injured
and those around them.
Many survivors of brain injury can appear to be
completely uninjured in their day-to-day lives, but
the fact remains that altered brains often result in
persistent hidden challenges that can have
adverse and dramatic daily effects. Just as
advances in neurology have improved the
survival rate of those who sustain a brain
injury, improved understanding of these
injuries by laypersons and professionals will
improve recovery and reintegration of brain
injury survivors.
The biggest benefit of attending a conference
is connecting with kindred spirits, folks whose
work you admire and which inspires you.
Conferences have a way of renewing the
passion that brings like-minded people
together, and being part of collaboration is a
privilege that you can truly value. Attending a
conference provides an opportunity to learn
from experts, share ideas with others, and
identify new knowledge and techniques in
your field. Given the knowledge explosion in
the current information-rich era, attending this
conference is a great way to keep abreast of
emerging themes and technology and,
perhaps most importantly, network.
Register now. See page 8 for Conference
Registration form.
While there is still much research
that needs to be done on the
subject of music therapy for brain
injury victims, it gives hope to
doctors, scientists, therapists and
people with brain injuries for what
will develop in the future.
Learn more about music and brain
injury and how to use this therapy
at the 2013 NW Pacific Brain Injury
Conference, March 7-9 at the
Sheraton Portland Airport Hotel.
Source: www.lapublishing.com/
blog/2012/music-traumatic-brain-injury/;
www.floridabraininjurylaw.com/musictherapy-for-brain-injury-victims;
www.traumaticbraininjurycenters.com/20
10/10/why-does-music-therapy-matter/
The Headliner
Fox Tower
805 SW Broadway, Suite 2540
Portland, OR 97205
503-277-1233
Winter 2013
866-843-3476
page 11
9 Things NOT to Say to Someone with a Brain Injury
Brain injury is confusing to people who don’t have
one. It’s natural to want to say something, to voice
an opinion or offer advice, even when we don’t
understand. And when you care for a loved one
with a brain injury, it’s easy to get burnt out and
say things out of frustration.
Here are a few things you might find yourself saying that are probably not helpful:
1. You seem fine to me.
The invisible signs of a brain injury — memory and
concentration problems, fatigue, insomnia, chronic
pain, depression, or anxiety — these are sometimes more difficult to live with than visible disabilities. Research shows that having just a scar on the
head can help a person with a brain injury feel
validated and better understood. Your loved one
may look normal, but shrugging off the invisible
signs of brain injury is belittling. Consider this: a
memory problem can be much more disabling than
a limp.
2. Maybe you’re just not trying hard enough
(you’re lazy).
Lazy is not the same as apathy (lack of interest,
motivation, or emotion). Apathy is a disorder and
common after a brain injury. Apathy can often get
in the way of rehabilitation and recovery, so it’s
important to recognize and treat it. Certain prescription drugs have been shown to reduce apathy.
Setting very specific goals might also help.
always verbal. “I’ve already told you this” comes
through loud and clear just by facial expression.
5. Do you have any idea how much I do for
you?
Your loved one probably knows how much you
do, and feels incredibly guilty about it. It’s also
possible that your loved one has no clue, and
may never understand. This can be due to problems with awareness, memory, or apathy — all of
which can be a direct result of a brain injury. You
do need to unload your burden on someone, just
let that someone be a good friend or a counselor.
6. Your problem is all the medications you
take.
Prescription drugs can cause all kinds of side
effects such as sluggishness, insomnia, memory
problems, mania, sexual dysfunction, or weight
gain — just to name a few. Someone with a brain
injury is especially sensitive to these effects. But,
if you blame everything on the effects of drugs,
two things could happen. One, you might be encouraging your loved one to stop taking an important drug prematurely. Two, you might be
overlooking a genuine sign of brain injury.
It’s a good idea to regularly review prescription
drugs with a doctor. Don’t be afraid to ask about
alternatives that might reduce side effects. At
some point in recovery, it might very well be the
right time to taper off a drug. But, you won’t know
Do beware of problems that mimic apathy. Depres- this without regular follow-up.
sion, fatigue, and chronic pain are common after a
7. Let me do that for you.
brain injury, and can look like (or be combined
Independence and control are two of the most
with) apathy. Side effects of some prescription
drugs can also look like apathy. Try to discover the important things lost after a brain injury. Yes, it
root of the problem, so that you can help advocate may be easier to do things for your loved one.
Yes, it may be less frustrating. But, encouraging
for proper treatment.
your loved one to do things on their own will help
3. You’re such a grump!
Irritability is one of the most common signs of a
brain injury. Irritability could be the direct result of
the brain injury, or a side effect of depression,
anxiety, chronic pain, sleep disorders, or fatigue.
Think of it as a biological grumpiness — it’s not as
if your loved one can get some air and come back
in a better mood. It can come and go without reason.
promote self-esteem, confidence, and quality of
living. It can also help the brain recover faster.
Do make sure that the task isn’t one that might
put your loved one at genuine risk — such as
driving too soon or managing medication when
there are significant memory problems.
8. Try to think positively.
That’s easier said than done for many people,
and even harder for someone with a brain injury.
Repetitive negative thinking is called rumination,
and it can be common after a brain injury. Rumination is usually related to depression or anxiety,
and so treating those problems may help break
the negative thinking cycle.
Furthermore, if you tell someone to stop thinking
about a certain negative thought, that thought will
just be pushed further towards the front of the
mind (literally, to the prefrontal cortex). Instead,
find a task that is especially enjoyable for your
loved one. It will help to distract from negative
thinking, and release chemicals that promote
more positive thoughts.
9. You’re lucky to be alive.
This sounds like positive thinking, looking on the
bright side of things. But be careful. A person with
a brain injury is six times more likely to have suicidal thoughts than someone without a brain injury. Some may not feel very lucky to be alive. Instead of calling it “luck,” talk about how strong,
persistent, or heroic the person is for getting
through their ordeal. Tell them that they’re awesome.
Source: http://www.brainline.org/content/2012/10/9things-not-to-say-to-someone-with-a-brain-injury.html;
Written by Marie Rowland, PhD, EmpowermentAlly.
www.brainhealthconsulting.com.
It’s hard to live with someone who is grumpy,
moody, or angry all the time. Certain prescription
drugs, supplements, changes in diet, or therapy
that focuses on adjustment and coping skills can
all help to reduce irritability.
4. How many times do I have to tell you?
It’s frustrating to repeat yourself over and over, but
almost everyone who has a brain injury will experience some memory problems. Instead of pointing
out a deficit, try finding a solution. Make the task
easier. Create a routine. Install a memo board in
the kitchen. Also, remember that language isn’t
page 12
Winter 2013
The Headliner
The Headliner
Winter 2013
page 13
page 14
Winter 2013
The Headliner
Center on Brain Injury
Research and Training
(CBIRT) Update
Hillary Clinton Sustains a
Brain Injury
Brain Injuries:
What Can Go
Wrong?
Blow to the head
On January 31, 2013, Governor
John Kitzhaber signed Executive
Order 13-02 re-establishing the
Governor’s Task Force on
Traumatic Brain Injury! The Task
Force is charged with developing
policies with state agencies that
focus on improved service delivery
for individuals with TBI.
4 Task Force members will address
coordination of services by
developing joint policies between
state agencies, healthcare
organizations, and Veterans’
Affairs. The Task force will also
address prevention, education,
employment, and housing issues
related to TBI.
The executive order is available on
our website at, http://www.cbirt.org/
news/task_force/
Please follow us on Facebook at
CBIRT Online! There is a direct link
at the bottom of cbirt.org.
Winter Sudoku
(Answer from page 9)
3
4
1
6
2
9
7
9
8
7
5
5
6
9
3
7
1
8
2
3
1
4
8
9
9
1
6
3
8
7
5
2
4
6
8
8
4
7
1
2
3
6
The Headliner
1
9
5
1
2
1
5
9
4
6
7
Brain is jostled inside
the skull
Blood vessels crisscrossing the surface of
the brain are torn
Secretary of State Hillary Clinton on
December 15, 2012, sick with the flu, fainted
and hit her head sustaining a concussion. A
few days later she learned that she had a
small blood clot between the brain and the
skull behind the right ear. After time in the
hospital and rest she returned to work
wearing thick glasses. The prism lens that
the secretary was wearing are known as
fresnel prism lens and is common in cases
like these. Fresnel prisms usually come in the
form of a piece of thin, transparent plastic
that can be adhered to existing lenses. The
special grooves in these prisms change the
way light enters the eye, making them useful
in treating double vision.
Dr. James Liu, director of the Center for Skull
Base and Pituitary Surgery at the
Neurological Institute of New Jersey, said
that concussion and head injury can lead to
blurred or double vision in some cases, and
that this symptom can linger for a while
during recovery. "It is possible that blurred
or double vision can last up to weeks and
even months," he said. "This really depends
on the severity of the head injury. In cases of
concussions, these symptoms are usually
temporary and eventually resolve with time."
In general, following a concussion, during
which the brain is rattled inside the skull, tiny
blood vessels crisscrossing the surface of
the brain can rupture and bleed, leading to
clots as the body attempts to stem the flow of
blood. Vessels that are nestled in the folds of
brain tissue can also tear during a blow to the
head and lead to clotting. But in both of these
cases, says Dr. Lee Schwamm, vice chairman
of the Department of Neurology and director
of the Stroke Services at Massachusetts
General Hospital, blood thinners would be the
last treatment doctors would recommend
since the drugs might increase the risk of
additional bleeding and swelling in the brain.
Winter 2013
OR
Vessels between the
brain and skull are torn
OR
Vessels are stretched
but not torn
Clots, made up of
immune cells and other
blood factors, form to
repair tears or lesions in
vessels
Normal blood flow in
brain is blocked
Flow out
of brain is
restricted
Swelling
and
Neurological
symptoms
Flow into
brain is
inhibited
Stroke
That’s not the case if the clot
occurs in the space between
the brain and the skull, says
David Hovda, director of the
UCLA Brain Injury Research
Center. In those
circumstances, doctors would
be more concerned about
ensuring that any clogged
vessels are unobstructed so
blood that has circulated
through the brain and is on its
way back to the heart is
flowing freely. In older
(Hillary Clinton Continued on page 19)
page 15
What are
One of the major reasons our brains
are so big is that it takes a lot of
computing power to learn how to live
with other humans. So it's no wonder
this ability to get along with each
other often suffers when our brains
get injured.
A WORKING DEFINITION
In a nutshell, problems occur when
behaviors could result in harm for the
person with a brain injury or others, or
could restrict the individual's access to
the community.
Eric Emerson, a behavioral specialist,
We humans tend to judge each other describes this as “culturally abnormal
behavior of such intensity, frequency
through our behavior, and anyone
or duration that the physical safety of
acting outside the accepted
boundaries can be in danger of being the person or others is placed in
excluded. There are literally
serious jeopardy [and] ... behavior
thousands of 'rules' that people may which Is likely to seriously limit or deny
break unknowingly after acquiring a access to the use of ordinary
can include:
brain injury.
community faculties. (Emerson 1995).
• How close to stand to other people
A challenging behavior is one that we
• When it is appropriate to interrupt
find hard to accept; it literally
another person who is speaking
challenges our ability to understand
• When and how to show emotions
why it is happening. A complex
• How to interpret and respond to
behavior is one which makes it difficult
non-verbal communication
to initially see the reasons for the
• What parts of a person's body
maybe seen naked, or touched, and behavior.
under what circumstances
Challenging behavior and complex
• When to speak, and how to get a
behavior are strongly linked together in
point across.
the context of a brain injury.
Examples of challenging and complex
behaviors are:
• Physical or verbal aggression
• Self-injury
• Property destruction
• Disinhibition and hypersexuality
• Impulsivity and emotional lability
• Inflexibility and concrete thinking.
It is very tempting to see challenging
behaviors as deliberate action
resulting in grief for everyone. But
understanding the causes of a
particular behavior allows us to
respond appropriately, instead of with
an instinctive reaction which may only
exacerbate the situation.
THREE MAIN CAUSES
This example highlights the complex
nature of trying to work out why
particular behaviors are occurring, but
also how the solutions can be quite
easy once the problems are
(Impact of ABI Continued on page 17)
BEHAVIOR?
So what’s with this challenging behavior
and complex behavior stuff? Why not just
call a spade a spade and say it’s bad
behavior, throwing a tantrum, or being
downright difficult?
The problem is that when we use negative
and judgmental words our actions tend to
follow suit, and the behavior will only
deteriorate in response. But if we use
page 16
objective terms like challenging behavior
then we are more likely to be objective in
our thoughts and actions.
Is a behavior really ‘bad’? Consider the
driver who is doing the speed limit but
everyone else is speeding about ten miles
over the limit. Despite obeying the law,
this driver will probably get the horn,
some tailgating, the finger and other
Winter 2013
inducements to speed up. We humans
believe that normal behavior is simply
what most of us do; if someone starts
behaving outside the ordinary then it
doesn’t take long for that behavior to
challenge our understanding. So if an
elderly lady want to join a rock band after
having a stroke, think twice before
assuming this is behavior that needs to
be managed.
The Headliner
understood. The causes of any
behavior can be categorized into
three categories; psychological,
social and biological factors.
behavioral issues.
Social factors:These include general
health, psychiatric disorders, medical
conditions, medications (side-effects),
use of alcohol or other drugs, stress
Psychological factors: Emotional
problems with depression, grief and and communication deficits.
loss, anxiety, stress and frustration Biological factors: The frontal and
are very common after a brain
temporal lobe of the brain are very
injury. Alcohol or other drugs are
important for controlling our behavior
often used as a coping mechanism, and emotions. Damage to the temporal
but this usually only exacerbates
lobes can result in problems with
FRONTAL LOBE
The frontal lobe is responsible for planning,
organization, initiation of behavior, ability to
Inhibit behavior, self-awareness, selfmonitoring, flexibility In thinking and
behavior, reasoning and decision- making.
So injury to the frontal lobe can lead to many
possible changes in behavior including:
• Decreased ability to organize information
• Difficulty sequencing activities and
behavior
• Unpredictable behavior due to poor
planning
• May not complete activity or follow through
• Frustration when things don't go according
to plan
memory and language, both play major
roles in managing our behavior. An
understanding of just how much these
factors can influence behavior can
make it much easier for family
members to understand and respond
appropriately to specific behaviors.
The diagram following maps out many
common challenging behaviors and
which parts of an injured brain may
cause them.
• Confusion about what to do and when
to do things
• Clutter and lost Items
• Low motivation, apathy and lack of
interest
• Easily bored and frustrated
• Inappropriate social and sexual
behavior
• Verbal and physical aggression or
anger
• Impulsive behavior
• Repetitive and perseverative behaviors
• Impaired self-awareness and judgment
• Reduced motivation to change
behavior
• Unaware of behavior’s Impact on
others
• Poor awareness of own or other
people’s emotions
• Inability to self-manage emotions
• Concrete inflexible thinking
• Difficulty thinking of alternative ideas
or behavior
• Argumentativeness
• Irritability with others
• Misunderstanding of what others do
or say
• Difficulty with problem-solving and
logic
• May take longer to make decisions.
Parietal Lobe
The parietal lobe is responsible for spatial awareness,
perception of self, objects and people in space, and
perceptual processing of information. Potential problems
here include:
• Confusion or uncertainty
• Lack of trust or confidence in self, others and
environment
• Effort needed for activities leads to fatigue and irritability
• Misperception of sensory information can lead to
paranoia.
SYSTEM
The limbic system is located above the brain
stem, and is responsible for regulation of
emotional state and perception of emotions In
self and others. Potential Issues here Include:
• Rapid mood changes
• Lack of empathy or responsiveness to others
• Egocentricity or self-focused
• Impatience and low tolerance of others
• May want needs met immediately and
difficulty waiting
• Irritability and anger
• Anxiety and depression.
TEMPORAL LOBE
The temporal lobe is responsible for communication,
memory, new learning and remembering tasks. instructions.
events and one’s own behavior. Problems include:
• Misunderstanding or misinterpreting communication
• Difficulty expressing ideas, feelings and preferences
• Difficulty regulating voice, tone, volume and rate of speech
• Forgetting conversations, instructions and decisions
made
• Confusion and memory loss may lead to paranoia
• Frustration with effort, difficulty or failure.
The Headliner
Winter 2013
BRAIN STEM • CEREBELLUM
The cerebellum and brain stem are responsible
for regulation of arousal and alertness, sleep,
physical functions and mobility. Problems here
include:
• Sleep disorders
• Fatigue
• Sensitivity to noise, light, temperature and
fatigue
• Lack of Interest In previously enjoyed activities.
page 17
Potential Future Medical Problems
Caregivers and family members are in a unique position to spot medical problems
that may emerge after leaving the hospital
need to be
to various
problems and
that may
the need for
or
follow-up
developing after the person is home
and no longer
in
or
rehabilitation settings may not be as
recognized as a
of brain
and valuable treatment time
can be lost if caregivers
are
of some
medical
of brain
injury.
Heterotopic Ossification (HO)
is a
condition in
which there is
bone growth
in selected joints, most commonly in
the hips,
and
elbows. It usually occurs within the
first
months after
and is
most often
by the
when
or
painful
of motion is seen.
can retard or slow the
growth of the
bone. HO,
along with
in
system problems,
such as
forms of
and worsening
muscle
stiffness) and
problems causing
warns
of future problems that
must be addressed.
Hearing
problems can occur
for a number of
both mechanical and
when the
ear and/or
lobes have been
damaged. All patients
should have an otoscopic
and hearing
followed by behavioral testing.
in the ear canal,
middle ear
injury,
and/or
lobe
can
cause
dysfunction.
Visual system changes
and
is often
by brain injury.
at the
are
often the first to notice
in
the eyes, such as
and other
of a problem. A
is
with
an ophthalmologist and with
the problem can be
brought under control.
1450 Standard Plaza
1100 SW Sixth Ave
Portland, OR 97204
1-888-883-1576
www.tdinjurylaw.com
Protecting
the Rights
of the
Injured
the
therapist
functioning
methods for compensating
and
for any
deficits. In
it
is important that
and
be
Some
of the more common
systems
problems
double
cuts,
sector
rapid
and
near-sightedness.
Neuroendocrine
in women some
ders
that chronic
are occurring
post injury.
these
may have been
monitored well in the acute phase of
the
reported
or
more
that they were
problems such as weight
gain, thyroid
in hair
and
body
and skin
women
of chronic sleep
blood
a reduction in
of immunity
to
and
complaints.
are that damage in the
limbic system and pituitary
may play a role in these disturbances.
Personal Injury Practice Areas:
Brain Injury Accidents
Automobile Accidents
Maritime Accidents
Construction Accidents
Trucking Accidents
Medical Malpractice
Wrongful Death
page 18
Dangerous Premises
Defective Products
Bicycle Accidents
Motorcycle Accidents
Sexual Harassment/Abuse
Aviation Accidents
Legal Malpractice
Winter 2013
The Headliner
(Hillary Clinton Continued from page 15)
patients, this space is slightly
more expansive than that among
younger people since the brain
tends to shrink gradually with age.
Schwamm, who has not treated
Clinton but has treated patients
with concussions and clots, says
there are two other, relatively rare
scenarios in which the concussion
itself might lead to a need for
blood thinners. Clinton apparently
hit her head after a fall while
dehydrated from a stomach virus,
and if her head were twisted on
impact, small tears, or dissections,
might have shredded the arteries that
feed blood to the brain, leading to
clots. Blockages in these arteries can
prevent the brain from receiving the
oxygen-rich blood it needs, leading to a
stroke, so doctors often use bloodthinning drugs to prevent clots from
growing. The other possibility,
Schwamm says, is that the clot formed
in the veins that drain blood from the
brain, so the danger of having that flow
interrupted and backing up in the brain
would also require treatment with
anticoagulants.
But these types of clots are relatively
rare, affecting less than 1 in 100,000
patients hospitalized for clot-related
problems. More likely, says Schwamm,
is that the concussion led more
indirectly to the clot. Patients
recovering from such a fall often stick
to a period of bed rest and immobility
that can trigger a clot outside of the
brain. “If there is postconcussive
syndrome, you have persistent
headaches, dizziness, nausea and you
feel poorly, so people end up lying in
bed, which is a setup for a clot
developing in the leg,” says Schwamm.
Learn more about vision issues at the
brain injury conference March 9 in Dr.
Bruce Wocijeckoswki’s presentation.
Has Medicaid or Medicare denied your request for coverage for assistive
technology--such as a wheelchair or CPAP machine--that was prescribed by
your doctor?
Disability Rights Oregon may be able to help. Contact us at (503) 243-2081.
Jan E. Friedman, Attorney
Disability Rights Oregon
610 SW Broadway, Suite 200
Portland, OR 97205
The Headliner
503- 243-2081 or 1-800-452-1694
TTY: 503-323-9161 or 1-800-556-5351
Fax: 503-243-1738
Fall 2012
page 19
I've got the brain of a
four year old. I'll bet he
was glad to be rid of it.
Groucho Marx
At Windsor Place, we believe in promoting
the self-confidence and self-reliance of all
of our residents
Sharon Slaughter
Windsor Place, Inc.
3009 Windsor Ave. NE Salem Oregon 97301
www.windsorplacesalem.org
Executive Director
[email protected]
Phone: 503-581-0393
Fax: 503-581-4320
page 20
Winter 2013
The Headliner
Students: Returning to
School After Brain Injury
steps as
goals
and tackle them one at a time
As each step is completed,
it as an
of
success
a break between each step
each preceding step
before moving onto the next.
high
of
or
are
the student should be
able to take time-out, having
for this
with teachers.
needs to be
as an opportunity
to
and perspective, not
punishment.
Impulsive behavior
may need to present this
to them to
them with this
It may help if your
doctor or
writes
a letter to document that you
a
disability.
You will need to
the
accommodations or
help you
such as:
Extra time for assignments and
exams
Exams in a quiet room
Copies of teacher’s notes if your
concentration is affected.
are often a genuine
case of
doing what seemed
to be a good idea at the time. Strategies
should be
with
so
Short-term memory
that
can be
Students may lose books and
replaced with an
It is
equipment, forget
and also helpful to
on a
that the
arrangements, ask the same
Some study strategies
can
as a sign for the
and
or forget
will be
student to stop and think about what
they are supposed
which
Some
to try are:
they are doing. It could be a word, or a
to be in.
there are ways to sign
A
good
diet,
and
rm up in the
In time it will
memory and it can be an
exercise
become an automatic process.
to work out new
and
to compensate for problems. Accommodations
drugs
now have
Students with poor memory will need All
Structure your days and week with a
that make
for
become
with using memory
daily planner, diary or electronic
people with
in terms of time
aids and will need constant
organizer
for tests and
These
by
who
Use memory prompts such as
are
of the
should be
of how to respond
notepads,
and a notice board
impacts on a student’s abilities
to memory issues.
on study times, most
such as short-term memory difficulties,
better in
than evenings
Stress, frustration and anger
lack of concentration,
Structure your study times and stick
A common
to
stress
to stress and lowered
them no matter how you feel
is a
of
or being
Students should
Join study groups or find a ‘study
trapped in a
over which we
contact their
to make
no control.
or
for tests and
environments can add to assignments.
a student’s
that they are being
Many schools and
will
of
The student
new
should be able to choose from a
if you let
number of options in
with
them know that you
these emotions.
a
for these
is
should be
and where
of brain
avoided.
this isn’t
in
many
and
so you
can act as good insurance
Representing
RALPH E. WISER
Attorney
Brain Injured Individuals
ARE YOU A MEMBER?
The Brain Injury Alliance of Oregon relies on your membership dues
and donations to operate our special projects and to assist families
and survivors. Many of you who receive this newsletter are not yet
members of BIAOR. If you have not yet joined, we urge you to do so.
It is important that people with brain injuries, their families and the
professionals in the field all work together to develop and keep
updated on appropriate services. Professionals: become a member of
our Neuro-Resource Referral Service. Dues notices have been sent.
Please remember that we cannot do this without your help. Your
membership is vitally important when we are talking to our legislators.
For further information, please call
1-800-544-5243 or email
[email protected]. See page 23 to sign up.
The Headliner
Winter 2013
Auto and other accidents
Wrongful Death
Sexual Abuse
Elder Abuse
Insurance issues and disputes
Disability: ERISA and Non-ERISA, SSD, PERS
One Centerpointe Drive, Suite 570
Lake Oswego, Oregon 97035
Phone: (503) 620-5577
Fax: (503) 670-7683
Email: [email protected]
FREE INITIAL CONSULTATION
Free Parking/Convenient Location
page 21
Oregon Centers for Independent Living
Why do men have more
brain injuries???
Contact List
CIL
ABILITREE
Director: Glenn Van Cise
EOCIL
(Eastern Oregon Center
for Independent Living)
Director: Kirt Toombs
LOCATION
20436 Clay Pigeon Court
Bend, OR 97702
1-541-388-8103
322 SW 3rd Suite 6
Pendleton, OR 97801
(541) 276-1037
1-877-711-1037 (Toll Free)
400 E Scenic Dr., Ste 2349
The Dalles, OR 97058
541-370-2810
1-855-516-6273
1021 SW 5th Avenue
Ontario, OR 97914
(541) 889-3119 or 1-866248-8369
COUNTIES SERVED
Crook, Deschutes,
Jefferson
Gilliam,, Morrow,
Umatilla,
Union, Wheeler
Columbia , Hood
River, Sherman,
Wasco
Baker, Grant, Harney,
Malheur , Wallowa
HASL
(Independent Abilities
Center)
Director: Randy
Samuelson
305 NE "E" St.
Grants Pass, OR 97526
(541) 479-4275
Josephine, Jackson,
Curry, Coos , Douglas
LILA
(Lane Independent
Living Alliance)
Director: Sheila Thomas
99 West 10th Ave#117
Eugene, OR 97401
(541) 607-7020
Lane, Marion, Polk,
Yamhill, Linn, Benton,
Lincoln
ILR
(Independent Living
Resources)
Director:
Barry Fox-Quamme
SPOKES UNLIMITED
Director:
Christina Fritschi
1839 NE Couch Street
Portland, OR 97232
(503) 232-7411
Clackamas,
Multnomah,
Washington
1006 Main Street
Klamath Falls, OR 97601
(541) 883-7547
Klamath, Lake
UVDN (Umpqua Valley
disAbilities Network)
Director: David Fricke
736 SE Jackson Street,
Roseburg, OR 97470 (541672-6336 (voice)
Douglas
The Brain Injury Alliance of Oregon can deliver a range of trainings
for your organization. These include:
• CBIS Training (Certified Brain Injury Specialist)
• TBI & PTSD in the Returning Military
• Vocational Rehabilitation-working with clients
• Methamphetamine and Brain Injury
• ADA Awareness—Cross Disability Training
including cognitive interactive simulation
• Judicial and Police: Working with People with
Brain Injury
• Traumatic Brain Injury: A Guide for Educators
• Native People and Brain Injury
• Brain Injury 101
• Anger Management and TBI
• Aging and TBI
• How Brain Injury Affects Families
• Brain Injury for Medical and Legal Professionals-
What you need to know
Caregiver Training
Domestic Violence and TBI
Dealing with Behavioral Issues
Returning to Work After Brain Injury
And more!
•
•
•
•
For more information contact Sherry Stock, Executive Director, Brain Injury Alliance of Oregon at
[email protected] 800-544-5243
page 22
Winter 2013
The Headliner
Understanding Mild Traumatic Brain
Injury (MTBI): An Insightful Guide to
Symptoms, Treatment and Redefining
Recovery
Understanding Mild Traumatic Brain Injury
(MTBI): An Insightful Guide to Symptoms,
Treatment and Redefining Recovery
Edited by Mary Ann Keatley, PhD and
Laura L. Whittemore $16.00
The Essential Brain injury Guide
The Essential Brain Injury Guide provides a wealth of vital
information about brain injury, its treatment and
rehabilitation. Written and edited by leading brain injury
experts in non-medical language, it’s easy to understand.
This thorough guide to brain injury covers topics including:
Understanding the Brain and Brain Injury; Brain Injury
Rehabilitation; Health, Medications and Medical
Management; Treatment of Functional Impacts of Brain
Injury; Children and Adolescents; Legal and Ethical
Issues; and MORE! Used as the primary brain injury reference by thousands of
professionals and para-professionals providing direct services to persons with
brain injury over the past 15 years. $60.00
Recovering from Mild Traumatic Brain Injury A handbook of hope for
military and their families. Edited by Mary Ann Keatley, PhD and Laura L.
Whittemore
This clear and concise handbook speaks to our Wounded Warriors and their
families and helps them navigate through the unknown territory of this often
misunderstood and unidentified injury. It provides an insightful guide to
understanding the symptoms, treatment options and redefines "Recovery" as
their new assignment. Most importantly, the intention of the authors is to inspire
hope that they will get better, they will learn to compensate and discover their
own resiliency and resourcefulness. $18.00
Ketchup on the Baseboard
Ketchup on the Baseboard tells the personal story of the
authors' family’s journey after her son, Tim, sustained a brain
injury. Chronicling his progress over more than 20 years, she
describes the many stages of his recovery along with the
complex emotions and changing dynamics of her family and
their expectations. More than a personal story, the book
contains a collection of articles written by Carolyn Rocchio as
a national columnist for newsletters and journals on brain
injury. $20
A Change of Mind
A Change of Mind by Janelle Breese Biagioni is a very
personal view of marriage and parenting by a wife with two
young children as she was thrust into the complex and
confusing world of brain injury. Gerry Breese, a husband,
father and constable in the Royal Canadian Mounted Police
was injured in a motorcycle crash while on duty. Janelle
traces the roller coaster of emotions, during her husband’s
hospital stay and return home. She takes you into their
home as they struggle to rebuild their relationship and life at home. $20
Fighting for David
Leone Nunley was told by doctors that her son David was in a
"persistent coma and vegetative state"--the same diagnosis
faced by Terri Schiavo's family. Fighting for David is the story
how Leone fought for David's life after a terrible motorcycle
crash. This story shows how David overcame many of his
disabilities with the help of his family. $15
The Caregiver's Tale: The True Story Of A Woman, Her
Husband Who Fell Off The Roof, And Traumatic Brain
Injury
From the Spousal Caregiver's, Marie Therese Gass, point
of view, this is the story of the first seven years after severe
Traumatic Brain Injury, as well as essays concerning the
problems of fixing things, or at least letting life operate
more smoothly. Humor and pathos, love and frustration,
rages and not knowing what to do--all these make up a
complete story of Traumatic Brain Injury. $15
The Headliner
Brain Injury Alliance of Oregon
New Member
Renewing Member
Name: ___________________________________________
Street Address: _____________________________________
City/State/Zip: ______________________________________
Phone: ___________________________________________
Email: _____________________________________________
Type of Membership
Survivor Courtesy $ 5 (Donations from those able to do so are appreciated)
Basic $35
Family $50
Students $25
Non Profit $75
Professional $100
Sustaining $200
Corporation $300
Lifetime $5000
Sponsorship
Bronze $300
Silver $500
Gold $1,000
Platinum $2,000
Additional Donation/Memorial: $________________
In memory of: ______________________________________
(Please print name)
Member is:
Individual with brain injury
Family Member
Other:_________
Professional. Field: _______________________________
Book Purchase ($2 per book for mailing):
The Caregiver’s Tale $15
Change of Mind $20
Fighting for David $15
Ketchup on the Baseboard $20
The Essential Brain Injury Guide $60
Recovering from MTBI $18
Understanding MTBI $16
Type of Payment
Check payable to BIAOR for $ ________________________
Charge my VISA/MC/Discover Card $ __________________
Card number: _________ __________ _________ __________
Expiration date: _____________ Security Code from back _________
Print Name on Card: __________________________________
Signature Approval: __________________________________
Date: ______________________________________________
Please mail to:
BIAOR PO Box 549
Molalla, OR 97038
800-544-5243 Fax: 503– 961-8730
www.biaoregon.org • [email protected]
501 (c)(3) Tax Exempt Fed. ID 93-0900797
Winter 2013
page 23
Resources
For Parents, Students,
Educators and
Professionals
Returning Veterans Project
Returning Veterans Project is a nonprofit organization comprised of politically unaffiliated and
independent health care practitioners who offer free counseling and other health services to
veterans of past and current Iraq and Afghanistan campaigns and their families. Our volunteers
The Oregon TBI Team
include mental health professionals, acupuncturists and other allied health care providers. We believe it
is our collective responsibility to offer education, support, and healing for the short and long-term
The Oregon TBI Team is a multidisciplinary group
repercussions of military combat on veterans and their families. For more information contact: Belle
of educators and school professionals trained in
Bennett Landau, Executive Director, 503-933-4996 www.returningveterans.org email:
pediatric brain injury. The Team provides in-service
[email protected]
training to support schools, educators and families
of students (ages 0-21) with TBI. For evidence
Center for Polytrauma Care-Oregon VA
based information and resources for supporting
Providing
rehabilitation
and care coordination for combat-injured OIF/OEF veterans and active duty
students with TBI, visit: www.tbied.org
service members.
For more information about Oregon’s TBI
Contact:
Ellen
Kessi,
LCSW
,
Polytrauma
Case Manager [email protected] 1-800-949-1004
www.cbirt.org/oregon-tbi-team/
x
34029
or
503-220-8262
x 34029
Melissa Nowatske 541-346-0597
[email protected] or [email protected]
“Brain Injury Partners: Navigating
the School System,” an interactive, multimedia intervention, is now available on-line free of
charge. The easy-to-use website is designed to
give parents of school-aged children with a brain
injury the skills they need to become successful
advocates. http://free.braininjurypartners.com/.
Parent Training and Information
A statewide parent training and information center
serving parents of children with disabilities.
1-888-988-FACT
Email: [email protected]
http://factoregon.org/?page_id=52
LEARNet
Provides educators and families with invaluable
information designed to improve the educational
outcomes for students with brain injury.
www.projectlearnet.org/index.html
FREE Brain Games to Sharpen Your
Memory and Mind
www.realage.com/HealthyYOUCenter/Games/
intro.aspx?gamenum=82
http://brainist.com/
Home-Based Cognitive Stimulation Program
http://main.uab.edu/tbi/show.asp?
durki=49377&site=2988&return=9505
Sam's Brainy Adventure
http://faculty.washington.edu/chudler/flash/
comic.html
Neurobic Exercise
www.neurobics.com/exercise.html
Brain Training Games from the Brain Center of
America
www.braincenteramerica.com/exercises_am.php
page 24
Washington TBI Resource Center
Providing Information & Referrals to individuals with brain injury, their caregivers, and loved ones
through the Resource Line. In-Person Resource Management is also available in a service area that
provides coverage where more than 90% of TBI Incidence occurs (including counties in Southwest
Washington.
For more information or assistance call: 1-877-824-1766 9 am –5 pm
www.BrainInjuryWA.org
Vancouver: Carla-Jo Whitson, MSW CBIS 360-699-4928 [email protected]
Legal Help
Disability Rights Oregon (DRO) promotes Opportunity, Access and Choice for individuals with
disabilities. Assisting people with legal representation, advice and information designed to help solve
problems directly related to their disabilities. All services are confidential and free of charge. (503) 243
-2081 http://www.disabilityrightsoregon.org/
Legal Aid Services of Oregon serves people with low-income and seniors. If you qualify for food
stamps you may qualify for services. Areas covered are: consumer, education, family law,
farmworkers, government benefits, housing, individual rights, Native American issues, protection from
abuse, seniors, and tax issues for individuals. Multnomah County 1-888-610-8764 www.lawhelp.org
Lewis & Clark Legal Clinic is a civil practice clinic for the Northwestern School of Law of Lewis &
Clark College. Representing low-income individuals experiencing a cariety of civil and administrate
problems. 503-768-6500
Oregon Law Center Legal provides free legal services to low income individuals, living in Oregon,
who have a civil legal case and need legal help. Assistance is not for criminal matter or traffic tickets.
http://oregonlawhelp.org
Oregon State Bar Lawyer Referral Services refers to a lawyer who may be able to assist. 503-6843763 or 800-452-7636
The Oregon State Bar Military Assistance Panel program is designed to address legal concerns of
Oregon service members and their families immediately before, after, and during deployment. The
panel provides opportunities for Oregon attorneys to receive specialized training and offer pro bono
services to service members deployed overseas. 800-452-8260
St. Andrews Legal Clinic is a community non-profit that provides legal services to low income families
by providing legal advocacy for issues of adoption, child custody and support, protections orders,
guardianship, parenting time, and spousal support. 503-557-9800
Winter 2013
The Headliner
Affordable Naturopathic Clinic in Southeast
An affordable, natural medicine clinic is held
the second Saturday of each month. Dr.
Cristina Cooke, a naturopathic physician, will
offer a sliding-scale.
The clinic is located at:
Naturopaths see people with a range of health
concerns including allergies, diabetes, fatigue,
high blood-pressure, and issues from past
physical or emotional injuries.
For more information of to make an
appointment, please call:
Dr. Cooke, 503-984-5652
The Southeast Community Church of
the Nazarene
5535 SE Rhone, Portland.
Have you had an insurance claim
for cognitive therapy denied?
If so call:
Julia Greenfield, JD Staff Attorney
Disability Rights Oregon
620 SW Fifth Avenue, Ste 500, Portland, OR 97204
Phone: (503) 243-2081 Fax: (503) 243 1738
[email protected]
Financial Assistance
Tammy Greenspan
Head Injury Collection
A terrific collection of
books specific to brain
injury. You can borrow
these books through the
interlibrary loan system. A
reference librarian experienced in brain injury literature can help you find the
book to meet your needs.
516-249-9090
Long Term Care—Melissa Taber, Long Term Care TBI
Coordinator, DHS, State of Oregon 503-947-5169
The Low-Income Home Energy Assistance Program
(LIHEAP) is a federally-funded program that helps lowincome households pay their home heating and cooling
bills. It operates in every state and the District of Columbia,
as well as on most tribal reservations and U.S. territories.
The LIHEAP Clearinghouse is an information resource for
state, tribal and local LIHEAP providers, and others
interested in low-income energy issues. This site is a
supplement to the LIHEAP-related information the LIHEAP
Clearinghouse currently provides through its phone line 1800-453-5511 www.ohcs.oregon.gov/OHCS/
SOS_Low_Income_Energy_Assistance_Oregon.shtml
Food, Cash, Housing Help from Oregon Department of
Human Services 503-945-5600
http://www.oregon.gov/DHS/assistance/index.shtml
Housing
Various rental housing assistance programs for low
income households are administered by local community
action agencies, known as CAAs. Subsized housing, such
as Section 8 rental housing, is applied for through local
housing authorities. 503-986-2000 http://oregon.gov/
OHCS/CSS_Low_Income_Rental_Housing_
Assistance_Programs.shtml
Oregon Food Pantries http://www.foodpantries.org/st/
oregon
Central City Concern, Portland 503 294-1681
Central City Concern meets its mission through innovative
outcome based strategies which support personal and
community transformation providing:
• Direct access to housing which supports lifestyle
change.
• Integrated healthcare services that are highly effective
in engaging people who are often alienated from
mainstream systems.
• The development of peer relationships that nurture and
support personal transformation and recovery.
• Attainment of income through employment or
accessing benefits.
The Headliner
Need Help with Health Care?
Oregon Health Connect: 855-999-3210
Oregonhealthconnect.org
Information about health care programs for people who need help.
Project Access Now 503-413-5746 Projectaccessnnow.org
Connects low-income, uninsured people to care donated by
providers in the metro area.
Health Advocacy Solutions - 888-755-5215 Hasolutions.org
Researches treatment options, charity care and billing issues for a
fee.
Coalition of Community Health Clinics 503-546-4991
Coalitionclinics.org
Connects low-income patients with donated free pharmaceuticals.
Oregon Prescription Drug Program 800-913-4146
Oregon.gov/OHA/pharmacy/OPDP/Pages/index.aspx
Helps the uninsured and underinsured obtain drug discounts.
Central City Concern, Old Town Clinic Portland 503 294-1681
Integrated healthcare services on a sliding scale.
Valuable Websites
www.BrainLine.org: a national multimedia project offering information and resources about
preventing, treating, and living with TBI; includes a series of webcasts, an electronic
newsletter, and an extensive outreach campaign in partnership with national organizations
concerned about traumatic brain injury.
www.iCaduceus.com: The Clinician's Alternative, web-based alternative medical resource.
www.oregon.gov/odva: Oregon Department of Veterans Affairs
http://fort-oregon.org/: information for current and former service members
www.idahotbi.org/: Idaho Traumatic Brain Injury Virtual Program Center-The program
includes a telehealth component that trains providers on TBI issues through videoconferencing and an online virtual program center.
www.headinjury.com/ - information for brain injury survivors and family members
http://activecoach.orcasinc.com Free concussion training for coaches ACTive: Athletic
Concussion Training™ using Interactive Video Education
www.braininjuryhelp.org Peer mentoring help for the TBI survivor in the Portland Metro/
Southern Washington area. 503-224-9069
www.phpnw.org If you, or someone you know needs help-contact: People Helping People
Sharon Bareis 503-875-6918
www.oregonpva.org - If you are a disabled veteran who needs help, peer mentors and
resources are available
http://oregonmilitarysupportnetwork.org - resource for current and former members of the
uniformed military of the United States of America and their families.
http://apps.usa.gov/national-resource-directory/National Resource Directory The National
Resource Directory is a mobile optimized website that connects wounded warriors, service
members, veterans, and their families with support. It provides access to services and
resources at the national, state and local levels to support recovery, rehabilitation and
community reintegration. (mobile website)
http://apps.usa.gov/ptsd-coach/PTSD Coach is for veterans and military service members
who have, or may have, post-traumatic stress disorder (PTSD). It provides information about
PTSD and care, a self-assessment for PTSD, opportunities to find support, and tools–from
relaxation skills and positive self-talk to anger management and other common self-help
strategies–to help manage the stresses of daily life with PTSD. (iPhone)
Winter 2013
page 25
Oregon Brain Injury Support Groups
Astoria
Astoria Support Group
3rd Tuesday 6-7:30
Pacific NW Occupational Therapy Clinic
1396 Duane St. Astoria OR 97103
Kendra Ward 1-888-503-7760
Bend
CENTRAL OREGON SUPPORT GROUP
2nd Saturday 10:30am to 12:00 noon
St. Charles Medical Center
2500 NE Neff Rd, Bend 97701
Rehab Conference Room, Lower Level
Joyce & Dave Accornero, 541 382 9451
[email protected]
Ablitree Thursday Support Group
Every Thursday 10:30 am-12pm
Fox Hollow Assisted Living Center
2599 NE Studio Rd, Bend OR 97701
Rich Zebrowski 541-388-8103 x 203
[email protected]
Corvallis
STROKE & BRAIN INJURY SUPPORT GROUP
1st Tuesday 1:30 to 3:00 pm
Church of the Good Samaritan Lng
333 NW 35th Street, Corvallis, OR 97330
Call for Specifics: Shawn Johnson, CCC-SLP
541-768-5157 [email protected]
Hillsboro
Westside SUPPORT GROUP
3rd Monday 7-8 pm
For brain injury survivors, their families, caregivers and
professionals
Tuality Community Hospital
335 South East 8th Street, Hillsboro, OR 97123
Carol Altman, (503)640-0818
Klamath Falls
SPOKES UNLIMITED BRAIN INJURY SUPPORT
GROUP
2nd Tuesday 1:00pm to 2:30pm
1006 Main Street, Klamath Falls, OR 97601
Dawn Lytle 541-883-7547
[email protected]
SPOKES UNLIMITED BRAIN INJURY RECREATION
4th Tuesday
Contact Dawn Lytle for additional information:
541-883-7547 [email protected]
Lebanon
BRAIN INJURY SUPPORT GROUP OF LEBANON
1st Thursday 6:30 pm
Lebanon Community Hospital, Conf Rm #6
525 North Santiam Hwy, Lebanon, OR 97355
Lisa Stoffey 541-752-0816 [email protected]
Coos Bay (2)
Traumatic Brain Injury (TBI) Support Group
2nd Saturday August 9th 3:00pm – 5:00pm
Kaffe 101, 171 South Broadway
Coos Bay, OR 97420 [email protected]
Medford
Southern Oregon Brainstormers Support & Social
Club
1st Tuesday 3:30 pm to 5:30 pm
751 Spring St., Medford, Or 97501
Lorita Cushman @ 541-621-9974
[email protected]
Growing Through It- Healing Art Workshop
Wednesdays, 9-10:30am
The Nancy Devereux Center
1200 Newmark Avenue, Coos Bay, Oregon
Bittin Duggan, B.F.A., M.A.,
541-217-4095 [email protected]
Molalla
BRAIN INJURY SUPPORT GROUP OF MOLALLA
5:30 pm—7:00, Every Monday
Support group and Hydro-exercise - Molalla Pool
Sherry Stock [email protected] 503-740-3155
Must Be Pre-Registered
Eugene (3)
Head Bangers
3rd Tuesday, Feb., Apr., June, July, Aug., Oct. Nov.
6:30 pm - 8:30 pm Potluck Social
Monte Loma Mobile Home Rec Center
2150 Laura St;, Springfield, OR 97477
Susie Chavez, (541) 342-1980
[email protected]
Newport
BRAIN INJURY SUPPORT GROUP OF NEWPORT
2nd Saturday 2-4 pm
4909 S Coast Hwy Ste 340,
South Beach, OR 97366
(541) 867-4335 or [email protected]
www.progressive-options.org
Community Rehabilitation Services of Oregon
3rd Tuesday, Jan., Mar., May, Sept. and Nov.
7:00 pm - 8:30 pm Support Group
St. Thomas Episcopal Church
1465 Coburg Rd.; Eugene, OR 97401
Jan Johnson, (541) 342-1980
[email protected]
BIG (BRAIN INJURY GROUP)
Tuesdays 11:00am-1pm
Hilyard Community Center
2580 Hilyard Avenue, Eugene, OR. 97401
Curtis Brown, (541) 998-3951
[email protected]
page 26
Oregon City
3rd Friday 1-3 pm (on hiatus)
Clackamas Community College
Sonja Bolon, MA 503-816-1053
[email protected]
Portland (14)
BRAINSTORMERS I
2nd Saturday 10:00 - 11:30am
Women survivor's self-help group
Wilcox Building Conference Room A
2211 NW Marshall St., Portland 97210
Next to Good Samaritan Hospital
Jane Starbird, Ph.D., (503) 493-1221
[email protected]
Winter 2013
BIRC Alumni Support Group
On hiatus until further notice
BRAINSTORMERS Il
3rd Saturday 10:00am-12:00noon
Survivor self-help group
Emanuel Hospital, Rm 4225
2801 N Gantenbein, Portland, 97227
Steve Wright [email protected]
503-816-2510
BIRRDsong Support Group
1st Saturday, 9:30-11 am
Peer Support Group for Survivors & Family
Wistar-Morris Room
2211 NW Marshall St., Portland 97210
Next to Good Samaritan Hospital
[email protected]
CROSSROADS (Brain Injury Discussion Group)
2nd and 4th Friday, 1-3 pm
Independent Living Resources
1839 NE Couch St, Portland, OR 97232
Sarah Gerth, 503-232-7411 [email protected]
Must Be Pre-Registered
FAMILY SUPPORT GROUP
3rd Saturday 1:00 pm-2:00 pm
Self-help and support group
Currently combined with
PARENTS OF CHILDREN WITH BRAIN INJURY
Emanuel Hospital, Rm 1035
2801 N Gantenbein, Portland, 97227
Joyce Kerley (503) 320-6092 [email protected]
FARADAY CLUB
Must be pre-registered 1st Saturday 1:00-2:30pm
Peer self-help group for professionals with BI
Emanuel Hospital, Rm. 1035
2801 N Gantenbein, Portland, 97227
Arvid Lonseth, (503) 680-2251 (pager)
[email protected]
HELP
(Help Each Other Live Positively)
4th Saturday - 1:00-3:00 pm
TBI Survivor self-help group (Odd months)
TBI Family & Spouse (Even Months)
Cognitive Enhancement Center
604 SE Water Ave Portland 97214
Brad Loftis, (503) 760-0425
[email protected]
Please contact at least two days in advance
OHSU Sports Concussion Support Group
For Youth and Their Families who have been
affected by a head injury
3rd Tuesday, 7:00-8:30 pm
OHSU Center for Health and Healing
3303 SW Bond Ave, 3rd floor conference room
Portland, OR 97239
For more information or to RSVP contact
Jennifer Wilhelm 503-494-3151 [email protected]
Sponsored by OHSU Sports Medicine and
Rehabilitation
The Headliner
Brain Injury Support Groups provide face-to-face interaction among people whose lives have been affected by brain
injury, including Peer Support and Peer Mentoring.
PARENTS OF CHILDREN WITH BRAIN INJURY
3rd Saturday 12:30 - 2:30 pm
self-help support group.
12:30-1 pm Currently combined with THRIVE
SUPPORT GROUP for Pizza then joins
FAMILY SUPPORT GROUP
Emanuel Hospital, Rm 1035
2801 N Gantenbein, Portland, 97227
Joyce Kerley (503) 281-4682 [email protected]
Positive Brain Injury Support Group
For career persons with brain injury
Every other Monday 4:30- 6 pm
4511 SE 39th Ave., Portland, 97202
Call: Nancy Holmes, PsyD, (503) 235-2466
MUST BE PRE-REGISTERED
Positive Family Support Group
For families, friends, and caregivers of Brain Injury
Survivors
$20, scholarships available
2nd and 4th Monday's 4:30- 6:00pm
Starting Jan. 14th 2013
4511 SE Cesar Chavez Blvd., Portland, OR 97202
Nancy Holmes, PsyD (503) 235-2466
THRIVE SUPPORT GROUP
3rd Saturday 12:30 - 2:30 pm
Brain Injury Survivor support group Ages 15-25
Emanuel Hospital, MOB West
Medical Office building West
Directly across from parking lot 2
501 N Graham, Portland, 97227
Kate Robinson, 503-318-5878
[email protected]
MUST BE PRE-REGISTERED
TBI Caregivers Support Group
4th Thursday 7-8:30 pm
8818 NE Everett St, Portland 97220
Karin Keita 503-208-1787
[email protected]
MUST BE PRE-REGISTERED
TBI SOCIAL CLUB
Location varies, call for times & locations
Meets twice a month - days and times vary
call for information
Michael Flick, 503-775-1718
Greater Persons Toastmasters Club (for People
with Brain Injury) On Hiatus until further notice
Caleb Burns, (503) 913-4517
Roseburg
UMPQUA VALLEY DISABILITIES NETWORK
2nd Monday 12 noon - 1:15pm
736 SE Jackson St, Roseburg, OR 97470
(541) 672-6336 [email protected]
Toleration is the greatest gift of the
mind; it requires the same effort of
the brain that it takes to balance
oneself on a bicycle. - Helen Keller
The Headliner
Salem (3)
SALEM BRAIN INJURY SUPPORT GROUP
4th Thursday 4pm-6pm
Salem Rehabilitation Center, Conf Rm 2 A/B
2561 Center Street, Salem OR 97301
Megan Snider (503) 561-1974
[email protected]
SALEM COFFEE & CONVERSATION
Fridays 11-12:30 pm
Ike Box Café
299 Cottage St, Salem OR 97301
SALEM STROKE SURVIVORS & CAREGIVERS
SUPPORT GROUP
2nd Friday 1 pm –3pm
Salem Rehabilitation Center
2561 Center Street, Salem OR 97301
Scott Werdebaugh 503-838-6868
Ruby McEliroy 503-390-3372
IDAHO & WASHINGTON TBI SUPPORT GROUPS
Quad Cities TBI Support Group
Second Saturday of each month, 9 a.m.
Tri State Memorial Hosp. 1221 Highland Ave,
Clarkston, WA
Deby Smith (509-758-9661;
[email protected])
Stevens County TBI Support Group
1st Tuesday of each Month 6-8 pm
Mount Carmel Hospital, 982 E. Columbia,
Colville, WA
Craig Sicilia 509-218-7982; [email protected]
Danny Holmes (509-680-4634)
Spokane Family & Care Giver BI Support Group
4th Wednesday of each month, 6 p.m.
St. Luke's Rehab Institute, 711 S. Cowley, #LL1,
Spokane, WA
Melissa Gray ([email protected])
Craig Sicilia (509-218-7982; [email protected])
Michelle White (509-534-9380; [email protected])
*TBI Self-Development Workshop
“reaching my own greatness” *For Veterans
2nd & 4th Tues. 11 am- 1 pm
Spokane Downtown Library 900 W. Main Ave.,
Spokane, WA
Craig Sicilia (509-218-7982; [email protected])
Spokane County BI Support Group
4th Wednesday of each month
6:30 p.m.-8:30 p.m.
12004 E. Main, Spokane Valley WA
Craig Sicilia (509-218-7982; [email protected])
Toby Brown (509-868-5388)
Spokane County Disability/BI Advocacy Group
511 N. Argonne, Spokane WA
Craig Sicilia (509-218-7982; [email protected])
VANCOUVER, WA
TBI Support Group
2nd and 4th Thursday 2pm to 3pm
Legacy Salmon Creek Hospital, 2211 NE 139th Street
conference room B 3rd floor Vancouver WA 98686
Carla-Jo Whitson, MSW, CBIS [email protected]
360-991-4928
Moses Lake TBI Support Group
2nd Wednesday of each month, 7 p.m.
Samaritan Hospital
801 E. Wheeler Rd # 404, Moses Lake, WA
Jenny McCarthy (509-766-1907)
STARS/Treasure Valley BI Support Group
4th Thursday of each month 7-9 pm
Idaho Elks Rehab Hosp, Sawtooth Room (4th Floor),
Boise ID
Kathy Smith (208-367-8962; [email protected])
Greg Meyer (208-489-4963; [email protected])
Pullman TBI Support Group
3rd Tuesday of each month, 7-9p.m.
Pullman Regional Hospital, 835 SE Bishop Blvd,
Conf Rm B
Pullman, WA
Alice Brown (509-338-4507)
Southeastern Idaho TBI support group
2nd Wednesday of each month 12:30 p.m.
LIFE, Inc., 640 Pershing Ste. A, Pocatello, ID
Tracy Martin (208-232-2747)
Clay Pierce (208-904-1208 or 208-417-0287;
[email protected])
Pullman BI/Disability Advocacy Group
2nd Thursday of each month, 6:30-8:00p.m.
Gladish Cultural Center, 115 NW State St., #213
Donna Lowry (509-725-8123)
Twin Falls TBI Support Group
3rd Tuesday of each month 6:30-8 p.m.
St. Lukes’ Idaho Elks Rehab Hosp, Twin Falls, ID
Keran Juker ([email protected]; 208-737-2126)
SPOKANE, WA
Spokane TBI Survivor Support Group
2nd Wednesday of each month 7 p.m.
St. Luke's Rehab Institute, 711 S. Cowley, #LL1,
Spokane, WA
Craig Sicilia (509-218-7982; [email protected])
Michelle White (509-534-9380;
[email protected])
Valerie Wooten (360-387-6428)
*Northern Idaho TBI Support Group
*For Veterans
3rd Sat. of each month 1-3 pm
Kootenai Med. Center, 2003 Lincoln Way
Rm KMC 3
Coeur d’Alene, ID
Sherry Hendrickson (208-666-3903,
[email protected])
Craig Sicilia (509-218-7982; [email protected])
Ron Grigsby (208-659-5459)
Winter 2013
page 27
NON-PROFIT ORG
U. S. Postage
PAID
PORTLAND, OR
PERMIT NO. 3142
The Brain Injury Alliance of Oregon
Formally the Brain Injury Association of Oregon
PO Box 549
Molalla OR 97038
[email protected]
503-224-5077 fax: 503-299-6178
Vehicle
Donations
How To Contact Us
Brain Injury Alliance of Oregon (BIAOR)
PO Box 549
Molalla, OR 97038
Toll free: (800) 544-5243
Email: [email protected]
Website: www.biaoregon.org
Fax: 503-961-8730
BIAOR Open biaor [email protected]
BIAOR Advocacy Network
[email protected]
Through a partnership with VDAC (Vehicle Donations to Any
Charity), The Brain Injury Alliance of Oregon, BIAOR, is now a part
of a vehicle donation system. BIAOR can accept vehicles from
anywhere in the country. VDAC will handle the towing, issue a
charitable receipt to you, auction the vehicle, handle the transfer of
title, etc. Donations can be accepted online, or call 1-866-3321778. The online web site is http://www.v-dac.com/org/?
id=930900797
This newsletter was sponsored in part by cbirt.org.
page 28
Thank you to all our contributors and advertisers.
Winter 2013
The Headliner