e c z e m a It’s time to take control www.eczemacanada.ca
Transcription
e c z e m a It’s time to take control www.eczemacanada.ca
eIt’s time c zto etakem a control U n d e r s t a n d i n g e c z e m a a n d w h a t yo u c a n d o a b o u t i t Introduction This book, along with the web site www.eczemacanada.ca, is a part of the Eczema Awareness, Support and Education (EASE) Program, which provides free educational resources to help patients understand eczema better. Developed in collaboration with leading Canadian dermatologists, these resources will help teach you about current therapies as well as new treatments that could make a difference to your skin. You will gain a better understanding of the chronic nature of eczema, as well as tips to help you manage your skin on a daily basis, so you can take control of your eczema – right now! Introduc ti o n If you think you have eczema or if your current treatment does not seem to be helping, the first step is to get a correct diagnosis. See your doctor; if a referral to a dermatologist is necessary, your family physician can help you get one. Once you know what type of eczema you have, you and your doctor can choose the treatment that is right for you. • But there is hope. • Eczema can be very different for everyone who has it. Yet no matter how severe your eczema, everyone shares the same basic symptoms: dry skin, terrible itching, and rashes. lf you or your child has eczema, then you know all too well the frustration and discomfort these symptoms can cause. Because there is no cure, it can be a life-long struggle to keep eczema 'flareups' under control and a daily challenge to manage the dry, itchy skin. Often, people suffering from eczema do not really understand the disease or how to manage their condition. Some people have even stopped seeing their doctor because they are frustrated with their current treatment. Contents • What is eczema? .................................................. 4 The itch-scratch-rash cycle .............................................. 5 Eczema and your skin .................................................... 5 Eczema and the immune system ...................................... 6 How is eczema diagnosed? ............................................. 6 Eczema 'flare-ups' ......................................................... 7 Myths and facts about eczema ........................................ 8 What triggers your eczema? ........................................... 10 • Managing childhood eczema ............................. 12 Learn your child’s eczema triggers ................................... How can I stop my child from scratching? .......................... Tips to help manage your child’s eczema ........................... Managing your child’s eczema at school ............................ Tips for managing eczema at school ................................. Answers to common questions. ...................................... 12 12 13 14 15 16 • Managing adult eczema ......................................18 Moisturizers .............................................................. Bathing and showering ................................................ The itch .................................................................... Know your triggers ...................................................... Clothes, towels, and bedding ......................................... Make-up .................................................................. Soap and perfume ...................................................... Stress ...................................................................... Medication ................................................................ Tips to manage your eczema .......................................... How to talk with others about your eczema ........................ 18 19 19 19 20 20 20 20 21 21 21 Antibiotics ......................................................................... Antihistamines .................................................................... Coal tar preparations ............................................................. Herbal remedies, alternative treatments ..................................... Phototherapy ..................................................................... Topical Calcineurin Inhibitors .............................................. Cortisone creams ................................................................. Treatment progress chart ....................................................... 22 22 23 23 24 24 25 26 • • How is eczema treated? ............................................... 22 Contents • Resources and support ................................................ 28 • Books ............................................................................... 28 Web resources .................................................................... 29 Notes ............................................................................... 30 What is eczema? Although we often associate eczema with only one type of skin condition, it really describes a whole group of skin problems that can affect anyone, at any age. There are a number of different types of eczema that can look very similar to each other, but are not the same. Each different type of eczema requires a different kind of treatment. Atopic dermatitis is only one kind of these skin conditions, but because it is the most common, it is usually just called 'eczema'. In this book, eczema will be used to describe atopic dermatitis. Eczema = Atopic Dermatitis Eczema is a chronic, recurring and long-term inflammation of the skin. Although the exact cause of eczema is unknown, it’s believed to run in families. At its most severe, eczema can cause serious health problems and profoundly affect daily life. And while eczema can sometimes look unpleasant and can feel very uncomfortable it is not contagious. So you can’t give it to someone by touching him or her or Eczema comes from wearing their clothes or sitting next the Greek word for to them. 'weeping skin', which aptly describes the Most often eczema begins in childhood, moist, red areas that before five years of age, and although usually appear on some children may eventually outgrow the skin. their eczema, they usually battle dry, irritable skin their whole lives. Asthma and hay fever often accompany eczema. Around the world, eczema affects about 10-15% of adults and 12-25% of all children. Men and women are affected equally by the disease, but women tend to experience more severe symptoms. City dwellers and people living in low-humidity climates seem to be at a greater risk for developing eczema. Over the past few decades, the number of cases of childhood eczema has increased significantly. The itch-scratch-rash cycle Wh at is eczema? Some research suggests that people who have this disease appear to have a reduced threshold for the itch sensation. This means that when your skin gets itchy, it’s very hard to resist the urge to scratch. But when you scratch, your skin becomes inflamed to protect itself. • The constant itch makes eczema very different from any other skin condition. lt’s often called the 'itch that rashes' rather than the 'rash that itches'. This itch can lead to a lot of scratching which causes a red rash to appear. Sometimes it becomes a completely unconscious habit and you are not even aware you are scratching. This inflammation causes the skin to itch more, which makes it even harder to resist scratching. This vicious circle (known as the itch-scratch-rash cycle) can become so severe that it causes sleeplessness, irritability, stress, thickening skin, and pain. Your skin is quite amazing. It’s the largest organ of your body; it’s flexible, relatively waterproof, keeps you warm or cool, and protects you from tiny organisms and infections. • Eczema and your skin Normal skin usually takes care of itself without causing us too much trouble. Unfortunately, skin affected by eczema is often dry and cracked and the protective outer layer of skin is damaged. As a result, your skin loses a lot of water. This water loss interferes with the natural healing process of your skin. Eczema and the immune system Our immune system is very complex and it works very hard to protect us. A major part of our immune system is the white blood cells that help defend the body against various foreign invaders or microorganisms. When they are set into action they release substances that cause inflammation. This inflammation causes redness to appear and releases other substances that can cause itching. Scratching damages your skin, causing more inflammatory substances to be produced that in turn causes more white blood cells to respond to this reaction. This increases the redness and itching, which makes it harder to resist scratching. This process is known as the itch-scratch-rash cycle and it can become so severe that it causes sleeplessness, irritability, stress, thickening skin, and intense pain. Scratching can tear or scrape the skin, causing it to bleed and ooze, allowing bacteria to enter which can cause secondary infections to develop. Generally, treatments like cortisone creams and antihistamines work to relieve the symptoms of eczema once they have already appeared. Recently a new treatment became available in Canada that doctors are considering an advance in eczema therapy. This treatment appears to prevent the release of the inflammatory substances that cause the red, itchy skin associated with eczema. This new treatment works to calm and control the skin’s reaction. Talk with your doctor for more information about eczema treatments. How is eczema diagnosed? Your doctor cannot diagnose eczema by a blood test, urine sample, or by any other laboratory tests. The only way to tell if you have eczema is by having a physical examination. Your doctor may ask if: • You have a family history of allergic diseases such as hay fever or asthma. It is not unusual for people suffering from eczema to have asthma or hay fever, or have a close relative with eczema, asthma, or hay fever. • You have trouble sleeping or concentrating because of pain or itchiness. • Your skin condition comes and goes or is always present somewhere • You have a rash in the folds of your elbows, behind your knees, on the • on your body. Wh at is eczema? fronts of your ankles, on your hands, wrists, or neck. Mild Eczema Moderate Eczema Severe Eczema • • You have frequent skin infections. The signs and symptoms of eczema vary from person to person and can range from mild - where skin is dry, hot and itchy – to its most severe, when the skin becomes broken, sore, and bleeding. Eczema 'flare-ups' Eczema symptoms come and go. At times, the symptoms can become more severe. Alternatively, the rash and itching can completely disappear for a long time. However, when symptoms suddenly reappear or become worse, it’s called a 'flare-up'. A number of different factors seem to trigger eczema 'flare-ups'. They can happen when your skin comes in contact with irritants like soap, detergents, abrasive clothing (e.g. wool or synthetic fibers), perfume, carpet fibers, or dust. Overheating, excessive sweating or low humidity can also trigger a 'flare-up'. The chart found on pages 10 and 11 can help you identify irritants that may trigger your eczema and cause 'flare-ups'. Myths and facts about eczema Unfortunately, there are a lot of misconceptions about eczema. It’s important that you understand your condition so that you can help others understand it as well. Here are a few common myths about eczema and the truth about each one. • Eczema is just like acne. Eczema is not like acne – they are completely different conditions. However, it is true that some medications may cause acne and complicate your eczema. Talk to your doctor, as there are different medications that may help. • Eczema is caused by an emotional disorder. Although doctors did at one time believe that eczema was caused by an emotional disorder, we now know that emotional factors, like stress, do not cause eczema, but, can make the eczema worse. There are techniques that can help you manage the stress, anxiety, anger, or frustration that can lead to increased instances of eczema 'flare-ups'. • You can 'catch' eczema from someone who has the disease. Eczema is absolutely not contagious. This means that you can’t 'catch' the disease from another person and you can’t give it to someone by touching him or her. Wh at is eczema? Most people with eczema can go swimming. However, some people who have severe eczema find that the chemicals used in swimming pools or the salt in sea water makes their eczema worse, so they choose not to go in. Make sure that before and after you go swimming you rinse your skin and put on a moisturizer. • • You can’t go swimming if you have eczema. • People who have eczema do not wash properly. Of course this isn’t true. Generally, no. Although your eczema can be very uncomfortable and unpleasant, it is very unusual for it to leave any permanent marks on your skin. However, some conventional treatments can cause skin discolouration, striae (white, shiny stretch marks), and skin thinning. Talk to your doctor if you are concerned about any unusual side effects from your current treatment. • • Eczema will leave permanent scars. • Eczema can be cured with steroids. Unfortunately, there is no cure for eczema. Although steroids have been used for a long time to treat eczema, they are not a cure and they do have limitations for treatment. What triggers your eczema? TriGgering factor Stress Anger Frustration Anxiety Hot weather Cold weather Humidity Dry weather Sun Sweat Wool Synthetic fibers Latex Rubber Plastic Hot baths Hard water Chlorinated water Salt water (oceans, mineral spas) 10 Yes/No Eczema symptoms Eggs Milk Wheat Soy Seafood Nuts Food additives Citrus fruits Strawberries Soaps Detergents Lotions, creams Perfumes Make-up Hair shampoos, styling aids, conditioners • Eczema symptoms Wh at is eczema? Air-bourne pollutants: Dust mites Animal dander Pollen Smog/air pollution Yes/No • TriGgering factor Other: 11 Managing childhood eczema There are two things you can do to help. The first is preventive; the second is the day-to-day management of symptoms. Here’s what you can do to help prevent eczema from becoming worse than it already is. Learn your child’s eczema triggers Contact with irritants such as soap, detergents, abrasive clothing (e.g. wool and synthetic fibers), carpet, heat, sweat, and low humidity can trigger itching that leads to 'flare-ups'. The chart found on pages 10 and 11 will help you keep track of what affects your child so you can eliminate or manage their effects. How can I stop my child from scratching? Scratching is an instinctive reaction to itching, and it is particularly hard for babies and children to resist the urge to scratch. Unfortunately, not only does scratching not stop the itching, it aggravates the skin and makes the condition worse. The skin becomes sore and inflamed, and eventually cracks and bleeds. It may then become infected. You can help by keeping your child’s nails short and by covering their hands with cotton mittens whenever necessary. With older children, it’s vital to explain to them how scratching will make the condition worse, not better. Talk to your child; explain why it’s important not to scratch. You may notice your child developing a habit of scratching at a particular time of day, or during a particular activity, such as watching television. If so, try to break the habit by making that the time to apply a moisturizer to relieve the itching. 12 The only effective way to stop a child from scratching is to stop the itch. There are medications to control the itch. Talk to your doctor about which treatment is best for your child. • Keep the skin moist. Even when the rash is not present, one of the most important things you can do is keep your child’s skin well moisturized. Moisturizers create a barrier against water loss. • Keep him/her cool. Use light bedding and loose clothing. Keep the bedroom somewhat cool in temperature. • Use cotton clothes and bedding. Sweating can lead to itching, so use clothes made of soft 'breathable' materials like cotton. Avoid nylon and wool. • Skin irritants. Some detergents or fabric softeners can remain in clothing and make eczema worse. Rinse clothing and bedding twice, and try to stay away from scented fabric softeners. • Pets. If your child has eczema try to avoid pets – contact with fur and feathers can irritate the skin. • Pests. Dust mites, fungus, and mould can irritate eczema. Use special, Man aging childho o d eczema Tips to help manage your child’s eczema • Bathing: Frequent bathing is essential. Bathe children in lukewarm, not hot, water. Although there are conflicting opinions regarding the amount of time a child should remain in the bath, a good rule of thumb seems to be about 5 to 10 minutes daily, before bedtime. Use mild soaps or soap-free cleansers. Pat skin dry, then immediately apply a moisturizer to seal in water. • Moisturizers: Moisturizers are the single most important aspect of managing eczema on a day-to-day basis. Sometimes called emollients, moisturizers are mixtures of oils, fats and water that help to restore the oil and moisture content of the skin. Use moisturizers regularly on your child’s skin. high-powered vacuums and cover mattresses and pillows with allergen/ dust covers. Having hardwood floors and washing bedding frequently at high temperatures can also help. 13 • Keep fingernails short and clean. If necessary, use cotton gloves or mittens at night to prevent scratching during sleep. • Diet. Changes to diet may be effective for some children if food has been identified as a trigger factor. Follow the advice of your doctor or dietician. • Be patient. Eczema is a chronic disease. This means that until a cure is found, the disease must be managed daily. Find a routine both you and your child can live with and stick to it. Remember, you are not alone, and there is support. • Involve your child in caring for their own skin. It’s important for your child to feel involved in their own care. It helps them achieve a sense of control over their disease and feel good about managing the awful itch. Managing your child’s eczema at school 14 For some parents, the severity of their child’s eczema may require special care at school, as well as at home. Parents may find it helpful to involve teachers and administrators in the daily management of the disease. It is important to remember that eczema can change quite dramatically in a short period of time and may require treatment or care. Discuss your child’s condition with their teachers at the beginning of the school year and check in with up-dates when necessary. The pain and constant itch of eczema can interfere with school, cause low self-esteem, cause sleeplessness, and make kids feel self-conscious about their appearance. Some children even avoid social situations because of how their eczema looks to others. Unfortunately, children with eczema often endure terrible teasing from other students because of the way their skin looks. Educating teachers and students about eczema may help them to better deal with the disease. Parents may find it helpful to meet and discuss the child’s eczema with school nurses, teachers and classmates. Tips for managing eczema at school • Ask that your child be seated away from sunny windows, air vents, or • Children may be sensitive about exposing their affected skin. Be sure to stress that eczema is not contagious and, if possible, educate classmates and friends about your child’s skin condition. • Swimming in saltwater or chlorine may irritate the skin. Applying a moisturizer before swimming and after showering can help. • School activities that involve paste, paint, clay, food preparation, wood or metal shop, or outdoor activities may cause irritation. Find alternative activities your child can do instead, so they won’t feel left out. • Some foods may make your child’s eczema worse. Inform the school of any food triggers and make sure your child understands which foods they should stay away from. While certain activities such as sports or arts and crafts may not be possible in severe cases, it’s important to encourage your child to pursue as normal a life as their condition permits. Encourage your child to talk to other children about their condition, and speak openly about eczema with other parents and teachers who have contact with your child. You can help your child cope with their condition by helping them understand the importance of a daily routine to keep their eczema under control. Smaller children and toddlers also benefit from a good skin care routine and proper treatment. Man aging childho o d eczema Sore or cracked skin may also prevent your child from taking part in some sports. Work with the school’s gym teacher to develop a fitness program that meets your child’s needs. • • If school uniforms are required, ensure that a cotton alternative is acceptable. • Over-heating from school activities and sports may aggravate eczema. • radiators. 15 Answers to common questions Where does eczema usually appear? What is the incidence? • The inner creases of the elbows and knees in children. • The face and neck in babies. • Up to ¼ of all children may develop eczema. At what age does childhood eczema occur? • Childhood eczema usually appears before 5 years of age. • ¾ of children develop eczema before 6 months of age. • 80-90% of cases appear by 5 years of age. Do children grow out of eczema? • < 50% outgrow eczema by the time they are 6 years old. • About 6 out of 10 children will have eczema into their teens. What happens as my child gets older? • 10-15% of adults maintain their childhood eczema. • Children and adults, who have outgrown their childhood eczema, will always have somewhat dry, sensitive skin. • The eczema may reappear at any time in later life, especially during times of stress. Why do some children suffer from eczema? Eczema is thought to be a hereditary condition, so it tends to run in families where there is a history of eczema, asthma or hay fever. About 80% of children born to parents who have a history of atopic disease (eczema, asthma or hay fever) will also have eczema. However, it can also affect children in a family where there is no known history of these conditions. Interestingly, it will not necessarily affect all the children in a family. If you already have one child who has eczema, there is a 1 in 4 chance your next child will have it, though if both parents are affected, the risk is greater. 16 Is a child with eczema likely to suffer from other diseases? What is asthma? Asthma is a chronic disease in which airflow in and out of the lungs may be hindered. Patients with asthma may respond to factors in the environment, called triggers, which do not affect non-asthmatics. In response to a trigger, an asthmatic’s airways become narrowed and inflamed, resulting in wheezing and/or coughing symptoms. Is it possible to catch eczema? Eczema is not contagious, so it cannot be passed from one person to another. If you have one child with eczema and others who do not have it, they are in no danger of 'catching' it. Is childhood eczema caused by an allergy? As we understand eczema today, it has not been proven to be caused by an allergy. However, children with eczema are often hypersensitive to allergens such as grass pollen, house dust mites, household pets, and so on. These may aggravate the eczema and make it 'flare-up'. Man aging childho o d eczema Hay fever is the name given to pollen allergy. Other terms for hay fever include 'seasonal allergic rhinitis' or 'pollinosis'. Symptoms include repeated and prolonged sneezing, stuffy and watery nose, redness, swelling, and itchy eyes, nose, throat, and mouth, and itchy ears or other ear problems. Breathing difficulties at night may occur because the nose may be blocked. • What is hay fever? • Because eczema is closely related to asthma and hay fever, it is quite common for children with eczema to suffer from one or both of these conditions. About 40-50% of kids with eczema have asthma, hay fever, or both. Can certain foods cause childhood eczema? Although some skin conditions can cause an 'allergic reaction', like hives, very few children with eczema suffer from food allergies. However, some foods can trigger an eczema 'flare-up'. Milk, eggs, soy, wheat, and nuts have been known to aggravate eczema and increase symptoms. 17 Managing adult eczema For many people, eczema is a life-long struggle to control the itchy, red, weeping and often times painful condition of their skin. Although a number of treatments have been successful in managing the terrible discomfort of eczema, no one treatment has safely or effectively worked for everyone, every time. Even after your skin has healed and the eczema has 'disappeared', it is important that you follow a skin management program. It can help to reduce ‘flare-ups’ and help you control your eczema. There are a number of things you can do to help control the day-to-day effect of eczema. Moisturizers Keeping water in your skin is the best way to manage your eczema. Eczema causes the outer layer of your skin to lose water more easily than normal, so it is vitally important to keep your skin moisturized. You can help your skin retain water by using moisturizers anytime you feel dry or itchy. Moisturizers are often called emollients and they generally all work the same way. They provide a surface barrier which slows down the escape of water from your skin. This layer also provides a barrier that protects against external irritants that may cause eczema 'flare-ups'. Creams, lotions, and ointments all have different degrees of oil/water combinations. Creams tend to be made primarily of water with oil added. Lotions are watery creams. Ointments are different from creams and lotions because they are generally made of oil alone and are generally considered to be the most effective moisturizers. You can help you skin look and feel better by getting into the habit of applying moisturizers after you wash or any time you feel that your skin needs it. 18 The itch that goes with eczema can be very difficult to tolerate and manage. Scratching is difficult to resist because it can make you feel better in the shortterm. But, it seems that the more you think about not scratching, the worse the itch gets. However, there are some practical things you can do. • Keep cool. Over-heating can trigger the itch. Try to keep your body temperature as constant as you can, wear light layers of clothes, and keep your bedroom cool at night. • Use moisturizers whenever you feel like scratching. Try keeping them in the fridge, as cool moisturizers can help to soothe the itch. • Keep your nails short to avoid tearing the skin if you scratch. • Rub or pinch the area instead of scratching. • If you absolutely have to scratch, be quick and then apply a moisturizer. Managin g adult eczema The itch • Bathing and showering helps to hydrate your skin. Soaking in the tub can be good for your skin because it can help the skin’s outer layer absorb water and become less dry. Keep the water temperature cool or warm, not hot. Soak for 5 to 10 minutes then use a soft towel to pat dry without rubbing. Immediately after drying, apply a moisturizer to your skin to help seal in the moisture. You can bathe as often as you like, as long as you use a moisturizer immediately after. Depending on where you live, you may find that you need to hydrate your skin more or less often. Petroleum jelly has no moisturizing properties and should only be used after a bath or shower because it acts as an occlusive agent to seal in water. • Bathing and showering Know your triggers Managing your environment can be a frustrating and time-consuming job but certain foods, pollen, air pollution, animal dander, mould, dust and dust mites have all been linked to eczema 'flare-ups'. If you suspect that your eczema may be triggered by any of these irritants, talk to your doctor. 19 Clothes, towels, and bedding Fabrics made of cotton seem to provide the best comfort for people suffering from eczema. The harshness of synthetic fibers, wool, hemp, or rough linen can irritate skin and cause a 'flare-up' of symptoms. Residual detergent, bleach, or fabric softener left on clothes after washing can also cause itching. Wash clothes in a very mild detergent and rinse twice. Make-up There’s no make-up that is 100% safe to use on your skin if you have eczema. There are a number of products for sensitive skin; unfortunately, it’s trial and error to discover which products are best for you. Ask your health care provider what they recommend, and you can talk to the staff at the make-up counters. Always test the product before using it all over. Apply a small amount on eczema-clear skin - usually under your jaw line is a good place. Allow the product to remain on the test area for at least 24 hours, and then check for a reaction. You should avoid putting make-up onto weeping or very irritated skin. Soap and perfume Commercial soaps, hair products, perfumes, scented lotions, or shaving cream may cause irritation to your skin. Again, there is a bit of trial and error to discover which products are less irritating for your skin. It’s best to bathe with a mild soap and use as little as possible. Non-soap cleansers may be a good alternative, as they can be less irritating than soaps for some people. Stress Eczema 'flare-ups' can occur when you are under stress, feel anxious, angry, or worried. You can learn to recognize and cope with these emotions through stress reduction techniques. Changing your activities to reduce daily stress can also be helpful. 20 Medication • Don’t scratch, moisturize! • Follow a daily skin routine, even if there is no visible eczema. • Bathe and shower often and always moisturize after. • Keep cool and calm. • Wear cotton, sleep on cotton. • Find out what triggers your 'flare-ups'. • Test it first! Before using any new product on your face or body try it on a small area of eczema-free skin. How to talk with others about your eczema • • Be patient. • Follow your doctor’s treatment advice. Managin g adult eczema Tips to manage your eczema • When your eczema 'flares-up', use the medication prescribed by your doctor. Ask what to expect from the medication and what to do if you don’t see the results you expect. Make sure you follow-up with your doctor. It’s important that you follow your doctor’s directions for using the medication and check the label for proper use. Often, eczema appears on the face or hands, and this is the first thing that people usually see. Unfortunately, those with no experience with eczema don’t know anything about the disease and are not always as sensitive as they should be. Most people just need to be educated about eczema; you can help your family, friends and co-workers understand your condition by talking to them about it. Tell them how it affects you, what it is, and more importantly, what it is not. Show them this book and ask them to check out the www.eczemacanada.ca website. There are a lot of myths out there about eczema, and generally, once people understand the disease, they can be quite understanding and supportive. 21 How is eczema treated? Unfortunately, there is no cure for eczema. But there is hope, and there are treatments. A number of treatments introduced in the past 40 years have come a long way in managing the terrible discomfort of eczema. These treatments have worked to manage eczema symptoms once they have already appeared. However, no one single treatment works for everyone, every time. There are new treatments available that work to control the root cause of the eczema before the symptoms start. These new treatments do not have the same potential limitations that current treatments have. If you have any concerns or questions about treatments prescribed for you or your child, it is important to talk to your doctor. To help you manage your treatment and monitor your progress, a Treatment Progress Chart is located at the end of this section for use with your current treatment. Antibiotics Antibiotics should be used to treat the secondary skin infections that may occur when the skin has been broken from scratching or dryness. Bacterial infections (e.g. staphylococcal and streptococcal) are common in the skin of people suffering from eczema. Cautions: Nausea, diarrhea, and allergic skin rashes are the most common side effects of antibiotics. It is important to notify your doctor if any unexpected effects happen. Antihistamines These are sometimes prescribed to aid sleep and relieve itching. However, histamine does not appear to play a major role in the itching caused by eczema. A doctor should always be consulted before giving antihistamines to children. 22 Cautions: Overuse can produce excessive sedation. Use only when absolutely necessary. Coal tar preparations Herbal remedies, alternative treatments Evening primrose oil: A number of studies have looked at the effect of evening primrose oil in treating eczema. Unfortunately, the results have not been conclusive – some trials have shown an overall improvement in the eczema of those patients studied, while others have not. Cautions: There is no proof that evening primrose oil is of any benefit to children suffering from eczema. As with all supplements, vitamins, or herbal remedies, it is best to consult your doctor before you add them to your child’s treatment. This form of treatment is not suitable for children with epilepsy. Alternative treatments: There are a number of alternative treatments that have been advertised as a 'cure', or which claim to reduce the symptoms associated with eczema. These remedies are usually herbal, dietary supplements, over-the-counter creams, lotions or ointments, healing touch therapies, or homeopathy. • Cautions: Coal tar should not be used for acute dermatitis because it may cause stinging and irritation. As well, folliculitis (inflammation of the hair follicle) and sensitivity to light have been reported. How is ec zema treated? • Crude coal tar extracts have been used to treat the inflammation and itch of eczema. Coal tar treatments have a soothing effect on inflamed skin. Tars contain hundreds of chemicals, most of which have never been identified, but seem to have a medicinal effect. However, most people shy away from these preparations because they tend to be messy, timeconsuming, smelly, and inconvenient. Cautions: These therapies have no data to support many of the claims they make and are generally not regulated by any governmental agency. If you are taking anything not prescribed by your doctor for your eczema be sure to tell your doctor. 23 Phototherapy Sunlight has been known to have a beneficial effect on certain skin disorders. Ultraviolet light waves found in sunlight were discovered to be the source of this therapeutic effect. Phototherapy uses these ultraviolet light waves for the treatment of eczema. Most short course phototherapies like ultraviolet A (UVA), ultraviolet B (UVB), ultraviolet A and B (UVAB), and psoralen plus UVA (PUVA) have shown to be beneficial for adults with severe atopic dermatitis. UVAB and PUVA appear to be the most effective. Cautions: UVB light is the portion of sunlight responsible for changing skin colour, or tanning. However, with prolonged exposure there is a risk of sunburn, eye damage, skin cancer, dry skin, freckling of the skin and premature skin aging. Some patients actually experience a worsening of their condition when light therapy is applied. As well, light therapy requires several trips to the doctor’s office or clinic. This can be time consuming and inconvenient. Topical Calcineurin Inhibitors A unique class of therapy has recently been introduced that appears to target the origin of the inflammation and itching associated with eczema. These therapies are steroid-free and are applied directly to the skin. They work very quickly, often within a few days, to reduce eczema symptoms. They can be used safely on all parts of the body, including the face and neck. Cautions: Some patients have reported a mild to moderate burning sensation on the skin after the ointment is applied, but any discomfort is usually short-lived and is limited to the area of application. As with any prescription medication, follow a doctor’s advice and use only as directed. 24 How is ec zema treated? Caution: When cortisone creams are correctly used under the supervision of a doctor, they can be safe and effective for the treatment of eczema. However, certain side effects have been documented, such as the thinning of the skin, increased fine hair growth, and skin discolouration. These side effects are related to the potency of the treatment, where it is being used on the body, and the condition of the skin. As well, cortisone creams have been shown to be less effective when used over a long period of time. There is also a risk that they could be absorbed into the blood through the skin. In rare instances, this could slow growth in children by suppressing the adrenal gland. Generally, cortisone creams are only prescribed for short periods of time. Bear in mind that steroids are only used to control 'flareups' of eczema. It is important not to confuse topical steroids with those steroids used illegally for body building or those used in the contraceptive pill; they are completely different. • Cortisone creams (steroids that are applied directly to the skin) are anti-inflammatory treatments to bring the itch of eczema under control. They should only be used under the supervision of a doctor and it is essential to use the appropriate strength and quantity as prescribed by your doctor. Only one cortisone cream can be bought from a pharmacist without a prescription. This is hydrocortisone, a mild steroid, which is sold as a cream or ointment. • Cortisone creams 25 Treatment Progress Chart Where treatment is applied on the body Week 1 Week 2 Week 3 Week 4 Week 5 Week 6 26 RESULTS RESULTS Week 7 Week 8 Week 9 • Week 10 How is ec zema treated? • Where treatment is applied on the body Week 11 Week 12 27 Resources and support Books Atopic Dermatitis: The Epidemiology, Causes and Prevention of Atopic Eczema Hywel C. Williams 2000 Baby Skin: A Leading Dermatologist’s Guide to Infant and Childhood Skin Care Nelson Lee Novick Published by Crown Publishing Group, Incorporated, 1991 Coping with Eczema Sheldon Press Staff Published by Milestone Publications, Limited, 1996 Eczema in Childhood: The Facts David J. Atherton Published by Oxford University Press, 1994 Eczema & Psoriasis Stephen Terrass Published by HarperCollins Canada, Limited, 1995 28 The Psoriasis and Eczema Solution: New Hope for Physical and Emotion Relief Michael F. Holick Published by Transmedia, 1999 The Skin Book Dr. Colin A. Ramsay Published by Linacre’s Books, 2001 To order a free copy of this book, please enclose a cheque or money order of $5.00 CDN payable to Communications MECA (to cover shipping and handling costs) and mail with your request to: EASE P.O. Box 964 Stn Place d’Armes Montreal, QC H2Y 3J4 National Eczema Society – UK http://www.eczema.org Penny’s World http://www.pennysworld.ca The Skin Care Guide Network http://www.eczemaguide.com Canadian Dermatology Association http://www.dermatology.ca Association des Dermatologistes du Québec http://www.adq.org The Eczema Society of Canada http://www.eczemahelp.ca National Eczema Association for Science and Education http://www.nationaleczema.org American Academy of Dermatology http://www.aad.org • EASE Program http://www.eczemacanada.ca Res ources and suppo r t • Web resources 29 Notes ___________________________________________________________ ___________________________________________________________ __________________________________________________________ ____________________________________________________________ ____________________________________________________________________________________________________________________ ____________________________________________________________________________________________________________________ ____________________________________________________________ ____________________________________________________________ ____________________________________________________________________________________________________________________ ____________________________________________________________________________________________________________________ ____________________________________________________________ ____________________________________________________________ ____________________________________________________________________________________________________________________ ____________________________________________________________________________________________________________________ ____________________________________________________________ ____________________________________________________________ ____________________________________________________________________________________________________________________ ____________________________________________________________________________________________________________________ ____________________________________________________________ ____________________________________________________________ ____________________________________________________________________________________________________________________ ____________________________________________________________________________________________________________________ ____________________________________________________________ ____________________________________________________________ ____________________________________________________________________________________________________________________ 30 ____________________________________________________________________________________________________________________ Notes ___________________________________________________________ ___________________________________________________________ __________________________________________________________ _____________________________________________________________________________________________________________ ___________________________________________________________________ _____________________________________________________________________________________________________________ ___________________________________________________________________ _____________________________________________________________________________________________________________ ___________________________________________________________________ _____________________________________________________________________________________________________________ ___________________________________________________________________ ___________________________________________________________________ ___________________________________________________________________ _______________________________________________________________________________________________________________________________________________________ _____________________________________________________________________________________________________________ ___________________________________________________________________ Res ources and suppo r t ___________________________________________________________________ • _____________________________________________________________________________________________________________ • ___________________________________________________________________ ___________________________________________________________________ _____________________________________________________________________________________________________________ ___________________________________________________________________ _____________________________________________________________________________________________________________ ___________________________________________________________________ _____________________________________________________________________________________________________________ ___________________________________________________________________ 31 This information has been provided by the EASE® Program, solely funded by an educational grant from Astellas Pharma Canada, Inc. ©2006 EASE (Eczema Awareness, Support and Education) is a national public education program to provide eczema sufferers, families, healthcare professionals and the general public with accurate and comprehensive information about eczema. www.eczemacanada.ca 1 866 432-0362 PRT0806025EN