Hopes & Dreams Magazine - Phoenix Childrens Hospital Foundation
Transcription
Hopes & Dreams Magazine - Phoenix Childrens Hospital Foundation
FALL 2014 From the Headmaster Steve Schnall Senior Vice President and Chief Development Officer Steve in high school Hopes and Dreams is published by the Phoenix Children’s Hospital Foundation. To share your comments call (602) 933-2668 or email [email protected]. Student Council (Phoenix Children’s Hospital Foundation Board Members) Chairman – Brian Swartz, Apollo Group, Inc. Immediate Past Chairman – Larry Clemmensen, Community Volunteer c. Patient Story Updates – where are they now? Board Secretary – Sheila Zuieback, Halle Family Foundation PCH President and CEO – Robert L. Meyer PCH Senior Vice President, Chief Development Officer – Steven S. Schnall Taylor Burke, Rainy Partners Kevin Czerwinski, Merit Partners, Inc. Jeffry King, Pete King Construction Mark Love, LKL Partners, LLC Jonathan Pinkus, Arizona Nutritional Supplements David Ralston, Bank of Arizona Scott Rehorn, RED Development, LLC Chris Stamets, Western Retail Advisors David Watson, Revolution Tea Director Emeritus – Herbert J. Louis, M.D. Photography – Elaine Kessler Photography & Tim Lanterman Photography Yearbook Staff Photography; Event Photos – Ben Arnold Photography (Editorial) Senior Vice President and Chief Development Officer – Steven S. Schnall Director of Communications, Foundation – Cheriese Chambers Editor – Laura Jobke Contributing Writers: Elizabeth Durot; Kristin Saiz Design – Artelya Printing – OneTouchPoint – CCI If you no longer wish to receive copies of Hopes and Dreams please call (602) 933-4483 or email [email protected]. Most Lik When Hussein first arrived at Phoenix Children’s in 2005 Before eye surgery Following eye surgery 2 Likely to Change the World: Hussein Hussein home in Iraq, 2014 To the patients he works with in an Iraqi hospital, Hussein represents hope. They see him as a young man wounded during the war, who has overcome physical limitations to live an independent, successful life. Through him they’re able to envision possibilities for their own lives that may have seemed unimaginable. Hussein feels fortunate to be in a position to inspire others, as he once faced an uncertain future himself. In 2005, at 10 years old, Hussein traveled 7,500 miles from Iraq to Phoenix with just a medical escort by his side. He was optimistic that he might regain the vision he lost when he stepped on a landmine two years earlier while visiting his grandfather’s gravesite. The explosion not only cost him his eyesight and his left hand, it left more than 30 percent of his body ravaged with second-and third-degree burns. After 10 surgeries in Iraq, it was evident that he required more advanced treatment. The Arizona chapter of Healing the Children arranged his travel and care, hopeful that doctors at Phoenix Children’s Hospital could offer Hussein a better life. Nearly a dozen physicians contributed to his treatment. “They were the ‘dream team,’” his host mother Debra says fondly. Doctors performed extensive procedures on Hussein’s eyes, including a left corneal transplant and reconstruction of his right eye socket. He underwent additional surgeries and dental work and was fitted with an artificial right eye and prosthetic hand. Debra says, “The treatments were lifesaving and life-changing.” Living with Debra and her husband Raymond for 15 months, Hussein attended a local school as he received follow-up care. By the time he returned to Iraq, he had regained some of his eyesight, learned to use his new hand and couldn’t wait to teach his siblings to speak English. Now 19, Hussein uses his English skills and experience with medical professionals in his position as an Arabic-English interpreter. Working alongside doctors and therapists, he has earned the respect of his colleagues – so much so that no one treats him as if he’s disabled. Hussein counteracts his limited eyesight by enlarging text on an iPad and using a text-to-speech converter. He’s proud to be helping patients, while earning a living in a place where jobs are scarce. Hussein lives in his own apartment, a rarity in a culture where adults typically reside with their parents. But he brings a worldly perspective to a country where few citizens are exposed to different cultures. Debra says, “He considers it a miracle that he survived and is determined to make that same kind of impact on others.” 3 Most Likely to Play in the World Cup: At age 9 in 2015 Mike learning archery at Camp Rainbow in 2013 As he describes his son Mike’s passion for soccer, Gustave beams with pride. But it isn’t watching the 9-yearold play that moves him so much. It’s the fact that he’s able to play at all. “It shows how healthy and strong he is,” Gustave explains. That wasn’t the case when Mike first arrived at Phoenix Children’s Hospital. The family lived in their native country of Haiti when a 7.0-magnitude earthquake struck in 2010. Mike was in bed with a fever as the family’s house collapsed, trapping him and crushing his arm. When his pain and fever persisted days later, Gustave took him to a makeshift clinic, where doctors delivered the news that would change their lives forever. Mike had leukemia. Haitian medics, overwhelmed by the loss of resources and influx of injured patients, couldn’t properly care for him. Gustave and Mike immediately boarded a plane to the United States, unable to even say goodbye to Mike’s mother Michelette and sisters Carla and Djenika. Mike underwent several rounds of chemotherapy at Phoenix Children’s, suffering not only physically, but emotionally, as he feared for the safety of his mother and sisters. Dr. Jessica Boklan led a coordinated effort to bring the rest of the family to Phoenix, reuniting them at a critical time. Mike was in the Pediatric Intensive Care Unit, sedated and battling an infection. 4 “As soon as they arrived Mike started getting better,” Gustave says. But he still faced a long road. Chemotherapy alone wasn’t working, and Mike needed a bone marrow transplant. Fortunately, Carla was a match. He received the transplant, and after months of treatment and recovery, Mike’s cancer went into remission. The family has remained in Phoenix, and Mike is now a second grader who earns straight A’s. An active kid who loves Superman and the Teenage Mutant Ninja Turtles, he honed his archery and fishing skills at Camp Rainbow, the Hospital’s weeklong camp for patients diagnosed with cancer and chronic blood disorders. Mike still visits the Center for Cancer and Blood Disorders for tests and follow-up appointments. “The doctors and nurses have always been so kind and caring,” Gustave says. “We couldn’t imagine a better place for him. If we hadn’t come here, he probably wouldn’t have survived.” Happy, healthy and safe, Mike and his family focus on the future. Asked what he wants to be when he grows up, Mike shares big plans: “A doctor – or a professional soccer player!” M p: Mike Most Athletic: Emma Emma last year When Mike first arrived at Phoenix Children’s from Haiti in 2010 During her first hospitalization in 2005 Emma at 10 years old When Emma’s recent cardiac stress test results came back as “normal,” her parents couldn’t believe it. “Her abilities today are so far beyond what we ever imagined, given her rocky start in life,” says her mom Amy. Born with a severe heart defect, Emma has only one functioning ventricle. During her first seven months, she endured four open heart surgeries, never leaving the Hospital. Even after finally going home, Emma would visit the Hospital regularly for additional surgeries, procedures and tests. Because there wasn’t enough oxygen in her blood, even small exertions – walking up the stairs or riding a bike – would cause Emma to turn blue. But at age 5 it was time for her final heart surgery. A month later Emma was a different child, finally able to run and play like her friends. Now in fourth grade, the selfdescribed tomboy is often the only girl on her sports teams and wants to be a doctor when she grows up. Her parents are grateful she will have that chance. Amy says, “Phoenix Children’s saved Emma’s life. We could never show enough gratitude for the care, support and love extended to us.” 5 Best Attitude: Following her accident in 2008 6 M e: Mia As Mia put on her beautiful navy blue prom gown, she barely noticed the scar on her leg – a scar she calls her badge of honor. “I was self-conscious about it until a couple years ago,” Mia says. “Now I’m proud of it and don’t mind if people see my leg.” But the high school senior will never forget the summer of 2008, when she earned her badge. “It haunts us that we had just told her minutes before the accident that everything was going to be fine,” says Mia’s mom Angela. Nervous about her first time on a boat, Mia, then 11, reluctantly joined her family for a cruise around Saguaro Lake. As the boat started to pick up speed, a float tube inside caught the wind and sailed into the water. The float tube’s rope tangled around Mia’s right foot, pulling her into the lake. She bobbed in the water, saying that her foot felt strange. “I never fathomed what I would see when I looked at her leg,” Angela says. Mia’s foot was virtually severed from her leg, attached by only a few tendons. She was brought to Phoenix Children’s Hospital’s Level 1 Trauma Center, which had only been open for four days. Mia was the first Level 1 – most critical – patient. Surgeons operated for eight hours, first reattaching her bone and rebuilding her ankle, then reconnecting the arteries and veins to reestablish circulation. She underwent four additional procedures over the next 12 days. Thinking she would be in the hospital for months, everyone was astonished when Mia was discharged after just two weeks. Her recovery continued at home with months of physical therapy. “People take feeling normal for granted,” Mia says. “After my accident I felt weird about having a scar, but Phoenix Children’s allowed me to feel like myself again. When kids ask me about it, I enjoy telling them what happened.” Despite the physical and mental challenges of nearly losing a limb, Mia says, “I wouldn’t change anything. There’s a reason this happened to me.” The experience has had such a profound impact on her that she is interested in pursuing a career in medicine. Mia has been accepted by Grand Canyon University, but before she starts school she plans to spend a year in Africa, volunteering and studying abroad. She says, “I want to experience the world before going to college and getting a job. Since the accident, I feel like there’s nothing holding me back.” Getting ready for prom in 2014 Playing on her high school softball team 7 Most Likely to Win a Grammy: Richard Recording a rap in 2015 Richard in 2013 In 2006 “Rheumatoid arthritis is a disease with no mercy,” says Richard’s mom Zoila. She and her son have experienced its impact firsthand. Richard, now 21, has been living with severe juvenile rheumatoid arthritis almost since birth. His disease affects all of his joints, causing extreme pain and swelling. In Richard’s case, complications from his arthritis have also caused blindness and affected his bone development, stunting his growth. Richard concedes that living with arthritis can be challenging. He’s unable to drive, and his condition prevents him from participating in other activities he loves, like football, basketball and karate. But despite those limitations, Richard doesn’t dwell on the negative. Zoila says, “He’s pursuing a career in music, and even wrote a rap song about the outstanding care he’s received at Phoenix Children’s. He has blessed a lot of people with his strength.” 8 Most Compassionate: Amanda Amanda during her stay at Phoenix Children’s Amanda on a medical mission to Africa last summer “My experience as a patient at Phoenix Children’s taught me how each interaction with a Hospital employee can affect your day,” Amanda says. “It shapes the way I provide nursing care.” When she was 16 Amanda became sick with what her family thought was the flu. But as her symptoms worsened, she was brought to Phoenix Children’s where she was diagnosed with an extremely rare disease called Lemierre’s syndrome. Her condition was life-threatening; at one point her vital signs were so low that she only had a 50 percent chance of surviving. Amanda underwent six surgeries in five weeks and spent nearly two months in the Hospital, with a care team of over 50 doctors, nurses and staff. Left weakened and emaciated, she endured weeks of physical therapy to regain her strength and appetite. While her illness was an unexpected and devastating time, Amanda says, “We felt listened to and cared for by all Hospital staff.” Now she’s the one offering compassionate care, and paying it forward. She’s a nurse to patients far and near, traveling on a medical mission trip to help children in Africa, and treating patients on the hematology and oncology floor of the very hospital where she was once a patient. 9 Most Likely to Persevere: Chevelle a few months after her surgery in 2010 Chevelle Today at 6 years old Six-year-old Chevelle is an early riser. She wakes up between 2 and 4 a.m., takes a bath, and starts her day with a healthy breakfast of scrambled eggs, applesauce – sometimes even salmon. “She’s learning to eat on her own,” says Chevelle’s grandmother, Melissa, who gained custody of Chevelle when she was 8 months old. “She loves real food!” Following breakfast Chevelle completes physical therapy and does her schoolwork. She enjoys being read to and is discovering how to identify colors and letters. Chevelle is home schooled, and the fact that she is going to school at all is a true miracle. When Chevelle was 2 years old, the entire left half of her brain was removed in two major surgeries at Phoenix Children’s Hospital. She suffered from tuberous sclerosis, a condition causing benign tumors to grow on her brain. The left hemisphere of her brain had lost its ability to function and was causing multiple seizures each day that were resulting in great harm to her tiny body. The complex surgery wasn’t available near Melissa’s home in Kentucky, so she scheduled a consultation with Barrow Neurological Institute at Phoenix Children’s Hospital during a family visit to Arizona. They met with Dr. P. David Adelson, Neurosurgery Division Chief, who agreed to perform the risky procedure. After nearly 20 hours in the operating room, Chevelle spent the next nine weeks recovering at Phoenix Children’s – first in the Pediatric Intensive Care Unit, and then in rehabilitation. Five months later Chevelle and her family finally returned home. Chevelle’s brain surgery has allowed the right, healthy side of her brain to work better and take over the normal functions of the left side. She has done remarkably well, and today Chevelle is seizure free. She is making great progress with continued check-ups and the help of therapy. She communicates with her eyes, and is learning to make sounds, talk and walk with assistance. Chevelle continues to spend time in the hospital and has had a total of 45 surgeries to date, most of them related to fluid in her brain. But in spite of all that she has been through, she continues to improve, and her grandmother hopes that she will be fully independent one day, saying, “She’s our miracle girl who brings endless joy to those around her.” 10 Most Inspirational: Amanda As a patient at Phoenix Children’s in 1983 Amanda with her family today Amanda is a nurse in the Center for Cancer and Blood Disorders at Phoenix Children’s, working around the clock to care for patients with cancer. She relates especially well to the children she sees, because for many years she was the one receiving treatment on the opposite side of the curtain. When Amanda was 3, she was diagnosed with leukemia and cared for at Phoenix Children’s. “The Hospital became such an important part of my life,” says Amanda, who underwent chemotherapy for two years and had ongoing follow-ups until she was 21. While she was in the Hospital, Amanda admired one of her caregivers, Nurse Jackie, and decided that when she beat cancer, she would follow in Nurse Jackie’s footsteps. Sure enough, Amanda graduated from college with a bachelor’s degree in nursing, and 20 years after first being diagnosed with leukemia, returned to Phoenix Children’s to join the staff. “I can honestly say that my leukemia shaped my career and the person I am today,” says Amanda. “I’m so thankful that I can give back to the hospital that saved my life.” 11 Most Outgoing: Mary “Surgery allowed me to come out of my shell and be my true self,” Mary says. “It changed my life completely.” She admits that her middle school years were difficult. Mary had severe scoliosis, the curvature of her spine an astounding 75 degrees. She wore a brace 16 hours per day, restricting her wardrobe to oversized shirts and causing her to stand out when she just wanted to fit in. “I acted more shy than I really am, because I felt so different,” Mary says, reflecting back on those days. Surgery was her only treatment option. When Mary was 14, orthopedic surgeon Dr. Greg White fused her spine with two steel rods and 26 screws. Less than a 10 degree curve remained, ridding her of the brace and boosting her self-confidence. Since then Mary has flourished, living life to the fullest as an active college student and sorority member who loves to dance, run and volunteer. A public relations major preparing to graduate from Northern Arizona University, Mary wants to give back by planning events that benefit the Hospital. “I feel so blessed that Dr. White and Phoenix Children’s gave me the opportunity to live a normal life.” (Left) Following surgery in 2007 (Below) Mary (left) as a student at Northern Arizona University 12 Mary (second from left) after the Sedona Marathon 5K in 2014 Biggest Heart: In the Hospital in 2005 At 15 years old “Emery is constantly reminded of his limitations,” his mom Lori says. “Instead of letting that hold him back, he uses it as a launching pad to inspire other kids.” Five years ago Emery started a teddy bear drive, with the goal of giving out bears to Phoenix Children’s patients for Christmas. This past year, he expanded his drive to eight children’s hospitals in four states, delivering more than 10,000 bears. Emery knows how comforting something like a teddy bear can be to a child in the Hospital. Diagnosed with a congenital heart defect at birth, Most Likely to Succeed: At 14 years old in 2015 Following her bone marrow transplant By the age of 7, Hayley had already received 90 blood transfusions. She was one of only 700 people in the world diagnosed with Diamond-Blackfan anemia, a condition where the body doesn’t produce red blood cells. After failing to respond to steroid treatments, Hayley needed a bone marrow transplant in 2007. Her brother Ian was the donor. “She spent six weeks at Phoenix Children’s, and almost a full year at home in isolation. Boredom was the biggest challenge for her,” says Melana, Hayley’s mom. “As Emery Winning a baseball tournament in 2013 Emery required a feeding tube until he was 5, underwent three open heart surgeries and became the first patient at Phoenix Children’s to receive a Melody heart valve. His cardiac issues are ongoing, but that doesn’t stop him from playing on the baseball team at Perry High School. He also serves as a lobbyist for the American Heart Association, even speaking to President Obama’s top aides. In all aspects of his life, Emery has proven that he has a lot of heart! Hayley In the Hospital in 2007 a parent you always hope that your children grow up to be successful. But as long as she’s happy and healthy, that will be just fine with us.” There’s no doubt that Hayley will be successful. Even after missing a year of school, this high school freshman takes honors classes. She spends her free time cheerleading, singing and acting. Hayley also enjoys giving back as an advocate for United Blood Services, encouraging the community to donate blood, knowing it was those donations that helped save her life. 13 Most Likely to be M Jordan a (Upper Left) Joshua beginning the bone marrow transplant process. (Upper Right) Jordan prior to his bone marrow transplant. (Lower Left) At a Diamondbacks game in 2014. (Lower Right) The brothers in 2014. Jordan and Joshua look alike, act alike and even finish each other’s sentences. But the 17-year-old twins now have something else in common; a long future ahead of them. The disease that once handed them an abbreviated life expectancy is now a distant memory, thanks to the bone marrow transplants they both received at Phoenix Children’s. Soon after the twins were born they were diagnosed with sickle cell disease, an inherited blood disorder that causes tissue damage, restricts blood flow and results in chronic pain. For many years, the pain impacted their lives in ways that most people can’t imagine. Overexertion, high elevations and extreme temperatures all led to severe pain attacks and long stays in the hospital. When the boys were 5 years old, their doctor explained that a bone marrow transplant was a potential cure for sickle cell. But the treatment can be dangerous, leaving patients at risk of infection, neurological damage and stroke. There is also the chance that the patient will reject the transplant. “At first, we were overwhelmed by fear,” their mother Kristine explains. “I asked myself, ‘Am I ok trading a disease I know for one I don’t know? What if one twin makes it and the other dies?’” But as teenagers, Jordan and Joshua were fed up with the pain and hospital visits. They were willing to accept the risks of the procedure if it meant moving on with their lives, sickle cell-free. Within the last few years Jordan and Joshua each received healthy bone marrow from their brother 14 Jonathan, curing them of their disease. Their transplants are two of the eight for sickle cell disease that have been performed at Phoenix Children’s since 2006. Bubbly teenagers with infectious laughs and contagious smiles, Jordan and Joshua aspire to be professional actors. “They couldn’t play sports while they were sick, so they started acting to keep their minds occupied,” explains Kristine. “They want to be the next Will Smith and Denzel Washington.” The boys are succeeding in school as well. When they were younger, school absences, drowsiness, and pain medication interfered with their classwork. But their grades have improved dramatically since their transplants. Jordan was recently ranked at the top of his grade in math, with Joshua right behind him. “Phoenix Children’s gave me my boys,” Kristine says. “I can’t thank the hospital enough for holding my family up for all of these years. Because of the amazing doctors, nurses and staff, the boys have a bright future ahead of them, and our family is finally whole.” e Movie Stars: Most Talented: n and Joshua Nikki (left) with her sister in 2014 Nikki Monitoring her blood sugar at 10 years old A high school sophomore with a 4.0 GPA, Nikki loves volleyball and plays percussion in her school’s marching band. But at age 7, Nikki was diagnosed with type 1 diabetes and for many years never imagined she would be where she is today. “Being diagnosed with diabetes was absolutely devastating,” Nikki says. “I hated the fact that my disease made me different, and I always asked myself, ‘What did I do to deserve this?’” Growing up Nikki often spent recess in the nurse’s office, as simple things like playing sports, changing her routine – even growing – made her sick. But through the support of her family and care providers at Phoenix Children’s, she learned to balance her blood sugar, track test times, administer insulin shots and overcome the emotional rollercoaster of managing the disease. Today, Nikki is an energetic, high-achieving teenager who can do everything that her friends can do – sometimes it just requires a little more planning. “I’ve faced my share of challenges,” Nikki says, “but thanks to the amazing care I received at Phoenix Children’s, I’ve found there is no reason to let the disease hold me back.” 15 Biggest Advocate for Phoenix Children’s: Sarah Sarah working with a patient in 2014 When Sarah sits at her patients’ bedsides as their Child Life Specialist, she brings a unique perspective. She understands the fears and concerns they may have, because she has been in their shoes. Born 10 weeks early, Sarah spent the first month of her life in the Newborn Intensive Care Unit at Phoenix Children’s. She proved to be a fighter from day one, pulling out her breathing tube the very day it was inserted. Sarah would need that spunk eight years later when she was diagnosed with stage IV kidney cancer. She never let cancer slow her down, playing basketball and continuing school and church activities throughout treatment. After battling through six weeks of radiation and a year of chemotherapy, Sarah’s cancer went into remission. Now cancer-free for more than 21 years, she gives back to Phoenix Children’s by fundraising with the Patient and family Alumni Leadership (PALs) group. But Sarah’s the one who is grateful, crediting her experience as a patient with inspiring her to pursue her dream. “I love my job and can’t believe I get to do what I do for a living.” In the Newborn Intensive Care Unit in 1984 16 The Fantastic Four: Danielle, Erica, Marc and Nicole Nicole, Danielle, Marc and Erica at 10 years old Danielle, Nicole, Matthew, Erica and Marc in 2014 After trying to start a family for six years, Lucette was overjoyed when she found out she was pregnant with twins. Much to her surprise, a third baby was discovered a few weeks later. And then a fourth. “I thought the doctor was going to faint,” she laughs. Her quadruplets, Danielle, Erica, Marc and Nicole, were born via Cesarean section at 32 weeks. They became the first quads treated in the Newborn Intensive Care Unit (NICU) at Phoenix Children’s. Marc was last to leave the NICU after six weeks, arriving home just in time for Father’s Day. While their household may have been a busy one – brother Matthew was born two years later – it was one full of love and support for each other. Happy and healthy 29-year-olds, each has gone on to lead successful careers: Danielle is a teacher at The Scottsdale School; Erica has a supply chain degree and lives in Newport Beach, CA; Marc works for Frito Lay in Vancouver, WA; and Nicole lives in Manhattan, NY, working for Columbia University. 17 Doc Talk Dr. Cindy Salm Bauer Allergy and Immunology My most vivid memory was playing in basketball and volleyball games. Dr. Anthony Pickett Emergency Medicine I was a well-dressed class clown and thought I would be an actor. My celebrity crush was Janet Jackson. 18 Wonder what our doctors were like in their high school days? We asked! Dr. Paul Dickman Pathology I was a band geek. I attended every football game - because I was in the band! Dr. Greg White Division Co-Chief, Orthopaedic Surgery I was in a garage rock band named Bogus Phazes that featured two guys named Greg White – no kidding! My celebrity crushes were Farrah Fawcett, Cheryl Tiegs and Pat Benatar. 19 Dr. P. David Adelson Division Chief, Neurosurgery I was Junior Class President and played varsity tennis. I always thought I would be a doctor because I got a chance to have an inside view early on, and I was hooked! Dr. Kara Stuart Lewis Program Director, Child Neurology Residency I was Glinda the Good Witch in our high school production of The Wizard of Oz but I usually dressed as a bad witch when I had the chance. Dr. Randy Christensen Medical Staff Chairman and Chief of General Pediatrics I loved high school and would not change a thing. One of my best memories is my first car, a 1977 white Dodge van with blue shag carpet and 10 speakers blasting Van Halen! Since I got my license sophomore year, you’d think I might’ve gotten a few dates. Not likely when you drive up in a hot rod van with carpet on the walls! 20 Dr. Ruth Bristol Pediatric Neurosurgery If I could change one thing it would be to have more self-confidence. The earlier you learn that people respect you more for your individuality than your conformity, the happier you are. Dr. David Notrica Trauma Medical Director I should’ve been voted “most likely to follow the rules,” because I was a total goody two shoes. I wasn’t as smart as I thought I was. What is your most vivid memory from your high school years? B) Wanting them to be over! C)Getting caught by the Vice Principal on the last day of sophomore year for throwing water balloons during a food fight! D)Getting suspended for leaving school grounds without permission. Long story. E) Auditioning for the new Mickey Mouse Club and getting a callback. Unfortunately, I can’t sing and didn’t get the part. Dr. Bristol Dr. Dickman Dr. Notrica Dr. Pickett Dr. White Answers: A) Dr. Notrica; B) Dr. Bristol; C) Dr. White; D) Dr. Dickman; E) Dr. Pickett A) Fishtailing my brother’s ‘66 Jaguar into a full spin in the opposite lane. Luckily there was no oncoming traffic! 21 The world needs dreamers and the world needs doers. But above all, the world needs dreamers who do. – Sarah Ban Breathnach The people on the following pages “did” and we are grateful. CHIPPING IN PCH Golf Tournament Nearly 300 golfers teed off during the 16th Annual Golf Tournament at Troon North Golf Club. The event included a helicopter golf ball drop, silent auction, hole activities, awards celebration, and Night BeFORE party at The Golf Tank, bringing in $360,000 for the Hospital. Thank you to sponsors MJ Insurance and CBRE, Nationwide, Talking Stick Resort, Infiniti of Scottsdale, Ensemble Real Estate Solutions, Blue Cross & Blue Shield of Arizona, Delta Diversified, NYCB Foundation, MGA Home Healthcare, Brown & Brown Insurance, Mortenson Construction, Stewart Title, Scottsdale Insurance, Polsinelli and Colliers AZ Cares. 22 , S A T A H T W RA P THE POWER OF MANY Leadership Circle In the beautiful setting of Sue Fletcher’s Paradise Valley home, more than 200 members, guests, physicians and Hospital leaders celebrated 11 years of Leadership Circle giving, totaling more than $2.9 million towards 48 different Hospital programs. Chair Jill Krigsten and Hospital CEO Bob Meyer introduced three patient families, whose stories demonstrated how member donations have the ability to not just change lives – but save them. At the annual spring luncheon, members will hear presentations from Phoenix Children’s grant finalists and vote on which proposals to fund with their pooled donations. For more information visit www.PCHLC.org. Thank you to corporate sponsor National Bank of Arizona. HOPE FOR THE HOLIDAYS Ignite Hope More than 2,000 walkers came together to provide inspiration for our patients during the 3rd Annual Ignite Hope presented by Albertsons. As participants made the 1.7-mile walk to the Hospital by candlelight, patients waved candles from their rooms. An emotional program outside the Hospital featured musical performances by patients and local choirs, as well as the lighting of the Christmas tree. Supporters contributed more than $294,000 towards the Hospital’s Hope Fund, as well as over $20,000 in toys. Thank you to presenting sponsor Albertsons, media partner 12 News and corporate partners Bell Honda, Blacklight Run, Gila River Casinos, Bank of Arizona, Raising Cane’s, Desert Schools Federal Credit Union, Mane Attraction Salon, CBRE, Interstate Batteries, Scottsdale Fashion Square, The Melting Pot, The Phoenix Plaza and Tour West America. A MILLION WAYS YOU SHOWED YOU CARE KTAR Give-A-Thon The 14th Annual KTAR Give-A-Thon was one for the record books, raising $1,180,117 in just 19 hours. Broadcast live on KTAR News 92.3 and Arizona Sports 98.7, the highlight was the many patients who shared their stories, including cancer survivor Trinity singing a song she wrote for the event and 5-year-old Anthony stealing the show with his outgoing personality. More than 1,200 listeners chose to become Monthly Miracle Makers by pledging at least $20 per month and having a teddy bear given to a hospitalized patient in their name. Donors were offered an incentive for giving but the majority chose to donate their Suns tickets, Walgreens gift card or Hungry Howie’s pizzas back to our patients. Thank you to corporate sponsors: Valley Hyundai Dealers, Century Link, Wells Fargo, Wendy’s, Harley Davidson of Scottsdale/Go AZ Motorcycles, ACE Hardware and Benson Systems and corporate partners: Arizona Central Credit Union, Arizona Sunrays, Bumper to Bumper Radio, Carl’s Jr., CDW, Chico’s FAS, Fry’s Food Stores, Gila River Casinos, Hubbard Family Swim School, Hungry Howie’s, Jason’s Deli, Jersey Mike’s Subs, Panda Express, Papa John’s, Papa Murphy’s, Phoenix Suns, Valley of the Sun Active 20-30 Club, Walgreens and Walmart. 23 BEACH BALL A night to remember The Grand Ballroom at The Phoenician was transformed into a backyard barbecue for the 22nd Annual Beach Ball. The Lemonade Soiree-themed event raised $1.2 million for the Center for Cancer and Blood Disorders at Phoenix Children’s Hospital. Seven-yearold Mia (pictured left), who is treated in the Center, shared her inspirational story and original works of art. 24 Prom Committee Following the program, guests danced the night away to a performance by The Railers and tunes spun by DJ Chris Villa and kept the celebration going during the after-party. The Beach Ball Committee was led by chairs (pictured, from left) Susan Rehorn, Gerri Richards and Amy Joffe. Prom Court More than 1,000 guests celebrated patients and families who have turned life’s lemons into lemonade by using their personal experiences with cancer as inspiration to help children battling the disease. Honored with the Dr. Herbert J. and Julie Louis Spirit of Hope Award were (pictured, from left): Maya Thompson, Ronan Thompson Foundation; Michelle and Mandy Monks, McKenzie Monks Foundation; and Amanda Yant, cancer survivor and Phoenix Children’s oncology nurse. 25 BETTING ON OUR PATIENTS Children’s Fight for Life Casino Night Everyone was a high roller at the 9th Annual Children’s Fight for Life Casino Night, which raised more than $56,000 for the Hospital’s Center for Cancer and Blood Disorders. Community supporters joined together with Phoenix Children’s physicians, nurses and staff during this event at the Scottsdale Resort & Conference Center that included dinner, a silent auction, casino games, and families who shared their personal journeys battling cancer. Thank you to Royal Flush sponsor Naturopathic Specialists. 26 SHOWING THEY CARE Care Card The Board of Visitors’ 15th Annual Care Card shopping event included more than 600 retailers, restaurants and spas, who offered cardholders 20% off their purchases for one week. The sale of Care Cards raised more than $230,000 for the Developmental Pediatrics Department. LEAVING A LEGACY Legacy Society More than 100 donors attended three Legacy Society events last year, where they learned about cutting-edge research and Hospital innovations like the 3D print lab. New legacy commitments last year totaled more than $4.3 million and gifts included: a $3.3 million gift from the estate of Virginia Buchanan and a $703,000 estate gift from Amy Irion, both in support of the Hospital’s Hope Fund, and a $650,000 estate gift from Natalie Burnham supporting pediatric oncology. SWEET SUPPORT Our patients were happy to lend a hand on Miracle Treat Day, as Valley Dairy Queen restaurants donated $1 or more from the sale of each Blizzard to Phoenix Children’s. Combined with a 60-day fundraising campaign, Dairy Queen contributed more than $45,000 to the Hospital. O CHRISTMAS TREE! Festival of Trees For the first time our professionally-designed Christmas trees were on display at Scottsdale Fashion Square, where shoppers and attendees could bid on the beautiful trees and have them delivered to their homes just in time for the holidays. In the true spirit of the season, one of the trees was donated to a patient family. Through the sale of the trees, wreaths, custommade ornaments and generous donations, the event brought in more than $41,000, doubling last year’s total. Thank you to sponsors Ace Hardware, Modern Luxury Scottsdale, Scottsdale Fashion Square, Syndicate PR, PHX Architecture, Salcito Custom Homes, and Precision Delivery; and designers Charles Glover Interiors, Debra May Himes, Sabrina Goin, Esther Boivin Interiors, Sherry Hauser, Ownby Design, Palm Design Group, Elizabeth Donlan, Salcito Custom Homes, White House Design Studio, Pulte Homes, SB Design, Christina Taylor and Cristi Valimaki. 27 A LESSON IN PHILANTHROPY Desert Schools Federal Credit Union contributed a record-breaking $484,000 donation to 1 Darn Cool School at Phoenix Children’s, serving as the largest funder of our on-site school. To celebrate this milestone achievement and their longstanding support, Desert Schools was honored with a plaque outside the school. Desert Schools raised the funds through their 16th Annual Children’s Miracle Network Charity Golf Tournament, as well as additional fundraisers held at their branches. RIDING FOR PCH Thousands of bikers rallied to have a blast and raise funds for Phoenix Children’s patients during the 3rd Annual Bob’s Biker Blast. Hosted by philanthropist Bob Parsons, the event featured the “I Ride for PCH” kickoff ride and musical headliner Heart, raising more than $63,000 for the Hospital. The Bob and Renee Parsons Foundation quintupled all funds raised, for a grand total of nearly $380,000! Thank you to sponsors Harley-Davidson of Scottsdale, Go AZ Motorcycles and Spooky Fast Customs. 28 KOHL’S CARES FOR PCH KohlsFIT at Phoenix Children’s launched Geotour, an interactive treasure hunt that takes families on a geocaching adventure. Olympic gold medal-winning swimmer Misty Hyman and 80 local school children helped kick off the program. KohlsFIT is made possible by a $358,640 grant from Kohl’s, a supporter of Phoenix Children’s for the past 10 years. GLOWING SUPPORT 1n3 contributed $125,000 to Phoenix Children’s from proceeds raised during the Blacklight Run, Foam Glow 5K and other local and national races. ROCK SUPREMACY Hundreds of supporters came out to witness the battle between Retro-Active, a band of lawyers, and Central Line, a band of doctors that included Phoenix Children’s Drs. Greg White and Kathleen Graziano, during the 8th Annual Battle of the Bands at Gypsy Bar in CityScape Phoenix. Central Line came out on top, but the real winners were the patients, as the event raised nearly $10,000 for the Hospital. Guests included emcee Chelsey Davis from CBS 5 and opening act Carly Paige. CARDS FOR A CAUSE Holiday cards featuring the artwork of patients treated in the Center for Cancer and Blood Disorders were sold at Arizona Safeway stores during November and December. The program brought in more than $125,000 for the Center. EMPLOYEES SHOW THEIR HEART Nearly 1,700 employees donated more than $624,000 to support patients and families during this year’s We Got HEART! Employee Giving Campaign, bringing the total since 2005 to more than $3.5 million. This year staff also showed how much they care for each other, contributing almost $35,000 to the new Helping Hand Employee Assistance Fund, with an additional $10,000 matched by Tom Ross of NOVA Home Loans. 29 PARA LOS NIÑOS Led by the Los Angeles-based broadcast team of Armida & La Flaca, Entravision’s Para Los Niños Radiothon partnered with Los Altos Ranch Market to broadcast live at two Valley locations. Listeners were encouraged to make donations by calling the national phone bank or stopping by the stores, and they came through, contributing more than $115,000. A FUNDRAISING “ACE” Our own Children’s Heart Center patient Aiden (pictured left) served as the national Ace Cares for Kids All-Star in 2014, helping Ace Hardware raise awareness and funds for Children’s Miracle Network Hospitals across the country. Phoenix retailers sold icons and limited edition buckets, bringing in more than $50,000 for Phoenix Children’s. Procter & Gamble, a proud supporter of the All-Star program, also donated $10,000 to the Hospital in honor of Aiden. GIVING CREDIT WHERE IT’S DUE Credit unions from throughout the Valley came together to support Phoenix Children’s with their annual Credit Union for Kids fundraisers. Last year local credit unions raised $125,000 for Camp Rainbow, a week-long camp for current and former patients of the Hospital’s Center for Cancer and Blood Disorders. 30 RACING WITH PURPOSE Whether competing in a marathon, bike race or triathlon, our Miles That Matter participants were helping our patients from start to finish line. During three signature races – the P.F. Chang’s Rock ‘n’ Roll Marathon, El Tour de Mesa, and Life Time Tri Tempe – competitors raised more than $25,000 in 2014. BEAR-Y GENEROUS Chico’s, White House|Black Market, and Soma Intimates stores sold limited-edition bracelets and encouraged customers to make donations during their summer campaign, bringing in nearly $32,000. For the first year, the stores also hosted a holiday campaign, donating a portion from each Miracle Bear sold to the Hospital. Many employees purchased Miracle Bears and donated them to our holiday toy drive! STARTING THE NEW YEAR RIGHT Arabian horse enthusiasts gathered for a New Year’s Eve party at John and Sharon Ames’ beautifullydecorated estate to raise funds for the Hospital’s Center for Cancer and Blood Disorders. The evening included a silent and live auction, program, dinner and dancing, bringing in more than $130,000. SPIRIT OF CHILDREN Selling bracelets and paper pumpkins, 24 local Spirit Halloween stores raised nearly $85,000 for Phoenix Children’s Child Life program. They also donated costumes for our patients and hosted a Halloween party, helping children hospitalized over the holiday enjoy a happy Halloween. 31 GENEROSITY SPREADING LIKE WILDFIRE Wildfire Golf Club at JW Marriott Phoenix Desert Ridge Resort & Spa hosted its 13th Annual Children’s Miracle Network Hospitals Charity Golf Tournament, complete with silent auction and raffle. The event brought in $32,000 for Phoenix Children’s. CARING IN STORE In just two weeks Walgreens raised nearly $64,000 for Phoenix Children’s by selling paper icons in retail stores. These efforts bring Walgreens’ lifetime giving total to more than $2.7 million! FEELING THE LOVE Love’s Travel Stops & Country Stores sold paper heart icons to fundraise for Phoenix Children’s, with their eight locations in the Phoenix market bringing in $35,000. 32 TRUCKLOADS OF COMPASSION PUTTING THE FUN IN FUNDRAISING During the month of July Bell Honda donated $100 to Phoenix Children’s for every car sold. Combined with employee payroll deductions, additional fundraisers, and their title sponsorship of Ignite Hope, Bell Honda contributed more than $61,000 and two Ridgeline trucks full of toys in 2014. CDW’s annual employee Fun Drive, which included protein bar and egg-eating contests, a dunk tank, BBQ, Wii Bowling and a golf tournament, raised a recordbreaking total of more than $31,500. PASSING THE GIVING SPIRIT The Torch Relay stopped at the JW Marriott Desert Ridge Resort & Spa for the Phoenix leg of the event, where participants walked, ran or cycled a segment of the relay at locations across the country. With the help of patient families, volunteers and 155 participants, the event raised more than $25,000 for Phoenix Children’s. LENDING A HAND Nearly 200 people came out to the W Scottsdale for the Hands of Promise Casino Night, hosted by Engineering Wireless Services, LLC. The evening, complete with silent and live auctions, raffle prizes and casino games, raised $25,000 for the Hospital. MOVING FOR MIRACLES HONKY TONK HEROES Miracle Marathon, a 27-day virtual fundraising campaign, required participants to move the equivalent of one mile each day through any activity they chose. By the end, 346 people completed 27.2 miles each – a full marathon, plus one extra mile for the kids at Phoenix Children’s – and raised nearly $38,000 for the Hospital. Nearly 200 Waylon Jennings fans gathered at the Musical Instrument Museum for an intimate event to honor the music icon, while raising more than $20,000 for the patients and families at Phoenix Children’s through a memorabilia auction. Attendees were treated to a performance by Jennings’ widow, music legend Jessi Colter, who performed with her son Shooter Jennings. PUPPY LOVE PetSmart’s ongoing partnership helps to maintain the PetSmart Paws Can Heal Animal-Assisted Therapy program, ensuring that children will continue to receive visits from their favorite pet therapy dogs. Visits with therapy dogs get kids up and moving, help with rehabilitation, improve moods, add motivation and distract from pain. The program provides significant physical and emotional benefits to patients and their families. 33 AMBASSADORS OF HOPE KIDS HELPING KIDS Families Giving Back, an organization founded by Lisa Geyser and Alex Sklar to provide volunteer opportunities for children, hosted two events at Phoenix Children’s last year. More than 400 people gathered to ‘Loom with Love’ by making Rainbow Loom bracelets for patients, and 300 families decorated hundreds of pumpkins and assembled craft kits. 34 The Planned Giving Advisory Committee launched the Phoenix Children’s Ambassadors in October, bringing together professional advisors in the fields of financial, legal and tax planning who volunteer their time and expertise to Phoenix Children’s. Ali Rizvi from Northstar Resource Group, chair of the Advisory Committee, welcomed the new Ambassadors at an October event. For information on getting involved email [email protected]. GIVING THROUGH GAMING GIVING BACK TO GIVE THANKS During the Extra Life event, more than 750 gamers joined together to play games of all types for 24 hours straight, contributing nearly $52,000 to help our patients. Born with a congenital heart defect, intestinal issues, and a gene mutation, 13-year-old Max (pictured, center) has undergone 39 surgeries at Phoenix Children’s. His parents Patricia (pictured, second from left) and Michele have raised funds and collected toys and clothing to help other patients over the past 14 years. What began as a Christmas toy drive has grown into a commitment by Patricia’s employer, TriZetto Corporation, whose employees make donations to purchase books, gifts and gas cards for families facing long hospitalizations. Over the last two years TriZetto Cares has donated $38,000 towards a fund honoring Max and supporting the well-being of patients and families. GENEROSITY IN MOTION Motion Analysis Lab Thanks to generous donations from Bubba Watson and PING Golf Phoenix Children’s officially dedicated the Bubba Watson and Ping Golf Motion Analysis Lab to help children and teens with movement disorders or difficulty walking. It’s the first pediatric motion analysis lab in the state and one of only 40 in the country. Watson and representatives from PING paid a special visit to dedicate the lab in February. COMMUNITY CHAMPIONS From the 14th Annual Students Supporting Brain Tumor Research Walk to the Grand Opening of Corner Bakery Cafe, our community partners organized nearly 100 events benefiting Phoenix Children’s last year, raising more than $1.1 million dollars. If you or your organization are interested in hosting an event for Phoenix Children’s, contact [email protected]. CLIPS FOR KIDS More than 100 Great Clips locations sold Miracle Balloons for a $1 donation, bringing in more than $45,000 for Phoenix Children’s Hospital. BUILDING FORE GOOD Kitchell hosted their 2nd Annual Build Fore Good golf tournament at Kierland Golf Club, bringing in $32,000 for the Sports Medicine program at Phoenix Children’s. 35 2015 CALENDAR OF EVENTS KTAR Give-A-Thon August 19 & 20 Broadcast live from the Hospital on KTAR News 92.3 and Arizona Sports 98.7, the KTAR Give-A-Thon is our largest fundraiser of the year, featuring patient families sharing their stories, partner check presentations and celebrity appearances. Listeners can become Miracle Makers by making a monthly pledge of $20 or more. For sponsorship information call (602) 933-2626. Teddy Bear Fair August 1 If your teddy bear could use a check-up, then join us for this 2nd annual event at Ice Den Scottsdale where your stuffed friend can receive a series of “well bear” checks to keep him in tip top shape. Purchase one of our exclusive event teddy bears or bring your own to each of our booths, featuring doctors and nurses from the Hospital, as well as community partners. To learn more go to GivetoPCHF.org/teddybearfair. 36 You must get involved to have an impact. ~– Napoleon Hill Challenge Cup Pro-Am May 8 Miracle Marathon September 1 - 27 Compete for the Challenge Cup at Desert Mountain’s Outlaw Course during this 2nd annual event, hosted by Dave & Stephanie Reese of Platinum Homes. All proceeds benefit Phoenix Children’s. Email Terri at [email protected] for more information. Complete a marathon at your own pace! Move one mile per day, through any activity you choose, in this virtual marathon – plus an extra mile for the kids. Go to MiracleMarathon.org to learn more. Bunker to Bunker Stay and Play Golf Tournaments May 22 - 23 Wigwam Resort September 25 - 27 Arizona Biltmore Resort Bunker to Bunker will host their 4th Annual Stay and Play Tournaments, which include discounted room packages, raffles, prizes and, of course, a round of golf. For information visit BunkerGolf.com. Miles That Matter Life Time Tri Tempe September 20 Make every mile matter when you compete in the Southwest’s premier triathlon at Tempe Town Lake. Earn rewards for each fundraising level you achieve, as you race in honor of a Most Valuable Patient. You can also raise funds for Phoenix Children’s by competing in any race, including 5Ks, marathons, bike races, and more. Visit PCHMilesThatMatter.com to learn more. Dual in the Desert Golf Tournament September 24 Ace Cares for Kids Campaign: April 13 – 30 Make a donation to Phoenix Children’s and have your name displayed in-store on a Miracle Balloon. On September 5 purchase a five-gallon bucket for $5 and get 20% off all items that fit inside the bucket. McLane Foodservice will host the 14th annual event at Ocotillo Golf Resort, featuring a hole-in-one challenge, lunch, awards ceremony, silent auction and raffle. For information email Victoria.Jones@ McLaneFS.com. Moon Valley Grasshopper Bridge 5K September 26 The 10th anniversary of this USATF-sanctioned and certified run includes a 5K run/walk, 2-person 5K relay and 1K fun run/walk. Visit MVGrasshopperBridge5k.com to find out more. The Container Store, Phoenix Grand Opening September 26 & 27 The Container Store will celebrate the grand opening of their newest store at the Town & Country Shopping Center on Camelback by donating 10% of grand opening weekend sales to Phoenix Children’s. Watch our website for updated details. Check out these fundraising campaigns supporting Phoenix Children’s Hospital at our partner locations throughout the Valley. Costco Wholesale May 1 – May 31 Walmart May 4 – June 14 Sam’s Club May 4 – June 14 Dairy Queen Campaign: June 1 – July 30 Miracle Treat Day: July 30 On July 30 participating Valley Dairy Queen locations will donate proceeds from their Blizzard sales. 37 2929 E. Camelback Road, Suite 122 • Phoenix, AZ 85016 PHOENIX CHILDREN’S HOSPITAL FOUNDATION (602) 933-4483 [email protected] GivetoPCHF.org facebook.com/FriendsofPCH twitter.com/FriendsofPCH PEDIATRIC INPATIENT UNIT – MERCY GILBERT | (602) 933-4900 3555 S. Val Vista Dr., Gilbert, AZ 85296 SPECIALTY AND URGENT CARE CENTER – SOUTHWEST VALLEY | (623) 312-2000 1665 N. Avondale Blvd., Avondale, AZ 85392 SPECIALTY AND URGENT CARE CENTER – EAST VALLEY | (480) 833-5437 5131 E. Southern Ave., Mesa, AZ 85206 PHOENIX CHILDREN’S HOSPITAL MAIN CAMPUS 1919 East Thomas Road, Phoenix, AZ 85016 (602) 933-1000 | (888) 908-KIDS (5437) www.phoenixchildrens.org SPECIALTY CARE – MERCY GILBERT CENTER (602) 933-3366 (CARDIO) (602) 933-6262 (NEURO) 3420 S. Mercy Rd., Ste. 121, Gilbert, AZ 85297 SPECIALTY AND URGENT CARE CENTER – NORTHWEST VALLEY | (623) 972-5437 SPECIALTY CARE – YUMA CENTER 20325 N. 51st Ave., Ste. 116, Glendale, AZ 85308 (855) 372-0664 1501 W. 24TH ST., STE. 203, YUMA, AZ 85364 SPECIALTY AND URGENT CARE CENTER – SCOTTSDALE | (480) 922-5437 6990 E. Shea Blvd., Scottsdale, AZ 85254 What’s Your Legacy? Don’t let the powder blue suit you wore to prom be your legacy. Leave your mark on Phoenix Children’s with a gift that helps our patients. Contact the Office of Planned Giving at (602) 933-2678 or LegacyGiving@ phoenixchildrens.com.
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