Carers at the heart of 21st century families and communities: a

Comments

Transcription

Carers at the heart of 21st century families and communities: a
GLOUCESTERSHIRE HOSPITALS NHS FOUNDATION TRUST
MAIN BOARD: MAY 2010
REPORT OF THE HEAD OF PATIENT EXPERIENCE
CARERS STRATEGY 2010
Aim
The purpose of this strategy is to set out the Trust’s commitment to and support of the
Gloucestershire Carers Strategy identifying the key actions that will enable the aspects of the
principals of the Gloucestershire strategy to be implemented in the setting of the hospitals of
Gloucestershire Hospital NHS Foundation Trust.
Definition of a Carer
A Carer is a person who provides unpaid help and support on a regular basis to a partner,
child, relative, friend or neighbour, who is frail or has a physical or mental illness, disability or
substance misuse issues.
A Young Carer is a child or young person who takes responsibility for the care of a family
member, usually a parent or sibling, who suffers from an illness, disability, mental ill health or
substance abuse.
Introduction
Over the past 20 years and more so over the past decade there has been increasing
recognition by government to the importance, value and rights of carers. This is evident in
government policy and legislation. Much of the important changes have been brought about
as a result of lobbying by voluntary organisations such as Carers UK and The Princess Royal
Trust for Carers. The National Carers Strategies (1991 and 2008) are based around what
carers have wanted:





Wellbeing of the person cared for
Freedom to have a life of their own
Maintenance of their own health
Confidence in services
A say in the development of services
Some of the legislation set the way to achieve these needs includes:






Carers (recognition and service) Act 1995 - introducing the right of carers to request an
assessment in their own right
Carers and Disabled Children Act 2002
Carers (Equal Opportunities) Act 2004: identifying carers in their own right not as
unseen / unpaid carers
Employment Act 2002 – gave the right to request flexible working to parents of children
up to the age of 6 years or 18 if the child was disabled
Working Families Act 2006 - extended the above rights to those who cared for adults
White Paper 2006: Our Health Our Care Our say – sets out a new deal for Carers
giving carers
o
A national help line and website
o
Training program; Caring with Confidence
o
Information on rights and services available to them
o
Increased funding to provide emergency care
Equality Act 2010: prevention of direct or indirect discrimination of carers (Carers being
identified as one of the most excluded group in Society)
Carers Strategy 2010
Main Board, May 2010
Page 1 of 9
A revised National Carers Strategy was launched in 2008; ‘Carers at the heart of 21st
century families and communities: a caring system on your side, a life of your own’. New
commitments to carer were given these included £255 million to implement some immediate
steps alongside with medium and long-term plans which cover include supporting carers to
enter or re-enter the job market; improving support for young carers. Other schemes include
the piloting of annual health checks for carers to help them stay well and training for GPs to
recognise and support carers. A more integrated and personalised support service for carers
will be offered through easily accessible information, targeted training for key professionals to
support.
Background
Local Implementation of Carers Strategy
In 2007/08 representatives from the following organisations worked in partnership to develop
a Carers Strategy for .Gloucestershire. The work was lead by Carers Gloucestershire.
Gloucestershire Hospitals NHS Foundation Trust was included in this work along side

Gloucestershire County Council’s Community and Adult Care Directorate and
Children’s and Young People’s Directorate,

Gloucestershire Primary Care Trust,

Gloucestershire Partnership Trust
The overarching aim of this strategy is to help Gloucestershire organisations involved in
health and social care and community development to promote the health and well being of
Carers. Whilst there are many issues that affect all Carers, the strategy acknowledges both
the uniqueness of each individual Carer’s situation and their particular needs.
Whilst recognising the need to help sustain Carers in their caring role commitment as also
given to supporting carers in their own right, ensuring access to leisure, education and
employment opportunities. The following principles were agreed
GLOUCESTERSHIRE CARERS STRATEGY ~ 10 Core Principles
1.
Recognition
We will ensure that all Carers receive the recognition and respect for the value of the
role they play in supporting someone who would otherwise be unable to manage
without that support
2.
Information
We will ensure that all Carers have access to up to date and timely information in the
most appropriate format to support them in their caring role.
3.
Having a break from Caring
We recognise that Carers have a life beyond their caring role and will provide them
with, and support them in, accessing flexible breaks to reduce the likelihood of Carer
breakdown.
4.
Health and Wellbeing
We recognise the emotional and physical impact of caring and the need for Carers to
receive the appropriate emotional and practical support to prevent Carer breakdown
and maintain and improve their own health.
Carers Strategy 2010
Main Board, May 2010
Page 2 of 9
5.
Work, Leisure and Lifelong Learning
We will ensure that Carers are supported in considering their own needs and provided
with appropriate information, advice and guidance to enable them to make informed
choices about their work, leisure and lifelong learning opportunities.
6.
Financial Security
We will support Carers in maximising their income and life chances through access to
work and/or benefits advice.
7.
Giving Carers a Voice
We will support Carers in giving them a voice in relation to their own immediate
situation as well as influencing and shaping future policy planning and service provision
on an individual and collective basis.
8.
Equality of Access
We will ensure that all Carers have access to culturally, age and lifestyle appropriate
services to meet their needs.
9.
Preparing for Emergencies
We will support Carers in preparing for, and responding to, emergencies through
appropriate assessments to ensure the ongoing wellbeing of both the Carer and the
person they care for.
10.
Managing and delivering quality services
We will deliver quality services to all Carers through the implementation of this Carers
Strategy, effective partnership working, meaningful management information and
feedback from Carers
An overarching action plan was established (Appendix 1) in order to help embed the
principles into practice. Each organisation was to sign up to the Strategy and develop an
action plan demonstrating what their organisation will be doing to meet the requirements of
the Carers Strategy. Gloucestershire Hospitals NHS Foundation Trust at the time did not
officially sign up to the Strategy nor did it formally submit an action plan.
However work was undertaken to promote and meet the needs of carers in the establishment
of a Carers Strategy group within the Trust chaired by the Head of Patient and Public
Involvement. Important work was achieved which included the development and
implementation of the policy (2008/09) Support of carers of vulnerable patients requiring
extra physical and emotional support. This was launched and implemented. The current
Carers Strategy Implementation group was re-launched in November 2009 by the Head of
Patient Experience to review the impact of the Policy and develop the action plan. Carers
are represented on this group along side clinical staff, PALS representative, representative
from Human resource (when required), representative fro local Authority Adult Care Services
and Carers Gloucestershire.
An action plan follows that has been developed by the Carers Strategy Implementation
Group applying the above principles appropriate to the acute health care setting. The group
is responsible for the implementation of the action plan attached and is currently developing
further detail of this.
In developing this plan the group worked to ensure that carers are not seen as a resource
valued only in terms of their ability to provide care nor to be viewed as a co- worker whose
wellbeing would be addressed solely to ensure the caring role is maintained nor, to go to the
Carers Strategy 2010
Main Board, May 2010
Page 3 of 9
other extreme, of planning care to dispense of the need for the informal carer. A critical
success factor to achieving the Trust Strategic objective objectives is to involve patients and
their carers in decisions about their care. The plan also recognises the needs of carers as
employees of the organisation and the requirement we have under legislation
A detailed action plan is being developed by the group. Evaluation will be made against the
outcomes and reported to the Patient Experience Group. Reports will be made avavible to
Carers Gloucestershire through the Carers Forum
Gill Brook
Head of Patient Experience
17 May 2010
Carers Strategy 2010
Main Board, May 2010
Page 4 of 9
Action Plan to Support the Implementation of Gloucestershire’s Carers Strategy
May 2010
1 & 7. Recognition & Giving Carers a Voice
We will ensure that all Carers receive the recognition and respect for the value of the role they
play in supporting someone who would be unable to manage without that support
We will support Carers in giving them a voice in relation to their own immediate situation as
well as influencing and shaping future policy planning and service provision on an individual
and collective basis.
Key Objectives
Desired outcomes
Key Actions (updated Jan 2012
Carers to be recognised as
Carers are partners in care
Review and re-launch Carers
partners in care
Policy; ( Carers week
2011)Completed
Staff to actively promote the
involvement of carers .Ongoing
Completed: Head of Patient of
The Trust will have a lead for
Top down demonstration of
carers
importance of Carers and lead Experience as Carers Lead
for carers appointed
Carer awareness training to be
Staff more Carer aware
Carers Gloucestershire stand at
included in staff induction
leading to more Carer focused ‘Induction Market Hall’. Head of
training and embed carer
service
Patient Experience May 2010 -(
in place)
involvement into staff training
Educational leads to be
contacted to develop action plan
to include carer involvement in all
training. Ongoing from
September 2010 –Completed
:for review May 2012
Head of Patient Experience
Carers will be made aware of
Carers have awareness o
Carer’s Gloucestershire to have
support and advice available
Carers Gloucestershire
information stand monthly in
from Carers Gloucestershire
GRH. Core leaflets available in
Health Information Room. PPI
team – Completed & stand
ongoing
Carers represented on all
Actively continue involving
Carers to continue to be
relevant committee or working
carers on Committees
represented on Members
groups
Involvement Forum, Patient
Information Advisory Group,
Learning Disability Steering
Group, Patient Experience Group
and Trust Carers Strategy Group
. Completed and ongoing
Increase awareness of Carers
among the general public and
staff
Maximised impact of Carers
Week and Carers Rights Day
Opportunities to give feedback
and contribute to service delivery
will be made available
Carers experience and
opinions are sought and
valued and taken into account
when planning and delivering
care and treatment and
services
Carers Strategy 2010
Main Board, May 2010
Revise the Carers Policy and relaunch during Carers week 2011
Completed : Carers week 2012
joint event planned with Carers
Glos.
Promote activities during Carers
Week across the Trust of work
being undertaken to support
Carers
The views of carers of patients
with dementia and learning
disabilities will be sought through
survey twice a year (established
October 2010) and ongoing ( in
Trust strategic objectives
2011/12 and 2012/13 .
Informal feedback will be
provided also though Carers
Gloucestershire – on going. Info
to go on Carers Glos website
Page 5 of 9
re feedback April 2012
Promotion of feedback
Involvement with Alzheimer’s
Society is underway and AGE
UK to be contacted Head of
Patient Experience -June 2011
Contact made further
development required 2012/13
Carers Strategy 2010
Main Board, May 2010
Page 6 of 9
2 & 8. Information & Equality of Access
We will ensure that all Carers have access to up to date and timely information in the most
appropriate format to support them in their caring role
We will ensure that all Carers have access to culturally, age and lifestyle appropriate services
to meet their needs.
Key Objectives
Desired outcomes
Key Actions (update June 2011)
Carers are made aware of
support services relevant to
the patients healthcare
priorities and carers support
including relevant ethnic
support groups
Information widely available in
the most appropriate formats
Carers are given the
opportunity to have information
on relevant support
groups/services including
Carers Gloucestershire. This
will include any specific groups
offering support this is
culturally relevant
Carer has the option to receive
support from a relevant
specialist support group and
organisation
Equality of access to
information and support for all
marginalised Carers.
Increased diversity of services
The right information about Carers
is available on the wards and
promoted by staff - Update June
2011= Trust Carers Information
leaflet available in all wards and
departments, Health information
room and through Carers
Gloucestershire
Raise awareness of the Trusts
Translation and Interpreting Policy
amongst staff July 2010 Tracey
Thomas PPI Coordinator/Sandra
Attwood Lead Nurse (Completed)
April 2012 Meet with BME lead
from Carers Glos. re further
development
3. Having a Break From Caring
We recognise that Carers have a life beyond their caring role and will provide them with, and
support them in accessing, flexible breaks to reduce the likelihood of Carer breakdown.
Key Objectives
Desired outcomes
Key Actions ;update June 2011
Ensure that no assumption is
Carers participate in as
This will be embedded into the
made that Carers will continue
much care as they wish to
policy and staff training
to care whilst patient is in
and it is safe to do so.
Head of Patient Experience/Sandra
hospital
Attwood Lead Nurse July 2010
Explicit in Carers Policy 2011 action
The Carer is not and should not
cards for staff. Completed
be expected to actually deliver
Update and re-promotion in
care unless they wish to and it
Carers week 2012
is safe to do so
4. Health and Wellbeing
We recognise the emotional and physical impact of caring and the need for Carers to receive
the appropriate emotional and practical support to prevent Carer breakdown and maintain and
improve their own health
Key Objectives
Desired outcomes
Key Actions ( updated June 2011)
All staff to provide Carers with
Carers more confident and
To ensure that systems and
information and practical support skilled in managing their
processes are in place across the
to meet any changing care and
caring role and the impact it
Trust so that the carers receive
health needs that might occur
has on their own life
training and information and to
whilst maintaining awareness of
enable them to care with
the emotional needs of the carer.
confidence at home, for example,
PEG Feeding, physiotherapy,
medicines administration
Review of process and
documentation under way lead
Matron Sandra Atwood (June
2011)
Promote ‘Caring with Confidence
Course’ to Carers (now known as
‘Supporting Carers’) update Jan
2012 received from GCC
Monthly and promoted on
wards
Carers Strategy 2010
Main Board, May 2010
Page 7 of 9
5 & 6. Work, Leisure and Lifelong Learning and Financial Security
We will ensure that Carers are supported in considering their own needs and provided with
appropriate information, advice and guidance to enable them to make informed choices about
their work, leisure and lifelong learning opportunities.
We will support Carers in maximising their income and life chances through access to work
and/or benefits advice.
Key Actions (updated June 2011)
Key Objectives
Desired outcomes
The Trust to demonstrate Carer
Increased employment
1To identify and reference all
friendly employment practices
opportunities for Carers
policies that have impact on
carers identifying if they are fit
Carers will be directed to
Carer friendly employment
for purpose and take action as
appropriate welfare benefits
policies in place.
required. Update: New policies
advice and support
are addressed in this way
Work and Families Act 2007 and
Carers will have increased
through the ratification process.
Equality Act 2010 is effectively
opportunities for flexible
2.Provide the opportunity to
implemented in the Trust
working.
those who are carers to be
identified and provide
information on Carers rights as
employees Update: Info in
Carers policy referencing to
the relevant Human Resource
Policies
9. Preparing for Emergencies
We will support Carers in preparing for and responding to emergencies through appropriate
assessments to ensure the ongoing well-being of both the Carer and the person they care for.
Key Actions (updated June 2011
Key Objectives
Desired outcomes
The Carers Emergency Card and Increase in number of Carers
1Raise awareness within the
scheme will be promoted across
signed up to the Carers
Outpatients, Emergency
the Trust ensuring ‘Cared for
Emergency Card
Department ( ED)and on ward
person’ is provided for
about the Emergency Card
Scheme. Update June 2011:
Easy to access emergency
All emergency details quickly
Presented at Senior Nurse
contact details to be provided for
accessible
committee May 2011amd
all Carers
previously in E.Ds. Update Jan
Carers will have increased
2012 – Scheme actively
peace of mind
promoted and asked for in ED
re promotion campaign in
Carers week 2012
2. Staff will routinely check with
patients if they are a carer in the
outpatient department,
emergency department and as
part of the pre-admission nursing
assessment in order to ensure
the needs of the carer and ‘cared
for’ are met. Update: June 2011
completed and ongoing; revised
Nursing assessment and
discharge documentation reflect
this. Update Jan 2012: raise
awareness again through
Outpatient Experience group
Carers Strategy 2010
Main Board, May 2010
Page 8 of 9
10. Managing and Delivering Quality Services
We will deliver quality services to all Carers through the implementation of this Carers
Strategy, effective management information and feedback from Carers.
Key Actions (updated June 2011
Key Objectives
Desired outcomes
Robust monitoring systems will
More Carers supported in
1. To identify if carers can be
be in place to ensure the
ways appropriate to their need identified from the patient record
ongoing quality of care and
or PAS, taking appropriate action
support provided to carers
to address if required. Update
Jan2012: work in progress
Partnership working with staff
Maintenance of high
and carers
standards of service provision. with PAS plus system
Monitor trends via quarterly
Carers needs continue to be
concerns, comments, complaints
met, now and in the future.
and compliments regarding
Carers playing an active role
carers. ‘Carers’ is key word on
in the assessment of services
‘Datix’ to enable reports to be
Poor and/or inappropriate
generated. Completed June
service delivery will be
addressed and remedial action 2011
Further action: carer experience
taken
through complaints and PALS
and other sources to be reported
quarterly to Carers Strategy
group for review of responses
and trend analysis by Head of
Complaints June 2011 onwards.
2. Identify means by which
carers can routinely provide
feedback on the experience as a
patient or a carer: Update June
2011 Bi -annual survey of carers
of patients with Dementia and
those with Learning disability –
commenced October 2010
ongoing Jan 2012.report to
Board April 2012.
3.Jan update :Informal
feedback will be provided also
though Carers
Gloucestershire – on going.
Info to go on Carers Glos
website re feedback April
2012
Carer stories to be actively
gathered throughout the year
2012 /12 for use in training
Target = 3 stories
Carers Strategy 2010
Main Board, May 2010
Page 9 of 9

Similar documents