August, 2009 Edition
Transcription
August, 2009 Edition
www.stlapda.org August 2009: Vol. 23, Issue 3 Newsletter of the American Parkinson Disease Association, St. Louis Chapter Mission Trust Me, I’m Elated Our mission is to enhance the quality of life for people with Parkinson’s disease, their families, and caregivers in our communities throughout Missouri and southern Illinois, and to provide funding for ongoing Parkinson’s disease research. In This Issue Q&A with Dr. Lee Tempel........... 2 PD101…A Tutorial.................... 3 Move It! PEP Meeting................ 4 Movement Challenges............... 5 Parkinson’s Drugs May Trigger Pathologic Behavior.................. 6 Dance Dance Dance................. 6 Delay the Disease— Functional Fitness..................... 7 What is Lewy Body Dementia?....... 8 Fashion Show................................ 9 Support Group/Exercise Class Calendars................................ 10 Tributes & Donations............... 12 2009 Golf Tournament............ 14 Save the Dates........................ 16 Volunteer Opportunities........... 16 NEWSLETTER DISCLAIMER “The information and reference material contained herein concerning research being done in the field of Parkinson’s disease and answers to readers’ questions are solely for the information of the reader. It should not be used for treatment purposes, rather for discussion with the patient’s own physician.” Peter Shohl This is the February 1, 2008, post from “Off & On,” cartoonist Peter Dunlap-Shohl’s blog about life with Parkinson’s disease. It is being reprinted in The LiNK with his permission. nyone can see some of the damage Parkinson’s disease visits on those who have it. Tremor and shuffling are painfully obvious. But there is another set of problems spawned by what you don’t see. With the loss of control of facial muscles we also lose a significant chunk of our ability to communicate. Instead of expressive smiles and frowns, we present a deadpan, blank mask that unnerves others. Much of the sense of what we all say is not in the voice or words, but in the subtle visual cues and signals the face sends. We all interpret speech in the light of what we read in a person’s expression. People with Parkinson’s can slowly lose the ability to enhance communication this way without even knowing it. Think about the problem of misinterpretation of e-mail. The sender composes a message in which the words seem clear as the send button is pushed. The recipient looks at the cold, expressionless type on their screen, and without the guidance of the visual and tone cues that we all use to correctly interpret meaning, assigns meaning that isn’t there. Often the missing meaning is misread, and the interpretation negative. A Then consider the way we get around this problem. We insert little faces that clarify our intent :-) This is exactly what those of us with Parkinson’s Disease are not doing in face-to-face conversation. We are sending spoken email, without the emoticons :-( Instead of this :-) , or this :-( , what we send is this :-| …nothing but :-| To complicate things further, we are often unaware that we are not sending the proper cues. And worse, as people look for these cues and cannot find them, they get frustrated, confused and eventually angry. Once while taking care of some support group business at a bank with my friend Lory, I sensed rising irritation in our banker. I was at a loss as to the cause, but then realized she was interpreting our Parkinsonian lack of expression as anger. I stopped the rapidly deteriorating meeting, and explained our featureless expressions. The change was immediate and dramatic. She went from grim to jovial in seconds flat. And Lory and I, having solved the mysterious problem, we’re elated :-| . Peter Dunlap-Shohl, 50, blogs from Anchorage, AK, where he lives with his wife and son, works as a cartoonist, and leads the Anchorage Parkinson’s Disease Support Group. You can enjoy more of his postings at offandonakpdrag.blogspot.com. n APDA INFORMATION & REFERRAL CENTER Deborah Dalin Guyer, M.A., CCC-SLP, Coordinator [email protected] Campus Box 8111 • 660 S. Euclid St. Louis, MO 63110 314-362-3299 • 314-747-1601 (fax) Office Hours: Monday-Friday 7:30 AM–4:00 PM www.stlapda.org ST. LOUIS CHAPTER APDA BOARD OF DIRECTORS Matt LaMartina, President Tom Mackowiak, 1st Vice President Don Carlson, 2nd Vice President Joseph Burcke, 3rd Vice President Brian Hantsbarger, Treasurer Rebecca Daming, Secretary MEMBERS AT LARGE Bill Billings Bob Clay David Dankmyer Brook Dubman Kevin Fairlie Carol Feuerhahn Bernard Frank Bob Goldsticker Mary Hughes Elaine Lindecke Joseph Marchbein Dorothy Reimers Robert Sanderson Jack Strosnider Addie Tompkins Lynda Wiens Stan Wilensky DIRECTOR EMERITUS Susan B. Levin EXECUTIVE DIRECTOR Deborah Dalin Guyer, M.A., CCC-SLP MEDICAL ADVISORS Kevin Black, MD Terri Hosto, MSW, LCSW William Landau, MD Joel S. Perlmutter, MD Brad Racette, MD Sylvan Sandler, PD, FACA Samer Tabbal, MD Lee Tempel, MD NATIONAL AFFILIATION APDA • 135 Parkinson Ave. Staten Island, NY 10305 (800) 223-2732 EDITOR Deborah D. Guyer American Parkinson Disease Association 2 St. Louis APDA LiNK Questions for the Doctor Lee W. Tempel, M.D. Please explain the impact of exercise in slowing the progression of PD. The Dave Iverson PBS special indicated that exercise reduces cognitive deficits, reduces depression and motor symptoms which are all a part of PD…that more exercise means less PD. am a big advocate of various forms of exercise and how these may help patients with PD (PWP) but we must be careful in how we use words to describe that. No exercise of any type makes any known change in the progression of PD. That is, exercise does not change the underlying process of PD in the brain. However, exercise can make a big difference in how a person lives with their PD. By that I mean that the right type of exercise can help lessen: 1) the motor symptoms of PD, 2) balance issues, 3) speech and swallowing difficulties, 4) associated anxiety and depression symptoms, 5) minimal or mild cognitive problems, etc. Exercise can also improve the general health of the PWP (ability to withstand other illnesses, lessening falls, improving bone density, etc.). Unfortunately, just one type of exercise does not help all of these different potential categories of symptom improvement. Additionally, any one PWP may need a different type of exercise within a given category. For instance, we have different exercises in mind for someone who needs better flexibility and range of motion than we have for someone needing more strength or better fine motor control. We might also need to start at a more basic level or a more advanced level for a given patient. Everyone from the most unfit to the most fit has something to gain with the correct form of exercise for them. The majority of patients would benefit from exercises found I in the APDA booklet on exercise (Be Active!) which I give to every new patient. Often, though, more individualized instruction needs to be given. Then, a physical, occupational or speech therapist may each need to be consulted to get something more tailored for that patient TO CONTINUE TO DO AT HOME to get the best improvement for them. General exercises can improve mood. Special exercises may be needed for speech, swallowing, balance, cognitive problems, etc. Finally, it is worth noting that, even for the most fit, there is such a thing as “too much” exercise that may increase tiredness, “wear them out” or otherwise be counterproductive. Exercise should be viewed as ONE of the number of things patients do to improve their quality of life with PD but does NOT replace appropriate medications, appropriate use of DBS or other treatments. When should a patient consider DBS? here is no one correct answer – each patient is unique. Some general principles apply, though. Deep Brain Stimulation (DBS) is currently predominantly considered in moderately advanced PD (not mild but not “end stage” either). Also, we consider DBS for patients with “regular” PD, not one of the “Parkinson’s-Plus” syndromes. Patients usually will have been on at least a dopamine agonist at some point (and may very likely still be on one) or not have tolerated a dopamine agonist. They will be on at least a moderate dose of Sinemet (usually at least 600 mg of levodopa or more per day) and have a history of responding to Sinemet. They most likely will have been tried on a COMT inhibicontinued on next page T August 2009 tend… d to at e it v in y ll ia d r o c e r You a ! l a i r o t u T A … PD101 ter’s recent occasion of one sis e th on rs te sis o of their ith tw le to answer some sure of meeting w ab ea pl as e w I th d d ha an I e y a fic y of Toda , and even gave them ase. We met in m es se m di ho n n’s so ow in r ei rk th Pa diagnosis of n for a future r investigation in all part of my visio ferences for furthe re e ok id bo s ov ie pr , m ns um tio D ques isease for er, a Parkinson’s D ng in gift from the Chapt begun that morni ly al re d ha 1 . 10 se me that PD PD101 cour n to all newly me, it occurred to extend an invitatio to e lik I’d t. As I was driving ho en tm set up an in agnosis) to call and dual basis, by appo di vi ur di in yo of an o on tw e, or fic my of ithin a year als ( “new” being w l spent. diagnosed individu d it to be time wel fin t to extend an ill w u yo ve lie n. I be ve questions, I wan ha ay m ho w ns ra appointment sessio te l Center and ho are seasoned ve rmation & Referra fo In A D AP e th For those of you w wait for or of usion! Rather than l. I am Coordinat tr el in w as an t u, no yo , ty to ili n you sib invitatio sease – and I invite rt of my job respon di pa e be th as to d it ize ve al lie du be very much unique and indivi r meeting! the right time is as – e” tim ht I look forward to ou ig “r . e 9) th 29 -3 62 -3 14 dule a visit (3 to call me and sche Debbie Questions for the Doctor continued from previous page tor as well. Despite some effort to optimize those medications, they will have significant “off time” and/or dyskinesia. Patients generally will not have significant cognitive impairment – not have a dementia (but sometimes may have some “minimal cognitive impairment”). There is emerging data that DBS is better than just trying to optimize medications alone. Like most modes of treatment, it is: 1) NOT a cure, 2) not for everyone, 3) not without some risk that is usually minimal but, occasionally, is severe, 4) not like television depicts it – don’t expect to get out of surgery and dance down the hall. The most common experience is that “off time” is substantially reduced but there is still some “off time” that is usually less severe, that there may be much less dysVolume 23, Issue 3 kinesia (or maybe even none) and that medications are reduced by ABOUT one third (but some patients may even end up on more medication). Getting a DBS also means needing to see the neurologist (or a trained nurse) to do DBS adjustments. To start with, those may be relatively frequent to approach “best” settings for that patient (every couple weeks to a month for several sessions), but then usually the adjustment sessions are much less frequent and less lengthy. Is Hospice available for PWP as the disease progresses? It seems like the care necessary for a PD patient far exceeds that given to support a cancer patient wishing to remain in their own home, and yet my doctor won’t order Hospice. ospice is more than just about relatively intensive levels of care at home. The general philosophy behind hospice is to allow a patient H to die in familiar surroundings with a minimum of discomfort and a maximum of personal dignity. This is typically undertaken when life expectancy is not greater than six months (VERY difficult to determine with PD). Also, there is no longer any attempt to adjust medications or treatments to get the patient “better” as that relates to their underlying disease. The expectation is that the patient will not go back to the hospital if there is some serious infection, complication, etc. (again, not typical of PD). These basic principles underlie more specific requirements to engage hospice care. Usually, at least in typical PD, it is quite difficult to meet specific requirements for hospice care – but not always, such as if there are other disease processes at work that are terminal. n St. Louis APDA LiNK 3 American Parkinson Disease Association of St. Louis Presents Move It! Kevin Lockette, PT Sunday, August 23, 2009 2:00 pm – 3:30 pm Kevin Lockette, physical therapist and author of MOVE IT!, an exercise and movement guide for Parkinson’s disease, will be in the St. Louis area and has graciously accepted our invitation to speak on Sunday, August 23rd at Congregation Shaare Emeth from 2:00 PM – 3:30 PM. Kevin works at the Ohana Pacific Rehab Services in Hawaii and we are fortunate to have this opportunity to hear Kevin. Kevin has seen many people with PD as a physical therapist and has taught classes for PD support groups for years. His book and companion video share many non-conventional exercises and techniques that he has found helpful from working with persons with PD over the past 19 years. Exercise in conjunction with medication is one of the best things you can do to counteract the negative physical effects of Parkinson’s disease. If you are newly diagnosed or have longstanding PD, Kevin’s suggestions will give you guidelines for how to move more effectively despite your PD and how to stave off further physical decline. At the program on August 23rd you will learn mobility techniques that apply both scientific approaches of physical therapy as well as pragmatic solutions. Kevin will discuss fall prevention strategies but also how to fall and what to do when you are on the floor. He will review assistive devices for safer walking and adaptive equipment that will help you maintain your independence. Kevin is anxious to get you started on the journey and is looking forward to seeing everyone on Sunday, August 23rd at Congregation Shaare Emeth. Congregation Shaare Emeth 11645 Ladue Road* *located at the corner of Ballas and Ladue Roads two blocks east of Highway 270. Enter parking lot off of Ballas Rd. on the north side of the building and follow the signs to the sanctuary. For more information, call the APDA at 314-362-3299. Washington University School of Medicine American Parkinson Disease Association Campus Box 8111 • 660 S. Euclid Ave. • St. Louis, MO 63110 4 St. Louis APDA LiNK August 2009 Movement Challenges: Strategies & Tips to Keep You Moving By Kevin Lockette, PT No More Automatic Pilot Prior to experiencing any PD symptoms, you did not have to think to move. You simply got up and walked, turned, lifted, twisted, ran, etc. You did not think about it at all. You simply relied upon your “automatic pilot.” Well, with PD, your automatic pilot does not function well and may not work at all at times as you may experience with “freezing episodes.” In this chapter we are going to teach how to move consciously and present techniques and strategies that you can have in your bag of tricks to assist you in moving and in getting out of trouble when the PD symptoms start to restrict your ability to move. We will help you establish a “personal trick.” Most of you will find the greatest difficulty with movement during the “wearing off ” periods of your medications. The practical strategies that will be presented will assist you with your mobility, keep you out of trouble and hopefully assist in preventing falls. Conscious Posture & Purposeful Movement The keys to moving more freely with PD are primarily conscious posture and purposeful movement. You now have to think to move. The trick is that you have to re-train yourself this way. At first this can be mentally fatiguing because you are not use to thinking about general movement; however, with practice, you will have the ability to maintain safe, effective mobility and stave off or delay the physical affects of PD. Strategies that I have found helpful are to first visualize the activity whether it be walking, turning, standing, etc. Second, mentally plan the sequence of the activity you wish to achieve in to defined steps. Third, completely finish each step of the sequence prior to starting the next step and lastly, complete the task or activity prior to starting the Volume 23, Issue 3 next one. This strategy forces purposeful, conscious movement. There are techniques and cues that will assist you in keeping your movement “mindful.” u Visualize u Plan u Sequence (one step at a time) u Complete Blending Steps of a Sequence One common feature seen with PD is the blending of movement sequences. Blending is defined as starting step 1 but prior to completing step 1 you are already starting or “blending” in steps 2 & 3. An example is a simple transfer to a chair from standing. Blending occurs when you approach a chair, but before you complete the approach, you reach for the chair and start to turn and sit all at the same time. A better approach is to use the auditory cues presented above to break down and perform the sequences one at a time such as talking to yourself, “Approach chair, turn to square buttocks over chair, reach back for chair, and sit.” Again, you can’t rely on that old automatic pilot. You have to turn off the faulty automatic pilot, grab the wheel and drive the plane one step at a time. With practice, you can actually train yourself to move in this way and most likely avoid some falls. One technique that is helpful to avoid blending is to focus on the destination. Walk up to the desired spot and make contact with your leg. An example would be approaching your bed. Focus on a spot on the bed where you wish to sit. Walk straight up until your leg makes contact with the bed. By doing this, you have at least eliminated premature reaching and turning before you are close enough to sit down. Darn That Gravity/ Forward Posturing Posture: Due to the physical symp- toms of PD mentioned above, posture is nearly always affected and plays a huge role in how you walk and move in general. Typical posture changes include standing with your knees and hips bent with a rounded upper back, rounded shoulders and a forward head. You will also typically see the arms tucked into the side of the body with the elbows flexed and hand & fingers curled in towards the body. This stooped posture has a huge impact. You know the drill. You stand up and gradually or fairly immediately, gravity gets the best of you and you find yourself bending forward as if you are looking for change on the ground. When your center of gravity is in front of your base of support (your feet), your postural muscles are at a disadvantage. Your hip and back extensors have to work much harder to hold you up because your skeleton is no longer vertically stacked. Maintaining this flexed posture leads to fatigue and often back pain. This posture also leads to the tendency to fall forward with walking or backward when trying to reach overhead from standing. When walking with this stooped posture, you are basically trying to catch up with your center of gravity which can cause a rapid uncontrollable shuffling gait. I have even worked with a patient who couldn’t control her gait once she started in the pattern and literally ran into the wall or a stable object in order to right herself. Posture also affects your ability to perform activities of daily living. One of the first restrictions noticed is loss in shoulder range of motion (ROM) which impairs the ability to perform basic tasks such a dressing yourself and bathing. Understanding these typical PD postures is important as your exercise program design will be to directly continued on next page St. Louis APDA LiNK 5 Parkinson’s Drugs May Trigger Pathologic Behavior SOURCE: Mayo Clinic Proceedings, April 2009 NEW YORK (Reuters Health) About one in five patients taking a therapeutic dose of a dopamine agonist, a class of drugs used to treat patients with Parkinson’s disease, may develop compulsive gambling or hypersexuality, according to a study of patients treated at the Mayo Clinic in Rochester, Minnesota. By contrast, these behaviors were not seen in untreated patients, those taking less than a therapeutic dose of a dopamine agonist, or patients receiving treatment with carbidopa/levodopa alone. “Physicians who care for patients taking these drugs should recognize the potential of the drugs to induce pathologic syndromes that sometimes masquerade as primary psychiatric disease,” Dr. J. Michael Bostwick and co-authors caution in the current issue of the Mayo Clinic Proceedings. Their study was designed to more accurately determine the prevalence of this treatment complication than previous studies have by limiting their study patients in the seven counties surrounding their clinic. Included were 267 patients treated between 2004 and 2006. Sixty-six were taking a dopamine agonist, but only 38 were using doses in the therapeutic range (pramipexole 2 milligrams per day or more, or ropinirole 6 milligrams per day or more); 178 were taking carbidopa/levodopa without a dopamine agonist, and 23 were untreated. Six men and one woman, ages 46 to 80, developed a compulsive syndrome, in some cases as early as one month after reaching the maintenance dose of the dopamine agonist. Five started pathologic gambling and five became hypersexual (both disorders developed in three of the patients). Other compulsive behaviors were noted as well. The behaviors, which often went un6 St. Louis APDA LiNK abated for years, resolved after dose reduction or treatment discontinuation. Two patients received extended psychiatric care before the link to their Parkinson’s disease treatment was noted. The only patients who developed these syndromes were taking therapeutic dopamine agonist doses, for an occurrence rate in this group of 18.4 percent. Bostwick and associates suggest that this is still likely to be an underestimate because these problems may often not be reported or recognized. “The problems can be life-changing events, with gambling depleting family finances or hypersexuality threatening marriage and reputation,” the authors emphasize. “Physicians treating Parkinson’s disease with dopamine agonists should obviously warn the patients, spouses, and families of such risks because they may not recognize the relationship to the drug until disastrous consequences have occurred.” n Movement Challenge continued from previous page oppose these postures. TIP: When you are slumped, your skeleton is no longer mechanically stacked, which actually puts your muscles at a mechanical disadvantage—in other words your muscles have to work harder to pull you up. Some simple ways to cue your body is to squeeze your shoulder blades together while straightening your knees and squeezing your buttock muscles. If you are having difficulty with standing, you can perform the posture correction of squeezing your shoulder blades in sitting as well. This will force your body to realign itself. Do this throughout the day. Your “automatic pilot” is not working so you have to consciously think to do this. You will over time try to re-engage your “postural muscles” by conscious thought and maintain a more advantageous posture. n This article was adapted from the book MOVE IT: An Exercise and Movement Guide for Parkinson’s Disease. DANCE DANCE DANCE Dr. Gammon Earhart has received the unofficial word that her grant for the dance exercise classes will be funded (CONGRATUL ATIONS!) and it will be official very soon. She anticipates that the dance classes will likely begin in early September, given the delay with the grant. We definitely have more room for participants, so please feel free to contact Dr. Earhart directly at 314-286-1478 or by email [email protected] or feel free to call the Center 314-3623299 and we will relay your interest to Dr. Earhart. Dance exercise classes will be held at the Crestwood Court at the Crestwood Mall (Watson Road) on Mondays and Thursdays from 3:00 PM – 4:00 PM. Stay tuned for further information from Dr. Earhart on the exact date when classes will begin. Brush off those dancing shoes and be prepared to have some fun while you work on improving balance and walking simultaneously! n August 2009 Delay the Disease – Functional Fitness David Zid Rotation T he ability to twist or rotate diminishes as you age, and Parkinson’s disease magnifies this problem. These exercises will help you with turning and twisting while seated, either at home or in your car. These should help you with reaching and buckling your seatbelt, or passing food while seated at dinner. Good luck and stay flexible. n Rope Pull While sitting on a chair, reach up high with both hands, above your head, and grab an imaginary rope either on your right or left side. Pull it toward the floor on the opposite side of your body. Start on opposite side and repeat, 5–10 repetitions. Seated Side to Side Chops While sitting on the edge of a chair, hold a weighted ball, dumb bell, or even a gallon of milk with both hands. While keeping your elbows bent at 90 degrees and fixed at your sides, move the weight side to side, rotating at the waist. Repeat this rotation move 5-10 times. Seated Rotational Stretch While sitting on the edge of a chair, grab your left knee with your right hand. Pull with your right hand so that your shoulders, head and body twist and try to look behind you. You should feel a stretch from your shoulders down through your hips. Hold for a ten count. Repeat on the opposite side. You can modify this stretch by crossing your left knee over the right leg, and performing the stretch as above. This will increase your stretch and rotation. Seated Rotational Bands Wrap a band or tubing around a stationary object, or have your training partner hold it. While sitting on the edge of a chair, grab the band with both hands using an overhand grip. Twist to the side as far as you can with arms straight. Rotate from your core, do not pull with your arms. Keep the rotation in your torso, avoid bending your arms. Repeat 5–10 times. Volume 23, Issue 3 St. Louis APDA LiNK 7 What Is Lewy Body Dementia? James E. Galvin, MD, MPH Alzheimer Disease Research Center, Departments of Neurology, Psychiatry and Neurobiology Washington University School of Medicine L ewy body dementia (LBD) is a progressive brain disease and the second leading cause of degenerative dementia in the elderly. Over 50% of Parkinson’s disease patients develop “Parkinson’s disease dementia” (PDD). Most people with dementia undergo behavioral changes during the course of the disease. The unpredictability of these changes can be stressful for caregivers. Anticipating behavioral changes and understanding the causes can help you deal with them more effectively. Lewy Body Dementia (LBD) is not a single disorder but rather can be thought of as a spectrum of disorders involving disturbances of movement, cognition, behavior and autonomic function. LBD includes Dementia with Lewy bodies (DLB) and Parkinson disease dementia (PDD). Parkinson disease (PD), the most common movement disorder, affects 1 in 100 individuals over the age of 60 and 4-5% of older adults over age 85 (approximately 1.5 million people in North America). Original descriptions of PD did not recognize cognitive problems as an important clinical feature. More recently however, clinicians have come to realize that PDD occurs often and is among the most debilitating symptoms associated with disease progression. It is estimated that up to 14% per year of cases over age 65 will develop at least mild dementia. In the past two decades, a related dementing disorder (DLB) has been described; characterized by extrapyramidal signs, fluctuations in cognition and visual hallucinations. No major clinical differences between DLB and PDD have been found; instead distinction is made based on the temporal appearance of motor vs. cognitive symptoms. If motor symptoms precede dementia by more than 12 months, PDD is diagnosed. If dementia precedes or is concurrent with parkinsonism, then DLB is diagnosed. 8 St. Louis APDA LiNK In addition we have found that the revised DLB criteria adequately capture the features of PDD, and that while DLB and PDD share many common traits, both forms of LBD present a different pattern of performance than seen with Alzheimer’s disease (AD). How Common Is LBD? The fact is that we really do not know how many people have LBD. From post-mortem studies, up to 40% of autopsied demented patients have sufficient cortical Lewy bodies to be diagnosed with LBD, although many cases are clinically diagnosed with AD. The Lewy Body Dementia Association (www.LBDA.org) estimates that between 1 and 2 million Americans have LBD, approximately half the prevalence rate of AD. The contribution of LBD from PDD is unknown but we can begin to make estimates. Recent studies suggest that yearly incidence rates of PDD increase with age from 3% per year before age 65 to 14% per year over age 70. There appears to be a two- to six-fold risk of dementia compared with control populations. Independent of motor impairment, PDD has wide-ranging effects on quality of life, caregiver distress, and nursing home placement. Older age, longer disease duration and severity, lower education, and male gender are all important risk factors for PDD. Clinical Distinction Between AD and LBD The clinical diagnosis of dementia of the Alzheimer type require the presence of memory impairment with impairment in one or more cognitive domains (aphasia, apraxia, agnosia, and executive function) with evidence of insidious and progressive decline and interference with social or occupational functioning. Secondary causes such as sys- temic, neurological, psychiatric disease, and delirium should be excluded. The National Institute of Neurological and Communicative Disorders and Stroke and the Alzheimer Disease and Related Disorders Association (NINCDSADRDA) criteria classify AD into categories of “probable,” “possible” or “definite.” A diagnosis of probable AD requires deficits in at least two areas of cognition, including memory, that starts between the ages of 40-90, shows gradual progression with time and cannot be attributed to secondary causes such as delirium, systemic, or neurological illness. Supportive features include evidence of progression in specific cognitive domains (such as language, motor skills, and perception), behavioral dysfunction or functional impairment in activities of daily living, as well as the presence of a positive family history. Criteria for the diagnosis of possible AD can be made when there is a dementia syndrome with atypical onset or clinical course, or in the presence of a second systemic or neurological disorder that can cause dementia. Patients who present with a gradually progressive and severe cognitive decline in a single cognitive domain in the absence of other conditions also fall under this category. The diagnosis of definite AD can only be made by histopathological confirmation from a biopsy or autopsy in addition to the clinical criteria for probable AD. A recent update to the consensus criteria has been published. The new criteria center on the findings of early impairments of memory, and the need for an abnormal biomarker suggestive of AD including atrophy on structural imaging, PET findings or alterations in CSF amyloid and tau levels. The DLB diagnostic criteria are defined by the presence of dementia with at least two of three core features; flucContinued on next page August 2009 Focus On Fashion Charity Event—October 12, 2009 O n Monday, October 12, you will have the opportunity and real pleasure of attending the APDA 14th annual celebrity fashion show, luncheon and silent auction being held at the Sheraton Westport Chalet. Kent Ehrhardt, Channel 4 Chief Meteorologist, will be returning as our emcee, along with other TV, radio and sports personalities, and favorite St. Louisans. You will be entertained by a singer, dancers and multi-generational models. Our Honorary Chair-Family is Brook & Melissa Dubman and their beautiful children. This year’s show will feature parent/child What is LBD? continued from previous page tuating attention and concentration, recurrent well formed visual hallucinations, and spontaneous parkinsonian motor signs. Suggestive clinical features include rapid eye movement (REM) sleep behavior disorder and severe neuroleptic sensitivity. In the absence of two core features, the diagnosis of probably DLB can be made if at least one suggestive feature is also present. Supportive clinical features include repeated falls, syncope, transient loss of consciousness, severe autonomic dysfunction, depression, systematized delusions, or hallucinations in other modalities. While these features may support the clinical diagnosis, they lack diagnostic specificity and can be seen in other neurodegenerative disorders. These criteria allow for 83% sensitivity and 95% specificity for the presence of neocortical Lewy bodies (LBs). However, these criteria are more predictive of cases with pure or diffuse LB pathology than cases with concomitant AD pathology and cannot reliably differentiate between rare forms of pure DLB (that is, no other pathology is present) and the more common mixed forms of DLB and AD (where both pathologies are present). Criteria for PDD include cognitive and behavioral features. Cognitive features include impaired attention (with fluctuations), executive ability (problem-solving), visuospatial Volume 23, Issue 3 and grandmother/child/grandchild trios, as well as individual adults and children, who will adorn the runway in clothing sure to interest you! skills and memory. Behavioral features include apathy (lack of interest and motivation), depression, anxiety, hallucinations, delusions and excessive daytime sleepiness. It is clear from these criteria there is much overlap between PDD and DLB and only a temporal sequence of when symptoms appear should currently be used for discrimination. What Is the Future? There are currently no radiological or biological markers that can reliably aid in the diagnosis of AD or LBD. Despite these current limitations, detection of disease at the earliest clinical stage (or perhaps at a presymptomatic stage) has both prognostic and therapeutic implications. It will enable physicians to recognize a potentially rapidly progressive syndrome and initiate treatment as soon as possible. This is further supported by recent data suggesting that LBD patients might have better responses to cholinesterase inhibitors than AD patients. In addition, knowledge of LBD early in the course will allow physicians to avoid certain medications such as classic neuroleptics (i.e. haloperidol). LBD are very sensitive to neuroleptics and even at very low doses can have significant side effects. Up to 57% of LBD patients may exhibit exaggerated extrapyramidal signs, sedation, immobility, or neuroleptic malignant syndrome with fever, generalized rigidity and rhabdomyolysis and neuroleptic Look for your invitation to arrive in the mail by Labor Day, and if you’ve never received an invitation to this charitable event, please call the Center and request one! Our auction basket committee promises a return of some of the very popular gift items, along with our second annual St. Louis Dinner buffet (gift certificates to famous and new restaurants) and a new kiosk featuring items with the red tulip that is the symbol of PD. We look forward to a fun and memorable day celebrating our progress toward finding a cure and supporting those with PD! n sensitivity is one of the suggestive features in the diagnosis of LBD. Neuroleptic malignant syndrome is a life-threatening condition and the higher prevalence in LBD suggests that “classic” neuroleptics such as haloperidol, fluphenazine or thioridazine should be avoided. Early diagnosis will also allow families and caregivers the time to plan for the expected decline. Prophylactic measures to enhance the safety of the environment should be taken given the tendency for recurrent falls and rapid attentional fluctuations in this particular group of patients. Families will also have time to develop a better understanding of their role in patient care, including assistance with daily activities and provision of social and cognitive stimulation. LBD represents both DLB and PDD and is the second most common cause of dementia after AD affecting up to two million Americans. Despite this, there is a general lack of knowledge about LBD in the lay public and a general lack of awareness of the prevalence of LBD in healthcare providers. Additionally, this lack of recognition of the high prevalence, consequences and costs of LBD to patients, caregivers and society has diminished funding opportunities to promote research advances for diagnosis, patient care, and new therapeutics tailored specifically to address the needs of LBD patients and families, resulting in a host of unmet needs. n St. Louis APDA LiNK 9 Missouri Support Group Calendar Sponsored by the St. Louis American Parkinson Disease Association Our Support Groups meet once a month or as noted. Support Group day and time may change periodically. For current updates on support groups and exercise classes, call the APDA Information & Referral Center or the facilitator. City County Meeting Site Day of Meeting Time Cape Girardeau Cape Girardeau St. Francis Med. Ctr. 211 St. Francis Dr. SFMC Cafeteria 4th Monday 6:30 PM Columbia Boone Lenoir Community Center 1 Hourigan Drive 1st Thursday 4:00 PM Gerry Neely, RN 573-815-3554 Creve Coeur St. Louis Shaare Emeth Congregation 11645 Ladue Rd., Library 1st Wednesday 2:30 PM Lisa Ackerman 314-725-1888 Festus/Crystal City Jefferson Disability Resource Association 420 B S. Truman Blvd. 3rd Tuesday 1:00 PM Nancy Pope 636-931-7696 Florissant St. Louis Garden Villas North 4505 Parker Rd. 4th Thursday 11:00 AM Julie Berthold Kim Liefer 314-355-6100 Jefferson City Cole Capital Regional Medical Center SW Campus, Cafeteria 3rd Wednesday 3:00 PM Jennifer Urich, PT 573-632-5440 Joplin Jasper St. Johns Regional Medical Ctr. 2931 McClelland Mondays 1:30 PM Nancy Dunaway 417-659-6694 Kirkwood St. Louis Kirkwood United Methodist 201 W. Adams 1st Monday 7:00 PM Terri Hosto, MSW, LCSW 314-286-2418 Kirkwood/Oakland St. Louis Bethesda Dillworth 9645 Big Bend 3rd Friday 10:00 AM Stacy Pepper, BSW 314-446-2184 Ladue St. Louis The Gatesworth 1 McKnight Place 2nd Wednesday 1:00 PM Lake Ozark Camden Lake Ozark Christian Church 1560 Bagnell Dam Blvd. 3rd Thursday 5:30 PM Patsy Dalton 573-964-6534 Rolla Phelps Rolla Apartments 1101 McCutchen 4th Thursday 1:30 PM Mary Harlan Richard Wagoner 573-364-6820 Sedalia Pettis First Christian Church (Disciples of Christ) 200 South Limit 3rd Monday 4:00 PM Barbara Schulz 660-826-6039 South St. Louis St. Louis Garden Villas South 13457 Tesson Ferry Rd. 2nd Wednesday 10:00 AM Jack Strosnider 314-846-5919 St. Peters St. Charles 1st Baptist Church of Harvester 4075 Hwy. 94 S. 1st Tuesday 1:00 PM Ann Ritter, RN 636-926-3722 Ste. Genevieve Ste. Genevieve Riverview at the Park 21997 White Sands Rd. Solarium 2nd Wednesday 10:00 AM Jean Grifford 573-543-2162 St. Louis St. Louis DBS Patients Sunrise on Clayton Sr. Living 7920 Clayton Rd. 3rd Thursday 1:00 PM Steve Balven & Stan Wilensky 314-249-8812 314-997-5114 Chesterfield St. Louis Newly Diagnosed APDA Satellite Resource Center 1415 Elbridge Payne, Suite 168 1st Tuesday 10:30 AM Carol Feuerhahn 314-863-4725 St. Louis Young Onset Living and Working With PD Missouri Baptist Medical Center 3015 N. Ballas, Bldg. D, Conf. Rm. 1 3rd Tuesday 6:30 PM Rich Hofmann 314-369-2624 Creve Coeur 10 St. Louis APDA LiNK Leader Phone Desma Reno, RN, MSN 573-331-5871 Maureen Neusel, BSW 314-372-2369 August 2009 Illinois Support Group Calendar Sponsored by the St. Louis American Parkinson Disease Association Our Support Groups meet once a month or as noted. Support Group day and time may change periodically. For current updates on support groups and exercise classes, call the APDA Information & Referral Center or the facilitator. City County Meeting Site Day of Meeting Time Leader Phone Alton Madison Eunice C. Smith Home 1251 College - Downstairs Conf. Rm. 2nd Monday 1:00 PM Sheryl Paradine 618-463-7334 Belleville St. Clair Southwestern Illinois College (PSOP) 201 N. Church St., Rm 106 2nd Monday 1:30 PM Mary Frierdich & Jodi Gardner 618-234-4410 x7031 or 7033 Carbondale Jackson Southern IL Healthcare Headquarters University Mall 1st Wednesday 1:00 PM Bob & Charlotte Kiriakos 618-549-3360 Carmi White First Christian Church 504 Bohlever Dr. 3rd Tuesday 1:00 PM Carolyn Chastain 618-382-4932 Decatur Macon St. Paul’s Lutheran Church 352 W. Wood St. 3rd Thursday 1:30 PM Cathy Watts 217-428-7716 Granite City Madison St. Johns United Church of Christ 2901 Nameoki 1st Thursday 1:30 PM Hilda Few 618-797-0527 Greenville Bond Greenville Regional Hospital 200 Healthcare Dr. Edu. Dept., Edu. Classroom 2nd Monday 1:00 PM Lisa Ketchem, RN 618-664-0808 ext. 3555 Matoon Coles Sarah Busch Hospital 500 Health Center Dr. Last Tuesday 1:00 PM Kay McDade 217-258-4040 Mt. Vernon Jefferson Greentree of Mt. Vernon 2nd Floor 4th Thursday 6:30 PM Quincy Adams Fellowship Hall of Salem Evangelical Church of Christ 9th & State 3rd Thursday 12:00 PM Barb Robertson 217-228-9318 Springfield Sangamon Christ the King Parish Ctr. 1930 Brentwood Dr. 3rd Sunday in May, July, Sept., & Nov. 2:00 PM Dan Vonberg 217-546-2125 Vandalia Fayette Fayette County Hospital 650 West Taylor, Conference Room Last Tuesday 1:00 PM Donna & Bill Peacock 618-242-4492 Charlene “Pokie” Pryor 618-283-4633 Exercise Classes Our Exercise Classes meet once a week or otherwise noted. City County Meeting Site Day of Meeting Time Leader Phone Clayton St. Louis Barnes Extended Care 401 Corporate Park Dr. Wednesday & Friday 1:30 PM Sue Tucker, OT & Mike Scheller, OT 314-289-4325 Chesterfield St. Louis St. John’s Mercy Rehabilitation Hospital 14561 N. Outer 40 Tuesday 1:00 PM Deb Luetkemeyer, PT 314-881-4200 Chesterfield St. Louis St. Luke’s Hospital 232 S. Woods Mill Rd. Tuesday 10:30 AM Patty Seeling, PT 314-205-6934 South St. Louis County St. Louis Garden Villas South 13457 Tesson Ferry Rd. Monday 11:30 AM Sue Tucker, OT & Mike Scheller, OT 314-289-4325 St. Peters St. Charles Barnes-Jewish St. Peters Hospital Ste. 117 Every Tuesday except 1st Tuesday 11:00 AM Holly Leigh, PT 636-916-9650 North St. Louis County St. Louis Garden Villas North 4505 Parker Rd. TBA TBA Julie Berthold Kim Liefer 314-355-6100 Lake Ozark Camden Lake Ozark Christian Church 1560 Bagnell Dam Blvd. Monday 4:00 PM Alice Hammel, RN 573-964-6534 Volume 23, Issue 3 St. Louis APDA LiNK 11 Tributes & Donations Tributes are a wonderful way to acknowledge the memory of a beloved person as well as honor those who mean so much to you. Tribute envelopes can be obtained from the Center 314-362-3299 or made directly on the St. Louis APDA website-www.stlapda.org by clicking on the Donate link (on the right side of the home page). HONORING Richard Batt Ann Roberts Divine John (Jack) Boess Robert & Donna Cohen 40th Wedding Anniversary Bob & Donna Cohen Courtney, Chuck, Ty & Avery Adams James Dailey Grace Berding Harry A. Dalin Dad/Paw Paw On Father’s Day 2009 Karl, Debbie, Brittany Guyer Marc & Erin Schreiber Marriage of Michael & Rebecca Daming Debbie Guyer & the APDA Board of Directors Special Birthday Robert L. Long Sr. Mrs. Jeanette Long and Family Grandpa George Marble Kevin, Cynthia, Drew, Chris & Libby O’Toole 57th Wedding Anniversary Darwin & Edna Meier Eugene Meffert 50th Wedding Anniversary Dr. & Mrs. Lester Nathan Bett Jasper Goldie Levinson Sylvan & Ruth Sandler Stan Towerman Andre J. Nutis Alice Nutis Jim Perrine on Father’s Day 2009 Robert & Pamela Wallis Winfred Richardson Ruby Richardson 1st Birthday Brandon Dowdy Paul Stumpe Jim Richter on Father’s Day 2009 Margaret Richter Hughes Kevin Fairlie’s Marriage Debbie Guyer & the APDA Board of Directors Marty Shrader Judith Ugalde Speedy Recovery of Everett Gray Debbie Guyer & the APDA Fashion Show Committee Bernhard T. Hartmann Dad/Grandpa on Father’s Day 2009 Don & Deb Hartmann Pat & Craig Simon Kathy Higgins Chesterfield’s Citizen of the Year Debbie Guyer & the APDA Board of Directors Mother of Nancy Hodel Nancy Hodel John & Shirley Hughes’ Marriage and Mother, Mary Hughes Jackie Frame Chuck & Terry Gilmore Clayton Goss Walter Hubler Scott & Liz Hughes Frank Javech Katherine Kim John Moraytis Earl & Pat O’Rourke Mark & Jessica Sokol Andrew & Christina Thau Larry & June Wagner Libby Waters Matt Winefield Bob Lanfer Erin Lanfer 50th Wedding Anniversary Mr. and Mrs. James Lister Clarence & Carol Penny 12 St. Louis APDA LiNK Jack Strosnider Theresa Heckman Special Birthday of Elaine Varnador Sharon Holt Beverly Lee Bernice Walsh Danyel Jones Adam & Erica Weintrop’s Marriage Mr. & Mrs. Jerry Silverman Birth of Katherine Naomi Wheeler Donna Marshall REMEMBERING Fredrick W. Ackerson Frank Biondi Jim & Marguerite Willett Harvey Austrin Cheryl Hughes Rene Bauwens Gaynelle Matthis Marjorie Berg Stan, Donna, Mark, & Molly Wilensky Susan Boeke Becky & Jeff Harlow Bill Hays Thomas & Anita Holtgrave Steve & Linda Lage Terry & Bud Lohmeyer Jane Pope Peggy Schewe Don & Sherry Schwaab William Boker, Sr. Jeanne & Don Berges Terrie & Mark Genovese James J. Crisp Marilyn Hasselman Rosemary Kilker Madeleine McDonough Rita Reinkemeyer Cyd Slayton Richard H. Crosby Daniel & Karol Burns James & Joan Crosby Bob & Jeanne Duke Ed & Pam McKechnie Steve & Janice Mamie Ruth A. Myers Henry & Mary Rauber Keith & Marcia Stultz Ivala Taylor Jeremy & Krista Taylor, & Jackson Jim & Pat Taylor Jon & Rachael Taylor, Jeff & Matt Roy & Helen Taylor, Roger and Lynn, Joyce and Al Martha Troutz Eleanor Cullinan James & Virginia Wilmes Thomas F. DeBlaze Jeffrey Boedges Ann & Stephen Conway Cindy & Frank Cyr Jack & Carolyn Lyons Suzanne & Bob Pea Heinz Gros Gerald & Paula Royce Marian Hanlen Rose J. Mani Jane Hennis James & Jane Dickenson Mr. & Mrs. Mark Fraraccio Elizabeth Rockwell E. B. Stuart Betty Hercules Mary Alice Becker Bob & Kathy Cushman Virgil & Margaret Eikermann Hercules Nieces & Nephews Mary Hesskamp Dan & Tammy Honerkamp Marlene Meers Charlie & Janice Morgan Nick & Kathy Ouchly Daniel & Dawn Plackemeier Frank & P.A. Randazzo Terry & Delpha Randazzo Mary Ellen Schaefer Kurt Schmidt Gilbert & Joy Sudbrock Bob & Martha Vogt Chester L. Hill Virginia Bergheger Ed & Barbara Lowes Mr. & Mrs. James Westbrook Jack Drake Sara Seymour James Hintz Chris, Gail, Alex & Eric Hintz Judith Eishen bioMerieux, Inc. Doreen Matkin Nancy Robb & Bill Smith Dorothy Walters Jan Yahn Larry F. Holder Matt & Jackie Holder Jacqueline Exler St. Louis Banjo Club Edith Gad Bill & Terri Taylor Louis Gerber Arline Gerber John (Jack) Gewinner Tim & Fran Boyer Larry & Connie Copley Donald & Sharon Kimack Angela Kittner Russ & Betty Korte Patricia Laughlin Tim & Sharon Speak Pat & Katie Tovo Mr. & Mrs. Charles Uxa Honey & Bob Watel Warren & Glory Ziegler John Gittemeier Earl & Catherine Adkison Sharon Cassady Bill & Margie Heuckroth Paul McAlister Preetam & Cheryl Pagar Robert Huskey Teresa Barker Edward & Mary Dubbs Harvey & Barbara Dubbs Victor & Karen Dubbs Bonnie Hubert Carolyn Kroie Samuel & Sharron Mertz Walter & Wanda Tennison George & Judy Vogel Steve & Corinne Vogel Mike, Jim, Donna, Beth, & Tom Alice Walker Michael Jackson Mary (Jill) Stein Howard Jaromack Don & Chris Volz Lloyd Kaempfe Greg & Dawn Zuzack Vernelle Kohne Jesse & Patricia Reddick Judith R. Wheeler Ben & Kay Whitener Mrs. Bernard Kornblum Vicki & Norman Litz Eugene Lapointe Joseph & Elsie Sedlock August 2009 Marie Latham Wilma Childress Edith Jarrett Jack E. Lewis Jerry & Debbie Callahan Nick Ludwig Virginia R. Bates Mike & Joan Burd Ed Matthews Eleanor Siewert Ron & Sue Wrinkle Joleen Kleekamp Jean Lamzik Joyce Mentz Frankie Miller Craig & Jill Monzyk Jim & Mary Obermark Mark & Linda Probst Hank & Helen Reiling Mr. & Mrs. Michael Rohr Dennis & Pat Sahm Silgan Plastics Corporation Scott Vredenburg Mr. & Mrs. Victor Westhoff Ziglin Signs Charles McAninch Robert & Berneice Donnelly Edward Kindl James Lynch Virginia Woodside Kelly Nebuloni Christine Nebuloni Helen Malzner Community Bank of Russellville Gary & Rhonda Fogelbach Dennis & Vera Forbis Gertrude Vieth Millie Peich Cathryne Loos Betty Manlin Ralph & Helen Goldsticker Harvey & Lee Shapiro Harold G. Meyer Dolores Meyer Nora Miller Dave & Deanna Deubner Dennis & Robin Norman Jack Moehle Kathy Newbold Mildred Monzyk Kay & Robert Alleman Lloyd & Kathy Baker Douglas & Maureen Boland Dan & Sheila Brinker Judy Cortner Eunice Elbert Mr. & Mrs. Thomas Embry Sonya Enloe Connie Falvey Tim & Joette Hellebusch Joe & Jane Humphreys Jack & Kathy Kahmann Bertha Ordner Carol & Kenny Ziegler Ruth Powers Elizabeth Lester Ben Pummill Jean Whitlow, Judy and Dick, Jim, Joe & Cherie and Joey Lorraine Quarternik Amos & Kay Burke Ed & Shirley Hogan Dorothy Hohenberger Judy & Steve Litwicki Leo & ZoAnn Mankovich Steve Oslica Mr. & Mrs. Leo Stussie Jane Weber Judy Rubin Milius Families Carol, Linda, Elaine, Nancy Roslyn Schulte Jill Stein Marnie Schultz Keith & Claire Fowler Robert Smegner Steve & Chyrle Arens Laclede Gas Company Sharon Smegner Walter G. Strosnider Debbie Guyer Ray & Ruth Knierim Joan Stumpe Paul Stumpe Samuel Tessler Bob Braun Nib Trimborn Lindhorst family Melvin J. Wagner Elizabeth Turner John & Lucinda Atkinson Brian & Kelly Boete Don Uhlenburg Barbara & Julius Schweich Jack Unger Betty J. Unger Consuelo Valencia Sandra Kelly Jim Warsaw Ronnie & Karen Polishuk Morris Wilson Leslie Wilson David Wolff Larry & Roberta Trochtenberg General Dorothy Barcafer Willard & Barbara Benz Bill & Ada Billings Bruce Metal & Salvage, Inc. Thomas & Margaret Bruno John & Chris Carrell Carlene Cashel Sharon Chezik Barbara Crow Don & Diane Donlon John Earney Todd Farber-BFC Enterprises Don’t forget Another easy way to contribute to the APDA during these tough economic times is to request an eScrip card. Every time you shop at Schnucks, they will automatically contribute up to 3% of every dollar you spend to the St. Louis APDA by using this card. If you do not have an eScrip card, call St. Louis APDA at 314-362-3299 and request a Schnucks eScrip community card. We will enroll you and mail the card out the same day. Volume 23, Issue 3 Herbert Fredman George Frenzel Donna Gail Mary Jane Gass Bernhard & Else Hartmann William R. Humphrey George & Nancy Johann David J. Klasing Sharna Kohner James & Ruth Konrad Kathaleen Lange Sandra Lasko Barbara Lenz Robert Loewenstein David Marrs MasterCard Matching Gift Program Char Ann Meloney Kenneth Mihill Janet Miller Minerva Women’s Club of Granite City, IL Floyd Morgan Alice Morris Dayton Mudd Marcella Mueth John Murphy Jack & Linda Neporadny Richard Nolbert Dale & Norma Plank John Polansky Brun & Jean Puscian Donna J. Racer Mr. & Mrs. Ted Rodis Jack Schecterson Alfred Schumacher Vito Scorfina Martin Shrader Norman C. Sih Gretchen Smith Margie Stanley Hugh Stephenson, Jr. Harold W.Thieman Mark Whitehead Mark Wilkins Donald Willoh Sr. Ziegler family Richard Zimmerman Please call the satellite resource center at 636-537-5455 to make certain we have a volunteer available to meet you at the time when you’d like to stop in to visit our center (1415 Elbridge Payne, Suite 168, off the Chesterfield Parkway near Clarkson Rd., behind PF Changs parking lot) St. Louis APDA LiNK 13 en t m a n r u o T f l Go 9 0 0 e! n O 2 n I e l o H Hi ts a I’m torn between using a hole-in-one reference (which a golfer did sink at our tournament and in doing so won a 3-carat diamond donated by David Kodner Personal Jeweler) or a baseball analogy, since we were very fortunate to have John Mozeliak, GM of the St. Louis Cardinals as our Honorary Chairperson this year. Either way, our 11th annual Nat Dubman Memorial Golf Classic was a “grand slam” and one of the best tournaments many of these golfers have ever played in. This was due in large part to our loyal sponsors: MASTERS level sponsor– Community Partnership at Benton Homebuilders; MAJOR level sponsor– Carol House Furniture; CHAMPION level sponsor–HealthLink; GOLF CART sponsor–The Gatesworth Communities; TOURNAMENT level sponsors–Aspenhomes, The Commerce Trust Company, and Serta Mattress Company; DINNER sponsor– Moneta Group; COCKTAIL RECEPTION– Merrill Lynch; BEVERAGE CART sponsors–Catnapper and Pulaski Furniture; DRIVING RANGE sponsors– A.R.T. Furniture, Zeigler Associates; 14 St. Louis APDA LiNK PRACTICE GREEN sponsors–Guarantee Electrical, Howard Miller Furniture, and Lea Furniture; and HOLE SPONSORS–American Drew Furniture, Bauhaus USA, Berkline, Don Carlson, Continuum, Larry & Sonya Davis, the Delmar Gardens Family, Flexsteel Industries, Glideway Sleep Products, Grey Eagle Distributors, Keith & Cindi Guller, Hillsdale Fur- photography by Taka Yanagimoto niture, Hooker Furniture, Huntleigh Bus Sales, Lane Home Furnishings, La-Z-Boy, Nurses & Company, Pulaski Bank, Schnadig International, Shillington Box Co., and Universal Furniture International. CHARITABLE CONTRIBUTIONS arrived in generous proportions from the following individual donors: Todd Farber-BFC Enterprises, Jim & Anita Blair, Container Marketing, Debbie & Karl Guyer, Dave Jaros-Chromcraft Revington, Ron & Sharyn Kessler, Marvin & Mimi Klamen, Thomas & Noreen Laffney, Al Leving, David Link-A.R.T. Furniture, Harry W. Welford, Jr.-Littler Mendelson Fondation, Brandi Koziatek, Kristian Madsen-Sitcom Furniture & Amisco Furniture, Joe Marchbein, Robert May, Frank Miskit, Marion Morris, Riverside Furniture Corporation, Rick Short, Bill Sullins, Addie Tompkins, and Daniel & Sarah Wessel. There were exceptionally charitable donors raising their paddles during the FUND-A-NEED portion of our auction: Brook Dubman funded our Dance Exercise Classes to premier twice a week this fall; Jack Strosnider fundAugust 2009 ed the ever popular Dance social to be held in the fall; Leslie Wilson funded a ten week summer session of Aquatics Exercise Class (in loving memory of her beloved Morris); Dave & Christine Sadler funded a Wellness Course; Terri & Bill Taylor, Jim Wolfe and Marty Zygmund each funded a month of weekly exercise classes for persons with PD; Alan Lemley and Mitch Waks each funded a month of respite care for a Parkinson’s family; and Mark Schupp funded a month of adult day care services for an individual with PD. AUCTION ITEMS were amassed from: Autohaus, Bentley Studio, BFC Enterprises, Bon Vivant Adult Day Club of Missouri, C.E. Madinger Wines & Art Harper, Cheeburger Cheeburger, Bruce Conner & Massage Envy of Sunset Hills, Bob Costas, Creve Coeur Camera, Crowne Plaza St. Louis-Clayton, Dave & Busters, Delmar Gardens Homecare, The Elder & Estate Planning Law Firm, Extended Stay Hotels, Family Partners Adult Day Services, Fastsigns of Bridgeton, Flight Safety International, Garden Villas Retirement Communities, Goedeker’s, Hair Saloon for Men-West Oak, Harvest, John Hayes-Golf Professional, Holiday Inn Airport West, Holiday Inn Express Riverport, Innsbrook Resort, Jos. A. Bank, Kreis Restaurant, Pamela Kuehling & Citi Smith Barney, Lester’s, Martha’s Hands, Dale Meier, Volume 23, Issue 3 Millenium Hotel of St. Louis, John Mozeliak, Michael Nelson Hair Design, The Pasta House Company, PRP Wine International & Terry Kimmel, Bud & Betty Rakestraw, Bill & Shari Reller, Residence Inn by Marriott-St. Louis Airport-Earth City, Bob Ross & Gateway Golf Center, Dave & Christine Sadler, St. Louis Blues, St. Louis Bread Co, St. Louis Cardinals, St. Louis Cardinals & Kyle Dinges, St. Louis Rams, Sam’s Steakhouse, Robert V. Sanderson, Schlafly Beer, Seeger Toyota Scion, Brian Stitch-PGA Golf Pro, Stoney River, Sunrise Senior Living, Kathleen A. Toal, Treasured Moments Photography, Visiting Angels, Waterway Gas & Wash, and Lynda Wiens. And hats off to these special VENDORS who willingly came out of the rough and sank the putt through these in-kind donations: Alphagraphics (Bob Sanderson) for their wonderful invitations and program booklets, Paramount Apparel International (Alex Levinson) for their commemorative embroidered visors, American National Payments (Lisa & Michael Lineback) for their goodie bags of sweet and salty snacks for the golfers, Ruth’s Chris Steakhouse (Karen Johnson) for their wonderful steak sandwiches on the course, Garden Villas Retirement Communities (Jeanne Lorne & Wendy Hampton) for their Cooler of Fun raffle and shots on the course, long shot driver David Brinker, Fastsigns of Bridgeton for their wonderful signs, banners, window clings and barker Brian Goldman, and our two hole-in-one sponsors, Autohaus for the 2009 much coveted 128i BMW convertible, and David Kodner Personal Jeweler for the 3-carat diamond hole-in-one. Taka Yanagimoto (Photography) captured all those action shots on the course and is responsible for the pictures both on our website and in this article. And, finally, none of this would have been accomplished without the hard working 2009 Golf Committee–Brook Dubman (Chairman), Christine Sadler (Auction Chairperson), Liz Carney, Kevin Fairlie, Brian Goldman, Debbie Guyer, Brandi Koziatek, Matt Jaudes, Lisa Lineback, Shari Reller, Bob Sanderson, Carrie Taylor, Terri Taylor, Missy West, Lynda Wiens, and Stan Wilensky. Thank you to the 116 golfers who had a terrific day on the beautiful, sunlit greens, bidding on over 30 baskets at the silent auction, feasting on the prime rib buffet dinner, enjoying the Q & A between John Mozeliak and Joe Buck, and marveling at the ease of Joe Buck, auctioneer-extraordinaire in securing great bids for our live auction items and fund a need. We’ve already reserved Lake Forest for next year’s memorial golf classic to be held on Monday, May 17, 2010 with a 10:00 shotgun start! SAVE THE DATE! n St. Louis APDA LiNK 15 Washington University School of Medicine American Parkinson Disease Association Campus Box 8111 660 S. Euclid Ave. St. Louis MO 63110 Address Service Requested Save These Dates! NON-PROFIT U.S. POSTAGE PAID ST. LOUIS, MO PERMIT NO. 1032 Aug. 23, 2009 Kevin Lockette, PT “Move It! An Exercise and Movement Guide for People with Parkinson’s Disease” 2:00 PM at Congregation Shaare Emeth Oct. 12, 2009 These Are a Few of My Favorite Things…in Fashion 14th Annual Celebrity Fashion Show/Luncheon/Auction 11:00 AM at the Sheraton Westport Chalet Nov. 15, 2009 Dr. Joel Perlmutter Annual Update on Research and Findings Relative to PD and Related Diseases 3:00 PM at Congregation Shaare Emeth VOLUNTEERS to help in the Information & Referral Center office located at Washington University School of Medicine and VOLUNTEERS to assist at the Satellite Resource Center. For more information, contact Debbie at 314-362-3299 or by email: [email protected]. Special thanks to our newest volunteer staff at the Information & Referral Center, Linda Clark. Linda will be helping me at the Center. Linda joins our other volunteer staff Lynda Wiens & Kay Meyer.
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