Read the full newsletter - Children`s Hospital of Eastern Ontario
Transcription
Read the full newsletter - Children`s Hospital of Eastern Ontario
CHEO is a proud member of Teddy Bear Times Fall 2015 Publications Mail Agreement No. 40063574 Live the dream and help the little ones at CHEO! It’s time to start dreaming! The Dream of a Lifetime Lottery has a spectacular line up of prizes worth over $2.6 million with the everpopular Minto Dream Home as the centrepiece. Come see all the special touches in the home at 800 Percival Crescent, Manotick. This year’s Dream Home is Minto’s Cedar home design, in a brand new modern architectural style featuring over 5,035 square feet of fabulous finished living space. If an in-person visit isn’t possible take a virtual tour online at the newly designed site: dreamofalifetime.ca. Not only will one lucky winner become a new home owner, he or she will win $100,000 cash, a 2016 Chevy Camaro from Myers Automotive Group, house cleaning for a year and $5,000 in groceries from Farm Boy. A prize to dream about indeed! Contents Dream of a Lifetime CHEO BBQ Fit for a princess Max Keeping tribute Donor dollars at work 1 2 3 3 4 Children’s Miracle Network 5 Hydro Ottawa fundraiser 5 Forever CHEO 6 From the Hospital 7 Trees of Hope 8 …2 Live the dream (cont’d) There are 4,789 prizes to be awarded. Order before midnight, November 13 to be eligible for the Early Bird Prize which includes an NHL All-Star ® weekend package for two, $50,000 cash, a 2016 Volkswagen Jetta Highline from Myers Automotive Group, and a trip for two to the 5-star Majestic Elegance Hotel, Punta Cana, Dominican Republic from Marlin Travel and Transat Vacations. THERE ARE THREE EASY WAYS TO ORDER YOUR The 50/50 Draw was a huge success last year so it’s back and the minimum jackpot has been raised to $250,000! With an escalating jackpot, who knows how large the pot will grow! Last year’s winner won over half a million dollars so don’t miss out. To get in on this prize you must order a Dream of a Lifetime Lottery ticket. 200 local branches of TD Canada Trust, Scotiabank, Tickets for the Dream of a Lifetime Lottery are $100 each or three for $250, while tickets for the 50/50 Draw are one for $10, five for $25, or 15 for $50. TICKETS TODAY: • Online at www.dreamofalifetime.ca • By phone at 613-722-5437 or 1-877-562-5437 • In-person at the Minto Dream Home located at 800 Percival Crescent in Manotick, or in-person at nearly RBC Royal Bank, BMO Bank of Montreal, CIBC and National Bank in the Ottawa area. Supporting the lottery has a very real impact on the lives of children and youth at CHEO. Not only can ticket buyers win a prize, a life at CHEO can be changed due to that support. Thank you in advance for dreaming big! Best of luck in the draws. CHEO BBQ: A whole lot of heart…and loads of fun! In 1993 Mike Machargo, Johnny Hunt and a group of friends were having a backyard BBQ. That same day the CHEO Telethon was airing so the group passed around a fish bowl for donations for CHEO. That $40 pledge with a gathering of friends has grown into a well-known CHEO fundraiser called the CHEO BBQ, now held at Shefford Park. 2 For 23 years running the community has participated in this spectacular day of volleyball, ultimate Frisbee, family walk and a 5 km run, all to benefit health care at CHEO. To date, this event has raised over $565,000! “We recognize how much work goes into organizing an event of this size and we are so thankful for the efforts of this passionate team,” says Chantal Charbonneau, Director, Community Engagement & Annual Giving, CHEO Foundation. “It’s thanks to groups like this that CHEO staff can provide the level of health care we expect for our children and youth.” This amazing summer tradition has a lot of heart. “I believe it is important to give back to your community. For a society to function properly, each and every one of us should give back more than we take from it,” says Mike. “I love planning this event, love the people we work with and can’t help but smile with all the success stories we hear coming from CHEO. I find it uplifting and inspiring to hear of these extraordinary young people and the challenges they have faced or continue to face but how they persevere and rise above those hardships. It shows me that if they can be the beacon of hope for themselves, their families and other children like them, I can easily plan an annual event to help raise funds and awareness for the hospital that enables them to do so much!” To participate in this annual event and become a part of this fun day for CHEO please visit www.cheobbq.com. Fit for a princess Hodan enjoying meeting princesses, courtesy of Official Princess Parties Once upon a sunny autumn day, people witnessed a little magic at the Children’s Hospital of Eastern Ontario (CHEO). Though we often hear of miraculous stories of recovery at CHEO they usually involve the devoted medical team, but this time was different… there was pixie dust involved. Pixie dust is the stuff of fairy tales, where brave young people overcome unfathomable obstacles to attain new levels of success, wellbeing and the very sought-after ‘happily ever after’ status. It appears that this is exactly what happened at CHEO on October 1, 2015 when nine year old Hodan Osman was surprised by a team of princesses. After roaming the hallways of the medical day unit searching for Hodan, the princesses sprinkled a little fairy dust above her head and within seconds she was magically transformed into a princess. With her sparkling tiara, her pretty dress that twirled just so, and her winning smile Hodan looked the part. The princesses explained that they had come a long way to announce that she had been chosen to represent all of CHEO’s remarkable patients as part of the Children’s Miracle Network Champion presented by Walmart Canada program. To date, Walmart has raised $5 million for CHEO and $100 million for Children’s Miracle Network. As part of Hodan’s ‘princess in training’ duties she will represent CHEO and the Children’s Miracle Network throughout the year at various fundraising events. As a patient ambassador she will share her story of how she got better with the help of the team at CHEO. In doing so, she will help showcase how local donor dollars, and the unwavering support of her family, her medical team and her extended family and friends have made a positive impact on her recovery. And, thanks to Walmart, this experience culminates with a trip to Disney World to meet other Champions from across Canada and the United States, and it is where she will complete her princess training. Though her story sounds like it is straight out of a fairy tale, it has not been without a bump or two in the road – in fact, Hodan truly earned her tiara by slaying a very large and mean-looking dragon: she beat cancer! Hodan was diagnosed with acute myeloid leukemia (AML), a cancer of the blood, at age seven. She had to face countless blood tests, bone marrow aspirations, and chemotherapy treatments. Her indefatigable spirit is what carried her through this twist of fate. She made the best of every situation – when she was in isolation and too fragile to go out of her room she opened a nail salon offering manicures to her oncologist, the nursing staff and other patients. She made new friends and enjoyed doing crafts in the playroom. Her positive attitude and sense of optimism carried her – and her family – through her fight against cancer. As it turns out, the storylines of classic fairy tales may not be so unattainable; after all Hodan is indeed a brave young person who overcame unfathomable obstacles. She also reached new levels of health and wellbeing, and we hope that she also finds the sought-after ‘happily ever after’. YOU WILL BE MISSED BUT NEVER FORGOTTEN MAX’S UNRELENTING LOYALTY TO OUR CHILDREN AND YOUTH WILL CONTINUE TO MAKE A DIFFERENCE FOR FAMILIES WHO NEED CHEO. Max Keeping has been CHEO’s greatest ambassador and champion for the past 40 years. His presence on the CHEO Telethon each June marked another year of countless appearances at special events, hospital visits to raise the spirits of kids and families, and advocating for them nightly from the anchor desk. Max’s immeasurable love for the children of our community was recognized in 2003 when CHEO named a new wing in his honour. The Max Keeping Wing stands as a permanent reminder of his incredible dedication and contribution to CHEO and the difference Max continues to make in the lives of all children and families we have the privilege of serving. In accordance with Max’s wishes, the new Max Keeping Fund for Kids has been established. This fund will ensure that his name and his unwavering support for children and families is ever present within CHEO and throughout our community. On behalf of all CHEO patients, families, doctors, nurses, researchers and staff, we thank you for always being there for us. To make a donation please visit www.cheofoundation.com. 3 Donor dollars at work and the importance of your continued support When you choose to support the CHEO Foundation, rest assured your donation will benefit areas where funds are needed most. While funding needs at CHEO change from year to year, some things remain constant: the need to purchase specialized and up to date medical equipment, and to support work being done in specialized clinics. It is paramount that our doctors, nurses and staff are working with the best tools when caring for our children and youth. To show how your support has helped CHEO over the past year, and reinforce how important your continued support is to your children’s hospital, we have put together a short list of recent equipment purchases that community donations have funded and a few examples of equipment that the hospital is looking to purchase in the near future. CHEO’s patients range in age from pre-mature babies weighing little more than a few grams to 18 year olds battling obesity - and kids of every age, size and weight in between. Equipment must match this vast assortment of sizes but it’s not only items like blood pressure cuffs, incubators and surgical tools that fall into the “one size does not fit all” category. With your continued support, we can arm our medical staff with the equipment and tools that will help them send more and more children and youth home healthy! Thank you for helping to fund: Equipment piece Description Transport VentilatorPortable units that enable patients to breathe while being transported between hospital units. These ventilators are used in multiple areas including the Neonatal Intensive Care Unit, Pediatric Intensive Care Unit and the Emergency Department. 4 Cost $31,000 High Frequency Jet Delivers oxygen in tiny little bursts with as little ventilator pressure as Ventilatorpossible so tiny babies can breathe during treatment. This unit protects the fragile new lungs of CHEO’s tiniest patients. $42,000 Concussion ClinicThis clinic will help our concussion specialists with symptom assessment and diagnosis for patients suffering post-concussion symptoms. It will assist in identifying the need for additional therapies and faster recovery times for patients with concussions. $40,000 We still need your support for: CT ScannerThis scanner will provide faster scans and more precise and detailed images – including spiral imaging and 3-D capabilities. It will transform the ability to diagnose patients and will have tremendous impact on patient care. Most importantly, it will minimize radiation for CHEO’s young patients. $3 million Portable This machine allows nurses to see through patients’ skin to Transilluminator find the tiny veins in their arms. By minimizing the number of needles for tiny ones, this machine ensures the quickest and most painless treatment for patients and relieves stress for worried moms and dads. $5,995 These are just a few examples of the difference you have made at CHEO, and why your children’s hospital will continue to need your support for years to come. Thank you! What is Children’s Miracle Network®? Children’s Miracle Network raises funds and awareness for 170 member hospitals, 14 of which are in Canada. Donations stay local to fund critical treatments and healthcare services, pediatric medical equipment and research. Its various fundraising partners and programs support the nonprofit’s mission to save and improve the lives of as many children as possible. THE BRICK EXTRA LIFE Coming on board to help kids in our community from September 2015 – February 2016 Last year the Brick Ltd. employees pledged their commitment to support children’s health care and raised over $24,000 for CHEO. The Brick is Children’s Miracle Network’s newest Canadian partner. “The Brick is a great Canadian retailer which has provided value to the homes of Canadians. It just makes sense to partner with this community-focused business,” said John Hartman, Chief Operating Officer, Children’s Miracle Network, Canada. The Brick is committed to helping improve the lives of children and their families. As a part of their fundraising efforts, The Brick has introduced Brickley Bear to help raise funds. Brickley Bear, made by Gund®, is available at The Brick’s 220 stores nationwide and online. All proceeds from the sale of Brickley Bear go to the Children’s Miracle Network and support the children’s hospital serving the community where the purchase was made. The 2016 campaign bear is a Brickley SuperHero Bear and a great addition to any child’s toy collection! The campaign also raises funds for CHEO through vendor programs, employee giving, icon sales, and corporate giving. We are thrilled to welcome The Brick to our CHEO family and we encourage individuals to drop into their local Brick stores between September 2015 and February 2016 to help make miracles happen for children in our community and across the country. Play games and November 7, 2015. kids on The gaming phenomenon of Extra Life is back! On November 7, 2015, join thousands of gamers across North America in their goal to raise awareness and money for their local children’s hospital. Whether you enjoy table top board games, playing sports or traditional video games, you can fundraise for CHEO and be a part of the Extra Life movement. This year Ottawa turned up the dial and began its very own Extra Life guild. The guild connects local gamers together through discussions, making friendships and sharing fundraising tips! Be sure to register today at www.extra-life.org or search Extra Life Ottawa Guild on Facebook. It’s not too late to sign up and start fundraising today. SMALL CHANGE. BIG DIFFERENCE. Register for E-Billing by December 31st and we’ll donate $5 to the Max Keeping Fund for Kids at CHEO. GO PAPERLESS TODAY heal hydroottawa.com • 613 738-6400 Andy, 6 years old CHEO Patient 5 Legacy Story The Bird Man of White Lake Born in Arnprior in 1938, Wayne Robillard was the first born in Harrison and Christina Robillard’s family of seven. He spent most of his career working at the Kenwood Mills in Arnprior while living in nearby White Lake. He played hockey there and started a Sunday morning hockey pick-up game in the 1960’s at the old arena in Arnprior. That game is still going strong today. Wayne loved the outdoors and lived a modest life very close to nature on property near White Lake. He raised Huskies and was an avid fisherman. He dabbled in taxidermy and there is an example of an Ottawa River Muskie on his brother Jim’s wall to prove it. Later in life he got into racing pigeons. In fact, he was known locally as “The Birdman of White Lake.” He had a sense of adventure and while he spent most of his life in the Ottawa Valley, he did enjoy some road trips in his Volkswagen Beetle with his brothers Monty and Jim. He also loved motorcycles and fixing up old trucks. His brother Jim said, “He had the money to go buy a new truck, but instead he enjoyed fixing up old half ton pick-up trucks and getting them running.” Though Wayne never married or had children of his own, at some point in his life he made a decision that would impact the lives of many children and their families. He decided that he was going to leave the majority of his estate to CHEO. He never notified anyone at CHEO that he had made this decision. He just quietly did it! His brother Larry credits Wayne’s love for family and children as the motivator behind his generous gift to CHEO. 6 We wish we could thank Wayne in person for his most generous gift to CHEO, however we are now only able to thank his surviving family: his siblings, Monty, Shirley, Jim, Larry, Carey, Rodney and their families. “To know even one life has breathed easier because you have lived. This is to have succeeded.” Ralph Waldo Emerson Through a generous bequest of about $350,000 made from his estate, Wayne will continue to leave a legacy that reflects that children were a priority in his life. Consider creating a truly lasting legacy that reflects what was important to you during your lifetime by including CHEO in your estate plans. If you are interested in more information about making a legacy gift to CHEO, please contact Megan Doyle Ray, Manager of Legacy Giving and Memorial Programs at 613 738-3694 or [email protected] or by visiting www.cheofoundation.com/donate/legacy-giving. Shelley Ordorica and Dr. Olga Jarinova, of CHEO’s Molecular Genetics Lab, proudly show off the new NextSeq500 sequencer. From the Hospital: A little knowledge goes a long way Imagine finding out you or your child has an inherited heart condition. Many scenarios might run through your mind. You wonder…have I passed this on to my children? How might this affect my life and theirs? As a parent, you want to protect your children; you want them to lead healthy lives and you want to do everything in your power to keep them safe. At CHEO, we understand this and want to help. That is why, starting July 1st, CHEO introduced more comprehensive genetic testing for inherited heart conditions for patients both in the Ottawa community and across Ontario. Early detection is key to managing and fighting disease — inherited heart conditions are no different. Frighteningly, it is estimated that over 700 children and youth in Canada die from sudden cardiac issues each year. But by detecting the genes that cause heart conditions, steps can be taken to manage the risks. As a nationally recognized leader in genetic care and research, CHEO is using the latest technologies, called Next Generation Sequencing, to read patients’ genes and unlock the clues to what makes them tick. CHEO’S Molecular Genetics Laboratory is the only centre in Ontario designated by the Ministry of Health to provide this new testing for inherited cardiomyopathies. Cardiomyopathies are conditions that weaken the heart muscle, decreasing its ability to pump blood. While not all cardiomyopathies are inherited, genetic testing is used to help diagnose the ones that are, and to identify which family members may be at risk of a life-threatening cardiac episode. How it works: Thanks to generous donations from the community, the CHEO Foundation was able to contribute $339,500 so that the hospital could purchase and begin using a new instrument, a NextSeq500 (Illumina). This special instrument joins our MiSeq sequencer (Illumina) in diagnosing a range of conditions and aiding with life-saving research. These machines allow CHEO geneticists to examine a person’s genes much faster than any technology we’ve had before – meaning results and information to your doctor and your family sooner. Once a machine has read your genes, genomic specialists, genetic counsellors and scientists compare your genes against a human genome database and consult a variety of other sources to find out what your genetic make-up is saying about you. The sequencing machines are able to read your relevant DNA regions hundreds of times making the results highly accurate. If a genetic risk factor is identified in a family, then other family members can pursue genetic counselling and testing to determine if they could be at risk. Parents can work closely with their child’s care team to manage the condition by making lifestyle adjustments like modifying your child’s physical activity routine and taking medication, if needed. In the case of inherited heart conditions, a little knowledge can save lives and change lives, from newborn infants, to teenagers in competitive sports, to family members of all ages. This is simply the beginning of a new generation in medicine. The field of genetics is becoming more and more sophisticated. Soon we will be entering what scientists call “the era of personalized medicine,” where new advances will allow geneticists to read genes like a book, meaning medical decisions and treatments can be tailored specifically to your story. The future of genetics is looking bright! 7 Fairmont Château Laurier Trees of Hope for the Children at CHEO Canadian Tire at root of event’s success! continue to make a positive impact for the families who rely on CHEO.” 8 Pat Winchester is the Operations Manager at the Canadian Tire in Orleans, and for her, the Trees of Hope event is not only a wonderful, seasonal event that she and her staff participate in and support every year, it also holds a special place in her heart because of a personal connection to CHEO. When Pat’s daughter was a teenager she frequently visited CHEO and she is thankful for the medical staff’s expertise and knowledge that helped her daughter recover and become the woman she is today. She also knows that many of the staff at Canadian Tire have needed CHEO whether their child has a chronic illness or have just had to make the occasional visit. Many thanks to all those who have volunteered, attended, donated, or participated in any of our events. Your devotion to our children’s health is greatly appreciated. We look forward to seeing you at our upcoming events. Special thanks to Smiling Cat Inc. (www.smilingcatinc.com), whose support of CHEO Foundation projects throughout the year helps make this beautiful newsletter possible. For the past four years The Ottawa Valley Dealers group (owners of Canadian Tire stores in the city) chose to support the Trees of Hope event by not only entering a team in the tree decorating contest, but also by providing the artificial holiday trees that teams decorate during the event. Over the years the trees can become a little worse for wear and the team at Canadian Tire is there to donate new trees to make sure each team has a beautiful canvass as they begin their seasonal creativity! This 18th annual Fairmont Château Laurier Trees of Hope event will take place on Monday, November 30th, 2015 from 4:45 – 6:30 p.m. and once again teams will do their best to create the most beautiful holiday tree. An incredible array of silent auction items, delicious treats, and beautiful music adds to a festive atmosphere that warms the heart and gets everyone into the holiday spirit. All of the trees will be on display in the halls of the Fairmont Château Laurier throughout the holidays. This year the teams will be creatively challenged to decorate within two themes: 1) Royal Tree Theme – purple and gold should be used to salute the many Kings and Queens the castle has hosted over the years and 2) Nutcracker Theme – Let the spirit of this famous ballet shine through using soldiers, toys, ballerinas and more. The beauty of the holidays will be on full display thanks to these wonderful themes. Make sure The Trees of Hope for the Children at CHEO is in your calendar and we will see you at the Fairmont Château Laurier on November 30th. For more details please visit www.cheofoundation.com. The Fairmont Château Laurier’s Deneen Perrin says, “Our friends at Canadian Tire truly demonstrate the spirit of the Trees of Hope event and we are so thankful for their commitment and enthusiasm, and for playing such a big role in this important event. Last year we raised over $80,000 and we are hoping to surpass that goal and For additional information on entering a team in the tree decorating contest, sponsorship opportunities or donating silent auction items please contact Deneen Perrin, Fairmont Château Laurier at (613) 562-7001. Don’t forget to vote for your favourite tree for the People’s Choice Award. Be a part of the magic! Teddy Bear Times is a semi-annual newsletter for donors, supporters and friends, published by the Children’s Hospital of Eastern Ontario Foundation. If you have any questions or comments please contact the CHEO Foundation or visit www.cheofoundation.com. CHEO Foundation 415 Smyth Road Ottawa, ON K1H 8M8 (613) 737-2780 Publications Mail Agreement No. 40063574. Return Undeliverable Canadian Addresses to:
Similar documents
Read the full newsletter. - Children`s Hospital of Eastern Ontario
to raise money for the Children at CHEO.
Once again the CHEO Christmas season kicked off with “The Trees of Hope
For The Children At CHEO.” On November 26th, 15 corporate teams gathered at the
beau...
live the dream and help the little ones at cheo
Visit the Dream Home in person
at 800 Percival Crescent, Manotick.
If an in-person visit isn’t possible
take a fabulous virtual tour online
at the newly designed site: www.
dreamofalifetime.ca. The...
The Legacy of Estrellita and Yousuf Karsh
saying thank-you for some benefit they or others have
received. Many leave a legacy gift to CHEO as an
expression of hope that new cures and treatments will be
found to help save young lives. Every...