Fall/Winter 2014 - Clayton Dabney Foundation
Transcription
Fall/Winter 2014 - Clayton Dabney Foundation
Annual Newsletter Fall/Winter 2014 Clayton Dabney’s Dan Bower’s Approved for Clinical Trial D young children who had recurrent ependymomas that had failed to respond to surgery, radiation therapy and chemotherapy with Sirolimus, an Bowers, M.D. is a pediatric oncologist at Children’s an inhibitor of a well-known Medical Center in Dallas and an Associate Professor at cancer growth promoting In This Issue Clayton’s Celebration............... 3 Kissed by an Angel................... 6 Kid’s Golf Classic....................... 8 Halo Group...............................14 UT Southwestern Medical School. Dr. Bowers specializes in pathway called mTOR. children’s brain tumors and spinal cord cancers. He is also a Surprisingly, both of these children’s tumors nearly completely member of the Clayton Dabney Board of Directors and serves disappeared. Furthermore, both children had essentially no as Chair of the Review Committee, the group that reviews and side effects from the Sirolimus. Upon further investigation, we approves case referrals that Clayton Dabney identified that the mTOR pathway was often receives from across the country. We are proud active in childhood ependymomas. to announce that Dr. Bowers has been awarded Everolimus is a more potent inhibitor of a grant from Novartis Pharmaceuticals to begin mTOR than Sirolimus. This drug has already an exciting new clinical trial. been proven safe and effective for certain types of kidney cancer in adults and a rare type of childhood brain tumor called a Novartis Approves Clinical Trial for Ependymoma Study E pendymoma is the third most common form of childhood brain tumor and most often occurs in children less than 5 subependymal giant cell astrocytoma. If we can prove that Everolimus has activity against ependymomas, this will be the first effective chemotherapy drug for this disease and could result in substantial improvements for children with ependymomas. Over the past 18 months, we have developed a pilot study years of age. Fortunately, most children with ependymomas examining the activity of Everolimus for 18 children with will be cured following surgery and radiation therapy. recurrent ependymomas. We have applied for and been Chemotherapy does not improve the prognosis for children with awarded a grant for $295,000 from Novartis Pharmaceuticals ependymomas, and therefore chemotherapy is rarely utilized to support this study. UT Southwestern and Children’s Medical for children with newly-diagnosed ependymomas. At time of Center will be the lead study center for this clinical trial. If recurrence, children are often treated with additional surgery, this study demonstrates that activity, we plan to submit an radiation therapy and chemotherapy. Unfortunately, treatment application for a much larger study of Everolimus for both for recurrent ependymoma is rarely effective and most children newly diagnosed and recurrent ependymomas to the Children’s die from the cancer. Oncology Group, the organization that conducts national A few years ago, in an act of desperation, we treated two clinical trials in the United States. 1 Chairman’s Message It is hard to believe that my two- members. Each year they set the bar higher and higher year tenure as Chairman of this through innovative and unique fundraising initiatives along great foundation is coming to an with critical program support for desperate families in the end. It has been an incredible two Houston area losing precious children to cancer. We also years and I am honored to have have some extraordinary individuals who lead outside had this opportunity. First and fundraising events for Clayton Dabney that I would like to foremost, I would like to thank you, thank and recognize: Ralph Eads (Caliente Invitational in our donor communities in Dallas, Houston and throughout Houston); Mike Burress and Steve Burke (Crawfish Boil in Texas, and the foundations who provide financial support Dallas); and Buck Weatherby (Red-Mix Charity Classic in from across the country. Your continued support validates Dallas). Thank you all for your selfless efforts on behalf of that the mission of Clayton Dabney serves a necessary Clayton Dabney. and critical need in our shared community. Next, I would Clayton Dabney for Kids with Cancer made some like to thank the board members of Clayton Dabney for significant changes in the past two years. Through the their support over the past two years. I am proud of what generosity of our donor communities and the careful we have accomplished together and applaud their hard stewardship of those funds, Clayton Dabney has a healthy work and dedication. I am also grateful to Renee Lange, reserve that is being used to expand our core program, President of our Houston Affiliate and her fellow board Medicine of the Heart. In 2014, Continued on Page 15 President’s Letter 2014 has been another extraordinary year for CDF raise awareness and financial support for CDF. I am profoundly thankful to the dedication and efforts Houston thanks to the support of our Houston board who continue to eagerly rise to of our donors, board members each opportunity they are given to make a difference in and community partners. We the lives of families who are facing the devastating loss kicked off the year with a fabulous of a child to cancer. We consider it a privilege to help Kissed by an Angel Fiesta at the these families build everlasting memories. The vision home of Paige and Todd Johnson, which was chaired by and motivation demonstrated by the board will allow us Sissy Roberts and board liaison, Mimi Marix. The event to involve even more of the Houston community in the raised record funds for KBA in Houston and educated coming years and allow us to help even more families here many new community members about the foundation. in Houston and across the country. Special thanks to Lisa and Ralph Eads who again made I am excited to announce that Rex Whiteside will assume a remarkable impact for CDF Houston with the second the role of President of the Houston board in 2015. Rex Caliente tennis tournament. Their generosity and passion and his wife, Kristi, have been dedicated supporters of were simply infectious, which was demonstrated by the CDF for many years. With his leadership, we are sure to many friends and tennis enthusiasts who came together to bring to life our vision for the future. 2 Leadership Transition at Clayton Dabney Clayton Dabney is pleased to announce that Maggie Graham will take over as Chairman of the Board of Directors beginning January 1st, 2015 through December 31st, 2016. We are also excited to announce that Rex Whiteside will take over as President of the Houston Affiliate Board of Directors for the same term. Maggie Graham – Chairman of the Board 2015-2016 Rex Whiteside – President, Houston Affiliate Board 2015-2016 Maggie Graham has been involved Rex Whiteside graduated from the with Clayton Dabney since 2004. SMU Cox School of Business and She has served on the Kissed by an has been in the financial services Angel and Kids Golf committees, industry for over 20 years. Rex lives and helped co-chair Clayton’s in Houston with his wife Kristi and Celebration. Maggie is the Program Chair, overseeing their two children. He and Kristi both sit on the board of the gift box and the crafting program. Maggie is married CDF and have been active supporters since 2008. The to John Graham and they have two grown children. She Whiteside family has a strong sense of community and taught preschool for over 10 years and now helps manage are active in a number of organizations such as the Young 3G Oil & Gas. Maggie is a member of the Junior Charity Survivors Coalition, Texas Children’s Ambassadors and League, a volunteer at Children’s Medical for almost 10 Post Oak Baseball. years, and is a supporter of the USO. New Faces at CDF Kristin Rodriguez – Development Director Emily Price – Development Assistant Kristin joined CDF in Emily grew up in San Kaylie Peska – Marketing Coordinator and Executive Assistant August 2014 as the Antonio and graduated Kaylie joined CDF Houston Development from the University in February 2013 as Director. She is a native Houstonian and of Texas in 2011 with a degree in the Executive Assistant in our Dallas lifelong Longhorn fan. After attending Corporate Communications. She stayed office. She received her degree in Mass the University of Texas, she spent two in Austin for two years following college Communication from Sam Houston State years in Chicago. Following her return to to work with Young Life, then moved University, where she enjoyed producing Houston, Kristin worked at the Muscular to Houston to marry her husband an award winning nightly newscast Dystrophy Association for two years and Matt in the fall of 2013. Emily works in and being an active member of Zeta then spent six years with the American Clayton Dabney’s Houston office as the Tau Alpha. Prior to joining CDF, Kaylie Heart Association where she was Vice Development Assistant. In her spare worked in the healthcare industry in President of Social Events. She and time, she and her husband are Young Texas and Arizona. She then decided to her husband, Dan, have two daughters, Life leaders at Lamar High School and follow her heart and join the non-profit ages 6 and 2. She spends much of her members at Grace Bible Church. sector. Kaylie enjoys travelling abroad spare time volunteering at her daughter’s and college football. school and enjoying the great outdoors with her family. 3 4 Clayton’s Celebration Happy Birthday, Clayton Dabney Style!! This past February 26th, on what would have been Clayton Dabney’s 25th birthday, more than 200 guests gathered at the Dallas Country Club to celebrate the birthdays of the more than 2,700 children Clayton Dabney for Kids with Cancer has served since the inception of the foundation in 1995. It was a glorious and blustery February day that began with birthday games for guests in the foyer that included a cake walk and a wine toss. As guests entered the ballroom they were seated and served the chef’s special birthday party lunch of grilled cheese and tomato soup, perfect for a chilly winter’s day. Guest were then treated to music and more fun and games with headliner and kid’s party specialist, Eddie Coker. Luncheon speakers included a welcome by Clayton Dabney Chairman, Bob Carter, special guest Shelby Dabney (Clayton’s mom) and Patrick Leavey, M. D., pediatric oncologist at Children’s Medical and Clayton Dabney board member. The luncheon ended with guests singing Happy Birthday to all our angels and then taking the table balloons out to the terrace and releasing them into the gorgeous winter sky. Net proceeds exceeded $50,000 benefiting Clayton Dabney. We would like to recognize and thank Leslie Ficke, Maggie Graham and Lee Rury for organizing this event, and the many volunteers, sponsors and attendees of the lunch. Underwriters and Sponsors Gala Party Suzanne McGee Trish Alessio Ellen & John McStay Dr. Robert W. Baird Jenny & Adam Saphier Susie Barnett Bash Betty Bullington/Mersina Stubbs Crawfords/Daniels/Nolans/Utleys/Toons Mary Sue Cullins/Frances Templeton Ann & John Delatour Mary Anne Dunne/Kathleen Neely Claire Emanuelson Maggie Graham Katherine Klingaman Martha & Donnie Miller Arlis & Beverly Parkhurst Randa & Doug Roach Brooksie Braden Stacey & Dan Branch Carmen & Bradford Bright Tonya Brown Sarah Carr Dee & Dodge Carter Kathy Crow Junior & Ed Esquivel Kathryn Etcheverry Leslie & Brian Ficke Sheryl & Bruce Ficke Ola & Randall Fojtasek Elizabeth & Jeff Fronterhouse Carol & Gifford Touchstone Janet & Joel McCarty Shin-dig JoAnne & Eddy Moore Pam & Jeff Ellerman Martina Goff Michelle & Roger Johnson Stephanie Mercer Kristy Robinson Kathy & Bill Shuford Marilyn Smith Mona & Grey Stogner Elisa & Stephen Summers Mary & Mike Terry Lisa Walker Lori Whitlow 5 6 Kissed by an Angel Houston H ouston’s 8th annual Kissed by an Angel was a spectacular event. More than 200 women attended the flirty, “Fiesta” themed evening at the home of Paige and Todd Johnson. With mariachi music in the background, the lovely ladies dined on Mexican food from the legendary El Patio while spouses of special underwriters served as “waiters”, keeping the evening festive well in to the night. Event chairs Paige Johnson and Sissy Roberts raised record breaking net funds of $160,000 for CDF. They, along with CDF, would like to thank all of the underwriters, committee members and contributors who made this an evening to celebrate. Underwriters and Sponsors Host Committee Angel Host: Paige Johnson Chair: Sissy Roberts Committee Names Gina Aaronson April Abello Laurie Allen Annie Amante Kelley Anderson Caroline Bailey Sheri Bailey Ellie Bale Cissy Beeler Nini Bekhradi Maureen Berry Gina Bhatia Heidi Binet Gayleen Breeding Martha Britton Jennifer Brown Marlo Bruce Laurie Bruce Maddox Shana Burrow LT Cameron Anne Carl Kara Childress Evans Christ Michele Clements Carrie Colbert Lisa Cook Martha Crawford Flora Crosswell Leah Crosswell Hilda Curran Carla Dawson Jill Deutser Tricia Dewhurst Sara Dodd Elizabeth Dukes Krista Dumas Lisa Eads Pepper Edens Courtnay Elias Cindy Farmer Shawnna Fatjo Susan Finnegan Laura Fondren Courtney Fortney Ellie Francisco Lauren Friedman Eleni Fuller Ruth Gay Tracy Gay Anita Gaylor Andi Alyse Jewelry April Abello Laurie Allen Kelley and Eric Anderson Back Row Antiques Sheri Bailey Cissy Beeler Elisabeth Bickham Heidi Binet Claire Boyles Jill Brown-Brown Anne and Noble Carl, III Kara Childress Jill Deutser Tricia Dewhurst Jennifer Ducote Elizabeth Dukes Susan Finnegan Ellie Francisco Eleni Fuller Merrill Hafner Terri Havens Natalie Horlock Marjorie Jacobe Ally Jafarnia Lisa Kurtz Liz Lockwood Paula Mentz Cristin Miller Kelli Mize Suzanne Montague Alix Nakfoor Suzanne and Bill O’Donnell Gail Orr Christina Papandreou Joy M. Randall Angie Reckling Jackie and Al Richey Shanna Schanen Helen Schmidt Kate Scott Carson Seeligson Raquel Segal Celina Stabell Joan Stedman Aliyya Stude Marcy E. Taub Janna Webber Randa Weiner Anne Marie Wood Joy and Doug Yeager Salli Youtt Design Cherub Angel Karol Barnhart Gina Bhatia Amber Bretches Camp Lonehollow Michele Clements Krista and Cameron Dumas Sally Giammalva Cami and John C. Goff Susan Gray Carol Gunn Diana Woodman Hammett Mindy Hildebrand Holthouse Foundation for Kids Susan Josey Marie Louise Kinder Paige and Tilman Fertitta/ Landry’s, Inc. Shelli M. Lindley Amy and Todd Mueller The C N and Maria Papadopoulos Charitable Foundation Mary Tere B. Perusquia Eliza Lovett Randall Randa Roach Veronica Selinko-Curran Kelly Smith Mary Stanton Smith Karen Susman Beth Tilney Stephanie Tsuru Kristi Whiteside Kim Wind Seraphim Angel Back Row Antiques Julie Baker Carrie Colbert Leah Crosswell Hilda Curran Paula Cutts Laura Fondren Katherine and Scott Galloway Sheri and Wayne Gross Stephanie Hamilton Sheri C. Henriksen Renee Lange Rachel Lawrence/Heather Mitchell Mimi Marix Christiana McConn Susie McGee Melanie Meeks Susanna Moldawer Shannon O’Brien Janis Priest Elise Reckling Amy Shaper Mary Eliza Shaper Laura Sheffield Christi Smith JoLynn Towns Beth Watt Emily Weingeist Mary Whalley Jenifer Young Guardian Angel Lisa Eads Paige and Todd Johnson Cherie Lindley Carolyn C. Light/Jeanne W. Moses Sissy and Grady Roberts Melissa and Doug Schnitzer Aimee and Wynne Snoots Special Thanks Lisa Rydman/Spec’s Sally Giammalva Lesli Giannukos Kate Gibson Susan Gray Amy Greenwood Marnie Greenwood Mary Margaret Greer Sheri Gross Carol Gunn Mary Elizabeth Hahnfeld Marci Hamilton Stephanie Hamilton Katherine Hatcher Terri Havens Amanda Hellman Sheri C. Henriksen Beth Harrell Laura Herring Christine Hoffer Jill Holstead Lindsay Holstead Katherine Honeybuckle Courtney Hopson Natalie Horlock Kay House Melissa Ison Marjorie Jacobe Ally Jafarnia Kathy Johnson Laura Kelsey Blake Kunetka Lisa Kurtz Sima Ladjevardian Gina Lamme Renee Lange Ashley Langley Rachel Lawrence Susanne Maida Mimi Marix Christiana McConn Susan McConn Susie McGee Clare McLeroy Emily Mecom Paula Mentz Amy Miller Cristin Miller Kelli Mize Susanna Moldawer Molly Montgomery Lauren Morgan Patti Morgan Amy Mueller Alix Nakfoor Shannon O’Brien Kathleen Panus Christina Papandreou Allison Parsley Jana McHenry Pam Pierce Missy Pitts Janis Priest Joy Randall Angie Reckling Elise Reckling Randa Roach Lisa Rowe-Bates Helen Schmidt Melissa Schnitzer Kim Schuenemann Carson Seeligson Raquel Segal Marlee Sikes Amy Shaper Laurel Shaper Mary Eliza Shaper Laura Sheffield Lori Shellist Celina Stabell Mary Stanton Smith Annette Stephens Melinda Stevenson Aliyya Stude Karen Susman Courtney Swanson Jolynn Towns Stephanie Tsuru Beth Watt Ellen Wagnon Kristi Whiteside Tee Wickman Christine Williams Kiki Wilson Lisa Wilson Kim Wind Robin Wombwell Ann Marie Wood Jenifer Young Salli Youtt Nicole Zarr 7 Almost a WASHOUT! For the first time in its seven-year history, the At the conclusion of the tournament, the players Kid’s Golf Classic & Splash Bash was nearly a rain headed to the Las Colinas pool for the Splash Bash out! On June 9th, all eyes were on the sky as dark and Awards ceremony. Awards were presented to the clouds rolled in early. Heavy showers rolled across top teams and fundraisers. DJ specialist, Bill Cody the fairways of Las Colinas Country Club but by 10am and his Party Time Machine kept the party rocking the skies were clearing and the rains had ended throughout the afternoon. leaving cooler temperatures in what turned out to be Net proceeds to Clayton Dabney were $30,000 a beautiful summer day, perfect for GOLF!! Sixteen this year! We would like recognize and thank Audrey teams went head-to-head in the 9 Hole Classic Schmit and Dinah Donham for chairing the event for battling long fairways and tough pin placements. the second consecutive year and to all the volunteers, 8 Underwriters and Sponsors The Scott Dabney Family The Saphier Family The Schmit Family 9 Best Ever, again! No one could have imagined a tournament better than 2013, but thanks to the hard work co-chairs, Joe Young and Tony Click, the 2014 tournament now holds the honor Centers, led by John Delatour that took home the low gross trophy. Net proceeds to Clayton Dabney amounted to of, BEST EVER! Another sold-out field marched across $130,000. We would like to recognize and thank Joe the rolling fairways and slippery greens of the Honors Golf and Tony for chairing the tournament for the second Club in Carrollton, hacking their way to the finish. But at consecutive year and to all the volunteers, sponsors and the end of the day, it was our title sponsor team, Regency golfer that played this year. 10 The Great Ball Drop BENEFITING THE Clayton Dabney Foundation for kids with cancer Title Sponsor Major Sponsors Granite Properties • Barry Brown & Jim Batjer • Maura & Tim Costello • Benchmark Title Randa and Doug Roach • Frontier Investment Mgmt. • Lincoln Property Company Hole Sponsors Scott Dennis & Doug Thompson • Cottonwood Creek Capital • Brownlie & Braden Dexter & Company • Folsom Properties • Blue Star Land • Jones Lang LaSalle • Red Steel Company Condon, Thornton, Sladek, Harrell, LLP • Metroplex General Contractors • KDC • Legacy Texas Bank Republic Title • Capital One Bank • HFF, LLP • TH Wealth Management • Cawley Partners TXU Energy • John Young • CBRE • Ben E Keith Foods • Debbie & Jack Breard Compass Datacenters • Mario Sinacola & Sons Special Sponsors The Crescent • Tier REIT • Rusty Taco • Kuby’s Meat Market • Chief Partners • Jeff Walter Joe W. Fly Company • Jason’s Deli • MAPP Construction • Dicks Last Resort Uber • Vintage Interests • Golfsmith 11 The second Caliente Invitational was held on May 2nd and 3rd at River Oaks Country Club. It was once again an outstanding event, doubling last year’s contributions and netting $135,000 for Clayton Dabney for Kids with Cancer. The event’s success is attributable to Lisa and Ralph Eads, whose generosity and enthusiasm led the charge for the big tournament. The festivities kicked off the night before at the beautiful home of Lisa and Michael Holthouse with the Men’s Calcutta Event, where the men heard the official preview stats and introductions of each tennis pro. Men picked teams to win and bought mulligans with the hopes of increasing their own chances. The following day the courts were raked, the weather was perfectly clear and surprisingly cool, and the competition was fierce. The presence of tennis pros like Mark Philippoussis, a Singles Finalist at the US Open and Wimbledon, and Jim Courier, consecutive winner of the French Open and the Australian Open and finalist at the US Open and Wimbledon, made the stakes high to impress. Mark Knowles and Rex Whiteside were victorious on day one and Danny Weingeist and Knowles had the victory on day two. The victories were celebrated that evening with a fabulous fiesta at the Eads’ home. The Clayton Dabney Foundation would like to thank Lisa and Ralph with their incredible generosity and vision that made this tournament possible so that we can help more families facing the devastating loss of a child. 12 Crawfish Boil What Dat? Four Years. 1800 lbs. of crawfish. 1600+ guests. $55,000 net proceeds raised for Clayton Dabney for Kids with Cancer. Dat is what! Thanks again to Boil organizers and hosts, Chandra and Mike Burress along with Steve Burke. This year was another amazing success for the annual Crawfish Boil with picture-perfect Spring weather, plump and spicy crawfish, grilled chicken and burgers with all the fixin’s, and great friends, old and new. Net proceeds for 2014 were $15,000 to Clayton Dabney. Redi-Mix Charity Classic The 19th Annual Red-Mix Charity Classic was held this past October at the Trophy Club in Roanoke and Clayton Dabney for Kids with Cancer was the beneficiary for the fifth consecutive year. This year boasted the largest field of players in tournament history with more than 200 golfers spread across two courses on a spectacular late October morning. Clayton Dabney would like to thank Buck Weatherby and all the good people at Red-Mix and US Concrete for their tireless efforts in putting on a first-class tournament once again. This year our socks were blown off when we were presented a check in the amount of $140,000 in tournament proceeds!! 13 The HALO Group was created for young professionals to support the mission of Clayton Dabney for Kid with Cancer by providing unique opportunities to strengthen and expand financial assistance, awareness and advocacy of families struggling with the loss of a child to cancer. HALO Group offers three membership levels beginning with our most committed membership opportunity as a Trustee Member that includes several priority status incentives. Other membership levels include the Active member and the Social Member. Visit the Clayton Dabney website (www. claytondabney.org) and click on the HALO tab to find more information on membership. In 2014, the HALO Group continued its tradition of franchise fundraising events and raised more than $25,000 for Clayton Dabney for Kids with Cancer. 14 Chairman’s Message Continued from Page 2 Lastly, I have the privilege to announce some exciting we have increased the number news for next year. 2015 will mark the 20th year of of families served by 15% and service for Clayton Dabney for Kids with Cancer. This we expect to end the year is an amazing milestone for Clayton Dabney and we having served 325 terminally-ill will celebrate throughout the year. I am also proud to children with last wishes, gifts, announce that plans are underway for an endowment family travel, special events and Leadership Transition at CDF, and a year-end celebration of financial assistance with household bills. This expansion our 20 years to thank you, our donor community that made will continue over the next five years with the hope of this all possible. It will be quite a year and I wish incoming doubling our program services. To ensure that we are Chairman, Maggie Graham, the best of luck as she takes prepared for this expansion, the Dallas and Houston the reins in January. I would also like to wish incoming boards, led by the consultants at the Center for Non Profit President of the Houston Affiliate board, Rex Whiteside the Management, participated in a joint effort to create a best of luck as well as he takes over for Renee Lange. Three-Year Operating Plan that put in place new policies and procedures that will provide the structure to achieve our long-range goals. Thank you once again and I wish everyone a happy, healthy and safe Holiday Season. Bob Carter CDF Giving Opportunities 15 NON-PROFIT ORG. U.S. POSTAGE PAID Dallas, TX Permit No. 1177 6500 Greenville Ave. Suite 342 Dallas, TX 75206 Phone: 214-361-2600 Fax: 214-217-5199 Email: [email protected] www.claytondabney.org The Clayton Dabney Foundation for Kids with Cancer provides needy families, with children in the last stages of terminal cancer, assistance in creating “Everlasting Memories.” The assistance is arranged through the parents and is anonymous to the child. DID YOU KNOW? •13,500 children are diagnosed with a new malignancy each year. •28% of these children (3,780) will not survive their disease. •40% of these children (1,512) live in financially needy households. •Clayton Dabney will serve 325 terminallyill children in 2014 across the US and spend nearly $700,000 on last wishes, gifts, special events, family travel and financial assistance with household bills. •In 2015, Clayton Dabney will celebrate its 20th anniversary as a foundation serving terminally-ill children and their families. 16
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