NPF Annual Report 2014 - National Parkinson Foundation

The mission of the
National Parkinson
Foundation (NPF) is
to improve the quality
of Parkinson’s care
ABOUT THE FOUNDATION
through research,
Founded in 1957, the National Parkinson Foundation
education and outreach.
(NPF) is a leading national organization with an extensive
network of chapters, support groups and our global
Centers of Excellence. NPF chapters offer community
outreach programs and services across the country.
NPF programs touch more than one million people a
year through our network of United States chapters,
support groups and our online resource, Parkinson.org.
NPF’s Centers of Excellence are leading medical centers
around the globe that excel in Parkinson’s research,
delivering care to more than 50,000 Parkinson’s patients.
NPF has funded more than $182 million in research,
education and support services.
1
ANNUAL REPORT 2014
Cover photo taken at McGill University by Owen Egan
CEO’S
MESSAGE
In 2014, the National Parkinson Foundation embarked on a
strategic planning process to develop an updated vision and
plan. In the process, we listened to scientists, patients and
families, community leaders and supporters like you. Our
communities from across the country told us that it’s important
to live a better life today but research for a better tomorrow
is the number one reason they are inspired.
As a result, we are committed to increasing funding in this
important area in the years ahead. Today we are making a
real difference in the lives of people who have Parkinson’s
through funding research by the brightest people in medicine
and science; by studying the disease and its symptoms so they
can be reduced or eliminated; and by developing new treatments
and approaches to care that have the greatest impact.
The cornerstone of our work is the Parkinson’s Outcomes Project: the largest clinical study of Parkinson’s
ever conducted. Launched in 2009, the project is now tracking 7,700 patients over time, with over 17,500
clinical evaluations at 21 NPF Centers of Excellence across four countries. The project’s goal is to find what
works best in the treatment and care of Parkinson’s, with the aim of slowing the impact of the disease.
Our latest research shows that expert care quite literally saves lives. That is why our network of Centers
and Chapters is so important—we are disseminating best practices and promoting transparency so that
every person living with Parkinson’s can make the best choice of treatments.
The following pages detail research successes from the past year that your support made possible.
With your ongoing assistance, we will continue to make life better for people with Parkinson’s on an even
bigger scale. We will help people live better lives today and in the future through better care and research.
Together, we can beat this disease. Your support matters and is deeply appreciated.
Warm Regards,
Joyce Oberdorf
President and CEO
2
DRIVING
RESEARCH
“
Photo: Owen Egan
FOR A BETTER FUTURE
My research team works to understand the impact of Parkinson’s
pathology on brain cells. Our goal is that new discoveries at the
cellular level could be the starting point for the development of
drugs to halt the progression of the disease. I am grateful to the
National Parkinson Foundation for funding this critical research.
Edward A. Fon, MD, FRCP-C
Lead investigator, NPF-funded research study
Montreal Neurological Institute, McGill University,
Montreal, Canada, an NPF Center of Excellence
3
ANNUAL REPORT 2014
”
In keeping with our commitment to fund
to induce Parkinson’s – in order to create a disease
trailblazing research leading to improved
model for testing new drugs.
Parkinson’s treatments, NPF awarded four
grants in 2014 for innovative scientific research
into critical questions about the disease.
Two NPF-funded teams are advancing knowledge
of how Parkinson’s spreads through the brain and
body, an essential step in developing new drugs that
Parkinson’s-related cognitive changes profoundly
affect quality of life. With NPF funding, Stephen
Goperts, MD, PhD, at Massachusetts General
Hospital, is investigating their cause by tracking
the accumulation in the body of the protein tau,
associated with impaired cognition.
slow or even stop its progression. Edward A. Fon,
Moreover, a promising new Parkinson’s exercise
MD, FRCP-C, at Montreal Neurological Institute,
regimen designed to improve high-level
McGill University, is literally creating “Parkinson’s
thinking, is under study by Giselle M. Petzinger,
in a petri dish,” examining how Parkinson’s affects
MD, at the University of Southern California.
neurons (nerve cells) and testing new drugs on
If it produces improvement, this will represent
those cells.
a huge leap forward in best care practices.
At the University of Florida Health Center for
Our 2014 grants are making possible potentially
Movement Disorders and Neurorestoration, Benoit
transformative research offering new hope to
Giasson, PhD, is studying the spread of a faulty
millions.
form of the protein alpha-synuclein – now thought
Learn more about NPF’s research programs at www.parkinson.org/research.
4
BETTER
“
CARE
FOR LIVING WELL TODAY
The data from the Parkinson’s Outcomes Project strongly show
that neurological care and expertise favor a positive outcome for
patients affected by Parkinson’s disease. The data gathered in this
Photo: Jesse S. Jones,
University of Florida
unique research project is advancing the world’s knowledge that
lets people live significantly better lives with Parkinson’s.
Michael S. Okun, MD
”
NPF National Medical Director
Co-Director, University of Florida Health Center for Movement
Disorders and Neurorestoration, an NPF Center of Excellence
5
ANNUAL REPORT 2014
Through the groundbreaking Parkinson’s
defined as at least annual, can save the lives
Outcomes Project, NPF is identifying best
of approximately 7,000 people with Parkinson’s
care practices with the greatest benefit to
a year in the United States.
people with Parkinson’s.
Launched in 2009, it is the largest data-driven
study of Parkinson’s treatment ever undertaken.
More than 7,700 people in four countries are
enrolled, providing an unprecedented wealth of
data linking care to outcomes for real people.
Based on the data, NPF has already issued
guidelines on best care practices, resulting in
tangible progress in treatment, particularly in
the field of depression.
What’s more, seeing a neurologist who
specializes in movement disorders appears to
offer twice the benefit of care from a regular
neurologist. Given the fact that many people
with Parkinson’s disease never see a
neurologist, or only do so every few years, these
findings will have a unique and positive impact.
The life-saving 2014 discoveries from NPF’s
Parkinson’s Outcomes Project demonstrate again
that this study is a driver of crucial progress in
beating the disease.
In 2014, data from the registry led to the
spectacular finding that regular neurologist care,
Learn more about the Parkinson’s Outcomes Project at www.parkinson.org/outcomes.
6
FOR KATHERINE CASTLE,
EXPERTISE MAKES ALL THE DIFFERENCE
“
If you are diagnosed with Parkinson’s
disease, it’s important to know you can
cope and survive. There is plenty of help
available. Your life has not ended and you
can still enjoy life. In fact, I enjoy my life
Photo: Jesse S. Jones, University of Florida
more because I have more reason to trust
and appreciate the care and support I get.
”
Katherine Castle
Diagnosed with Parkinson’s disease in 1995
7
ANNUAL REPORT 2014
After being repeatedly misdiagnosed,
Katherine calls Parkinson’s a “hydra with
Katherine Castle has lived well with
several heads – many different symptoms
Parkinson’s for 19 years, thanks to regular
under one name.” To address these various
expert care. Katherine’s experience reflects
facets, Katherine attends physical therapy,
the 2014 finding from NPF’s Parkinson’s
practices Qi Gong, and participates in a
Outcomes Project regarding the enormous
support group, saying “I like talking to people
benefits of regular care from a neurologist
who really understand.” Katherine is now
with in-depth knowledge of Parkinson’s.
discussing deep brain stimulation (DBS) with
Everything changed for Katherine when
she began treatment for Parkinson’s with
her team of experts. “I’m interested because
I want to continue to live independently.”
a neurologist who is a movement disorders
She enrolled in our Parkinson Outcomes
specialist at the University of Florida
Project because “It’s important to be involved
Health Center for Movement Disorders
in research for my own benefit and to benefit
and Neurorestoration, an NPF Center of
future patients.”
Excellence. Finally put on proper medication,
she felt an immediate difference.
To find an NPF Center of Excellence near you, visit www.parkinson.org/search.
8
NPF : 2014
THE YEAR IN NUMBERS
40,000
TRAINED SPECIALISTS AT OUR
TOLL-FREE HELPLINE,
1 - 8 0 0 - 4 P D - I N F O ,
P R O V I D E D
V I T A L
C O U N S E L I N G
FR EE, L I FE- S AVING
AWARE IN CARE KITS
WERE DISTRIBUTED
T O
TO HELP PEOPLE
38,500 CALLERS
73,500
DONORS
7,700
PATIENTS
9
GET BETTER CARE
IN
A
HOSPITAL
SUPPORTED OUR MISSION TO
I M P R O V E
T H E
Q U A L I T Y
OF LIFE FOR PEOPLE LIVING
WITH PARKINSON’S DISEASE
ENROLLED IN NPF’S PARKINSON’S
OUTCOMES PROJECT, THE LARGEST
CLINICAL STUDY OF PARKINSON’S,
AT 21 NPF CENTERS OF EXCELLENCE
PARKINSON.ORG (THE GO-TO RESOURCE ON THE WEB) HAD
1.3 million UNIQUE VISITS
25,000 WALKERS
PARTICIPATED IN NPF’S MOVING
DAY®, IN LOCATIONS ACROSS
THE COUNTRY, RAISING CRITICAL
AWARENESS OF THE DISEASE
IN LOCAL COMMUNITIES
NPF’S VIBRANT
ONLINE COMMUNITY
ENGAGED WITH
FANS MORE THAN
54 MILLION
TIMES
MORE THAN
1 million
PEOPLE
225,000
COPIES
OF OUR FREE EDUCATIONAL
VIEWED OUR AWARENESS
MANUALS ON 10 DIFFERENT
VIDEO, “KNOW THE EARLY
TOPICS AND NPF’S NEWSLETTER
WARNING SIGNS” FEATURING
(THE PARKINSON REPORT) MAILED
U.S. SENATOR CORY BOOKER
TO HOMES ACROSS AMERICA
10
NATIONAL PARKINSON FOUNDATION
HONOR ROLL 2014
GIFTS OF $250,000
AND ABOVE
GIFTS OF $100,000
TO $249,999
GIFTS OF $50,000
TO $99,999
GIFTS OF $20,000
TO $49,999
Estate of Alice B. Dunn
Estate of Donald L. Allred
AbbVie Neuroscience
Andrew B. and Mona Albert
Trust of Ruby R. Clawson
The Applebaum Foundation,
Inc.
Trust of Rex A. and
Josephine S. Collins
The Jane H. Berktold
Parkinson Fund
Estate of Allen F. Baciak
Dr. and Mrs. Robert and
Judith K. Cornfeld
Bloomfield Family
Foundation
Trust of Norine Matthews
The Batchelor Foundation,
Inc.
Trust of Louise M. Deere
Community Health Charities
Blackwood Family Trust
Mr. Jermey G. Gaynor
Estate of Liesel Brown
Rollin M. Gerstacker
Foundation
The Diller-Von Furstenberg
Family Foundation
Trust of Roy L. and
Berna L. Derrett
Donate For A Cause, Inc.
Lynn Diamond
The Don A. Hunziker
Memorial Foundation, Inc.
Jerry M. Lindzon
Estate of Richard A. Jordan
Parkinson’s Unity Walk
Mr. Helmut Leeser
Edmond J. Safra
Philanthropic Foundation
Medtronic, Inc.
Trust of Edward O. and
Marion Gabriel
NPF South Palm Beach
County
Estate of Theodore R.
Grimes
Parkinson Foundation of
the National Capital Area
Estate of Betty R. Hoffman
Harcourt M. & Virginia W.
Sylvester Foundation
UCB, Inc.
Monty Yokel Charitable
Lead Trust
Estate of Carol C. Price
Right at Home, Inc.
Teva Neuroscience, Inc.
US WorldMeds
Ross S. Evans
Dr. and Mrs. Bernard J. and
Judith Fogel
The Eleanor M. and Herbert
D. Katz Family Foundation,
Inc.
Trust of Elaine Kosof
NPF Central & Southeast
Ohio
NPF Minnesota
The Oreffice Foundation
The Parkinson Alliance, Inc.
Robertson Foundation
Anne Nevard Sherr
Solomon Family Foundation
Jerome A. Yavitz Charitable
Foundation, Inc.
Zuckerman Investment
Group
11
ANNUAL REPORT 2014
The National Parkinson Foundation gratefully acknowledges all of the people who made a donation of
$1,000 or more between July 1, 2013 and June 30, 2014. It is your thoughtfulness that allows us to educate
and assist people in communities across the country. We thank you for your dedicated support.
GIFTS OF $10,000
TO $19,999
Anonymous
AbbVie Inc. Employee
Giving Campaign
Trust of Rita Alexander
Leonard Miller
Frank Morrell
The New York Community
Trust World-Wide Holdings,
Inc. Fund
NPF Central Savannah
River Area
GIFTS OF $1,000
TO $9,999
Mrs. Catherine L. Bean
Mr. W. Morton Beck
J. Gordon Beckham, Jr.
Anonymous
Claire Beekman
ACBL Charity Foundation
Corporation
Mrs. Shirley Belon
AEW Capital Managment, LP
Mr. Samuel Belzberg
AIG Matching Grants Program
Patricia and Gardner Bemis
Fund of The Minneapolis
Foundation
Mr. George J. Albertelli
Mrs. Diohn Benedict
Mr. and Mrs. Richard
Alexander
Mr. David Berg
Mr. Steven Bethke
Ms. Sophia J. Rivers
Robert W. Allyn Revocable
Trust Agreement
Sathrum Family Trust
The Ame Foundation, Inc.
Alan M. Slewett
Dr. Ramin Amirnovin
Enrique and Irene Sosa
The Anders Foundation
Estate of Thomas D. Soutter
Ms. Connie Anderson
Degna Spoldi Private
Family Foundation
Kathleen and Harold Anderson
Williams & Connolly, LLP
Aileen S. Andrew Foundation
Linda and Martin Ardman
Georgia Nut Company
Otto C. Winzen Memorial
Advised Fund of the Catholic
Community Foundation
Ms. Caroline F. Brady
Mr. and Mrs. Robert S. Gibble
Trust of Richard White
Mrs. Amy Ardman Shea
and Mr. Mitchell Shea
The Bob & Dolores Hope
Charitable Foundation
Mary Ellen and Bruce Wisnicki
Associated Electrics, Inc.
Mr. Sheldon Braun
Assurant, Inc.
Mr. Charles Bray
JC White Architectural
Interior Products
Phyllis I. Wormwood Fund
E. H. Avery
Mr. Stephen F. Breimer
Isabel L. Bader
Mr. Dennis Breit
Mr. Robert Baittie
Mr. Peter Brody
Ed Baker
Mr. and Mrs. William F. Broll
Dorothy M. Ball
Lewis D. Brounell
Charitable Trust
Terry and Regina Armstrong
Family Charitable Foundation
NPF Heartland
Braman Family Foundation, Inc.
NPF Western Pennsylvania
Chelsea Therapeutics
Office Depot Foundation
Kate and Lynn A. Christianson
The Parkinson Council
W. G. Christianson Foundation
The Pratt Family Foundation
Colliers Abood Wood Fay
Real Estate Group, LLC
Community Health Charities
of the National Capital Area
John P. Clulow Fund
Robert and Joanne Crown
Income Charitable Fund
The Eccles Family Foundation
Linda and Robert P. Fetch
Florman Family Foundation
Amy and Michael L. Landa
Rita A. Lehnert
Estate of Beulah-Mae
Jones-Mitchell
MacArthur Foundation
Marian S. & Frederic T.
McAuslan Endowment Fund
The McCamish Family
Charitable Fund
Gail and Robert Milhous
NPF Western New York
Sherryl A. Woods
Ms. Milicent C. Agnor
Mr. Robert Anderson
Mr. and Ms. R. Franklin
and Marcia V. Balotti
Eugene M. Bane
Charitable Trust
Clay H. Barr
John E. and Nellie J. Bastien
Memorial Foundation
Mr. Clifford T. Bauer
Lisa D. Bertani
Mr. Robert S. Bloom
Mr. and Mrs. Herschel Bloom
Bloomberg, LP
Ms. Pamela Bond
Bongo Entertainment, Inc.
Charitable Lead Annuity Trust
ULWT of Gladys S. Borrus
COL (Ret) and Mrs. Conrad
Boterweg
Roxanne Brandt
The Brunetti Foundation
Mr. John N. Buckley
Mr. Albert L. Burnett
Donald Burns
Mr. and Mrs. Robert S. Burnstine
Estate of Hildegard Butler
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NATIONAL PARKINSON FOUNDATION
HONOR ROLL 2014
GIFTS OF $1,000
TO $9,999 (continued)
The Daus Family Foundation
David O. Davis
Ms. Donna de Molina
Ms. Judith Canel
Leo Deboer Family Trust
Mr. and Mrs. Michael Cannizzo
Mr. James Capalino
DeFreitas Family Charitable
Gift Fund
Gary O. Caris
Delouri Farms, Inc.
Mr. Jeff Carson
Mr. Jeffrey L. Dennis
Harry Wayne Casey
Charles H. Denny, III
Charitable Trust
Cemex Materials, LLC
Catholic Care Center
Dr. Edward M. Caulfield
Mr. Vernon F. Chalfant
Dr. and Mrs. Craig E. Chalfie
The Chalfont Foundation
Mr. John Cheatham
Chicago Bulls Charities
Chicago Power And Process,
Inc.
Chinowth Charitable Lead Trust
Ms. Josephine Chu
Mr. Anthony B. Cimmarrusti
Mr. Alan L. Clark
Billie Determan
Mr. Pascal W. Di Fronzo
Evelyn Diament
Robert and Michelle Diener
Foundation
DL Power Technology Corp.
Dr. Joe Dockery-Jackson
Mr. David Drehobl
Mark Duffy
Ms. Lois Dyk
Eagan Family Foundation, Inc.
Dr. Lawrence Elmer
Mr. Edward Erwin
Mrs. Joyce C. Gumm
Harriet Ford Dickenson
Foundation
Gustaf Westfeldt McIlhenny
Family Foundation
Ms. Anne Fortney Riddell
The Stephen and Elisabeth
Frank Foundation
Freedom Fresh, LLC
Mr. Leslie Friesen
Mr. and Mrs. David and Sheila
Fuente
Mr. Jeffrey R. Gural
Jerry Haar, Ph.D.
Mr. Chip Hadaway
Mr. William W. Hague
Estate of Martin Hamburger
Mr. Jeff Hamer
Estate of Lillian Handel
The Russell and Ronalee Galbut
Family Foundation
The Hansen Trust
Robert Gathman
Ernest “Tommy” Hayden
and Harriett “Rusty” Jean
Thomas Fund
GE Healthcare
Mr. Joel Geeske
Mr. Richard K. and
Mrs. Cheryl Gelber
Mr. and Mrs. John Gergich
Dr. Kathryn Gerken
Ms. Judith S. Gillies
James Gillis
Global Payments, Inc.
The GMK Family Fund
John A. Hash, Jr.
Mr. Gerald C. Hayward
Ms. Marie Head
Health Care Service Corporation
Mr. and Mrs. Mark Heimer
Mrs. Marianne Heineman
Ms. Debra Hernberg
Mr. Arthur H. Hertz
Marilyn and Donald Hibbert
Mr. Bill Goloway
The Hibbert Family Foundation
Mr. Harold Hill
Mr. Henry J. Faarup
Dr. Moses and Beatrice
Goodman Fund
Mr. John M. Hogan
Fatboy’s Saloon
Ms. Patrice Gordon
Ms. Nancy E. Hogan
Coldwell Banker Residential
Real Estate Cares
Erin Fauber
H. Gail Gordon
Mr. Ken Holec
Helen and Charles Fedalen, Jr.
Mr. Peter M. Gotsch
Holland & Knight, LLP
Mr. Edward D. Colina
Mr. Steven Feldman
Mr. Kenneth Granat
Mr. David Holtze
Community Health Charities
of Florida
Fidelity Brokerage Services, LLC
Mr. and Mrs. Douglas T. Granat
Ms. Robin Holzhauer
Jane Feldman Fields
Mrs. Carole Gray
Nancy Hopkins Reilly
ConocoPhillips Company
Ms. Jennifer T. Findley
Green Cohan Foundation
Mrs. Geri Howard
Trust of Edna Cottun
Mr. Mark E. Fine
Meg Green Family Foundation
Ms. Peggy J. Hoy
Cox Media Group
Ms. Judi Fishman
Ms. Judith S. Huss
CreativeArtistsAgency
Greenberg Traurig
The Five Millers Family
Foundation, Inc.
James H. Grew
Irving Place Capital
Management LP
Ms. Allison B. Clark
Douglas R. Clovis
Ms. Reina Cohen
Ms. Toby Cohn
Daluge Family Fund
13
Mr. Charles C. Derry
Rudolph and Hilda U.
Forchheimer Foundation, Inc.
Robert Ettleman
Mr. and Mrs. Vernon Grizzard
Denise and Barry R. Jackson
The Gerald and Joyce Dancer
Family Fund
Estate of James E. Fletcher
Mr. James A. Fletcher
Leo Daniel Foundation
The Robert & Lynne Grossman
Family Foundation
Florida Power & Light Company
Mr. Stuart Z. Grossman
Mr. Gregg A. Jacobson
Rodger L. and Gloria F. Daniels
Charitable Foundation
Ms. Kathleen Fones
Mrs. Natalie L. Gubb
Ms. Sara J. Jacoby
ANNUAL REPORT 2014
Ms. Kathleen Jackson
THANK YOU !
Ms. Lynn Jenkins
Mr. Steven M. Laufer
Ms. Irene McCallister
Ms. Katherine Neisser
Ms. Beverly A. Jensen
Mr. James Lavigne
JGB, Jr. Charitable Giving Fund
Lawson Products, Inc.
The Henry F. McCamish, Jr.
Charitable Fund
New Century Financial
Services, Inc.
Johnson Family Fund
Mr. Richard Leebow
Mr. Robert E. McCleary
New Horizon Communications
Mr. and Mrs. David Johnson
The Legacy Foundation
Newton Family Foundation
Mr. and Mrs. Robert Josefsberg
William R. Leighton, Jr., MD
James and Marie McCurdy
Family Charitable Trust
Dr. Jason R. Justice
Edward Leske Company
Mr. Miles McGrane
NPF Hawaii
JSJ Family Foundation
NPF Greater Rochester
J.W. Mitchell Company
Francis and Gertrude
Levett Foundation
Mr. and Mrs. Shawn McIntosh
NPF South Dakota
Burton and Rose Kahn Family
Foundation
Mr. and Mrs. Edwin and
Carolyne Levy
Mr. and Mrs. George and Kay
Meadors
Kaplan Family Charitable Fund
Edwin and Carolyne Levy
Charitable Foundation, Inc.
H. S. Merlin
Ms. Marilyn Lewis
Mr. and Mrs. Jon Meyer
Mr. and Mrs. Matthew R. Little
The Miami Foundation
Estate of Joan V. Littlewood
Mr. and Mrs. Stephen M. Mihaly
LMR Trucking, Inc.
Mr. Mike Miller and
Ms. Sharron G. Reiss
Mr. and Mrs. Eli G. Katz
Mrs. Marilyn Katzman
Anita Kaufman
Kayne Anderson Capital
Advisors Foundation
The Kerler Family Gift Fund
James L. Long
Mr. Leigh P. Kinnamon
Jane P. Long Fund
Estate of Marion L. Kintner
LRWL Incorporated
Ms. Mildred Kirsch
Mr. James Madden
Klispie Family Trust
Madigan Family Foundation
Knights of Columbus FR
Maurice J. Wolfe Council
Magnakron Corporation
Michael A. Kolodny
Mr. Allan Maier
Mr. Jacob Kornman and
Ms. Sandy Linver
Bernard Malberg, MD
Koshiba & Associates
David Manheim
Ms. Andria Kosich
The Kozyak-Silverman
Charitable Fund
Mr. Jeremy Kramer
Krantz Family Foundation
Ms. Stephanie Krieger
Jackie Kropman
Estate of Dianne C. Kuhrt
John C. Kupetz
Lair Family Ventures, LLC
Robert L. Lambert
Matthew M. Maguire
Ms. Anastasia Malicka
Mr. Jeffry Melnick
Merrill Lynch
Robert Nolan
Mr. Bill Nygren
Mr. Thomas J. O’Brien
Lisa Orberg
Mrs. Lisa Padget
Mr. and Mrs. Roberto and Silvia
Palenzuela
Marie Justine Palmer
Foundation
Mr. John Parker
The Wayne F. and Barbara B.
Miller Charitable Fund
Mr. and Mrs. Richard M.
Patterson
Miller Realty Family
Philanthropic Fund
Mr. Michael Peffers
Mr. Alan B. Mirken
Mr. and Mrs. Robert E.
Perkinson
James and Charlotte Monhart
Pamela I. Perry, Esq.
Mr. John Moore
Edward P. Petrosky
Ms. Elizabeth R. Moran
Estate of Clarence Ira Phillips
The Moriah Fund, Inc.
Pillsbury Winthrop Shaw
Pittman, LLP
Deborah Morris
Mr. John F. Manning, Jr.
Morrison, Brown, Argiz & Farra,
LLP
Lincoln N. Pinsky
Mr. Robert Maresca
Brian D. Morrison
The Marketing Arm
Ms. Mary M. Morrow
Mr. Robert J. Pliska
Edythe and William Marsa
Mr. Stephen Moyer
Edwin P. and Esther M.
Marshick Fund
Mr. and Mrs. Charlie Musser
Mrs. Sandy Marske
Natixis Global Asset
Management
Mr. Timothy E. Martorella
Ms. Ann M. Maxwell
Mr. Todd Mayman
Namic Insurance Agency
Nationwide United Way
Campaign
Mayo Foundation Medical
Education and Research
Ms. Joan M. Naughton
Ms. Donna Langston
Mrs. Tami Lasco
Mr. Michael J. McAvoy
Mrs. Denise M. Neiditch-Breger
Ms. Ambika Nayar
Ms. Ashlee Pitta-Lima
Mr. Ray Politano
Mr. John D. Pope
Estate of Mary F. Price
Mr. and Mrs. William G.
Pritchard
Prudential Financial
The Prudential Foundation
Matching Gifts Program
PT Solutions Holding, LLC
Lawrence Puckett
Mr. Rocco V. Pugliese
14
NATIONAL PARKINSON FOUNDATION
HONOR ROLL 2014
GIFTS OF $1,000
TO $9,999 (continued)
Ms. Mary T. Quade
Mr. Albert Rabil
Mr. Douglas Rachlin
Kenneth L. Rall
Rita Ramirez
Raymond James and
Associates, Inc.
Faye and Leonard Redlich
Rehabilitation Institute
of Chicago
Mrs. Cheryl Remmert
Ms. Katherine H. Reynolds
Mr. Bernard G. Suess
Mr. Keoni A. Schwartz
Ms. Nancy C. Sully
Milton and Miriam Waldbaum
Family Foundation
Elizabeth Scrivner
Jeff Sultan
Mr. James Walsh
Lee S. Selander
Suntrust Foundation
Mr. James D. Ward
Ms. Wendy M. Serrino
Franklin Surnamer
Mr. and Mrs. Glenn Warren
George & Elizabeth Shearer
Family Charitable Trust
Svoboda, Collins Management,
LLC
Mr. Alvin Warsaw
Mr. Robert Shearn
Hope F. Syverson
Mr. Edward Weber
SHURE, Inc.
Mr. T’s Family Foundation
Mr. John C. Weicher
Nancy Silverman
Mr. Stanley Tedford
Virginia Simmons
Mr. and Mrs. Thomas and Dana
Tellijohn
Mr. and Mrs. Harvey M.
Weidenfeld
Mr. Kerry C. Simons
Ronald N. Sinclair
Sheila Slewett
The William D. Rhodes
Foundation
The Sloan Family Fund
Ms. Virginia Richert
Edward W. Smith, Jr.
Foundation
Rocker Family Foundation
Smith & Howard, PC
Mr. Thomas Weisel
Wessel Family Foundation
Martin Tomberg
Ms. M. Wexler
Robert H. Traurig, Esq.
Trigran Investments, Inc.
Harley and Sherry Tropin Fund
Ms. Marilyn A. Smith
Trukenbrod Family Foundation
Leon V. and Marilyn L.
Rosenberg
Mrs. Mary G. Smith
Trustmark National Bank
Ms. Mary R. Smith
Mr. and Mrs. John W. Turner
Stanley and Susan Rosenblatt
Family Foundation
Martin H. Snitzer
Mrs. Esta Turner
Mr. and Mrs. Nelson Soggs
Mrs. Marc M. Twinney
Ms. Ellen R. Rosenthal
Mr. Eric F. Sombers
Mr. Richard H. Tyler
Mr. Louis Roye
Mr. Harry Sommer
Estate of V. Virginia Tyler
Regina M. Rubenstein
Union Pacific Corporation
Mr. Arthur Rubin
Soros Fund Management
Matching Gifts Program
Mr. Clive Runnells
SPX Foundation
M. Jacki and Jim Rupert
Sylvia M. Stafford
United Way Of Central
Maryland
Thomas L. Safran
Ms. Deborah Stange
The Phyllis H. Scerebini Trust
The Steel Partners Foundation
W. S. Scharff Family
Foundation
Senator Paul B. Steinberg
Ms. Liz Schaub
Mrs. Norval Stephens
Stuart Schecter, MD
Mr. Thomas Stern
Mrs. Margaret Schnackenberg
The Frieda M. & Arthur W.
Steudel Foundation
Mr. Mark S. Stephenoff
Mr. Steven D. Watts
The James and Patricia Tolley
Charitable Gift Fund
Mr. David Rogers
Mr. Richard W. Schoenbohm
15
Mr. Douglas L. Schultz
United Way Of The Bay Area
United Way of Greater
Philadelphia & Southern New
Jersey
Ms. Marilyn J. Weston
Estate of Norman Wexler
Jay Whipple Family
Foundation
Dr. Jessica White and
Mr. Christopher White
Zygmunt & Audrey Wilf
Foundation
Trust of Robert N. Williams
Mr. John I. Williams, Jr.
Anthony L. Wilner
Mrs. Jane Wilner
Mitchell Wolfson, Sr.
Foundation
Ms. Polly P. Wright
Steve Yonker
Mr. and Mrs. Edwin York
Dr. Michael Youssef
University of Miami
Yum! Brands Foundation, Inc.
Mr. Marcello Vaccaro
Mr. Amir A. Zebian
Mr. and Mrs. Russell Van Nuis
Mr. Tim Zeller
Ms. Maria Vecchiotti
Zissu Family Foundation
The Vitanovec Family
Charitable Fund
Mr. and Mrs. Donald and Lynn
Zucker
Schoenstadt Family
Foundation
Mr. Robert W. Stone
Mr. Keith Straka
Mr. and Mrs. William E.
Schroeder, IV
Mr. and Mrs. Malte Von
Matthiessen
Eleanor and Leo Zucker
Family Foundation
John and Audrey Stratman
Mr. Dennis C. Von Waaden
Mr. Daniel Zuckerman
Mr. Walter Struve
ANNUAL REPORT 2014
E. Richard Alhadeff
Leo M. Amoroso
Helen C. Avchin
Eugene M. Bane
Charitable Trust
NATIONAL PARKINSON FOUNDATION
LEGACY SOCIETY
Edward D. Jervey
Rachel K. Johnson
Yetta Kaemmer
A. Jeffrey Barash
Barry Kaye
Ben Berkowitz
Heinrich E. Kolbel
Leonard M. Bielski
Connie Bierlein
Jean Bressler
Marshall R. Burack
Legacy Society members are a select group of
Maida Burka
donors who have recognized the National Parkinson
Tom Campbell
Foundation in their wills, trusts, estates and other
Ida Hutzler
Charitable Trust
Kari Clark
planned gifts. Their generosity and forethought
Estate of Lewis F. and
Mildred E. Collier
will help thousands of Parkinson’s patients live
Richard and Susan
Comeau
better lives in the years to come. We would like to
Robert A. Coppenrath
recognize the following Legacy Society members:
Deloris Crews
Thomas A. Curtis
Burke and Rena Dambly
Hanes Lassiter
Helmut Leeser
Dorothy Marienau
Erna L. Mayer
John McConeghy
James & Marie
McCurdy Family
Charitable Trust
Karen A. Moschetto
Anna M. Nalbandian
Kimrey D. Newlin
Paul F. Oreffice
Ruth Orfield
Margaret Paul
Anne Romanello
Kim Schrotenboer
Esther Danielson
Alan M. Slewett
Mary Dexter
Centre Unversaw
Mary J. Elioff
Miguel Vargas
James A. Enloe
Dorothy M. Vaughn
Alvin Gardner
Michael L. & Antoinette
H. Wilkerson
Dr. Moses & Beatrice
Goodman Fund
Bruce Wisnicki
Genie B. Hollen
16
NATIONAL PARKINSON FOUNDATION
TEAM HOPE
Every year, our Team Hope for Parkinson’s™ members take
the lead in creating unique ways to build awareness of Parkinson’s
disease and raise funds for the National Parkinson Foundation.
The list below acknowledges the nearly 100 marathon runners
who particpated in community fundraisers that took place between
July 1, 2013 and June 30, 2014. We would like to extend our
sincerest gratitude for your creativity, energy and commitment.
Executive Monetary Management staff participating in
the Chase Corporate Challenge in Memory of Martin L. Solomon
TEAM HOPE™ MEMBER NAME • EVENT NAME
Robyn Abner • Miami Half Marathon
Devin Albert • Shaken Not Stirred in Honor of Sandy Albert
Allstate Insurance • Fight Back, Move Forward Awareness Walk
ALM Media • Passing of the Gavel
Rose Babcock • Team Babbingham for Parkinson’s
Blake Middle School • PJ’s for Parkinson’s
Bravelets, LLC • Parkinson’s Charity Bracelets
Bristal Assisted Living • Facebook Campaign
The Cadence McShane Corporation • Jean’s Day
Marshall Campbell • Ragnar Relay
Amy Cantu • Marine Corps Marathon
Card Playes Club, RPI • Student Event
Giddel Casadesus • Marine Corps Marathon, Miami Half Marathon
Catch the Cure • Paddle for Parkinson’s
Annette Chu and Natalie Ng • Bay Area Golf for Parkinson’s
Linda Cibula • Mardi Gras Ball
Brenna Clark • OneAmerica 500 Festival Mini-Marathon
Monica Conroy • Flying Pig Half Marathon
Kimberly Curtis-Scheer • Marine Corps Marathon
Fausto De La Grana • Miami Half Marathon
Madison Deniston • Par for Parkinson’s
Amanda DiPaola • Curious for a Cure
Seth Dunn • Ponies Against Parkinson’s
Rachel Ely • Coach Katie
Cristina Fernandes • Chase Corporate Challenge in Memory of Martin L. Solomon
Flat Creek Baptist Church • The Chris Gaunt 5K Run/Walk Over Parkinson’s
Daniel Fruik • Attacking Parkinson’s Disease
Garden of Life • Ocean 3’s Better Brain donations
Harold Garoutte • Shakin’ Not Stirred Benefit
David Goldberg • TransAm Bike Race
Theresa Gordon • Marathon Runner
GTE Financial • Jean’s Day
Alan Jackowitz • Record Store Days Miami
John J. Ahern Middle School • Second Annual Choose Your Charity Walk-A-Thon
Allison Kallevig • Miami Marathon, 40 Miles on 40th Birthday
Keenan Antiques • Summer Wade Fest
Alisha Khan • Chicago Half Marathon
Rachel Klammer • Coins for the Cure
Michelle Kravat • Atlanta Half Marathon
Alison Loria • San Francisco Marathon
P.D. Love • Marine Corps Marathon
Kristen Maguire • Marine Corps Marathon
Kelley Malcolm • Miami Half Marathon
17
ANNUAL REPORT 2014
Nicholas Mandich • Miami Half Marathon
Justin Mark • Pastries for Parkinson’s
Alexandra Marsek • Earthly Treasures, LLC Jewelry Show
Matthews Medical Books • Dress Down Day
McGladrey, LLP • Jean’s Day
Mer Rouge Community Chest • 34th Annual Drive
Sarah Nedde • Dallas Half, Full and Relay Marathon
Ni River Middle School • Student Council Association
Amanda Orsillo • Whatever It Takes Bracelets
Palermo Elementary Parent Teacher Club • Denim Day
Michael Pearson • Marine Corps Marathon
Donna Peterson • Jean’s Day
Melissa Phillips • Marine Corps Marathon
Pulte Mortgage, LLC • Jean’s Day
Pura Vida Bracelets • Parkinson’s Charity Bracelets
John D. Kelly, III Family • 15th Annual John D. Kelly, III Memorial Logan House 5K
Cristina Ramirez • TriathlonMami Does An IronMan For Dad
Terri Rauseo • Unmask a Cure for Parkinson’s Disease
Brian Reetz • Reetz Rebel Run
Mike Ricciardelli • Marine Corps Marathon
Sara Rosenberg • Miami Half Marathon
Rosenthal Automotive • Cars for a Cause
Shannon Rusbudlt • Fashion’s Fight Against Parkinson’s
Althea Silver • Silpada Jewelry Fundraiser
St. Luke’s Center for Neuroscience • Polka for Parkinson’s
Stafford Rosenbaum, LLP • Casual for a Cause Day in March
Brian Stroud • Senior Project Memorial Walk
John Swartz • Marine Corps Marathon
Carmen Tank • Carmen’s Ride for Parkinson Disease
The Gage Restaurant • Michael Jackson Beer Hunter Documentary
The Johnson Chamber of Commerce • United Fund Drive
Thurmont Middle School • Candy Bingo
Megan Tidmore • Marine Corps Marathon
Chris Tidmore • Marine Corps Marathon
TRC Global Solutions • Jean’s Day
Washington Lake Combined Charities • Annual Charity Drive
Curt Weeden • Dutch Island Book Donations
Jamie Whalen • Sole Trainers, Lincoln Presidential Half Marathon
Jay Whipple • The Common Game Virtual Bridge Tournament
Wixon • Dress Down Day
Katherine Wolinsky • Miami Half Marathon
Saul Wolinsky • Miami Half Marathon
Janet Wu • Musicians of the Auger Trio Charity Concert
Matthew Wukovitz • Marine Corps Marathon
2013-2014
FINANCIAL
HIGHLIGHTS
CHAPTER SERVICES
PUBLIC EDUCATION
As illustrated below, the National Parkinson Foundation directed 71% of its 2013–2014 spending
on mission-related activities and 29% on fundraising and management combined.
RESEARCH
PATIENT CARE SERV
Interest income & Realized Gain
EXPENSES BY CATEGORY
Chapter Services
$ 1,868,503 | 22%
Public Education
$ 1,985,020 | 23%
Total Operating Expenses
100.0% | $ 11,899,923
Subtotal Mission-Related
70.9% | $ 8,436,141
Patient Care
Services
$ 3,004,426 | 36%
Research
| 19%
$ 1,578,192
Interest Income
Fundraising
19.7% | $ 2,348,419
Special Events
General & Administration
9.4% | $ 1,115,363
Legacies and bequests
Private and Corporate
REVENUES BY CATEGORY
Special Events
$ 173,205 | 2%
Interest Income
& Realized Gains
$ 1,535,693 | 14%
Total Revenue
$
11,186,240
Legacies
& Bequests
$ 2,615,507 | 23%
Private &
Corporate
$ 6,861,835 | 61%
Total Year-End Assets
$
16,948,204
18
BOARD OF
BOARD OF DIRECTORS
DIRECTORS
The National Parkinson Foundation is privileged to have an outstanding and dedicated group of
volunteers who generously donate their time and talents by serving on the NPF Board of Directors.
Without their selfless efforts, the work of the foundation would not be possible.
OFFICERS
MEMBERS
EMERITUS BOARD
John W. Kozyak, Esq.*
Chairman of the Board
Daniel Arty, CPA*
Edythe Kay-Marsa
A. Jeffrey Barash, Esq.
J. Gordon Beckham, Jr.
Harold P. Kravitz, Esq.*
President Emeritus
Paul R. Blom
Jo Ann Pepper Oreffice
Bernard J. Fogel, MD*
Past Chairman
Paul F. Oreffice*
Chairman Emeritus
Erin R. Borger
Ricardo Caporal
Carmen Y. Cartaya, Esq.*
Andrew B. Albert*
Vice Chairman
Patricia de Stacy Harrison
E. Richard Alhadeff, Esq.*
Vice Chairman
Alberto Dosal
Marshall R. Burack, Esq.*
Secretary
Timothy Martorella
Honorable Shelley J. Kravitz
Mindy McIlroy*
Gail Milhous
James F.T. Monhart*
Roberto L. Palenzuela
Enrique J. Sosa, PhD*
Senator Paul B. Steinberg, Esq.
19
ANNUAL REPORT 2014
Robert H. Traurig, Esq.
Alessandro Di Rocco, MD
Robert M. Melzer*
* Member of the Executive Committee
Alan M. Slewett
In Remembrance of
Martin L. Solomon
NPF Board Member
1936-2014
SENIOR
LEADERSHIP TEAM
The entire team at the National Parkinson Foundation is a group of compassionate individuals
committed to making a measurable difference in the lives of people living with Parkinson’s.
Joyce A. Oberdorf
Leilani Pearl
President and
Chief Executive Officer
Vice President
Marketing and Communications
Michael S. Okun, MD
Peter Schmidt, PhD
National Medical Director
Ariel Y. Deutch, PhD
Vice President
Research and Professional Programs,
Chief Information Officer
Chair, Clinical & Scientific
Advisory Board
Darcy Taylor
Oksana Cardini, CPA
Vice President
Constituent Relations
Vice President
Finance & Administration
Robert G. Shaw
Amy Gray
Senior Director
National Signature Events
Vice President
Chapter Relations and
Community Partnerships
20
ORDER YOUR
AWARENESS
The Whatever It Takes
to Beat Parkinson’s
campaign is a national
symbol for living well with
Parkinson’s; it highlights
the many ways that you
can fight the disease.
Show your support for
NPF and learn how to beat
Parkinson’s at the same
time with our line of
custom merchandise.
Visit our online store at www.parkinson.org/store.
21
ANNUAL REPORT 2014
ITEMS
JOIN
MOVING DAY ®
A WALK FOR PARKINSON’S!
Taking place in cities
across the United
States, Moving Day®
is your chance to
speak up about
Parkinson’s disease
and move others to
take action. It is a
movement for change
— toward more
awareness, more
funding, and more
understanding of a
disease that affects
so many of our
family and friends.
We use movement as a symbol of hope and progress because of its essential
role in treating Parkinson’s. So choose to move any way you can by walking,
stretching or doing yoga in our signature Movement Pavilion. Every move you
make and every penny you raise will bring us closer to beating Parkinson’s!
Find a Moving Day® walk near you at www.npfmovingday.org.
22
200 S.E. First Street
Suite 800
Miami, FL 33131
800.4PD.INFO (473-4636)
www.parkinson.org
Engage and interact with the Parkinson’s community
and the National Parkinson Foundation on social media.