Summer 2015 - The Arc of Delaware
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The ADA Turned 25!
On July 26, 1990, President George H.W. Bush signed into
law the Americans with Disabilities Act (ADA) to ensure
the civil rights of people with disabilities. This legislation
established a clear and comprehensive national mandate
for the elimination of discrimination against individuals
with disabilities. On July 26, 2015, we celebrated the
25th anniversary of the signing of the ADA. The ADA has
expanded opportunities for Americans with disabilities by
reducing barriers, changing perceptions, and increasing
opportunities for full participation in community life for
persons of all abilities. However, the full promise of the ADA
will only be reached if we remain committed to continue
and expand these efforts!
Andrea Rees lived a life many of us
dream of, with a supporting family,
caring friends, a job she loved, travels,
and books. She was independent,
happy, and successful. She was also
born with a disability.
Her life was not defined by her intellectual disability, but
it brought her to The Arc of Delaware where she found a
job at MBNA, now Bank of America, through our agency’s
Employment Program. She worked there for nearly
On June 24, 2014, at age 53, Andrea E. Rees passed away
after a yearlong battle with cancer.
The Rees Family share Andrea’s gift with Bill Seufert and Terry
Olson of The Arc of Delaware.
Mary Beth Limmina, a case worker at The Arc of Delaware,
knew Andrea for years when they worked together at
Elwyn and then later at Bank of America, where Mary Beth
provided support services. Mary Beth continued to be by
Andrea’s side when she stopped working due to her illness.
“Andrea was a sweet, bright, always upbeat, lovely woman
with a sense of humor that never quit,” said Mary Beth.
“Several of my visits to Andrea in the hospital were spent
by her making me laugh.”
with whom she first discussed creating a will when Andrea
Shortly after her passing, The Arc of Delaware received
notice from her brother Eric of an extraordinary gift left by
Andrea – a $100,000 donation to The Arc of Delaware. She
also left $50,000 to Best Buddies, a program she had been
involved with for many years. No one expected that Andrea
had built up such a large estate, including her brother,
“Andrea’s gift will make it possible for The Arc of
Delaware, Mary Beth, and the rest of our exceptional staff
to touch many more lives,” shared Terry Olson, Executive
Director of The Arc of Delaware. “It’s an incredible and
inspirational story and we will be telling it for many, many
years to come.”
For people with intellectual and developmental disabilities
On August 1, 2014, we gathered with Andrea’s
brother, niece, mother, father and friends, along with
representatives from The Arc of Delaware and Best
Buddies, to celebrate her life and the legacy she left
behind. We shared stories about the many ways Andrea
has touched our lives and how the gifts she gave will
continue to impact our future.
IN FOCUS: The Arc of Delaware
The Arc of Delaware’s Board of Directors and
Management recently met to begin agency
strategic planning for the next few years.
Perhaps more importantly, we also reviewed
and revised our Mission Statement and
developed Core Values for our agency.
We were assisted in these critical tasks by
our facilitator, Devona Williams, of GoeinsWilliams Associates, Inc. We also borrowed
liberally from The Arc of the U.S. and their
“Core Values” and “Guiding Principles.”
In establishing these foundational guideposts
for our agency, we embraced the fact that
The Arc in Delaware and nationally is first and
foremost an “advocacy” agency. Surely, we
are proud of the services which our agency
and others have developed throughout our
history and continue to develop and refine.
We also continue to aggressively champion
important new services such as the Family
Support Waiver in Delaware.
However, services are and will remain an
important means to fulfill our central role as
advocates. Our primary role will continue
to be advocates for and with persons with
I/DD and their families. We advocate for
opportunities for these persons to lead full
lives of choice, respect, equality and inclusion
in our communities and our greater society.
As most of you know, The Arc of Delaware
celebrated our 60th Anniversary a few years
ago. July 26, 2015 also marked the landmark
25th anniversary of the Americans with
As we reflect on the accomplishments of the
past several decades and the challenges of the
coming years, these fundamental statements
will hopefully provide essential focus for our
agency’s vision for the future.
The Arc of Delaware promotes and protects the human
rights of people with intellectual and developmental
disabilities, and actively supports full inclusion and
participation in the community through advocacy and
services to individuals and their families.
People First - The Arc of Delaware believes that people
with intellectual and developmental disabilities are defined
by their own strengths, abilities, and inherent value, not by
Equity - The Arc of Delaware believes that people with
intellectual and developmental disabilities are entitled to
the respect, dignity, equality, safety and security accorded
to other members of society, and are equal before the
law. The Arc of Delaware will advocate by encouraging
governmental policies and public practices that will
enhance the wellbeing of the population we serve.
Community - The Arc of Delaware believes that people
with intellectual and developmental disabilities belong
in the community of their choice and have fundamental
moral, civil and constitutional rights to be fully included
and actively participate in all aspects of society. Our
employees, Board of Directors, and volunteers are
dedicated to this mission.
Self Determination - The Arc of Delaware believes in selfdetermination and self-advocacy. People with intellectual
and developmental disabilities, with appropriate resources
and supports, can make decisions about their own
lives and must be heard on issues that affect their wellbeing. These decisions include housing and productive
employment of choice.
Diversity - The Arc of Delaware believes that society
in general and The Arc in particular benefit from
the contributions of people with diverse personal
characteristics (including but not limited to race, ethnicity,
religion, age, geographic location, sexual orientation,
gender and type of disability).
For people with intellectual
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The Arc of Delaware’s 23rd Annual
Golf Tournament and Auction
On August 3, 2015, The Arc of
Delaware held its 23rd Annual
Golf Tournament and Silent
Auction at Hartefeld National Golf
Course in Avondale, Pennsylvania. Thanks
to the Golf Committee, led by Chairman Doug Johnston,
Co-Chair Elaine Raign and Greg Simeone, we had another
very successful event. After a beautiful day on the golf
course, our golfers and guests enjoyed dinner, a silent
and spirited live auction and an inspirational presentation
by Brad Hennefer, our featured guest. Brad, a self
advocate and accomplished athlete, was born with Down
Syndrome. He played both varsity basketball and golf in
high school and has won several gold and silver medals in
Special Olympics. Brad is the inspiration behind the Brad
Hennefer Golf for Life Foundation which provides golfing
opportunities for individuals with disABILITIES.
Young Conaway Stargatt
& Taylor, LLP
Santora CPA Group
Above & Beyond The Call
Four C’s Painting & Wallpaper
N. Dietz & M. Fioravanti
Micki & Lanny Edelsohn
Forever Green Lawn Service
Meier Supply Co., Inc.
Newark Chrysler Jeep Dodge
Quality Contractors Services
George H. Burns, Inc.
Chesapeake Insurance Advisors
Christiana Health Care
Micro Care Corporation
Newark Chrysler Jeep Dodge
Alexander Lawn & Landscape
Ameriprize Financial Services
Bramhall Hitchen Insurance
We want to thank all of the golfers and our friends who
generously participated in the event, as well as our many
sponsors, contributors and volunteers for another great
tournament. Without your support, this successful event
would not be possible!
Boulden Bros. Propane Gas
Brooks & Ruth Banta
Delaware Lawn & Landscape
DJ Dittmar Painting Contractors
John Fontana, Jr., DDS
L & H Bros. Landscaping
Lighthouse Plumbing Co.
Daniel & Darlene Mulvena
Newark Gutter & Siding
Board Member in the News
In May 2015, Board Member Megan Fioravanti, RN,
NCSN was named Delaware School Nurse of the Year. Ms.
Fioravanti is currently the school nurse at Meadowood
School in Newark, DE. She previously worked at A.I. DuPont
High School for 17 years. Megan is a Johnson & Johnson
School Health Leadership fellow, a recipient of The Caron
Institute’s Medical Professionals Award, a nominee of the
White House Champions of Change for Public Health and
Prevention, and a 2013 recipient of the Christiana Care
Health System Nursing Excellence Award.
Ms. Fioravanti has been a very active, valued and effective
Board Member for The Arc of Delaware since 2011 and
currently serves as our Board Secretary. She also volunteers
as a community group home monitor for The Arc of
and developmental disabilities
Ms. Fioravanti is involved with
including DFRC, Special Olympics,
Down Syndrome Association,
Families Speaking Up, and others.
In addition to her work as a
school nurse, Megan is employed
part-time as a nurse at Christiana Care and the University
of Delaware. She is an American Heart Association BLS
Instructor and is certified in Advanced Cardiac Life Support
and Pediatric Advanced Life Support. Megan is a member of
Sigma Theta Tau, the national honor society of nursing.
Congratulations Megan! We’re proud of you!
Self Determination Group Hosts Successful Fundraiser
In March 2014, The
Arc of Delaware
to create a Self
David Jackson washing Susannah’s car disabilities have
teamwork through a variety of activities. The goal of
the group, made up of nearly a dozen individuals, is
to develop the skills to be self determined through self
direction and planning activities.
The Self Determination Group celebrated its one year
anniversary on April 25, 2015, commemorating it with a
Car Wash and Bake Sale Fundraiser. The group exceeded
their $300 fundraising goal and raised an impressive $500.
The Self Determination Group, led by its President,
Jessica Hurtado, is currently planning its next fundraiser.
The group also will attend The LIFE Conference in 2016.
Meetings are held monthly on Saturdays at The Arc
Newport office. Please contact Sheba Brown at The Arc if
you are interested in joining the group.
Funder Spotlight: Walmart Foundation
The Arc of Delaware was recently honored to receive
$25,000 from the Walmart Foundation’s State Giving
Program to support our Employment Program. Through
this program, we support 150 people with intellectual
and developmental disabilities in finding and keeping
meaningful jobs in the community.
The Walmart Foundation’s focus on Career Opportunity
supports many initiatives which provide opportunities
through job training and placement, career guidance, and
greater access to the resources that help people become
People with intellectual disabilities experience an
unemployment rate twice as high as the general
population. The Arc of Delaware is committed to reducing
high unemployment for this population by securing
permanent jobs, offering livable wages and providing the
supports needed to help participants retain and succeed in
We are extremely excited about this new partnership with
the Walmart Foundation and continuing this work in the
Mid-Del Annual Picnic at Killen’s Pond State Park, 11 a.m. to 2 p.m.
Call (302) 736-6140 for more information.
Friends Helping Friends Day at Boscov’s, Christiana and Dover.
Please call Sheba at 302-996-9400 for more information on how to get a 25% discount
shopping pass and support The Arc of Delaware’s Self Determination Group.
Mid-Del Fall Dance at Cheswold Fire Hall, 7 p.m. to 9 p.m.
Mid-Del Christmas Dance at Cheswold Fire Hall, 7 p.m. to 9 p.m.
For people with intellectual
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Thanks for Teaming Up With Us
On Saturday, May 2, 2015 the Mid-Del Committee held
its 15th Run, Walk and Roll. More than 200 people
participated in a 5K or 1 mile course through the beautiful
Wild Quail neighborhood in Wyoming, DE. The event
raised a record $16,000 to support the committee’s
For 15 years, this fundraiser has supported monthly
recreational events for people with intellectual and
developmental disabilities in the Mid-Del area,
including 9 monthly dances, 2 movie nights, and an
annual picnic. The dances regularly draw crowds of 250
to 300 attendees.
This year’s increased focus on team fundraising brought
out more than 15 teams. Team DeSanctis was the first
team formed years ago and has since raised many tens of
thousands of dollars at the annual event, including over
$10,000 this year. Teams consist of family members of
persons with intellectual and developmental disabilities, and
self advocates who proudly raise money for their cause.
We thank all of the teams, individuals, sponsors, volunteers,
and everyone else who came out to support our work in
this community. Whether you walked the 1 mile route or
cheered from the sidelines, ran the race or rolled your way
to the finish line, your participation made our 15th annual
event a memorable and heartwarming day. Thank you!
15TH ANNUAL RUN, WALK & ROLL
SPECIAL THANKS TO OUR SPONSORS
For people with
Shirt Sponsors: Acer Associates, Allstate,
The DeSanctis Agency, Bayhealth, Byler’s Store,
Inc., Delaware Eye Care Center, Energizer/Playtex,
Frankfurt Bakery & Deli, Jonathan’s Landing,
McDonald’s – Sanders Management Corp. - Mark
& Lanie Salebra, State Farm - Bob Simmons Agency,
The Giacco Family, Westside Carwash
Allstate Insurance Company* Mr. & Mrs. Thomas Battle, Earol & Chrissie Bert*,
CURBS, ETC., INC. Tony & Janet DeSanctis*, Paul Long*, Mr. & Mrs. Thomas Lynch,
Terry & Julie Murphy*.
A Friend of The Arc, Mrs. Martha DeSanctis*, Tony DeSanctis*, Todd & Denise
Grosshans*, Mrs. Pat Heather, The Horn Family – Michael, Gloria, & Jeff.
Mrs. Theo O’Brien, Pat’s Pizza, Mike & Christine Amygdalos*, Bill Apicella*,
Ms. Marlene Barbey*, Jack & Janice Beiser*, Brandon & Kerrie Boyd*,
Dr. Tim Brooks, Capital School Nurses, Nicki Castagna*, Sandy Castagna & Terry
Czarski*, Chimes Metro Inc., Mike & Julie DiBlasi*, Randy & Jennifer Duplechain*,
Jeff & Pam Edwards*, Mr. John Flood*, Mr. Kevin Hamill*, Ms. Janelle Haskell*,
Walt Hoffmeister*, JBT Enterprises*, Mrs. Merry Jones, Laurie Carl*,
Mr. Wiley King*, Alex Kotinedes*, Mrs. Ruth Lavelle, Mr. Nathan Lubin*,
Austin Miller*, Jennifer Moffat & John Tignali*, Mrs. Theo O’Brien Leo & Tony
Oldewurtel*, Joe Ordierno*, Pat’s Pizza Jim & Nancy Pezzuti*, Kevin Rast*,
Noel & Joyce Rosas*, Ms. Kelly Rossey*, Ms. Debbie Rouse, Steven Shelley*, Mr.
Michael A. Simpson, Mr. Bill Seufert, Ms. Sharon Law*. In honor of Brian Jordan
from the Jordan Family
Mr. & Mrs. Fred Gallagher, Jill Arnold*, Pam Avila*, Mr. & Mrs. Brooks Banta,
Jay Bronstein WHS*, Lynn Brown*, Betty Burk*, Will Chetlet*, Jack Colborne*,
Rob Corso*, Pam DiBlasi Copenhaver*, Mr. & Mrs. Fred Gallagher Contractor’s
Flooring*, Mary Jan Forry*, Rick Johnson*, Tom Long*, Lynch & Rodriquez*,
Ms. Jamie Magee, Sal Mastellone*, Brian & Terry Mueller WHS*, Warren Muir*,
Mike & Jeanine Martin*, James Myers*, Myrtle’s Family Hair Salon*, Tim Olsen*,
Rep. Bobby Outten, Lynn Sallee*, the little school at Kids Cottage, LLC Webb
Properties*, Charlene Webb*, Jackie West*, Karen Wolpert Scheinder*,
Bob Osgood, Camille Goldberg WHS*, Rick Henry WHS*.
SPECIAL THANKS TO OUR SUPPORTERS
IMAGINE – Gail Garner & John St. Jean, Fifer Orchards, First State Harmonizers,
Food Lion, Forrest Avenue, Dover IMAGINE, Gail Garner & John St. Jean,
McDonald’s, Sanders Management Corp, Mrs. Delaware International – Cara
Miller, Photographer: Steve Knox, Redner’s Warehouse Markets, The Reigle Family,
Georgia Boy’s Bagel Café, Tide Water Utilities, Inc. Tony DeSanctis and Family,
Tri-Sports Events, Wild Quail Golf and Country Club, Willey Farms
Cee Cee Alexander, Melanie Albino*, Mrs. Cee Cee Alexander Carol Berg*,
Mr. & Mrs. Ken Cannon, Johnny & Peggy Castagna*, Laura DiBlasi*,
Virginia DiMenna*, Ruth Dolle*, Ms. Nancy Frankl, Mike Frankos*, Rick & Mary
Grifﬁth*, Matt Hennigan*, Kathy Hevener, Bill Heydt*, Mr. & Mrs. Edward Krupka,
On behalf of The Arc of Delaware, we would like thank everyone – committee
members, volunteers, friends, and supporters – who have joined together to make this
It is your
us to continue
mission. like thank
Jr., Mr. & Mrs. Jasper Little Merle Norman Cosmetics – Helen McCusker, Meineke
Car Care Center #607 Ms. Elizabeth Metzler, Tory Johnson*, Colleen O’Brien
Barnes*, Bruce & Chantel Richmond*, Maria Silvon*, Mike Slavin WHS*, Pat Villani*,
Maggie Walser*, Witt Brothers Market*, James Yager/J. Zurlo*, Mr. & Mrs. Bill
Yonker*, *Denotes donations for TEAM DeSanctis.
TEAM Arc, TEAM Bayhealth, TEAM Chris, Team Combat Vets of Delaware, TEAM
DeSanctis, TEAM Easter Seals, TEAM Hidden Acres, TEAM KenCrest TEAM Kent
WildKats, TEAM Ladies of The Elks #1903, TEAM McDonald’s, TEAM Missy,
TEAM Service Source, TEAM Westside Carwash, TEAM Wyoming U.M. Church.
“…To improve and enhance the quality of life for
individuals with intellectual and developmental
volunteers, friends, and supporters – who have joined together to make this event successful.
It is your support that helps us to continue our mission.
and developmental disabilities
I believe in The Arc of Delaware, and am committed
to its mission to promote and protect the human rights
of people with intellectual and developmental disabilities,
and actively support full inclusion and participation in the
community through advocacy and service to individuals
and their families. .
I believe in the clients we serve who impress me daily
with their strength and determination to make their
way in this world, a world that is often difficult for us to
navigate. They deserve the same opportunities as you
and me. That’s why I became a member of The Arc of
Delaware years ago, and why I continue my membership
I believe in you, and want to say “thank you” to those
of you who are also members. To those of you who are
friends of The Arc receiving this newsletter,
THE ARC NEEDS YOU. As membership chair, I encourage
you to join our family. Joining is easy. You may do so online
at www.thearcofdelaware.org, or by calling the office at
(302) 996-9400 for a membership envelope. For a nominal
membership fee ($10 self-advocate, $25 individual, $35
family, $100 business/organization or $500 lifetime) you can
strengthen our Arc family. Membership will also now be
offered to donors. JOIN TODAY. Recruit a new member. If
you are able, please also consider paying the membership
fee for a self-advocate. Add your voice to ours.
I believe that together our collective voices can make a
I BELIEVE IN POSSIBILITIES!
Merry K. Jones
Ursuline Christmas Project
The Ursuline Christmas Project, in partnership with The Arc of Delaware, brings Christmas
joy to individuals with intellectual and developmental disabilities. Meg Kane Smith, a
theology teacher at Ursuline Academy in Wilmington, coordinates the project which
teaches students to pay it forward. This has become a Christmas tradition of giving
which is now in its 10th year. Each year The Arc of Delaware gathers names of one
hundred people with I/DD who live in group homes and who would not otherwise
receive a gift over the holiday season. The list includes items which each person
needs. Ursuline students from 9th through 12th grade purchase presents from
the list, wrap them and put name tags on them for each individual receiving
a gift. The gifts are delivered at a party held in the school Auditorium.
Over 50 students from 7th through 12th grade provide the food and
participate in this munch-and-mingle event. The students welcome and
chat with the guests while music teacher, Joe Louden, plays the piano.
The talented Middle School choir sings and entertains guests. Guests
who wish to share their singing talents also entertain the crowd.
The Arc and Ursuline Academy are both very excited for this year’s
event which will take place on December 14, 2015.
For people with intellectual
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Elizabeth (Liz) Harris became an
official employee of The Arc working
in the Accounting Department in
December 2014. Previously, she
completed two internships with
us and recently received her BS
in Accounting from Wilmington
University. Liz continues to expand
her role in the accounting department
to help our company become more efficient.
Jasmine Smith began working as an
Employment Specialist at The Arc in
January 2015. She graduated from
Gloucester County College with an
Associate’s Degree in Exercise Science
in 2014. Prior to working at The Arc,
Jasmine worked as a medical assistant
for three years. She has experience
through her career and education
working with a variety of people, including those with
intellectual and developmental disabilities.
The Arc of Delaware is generously supported
by the following corporations, agencies and
individuals who have recently given gifts:
All-State Foundation - $1,000 in support of the
Mid-Del Walk/Run & Roll
Bank of America - $30,000 in support of the
Chichester duPont Foundation - $20,000
to install barrier free lifts in a new home
Christmas Shop Foundation – Funding for a
DFRC - $5,000 for Home Monitoring and
Grant-in-Aid - $12,730 to support the
Andrew Ziegler graduated from
the University of Delaware in May
2015 with a Bachelor’s degree in
Health Behavior Science and a minor
in Anthropology. He joined The
Arc as an Employment Specialist
in June, shortly after completing
a one semester internship in our
Newport office. Andrew first gained
experience working with individuals with intellectual and
developmental disabilities as a Direct Therapist for the
Brandywine Center for Autism.
New Castle County CDBG - $8,000 for the
Julien Nassini came to The Arc in
March 2015 as an accounting intern
from Wilmington University. He is an
international student who hails from
Togo, a small country on the West
African coast. He obtained his BS in
Accounting in June and has continued
to work for The Arc part-time. He
currently is pursuing a Masters
Degree and commutes to Delaware
every day from Philadelphia.
and developmental disabilities
New Castle County HOME - $100,000
for accessibility renovations to community
Palmer Home Fund - $5,000 for elderly
persons with disabilities in Kent County
Sussex County - $750 for Outreach in
Walmart Foundation - $25,000 for the
Welfare Foundation - $75,000 for
construction of a new community group home
Wells Fargo Community Connection
Grant - $1,000 in support of all programs
Permit No. 51
2 S. Augustine Street
Wilmington, DE 19804
Address Service Requested
Love in Motion!
Have you considered volunteering to
help your community, but don’t have a
lot of time? We may have the perfect
opportunity for you! We are looking
for individuals to help us monitor our
community group homes in New Castle
County. The time requirement is minimal
and monitoring visits are usually made
during the evening hours when residents
are home from work or day programs.
Monitors work in pairs and assist The Arc
of Delaware with scheduled visits to one or
more group homes. Monitors choose the
number of homes that they want to monitor
and are pre-scheduled to visit one or more
homes. The Monitor’s role is to note any
housing issues or concerns and identify
areas where The Arc can improve the
functionality, safety and accessibility within
our more than 80 homes serving people
with I/DD and other disabilities. Each
home visit takes approximately one hour to
complete. A brief written report to record
your findings follows each visit. Training
will be provided.
Please contact Linda Cox at 302-996-9400
or [email protected] to volunteer
or gather additional information. We look
forward to working with you!
State Headquarters T 302 996-9400 I F 302 996-0683
2 S. Augustine St., Suite B I Wilmington, DE 19804
Staff of The Arc of Delaware
Delaware Care Plan
New Castle County
HUD Accounting Manager
Director of Housing
& Community Relations
Director of Employment
Carol Reid Hall
Kent & Sussex Counties
Director of Construction
Mary Beth Limmina
Office & Human
The Arc of Delaware promotes and
protects the human rights of people
with intellectual and developmental
disabilities, and actively supports full
inclusion and participation in the
community through advocacy and service
to individuals and their families.
Kent County T 302 736-6140 I F 302 736-0268
P.O. Box 562 I Dover, DE 19903
Merry K. Jones
Megan Fioravanti, RN
Ruth W. Banta
Edwin Harron, Esq.
Patricia M. Heather
Michael A. Simpson
Sandra Voss, FNP-C
TTY/TDD Relay 1 800 232-5460