Conference program is here

k
The Mission
PeDRA’s mission is to
promote and facilitate high
quality collaborative clinical,
translational, educational, and
basic science research in pediatric
dermatology with the vision to
create sustainable collaborative
research networks to better
understand, prevent, treat and
cure dermatological diseases in
children.
PeDRA Annual Conference, November 6–7
2015
HelpingChildrenwithSkinDiseasesthroughCollaborativeResearch
Table of Contents
WELCOME LETTER
1
CONFERENCE AGENDA
2
FACULTY
6
CONFERENCE INFORMATION
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Registration&information table
Meetingroomlocations
Photography&videoservices
WIFI
Mealsduringtheconference
Hotellocation&surrounding area
Hotelfloor plan
TRANSPORTATION
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15
Transportationinformation
Hotel contacts
Notesontravel& accommodations
ABOUT PEDRA
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12
16
Roots& background
PeDRAExecutiveCommittee
PeDRAConferenceOrganizingCommittee
Website&otherkeyinformation
PeDRAmembership&stayinginvolved
CONFERENCE PARTNERS
18
CONFERENCE DIRECTORY
20
ABSTRACT & POSTER ADDENDUM
25
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Advocacyorganization posters
Abstract Index
New&ongoingprojectabstracts
Welcome
November6,2015
Dearconferenceattendees,
WelcometothethirdPediatricDermatologyResearchAllianceAnnualConference!
Asweallknow,standardizedtreatmentprotocolsandclinicalguidelinesaresorely
lackingforpediatricskindisorders,includingsomeconditionsthataretrulylife
threatening.Yetrecruitingchildrenforstudiesischallengingandprojectsareoften
underpowered,especiallywithrarediseases.
Withthisreality,pediatricdermatologyleadersrecognizedthatinvestigationscannot
beconductedwithoutcollaborativeefforts.ThusPeDRAwasconceivedasaresearch
networkin2012andwehaven’tlookedbacksince.Nowwithnearly230investigators
partneringtoconduct57studiesspanningseveraldiseaseareas,PeDRAisbeginning
topositivelyimpactthelivesofchildrenwholivewithdifficultandlife-altering
dermatologicdiseasesandconditions.
Thisconferenceistheonlymeetingvenuethatspecificallyaimstofostermulticenter
studiesinallmajorareasofpediatricdermatology.Themeetingprovidesthe
opportunitytolearnaboutandjoinqualitystudiesandprotocolsdevelopedby
experiencedinvestigators.Thesepartnershipshelpindividualresearchers“gaintheir
footing”andenablepatientstoaccessstudiesthatotherwisewouldbedifficult.
Outstandingfacultywillguideourdeliberations.Presentationswillprovide
collaborativemodelsandwilladdresscommonissuesinresearch;break-outsessions
willapplywhatwehavelearnedtoprojectsandidentifythestudiestoadvanceoverthe
nextyear.WeanticipatemorebreakthroughworkhereinTexas!
ThankyouforyourcommitmenttoPeDRA.Enjoytheconference!
WynnisTom,MD
ConferenceChair
Principalinvestigator,
PeDRA2015NIHR13Grant
UniversityofCalifornia,SanDiego
RadyChildren’sHospital,SanDiego
PeDRAANNUALCONFERENCE
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Co-Chair,PeDRA
UniversityofCalifornia,
SanDiego
RadyChildren’sHospital,
SanDiego
AmyPaller,MS,MD
Co-Chair,PeDRA
NorthwesternUniversity
Ann&RobertH.LurieChildren’s
HospitalofChicago
1
AGENDA
What’s Going On
FRIDAY, NOVEMBER 6, 2015
Gallery Area
8:00–10:00am Coffee,teaandmorningsnackswillbeserved
MORNING SESSION
Welcome and Introduction
Conference Overview and Goals
10:00 am
ScientificChairs:
AnnaBruckner,MD,UniversityofColoradoand
AnitaHaggstrom,MD,IndianaUniversity
Research Toolbox
From Idea to Reality: Collaborative Research for the Busy Clinician
10:10 am
IlonaFrieden,MD,UCSanFrancisco
Study Design for Early Investigators—Balancing Ideas and Feasibility
10:50 am
AnnaBruckner,MD,UniversityofColorado
AnitaHaggstrom,MD,IndianaUniversity
PeDRA Highlights
PeDRA Project Highlights: Selected Abstract Presentations
11:20 am
Moderator:DawnSiegel,MD,MedicalCollegeofWisconsin
Advocacy Forum
Advocacy Group Presentations and Poster Session
11:50 am
» NevusOutreach
» NationalPsoriasisFoundation(NPF)
» NationalEczemaAssociation(NEA)
» FoundationforIchthyosis&RelatedSkinTypes(FIRST)
» TheSturge-WeberFoundation
» PachyonchiaCongenitaProject
» PHACESyndromeCommunity
» PHACEFoundationofCanada
» CostelloSyndromeFamilyNetwork
» ParentsforEczemaResearch
Working Lunch
12:30—1:30pm
Networking: Part 1 (All Attendees)
Gallery (Start), Oak Ballroom
Plenary Presentations
1:30–5:30PM
1:30pm
Drug Development: From Trials to Market
LeeZane,MD,AnacorPharmaceuticals,Inc.
2:00pm
Comparative Effectiveness Research—Real World Drug Studies
AprilArmstrong,MD,MPH,UniversityofSouthern California
Beverages and light snacks will be available during the breakout sessions
PeDRA Working Group Breakout Sessions
2:30pm
Clinical Priorities and Project Ideas
» GeneticSkinDiseaseandNeonatalSkinGroups
Oak Ballroom
» SkinTumorsandReactionstoCancerTherapy(STARC)Group
Sunnyside Room
Brief Intermission Between Sessions
Working Dinner
6:00–9:00PM
6:15pm
Networking: Part 2 (All Attendees)
Gallery (setup) then Oak Ballroom
Poster Session
7:30pm
Ongoing PeDRA Projects
Moderator:RaeganHunt,MD,PhD, TexasChildren’sHospital
Oak Ballroom
9:00pm
Adjourn
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3
MORNING SESSION
Continental Breakfast
7:00–8:00am
Oak Ballroom
Overview of Goals for the Day
Keynote Presentation
8:10am
The ImproveCareNow Learning Network—Transforming the Health,
Care and Cost of Pediatric Inflammatory Bowel Diseases
RichardColletti,MD,UniversityofVermont
Collaborative Opportunities
9:00am
Programs through the National Institute of Child Opportunities
Health and Human Development (NIH/NICHD)
AnneZajicek,MD,PharmD
PeDRA Working Group Breakout Sessions
9:30am
Clinical Priorities and Project Ideas
» BirthmarksandProceduralGroup
Sunnyside Room
» InflammatorySkinDiseaseGroup
Oak Ballroom
Lunch
12:30–1:30pm
4
Oak Ballroom
PeDRAANNUALCONFERENCE
NOVEMBER6-7,2015 WESTINDFWAIRPORTHOTEL IRVING,TX
1:30–5:30PM
Business Meeting
1:30pm
PeDRA Updates and Committee Reports
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Bylaws
Communications
Ethics
Membership
Science
PeDRA Working Group Reports
2:30pm
Current Studies and New Opportunities identified:
ResultsfromtheBreakoutSessions
Beverages and light snacks available during breakout sessions
Strategic Planning Breakout Sessions
4:00pm
Goal Setting: PeDRAworkinggroupsmeettodevelopstrategicplansfor
thenextyear
» GeneticSkinDiseaseandNeonatalSkinGroups
Oak Ballroom
» BirthmarksandProceduralGroup
Washington Irving Room
» InflammatorySkinDiseaseGroup
Sunnyside Room
» SkinTumorsandReactionstoCancerTherapy(STARC)
Oak Ballroom
5:00PM
ClosingRemarks/Meeting Adjourns
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5
Faculty
April Armstrong, MD, MPH
Dr.AprilArmstrongisAssociateDeanofClinicalResearchattheUniversityof
SouthernCaliforniaandDirectorofClinicalResearchfortheSouthernCalifornia
ClinicalandTranslationalResearchInstitute(SCCTSI).IntheDepartmentof
DermatologyatUSC,sheservesasViceChair,DirectorofClinicalTrialsand
OutcomesResearch,andDirectorofthePsoriasisProgram.
Dr.ArmstrongobtainedhermedicaldegreefromHarvardMedicalSchooland
completeddermatologyresidencyattheHarvardDermatologyResidency
Program.ShealsoobtainedaMasterofPublicHealthdegreefromHarvardSchool
ofPublicHealth.
Dr.Armstrongbelievesthatgoodclinicalpracticeneedstoberootedinevidence-
basedmedicine.Herclinicalexpertiseliesininflammatoryskindiseases.In
herresearch,Dr.Armstrongisparticularlyinterestedintheappropriateuseof
systemicagents,comparativeeffectivenessresearch,andpsoriasiscomorbidities.
Shehasconductedstudiesexamininghownewtherapiesimpactpatients’disease
states,qualityoflife,andtheiraccesstomedicalcare.Sheisafederallyfunded
investigatorwithextensiveclinicaltrialexperience.Herworkhasbeensupported
bytheNIH,Patient-CenteredOutcomesResearchInstitute(PCORI),theAgencyfor
HealthcareResearchandQuality(AHRQ),theDermatologyFoundation,andthe
NationalPsoriasisFoundation.
Anna Bruckner, MD
Dr.AnnaBruckneriscurrentlyAssociateProfessorofDermatologyandPediatrics
attheUniversityofColoradoSchoolofMedicineanddirectorofpediatric
dermatologyatChildren’sHospitalColorado.ShereceivedherBAandMD
fromNorthwesternUniversity.ShecompletedresidenciesinPediatricsand
DermatologyattheUniversityofColorado,followedbyafellowshipinPediatric
DermatologyattheUniversityofCaliforniaSanFrancisco.
Dr.Brucknerisdedicatedtoimprovingoutcomesandqualityoflifeforchildren
withskindiseasethroughoutstandingpatientcare,teaching,andclinical
research.Heracademicinterestsincludegeneticskindisorders,particularly
epidermolysisbullosa(EB),vascularanomalies,atopicdermatitis,andeducating
pediatriciansaboutskindisease.
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Faculty
Keith Choate, MD, PhD
Dr.KeithChoateisAssociateProfessorofDermatology,Pathology,and
GeneticsatYaleUniversitySchoolofMedicine.Heisaphysicianscientistwitha
researchprogramdedicatedtounderstandingthegeneticbasisandmolecular
pathophysiologyofrareinheritedandmosaicpediatricgeneticdisorders.
Disordersofkeratinizationareaspecialareaoffocusinhisclinicalandresearch
efforts,andDr.ChoateisamemberoftheMedicalandScientificAdvisoryBoard
oftheFoundationforIchthyosisandRelatedSkinTypes.Inhisworkingene
discovery,Dr.Choatepartnerswithreferringphysicianstophenotypepatients
andtoidentifynewgeneticdisorders,employingnextgenerationsequencing
forthepurposesofgeneticdiagnosisandidentificationofnewgenes.Inongoing
investigation,Dr.Choate’sgroupisexaminingmechanismsofspontaneous
geneticrevertantmosaicisminthedisorderichthyosiswithconfetti.Dr.Choate
mentorsMD/PhDandPhDgraduatestudents,medicalstudents,residentsand
post-doctoralfellowsinhislaboratory.
Richard Colletti, MD Keynote Speaker
Dr.RichardCollettiisVice-ChairforClinicalandResearchAffairsandProfessorof
PediatricsattheUniversityOfVermontCollegeOfMedicine,andAssociateChief
ofVermontChildren’sHospitalatFletcherAllen.Apediatricgastroenterologist,he
isthePresidentandExecutiveNetworkDirectorofImproveCareNow,anational
networkforimprovement,discoveryandinnovationinpediatricinflammatory
boweldisease.HehasbeenPresidentoftheNorthAmericanSocietyfor
PediatricGastroenterology,HepatologyandNutrition,ontheBoardofDirectors
oftheNASPGHANFoundation,andSecretary-TreasureroftheFederationof
InternationalSocietiesforPediatricGastroenterology,HepatologyandNutrition.
Heisanauthorof115papers,bookchaptersandmonographs,including5
clinicalpracticeguidelinesand3ofthetop30paperspublishedintheJournal
ofPediatricGastroenterologyandNutritioninitsfirst30years.Hehasgiven
200nationalandinternationalpresentations,andisthefounderandmanagerof
PEDGI,theInternetlistservfor2,000pediatricgastroenterologistsin50countries.
AgraduateoftheUniversityofPittsburghSchoolofMedicine,hecompleteda
pediatricresidencyatYaleUniversityandapediatricgastroenterologyfellowship
attheBaylorCollegeofMedicineTexasChildren’sHospital.
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7
Faculty
Ilona Frieden, MD
Dr.IlonaFriedenisaProfessorofPediatricsandDermatology,Vice-Chairof
Dermatology,andChiefoftheDivisionofPediatricDermatologyattheUniversity
ofCalifornia,SanFrancisco.Shehaslong-standinginterestsinvascular
birthmarks,mentoring,andcollaborativeresearch.Shehelpedfoundthe
BirthmarksandVascularAnomaliesCenteratUCSFin1991.In2001shehelped
foundtheHemangiomaInvestigatorGroup.ShehasbeeninvolvedinPeDRAsince
itsinceptionandcurrentlyservesonitsExecutiveCommitteeandasSecretary
Treasurer.
Anita Haggstrom, MD
Dr.AnitaHaggstromisanAssociateProfessorofDermatologyandPediatricsat
IndianaUniversity/RileyChildren’sHospitalandservesastheDirectorofthe
VascularAnomaliesClinic,theDirectoroftheDermatologyResidencyProgram,
andDirectorofthePediatricDermatologyFellowshipProgram.Herresearch
interestsincludeinfantilehemangiomasandvascularanomalies.Shecurrently
servesasthePresidentoftheHemangiomaInvestigatorGroup.
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Faculty
Raegan Hunt, MD, PhD
Dr.RaeganHuntisanAssistantProfessorintheDepartmentsofPediatrics
andDermatologyatBaylorCollegeofMedicineandTexasChildren’sHospital
inHouston,Texas.ShegraduatedfromTexasA&MUniversityandtheMD/PhD
programattheUniversityofTexasMedicalSchoolandtheGraduateSchoolof
BiomedicalSciencesatHouston.Shecompletedpost-graduatemedicaltraining
inpediatricsatJohnsHopkins,indermatologyatNewYorkUniversity,andin
pediatricdermatologyatRadyChildren’sHospital/UniversityofCaliforniaSan
Diego.SheiscurrentlytheAssociateDirectorofthePediatricDermatology
FellowshipatTexasChildren’sHospital.Herresearchinterestsincludeneonatal
dermatologyandskinmanifestationsofsystemicdisease.
Dawn Siegel, MD
Dr.DawnSiegelisanAssociateProfessorattheMedicalCollegeofWisconsinand
practicespediatricdermatologyatChildren’sHospitalofWisconsin.Sheattended
medicalschoolattheUniversityofWisconsin,Madisonandwentontocomplete
adermatologyresidencyandpediatricdermatologyfellowshipattheUniversity
ofCalifornia,SanFrancisco.Dr.SiegelisamemberoftheExecutiveCommittee
andisCo-ChairoftheScienceCommitteeforthePediatricDermatologyResearch
Alliance(PeDRA).Sheisco-directoroftheNeurofibromatosisandRASopathy
clinicatChildren’sHospitalofWisconsin.SheservesontheMedicalAdvisory
CommitteefortheCostelloSyndromeFamilyNetworkandtheMedicalAdvisory
BoardforthePHACEFamilyCommunity.In2014,shewasawardedanNIH
RO1entitled“Pathogenesis&NaturalHistoryinaLongitudinalHemangioma
SyndromeCohort.”Dr.Siegel’sresearchactivitiesfocusongeneticdisorders,
mosaicismandvascularanomalies.
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Faculty
Wynnis Tom, MD
Dr.WynnisTomisanAssociateClinicalProfessorintheDepartmentsof
DermatologyandPediatricsattheUniversityofCalifornia,SanDiegoandRady
Children’sHospital,SanDiego.SheisagraduateofStanfordUniversityandthe
UniversityofCalifornia,SanDiego,SchoolofMedicine.Aftercompletingher
trainingindermatologyatSaintLouisUniversity,shereturnedtotheSanDiego
areatopursueafellowshipinpediatricdermatologyandhassincebeenanactive
facultymemberintheDepartmentofDermatology.
Dr.Tomisinterestedinchronicinflammatoryskindisorders,particularlyatopic
dermatitis(eczema)andpsoriasis,andmanagingpatientswhohavemoredifficult
diseasethatrequiresoralorothersystemicmedicines.Sheisstudyinghowthe
geneticmakeupmayinfluencethecourseandresponsetotreatment,alongwith
associatedcomplicationssuchassecondaryinfectionandcardiac healthrisks.
Anna Zajicek, MD, PharmD
Dr.AnneZajicekisaboard-certifiedpediatricianandpediatricclinical
pharmacologistwhocurrentlyservesasChiefoftheObstetricandPediatric
PharmacologyandTherapeuticsBranchattheEuniceKennedyShriverNational
InstituteofChildHealthandHumanDevelopment(NICHD).Shereceiveda
Bachelor’sdegreeinPharmacyfromDuquesneUniversityandaPharmDfrom
theStateUniversityofNewYorkatBuffalo.Shecompletedapostdoctoral
fellowshipintheDepartmentofPharmaceuticsofSt.JudeChildren’sResearch
Hospital,andservedasanassistantprofessorattheUniversityofColorado
SchoolofPharmacyandaClinicalPharmacistatNationalJewishHospitaland
ResearchCenter.In1991,Dr.ZajicekenteredmedicalschoolattheUniversity
ofPittsburgh,andin1998,completedaresidencyinpediatricsattheChildren’s
HospitalofPittsburgh.Shepracticedprimarycarepediatricsfor2yearsandthen
continuedhertrainingasapediatricclinicalpharmacologyfellowatStanford
University.ShesubsequentlyjoinedtheU.S.FoodandDrugAdministration(FDA)
intheOfficeofClinicalPharmacologyandBiopharmaceutics.ShejoinedNICHD
asaPediatricMedicalOfficerinAugust2003,andwasappointedChiefofthe
ObstetricandPediatricPharmacologyandTherapeuticsBranchin2010.The
BranchisresponsiblefortheNIHimplementationoftheBestPharmaceuticalsfor
ChildrenAct.TheBranchmanagesaportfolioofgrantsinobstetricandpediatric
pharmacologytrainingandinbasic,translationalandclinicalresearch.
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PeDRAANNUALCONFERENCE
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Faculty
Lee Zane, MD
Dr.LeeZaneisaboard-certifieddermatologistandAnacor’sSeniorVice-President
andChiefMedicalOfficer.HeservedasAnacor’sVicePresidentofClinical
DevelopmentfromAugust2008toOctober2013,andhasservedasMedical
DirectoratAnacorsinceJanuary2008.From2003to2007,Dr.Zaneservedas
AssistantProfessorofClinicalDermatologyattheUniversityofCalifornia,San
Francisco,DepartmentofDermatology,wherehewastheDirectorofthe
Mt.ZionDermatologyClinicalResearchUnitandtheDirectoroftheAcne
SpecialtyPractice.Dr.ZanereceivedhisB.A.fromColgateUniversityandhis
M.D.fromStanfordUniversity.HecompletedhisDermatologyresidencytraining
attheUniversityofCalifornia,SanFrancisco,wherehealsoearnedaMaster’s
ofAdvancedStudiesinClinicalResearchandmaintainsafacultypositionas
AssistantClinicalProfessorofDermatology.
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ConferenceInformation
REGISTRATION &
MEETING ROOM LOCATIONS
Friday, November 6th
TheconferencewillbeheldintheOakBallroomlocatedonthe
LobbyLeveloftheWestin.Pleaseseethediagramonthefollowing
pageforrelativelocationsoftheBallroomandBreakoutSession
rooms.
oftheconference.
Friday,November6th at8:00am
Saturday,November7th at7:00 am
Theworkinglunchanddinner/receptionwillalsobeheldinthe
OakBallroom.
Theafternoonbreakoutsessionswillbeheldinthefollowingrooms:
Genetic Skin Disorders and Neonatal Skin Groups
Oak Ballroom (LobbyLevel)
Skin Tumors and Reactions to Cancer Therapy (STARC) Group
Sunnyside Room (LobbyLevel)
Saturday, November 7th
AcontinentalbreakfastwillbeavailableintheGalleryAreaoutside
theOakBallroomstartingat7:00am.Theconferencewillremainin
theOakBallroomthroughlunch.
Theafternoonbreakoutsessionswillbeheldinthefollowingrooms:
Birthmarks and Procedural Group
Sunnyside Room (Lobby Level)
Inflammatory Skin Disease Group
Oak Ballroom (Lobby Level)
PHOTOGRAPHY & VIDEO SERVICES
Videoserviceswillbeprovidedforthespeakersegmentsofthis
year’sconferenceandyoumayseecolleaguestakingvideosand/
orphotos(ontheircellphones)throughoutthemeeting.Thisisfor
thepurposeofsharingexcerptsofthemeetingandnottodocument
contentordiscussion.
Contentandproceedingsofthemeetingwillbeposted
onthePeDRAwebsite:www.pedraresearch.orgin
thenearfuture.
12
PeDRAANNUALCONFERENCE
NOVEMBER6-7,2015 WESTINDFWAIRPORTHOTEL IRVING,TX
WIFI
Conference Online
Checkoutsomefunding
sourcesandresources
availableforinvestigators
studyingpediatricskin
disease:
www.pedraresearch.org/
resources-for-researchers
PeDRAhasarrangedWIFIaccessforuseduringthemeeting.Ifyourequire
Internetaccessduringthemeeting,pleasepickupacardwiththeWIFI
informationandpasswordwhenyoucheckintothehotel.Youwillneedthe
passwordtoconnectyourdevicetotheWestinWIFI.WIFIiscomplimentaryin
eachguestroom.
MEALS
LunchanddinnerwillbeprovidedonFriday,November6th,andlight
refreshmentsservedduringthebreakoutsessionsinthe afternoon.
AcontinentalbreakfastwillbeservedonSaturday,November7th,from7:00am
to8:00am.Lunchandafternoonrefreshmentswillalsobe provided.
Whilemostmealsareincludedaspartoftheconference,thefollowingarealso
availableforyourconveniencewithinthehotel:
» The Market isopenforbreakfastat6:00amandclosesat10:00pm.
» The Bluefire Grill servesSouthwesternfareinacasualsettingandisopen
forlunchanddinnerfrom11:00amto10:30pm.
» The Bluefire Lounge isopenfrom11:00amto12:00pm.
» The Café offersacoffeehouseatmospherefeaturingStarbuckscoffeeandis
opendailyfrom6:00amto12:00pm.
HOTEL LOCATION & SURROUNDING AREA
Theconferencewillbeheldatthe:Westin Dallas Fort Worth Airport Hotel, 4545W.JohnCarpenterFreeway,Irving,
Texas75063,(972)929-4500.
Inadditiontotherestaurantsmentionedabove,thehoteloffersamenitiessuchasa24-hourbusinesscenter,
complimentaryguestroomInternet,heatedoutdoorpool,24-hourfitnessfacility,andin-roommassages(byappointment).
ThehotelisjustminutesfromtheDallasFortWorthAirportanda20-minutedrivefromDallas.Whilemealsareprovidedby
theconference,intheeventthatyouwouldliketogooff-siteforfood,thefollowinglocalrestaurantsarenearby:
» AndalousMediterraneanGrill
» BestThai
» Applebee’s,LosColinas
» CavalliPizza
NearbyattractionsfeaturetheIrvingArtsCenter,aSmithsonian affiliate.TheArtsCenterhousesfourartgalleries,two
theaters,andanoutdoorsculpturegarden.
YoumightwanttotakeatouroftheAT&TStadiumlocatedinArlington—thisissaidtobespectacular!Therewillbea
Cowboy’shomegamethisweekend! attstadium.com
Formoreinformationonlocal&surroundingareaattractions,visittheIrvingConvention&VisitorsBureau,
[email protected],oraskatthehoteldesk.
PeDRAANNUALCONFERENCE
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13
TheWestinDallasFortWorthAirport:MeetingSpaceMap
IRVING LECTURE
HALL
DOGWOOD
ELM
MAPLE
PECAN
MULBERRY
CHINABERRY
MEN
COTTONWOOD
GALLERY
BUSINESS CENTER
CONVENTION
REGISTRATION
SIDE
ENTRANCE
WOMEN
POST OAK
LIVE OAK
RED OAK
BANQUET
OFFICE
MAGNOLIA
MESQUITE
WASHINGTON
IRVING
SUNNYSIDE
LOBBY
LOUNGE
2
THE MARKET
LOBBY
LOUNGE
ATM
RESTROOMS
VIEWING
ROOM
PRIVATE DINING
ROOM 2
PRIVATE DINING
ROOM 1
GIFTSHOP
ELEVATORS
BLUEFIRE
GRILLE
FRONT DESK
MAIN DINING
ROOM 1
THE CAFE
BAR
HOTEL ENTRANCE
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PeDRA Conference
PeDRAANNUALCONFERENCE
NOVEMBER6-7,2015 WESTINDFWAIRPORTHOTEL IRVING,TX
TRANSPORTATION
TheWestinoffersa24-hourcomplimentaryShuttleServiceto
andfromtheDFWAirport.
DeparturesleavetheHoteltotheAirportevery30minuteson
thehourandhalfhour,24/7.
Self-parkingattheWestiniscomplimentaryforguests;
however,avaletserviceisalsoavailablefor$14perday.
NOTES ON TRAVEL AND ACCOMMODATIONS
Throughgenerousfundingsupport,PeDRAisabletocover
thecostofhotelroomsattheWestinthataresharedby
participants.Forthosewhoarenotsharingaroom,PeDRA
willbeabletosubsidizeuptoone-halftheroomrate.Upon
arrivingatthehotel,checkinatthereceptiondeskand
indicatethatyouareapartofthePeDRAAnnualConference.
Youwillneedtoprovideacreditcardtocoverincidentals
(anyincidentalsyouincurwillnotbecoveredbyPeDRA).
4545 W. John Carpenter Fwy
FellowandResidentparticipantsapprovedforlimited
subsidiestosupporttheirtravel(air,car)costsshouldsubmit
theirreceiptsanditinerariestoLindaThornhill(attending
theConferenceandstaffingtheRegistration&InfoTable).
Receipts/Itinerariesarerequiredforreimbursement!
PeDRAisunabletocoveranyothertravelcosts,including
food,parking,ortaxis.
PeDRAANNUALCONFERENCE
NOVEMBER6-7,2015 WESTINDFWAIRPORTHOTEL IRVING,TX
15
ABOUT PeDRA
T
THE PeDRA VISION
EXECUTIVE COMMITTEE
Tocreatesustainable,collaborativenetworkstobetterunderstand,prevent,
treatandcuredermatologicdiseasesinchildren.
PEDRA CO-CHAIRS
ROOTS AND BACKGROUND
Inresponsetounmetresearchneedsinpediatricdermatology,membersof
theSocietyforPediatricDermatology(SPD)createdthePediatricDermatology
ResearchAlliance(PeDRA)in2012.PeDRAisaresearcharmofSPD.
PeDRAisanetworkthatmultipliesthepowerofindividualresearchersbylinking
themtogetherincollaborativestudies.Itisarapidlygrowingorganization,runby
leadingdermatologistsintheUnitedStatesandCanadawhovolunteertheirtime.
PeDRAstreamlinesresearchbymakingavailableacoalitionofpediatric
specialists—scientistsandclinicians—poisedtoconductclinicaltrialsandother
studiestobetterunderstandpediatricskindiseaseandpotentialsolutions.
Withthepoolingofresourcesandtheresultingexponentialexpansionofthe
patientbase,PeDRAwillbringusclosertonewtreatmentopportunities.PeDRA’s
researchacceleratesresultsforchildrenlivingwithunderserved,yetdemanding
andburdensome,dermatologicconditionsanddiseases.
Lawrence Eichenfield, MD
UniversityofCalifornia,SanDiego
RadyChildren’sHospital,SanDiego
Amy Paller, MS, MD
NorthwesternUniversity
Ann&RobertH.LurieChildren’s
HospitalofChicago
EXECUTIVE COMMITTEE MEMBERS
Anna Bruckner, MD
UniversityofColoradoSchoolofMedicine
Children’sHospitalColorado
Ilona Frieden, MD
UniversityofCalifornia,SanFrancisco
BenioffChildren’sHospital
Moise Levy, MD
DellChildren’sMedicalCenter,
DellMedicalSchool,UniversityofTexasat
Austin;BaylorCollegeofMedicine
Kimberly Morel, MD
ColumbiaUniversity,MorganStanley
Children’sHospitalofNewYork-
Presbyterian
Dawn Siegel, MD
MedicalCollegeofWisconsin,
Children’sHospitalofWisconsin
Jeffrey Sugarman, MD, PhD
UniversityofCalifornia,SanFrancisco
EARLY CAREER INVESTIGATOR
LIAISON TO THE EXECUTIVE
COMMITTEE
LisaArkin,MD
RushUniversity
EXECUTIVE DIRECTOR
SheilaRittenberg
2015 PEDRA FELLOWS
JenniferDay,MD
PamelaGangar,MD
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PeDRAANNUALCONFERENCE
NOVEMBER6-7,2015 WESTINDFWAIRPORTHOTEL IRVING,TX
GET INVOLVED IN PeDRA!
Take a Leadership Role:PeDRAneedsexpertiseinavarietyofareasto
supportourworkingcommittees.Fromdatabasemining,tostatistical
analysis,topublicrelationsandmore,PeDRAencouragesparticipation
fromprofessionalsinthedermatologyfield.Getinvolvedbycontacting
SheilaRittenberg: [email protected].
COMMITTEE
COMMITTEE CHAIR AND
Join Collaborative Studies:Asresearchcollaborationtakesholdand
studiesmoveforward,opportunitiesopenupforjoiningstudygroups
workingonspecificdiseaseinvestigations.Learnmorehere:
www.pedraresearch.org/groups.
Become a Member of PeDRA:Membersenjoydiscountedregistrationatthe
PeDRAAnnualConference,receiveannouncementsofclinicaltrialsseeking
enrollingsites,andhaveaccesstoprotecteddataandmaterialshoused
onthePeDRAwebsite.Soonforumswillbeavailableformemberstostay
connected,findcollaborators,andbrainstormideas.Physicians,scientists
andotherprofessionalsworkinginthefieldofpediatricdermatologycan
joinPeDRA.
Membership categories are:
Active Members (dermatologists, non-dermatologists physicians or
research scientists)
Trainee Members (post-graduate residents or fellows)
Affiliate Members (research associates, research coordinators,
physician extenders)
Corporate Members (industry-based physicians, scientists, or other
leaders)
Advocacy Partner Members (representatives of pediatric
dermatology patient advocacy groups)
Raegan Hunt, MD, PhD
TexasChildren’sHospital
BaylorCollegeof Medicine
Completeourmembershipapplicationonline&joinPeDRAtoday!
www.pedraresearch.org/membership-application
PeDRAANNUALCONFERENCE
NOVEMBER6-7,2015 WESTINDFWAIRPORTHOTEL IRVING,TX
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CONFERENCE PARTNERS
PeDRA owes a debt of thanks to the many individuals, advocacy organizations, and
pharmaceutical/ biomedical companies that have supported PeDRA. They have significantly
helped the Alliance by providing foundational funding, enabling growth and expansion of the
organization and in particular, the development of this Annual Conference.
PeDRAgraciouslythanksandacknowledgestheSocietyfor
PediatricDermatology(SPD)foritsunwaveringsupportof
research.TheSociety’scommitmenttolaunchingPeDRA
andshepherdingoftheAllianceasanentitycompletely
dedicatedtofosteringcollaborativeresearchisthereason
wearenowseeingimportantstudiesemergingunderthe
PeDRAumbrella.PeDRAoperatesasaresearcharmofSPD.
PeDRAacknowledgestheNationalInstitutesofHealthforits
fundingofthisAnnualConference,andthepivotalsupport
theagencyprovidedforthe2013and2014meetings.In
particular,PeDRAhasreceivedsupportfromtheNational
InstituteofArthritisandMusculoskeletalandSkinDiseases
(NIAMS)fromtheAlliance’sinception.ThisNIHrecognition
andearlyfundingenabledPeDRAtocreatethebedrock
oftheconference;thisfundingalsoprovidedthebasisfor
subsequentlyengagingothersupportersandstakeholders.
TheAnnualConference,acentralvehicleforachieving
PeDRA’smission,couldnothavebeendevelopedwithout
thiskeyNIHbacking.*
PeDRA genuinely thanks the pharmaceutical companies that have supported the Alliance’s growth and
development in 2015. Their contributions have provided essential funding to enable PeDRA’s overall
capacity building this year:
PeDRAwishestoextendaheartfeltnoteofthankstotheindustrypartnerswhohaveprovidedfundstospecifically
supportthe2015Annual Conference:
$25,000
$10,000
$25,000
Wealsoacknowledge,withappreciation,theCompaniesfundingPeDRA’scapacitybuildingandgrowthin2015:
Pharm aceuticals
Nor th
Am erica
LLC
$40,000
$40,000
$20,000
*Funding for this conference was made possible by a grant (R13AR068926) from the National Institute of Arthritis and Musculo-skeletal
and Skin Diseases (NIAMS). The views expressed or written in conference materials or publications and by speakers and moderators do
not necessarily reflect the official policies of the National Institutes of Health; nor does mention by trade names, commercial practices, or
organizations imply endorsement by the U.S. Government.
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PeDRAANNUALCONFERENCE
NOVEMBER6-7,2015 WESTINDFWAIRPORTHOTEL IRVING,TX
Engagementwithadvocacyorganizationshasbroughtthepatientvoicetothisconferenceandintoresearchpartnerships.
Thissynergyhasbeenrewardingforeveryoneinvolvedandhasspawnedsomeimportantcollaborationsandcontributions–
forexample,theFoundationforIchthyosisandRelatedSkinTypes(FIRST)provided$50,000foraPeDRAcollaborativestudy
ontrackingnewbornswithIchthyosis.TheExecutiveDirectoroftheBasalCellCarcinomaNevusSyndrome(BCCNS)Life
SupportNetworkwassoinspiredafterattendingthe2013PeDRAAnnualConferencethattheNetworkdirectedaportion
ofasignificantprivatecontributiontoPeDRA.NevusOutreachisthefirstadvocacyorganizationto,onitsownaccord,go
abovetheslatedsponsorshiplevelsforpatientadvocacyorganizationswithagenerouscontribution.
AdvocacyorganizationsbothattendandsponsorPeDRA’sconference.Therearemanycompetingprioritiesforuseofthese
organizations’resourcesyetseveralelecttoallocatefundstothePeDRAconference.
WhetherhereinTexasorbackatworkafterthemeeting,pleasetakeamomenttoacknowledgeand
thankyouradvocacycolleaguesfortheirgeneroussponsorshipsofthisyear’smeeting:
NEVUSOUTREACH . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 8 , 0 0 0 NATIONAL PSORIASIS FOUNDATION ( N P F ) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 5 , 0 0 0 EPIDERMOLYSISBULLOSAMEDICALRESEARCHFOUNDATION(EBMRF). . . . . . . . . . . . . . . . . . . .$2,500
FOUNDATIONFORICHTHYOSISANDRELATEDSKINTYPES(FIRST). . . . . . . . . . . . . . . . . . . . . . . . $1,500
NATIONALECZEMAASSOCIATION( N E A ) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,500
STURGE-WEBER F O U N D A T I O N . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 1 , 0 0 0 EBRESEARCHPARTNERSHIP. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $500
COSTELLOSYNDROMEFAMILYNETWORK. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $500
PACHYONYCHIACONGENITA.......................................................... $500
PHACESYNDROMECOMMUNITY. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $500
PeDRAANNUALCONFERENCE
NOVEMBER6-7,2015 WESTINDFWAIRPORTHOTEL IRVING,TX
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