- Down Syndrome NSW

Annual
Report
2013
Contents
Mission Statement
01 . Mission Statement
02 . Staff & Board
04 . President’s Letter
07 . Parent Support
10 . Information & Library
13 . Fundraising & Events
16 . External Fundraising
17 . Up Club
18 . Sponsors
19 . Volunteers
20 . Donor List
23 . Financial Statements
Down Syndrome NSW is an independent, registered charity
established and run by parents. The work of Down Syndrome NSW
depends on the generosity of its members and the general public
in supporting its fundraising efforts and through donations. Annual
funding from the State Government through the Department of Ageing,
Disability and Home Care assists in meeting administrative costs.
2013 Annual Report of Down Syndrome Association of NSW Inc trading as Down Syndrome NSW
7 Deed Place
Northmead NSW 2152
PO Box 107
Northmead NSW 2152
T: 61 2 9841 4444 F: 61 2 9841 4400
E: [email protected] W: downsyndromensw.org.au
Down Syndrome NSW is a not for profit registered charity
ABN: 39 023 586 389
Registered Charity No CFN 11321
Down Syndrome NSW
encourages people with Down
syndrome to fulfil their potential for
successful and happy lives, in a
society which knows their abilities
and is supportive of their needs. We
represent the interests and respond
to the needs of people with Down
syndrome in the major aspects
of their lives; as members of the
family, in their individual pursuits,
and as members of the community.
We want all people with Down
syndrome to reach their full potential
as individuals and citizens within
the wider community in NSW and
Australia.
Down Syndrome NSW has
made its mission to support and
promote the interests of all people
with Down syndrome, their families
and carers in NSW. We will work to
improve the quality of life of people
with Down syndrome by empowering
and enabling our membership and
supporters through:
•C
ontact support for families and
carers of individuals of all ages
with Down syndrome.
•G
enerating and disseminating
information to our membership,
professionals and the community
at large.
•C
reating and promoting innovative
programmes which further the
development of individuals with
Down syndrome.
•R
aising positive public awareness
about Down syndrome.
•P
romoting equal rights for
people with Down syndrome
both individually and collectively.
Contributing to the shaping of
Government policy and service
provision.
•R
epresenting the interest of our
constituency in local state and
national forums.
•E
ncouraging and assisting
research initiatives into issues
relating to Down syndrome.
•R
aising funds for the above
purposes.
01
Board Members
President: Matthew Kelly [9/9]
Vice-President: Margot Elliffe [7/9]
Treasurer: Richard Yee [8/9]
Secretary: Tracylee Arestides [5/9]
Public Officer: Chris Elenor [5/9]
Angela Adams [7/9] | Roger Bamber [6/9] | Emily Caska [2/9] | Julie Cromer [5/9]
Meaghan Hepplewhite [7/9] | Sarah Hyland [6/9] | Jacqueline Little [6/9]
Ingrid Rikkert [7/9] | Candy Connors until 06.02.13
Bracketed figures indicate the attendance at board meetings by each member. Nine meetings for the year.
Staff
General Manager: Scott Bridges
Administration: Michelle Bamber | William Grieve | Siena O’Brien
Parent Support:
Judy Davidson, Manager | Lynn Bailey | Miriam Philomena | Mary Thompson
Information and Library:
Fiona Place | Jo See
Fundraising:
Priscilla Leong
Up Club:
Brooke Jones until Sept 2012
Kathryn Hanna Aug - Dec 2012
02
03
President’s Report
The Down’s Syndrome Association of NSW was formally established in
1980 by parents, most of whom had young children with Down syndrome
and had participated in the Macquarie University Down Syndrome
Program. During the 1960s and 1970s incresing numbers of parents
defied the accepted wisdom of the day, to institutionalise their children,
and instead sought out other families who also wanted to bring their
children home and live a normal life.
From simple beginnings this
community of families has grown
to become the force for advocacy,
education, positive representation and
inclusion that we are today.
The 2011-12 Board came
together as a new team, with a
diverse range of experience, expertise
and knowledge. Given the rapidly
developing changes in the wider
disability sector, and the emergence of
the Association from a volatile period
of flux on many fronts, the Board has
worked well and consistently on behalf
of our members. Some outstanding
matters to achieve resolution under
the Board were finalisation of the
financial arrangements arising from the
Richard Wilkins/Channel 9 fundraising
event, and the management and
acquittal of accounts as part of the
process of placing the Association on
a sound financial footing. The task
ahead is to build on this foundation,
and, through fundraising and proper
financial management, ensure that the
Association survives in the future,
It has been a year of
considerable progress for the
Association on other fronts as well.
Down Syndrome NSW is delighted to
04
join with our sister organisations across
the country to form Down Syndrome
Australia, a peak organisation to
represent our interests at a federal
level. As we continue to build and
enrich our community through grass
roots sharing and regional outreach,
we also intend to speak up on the
systemic issues that affect people with
Down syndrome through advocacy at
a state level and, with DS Australia,
federally. While it is still early days
in the formation and running of this
new organisation, we are committed
to continuing to help build a powerful
national voice for people with Down
syndrome.
Down Syndrome NSW is
essentially a member organisation,
a community with a common cause.
In considering ways to best serve
our community the Board made
several major decisions to build our
capacity as an organisation. The
most exciting of these is undoubtedly
the long overdue update of our office
software. While most of us might not
even consider the role of software,
the reality is that our move to Raiser’s
Edge will let us engage with you,
our members more effectively and
efficiently. This means more of the
events and information seminars you
have requested, streamlined payments
and communications and a substantial
freeing up of our staff’s valuable time to
be more available to families.
Advocacy and information
remain central to our work. In line with
our new capacity, and the formation
of our national body, Down Syndrome
NSW has updated the way we look
using the visual elements developed for
the national association. Our smart new
logo, work on a new more accessible
website, the more frequent production
of our enews - all signal our intention
to usher in a new era of information,
engagement and service for our
members.
The past year has also seen
the Association move premises. The
onset some years ago of several large
funded programs necessitated a move
to larger premises, at Weston Street
Harris Park, to accommodate extra staff
and activity. As those programs have
wound down to their natural conclusion
it was no longer viable or necessary
for the Association to pay commercial
rent on such a large space. With the
generous assistance of ADHC, the
office and library have moved to more
financially sustainable accommodation
in Deed Place, Northmead. This sunny
suburban house in a quiet residential
area accommodates all our wonderful
staff easily, as well as providing a space
for that most valuable of resources
the Down Syndrome NSW library.
Members are always welcome to call in
to use the library or just say hello.
A major role of the Association
role continues to be the unique
parent-to-parent support we are able
to offer new families - from the first
time they hear about their child’s
‘bonus chromosome’ through all the
ups and downs of life ever after. Our
staff are indeed our greatest asset,
and on behalf of the Board I’d like
to acknowledge their continued
professionalism and commitment to
making the world a better place for
people with Down syndrome.
It has been a pleasure to serve
as President with the 2011-12 Board.
I’d like to thank all the Board members
who have so graciously volunteered
their time, energy and experience over
the past year. Particular thanks go to
long time member Julie Cromer, who
will be leaving the Board this year. Her
dedicated contribution over the many
years of her involvement with Down
Syndrome NSW has ranged from
librarian and information services to
several stints on the Board. All of us
are grateful for her dedication and hard
work, and she deserves our profound
thanks and gratitude.
Our greatest asset, as a
community sharing the vision of an
opportune life for people with Down
syndrome, is the depth of our collective
knowledge and wisdom. I believe I
am privileged to see this first hand
in the Down Sydnrome NSW staff, in
our volunteers, in the variety of our
membership and most of all in the
passion of every parent who contacts
our Association.
Matthew Kelly
President
05
Parent Support
The Parent Support Team was notified of the births of 53 babies with
Down syndrome in the twelve month period from July 2012 – June 2013.
We responded with personal visits, phone calls and information as
requested by new families and health professionals.
Achievements
The Cecilia Kilkeary Foundation
continued to fund our ‘Creating a
Positive Start’ project. This funding
allowed us to undertake 166 visits to
parents, and professionals, enabling
755 people access to support and
information. The Kilkeary Foundation
also funded our annual Baby Day for
new families.
Mary Thompson continued our
Hospital and Health professionals inservice program. Thirteen in-services
were conducted over the twelve
month period. Since the inception of
the program, an in-service has been
conducted in every hospital in the
Sydney Metropolitan, Newcastle and
Wollongong areas. We have contacted
a number of regional hospitals and
sent current new parent information
packages. We aim to contact and
update with information and resources
all regional hospitals across the
state within the next 12 months. We
would formally like to thank Mary for
the valuable and fantastic work she
continues to do for DS NSW.
06
Candy Connors continued to
provide a much appreciated role as the
DS NSW Regional Liason and Support
Coordinator for the Hunter region. This
position encourages and facilitates
support on a local level, disseminates
local information to families and
encourages connection between the
local community events and DS NSW.
DS NSW would like to formally thank
Candy for the passion and commitment
she has brought to this role.
Highlights
In November 2012 we held our Baby
Day. It was a wonderful opportunity
for 27 new mums and their babies to
connect, ask questions, swap stories
and gain some information. Eight dads
and a number of siblings joined us for
lunch at the conclusion of the formal
activities.
The annual Mothers Weekend was
held in Sydney City this year. Thirty one
mothers attended across the weekend.
The weekend provided opportunities
for networking and support, the sharing
of information and a time for relaxation
and rejuvenation.
07
Parent Support
Adult Parent Support
Future
We have been vigilantly following the
development of the National Disability
Insurance Scheme, DisabilityCare
Australia, particularly the initial roll
out in the Hunter, and implications
for service users. DisabilityCare
will progressively be rolled out
across NSW from July 2013 and it
is anticipated that Disabilitycare will
cover all eligible residents in NSW by
July 2018.
The lack of skilled workers is
one of the biggest identified gaps in
this new paradigm in service delivery.
We are currently developing training
programs for professionals to include,
‘A person centred approach to working
with people with Down syndrome’ and
‘Engaging families’.
We worked with our
Communication Group with Devices
commencing August 2013.
For our families we anticipate
being able to present a workshop
on developing and maintaining good
partnerships with service providers. Our aim is to present these
workshops in Sydney as well as
regional areas. When we offer
these workshops in regional areas,
we will also intend to offer a parallel
performing arts workshop for young
adults with Down syndrome.
Parent Support priorities for the
immediate and long term future.
• Continuing to provide the core
business of supporting new families
with information and access to
resources and support networks, as
well as ensuring health professionals
have current and accurate
information about Down syndrome.
08
• Development of online support,
resources and information for our
new parents.
• Encourage the development of
support networks, structures and
information for families with Adults
with Down syndrome.
• Increase workshop and in-service
opportunities to connect and inform
families and professionals.
The Parent Support Team
would like to thank all our members
who willingly offer their time and
support to new families. It provides an
invaluable support to both the families
and to our team.
We would also like to thank
all the staff at the office of Down
Syndrome NSW for the support,
wisdom and knowledge they share
with us.
Information & Library Services
The Library receives requests and provides information to members and
non-members about Down syndrome. Requests are frequently made
in the following areas; medical, health and other therapeutic services,
education, adolescence, ageing, accommodation and current public
policy issues.
Primarily the library serves
the diverse information needs of our
members. Access to library resources
is a significant benefit of Down
Syndrome NSW membership. We
hold a substantial collection of Down
syndrome specific material.
Down Syndrome NSW staff
members frequently rely on library
resources to inform their activities. The
library underpins much of the work
undertaken by the parent support team.
The library provides assistance
with resources to teaching and
support staff in government and nongovernment schools across the state.
We receive and respond to many
requests for information from secondary
and tertiary students undertaking large
and small research projects. Part
of our information service involves
disseminating requests for participants
from academics engaging in research
projects into Trisomy 21.
In the latter half of 2013, work
will commence on the development of
a comprehensive, industry standard
catalogue of the library and archival
holdings. We are the custodians of
significant collection of Down syndrome
specific texts, in a variety of formats,
collected over a thirty-year period.
The library preserves the history
of the organisation and is developing
10
an appropriate archive, its development
and care is an ongoing project.
The library wishes to thank
Edme Steirn for her long standing
commitment to providing much
appreciated voluntary assistance to
both the library and Parent Support.
Publications:
Print:
Voice will become a national publication
as of August 2013. It will continue to
be published 3 times a year. Members
will no longer receive a copy of the
journal unless they elect to take out a
subscription.
eUpdate:
The eUpdate changed from a monthly
to bi-monthly publication in May 2013
to keep subscribers more efficiently
informed. We are keen to include
more stories submitted by members
about the activities of people of all
ages with Trisomy 21 in NSW. At
the time of reporting the eUpdate
has approximately two thousand
subscribers.
Blog:
Keeping Up with Down syndrome blog
continues to be edited by Jill O’Connor,
publishing on an almost daily basis.
Social media:
DS NSW maintains a presence on
Facebook thanks to Fiona Place.
Website:
The website is often the first port of
call for many, our site is currently being
significantly redesigned to provide
enhanced access to members and nonmembers.
Workshops:
My Dream: Their Independence,
Letting Go
Successfully presented on 23 February
by Margot Elliffe Burwood RSL, 58
people attended.
Playing to Their Strengths
This ever popular one day presentation
by Judy Davidson, for educators and
school support staff, was held in April
and was well attended.
Estate Planning
Presented by Jonathan Harris from
Harris Freidman Lawyers.
Down Syndrome NSW wishes
to thank Jonathan for presenting a
difficult topic with clarity and concision.
Jonathan has been kind enough to visit
Newcastle in September. His efforts are
much appreciated.
11
Fundraising & Events
Down Syndrome NSW wishes to acknowledge and thank all those people
who, and organisations which, have given their effort and energy in
support of our events over the past year.
Buddy Walk NSW 2012
October 14-21
In October 2012 Down Syndrome NSW
celebrated World Down Syndrome
Awareness Week with its annual Buddy
Walk. Celebrations began in Sydney on
Sunday 14th October, followed by walks
in Wagga Wagga, Hunter and Illawarra
Regions on Sunday 21st October.
Over 1500 people participated
in walks across NSW. The weather was
glorious, and the Teams were out in force
and got in to the spirit of things, with
fabulous outfits, personalised t-shirts and
coloured hair.
It was a wonderful and memorable
event for all those who participated, and
we would like thank them all for their
outstanding efforts in raising funds and
awareness for Down syndrome. In 2013 the
event will change its name to Step! Up for
Down syndrome.
A huge thank you also to all of our
generous sponsors, supporters, volunteers,
and to all who were involved in organising
the event for their incredible support and
hard work in helping to make Buddy Walk
- NSW such a great success! In particular
Irene Newby, Maha Daizli, Catherine
Manning, Karyn Ellem, Sandra Biggs,
Meaghan Hepplewhite, Candy Connors, and
Jennine Taylor.
Smiles 4 A Day
Spring Carnival
Smiles 4 A Day Spring Carnival was held
on Saturday 17th November 2012 at
Parramatta Stadium. The day was held
for children with special needs and their
families, and was filled with fun including
face-painting, roving performers, bike rides,
gift bags, raffle, craft and sports activities.
Thank you to Irene Newby for all
her hard work and dedication in creating
a great event for families. Hope to make it
bigger and better in 2013.
Dreamnight at the Zoo
Taronga Zoo
On Thursday 6th December 2012 over
100 of our families attended Dreamnight
at the Zoo, a spectacular and exclusive
event held at Taronga Zoo. The evening
started with an appearance from Dorothy
the Dinosaur, and even Santa dropped in to
say Hi.
The evening then continued
with animal encounters, face painting,
roaming performers (i.e. characters from
Star Wars), police cars, fire truck, Harley
Motor bikes, and more. Guests took home
not only wonderful memories of a great
night, but also a gift bag and official photo
to remember their evening by. It was an
unforgettable experience for both the
children and their parents.
A huge thank you to all the Staff and
Volunteers at Taronga Zoo for all the work
they put in to organising such a magical
event, and for allowing us to be a part of it
once again.
13
Fundraising & Events
T4321 & High Tea 4 321
Sydney and Hunter
T4321 events were held across
NSW in celebration of World Down
Syndrome Day, March 21 2013.
Communities joined together over a
cuppa or two to recognise the abilities
and achievements of people with Down
syndrome and to raise vital funds to
support their needs.
Numerous events were held
across the state, morning teas, cake
bakes, picnics, raffles, and for the first
time this year Down Syndrome NSW
hosted the High Tea 4 321 in Sydney
and the Hunter.
Scrapheap Adventure Ride
Back O’ Bourke 2013
This year, over 50 riders and
their support teams embarked on
an adventure over the Easter long
weekend (March 29-30) to Comeroo
Camel Station, located 150kms NorthWest of Bourke. We acknowledge all
of their amazing efforts in rasing funds
and awareness for Down syndrome.
Team Inverell set the record this
year for having the largest team and
raising the highest amount of money.
Michelle Bamber of DS NSW attended
the event. “Altogether my family had
a great time and we would happily go
again. I think the riders who made the
journey enjoyed the weekend as well.
This event plays an important role in the
life of Down Syndrome NSW. It raises
14
much needed funds to support the work
of the association, this year raising over
$50,000. Even more importantly we
have the opportunity to raise awareness
of the needs and abilities of people with
Down syndrome particularly in rural
areas. I would like to thank those who
participated this year and for making my
family feel so welcome. We can’t wait
to see where the Scrapheap Adventure
will take us next year.”
Down Syndrome NSW wishes
to acknowledge the incredible efforts
of parent member, Perry Gilsenan
(Founder of Scrapheap Adventure
Ride) for all of his work in organising
this fantastic event, and his family Jane,
Grace and Molly who were very patient
and generous with their time.
We hope Scrapheap Adventure
Ride 2014 is bigger and better!
15
External Fundraising
The Up Club
Along with major fundraising events such as Buddy Walk, T4321, and
Scrapheap Adventure Ride, a number of our wonderful supporters held
celebrations and events of their own to raise funds for Down Syndrome NSW.
We would like to thank all those who expended great time and energy to
raise vital funds on behalf of Down Syndrome NSW. These include:
The 2012 Sun-Herald City2Surf
presented by Westpac-Sydney
Sunday 12 August 2012
• Wendy Wong
• Vince Barbara
• Dimitri Gotsis and Team Gotsis
Accounting
• Michelle Sraih
• Kate Baker
• Daniel Fleming
• Johan Gabrielsson
20th Annual Pub2Pub Charity
Fun Run & Walk
Sunday 26 August 2012
• Ruby Cannon
Make a Difference - BBQ Fundraiser
Sunday 16th September 2012
• Chloe Sawyer
Lawn Bowls Family Fun Day
Sunday 23 September 2012
• Robyn Phillips
Movie Night Fundraiser
Monday 15th October 2012
• Brid Corrigan
2012 Rebel Sport Run4Fun
presented by The Sun-Herald
Sydney Olympic Park & ANZ Stadium
Sunday 4 November 2012
• Kate Doherty
16
Basketball Shooting Competition
Nov 2012
• Trinity Grammar School
Australia Day Raffle/Fundraiser
Saturday 26th January
• Blue Mountains Woodturners Inc
The 2013 Sydney Morning Herald
Half Marathon presented by
Colonial First State Sydney
19 May 2013
• Nick O’Flynn
• Christopher Wong
• Erica Tseng
• Edward Santos
Down Syndrome Awareness Fundraiser
23 May 2013
• Sarah & Mary Givney-Clark
held at St Patrick’s College
Charity Benefit Night
Fri 21st June 2013
• Tin Lids Play Centre, Morisset
Outdoor Complete
• Mel Angelis
Insect Glue Trap Proceeds from sales
The UP Club is a peer support social group for young adults with Down
syndrome. It conducts regular social activities throughout the year. It is
inclusive of siblings and is a great avenue and way for siblings to meet
and get together. DSNSW recognises the importance of siblings so we
provide this activity as an opportunity for siblings to get together, meet
one another, and chat.
Our Up Club Coordinator Brooke
Jones was farewelled in September
2012. Kathryn Hanna was subsequently
employed in the position. She resigned
at the end of 2012 due to other work/
study commitments. A number of
activities were organised over the 6
month break, including the Addams
family Show and a pub night. Thanks
to Jackie Little for coordinating the pub
night. The Up Club activity Pub Night at
The 3 Weeds, Rozelle has become a
regular and very popular activity.
The Up Club committee worked
on policies and procedures immediately
following Kathryn’s departure and the
position was advertised in April 2013
and readvertised June 2013. Flavio
Fernandez-Maldonado was employed
as the new coordinator in July 2013.
President Nick Hogan and Vice
President Ruth Cromer were invaluable
with their insights and contributions to
the Up Club Interview panel and the
appointment of the new Coordinator.
The Up Club again has been
lucky enough to have secured support
for the 2012-2013 period. Thanks to
Anne Sherry and Michael Hogan for
their continued generous support.
17
Thanks and Sponsors
Thank you to each and every one of our wonderful, dedicated and passionate
volunteers and sponsors, who play a vital role in making events possible:
Buddy Walk Sydney
Banana Boat
Belvoir St Theatre
Café 2 U - Paul Brindle - coffee & snacks
Calmsley Hill City Farm
City Convenience Store - refreshments & snacks
Educare Academy - face painting and sports activities
Event Cinemas
Flying Bark Productions - Blinky Bill
Gotham’s Finest - Batman & Catwoman
Leonie Brown’s Dancers - entertainment
Look Design
McPhersons Plains Alpine Retreat
Mirvac Hotels
Miss Tippy Toes, Northcott Disability Services - Spinosaurus
North Sydney Council
Onsite Rental Group
Rotary Club of St George Central - Sausage Sizzle
Royal Australian Navy
Sharp
Steve Passfield - MC/sound/entertainment
Sydney Harbour Foreshore Authority
Taronga Zoo
The Powerhouse Museum
Veolia
Buddy Walk Wagga Wagga
501st Legion - Star Wars
Apex Club
Brian and Karen Reid from Riverina Alarm Systems
Geoff Crouch from Ron Crouch Transport
Jamie Way and the other members of “Groove Factorie”
Kat Fisher Dancers
Mark and Jo Wade from Rock Solid Gear
Rural Fire Service
Scribbles Café
The entire Stenhouse family from Lake Cargelligo
Vicky and Greg Tooze from Turvey Tops Butchers
Buddy Walk Hunter Region
Active Dance - Performance Group
Adamstown Lions Club - BBQ
Betty Hepplewhite
Betty Hepplewhite - Pre Buddy Walk support
Carolyn Edwards - Performer
Cattleman’s Country Motor Inn, Dubbo
Charlestown Golf Club
Cheryl Prior - Pre Buddy Walk support
Coles Medowie
Coles Toronto
Connors Family
Darryl Prior - Pre Buddy Walk support
Denise’s Boutique, Toronto
Event Cinema, Glendale
Frame Today, Warners Bay
The Hair Retreat Wangi
18
Hunter School of the Performing Arts Marching Band
– Pre-walk Entertainment & Official Opening
Jay Caruana - Little Kickers
John Solomon, Foundation21
K Mart, Glendale
Leigh Creighton - Opening Speaker/Assistant Master of Ceremonies
Les McAllister - Acknowledgement to Country
Little Kickers - Gross Motor Activities
Marissa Matthews - Performer
Medieval Group - Performance Group
Nathan Outteridge & Iain Jensen
Newcastle City Council
Officeworks, Warners Bay
Peterson House, Pokolbin
Priceline, Toronto
Shindigs, Lambton
SNP Security
Steve Passfield - Master of Ceremonies
Taronga Park Zoo, Western Plains Dubbo
Tin Lids Play Centre, Morisset
WaltzSing Matildas - Performance Group
Wangi RSL Amateur Sailing Club
Westlakes Medical Centre
Buddy Walk illawarra
Collegians Football Club and Tullimbar Public School
Go Hire Unanderra
i98fm radio station
Illawarra Mercury
Lake Times
Lightsounds Wollongong
Mo’JAVA Mobile Café
Win TV
Wollongong Council
Wollongong NRE Hawks and Illawarra Dragons
Scrapheap Adventure Ride 2013
Brad Hare from Hare and Forbes Machinery House
Bruce Sharpe and staff at Comeroo Camel Station, Bourke
CD Media
Charity Paintball
Clubby from Trailzone Magazine
Featherdale Farm
Fraser Motorcycles
Gilsenan family
Gleny Rae for the music on the night
Greg Yager of Old Bulls Trail Riders for leading the ride from Bathurst to Comeroo
Martin Wyllie of Pilot Air Compressors
Michael Hein - Laser Welding Services North Rocks
Michael McDowell from The Sign and Bagde Centre
North Manly Bowling Club - March in support of Scrapheap
Peter Scrivener for organising the Scrapheap Rock, Sunday 24th
Powerhouse Museum
Steve Smith of Adventure Moto
Special thanks to all the generous donors for their valuable support
and getting behind the riders.
Voluteers
Sydney Volunteers
Hunter Volunteers
Illawarra Volunteers
Dominic Aguilar
Nisha Amin
Stuart Armstrong
Danielle Ash Worth
Daniel Barber
Brad Baurrt
James Black
Belinda Bull
Ruby Cannon
Audrey Chinyani
Gabi Cohen
Samantha Connors
Candy Connors
Maha Daizli
Ben D.
Johnny Egurolla
John Falevai
Ashling Farrell
Eva Gerber
Sam Gerber
Dario Guerrero
Meaghan Hepplewhite
Andrew Higgs
Nicholas Karpathios
Del Keane
Eric Kent
Evaine Ladwa
Kelvin Lim
Tafadzwa Maringehosi
Jamie McGregor
Patrice Miller
Eden Narramore
John-David Narromore
Kennith O’Connor
Demelza O’Keffe
Mayen Palingcod
Jamie Patton
Karl Pobre
Cheryl Rose
Robert Rowland
Miguel Samaniegu
Gabby Samaniegu
Matthias Singh
Isabelle Smith
Lauara Tocha
Daisy Tocha
Dinh Tran
Abigail Vallejo
Joy Vega
Brianan Webb
Justin Wilkinson
Mitchell
Chadwick
Kelsie Alexander
Erin Barnett
Candy Connors
- Organising Committee
Samantha Connors
Tracy Fernance
Margaret Galvin
Bridget Gerdsen
Leanne Gillespie
Bob Goedner
Lou Harris
Mikayla Harris
Kerrie Harvey
Wayne Harvey
Betty Hepplewhite
Meaghan Hepplewhite
- Event Coordinator
Cynthia Hill
Julee Hillhouse
Lynne Howard
Sue Hutchby
Priscilla Leong
Helen Matthews
Ian Matthews
Marissa Matthews
Terry McAuliffe
Kim Moran
Tony Moran
Alex Mowbray
Barbara Mowbray
John Mulhearn
Judy Mulhearn
Irene Newby
David O’Neill
Jasmine Outteridge
Cheryl Prior
Darryl Prior
Maureen Saunders
Peter Saunders
Kim Talbot
Bob Taylor
Jennine Taylor
- Organising Committee
June Taylor
Michael Taylor
Sally Taylor
Brianna Thomas
Helen Thomas
Jacqui Thomas
Daisy Tocha
Jo-Anne Wickham
Tracy Barker
Sandra Biggs
Jason Ellem
- Organising Committee
Karyn Ellem
- Event Coordinator
Alexis Schnitger
Family and Friends
Wagga Volunteers
Narelle Bugg
Paul Bugg
Lachie Bugg
Andy Bugg
Karen Davis
Clive Lucas
Marlene Lucas
Catherine Manning
- Event Coordinator
Kevin Manning
- Organising Committee
Kira Manning
Luke Manning
Maddi Salmon
Joanne Wade
Chloe Wade
19
Donor List
$50 000 +
The Pratt Foundation
$10 000 +
Cecilia Kilkeary Foundation
Channel Nine
Davies Family Foundation
$5000+
Karl Azzi
Joanna Fleming
$3000 +
Denise Emmett
Pilot Air Compressors Pty Ltd
The Mathews Family
Westpac
Andrew Wilson
$1000 +
Peter Baines
Carnegie/Vasudhara Foundation
Coal and Allied
Elizabeth Collins
Colonial First State Asset
Management (Australia) Ltd
Brid Corrigan
Lynette Gooch
Joanne Harris
Cameron Jackson
Paul Jones
Phil Kimber
Noel Maguire
David Markell
Col Meacham
Mick O’Brien
Port Waratah Coal Services Ltd
David Renehan
Michael Siciliano
Stephen Smith
St Joseph the Worker School
Cassandra Yee
20
$500 +
Jody Aldag
Adam Anderson
Michael Andrews
Stephen Baker
Bateau Bay Square
Mariam Bishay
CAFFUND
Leonard Elliffe
Wayne Farnsworth
Stephen Franke
Anthony Grech
Brendon Gregg
Rob Grieve
H. Dallas Industries Pty Ltd
Teresa Haddock
Sharon Harland
Inverell Motorcycle Restorers Club
Matthew Kelly
Ladies Who Lunch
Dulcie Lane
Keiran Liprini
Jon Mcgovern
Joseph Meawad
Metallurgical Coal
Lennie Montebello
Outdoor Complete Pty Ltd
Michael Parker
Paul Petrusma
Greg Phillips
Vanessa Reeves
Margaret Reid
Ron Crouch Transport
Rotary Club Of Camden Inc
Kellie Serafin
Shellharbour Village Uniting
Church
Anthony South
Paul Taylor
The Bundanoon Good Yarn Inc
Trinity Grammar School
Tullimbar Public School
Sorcha Ui Laoghaire
John Williams
Tristan Young
$300 +
Kate Baker
Sara Baker
Bloomfeild Group Foundation
Blue Mountains Woodturners Inc
BP Beresfield
Cafe 45
Candy Connors
Neil Coutts
Culburra Public School
Kathleen Dunworth
Face Faxx
Fuel Power Plus
Benjamin Futcher
Greystanes Pre-School Kindergarten
IL Topolino Delicatessen
Peter Jensen
K&R Fabrications
John Lynn
Mona Vale Public School
Neoma Coffee
Northmead Bowling Club
Kylee Elizabeth Paddy
Pierre St Just Malherbe
St Patrick’s College
The Muffin Break
Transfield Services
Jacquilyne Trimnell-Ritchard
Tony Vamianakis
Mark Victor
Geoffrey Wolfe
Samantha Wyatt
$200 +
John Abou-Antoun
Courtnie Alaia
Renee Alborough
American Motorcycle Club
• Tweed Chapter
• Brisbane Chapter
• Hastings Chapter
• Mid North Coast
• South Coast Chapter
• Southern Highlands Chapter
• Sunshine Coast Chapter
Louise Bailey
Simon Batt
Wayne Bedggood
Mary And Barry Benson
Blackmores Ltd
Karan Bland
Peter Bland
Joseph Bousalim
Bupa Aged Care Facility
Dean Burton
Jenn Calleja
Jodie Campbell
Campbell & Freebairn
Carlingford Women’s Bowling Club
Wendy Carnell
Annie Cheung
steve clarke
CMCA - Port Macquarie Escapee’s
Josh Coburn
Julie Coffey
Susan Conroy
Steven Cook
Jane Dawson
Anthony Debreceny
Rod Deutschbein
Molly Jane Drinkwater
Julie Edwards
Elias Elbadaoui
Eddie Elvins
Caroline Fearnside
Doug Ferris
Carlos Franco
Nina Gee
Jacki Gee
Simon Gilsenan
Adam Ginsburg
Christine Golenia
Cameron Griffiths
Philip Haines
Wayne Hardaker
Adrian Hillcoat
Andrew Hooton
Michaela Howells
Jacaranda Grove Pre School
Renee James
Fiona Kelly
Ray Kusturin
Anna Lattouf
Andrew Lee
Grant Leonard
Dana Lowe
Marie Marshall
Mary Help of Christians School Sawtell
Patrick Mccann
Troy Mckinnon
Robert McKinnon
Michael McPherson
Michael and Mary Whelan Trust
Margaret Monaghan
Emelie Mullineaux
Vy Nguyen
Peter Oliver
Dianne Pastuszak
Shane Perrow
Possums PreSchool
Rotary Club of St George Central Inc.
Rob Shoemark
Pam Slough
Greg Solomons
Adam Sparrow
Kathleen Speirs
Richard Spira
Peter Stefan
Janice Tarlinton
Tsubaki Australia Pty Ltd
Arjan Van Veen
Christina Veljanovski
Wood Bros (Bourke) Pty Ltd
$100 +
Rose Abraham
Brett Abrahams
Catherine / Ashlynn / Geoff Abrahams
ADHC
Alda Adnett
Allman Industrial Services
Racheal Anderson
Tracylee Arestides
Christine Armitage
Ausgrid
Susie Ayoub
Rob Baguley
Rene Baissari
Melinda Bargwanna
Bradley Barnett
Albert Bartolo
Jennifer Bartolo
Glen Batty
Craig Beckett
Jennifer Ann Bentley
Darren Berrigan
Andrew Biggs
Ray Birchall
Tom Blackburn
Dean Blundell
Chris Bonner
Emma Booker
Kevin Booth
Matthew Bowden
Mick Boyle
Barry Breckenridge
Levi Brinckley
Amanda Bromby
Pamela Brown
Violet Brown
Jenny Brumfield
Luke Brumfield
Kaz Buchan
Peter Buffier
Anita Buncic
Craig Burgmann
Simon Burke
David Burrill
Jean Burrill
Glen Butler
Jeanette Butler
CAFÉ 2U
Merrin Callaghan
Sue Cameron
Karen Carr
Gerry Carr-Boyd
Brendon Carre
Julie Caruana
CBA Retail Products Finance Team
Jillian Cheek
Tony Church
Gloria Clark
Mickey Clark
Samantha Clark
Wendy Clark
Wayne Coburn
Linda Collier
Kieran Collings
Elspeth Collins
Sabrina Collinson
Samantha Connors
Steve Connors
Brooke Cook
Leeca Cook
Philip Cooney
Maria Correas
Tom Crimmins
Damien Croft
Erin Croft
Dawn Crombie
Mark Cummings
Nicholas Daviotis
Luke De Gioia
Pip De Rohan
Tammy DeBono
Shannel Debreceny
Troy Di Pietro
Mark Ditchfield
Doyles Seafoods Pty Ltd
Michelle Drage
Adam Edwards
Brad Edwards
Hannah Edwards
Ross Edwards
Sean Edwards
Chris Ellem
Karyn Ellem
Darron Ellery
Margot Elliffe
Chris Ely
Scott Evans
Peter Fahy
Nina Fairweather
Tony Fehon
Nadine Fine
Janet Frankham
Brett Fraser
Harley Frazer
Alan Fuller
Elouise Fuller
Rob Fuller
Sam Fuller
Alistair Galbraith
Kyle Gale
Angela Gallagher
John Gallagher
Joanne Gemayel
Karen Giblett
Rod Giblett
Emma Gibson
Tanya Gill
Rodney Gilsenan
Juli Gjakovski
Daniel Gray
Barry Groom
Nadine Grootenboer
Peter Grootenboer
Colleen Hacker
Emil Hafner
Bronwyn Halpin
Deb Harrison
Chris Harvey
Darlene Harvey
Trish Hay
Hazelbrook Public School
Annette Heather
Joy Henderson
Jenni Hickman
Kellie Hollingshed
Anne Honey
Brian Hughes
Rory Hume
Harry Hunter
Natalie Hutchings
Khalid Idrees
Mike Irving
Alex Issaakidis
Kim Jackson
Lily Jones
Shelly Jurd
Sonia Jurd
Peter Kane
Josephine Kay
Jodie Kelly
Daniel Kelso
Brian Kennelly
Leanne Kiernan
Robyn Kildea
Stephen Klemich
Grant Knowles
Robert Kohn
Gavin Krawchuk
Jeannette Larkin
Elsie Lasseter
Michael Latimore
Tom Lee
Judi Lees
Jan Lindsay
Charley Loomis
Cheryl Lucas
Heather Lucas
Katrina Lucas
Phil Lynn
Suzanne Mackay
Frank Madrid
James Manson
Merran Manulat
Patrick Mathews
Ian Mayer
Lyn McAllister
Danielle, Jan, Barry McConkey
Ross McKinnon
Wesley Mcmillan
Andrew Meddings
Ryan Meddings
Riaz Mehta
Diane Merryfull
Ben Miller
Trish Mills
Graham Mitchell
Aneek Mollah
Richard Montford
Julian Moro
Carmen Morris
Catherine Mulcahy
Sharon Mulready
Andrew Munro
Ken Musznig
Anders Mykkeltvedt
Stephen Nagle
Melissa Neil
John Newcombe
Brian Newman
Lisa Nicklin
Ted Norman
Andrew O’Brien
Brendan O’Connor
Rhonda O’Donnell
Peter O’Meara
Bernard Orenstein
Bryan Palin
Nagaraja Panduranga
Rob Parkes
Karl Peek
Elise Perks
Marilyn Perrin
Petals Network
Jacinta Pinkster
Karisha Pinkster
Tracey Pinkster
Maria Polczynski
Deborah Power
John Preddy
Geoffrey Prideaux
Jan Prideaux
Lenny Prideaux
Phillip Prideaux
Sandra Pryor
Michael Raschke
Red Plain Pastoral Co
Rachel Rees
Carol Reid
Jahna Reynolds
Riverina Alarm Systems
Jenny Rix
Jo Roberts
Rebecca Robinson
Shae Rodgers
Jim Ross
Rotary Club of Glen Innes
John Ryan
Carol Sampaklis
Devindar Samra
Sharon Samuel
Vicki Sassin
Justin Scanlan
Michael Scoble
A Scott
Alan Seale
Richard Sharpe
Enda Sheridan
Jeffrey Simmons
Alan Slee
Jeff Smith
Mark Sorensen
Greg Spindler
John Stevens
Jock Stier
Kirri Stone
Judith Storey
Syper Strewberry
Joy Stuart
G Sullivan
John Sutherland
Jody Sutton
Scott Thomson
Carrie-Anne Tosato
Louis Trichard
Turvey Tops Butchery
Peter Tyldsley
Roberta Upu
Erin Vaccari
Johan Van Der Velde
Mark Vischschoonmaker
Andrew Wallace
Steve Walsh
Wangi Wangi Public School
Adam Watt
Jacqueline Wehbe
Tarryn Wesche
Jill Wetherall
Pam Weymer
Monique Wheatley
Brett Whelan
Justin Whitaker
Sue White
Thomas Willoughby
Richard Wilson
Ben Woods
Elizabeth Worraker
Jack Wu
Stuart Wyllie
Richard Young
Kate Zarboch
Audit Report
INDEPENDENT AUDIT REPORT TO THE MEMBERS OF THE
DOWN SYNDROME ASSOCIATION OF NSW INC
Scope
I have audited the accounts of Down Syndrome NSW Inc for the financial year ended 30 June 2013
as set out on the following pages. The accounts consist of the Statement of Financial Position and
Statement of Financial Performance together with the notes thereto, and the information contained
therein is the responsibility of the Committee of Management. I have conducted an independent audit of
these accounts in order to express an opinion on them to the members of the Association.
My audit has been conducted in accordance with Australian Auditing Standards and the requirements
of The Charitable Fundraising Act to provide reasonable assurance as to whether the accounts are free
of material misstatement. My procedures included examination, on a test basis, of evidence supporting
the amounts and other disclosures in the accounts, and the evaluation of accounting policies and
significant accounting estimates. These procedures have been undertaken to form an opinion whether,
in all material respects, the accounts are prepared in accordance with an accruals basis of accounting.
Accounting Standards and other mandatory professional reporting requirements have not been applied
in the preparation and presentation of the accounts.
The audit opinion expressed in this report has been formed on the above basis.
Qualification
As is common for organisations of this type, it is not practicable for the Association to maintain an
effective system of internal control over donations and other fund raising activities until their initial entry
in the accounting records. Accordingly my audit has therefore been restricted to amounts recorded in the
accounting records of the Association.
Audit Opinion
(a) In my opinion, subject to the effects of such adjustments, if any, that might have been determined to
be necessary had the limitation referred to in the qualification paragraph above not existed, the accounts
present fairly the financial position of Down Syndrome NSW Inc as at 30 June 2013 and its surplus for
the year then ended in accordance with the accrual basis of accounting as described above.
(b) My report, in accordance with Section 24 of The Charitable Fund raising Act, 1991, that:
(i) The accounts and associated records of Down Syndrome NSW Inc have been properly kept during
the year in accordance with the Act;
(ii) Money recorded as a result of fundraising appeals conducted during the year has been properly
accounted for and applied in accordance with the Act; subject to the limitation referred in the qualification
paragraph above and;
(iii) There are reasonable grounds to believe that Down Syndrome NSW Inc will be able to pay its
debts as and when they fall due.
Ronald Smith & Co
Chartered Accountant
22
Ronald Smith
Sydney, 30th August 2013
23
Financial Statements
Down Syndrome Association NSW
Down Syndrome Association NSW
ABN 39 023 586 389
ABN 39 023 586 389
Detailed Statement of Financial Position As At 30 June 2013
Detailed Statement of Financial Position As At 30 June 2013
Note
2013
$
Note
2012
$
Current Assets
Non-Current Assets
Cash Assets
Property, Plant and Equipment
Cash At Bank
38,175.36
Cash on hand
718.53
38,893.89
199,341.00
Less: Accumulated depreciation
199,341.00
2012 Charity Dinner & Auction
236,410.00
Less: Provision doubtful debts
(98,275.00)
138,135.00
36,266.20
(3,493.00)
(32,339.25)
3,926.95
(3,493.00)
Other
ING Maximiser
Total Current Assets
Rental Bond
Total Non-Current Assets
Total Assets
Current Tax Assets
Input tax credit control account
189,538.00
(152,747.00)
(152,747.00)
54,121.02
36,791.00
4,093.67
8,677.00
4,093.67
8,677.00
530,245.16
552,351.00
530,245.16
552,351.00
583,066.00
886,334.00
58,214.69
45,468.00
641,280.69
931,802.00
Current Liabilities
Payables
Unsecured:
Trade creditors
Amount Due to Channel 9
4,057.51
141,071.00
132,000.00
136,057.51
141,071.00
2,078.59
78,735.00
2,078.59
78,735.00
Current Tax Liabilities
Amounts withheld from salary and wages
Total Current Liabilities
24
206,868.02
10,000.00
10,000.00
GST payable control account
2012
$
Other
Receivables
Loans Down Syndrome Australia
Fixtures & Fittings
2013
$
138,136.10
219,806.00
25
Profit and Loss Statement
Down Syndrome of NSW
Year ended 30 June 2013
Profit and Loss
Down Syndrome Association NSW
ABN 39 023 586 389
Detailed Statement of Financial Position As At 30 June 2013
Note
2013
$
Income
2012
$
Non-Current Liabilities
Provisions
Provision for Annual Leave
24,999.00
25,043.00
Provision for Long Service Leave
21,510.00
12,914.00
46,509.00
37,957.00
Total Non-Current Liabilities
46,509.00
37,957.00
Total Liabilities
184,645.10
257,763.00
Net Assets
456,635.59
674,039.00
ADHC - Support and Integration
ADHC - ILSI Project
ATW Project
Celia Kilkeary Fund
Educational Workshops
Fundraising
Donations
Charity Dinner & Auction
Buddy Walk
Calendars
Cause Related
Midyear Appeal
Promotional Items
Raffles
Scrapheap Adventure Ride
Shave A Bunny
Go Fundraiser/Everyday Hero
T4321
Workplace Giving
($)
2013
Retained profits / (accumulated losses)
Total Equity
26
($)
2012
68,847
28,215
111,832
19,614
6,023
90,817
125,577
58,776
8,314
681
2,683
0
0
64,745
0
0
14,770
4,652
Total Fundraising
Government Funding - ADHC
Information Books
Investment Income
Membership Subscriptions
Miscellaneous Income
Mothers Weekend
Money Box Income
Other Government Grants
Other Non Government Grants
Project - Up Club
Total Income
Equity
($)
2013
($)
2012
0
471,070
108,500
36,616
8,260
171,440
386,393
62,303
7,961
15,422
4,160
1,822
3,552
69,226
30,531
250
12,611
21,549
371,015
0
0
16,691
36,262
5,634
9,739
3,554
100,000
50,000
35,000
787,220
66,734
278
55,445
45,594
1,631
6,563
0
0
86,686
6,758
862,426
1,681,355
0
905
2,981
4,900
2,864
847
0
53,584
3,926
0
29,782
3,972
32,318
467
506
4,030
4,389
7,507
6,448
99,443
0
30,982
2,004
0
278,173
11,026
36,868
122,633
3,448
0
Expenditure
456,635.59
456,635.59
674,039.00
674,039.00
Accommodation & Room Hire
Advertising
AGM & Committee Expenses
Auditing Fee
Bank AMEX & Merchant Charges
Catering
Conferences
Contractors
Celia Kilkeary Fund
Depreciation - Office & Computer Expenses
DSA Australia
Educational Workshops
Fundraising
Charity Dinner & Auction
Buddy Walk
Calendars
Scrapheap Adventure Ride
Go Fundraiser/Everyday Hero
T4321
Total Fundraising
General Expenses
ADHC - ILSI Project
Information
Voice/ Newsletters
Video / Books
Library & Subscriptions
Seminars & Staff Training
249,639
7,089
2,990
3,773
1,250
4,506
20,020
0
2,401
0
40,260
46,507
9,509
9,671
27
Profit and Loss Statement cont
Total Information
Insurance
Internet
Legal expenses
IT Support & Maintenance
Promotional and Merchandise
Miscellaneous
Mothers Weekend
Staff Amenities
Office Equipment & Computer Software
Parent Support Kit
PR & Personnel
Printing & Stationary
Prior Year Adjustment
Project - Up Club
Rent & Rates
Repairs & Maintenance
Security
Speakers
Subscriptions
Telephone & Postage
Travel
Utilities
Volunteers
Wages and Superannuation
Annual Leave Provision
Long service Leave Provision
Total Wages and Associated Costs
Website Maintenance
Total Expenditure
Surplus/(Deficit)for the Year
Notes
22,421
47,606
1,960
19,630
23,475
2,868
4,710
5,241
902
10,011
1,891
0
20,915
0
2,938
31,304
31,471
363
0
3,247
24,534
5,955
4,601
82
375,324
-44
8,596
105,947
25,460
746
0
47,206
0
2,631
6,068
576
2,140
0
1,741
18,618
4,882
5,513
59,167
11,710
0
1,450
0
28,435
28,042
7,552
155
Profit (Loss ) from Ordinary Activities before income tax in more detail
Down Syndrome Association NSW
2013
Revenue
($)
767,226
15,356
1,079,829
1,454,796
-217,403
226,559
862,423
6
Notes
(1) For 2013, the Fundraising expenses are now separately identified for each event (excluding wages). The
comparisons to 2012 for the Fundraising expenses are therefore not on a like for like basis.
(2) For certain items the income and expenses should be viewed over two financial years combined due to
the timing of the receipt of income and payment of expenses. For example, the “other government grants”
is received in 2013 and will be expensed in 2014, and the “charity and dinner auctions” income and expenses
should be viewed over the 2012 and 2013 years combined.
Notes
($)
839,512
-49,103
-23,183
383,876
0
Expenses
Result
($)
902,070
39,647
+ 236,410
(i)
+ 120,000
(ii)
+
9,356
(iii)
- 98,275
(iv)
+
8,552
(v)
- 98,275
(vi)
______
_____ _
______
6
862,423
29
1,079,838
217,415
03
(i)
Reversal of amounts DS were thought to be recovering from Channel 9.
(ii)
Payout to Channel 9.
(3) Government Funding - ADHC funding has been reallocated to ADHC- Support and Integration.
(iii)
Prior year adjustment to clear various labour items not on latest trial balance.
(4) Annual leave provision and long service leave provision represents the movement in the provision not the
actual provision.
(iv)
Reverse provision for doubtful debts.
(v)
Increases to LSL and AL provision.
(vi)
Reverse accrued costs associated with Richard Wilkins event.
28
29
7 Deed Place
Northmead NSW 2152
PO Box 107
Northmead NSW 2152
T: 61 2 9841 4444 F: 61 2 9841 4400
E: [email protected] W: downsyndromensw.org.au
Down Syndrome NSW is a not for profit registered charity
ABN: 39 023 586 389
Registered Charity No CFN 11321