MYELOMA LEUKAEMIA LYMPHOMA RELATED BLOOD DISORDERS

Transcription

Leukaemia Foundation
of Australia
ANNUAL REPORT 2012-13
1
MYELOMA
LEUKAEMIA
LYMPHOMA
RELATED
BLOOD
DISORDERS
Leukaemia Foundation of Australia - Annual Report 2012-13
Year at a Glance
July Page 24
Page 19
September Page 13
We recognised the truly incredible
contribution made by our volunteers.
This year they donated time worth
more than $1 million!
Holden handed over 17 new cars
to our Transport Service. Foundation
Ambassador, Holden Racing Team’s
Garth Tander, made the presentation.
More than 30,000 Australians gathered
at Light the Night events around the
country, raising more than $1.1 million
for blood cancer research.
October
November
December
Page 28
Page 13
Page 09
A major milestone was celebrated with
the first sod of soil turned on the site of
Adelaide’s new $9.5 million Bridgestone
Australia Leukaemia Foundation Village.
U.G.L.Y. Bartender of the Year raised more
than $1.2 million – equivalent to funding
14,500 nights of free accommodation for
regional families near treatment centres.
We supported calls for Government to
establish a forum to hear concerns that
proposed changes in PBS funding could
reduce care for regional Australians.
January
February
March
Page 07
Page 06
Page 12
We contributed funding which led to the
development of a trial pill at Melbourne’s
Walter & Eliza Hall Institute, for people
with Chronic Lymphocytic Leukaemia.
We announced funding of 65 research
projects, including 23 new projects, that
would share in $3.2 million through our
National Research Program this year.
World’s Greatest Shave cracked
$20 million nationally! A third of people
who signed up used mobile devices
such as smart phones to fundraise.
April
May
June
Page 29
For the third consecutive year we
were among the top 10 finalists in the
PwC Transparency Awards in the
$5 million – $30 million category.
2
August Page 08
Almost 1000 people attended National
Myeloma Day activities across Australia
to help them better manage living with
their disease.
Page 22
Social media was inundated with
sunflower ‘selfies’ for our pilot
Sunflower Club campaign to support
regional Australians with blood cancer.
Contents
Messages from the Chairman and CEO ..........................
04
Matt’s leukaemia journey reaches into the lab..................
05
Year in Review
Vision to Cure...........................................................
06
Advocacy ....................................................................
08
Mission to Care .............................................................
10
Fundraising .................................................................
12
State and Community Fundraising ..............................
16
Our Supporters
Partners ......................................................................
18
Supporters....................................................................
20
Marketing and Communications ......................................
22
Volunteers ..........................................................................
24
Our Relationships
Collaborative Partnerships ..........................................
26
Industry Participation ..................................................
27
Strategic Plan ...................................................................
28
Corporate Governance ....................................................
29
About Us
Our People ...................................................................
30
Organisation Chart ......................................................
31
Financial Overview ...........................................................
32
Key Financial Results .......................................................
34
How you can help ............................................................
35
When blood cancer changed the lives of
more than 11,500 families across Australia
this year, the Leukaemia Foundation was
ready to care for them and their loved ones.
*Cover image: research grant recipient, Dr Kylie Mason,
lead reseacher in the development of a trial pill at
Melbourne’s Walter & Eliza Hall Institute, for people
with Chronic Lymphocytic Leukaemia.
Photo courtesy of Justin McManus and The Age newspaper.
3
Messages from the Chairman and CEO
ROBERT YEO
CHAIRMAN
It was pleasing to see the Foundation
continue our history of growth and
strengthen in all areas in 2012-13.
It is well recognised that the economy
in this financial period has been far
from stable and our achievements despite this, reflect the
solid reputation and high regard in which the Foundation is
held by the community.
This year celebrates the 21st anniversary of when the
Leukaemia Foundation of Australia was formed by the
Leukaemia Foundation of Queensland. In this period of time
we have seen the Foundation develop offices and services
state by state.
Together with the Leukaemia Foundation of Queensland,
we now have 28 support offices and 167 accommodation
units nationally. The year ahead will see us opening the new
15 unit accommodation and support centre in Adelaide.
We recognise there is a need to further increase our
accommodation in the coming years in Victoria and New
South Wales in particular.
The Board plays an active role in the Foundation’s
development and Governance is a key part of this. I am
pleased to say that the recent annual PwC Transparency
Awards placed us in the top 10 for reporting in the $5 million
to $30 million category. We are proud to be recognised
among the top Australian charities for transparency in this
category for the third consecutive year.
On behalf of my fellow Board members, I would like to
recognise and sincerely thank our staff and volunteers for
their tireless work.
Together with the Leukaemia Foundation of Queensland
and our supporters, we will continue providing exceptional
service to people with blood cancers and their families for
current and future generations.
The Leukaemia Foundation is Australia’s
peak body for blood cancer, funding
research and providing free services
to support people with leukaemia,
lymphoma, myeloma and related
blood disorders.
4
ADRIAN COLLINS
CEO
Our Vision and Mission activities further
grew this year through increased
funding, and we spent $11.8 million on
research and support.
Equating to a $1 million per month
investment, this is a significant number and one that all of our
supporters and team can be proud of.
The year has seen the Foundation reach new heights with
our iconic event, World’s Greatest Shave. The figure raised
nationally was $20.3 million, a 13% increase on the previous
year.
As the Foundation does not receive any ongoing Government
funding, we need to be proactive in fundraising to ensure that
we continue to grow the revenue available for our Vision to
Cure and Mission to Care. During the year we launched the
Sunflower Club, an event themed around the way in which
a sunflower turns to catch the smallest glimpse of sunshine
on even the cloudiest of days. All funds raised go towards
our services for regional families. We are optimistic we can
develop the Sunflower Club in a cost-effective manner over
the coming years. The other multiple and varied areas of
fundraising reflected increased figures over the previous year.
The Foundation continues to appreciate the generous support
we receive from our business and corporate partners.
Bridgestone and Holden provide a large number of our
Transport Service vehicles, which are invaluable to people
travelling to and from hospitals for treatment. All of these
vehicles are driven by our splendid volunteers. In addition,
Bridgestone is the Principal Partner of Light the Night and
Seeley International continues as Major National Partner of
this event.
One of our challenges moving forward is to create and build
more corporate partnerships as we see this as an area that
can be a “win-win” for all. In last year’s report we touched on
the new database and website. Work continues on the new
database and the current strategy and plans indicate that it
will be completed by June 2014. The new website is due to go
live in October 2013, which is great news.
Although the economy has been patchy during the year,
the Foundation continues to grow. This is a reflection of
the standing and reputation of what we do in the areas of
research, support and our innovative fundraising.
I would like to extend my appreciation to the Board, staff and
volunteers who have all contributed to making 2012-13
a successful year and will help us to achieve even greater
things in 2013-14 and beyond.
Matt’s leukaemia journey reaches into the lab
Matt Jackson knows firsthand the importance of blood cancer research, having overcome
Acute Myeloid Leukaemia (AML) after being diagnosed at 19 years-old. Turning his tough
experience into a positive, Matt raised more than $10,000 for Light the Night in 2012
and consequently had a Leukaemia Foundation Grant in Aid named in his honour.
The Grant in Aid is for a project taking place at the Melissa
White Laboratory in Adelaide investigating high risk Acute
Lymphoblastic Leukaemia (ALL) in children and young adults.
Specifically, the project is looking into high risk or Relapsed
B lineage ALL, which remains the leading cause of cancer in
children and young adults.
In appreciation of Matt’s fundraising efforts, the Leukaemia
Foundation arranged a special tour of the lab so that Matt
could see for himself how money raised for blood cancer
research is being put to invaluable use.
Matt was diagnosed on 7 March 2008. He had been feeling
like he had the flu, had swollen glands and was extremely
tired, even having to lie down at his job to rest between serving
customers at a service station.
“As a teenage guy, I never went to the doctor,” said Matt. “At
the time, I was working 11pm-7am shifts and would often stay
up late. So I assumed that any sort of fatigue was a side effect
of my lifestyle.”
Matt was completely shocked when his father called to say
the doctors had found leukaemia cells in his test results.
“The only thing I knew about leukaemia was that you could
die from it,” said Matt. “I went straight home and cried my
heart out.”
5
Matt endured months of chemotherapy and then full body
radiotherapy, eventually receiving a life-saving bone marrow
transplant from an anonymous overseas donor.
Long treatment in hospital was hugely challenging, both
mentally and physically, with Matt experiencing particularly
scary moments like losing his eyesight for a few days.
The Foundation supported Matt throughout his treatment with
free transport to and from hospital, a time during which Matt
became friends with many of our wonderful volunteers.
Matt successfully achieved remission and has since returned
to work in the Government after having three years off for his
treatment and recovery. He has faced significant challenges in
his ongoing recovery due to Graft versus Host Disease (GvHD),
an immune reaction common after a transplant whereby the
cells of the bone marrow donor’s immune system recognise the
recipient’s body as foreign and attack it.
Despite these setbacks, Matt has been determined to take
part in Light the Night and support the Leukaemia Foundation’s
commitment to blood cancer research.
We sincerely thank Matt for his stellar fundraising efforts and
wish him all the very best in overcoming his ongoing
health challenges.
Vision to Cure
We invest in the best research projects by Australia’s best researchers in our quest to find
cures and improve outcomes for people with blood cancers.
Aims and highlights
Looking ahead
This financial year the Leukaemia Foundation has funded
65 research projects valued at $3.2 million. The commitment
reflects our ongoing Vision to Cure, by funding the best
researchers with the best ideas in our shared quest for a
future where everyone with blood cancer can be cured. The
investments for this program are guided by our national Medical
and Scientific Advisory Committee (MSAC), an independent
panel of leading Australian blood cancer researchers, clinicians
and consumer representatives.
As identified in the Strategic Plan for the coming year, we are
piloting the engagement of our Consumer Representatives in
two of our grants review committees – the Scholarships and
Fellowships Committee and the Supportive Care Research
Grant Committee.
In early 2013, we recruited four Consumer Representatives to
the MSAC. The aim of this was to enhance decision making
and ensure that consumer perspectives are considered in
discussion, decisions and advice to the Board concerning
where our research funds are invested.
We aim to recruit and train additional Consumer
Representatives for all other committees evaluating applications
for Leukaemia Foundation of Australia annual awards.
The Supportive Care Research Grant is a new award
commencing in 2014 aimed at improving the quality of life of
people with blood cancer.
In this coming year we also are undertaking a review of our
National Research Program.
2012-13 Research investment: $3,212,665 across 65 projects.
Tissue bank
$150,000
5%
Post doctoral fellowship
$500,000
16%
Clinical trial
$200,000
6%
PhD scholarships
$400,000
13%
$1,000,000
31%
Clinical PhD scholarships $512,000
16%
LFA/Cancer Australia
PdCCRS
$200,665
6%
Career establishment
grant
Senior research fellowship
$200,000
6%
To view the recipients of Leukaemia
Foundation research grants, please visit:
www.leukaemia.org.au/grants
Grants in Aid
6
$50,000
2%
Our new Consumer Representatives
The Leukaemia Foundation welcomes our four new Consumer Representatives:
David Briggs
Russell McGowan
Russell was diagnosed with Myelofibrosis
in 1992, before receiving a bone marrow
transplant at the Royal Adelaide Hospital
in 1993. He has ongoing challenges
with Graft versus Host Disease (GvHD),
a condition arising from the transplant. As a result he can
no longer work full time. Russell lives in Canberra, where he
is currently Vice President of the Health Care Consumers
Association (HCCA) after 10 years as President and Vice Chair
of the ACT Branch of the Public Health Association of Australia.
Nationally, Russell sits on the Board of the Australian
Commission for Safety and Quality in Health Care and on the
Australian Government’s Medical Services Advisory Committee.
He also is a Board member of the Executive Committee of the
Australian Health Care Reform Alliance. He has previously sat
on the Boards of the National Blood Authority, the Australian
Cancer Council and the Consumers Health Forum of Australia.
David has a general focus upon
advancing the interests of people with
cancer and their carers. David was
diagnosed with Multiple Myeloma in 2006
and had a stem cell transplant in 2007.
David has participated in several clinical trials, for which he is
a strong advocate. His experience has given him a personal
insight into the challenges that accompany living with cancer,
including the impact on family and friends. David is quick to
point out that not all of these impacts are bad – many positive
and enriching experiences have been part of his journey.
Until recently David was a director of an economic consulting
firm based in Melbourne. Away from work he is a keen cyclist.
David credits time on his bike as being fundamental to him
maintaining a positive outlook, in addition to feeling fit and well.
Anne Hodgson
Morgan Atkinson
Anne was diagnosed with Acute
Myeloid Leukaemia (AML) in late 2006.
Undergoing a bone marrow transplant
from an unrelated donor early in 2007.
Morgan endured almost three years
of intensive treatment and received a
stem cell transplant from an unrelated
donor after being diagnosed with Acute
Lymphoblastic Leukaemia (ALL).
Anne is now more than five years posttransplant and remains in remission. Anne has been a MSAC
member since 2011. She also is a consumer representative
with Cancer Australia and the Australasian Leukaemia &
Lymphoma Group (ALLG). In addition she is the consumer
representative on the Haematology Survivorship Steering
Group for the Alfred Hospital’s ‘Positive Change for Life’
survivorship program.
Anne has a marketing degree and was admitted to the
Australian Marketing Institute (AMI) in 2002 as an
Associate Fellow.
Morgan is now in remission and celebrated 10 years of
disease free survival in 2012. His personal experiences have
guided his career as an exercise physiologist. In 2006 he
established an exercise program especially for people with
cancer. In 2008 he was awarded a Sir Winston Churchill
Fellowship and traveled around the world investigating best
practice cancer and exercise programs.
Morgan works at the Royal Adelaide Hospital under the banner
of the Youth Cancer Service and also at the Centre for Physical
Activity in Ageing.
Research grant recipient recognised for anti-cancer drug work
A Leukaemia Foundation grant recipient has been awarded a L’Oreal For Women in Science
Fellowship for her work developing an anti-cancer drug that has now reached human trials.
With colleagues at the Walter and Eliza Hall Institute for Medical Research and the Royal Melbourne
Hospital, Dr Kylie Mason was able to establish a link between the drug and a drop in the number of
platelets in the blood.
“We discovered the mechanism behind what makes platelets live and die,” said Dr Mason. “This drug
targets (that mechanism) and tells the cancer cell to die. It’s the first drug in its class, in that it targets
this pathway in cancer cells,” she said.
Dr Mason said the drug is designed to be taken with other cancer treatments, and reduces side effects
associated with chemotherapy, such as hair loss, nausea and vomiting. These are side effects Dr
Mason knows better than most, having been diagnosed with leukaemia when she was 15 years-old.
7
Advocacy
We are a voice for Australians impacted by blood cancer, using our industry connections
and our expertise to advocate for change to improve their quality of life.
Aims and highlights
Thank you
The Leukaemia Foundation advocates for change in a range of
ways to improve the lives of families impacted by blood cancer.
Most of our advocacy activities are in conjunction with other
cancer organisations and consumer health advocacy groups.
Our advocacy activities are assisted by collaborations and
partnerships with other organisations that share
common goals.
Cancer Research Leadership Forum
The Leukaemia Foundation is a member of the Cancer
Research Leadership Forum (CRLF), an alliance of peak
national community cancer organisations that fund research for
cancers including Leukaemia, Lymphoma and Myeloma.
We supported the initiative of the CRLF to consult widely in
the cancer research sector to collate a national resource,
identifying gaps and duplication in currently available
resources and assessing critical needs. In September 2012,
a national summit identified opportunities to maximise the
impact of cancer research funding in Australia and proposed
these recommendations to Forum members, government and
medical research authorities. These have been captured in a
summit report published in January 2013 and are now being
implemented by the alliance.
Consumer involvement toolkits
Within Australia:
•
Member charities of the Cancer Research
Leadership Forum,
•
•
•
•
•
•
•
Hospital Associated Accommodation Alliance,
CanSpeak and Cancer Voices,
Consumers Health Forum,
Consumers e-Health Alliance,
Cancer Drugs Alliance,
Lymphoma Australia,
Myeloma Foundation Australia.
Internationally:
•
•
•
Lymphoma Coalition,
Leukaemia Patient Advocate Foundation, and
Rising Sun network in Asia.
The Leukaemia Foundation was a member of the Cancer
Australia working group that developed a series of
toolkits to assist organisations in engaging consumer
representatives. Audience specific toolkits were developed
for CEOs and executives, service managers, health
professionals, researchers, policymakers and consumers.
These encompassed the National Framework for Consumer
involvement in Cancer Control published by Cancer Australia in
2011, are now being implemented by organisations including
the Leukaemia Foundation.
Lymphoma Coalition
The Leukaemia Foundation is part of the Lymphoma Coalition,
a global network of Lymphoma organisations. A new initiative
of the Coalition this year was to develop a ‘Lymphoma
Report Card’ to compare clinical trials, standards of care,
demographics and treatment access in the 40 countries where
member organisations provide support.
Data was collected via a global survey of people with
Lymphoma. This indicated that although Australia has a “good”
ranking, in many other countries awareness of Lymphoma
symptoms is poor, late diagnosis is common and people want
more information about clinical trials to facilitate informed
decision-making. The report indicated that Australia needed
updated guidelines for the treatment of Lymphoma and more
clinical trials for Australians with this disease.
8
*Diagram reproduced with
permission from Cancer Australia
Some Highlights
Looking ahead
A key strategy in the coming year is to build our relationship
with the newly elected Federal Government to enable us to
champion changes in government policy to improve quality of
life and outcomes for people with blood cancer.
Our plan is to work closly with our Canberra-based advocate
and focus our efforts on improving travel and accommodation
support for regional families through assisted travel schemes.
Efforts also will concentrate on gathering support for
expanding our accommodation in Melbourne and Sydney to
meet the population needs. We also are working to create a
dedicated cancer drug fund or process, aimed at ensuring all
Australians have access to new cancer treatments.
PBS capacity a key
priority
The Leukaemia Foundation is concerned that
Australia’s Pharmaceutical Benefits Scheme (PBS)
may not have the capacity to fund an expected surge
in applications for exciting new cancer therapies that
are likely to become available over the next few years.
There are currently about 240 new therapies in trials
for blood cancers in the United States and a number
of these are likely to become standard new treatments
across the world.
The Foundation has concerns that Treasury may not
have the funds to make many of these new drugs
available to all Australians so we are working to
address this. Our efforts are two pronged – firstly,
with the appointment of our advocate in Canberra
and, secondly, advocating for change through our
membership of the Cancer Drugs Alliance.
More than
40
%
of newly diagnosed Australians with blood
cancer came to the Leukaemia Foundation
for information, services and support.
46,616
hours of support were given by
volunteer drivers to enable our
transport service to operate.
1,005,007
kilometres were travelled by our dedicated
volunteer drivers, who made 25,116 trips to
transport 1,951 people to and from hospitals
for blood cancer treatment.
11,443
people attended at least one of 891 education
sessions to learn more about their disease and
how to live well with their diagnosis.
18,461
nights of free accommodation were
provided to 951 families from regional
areas who were required to relocate closer
to hospital during their treatment.
More than
900
people attended National Myeloma Day events
– a 50% increase on last year, and our best
attendance levels to date.
9
Mission to Care
New MPN Coordinator and newsletter
Australia’s first professional support service coordinator for
people with Myeloproliferative Neoplasms (MPN), will bring
together several MPN-oriented organisations to work with the
Foundation to deliver best practice support in this area. With
the support of an unrestricted grant from Novartis Oncology,
we created a new position, National MPN Coordinator. MPN
is a broad group of cancers where blood cells multiply
uncontrollably. The role will identify unmet needs and develop
our team and our programs to support the 700 people who
are diagnosed with this type of blood cancer each year. MPN
News was added to the Foundation’s range of disease-specific
newsletters this year, providing information on the latest clinical
trials, research and treatment, tips for living well and stories of
hope to support people with MPN.
MDS survey and DVD
Responding to the need
As Australia’s peak body for the care of people living with
leukaemia, lymphoma, myeloma and related blood disorders,
demand for the Leukaemia Foundation’s services continues
to grow as our population ages. In Australia, more people die
from blood cancer than any other cancer except lung cancer.
To meet the needs of Australians who are dealing with blood
cancer, we strive continuously to improve our services
and support programs.
Highlights
Increased contact
A Leukaemia Foundation strategy over the next three years is
for face-to-face contact with the equivalent of 50% of newly
diagnosed people with blood cancer per year in Australia.
Already this year this strategy has led to more contact
with affected families and more resources provided to the
people we support, including a 31% rise in the number of
disease-specific newsletters distributed and a13% rise in the
distribution of our information booklets.
Information materials
Disease-specific booklets
20
Total distributed - 71,331
Disease-specific newsletters
Total distributed - 48,430
10
8
The Foundation conducted the first national Myelodysplastic
Syndromes (MDS) survey, which was completed by more than
220 people with the disease. The findings will be presented to
health professionals across Australia as part of our inaugural
National MDS Day in July 2013. We produced a new DVD to
help explain MDS and its treatments, side-effects, and how
to live well with the disease. Presented by haematologists, a
blood transfusion nurse and two people living with MDS, the
free DVD is available to people affected by the disease and
health professionals across the country.
In what is believed to be a world-first, the Foundation produced
fact sheets on the various sub-types of MDS. International
organisations have expressed interest in adapting these fact
sheets for their own use – they can be downloaded from
www.leukaemia.org.au.
Haematology diary
Our newest publication, My Haematology Diary, has been an
overwhelming success among people with blood cancer and
health professionals alike.
More than 2000 copies were distributed in the first three
months after the launch in March 2013. The aim of the diary
is to help people with blood cancer to identify quality of life
issues that can be prevented, thus allowing their health team to
develop strategies to improve their sense of wellness.
Mission to Care
National awareness days
Looking ahead
National Myeloma Day was a huge success in May with
990 people attending education and support events across
the country – a 50% increase on last year’s attendance.
Two international speakers from the International Myeloma
Foundation presented at the Sydney and Melbourne events,
which were held jointly with the Myeloma Foundation Australia.
Support service grant program
Lymphomas account for almost 50% of all blood cancers
and World Lymphoma Awareness Day is the Foundation’s
opportunity to raise awareness of Australia’s sixth most
common cancer. Events were held in every state and
territory in September.
For International CML Day, the Foundation provided free
badges to people with CML that asked: ‘What is my PCR?’.
This was part of an international initiative designed to ensure
people were aware of the specific blood test that measures
their level of CML. This test is not available in all countries but
is readily available in Australia.
As many health professionals were not aware that the
Leukaemia Foundation supports people with MDS, we
developed plans for the first National MDS Day (in July 2013),
to raise awareness of this blood cancer and promote the
services we provide to this group of people.
Annual education conferences
Thanks to the generous support of Tour de Cure, we hosted our
annual conferences in Sydney, Melbourne, Brisbane, Adelaide,
Perth and Darwin. More than 1000 people attended.
We are introducing three new grants for health professionals
aimed at enhancing how people with blood cancer health are
diagnosed, treated and supported to improve their overall
quality of life. The grants are:
•
•
•
Regional Professional Development Grant
Haematology Distance Education Grant; and
Hospital Resource Grant.
Rebranding information booklets
The Foundation’s most popular resource is our range of 20
information booklets. This publication series, which has had
the same ‘look’ for more than 10 years, will be redesigned and
modernised to be more reader-friendly.
Streamlining services
The Foundation will nationalise our processes to ensure people
with blood cancer living in all parts of Australia have equal
access to our services and support.
Blood Buddies
Our research has identified the need to implement a new
program, where people who have lived with a diagnosis of
Leukaemia, Lymphoma, Myeloma or a related blood disorder
can share some insights with those newly diagnosed, through
a formal buddy arrangement.
National service highlights
NSW/ACT
VIC/TAS
SA/NT
WA
TOTAL
Number of people with blood cancer supported
2,279
2,374
2,014
2,390
9,057
Number of new people supported
1,771
1,150
639
826
4,386
669
387
389
506
1,951
Number of transport service trips
13,514
2,883
6,837
1,882
25,116
Total transport service kilometres
570,048
177,151
145,784
112,024
1,005,007
335
275
33
308
951
8,043
4,641
2,362
2,790
18,461
Number of education sessions delivered
382
223
149
137
891
Number of education session attendees
4,751
3,263
1,523
1,906
11,443
Support
Transport
Number of families transported
Accommodation
Number of families accommodated
Number of accommodation nights provided
Education
11
Fundraising
We receive no ongoing government funding so rely on the generosity of the community
and the corporate sector to fund and further our Vision to Cure and Mission to Care.
Aim and the need
Our investment in innovation has paid handsome dividends for
our most successful fundraising campaign, World’s Greatest
Shave, which has seen huge growth in fundraising online.
Our aim is to replicate the most successful online fundraising
techniques across our other events to attract a broader base of
new supporters, reduce our reliance on one source of income
and keep administration costs as low as possible. With our
focus on regional service delivery, we are looking to boost our
community support from regional areas, not only with local
fundraising, but through support of our key campaigns.
Event fundraising
Incredibly, one third of people signing up to World’s Greatest
Shave in 2013 used mobile devices to fundraise compared with
just 12% last year. We also found that people with smartphones
raised almost twice as much as everyone else.
We grew our events portfolio this year by piloting our new
Sunflower Club in June 2013.
World’s Greatest Shave
Brave, generous Aussies from all walks of life shaved, cut
and coloured their hair again in 2013, taking the national
fundraising total to a record-breaking *$20.3 million, up 13%
on the previous record-breaking year.
*Including $5.2 million from the Leukaemia Foundation of Queensland.
12
Highlights:
•
•
•
•
•
More than 150,000 participants,
A record 2.2 million visits to the WGS website,
36% of website visitors used mobile devices,
Mobile devices were used in 21% of all donations,
$20.3 million was raised from:
- More than 14,000 individuals ($10 million+)
- 5,400 teams of family and friends ($4 million+)
- 2,800 businesses (half from mining and energy
sectors - $2.7 million).
Channel 7 was our television partner for the second
consecutive year, with the station’s generous bonus support
including celebrity ‘chin’ ads by My Kitchen Rules’ Pete Evans
and Mick and Matt Newell, as well as Georgie Parker.
Our Top 30 fundraisers included amazing efforts by community
teams – Team Garraway (Vic) and Team Adem (Qld) who
respectively raised more than $170,000 and $134,000.
Support from the corporate sector was again strong from
mining giants BHP Billiton and ESS. From the AFL, Adelaide
Crows player Taylor ‘Tex’ Walker raised more than $64,000 and
had his infamous mullet shaved by Sam Newman on
Channel 9’s The Footy Show as a result.
Fundraising
U.G.L.Y. Bartender of the Year
Sunflower Club
With a theme to ‘bring sunshine’, our new
Sunflower Club was piloted in June 2013.
The campaign’s concept was built around
the image of a sunflower turning to catch
the smallest glimpse of sunshine, even on
a cloudy day.
This image represents the heart of the
campaign, to raise funds for services
to ease the burden on regional families
facing blood cancer. Echoing the fun
fundraising spirit of World’s Greatest
Shave, participants got involved in a
range of ways, from daring to do the
Sunflower Club Speedo Dash and buying
bunches of sunflowers, to planting virtual
sunflowers in our online field, and even
skydiving – for extreme sunshine!
Coordinated nationally for the first time this year, our quirky fundraiser in pubs and
clubs continues to go from strength to strength. U.G.L.Y. stands for ‘Understanding,
Generous, Likeable You’, with all funds going towards our accommodation services
for regional families.
Highlights:
•
•
•
•
More than $1.2 million was raised,
1092 bartenders got involved,
The funds raised equate to 14,536 nights of accommodation,
Offbeat events included sumo stomping and kissing booths!
Special thanks go for the third year in a row to Belinda Marshall from the Emerald
Springs Roadhouse in NT, who was a standout U.G.L.Y. Bartender again raising
more than $60,000.
Highlights:
•
•
•
•
•
•
$200,000 was raised,
300 people braved the winter
elements in the Speedo Dash,
23 people skydived out of a plane,
Sunflower Club merchandise was
sold in 500+ retail outlets,
Bunches of sunflowers were sold in
30+ locations,
Facebook and Twitter bloomed with
sunflower ‘selfies’.
Although falling short of its fundraising
goal in its first year, the campaign’s
participants were enthusiastic and
engaged – a terrific base for us to
build on.
13
Light the Night
More than 30,000 Australians participated in 78 events across the country
throughout September and October to raise funds for Leukaemia, Lymphoma and
Myeloma research through our National Research Program.
Highlights:
•
•
•
More than $1.4 million was raised,
A new theme of ‘Where Hope Shines’,
Support again from Principal Partner Bridgestone Australia, Major National
Partner Seeley International, and Toll.
Our aim is to establish Light the Night as a major event for those people who have
been directly impacted by a blood cancer diagnosis, with a focus on generating
income to support research.
Fundraising
Personal challenge fundraising
Looking forward
In 2012-13 the Foundation and charity challenge company,
Inspired Adventures, dared people to step outside of their
comfort zones with physical quests to raise money and
support our work.
With the introduction of the Leukaemia Foundation’s new
database Supporter 360 in 2013-14, we aim to improve our
ability to engage existing and potential new supporters. We
need to improve at giving people opportunities to contribute to
our work that are better aligned with their reason for
supporting us.
The 75 th Anniversary Kokoda Trail Challenge in October 2012
featured a team for the Leukaemia Foundation, with $43,300
raised between the group of 11.
A team of five runners in the prestigious 2013 Virgin London
Marathon raised more than $117,000, including Michael Brasier
from WA (pictured above), who raised $55,000.
Participants in these adventure fundraisers are asked to raise a
predetermined minimum amount for the Foundation, plus cover
Community generosity
Strategies to further grow support from businesses are in
place, including through the planned appointment of a National
Business Development Manager. Similarly, we will further build
and nurture our relationships with our donors through the
appointment of a Donor Relationship Manager in each state.
Community donations, whether in response to an appeal,
through a trust or foundation, or to a local event for the
Leukaemia Foundation, were important sources of income
again this year. Community generosity came in by way of:
We have acknowledged that our areas for growth are not only
by growing our signature events, but also diversifying and
building stronger relationships with the individual donors and
businesses that choose to support us.
their travel expenses.
•
•
•
•
Generous individuals, trusts and foundations and
community fundraisers giving to our work.
Thoughtful people choosing to leave a lasting gift
in their will.
In-Memoriam and In-Celebration gifts (see page 20).
Our Spring, Christmas, March and Tax appeals resulted
in gifts totalling $332,263.
Strengthening the impact of our appeal materials to increase
response rates is a focus area in the coming year. We aim
to achieve this by honing our content and better aligning
ourselves with industry best practice particularly in developing
effective fundraising letters.
14
Across the organisation we are working to standardise and
create greater uniformity in how we operate. As part of this
focus, all income-generating areas – events, community
fundraising, appeals and planned giving – will sit under the one
functional umbrella, led by one National Head of Fundraising.
The business sector raised $2.7 million for
World’s Greatest Shave, an increase of more
than 30% on last year’s figure.
15
State and Community Fundraising
“We have been fundraising for about five years with regular garage sales, auctions and
other events. I thank the Foundation for its work and will support it for as long as I can.”
Dawn O’Connell, Traralgon, Victoria
Aim and the need
From concerts starring acclaimed artists and events involving
cycling, snowsports and muscle cars, to sausage sizzles and
chook raffles – community fundraising was again an important
contributor to funding our Vision to Cure and Mission to Care
this year. When energetic and generous people volunteer to
support us, it’s the most engaging and cost-effective way of
raising funds.
As well as community fundraisers, Friends of the Foundation
are people who work together in their local communities to
support our work through fundraising, supporting our major
annual campaigns, volunteering at selected local events and
promoting our work. Hundreds of fundraising events were held
this past financial year by groups around the country, from golf
days and lunches, to fashion auctions.
We are enormously grateful to all of our energetic ‘Friends’ and
community fundraisers who put their efforts and expertise into
supporting our work. Some fundraisers have been personally
impacted by blood cancer, while others see their efforts as a
way of giving back to their communities.
Following are just some of the community fundraisers held this
financial year.
Lifecycle – Canberra
Lifecycle is a cycling event that promotes awareness for blood
cancer and raises funds for the operation of the Leukaemia
Foundation’s new John James Village. This facility will be
purpose-built in Canberra to provide a ‘home away from home’
for regional families who need to relocate for treatment. Held
in October 2012, Lifecycle took place over 48 hours on tracks
around Lake Burley Griffin. Participants included serious
soloists who rode for the entire time, to riders taking turns from
weekend cycling groups, work teams, school groups and
families. Their combined efforts raised more than $100,000.
16
Walk of Life – Tamworth
On a hot 30 degree morning in January 2013, 700 people
walked the streets of Tamworth to raise funds for the Leukaemia
Foundation’s work alongside some of Australia’s most golden
country music talents.
The Walk of Life is the culmination of a week of events
throughout the Tamworth Country Music Festival.
In its seventh year in 2013, the event saw a host of country
music stars throw their support behind the Foundation,
including Walk of Life Ambassador Amber Lawrence, Troy
Cassar-Daly, Adam Harvey, Kasey Chambers and Beccy Cole.
Together, the group helped to raise almost $20,000.
To join a fundraising event visit:
www.leukaemia.org.au/howtohelp
State and Community Fundraising
Aussie Muscle Car Run – Adelaide
Ski for Leukaemia – Victoria
The Aussie Muscle Car Run was an exciting new motoring
event in November 2012 that saw 100 people travel in 34
“muscle cars” to all corners of South Australia.
Ski for Leukaemia was created in 2012 by community
fundraiser, Matt Unkles, who became connected with the
Leukaemia Foundation in August 2012 after he was diagnosed
with Acute Myeloid Leukaemia (AML).
In its inaugural year, the event raised more than $250,000 for
the new Bridgestone Australia Leukaemia Foundation Village –
an incredible achievement.
Open to cars that participated in Bathurst from 1964 to
1977, the leisurely paced Run included various models of Ford,
Holden and Chrysler from “the Bathurst glory days”. Entrants
were required to raise at least $2500 and pay an entrance fee.
Organised in association with the Falcon GT Club of South
Australia, the Run weaved its way over nearly 3000km from the
South East, to the Riverland, the Iron Triangle, Eyre Peninsula,
and the Copper Coast, over seven days.
Plans are in place to build the Aussie Muscle Car Run to be
even bigger and better in 2013 – and beyond.
Matt was living in Germany at that time and, after talking
with his medical specialists and the Leukaemia Foundation,
decided that going home for treatment was the best plan.
It was determined early on that a stem cell transplant
was needed.
“My brother and sister weren’t a match, so the world wide
donor registry – which comprises 20 million people – was
searched,” said Matt. “Two potential donors were found and, as
coincidence would have it, they were both German!”
Matt’s transplant took place back home in Australia in
December 2012.
Having always been an active person, since his transplant Matt
has dedicated his recovery to establishing Ski for Leukaemia
(SfL), which brings together “the joy of snow sports” with
raising awareness and funding for blood cancer research, with
a particular focus on stem cell transplant studies.
Throughout June 2013, SfL hosted various activities at
Australian ski resorts, including team scavenger hunts, cross
country ski events, and downhill events. Matt is now planning
to expand SfL to include international ski resorts.
Concert for Cure and Care – Bunbury
More than 500 people turned out to see Karise Eden, winner
of the 2012 season of Channel 9’s The Voice, as the headline
act at the second annual Concert for Cure and Care at the
Bunbury Entertainment Centre in April 2013.
Former Australian Idol finalist and Australia’s Got Talent
contestant in 2012, Jonny Taylor, a talented artist from the
South West in WA, was the support act for Karise.
Alumina refinery Alcoa of Australia Wagerup has sponsored the
Concert for Cure and Care since its inception.
17
17 cents from every dollar raised
through World’s Greatest Shave is
used to cover the costs of the campaign,
making it one of Australia’s most cost
effective fundraising events.
Partners
We continue to strive for genuine corporate collaborations as we retain our current
partners and seek new relationships with businesses that share our values and interests.
Aims and highlights
New corporate partnerships
The Leukaemia Foundation has enjoyed strong support from
the broader business community this year, with increased
commitments from our long term partners, several new and
developing business relationships and continued commitment
from Australians in the workplace.
Each year we embrace opportunities to form new corporate
partnerships across Australia, as well as strengthen the
links with our existing partners. These partners share our
relationship philosophy, a mutual commitment to excellence
and an authentic desire to make a real difference in the lives of
Australians living with blood cancers.
In 2013, World’s Greatest Shave has posted a record year and
revenue generated from business supporters was substantial.
The business sector raised $2.7 million for the event, an
increase of more than 30% on last year’s figure.
Payroll giving
The Leukaemia Foundation’s work benefits from the gifts made
by Australians through payroll giving and from their companies,
like BHP Billiton, who match their charitable contributions.
Other companies whose employees support us with payroll
giving include Bridgestone Australia, CCH, Ausgrid, I-MED,
Westpac, Karma Currency, Macquarie Group and BMF.
Read more about how important
corporate support is to our work:
www.leukaemia.org.au/partners
18
Land Surveys joined our growing list of corporate supporters
this year, coming on board as Bronze Corporate Partner in
WA. As well as presenting the Leukaemia Foundation with a
generous donation, Land Surveys embraced World’s Greatest
Shave in 2013 and signed on as flagship supporter for Light
the Night in Perth (in September 2013).
Looking ahead
In the year ahead, our focus will be to expand our number of
business partnerships. We aim to reach out to the communities
surrounding our business partners, sharing our message of
hope for a future where everyone with blood cancer can be
cured.
Strategies to further grow corporate support are in place,
including through the appointment of a National Business
Development Manager in 2013-14.
Partners
Special thanks to our national and state corporate supporters for their generosity.
19
NATIONAL
Famous Pacific Shipping
SACA
Aon
Ferrari Club of SA
Sarah Constructions
BHP Billiton
Freemasons
Sarb Media
Bridgestone Australia
Golden Group
Sensis
Clare Valley Brewing Company
Gorman
Smithfield RSL
Guardian Advice
GPS logbook
Stay247.com
Hewlett Packard
Greenstone
Tenancy Solutions
GM Holden
Harness Racing Australia
The Edge Coffs Harbour
Hoshizaki Lancer
Harvey Norman Commercial
The Good Guys-Cathie Peters
Jeanneret Wines
Hyatt Regency Perth
Totally Sound
Seeley International
IGA
Toy Box International
Toll
Jonny Taylor Music
United Way (WA)
Land Surveys
VCCB
STATE
Ledge Finance
Wridgways
Alcoa of Australia
Macquarie Group
Xenian
Allegra Safety
Maughan Thiem Ford
Xstrata
Allens
Mazda Australia
Atlas Iron
Meguiars
Ausdrill Limited
Miele Australia
Aussie
MRA
Australian Chinese Daily
Murcotts
Awesome Promotions
National Pharmacies
Bankwest
Newcastle Permanent
B. Braun
NorthHaul
Bendigo Bank
NRMA Motoring & Services
Best & Less
Olex Cables
BHP Matched Giving
Optiver
Certatech
Pacemaker
Clinpath Laboratories
Padstow RSL
Commonwealth Bank of Australia
Parramatta Leagues Club
Compustor
Pool Controls
Crown Conferencing
Practical Gifts
Deloitte
PRS Conveyancing
Edwards Wines
PwC
Elders
Quality Lord Forrest Hotel
Elite Oils
Ritchies
Supporters
The Leukaemia Foundation was supported by many
generous individuals, trusts and foundations and
community fundraisers this year.
In this section we acknowledge those people who gave or
raised more than $5,000 as part of a community fundraiser,
appeal, or in memory of a loved one. To those who requested
anonymity, we sincerely thank them also.
Community Fundraisers
A Touch of Orange Committee
Alabarda Sports and Social Club
Amber Lawrence
Angel Group
Auburn RSL Club
Belinda Sudano
Blacktown Workers Club
Bequests and Individuals
Broken Hill Legion Club Ltd
Aaron Stone
Marie Ward
Anthony Veitch
Mollie Chick
Aileen Wells
Mr and Mrs Wales
Annette Guthrie
Neil Cadigan
Bruce Saint
Neilma Gantner
Desmond Phillips
Nicholas Duell
Elizabeth Armitage
Paul Okkerse
Emily Brook
Robert Bowman
Estate of Betty Dawn Fullwood
Rosalia Di Giacomo
Estate of Charles West
Samuel Cheung
Estate of Dennis Brian Scagg
Sean David
Estate of Edward Mervyn Byles
Sue Maple-Brown
Estate of Florence Enie Kennedy
Suzanne Phillips
Estate of Helen Lesley Smith
Ted and Carol Hicks
Estate of Ronald Earnest Wilson
Wendy Brown
Estate of Ruth Louvain Pryce Trust
Zoe Baines
Estate of Shirley Miners
Estate of Valda Gladys Fielder
Frank Aquilina
Private Ancillary Funds
N & P Pinter Trust
Ineke Hillege
The Bill Long Charitable Trust
John Looker
Government
Julia Farrell
HLB Mann Judd
Hunter New England Local Health Network
Jann King
Joel Weeden
Josephine Napoli
Katie Maxwell
Michele Harvey
Mikaela Sellen
Monash Country Club Ltd
Orange Emus Rugby Union Club
Padstow RSL
Peter Busch
Rebecca Lenzo
RHO Solutions
Rory Jones (Corey’s Cruise)
Sharyn Arnold
Slide Lounge
Smithfield RSL
Suncorp Bank
Teresa and Ashley Browne
The Greens The Entrance
Julie Williams
Cancer Institute NSW
Tour de Cure
Justin Shakoush
City of Melbourne
WA Special Needs Childrens Xmas Party
Kathleen Hoggard
City of Sydney
Kathleen Langaard
Community Building Program NSW
Kathryn Armbruster
Department of Families, Community
Services and Indigenous Affairs
M Gogoll
Maeve O’Brien & Associates
Regional Development Australia
Margaret Baird
20
Glenn Millard
Ros Ireland
Ian and Lisa Webster
Jonathan Leek
Gayle Harman
Trusts and Foundations
Corporate Supporters
Adelaide Crows Foundation
ACT Health
RP Data Group
AMP Foundation
Adelaide Cancer Centre
The Royal Melbourne Golf Club
Aon Charitable Foundation
Air-Met Scientific
Thurlings Financial Services
ANZ Trustees
Allens
Westpac Group
ASX Thomson Reuters Charitable Foundation
AMP Financial Services
WIN Network
Charities Aid Foundation
Aon Services
Woodend Pty Ltd
Coopers Brewery Foundation
Arrium Iron Ore Holdings Pty Ltd
Xenian Pty Ltd
Everglades Fund
Ausgrid
Gwen and Edna Jones Foundation
Australian Executor Trustees
JLDJS Foundation
CCH Australia Ltd
John James Memorial Foundation
Channel 7
Canterbury Bulldogs League Club
Lord Mayor’s Charitable Foundation
Clemenger
Castle Hill RSL Club
Lotterywest
Factory X
Davies Family Foundation
Louisa DaCosta Trust
Greenstone
Linux.com.au
Macquarie Group Foundation
Global Quest
Parramatta Leagues Club
Nelumbo Trust Fund
Guardian Advice
Western Suburbs Leagues Club Ltd
Newcastle Permanent Charitable Foundation
Hassalls
Philandron Foundation
Health Partners
RACV Foundation
HL Nominees Pty Ltd
Target Foundation
Independent Distillers Aust.
The Collier Charitable Fund
I-Med Network
The Freedman Foundation
Jabiru Metals Ltd - Brett Hartmann
The Honda Foundation
Le Cordon Bleu
The Jack Brockhoff Foundation
Medibank Health (WA)
The Marian & EH Flack Trust
Mitchell & Partners
The Rodney and Judith O’Neil Foundation
Mitchell Water Australia Pty Ltd
The Stan Perron Charitable Trust
Myer Stores Community Fund
The William Angliss Charitable Fund
Newcastle Permanent
Universal Zone Kluck Property Trust
Northern Territory of Aust - Health & Co
Olex Cables
Gifts in Memory of
Anthony Brown
Optiver Pty Ltd
PwC
Community Grants
Pharmaceutical companies
Unrestricted grants from pharmaceutical
supporters allow us to offset costs of
producing materials and programs.
Some companies also provide in-kind
support to enable staff to attend local
and international research and advocacy
meetings. These relationships help us
to stay abreast of new therapies, clinical
trials and special drug access programs.
Celgene Pty Ltd
Janssen-Cilag Pty Ltd
Novartis Pharmaceuticals Pty Ltd
Roche Products Australia Ltd
Ribshire Pty Ltd Trading As Goodline
Glenys Rich
Marilyn David
Paul Bowman
Vicky Aquilina
Verna Arthur
21
We also thank those people who raised money thorugh campaigns like World’s
Greatest Shave, Light the Night, for challenges such as trekking the Kokoda Trail
and for state-run Leukaemia Foundation events.
To view the top campaign fundraisers for 2012-13 visit:
www.leukaemia.org.au/topfundraisers
Marketing and Communications
Ensuring our voice is heard by those we can help, and those whose help we need, is a
constant focus of the Marketing and Communications team.
We recognise that people consume information and media
in different ways and that these ways continue to change for
each individual. In response, we have focused this year on
continuing to optimise the marketing and communications mix,
balancing the opportunities of the digital age with traditional
offline strategies that continue to be effective for us.
New website to launch in October
The Leukaemia Foundation website is the primary gateway for
people seeking information and support, and those wishing to
engage with us. In 2012-13, 145,398 unique visitors accessed
our Leukaemia Foundation website at least once, an increase
of 12.5% on last year and an average of around 400 new
visitors every day. This growth reflects the continued focus
on search engine optimisation and greater sharing of links to
content on our website through social media.
Our new website is in the final stages of content development
and testing and will launch in October 2013.
52,000 strong online community
In Australia 65% of people use social media – that’s nine million
Australians logging onto Facebook every day, or almost 40% of
the total population. Facebook continues to be by far the most
influential social media platform and remains the Leukaemia
Foundation’s primary focus.
In 2012-13, we grew our online community to 52,500, a
30% increase on the year prior. The number of social media
identities is static at six, across Facebook, Twitter, YouTube
and LinkedIn.
The ongoing interaction between stakeholders through these
channels continues to be a highlight, where beneficiaries of the
Leukaemia Foundation’s support can exchange messages of
thanks and encouragement.
Our use of Facebook to kick-off our new Sunflower Club
campaign in June occurred through sunflower “selfies”, where
we posted photos of public figures, identities and members of
the public wearing a sunflower. We reached 4.2 million people
on Facebook during this month alone – or almost half of the
Australian Facebook population who lived in regions where the
campaign took place.
Also new this year was testing the use of small, targeted digital
campaigns across the Google network and Facebook, to
support key donor appeals and we will evolve this strategy next
year, including extending it to promote key partnerships and
non-fundraising campaigns.
22
$12.7 million of media support
Despite the challenging media landscape, we generated inkind advertising of $12.7 million across television, radio, press
and digital media, with the support of Mitchell & Partners.
This comprised bonus advertising for national fundraising
campaigns valued at $7.4 million, and editorial support of
$6.2 million through almost 5,100 articles, with a reach
equivalent to an average of 2.7 million people each week.
Looking ahead
Our Strategic Plan includes ensuring there is adequate
resourcing to support marketing and communications activities
and additional roles are planned in priority areas from 1 July.
In October, we will conduct market research to understand and
benchmark public perceptions of the Leukaemia Foundation.
This will be complemented by a stakeholder survey in the new
year. We will use the information gained from this research
to understand how well we are communicating our work and
meeting the needs of our stakeholders. In turn, this will lead to
better informed management decisions to help us maximise
organisational impact. The research findings also will enable
us to develop a united visual brand for our organisation in
collaboration with the Leukaemia Foundation of Queensland.
To support our increased focus on online marketing and
communications, we plan to extend our media monitoring to
include digital and social media. This will include a module
which lets us hand-pick news from social and medical journals
to feature in a special feed on our website.
Our new database will provide an opportunity to streamline
our communications with our stakeholders. We will develop an
overarching communication plan across the organisation, to
maximise our resources and ensure we are sharing relevant
and timely information.
Identities to Thank
Many well-known Australians lent their profiles to support our work in 2012-13.
We thank them for donating their time and energy to support us.
Her Excellency, Quentin Bryce AC – Patron,
Governor General of the Commonwealth
of Australia
8 Ball Aitken - country artist
Adam Blair - West Tigers player
Adam Harvey - country artist
Adelaide Strikers - Cricket team
Alan Brough - Comedian & TV personality
Allan Jones - 2GB presenter
Amanda Keller - WSFM presenter
Amber Joy Poutlon - country artist
Amber Lawrence - country artist
Amelia Adams - Channel 9 newsreader
Amy Williamson - country artist
Andrew Elsbury MP - Member for Western
Metropolitan Region
Andrew Wilkie MP - Member for Denison
Ashleigh Dallas - country artist
Barry Morgan - comedian & performer
Beccy Cole - country artist
Becko - Triple M presenter
Ben Waterworth - Edge Radio presenter
Blake Ayshford - West Tigers player
Bob Corbett - country artist
Maroon - Triple M presenter
Mathew Johns - Triple M
Dennis Walter - 3AW presenter
Matt & Mick Newell - My Kitchen Rules
Dianne Lindsay - country artist
McAlister Kemp - country artist
Elise Archer MP
Melissa Doyle - Channel 7 presenter
Ellie Mobbs - 2Day FM presenter
Meshel, Tim and Marty - Nova 100
Fletcher Humphrys - actor
Mick and Jane - 7HO! presenters
Georgie Parker - Home and Away actor
Mike Larkin - Network TEN personality
Georgia Fall - country band
Morgan Evans - country artist
Gina Jeffries - country artist
Natalie Barr - News presenter, Sunrise
Gorgi Coghlan - Network TEN Nathan, Nat and Shaun - NOVA 93.7
Graham Bury - Kingsborough Council
Mayor
Newcastle Knights players
Graham Rodger - country artist
Gus Worland - Radio host, Triple M
Hans - performer
Harry Hookey - country artist
Harvey Hookey - country artist
Hawthorn Football Club
Hughesy and Kate - Nova 100
Jackie O - 2DayFM presenter
James ‘Speedy’ Speed - SAFM
Brynne Edelsten - personality
Callum Hann – chef
James Tobin - Sunrise presenter
Cameron McKenzie-McHarg & Karsten
Forstering - Olympic rowers
Jason ‘Snowy’ Carter - Mix 102.3
Chelsea Basham - country artist
Chris E Thomas - country artist
Chris Patterson MP - Member for Camden
Corey Brown - Jockey & Sky TV presenter
Dan Anstey - Nova 100 personality
Dan Conway - country artist
Dan Ginnane - Triple M presenter
Dani Venn - MasterChef contestant &
Nova 100
Daniel Geale - IBF Middleweight
Champion
Mark Geyer - Triple M presenter
Deano - Nova 100 personality
James Reyne - Ambassador, singer/
songwriter
Camille and Stuie - country artists
23
Dayne Beams - Collingwood Football
Club
Nick and Woody - SeaFM presenters
Paul Costa - country singer
Pete Denahy - country artist
Pete Evans - My Kitchen Rules host
Rachel Corbett - Radio host, Triple M
Ray Hadley - Radio Host, 2GB
Roo Arcus - country artist
Sam Loch and Matt Ryan - Olympic rowers
Samantha Armytage - Co-host, Sunrise
Scott Bacon MP
Steven Marshall MP, State Liberal leader
Tamsyn Manou (Lewis) - athlete
Tatafu Polota-Nau - Waratah player
John Harris - personality
Taylor Walker, Jason Porplyzia, Sam Shaw,
Kyle Hartigan and Sam Kerridge - Adelaide
Crows
Jonny Taylor - singer
The Apprentices - country band
Julian Schiller - Triple M presenter
The Hon Lara Giddings - Tasmanian premier
Karise Eden - Music artist
The Hon Jillian Skinner MP - NSW Health
Minister
Jetty Road - country artist
Kasey Chambers - country artist
Katrina Burgoyne - country artist
Keith Conlon - 5AA presenter
Kristy Cox - country artist
Kyle Sandilands - 2DayFM presenter
Luke Dickens - country artist
Luke O’Shea - country artist
Dave Noonan - Heart FM
Lyn Bowtell - country artist
David Koch - Sunrise co-host
Malcolm Johnston - Sky TV presenter
David Mann - 3AW personality
Mark Aiston - Mix 102.3 presenter
Mark Berreta - Sunrise sports presenter
David O’Byrne MP - Member for Franklin
The Hon Tony Abbott MP - Member for
Warringah
The Sunny Cowgirls - country artists
Tim “Rosso” Ross - Mix 106.5 presenter
Tim and Josh - Chilli FM presenters
Tom Carter - Waratah player
Tom Lewis & Nick Hose – Hot 100 FM
Troy Cassar-Daly - country artist
Verity James - Media personality
Wayne Zerbe and James and Johhny Territory FM
Volunteers
In 2012-13 our dedicated volunteers donated almost 60,000 hours of support, equivalent
to almost $1.2 million in dollar terms alone.
Invaluable volunteers
Put simply, the Leukaemia Foundation could not operate
without our wonderful volunteers, who donate their time and
talents in many different ways. These dedicated men and
women include school students, corporate staff, retirees
and health experts, inspired to make a real difference in our
community. Volunteers are recruited through the media and
word of mouth, and many approach us when their own life
is touched by blood cancer. Each volunteer is interviewed,
security cleared, inducted and trained, including our volunteer
drivers who transport people to and from treatment.
Administration and maintenance
Administration and maintenance volunteers assist in the daily
operation of the Foundation, answering phones, entering data
and organising mailouts. The gardens and general repairs at
our accommodation units are looked after by volunteers. They
play a crucial role in the business running smoothly.
Corporate volunteers
Our business partners actively encourage teams to assist the
Foundation, build teamwork and broaden understanding of our
work. Corporate volunteers this year contributed to working
bees, acted as “extras” in television commercials, and
assisted as track marshals for our events.
Events and fundraising
When it comes to fundraising, our volunteers are simply
amazing. From shaving heads for World’s Greatest Shave (with
training provided!) to Christmas gift-wrapping and organising
community functions, event and fundraising volunteers provide
enormous support.
24
Transport drivers
Our fully trained courtesy transport drivers offer a friendly smile
and a helping hand to people undergoing treatment, which
helps to ease any anxiety they may be feeling. They also assist
in maintaining the cleanliness of our vehicles.
Recognition and retention
Many volunteers have served the Leukaemia Foundation for
more than 10 years, which is remarkable. Regular volunteer
meetings and a newsletter contribute to healthy information
flow, feedback and ongoing training. We also foster healthy
relationships between staff and volunteers through social
gatherings, at Christmas and on International Volunteers Day.
Looking ahead
The launch of the new Leukaemia Foundation website will allow
us to provide more information to volunteers and a mechanism
for registered volunteers to provide feedback and access
training. The new site also will provide further opportunities to
recognise our volunteers with space for volunteer testimonials,
statistics and news updates.
Do you have the talent and time
to help with our important work?
To find out about current volunteering
opportunities with us please visit:
www.leukaemia.org.au/volunteer
Syd not one to “sit around twiddling my thumbs”
When Syd Grolman turned 70 he had retired from work and wasn’t interested in sitting
around twiddling his thumbs for the rest of his life. Already a regular blood donor and
member of the local Rotary Club, he was looking for more volunteering opportunities.
And so Syd began his volunteering with the Leukaemia
Foundation. He has been generously donating his time for more
than 10 years now. He no longer drives people to and from
treatment, but helps the Foundation’s transport coordinator
each Friday by confirming the availability of other drivers for
the next week.
In 2012 he received a Medal of the Order of Australia for his
service to the community.
“It’s been an absolute pleasure for me to be associated with
everyone at the Leukaemia Foundation and to work for such a
wonderful cause,” said Syd.
“During my time at the Leukaemia Foundation I’ve driven many
patients – young children to older people. We try not to get too
involved with them but when you’re driving someone regularly,
they want to talk and it’s my job to listen,” said Syd.
“One lady I used to drive each week asked if I could stop at
a café so she could get a sandwich for her lunch. When she
came back she had a sandwich for me too. The patients are so
grateful, they really are. It’s a wonderful thing to do.”
“If you want to do good in this world, volunteering is a
wonderful way to start. It’s very rewarding and I think it’s
absolutely fantastic. The only way you’ll get me to stop is if I’m
in a wheelchair and physically unable to go on. I’ll be around
for a while still.”
Syd doesn’t just volunteer for the Leukaemia Foundation. He
was the treasurer at Northbridge Rotary Club and is still the
treasurer for Sailability in Middle Harbour. He also conducts
two men’s forums at Montefiore aged care homes, where he
regularly plays chess with a 92 year-old Holocaust survivor,
allowing him to have someone to talk to.
“If you want to do good in this world,
volunteering is a wonderful way to start.”
Volunteer hours 2012-13
Administration
Fundraising
NSW / ACT
254
1,708
701
24,429
53
150
WA
207
627
929
3,952
30
0
5,538
VIC / TAS
410
449
902
8,400
1,454
38
11,243
SA / NT
123
723
N/A
9,835
288
1,719
12,565
92
48
0
0
1,210
0
1,086
3,555
2,532
46,616
3,035
CENTRAL
TOTAL
25
Transport
Expert
Other
Total hours Volunteers
1,907 27,041
1,258
57,645
Collaborative Partnerships
We continue to build on core relationships and seek to forge new ones to increase support
for people with blood cancer.
Working together as one
Strengthening relationships with other industry members and
businesses is important for growth. We continue to build on
existing relationships and seek out new partnerships to support
people with blood cancer.
Leukaemia Foundation of Queensland
Our shared Vision to Cure and Mission to Care with member
organisation, the Leukaemia Foundation of Queensland is
our most important partnership. We share service innovations
to ensure a continuity of care for Australians affected
by blood cancer. We also work together on fundraising
events like World’s Greatest Shave and run one National
Research Program so that we can pool our financial and
human resources in finance, IT and administration to create
efficiencies.
Health industry
Myeloma Foundation
The Leukaemia Foundation joined with the Myeloma
Foundation in April in a new, week-long pedal powered event
to raise funds and awareness to help people with blood cancer.
The ‘Ride for Recovery’ was a major event involving about
60 riders, who rode from Melbourne to Sydney over seven
days. In the inaugural 1000km cycle, the cyclists raised more
than $130,000 for the work by both organisations to support
Australians living with myeloma. The two foundations also
teamed up to host education events for National Myeloma Day
in the three states in which the Myeloma Foundation operates.
This year more than 600 people attended the information
sessions in May.
Australasian Leukaemia and Lymphoma Tissue Bank
The Australasian Leukaemia and Lymphoma Tissue Bank in
Brisbane is a joint initiative of the Australasian Leukaemia and
Lymphoma Group and the Leukaemia Foundation. Australia’s
first and only specialised haematological Tissue Bank, it
was established in October 2002 with the assistance of AMP
Foundation and later by PwC. Before the Tissue Bank was
established it was difficult for Australian researchers to access
sufficient tissue samples for meaningful research into a wide
variety of blood cancers.
Australian Red Cross Blood Service
In March 2013 collaborative forums involving the Leukaemia
Foundation and the Red Cross Blood Service were hosted in
Launceston by the Northern Tasmania Blood Cancer
Education program.
Looking at the essential provision of blood products to people
undergoing blood cancer treatment, the forums discussed the
logistics of blood use from donation to transfusion, the stringent
testing and criteria for blood donors, and an overview of blood
products and their use for various conditions. Statistically,
18 people need to donate blood to treat one person with
acute leukaemia for one month, so the Leukaemia Foundation
promotes blood donations as another way to help people with
blood cancer.
Corporate associations
Le Cordon Bleu
The Leukaemia Foundation and renowned international culinary
arts institution, Le Cordon Bleu, collaborated to create a
unique educational session, ‘Cooking for Chemo’, in 2012. The
aim of the sessions was to teach participants how to create
nutritious meals to appeal to taste buds dulled and damaged
by chemotherapy, taking into consideration the need for high
nutrition, the ability to easily alter ingredients depending on
palette changes and factoring in low bacteria diets. Plans are
in place for ‘Cooking for Chemo’ to become an annual fixture
on our calendar in South Australia.
NRMA
Patrol officers from one of our highly valued corporate partners,
NRMA Motoring & Services, have been through our volunteer
driver training program and regularly volunteer their time to
drive people to and from treatment. This year, NRMA Group
CEO, Tony Stuart, put out a challenge that if NRMA staff raised
more than $25,000 for World’s Greatest Shave then he would
shave. NRMA smashed this target, raising more than $35,000.
As a result, Tony and some NRMA patrol officers lost their locks
at our World’s Greatest Shave event in Martin Place in Sydney.
26
Environmental
Sustainability
Industry Participation
Following the development of our environmental sustainability
policy in 2011-2012, this year we have implemented the
recommendations of this plan.
The Leukaemia Foundation takes an active
part in our industry through memberships
and contributions of our people.
As part of our commitment to caring for our environment we:
From chairing related industry groups, to participating in
steering groups aimed at improving the quality of life of the
people the Leukaemia Foundation supports, members of
our team are active contributors. Professional memberships
also enable our people to develop their skills and networks
for the benefit of our stakeholders.
•
•
•
•
•
Australian Leukaemia and Lymphoma Group (ALLG)
Tissue Bank Management & Marketing Committees
•
– representative
•
Reducing our carbon footprint also is a key focus in our
current and upcoming building projects. The Bridgestone
Australia Leukaemia Foundation Village in Adelaide
showcases energy saving features including correct
orientation of buildings, insulated wall panel systems, energy
efficient and automated lighting and rainwater storage for
irrigation and toilet flushing.
Australian Health Consumer Advocacy Group –
steering group member
•
Australian Cancer Consumers network – to
coordinate the recruitment, training and mentoring of
consumer reps for grant review committees
•
•
•
•
Cancer Australia – steering group member
Cancer Research Leadership Forum – member
Cancer Voices Australia – member
Consumers e-Health Alliance – provide consumer
scrutiny of PcEHR
•
•
•
Switch off all lights, computers, monitors and other electronic devices at the end of each day.
Reduce the need for air travel by utilising
teleconferencing facilities whenever practical.
Include information on efficient driving to our
volunteer driver manuals.
Print double sided wherever possible and scan
documents rather than printing extras.
Recycle all paper.
Consumers Health Forum – advisory committee
Fundraising Institute of Australia – memberships
Hospital Allied Accommodation Australia Network –
steering committee
•
•
International Lymphoma Coalition – Chairperson
Luminous Awards – judging panel, recognising
excellence in oncology journalism
•
MECFS Australia – Board member, dedicated to
Chronic Fatigue Syndrome
•
Rising Sun – member of steering group to build
support and advocacy groups in Asia
Reconciliation
Action Plan
The Leukaemia Foundation’s vision for reconciliation is of a
nation that genuinely acknowledges and celebrates Aboriginal
and Torres Strait Islander peoples as the original custodians of
the land.
In joining the reconciliation community we aim to build a shared
understanding and mutually respectful relationships between
Aboriginal, Torres Strait Islanders and other Australians.
Our vision for reconciliation will ensure equitable access to
mainstream services for all Australians and will provide equal
opportunity for Aboriginal and Torres Strait Islander peoples to
actively participate in contemporary Australian society.
27
Strategic Plan
This year we progressed key priorities in our 2012-2015 Strategic Plan, addressing and
directing the areas of greatest need for our organisation in line with available resources.
Summary
Priorities
• The year has seen us move progressively towards
• In the coming 12 months we plan to focus on business
the implementation of Supporter 360 (S360), our new
integrated data management system. The original
timelines for the project have extended and the objective
now is to finalise the system by June 2014.
• A $3.9 million Federal Government grant from Regional
Development Australia Fund (RDAF) was a major
contribution towards the completion of our 15 unit
Bridgestone Australia Leukaemia Foundation Village in
Adelaide. We were able to fund the balance of the $9.5
million project through fundraising.
• Our strategy to develop more village-style accommodation
around Australia continued. Ongoing negotiations with the
Western Australian Government regarding land availability
near treating hospitals are continuing. The overall plan is
to construct 25 units in Perth with a support and education
facility on-site by 2016-17.
• Developing stronger links with corporate Australia to build
support from this sector was a key objective in 2012-13.
Insufficient staffing levels and general market uncertainty
hampered these efforts in 2012-13, we are launching our
first business lunch series in November 2013.
• Our new Sunflower Club was launched in June 2013 and
the initial reaction has been very positive. The Sunflower
Club joins our list of national events, the iconic World’s
Greatest Shave, Light the Night and U.G.L.Y. Bartender
of the Year. As is the case with all new events, it will
take two to three years for the campaign to mature into
a fixed calendar event. Establishing the Sunflower Club
campaign forms part of a long term strategy to have four
major national events supplemented by other state driven
activities.
• Our commitment to the funding of vital blood cancer
research continues and this year our Vision expenditure
increased by $500,000 from the previous year. The
Medical and Scientific Advisory Committee provides highly
skilled knowledge and advice to ensure we fund the best
research projects in research centres around Australia and
this year was enhanced with the addition of Consumer
Representatives.
• Our Mission expenditure increased by $600,000 compared
to the previous year. This year we supported 9,057 people
with our services.
28
development and improvements in how we operate.
• We will implement a review of past research projects we
have supported to guide research funding for the next five
years. The review is planned for completion in June 2014.
• For some time we have recognised our need to have
a voice in Canberra to directly lobby the Federal
Government for the benefit of people with blood cancers.
A person was appointed in June 2013 and we are working
closely with them to identify key issues to be pursued.
• Two additional staff will be appointed to regional areas
to grow our service provision. We will also increase and
standardise the level of financial support we provide to
people who require this form of assistance.
• We have introduced a grant program to allow nurses
from regional areas to work for short periods of time in
metropolitan hospital haematological wards. Building the
skill levels of nurses will ultimately enhance the care that
people with blood cancer receive.
• Coinciding with the 21st anniversary of the Leukaemia
Foundation, we will implement broad based market
research to determine the extent to which we are meeting
the needs of our various stakeholders.
• We provided 18,461 nights of free accommodation in the
past 12 months. In the coming year we will evaluate how
best to increase our accommodation capacity in New
South Wales, Victoria and Western Australia, taking into
account local needs.
• We will move ahead in an effective and timely manner
to ensure the S360 data management system is fully
operational by June 2014.
We are wholly committed to developing and cementing the
Leukaemia Foundation’s position as Australia’s peak body for
blood cancer, to maximise funding opportunities and further
grow our Vision to Cure and Mission to Care.
Corporate Governance
The Leukaemia Foundation of Australia is a public unlisted company limited by
guarantee, incorporated under the Corporations Act 2001 in 2005.
Our Vision to Cure and Mission to Care is underpinned by
a governance framework that enables the organisation to
meet the needs of our stakeholders, while managing risk and
complying with federal and state legislation.
Board of Directors
The Board is structured to provide a balanced skill set to
add value with regional representation, financial oversight,
commercial experience, clinical and research practice, and
marketing expertise. The Board of Directors comprises a
representative from each of NSW/ACT, Vic/Tas, SA/NT, WA and
a member of the Leukaemia Foundation of Queensland Board.
Currently there are four other representatives appointed by the
board, including a patient advocate.
The Board ensures the Leukaemia Foundation’s resources
are used effectively to meet the needs of Australians with
Leukaemia, Lymphoma, Myeloma and related blood disorders.
Developing the strategic plan with the Chief Executive Officer
(CEO) and senior management, the Board ensures sustainable
use of donor funds through review and oversight, and makes
decisions about the allocation of resources including staff and
volunteers. Reporting to the Board are the CEO and various
committees to ensure broad insight into strategy development.
These committees include the CEO, who provides leadership
to the management team and who manages the progress
towards strategic goals.
ensure we are meeting the needs within this key area. The
committee Chair is the appointed Medical Advisor and a
member of the Foundation’s Board, and it comprises practicing
haematologists, clinicians, medical researchers, nursing
professionals and consumer advocates.
Grants Review Committee
The Grants Review Committee is an independent panel of
leading researchers with an integral role to the Leukaemia
Foundation’s National Research Program. Each year, the
volunteer committee of experts reviews all research funding
applications and makes recommendations to the National
Medical Advisory Committee on the projects most likely to
advance the Leukaemia Foundation’s Vision to Cure,
in line with strategic priorities.
Ethics Committee
Our people are expected to uphold the relevant laws, codes of
conduct and standards of their profession. We value integrity,
compassion, fairness and honesty in our interactions with each
other, and with the wider community. We believe these values
are embedded in our culture.
Directors, employees and volunteers are inducted into the
ethics standards, code of conduct and conflict of interest
policies and given access to relevant policy documents.
Advisory committees
Audit and Risk Committee
The Board ensures adequate policies exist in relation to risk
management, compliance and internal control systems with
assistance from the Audit and Risk Committee.
The Leukaemia Foundation’s policies are designed to ensure
that strategic, operational, legal, reputation and financial risks
are identified, efficiently managed and monitored. The Audit
and Risk Committee provides additional support to ensure that
the Foundation makes timely and balanced disclosure to its
stakeholders. An example of how this is done is the review and
approval of budgets and statutory accounts prior to
Board approval.
Medical and Scientific Advisory Committee
The Medical and Scientific Advisory Committee oversees
and reviews all aspects of the Foundation’s National
Research Program. It submits medical and research funding
recommendations to the Foundation’s Board in line with
the objectives of the strategic and budget plans. Within
its structure, the area of support services is reviewed to
29
The Leukaemia Foundation celebrated a Top 10 finish
in the PwC Transparency Awards in 2013 – for the third
successive year.
Being a Top 10 finalist in the $5 million to $30 million
category for a third time is an honour and welcomed
recognition of our firm belief in open reporting practices.
“The Australian public rightly expects charities to be
accountable and not just in the obvious financial areas,”
said Adrian Collins, CEO of the Leukaemia Foundation.
“Our reporting covers volunteer development and
recognition, environmental sustainability and more
comprehensive corporate governance disclosure.”
Our People
The Leukaemia Foundation’s
nationwide team comprises talented
and passionate staff skilled in a range
of areas. We expanded our workforce
this year to meet our increasing
Mission to Care commitments
and focused on training to build the
capacity of existing staff to be at their
best within their roles.
Our staff
As at 30 June 2013, we had 130 permanent full-time and
part-time staff. This reflected an increase of 11 people
from the same time the previous year. The majority of this
workforce increase was within the area of Mission to Care.
Developing our people
VISION
Number of People
People who manage our National Research
Program and related activities.
MISSION
Number of People
In looking to the future our staff development program will
focus on communication, supervisory and management
skills, alongside specific skills, to maximise the capabilities
of staff within their roles.
59
Nurses, social workers, psychologists and
administration staff, who operate free support
services such as emotional support, education,
information, accommodation and transport.
During the year we continued our staff development utilising
the training initiatives implemented in 2011-12.
Employees attending these training sessions have been
able to develop specific skills to benefit them and the
Foundation professionally, as well as from a personal
perspective.
2
48
FUNDRAISING
Number of People
Events teams, marketing and communications
professionals, and business development
managers, who raise money to fund the
Foundation’s work.
Compliance
Workplace Health and Safety (WHS) has been an area we
have focused on this year to ensure we are meeting our
obligations as an employer and have WHS practices in
place and fully documented. The Leukaemia Foundation
WHS Manual incorporates all of the required reporting
mechanisms.
Looking ahead
As part of our overall strategic direction for 2013-14, we are
in the final stages of completing the end-to-end review of
our Personnel Policies and Procedures.
We do not envisage any significant headcount increase in
the coming year as one of our key strategic focuses is to
operate in a more efficient and productive way. The recent
restructure of our fundraising team was made with this
in mind.
30
OPERATIONAL
Number of People
Management, IT and administration personnel,
who are the enablers for the whole organisation.
21
Organisation Chart
CHIEF EXECUTIVE OFFICER
Peter Cox (to October 2012) MFIA, MAICD
Adrian Collins (since October 2012)
LEUKAEMIA FOUNDATION AUSTRALIA BOARD
Robert Yeo (Chairman) VIC
Lucio Di Giallonardo (Treasurer) WA
Phillip Bradley (Secretary) NSW
Tim Ridgway (Board Member) SA
Darren Laarhoven (Board Member) QLD
Prof Ken Bradstock (Board Member,
Medical Advisor)
Adrian Collins (Board Member)
Warren Lippiatt (Board Member)
Brenda McGahan (Board Member)
AUDIT & RISK
COMMITTEE
Lucio Di Giallonardo
Darren Laarhoven
Adrian Collins
ETHICS COMMITTEE
Robert Yeo
Phillip Bradley
MEDICAL & SCIENTIFIC
ADVISORY COMMITTEE
SENIOR RESEARCH
FELLOWSHIP COMMITTEE
Chair: Prof Peter Klinken
GRANT REVIEW
COMMITTEE
Chair: Prof Andrew Boyd
FELLOWSHIP &
SCHOLARSHIP
COMMITTEE
Chair: Prof Geoff Hill
NATIONAL MANAGER
SUPPORT SERVICES
Anthony Steele
BN, Grad Cert Ed
NATIONAL MANAGER
RESEARCH &
ADVOCACY
Dr Anna Williamson
BSc (Ed), BSc
(Hons),
MSc, PhD, MFI
Prof Ken Bradstock
Assoc Prof Paula Marlton
Prof Andrew Boyd
Prof Geoff Hill
Dr Julian Cooney
Dr Byrone Kuss
Prof Angel Lopez
Dr Paul Ekert
Prof Rob Sanson-Fisher
Dr William Stevenson
Dr Andrew Wei
Ms Julie Wilkes
Dr Simon Harrison
Ms Tracey King
Mr David Briggs (Consumer Rep)
Mr Morgan Atkinson (Consumer Rep)
Mr Russell McGowan (Consumer Rep)
Ms Anne Hodgson (Consumer Rep)
NATIONAL MANAGER
EVENTS &
COMMUNITY
FUNDRAISING
Dave Simms
BA (Hons) Comms
NATIONAL MANAGER
MARKETING &
COMMUNICATIONS
STATE GENERAL
MANAGERS
Tania Cavaiuolo
BMus, Grad Cert Mktg,
AMAMI, MFIA
Christine McMillan
(NSW/ACT)
DipAppSc, BBus,
Master of Business
Simon Matthias (SA/NT)
BMgt (Mktg), MFIA
Stephanie Hechenberger
(VIC/TAS) MFIA
Carolyn Turner (WA)
BEc, Japanese Studies,
AICD
31
NATIONAL MANAGER
FINANCE/
ADMINISTRATION
Sally Trestrail
BBus (Accy)
Financial Overview
We grew our recurring revenue by $2.3 million in 2012-13, with $1.4 million of this
growth coming from World’s Greatest Shave.
Financial performance
Operating expenses
The financial performance is summarised from extracts from
the audited financial statements of the Foundation for the
year ended 30 June 2013 in the table across. Where relevant,
performance has been compared with the budget for the year.
Operating expenses were lower than the previous year,
however higher than budget. A new lease on premises
was entered into in Melbourne, which accommodates
the administration, fundraising and support services staff
previously located in a number of locations. These premises
allow for projected growth, and have facilities to run education
programs in-house.
Operating revenue
Recurring revenue grew by $2.3 million during the year, with
$1.4 million of this growth coming from World’s Greatest Shave.
This growth is attributable to effectiveness of marketing and
fundraising strategies, and the growth of online fundraising.
Other fundraising and general revenue grew by $1 million,
however was under budget by $1.5 million. $500,000 of this
adverse variance represented a bequest that was deferred.
The Foundation continues to invest in new fundraising events,
and this year added to its other major events, Light the Night
and U.G.L.Y. Bartender of the Year, with the pilot Sunflower
Club campaign.
Fundraising expenses
The development of new events requires investment, and the
cost of fundraising as a percentage of revenue is higher than
for a mature campaign. This had an impact on our fundraising
costs this year, with fundraising expenses as a percentage of
recurring revenue increasing to 35% from 31% in the prior year.
32
The Foundation continues to invest in and develop its new
database and has implemented S360 during the year. This
system is tailored for the not-for-profit sector to enable
improved donor management, and data collection of support
services activities nationally. We believe this will deliver
significant benefits in the way we provide services and the
quality of our reporting, as well as providing a strong basis on
which to increase fundraising revenue.
Research expenditure
The National Research Program is a key element to the
Foundation’s Vision to Cure and research expenditure
increased by $473,000 during the year, however was under
budget by $344,338. This underspend of budget was due to
delays in the commencement of research grants, and these
commitments have rolled into the following financial year.
Additional increases in research funding have been budgeted
for this coming financial year, with the level of expenditure set
to exceed $4 million.
Financial Overview
Support services expenditure
The facility also will include offices for support services,
administration and fundraising staff. The capital investment in
the project during the year was $5.1 million.
Expenditure on the Foundation’s Mission to Care activities
increased by $600,000 for the year. These activities are
delivered by specialised support service co-ordinators.
The completion of this complex underpins the Foundation’s
ability to continue to provide this important support for regional
people with blood cancer long term, and will reduce our
expenditure on future overheads.
The Foundation budgeted to increase our resources in this
area, however as these staff have specialised skills and
experience, recruitment took longer than anticipated. Further
increases in our expenditure on patient support of $1.4 million
are budgeted for 2013-14.
Bridgestone Australia Leukaemia
Foundation Village
In November 2012, the Foundation entered into a funding
agreement with the Commonwealth Government through its
Regional Development Australia Fund (RDAF). This agreement
delivered $1,958,280 million in revenue during the financial
year, with a further $1,958,280 to be received in 2013-14.
These funds have been used in the construction of an
accommodation village in Adelaide, for people from regional
areas who need to access treatment in the city.
Recurring
Revenue
% of
Profit and Loss
World’s Greatest Shave Other fundraising and general revenue
The strategy of developing accommodation villages close
to major treatment centres is one the Foundation is keen to
continue, while maintaining and expanding existing support
levels and investment in research. This can only be achieved
by accessing revenue sources that would not be available
without a capital project. These revenue sources include
government and foundation grants specifically directed to
capital projects, and capital campaigns.
Bank: National Australia Bank
Auditors: Ernst & Young
Lawyers: Tresscox Lawyers
Actual
2013
$
Budget
2013
$
Variance to
Budget
$
Actual
2012
$
61
15,119,820
13,697,000
1,422,820
13,752,926
27
9,591,803
11,044,851
(1,453,048)
8,594,988
24,711,623
24,741,581
(30,228)
22,347,914
Total recurring revenue
Less fundraising expenses
35
(8,666,414)
(9,596,360)
920,946
(6,870.646)
Less operational support 8 (2,083,800)
(1,531,590)
(552,210)
(2,969,831)
Recurring revenue after fundraising
and operational support expenses
13,961,409
13,613,901
347,508
12,507,437
Less research grants (3,557,772)
(3,902,110)
344,338
(3,085,373)
(8,334,866)
(8,861,791)
526,925
(7,734,330)
(11,892,638)
(12,763,901)
871,263
(10,819,703)
850,000
1,218,771
1,687,734
(9,711)
-
(9,711)
(315)
1,958,280
-
1,958,280
-
-
249,377
-
14
Less patient support
34
Total expenditure on research and
support Surplus before non-recurring income
and interest adjustments
8
Less interest expenses
Add grant - Regional Development Aust Fund
Add gain on sale of land and buildings
Add other income
Net surplus for the year
*Recurring
2,068,771
249,377
80,492
4,347,209
-
850,000
80,492
3,497,209
1,687,419
revenue represents revenue that is part of the normal ongoing operations of the Foundation. Revenue that is considered to be
non-recurring has been shown as a separate line item under expenses.
33
Key Financial Results
2010
Revenue
$18,497,171
2011
$19,519,845
2012
$22,347,914
2013
$26,999,772
2014
$28,276,399
2010
Cost of
fundraising
$5,953,595
2011
$5,903,141
2012
$6,870,970
2013
$8,666,414
2014
2010
Administration
costs
$9,379,547
$2,630,839
2011
$2,706,200
2012
2013
2014
$2,969,831
$2083,800
$2,154,662
2010
Operating
surplus
$8,527,750
2011
$9,912,737
2012
$12,507,114
2013
$16,249,558
2014
Research
grants
Support
services
expenses
2010
$16,742,191
$2,552,188
2011
$3,070,359
2012
$3,085,373
2013
$3,557,772
2014
$4,090,727
2010
$6,601,409
2011
$7,227,624
2012
$7,734,330
2013
$8,334,866
2014
2010
Final
surplus
2011
2012
2013
2014
34
$9,758,398
$754,708
$609,103
$1,666,612
$4,385,356
$2,893,520
How you can help
Great things happen when Australians give.
People with blood cancers and related blood
disorders, their families and carers need support.
Give money
By making a donation today, you help us to improve the quality of lives
of Australians impacted by blood cancer and to fund research into better
treatments and cures. Make a secure online donation at
www.leukaemia.org.au, talk to your employer about workplace giving,
or talk to us about leaving a gift through your Will.
Give support
Hundreds of great events are held around the country throughout the year
to raise funds for our free support services and to invest in research. Why
not join an event, meet new people and help raise vital funds?
Give time
From driving people to and from treatment, maintaining our
accommodation centres or providing administration support, volunteers
are crucial to helping us achieve our goals.
Give strength
Our business partners share in our achievements. There are many ways
we can work together to create long-term results – from focusing on a
single event, to workplace giving, to a multi-tiered year round program.
Give commitment
We want to grow our membership base. For just $10 per annum, you can
become a member with the ability to elect board members, provide input
into our future direction and receive member updates.
Give blood and marrow
Many people with blood cancers and related blood disorders need blood
products regularly to sustain them. Bone marrow (stem cell) transplants
can cure some blood cancers. Visit www.donateblood.com.au and
www.abmdr.org.au to find out more.
35
freecall: 1800 620 420 | facebook.com/LeukaemiaFoundation | www.leukaemia.org.au
36

MYELOMA LEUKAEMIA LYMPHOMA RELATED BLOOD DISORDERS

Transcription

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