Reflections on the Broad Brush Survey (BBS) research methodology
Transcription
Reflections on the Broad Brush Survey (BBS) research methodology
Reflections on the Broad Brush Survey (BBS) research methodology; a rapid, qualitative, mixed-method set of research activities used to inform a community based randomised controlled trial HTPN 071 (PopART). V1,2, G3, K3 , H1,4 , N3, P3, B1, S5, 1Zambia AIDS-related Tuberculosis Project (ZAMBART), Lusaka, Zambia; 2Department of Global Health and Development, Faculty of Public Health and Policy, London School of Hygiene and Tropical Medicine; 3Desmond Tutu TB Centre, Department of Paediatrics and Child Health, University of Stellenbosch; 4Department of Clinical Research, Faculty of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine; 5Imperial College London; 6Department of Infectious Disease Epidemiology, Faculty of Epidemiology and Population Health, London School of Hygiene and Tropical Medicine; 7MRC/UVRI Uganda Research Unit on AIDS J4, Bond Hoddinott Abrahams Ayles Beyers Bock Chiti Fidler Hargreaves 6 3 1 1 2,7 1 Hayes R , Mantantana J , Musheke M , Ndubani R , Seeley J , Simuyaba M , Simwinga M1,2, Viljoen L3 Contact: [email protected]; +260 211 254 710 BACKGROUND BBS FINDINGS BBS (Broad Brush Surveys) are a set of mixed-methods qualitative research activities adapted to rapidly identify key community features and community perceptions and experiences to inform community randomised trials. The Broad-Brush Surveys were efficient at gathering data to inform three broad themes: (1) Data to describe research communities in terms of key similarities and differences compared with other research communities (meta-indicators) (2) Data explaining community members’ understandings, experiences and attitudes toward HIV (3) Data informing anticipated barriers and catalysts for implementing the intervention under evaluation as well as the research evaluation. See FIGURE 1. BBS Findings The BBS process and outputs described here were undertaken in 21 communities (12 in Zambia and 9 in South Africa) prior to the implementation of a community randomised, controlled trial, HPTN 071 (PopART). HPTN 071 (PopART) evaluates the impact of a multi-component HIV prevention intervention, including universal HIV testing and treatment, on HIV incidence measured at community level. SEQUENCE OF RESEARCH ACTIVITIES Observations: MMC Services, STI services, ART clinic, VCT, ANC, Entry/Exit Points, Churches, Weekend/night observations, Significant events, HIV 'hot spots' CHALLENGES AND LESSONS LEARNED FROM BBS METHODOLOGY Challenge Lesson learned • Recruitment challenges (eligibility criteria, expectations of incentives, research mistrust and fatigue) and low participant turnout • Participants reluctant to participate because of suspicions of the type of information sought • • Managing large qualitative datasets in a short time • • Indexing of activities through photos Brief summaries of research activities immediately after each event used for rapid analysis • Site entry into communities • Adapting BBS sequence of research activities (South Africa) Leaning on previous relationship with communities (Zambia) • 12 Days • • DATA COLLECTION SUMMARY Activities completed in South Africa and Zambia (number of group discussions, number of interviews with key informants, number of observation activities) Number of Group Discussions (n) Activity Zambia South Africa Total Group Discussion: Participants Group Discussion: Participants (n = x women) Key Informants Key Informants • Flexibility in applying research methods: when, where, how many, mixed groups Improvised on-the-spot group discussions with available community members Work with local research assistants to gain community confidence(Zambia) Additional explanations of research aims • Local community tensions (political tensions/expectations) • Negotiation with various gatekeepers and neutrality • Number of activities per discussion seen as time-consuming and leading to fatigue • • Adapting discussion guide Limiting number of activities, selecting most relevant per activity or per group Observations (n = x women) 82 875 538 65 29 140 48 232 155 30 22 63 130 1107 693 95 51 203 Improvised research setting: Group discussion in community household RESEARCH ACTIVITIES Improvised research setting: On-the-spot group discussion in public space Different activities as part of observations and discussions 1 2 3 OUTPUTS Site specific reports (summative matrix reports, short community reports, detailed narrative reports) Technical report Presentations (internal presentations; community dissemination; posters and oral presentations) 5 4 CONCLUSION 6 9 7 8 1. Market observations 2. Wealth, poverty and risk ranking (character card) activity 3. HIV prevention: Concept mapping 4. ‘What kind of place is this?’ 5. Community mapping 6. Character cards 7. HIV-timeline 8. Transect Spiral Walk 9. Transect Spiral Walk For more information, visit www.HPTN.org or follow us: Facebook: HIVptn Twitter: @HIVptn BBS has been successfully adapted to be embedded in community randomised controlled trial design and practice. BBS proved effective, efficient and robust in producing rapid and comparative social research findings on HIV experiences and the socio-economic and structural realities of a large number of community sites relevant to trial implementation and future social research within the trial. Initial feedback has highlighted key catalysts and barriers that have a bearing on successful implementation of the trial to key implementers and local stakeholders and recommendations has been made. ACKNOWLEDGEMENTS HPTN 071 is sponsored by the National Institute of Allergy and Infectious Diseases (NIAID) under Cooperative Agreements UM1-AI068619, UM1-AI068617, and UM1-AI068613, with funding from the U.S. President's Emergency Plan for AIDS Relief (PEPFAR). Additional funding is provided by the International Initiative for Impact Evaluation (3ie) with support from the Bill & Melinda Gates Foundation, as well as by NIAID, the National Institute on Drug Abuse (NIDA) and the National Institute of Mental Health (NIMH), all part of NIH. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIAID, NIMH, NIDA, PEPFAR, 3ie, or the Bill & Melinda Gates Foundation. The authors thank all the research participants and their families, the research communities and their religious, traditional, secular, and civil leadership structures, and volunteers in the community advisory board structures. 20th Presented at the International AIDS Conference Melbourne, Australia July, 24 2014 Poster Number: THPE 214