Mountainside - Children`s Specialized Hospital
Transcription
Mountainside - Children`s Specialized Hospital
A world where all children can reach their full potential. 2 Thanks for choosing Children's Specialized Hospital 3 Register today for the free My Children’s Specialized Patient & Family Portal! Ask a Registration Representative for your patient code. www.my.childrens-specialized.org New features! • Request prescription refills online to be sent to your pharmacy • Schedule follow-up appointments online You can also: • • • • • Pay bills online Physician and therapy reports Patient medications, vitals, allergies, and history Monitor upcoming appointments Access patient records from other providers 4 Pediatric Primary Care is a family-centered medical home for children with special healthcare needs to keep you at the center of your child’s care. Pediatric Primary Care provides children with special healthcare needs, and their siblings, outstanding family-centered health care. Our practice strives to address the developmental and medical needs of children, in addition to behavioral health services. Pediatric Primary Care is now open at both our Mountainside and Hamilton locations: Mountainside: 908-301-5534 Hamilton: 609-631-2811 5 We can provide free or reduced costs for healthcare services as a benefit to our families! The CSH Benefit Fund is not funded through the state and is not limited to lower income families • All families should apply, even those with Medicaid or private insurance • Qualifying families can receive up to 100% of financial coverage per child for inpatient and outpatient services at all locations • Amount provided based on family size, household income, and assets For more information, contact 908-233-3720 ext. 5193 or visit www.childrens-specialized.org/BenefitFund 6 In our continued and ongoing efforts to streamline appointment registration and check-in processes, Children’s Specialized Hospital implemented a tablet-based registration process at our locations. Our goal is to upgrade your appointment registration experience. Please be assured that our registration staff have been trained and will be available to assist and support you. 7 To verify that demographic data is correct To open your account so that the doctor or therapist can document the appointment By registering, your doctor or therapist is paged to let them know that you are here and available to start your appointment. 8 We offer services in the following locations: • Bayonne • Clifton • Egg Harbor Township • Fanwood • Hamilton • • • • • • New Brunswick Newark Roselle Park Warren Toms River Mountainside 9 “We use your positive feedback to make positive changes at our hospital each and every day.” We need your feedback. Please take a few minutes to fill out the Press Ganey customer satisfaction survey coming to your home. 10 Provides dignified and tender, loving care for children with long-term medical needs. • • • • • • Specialized medical, respiratory, therapeutic and nursing care for severely medically fragile and cognitively impaired children Compassionate care for children ages birth to 21 Trusted round the clock care (24/7) Two locations: Mountainside and Toms River Award-winning, Patient-and-Family Centered care hospital Newly renovated Mountainside center “You have provided excellent care and kept our daughter safe and healthy where we could not manage her complex medical needs ourselves.” - Pediatric Long Term Care parent (2014) For information please contact: Jeannie Brooks at 732-258-7139 or [email protected] 11 Day care services for children with special medical needs. Our highly trained staff include: • Medical director and program director • Pediatric nurses and nursing assistants • Teacher and social worker • Physical, occupational and speech therapists • Nutritionist and pharmacist for consultation Eligibility: • Ages 3 months - 5 years, who are Managed Medicaid beneficiaries • Nursing services required for medically fragile/technology-dependent children with ventilators, tracheostomies, tube feedings, diabetes, seizure disorders, etc. “My son is always a priority. His safety and well being are always put first.” - Pediatric Medical Daycare parent (2013) For admission information please contact: Lisa Lefano at 908-259-3302 or [email protected] 12 We not only employ the most compassionate doctors, but also the most highly qualified physician specialists. We provide general pediatric care for children with special healthcare needs as well as specialists in the areas of pediatric psychiatry, pediatric neurology, developmental and behavioral pediatrics, and orthopedics. 13 • If your child has Medicaid and you are in need of medical transportation, you may contact LOGISTICARE at: 1 -866-527-9933 • If you currently have transportation through LogistiCare and are waiting too long for pick up, you may call the WHERE IS MY RIDE HOTLINE at: 1-866-527-9934 Do not call the transportation company, call LogistiCare directly. 14 15 Sample Survey 16 Please help us out to let us know what we are doing well and which staff members showed both skill and kindness… your opinion is very important to us. The responses we receive from our satisfaction surveys drive the direction we take in enhancing our services and processes. 17 When you receive your Children’s Specialized Hospital Satisfaction Survey please take the time to complete it and return it to us in the envelope provided. 18 If you feel that for any reason your visit today does not deserve the highest score of 5, please ask to speak to a supervisor, so we can earn your 5 today. 19 Your child's therapy is a team effort between the child, the family and the therapist. Together you will develop goals and a plan for treatment. Partnering with you and having you part of the session is the best way to achieve this goal. 20 Thank you, for taking the time to complete your Children’s Specialized Hospital Satisfaction Survey. We appreciate the feedback. Amy B. Mansue President and CEO 21 Community Recreation Program Coordinator Mountainside Assoc. Coordinator for Autism Fanwood Ambulatory Care RN Mountainside Team Lead-PAS IVA&A Mountainside Family Faculty New Brunswick 22 The New Jersey Department of Health and Senior Services recently established an Autism Registry to help plan services for people aged 1-21 years with an autism spectrum diagnosis. Ask your physician or mental health therapist for more information. 23 “The purpose of this program is to ensure that safe lifting and movement of patients is practiced as part of an overall culture of safety. Talk to your child’s nurse or therapist if you have any questions regarding the safe handling of your child or our policy on Safe Patient Handling. We welcome the opportunity to support you as you care for your child. Proper lifting will help keep your back healthy and pain free.” -State of NJ mandatory “Safe Patient Handling” Act effective 1-1-2011 24 A tool to foster successful collaboration between therapists and families during therapy • Real-time documentation will empower me to participate in my child’s therapy sessions. We will discuss my child’s progress toward his/her plan of care. As we chart together we can problem solve barriers and celebrate successes • Real-time documentation will empower me to partner with therapists in discussing and charting my child’s progress in therapy 25 Thanks to our Medical Library, books and journals are available online for reading in the comfort of your own home. 1. 2. 3. 4. Visit http://opac.libraryworld.com/opac/home To search for a book, type in “eBook” To search for a journal, type in “journal” Browse away! 26 Our Family to Family Newsletter contains a variety of information on events, workshops, family resources and fun things to do with your family, as well as, happenings at Children’s Specialized Hospital. To join, visit www.ChildrensSpecialized.org and click on “Sign up for our e-mail list!” link located in the lower right hand corner of the home page. 27 Has your child received a new sertraline prescription or recently started psychotherapy to treat their psychiatric condition? If so , you may be interested in a new study that we are conducting. Please contact 732-914-1100 X 3719 to learn more about this study. 28 Take action for the safety of your family and make sure you have working smoke alarms and carbon monoxide detectors. It's the first step to a safer home. • Count your smoke alarms: Ensure there's at least one smoke alarm less than 10-years-old installed on every level of your home. • Change your batteries: Change smoke alarm and carbon monoxide detector batteries annually. • Check alarms and detectors: After inserting a fresh battery in each smoke alarm and carbon monoxide detector, push the safety test button to ensure they work. Conduct this test monthly. • Replace smoke alarms: Replace smoke alarms every 10 years and have a combination of both ionization and photo electric smoke alarms to keep you alert to all types of home fires. • Change flashlight batteries: Keep flashlights with fresh batteries at your bedside. • Get the family involved: Develop and practice a home fire escape plan. Make sure family members, in particular children, know what the alarms and detectors sound like and what they should do if they go off. 29 30 Tuesday, March 8, 2016 Since beginning its National Pancake Day celebration in 2006, IHOP restaurants have raised nearly $20 million to support charities in the communities in which they operate. On March 8, 2016, from 7 AM to 7 PM, guests from around the world will celebrate the eleventh annual National Pancake Day at participating IHOP restaurants and enjoy one free short stack of Buttermilk pancakes*. In return for the free pancakes, guests will be asked to consider leaving a donation for Children's Miracle Network Hospitals© or other designated local charities. 31 Has Children’s Specialized Hospital made a difference in your child’s life? Walk n’ Roll to give back to the hospital that helped your family! Celebrating 125 years of serving children with special healthcare needs! Saturday, May 21 Johnson Park, Piscataway, NJ Sign up and register your team today! childrens-specialized.org/walknroll 32 • • • • • • Transition to Adulthood • March 15, 6:30 – 8:30 pm / RSVP by March 8 Social Skills • April 19, 2016, 6:30 -8:30 pm / RSVP by April 12 Sleep Problems • May 10, 6:30 - 8:30 pm / RSVP by May 3 Basic Rights in Special Education • June 14, 6:30 -8:30 pm / RSVP by June 7 Feeding Issues • July 5, 6:30 - 8:30 pm / RSVP by June 28 Safety Issues • August 9, 6:30 - 8:30 pm / RSVP by August 2 All trainings will take place at: Children’s Specialized Hospital 150 New Providence Road Mountainside, NJ 07092 RSVP to Aditi Doshi at [email protected] or 908-301-5466 33 On Sunday March 6, for two hours prior to the mall opening, 100 Simon Malls across the country will be offering the Caring Bunny Program! Register today to schedule an appointment with the Easter Bunny in a fun and sensory-friendly environment at this private event just for families with special needs! New Jersey Ocean County Mall 1201 Hooper Avenue Toms River, NJ 08753 To register or find additional locations: http://www.simon.com/an-extra-special-bunny 34 35 Big Apple Circus Embraces Autism See high-flying acrobats, lovable clowns, the Wheel of Wonder and more! The show includes the same world-class artistry, with a shorter running time, adjusted lights & sound, a calming center, and plenty of folks to assist in creating a memorable time for you and your family! When: Wednesday, March 2 Time: 11:00 am Where: TD Bank Ballpark, Bridgewater, NJ For more information or financial assistance, please call (646) 616-6816 or visit www.bigapplecircus.org 36 Galumpha Featuring three fearless performers who combine acrobatic movement, physical comedy, and inventive choreography in gravity-defying poses and spectacular feats of physical strength. Crossroads Theater 7 Livingston Avenue New Brunswick, NJ Sunday, March 6 2pm and 5pm For tickets call: Dr. Jill Harris at 908-301-2525 Details may be found at www.statetheatrenj.org/galumpha 37 Employees from the Middlesex County Family Court will give a presentation on how to establish custody and child support for a minor child in a nondissolution case. Middlesex County Probation Child support staff will speak about enforcement of child support orders and Uniform Interstate Family Support Act (UIFSA) cases. Because this is an informational workshop only, personal cases cannot be discussed or resolved. Where: New Brunswick Public Library, 60 Livingston Avenue in New Brunswick, NJ When: Tuesday, March 8, 2016 Time: 5:30 pm to 7:30 pm The workshop is open to all Middlesex County residents. Participants are asked to register by calling Luis M. Hernandez at 732-519-3344 or by email at [email protected] 38 Within the Department of Human Services, the Division of Disability Services (DDS) provides a single point of entry for those seeking disability-related information in New Jersey. DDS works to streamline access to services and information that promote and enhance independent living for individuals with all disabilities by facilitating coordination and cooperation among local, county, and state government agencies. Please visit: http://www.nj.gov/humanservices/dds/home/ The resource guide is available in both English and Spanish 39 Event held at The Stone Pony in Asbury Park. Entertainment, refreshments and definitely a lot of purple will be provided! OPEN TO ALL AGES! • When: Sunday, March 13, 2016 1:00 p.m. - 5:00 p.m. • Where: The Stone Pony 913 Ocean Ave. Asbury Park, NJ 07712 Contact: Jacqui Moskowitz, Director of Resource Development [email protected] or 800-336-5843 40 This FREE, inclusive sports play program helps children ages 2 through 7 to: Improve gross motor skills, Celebrate what your child CAN do, Improve social and language skills, Learn to PLAY with purpose, Develop skills for future participation in sports Sundays, April 24 - June 5 / 9:00 - 10:30 am Raymond Chisholm Community Center 100 S. Springfield Ave Springfield, NJ 07081 Register at: www.2016springsummeryap.my-trs.com For questions, please contact: Andrea Moore | [email protected] | (609) 896-8000, ext. 265 41 Once a month Sky Zone Pine Brook and Sky Zone Allendale will open exclusively for our jumpers with special needs. We welcome adults and children with any and all special needs to join us. We will dial down the noise, increase the staff ratio and limit the capacity for the enjoyment of our special guests. One companion may participate for free with each paying jumper. Sky Zone Pine Brook 60 Chapin Road Pine Brook, NJ Sky Zone Allendale 80 Commerce Drive Allendale, NJ 973-396-4001 SKYZONE.COM/PINEBROOK 2nd Monday of every month Time: 3:30pm-6:30 pm 201-574-1800 SKYZONE.COM/ALLENDALE 4th Monday of every month Time: 4:00pm-6:30pm 42 Workshop sessions include: • • • • Parent Perspective on Planning Guardianship and Decision Making Applying for SSI and Medicaid Getting Ready for College When: 9am – 1pm • • • • March 12 Burlington County ETC, 53 Academy Dr. Westampton, NJ April 16 Stockton Univ., 101 Vera King Farris Dr., Galloway, NJ April 30 150 Bleeker St., Newark, NJ May 7 Special Olympics NJ Campus, 3 Princess Rd., Lawrenceville, NJ For more information please call 732-828-0972 43 This workshop will feature: Current research in the field of autism and brain development and implications for intervention Relationship Development Intervention, a next generation developmental approach to autism The latest developments of ®RDI including the new Dynamic Intelligence Curriculum which teaches students how to learn from their own experiences to prepare for future challenges and accomplish personal goals Where: Kean University, STEM building auditorium When: May 14th &15th; 8am-4pm Contact Kristine: [email protected] or 908-444-2745 44 Special Evenings at Sam's: SEAS events or Special Evenings at Sam's provide fun, judgment-free evenings for individuals with special needs to enjoy with their family and friends. Events at Sahara Sam’s are designed with the unique challenges of special needs individuals in mind. Upcoming events: March 11, 2016, from 6-9 pm May 13, 2016 from 6-9 pm October 7, 2016 from 6-9 pm November 18, 2016 from 6-9 pm SaharaSams.com West Berlin, NJ 856-767-7580 45 SAND or Special Abilities Nights at Diggerland, USA offer the exciting chance to dig, drive and ride real construction equipment while keeping the unique challenges of individuals with special needs in mind. SAND events are exclusive to the special needs community and are hosted at America’s ONLY construction theme park. Upcoming events: April 22, 2016, from 5-8 pm June 3, 2016 from 5-8 pm September 9, 2016 from 5-8 pm DiggerlandUSA.com West Berlin, NJ 856-768-1110 46 KIDZ WIN is a unique wellness center that specializes in fitness classes for children with special needs. KIDZ WIN is owned by two experienced, licensed physical therapists with over 35 years of combined practice. Their sincerity, dedication and passion towards helping all types of children achieve their highest level of function and self confidence will shine through in each and every class. LOCATION KIDZ WIN shares space with the Power Yoga Center 667 Hwy 35, Middletown NJ (Part of Colonial Plaza) 848-218-0026 or 848-218-9449 47 The Dragonfly Program is for young adults 18-26 with special/adaptive needs and may include Swim Lessons, Boxing/Striking and Yoga classes. The Dragonfly Program has been developed with the proceeds from Greta’s Run, a 5K Run/Walk/Roll founded in 2013 by childhood friends of Greta Schoenemann, a Westfield High School freshman who passed away from injuries sustained on 9/11/02. The Westfield Area Y accepts Easter Seals. Contact Jill Koerber, Special Needs Coordinator/Recreation Therapist, at [email protected] or 908-233-2700 x417 or visit www.westfieldynj.org for program information. 48 Autism Spectrum Disorder Navigating the Journey Free Workshop for Parents and Caregivers! Introduction to Autism Spectrum Disorders, improving communication, handling behavior, social concerns, sensory and sleep issues, medication, feeding concerns, and community support. Hamilton Mountainside Toms River Friday, April 8, 2016 9:15am to 3:45pm Please RSVP by April 1st Friday, May 6, 2016 9:15am to 3:45pm Please RSVP by April 29th Thursday, May 19, 2016 9:30am to 4:00pm Please RSVP by May 13th Newark Friday, April 15, 2016 9:15am to 3:45pm Please RSVP by April 8th Newark-Español Viernes, 15 de Abril de 2016 9:15 a 3:45 Confirme antes del 27 de Mayo Call 1-888-CHILDREN (244-5373) Ext. 2482 or email [email protected] 49 South April 2, 2016 Atlantic Cape Community College C Building, 5100 Black Horse Pike, Mays Landing, NJ 08330 North April 16, 2016 Leaguers 405-425 University Avenue, Newark, NJ 07102 Central April 30, 2016 Neptune Middle School 2200 Heck Avenue, Neptune, NJ 07753 For more information, visit www.spannj.org 50 Autism Spectrum Disorder Setting Out on the Journey Support Group for Families of Children Diagnosed with Autism Hamilton March 24th June 23rd Mountainside March 22nd June 21st Toms River March 29th June 28th 1-888-CHILDREN (244-5373) Ext. 2482 or email [email protected] 51 This workshop will discuss: • Causes of misbehavior • Setting limits and dealing with tantrums • Managing sibling conflicts Register Now! Cost is $99 – registration and prepayment is required. To register, please visit: www.childrens-specialized.org/events Hamilton, NJ: • Every Wed. 2/24 – 4/6 (except 3/23) with a follow up on 6/8 • 6:30pm – 8:00pm Toms River, NJ: Mountainside, NJ: • Every Wed. 3/23 – 4/27 with a follow up on 6/23 • 4:30pm – 6pm • Every Mon. 3/21 – 4/25 with a follow up on 5/23 • 7:00pm – 8:30pm 52 The New Jersey Dare Devils (NJDD) was started in 2002 by the mother of a child seeking to find a physical outlet for her child with autism. Today there are 50 boys and girls ages 6 to 28, with various special needs, playing for the NJDD at the Richard Codey Arena in West Orange NJ. Supporting these special hockey players are 12 adult coaches and over 75 junior/student coaches who are local youth hockey players helping to instruct the NJDD players in the intricacies of hockey. To learn more about joining please visit: www.njdaredevils.net 53 The Center for Contemporary Art’s Art for Children with ASD and Special Needs class provides needed access to creative art experiences for children with Autism Spectrum Disorder and other special needs to provide an invaluable avenue of self-expression for children with limited or no verbal communication. The Center for Contemporary Art has purchased the area’s first wheelchair accessible pottery wheel, removing barriers to participation in its growing ceramics program by students in wheelchairs and those with back problems who require an upright position. For further information or to register for a class, please visit The Center for Contemporary Art online at www.ccabedminster.org or call 908-234-2345. Located at 2020 Burnt Mills Rd., Bedminster, NJ 54 The Bounce Factory's "Gentle Jump" program is designed to provide jumpers with special healthcare needs the time, support and environmental modifications to experience all that The Bounce Factory has to offer. The staff has been trained by Missing Piece Awareness Inc. to understand some of the challenges that individuals and families with autism and other special needs face on a daily basis. They have been taught to not only anticipate the unique needs of jumpers but to support and motivate them in this wonderful environment! When: Tuesdays 4pm – 6pm Where: The Bounce Factory 150 Mt. Bethel Road Warren, NJ 07059 Please call 908-647-5867 to reserve your spot! 55 People & Families, the NJCDD's nationally recognized magazine, focuses on issues of importance to the developmental disabilities community in New Jersey. Published four times a year, the magazine also provides vital up-todate information for families and self advocates; highlights organizations, programs, and individuals that make positive changes in the developmental disabilities community; and shares noteworthy developmental disabilities stories from across the state and across the nation. For more info, visit www.njcdd.org 56 Kessler Foundation has teamed up with Children’s Specialized Hospital to research new ways of helping to improve the lives of children. Four Studies: • Advances in Treatment: Examining the Effectiveness of a Group Behavioral Intervention • Study Skills Training to Improve Academic Learning After Pediatric Traumatic Brain Injury • Applying CogMed to Improve Working Memory Abilities After Traumatic Brain Injury • The Examination of Emotional Processing in Children with Traumatic Brain Injury or Autism To learn more, contact: Angela Roa 973-324-8453 / [email protected] Nancy Moore 973-324-8450 / [email protected] You will be compensated for your time. Study sites are available throughout New Jersey. 57 UCESC is pleased to announce that the first NJ state-supported Project Search High School Transition Program will be piloted in Union County, NJ beginning in the Fall of 2016! Recruitment for the first cohort of students will begin this Winter. The Project SEARCH Transition Program is a unique, business led, one year school-towork program that takes place entirely at the workplace. Total workplace immersion facilitates a seamless combination of classroom instruction, career exploration, and hands-on training through work site rotations. This special project is the product of a collaborative effort between UCESC, the NJ Division of Vocational Rehabilitation Services, and the NJ Division of Developmental Disabilities. For more information go to http://ucesc.org/ucesc/ or call 908-233-9317 58 • Located in Oldwick, NJ • An inclusive summer day camp open to children with disabilities and typically developing children ages 4 and older. • Children learn and practice basic riding skills, safety awareness and how to groom and take care of a horse. • Arts and crafts, games and activities are designed to teach campers about horses while keeping them active and happy. • Geared towards the beginner rider and an excellent introduction to riding in a safe and secure environment. • Both the camp counselor and riding instructor are PATH, International certified instructors, are trained in CPR and First Aid and have strong horsemanship backgrounds. • Camp enrollment is limited to ten campers per week. For more information or to register for camp, please visit the website at www.manestreaminc.org or contact Kathy Brennan Hart at 908-439-9636, ext. 203 or [email protected] 59 Horse Sense Therapeutic Riding Center 145 Easy Street, Howell, NJ 732-910-7855 • • • • Family owned and operated. Beginner Riding Lessons, Therapeutic Riding Lessons, Family Farm Experience, Team Building and Animal Assisted Activities; all custom tailored to your needs. Goal is to teach proper horse care and basic riding to everyone who likes horses, wants to own a horse or just be around horses. Horses can help build self-esteem, confidence and muscle tone, which can flow into every aspect of your life. Learn to relax and understand a horse just by participating in one of our programs. Horsemanship for people with special healthcare needs! 60 Camp Oakhurst opened its doors in 1906, and since then has been serving the community loyally. The Camp is open to not only for children, but teens and adults that have physical and developmental disabilities. Camp Oakhurst is a fully accessible camp for about 800 campers each summer. The 15 open acres are unbarred, allowing for easy wheelchair access throughout. The camp boasts a heated pool and campers participate in activities including cooking, baseball and off-camp trips! 111 Monmouth Road, Oakhurst, NJ 07755 212-533-4020 For more information, please visit www.nysh.org 61 FACES hosts weekly gatherings providing adults over 18 with the opportunity to share their stories & develop more connections with the community, with the help of peer mentors from Stockton University. WHERE: Atlantic County Family Service Organization, Suite 1, 950 Tilton Rd. Northfield, NJ 08225 WHEN: Thursdays, 6:30 to 8:30 PM PHONE: 609-822-7536: Leave a message for David or email him at [email protected] 62 FACES 4 Autism supports children, teens and adults on the autism spectrum and those who love them. Faces provides autism education and resources to families and educators in the South Jersey area. We are dedicated to improving the lives of individuals on the spectrum through social opportunities and programs that will foster self-advocacy, independence and dignity. FAMILIES OF AUTISTIC CHILDREN EDUCATION SUPPORT GROUPS is a 501(c)(3) non profit organization DBA F.A.C.E.S 4 Autism. FACES is an approved agency of the United Way of the Greater Philadelphia and Southern NJ Area. IRS approved Tax ID# 161620250 PO Box 2341, Ventnor, NJ 08406 609-412-3750 www.faces4autism.org 63 What: A comprehensive individually tailored to fit the needs of adolescents suffering from mental health issues: ie anxiety, depression, bipolar, ADD/ADHD. Where: 3635 Quakerbridge Road, suite 3, Hamilton, NJ Contact: Please call Theresa at 908-801-6700 ext. 6302 for more information regarding the services offered. Hours: 8 am to 4 pm We accept out of network coverage and Medicaid 64 Sensory Story time for Children of All Abilities What: Sensory Story time in an interactive and educational program for all children, but is especially designed for children with sensory integration challenges, and their families. The program combines books, songs, and movement to stimulate senses. Where: Scotch Plains Public Library When: First Saturday of every month, 9:30 am Learn more at www.scotlib.org 65 Our programs provide opportunities for children and youth with special health needs to stay active, grow, and socialize. Some of these programs include: • Adaptive Aquatics • Martial Arts • Summer camps • Friday Night Fever (Teen group) Register Today! Visit our website for details, schedules, and registration: www.childrens-specialized.org/recreation 66 A therapeutic aquatic experience for young children Our parent-child adaptive aquatics program is offered to children with special needs and their caregiver. These classes are designed to introduce children to the aquatic environment, provide opportunities for bonding, and teach water safety. • Ages: 18 months - 3 years old & one parent/caregiver • Location: Children’s Specialized Hospital in Mountainside • Schedule: 45 minute classes, once per week, 7 weeks Typically in the evenings during the week. • Registration: Visit our website for class schedules, more details, and to register! http://csh.recdesk.com/recdeskportal/ • 67 The Kohl’s Autism Awareness Community Hub is the only one-stop virtual resource for reliable information to use and share – helping build stronger, more inclusive communities. • Business Complex • Restaurant Row • Entertainment • Safety and and Arts Emergency Center Response Area • Medical Center • Schools and Childcare • Municipal Center • Shopping Complex • Neighborhood • Teen Center Visit and explore the community hub often, as practical resources about ASD will be added on an ongoing basis. All materials are free and downloadable. • Place of Worship • Recreation Center • Travel and Transportation Depot www.childrens-specialized.org/KohlsAutismAwareness This community service is made possible by the Kohl’s Autism Awareness program at Children’s Specialized Hospital. 68 Attend one of our FREE, quick developmental screenings for children ages 19-48 months and sharing valuable resources for parents curious about early childhood development. Each screening will take approximately 30 minutes and will include an interactive questionnaire and conversation between parent(s), child, and staff. For more information please visit www.childrens-specialized.org to register contact Amy Norton at 1-888-CHILDREN x8054 or Anorton@childrens specialized.org. Registration is encouraged. 69 Start a Stress Journal A stress journal can help you identify the regular stressors in your life and the way you deal with them. Each time you feel stressed, keep track of it in your journal, you will begin to see patterns and common themes. Write down: • What caused your stress (make a guess if you’re unsure) • How you felt, both physically and emotionally • How you acted in response • What you did to make yourself feel better Learn how to say “no” Know your limits and stick to them. Whether in your personal or professional life, refuse to accept added responsibilities when you’re close to reaching them. Avoid people who stress you out If someone consistently causes stress in your life and you can’t turn the relationship around, limit the amount of time you spend with that person or end the relationship entirely. *This slide was provided by a partnership with The Family Advisory Council and the staff of Children’s Specialized Hospital. 70 Attention Atlantic and Cape May Caregivers! A new Caregivers coalition is forming in the Atlantic-Cape May County Area. If you would be interested in participating, please contact Kyllian Warman at [email protected] or call 732-262-8020 71 The Family Support Center of NJ is pleased to offer an archive of past webinars to bring you information and education on your time and at your convenience. The Law and Disability’ Webinar Series • Presented by Attorneys of Hinkle, Fingles & Prior • Webinar Series Presented by Hillary D. Freeman, Esq. Please visit: http://www.fscnj.org/resources/webinars/ 72 FSCNJ has developed a new comprehensive website to help families who are dealing with the transition from school to work. “Transition Matters” can be accessed as a popular link on fscnj.org or through its own URL, www.transitionmattersnj.org. 73 Referrals and Services for Kids, Families, and Professionals Dealing with Tourette Syndrome New Jersey Center for Tourette Syndrome and Associated Disorders, Inc. 908-575-7350 www.njcts.org 74 Generations United has developed Grand Resources: A Grandparent's and Other Relative's Guide to Raising Children with Disabilities to equip caregivers, including those that provide full- and part-time care to relative children, with the national resources they need to help their children thrive, now and in the future. To download your free copy please visit: www.GU.org 75 AngelSense is a devoted community of families with special needs children. Team members are parents of special needs kids. They are happy to assist you with any concerns. • Monitor your child’s well-being, anywhere, anytime. • Text and email notification for every location change • Designed for children with special needs. Locate a lost child with a 10 second live location update Visit www.angelsense.com to learn more. A Safer World for Children with Special Needs 76 Autism & Wandering Project Lifesaver helps bring loved ones home. Project Lifesaver’s program helps thousands of families know that their loved ones have protection and safety should they wander. Visit www.autismbeacon.com for more information. 77 MetroWest ABLE has a number of teens who have completed a 5-week training course in learning to babysit for children with special needs, including CPR and First Aid certification. If you are interested in receiving contact information for these teens, please contact: Becca at [email protected] or 973-929-3129 78 Tommy Hilfiger Debuts Adaptive Clothing Line Tommy Hilfiger released a line of adaptive clothing on its website. The 22-piece children’s offering is comprised of items that look just like clothing in the company’s regular spring collection, but include magnets, velcro and other modifications to allow for easy on and off for kids with disabilities. All of the items are priced the same as the versions for typically-developing kids, the company said. For information and available pieces please visit www.tommyhilfiger.com 79 Downs Designs® Jeans are designed for the unique body shape of a person with Down syndrome. All jeans have no buttons, zippers or tags, a full elastic waistband, belt loops, mock fly and the denim is soft and stretchy. Our free try-on service promises a perfect! NBZ® Jeans are a standard men’s and boy’s size jeans, but made with our unique soft, stretchy denim. There is no button, zipper or tag, They have a full elastic waistband, belt loops, a mock fly and well tolerated by most who have clothing sensitivities. They are stylish and comfortable jeans that even women can wear! Call us with any questions at 877-390-4851 or 440-290-8903 www.downsdesignsdreams.org 80 This is the parent, educator, physician and therapist resource for special needs children. Take a look around, and don’t forget to read our blogs for the latest updates on parent workshops, events, networking opportunities and more! Please visit: http://americaspecialkidz.org/ 81 Volunteer Lawyers for Justice (VLJ) provides comprehensive legal services to economically disadvantaged adults, children and families in New Jersey through volunteer attorneys recruited and trained by VLJ. Programs include: Free legal counsel and advice Educational seminars on various legal matters Direct representation for at-risk individuals facing critical civil legal issues Volunteers include solo practitioners and partners, associates and administrative staff from law firms and corporations of all sizes throughout New Jersey and New York City. For more information please e-mail [email protected] 82 The Friendship Circle is a group that promotes activities for children and teens with special needs To learn more about the Friendship Circle visit www.friendsnj.com or call 732-536-2319. 83 The 24/7 Mom2Mom helpline and related services are now available to parents of children with special needs statewide. The free Mom2Mom helpline can be reached at 1-877-914-MOM2 Peer support via live online chat is also available at www.mom2mom.us.com 84 Your child may be eligible to join the ConnectMe Research Program! To learn more, visit www.ConnectMeProgram.com 85 You are invited to join the National Family Caregivers Association! • • Membership is free to all family caregivers Everyone who joins anytime from now through the end of November will receive a free Family Caregiver Toolkit and Planner Please visit www.nfcacares.org to join 86 Assistance for your child’s IEP can be found by going to www.Edlawcenter.org 87 Autism New Jersey’s Directory of New Jersey Schools serving Children with Autism Spectrum Disorders referral list is now available! To request a hard copy, please call 1-800-4-AUTISM. 88 Kaye-Lynn Dance Studio in Edison offers classes for children living with special needs! To learn more, please call (732) 548-8452 or visit http://www.kayelynndance.com/ 89 For information on how to obtain, borrow, and “try out” services, visit www.AssistiveTechnologyCenter.org 90 Has your child had an amazing recovery or experience at Children's Specialized Hospital? Would you be interested in sharing your story with others? Share it! Volunteers, donors and sponsors, want to hear first-hand from our families who can really explain what a difference our hospital makes. You and your family could be our next advocates – and AdvoKids! Please visit www.childrens-specialized.org to submit your story. 91 Is your loved one with a disability living in a supervised, supported or group setting, prepared in the event of an emergency? We are now offering New Jersey Council on Developmental Disabilities’ Emergency Preparation Training for People with Developmental Disabilities to residential organizations in Bergen, Essex, Hudson, Hunterdon, Middlesex, Morris, Passaic, Somerset, Sussex, Union and Warren counties. Please contact Lorraine D'Sylva-Lee at [email protected] for more information. 92 Be a part of a fun, engaging and no pressure group of friends with Asperger & PDD. High Functioning Autism Meeting weekly for fun social activities! For more information or to learn more, please visit http://autism.meetup.com/822/ 93 TryCAN is a local collaboration offering recreation programs for children with special needs all year round. Current programs include reading club, baseball skills, music, and social skills. For more information contact Kevin Taylor, TryCAN Coordinator at [email protected] or 908-277-1392 94 New Jersey Commission for the Blind Monmouth County Health Department Free Eye Screening Clinic Ages 3 years and up! Where: • Monmouth Health Department • 3435 Hwy. 9 Freehold, NJ 07748 When: • 2nd Monday of each month from 4 pm to 7 pm To make appointment call: • 732-431-7456 95 The Special Needs Program is designed to handle a multitude of pediatric developmental diagnoses. Utilizing a traditional form of martial arts, challenging, energy-packed lessons encourage students to increase flexibility, mobility, self control and much more in a social environment. Pediatric Martial Arts 20 Millburn Avenue Springfield, NJ 07081 Please visit www.pediatricmartialarts.com or call 973-467-3939 for more details. 96 Are You Raising a Child with Autism? Join Café Mom today and meet other moms of children with Autism, Asperger's or another disorder on the spectrum. Share advice and get support signs and symptoms, diagnosis, treatment options, school and early intervention, tantrums and meltdowns. To Register go to http://www.cafemom.com/ 97 “My Brother Charlie” written by actress Holly Robinson Peete and her daughter Ryan Elizabeth Peete Won for portraying life with a sibling who has autism) “Just Because” by Rebecca Elliott Honored for including a girl with multiple disabilities Look for this book to become available by the publisher in August of this year 98 A mother’s tragedy, terror and triumph through a child’s traumatic brain injury reveals the secrets of a mother’s soul as she faces the possibility of death or life-long disabilities of her child. First shocked with horror and despair after her son’s traumatic brain injury, Dixie Coskie and her family grow to find hope, healing, and even greater; love. Now available from the Brain Injury Association of America. 99 Helping children, adolescents and people of all ages with disabilities to reach their fullest potential Assists individuals of all ages who have developmental delays or disabilities. The organization provides services to youth, teens, young adults, and adults, including therapeutic recreation programs and support groups. FRA direct services are available to those in the greater Monmouth/Ocean County area. For more information call phone: 732-747-5310 or e-mail [email protected] 100 Kids Connect is designed to offer school age children with Autism the opportunity to attend a community-based, after-school program close to home. After school staff are given specialized training and support to successfully integrate these students into existing program typical after school programs, giving them an opportunity to spend time socially with their peers. Kids Connect is available to families eligible for Division services in Mercer, Monmouth, Ocean Hunterdon and Middlesex Counties only. Any one interested should contact their Division Case Manager for information. 101 • State-wide network of parents supporting families of children with developmental delays, disabilities, and special health needs • Offers emotional support and information, and resources • Provides assistance in learning the necessary skills to help parents face the challenges of raising their child 1-800- 372-6510 or [email protected] All information is kept confidential. 102 In an effort to spread awareness about workshops, conferences and other training opportunities the Family Support Center of New Jersey has launched the Training Calendar. We invite professionals to post information on activities, lectures, trainings, or other events on www.thetrainingcalendar.org. Families and caregivers are encouraged to view the trainings available in their area. 103 This site is intended to serve as a resource for persons in New Jersey who are seeking appropriate dental care for themselves or for family members who have developmental disabilities. For more information, visit: http://www.disabilityhealth.org/dental/links.html 104 The Special Olympics New Jersey Sports Complex is a one-of-a-kind facility, affording individuals with intellectual disabilities a place to come together to increase the quality and expand the reach of Special Olympics throughout New Jersey. • The Sports Complex is comprised of a variety of centers playing host to model programs, while at the same time providing direct services to athletes and families from throughout the state. • All programs are completely free of charge. For more information please visit: http://www.sonj.org/General/SportsComplex.php 105 Every 3 weeks a child dies from a television tip-over. Safety Tips Properly place your old TV. If you have a heavier, box-style TV, place it on a low, stable piece of furniture that is appropriate for the TV’s size and weight. Secure your flat-panel TV. Be sure your flat-panel TV is properly secured with a wall mount that has a safety certificate. Recycle your TV. To find a location near your home that safely recycles, visit www.GreenerGadgets.org 106 Friends Like You. Friends Like Me is an educational community outreach initiative of Children's Specialized Hospital, designed to help educate children about autism spectrum disorder and provide the tools necessary to facilitate friendships among children. This program encourages recognition of children's similarities, demystifies autism and promotes inclusion, respect, and friendship between children. Please visit www.Childrens-Specialized.org for information and helpful materials. 107 The Transportation Security Administration (TSA) announced the launch of TSA Cares, a new helpline number designed to assist travelers with disabilities and medical conditions, prior to getting to the airport. Travelers may call TSA Cares toll-free at 1-855-787-2227 prior to traveling with questions about screening policies, procedures and what to expect at the security check point. 108 Visit a Safe Kids Car Seat Safety Inspection Station Near You To locate an inspection station go to: http://safekidsnewjersey.com/news-and-events/ 109 PIP is a leadership training program for parents and self advocates. The program uses state-of-the-art information about developmental disability issues. Participants learn about current issues and best practices to become familiar with the policy making and legislative process. The overall goal is to forge a partnership between people needing and using public support services and those in a position to make policies and laws. For more information visit the NJ Council on Developmental disabilities’ website at: www.njcdd.org. 110 NJ Helps is a customer-friendly, pre-screening tool available on the Internet. The screenings provide information for over 30 programs offered by the State of NJ. Please visit www.njhelps.org for additional information. 111 Project CHILD FIND is a free referral service and public awareness campaign to assist in the identification of unserved/underserviced youth with a delay or disability from birth through 21 years of age. Project CHILD FIND was established by the NJ Department of Education through I.D.E.A. Part B funds from the U.S. Department of Education. Information through Project CHILD FIND may be obtained by calling the toll-free number, 1-800-322-8174, 7 days a week/24 hours a day. All calls received are confidential. 112 As the parent of a child with a disability, it is important for you to be able to find answers to your special education questions in the IDEA statute and regulations. To find answers to your questions or for an overview of the IDEA statue, please visit: www.wrightslaw.com/idea/index.htm 113 • Yellow pages for kids with disabilities (find information and support) • Getting started Advocacy & Advocates Master Plans, Project Manager • Advocacy 101 – Rules of the Game, Obstacles to Success, Conflict, and Crisis • Parents as experts – The File, Learning about Disability, Tests & Measurements, IEP’s • Special Education Laws – Idea, Section 504 and ADA, FERPA • Tactics & Strategies – Assumptions, Image & Presentation, Letter writing and meetings • Free Resources “Help Section” – Directories, Appendices, Glossaries of Terms, Free Pubs and much more WWW.FETAWEB.COM 114 Children’s Specialized Hospital’s sports team for athletes aged 5-21 years with physical disabilities For more information about the program please contact: Trisha Yurochko 908-301-5424 [email protected] 115 Health Care Advocacy Across the Lifespan – What Parents of Children with Disabilities Need to Know A valuable booklet to help parents receive the health coverage and health care their children need. To receive a copy, please call 609-896-4200. 116 Did you know that even in early fall, influenza viruses are circulating at low levels? Flu is so contagious it leads to thousands of hospitalizations each year and can cause death. • • • • • • • Everyone six months and older needs flu vaccine every year! Remember, when a child is receiving the flu vaccination for the first time, two doses are needed for protection. Two to three flu strains have changed from last season Vaccines that protect against four (Quadrivalent) strains of flu viruses are now available Both the injection and the nose spray are effective and there is no recommendation for one or the other. Just get vaccinated! Children with egg allergies SHOULD be vaccinated Families are an essential member of the vaccination team 117 • Handling Difficult Behavior | Deirdre Muldoon, BCBA Tuesday, February 16, 2016 | 6:30 pm to 8:30 pm | Please RSVP by February 9th • Transition to Adulthood | Jeannette Mejias Tuesday, March 15, 2016 | 6:30 pm to 8:30 pm| Please RSVP by March 8th • Social Skills | Adrienne Robertiello & Roseann Pagano Pizzi, PsyD Tuesday, April 19, 2016 | 6:30 pm to 8:30 pm| Please RSVP by April 12th • Sleep Problems | Jill Harris, Ph.D. Tuesday, May 10, 2016 | 6:30 pm to 8:30 pm| Please RSVP by May 3rd Location All trainings will take place at Children’s Specialized Hospital: 150 New Providence Road, Mountainside, NJ 07092 Auditorium B | Dinner will be served Aditi Doshi | 908-301-5466 | [email protected] 118 • Basic Rights in Special Education| Jeannette Mejias Tuesday, June 14, 2016 | 6:30 pm to 8:30 pm| Please RSVP by June 7th • Feeding Issues | Maurya Farah, M.A.CCC-SLP Tuesday, July 5, 2016 | 6:30 pm to 8:30 pm| Please RSVP by June 28th • Safety Issues | Adrienne Robertiello Tuesday, August 9, 2016 | 6:30 pm to 8:30 pm| Please RSVP by August 2nd • Strategic Planning for Recreation Programming for Children with ASD Free Online Webinar Available Anytime | https://youtu.be/gxr6h0ONqbA Location All trainings will take place at Children’s Specialized Hospital: 150 New Providence Road, Mountainside, NJ 07092 Auditorium B | Dinner will be served Aditi Doshi | 908-301-5466 | [email protected] 119 120 Check with your employer’s Employee Benefits Representative, usually in the Human Resources Department, or your insurance carrier, to understand your benefits Check with your insurance company before receiving services to find out about exclusions for services including number of visits, service, prior authorization, etc Be aware that even if you get prior authorization from your insurance carrier this does not mean that the service will be covered If your insurance company does not approve therapy for your child or if your child has already used all of his/her therapy benefits for the calendar year, please contact our Patient Access Services for information about our self Prompt Pay Option that you may qualify for at 1-888-CHILDREN (244-5353) ext. 5234 121 What you need to do to take charge of using your insurance and become a successful advocate for your child: • Access your insurance company’s website regarding your benefits • Keep a log of every contact with the insurance company • Speaking with the same person at the insurance company is a good idea, it will help you with getting both the information and coverage for services. Ask for the case manager. • Be organized when sending in claims to the insurance company yourself by keeping a separate “claims submitted” folder • Become an active partner in your health care 122 Confused by health insurance plans? Unsure of what plan is best for your family? We’ve created a resource to help! Visit www.childrens-specialized.org/Insurance-Education for quick tips and detailed explanations to navigate your health insurance options Parent to Parent: Parent to Parent, a collaboration between the Family Support Center of NJ and SPAN(Statewide Parent Advocacy Network, Inc.), is a statewide network of parents supporting families of children with developmental delays, disabilities, and special health needs. Parent to Parent offers emotional support and information. It provides assistance in learning the necessary skills to help parents face the challenges of raising their child. For more information about Parent to Parent, visit http://www.spannj.org/familywrap/parent2parent.htm or call 1-800-FSC-NJ10 (372-6510) 123 In an effort to partner with families and caregivers to provide the best health care experience for children, Children’s Specialized Hospital has created a Pocket Pal for your use. The Pocket Pal offers important and practical information regarding your health insurance. Pocket Pals are located in the lobby of all sites. Please take a copy of this beneficial information created by families for families. 124 After the day of your evaluation, you should expect to get your reports from our HIMS department in 3 full weeks. If you have not received the report in 3 weeks, please contact: Toms River: 732-797-3822 Hamilton: 888-CHILDREN ext. 3752 New Brunswick: 732-258-7156 Mountainside, Bayonne, Clifton: 908-301-5421 125 If you have any questions or concerns about any bill you receive or any one of your accounts, please call Patient Accounting directly at 908-301-5900 OR 1-888-CHILDREN (244-5373) ext. 5900 OR E-mail your questions to [email protected] 126 www.childrens-specialized.org 127 Imagine being able to participate in fundraising for the kids at Children’s Specialized Hospital while simply doing your online shopping. With AmazonSmile, you can! Amazon Smile is a fundraising tool used by Children’s Specialized Hospital Foundation to continue to raise money throughout the year. Every time you shop through AmazonSmile.com, a portion of your order cost will be donated on behalf of Amazon to our kids! 1. 2. 3. 4. Visit smile.amazon.com The site will prompt you to select a charitable organization. Search “Children’s Specialized Hospital” Find our account and click “Select” Go shopping! The site will remember the organization you select and will automatically process a donation for all future purchases when shopping through AmazonSmile. 128 Track your child’s progress with the Parent Progress Activity Log Track your child’s: • Sleep • Pain • Speech • Independence • Behaviors • Feeding • Activity • • • Access the My Children’s Specialized Patient & Family Portal Custom driving directions to locations Find a Children’s Specialized Hospital physician Search the “Parent PAL” app to download. Coming soon to Android. 129 ─ It is important to be on time We want to provide your child with the best possible therapy experience. If you are having trouble getting to therapy on time please discuss this openly with your therapist. Together we can come up with a plan that will work for your child and family. *This slide was provided by a partnership with The Family Advisory Council and the staff of Children’s Specialized Hospital. 130 ─ If you are waiting in the lobby longer than 5 minutes, please let the front desk know!!!! *This slide was provided by a partnership with The Family Advisory Council and the staff of Children’s Specialized Hospital. 131 Children’s Specialized Hospital practices Patient and Family-Centered Care. We understand that a partnership with our families is essential in providing high quality care. Together, we can best plan your child’s care. 132 We recognize the vital role that families play in ensuring the health and well-being of children and family members of all ages We respect each child and family’s innate strengths and view the health care experience as an opportunity to build on these strengths and support families in their care giving and decision making roles We understand that emotional, social, and developmental support are integral components of health care We recognize that Patient-and-Family Centered Care leads to better health outcomes, as well as more satisfactory health care experiences for your entire family 133 At Children's Specialized Hospital, families are a part of everything that we do. Below are a few highlights of their involvement: Family Advisory Council: • Works closely with our management team to improve how information is being shared with our families. • Review many of the materials we send out to our families (e.g. welcome letter, contact info after evaluations, first treatment letter, missed appointment) Blankets for Babies: • Our inpatient families are invited to meet other mothers and caregivers with Dr. Burke, Family Faculty and Loving Care Agency to make blankets. The blankets are soft, warm and washable and a wonderful memory and keepsake of their time at Children's Specialized Hospital. Service Excellence Performance Improvement Model: • Facilitates an interactive workshop entitled "Ingredients for Successful First Impressions" with our outpatient Physical Therapy, Occupational Therapy, Speech Therapy, and Psychology staff across all sites 134 Family Faculty is a group of parents and caregivers of children who have received or still are receiving services at Children's Specialized Hospital. Our unique experiences with our own families help us have a different understanding and empathy for families going through similar situation. In our role, Family Faculty provides valuable emotional support and assists families to acquire important resources to aid their children and families throughout their stay and therapy. Our role is also to empower families to become advocates for their children. 135 • Mountainside: 888- CHILDREN ext. 5346 Josanne Pearsall, Nancy Panarese and Linda Waddell • New Brunswick: 888- CHILDREN ext. 7576 Kerry Elmer, Pat O’Hanlon, Lori Velasco, Carrie Snyder and Luciana Menedes -McGuire • Stevens Rd: 888- CHILDREN ext. 3757 Deidre Genovese, Michele Tomaino • Lakehurst Road: 888- CHILDREN ext. 3961 Jessica Krill • Hamilton: 888- CHILDREN ext. 2816 Sharon Clarken and Megan Fennelly 136 137 Our hospital has implemented an Operation Excellence Model of Performance Improvement. This will allow us to identify opportunities for improvements within our organization and across the entire Children's Specialized Hospital system and collaborate with each other at all levels of the organization to ensure individual and organizational success of our Corporate Pillar Goals. Our Management Team and a representative from our families on staff (Family Faculty) will serve on one of the four Strategic Pillars: • • • • Profitable Growth Community & Employee Engagement Quality Service Excellence. 138 The Corporate Compliance Plan is in place to prevent misuse of funds from federal and state healthcare programs. Workers are prohibited from: • • • • • Committing fraud and abuse of funds Receiving kickbacks Making unethical patient referrals Engaging in activities that are conflicts of interest Accepting tips and gifts from agencies that Children’s Specialized Hospital does business with, as well as patient and families when those gifts are intended to influence them in performing their jobs Children’s Specialized Hospital has developed policies and procedures to follow state & federal laws. Children’s Specialized is committed to promoting the highest moral and ethical business practices. How do you report a Corporate Compliance concern? Call the Corporate Compliance Hotline at 908-301-5565 - make confidential reports – make anonymous reports – get advice and answers 139 140