Camp Can Do Sailed a Three-Day Tour

2005 Issue 3
Chapter Calendar p.2
Help Paying For Medication p.78
Dealing with Depression p.8
Yoga and MS p.10
Self Help Groups p.14
Ask the Pharmacist p.18
Update on Tysabri p.19
New MS Investigations p.20
Job Fairs p.23
Stars of the Season p.27
Lone Star Chapter
Camp Can Do Sailed a
Three-Day Tour
3
4
8
11
24
M
ore
than
50
adventurous
campers and a brave
crew of volunteers made the
journey to Burton, Texas for a
“three-day tour” of the
“Gilligan’s Island”-themed
Camp Can Do 2005. This
weekend getaway serves as a
unique opportunity for our
clients to enjoy the company of
others who can relate to their
experiences and challenges.
Fellowship develops quickly
between campers, volunteers
and staff as they navigate the
wide variety of activities. This
year’s activities included
horseback riding, arts and
crafts, yoga, woodworking, a
ropes course, canoeing, a
nature walk, bingo, and the
ever-popular s’more-making at
the fire pit. These are especially
meaningful for our campers, who are
able to participate in activities that may
have been closed off to them for a long
time.
Camp is also a wonderful opportunity
for campers and
volunteers to
Get Involved
Volunteer
with the
Lone Star
Chapter.
Call 1-800FIGHT-MS
to learn
how!
socialize. This year, there was no
shortage of exotic, island adventures to
occupy Gilligan and his crew.
Campers worked hard with their
cabin-mates to construct seaworthy
rafts using scraps and supplies that
they scavenged from the arts and crafts
cabin. Their constructions were judged
Publication of the National Multiple Sclerosis Society
Lone Star Chapter
8111 N. Stadium Dr., Suite 100
Houston, TX 77054
Houston (Headquarters):
713-526-8967 or 800-323-4873
Corpus Christi: 361-225-2342
Dallas: 214-373-1400
San Antonio: 210-494-5531 or 800-683-1627
Chair - John R. Pearson
Chair Elect - Henry Noey
Secretary - Gerald Merfish
Treasurer - Nick Lomonte
Chair Emeritus - Stephen S. Speier
Chair, Clinical Advisory Committee Victor M. Rivera, MD
Chair, Chapter Programs Committee Raymond Martin, MD
Chapter President - Pat Bertotti
MSConnection Editor - James Black
The National Multiple Sclerosis Society is
dedicated to ending the devastating effects of MS.
As a leading source of cutting-edge information
about multiple sclerosis, the National Multiple
Sclerosis Society, Lone Star Chapter strives to
update the public on MS-relevant news and
events. The chapter, however, does not endorse
specific products, services or manufacturers.
Such names appear here solely because they are
considered valuable information. The National
Multiple Sclerosis Society assumes no liability
for the use of contents of any product or service
mentioned.
Information provided by the Society is based
upon professional advice, published experience
and expert opinion. Information provided in
response to questions does not constitute
therapeutic recommendations or prescriptions.
The National MS Society recommends that all
questions and information be discussed with a
personal physician.
© 2005 National Multiple Sclerosis Society, Lone
Star Chapter
2
L O N E S TA R C H A P T E R
Chapter Calendar
Mark your calendar with the following Lone
Star Chapter events!
Keep current with Chapter news by
subscribing to receive the MS E-Connection
e-mail newsletter and by visiting our website
at www.nationalmssociety.org/txh.
The 2005 Multiple Sclerosis Update
Houston Friday, September 9
Client & Family Educational Program
Texarkana Saturday, September 10
Home Health and MS
Temple Tuesday, September 13
Tenant MS Walk
“Take a Walk on the Wild Side”
Waco Saturday, September 17
Newly Diagnosed MS Boot Camp
San Antonio Saturday, September 17
KLRN Women’s Health Conference
San Antonio Saturday, September 24
Stumping Stress Educatioal Program
Corpus Christi Saturday, September 24
Client & Family Educational Program
Killeen Thursday. September 29
H-E-B MS 150 Bike Tour
San Antonio to Corpus Christi
Saturday-Sunday, October 1-2
Family Discovery Camp
Burton Friday-Sunday, October 7-9
Kelsey-Seybold MS Walk
The Woodlands Saturday, October 22
Kelsey-Seybold MS Walk
Downtown Houston Sunday, October 23
Kelsey-Seybold MS Walk
Austin Sunday, October 30
Toll-Free Number: 1 800 FIGHT MS
CHAPTER PRESIDENT
Pat Bertotti Retires
Dear Friends,
As many of you know, I am retiring September 30, 2005, after serving almost ten
years as your president. I wanted to take this opportunity to tell you how grateful I
am for this amazing adventure.
When I was hired, I saw myself as a “turn-around” president and planned to serve
two-three years max. Then I became friends with Mike Fagan, Jack Irwin, Ginger
Restivo, Steve Frans, Margaret Starr, Bob Redman, Kenny Cameron, Marcia
Johannsen, et. al and my focus changed. I became obsessed with making us the best
chapter in the country so we could truly “make a difference.”
Three years ago, we became the most financially successful chapter in the country.
This year we were awarded the coveted Cavallo Award, which is presented to the
Chapter providing the most comprehensive advocacy and educational programs.
Topping off the year, Charity Navigator, the prestigious non-profit watch-dog,
awarded the Chapter the highest rating, four stars, for its financial stewardship and
services.
I finally feel complete and am proud to hand the reins over to another. Knowing you
and working with you has been the most rewarding experience of my life. I shall be
eternally grateful for your support. You have been there to chastise me when we
drifted off course but you were always there to guide us and lift us up in prayer. I
will forever be in awe of your insight and courage.
With abiding affection,
Pat Bertotti
Visit our Website at: www.nationalmssociety.org/txh
3
2005 Issue 3
PROGRAMS
Camp Can Do continued from cover
and awarded prizes based on factors such as
nautical accuracy (the Skipper Award),
decorative quality (the Ginger Award), and
practicality (the Gilligan Award, of course).
To relax after these heavy labors, campers
joined the luau on Saturday night, where
they were treated to a dazzling
performanceand awarded prizes based on
factors such as nautical accuracy (the
Skipper Award), decorative quality (the
Ginger Award), and practicality (the
Gilligan Award, of course). To relax after
these heavy labors, campers joined the luau
on Saturday night, where they were treated
to a dazzling performance by traditional
Polynesian dancers. This show must have
inspired our crew, because they spent the
rest of the evening dancing the night away
under the Pavilion, stopping to rest only for
the Gilligan’s-themed costume contest. The
island theme continued into Sunday
morning, when the Camp was met with a
monsoon-like rainfall. Even then, our crew
remained resilient, visiting with friends and
watching the movie “Pirates of the
Caribbean.”
4
Camp is more than just the sum of its
activities, however.
It is a truly
unforgettable experience for all who attend.
In the words of volunteer Heather
Clingenpeel, “Camp has inspired me and
helped me more than anyone could ever
know! The whole weekend, I saw only
Visit our Website at: www.nationalmssociety.org/txh
PROGRAMS
smiles and laughter that returned the sparkle
in my eyes that I had lost. I was
apprehensive about going, but I have since
made lifelong friends who understand what
I am going through. Camp was the most fun
I have had since I have been diagnosed!”
fringe, hot glue and thread to create their
own custom-made fabric tote bags.
Thanks to the efforts of Mang Tiak, a
Methodist Hospital chaplain, we had a
whole cadre of new volunteers – all of them
Methodist nurses – in attendance this year:
Holly Hall, Billy Miguez, Jessica Mouton and
Lauren Thomas. Also attending from The
Methodist Hospital were Ginny Baird and
Rosemarie Uy. Fe Funtanilla, RN also
attended from the VA Hospital in Houston.
In addition to expanding the Camp Can Do
family, Mang also led the well-attended
Sunday morning devotional, as she has done
in years past.
Camp Can Do would not be possible
without the graciousness and generosity of
our outstanding volunteers.
These
individuals give their time and energy,
making themselves open and available to
our campers. When asked about the camp
experience, one volunteer enthusiastically
responded, “Camp Can
Do showed me that I
In addition, we were
have a potential to help
fortunate to have two
others, even though I
v o l u n t e e r
sometimes think that I
photographers with us
have
nothing
to
all weekend, capturing
contribute. I walked
the faces and spirit of
away feeling more
Camp Can Do 2005.
appreciative of life.” We
Chase Shull, who
would
like
to
volunteered along with
acknowledge these men
Andrea, his wife, joined
and women who joined
us for our “island getaway” and shared their veteran photographer Scott Sloan. Andrea
was the volunteer coordinator for our Valero
talents and enthusiasm so willingly.
Energy volunteers, many of whom were
Ed Adams returned to camp this year to lead returning for their second and third year. We
one of our most popular outdoor activities, are grateful to Andrea and her Valero
the nature walk. While traveling down the colleagues for their continued support. We
fully accessible and beautifully shaded trail, also want to acknowledge our many “repeat”
Ed shared fun and interesting facts about the volunteers who have become an integral part
plants and animals. Another long-time of the Camp Can Do family: Louis Caster;
volunteer is Jack Engle, who generously gives Christopher Fritel; Linda Knighton, RN; Bob
his time to coordinate all of the wood crafts Sobotik; Richlien Sapolucia, RN; Dorothy
for Camp Can Do, creating projects from and J.W. Smith; Shawn Terry; Tracie Reeves
scratch and patiently assisting campers with and Lisa Whipple.
gluing, hammering, sawing, and painting.
Joining him in the arts and crafts cabin this We thank and welcome all of our other
year were Peggy Muller and Clara Collins, volunteers and trust they will continue to
who guided our aspiring artists as they used join us for years to come.
beads, buttons, stamps, ribbons, fabric paint,
Toll-Free Number: 1 800 FIGHT MS
5
2005 Issue 3
P U B L I C AT I O N S
Teens Speak Out
K
eep S’myelin, a newsletter for children
about MS, is available through NMSS
chapters as well as on the National MS
Society’s website. Designed for children 5-12
years old, who have a parent or loved one with
multiple sclersosis.
Keep S’myelin includes regular articles about
different aspects of MS, puzzles and games,
photos, book reviews, tips, and more.
For a copy of the latest issue call 1-800-FIGHTMS, or to access the newsletter through the
internet, go to www.nationalmssociety.org.
InsideMS is a lifestyle
magazine for people living
with MS, their families and
healthcare professionals. It's
packed with news and
features on symptom
management, daily living,
research, financial and
employment issues, travel,
achievements, and book and video reviews.
Voice your opinion, share your
stories, artwork, and poetry.
Are you helping in the fight
against MS? Tell us about it.
Teen InsideMS Online is the
magazine written for you and
by you. Spread the word.
Send letters, stories, and poems
by email. Please send SCANS
of artwork (photographs,
cartoons, drawings, or pictures)
via email or on a CD (jpeg
format). We cannot return
material, so do not send
original artwork. We will notify
you if your work has been
posted. Please include your
age, name,, and address or email address. We will not
release this to anyone.
Visit the Web site at:
www.nationalmssociety.org
Email: [email protected]
Teen InsideMS
National MS Society
733 Third Avenue
New York, NY 10017-3288
Teen InsideMS is a
quarterly online magazine
for teens.
www.nationalmssociety.org
6
Toll-Free Number: 1 800 FIGHT MS
PUBLIC POLICY & ADVOCACY
Paying for Medication: Help is Available
T
he annual cost of medication for
people living with MS is significant.
Many people lack health insurance
coverage and have trouble
affording the prescription medicines and
health care services they need. If you don’t
have prescription coverage and cannot
afford your medication, you could get help
paying for them.
Many of the companies that manufacture
medication make limited amounts of their
products available to people in need at no
or low cost through patient assistance
programs.
The
eligibility
criteria,
application forms and procedures for these
programs vary, and a separate application
may have to be submitted for each
prescription. A number of organizations
provide web access to details about these
programs, and the sites often include other
valuable health-related information.
Disorders
administers
medication
assistance programs for uninsured or
under-insured individuals with a variety of
medications for specific rare conditions.
Multiple sclerosis is one of them.
(203) 744-0100, (800) 999-6673
(voicemail only) or www.rarediseases.org
BenefitsCheckUp provides individuals 55
years of age and older with a confidential
personalized report of public and private
programs that can help older people save
money
on
prescription
drugs.
www.benefitscheckup.org
Applications to patient assistance programs
are generally free, but a few organizations
offer to handle the paperwork for you for a
small fee. These include The Medicine
Program, which you can contact online at
www.medicineprogram.com, or The
Patient Assistance Network at
The following organizations can help you 202-595-1038, toll free.
learn more about these patient assistance
Additionally, TogetherRx Access is a drug
programs.
discount program offered through a
The Partnership for Prescription Assistance collaboration of many pharmaceutical
is a national partnership of pharmaceutical companies. Using the card individuals and
companies, doctors and other health care families with no prescription coverage can
providers. Its searchable database includes get savings of 25 to 40 percent at the
the patient assistant programs of more than pharmacy counter. To qualify, applicants
275 public and private patient assistance must be legal US residents under age 65
and otherwise not eligible for Medicare,
programs. (888) 4PPA-NOW
without public or private prescription drug
(888-477-2669) or www.pparx.org.
coverage, and with incomes of up to
NeedyMeds.com
is
a
nonprofit $30,000 for a single person or $60,000 for
organization whose web site provides a a family of four. (800) 444-4106 or
searchable database of patient assistance www.togetherrxaccess.com
programs run by drug manufacturers and
For more information call 1-800-FIGHTothers, as well as their application forms.
MS or visit www.nationalmssociety.org/
www.needymeds.com
healthinsurance_resources.asp.
The National Organization for Rare
Visit our Website at: www.nationalmssociety.org/txh
7
2005 Issue 3
PROGRAMS
Dealing with Depression
E
veryone at one point or another • See a psychiatrist or trained therapist.
in his or her life will feel
depressed. We have all had • Seek support from friends and family.
periods where we have felt “sad”
or “down.” Sometimes depression is a • Talk to others about your feelings;
avoid keeping them hidden. Avoiding
normal reaction to a significant loss, or
negative feelings can sometimes only
other situation or stressor. Situational
serve to magnify them. Allow family
depression can last for hours or days. If
and friends to help you.
feelings of depression persist for a long
period of time (two weeks or more) and
• Add structure to your
you find there are
day. Remember to have
problems with normal
relaxation time as well
functioning,
it
is
(music, books, etc.).
important
to
seek
professional help.
• Add exercise, even if it
is in small amounts.
What is depression?
Clinical depression is
characterized by several
persistent symptoms:
•
•
•
•
•
•
•
•
•
•
•
Intense sadness
Mood swings
Self-doubt
Crying spells
Loss of energy, fatigue
Loss of motivation
Changes in appetite
Changes in sleep patterns
Feelings of hopelessness/helplessness
Irritability
Suicidal thoughts/thoughts of selfharm
What can I do to deal with depression?
• Change negative selftalk. Reframe negative
thoughts with more
positive thoughts and
ideas.
• Attend support groups.
• Consider volunteer work or a new
hobby.
• Remind yourself of positive
accomplishments.
• Have realistic goals.
Source: National Institute of Mental
Health
If depressed feelings persist, seek http://www.nimh.nih.gov/publicat/
professional help, if necessary.
depression.cfm
8
Toll-Free Number: 1 800 FIGHT MS
DEVELOPMENT
Getting That Good Feeling
P
Perhaps you have a will that dates back
several years and no longer represents
your wishes. Your children may be
grown, or, you may have experienced
major changes in your life. Recent tax
law changes could affect the provisions
in your will. Most professional advisors
urge their clients to review all estateplanning documents every few years,
With your legal documents in place, just to make sure they are up-to-date.
your loved ones won’t have to secondguess your wishes, or deal with Our free Ebrochure “Questions and
unnecessary legal issues. Getting that Answers about Wills,” is designed to
good feeling will require some time and help you think through the process of
effort, but 99% of those completing the obtaining or updating your will.
process say, “It was worth it – I do feel
You can request a copy on the National
good.”
Multiple Sclerosis Society Web site at
The National MS Society has some nationalmssociety.org. Click on “Get
complimentary materials to help you Involved,” then “Guide to Giving” and
get that good feeling. Our Ebrochure select the Ebrochure(s) you would like
“Creating a Legacy Through Your Will” to receive via email.
contains information about basic estate
planning and how to prepare for a visit You can also request our “Creating a
with your attorney. It also includes Legacy Through Your Will” brochure by
sample bequest language should you contacting us at 1-800-923-7727 or
choose to include the National MS email us at [email protected].
Society in your plans.
utting your “house in order” by
making sure you have a valid,
up-to-date will gives you a good
feeling. Your will is a legal instrument to
provide for the future security of your
family and your favorite organizations,
like the National Multiple Sclerosis
Society.
I got my life back...
Thanks to my self-help group I found a support network
and understand what to expect living with MS.
My bequest to the National MS Society is like a gift of
love to my family.
Contact the Society and ask how you can help others
with MS through your will or trust.
I want to help those with MS... this is why I give.
1-800-923-7727
visit nationalmssociety.org
Toll-Free Number: 1 800 FIGHT MS
9
2005 Issue 3
PROGRAMS
Yoga and MS
by Debi Lewis, yoga instructor and PRYT practitioner
T
he practice of yoga can be of great
benefit to those with Multiple
Sclerosis. Because yoga is a
holistic art, the benefits are
physical, mental and emotional. This
article will discuss the ways yoga can be
customized to assist a person with MS in
reclaiming their lives and sanity.
While yoga is not a cure, it can increase
circulation, improve muscle tone, help
with balance and assist in the ability to
deepen your breath and relax.
On a physical level, it is important to
find the right yogic approach and
remember the specific needs of people
with MS. There are many styles of yoga
and not all yoga classes would be
helpful. Some in fact would be harmful,
for example, a power-vinyasa class that
emphasizes
heat
and
vigorous
movements. Instead, it is very important
that the person/student with MS focus
on simple movements, relaxation
techniques and avoid anything that
increases heat, stress and fatigue.
Since MS is a breakdown in the nerve
fibers and not the muscles, often the
student has more ability than they
realize, and it is important to utilize as
much muscular capacity as possible.
Simple movements, coordinated with the
breath, help to locate and strengthen
neural pathways and keep joints and
muscles mobile. An example would be to
lift the arms on the inhale and lower
them on the exhale. In Gary Kraftsow’s
10
book, Yoga for Wellness, there is a
complete practice developed for one of
his students who has MS. The Viniyoga
style, which Kraftsow has made well
known, is an effective approach for many
conditions, including MS.
When we are stressed, our breath
becomes shallow, and we hold the
muscles in a “fight-flight” state of
tension. It is important to observe places
in the body that are holding tension and
address them through simple stretches
and movements, while encouraging long,
relaxed, diaphragmatic breathing. Neck
rolls and slow twists, for example, help to
release tension in the neck, back and
shoulders. Also, holding the yoga
postures isometrically, pulling muscle to
bone, will help to strengthen the muscles
and bones as well as improve
coordination.
I have found the “quick-release” method
very valuable as well. To do “quickrelease,” go through the entire body,
starting with the toes, and squeeze the
muscle tight, one body part at a time.
Hold for 4-5 seconds and then quickly let
go with a “falling-out” exhale,
aaahhhh…
The Iyengar style of yoga, because of its
emphasis on the creative use of props to
assist in postures, its therapeutic
approach and the slow, detailed focus on
the physical action, is also an effective
modality. A person with MS will have to
modify if they are in a regular class,
however, and be sure not to hold the
Toll-Free Number: 1 800 FIGHT MS
PROGRAMS
postures very long. An inspiring lyengar
teacher, Eric Small, has managed MS with
the benefits of yoga. He has had MS for
over 45 years and is 70 years old.
To help a person with MS learn to relax,
supported stretches are a wonderful way
to receive the benefits of yoga in a passive
way.
Supported
postures,
also
affectionately called “advanced lying
around”, involve positioning bolsters and
blankets to allow the student to relax in
simple forward bend, backbend and
inverted positions. People with MS
should particularly make a daily practice
of simple inversions; such as supported
shoulder stand and “legs up the wall”
pose, to improve circulation.
When yoga postures are held for a
relatively longer time, as in these
supported variations, the mentalemotional effects of yoga are more
accessible. The science of yoga
acknowledges that the cells of the body
carry around our memories, especially
trauma. When the body is held in certain
positions while we focus on relaxing, our
“body-armor” begins to fall away. This
can be expressed in either deep cathartic
releases or very peaceful revelations.
Phoenix Rising Yoga Therapy, which has
its roots in the emotionally healing
environment of Kripalu yoga, is an
effective therapy for this process.
What is so wonderful about yoga is that
its benefits extend beyond the physical.
This can help someone with MS in several
ways. Understandably, people with MS
often have to deal with feelings of
anxiety, depression and/or frustration.
The ability to do the most basic things are
uncertain and often unpredictable. By
practicing pranayama, yogic breathing
techniques, the student will gain skill in
relaxation and mental focus, so that he or
she can take each moment as it comes
with a feeling of empowerment.
The underlying goal and philosophy of
yoga is that while our bodies are
impermanent and imperfect, our True
Selves are not. Yoga teaches us how to
connect with our True Selves, which are a
reflection of the Divine. Yoga helps us to
open a channel, to clear a frequency, to
become still and listen for the “still, small
voice” that speaks to our hearts and gives
us hope.
Resources:
• Suza Francina, The New Yoga for
People Over 50, Health
Communications, Inc. 1997. With
sections on MS by Eric Small who
teaches MS students in L.A.
(Pp. 60-62)
Web site: www.hci-online.com
• Gary Kraftsow, Yoga for Wellness,
Penguin, 1999.
Email: [email protected]
Web site: www.viniyoga.com.
• Dr. Robin Munro, Yoga for Common
Ailments, Gaia Books, 1990.
Visit our Website at: www.nationalmssociety.org/txh
11
2005 Issue 3
PROGRAMS
Developing a Green Thumb and Independence
“To nurture a garden is to feed not just the body, but the soul.” - Alfred Austin
M
any people gain a great sense of
satisfaction, independence and
high self-esteem in caring for
living plants.
A garden can be a wonderful tool to help
people recognize they can continue an
activity that is meaningful to them,
regardless of their limitations. Exercising
your green thumb helps to burn calories,
improve motor skills and can be a
wonderful outlet for stress and creativity.
People of different ability levels are able to
garden because they can do as little or as
much as they want, and at their own pace.
An increase in adaptive gardening is
making it easier for people with disabilities
and seniors to have a green thumb.
Simple tricks, like modifying garden styles
and using innovative tools, are allowing
more people to roll up their sleeves and get
into the dirt.
Helpful hints to make gardening easier:
• Use equipment that is easy on the
body. Buy lightweight tools with large
handles. Mechanical seeders and seed
tape eliminate the need to pick up tiny
seeds. Garden shops, nurseries,
gardening catalogs and Web sites sell
specially adapted tools for easy grip.
• Wear an apron with large pockets to
carry seeds and tools. Adapt tool
pouches to hang from walkers,
wheelchairs/scooters or flowerbeds.
• Design raised beds or window boxes
that you can easily reach without
12
stretching or bending.
• Choose the size of the garden and
types of plants to meet your needs.
Consider the plant’s height, the
amount of attention it requires and its
life span. For example, vine plants
(peas, beans, etc.) can grow on a
trellis and are then easier to harvest.
Plants that need less water may be
easier to maintain.
• Make your work area accessible for
you. Build handrails or handgrips if
needed.
• Pace yourself. Have a cool resting
place nearby and be careful you don’t
get overheated.
For more tips on gardening, visit your local
bookstore or library, or call a nearby garden
store and speak with the master gardener.
And, try these web sites: www.ahta.org
(American
Horticultural
Therapy
Association) www.icangarden.com,
www.garden.org,
or 800-LETSGRO
(National Gardening Association).
Many cities have local community
gardens. Check with the chamber of
commerce in your area.
Toll-Free Number: 1 800 FIGHT MS
VOLUNTEER NEWS
Volunteers with MS Empowerment Day
Get involved with the Lone Star Chapter and have fun while you’re doing it! Join us every
third Tuesday of the month from 11:00 a.m. to 2:00 p.m. to work on a variety of accessible
volunteer projects. It’s not only work, it’s an opportunity to meet other people affected by
MS or catch up with friends. Every month, we’ll provide lunch and you can contribute to
the fight against MS!
For more information please contact:
Dallas: Kristen at 214-373-1400 or [email protected]
Houston: Kelly at 713-526-8967 or [email protected]
Volunteers with MS Empowerment Day is every 3rd Tuesday of the month,
11:00 a.m. to 2:00 p.m. in Dallas and Houston. Join us for a day of fun!
The mission of the National Multiple Sclerosis
Society is to end the devestating effects of MS.
Visit our Website at: www.nationalmssociety.org/txh
13
2005 Issue 3
SELF-HELP GROUPS
SELF-HELP GROUPS
The Lone Star Chapter has self-help groups throughout Northeast, Southeast, Central
and South Texas. We encourage you to call the self-help group of your choice before
you attend to ensure that the topic meets your individual needs and to reserve a space
for yourself. These groups provide an opportunity to share common experiences and
concerns, receive and provide emotional support, and obtain MS-related information
from your peers and professional speakers.
The groups are listed in alphabetical order by city.
Austin (Central)
Mildly Affected
3rd Tuesday, 6:00 p.m.
Lower Colorado
River Authority
3700 Lake Austin Blvd.
Austin, TX 78703
Jeff: 512-589-3409
Piper: 512-473-3200
Austin (Central)
Wellness Group
4th Thursday, 7:00 p.m.
St. David's Medical Center
Private Dining Room
basement level
1005 E. 32nd St.
Austin, TX 78705
Vonda: 512-821-2854
Austin (Northwest)
2nd Monday, 7:30 p.m.
Peace Lutheran Church
10625 Ranch Road 620 N
Austin, TX 78726
Douglas: 512-267-4801
Austin (South)
1st Monday, 6:30 p.m.
Carestone Assisted
Living Center
7017 Manchaca Rd.
Austin, TX 78745
Janet: 512-292-4637
17
14
Bay Area/ Clear Lake/
Nassau Bay
2nd Saturday, 10:00 a.m.
Gloria Dei Lutheran Church
18220 Upper Bay Rd.
Nassau Bay, TX 77586
Mike: 281-334-3686
Bear Creek
4th Saturday, 1:00 p.m.
The Church Without Walls
5725 Queenston Blvd.
Houston, TX 77084
Paula : 281-530-3857
Beaumont
2nd Saturday, 10:00 a.m.
HealthSouth Center
3340 Plaza 10 Blvd.
Beaumont, TX 77707
Virginia: 409-892-4901
Boerne - Social Group
3rd Thursday, 3:00 p.m.
St. Mark’s Presbyterian
Church
208 W. Bandera St.
Boerne, TX 78006
Edye: 830-249-3307
Brenham
3rd Thursday, 7:00 p.m.
Trinity Medical Center
Board Room
700 Medical Pkwy.
Brenham, TX 77833
Cherry: 979-836-1804
Dory: 979-836-9211
Bryan/College Station
2nd Sunday, 2:00 p.m.
St. Joseph’s Health
Education Annex
3030 E. 29th St., Suite 100
Bryan, TX 77802
Sharon: 979-693-6733
Columbus
3rd Wednesday, 6:30 p.m.
Columbus Community
Hospital - meeting room
110 Shult Drive
Columbus, TX 78934
Carol: 979-732-5945
Corpus Christi - Coastal
Bend Connection
4th Saturday, 11:30 a.m.
YWCA
4601 Corona St., Suite 230
Corpus Christi, TX 78411
Shea: 361-937-6082
Beth: 361-853-9616
Debbie: 361-265-9154
Toll-Free Number: 1 800 FIGHT MS
SELF-HELP GROUPS
Dallas (Carrollton)
Care Partners
2nd Thursday, 6:30 p.m.
National MS Society
2105 Luna Rd., Suite 390
Carrollton, TX 75006
Paula: 972-231-7572
Dallas (Carrollton)
Moving Forward
2nd Thursday, 6:30 p.m.
National MS Society
2105 Luna Rd., Suite 390
Carrollton, TX 75006
Cecelia: 972-231-7572
Angela: 214-941-2261
Denton
Last Saturday, 10:00 a.m.
Denton Public Library
3020 N. Locus St.
Denton, TX 76209
Nancy: 972-625-0742
Jean: 940-243-2234
Flower Mound
3rd Monday, 7:00 p.m. p.m.
Crossroads Bible Church
8101 Justin Rd. (Hwy 407)
Lewisville, TX 75077
Melissa: 972-539-2144
Ft. Bend County (Sugar
Land) 3rd Thursday, 7:00
p.m.
First United Methodist
Church - room 602
431 Eldridge Road
Sugar Land, TX 77478
Lori: 281-240-8828
Houston
But You Look So Good
1st Saturday, 10:00 a.m.
Cy-Fair College – Fairbanks
14955 Northwest Fwy.,
room 221
Houston, TX 77040
Andrea: 832-969-5845
Houston - Care Partners
2nd Tuesday, 6:30 p.m.
National MS Society
8111 N. Stadium Dr.
Houston, TX 77054
Lissa: 713-526-8967
Houston - MS & Cancer
Telephone Support Group
Margaret: 713-278-7548
rgaret: 13-28-548
Houston Ups & Downs
of MS
2nd Tuesday, 6:30 p.m.
National MS Society
8111 N. Stadium Dr., Ste. 100
Houston, TX 77054
Lissa: 713-526-8967
Houston
Under 40 with MS
2nd Saturday, 10:00 a.m.
Second Baptist Church
Woodway Campus
6400 Woodway
Houston, Texas 77057
Jessica: 713-579-1026
Houston
(Medical Center) V.A.
everyone welcome
2nd Wednesday, 2:00 p.m.
Veterans Affairs Medical
Center
2nd Floor Nursing Unit,
Dining Room
2002 Holcombe Blvd.
Houston, TX 77030
Lisa, MSW: 713-794-7951
Fe, MSN, RN, CNRN:
713-137-1414, ext. 4559
Houston (Northeast)
2nd Sunday, 3:00 p.m.
Lamb of God Lutheran
Church
1400 E. FM 1960
Houston, TX 77073
Jack 281-361-4595
Susan: 281-360-5301
Houston (Northwest)
3rd Saturday, 1:30 p.m.
Memorial Springs Shadows
Hospital
3033 Gessner Dr.
Houston, TX 77080
Bill: 281-496-4506
Katy
2nd Saturday, 10:00 a.m.
Holy Covenant Church
Room 101
22111 Morton Ranch Rd.
Katy, TX 77449
Sherry: 281-345-2043
Sandy: 281-347-3495
Visit our Website at: www.nationalmssociety.org/txh
15
2005 Issue 3
SELF HELP GROUPS
Killeen - Heart of Texas
3rd Tuesday, 6:00 p.m.
Robertson Avenue Baptist
Church
305 E. Robertson Ave.
Copperas Cove, TX 76522
Peggy: 254-542-5465
New Braunfels
4th Thursday, 12:00 noon
Ryan's Steakhouse Restaurant
485 Hwy 81 East
New Braunfels, TX 78130
Don: 210-566-3053
Pharr
1st Saturday, 10:00 a.m.
Valley Association of
Independent Living
105 E. Expwy. 83
Pharr, TX 78577
Mario: 956-969-0977
Cyndy: 956-686-1260
Plano But You Look So Good
2nd Saturday, 10:30 a.m.
Schimelpfening Public
Library
5024 Custer Rd.
Plano, TX 75023
Deb: 972-633-9203
Renee: 972- 253-1010
Plano/Richardson
1st Saturday, 10:00 a.m.
West Plano
Presbyterian Church
2709 Custer Rd
Plano, TX 75075
Bill: 972-612-0194
16
Rockport
2nd Saturday, 10:00 a.m.
Rockport Public Library
701 E. Mimosa
Rockport, TX 78382
Michelle: 361-225-2342
San Antonio - Life After MS
1st Saturday, 10:00 a.m.
HealthSouth RIOSA
9119 Cinnamon Hill
San Antonio, TX 78240
Theona: 210-826-4547
San Antonio - Newly
Diagnosed & Beyond
3rd Tuesday, 6:30 p.m.
Northeast Methodist
Hospital Community
Health Center
12412 Judson RoadSan
Antonio, TX 78233
Elaine or Mary:
210-494-5531
Texoma Area
1st Monday, 6:00p.m.
Senior Passports Center
3305 Calais Rd.
Sherman, TX 75090
Jennifer: 903-227-4576
Phyllis: 903-893-2837
Temple
2nd Tuesday, 3:00 p.m.
Temple Collegeconference room
2600 S. 1st St.
Temple, TX 76504
John: 254-771-5150
Texarkana
1st Tuesday, 4:00 p.m.
St Michael’s
Rehabilitation Hospital
2223 Morris Ln.
Texarkana, TX 75503
Juanita: 903-614-4409
Victoria
2nd Saturday, 10:00 a.m.
Citizen’s Hospital
2701 Hospital Drive
Victoria, TX 77901
Wendy: 361-575-7469
Waco
1st & 3rd Tuesday
Lakeshore United
Methodist Church
3311 Park Lake Drive
Waco, TX 76708
Mary/Jeff: 254-863-0910
Weslaco
2nd Saturday, 10:00 a.m.
KNAPP Medical Center
1401 E. 8th St.
Weslaco, TX 78596
Mario: 956-969-0977
Waxahachie - MS Warriors
3rd Saturday, 10:00 a.m.
Waxahachie Bible Church
621 N. Grand St.
Waxahachie, TX 75165
Sherri: 972-617-7436
The Woodlands/
Spring/Conroe
2nd Sunday, 2:00 p.m.
Luby’s Restaurant
922 Lake Front Cr. 77380
Janis: 281-364-8737e TX
Toll-Free Number: 1 800 FIGHT MS
DEVELOPMENT
Clients Develop Unique Way of Giving
When nutritionist Cynthia Tait came up
with a creative way to raise money for
the BP MS 150 without being there, it
inspired nine Lone Star Chapter clients
to do the same.
days as the BP MS 150 was taking place.
They received rider numbers and
committed to raise $300 or more
through pledges. The clients generated
pledges ranging from $311 to $1,204.
This group of incredible individuals
Texas Orthopedic Hospital was the came together as a result of the Beta
location for these nine clients to ride Friends, a support group formed by MS
their stationary bikes for two days from 8 Pathways. Way to go, Beta Friends!
a.m. to 4 p.m. They rode on the same
MS Band of Hope Wristbands and Angel Bears of Hope
Now Available!
The National MS Society is
pleased to announce a new
nationwide multiple sclerosis
awareness tool, the MS Band of
Hope. Similar to colorful
wristbands for other organizations, the red
MS Band of Hope wristbands promote the
National MS Society's non-profit mission
year-round. The red wristbands are engraved
with the word "HOPE" on one side and
"nationalmssociety.org" on the other. The
wristbands cost $1 each with a minimum
order of five.
Another new item is the MS
Angel Bear of Hope. These
plush winged teddy bears
hold blue stars bearing the word "HOPE."
They also have a Ribbon of Hope pin
attached. The MS Angel Bears are $7.
The original MS Bears of Hope, wearing their
sporty Society logo shirts, are also available
for $5 each.
Please add $5.00 flat fee for shipping.
To purchase, please mail a check to the
National MS Society, 8111 N. Stadium Dr.,
Suite 100, Houston, TX 77054 indicating
your order in the memo section of your
check.
Visit our Website at: www.nationalmssociety.org/txh
17
2005 Issue 3
ASK THE PHARMACIST
“And how hot IS it?”
Yes, it’s the time of year that
most Texans would rather
forget about – SUMMER!
Most people living with MS
are sensitive to elevated
temperatures,
which
becomes pretty obvious to
those of us in the Lone Star
State from about mid-May
to mid-October, give or take
three months.
The most important thing to remember is
that dehydration can happen quickly at this
time of year, whether you’re indoors or
outdoors. So drink plenty of water,
Gatorade, Propel and fruit juices. Make sure
that you “scope out” restrooms if you’re
going to a place that’s unfamiliar; you’ll
soon find out that you’ll spend less time
there because you’re getting rid of water
through sweating and the dry air.
Here are general guidelines to help you
during the next few months:
Try to plan outdoor activities in the early
part of the day, before the temperature starts
to rise. The earlier in the morning, the
better. An alternative would be after sunset,
but sometimes the air temperature doesn’t
decrease until much later.
Wear light-colored clothes that are mostly
cotton, as polyester doesn’t “breathe” as
well. If you’re going to be out in the sun,
wear a hat to keep the sun off of your head.
And don’t forget the sunscreen!
Eat your heaviest meal at noon. Cook early
and serve cool meals in the evening.
18
When you’re in the car, carry a cooler filled
with ice, towels and bottles with frozen
water. The water in the bottles will be cool
to drink as the ice melts. Damp towels can
help cool your body and can be applied to
your neck, wrists, legs and ankles.
Take cool baths and showers as opposed to
warm or hot ones. Cool weather is your
friend at his time of year. Make friends with
a neighbor who has a pool or take
advantage of a water recreation park.
Shopping malls and movie theaters are cool
places to spend an afternoon.
Take it easy on your exercise and try not to
get overheated.
I know I’ve left out a few of your favorite
ways of beating the heat. If you’d like to
share them with me for a future article,
please e-mail them to me at HYPERLINK
"mailto:[email protected]"
[email protected] .
Have a safe summer and KEEP COOL !
I.D. Freed is an MS patient and registered
pharmacist.
Toll-Free Number: 1 800 FIGHT MS
RESEARCH
Update on Tysabri
B
iogen Idec and Elan announced
March 30 that a third case of
progressive
multifocal
leukoencephalopathy (PML) has
been identified in a patient who had been
in a clinical trial of Tysabri® (natalizumab).
The patient, who died in 2003, had
participated in a trial of Tysabri for Crohn’s
disease, and had received 8 doses of
Tysabri over an 18-month period.
beta-1a) in clinical trials for multiple
sclerosis. PML is a rare and frequently fatal,
demyelinating disease of the central
nervous system. Both of these patients had
received more than two years of Tysabri
therapy in combination with Avonex.
For more information from the FDA,
including the public health advisory and
questions and answers on the Tysabri
suspension, go to: www.fda.gov/cder/drug/
Biogen Idec and Elan had suspended infopage/natalizumab.
Tysabri from the market in February,
following the diagnosis of two cases of Check out www.nationalmssociety.org for
PML in patients treated with Tysabri in information on Tysabri and current MS
combination with Avonex® (Interferon treatments and research.
Make Your
Voice Heard!
Join the MS
Action
N e t w o r k.
Join the National MS Society’s advocacy
efforts to maximize your impact on public
policy issues affecting individuals with
multiple sclerosis. MS Action Network
members receive via e-mail all legislative
alerts and federal and state updates. Sign
up today at www.nationalmssociety.org You can make a difference.
The National Multiple Sclerosis Society is proud to be a source of information about multiple
sclerosis. Our comments are based on professional advice, published experience and expert opinion,
but do not represent therapeutic recommendation or prescription. For specific information and
advice, consult your personal physician.
The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such
names appear here because they are considered valuable information. The National Multiple
Sclerosis Society assumes no liability for the use or contents of any product or service mentioned.
Visit our Website at: www.nationalmssociety.org/txh
19
2005 Issue 3
RESEARCH
Thirty New MS Investigations Launched
The National Multiple Sclerosis
Society has just committed $14.3
million to support 30 new MS research
projects around the globe. The
commitment of these funds is only the
latest investment in the Society’s
relentless research effort to cure, treat
and better understand MS.
This year, the Society will spend some
$35 million to fund more than 300
new and ongoing MS research
projects. This investment is paying off:
new treatments and better methods of
diagnosis, rehabilitation and symptom
management are now available to all
those with MS.
To determine the scientific merit of
research proposals, the National MS
Society relies on the judgment of
expert advisory committees. These
panels include more than 70 top-notch
scientists who volunteer their time to
carefully evaluate hundreds of
proposals each year.
There are presently five FDA-approved
drugs that can impact the underlying
disease course in people with the more
common forms of MS: Avonex,
Betaseron, Copaxone, Novantrone and
Rebif. However, none of these drugs
can stop or cure the disease.
The National MS Society funded basic
research that led to the development
of several of these drugs, and
continues to advance research that will
help end the devastating effects of MS.
Summaries of the new projects and a
list of all research projects funded by
the National MS Society are available
online at www.nationalmssociety.org.
The new research projects involve top
scientists at Harvard University,
Cleveland Clinic, Stanford University
and scores of other outstanding
institutions here and abroad. The new
projects focus on many different
aspects of MS, including myelin and
nerve tissue repair, rehabilitation and
immune studies. Three of the new
projects are large-scale Collaborative
MS Research Centers, which take a
multidisciplinary approach to better
understand MS and find new
treatments.
20
Visit our Website at: www.nationalmssociety.org/txh
DEVELOPMENT
Take Steps to Fight MS with October
2005 Kelsey-Seybold Clinic MS Walks
T
he 2005 Kelsey-Seybold Clinic MS
Walks step off in October. On
Saturday, Oct. 22, walkers in The
Woodlands will take part in the
mission to end the devastating effects of
multiple sclerosis. The next day, walkers from
throughout the Bayou City will converge in
downtown Houston for the Oct. 23 MS Walk.
On Sunday, Oct. 30, Austin is host to the third
Kelsey-Seybold Clinic MS Walk of Fall 2005.
All Kelsey-Seybold Clinic MS Walks begin at 9
a.m.
For more information, visit
www.mswalklonestar.org or call the Lone Star
Chapter at 713-526-8967.
Movers & Shakers Take
to the Greens to Fight MS
The Movers & Shakers of DFW presented
the 3rd Annual Brokers Challenge
Invitational on May 6 at Indian Creek
Golf Course in Carrollton, Texas. More
than 110 golfers joined to share their love
of the game and raise money for the
National Multiple Sclerosis Society, Lone
Star Chapter.
mission to end the devastating effects of
multiple sclerosis.
The chapter also thanks all participants,
volunteers, contributors and friends for
making this journey another huge
success.
Organizers Steve Trese and Nathan
Denton said close to $20,000 was
generated through the golfers’ efforts,
compared with $15,000 in 2004. The
Lone Star Chapter thanks Resource
Commercial Inc. for supporting the
Toll-Free Number: 1 800 FIGHT MS
21
2005 Issue 3
PROGRAMS
Taking Responsibility for Your Personal Safety
D
o you and your family have an
emergency plan in case of a fire,
flood, or other natural or manmade event?
limitations. This booklet focuses on
evacuating from buildings. It does not
provide
information
about
mass
evacuations from coastlines or cities. It
offers specific suggestions on how to give
quick information to someone who is
helping you, equipment that can be used for
evacuation, and some tips on deciding if you
are a person who needs special assistance in
case of evacuation.
According to the National Organization on
Disability, 54 million people in the United
States have a disability and 61% of them
have not made plans to quickly and safely
evacuate their homes. In fact, all of us have a
tendency to avoid thinking about and
planning for emergencies. However, this You can find this booklet at no cost through
following
link:
tendency has greater consequences for the
people with disabilities than for people www.cdihp.org/products.html#eeguide.
without.
June Isaacson Kailes, the author of this
Emergency planning should be integrated booklet says, “No matter what laws and
into our lives, but if you haven’t done it public policies say, it’s up to us as people
with disabilities to do what we need to do to
before, how do you get started?
prepare for disasters. If we just rely on
The Office for Homeland Security has a employers, building managers, or fire
website: www.ready.gov. It will walk you inspectors to make sure things are in place, it
through the steps necessary to make a may or may not happen.
general plan for you and your family.
It is not safe to assume that people with
The Red Cross has a web page dedicated to disabilities have been included in
emergency preparedness for families: evacuation plans. People with disabilities
www.redcross.org/services/disaster/0,1082,0 must take an assertive, proactive approach to
_601_,00.html and a web page specifically ensure that our life safety needs are included
for
people
with
disabilities: in all emergency planning.”
www.redcross.org/services/disaster/beprepar
We encourage you to get started today.
ed/disability.html.
You will find information on these web
pages about creating a personal safety plan,
gathering emergency supplies, and creating a
personal support network.
The Center for Disability Issues and the
Health Professions has a publication called:
Emergency Evacuation Preparedness: Taking
Responsibility for Your Safety – A guide for
people with disabilities and other activity
22
Disability discrimination is real.
This is why we fight for equal rights.
Join our advocacy efforts at
http://capwiz.com/nmss/mlm/.
Visit our Website at: www.nationalmssociety.org/txh
PROGRAMS
Job Fairs in Your Area
When attending any of the
following job fairs, dress in
business attire, just as you would
for an interview.
Bring plenty of resumes. You will
hand resumes directly to hiring
managers from each company.
You can also bring cover letters if
you wish. If you have a resume of
two or more pages, put your name
and phone number on both pages
or staple them together. Bring all
of your resumes in one folder or
briefcase and be organized. Pens,
extra paper, business cards and
examples of previous work are all
helpful.
Corpus Christi
Tuesday, Sept. 13, 2005
11 a.m. – 2 p.m.
Holiday Inn – Padre Island Drive
5549 Leopard St.
Corpus Christi, TX 78408
361-289-5100
San Antonio
Tuesday, Sept. 20, 2005
9 a.m. – 3:30 p.m.
Alamodome
100 Montana
San Antonio, TX 78217
210-340-0034
Visit our Website at: www.nationalmssociety.org/txh
23
2005 Issue 3
PROGRAMS
MS Learn Online - Participate Online Today!
The National MS Society has an exiting
menu of MS Learn Online webcasts
currently available on it’s website. Each
webcast features experts speaking o
npertinent topics for those affected by
multiple sclerosis. Programs and their
written transcripts can be accessed at
www.nationalmssociety.org/mslearnonline.
Would you like to be notified via email of
upcoming MS Learn Online programs?
Please send your email address to:
[email protected].
Stay Connected with the MS E-Connection
Stay connected to the Lone Star Chapter by
signing up to receive the MS E-Connection,
our monthly e-newsletter.
You will get updated Lone Star Chapter
information on educational, wellness and
social programs; special events; advocacy
and recent advances in MS research.
To receive MS E-Connection, visit
www.nationalmssociety.org/txh. Enter your
e-mail address in the box under the “Stay
Connected” headline.
If you have any questions, please feel free
to contact the Lone Star Chapter at 713526-8967 or 1-800-323-4873.
www.nationalmssociety.org
Get the facts on multiple sclerosis research, disease management, advocacy,
professional education and more.
24
Visit our Website at: www.nationalmssociety.org/txh
DEVELOPMENT
Connecting Persons with MS
to Cyclists and Walkers
Through Pedal Partners and Sole Mates
S
ign up today and be that special
inspiration for a cyclist or walker
participating in a MS 150 Bike Tour
or MS Walk benefiting the National
Multiple Sclerosis Society, Lone Star
Chapter.
Of the funds raised through these fundraising events, 83 cents of every dollar is
spent toward ending the devastating
effects of multiple sclerosis.
Since all participants may not know
someone with multiple sclerosis, it is so
important to implement these programs
and connect them to an individual living
with MS – you!
This connection provides that extra
motivation needed to raise just one
more dollar or cross that Finish Line! To
participate in these programs, contact
your local office.
Once you have signed-up for the
program, your name and contact
information will be assigned to a cyclist
or walker through a red bandana which
is worn during the event.
Through Pedal Partners and Sole Mates,
you form a friendship that will last a lifetime! So if you have the opportunity,
communicate with your Pedal Partner or
SoleMate, make plans to attend the event
and meet that special person and share
your common bond – ending the
devastating effects of multiple sclerosis.
Toll-Free Number: 1 800 FIGHT MS
25
2005 Issue 3
DEVELOPMENT
MS RIBBON OF HOPE
Purchase the MS Ribbon of Hope
lapel pin for only one dollar for
your family, friends, MS 150
Pedal Partners, MS Walk
SoleMates and yourself to help
raise awareness and fund
research for multiple sclerosis!
The rainbow colors seen in this pin
symbolize hope. The prism effect
signifies that MS is an ever-changing and
unpredictable disease which can be seen in
many different lights. The ribbon is also
symbolic of the hope the Lone Star Chapter
has as we press forward toward our goal to
end the devastating effects of MS – forever.
We hope you will wear it often.
To purchase the pins please mail your
check, payable to the
National MS Society
8111 N. Stadium Drive, Suite 100
Houston, Texas 77054
Please denote the pin quantity in the
memo section of your check. Pins can also
purchased
online
by
visiting
www.nationalmssociety.org/txh
and
selecting the Donations link on the left.
Please add $5.00 flat fee for shipping.
Classifieds
Free Bruno SER-1550
Electra Ride stairway
elevator.
Must pick up from donor.
Call Dick Smith
713-524-2728.
Houston Area.
Invacare Ranger II
& Charger
$2000, contact Ruth 972524-0037 in the Terrell
/Dallas area.
Deluxe Bruno Seat 2004
New (unused) with seat
post, 17” deep x 18” wide x
15 1/2” high, adjustable
seat depth and backrest
26
height, urethane arms 21”
O.D., $489 retail, asking
$295 or best offer, contact
Tim at 713-665-1256 or
[email protected].
Steele Vest Body Cooling
System & Accessories
Never used, $100, contact
Marjorie at 214-343-3945
in the Dallas area.
Invacare Ranger X
Wheelchair with 24 volt
battery charger less than 2
years old, never used, many
accessories, $400, call
Marjorie at 214-343-3945
in the Dallas area.
TI Lite Manual Wheelchair
Custom made for tall
person, new $100, contact
Marjorie at 214-343-3945
in the Dallas area.
Handicap Shower Chair
Seldom used, $100, contact
Marjorie at 214-343-3945
in the Dallas area.
Twin Long Adjustable
Mattress
Used,
$100,
contact
Marjorie at 214-343-3945
in the Dallas area.
Toll-Free Number: 1 800 FIGHT MS
DEVELOPMENT
Austin – Colton Brugger
Houston – Joyce and David Archibald
Colton Brugger has volunteered with the
Lone Star Chapter for many years. He
began helping with the BP MS 150 La
Grange site when he was 8 years old.
Now a student at the University of Texas
at Austin, Colton has become an active
member of the Austin Steering
Committee. He has taken the initiative
on recruiting volunteers in Houston and
Austin. Colton is invaluable to everyone
at the Lone Star Chapter. Thank you,
Colton, for all that you do in the mission
to end the devastating effects of MS.
Joyce and David Archibald have
volunteered at the Houston headquarters
once a week for six months. They are
now responsible for getting our
numerous MS Band of Hope wristband
orders completed and mailed each week.
In addition, Joyce and David generously
pitch in on any other projects that need
their great assistance. They also took all
the remaining fruit from the BP MS 150
Bike Tour and donated it to homeless
shelters in the Houston area. We
genuinely appreciate their compassion,
upbeat personalities and willingness to
go above and beyond in fighting
multiple sclerosis.
Power to take charge of multiple sclerosis
The Knowledge Is Power program is a free, at-home educational series for those newly
diagnosed with MS and their families. KIP is written by well-reguarded professionals
who know about MS and the effect it can have on your life and the lives of people
around you.
For more information or to register, pelase call 1-800-FIGHT-MS or visit us at
nationalmssociety.org.
Visit our Website at: www.nationalmssociety.org/txh
27
Lone Star Chapter
National Multiple Sclerosis Society
Chapter & Clinical Programs
8111 N. Stadium Drive, Suite 100
Houston, Texas 77054
Toll-Free Number: 1 800 FIGHT MS
NON-PROFIT
ORGANIZATION
U.S. POSTAGE
PAID
Houston, Texas
Permit # 7017