October 2009 - MCS America
Transcription
October 2009 - MCS America
INSIDE THIS ISSUE: Getting to the 1 MCSA NEWS VOLUME 4 ISSUE 10 OCTOBER 2009 Point Social Security 11 Disability Appeals Asthma May Be 13 Getting to the Point Linked to Toxics Your House as a 14 System AMA to Train on 18 Toxic Chemicals Cell Phones 20 Proven Danger Gene For CFS 21 Identified Hep B Triples 22 Risk of Autism Mold Leads to 23 Allergies Vaccines & Goods 24 May Lead to CFS Patient 25 Resources Community 33 News Research 34 How to Effectively Communicate MCS Studies Copyrighted © 2009 MCS America PAGE 2 Feature Article Getting to the Point How to Effectively Communicate MCS One of the most frustrating aspects of multiple chemical sensitivity (MCS) is the lack of understanding and acceptance of the condition by those around the person with MCS. Often, people with MCS are subjected to wellmeaning, but ignorant, comments that can be deligitimizing and hurtful. Comments may take the form of unwanted advice, insults, and simple disbelief. Learning how to respond to these comments, educate others, halt abusive insults, and diffuse unwanted advice can be the difference between healthy adjustment and despair. There are several response approaches which each serve a different purpose. The approach selected depends largely on whether one wants to diffuse a situation, end the conversation, or engage in educating someone about MCS. Humor Humor displays an overall good attitude, a point of strength. Humorous responses can also be used to toss a misplaced comment back at another person in a funny way that gets a point across. Scientific In some situations, it is most desirable to simply diffuse the comment in such a way that the commenter is unable to respond. This is useful when one is not feeling well, has no resource for humor, lacks time, or does not wish to engage in long explanations. MCSA Educational Educational responses attempt to help the commenter to understand the truth about MCS and what causes it. These are often the most difficult responses because they take considerable time and energy in discussion. It is engrained in most people that consumer products are safe. Breaking through the barrier of understanding why one person is affected when “it doesn’t bother me” can be difficult. Despite the difficulty, educational approaches are the most fruitful so far as spreading the word and enlightening the world. This method is a must for friends, family, co-workers, and others a person has regular contact with. Snappy Another method that acts to diffuse a comment is the snappy response. This may involve a slightinsult designed to embarrass the other person into silence. This response is not particularly effective with anyone with whom a good relationship is desired. However, this method can be useful in cases where total strangers make inappropriate or insulting comments. The most important thing is to never try to explain or defend oneself. Doing so only results in an argument where each person tries to prove they are right. Turning the conversation to the other person instead of yourself is an extremely effective diffusing mechanism. These kinds of encounters can leave victims feeling abused and misunderstood. If you walk away from the encounter smiling and suppressing a giggle, you’ve done well for yourself. The following tidbits are some typical comments and suggested responses for each of the approaches. NEWS Copyrighted © 2009 MCS America PAGE 3 "But I don't smell anything!" Humor- Try inhaling! Educational – In MCS, the blood brain barrier leaks. Since chemicals enter the brain rapidly through inhalation, a leaky blood-brain barrier allows them to enter the brain and be detected at much lower levels. Scientific - You’ve been psychologically habituated to it through cognitive conditioning. Snappy – Maybe you should see your doctor about your inability to smell? “Do you think if you just used some perfume again, you might get immune to it and not notice it so much?" Humor- You are absolutely right! When I stop breathing and go unconscious, I don’t care a bit! Educational - Perfume is made up of nearly 5,000 different unregulated chemicals. Less than 20% have been tested for human safety. Perfume has been linked to various health effects. Scientific - The chemicals in perfumes may act to upregulate the nitric oxide and peroxynitrite cycle of biochemistry. Snappy – Would you not notice rat poison less if you kept ingesting it? MCSA NEWS Copyrighted © 2009 MCS America PAGE 4 “Take an allergy pill” (Epi Pen, allergy shot, etc.) Humor- Gosh, why didn’t my doctor tell me that 20 years ago when I got MCS? You’re brilliant! Educational - MCS is not an allergy. Allergies are abnormal responses to harmless substances which can be treated by medications. MCS is triggered by toxic substances which actually poison the entire body. Scientific - MCS is a toxicological disorder which is not mediated by immunoglobulin E. Snappy – Please show me your medical license or give me your social security number and address so I can have my lawyer contact you for practicing medicine without a license. “If it’s real, then go to the doctor and get it fixed.” Humor- If I were a simple car, my doctor would the best darned mechanic in the world! Educational – Curing medical conditions is virtually unheard of. When someone is poisoned, the treatment is to remove the poison and avoid future exposure. Scientific - Before a doctor can attempt to “fix” xenobiotic induced neuroendocrineimmune deregulation, the patient must remove all xenobiotics from the environment. Snappy – Go to college and get your ignorance fixed. MCSA NEWS Copyrighted © 2009 MCS America PAGE 5 “You should try (yoga, going to church noni juice, therapy, etc).” Humor- It’s always been my goal in life to be a well-adjusted and relaxed, disabled person. Educational – Those are coping mechanisms, not treatments or cures for MCS. They won’t help reduce toxic reactions. Scientific – Please provide me with copies of peer-reviewed, journalpublished studies supporting the efficacy of these interventions. Snappy – May I see a copy of your medical degree so I can turn you in for practicing pseudo science? “Just don't think about it.” Humor- Ignorance is bliss… ‘til I die of exposures anyway. Educational – Consider a roach sprayed with pesticide. Most reasonable people would agree that a roach does not think the way humans do and is not intelligent enough to realize it’s been sprayed with a lethal poison. Even though the roach isn’t thinking about it, it still dies. Scientific – Xenobiotics have the same effect on living organisms whether or not the organism is cognizant of their presence. Snappy –Consume a lethal dose of rat poison and don’t think about it. MCSA NEWS Copyrighted © 2009 MCS America PAGE 6 “You don't look sick.” Humor- Thank God! What a relief! Educational – People with cancer don’t look sick either, but they still suffer and die. It’s like a ripe piece of fruit that looks great on the outside, but is being eaten on the inside by maggots. Scientific - The glutathione S-transferase genes control hepatic detoxification. In people with MCS, certain genetic variations slow hepatic detoxification. Snappy - You don’t look blind and ignorant. “Aren’t you all better by now?” Humor- In my mind, thoughts, and convictions! Educational – MCS is a lifelong toxic injury for which there is no cure. Like an amputee, we learn to live with our disability. Scientific - The glutathione S-transferase genes control hepatic detoxification. In people with MCS, certain genetic variations slow hepatic detoxification. Snappy – Aren’t you educated by now? MCSA NEWS Copyrighted © 2009 MCS America PAGE 7 "It doesn’t bother me, so it shouldn’t bother you." Humor- Can I test some rat poison on you then. I’ve been wondering if it would bother me. Educational - Similarly, sugar doesn’t bother most people, but can be deadly to diabetics. Scientific – In people with MCS, certain genes which regulate the break down of toxic materials are deleted. The glutathione S-transferase genes control hepatic detoxification. Snappy – Fresh, clean, healthy air doesn’t bother me, so it shouldn’t bother you. MCSA NEWS Copyrighted © 2009 MCS America PAGE 8 "Why can't you get your olfactory nerves cut?” Humor- All the less to smell you with my dear! Educational - The olfactory nerve brings the sensation of smell to the brain. Removing it does not make toxic substances less poisonous. In fact, it would make a person less able to protect themselves by removing the ability to identify potentially toxic substances through smell. Scientific - Cutting the olfactory nerve can not alter the toxicological properties of xenobiotics. Snappy – Why can’t you have a lobotomy? MCSA NEWS Copyrighted © 2009 MCS America PAGE 9 “I'm only wear a little bit of perfume.” Humor- Do you put a little bit of rat poison in your drink every day too? Educational – In MCS, the blood brain barrier is damaged. Since perfumes enter the brain rapidly through the olfactory nerve and contain ingredients on the EPA toxic waste list, the lack of blood-brain barrier protection allows them to be detected and have effects at very low levels. Scientific - The glutathione S-transferase genes control hepatic detoxification. In people with MCS, certain genetic variations slow hepatic detoxification. Snappy – Maybe you should see your doctor about your inability to smell? MCSA NEWS Copyrighted © 2009 MCS America PAGE 10 “It's all in your head.” Humor- What a relief! Wait ‘til I tell my doctors that they’ve got it all wrong! Educational – Actually, you are partially right. The chemicals in fragrances do disrupt normal brain function. Lab studies have confirmed that common fragrances contain toxic ingredients and induce acute toxic effects. Scientific – SPECT scans have shown that fragrances reduce perfusion, essentially starving the brain of life sustaining oxygen in people with MCS. Snappy – Please give me your social security number and address so I can have my lawyer contact you for practicing medicine without a license. MCSA NEWS Copyrighted © 2009 MCS America PAGE 11 Column: Walkup Talks Disability Social Security Disability Appeals - Michael Walkup, Attorney at Law Appeals Although each stage of the Social Security Disability process can be called an “appeal”, what I will be talking about here are appeals from adverse decisions following a hearing before an Administrative Law Judge (ALJ). Michael Walkup is an experienced disability practitioner with over 25 years of experience in the disability law field. In 2001 he became disabled due to MCS, CFS, and FM. He is now providing a service to advise clients with potential disability claims who have MCS, CFS, and/or FM. As these programs and law are usually Federal, he is able to practice in all 50 states, so your location does not matter. Michael is a long time Sustaining Member of the National Organization for Social Security Claimants’ Representatives (NOSSCR), the only national body for disability representatives. He is also certified as a Federal Trial Lawyer and is admitted to the U.S. Court of Appeals for Veteran’s Claims. Michael would welcome the opportunity to try to help you with your legal claims. His web site may be found at www.MCSLegalHelp.com, or he may be contacted at [email protected], or at 866-880-HURT (4878). MCSA An adverse ALJ decision will be called an “Unfavorable Decision”. You may also appeal a “Partially Favorable Decision”, which will be a decision in which you were awarded some, but not all, of the benefits you were seeking. If you won entirely, it will be called a “Fully Favorable Decision”. You cannot appeal a Fully Favorable Decision even if you don’t like the rationale that was used to award the benefits i.e. mental impairment. You have 60 days to appeal an adverse decision which is done by filling out a form and sending it to the Hearings Office. The entire file, including the decision and a disc of the hearing testimony, will be sent to the Appeals Council in Baltimore, Md. You can send in additional evidence and make additional arguments. This is addressed to the Appeals Council in writing. You can estimate that it will take at least a year for the Appeals Council to render a decision. You can keep updating your file and adding evidence while that is going on. The average amount of time the person reviewing your file will spend for the review is about fifteen minutes, so keep any comments short and to the point. To the extent that anything favorable happens at the Appeals Council it will be probably be to remand the case back for an additional hearing with instructions to the ALJ rather than an outright reversal. The exception to this would be if there is some definitive testing or definitive evidence of a non MCS condition which is disabling that was not raised before, such as bi polar disorder. This will not tend to apply in MCS cases so you should at best look forward to a remand for an additional hearing. The remand hearing will be in front of the same judge as denied the claim originally, unless you move out of that Hearing Office’s area, in which case it will be transferred to the new office and re-assigned to a different judge. Your chances will be better if you can get the remand heard by someone new. “Hint, hint…” NEWS Copyrighted © 2009 MCS America PAGE 12 "If you lose at the Appeals Council, you can file a lawsuit against the SSA.” MCSA If you lose at the Appeals Council, you can file a lawsuit against the SSA in the Federal District Court for your area. These are decided entirely on paper with briefs submitted by both sides. A transcript has to be prepared of the hearing testimony. If the audio disc is not audible, the case will automatically be remanded for a new hearing. Federal court cases are difficult for MCS claims as the federal courts tend to follow more restrictive rules of evidence for admission of expert testimony. Even though there are no rules of evidence in Social Security Disability cases, I nevertheless find that these rules tend to influence the thinking of the federal judge and make it difficult to convince them to accept what may be considered non-standard tests and opinions. The decision from any federal appeal will also be published nationally, so it can create a bad precedent for others. I therefore tend to discourage federal court appeals in favor of advising my clients to re-file for benefits, where possible. You may re-file your application while pursuing the Appeals Council appeal. The Appeals Council will take a year or more to decide on your appeal and, at best, will probably be sending it back for another ALJ hearing that will take time to schedule. The amount of time it will take on an entirely new application may not be that much different. Even if you are still living in the same area, the new application will be assigned randomly to one of 6 or more ALJs in that Hearing Office, so the chances are that you will be assigned a different judge than the one that denied the previous claim. The exception to this is if your “Date Last Insured” for disability benefits had expired before the date of the ALJ Decision. In that case, you will not be able to re-file a new application and will have to take all available appeals. I will talk more about that in the next installment. NEWS Copyrighted © 2009 MCS America PAGE 13 Scientific Study Asthma May Be Linked to Toxic Exposures According to researchers, there may be a noteworthy relationship between asthma and chemical sensitivity. Equal percentages of the population suffer from allergies and chemical sensitivity as separate illnesses. A survey showed that 13% of the population suffers from asthma while another 12% suffers from chemical sensitivity. Both conditions affect racial groups equally. Over a third of asthmatics also report symptoms of chemical sensitivity, with 38% suffering ill effects from scented products, such as perfumes, air fresheners, and other fragrances. More than 1 in 10 asthmatics also say their asthma was caused by an exposure to a toxic substance. Every day, Americans are exposed to a farrago of toxic substances found in the air, food, water, and consumer products. Some of these toxic substances are known toxics such as pesticides and industrial pollution. Others are hidden in commonly used products, such as fragrances. Fragrances are added to cleaners (laundry soap, glass cleaner, all purpose cleaner, etc.), personal care products (soap, shampoo, lotion, after shave, etc), laundry detergent, air fresheners, and many others. Fragrance companies do not disclose the ingredients used to create their scent under trade secret laws; however, tests have shown that a fragrance may contain as many as 5,000 toxic chemicals. Several of the chemicals discovered are classified as hazardous waste by the Environmental Protection Agency and less than 20% have actually been tested for human safety. Fragrance is ubiquitous in the environment, yet it is listed a primary trigger for both asthmatics and the chemically sensitive. Toxic chemicals are capable of damaging body tissues, impairing enzyme function, weakening the immune system, initiating brain swelling, and causing genetic alterations that impair normal liver detoxification. People injured in this way often become less able to eliminate the chemical loads placed on them in day-to-day living. Asthma is one result of this toxic onslaught. Chemical sensitivity is another. Other studies have correlated cancer, autism, and many other modern diseases and disorders to toxic exposure. Chemicals which have been tested have only been tested individually and scientists do not yet understand the complex interactions which occur when chemicals with similar or opposite properties are mixed with one another in the environment. Neither do scientists understand how these complex mixtures affect human health. Reference Caress SM, Steinemann AC. Asthma and chemical hypersensitivity: prevalence, etiology, and age of onset. Toxicol Ind Health. 2009 Feb;25(1):71-8. MCSA NEWS Copyrighted © 2009 MCS America PAGE 14 Stephen’s Healthy Housing Column Welcome to MCS: Time to Look at Your House as a System Stephen Collette, BBEC, LEED AP Stephen Collette is a Certified Building Biology Environmental Consultant (BBEC). This lengthy certification analyses the built environment and how it impacts people’s health. Stephen was a natural builder for 5 years specializing in straw bale construction. Stephen has an engineering background and training which enables him to understand the various processes occurring within the home and how they can interact. Applying these skills and knowledge to the standard home and small office enables Your Healthy House to find the reasons for poor indoor air quality and to create solutions to help create your healthy house. Stephen Collette is a Leadership in Energy and Environmental Design - Accredited Professional (LEED AP), which allows Stephen to use the Canada Green Building Council’s guidelines and method to ensure a quantitative approach to building green. MCSA NEWS Copyrighted © 2009 MCS America PAGE 15 Welcome to MCS: Time to Look at Your House as a System Introduction “A better understanding of your House as a System will help you prevent potential building failure.” MCSA For many people who have had MCS for some time, they have slowly made their living space their sanctuary. For those who are newly diagnosed, things are going to be different, and need to be for you to stay as well as possible. That means looking at your home in a different light. This series of articles will walk through the kinds of elements that I look for in a healthy house and where the potential problems may lie. We will focus on the sneaky things that you may have missed in your own process. Your House as a System upon it, such as wind, water, sun, heat, and cold. We also have a dramatically damaging element on the inside that does more damage to a building than anything else, and that is the occupants. We throw tremendous amounts of water, heat, chemicals, and poor judgment at a house and expect it to perform under all situations. This, however, is a challenge. We must remember that the house does in fact operate as a system. If you change this dynamic interplay between indoors and outside by altering an element, such as windows, there is a cause and effect. Initially this would be the warmer winters, less heat loss, and air movement. However, there are other effects that the installer does not mention, such as the elevated moisture levels in the house because now the moisture you generate no longer escapes around the leaky windows as it has in the past. Understanding how your house works, as a system is a critical component to making it work for you and to be able to keep at bay the elements that might impact you from outside and inside. A better understanding of your House as a System will help you When we hire someone to come and fix something in the house, we typically prevent potential building failure. hire a specialist who knows a lot about Consider your house very the area of concern, such as a roofer, a much like another layer of plumber, an HVAC technician or a yourself. It really is our window installer. They understand third layer, with the first how their products and skills can help being our skin, the second improve your home, but they don’t our clothes and our home necessarily understand how their prodis the third. The house is uct interacts with the rest of the buildan interactive structure, ing and what impact the changes they with various elements out- make could have on other components side of the house acting of your house. NEWS Copyrighted © 2009 MCS America PAGE 16 “The House as a System approach also deals with how the house just functions from day to day or from occupant to occupant.” Let’s take a standard example that we started with above. A 1950’s house with a mid efficiency furnace located in the basement (heating climate) and old slider windows. The homeowners want to do their part for the environment and save some money by upgrading these two standard elements. Since the change they have had massive amounts of condensation upstairs and are seeing mould growth in the basement that they never had before. What has happened? What has happened is that the former mid efficiency furnace used to take air from the basement, heat and condition it, and move it around the house. The new high efficiency furnace now takes air from outside, not the basement, and therefore there is less air movement in the basement. With less conditioning of the air in the basement there is more moisture and stale air, which can support mould growth. The windows upstairs used to leak all of the moist air from showers, laundry, and breathing. Since this moisture can no longer escape, condensation forms on the windows. Since neither the window installer nor the HVAC technician mentioned to the homeowners that these effects might happen, the homeowner has no one to turn to, who can explain all the changes. The trades people often don’t mention that a dehumidifier would be required in the basement during the cooling season or that an HRV (Heat Recovery Ventilator) would have made the homeowner much happier and satisfied with their MCSA service. Unfortunately, this scenario is more common than you can imagine. It happens with all areas of the building, due to a lack of House as a System understanding by the various trades. The House as a System approach also deals with how the house just functions from day to day or from occupant to occupant. Consider the moisture generated in a house with an elderly couple versus a young family. The retired couple might do laundry once a week, do minimal cooking and showering, thereby not creating a large moisture impact upon the house. A young family in the same home, however, might have teenagers taking long showers, lots of laundry, and dishwashing which create a significantly larger moisture impact upon the house. The same house under different parameters can create situations in which moisture and potential mold develop that were not a problem for the former owners. In a heating climate (more heating days than cooling days within a year) there is more moisture on the inside trying to get out. In a cooling climate (more cooling days than heating days within a year) there is more moisture on the outside trying to get in. For those areas in the middle band of comfort, moisture largely depends on the construction, location, and occupants. Controlling this moisture and ensuring that it moves through the wall system safely and doesn’t create a potential problem with condensation can be a bigger challenge than many realize. This is why just slapping up some walls for an addition or finishing off your basement can in fact create a detrimental situation instead of a positive one. NEWS Copyrighted © 2009 MCS America PAGE 17 The movement of air, moisture, and thermal energy all work together within the space of our walls and ceiling in a remarkable manner. For myself, located in Ontario, we have temperatures dropping down to -30C (-22F) and we have the equivalent of driving to Florida inside my walls as the temperature goes up on the inside to 18C (64F). That’s pretty remarkable capacity that the walls can deal with when we think of buildings dealing with such a dynamic change in conditions. Building Pressure Building pressure is another issue that plays inside homes. This is the chimney effect or stack effect, whereby the house becomes pressurized by the air inside of it. Hot air rises, and cool air falls. Our basements and lower levels are cooler as warm outside air enters through the rim joists, cracks around windows and other leakage points. The air then warms up, becomes buoyant, and rises. As it rises, it expands and pressurizes the house. This is why upper floors can keep out exterior odors better, because the spaces are more positively pressurized, compared to the lower levels. This air then leaves the house through the attic hatch, leaky windows, and around light fixtures. You can improve air quality and energy efficiency by sealing up any of these areas, as it will reduce exfiltration (exiting of your conditioned air) and infiltration (dirty dusty, yucky air coming into the house). Of course the outside also plays a part with wind loads on the house. And, the difference in temperature between inside and outside can amplify the pressure inside the house. Then add the mechanicals inside the house, with dryers and ex- MCSA haust vents drawing out, fresh air intakes, fireplace, and furnace chimneys and this can quickly become a challenge. Another example to help explain this situation: The house was a nice 1940’s story and a half plastered house. The upper floor had 3 bedrooms and a bathroom. The owner was a carpenter and did some work in the basement workshop area. The son had some allergies and the family was concerned as they also noticed some sort of film on the child’s walls. Turns out it was plaster dust from the basement, that would rise up through the house, and because the bedroom was on the east side (leeward side from the prevailing winds) this room was the endpoint for the airflow within the house when applying stack effect and wind effect upon the house. The homeowner built a shop for his work and stopped working in the basement, thereby reducing the exposure to the child all the way on the second floor. Buildings and how they operate change from season to season, and with temperature and wind loads even daily or hourly. The system is also affected by how you operate your house on the inside from the moisture generated, the temperature you keep it at, or the activities that are carried out in other parts of the house. It is a learning process to listen to the house and what it is telling you and how it operates that we can learn to live healthier lives within their secure walls. Stephen Collette is a Building Biology Environmental Consultant and LEED accredited professional, who owns Your Healthy House, and is living with his family in Lakefield, Ontario. www.yourhealthyhouse.ca NEWS Copyrighted © 2009 MCS America PAGE 18 Article AMA to Train Health Providers on Health Effects of Toxic Chemical Exposures "The AMA also will encourage the training of medical students, physicians and other health professionals on the human health effects of toxic chemical exposures." The 2008 Annual Meeting Highlights for the AMA House of Delegates Reference Committee on Amendments to the Constitution and Bylaws was recently published on the internet. Of immense interest was the statement declaring that, "The AMA also will encourage the training of medical students, physicians and other health professionals on the human health effects of toxic chemical exposures." While this sounds very honorable, it may or may not lead to better care for toxically injured people, such as those suffering from chemical injuries, multiple chemical sensitivity, autism, vaccine injuries, and chronic fatigue syndrome. In order for this statement to be meaningful, the AMA would have to be willing to accept advancing scientific evidence of chemical toxicity. Should the AMA deny this science, as is so commonly seen when industry debunks research studies, this declaration may indeed be useless. Claiming an exposure is too insignificant to cause any health effects has been a common way to deny toxic injury. In addition, physicians would need to be trained to believe their patients’ reports of injury and the relationship of certain exposures to symptoms. If physicians continue to simply dismiss patient reports as psychogenic, the truth will remain evasive. If, on the other hand, the AMA takes new research and patient reports seriously, this may be the beginning of improved health care. Many illness are linked to environmental exposure, including cancer, asthma, allergies, autism, chronic fatigue syndrome, chemical sensitivity, Parkinson’s, Alzheimer's, and more. A shift toward recognizing how toxic exosure impacts human health would be meaningful in terms of improving the health of the injured and avoiding toxic injury for the masses through education and stricter regulations. MCSA NEWS Copyrighted © 2009 MCS America PAGE 19 “This is most discouraging and lends to doubt as to whether the AMA will actually recognize true toxic exposures.” MCSA The same declaration adopts a policy to “recognize that insufficient evidence exists to specifically restrict use of high fructose corn syrup or other fructosecontaining sweeteners in the food supply, or to require the use of warning labels on products containing high fructose corn syrup.” This is most discouraging and lends to doubt as to whether the AMA will actually recognize true toxic exposures and “encourage the training of medical students, physicians and other health professionals on the human health effects of toxic chemical exposures.” The full resolution on toxics education states: “The AMA resolved to call upon the federal government to implement a comprehensive chemicals policy that is in line with current scientific knowledge on human and environmental health, and that requires a full evaluation of the health impacts of both newly developed and industrial chemicals now in use. The AMA also will support the restructuring of the Toxic Substances Control Act to help federal and state agencies reduce the use of industrial chemicals, and efficiently assess the human and environmental health hazards that result from them. In addition, the AMA will support the Strategic Approach to International Chemicals process leading to the sound management of chemicals throughout their lifecycle so that by 2020 chemicals are used and produced in ways that minimize adverse effects on human health and the environment. The AMA also will encourage the training of medical students, physicians and other health professionals on the human health effects of toxic chemical exposures.” Reference 2008 Annual Meeting Highlights for the AMA House of DelegatesReference Committee on Amendmentsto the Constitution and Bylaws. 2008. American Medical Association. Retrieved on September 14, 2009 from http://www.ama-assn.org/ama1/pub/upload/mm/471/refcomhighlights.pdf NEWS Copyrighted © 2009 MCS America PAGE 20 Q&A Cell Phones Proven Dangerous Public concern over the dangers of cell netic hypersensitivity (EHS) to a loss of phone radiation and microwave emis- fertility and an increased risk of getting sions is at an all time high. cancer,” says Goldsworthy. “There is a consistent increased risk for glioma and acoustic neuroma after 10 years of mobile phone use.” MCSA Scientists evaluated current scientific evidence for long-term mobile phone use. There is a consistent increased risk for glioma and acoustic neuroma after 10 years of mobile phone use. People who suffer from electrosensitivity have much higher natural rates of calcium leakage. “Since their leakage rates are already high, even small amounts of electromagnetic radiation that would not affect non-sensitive indiScientists Hardella and colleagues now viduals can trigger their symptoms,” says conclude that, “Current standard for Goldsworthy. exposure to microwaves during mobile phone use is not safe for long-term Symptoms of electrosensitivity include exposure and needs to be revised.” unusual feelings of heat, touch, pressure, crawling sensations, pins and needles, Andrew Goldsworthy, a retired Lec- dizziness, nausea, and pain. turer in Biology at the Imperial College London, says, “Cell phone signals have Goldsworthy asserts, “EHS may become to be “modulated” if they are to carry a major problem for us all. Although information such as speech and the only a few percent of the population are various control signals needed to make at present electrosensitive, the condithe system work. Most digital modula- tion can be brought on in hitherto tion systems involve sharp changes in healthy people by repeated or prosignal strength. These occur over a longed exposure to the radiation. Howwide range of frequencies, some of ever, it sometimes takes many years to which are biologically active. Further- develop so, even if you are currently more, they occur at radiation levels one of the lucky ones who are not afmany orders of magnitude lower than fected, there is no guarantee that it will those specified by guidelines. These stay that way.” guidelines are therefore set far too high to protect us from modulated ra- Electrosensitivity is a growing problem diation.” and has already been given a special month by Colorado, Broward County Signals are usually thought of as dan- Florida, and Connecticut in the U.S. gerous only when they provide heat. Now there is evidence that signals Reference which do not produce heat, including Hardella, L, Carlberga, M, Mildb, KH. cell phone signals, can cause calcium Epidemiological evidence for an associaleakage in brain cells. “This in turn can tion between use of wireless phones and produce all sorts of unwanted biologi- tumor diseases. Pathophysiology. August cal effects, ranging from electromag- 2009;16(2-3):113-122. NEWS Copyrighted © 2009 MCS America PAGE 21 News Gene Responsible for Chronic Fatigue Syndrome Identified “Light explains that there is a gene that produces a protein which tells the muscles when they are too tired to keep working.” In recent news, Alan Light, a research professor in the anesthesiology department, dispels the myth that chronic fatigue syndrome (CFS) is mere laziness. Chronic fatigue syndrome (CFS) is characterized by disabling fatigue, unrefreshing sleep, headaches, depression, cognitive dysfunction, and body pain. More than 4 million Americans suffer from CFS. While more frequent in women aged 40-59 years, people of all ages, ethnicities, economic statuses, and both sexes may develop CFS. Light explains that there is a gene that produces a protein which tells the muscles when they are too tired to keep working. When this gene signals, people feel fatigued and are encouraged to rest. mal people, these proteins are limited; however, in people with CFS these proteins increase rapidly and induce a feeling of exhaustion. Though graded exercise therapy is often recommended for people with CFS, this finding shows that exercise is extremely counter-productive for people with CFS. Light’s research does not identify what causes this gene to suddenly malfunction in previously healthy people, though he hopes that CFS will now be viewed as an actual disease. Even more importantly, a simple genetic test could identify chronic fatigue syndrome for diagnostic purposes. Other research has linked vaccinations, toxic environmental exposures, and various infections as triggers of CFS. Toxic exposures may act to alter geHowever, in persons with chronic netic constitution. Vaccines may act to fatigue syndrome, this gene signals sensitize the immune system. the muscles too early. This leads to fatigue and exhaustion at much There is now sufficient evidence that lower levels of activity than most of chronic fatigue syndrome is real and disabling. us experience. Exercise acts to increase proteins Light’s research may lead to potential which signal muscles fatigue. In nor- treatments for CFS. MCSA NEWS Copyrighted © 2009 MCS America PAGE 22 Science Hep B Vaccine Triples Risk of Autism “Studies have found links between the hepatitis B vaccine and ear infections, arthritis, throat inflammation, and the need for special education services.” MCSA Since 1991, vaccination with hepatitis months. The CDC recommends that B vaccine has been recommended for the first dose of hepatitis B vaccine be given at birth. all newborns. The vaccine contains aluminum hydroxide which is injected as a part of the vaccine. The material safety data sheet for aluminum hydroxide states, “Harmful if swallowed. May cause irritation. Avoid breathing vapors, or dusts. Use with adequate ventilation. Avoid contact with eyes, skin, and Scientists have now found that male clothes. Wash thoroughly after hanbabies vaccinated with the hepatitis B dling. Keep container closed.” vaccine have triple the risk of developing autism when compared to un- Some research has shown that certain vaccinated boys and those vaccinated people are not able to metabolize aluminum hydroxide as previously though. at an older age. The adjuvant is then stored in the musThe risk of autism increases with ad- cle tissue where it can lead to muscular ministration of the hepatitis B shot degenerative diseases. and is greatest for non-Caucasians. Thimerosal has also been found in Hepatitis B is liver disease caused by a some formulations of the hepatitis B virus and transmitted via body fluids. vaccine. Thimerosal is a mercury comThe virus leads to liver inflammation pound that has been linked to neuroand may result in liver cancer, liver toxicity and is widely in question as a failure, and kidney disease if un- potential cause of autism. treated. Neither thimerosal or aluminum hySymptoms include: droxide has been investigated for huAbdominal pain man safety since the 1920’s. At that Dark urine time, investigation was limited to a sinJoint pain gle study. Loss of appetite Nausea and vomiting Reference Weakness and fatigue Yellowing of skin and the whites C. Gallagher, C, Goodman, M. Hepatiof eyes (jaundice) tis B Vaccination of Male Neonates and Hepatitis B vaccine is usually given as Autism. Annals of Epidemiology. 19 a series of several shots over several (9):659-659. The shot is frequently given on the day of birth, but has a questionable safety record. Studies have found links between the hepatitis B vaccine and ear infections, arthritis, throat inflammation, and the need for special education services. NEWS Copyrighted © 2009 MCS America PAGE 23 Scientific Study Mold Linked to Allergies “Molds can have devastating health effects.” MCSA A new scientific study confirms that mold odor near baseboards is correlated with childhood allergies and rhinitis. “There are consistent findings on associations between asthma and allergy symptoms and residential mold and moisture,” says Hägerhed-Engman and colleagues. readily. Energy efficient hermetically sealed homes do not allow moisture to escape through adequate ventilation. Researchers say the only true way to determine if baseboard odor is linked to hidden mold problems is to take apart the baseboard and break into the wall and floor to look for visible moisMolds can have devastating health ef- ture damage. fects, particularly on young, developing children. Odor along baseboards Inadequate ventilation increases the may signify hidden moisture or mold risk of both mold discovery and the problems within the walls or founda- health effects of any existing mold. tion of a building. Keeping a home dry and well ventilated Mold and dampness is linked to many decreases the chance of mold. A dehealth problems, including respiratory humidifier may be useful in humid clidisease, asthma, allergies, immune dis- mates and damp places such as laundry ease, behavioral disorders, and toxic rooms and bathrooms. Checking regupoisoning. Occupying a moldy building larly for leaks and replacing any water nearly doubles the chance of asthma. damaged building materials promptly will reduce the chances of mold taking Molds are both a biotoxin and an al- hold. lergen. Allergic symptoms of mold exposure include congestion, sneezing, Should mold illness occur, prompt watery eyes, sore throat, cough, skin medical attention should be sought. It irritation, headache, fatigue, and light is crucial to relocate until mold remesensitivity. Toxic mold exposure symp- diation has been completed. Contintoms include neurological disorders, ued exposure to mold can cause worsbehavioral changes, chronic fatigue, ening health over time. and chemical sensitivity. Reference There are many different kinds of bacteria, fungi, and spores which grow on Hägerhed-Engman L, Sigsgaard T, nearly any surface under the right Samuelson I, Sundell J, Janson S, Borneconditions. Moist places, such as air hag CG. Low home ventilation rate in ducts, ceilings, and plumbing enclo- combination with moldy odor from the sures are most problematic. Home- building structure increase the risk for owners frequently neglect regular allergic symptoms in children. Indoor cleaning of these out-of-reach places Air. 2009 Jun;19(3):184-92. Epub 2009 and mold can develop and fester quite Mar 9. NEWS Copyrighted © 2009 MCS America PAGE 24 Science Vaccines, Infections, & Consumer Goods May Lead to Chronic Fatigue Syndrome “Vaccination is depicted as playing an important role in CFS onset.” Once thought to be “yuppie flu”, scientists have now confirmed that chronic fatigue syndrome (CFS) is most likely a deregulation of the immune system influenced by specific toxic agents, such as infections, vaccination, and consumer products. linked to CFS. There is also notable overlap between CFS and other autoimmune and infectious diseases. Ortega-Hernandez says, “Autoantibodies commonly described in some autoimmune diseases have been found in CFS patients as well.” Autoimmune diseases arise from an immune response attack against the body’s own cells. In a few cases, depression may be reactionary in terms of grief suffered as a result of the severe life changes illness presents. Ortega-Hernandez concludes that “evidence suggests that CFS is a complex disease in which several risk factors might interact to cause its full expression. Thus, although different alterations have been found in CFS paChronic fatigue syndrome (CFS) is tients, undoubtedly the main feature is characterized by disabling fatigue, un- central nervous system involvement refreshing sleep, headaches, depres- with immunological alterations.” sion, cognitive dysfunction, and body pain. More than 4 million Americans He also proposes a new term, neurosuffer from CFS. While more fre- psycho-immunology, with the view that quent in women aged 40-59 years, immunological alterations are thought people of all ages, ethnicities, eco- to be associated with concomitant psynomic statuses, and both sexes may chological and health disturbances. develop CFS. Most others have labeled CFS a neuro“Vaccination is depicted as playing an endocrineimmune disorder, which is important role in CFS onset,” accord- viewed by many as more accurate ing to researcher Ortega-Hernandez since CFS is not psychological in cause. and colleagues. A case study confirmed a cause and effect link between The depression seen in some cases of a hepatitis B vaccination and silicon CFS is most likely due to endocrine breast implants leading to new onset and immune dysfunction and would chronic fatigue syndrome in a previ- resolve upon correcting endocrine and immune imbalances. ously healthy woman. Reference Ortega-Hernandez OD, Shoenfeld Y. Infection, vaccination, and autoantibodies in chronic fatigue syndrome, cause Certain infections which result in anti- or coincidence? Ann N Y Acad Sci. 2009 body production have also been Sep;1173:600-9. MCSA NEWS Copyrighted © 2009 MCS America PAGE 25 Resources Patient Support & Resources MCS Nebraska http://health.groups.yahoo.com/group/MCS-Nebraska Open to the general public residing in Nebraska to discuss support, MCSA Public ideas, information, announcements, and/or share personal activhttp://health.groups.yahoo.com/group/mcsa-public/ ism. No application is required. This list is operated in part by a Open to the general public open to discuss MCS, support, ideas, state subsidiary volunteer who resides in the state. information, announcements, news and activism. or subscribe at: MCS America Forums MCS America Members Activist/Support http://health.groups.yahoo.com/group/mcs-america-members-support MCS Michigan http://health.groups.yahoo.com/group/mcs-michigan Open to the general public residing in Michigan to discuss support, ideas, information, announcements, and/or share personal activism. No application is required. This list is operated in part by a state subsidiary volunteer who resides in the state. This group also fulfills the function of discuss support, ideas, information, announcements, and/or share personal activism like the MCSA-Pubic group, only with a closed membership that requires a membership application. This group also has the added benefit of being a place where individuals and other organizations and activists can engage in collaborative efforts with MCS America and being recipient to all the news feeds (see MCSA Feeds below). Members of this group are considered associate members of MCS America. Members do not operate MCS America in any way, but rather collaborate with the organization and are privy to some internal operations, activities, and events. 4Mom http://groups.yahoo.com/group/4MOM/ MCSA Feeds According to Mt. Sinai Medical School, there are many illness' http://health.groups.yahoo.com/group/mcsafeeds caused by toxic substances such as pesticides. They are studying the The purpose of this public access group is to receive daily distribu- role other toxins play on the new childhood diseases triggered by tion of news and research studies on multiple chemical sensitivity, environmental factors. They call this the new epidemic. Mothers of chemical injury, environmental concerns, and other related environ- Many is for all parents with children who are ill and are affected by mental illnesses and disorders. Anyone can join without an applica- toxic chemicals such as Attention Deficit Disorder, Asthma, Cancer, tion. Only the moderator posts to this group. This is not a discus- Autism, Tourettes Syndrome, Multiple Chemicals Sensitivities sion group. This group distributes about 15 articles on average (MCS), Parkinson's, and any other condition affected. each day. Bay Area MCS MCS Salvage and Share http://health.groups.yahoo.com/group/bayareamcslist/ http://health.groups.yahoo.com/group/MCSA-safer-salvage-and-share Classified ads and notices for people with MCS (Multiple Chemical A public access group similar to Freecycle, except it's a free recy- Sensitivity) in the San Francisco Bay Area. cling program for safer reusable's geared towards individuals with MCS, CFS, FM, and other related disabilities correlated with the CFS CFIDS ME environment. The purpose of this program is to find, give, and recy- http://health.groups.yahoo.com/group/CFS_CFIDS_ME/ cle needed "safe" or "safer" items. All items are exchanged for free. This Group is to promote friendly discussion about places where Shipping cost are arranged between donor and recipient. Anyone people have gone and feel more or less recovered from CFS/ME/ can join without an application. CFIDS. Support Forums Outside the MCS America Network Multiple Chemical Sensitivities and Toxic Injury http://groups.google.com/group/mcs-ti This is a small non-Yahoo based group open to the general public to discuss MCS, support, ideas, information, announcements, news and activism. MCS Hawaii http://health.groups.yahoo.com/group/mcs-hawaii Open to the general public residing in Hawaii to discuss support, ideas, information, announcements, and/or share personal activism. No application is required. This group is currently recipient to all the news feeds (see MCSA Feeds above). This list is operated in part by a state subsidiary volunteer who resides in the state. MCSA Chemical Disability Australasian NETwork http://groups.yahoo.com/group/CDANET/ A Discussion/Chat/Mutual help list run by and for the chemically disabled. CMCS-EI Christian MCS, CFS, FM, and EI Group http://health.groups.yahoo.com/group/CMCS-EI/ We are a Christian group who have invisible illnesses. Creative Canaries Community http://health.groups.yahoo.com/group/CreativeCanariesCommunity This group is an online meeting place for creative artists with Chemical Sensitivities. NEWS Copyrighted © 2009 MCS America PAGE 26 Detox http://health.groups.yahoo.com/group/mcs-america-membersLive Chat at the Health and Environment Resource Center support http://www.herc.org/chat "Detox" is a group to serve chemically injured, environmentally ill, This chat room is not associated with any group. It is unmoderated multiple chemical sensitivity, and related illness such as chronic fa- and no password is required. Chat Times: Saturday - 7 pm ET, 6 pm tigue, candidiasis, hypoglycemia, lupus, and others. CT, 5 pm Mtn, 4 pm Pac; Monday - 9 pm ET, 8 pm CT, 7 pm Mtn, 6 pm Pac; Wednesday - 8 pm ET, 7 pm CT, 6 pm Mtn, 5 pm Pac. Disinissues http://groups.yahoo.com/group/Disinissues/ MCS Canada The purpose of Disinissues is to share experience and advice about http://health.groups.yahoo.com/group/MCS-Canada/ the processes of obtaining and maintaining Social Security Disability This group was formed to assist patients and concerned parties from Insurance (SSDI), Supplemental Security Income (SSI), and long-term all nationalities learn to cope with environmental injury, including disability insurance. The group is targeted mainly towards those with disorders such as MCS,ME, CFS, FM, Lyme, Lupus, GWS, PPS, as invisible disabilities, such as CFIDS and other conditions not on So- well as related and associated illnesses. cial Security's Listing of Impairments. MCS Canadian Sources EMF Refugee http://groups.yahoo.com/group/MCS-CanadianSources http://health.groups.yahoo.com/group/emfrefugee/ MCS Canadian Sources is a support, information and resource exThis ML has been created with the intent of bringing refugees to- change for those living and coping with Multiple Chemical Sensitivity gether in countries around the world to form their own EMF-free (MCS), Environmental Illness (EI), or Chemical Injury (CI). communities in natural environments where they can heal and create healing environments for the Earth and others. MCS Photography http://health.groups.yahoo.com/group/MCSphotography/ Environmental Illness 001 MCS Photography is for those with multiple chemical sensitivity who http://health.groups.yahoo.com/group/environmental_illness001/ capture and share the world and their life through photography. This group is dedicated to curing / resolving all issues related to Environmental Illness, including but not limited to: Multiple Chemical MCS Recycle Sensitivity (MCS), Multiple Food Allergy, Leaky Gut Syndrome, Can- http://groups.yahoo.com/group/MCSRecycle/ dida, Epstein Barr Virus, Chronic Fatigue, Fibromyalgia, Heavy Metal The objective of this group is to be able to share with each other Poisoning, Porphyria, endocrine system dysregulation, etc. items that are chemical free and have been used in a non-toxic environment. This group is planet-wide. eSens - Electrical Sensitivity http://health.groups.yahoo.com/group/eSens/ MCS Safe Shelter USA Do you feel ill when you're near computers, cell phones, fluorescent http://health.groups.yahoo.com/group/mcssafeshelterusa/ lights, or wireless internet? If so, you may have "electrical sensitivity". Short-term and long-term housing for people with MCS (Multiple Chemical Sensitivity). Check our database for listings by state. Find Gasslist-L (Glutaraldehyde, Aldehyde, and Solvent Sensitiv- rentals, hotels, and housing to purchase. ity) http://www.ncchem.com/snftaas/gasslist.htm MCS Singles This list has been established to serve persons interested in Glutaral- http://groups.yahoo.com/group/mcs-singles dehyde, Aldehyde, and Solvent Sensitivity, especially darkroom per- Addresses the unique challenges of living alone without help as a sonnel, radiographers, and diagnostic medical sonographers. The single with MCS. Examines solutions, provides a place for general purpose of the list is to promote internet-wide exchange of research discussion, and is a resource for peer support. and information. MCS Survivors Green Canary http://communityzero.com/mcsurvivors http://groups.yahoo.com/group/GreenCanary For those who experience environmental illness or multiple chemical This list is dedicated to a life free from toxic chemicals, and the sensitivities (MCS), here is a place to gather, exchange ideas, links to health problems that they can cause. helpful websites, even have live chats. Enjoy! Immune http://immuneweb.org/lists/immune.html This is the list for support and information about multiple chemical sensitivities, chronic fatigue syndrome, fibromyalgia, lupus, multiple sclerosis, porphyria, allergies, asthma, and other immune-related ailments. Immune Parenting http://groups.yahoo.com/group/immune-parenting/ This list is for both men and women who have Multiple Chemical Sensitivity, Chronic Fatigue Syndrome, Fibromyalgia, autoimmune disorders, or other immune system medical issues--or their partners--who are parents, pregnant, trying to conceive, or who are thinking about parenthood. MCSA MCS Toxic Injuries http://health.groups.yahoo.com/group/MCS-Toxic-Injuries/ MCS-Toxic-Injuries is a self-moderated, secular, apolitical newsgroup for toxically-injured environmentally sensitive people to support one another and exchange coping methods, treatments and experiences. MCS Village http://health.groups.yahoo.com/group/MCSVillage/ The purpose of this group is to discuss the feasibility of building a village(s) or community in which MCS/EI patients can live safely, and to provide a forum to discuss the legal, medical, geographic, architectural, social and funding issues. NEWS Copyrighted © 2009 MCS America PAGE 27 MCS Writers Group http://health.groups.yahoo.com/group/mcswritersgroup/ A place for writers who have chemical sensitivities (or chemical injury) to share their stories and articles, work on and develop public writing skills, exchange editing skills and perspective, and develop ideas in order to bring awareness and education to the published world about what it is like to live with MCS/ES/CI/EI. Midwest Oasis MCS E-mail Support http://health.groups.yahoo.com/group/MO-MCS/ Midwest Oasis MCS E-mail Support is the e-mail arm of the Midwest Oasis MCS Support Group. Although people from all geographical areas are welcome to join, a partial focus of this list will be discussion of regional issues affecting MCS (Multiple Chemical Sensitivity) in Missouri and other Midwestern states. those diseases that fall under the tenth paradigm. They include: Chronic Fatigue Syndrome (CFS/CFIDS/M.E.), Multiple Chemical Sensitivity (MCS), Fibromyalgia (FM/FMS), Post-Traumatic Stress Disorder (PTSD), and Gulf War Syndrome (GWS). The Sanctuary http://www.mcs-international.org/phpBB3/ MCS-International.Org's Holistic Support Forums For sufferers of Multiple Chemical Sensitivity and all other forms of Chemical Injury and Environmental Illness. Toxics Discussion http://groups.yahoo.com/group/ToxicsDiscussion/ If you're keen on a toxics-safe future for the planet, then this is the discussion group for you. Toxics are defined here as naturally occurring or man-made chemicals (elements/compounds/mixtures) that Multiple Chemical Sensitivity (Chemical Sensitivity, Porphy- have a toxic effect. rin & CO) http://health.groups.yahoo.com/group/MultipleChemicalSensitivity/ WSMCSN (Washington State MCS Network) Discussion group where people afflicted with Chemical Sensitivity, http://groups.yahoo.com/group/WSMCSN Chronic Carbon Monoxide Poisoning &/or Disorders of Porphyrin WSMCSN is a decentralized network of groups and individuals in Metabolism can talk about their illness, inquire with others on avoid- Washington State who share information about the issues of Multiance, methods of cleaning & products one can use for necessary ple Chemical Sensitivity. hygiene. Additional Forum Listing Webpage Old Dominion MCS-FMS_CFIDS Support Group A Vir- http://ww.mcs-america.org/forums ginia Fibro MCS CFIDS Group http://health.groups.yahoo.com/group/OldDominionMCS-FMS_CFIDSsupportgroup/ Physician & Dentist Referral Lists Too many people in Va. have Fibromyalgia, Myofascial Pain Syndrome, CFIDS, Gulf War Syndrome (GWS), ES, and Multiple Chemical Sensitivity. The group owner wanted to create an informative, Physician Referral List by State supportive group for Virginians, and others. http://mcs-america.org/doctorlist.pdf Some of the physicians on this list specialize in MCS, others in FM Planet Thrive and CFS. It is recommended that patients and doctors consult with http://www.planetthrive.com/ A dynamic online community for those activity seeking answers and one another prior to beginning any treatment to ensure understandsupport for a variety of health concerns. A place where people ing of the patient’s needs and compatibility of patient and physician. around the world help each other get well and stay well. Sick Buildings http://health.groups.yahoo.com/group/sickbuildings/ Toxic molds are running rampant in our homes, offices and schools. Exposure to mycotoxins has been linked to the death of infants, as well as immune-compromised adults. Despite increasing reports of mold-induced illness and health problems associated with mold exposure, our public health agencies offer little, if any support or funding for research into this growing problem. Dentist Referral List by State http://mcs-america.org/dentistlist.pdf Some of the dentists on this list are specifically familiar with MCS, others are not. It is recommended that patients and dentists consult with one another prior to beginning any treatment to ensure understanding of the patient’s needs and compatibility of patient and dentist. Sprayno http://groups.yahoo.com/group/sprayno/ This is a list to exchange information regarding environmental issues in the northern suburbs and NY metro area focusing especially on encouraging activism in this area and educating the public about toxic Air Now Air Quality Reports effects of pesticide/herbicide usage. http://www.airnow.gov/ Air Quality Reports Tenth Paradigm Society http://health.groups.yahoo.com/group/TenthParadigmSociety/ The Tenth Paradigm Society mailing list is for the dissemination and discussion of information concerning the NO/ONOO- cycle mechanism, a new paradigm of human disease, proposed by Martin L. Pall, Ph.D. Dr. Pall adopted the term "Multisystem Illness" to describe MCSA EPA State and Regional Indoor Environments Contact Information http://www.epa.gov/iaq/whereyoulive.html The National Association of Clean Air Agencies 4 Cleaner Air http://www.4cleanair.org/ NEWS Copyrighted © 2009 MCS America PAGE 28 American Lung Association: State of the Air http://lungaction.org/reports/stateoftheair2007.htm Current Local & National Allergy Levels http://pollen.com/Pollen.com.asp Scorecard: Pollution Index by Area http://www.scorecard.org/ Household Mold brochure from Quebec government http://publications.msss.gouv.qc.ca/acrobat/f/documentation/2002/02214-01A.pdf ILRU: Understanding & Accommodating People with MCS in Everyday Living http://mcs-america.org/ilru.pdf Indoor Air Chemistry http://mcs-america.org/indoorair.pdf Toxmap Hazardous Waste Site Locations http://toxmap.nlm.nih.gov/toxmap/main/index.jsp Interior Design and MCS http://mcs-america.org/interior.pdf USA Smoke/Fire Pollution Map http://www.firedetect.noaa.gov/viewer.htm Jill Mellum: Breathe Easier, Hold the Fragrances Brochure http://mcs-america.org/fragrancefacts.pdf Antenna Search (USA) http://mcs-america.org/index_files/www.AntennaSearch.com MCS Homebuyer’s Questionnaire http://mcs-america.org/Homebuyer'sQuestionnaire.pdf EPA Safe Drinking Water Information by State http://www.epa.gov/safewater/dwinfo/ MCS Task Force of New Mexico Brochure http://mcs-america.org/newmexico.pdf EPA Radon Zone Map http://www.epa.gov/radon/zonemap.html MCS Public Accommodations http://www.nettally.com/prusty/PUBLIC% 20ACCOMMODATIONS.pdf MCS Statistics http://www.mcs-america.org/MCSStatistics.pdf Brochures No Scents Makes Sense Brochure http://www.nb.lung.ca/pdf/NoScentsMakeSense.pdf Air Fresheners & Plug-Ins http://mcs-america.org/airfresh.pdf Chemical in Air Fresheners Reduces Lung Function http://mcs-america.org/lung.pdf Consequences of Childhood Chemical Injury Poster By Margaret S. O’Nan http://mcs-america.org/onan.pdf Electrosensitivity Brochure by Kato Yasuko http://mcs-america.org/KatoYasukoElectrosensitivityBrochure.doc Theory on the Cause of MCS: Peroxynitrite and Nitric Oxide http://www.mcs-america.org/cause.pdf Understanding Multiple Chemical Sensitivity http://www.mcs-america.org/understanding.pdf Use of Baking Soda as a Fungicide http://mcs-america.org/fungicide.pdf Vaccine Poster - Are We Poisoning Our Children? http://www.generationrescue.org/pdf/080212.pdf Fabric Softener http://mcs-america.org/fabricsoftener.pdf Visiting a Person with MCS http://mcs-america.org/visiting.pdf Fragrances http://mcs-america.org/fragrances.pdf Grandma’s Cupboard: General Cleaning Solutions http://www.mcs-america.org/general.pdf What you should know before visiting a person who has NRLA and/or MCS http://mcs-america.org/VisitingNRLA-MCS.pdf Grandma’s Cupboard: Kitchen Cleaning http://www.mcs-america.org/kitchen.pdf Signs Grandma’s Cupboard: Personal Care http://www.mcs-america.org/personal.pdf Acute Toxic Effects of Fragrances Business Card http://mcs-america.org/acutetoxiceffectsoffragrancescard.pdf Grandma’s Cupboard: Laundry http://www.mcs-america.org/laundry.pdf Chemical Awareness Ribbon http://mcs-america.org/ribbon.gif MCSA NEWS Copyrighted © 2009 MCS America PAGE 29 Electrosensitivity Sign - Please Turn Off Your Cell Phone http://mcs-america.org/ KatoYasukoElectrosensitivtySignTurnOffYourCellPhone.pdf Request for Accommodations Under the Americans with Disabilities Act http://www.mcs-america.org/RequestforAccomodation.doc Facemask on Tweety http://mcs-america.org/tweety.jpg Public Service Announcements Fragrance Free Sign: Brooks University http://www.brocku.ca/oehs/graphics/Fragrance_Free_Sign.pdf Public Service Announcement #1 Air fresheners have been pulled off thousands of shelves nation-wide! http://www.mcs-america.org/AirFreshenerPSA1.pdf No Scents Makes Sense Sign http://mcs-america.org/scentssign.pdf Public Service Announcement #2 When you use fragranced products, did you know you are wearing toxic chemicals!? http://www.mcs-america.org/ WhenYouUseFragrancedProductsPSA2.pdf No Latex Sign by Jane Sagmoe http://mcs-america.org/nolatex.JPG You Could Be Next Sign http://mcs-america.org/nextsign.pdf Want to Put Your Friends and Family in Jail? http://mcs-america.org/jail.pdf Wood Smoke Trespass Flyer 8 1/2 x 11 http://mcs-america.org/woodsmokeflyer.pdf Activist Materials Fragrances on Mail and/or Catalogs http://mcs-america.org/ FragrancedMailCatalogBillsLetterforActivists.doc Air Freshener Use http://www.mcs-america.org/customairfreshenerletter.doc Use of Fragrance, Cologne, and Perfume http://mcs-america.org/UseofFragranceLetterforActivists.doc Fabric Softener Emissions http://www.mcs-america.org/LetterAboutFabricSoftener.doc Letter to State Representatives to Ban Woodsmoke http://mcs-america.org/woodsmoke.doc Letter to Doctors and Medical Boards Supporting MCS as a biological Illness (fully cited and scientifically supported) Website: http://mcs-america.org/MCSPositionStatement.htm PDF: http://mcs-america.org/MCSPositionStatement.pdf *This work is copyrighted. Permission granted for personal use in activism provided that original copyright and authorship are maintained. For permission to reprint, mail [email protected]. MCSA Public Service Announcement #3 Secondhand Fragrances are Like Secondhand Smoke! http://www.mcs-america.org/SecondHandFragrancesPSA3.pdf Public Service Announcement #4 Scented laundry detergents and fabric softeners pollute indoor and outdoor air! http://www.mcs-america.org/ScentedLaundryDetergentsPSA4.pdf Public Service Announcement #4 (SPANISH) Scented laundry detergents and fabric softeners pollute indoor and outdoor air! http://mcs-america.org/mcsamerica/ ScentedLaundryDetergentsPSA4Spanish.pdf Public Service Announcement #5 Wood Smoke... The Other Secondhand Smoke! http://www.mcs-america.org/WoodSmokePSA5BurningIssues.pdf Public Service Announcement #6 Fragrances undermine public health! http://www.mcs-america.org/FragrancesPSA6.pdf Public Service Announcement #7 Fragranced Laundry Products Pollute Our Air http://mcs-america.org/PSA7FragrancedLaundry.pdf Clothing & Novelties for Activism MCS America Store for the Environment http://www.mcs-america.org/MCSstore..htm Zona’s T-Shirts and Stuff Zone http://members.shaw.ca/zonaszone/shop/tshirts.html NEWS Copyrighted © 2009 MCS America PAGE 30 Virtual & Work-at-Home Jobs Guide, About .com http://beaguide.about.com/ Agent, Staffing at Home http://www.staffingathome.com/ Guide, ChaCha http://www.chacha.com/ Agent, West at Home http://www.westathome.com/ Home Agent, Convergys http://www.convergysworkathome.com/ Agent, Working Solutions http://www.workingsol.com/home.htm Independent Call Center Agent, LiveOps http://tinyurl.com/5xfv7n Bolger, PayPerPost.com http://payperpost.com/blogger_signup.html Telemarketing, Intrep Sales Partners http://www.intrep.com/ Call Center Representative, Accolade Support http://www.accoladesupport.com/ Online Juror, eJury.com http://www.ejury.com/ Call Center Representative, Overflow USA http://www.overflowusa.com/ Online Juror, OnlineVerdict.com http://onlineverdict.com/ Call Center Representative, Overflow USA http://www.overflowusa.com/ Online Juror,Trial Practice Inc. http://trialpractice.com/ Caller Employee, Customer Loyalty Concepts http://www.customloyal.com/Employment.aspx Third Party Verifier, BSG Payments LLC http://tinyurl.com/4vcldx Chef Instructor, Chefs Line http://www.chefsline.com/ Virtual Assistant,Virtual Office Temps http://virtualassistantjobs.com/ Customer Care,VIP Desk http://www.vipdesk.com/info/default.asp Virtual Services, Arise Virtual Solutions http://www.arise.com/Content/default.asp Customer Service, Alpine Access http://www.alpineaccess.com/external/index.html Writer, Associated Content http://www.associatedcontent.com/ Editor, EditFast.com http://www.editfast.com/ Writer, CyberEdit Inc. http://www.cyberedit.com/ Expert, JustAnswer Corp http://www.justanswer.com/ Writer, MyEssays.com http://www.myessays.com/sell.php Freelancer,Team Double-Click http://www.teamdoubleclick.com/freelance.html MCSA National Telecommuting Institute, Inc. http://www.nticentral.org/ NEWS Copyrighted © 2009 MCS America PAGE 31 Environmentally Safer Housing Seagoville Ecology Housing 15126 Beckett Road Allergy And Environmental Health Association Of Quebec Seagoville, Texas 75159 (AEHAQ) Environmentally Adapted, Social Housing Pro- (972) 287-2059 Fax: (972) 287-7682 ject For People Suffering From Environmental Sensitivities http://www.ehcd.com/resources/ecologyhousing.html http://www.aeha-quebec.ca/bb_housingproject.htm The Natural Place Environmental Residence and Hotel Barrhaven Non-Profit Housing Inc. 1962 NE 5th St. Environmental Sensitivity Units Deerfield Beach, FL 33441 Steepleview Crossing, 954-428-5438 3001 Jockvale Road, Nepean, Ontario, K2J 4E4 http://www.thenaturalplace.com/default.htm (613) 823-6230 Fax: (613) 825-7724 http://ehaontario.ca/barrhaven-housing.htm http://www.bnphi.org/es.htm Safer Building & Regulations Canada-wide Housing Connection 1-613-278-0463 http://ehaontario.ca/interview.htm Alliance for Healthy Homes http://www.afhh.org/ Ecology House, San Rafael, California (built in 1994) 375 Catalina Blvd San Rafael, CA 94901 (415) 456-4453 http://www.tikvah.com/cc/eh [email protected] Escalante House P.O. Box 652 Escalante UT 84726 Phone/Fax: (435) 826-4778 [email protected] American Lung Association: Resources & Referrals for and from the Master Home Environmentalist program. http://tinyurl.com/5vvk9e Architectural House Plans Healthy Homes Construction Guidelines Information: http://tinyurl.com/6dteuz Booklet: http://www.architecturalhouseplans.com/products/ Assessment of the Indoor Air Quality of a Suite for an Environmentally Hypersensitive Occupant http://mcs-america.org/IAQforanEIOccupant.pdf Environmentally Friendly Housing Partnership Pride and Joy Condos -- North 5685 South A1A Highway Melbourne Beach, FL 32951 (321) 409-8233 - Phone (321) 725 4883 -- FAX http://www.prideandjoycondos.com/ [email protected] Considerations For Safer Construction And Renovation By Preston Sturgis http://www.environmentalhealth.ca/w9394safer.html Dr. Grace Ziem’s Environmental Control Plan for MCS Patients http://www.mcsrr.org/resources/articles/S3.html The Eco Building Guild http://www.ecobuilding.org/ Green Homes for Sale http://greenhomesforsale.com/ The Effect of Housing on Individuals with Multiple Chemical Sensitivities http://tinyurl.com/6gor7u Safe Haven Community Housing P.O. Box 25281 Portland, Oregon 97298 [email protected] http://www.geocities.com/safehavencommunity/#ntact Building for Health Materials Center http://www.buildingforhealth.com/ The Pandora Initiative (Canada) http://tier10.com/ Environmental Home Center http://tinyurl.com/5ssv8a Quail Haven - MCS Housing Just North of Tucson, AZ Call Diane Ensign for details: May through January call: (406) 586-3658 (Montana). January through May call: (520) 825-7276 (Tucson). http://madelinx.tripod.com/ MCSA NEWS Copyrighted © 2009 MCS America PAGE 32 Heal Your Home Center http://tinyurl.com/6dteuz U.S. Department of Housing and Urban Development National Healthy Homes Conference http://www.hud.gov/offices/lead/2008NHHC.cfm The Healthy Housing Coalition: Basic Needs for Rental Housing for Chemically Sensitive Persons http://www.herc.org/hhc/Basicrentalneeds.html U.S. Department of Housing and Urban Development Healthy Housing Reference Manual http://tinyurl.com/5apna5 Healthy Housing Practical Tips http://tinyurl.com/5bfgzd Builders and Building Material Suppliers IEQ Indoor Environmental Quality http://ieq.nibs.org/ieq_project.pdf International Institute for Building Biology and Ecology http://www.buildingbiology.net/ LEED® Canada Green Building Rating System http://www.cagbc.org/leed/systems/index.htm The Medical Perspective on Environmental Sensitivities: Building codes, regulations and guidelines http://tinyurl.com/6ztmqh Moving House - Things To Look For If You Suffer From MCS http://www.drmyhill.co.uk/article.cfm?id=147 Multiple Chemical Sensitivity (MCS): The Controversy and Relation to Interior Design http://www.idec.org/publication/JIDarticleMCS.pdf Optimum Environments for Optimum Health &Creativity: Designing and Building a Healthy Home or Office, William J. Rea, M.D. http://www.ehcd.com/books/home_building_designing.html Recommended Architectural Features for Multi-Family Housing to Better Accommodate Chemical and Electrical Sensitivities, Susan Molloy, M.A, http://www.ctaz.com/~bhima/recommcshous.htm Research House for the Environmentally Hypersensitive http://tinyurl.com/5prrv3 Safer Construction Tips for the Environmentally Sensitive http://tinyurl.com/5tgx7l Green Building Store http://www.greenbuildingstore.co.uk/naturalpaints.php Healthy Buildings, Inc (Air Quality Testing) http://www.healthybuilding.com/html/about_us.html Heating and Cooling Options for the Environmentally Sensitive http://eiwellspring.org/HeatingAndCooling.htm Resources for the Chemically Injured: Building Materials http://www.lassentech.com/eibuld.html Tad Taylor’s Healthy Homes, LLC http://www.healthy-homes.com/ Other Housing Resources Extreme Home Makeover http://abc.go.com/primetime/xtremehome/index?pn=apply Ontario Human Rights Code: Policy and Guidelines on Disability and the Duty to Accommodate Non-Evident Disabilities http://tinyurl.com/6ejep8 Residential Rehabilitation Assistance Program for Persons with Disabilities (Canada). http://www.cmhc-schl.gc.ca/en/co/prfinas/prfinas_003.cfm Understanding & Accommodating People with Multiple Chemical Sensitivity in Independent Living, Chapter 4, The Housing Challenge in MCS http://www.ilru.org/html/publications/bookshelf/MCS.html#chapter4 Disclaimer This data is for informational purposes and is not intended to replace the examination, diagnosis and treatment of a licensed physician and no such claims are inferred. MCS America will not be responsible for misuse of this information or the misuse of any information provided by it’s member organizations. Articles, citations, links and information are not necessarily the opinion of MCS America and printing does not constitute MCS America’s endorsement. MCSA NEWS Copyrighted © 2009 MCS America PAGE 33 Community News Subscribe to News & Media Articles To receive free daily news and research feeds about MCS & the environment as they happen, send an e-mail to: [email protected] Fight Grows Over Labels on Household Cleaners http://www.nytimes.com/2009/09/17/business/energy-environment/17green.html?pagewanted=print Risks From Toxic Ingredients In Cosmetics, And Personal Care Products http://www.huffingtonpost.com/samuel-s-epstein/risks-from-toxic-ingredie_b_288780.html?view=print Mercury fears will make some pass on swine flu vaccine http://www.healthzone.ca/health/NewsFeatures/SwineFlu/article/697079 Sussex County school moving playground away from power lines, averts closure http://www.nj.com/news/index.ssf/2009/09/sussex_county_school_moving_pl.html EPA Awards UH Lead Role to Study Toxin Effects on Embryonic Development http://www.interestalert.com/story/08160004aaa04491.nw/pkreysa/HELTHSCI/health/science.html Davis Weighs Area's Stiffest Wood-Burning Ban http://www.news10.net/news/local/story.aspx?storyid=51694 NIH funds grantees focusing on epigenomics of human health and disease http://www.nih.gov/news/health/sep2009/od-16.htm Dangerous Pathogens Live in Showerheads http://dsc.discovery.com/news/2009/09/14/showerhead-pathogens.html Cell phones: Feds probing health impacts http://www.sciencenews.org/view/generic/id/47338/title/Cell_phones_Feds_probing_health_impacts Is swimming pool chlorine fueling the allergy epidemic? http://www.reuters.com/article/healthNews/idUSTRE58D32U20090914 U.S. senator promises look into cellphone-cancer link http://www.reuters.com/article/idUSTRE58D6AH20090914 MCSA NEWS Copyrighted © 2009 MCS America PAGE 34 Featured Research Studies Regional differences in residential environments and the association of dwellings and residential factors with the sick house syndrome: a nationwide cross-sectional questionnaire study in Japan. Kishi R, Saijo Y, Kanazawa A, Tanaka M, Yoshimura T, Chikara H, Takigawa T, Morimoto K, Nakayama K, Shibata E. Indoor Air. 2009 Jun;19(3):243-54. Epub 2009 Jan 19. Department of Public Health Sciences, Hokkaido University Graduate School of Medicine, Kitaku, Sapporo, Japan. [email protected] This study was conducted to clarify regional differences in residential factors and the association of those factors with dwellings having sick house syndrome (SHS) problems. The survey was conducted in six areas of northern and southern Japan. In terms of regional differences, dampness was not as severe in the dwellings in Sapporo as compared with that in areas in the south. SHS was defined using five categories of nasal, throat and respiratory, skin and general symptoms, which appeared frequently or not frequently and improved upon leaving the home. The dampness index was estimated by the sum of the presence of several indicators: condensation on the window panes and/or wall, visible mold growth, moldy odor, slow-drying wet towels in the bathroom, and water leakage. The dwellings where inhabitants showed any symptoms of SHS comprised 3.7% of all surveyed dwellings. We found significant associations between SHS and dampness index, odors, and stuffiness of the air. For dampness, the adjusted odds ratio (OR) increased with increased dampness index, adjusting for the age of the house, pets indoors, stuffiness of the air, and odors. These results showed an increased risk when several dampness indicators appeared simultaneously. PRACTICAL IMPLICATIONS: To evaluate the associations of residential environments and Sick House Syndrome (SHS), this cross-sectional questionnaire study was conducted on 2297 dwellings in six areas in Japan from 2003 to 2004. The dwellings where inhabitants showed any of nasal, throat and respiratory, skin and general symptoms comprised 3.7% of all surveyed dwellings, and an increased risk for SHS was found when several dampness indicators, 'condensation', 'visible mold growth', 'moldy odor', 'slow drying wet towels in the bathroom' and 'water leakage', appeared simultaneously. PMID: 19302505 [PubMed - indexed for MEDLINE] MCSA NEWS Copyrighted © 2009 MCS America PAGE 35 Mycotoxin Detection in Human Samples from Patients Exposed to Environmental Molds Dennis G. Hooper 1,* , Vincent E. Bolton 1, Frederick T. Guilford 2 and David C. Straus 3 Int J Mol Sci. 2009 April; 10(4): 1465–1475. Abstract The goal of this study was to determine if selected mycotoxins (trichothecenes, aflatoxins, and ochratoxins) could be extracted and identified in human tissue and body fluids from patients exposed to toxin producing molds in their environment. Human urine and methanol extracted tissues and sputum were examined. Trichothecenes were tested using competitive ELISA techniques. Aflatoxins B1, B2, G1, and G2, and ochratoxin A were tested by using immunoaffinity columns and fluorometry. Test sensitivity and specificity were determined. Levels of detection for the various mycotoxins varied from 0.2 ppb for trichothecenes, 1.0 ppb for aflatoxins, and 2.0 ppb for ochratoxins. Trichothecene levels varied in urine, sputum, and tissue biopsies (lung, liver, brain) from undetectable (<0.2 ppb) to levels up to 18 ppb. Aflatoxin levels from the same types of tissues varied from 1.0 to 5.0 ppb. Ochratoxins isolated in the same type of tissues varied from 2.0 ppb to > 10.0 ppb. Negative control patients had no detectable mycotoxins in their tissues or fluids. These data show that mycotoxins can be detected in body fluids and human tissue from patients exposed to mycotoxin producing molds in the environment, and demonstrate which human tissues or fluids are the most likely to yield positive results. MCSA NEWS Copyrighted © 2009 MCS America PAGE 36 Mitochondrial dysfunction, impaired oxidative-reduction activity, degeneration, and death in human neuronal and fetal cells induced by low-level exposure to thimerosal and other metal compounds D. A. Geier; P. G. King; M. R. Geier Toxicological & Environmental Chemistry, Volume 91, Issue 4 June 2009 , pages 735 - 749 Abstract Thimerosal (ethylmercurithiosalicylic acid), an ethylmercury (EtHg)-releasing compound (49.55% mercury (Hg)), was used in a range of medical products for more than 70 years. Of particular recent concern, routine administering of Thimerosalcontaining biologics/childhood vaccines have become significant sources of Hg exposure for some fetuses/infants. This study was undertaken to investigate cellular damage among in vitro human neuronal (SH-SY-5Y neuroblastoma and 1321N1 astrocytoma) and fetal (nontransformed) model systems using cell vitality assays and microscope-based digital image capture techniques to assess potential damage induced by Thimerosal and other metal compounds (aluminum (Al) sulfate, lead (Pb)(II) acetate, methylmercury (MeHg) hydroxide, and mercury (Hg)(II) chloride) where the cation was reported to exert adverse effects on developing cells. Thimerosal-associated cellular damage was also evaluated for similarity to pathophysiological findings observed in patients diagnosed with autistic disorders (ADs). Thimerosal-induced cellular damage as evidenced by concentration- and timedependent mitochondrial damage, reduced oxidative-reduction activity, cellular degeneration, and cell death in the in vitro human neuronal and fetal model systems studied. Thimerosal at low nanomolar (nM) concentrations induced significant cellular toxicity in human neuronal and fetal cells. Thimerosalinduced cytoxicity is similar to that observed in AD pathophysiologic studies. Thimerosal was found to be significantly more toxic than the other metal compounds examined. Future studies need to be conducted to evaluate additional mechanisms underlying Thimerosal-induced cellular damage and assess potential co-exposures to other compounds that may increase or decrease Thimerosal-mediated toxicity. This newsletter is for informational purposes and is not intended to replace the examination, diagnosis and treatment of a licensed physician and no such claims are inferred. Articles are not necessarily the opinion of MCS America and printing of others’ opinions does not constitute endorsement. MCS America, Lourdes Salvador, Directors, and associate members of MCS America will not be responsible for misuse of this information. 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