Our new `jewel` Opening of the Kay Jewelers Pavilion celebrates
Transcription
Our new `jewel` Opening of the Kay Jewelers Pavilion celebrates
summer 2015 serving children through philanthropy 4 Our new ‘jewel’ Opening of the Kay Jewelers Pavilion celebrates new beginning for Akron Children’s 14 Doing it her way A challenging condition can’t stop this ‘can-do’ girl AKRONCHILDRENS.ORG/GIVING 1 letter from the executive director Dear Friends, You can read more about the grand opening celebration in this edition of Children’s Progress. Other highlights include: There is perhaps no better symbol of the new day at Akron Children’s Hospital than the Kay Jewelers Pavilion, our new patient care facility on the Akron campus, which opened its doors May 5. The impact this facility will have on patient care is impossible to overstate. • • • You are part of it in ways great and small, and we thank you. The building features the Women’s Board of Akron Children’s Hospital Neonatal Intensive Care Unit (NICU) with 75 private rooms, a new emergency department, the GOJO Outpatient Surgery Center, and a labor and delivery center for high-risk births – the first such dedicated space in the hospital’s history. The inspiring story of Elizabeth Elder, an 11-year-old girl who takes on every challenge one step at a time. A look back on two decades of Akron Children’s Hospital Pediatrics. The champions honored for their work in the Mahoning Valley. We are privileged to work alongside such a strong community of supporters to help improve the health and wellness of children across northern Ohio. Thank you for all you do to further the mission of Akron Children’s Hospital. We can’t do what we do without you and we are so appreciative of the trust you place in us. foundation board members John D. Zoilo Executive Director Akron Children’s Hospital Foundation Officers Valerie A. Geiger Senior Vice President, Commercial Banking Chase Eveline Nordhauss President item North America William H. Considine President Patricia Grant President Women’s Board of Akron Children’s Hospital Mark W. Oelschlager Portfolio Manager Oak Associates Ltd. Michael P. Trainer Treasurer Gayle Gorman Green President Manairco Inc. Ernest Pouttu President and Chief Executive Officer Harwick Standard Distribution Corp. Raymond Hexamer CEO First Communication William F. Schumacher Senior Vice President and Market Leader Westfield Bank Jeffrey Hord, MD Director, Childhood Cancer and Blood Disorders Showers Family Center for Childhood Cancer and Blood Disorders Akron Children’s Hospital Walton A. Silver CEO Akrochem Corporation Philip H. Maynard Chairman Paul M. Dutton Secretary John D. Zoilo Executive Director Directors Frank Bevilacqua President/Co-owner Winer and Bevilacqua Paul Catania Senior Vice President Oswald Companies Linda Churchman President Friends of Akron Children’s Hospital Robert B. Cooper Director, Licensed Real Estate CB Richard Ellis Inc. Thomas R. Crowley Chairman of the Board Gasko Products (Retired) Charles C. Eddy Jr. President Chuck Eddy Automotive Group Charles Freeman First Vice President of Wealth Management Merrill Lynch Patrick James Chairman Hawthorn Manufacturing Corp. Kerwyn Jones, MD Chairman Akron Children’s Hospital Department of Orthopedics Robin Kane The Berlin Family Foundation Doug Kovatch President and CEO Kovatch Castings Inc. Kara H. Lewis President/Principal Winslow Asset Management Inc. Robert M. Littman, CPA, MT Director BDO, USA Gregory A. McDermott President FirstMerit Insurance Group James Sisek, Esq. President and CEO Farmers Trust Company Kevin Tichnell President Emerging Leaders of Akron Children’s Hospital Robert D. Trabucco Executive Vice President and CFO Sterling Jewelers Inc. Linda A. Venner Vice President Clampco Products Inc. Dennis Wieland Chief Financial Officer Summit Racing Equipment (Retired) Honorary Director Willard R. Holland Jr. Chairman and CEO FirstEnergy Corp. & Pennsylvania Power Co. (Retired) features 14 Doing it her way 18 04 Building on the Promise 06 Hospital News 09 Foundation News 10 Save the Date 14 Patient Features: -Elizabeth Elder - Joey Penko 21 Grants 22 Of Note 28 Memorial and Tribute Gifts Care to last a lifetime Akron Children’s Hospital embraces a philosophy of family-centered care. We believe that every child has the right to world-class medical care, regardless of a family’s ability to pay. Member, Children’s Hospital Association (CHA). Member, Children’s Miracle Network Hospitals children’s progress is published quarterly by the Akron Children’s Hospital Foundation One Perkins Square Akron, OH 44308-1062 330-543-8340 An Equal Opportunity Employer ©2015 Akron Children’s Hospital All rights reserved. President and CEO William H. Considine Executive Director, Foundation John D. Zoilo Editor Anne C. Merchant Contributing Writers Grabowski & Co. Julianne Mobilian Suzi Schenkenberger Contributing Photographers Lew Stamp Ted Stevens Gary Yasaki Graphic Design Grabowski & Co. Printing Star Printing Co. Inc. Akron Children’s Hospital realizes that individuals enjoy learning more about our services, programs and developments. We also fully respect the privacy of our patients. If you do not wish to receive fundraising materials from Akron Children’s Hospital, you may make the request by sending your name and address to the Akron Children’s Hospital Foundation, One Perkins Square, Akron, Ohio 44308. We will use our best efforts to honor such a request. departments from our cover Building on the Promise Village rents, ly with pa rked close gned every o w ff a st ital y desi other hosp ilion. The nd corridors, urses and Kay Jewelers Pav n sa , y a rs to rw c o o o d of the d esign our teams of d th id to pplies. w rs e su e f build g in on th and placement o in h ig e itects and w nny, even e rooms, ok and cra ess and size of th brightn It Takes a 1 orking Our new ‘jewel’ 31 Love person w years Pavilion celebrates new beginning for Akron Children’s = Kay Jewelers 00 of the 91,8oOpening f work hours our staff d to builAkron When Children’s Hospital celebrates, we go big. To date, $42.5 million has been raised toward the Building on the Promise campaign’s $60 million goal. As we prepared to open the doors of the Kay Jewelers Pavilion this spring, the entire hospital “family” helped us commemorate the momentous occasion. Four unique grand opening festivities throughout the month of April allowed donors, employees and community members to be a part of our history and the opening of our new 7-story, $180 million medical building. es baked 7,920 At an April 23 VIP event, more than 300 business leaders, hospital executives, donors and legislators participated in a ribbon-cutting ceremony. Local children’s groups performed, including Dance Unlimited, the hospital’s therapeutic dance program for children with special needs. k nd cupca cookiecos nsatruction workersThe events kicked off with the April 10 Donor Preview, for giving nearly 140 guests an exclusive first lookinat vesting the new facility their contributions helped build. As $ Pavilionmillion a result of their donations, the Kay Jewelers includes named areas such as the Women’s Board d al will ad the hospit of Akron Children’s Hospital Neonatal Intensive Care Unit (NICU), the GOJO Outpatient Surgery Center and eesthe Murdough Family Lobby. 4.6 Two days later, 4,000 employees and their families eagerly celebrated the next evolution of familycentered care at our hospital. In addition to games, treats, face painting and more, members from Akron Children’s Doggie Brigade™ were on hand to “mingle” with guests. 170 y lo new emp Promise on Our Building pport erous su t the gen u o h it w ners. possible orate part uldn’t be o rp o w c n d io n il lers Pav donors a Kay Jewe f our employees, o 1,615ibuted ntr ounds y Ab Generosit donors co ing new build ised ra n ig a p cam $ 42.5 million B IG G E S T G IF T $ To: h ildren’s Akron C ® From: elers K a y Jew ated yees don our emplo $ 10donmatiilolinon 3.8 million Finally, the April 26 Community Grand Opening event welcomed thousands of area residents of all ages into the Kay Jewelers Pavilion for its first public unveiling. Guests enjoyed giant board games and giveaways, crafts, a photo booth, face painting and high-energy entertainment by local kids. These celebrations led up to the culminating event on May 5, when Akron Children’s officially opened the doors of the Kay Jewelers Pavilion and started treating its first patients. “When we embarked upon this campaign several years ago, we knew the undertaking was immense and the work ahead of us would be great,” says Bill Considine, president and CEO of Akron Children’s. “However, I never doubted the giving spirit of this community and the belief it has in the great work that can be done when we come together to help better the lives of those most precious to us: our children.” 4 CHILDREN’S PROGRESS | SUMMER 2015 Mary Douglas, director of grants administration at the Akron Children’s Hospital Foundation, helped children play a life-sized checkers game during the employee open house. Jackie and Greg McDermott enjoyed a first look at the Kay Jewelers Pavilion during the April 10 Donor Preview. Bill Considine, president and CEO of Akron Children’s, joins Dance Unlimited during the April 23 VIP event. Children of all ages enjoyed the grand opening festivities. Watch the video ‘One new beginning’ Donors attending the April 10 preview event each received a copy of the video, “Extraordinary Stories & One New Beginning.” The video served as tribute to their vision in helping create a new beginning at Akron Children’s. AKRONCHILDRENS.ORG/GIVING 5 Scan the QR code to watch the video on Akron Children’s YouTube channel. hospital news Marilyn McGuckin 125th Anniversary Gala promises surprises Event celebrates anniversary of Akron Children’s Hospital “Elegant yet whimsical” is the best description of the upcoming Akron Children’s Hospital 125th Anniversary Gala. But members of the Akron Children’s Women’s Board aren’t giving away all the details. “We want guests to be surprised,” says Pat Grant, president of the Women’s Board. Fellow board member and event co-chair Eileen Benson says it will be “different than any other hospital celebration.” The gala will combine formal attire with a childlike joy that reflects our patients. Planned for Saturday, Sept. 12 on the hospital’s Akron campus, the event will have a guest list of approximately 1,000 people. Eileen hints at fun little twists that allow attendees to see through the eyes of kids. “There will be incredible and imaginative entertainment, colorful décor, and delicious and fun cuisine,” she says. “We want guests to see how special Akron Children’s is, including what it does for our community and the way it impacts children and families.” The gala is the combined effort of the Women’s Board, Akron Children’s Hospital Foundation and others. As they plan, it’s a time for reflection, too. Pat recalls how the hospital was founded by members of what became the first Women’s Board. “We’ve come full circle,” says Pat. “We started it, and now we’re celebrating it. Not many things last for 125 years, but Akron Children’s has. We’re all looking forward to what’s in store for the next 125.” Having fun while helping others Marilyn McGuckin reminisces about 30-plus years of ‘wonderful memories’ She left a legacy that continues to brighten the day of our patients and their families. At a time when many hospitals didn’t offer inclusive volunteer programs, Marilyn McGuckin joined Akron Children’s in 1983 as director of volunteer services. Her mission: To create and coordinate programs that promoted interaction between the staff, families and, most importantly, the kids. “The fact I had free access to do whatever I wanted to do as far as starting programs for the children [was both frightening and thrilling all at the same time],” says Marilyn, now retired. It was Marilyn who founded Akron Children’s Doggie Brigade™ in 1992. She also started the “Cookie Cart,” which provides patients with fresh-baked cookies at the bedside. And more than 30 years ago, Marilyn and a committee of volunteers created the very first Holiday Tree Festival. Today, these innovative programs and others continue to be an integral part of our culture and a reminder of Akron Children’s commitment to delivering outstanding care to kids. “I have wonderful memories of the things we did,” says Marilyn. “The programs put in, the fun we had and the things that all the volunteers could get together and do. I get a thrill every time I pass by.” Visit 125.akronchildrens.org to read the rest of Marilyn’s story, as well as those of other hospital and community members sharing their Akron Children’s stories of celebration and hope. For more information on the upcoming gala, please contact [email protected]. 6 CHILDREN’S PROGRESS | SUMMER 2015 Sprouting hope and gratitude Sculptures celebrate 125 years of community spirit and support When the doors to the Kay Jewelers Pavilion opened this spring, Akron Children’s also had another project blooming throughout northeast Ohio. In April, 25 colorful, larger-than-life metal flower sculptures commemorating our 125th anniversary popped up across the greater Akron region. We commissioned the vibrant creations on display at organizations, venues and businesses as a lasting gift to the communities we’ve been proud to serve since 1890. “Art has always been important to what we do and who we are at Akron Children’s Hospital,” says Andrea Joliet, director of corporate communications. “We especially love and appreciate art that depicts life through the eyes of a child, so we’re proud to share these unique creations with the children and families in our community.” The 7- to 9-foot tall sculptures, designed by Judith Spater and created by Stephen Canneto of Columbus, are springing up at places where families already love to visit, including the Akron Zoo, Akron-Summit County Public Library, Canal Park, Boettler Park in Green, Medina Square, Lock 3, First & Main in Hudson, Luigi’s Italian Restaurant, downtown Wadsworth, Stan Hywet Hall & Gardens, the Twinsburg Community Center and more. To see where a sculpture is “blooming” in your community, visit our 125th anniversary blog at 125.akronchildrens.org/community-art-sculpture-locations/. Help Akron Children’s continue to bloom and grow for another 125 years. To make a gift and join our celebration, visit akronchildrens.org/giving. Akron Children’s flower sculptures are popping up throughout the region in celebration of our 125th anniversary. AKRONCHILDRENS.ORG/GIVING 7 hospital news All grown up Akron Children’s Hospital Pediatrics turns 20 It started in 1995 with two offices in Fairlawn and Twinsburg. Twenty years and 11 counties later, Akron Children’s Hospital Pediatrics (ACHP) has grown into a cohesive network of 24 locations that offers pediatric primary care for babies, children and teens throughout northern Ohio. As thousands of families have come to appreciate the expert treatment, close-to-home locations and convenient office hours, ACHP has enabled Akron Children’s to improve healthcare access by bringing it to more children in new locations throughout the region. “The longevity and success of ACHP proves it’s one of the most important things Akron Children’s has ever done,” says Bob Howard, retired vice president of marketing, planning and public relations. As we celebrate ACHP’s success, we look forward to its future as it finds new ways to meet the demands of an evolving healthcare landscape. “We’ve added evening and weekend hours at most of our offices, and we also offer online access to medical records and scheduling,” says Ben Teske, ACHP operations director. “We’re constantly evaluating what we can do to meet and exceed our patients’ needs.” 24 “The longevity and success of ACHP proves it’s one of the most important things Akron Children’s has ever done.” 8 CHILDREN’S PROGRESS | SUMMER 2015 foundation news A night of ‘Champions’ Mahoning Valley celebrates its supporters – including Tod family – during annual event Honoring Mahoning Valley’s Champions: (from left) Dichel Owsley, David Tod II, John Zoilo, Sallie Tod Dutton, Paul Dutton and JoAnn Stock. On May 12, Akron Children’s Hospital Mahoning Valley honored those who go above and beyond to support their children’s hospital during the 5th annual Champions for Our Valley’s Children celebration dinner. Guests applauded progress in the Valley and recognized those who made it possible – donors, volunteers, staff and community partners. Among the honorees was the Tod family, who received the first-ever Champion for Our Valley’s Children Legacy Award. It’s a legacy that started more than a century ago. A century of devotion to healthcare Tod family members have donated their time, treasure and even their homes to support healthcare in the Mahoning Valley. In the early 1900s, Gov. David Tod of Ohio converted his Mahoning Valley home into a hospital. His children and grandchildren carried on this philanthropic spirit, creating a men’s ward at the former South Side Hospital. His grandson, John Tod, established a nurses’ residence for what is today Northside Medical Center. That nurses’ residence became Tod Children’s Hospital in 1972 – named in honor of John Tod. The family became impassioned advocates for pediatric care in the Valley. Fred Tod, John’s nephew, was one of the new pediatric hospital’s founders, and his wife, Nancy, served on its Woman’s Board for many years. Their daughter, Sallie Tod Dutton, became a member of the volunteer women’s group – the Tod Squad. Her cousin, David Tod II, also chaired the hospital’s annual golf outing for several years. AKRONCHILDRENS.ORG/GIVING 9 Commitment to the Mahoning Valley When Akron Children’s Hospital Mahoning Valley opened our Beeghly campus in Boardman in 2008 after Tod Children’s Hospital closed in 2007, the Tod family supported the hospital’s mission and vision. Family members also became active on hospital boards. The Tod family has also strongly supported the Clubs for Kids Golf Classic, which benefits Akron Children’s Hospital Mahoning Valley. The event has raised more than $200,000 in the past four years. The Tod family sponsors the Youth Clinic, which has become a signature portion of the event. “Our family always wanted to make a positive impact on our community,” says Sallie Tod Dutton. “Our children are our future. We’re proud to have a legacy of facilitating the best possible care for them.” Congratulations to our Champions for Our Valley’s Children honorees •Champion for Our Valley’s Children Award: Eleanor Watanakunakorn •Champions for Our Valley’s Children Legacy Award: The Tod Family •Children’s Advocate Award Honorees: Rescue Mission of the Mahoning Valley, St. Elizabeth Dental Clinic, Touched by Nathan Foundation and The Vindicator save the date 7th annual Miracles and Promises Radiothon Broadcast live from Akron Children’s Hospital Mahoning Valley Beeghly campus Sept. 23 to 25 • 6 a.m. to 6 p.m. Listen to Mix 98.9 or 570 WKBN to hear our patients’ stories of hope and healing. Plus, learn the many ways we’re making a difference in the community. All proceeds benefit local programs and services of Akron Children’s Hospital Mahoning Valley. Become a Miracle Maker Change Bandit, and help raise funds for Radiothon. For more information, call 330-746-9122 or visit www.miraclesandpromises.org. Make your meal a ‘Miracle’ Turn your night out into a night of giving. You can help restaurants throughout the Mahoning Valley raise funds for the 2015 Miracles and Promises Radiothon through the Miracle Meals program. When visiting one of the participating restaurants below, make sure to tell your server you’re there to support Akron Children’s Hospital Mahoning Valley. Visit akronchildrens.org/cms/miracle-meals to learn about upcoming events benefiting Akron Children’s. August Thursday, Aug. 27 Quaker Steak & Lube® Bike Night, Austintown 50/50 proceeds benefit Akron Children’s Hospital Mahoning Valley 5 – 9 p.m. September Thursday, Sept. 3 Chuck E. Cheese’s Miracle Meals, Boardman and Niles 15 percent of sales benefit Akron Children’s Hospital Mahoning Valley 3 – 9 p.m. Monday, Sept. 14, and Tuesday, Sept. 15 Menchie’s Frozen Yogurt, Boardman 20 percent of sales benefit Akron Children’s Hospital Mahoning Valley All day Thursday, Sept. 17 Quaker Steak & Lube Bike Night, Austintown 50/50 proceeds benefit Akron Children’s Hospital Mahoning Valley 5 – 9 p.m. Tuesday, Sept. 22 Buffalo Wild Wings®, Boardman Dueling Docs and Miracles and Promises Radiothon Kickoff 5 – 8 p.m. 10 CHILDREN’S PROGRESS | SUMMER 2015 Molly Norris and other northeast Ohio athletes are raising money for pediatric cancer patients this September through the “Lace Up” initiative. Lace Up 4 Pediatric Cancer Sales of gold shoelaces to raise funds during Childhood Cancer Awareness Month This September, Akron Children’s teams up with Go4theGoal to encourage young athletes to put their best foot forward and “Lace Up 4 Pediatric Cancer” to support the Showers Family Center for Childhood Cancer and Blood Disorders. 2015 Lace Up Athlete Advocate Molly Norris from Manchester High School is inviting other student athletes to get involved by doing the following activities in their communities: Each pair of laces costs $5, with 100 percent of the profits supporting the creation of a new teen program at the Showers Center. • Order laces for all your teammates. Last year, nearly 5,000 young people throughout northeast Ohio laced up and raised $25,000. • Designate a game to the cause and collect donations from tickets and/or concessions. • Encourage other athletes at your school to join. • Challenge your team’s rival to join you. • Post photos of your team wearing their gold laces, and spread the word via social media using hashtag #G4GAkronChildrens. • Promote “Lace Up” via flyers, your school’s fall athletic kick-off event, and with a PA announcement at the game. Get started today by contacting Nate Mulberg at [email protected] or 856-979-8384. AKRONCHILDRENS.ORG/GIVING 11 “It’s fun, easy and for a good cause,” says Molly. “I want to see gold laces everywhere this September!” save the date 2nd annual Emily’s Sparkle Sprint Race to raise funds for Pediatric Intensive Care Unit The 2nd annual Emily’s Sparkle Sprint, named in honor of former patient Emily Kungli (center), will benefit Akron Children’s PICU. Twelve-year-old Emily Kungli plans to be first at the starting line on Sept. 20 to kick off the 2nd annual Emily’s Sparkle Sprint. Named in her honor, this year’s event will include 15K, 10K and 5K races as well as a 1-mile Family Fun Walk that starts at Lock 3 and follows the Towpath Trail in Akron. Just 2 years ago, Emily was fighting for her life at Akron Children’s Hospital’s Pediatric Intensive Care Unit (PICU) after a mosquito bite left her with encephalitis. After headaches, high fever and confusion lead to seizures, Emily was placed in a medically induced coma for 12 days. Mom Gretchen Naumoff established the race as a fundraiser for the PICU to thank the doctors and nursing staff for bringing back “Emily’s sparkle.” She says, “No amount of money I can give the PICU would be enough. They gave me my daughter back.” The 2014 event had 250 participants and raised nearly $17,000. Gretchen hopes to double the number of participants with this year’s race. For more information or to sign up for the race, visit http:// emilysparklesprint2015. kintera.org/. When she finally recovered, she was surprised by the number of people who had bonded with her during her care. Michael Forbes, MD, FAAP, Emily’s pediatric critical care physician was one of the first strangers to greet her saying, “I know you don’t know who I am, but I need to hug you.” Dr. John Pope, associate director of pediatric critical care, traded his scrubs for a little “sparkle” to support the race. 12 CHILDREN’S PROGRESS | SUMMER 2015 2nd annual Rock for Kids Mahoning Valley bands ‘rock out’ to raise money for Akron Children’s The 2nd annual Rock for Kids music festival to benefit Akron Children’s Hospital Mahoning Valley takes place Sunday, Sept. 13, at Magic Tree Pub & Eatery in Boardman. From 11:30 a.m. to 8:30 p.m., festival-goers can enjoy great music, excellent food, raffles and the chance to make a difference in the lives of local children. Showcased bands include Aunt B, Christine Witt & Bobby Local bands come together to raise money for Akron Children’s Hospital Mahoning Valley. Fritz, Graphic Pink, Haymaker, The Acoustic Jones, The Gary Markasky Project, The Huckin’ Fillbillys and Wet Lemon. All proceeds will benefit Akron Children’s patients, programs and services in the Valley. Admission is $10 per person, and sponsorship packages are still available. For more information, visit www.akronchildrens.org/rockforkids, or call 330-746-9122. 4th annual Dancing for the Kids An evening benefitting patients with cancer and blood disorders On Oct. 16, a cadre of talented dancers again take center stage at the Akron Civic Theatre for the 4th annual Dancing for the Kids event to benefit the sickle cell program of the Showers Family Center for Childhood Cancer and Blood Disorders. Hosted by the Emerging Leaders of Akron Children’s Hospital, this family-friendly event pairs local celebrities with dancers from The University of Akron in a dance competition where the audience members cast their “votes” through donations. To date, Dancing for the Kids has raised more than $225,000 for the Showers Center. “Each year the community professionals and The University of Akron students collaborate to improve the show and make it even better,” says event chair Tricia Parianos. “I can’t wait to see the wonderful performances this year should bring.” Three guest judges will be on hand, including Justin Hilton, senior associate vice president for University Relations at Kent State University; Dr. Jeffrey Hord, director, division of hematology-oncology hemostasis and thrombosis center at Akron Children’s; and Stephanie York, director of communications and public relations at Akron General Medical Center. This year’s dancers include: • Dr. Prasad Bodas - Director, Sickle Cell and Leukemia Programs, pediatric hematologist/oncologist at Akron Children’s Hospital • Theresa Carter - President, OMNOVA Solutions Foundation • Anne Granchi - Vice President of Human Resources, Total Rewards, Goodyear • Susan Kirksey - Women’s Board at Akron Children’s Hospital • Don McCardle - Founder, McCardle’s Dance Studio • Dr. Michael Tefs - Superintendent, Wooster City Schools • Kristie Warner - Owner and Salon Manager, Gavin Scott Salon & Spa • Jordan Epps - Former Patient For more information about purchasing tickets or becoming an event sponsor, contact Machelle Syx at 330-543-0137 or [email protected]. AKRONCHILDRENS.ORG/GIVING 13 Doing it her way A challenging condition can’t stop this ‘can-do’ girl When Elizabeth Elder smiles, she lights up a room. An unthinkable diagnosis The 11-year-old from Canfield has a lot to smile about. After undergoing 10 years of therapy, 3 surgeries and relearning how to walk twice, she’s taking control of her life and learning how to do things her own way. Akron Children’s Hospital has helped her every step of the way. At 6 months, Laura and Tim noticed some troubling signs as their daughter grew. She would clench her left fist so hard it would take both parents to pry it open, and her left eye wouldn’t open as much as her right. “Our daughter wouldn’t be where she is today without Akron Children’s,” says Laura Elder, who with her husband, Tim, adopted Elizabeth when she was 4 days old. “The care we receive is phenomenal. Our doctors, surgeons, nurses and therapists – they’re all part of our extended family.” They took Elizabeth to Akron Children’s Hospital, where doctors discovered that she had suffered a stroke before she was born. It had caused permanent brain damage and manifested itself in cerebral palsy-like symptoms. “They told us that she may not walk, talk or even know us,” says Laura. “We said, ‘that’s not acceptable.’” Elizabeth overcomes obstacles every day to learn, live and play her own way. 14 CHILDREN’S PROGRESS | SUMMER 2015 Today, Laura says that the words “I can’t” no longer exist in the Elder household. AKRONCHILDRENS.ORG/GIVING 15 Since the pathways from her brain to the spine didn’t work correctly, her leg muscles received “muddled” signals, making them contract and become stiff, a condition known as spasticity. Walking and talking would be difficult, but not impossible. As the Elders soon learned, Elizabeth had a stubborn streak. Immediately after her diagnosis, she started physical and occupational therapy, beginning at St. Elizabeth Youngstown Hospital and then switching to Akron Children’s Hospital Mahoning Valley Beeghly campus in Boardman in 2011 when we began offering rehabilitative services. “All our therapists did a great job of making games out of the exercises,” notes Laura. “They were excellent teachers for us, too. We took whatever they did home with us. Every activity we do is therapy-based. She’s grown up knowing nothing else – going to the gym is playtime for her.” Elizabeth received her first leg braces at 18 months. By the time she was 4 years old, she began walking. But to be able to continue walking, she needed surgery to correct the nerve irregularities in her spine. An uphill journey During 3 successive summers from 2011 to 2013, Elizabeth had surgery in Akron to improve her spasticity. Recovery took roughly a month after each procedure, and learning how to walk again took even longer. During every admission, the Elders lived at the Ronald McDonald House of Akron for more than a month. “The people there were wonderful,” says Laura. “They went out of their way to make sure we were comfortable.” Another saving grace? Tank and Gracie, Elizabeth’s therapy dogs. “Therapy was so painful for her; there were days that she couldn’t walk,” says Laura. “The dogs helped her tremendously. They kept her calm and distracted her from the physical part. She improved every day.” Since her final surgery, Elizabeth has progressed by leaps and bounds. She takes weekly swimming lessons, which help with her balance and coordination, and enjoys flag twirling with Laura, who is a flagline advisor at South Range High School in Canfield. Elizabeth also graduated from physical and occupational therapy last fall, and she attends routine checkups every 3 to 6 months with her surgeons and physicians both in Akron and the Mahoning Valley. Today, Laura says that the words “I can’t” no longer exist in the Elder household. “She can do whatever she puts her mind to, it’s just on her own timeframe. We rejoice in all the wonderful things that she can do.” And what does the future hold for this “can-do” girl? “She’s a spitfire,” laughs Laura. “She’s very determined. We like to tell her that if you can’t do it the way everyone else does, find another way. She always does.” Help Ronald McDonald House of Akron make room for more families Each year, the Ronald McDonald House of Akron becomes a home away from home for nearly 13,000 people, just like the Elders. For a suggested donation of $10 a night, guests receive hot meals, lodging and a place of reprieve only a block away from their children and the hospital. Now, a new expansion project will shelter, comfort and support 3 times as many families as it currently serves – increasing 7,300 nightly stays a year to 21,900 in 2017. Help Ronald McDonald House of Akron make more room for our patients’ families. Contact Jeannette Andreski at 330-253-5400 or [email protected] to make a donation. 16 CHILDREN’S PROGRESS | SUMMER 2015 Laura (left) describes Elizabeth as a “spitfire,” determined to learn and live life her own way. Watch the video If Elizabeth’s story sounds familiar, it may be because you’ve seen it on TV. Elizabeth is one of several patients featured in Akron Children’s new TV commercials. Featuring Elizabeth, her physician and her parents – Tim and Laura – the video perfectly captures her story, her shining attitude and her indomitable spirit. AKRONCHILDRENS.ORG/GIVING 17 Scan the QR code to watch Elizabeth’s commercial on our 125th anniversary blog. Care to last a lifetime Nearly two decades of care creates a lifelong bond with local patient and his family For 19 years, Joey Penko has been on the path to better health thanks to his ‘family’ at Akron Children’s Hospital. When 19-year-old Joey Penko graduated from Copley High School in May, family and friends couldn’t wait to celebrate with him – including his extended family at Akron Children’s Hospital. Joey has been a patient at Akron Children’s Craniofacial Center since he was an infant. Born with a life-threatening craniofacial condition, it took a multidisciplinary team of pediatricians, plastic surgeons, speech pathologists, orthodontists and more to help Joey thrive from infancy to adolescence. “Akron Children’s forever changed our family,” says Joe Penko, Joey’s dad. “Not only did they save our son, they gave him a future.” Bringing hope to a desperate situation Joey was born with a condition called Pierre Robin Sequence. A cleft palate, an underdeveloped jaw and an obstructed airway, combined with complications from being born 6 weeks early, made it nearly impossible for him to breathe, and he was rapidly losing weight. “The hospital caring for him didn’t know what to do,” says Susan Penko, Joey’s mom. “At 5 weeks old, we were losing him.” The Penkos took Joey to Akron Children’s Craniofacial Center. James Lehman Jr., MD, the now-retired division director and co-founder of the center, uncovered the cause of Joey’s complications straightaway and admitted him to the pediatric intensive care unit (PICU) that day. “It felt like a switch had been flipped,” says Joe. “Dr. Lehman immediately put together a team of experts to save our son.” That day marked the beginning of a 19-year journey for Joey and his family, one that required numerous surgeries to correct his lower jaw, a tracheostomy to help him breathe, as well as a feeding tube placed in his stomach. “When Joey’s tracheostomy tube was removed before his second birthday, we had a huge party,” says Susan. “Our family and friends were there, as were many hospital staff members. It was a celebration for all of us.” Another challenge on Joey’s journey was helping him to talk and eat. With his condition, he never progressed through any “babbling” stages or learned how to drink through a bottle. The Penkos worked with Akron Children’s speech pathologists to overcome speech impairments and help him learn how to eat and like food. “He definitely doesn’t have that problem now,” laughs Joe. “He can eat more than me any day!” 18 CHILDREN’S PROGRESS | SUMMER 2015 “ Akron Children’s forever changed our family. Not only did they save our son, they gave him a future.” AKRONCHILDRENS.ORG/GIVING 19 You can help a child just like Joey The Penko family: (from left) Sue, Mandy, Joey and Joe. Continuing his journey Ananth Murthy, MD, FACS, director of plastic and reconstructive surgery and medical director of the Craniofacial Center, helps hundreds of craniofacial patients each year. Each year, Akron Children’s Craniofacial Center treats more than 500 infants, children and teens with facial and skull abnormalities. It’s the largest center of its kind in Ohio, and the need for its expert specialty services grows every day. Please consider supporting Akron Children’s Craniofacial Center, which will be named after its visionary and co-founder, James A. Lehman Jr., MD. Your gift will sustain the center’s ongoing growth while supporting its current and future patient needs. Today, friendly, affable Joey is enjoying life after high school. He loves working outside and exercising with his dog, Duke. He participates in a work training program and secured his first summer job. He also volunteers at Victory Gallop Therapeutic Equestrian Center, where he took riding lessons for 10 years. Akron Children’s remains an important part of Joey’s life. He still maintains yearly checkups at the hospital with his team of physicians, including Ananth Murthy, MD, FACS, director of plastic and reconstructive surgery and medical director of the Craniofacial Center. “Nineteen years ago, the staff at Akron Children’s were strangers to us,” says Joe. “Today, they’re some of our closest friends – they’re our heroes. The hospital changed our lives forever. They do the same for everyone who walks through their doors. It’s a very special place.” Contact Shelly Brown, senior major gifts officer, at 330-543-8900 to make your gift today. 20 CHILDREN’S PROGRESS | SUMMER 2015 grants Through the lens of a child LIVESTRONG grant unlocks a world of creative expression for cancer patients What happens when you give pediatric cancer patients a camera and the skills to use it? A gallery of selfexpressive photos that speaks volumes about how a child views the world. Thanks to a grant from the LIVESTRONG Foundation Community Impact Project, patients at Akron Children’s Showers Family Center for Childhood Cancer and Blood Disorders participated in the Pablove Shutterbugs photography program, which teaches kids living with cancer to develop their creative voice through the art of photography. Akron Children’s was 1 of just 15 sites nationally to qualify for the grant. “This program was an extraordinary opportunity to expand our patients’ perspective emotionally and creatively,” says Laura Gerak, PhD, psychologist at Akron Children’s. “It gave our kids another outlet outside of treatment. They really enjoyed being together and making a connection with others going through a similar situation.” Twenty-eight patients, ranging between ages 6 to 19 and in various stages of cancer treatment, completed the program. During 5 weeks of instruction, they learned a variety of photography techniques and received hands-on practice during field trips and athome assignments. “These kids have so much positive energy,” says Cynthia Penter, a local artist educator and one of 5 teachers participating in the program. “A program like this makes you realize how great the community really is – from the volunteers and families to the museum and hospital. It was wonderful to see how everyone came together to support them.” Each child received an electronic portfolio of their work, a framed photo and a camera to keep at the program. The 5 weeks also culminated with a photo gallery at the Akron Art Museum where each child had his or her best piece on display for a free public viewing. “It gave me a way to look at the world outside of the hospital … to look at how beautiful this earth is,” says 19-year-old patient Kaela Keller. “I was amazed how we could all take pictures of the same things yet see it and capture it so differently. Photography will always be part of my life.” AKRONCHILDRENS.ORG/GIVING 21 The Pablove Shutterbugs photography program gave pediatric cancer patients like 8-year-old Cael Williams the chance to develop their creative voice through photography. of note Publications Klingele, Journal of Pediatric Infectious Diseases, 2014 9:67-70. Doi: 10.3233/JPI-140415. Michael T. Bigham, MD, FCCM, Pediatric Intensive Care Physician, Medical Director – Transport Services, Department of Pediatrics, Division of Critical Care Medicine, wrote “Intubation in Pediatric/Neonatal Critical Care Transport: National Performance,” with A. M. Bigelow, M. D. Gothard and H. P. Schwartz, Prehosp Emerg Care, Feb. 9, 2015; “A Multibiomarker-Based Model for Estimating the Risk of Septic Acute Kidney Injury,” with H. R. Wong, N. Z. Cvijanovich, N. Anas, G. L. Allen, N. J. Thomas, S. L. Weiss, J. Fitzgerald, P. A. Checchia, K. Meyer, T. P. Shanley, M. Quasney, M. Hall, R. Gedeit, R. J. Freishtat, J. Nowak, S. S. Raj, S. Gertz, E. Dawson, K. Howard, K. Harmon, P. Lahni, E. Frank, K. W. Hart and C. J. Lindsell, Crit Care Med, May 8, 2015; “Quality Metrics in Neonatal and Pediatric Critical Care Transport: A National Delphi Project,” with H. P. Schwartz, P. J. Schoeettker, K. Meyer, M. S. Trautman and R. M. Insoft, on behalf of the American Academy of Pediatrics Section on Transport Medicine, Crit Care Med, on press June 2015. Joseph Congeni, MD, Director, Sports Medicine Center, wrote “The Relationship Between Adherence Behaviors and Recovery Time in Adolescents After a Sports-Related Concussion: An Observational Study,” with J. Reneker, H. Moor, R. Eisenhauer, N. Proudfoot, K. Killian and A. Henriques, International Journal of Sports Physical Therapy, on press March 2015; “SportsRelated Traumatic Brain Injury (Concussion),” chapter 688 with C. W. Liebig, MD, Nelson Textbook of Pediatrics, 2015, (20):3350-3352; “Cervical Spinal Injuries,” chapter 689 with J. Lockhart, Nelson Textbook of Pediatrics, 2015, (20):3352-3354. Sumru Bilge-Johnson, MD, Program Director, Child Psychiatry Fellowship Program, wrote “An Initial Prospective Exploration of Specific Stressors for Parents of Children Admitted to Inpatient Psychiatric Unit,” with E. Hisset, J Psychol Abnorm Child, Vol. 4, Issue 2. Doi: 10.4172/2329-9525.1000138. Kenneth Bono, MD, Orthopedic Surgeon, wrote “Pediatric Orthopaedic Infection Season: An Analysis of the Seasonal Variation of Pediatric Osteomyelitis and Septic Arthritis,” with K. E. Sarah Friebert, MD, Director, Palliative Care, wrote “Pediatric Palliative Care in the Community,” with J. Rubenstein, CA Cancer J Clin 2015; online May 7, Doi: 10.3322/ caac.21280; “Integrating Palliative Care,” with T. Dalberg, Quick Reference for Pediatric Oncology Clinicians: The Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom Management, 2015 (2): 325-334; “Research Priorities in Pediatric Palliative Care: a Delphi Study,” Journal of Pediatrics, 2015, pii: S0022-3476(15)00470-9. Doi: 10.1016/j. jpeds.2015.05.002. Jeffrey Hord, MD, Director, Division of Hematology-Oncology, Associate Chair for Subspecialty Practice Operations, wrote “Hematopoietic Growth Factors,” Supportive Care in Pediatric Oncology, (1), 2015; “Acquired Pancytopenias,” Nelson Textbook of Pediatrics, (20), 2015. 22 CHILDREN’S PROGRESS | SUMMER 2015 Kerwyn Jones, MD, Chairman, Department of Orthopedics, wrote “Gene Expression Differences Between Ruptured Anterior Cruciate Ligaments in Young Male and Female Subjects,” with J. S. Johnson, M. A. Morscher, S. M. Moen, C. J. Klonk, R. Jacquet and W. J. Landis, Bone Joint Surgery Am., Jan. 2015, 7;97(1):71-9. Doi: 10.2106/JBJS.N.00246; “The Impact of a Daily Pre-operative Surgical Huddle on Interruptions, Delays, and Surgeon Satisfaction in an Orthopedic Operating Room: A Prospective Study,” with A. l. Jain, J. Simon and M. D. Patterson, Patient Saf Surgery, Feb 21, 2015, 9:8. Doi: 10.1186/s13037-015-0057-6. eCollection 2015. Jyoti Krishna, MD, Director, Sleep Medicine, wrote a chapter titled “Chronic Insomnia Disorder: Concurrent Chronic Pain,” with V. M. Crabtree and D. Gozal, Case Book of Sleep Medicine 2nd Edition, pp 78-83, 2015. Starla G. Martinez, MD, Director, Medical Education, Pediatric Pulmonologist, wrote a case-based teaching module, “Regarding the Role of Immunizations in Promoting High-value Healthcare” for the High Value Care Board of Med-U website, July, 2015. Ann Stratton, CNP (Hematology-Oncology), Kristen Breedlove, PA-C (Heart Center), Dianne Kulasa-Luke, CNP (Neurology) and Julie Tsirambidis, CNP (Akron Children’s Hospital Pediatrics – Brecksville and Director, APP Center), wrote “Creating a Model for Professional Advancement,” Advance Healthcare Network for Nurse Practitioners and Physician Assistants, April 15, 2015. AKRONCHILDRENS.ORG/GIVING 23 Dennis Weiner, MD, Co-Director, Skeletal Dysplasia Center, wrote “Cartilage Hair Hypoplasia: Characteristics and Orthopaedic Manifestations” with P.M. Riley Jr., MD, B. Leighley, D. Jonah, D.H. Morton, K.A. Strauss, M.B. Bober and M.S. Dicintio in the Journal of Child Orthopedics, April, 2015 9(2):145-52. Doi: 10.1007/s11832-0150646-z. Epub 2015 Mar 13. Presentations Karen Ballard, MCM, BCC, Director of Chaplaincy, presented “Spirituality of the Child and Family Facing a Life-Threatening Illness and Care of the Team who Serves the Child and Family,” with S. Friebert, MD at the Oates Institute Spirituality in Palliative Care Conference, March, 2015. Michael T. Bigham, MD, FCCM, Pediatric Intensive Care Physician, Medical Director – Transport Services, Department of Pediatrics, Division of Critical Care Medicine, presented “Transport Quality Metrics: An Update,” at the Critical Care Transport Medical Conference, Charlotte, N.C., April 20, 2015. Prasad Bodas, MD, MHS, Director, Sickle Cell and Leukemia Programs, Pediatric HematologistOncologist, presented “Integrated Life Sciences Seminar II,” at NEOMED, April 2015; “Routine Healthcare for the Pediatric Patient with Sickle Cell Disease,” at the Annual Pediatric Update for the Practicing Physician, Akron Children’s Hospital, Akron, Ohio, April 15, 2015. of note Kenneth Bono, MD, Orthopedic Surgeon, presented “Preoperative Fears in Pediatric Orthopaedic Surgery Patients” at Mid-America Orthopaedic Association, Hilton Head Island, S.C., April 22-26, 2015. Ann-Marie Brown, PhD, CPNP-AC/PC, CCRN, FCCM, Lead Nurse Practitioner, Intensive Care, Fellow, American Academy of Pediatrics’ Society of Critical Care Medicine, presented “Feeding Critically Ill Children: Does It Make Impact Outcomes?” and moderated a session titled “Nutrition Issues in Pediatric Critical Care,” at the Society of Critical Care Medicine, Phoenix, Ariz., Jan., 2015; “Fast Food May Be Good For You: Nutrition Therapy in the PICU,” at MetroHealth Medical Center, Cleveland, Ohio, April, 2015. Blaise Cogeni, MD, Director, Division of Infectious Diseases, presented “Immunization Update” and “Emerging Infections” at the 25th Annual Dartmouth Pediatric Conference, Mount Washington, N.H., March 7-8, 2015; “Vaccine Refusal in Recent Outbreaks,” Ashland Country Public Health Day, Ashland, Ohio, April 8, 2015. Joseph Congeni, MD, Director, Sports Medicine Center, presented “Relationship Between Behaviors and Recovery Time in Adolescents After Sports-Related Concussion,” at Pediatric Research in Sports Medicine (PRISM), Weston, Fla., Feb. 20, 2015; “Impact of Infections on Sports,” “Back Pain in Young Athletes: Finding the Weakest Link,” “Foot/Ankle Examinations” and “Concussion Round Table,” at the 25th Dartmouth Pediatric Conference, Bretton Woods, N.H., March 7-8, 2015; “Introduction to Sports Medicine,” at NEOMED, Rootstown, Ohio, March 25, 2015; “More Questions than Answers,” at the Scioto County Medical Society, Greenbrier Conference, Portsmouth, Ohio, April 12, 2015. John Fargo, DO, Director, Divisional Quality Improvement, Pediatric Hematologist-Oncologist, presented a poster entitled “Adrenal Insufficiency in Patients with High-Risk Neuroblastoma,” with A. Stratton, CNP and T. Vaccerelli, at the 28th Annual Meeting of the American Society of Pediatric Hematology/Oncology, Phoenix, Ariz., May 2015. Sarah Friebert, MD, Director, Palliative Care, presented “Pediatric Palliative Care Program Development” and “Barking Up the Money Tree? Developing a Financial Case for Pediatric Palliative Care,” at the American Academy of Hospice and Palliative Medicine/Hospice and Palliative Nurses’ Association Annual Assembly, Philadelphia, Penn., February 2015; “Ethical Issues in Pediatric Palliative Care: Mind the Gap,” at Walsh University, North Canton, OH, April 2015; “Spirituality of the Child and Family Facing a Life-Threatening Illness and Care of the Team who Serves the Child and Family, “ (with K. Ballard, MCM, BCC) at the Oates Institute Spirituality in Palliative Care Conference, March, 2015. 24 CHILDREN’S PROGRESS | SUMMER 2015 Jeffrey Hord, MD, Director, Division of Hematology-Oncology, Associate Chair for Subspecialty Practice Operations, presented “Survey of the Landscape: Five Key Ways the Day-to-Day Practice/Life of Subspecialists are Changing,” at the AAP Subspecialty Summit, with L. Heitlinger, Schaumburg, Ill., March 11, 2015; “How to Become a Pediatric Hematologist Oncologist” and “Childhood Cancer Overview,” at the Heritage Osteopathic College of Medicine, Ohio University, March 30, 2015; “How To Become a Pediatric Hematologist Oncologist,” at Kent State University, Kent, Ohio, March 31, 2015; “Maintenance of Certification Learning Session” journal article review, “Results of the 2015 ASPHO Workforce Survey,” “Changes in the Pediatric Hematology Oncology Workforce” and “Diversity in the Pediatric Hematology Oncology Workforce,” at the 28th Annual Meeting of the American Society of Pediatric Hematology/ Oncology, Phoenix, Ariz., May 2015; a poster titled “Burden of Illness Among Persons with Hemophilia B: Direct and Indirect Costs,” with C. X. Chen, J. R. Baker, B. A. Konkle, M. Ullman, R. Kulkarni, M. Lou and M. B. Nichol, at the International Society of Thrombosis and Hemostasis, Toronto, Canada, June 2015. Kerwyn Jones, MD, Chairman, Department of Orthopedics, presented “College Athletes’ Perception of Anterior Cruciate Ligament Injuries and Subsequent Reconstruction” with M. Adamczyk and D. Bouton at Cleveland Orthopaedic Society, Cleveland, Ohio, February 7, 2015 and at Ohio Orthopaedic Society, Columbus, Ohio, May 14-15, 2015; moderated the Practice Management Break-out Session entitled “The Role of Physician Extenders in Pediatric Orthopaedic Practice” at the Pediatric AKRONCHILDRENS.ORG/GIVING 25 Orthopaedic Society of North America Meeting, Atlanta, Ga., April 29 – May 2, 2015. Jyoti Krishna, MD, Director, Sleep Medicine, presented “Changes in Polysomnography Results in Pediatric Patients with Mild Obstructive Sleep Apnea: Adenotonsillectomy vs. Watchful Waiting,” with S. J. Trosman, D.J. Eleff and S. Anne at the American Society of Pediatric Otolaryngology Annual Meeting, Boston, Mass., April 2015. Steven Kuerbitz, MD, Director, Bone Marrow Transplant Program, Director, Divisional Research and Stem Cell Transplantation, presented “Getting with the Program: Epigenetic Control in Stem Cells,” at the Global Stem Cell and Regenerative Medicine Education NEtWork (RENEW) program, Case Western Reserve University, Cleveland, Ohio, March 26, 2015; a poster titled “A Novel CpG Island-Focused Analysis of Genome-wide Methylation Profiling Data Indentifies Epigenetically Dysregulated Genes in Osteosarcomas,” with A. Sharma, at the 28th Annual Meeting of the American Society of Pediatric Hematology/Oncology, Phoenix, Ariz., May 2015. John Melville, MS, MD, Site Director, Child Advocacy Center, Child Protection and Child Abuse Prevention, presented “The Promise and Peril of Software Designed for Forensic Odontology,” at the American Society of Forensic Odontology Annual Meeting, Orlando, Fla., Feb. 17, 2015; “The Detection of Genital and Extragenital Neisseria Gonorrhoeae and Chlamydia Trachomatis in Children and Adolescents Evaluated for Sexual Abuse or Assault,” at the Helfer Society Annual Meeting, Savannah, Ga., April 22, 2015. of note Daniel Pettee, DO, Director, Solid Tumor Program, Pediatric Hematologist-Oncologist, presented “Pediatric Bleeding Disorders,” at St. Joseph Warren Hospital, Warren, Ohio, March 31, 2015. Stephanie Savelli, MD, Director, Cancer Survivorship Program, Pediatric Hematology/ Oncology Fellowship Program and Divisional Education, presented “Caring for the Adult Survivor of Childhood Cancer,” at St. Joseph Warren Hospital, Warren, Ohio, Feb. 16, 2015. Erin Teague, Clinical Dietician, Palliative Care, presented “Subjective Global Nutrition Assessment: The Nutrition Focused Physical Assessment,” at the Children’s Hospital Association, National Clinical Nutrition Manager Webinar Series, Akron, Ohio, March, 2015. Melissa Walter, CNP, Critical Care Nurse Practitioner, Division of Critical Care Medicine, presented “Objectifying the Pupillary Light Exam: The Role of an Automated Pupillometer in Critically Ill Children,” at the Translational Science Seminar, Akron Children’s Hospital, Akron, Ohio, April 21, 2015. Dennis Weiner, MD, Co-Director, Skeletal Dysplasia Center, presented “The Anabolic Effects of Electrical Stimulation on Endochondral Bone Formation” with R. Fitzgerald at Pediatric Orthopaedic Society of North America (e-poster), Atlanta, Ga., April 29 – May 2, 2015; Orthopaedic Research Society (poster), Las Vegas, Nev., March 28-31, 2015 with R. Fitzgerald; and Cleveland Orthopaedic Society, Cleveland, Ohio, February 7, 2015 with S. Lababidi; presented “Cartilage Hair Hypoplasia” at the Practical Approaches to Amish Inherited Disease Conference, Pier/Beacon Hill Community School, Mount Eaton, Ohio, April 25, 2015; presented “The Role of Physician Extenders in Pediatric Orthopaedic Practice” at the Pediatric Orthopaedic Society of North America Meeting, Atlanta, Ga., April 29 – May 2, 2015; presented “Orthopedic Updates” at Ellis-van Crevald Day at the Clinic for Special Children, Strasburg, Ohio, May 15, 2015. Awards and Honors Michael T. Bigham, MD, FCCM, Pediatric Intensive Care Physician, Medical Director – Transport Services, Department of Pediatrics, Division of Critical Care Medicine, received the “Heart of Hudson Award,” May 29, 2015 at the Hail to the Chefs event in Hudson, Ohio, the award plaque reads “Thank you for your dedicated service in guiding the children and the families of the Akron region through difficult times and in turning many cloudy days into rainbows and sunshine;” was promoted to “Associate Professor,” in the Department of Pediatrics, College of Medicine, Northeast Ohio Medical University. Blaise Congeni, MD, Director, Division of Infectious Diseases, was the keynote speaker at the Annual Invocation Ceremony of the Alpha Omega Alpha Medical Honorary Society, NEOMED, Rootstown, Ohio, March 11, 2015. Joseph Congeni, MD, Director, Sports Medicine Center, was listed in the “Best Doctors in Northeast Ohio,” 2015 list. 26 CHILDREN’S PROGRESS | SUMMER 2015 The Department of Hematology-Oncology is part of a collaborative project, “Eliminating CLABSIs in Ambulatory Patients,” managed by Johns Hopkins University. They will receive a grant, funded by the Agency for Healthcare Research and Quality, of $5,000 a year for two years beginning Oct. 1, 2015. Jeffrey Hord, MD, Director, Division of Hematology-Oncology, Associate Chair for Subspecialty Practice Operations, was listed in Castle Connolly’s “America’s Top Doctors,” 2015 list. Starla G. Martinez, MD, Director, Medical Education, Pediatric Pulmonologist, was chosen to serve as a Hooder for the 2015 graduating class of NEOMED for the 10th year. Dennis Weiner, MD, Co-Director, Skeletal Dysplasia Center, placed 3rd at the Cleveland Orthopaedic Society’s annual meeting, February, 2015 for his project titled “The Anabolic Effects of Electrical Stimulation on Endochondral Bone Formation.” Dr. Weiner also received the Summa post-graduate day “Walter A. Hoyt. Sr. M.D. Award for Basic Science Research,” May, 2015. AKRONCHILDRENS.ORG/GIVING 27 memorial and tribute gifts Gifts received Jan. 1, 2015 – May 31, 2015 In Honor of … Jessica Anderson Steve Hazeltine Nader G. Atway Michael T. Bigham Noah Kendrick Richard J. Acklin Linda K. Carlton Allyson K. Clark William W. Donaldson Nancy E. Hall Marcena R. Williams Sage E. Braydich Rudolph J. Braydich James A. Lehman Schwab Charitable Fund Mark A. Watson Colin Burdette Hubbard Eagle Soccer Boosters Gabrielle Marino Edward V. Matzules Jessie Clark Taylor R. Clark Kieran McAllister Melissa A. Rosenbaum William H. Considine Thomas A. Debord Savannah G. McCleery Brenda Timberlake Anthony D. Di Lucente Flavia Pachi Marvin A. Thomas Gregory A. McDermott Erin M. McDermott Anita DiLucente Justin M. Benko Lance K. Churchman Cody Frasure Barry T. Frasure Sarah E. Friebert Stuart Friebert Brendan Getsy Michael G. Getsy Brantley Hall David E. Speer William Hanlon Larry P. Kelley Aaron Hill Susanna J. Snavely Chloe Hollingsworth Luella F. Siegfried Yoleetah C. Ilodi Robert L. Richards Kylie Jacobs Eric K. Koppel Andrew Mitchell Mervin R. Shaffner Ben O’Daniel Bradley Boyer Steven W. Bremner Larry D. DeWitt Karen L. Gergon Thomas Jones Matthew K. Larsen Susan E. Mileski Terry M. Pluto Tracy A. Reschke Tonia L. Smith Jonathon Owens John R. Washbish Lucas Paskiet Joseph G. Waligorski Rain S. Pryor-Poole John B. Wallace Zachary Rager Donna M. Abbott Christopher W. Beatty Barbara Duvall Gail Graise Colleen O’Connor Jessica Salzwinner Colleen A. Shrout Michael Schilling Thomas A. Clark Troy A. Slabaugh Anonymous William E. Reed Jason Survance Rebecca Antonides Walter Tringhese Thomas A. Tringhese Tina M. Wantz Ash General Dentistry Meryl Weaver O. Jane Moldovan Sawyer Wright Brittany C. Weiford Angela Yanc Christopher R. Yanc In Memory of … Sophia A. Allen The Philip Lenius and Claudia Menton Revocable Trust Gregory M. Boll Aaron D. Cozart Virginia C. Heckler Gino Altieri Eduardo Altieri Warren E. Atha Raymond G. Dorman Timothy J. Baker Barbara A. Szabo Melissa L. Belser Women’s Board of Akron Children’s Hospital Stig A. Berg Allyn L. Orlando Richard A. Vorraber Nicole Bodjanac Paul E. Webel Maura L. Campbell Edward J. Parisi Marcia L. Wallace 28 CHILDREN’S PROGRESS | SUMMER 2015 Colin James Carr Children’s National Adam E. Carr Thomas Chapin Ashtabula Yacht Club Geraldine A. Herman Larry Ingram Gary W. Koonce Anne T. Lorenzo Richard S. Novitsky Joseph Santoferraro William Selle Fred Tomei Loretta M. Vasuta Jim Vondemkamp Richrad Cumpston Elizabeth Andonian Viola Frederick Andrew A. Lucas John P. Delaney John P. Delaney Michael S. Freer Copeland Oaks Maintenance Department Paul E. Freer Kaye M. Carrillo Grant Conzaman Frank J. Lupica James Dickey Daniel B. Pren Isabel M. Frost Christian S. Gerig Dillon Dickson Shawn Dickson Gilbert F. Gaal Dave Bayowski Mary DeMain Robert N. Minkler Ralph A. Nunez Ken Ondash Mae DiLucente Sue A. Bubonics Mike Factor Robert A. Hauptman Deborah T. Henderson Richard A. Hove Todd R. Nelson Robert T. Regola Richard S. Sepesy Florence Gaisie ACH Human Resources McKenzie R. Garretson Anthony J. Tarantino Timothy Dobkin Stephen F. Mysko Clara Gross Mary A. Syler Mary Ellen Syler Jack R. Donatelli Shirley A. Frater Christopher E. Luffler Karen Gruen Randy J. Stone Mary Ebie Patricia L. Felder Doris M. Harriman Newman Baptist Church Todd T. Kandle Beili S. Fabian David V. Halpern Virginia R. Ferenczi Donatic Smart Cents Building Maintenance Inc Mark A. Alexander Emily Balca Bruno J. Bellissimo Walter A. Burger James G. Casenhiser Russell E. 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Marteney Brad D. Maxen S T & P Communications Inc Gloria L. Clarke Caroline E. Cochran Robert J. Hardesty Mary E. McMillan Matthew L. Rizzi Kenneth E. Sword Hazel L. McKenna Katie M. Thompson Wenda Moore Tina Osborne Manuel Nackes Paula S. Malone Susan K. McMains Wilson Patterson Andrew J. Calin Jo A. Finnimore Lucy Pelligra Alane Cook William P. Dorney Gilda Finamore Joyce C. LaVorgna James J. Liguori Charles Malyuk Magdalene Rose Richard J. Rose John E. Rose Lois E. Zapernick Nicholas J. Petrarca Arlene A. Amargos Chester A. Amedia Charles Fowler Jacqueline Gee Marsha Petrarca Christine Pomponio Marilyn Plazo Joe E. Ames Linda Churchman Dennis J. Gioiella Michelle R. Hall Dyana R. Parker Daniel P. Plazo Jon Tallman Donald P. Tarosky Rita A. Thomas Austin L. Rankin Randall Rankin Jeanette M. Roesel St John Christian Methodist Episcopal Church Robert C. Prosowski Esther Rogers Jessica Dray Richard White Walter F. Schoenberger Ute L. Vilfroy Danielle N. Schprechman Anthony G. Ferretti John F. Scrip John R. Scrip Anthony Shingleton Cynthia M. Richards Jess V. Shingleton Morris Simon Jeffrey M. Simon Gordon C. Smith Jean W. Blair Buel S. Smith Joan Kramer Patricia S. Markowski Erik M. Sardich Anne Stal Chris Wiley Robert J. Strachan Hubbard Volunteer Fire Dept Arlene Darko Margie Florek Scott Kennedy Rudolph M. Krafft John P. Livingston Vivian Marley Robert P. Mulholland Kathy Plesic Lindsay W. Randall Gary Rose Thomas R. Schosser Carl A. Sizer Ronald Stanish Paul M. Tomko Michael E. Tyson Linda L. Womer 30 CHILDREN’S PROGRESS | SUMMER 2015 Susan L. Taylor Aaron D. Bell Ella F. Young Triway Lanes Milan M. Baltic Donald E. Baney Melissa C. Davis Perry B. Hostetler Eric D. Karley Otis C. Kelly Randy D. Kiser Kendra J. Lemon Jill M. McClure Tyler S. Smith Emerson E. Stull Noelle K. Weekley Michelle Young James Trainer FirstMerit Wealth Management Services Division Gene L. Truax William G. Angel Dorothy A. Archer Tom B. Babcox Robert W. Brown John S. Catches Robert J. Digiantonio Janise B. Parry Carol A. Richardson Joseph M. Ulrich Sandra R. Smith Anna M. Vargo John R. Kendrick John Kendrick Hedwig J. Vinson Regina Fields Barbara L. Kirbawy Nick Leone Randolph G. Snider Roger W. Vinson Angelina H. Volpe Delilah Volpe Diana L. Warth Holly L. McLaughlin Harold O. Watson Ralph F. Wood Nathan Williamson USA Karate Foundation Smithville United Methodist Church Ralph J. Bales John Beck Ralph Danesi Laurie L. Danesi William T. Pennington Robert J. Winters FPO AKRONCHILDRENS.ORG/GIVING 31 Non-Profit Organization U.S. Postage PAID O N E P E R K I N S S Q UA R E Akron, OH Permit No. 202 A K R O N , O H I O 4 4 3 0 8 -1 0 6 2 Have you signed up for Developments, our electronic newsletter, which features the latest hospital news and links to relevant podcasts and videos? Scan the tag below or register online at akronchildrens.org/developments. calendar of events august Friday, Aug. 21 Harness Race Rally Northfield Park 7 p.m. Sunday, Aug. 30 Kylie Rose’s Run Copley High School 4 p.m. Aug. 25 – Sept. 30 Love’s Travel Stop Campaign At participating locations september Saturday, Sept. 5 Ace Hardware Bucket Day At participating locations Saturday, Sept. 12 125th Anniversary Gala Akron Children’s Hospital 6 – 11 p.m. Sunday, Sept. 13 “Rock for Kids” Music Festival Magic Tree Pub & Eatery, Boardman 12 – 9 p.m. october Sunday, Oct. 4 Walk for Babies Canal Park, Akron 8 a.m. Friday, Oct. 16 Dancing for the Kids Akron Civic Theatre 7:30 p.m. november Friday, Nov. 20 Holiday Tree Festival Preview Gala John S. Knight Center, Akron 5:30 p.m. Saturday, Nov. 21, 28 Breakfast with Santa John S. Knight Center, Akron 8:30 a.m. Nov. 21-29 Holiday Tree Festival John S. Knight Center, Akron Hours vary Saturday, Sept. 19 Pops at the Ballpark featuring the Youngstown Symphony 6 p.m. Sunday, Sept. 20 Emily’s Sparkle Sprint Lock 3 9 a.m. Sept. 23 –25 Mix 98.9 Miracles and Promises Radiothon 6 a.m. – 6 p.m. Monday, Sept. 28 Children’s Benefit Invitational Fairlawn Country Club 11 a.m. For more information about these events or how you can become a special event coordinator, contact: JoAnn Stock, director of development at Akron Children’s Hospital Mahoning Valley, at 330-746-9122, or Brittany Costa, associate coordinator for special projects at Akron Children’s Hospital, at 330-543-0325. For a complete listing of all Akron Children’s Hospital Events, visit akronchildrens.org/events.