the maternal-child health intervention group (mch
Transcription
the maternal-child health intervention group (mch
THE DURHAM HEALTH INNOVATIONS PROJECT ________________________ THE MATERNAL-CHILD HEALTH INTERVENTION GROUP (MCH GROUP) COMMUNITY CO-LEAD:Tamera Coyne-Beasley, MD, MPH UNC-CH Department of Pediatrics and Internal Medicine; Community Health Coalition COMMUNITY CO-LEAD: Sue McLaurin, MEd, PT Community Health Coalition DUHS CO-LEAD: Monique Chireau, MD, MPH Duke University Department of Obstetrics and Gynecology DUHS CO-LEAD: Maria Small, MD, MPH Duke University Department of Obstetrics and Gynecology TEAM MEMBERS Sharon Baker, JD Community Health Coalition, Inc. Lottie Barnes, MPH, CHES Safety & Health Specialist, Radiation Safety Division, Occupational Environmental & Safety Office, Duke University; Volunteer, Community Health Coalition Tammy Bishop, RNC, MSN Program Manager, Duke University Department of Obstetrics and Gynecology Bobbie Brown, RN, MSN Assistant Professor, North Carolina Central University School of Nursing Haywood Brown, MD Chairman, Duke University Department of Obstetrics and Gynecology Kim Dau, RN, CNM, MSN Duke University Department of Obstetrics and Gynecology Janeen Gammage, BA, MSLS Ivy Community Center President, Alpha Kappa Alpha Sorority Inc., Duke University School of Law Library Sue Guptil, RN, MSN Nursing Director, Durham County Health Department William Hackney, Administrative Assistant, Duke University Department of Obstetrics and Gynecology Elaine Hart-Brothers, MD, MPH Chair of the Board, Community Health Coalition Jimmie Hawkins, MDiv Pastor, Covenant Presbyterian Church Diane Holditch-Davis, RN, PhD, FAAN Associate Dean, Duke University School of Nursing Rachel Peragallo, MD Duke University Department of Obstetrics and Gynecology Elizabeth Jensen Project Coordinator, Durham B.E.S.T. Babies Alliance, University of North Carolina Chapel Hill Department of Maternal and Child Health Rhonda Reaves Financial Analyst II, Department of Obstetrics and Gynecology-Office of Research Support, Duke University Medical Center William Lawrence, MD Wake County Medical Director, Duke University Primary Care Evelyn Morrisey, BS, LD/RD, D. MIN Licensed Dietician (Ret) and Associate Minister; Ivy Community Center, Alpha Kappa Alpha Sorority Inc. Sarah Nahm, MPH, RD, LDN Nutritionist, Durham County Health Department Renee Parks-Bryant, Health Education Specialist, Durham County Health Department Jessica Simo, MHA Network Coordinator, Durham Community Health Network, Duke Division of Community Health Rosa Small, BS, MSLS Media Coordinator, Ivy Community Center, Alpha Kappa Alpha Sorority, Inc. Geeta Swamy, MD, MSS Duke University Department of Obstetrics and Gynecology Kevin Thomas, MD Duke University Department of Cardiology Ingrid Wicker-McCree, EdD Athletic Director, North Carolina Central University Elizabeth Woods, MA, MPH, Community Health Coalition, Inc. TABLE OF CONTENTS _____________________________________________________________________________________ HEALTH NEEDS & METRICS .......................................................................1 BUILDING THE TEAM & COMMUNITY ENGAGEMENT...............................2 MODELS OF CARE FOR 10 EMPHASIS AREAS.............................................5 KEY ELEMENTS OF A CONNECTED CARE MODEL FOR SUCCESS OF PROPOSED TEAM MODEL OF CARE .........................................................15 REFERENCES ..............................................................................................19 APPENDICES ...............................................................................................22 APPENDIX A - INFANT MORTALITY: DURHAM, NC, 2003-05 APPENDIX B - LEADING CAUSES OF INFANT MORTALITY APPENDIX C -TRADITIONAL CARE VS. INTERNATAL CARE APPENDIX D - PREECLAMPSIA/ECLAMPSIA DURHAM CO MAP, 2007 APPENDIX E - MATERNAL OBESITY, 2007 APPENDIX F - LOW BIRTH WEIGHT, 2007 APPENDIX G - MATERNAL HYPERTENSION, 2007 APPENDIX H -MATERNAL DIABETES, 2007 APPENDIX I - OUTCOME MEASURES APPENDIX J – TEAM MEMBER DESCRIPTIONS APPENDIX K – PROPOSED PRECONCEPTION CARE CONTENT APPENDIX L - TRADITIONAL PRENATAL CARE VS. CENTERING PREGNANCY® GROUP PRENATAL CARE APPENDIX M -INTERNATAL CARE MODEL APPENDIX N- INTERNATAL CARE CURRICULUM MATERNAL-CHILD HEALTH HEALTH NEEDS & METRICS Define health needs In Durham County, North Carolina, adverse maternal-child health outcomes such as low birthweight and infant mortality occur at higher than national average rates and disparately across racial-ethnic groups (Appendix A). According to the Durham, North Carolina 2007 Health Needs Assessment, the overall infant mortality rate is 7.2/1000 births and the rate among minorities 12.6/1000 (Smith, 2007). Low birthweight, a leading cause of infant mortality, occurred in 99.7/1000 live births in the general population and 128/1000 live births in minorities. These numbers are much higher than the Healthy People 2010 national infant mortality and low birthweight targets of 4.5/1000 live births and 50/1000 live births, respectively. The Durham North Carolina 2007 Health Needs Assessment identifies reduction in low birthweight and infant mortality a priority for health improvement (Smith, 2007). The infant mortality rate, and especially the racial disparity in the rate, is a great concern to public health officials in Durham County (Appendix A). North Carolina continues to be ranked as one of the states with the highest infant mortality rates in the US. In 2008, The March of Dimes gave North Carolina a score of ‘F’ for preterm birth, a leading cause of infant mortality (March of Dimes, 2009). The causes of low birthweight and infant mortality are complex and not fully understood but are related to maternal outcomes. Maternal obesity, diabetes and hypertension carry substantial short- and long-term risks for both mother and child. Obesity is associated with hypertension, diabetes in pregnancy and low birthweight (Caughey 2006; Hall, 2005; Magriples, 2009; Pathi, 2006). Hypertension in pregnancy is directly associated with low birthweight (Caughey 2006, NC Center for Health Statistics [PRAMS], 2006). Women with hypertension or diabetes in pregnancy are also at increased risk for future cardiovascular disease (Bellamy, 2007; Kim, 2002). Infants born to obese or diabetic mothers are themselves more likely to develop early obesity, diabetes and vascular disease (Barker, 1990). Exercise can reduce the risk of diabetes and hypertension in pregnancy (Dempsey, 2004, 2005). Interventions to improve maternal health before the next pregnancy have the potential to improve maternal-child health. The prenatal period is an ideal time for behavior change due to women’s concern for their unborn child (Meade, 2005). The postpartum and interconception periods may be equally ideal for improving future pregnancy and long-term health. For example, folic acid use, weight loss, smoking and alcohol cessation, and blood pressure and diabetes management can reduce congenital malformations (the leading cause of infant mortality in the US) (Appendix B). Prematurity and low birthweight are the leading cause of infant mortality for African Americans (Matthews, 2008), but prenatal care alone has not been shown to improve birth outcomes, especially if preconception or early pregnancy counseling and interventions are inadequate (Lu, 2006). For interventions to be effective, they must begin months before pregnancy because the critical period of organ formation and placental development occurs before a woman is even aware of pregnancy. One preconception visit is not sufficient to address chronic illness management or prevention (Lu, 2006). Internatal care occurs following the delivery of one child and continues through the delivery of the next (Lu, 2003, 2006) (Appendix C). Infant mortality and adverse maternal health outcomes illustrate areas of health disparities. Nationally, and in Durham, NC both infant mortality rates and rates of adverse maternal outcomes, such as severe maternal obstetric morbidities and maternal mortalities, are higher in minorities (Smith, 2007 [Partnership for a Healthy Durham]; Brown, 2007). For African American women, adequate prenatal care, and higher socioeconomic status does not decrease the risk of adverse outcomes when compared to Caucasian women. Many investigators posit the maternal health disparities experienced by African American women may result in part from complex societal, and community based stressors such as racism and neighborhood level inequalities (Lu, 2003; Collins, 1997; Collins, 1997; Hearst, 2008; Kramer, 2008). In Durham, sharp differences exist in the neighborhood level prevalence of adverse maternal outcomes. Investigation of the contribution of environment to maternal-child health is ongoing (Appendix D-H). MATERNAL-CHILD HEALTH 1 What are the key health metrics that can be used to measure the current state of health and to judge whether we have an improvement in health in Durham County? A primary goal will be to improve maternal and neonatal/child health outcomes such as low birthweight/infant mortality. Short-term measures of success will include improvement in maternal health status, as measured by improvement in healthy behaviors such as folic acid consumption/prenatal vitamin usage, increase in interconception (interpregnancy) intervals, smoking cessation, increase in physical activity levels, and improved stress management. Biological markers of improvement will include weight reduction, blood pressure control at target range, blood glucose control, LDL/HDL at target range. The short-term follow-up measures such as weight reduction, blood pressure, blood glucose control will be measured and recorded monthly. Target cardiovascular markers will be assessed at baseline and at the end of the group sessions of one year. We anticipate follow-up for subsequent pregnancy results will occur 2-3 years following the index pregnancy. Long-term measures will include improved outcomes in subsequent pregnancies. A long-term community level goal is to reduce infant mortality (Appendix I). Other measures of measures of success will include decreased use of emergency department services for primary care issues, improvement in health literacy, knowledge of the health system, and comfort and satisfaction with the health model on behalf of participants and primary care providers. Many markers of cardiovascular disease overlap with the conditions associated with placental vascular disease and provide the link between maternal health and adverse perinatal outcome (Magnussen, 2009). BUILDING THE TEAM & COMMUNITY ENGAGEMENT How did your team come together? To address the issue of women’s health between pregnancies, the Maternal-Child Health Intervention Group sought to involve equal collaboration between the Health System and the community from the start. The Internatal Care team’s first members included a group of individuals from both Duke and community settings, including the Durham County Health Department, the Community Health Coalition, Alpha Kappa Alpha (AKA) sorority, and the faith community (Appendix J). Early on, these groups began to work together as equal partners to blend resources and share responsibilities. At the first meeting, the group identified key individuals who agreed to sign on as Co-Leads for the project. The Health System Co-Leads included professionals with extensive expertise in the subject matter and who were engaged in clinical practice. The community Co-Lead had expertise in recruiting community representation and activating and mobilizing the community in order to engage residents in relevant activities. Team leaders recognized that receiving “buy in” from community stakeholders and consumers was critical to achieve the project’s goals. Likewise, the team saw that gaining trust from community members by demonstrating respect for their expertise, customs, and values was equally important. After the initial team members began to meet weekly, it was quickly recognized that no one person could speak for the community; thus, the Internatal group began to think of how to expand the team to include others. Core team members were recruited based on their experiences in the community and with the maternal and child (MCH) population. Many members were recruited from groups that focus on MCH issues, such as the Infant Mortality Reduction Committee and the Internatal team breakout session at the Duke/Durham Health Summit. The group also included other community stakeholders. Thus, the team now includes members of the Community Health Coalition who have been working on breastfeeding efforts with African American women in Durham; a nutritionist who works specifically with pregnant women in the community; a pastor from a local church was recruited to facilitate communication with other members of the faith-based community; faculty and staff from North Carolina Central University’s nursing and physical education departments; a person with contacts in Durham public housing communities; and members of African American sororities. Marketing and community engagement efforts have also resulted in partnerships between the Internatal team and organizations throughout the community with a similar interest or focus, such as Welcome Baby and Durham Connects. MATERNAL-CHILD HEALTH 2 What is the full complement of existing programs, resources, and partnerships in Durham County relevant to your team’s primary focus? Durham County has a wide variety of resources available to women before, during, and after pregnancy. Unfortunately, many of these resources are not easy to access, are underfunded, or do not have the capacity to serve the entire county. These resources provide direct patient health care or preventive services. Some of the resources that provide service to the MCH populations in Durham include: Duke and Durham County Health Department’s OB clinics (including the Centering Pregnancy groups) and other health and community services Family planning clinics Lay health advisors program Welcome Baby Durham Connects B.E.S.T. for Babies breastfeeding project and other Community Health Coalition programs Infant Mortality Reduction Committee (Partnership for a Healthy Durham) Teer House WIC Faith communities and ministerial associations – offer support and education El Centro Hispano Baby Love Program Durham’s Partnership for Children Children’s Developmental Services Agency Child Care Services Association How did the existing programs, resources, and partnerships shape your team’s thinking? The Internatal Care team demonstrated the tenets of the community-based participatory research (CBPR) model in that it engaged the community; integrated local knowledge and experience; and created community investment in the research process (Israel, 1998). CBPR principles guided us in our planning for activities and engaging the community. Team members from the Duke Health System represented strengths in clinical practice and research, while Durham community members voiced the need for patient-centered care that was community-based and neighborhood friendly. This partnership was driven by a strong reliance on collaboration and trust. From the beginning, the team recognized all of the resources of the partnership. Thus, all participants at the table had a voice in the decision-making process. It also became evident that individuals possessed strong feelings about their roles in the planning process and were able to represent various nuances of the health system and the community that needed to be considered during the planning process. This proved to be strength of the team. From the beginning, the term “Internatal” Care Model was defined and team members reflected on their own perceptions of community resources related to the model. Lack of resources and diminished community capacity were also addressed. In this review of the community, the team identified gaps in health services and made suggestions for healthcare priorities and community capacity building. For example, the team identified the major healthcare providers in the Durham community as well as nonhealth community resources such as child care settings, schools, recreation programs, public housing communities, beauty parlors, grocery stores, shopping centers, churches and faith-based programs, and other places frequented by young women. All resources can impact a woman’s health and her ability to make good choices to prepare for a healthy pregnancy. Thus, a comprehensive process was conceived during the first stages of the planning phase and remained the focus for its entire duration. How did you ensure broad community input and involvement? This team is comprised of representatives from the Duke Health System and various community organizations. When the original members began the planning process, they readily identified that other community resources needed to be involved and representatives from those groups were invited to become a part of the team. Thus, the group grew as the assessment of needs developed. The team built the planning process around current research on internatal care. The key was to apply that MATERNAL-CHILD HEALTH 3 research to the needs of the Durham community and to identify important variables that needed to be addressed in the community. As the needs of childbearing women in the community were identified, the group began to identify resources and persons with the expertise to respond to those needs. The Durham community is comprised of a myriad of individuals from diverse backgrounds who could be called upon to provide their expertise during the planning process. Whenever it became apparent that some component was lacking, team members began to provide names of others to consult with and/or to include in our efforts. The most striking feature of the team was the spirit of cooperation and trust that were present. This did not mean that people agreed with each other all the time, rather that the team respected diverse opinions. In the end, a great amount of good will and synergy was generated from the group. In other words, this was an example of a real partnership between a health system and a community. An example of the community members’ integration in the team was the Duke IRB certification of several members to become focus group facilitators and interviewers. This was quite extraordinary because it showed how the Duke Health System validated the expertise of the community members as advocates and enablers of their own community. Others used their influence with community groups to recruit participants for the focus groups, and others worked along with the Duke Health System staff to interview key informants in the Durham community to ascertain their view of the status of healthcare services in the community with an emphasis on women’s health. We will use information gained from the focus groups and key informant interviews to determine key elements that have to be considered in planning. Four focus groups of Caucasian, African American, and Latina women were held, as was a group of local clergy. The women groups provided their perceptions and feelings regarding women’s health issues in the Durham with particular emphasis on healthy pregnancy outcomes, healthy behaviors, and adequate health resources. The Clergy’s group provided information on the relationship between faith-based organizations and women’s health and their beliefs about the significance of spiritual, mental, and physical connections to women’s health. They also provided their perceptions about health resources in the community. Community stakeholders provided broad feedback on the health concerns of the community, gaps in health services, barriers and challenges to healthcare delivery, and outreach to vulnerable populations. What input/assistance did you get from the Oversight Committee and the Technical Assistance Cores? The oversight committee and technical assistance cores provided our team with resources and direction. Although, the process of conceptualizing a new model of care for the entire system at times seemed cumbersome and frustrating, the oversight committee was receptive to the perceptions of the team members. These discussions and support for honest dialogue were essential to the formation of broad coalitions of groups and individuals. These discussions helped establish the trust needed to engage both the academic community and the larger Durham community around MCH health issues. The technical support structure was well conceived, helpful, and innovative. The assistance with IRB preparation and expediency was invaluable. The combined statistical support, geospatial mapping, and economic analysis cores provided the team with the type of expertise necessary to address priority health issues. The work of deciphering the voluminous DSR database is ongoing. This work, as well as that of the environmental core, provided a framework for addressing the scope of the targeted public health issues. This core work may also form the basis for community activity directed at these health issues. As a result, many communities may now have the evidence and support needed to address health issues based on the unique characteristics of their particular locales and resources. This approach is evolving in Durham, largely because of the involvement of individuals from the technical assistance core. MATERNAL-CHILD HEALTH 4 What did the community engagement process teach your team about the problem and each other? Once our diverse team of medical professionals, community health workers, and community members, was assembled, we met on a regular basis. At the group meetings, the project manager and Co-Leads led the discussion and all members were equally able to participate in the decisions and planning. This minimized power differentials common in research projects between community members and academicians. Some members had specific roles, such as data acquisition, literature review or focus group planning. These individuals came to the meeting and presented their work to the rest of the group. Eventually, the group split into small groups to work on specific areas of the project such as community participation, health model development, or data analysis. Responses from the community taught the team a lot about women’s non-medical concerns. When asked if she saw a healthcare provider when she is not pregnant, one woman responded, “I don’t go because I don’t have medical insurance. I have to feel bad (to go to the doctor); otherwise I don’t go.” This response epitomizes why pregnant women continue to have low birth weight babies. The team also learned that women feel physicians don’t adequately address mental health. Focus group responses validated the need for more maternal support and stress reduction services. Women verbalized an important reason for internatal care: when women have limited resources, medical and physical needs are not their top priority. Instead, they want to have non medical services to meet their basic needs; such as child care support, balancing family and work responsibilities, and feeling less stress. The Team quickly recognized the priorities of women and the need to develop a responsive model, to address their concerns. The discussions were rich as representatives from different backgrounds gained new perspectives on providing internatal health care for women with poor pregnancy outcomes. It became clear that although keeping medical appointments was important, the healthcare system had to be sensitive to the barriers women faced. Community health workers discussed how to run an effective community intervention; health care providers added insight about which interventions were most effective, and community members spoke about which interventions would most likely be utilized. Making decisions about the model of care took longer than it would have if fewer people had been involved, but the resulting model was well thought out and inclusive of a variety of perspectives. Working in a group taught individuals how to focus resources on shared goals and ideas. Members were willing to give up personal agendas, when necessary, for the good of the common goal: improving maternal and infant health. As a result of this process, team members kept themselves accountable to patient needs as determined by qualitative research in the community. This group exemplified community-based participatory research ideals and will continue this process as it seeks funds for implementation. MODELS OF CARE FOR 10 EMPHASIS AREAS What is the model of care that your team is proposing? What evidence currently exists that this model is viable – particularly in Durham County? Prenatal care models target medical problems and conditions affecting a woman’s health or the health of her unborn child during pregnancy. Despite the concentrated policy focus on prenatal care, rates of low birthweight and preterm birth have actually increased in the US (Lu, 2006). Increasing evidence supports the importance of addressing high-risk maternal medical conditions, exposures, and psychosocial conditions before pregnancy (Lu, 2006). The standard, single preconception visit, designed to address these conditions, may be insufficient for women requiring more intensive, ongoing interventions to address these conditions. This situation may prove particularly important for women at highest risk, not only because of medical co-morbidities and adverse outcomes, but also due to social conditions such as limited access to health care between pregnancies or limited understanding of their co-morbidities and future pregnancy risks. A ‘life course’ model takes into account cumulative events and stresses, which may impact a woman’s health (Lu, 2006). This model supports the concept of ‘early programming and cumulative pathway.’ Early life experiences may accumulate over an individual’s lifespan and eventually impact birth outcomes (Lu, 2003). For Example, fetal exposure to under nutrition may result MATERNAL-CHILD HEALTH 5 in eventual adult cardiovascular disease (Barker, 1990). Chronic stress may contribute to the age related; four fold increase in low birthweight infants for African American women as compared to White women in the US (Geronimus, 1996). Acute and chronic stresses from life events (e.g. intimate partner violence), homelessness, neighborhood safety, and food/job insecurity may adversely impact birth outcomes (Lu, 2003). The model expands beyond individual level health care, and takes into account the biological, psychological, behavioral, and social determinants of health (Lu, 2003) (Appendix C). This model is novel, and few examples of outcome related successes exist in the literature. Most studies of interconception care focus on success in implementation and acceptance of interconception care models (Posner, 2008). Sites in Denver, Atlanta, and Philadelphia used interconception care—from the birth of one child (point of entry) to the delivery of the next (endpoint) to demonstrate reductions in adverse outcomes such as preterm birth for high-risk women (Lu, 2006; Dunlop, 2008). An internatal care program in Denver, Colorado focused on case management approaches for high-risk women with prior low birth weight infants, congenital anomalies or stillbirths. Women were interviewed at baseline for risk assessment and worked with developed individualized health goals. Participants received support with health system navigation, job training, substance abuse, and problem — solving. The program was designed to improve social support and reduce stress scores. Success of the program was measured by behavioral changes, follow-up with post partum care, and measures of life course achievements (e.g. job training, GED classes). Although the number of participants was small (n=277), in the 35 women with subsequent pregnancies, fewer women had late or no entry to prenatal care as compared to the general obstetrical population. Women enrolled in the intervention demonstrated 20% reduction in unmanaged personal problems (Loomis, 2000). A preconception care program in Pennsylvania demonstrated improvement in women’s self reported health behaviors measured by increased activity levels, food label interpretation, and folic acid usage (Hillemeier, 2008). As this intervention approach is new, little evidence exists in the literature on the direct impact of preconception care programs to reduce infant mortality or preterm birth (Posner, 2008). One area of the country, Dane County Wisconsin experienced a precipitous dramatic decline in African American infant mortality rates. Initial rates in the city, similar to the rest of the state, were three times those of whites, however over the last decade they reached par with Caucasian infant mortality rates. Although the etiologies of this decline are unclear, they are driven by declines in preterm birth rates, and may parallel overall community—based efforts to improve maternal health. Some of these efforts include a ‘one stop’ maternal care center that addresses medical, social, and financial/job needs. They also describe an extensive group of community-based nurses and social workers that perform both prenatal and postnatal visits to mothers at risk for preterm birth (MMWR, 2009; Eckholm, 2009). There is no consensus on what the content of internatal care should consist of, nor is there consensus on how frequently women should be seen by health care providers during this time period (Lu, 2006). There is no clear definition of who should provide this care. There is, however, consensus among many professional groups that certain key components should be present in preconception care for all women. The National Heart, Lung, and Blood Institute (NHLBI), for example, recommend that women with hypertension, diabetes, and obesity have risk assessment and clinical and psychosocial interventions to improve pregnancy outcome (Lu, 2006). The American College of Obstetrics and Gynecology (ACOG) and Joint Commission on the Accreditation of Healthcare Organizations (JCHAO) recommend screening for violence in this time period, as partner violence is associated with low birthweight (Valladares, 2002). Other components of this care endorsed by organizations such as Health and Human Services (HHS) and ACOG include immunizations and elimination of exposures such as tobacco, alcohol, and illicit drugs (Lu, 2006). In 2006, the Centers for Disease Control (CDC) identified preconception care as a national priority and established guidelines for preconception care, that should include activities to:. 1. Improve knowledge, attitudes and behaviors of men and women about preconception health 2. Ensure that all women in the US receive preconception services that will enable them to enter pregnancy in optimal health MATERNAL-CHILD HEALTH 6 3. Reduce risks as indicated by adverse pregnancy outcomes through interventions during the interconception period to prevent or minimize health problems for a mother and her future children 4. Reduce disparities in adverse pregnancy outcomes (Johnson [CDC}, 2006) In 2008, the state of North Carolina identified preconception care as key component to the health care of children (NC Division of Public Health, 2008). The health issues for women of child bearing age included problems such as: 24% of women using tobacco, 47% not meeting minimum physical activity recommendations, 28% being obese, 10% having hypertension, 3% having diabetes, and 71% not taking folic acid at least 5 days a week. The NC Division of Public Health identified preconception health as, “vital to North Carolina’s future…better preconception health improves the overall health of women and babies, decreases health disparities in our state, improves our health care system and decreases cost to families and society.” (NC Division of Public Health, 2008) (Appendix K). The Maternal-Child Health Intervention Group designed an internatal care program that incorporates established recommendations for preconception care, based on NC State and CDC guidelines. This model will focus on the most high --risk, reproductive age women—those who have had a poor pregnancy outcome and/or because of maternal health conditions such as obesity, hypertension, or diabetes are at risk for future adverse health outcomes. Our model will include baseline risk assessment performed near the time of the recent delivery, but before 8 weeks postpartum. Women will be invited to enroll in the group based, health promotion model which will provide social support and health education, nutrition, fitness instruction, stress management, life course support, and as assistance with reproductive health and family planning goals. Women will be linked to primary care providers for ongoing, individualized preconception support based upon their individual health needs. Needs may only include contraception management or may involve close management of blood glucose and blood pressure. This program will serve as a bridge and supplement to individualized, primary care provider--assisted internatal care. The group model will facilitate social support and efficiency for group level health promotion messages and interventions. The group approach to prenatal care, “centering prenatal care”, is one Durham has engaged in and is an effective model shown to provide social support for women in a group care context. In this model, participants begin sessions with stress management exercises, then check their own blood pressures and urinalyses, and spend 2 hours with a CNM or MD. Typical sessions include 12-15 women, so actual contact time with a health care provider is increased compared to traditional care. In a randomized clinical trial of centering vs. traditional care conducted in 2 urban, public obstetric clinics in New Haven, Ct and Atlanta, Ga, women who participated in centering had decreased preterm birth rates and higher birth weights (Ickovics, 2007). The group model, and centering pregnancy programs, adapt to the cultural and linguistic needs of participants. Multiple descriptive works from diverse populations show an improvement in health literacy, empowerment, and decreased recurrent teen pregnancy rates (Rising, 1998; Grady, 2004; Massey, 2006) (Appendix L). Clinical nurse midwives from Duke University have used the centering pregnancy model to provide group prenatal care at Lincoln Community Health Center since 2004 (Quinn, 2007). In work matching centering pregnancy participants from Durham, NC to women who did not participate in centering, African American women in the centering groups were more likely to breastfeed and more likely to attend prenatal visits than those attending traditional care (Quinn, 2007). Breastfeeding rates for African American women attending public health clinics in Durham, NC, are much lower than the population at large (CHAMP, 2008). “Expanded centering’ addresses key informational content specific to the need of the population involved. In the largest randomized clinical trial of centering from urban, largely young population, participants received expanded education on HIV/AIDS education as well as, education on self - MATERNAL-CHILD HEALTH 7 protective behaviors against violence (Kershaw, 2009). Participants in the expanded education centering groups had lower rates of sexually transmitted infections and reported improvement in sexual negotiation skills and condom usage. ‘Expanded centering’ addresses key informational content specific to needs of the population involved. The group care model is innovative and effectively used to deliver prenatal care throughout the US but is not widely applied for internatal care. The MCH team developed a group internatal model, appropriate to the needs expressed by stakeholders, patients, and community members. This program will link highrisk postpartum women, providers, and programs serving pregnant/postpartum women and children. The model will have collaborative community and institutional input during its implementation. What services will be provided? Post partum Centering Group services Focus group participants sited the following issues informing the proposed model of service delivery: Need for neighborhood services Clinics should include health promotion services Have healthcare workers that “look like me”. Better coordination of healthcare services Increase need for health education in the community Implement access to care campaign. Medical Care Options, for the greater Durham community. (Partnership) Within the internatal groups initial medical services will include blood pressure and weight screening Health education sessions in an ‘expanded’ centering format will focus on the needs of the women in the groups and include messages delivered by primary care providers and specialists focused on diabetes education, hypertension management, breastfeeding support, HIV/AIDS education, importance of consumption of folic acid, contraception options. Women will be exposed to health educators, resources, and health care providers who are available to provide follow up information to group participants. Nutrition and fitness will play a key role in the monthly group sessions. All sessions open and close with stress management exercises. Women will also have contact with and support of spiritual leaders who express a strong interest in women’s. The groups will take place in community based settings such as churches, community centers, and locations identified by women as “accessible spaces of comfort and trust.” Initial groups will take place in neighborhoods/communities with high rates of infant mortality and adverse perinatal outcomes. Groups will introduce women to other community based, volunteer support for mentoring and parental support such as Durham County Health Department’s “Granny/Mother Mentors’ and “Strong Couples/Strong Children,” parenting support group. Through the planning process, out team identified other men and women’s groups interesting in supporting this effort as part of their community service. Primary Care Services This model emphasizes an increase in community access to primary care services. Although the Durham Community is nationally and internally recognized for medical advances, its local community maintains pockets of high-risk individuals where care is not an option, simply because of lack of resources to constantly seek care as the current medically created model is established. As a result, this medical model has insufficiently met the needs of the highest risk medically residents of the Bull City community; the community’s response has created an economic deficit for local medical center and its supporting hospitals. Internatal care participants will have a two- week postpartum visit with a designated Internatal care group provider (either CNM, RN, OR MD) in the office, primary community health clinic, or health department. The participant will initially be connected to those services through an ‘internatal care navigator’. These initial visits will assess baseline health status; acute health needs, conduct mental health status/depression screening, and provide breastfeeding support. At the initial visit, the Internatal Care MATERNAL-CHILD HEALTH 8 provider will also initiate the conversation about current and future health goals and heath (including reproductive health) planning. A mental health provider will be available to assist mother’s who screen positive for depression. In settings such as the DCHD, women can easily be directed to ancillary support services; however, other settings may require coordination through the ‘internatal navigator.’ A home visit will assess home health concerns such as child proofing of the home, and support needs of the new mother and neonate. If Durham Connects does not extend to that participant’s community, the ‘internatal navigator’ or Baby Love worker may visit the home. Four to six weeks postpartum, women will have an individualized visit to perform a postpartum exam to readdress health needs and goals, including family planning. This visit is the typical ‘post partum’ care visit, and represents the last reimbursed visit for most women with Medicaid. Women with pregnancy related conditions such as gestational diabetes and gestational hypertension should be screened for chronic hypertension and Type 2 diabetes at that postpartum visit. Most women participating in the internatal care groups will attend at least one group session before their six-week postpartum visit. Women without personal co-morbidities will meet with a CNM or RN in their primary care sessions at two weeks post partum, six weeks postpartum, and one year postpartum. Women with chronic medical condition such as diabetes or hypertension, requiring medication will meet the individual provider (MD) at two weeks, six weeks, and every two to three months for one year. Women with chronic conditions will be referred to appropriate subspecialty care as needed. What populations does your proposed model seek to serve? Out target population includes adult women of reproductive age (ages 18-45) of all ethnicities, from Durham, NC, with recent pregnancies complicated by: obesity, hypertension (including preeclampsia and eclampsia), diabetes (gestational and pregestational) and/or low birth weight infants. Who will provide the services? Certified Nurse Midwives, MD’s, and RN’s will conduct internatal care groups. Co-facilitators may be students (Duke or NCCU Nursing School), residents, or other support individuals such as social workers or health educators. In collaboration with NCCU, a RN with clinical experience in prenatal delivery, postpartum care, and newborn services will conduct groups in conjunction with senior nursing students. Nursing students with pervious supervised clinical experiences in maternal child health will be trained in the centering model, and will co-facilitate groups with their faculty mentor. NCCU students are required to engage in community service as part of their degree requirements. Nursing students may apply their work with the internatal group toward fulfillment of this service requirement. Women with high risk for medical conditions such as chronic hypertension requiring medications, or diabetes, will have group sessions conducted by a MD. Midwives and RNs will lead groups of women without these types of chronic medical conditions. Eventually, women who complete participation in the group model may choose to serve as co-facilitators. An “internatal navigator,” a Health Educator, Social worker, or Nursing Assistant, will facilitate baseline screening of women eligible for the group care model, and will also facilitate the entire process of coordination/collaboration with existing services and individuals. This individual will have training in both maternal and child care coordination/navigation. This model will increase community access to preventive health messages and promotion of newly formed community centered clinical services via the partnership of Lay Health Advisors (LHA). This approach for the need for wider community health education and delivery was identified by the community activist focus group, “Many things can be done to help people get healthy messages.” LHAs are individuals who are either indigenous to the community, or have access to and acceptance by the populations they serve, and viewed as “informal leaders” and experts on a wide range of issues. As such, they play significant social and cultural roles in their communities (Earp, 1999). MATERNAL-CHILD HEALTH 9 Specific activities that the LHAs will carry out in this model include: Instructing communities how to successfully enter community centered services Conducting ongoing follow-up management for high risk women after they enter services Teaching basic self management, health promotion Promoting self-managed proactive behaviors Instructing the highest risk population self-management (BP, weight, etc.) Where will the services be provided? During focus groups, new mothers expressed a desire for increased home visits and for providers and policy makers to ‘go where they are.’ The clergy expressed interest in supporting groups in their churches and new mothers expressed interest in decentralized, neighborhood—based support services. Internatal groups will take place in a variety of community based locations, including churches, community centers, and neighborhood health centers (Appendix M). Navigating “Mrs. Durham” Through the Internatal Care Model Mrs. Durham started pregnancy a little overweight (BMI =31) and gained 50 lbs during pregnancy. She just delivered a low birth weight infant. She has Medicaid and received prenatal care at Lincoln Community Health Center/DCHD. Shortly after delivery, Mrs. Durham will be invited to participate in the group care model by a hospital based Patient Resource Manager (PRM), Social Worker, or community based Maternal Child Care Coordinator, or Lay Health Advisor. She heard about the program from her Baby Love worker after seeing the notice on the information bulletin board in the obstetrics clinic. She is worried about her baby, but would like to participate in the program because she wants to be as healthy as possible. Mrs. Durham is introduced to her ‘internatal navigator'. Her navigator is a trained Social worker, Nursing Assistant, or Health Educator from her community who will, not only help understand and ‘navigate’ the health system, but will connect her with the appropriate Postpartum Group. In Mrs. Durham’s case, her group will be comprised of women who, similar to her, have personal and obstetric conditions that place them at high risk for a baby with low birth weight in the future, and for future personal health problems. Her Group leader will be either a CNM or RN. If Mrs. Durham had chronic hypertension, diabetes or other medical conditions, her group leader would be a primary care physician (Internal Medicine, OBGYN, Family Medicine). Her internatal navigator would assist in connecting her to subspecialty care with a Diabetes or Renal specialist if her medical condition warranted closer monitoring. Mrs. Durham is very happy to hear that her Group meeting will occur at the Ivy Community Center near her home on Fayetteville Road. She has already heard about other post partum women from her community who will meet in the same location. She is happy to hear childcare will be provided during group sessions. She also heard they are going to give her diapers at the time of the group session. This is wonderful news, since diapers are not covered by WIC. Mrs. Durham even knows some ladies from the community who call themselves ‘mommy mentors’ who are planning to work with the group, and help her with her baby. Mrs. Durham will first have a private visit with either her group leader of one of the other Group/internatal care providers within two weeks of her delivery. At that two week visit, Mrs. Durham and her provider will address the following issues: her individual health needs, the events related to her delivery and their potential impact on her health and that of her child, breastfeeding support, changes she may need to make in terms of medications, or substance use, and stress/depression screening. She will begin an individual life “health plan”. Mrs. Durham’s group sessions will occur every month for 9 months, then once every 6 months. The MATERNAL-CHILD HEALTH 10 group will consist of about 15 other women. Women will discuss formation of health plans and how to measure and record their own health information (e.g., blood pressure, weight). They will develop health and fitness goals and learn to understand their own ‘health numbers.’ At the beginning of each group, participants will measure and record their weights and blood pressures. A fitness leader and nutritionist will participate in each session and will address fitness activities that are practical for new mothers and nutrition education. Group members will share a healthy snack. Mrs. Durham will participate in twice weekly fitness sessions recommended by her Group leader and will meet monthly (at the time of the group session) with the fitness instructor. Although the group is near her home, if she needs transportation there, it will be provided for her. Mrs. Durham and the other participants will receive a notebook containing core curriculum topics (Appendix N). However, they will feel free to address any concerns they may have. Mrs. Durham will meet with her midwife or nurse at 2 weeks of delivery, 6weeks of delivery, and one year after delivery. If Mrs. Durham had a chronic medical condition such as diabetes or hypertension, requiring medication, she would meet her individual group provider (MD) at two weeks, six weeks, and every 2-3 months for one year. Mrs. Durham’s ‘internatal navigator’ initially made contact with her Baby Love worker and Mrs. Durham’s navigator also made sure she had contact with a home health RN, from Durham Connects within the first two days post partum. She will make regular phone contact with Mrs. Durham to ensure she is able to use other home services available to her through the DCHD. Her ‘internatal navigator’ is also available to assist with resources and needs for her child. Mrs. Durham has new stressors that make attending groups a challenge. She is a caregiver for her sick parent, and is responsible for all household chores and meals. The demands of caring for a new baby have left her exhausted and overwhelmed. She can barely find time to take a shower. As a member of the internatal care group, she is eligible for assistance with some of these activities. If she desires, a volunteer community health worker will assist her for a few hours monthly with light housework, cooking, grocery shopping or other activities she requires. At the end of the year, Mrs. Durham may be invited to receive additional training to become a mentor or health advisor for other new mothers in her community. She will continue her group fitness twice a week with other mothers who have finished the group care curriculum. She will connect, online with her Group provider to chart her progress and address queries. Mrs. Durham’s provider will have individual follow up with her within one year of finishing the group and again six months later. What volume of services is associated with your alternative model of care? What providers (both physician and non-physician) and community stakeholders would be involved in delivery of your alternative model of care? Approximately 5000 deliveries occur in Durham, Co, shared between Duke University and Durham Regional hospitals. From DSR data, there were 19,739 unique deliveries between 2002 and 2009 and 2,970 (15%) had a subsequent delivery within 2-3 years (email Hongqiu Yang, Duke Biostatistician, November 23, 2009). We anticipate reaching approximately 10% of the obstetric population in 2 years, or approximately 500 postpartum women. Ideally, these women should live in the areas designated geographically (Appendix D-H) as areas with the highest prevalence of these high -risk conditions. For the initial phase of the study (first 4 months) we will recruit 4 groups of 15 women each. In order to reach a target population, our plan is ambitious. Groups will occur monthly. After the initial 4 months, we will recruit 2 groups (15 women in each group) monthly. Each individual group will last 9 months. The maximum number of individual groups that will take place in a given month during the 2year period will be 16 in one month. In order to facilitate these groups, 4-5 group leaders (not fulltime) will be needed. MATERNAL-CHILD HEALTH 11 The individual provider sessions will occur in the previously described clinical settings. Groups may take place during day or evenings. Ideally one location will provide the option of either time of day. For providers, this type of timing may provide additional clinical flexibility. Approximately 4-5 fitness instructors will assist participants. However, the NCCU athletic director (and MCH team member) will direct coordination of volunteer instructors. Athletic students with community service requirements will assist with maintaining these group fitness activities. As the project progresses, other volunteer instructors will be recruited to participate in the program. The program will need two Nutritionists to assist with group nutritional assessment, instruction during group sessions, and individual assistance for patients with additional needs. Internatal Navigators (5) will assist with coordination of 3-4 groups during a 2-year period. Approximately five Lay Health Advisors will participate in this project. The first phase of this model will focus on a three to six month aggressive community education campaign to create awareness of the new model of care. Community stakeholders, LHAs, churches, universities and no-cost social marketing tools will announce the program. Messages directing communities how to access primary care will be streamed to targeted communities via the following community accepted and utilized organizations: North Carolina Central University Durham County Health Department Granny Group B.E.S.T. Alliance for Breastfeeding Lincoln Community Health Center Durham County Health Department/Duke Centering program Community Outreach programs (Baby Love, Healthily Durham Partnership, etc.) Economic analysis – in current state of affairs, which bears the burden and what are the economic implications of the proposed changes in the model of care? What are the estimated incremental costs of delivering your alternative model of care assuming that the primary connected care model is in place? The proposed model of care will focus on improving preventable causes of maternal disease. Given what is known about the costs of obesity and its co-morbidities—which is just one of the many illnesses impacting pregnancy—and its co-morbidities, as well synergies that will result around these disease states from the Connected Care model, one can comfortably postulate that a focus on improving preventable causes of maternal disease will yield a financial benefit. We modeled the financial impact of maternal obesity on excess delivery costs at Duke University Medical Center. Approximately 66% of the pregnant women in our population were obese. Maternal obesity was associated with an increased risk for gestational diabetes, preeclampsia, and cesarean sections. With increasing maternal obesity, the risk for these complications increased. When non-obese (BMI<30) patients were compared obese (BMI>30), there was a significant difference in cost with obese patients demonstrating higher average delivery cost than non-obese (Small, 2010). Given distribution of obesity in our population of 66%, every 5000 obese patients cost an additional $161,700. For 50,000 patients, the additional cost would be $1,617,000 and for every, 100,000 patients the additional cost would be $3,234,000. The reduction of maternal weight prior to the next delivery and control of weight gain during pregnancy will not only improve both maternal and infant health but will reduce expensive, and potentially life threatening conditions (Small, 2010). Adverse outcomes of pregnancy impact nearly all aspects of healthcare and society. Given the long term implication on physical, mental, and social health one can make the argument that the greatest return on investment comes from preventing adverse outcomes of pregnancy. A detailed plan supporting our model grounded of preconception care is outside the scope of this document, but data and experiences that strongly support a context of healthcare that focuses on the interpartum period. MATERNAL-CHILD HEALTH 12 The financial benefits are not only conceptual, as evidence for cost savings for such a model is mounting. A 3-study meta-analysis demonstrated cost benefit, with one of the studies demonstrating a theoretical savings of $1.60 in expensive maternal and neonatal hospitalization costs with a $1.00 expenditure on preconception care (Grosse, 2006). The second study, from a California retrospectively matched cohort demonstrated a $5.19 cost saving from averted hospitalizations for every $1.00 spent in preconception care when women received 2 preconception visits (the intervention) prior to beginning regular prenatal care. The third work demonstrated a decrease in congenital malformations among women who entered preconception programs compared to those in standard care, with 50% fewer intensive care admissions for their infants. Overall, investments in preconception health may improve overall health and therefore decrease the burden (and cost) of chronic disease, resulting in lower cost (Phillips, 2008). Implementation of our model will have some new costs. However, we believe that these costs will be relatively incremental and minimal compared to the fixed costs associated with a connected care model being proposed for Durham County and similar infrastructure needs in other DHI collaborative’ health models. For example, the costs associated with the patient navigator program for a given DHI focus are theoretically incremental and minimal as more disease states get managed through this route. The same is true for information technology. Additional key areas of need would include salary support for administrative support/project managers, directly involved with this work. Additional costs would also include training and support for professional, new centering pregnancy providers, nutritionists, instructors/educators, as wells as educational materials needed to conduct groups. Durable medical equipment will be needed for sessions, as well, as a few core pieces of mobile equipment for fitness sessions. How do the health metrics identified by your team align with your proposed alternative model of care? The biologic markers of cardiovascular risk reduction, hypertension control, weight reduction, and improved activity are measurable outcomes of this work. Long-term measures will include reduction in low birth weight and infant mortality in subsequent pregnancies. These metrics, both short and long term, will be achieved through the success of other metrics. The success of this model is dependent on the engagement of the community and community resources with heath care providers. This engagement involves linking to existing structures, which may help to address medical and nonmedical conditions that may adversely impact health such as food insecurity. Support for community based, decentralized, health resource utilization may improve the neighborhood level interventions for communities at highest risk for the adverse outcomes. If this model decreases adverse outcomes for the highest risk women, it will serve as a model of decreasing health disparities in adverse pregnancy outcomes. If women have more resources in the internatal period, they may be less likely to utilize expensive emergency services. What regulatory/policy changes (national/state/local) would facilitate your proposed alternative model of care? A successful model will be built upon the core principles of public health. Disease prevention and health promotion however, are poorly reimbursed. Nevertheless, such interventions may provide the clinical pillars for potential long-term cost savings (Phillips, 2008). Nationally, Medicaid covers 41% of all deliveries and is, therefore the largest financier of maternity care in the United States. For many poor women, however, this coverage ceases after 60 days postpartum. Many of these women also bear a disproportionate burden of illness and risk for adverse birth outcomes because of poverty (Phillips, 2008). In North Carolina, as in several other states, a family planning waiver provides a limited package of interconception services to eligible women, but state officials have recognized desirable improvements in such coverage. Much of the challenge in achieving fiscal support for additional services comes from a limited evidence base and difficulty in demonstrating budget neutrality necessary for federal funding. Standard guidelines for preconception coverage, based MATERNAL-CHILD HEALTH 13 upon an evidence-based model, would provide a strong basis for policy change. Such guidelines may include coverage of health education/risk assessment services, in both individualized settings with primary care providers, as well as with ancillary providers of care services (e.g. group level nutrition intervention/counseling). In response to the child fatality task force’s recommendations for interconception care funding, the North Carolina Legislature recently passed the following Bill aimed at reducing infant mortality and preterm birth “Department of Health and Human Services, Division of Medical seek a Medicaid 1115 waiver or implement other available Medicaid options to provide interconception coverage to low-income women with incomes below one hundred eight-five percent (185%) of the federal poverty guidelines who have given birth to a high-risk infant. A high-risk infant is defined as weighing less than 1500 grams, is born less than 34 weeks gestation, is born with a congenital anomaly, or who has died within the first 28 days of life. Interconception care shall be limited to two years following the birth of a high-risk infant, or until a subsequent birth, whichever comes first. The Division is authorized to develop a benefit package to improve interconception care to decrease poor birth outcomes in subsequent pregnancies. The Division shall provide estimates of the cost savings from improved birth outcomes that will offset the cost of providing Medicaid coverage to this“(www.ncga.state.nc.us/Sessions/2009/Bills/House/ accessed December 1, 2009). The legislation presently resides in the appropriations committee. Implementation of this policy would greatly facilitate adaptation for internatal care models of care, particularly for the large population of women at risk with Medicaid insurance. How could the proposed model of care be evaluated in terms of processes, impact, and outcomes? We will conduct three types of evaluation of the Internatal Care Program: 1. A process evaluation will take place 30 days from the initial enrollment of participants to the Internatal Care Program. The process evaluation will assess the degree in which the initial education and referral information was received and utilized by the participants. 2. An impact evaluation will take place at 60-day intervals from initial enrollment in the program to assess the impact of the program on participants’ behavioral changes. We will assess increased activity, stress management, diet modifications (low fat, low sodium, increased fruits and vegetables), folic acid consumption, and medication compliance. We will also assess health care utilization to evaluate whether participants utilize emergency services for non-urgent conditions. 3. Outcome Evaluation will take place one year from the initial enrollment in the Internatal Care Program. Participants will be assessed on the long term outcome metrics such as: indictors of weight reduction or maintenance, glucose control, blood pressure control, HDL/LDL at target, decreased alcohol consumption, smoking cessation, diet modification, increased weekly exercise, improved stress management, and overall adherence to her ‘reproductive life plan’. Long term outcome evaluation will assess increases in inter pregnancy intervals, health care utilization, and mostly importantly reduction in both maternal morbidity and low birth weight/infant mortality. What are the critical components to the long-term sustainability of the proposed model of care? The proposed model of internatal care utilizes a community-based participatory research (CBPR) process. CBPR is a collaborative approach to research that equitably involves all partners in the research process and recognizes the unique strengths that each brings (Israel, 1998). Our CBPR process began with infant mortality, a research topic of importance to the community. Our intent with CBPR is to transform research from a relationship where researchers act upon a community to answer a research question to one where researchers work collaboratively with community members to define the questions and methods, implement the research, disseminate the findings and apply them. Our community members have become an integral part of the research team and researchers have become further engaged in the activities of the community. Thus, the critical components to long-term sustainability of our proposed model are the components that are also critical to sustaining a community-based participatory research process. These include: creating of a project that comes from the community versus one that is imposed by a funder, engaging in public relations to keep our MATERNAL-CHILD HEALTH 14 activities highly visible, building upon established activities and community assets, choosing an effort that is based on a demonstrated community need, helping other organizations fulfill their mission, nurturing a well-positioned advocate, and involving residents in the decision making so that the activities are relevant and the residents have a long-term commitment to the effort. The components of the internatal care model were based on community needs and assets. The proposed services of the internatal care model will be delivered in the manner thought most feasible by community members, particularly those most likely to need internatal care. Other aspects of our process important to long-term sustainability are having some members of our team focused on sustainability while others focus on the desired outcomes. While we are hopeful for additional financial and resource support from Duke we will also look for opportunities among new federal and state initiatives and try to obtain funding from within the community by trying to identify people with financial resources. We will also seek to build additional relationships with funders through philanthropies, corporations and grant making agencies while encouraging funders to increase the proportion of funds dedicated to the prevention of infant mortality. An additional component of long-tern sustainability includes monitoring our team's impact through the evaluation of the CBPR partnership and the program implementation. Such an evaluation involves partners in the design and conduct of the evaluations. Process evaluation will be used to monitor the health of the partnership. Process evaluations can be done relatively simply and inexpensively by incorporating reflective discussions into board meetings, periodic online anonymous surveys or annual face-to-face interviews with partners. Process evaluation participants will also include women who have been a part of our program. We will also conduct outcome evaluations to determine if the important factors affecting infant mortality and preterm delivery are reduced. To sustain the long-term support for our efforts in the community we will share and disseminate our findings and successes with the community. KEY ELEMENTS OF A CONNECTED CARE MODEL FOR SUCCESS OF PROPOSED TEAM MODEL OF CARE What functions would your team want a CC model to contain? A connected care model emphasizing internatal care would ideally encompass 4 functions: (1) Community engagement; (2) Provision of services, defined as group and individual care; (3) Involvement of key stakeholders including state and county agencies, nonprofit organizations, community associations, the faith community, NCCU and Duke; (4) Coordination of services, staff, resources and data. How would workflow and processes ideally work within the CC model? Women would be identified prior to leaving the hospital, and approached for full involvement in internatal care by a hospital social worker, provider, or patient resource manager. If the patient is interested in enrolling, an internatal navigator (IN) would be made aware of the initial contact and would contact the patient before scheduling a visit within the first 2 weeks postpartum to provide support and perform assessment. The patient would be offered participation in an internatal group with other women from the same community. The internatal navigators would work with the patient’s internatal care provider to develop a personal health map, encompassing self-care, patient education, diet, fitness, medical care plan and contraception resources/family planning. Key metrics (height, weight, blood pressure, blood glucose, and urinalysis) would be obtained at the time of encounters with lay health advisors, as well as during group care sessions. These data would be recorded and shared with the primary health care and OBGYN providers; no matter what setting she visits. How can we ensure that Durham County residents and patients remain engaged in the Connected Care system and the more formal health system where appropriate? Maintaining an active relationship between the health community and Durham County residents is key to the success of our model. This would occur through two main mechanisms. First, partnerships with community agencies; other organizations such as churches, state and local agencies; and the medical system (primary care and OB/GYN providers, community practices, DUMC and DRH) would be facilitated by the internatal navigators (who have a presence in the community). These interactions would provide a web of support and follow up for patients. Also, hosting regular screenings and educational activities throughout the community will encourage regular participation in health activities MATERNAL-CHILD HEALTH 15 and the health system. Second, mechanisms such as an integrated IT system enabling communication between these institutions and patient access to medical data would allow for better follow up and build patient confidence in the Connected Care model. Communication among providers and community workers is essential to meeting the needs of the community. We envision the following methods to maintain engagement with the community: A collaborative social marketing committee comprised of representatives from Durham County Government, Duke University, Faith-Based Organizations, and Human Services to devise a social marketing campaign to promote an Internatal service of care. Pilot community sites to offer medical and community support services for Internatal clients. Form and sustain an Internatal Advisory Council (including current members of the MCH—DHI internatal team) that will monitor the progress, establish guidelines for services, and seek funding for the continuation of services Internatal Messages/ Social Marketing Campaign will be: Tailored to all so that messages will fit everyone Inclusive of older adults. Messages will encourage them to promote wellness in younger generations. This approach with target potential ‘parenting mentors.’ Take the focus off of pregnancy. Focus overall wellness instead of pregnancy. Use terminology other than “preconception health” Duplicated in all settings for educational efforts This model’s format will answer, “Where can I receive health care and feel comfortable?” Internatal Social Marketing Committee and partnering organizations will create a feeling of trust and ownership for residents thus creating a community’s new era in accessing community oriented primary health care. How can we ensure that residents/patients have an opportunity to understand their health care treatment options, as well as how their own behavioral choices affect their health outcomes? Patients will have the opportunity to understand their options through discussions with the internatal navigator, group care providers, medical care providers and access to online or print information. In addition, the model, with both group and individualized support, is an effective model for not only behavioral changes in pregnancy but also beyond pregnancy. Women will have health messages presented and reinforced in the Centering model as well as by lay health advisors (Icovics, 2007). The proposed use of health navigation and individualized health visits should improve patient understanding of and adherence to health messages. The collaborative ‘life plans’ developed between women and their primary providers, as well as the focus on connecting women with key community agencies and supports will particularly allow the most vulnerable high risk women to focus on and improve their health statuses. How can we maximize the probability that residents/patients will adhere to the plans that are agreed upon between providers and residents/patients? A key mechanism for ensuring that patients understand their health treatment options and the effects of their behavioral choices on health outcomes will be the involvement of the internatal navigator, our use of the internatal group care model, and patient access to print and online information. Within the context of this model, patients will be made aware of health treatment options (including but not limited to primary care providers, the medical home, alternative sites of care, and lay health advisors). The group internatal care model will present and reinforce these options in a way that is understandable and acceptable to residents/patients. The strong patient education component of our model will help patients to understand that their behavior (especially nutrition, exercise and smoking) is linked to their health status and outcomes. Because a cornerstone of our approach will be emphasis on self-care, residents/patients will have the opportunity to understand and directly take responsibility for their health choices. MATERNAL-CHILD HEALTH 16 How can we ensure that critical patient information (medications, allergies, etc.) is shared efficiently across the multiple components of the CC system? In order for critical patient information to be shared across the CC system, significant IT support (personnel, hardware, and software) are required. Software is required that could interface with diverse existing platforms and systems, for example, between DUMC systems (such as Browser and IDX) and COACH, as well as the Lincoln Health Center server. Hardware (in the form of desktop computers in office spaces) would serve as nodes in such a system. Rather than merging databases, a more fruitful approach would be to allow access to data in different databases. Finally, in order to promote self-care and empowerment, patients should have information on their metrics (“know your numbers”). What information systems (functions) would your team want as part of the CC model? The IT infrastructure should, over time, develop the following capabilities: 1. Record participants’ baseline metrics, and provider and navigator notes in real-time; 2. Interface with other IT platforms (e.g. COACH [LATCH]) so as to share data with organizations and individuals involved in the “web of care”, including other DHI teams; 3. Enable women easy access to their metrics (“know your numbers”), including having their own means of storing and charting their own progress in order to facilitate self-care; 4. Provide the capacity for patients to communicate with each other and providers as they progress through the postpartum period (e.g. through a web portal). What information does each component of the system need? Individuals and organizations promoting community engagement (such as DHI groups) would need to have data that could be used for social marketing, such as demographics, patients’ cultural preferences, components of effective methods for reaching an audience, and tools to study the effectiveness of such efforts. They would also need to assess their effectiveness in the community. Care providers need access to patient clinical data across the “web of care”, as described above. They also need to be able to communicate with each other, consultants, and health navigators and to document such communication. They need a method for tracking referrals, laboratory studies, procedures and radiology. Finally, for group care models, they would need to disseminate information to women in a group setting. Health navigators need to be able to function as the “point people” in a connected care model. Because of women’s complex needs in internatal care, navigators must have access to health information at multiple levels, and be able to communicate with patients as well as multiple members of the “web of health” including health providers, community agencies, and lay health workers. Residents/patients need to be able to access their test results, health metrics, and information related to health maintenance. How should that information be shared? To protect patient confidentiality and privacy, sharing of patient level identifiable information should be restricted to care providers and navigators, with navigators functioning as case managers. As noted above, the latter individuals should access the requisite databases rather than using a merged database. Residents/patients should have access to test results and health metrics to promote self-care, with such information being stored in a separate format from detailed patient records. This would prevent accidental disclosure or deliberate attempts by unauthorized individuals to access records. Who are the stakeholders for this model in Durham County? Key stakeholders for this model in Durham County have been identified in community outreach, outpatient and inpatient care and coordination, financing, links to participating universities: 1. Community outreach stakeholders include the Durham County Department of Health, especially through its lay health advisors and community health workers; El Centro; Partnership for a Healthy Durham; the Durham Coalition; Alpha Kappa Alpha sorority; and the Durham Academy of Medicine, Dentistry and Pharmacy; 2. Medical care stakeholders include nurse practitioners and physician assistants, midwives and physicians practicing in the community, at free clinics (e.g., Good Samaritan) and at the Health Department and Lincoln Community Health Center (outpatient) and hospitalists (at Durham Regional and DUMC) (inpatient). Clinic, health center and health department administrators and MATERNAL-CHILD HEALTH 17 leadership are also key stakeholders, as are academic department administrators and leadership who help allocate clinicians’ time. LATCH is an important stakeholder for coordination of care. 3. 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Hillemeier M, Symons D, Feinberg M, Weisman C, Chuang C, Parrot R, Velott D, Francis L, Baker S, Dyer A, Chinchilli V. Improving women’s preconceptional health: findings for a randomized trial of the strong healthy women intervention in the central Pennsylvania women’s health study. Womens Health Issues. 2008; 18: S87-S96 MATERNAL-CHILD HEALTH 19 Ickovics J, Kershaw T, Westdahl C, Magriples U, Massey Z, Reynolds H, Rising SS. Group prenatal care and perinatal outcomes. Obstetrics and Gynecology. 2007; 110: 2330-339. Israel B, Schulz A, Parker E, Becker A. Review of community-based research: assessing partnership approaches to improve public health. Annu Rev Public Health. 1998; (19):173-202. Johnson K, Posner S, Biermann J, Cordero J, Atrash H, Parker C, et al. Recommendations to improve preconception health and health care – United States. MMWR. 2006. 55(RR06);1-23. Kershaw T, Magriples U, Westdahl C, Rising SS, Ickovics J. Pregnancy as a window of opportunity for HIV prevention: Effects of an HIV intervention delivered within prenatal care. American Journal of Public Health. 2009. 99(11) 2079-2086. Kim C, Newton KM, Knopp RH. Gestational Diabetes and the Incidence of Type 2 Diabetes: A systematic review. Diabetes Care. 2002; 10: 1862-8. Kramer MR, Hogue CR. Place matters: variation in the black/white very preterm birth rate across U.S. metropolitan areas, 2002-2004. Public Health Rep. 2008, 123: 5. Lu M, Halfon N. Racial and Ethnic Disparities in Birth Outcomes: A Life-Course Perspective. Matern Child Health J. 2003. 7: (1). Lu M, Kotelchuck M, Culhane J, Hobel C, Klerman, Thorp J. Preconception Care Between Pregnancies: The content of Internatal Care. Matern Child Health J. 2006; 10:S107-122. Loomis L, Martin M. The interconception health promotion initiative: A demonstration project to reduce the incidence of repeat low birthweight deliveries in a urban safety net hospital. Fam Community Health. 2000; 23(3); 1-16. Magnussen, E, Vatten L, Smith G, Romundstad P. Hypertensive disorders in pregnancy and subsequently measured cardiovascular risk factors; Obstet Gynecol 2009; 114:961-70. Magriples U. Kershaw T. Rising S, Wetahl, Ickovics. The effects of obesity and weight gain in young women on obstetric outcomes. Am Journal of Perinatology. 2009; 26:5. March of Dimes, 2009. “Preterm Birth Report Card.” WWW.MARCHOFDIMES.COM/ABOUTUS/49267_62035.ASP Massey Z, Rising, SR, Ickovic, J. Centering pregnancy group prenatal care: Promoting relationshipcentering care. JOGNN 2006;35:286-294. Matthews TJ, MacDorman MF. Infant mortality statistics from the 2005 period linked birth/infant death data set. National vital statistics reports. National Center for Health Statistics. 2008;7: 2. Meade CS, Ickovics JR. Systematic review of sexual risk among pregnant and mothering teens in the United States: Pregnancy as an opportunity for integrated prevention of STD and repeat pregnancy. Social Science & Medicine. 2005; 60(4): 661-678. MMWR. Apparent disappearance of the black-white infant mortality gap - Dane County, Wisconsin, 1990-2007. MMWR Morb Mortal Wkly Rep. 2009 Jul 24; 58(28):781 North Carolina State Center for Health Statistics. Pregnancy Risk Assessment Monitoring System (PRAMS). 2006. www.schs.state.nc.us/SCHS/prams/2006. MATERNAL-CHILD HEALTH 20 North Carolina Division of Public Health, North Carolina Preconception Health Strategic Plan September 2008-Sepatember 2013, Dept. of Health and Human Services, Women’s Health Branch. http://www.nchealthystart.org/downloads2/preconception_health_strategic_plan Papacek EM, Collins JW, Schulte NF, et al. Differing postneonatal mortality rates of African-American and white infants in Chicago: an ecologic study. Matern Child Health Journal. 2002; 6: 2. p99-105. Partnership for a Healthy Durham. Healthy Carolinians Action Plan 2008 from http://www.healthydurham.org/docs/file/committees/access_to_care/2008CommunityActionPlanAccesstoCare.pdf accessed November 23, 2009 Pathi A, Esen U, Hildreth A. A comparison of complications of pregnancy and delivery in morbidly obese and non-obese women. J Obstet Gynaecol 2006;26:527–530 Phillips K, Flood G. Employer Approaches to Preconception Care. Women’s Health Issues. 2008; 185: S36-S40. Posner S, Broussard D, Sappenfield W, Streeter N, Zapata L, Peck M. Where are the data to drive policy changes for preconception health and health care? Women’s Health Issues. 2008; 18S: S81-S86. Quinn M, MacDonald A, Murtha A. Pregnancy outcomes in centering pregnancy compared to traditional prenatal care in Durham, NC. Manuscript in Preparation. Rising SS. Centering Pregnancy: An Interdisciplinary model of empowerment. Midwifery 1998; 43:46-54. Journal of Nurse- Small M , Peterson—Layne M , Allen T, Brown H, Kershaw T, Carr A, Muir H. The cost of maternal obesity. To be presented, Society for Maternal Fetal Medicine, 2010 Smith A, Bazos D, Fowler T. on Behalf of Durham Health Partners and the Durham County Health Department. 2007 Community Health Assessment. www.Healthydurham.org/stateofcounty/2007/DurhamHealthAssessmentSurveyReport. pdf Valladares, E, Ellsberg M, Pena R, Hogberg U, Person LA. Physical Partner abuse in pregnancy: a risk factor for low birthweight in Nicaragua. Obstet Gynecol. Oct 2002; 100(4): 700-705. MATERNAL-CHILD HEALTH 21 APPENDIX A – INFANT MORTALITY: DURHAM, NC 2003-05 CDC, 2005 PERIOD LINKED BIRTH/DEATH SET MATERNAL-CHILD HEALTH 22 APPENDIX B – LEADING CAUSES OF INFANT MORTALITY PARTNERSHIP FOR A HEALTHY DURHAM, 2007 MATERNAL-CHILD HEALTH 23 APPENDIX C – MODEL TRADITIONAL PRENATAL CARE VS. INTERNATAL CARE Prenatal Care Intranatal Care (Birth) TRADITIONAL CARE Conception +/- Postnatal Care Adverse Maternal Outcomes: Adverse Neonatal Outcomes: •Weight gain→obesity •Diabetes •HTN/preeclampsia •depression •LBW •PTL Prenatal Care Intranatal Care (Birth) INTERNATAL CARE Conception Postnatal Care IMPROVE Maternal Outcomes: IMPROVE Neonatal Outcomes: •Weight gain→obesity •Diabetes •HTN/preeclampsia •depression •LBW •PTL MATERNAL-CHILD HEALTH 24 APPENDIX D – PREECLAMPSIA/ECLAMPSIA DURHAM COUNTY 2007 MATERNAL-CHILD HEALTH 25 APPENDIX E – MATERNAL OBESITY IN DURHAM COUNTY 2007 MATERNAL-CHILD HEALTH 26 APPENDIX F – LOW BIRTH WEIGHT INFANTS IN DURHAM COUNTY 2007 MATERNAL-CHILD HEALTH 27 APPENDIX G – MATERNAL HYPERTENSION DURHAM COUNTY 2007 MATERNAL-CHILD HEALTH 28 APPENDIX H – MATERNAL DIABETES DURHAM COUNTY 2007 MATERNAL-CHILD HEALTH 29 APPENDIX I – OUTCOME MEASURES Outcome Measures Number of Emergency Care visits for nonemergency conditions - Weight Loss/Maintenance - Breast feeding duration - Increased Activity Level - Folic acid consumption --HgbA1c --BP at target Comparison of pre and post surveys regarding health, nutritional literacy, measures of social support, stress , knowledge of community resources Rates of breastfeeding at hospital discharge, 6 weeks, 3 and 6 months postpartum Immunization rates of infants in the first 3 months of life 6 week postpartum visits kept, completion of postpartum glucose tolerance test Desire for and use of contraception at discharge, 3 and 6 months postpartum Pregnancy intendedness with subsequent births, Interpregnancy interval of >12 months Decrease in low birthweight, improvement in maternal health with subsequent birth Decrease infant mortality MATERNAL-CHILD HEALTH 30 APPENDIX J – TEAM MEMBER DESCRIPTIONS Sharon Baker, JD is Community Project Coordinator for the CHC. Ms. Baker has expertise in leading focus groups in community organizations. She will work with Ms. McLaurin to develop and implement community partnerships, including focus groups, analyze results and provide guidance as community liaison. Lottie Barnes, MPH, CHES is a Safety & Health Specialist with past research interest in radiation exposure from medical devices with Duke Radiation Safety Division. She has experience in developing, implementing and evaluating community education program with the Community Health Coalition. She served as the Data Analysis Chair and assisted the project manager during the planning process. Tammy Sinclair Bishop, RNC, MSN, Project Manager, is a Nursing Program Manager in the Duke University Department of Obstetrics and Gynecology. She will advise and assist co-leaders in community engaged research, organize and conduct surveys and focus groups, coordinate communication between project team members, the DHI Oversight Committee and Technical Assistance Cores, and assist with data collection, management and analysis. Bobbie Brown, RN, MSN is Assistant Professor, NCCU School of Nursing. She has extensive background in community nursing, community engagement and academic nursing. She will be responsible for development of the Maternal-Child Health Intervention Group model for training community health workers and heath navigators in interconceptional care and education. She will also assist with model/curriculum development for nursing students on interconceptional care as well as developing evaluation and research tools. Haywood Brown, MD is the Roy T. Parker, MD Professor and Chair of the Department of Obstetrics and Gynecology. Dr. Brown is past president of the Society for Maternal Fetal Medicine. He is a consultant for the HRSA Interconceptional Care Learning Module, a two year project designed to improve pregnancy outcomes and long term health by focusing on interconceptional (internatal) care. Dr. Brown is committed to the care of women at high risk for adverse pregnancy outcomes particularly the disadvantaged and his research focus is in perinatal health disparities. Dr. Brown is nationally recognized for his contributions to medical education. Monique Chireau, MD MPH, Co-Investigator, Co-Team Leader. Dr. Chireau is an Assistant Professor with extensive research and clinical experience working with underserved women. She will assist in coordination of project activities, design, and management. She will, along with the Co-Team Leaders, be responsible for IRB preparation, focus group/survey design, implementation, model development, and manuscript preparation. Tamera Coyne-Beasley, MD, MPH, Community Co-Team Leader, is Associate Professor of Pediatrics and Internal Medicine at UNC-Chapel Hill, and has extensive clinical, research and policy experience related to community issues. She will be responsible for assisting with coordination and collaboration with community based groups and stakeholders, model development, development of an evaluation tool for newborns, data analysis, and manuscript preparation. Kim Dau, RN, CNM, MSN, Consultant, is a Spanish speaking certified nurse midwife and coordinator of the Centering Pregnancy Program (group prenatal care) at Durham County Health Department. She will help to develop the model for internatal care, as well as help in liaisons between the team and the health department’s Centering program. Janeen Gammage, BS, MSLS is a member of Alpha Kappa Alpha Sorority, which is volunteering time and space in their community center, Ivy Community Center, for meetings of the internatal care team. MATERNAL-CHILD HEALTH 31 She will also participate in project support and has identified this project as a volunteer activity for the sorority. She will support mother-granny mentors and as links to community services Sue Guptil, MSN is the Director of Nursing for the Durham County Health Department and has broad background in public health nursing. She will be responsible for coordination with Health Department ancillary services to be included in the Maternal-Child Health Intervention Group model (lay advisors, granny mentors, Durham connect, and prenatal services such as Baby Love). She will also assist with the development of a program for interconceptional care, which can be utilized at the Durham County Health Department’s pregnancy care center. William Hackney, Administrative Assistant, Duke University Department of Obstetrics and Gynecology. He will assist with communications and administrative support. Elaine Hart-Brothers, MD, MPH is an internist with extensive experience working in the Durham community, as well as strong background in community and minority health. She will be responsible for helping develop the Maternal-Child Health Intervention Group care model, assisting with survey development, and coordination of town hall meetings (i.e. between agencies and organizations). She will also have organizational responsibility for administration of CHC activities related to the current grant. Jimmie Hawkins, Midi., is pastor of Covenant Presbyterian Church in Durham and has extensive experience working within Durham and with the Durham faith-based community. He will be responsible for coordination of activities as well as assisting with development and administration of survey materials with and for the faith based community. He will also assist in development of components of the Maternal-Child Health Intervention Group care model that address women’s spiritual needs. Diane Holditch-Davis, RN, PhD, Co-Investigator. Dr. Holdritch-Davis is a Professor with extensive research experience examining maternal-child interaction and development from cultural, biologic, and social perspectives in preterm and low birthweight pregnancies. She will assist in manuscript preparation, survey instrument development for focus groups, interviews, analysis of questionnaires, model development, and application of this for nursing curricula and nursing research. Elizabeth Jensen, MPH Candidate, serves as the Project Coordinator for the Durham Breastfeeding Education and Support Team (B.E.S.T.) for Babies Alliance, a collaborative effort between the Community Health Coalition the UNC Gillings School of Global Public Health. She is also a graduate student at the University of North Carolina at Chapel Hill in the Department of Maternal and Child Health. Ms. Jensen has extensive experience working on public health initiatives that serve the maternal and child health population, including a managing a three year, state-wide initiative to increase preconception health in Florida. William Lawrence, MD, Consultant, Wake County Medical Director, Duke Primary Care, and former director of North Carolina Medicaid. Dr. Lawrence’s interests include novel approaches to improve health literacy, including cost benefit analysis. Dr. Lawrence is a pediatrician who will provide consultation regarding project implications for neonatal outcomes. Sue McLaurin, M.Ed., PT, Community Co-Team leader, is Community Principal Investigator for the CHC and has significant experience with developing and implementing community partnerships, educational projects and technology assessment. She will assist with development of focus group surveys, conduct of focus groups and analysis of data/responses. She will also participate in the development of instruments for town hall meetings and surveys (for community members, the pastoral community, and community health workers). MATERNAL-CHILD HEALTH 32 Evelyn Morrisey, BS, LD/RD, D.Min. is a member of Alpha Kappa Alpha Sorority, which is volunteering time and space in their community center, Ivy Community Center, for meetings of the internatal care team. She will also participate in project support and has identified this project as a volunteer activity for the sorority. She will support mother-granny mentors and as links to community services Sarah Nahm, MPH, RD, LDN is a bilingual public health nutritionist with the Durham County Department of Health. Ms. Nahm has an extensive background in program development for underserved women. She will be responsible for development of an intervention to improve interconceptional nutrition in the Maternal-Child Health Intervention Group model, and to work with stakeholders to develop and apply the Maternal-Child Health Intervention Group model for the Latino community. Renee Parks-Bryant, Health Education Specialist, Program Coordinator for the Infant Mortality Reduction Committee. Ms. Parks-Bryant has extensive experience in developing and implementing lay health advisor models. She is a lay health advisor for the Durham County Health Department. She will help to develop a health education program for participants and will serve as a liaison between the lay health workers and study participants. Rachel Peragallo, MD. Dr. Peragallo is a chief resident in Obstetrics and Gynecology. She has experience with qualitative research and in developing community partnerships with academic institutions both locally and internationally. She will assist conducting and analyzing qualitative research as well as manuscript preparation. Rhonda Reaves, Financial Analyst II, Duke University, Department of Obstetrics and GynecologyOffice of Research Support. Ms. Reaves has over 20 years experience in grants and contract administration, budget and financial analysis, and special project coordination. She will provide grant administration support. Jessica Simo, MHA is the Network Coordinator for the Durham Community Health Network, a Durhambased Medicaid care management program. She works with many community stakeholders to address the healthcare needs of Medicaid recipients. She will provide support to this initiative through linking her care management team with other resources to strengthen interconception health education and support for Durham Medicaid recipients. Maria J Small, MD MPH, Co-Investigator, Co-Team Leader. Dr. Small is an Assistant Professor with interest in hypertensive disease in pregnancy, adverse maternal outcomes, and group prenatal care. She has expertise in Maternal Fetal Medicine and designing care for women with high risk obstetrical conditions. She will serve as the team contact and liaison and will assist in coordination of all team activities and collaborations with other community groups. Dr. Small, along with the Co-Team Leaders, will be responsible for IRB preparation, focus group/survey design, implementation, model development, and manuscript preparation. Rosa Small, BS, MSLS, is a member of Alpha Kappa Alpha Sorority, which is volunteering time and space in their community center, Ivy Community Center, for meetings of the internatal care team. She will also participate in project support and has identified this project as a volunteer activity for the sorority. She will support mother-granny mentors and as links to community services. Geeta Swamy, MD MSS, Co-Investigator. Dr. Swamy is an Assistant Professor and her research includes use of geospatial mapping to study health disparities in obstetrics and developing vaccine intervention programs for pregnant and post partum women. She will assist in model development, MATERNAL-CHILD HEALTH 33 data interpretation, literature review, grant writing, and manuscript preparation. Kevin Thomas, MD, Consultant, Cardiology. Dr. Thomas is an Assistant Professor and his research interests include racial disparities in cardiovascular disease. He will assist in developing appropriate short and long term assessment of cardiovascular disease reduction among the at risk population utilizing a quality improvement paradigm. Dr. Thomas will also assist in manuscript preparation and development of agenda/survey materials for possible overlapping community town hall meeting in African American Community. Ingrid Wicker-McCree, Ed.D. is Athletic Director, NCCU. She brings expertise in models for community health through athletics and will be responsible for developing a care and education model involving student athletes as role models and assistants in interconceptional exercise and physical activity programs. Elizabeth Woods, MA, MPH, director of Soul Food For Your Baby, a project that aims to increase breastfeeding among African Americans in South Los Angeles. This year she also joined forces as the Community Health Liaison with the Durham Breastfeeding Education and Support Team (B.E.S.T.) for Babies Alliance, a collaborative effort between the Community Health Coalition in Durham and the UNC Gillings School of Global Public Health. Before earning her MPH, Ms. Woods worked in communications for a Los Angeles-based homeless agency and as a copy editor for daily newspapers in San Diego and L.A. counties. She has an MPH with an emphasis in Community Health Sciences from UCLA and an MA in international development studies from the University of East Anglia, Norwich, UK. MATERNAL-CHILD HEALTH 34 APPENDIX K – CLINICALLY IMPORTANT AREAS OF PRECONCEPTION CARE CONTENT 1. Immunizations 2. Infectious Disease 3. Medical conditions 4. Psychosocial situations 5. Medications 6. Reproductive History (e.g. prior low birth weight infant) 7. Genetics and genomics 8. Psychiatric conditions 9. Parental Exposures 10. Environmental Exposures 11. Special Populations (immigrant/refugee populations, cancer survivors) 12. Men (preparation for fatherhood, supportive relationships, genetic conditions) (JOHNSON [CDC], 2006) MATERNAL-CHILD HEALTH 35 APPENDIX L – TRADITIONAL PRENATAL CARE VS. CENTERING PREGNANCY® GROUP PRENATAL CARE Traditional Prenatal Care Vs. Centering Pregnancy® Group Prenatal Care Traditional Delivery of care 1. Accepted model of prenatal care using one-to-one exam room visits 2. Care is provided by a credentialed prenatal provider Content of care 3. Variable continuity of provider throughout pregnancy 4. Physical assessment completed inside an examination room by a provider 5. Education is provider-dependent and may be random based on time available for education and/or response to patient- initiated queries 6. Few opportunities for women to interact socially with other pregnant women 7. Care is focused on medical outcomes and recommended testing Patient access to/involvement in care Time spent by providers and patients 8. Prenatal care records are maintained by the provider and not shared with the patient unless requested 9. Provider schedule determines patient appointment dates and times. 10. Patient services are often fragmented (e.g., smoking cessation and nutrition counseling, WIC, labor preparation) 11. Limited opportunity for women to have contact with other women after delivery 12. Variable waiting time 13. May be difficult to adapt care to accommodate cultural issues 14. Providers may find the provision of prenatal care to be repetitive, and often lack sufficient time to go into more detail regarding specific patient questions or concerns 15. Average visit time is limited by provider schedule Administration/scheduling 16. Efficiency marked by scheduling of patients at 1015 minute intervals Provider/resident/student education 17. Student education is limited by exam room space and time constraints Group Care 1. Prenatal care provided within the group space (community or conference room) 2. Care is provided through a partnership of a credentialed provider and pregnant woman 3. Continuity of care from a single provider 4. Patient participation in physical assessment (e.g., blood pressure, weight) and documentation. Fundal height and heart rate monitoring occur in group space. If required, health concerns that require private consultation and cervical examinations are conducted in ancillary visits in a private examination room. 5. Education runs throughout the ten sessions with trained providers and structured materials. Self-assessment sheets at sessions provide continuous feedback 6. Opportunities for community building are present throughout prenatal/postpartum period. 7. Care is focused on health outcomes and personal empowerment. Testing such as blood draw can be done in group setting 8. Women contribute data to their own record by performing their weight and blood pressure as well as documentation. They are encouraged to keep copies of their progress for their personal records. Transparency of the medical chart should contribute to increased safety. 9. Schedule of group visits is available at first session which occurs at approximately 16 weeks 10. Group provides “one stop shopping” with all services available within the group, providing services more efficiently 11. Community building throughout pregnancy often leads to ongoing support postpartum 12. All care, education, and support take place within the twohour time period; no waiting room 13. Group can provide a setting that is supportive of cultural and language differences 14. Groups minimize repetition and permit sufficient time for more in-depth discussion 15. Total provider/patient time throughout pregnancy is approximately 20 hours 16. 8-10 women can receive total care within a 2-hour period in a conference or community room. This allows examination rooms to be used for other purposes. 17. Students and preceptors work together within the group, incorporating student education and direct supervision (From Icovics, 2007 with permission) MATERNAL-CHILD HEALTH 36 APPENDIX M – INTERNATAL CARE MODEL INTERNATAL “Group” CARE MODEL CNMs, MDs, RNs (Duke-NCCU) “LIFE COURSE” Social support Preconception Smoking Obesity DM HTN OUTCOMES Health education Community Engagement Faith based centers Community centers Neighborhood Locations Life Events Allostatic loac Chronic stress Neighborhood stress Nutrition & Fitness Empowerment Improve Maternal Health Weight loss/maintenance, Hgb A1c Folate Risk reduction (smoking) Improve Child Health LBW, Infant Mortality Low birth weight Navigators/LHA Individual Plan with PCP in Postnatal Period MATERNAL-CHILD HEALTH 37 APPENDIX N – GROUP INTERNATAL CARE CORE CURRICULUM Group Internatal Care Core Curriculum Group 1: Basic Introduction— -Baseline Health Metrics—understanding personal health and postpartum health - Develop a Personal Health “Plan”/Family Planning - Health Navigation Resources Group 2: Nutritional education including food label literacy, diabetic diets Group 3: Mental health: Postpartum Depression, Spirituality, Relaxation Techniques/Hypertension Group 4: Caring for your new infant. Breastfeeding. Immunizations. Group 5: Family Planning Group 6: Parenting Group 7: HIV/AIDS, Sexuality Group 8: Partner Violence Group 9: Back to work/school: Housing, Social Services, Community services Group 10: Folic Acid, Medications, Substance Abuse MATERNAL-CHILD HEALTH 38