Go!Big!Red!!!! - O`Hana Kids News
Transcription
Go!Big!Red!!!! - O`Hana Kids News
Edition #52 September 2014 Central, Northern & Western Nebraska Edition Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! May is Better Speech & Hearing Month May 9 is National School Nurse Day ! ! May 13 is Mother's Day Proudly serving over 8,500+ families Since June 2010!!-- NOW Across all of Nebraska!!! Edition #24 May 2012 Special Needs Mom's June is Father's Day Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! ! You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed ownSpeech selves with all that weMonth can do! May is our Better & Hearing ! ! ! Special Needs Mom's Hey!Everyone,! ! May 9 is National School Nurse Day ! We've gained patience beyond measure, love we never dreamed of giving. You may think us “special moms” have it pretty rough. ! the Speech and We worry about future but know thisServices “special” life's May 13Language islifeMother's Day We have no choice. We just manage when things get reallyworth tough. living! We!hope!that!you!enjoy!this!edition!! We have bad days and hurt sometimes, but we hold ouritheads up high. We've made it through the days we thought we'd never make through. ! We've even own selves all thatoften we can do! we cry. We feel joyimpressed and prideour and thankfulness more than 1540 South 70th with Street, #101 ! ! Lincoln, NE 68506 We've gained patience beyond measure, love we never dreamed of giving. &!As!we!are!football!enthusiasts!.!.!.!! For our kids, we aren't just SUPERMOMS, No, we do so much more :) We worry about! the future but know this “special” life's worth living! www.comworkslincoln.com We are cheerleaders, nurses, and therapists who don't out the door. We have bad days and hurt sometimes, but we hold our headswalk up high. Special Needs Mom's ! facebook.com/comworkslincoln We handle rude remarks and unkindmore stares, with We feel joy and pride and thankfulness often thandignity we cry.and grace. Even though the pain they bring cannot be erased. ! communication… For our kids, we aren't just SUPERMOMS, No, we do so much more :) You may think us “special moms” have itwho pretty rough. We are cheerleaders, nurses, and therapists don't walk out the door. the essential human connection 402.480.3152 Therapies and treatment routes are alife lot for dignity usthings to digest, have no choice. We just manage when really tough. We handle rude remarks and unkind stares, with andget grace. Go!Big!Red!!!! We ~days Ashley Montagu We know what the future holds, give ournever kids our best. Evendon't though the pain they bring cannot be but erased. We've made it through the we thought we'd make it through. None of us can be replaced, so we don't getall many We've even impressed our own selves with thatbreaks. we can do! Therapies and treatment routes are a lot for us to digest, It wears us out, but to help our kids, we'll do whatever it takes! We don't know what the future holds, but give our kids our best. We've patience beyond lovebreaks. we never dreamed of giving. None ofgained us can be replaced, so we measure, don't get many We are selfless, not by choice you see.doOur kids just have many needs. We worry the but know “special” It wears usabout out, but to future help our kids, we'llthis whatever itlife's takes!worth living! We're not out to change the world, but want to plantour some seeds. We have bad days and hurt sometimes, but we hold heads up high. We want our kids accepted. That is our aim. We are selfless, not by choice you see.really Our kids just havethan many needs. We feel joy and pride and thankfulness more often we cry. We're not toat change the world, but want plant some seeds. When we out look them, we just see kids.toWe hope you'll do the same. ! Wheels!for!the!World! For our kids, we aren't just SUPERMOMS, No, we do so much more :) We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same. ! Wheelchair)Drive)) September)1)to)September)30,)2014) -- April Vernon We are cheerleaders, nurses, and therapists who don't walk out the door. -- April Vernon We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased. Check out out anyany event ! Check event Therapies and treatment routes are a lot for us to digest, changes, after publication changes, after publication We don't know what the future holds, but give our kids our best. What's Where??? Do!you!have!used!manual!wheelchairs,!crutches,!or!foldable!walkers!laying!around!your!home!that! additions & MORE additions & MORE None of us can be replaced, so we don't get many breaks. at our blog: at our blog: It wears us out, but to help our kids, we'll do whatever it takes! you!no!longer!are!in!need!of?!!Here!is!a!great!opportunity!to!donate!those!items!to!a!great!cause!!!! Important Tidbits forpages Families Important Tidbits for Families 2 - 6pages 2 - 6 www.ohanakidsnews. State-Wide page 6 State-Wide page 6 ! www.ohanakidsnews. We are selfless, not by choice Bellevue, you see. Our kids just&have many needs. blogspot.com Cedar Bluff Columbus page 7 Bellevue, Cedar Bluff & Columbus pageseeds. 7 blogspot.com We're not out to change the world, but want plant Island some Fremont &to Grand page 8 Wheels!for!the!World!is!a!program!that!collects!used!wheelchairs,!crutches,!&!walkers!(and!spare! Fremont & Grand page 8 page 9 We want our kids accepted. That really isIsland our&aim. For more information, Gretna Hastings parts).!!They!refurbish!them,!then!give!them!to!adults!and!children!in!countries!such!as!Ghana,! When we look at them, we just see kids.Lincoln We hope you'll the same. Gretna & Hastings page 9 10 do or advertising rates pages - 15 For more information, please contact us at: Norfolk pages 15 - 16 Lincoln pages 10 15 or advertising rates China,!Romania,!Peru,!and!Mexico.!!!Each!recipient!also!receives!a!Bible!in!his!or!her!language,!and! North -- April Vernon Norfolk pages 15 -Platte 16 page 16 please contact us at: 402-227-5304 Omaha pages 16 - 24 the!message!of!salvation!through!Jesus!Christ.!!! [email protected] North Platte page 16 Resources for Families pages x 402-227-5304 FACEBOOK too!! Omaha pagesClassifieds 16 - 24 page 29 ! [email protected] Resources for Families pages x Check out any event Thanks for Reading FACEBOOK too!! OKN!! For!more!information!on!this!wheelchair!drive,!! Classifieds page 29 changes, after publication or!to!arrange!pickup!of!donations!please!contact! additions & MORE Thanks for Reading OKN!! at our blog: !Michelle!Wiggins!at!402=420=0587! Important Tidbits for Families pages 2 - 6 State-Wide page 6 www.ohanakidsnews. [email protected]!! 402-327-2500 Bellevue, Cedar Bluff &could Columbus page information!!! 7 blogspot.com us Expand our Reach,Pass Passus us along to you know who could use this HelpHelp us Expand our Reach, along tofamilies families you know who use information!!! this 8055 O Street, Suite S110 Lincoln, NE 68510 Fremont & Grand Island page 8 For more information, www.heartlandspeech.com Gretna & Hastings page 9 Lincoln pages 10 - 15 or advertising rates This edition Covers ALL BUT these counties: Find us on FACEBOOK too! Norfolk pages 15Saunders, - 16 please usthe at:List of Where Things Are Seecontact pg 3 for Washington, Dodge, Douglas, Sarpy, Cass, North Platte page 16 Nemaha, Pawnee, Gage, Otoe, Lancaster, Johnson, In O’Hana Kids News 402-227-5304 Omaha pagesJefferson 16 - 24 & Saline. [email protected] Resources for Families pages x FACEBOOK too!! Classifieds page 29 What's Where??? What's Where??? Thanks for Reading OKN!! Edition #24 May 2012 Classifieds Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! CLASSIFIEDS Do you have something you want to get rid of or no longer have use for? How about something that you need? Email me to place that information right here in O’Hana Kids News! [email protected] It’s All Free to List! to them. Buy, Sell, Trade, Give Away or Need & Jobs May is Better Speech & Hearing Month May 9 is National School Nurse Day WISH LIST FOR VODEC: Bingo Cards, KaraokeDay Machine, Portable Stereo, CD’s, MayMachine 13 is&Mother's DVD’s for movie nights, Popcorn Machine, Pinatas & Sugar Free Candy, Craft Items (including: construction paper, glue, markers, beads, jewelry making kits, scrap booking supplies), Play Money for educational purposes, color printer, sporting equipment (including: handicapped ramp for bowling, basketballs, shot put balls 6 & 8 lbs, cones, tennis balls, bocce ball set, baseballs, baseball bats, baseball gloves, soccer balls, bowling bags, bowling balls, stop watches, clipboards, jerseys, pom-poms, cheerleading uniforms, shirts for coaches, fishing gear), coolers, cookbooks, You may think us “special moms” have itPam pretty rough.at [email protected] roasters for food & food serving equipment. Contact Monsky Special Needs Mom's We have no choice. We just manage life when things get really tough. We've made it through the kind days we make through. Used AFO’s and braces of any – if thought your childwe'd has never outgrown the itshoes, afo’s, even ownup selves all email that we can do! braces, etcWe've and they areimpressed sitting justour taking space,with please heather at [email protected] they will be collected and distributed overseas via a local We've gained patience beyond measure, love we never dreamed of giving. orthopedicWe specialist travels and fitsbut children speciallife's equipment is not available worry who about the future knowwith this this “special” worththat living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry. FOR SALE: Adapted Toys! Aaron has toys available that he has already adapted and are ready to go! Contact Aaron today at For our kids, we aren't just SUPERMOMS, No, we do so much more :) [email protected] for more information! IN NEED OF: We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. We are looking for a stair lift for Even our son. Please us atbring [email protected] though thecontact pain they cannot be erased. Therapies and treatment routes are a lotassistance for us toisdigest, FOR SALE: Motorized Scooter & 9 additional wheelchairs. Located in Auburn. If financial needed, please call & talk to We don't know what the future holds, but give our kids our best. Angela, because there are resources available to help or alleviate Call Angela 402-274-9362 for more information None of us canthe be cost. replaced, so we at don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes! To a Good Home: Power wheel chair for a small adult, contact Sandy Houser at [email protected] We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. HELP WANTED: Children’s Respite Care Center (CRCC www.crccomaha.org) is seeking a Pediatric Speech and Language Pathologist to We want our kids accepted. That really is our aim. join our expanding Therapy Program. We practice When a medical of them, therapy and work some the metro’s greatest children. Our wemodel look at we just seewith kids. Weofhope you'll do the same. interdisciplinary approach to therapy fosters a team atmosphere!. Position features flexible -- April Vernonhourly wages, & great benefits. Full time position available immediately! scheduling, competitive ! Must hold a current Nebraska license; Iowa license a bonus!! For more information please contact [email protected] or view job online at http://careerlink.com/job/view/1110/001055 Check out any event changes, after publication HELP WANTED: Searching for a Healthcare Coordinator AND a Healthcare Team Member at additions & MORE Camp Quality Heartland. Contact Caleb Rogers at 712-310-8177 or watch website at at our blog: Important Tidbits for Families pages 2 - 6 www.campqualityusa.org/htl State-Wide page 6 www.ohanakidsnews. Bellevue, Cedar Bluff & Columbus page 7 blogspot.com DONATION: 1 ½ cases of Peptamen Jr & (1 cal) withIsland and without Fremont Grand pagefiber 8 to a good home. [email protected] Gretna & Hastings page 9 For more information, Lincoln pages 10 - 15 or advertising rates RESPITE PROVIDERS NEEDED: Do youpages have the Norfolk 15 gift - 16of service? Do you want to help please contact us at: families in need? The Nebraska Respite Network is a page statewide North Platte 16 program funded through the 402-227-5304 Omaha 16 - 24 Department of Health and Human Services. Wepages are seeking Respite Providers who can help [email protected] Resources pages families take a break from caregiving. Therefor areFamilies volunteer and paidxopportunities available. FACEBOOK too!! Classifieds pageOPPORTUNITY!! 29 Free training can also be provided. This is a STATEWIDE For more information contact Southeast Nebraska Coordinator Misti McInteer at 402-434-3494 or Thanks for Reading OKN!! [email protected] What's Where??? HELP WANTED: Camp Counselors! Boys Town National Research Hospital is currently Help us Expand our Reach, Pass us along to families you know who could use this information!!! seeking Camp Counselors to assist with Camp Abilities for 2014. Camp Abilities Nebraska is a week long residential sports camp for youth ages 9 – 19 who are blind, visually impaired, or deaf-blind. If you are interested in receiving information about this wonderful opportunity, please contact Lisa Bolinger at 402-498-6342 or [email protected] DISCLOSURE: With ANY equipment specific to your child, O’Hana Kids News requests that you PLEASE have your PT/OT involved to ensure that it is a good fit for the child! Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! Church Information ! Evangelical!Free!–!Grand!Island! 2609!S.!Blaine,!Grand!Island! (308)382^[email protected]!! www.gief.org!! May is Better Speech & Hearing Month May 9 is National School Nurse Day ! May 13 is Mother's Day Peace!Lutheran,!Columbus! 2720!28th!Street,!Columbus! [email protected]!! www.aliveinpeace.org! Special Needs Mom's ! ! Every!Sunday! 8:15!am!Worship!Service! 11:00!am!Worship!Service! ! ! Every!Sunday! You may think us “special moms” have it pretty rough. We have no choice. We just manage8:00!am!Worship!Service! life when things get really tough. We've made it through the days we thought we'd never make it through. 10:30!am!Worship!Service! We've even impressed our own selves with all that we can do! ! We've gained patience beyond measure, love we never dreamed of giving. Saturdays! We worry about the future but know this “special” life's worth living! 6:00!pm!Worship!Service! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often! than we cry. ! Westside!Church!–!Fremont! For our kids, we aren't just SUPERMOMS, No, we do so much more :) Midland!University,!Eppley!Auditorium,!! We are cheerleaders, nurses, and therapists who don't walk out the door. and grace. 8th!St.!&!Irving!Ave,!FREMONT! We handle rude remarks and unkind stares, with dignity ! Even though the pain they bring cannot be erased. [email protected]!! Evangelical!Free!–!Kearney! www.wchurch.tv! Therapies and treatment routes are a lot forthus to digest, 4010!7 !Avenue,!Kearney! ! ! Every!Sunday! 10:10!am!Worship!Service! ! We don't know what the future holds, but give our kids our best. (308)237^[email protected]!! None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, www.kearneyfree.com!!! we'll do whatever it takes! ! ! We are selfless, not by choice you see. Our kids just have many needs. Every!Sunday! We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. 9:15!am!Worship!Service! When we look at them, we just see kids. We hope you'll do the same. 11:00!am!Worship!Service! What’s Where??? -- April Vernon Classifieds page 2 Check out any event Church Information page 3 changes, after publication Legislation page 4 additions & MORE State-Wide pages 5 - 12 at our blog: ! ! !What's Where??? What!We!Believe!! Important Tidbits for Families pages 2-6 ! Camp Information pages 13 – 16 State-Wide page 6 These)churches)all)believe)that) page 15 Bellevue, Cedar Bluff & Columbus page 7 Jesus)Christ)is)the)Son)of)God,) Fremont & Grand Island page 8 Chadron page 16 who)was)sent)to)humanity)to) Gretna & Hastings page 9 For more information, Columbus page 17 Lincoln pages 10 -be)the)sacrificial)lamb)for)all) 15 or advertising rates Gering us & at: Gothenburg page 18 Norfolk pages 15 our)wrongdoings,)allowing)for) - 16 please contact North Platte page 16 Grand Island page 19 us)to)spend)eternity)with)Him) 402-227-5304 Omaha pages 16 - 24 Hastings page 20 [email protected] Resources for Families pages x in)Heaven.) FACEBOOK too!! Kearney pages 20 & 21 Classifieds page 29 ) Lexington page 21 The)only)thing)that)we)as)sinful)humans)need)to)do)in) Thanks for Reading OKN!! order)to)be)saved)and)spend)eternity)in)Heaven,)is) McCook page 22 Repent)of)our)sins,)Acknowledge)that)Jesus)Christ)is) Norfolk & North Platte page 23 Help us Expand our Reach, Pass you know who could use this information!!! Ogallala page 24 us along to families our)only)way)to)Heaven,)and)ask)for)His)forgiveness.)) ) Sidney page 25 That’s)It.))) Sioux City page 26 ) Each)of)these)churches)can)help)you)with)any) Resources NOW ON WEBSITE ONLY due to questions)you)may)have)about)Salvation)&)the)Gift)of) their sheer size!!! it)through)Jesus)Christ)our)Lord.) ! ! www.ohanakidsnews. Alliance blogspot.com Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! Nebraska State Legislation Pertinent to Families May is Better Speech & Hearing Month May 9 is National School Nurse Day May 13 is Mother's Day This is Legislation to watch: LB 887 bill intended to adopt the Wellness in Nebraska Act, which is a Medicaid expansion bill. Page 3 LB 1076 is a bill to TIDBITS provide for Medicaid rates and services for homeNeeds health care in Nebraska. Special Mom's IMPORTANT reimbursement FOR FAMILIES Learn how to adapt toys to use a switch/button/BigMac LB 1090 is a bill to adopt thewith Healthy Families and Workplaces Act which allows full time employees to accrue one hour of paid sick Yousick may think us “special moms” have pretty including rough. mental illness. Page 5 This workshop for ANYONE!! will learn how to easilycould & costuse effectively turn the toys youror individual timeis for 30 hours You worked. Employees this time forthat family healthitneeds, It Is Treatable no choice. child already has, & isn't using because ofAUTISM! physical limitations, into toys We that have are adapted to your We just manage life when things get really tough. ________________________ child!! You will learn how to install a jack into a single function toy & convert it into a toyitthat is We've made through the days we thought we'd never make it through. LB a955 The You purpose ofhow thistobill is to adopt theYou Paid Family Leave will selves create with a family leavewe program that provides operated with switch. will learn assemble a switch. will make even a Medical detachable cord Act We've impressed our It own all that can do! * Proven Effectiveness at the that runs from the toy to the switch. to You will be workers able to do this, AND you will go homeor with a income replacement eligible for family care giving bonding with a new child. ALLPlay Baseball for Kids with Special Needs working switch toy & switch. Best of all, Lovaas your child's toy will look professionally by YOU!! Institute Midwest We've adapted, gained measure, love to we never of giving. Wepatience are lookingbeyond for children with disabilities play in ourdreamed incredible ALLPLAY Miracle League Baseball You have seen that the switch operated toys are sometimes 8x as muchWe to order, than if you the could worry about future but know “special” life'sand worth League. Last year we have over this 150 kids play baseball we areliving! looking for MORE!! See our ad to The Lovaasup Institute Midwest is offering intensive To read these bills or follow on their progress, you can go to the Nebraska Unicameral website and use the bill find (upper right buy the toy & put the switch in for a few yourself. Dates/Times will be determined when I more earlydollars, intervention services with behavior therapy the left for information, and check outhold at www.ALLPLAY.org You can also call Bruce at We have bad days and hurt sometimes, butus we our heads up high. handpeople corner) at www.Nebraskalegislature.gov for children autism. The has donations of402-305-5020. have 4 or more interested in the class. with This class isLovaas FREE,Institute however any kind are been the leader in the field of intensive early We feel joy and pride and thankfulness more often than we cry. appreciated. Contact Aaron today at [email protected] for more information! intervention since the early 1970’s, and is world IMPORTANT TIDBITS FOR FAMILIES Parent 2 Parent Mentor's Wanted – Please Read For our kids, we aren't just SUPERMOMS, No, we do so much more :) Heartland Equine Therapeu c Riding Academy 1987. Since that time, Dr. Lovaas and his A & D Waiver – Aged & Disabled Waiver Nationally over 80% of parents of children with disabilities who were mentored by an experienced associates have helped start numerous behavior We are cheerleaders, nurses, and therapists who of don't walk out the door. parent reported it to bet he most helpful source information on coping with the challenges of therapy programs around the world, under the Is YOUR child on this? Is YOUR child eligible to be on this? and unkind stares, with dignity HETRA is proud to offer equine assisted raisingremarks a child with special needs. Mentored parents reportand that grace. the support of a fellow parent was so auspices of the NIMH-sponsored replication We handle rude renowned for its groundbreaking outcome study in Look for ALL our Advertisers in OKN!! If your child is on this waiver, do you project. know As that it makes guidelines non-existent? Nopersonalized a result, we are your excitedincome by the recent unique and that noterased. have come from any other source! Even though the pain they bring cannot be acit could vi es to adults and children with that fellow replicationrespite sites have foundand every month, so you cap on your income. Just have to useoutcomes the 2 hours minimum each As the mother or father of a child with developmental disabilities, you have unique parenting as they completed studies in Wisconsin and disabili es in the Omaha surrounding don't lose your A&D A Coverage. Do you knowIn that you canInstitute add your child, to your experiences. private Through time, training, and trial and error, you have gained valuable skills. Use your Special Sitter California. turn, the Lovaas Midwest is Therapies and treatment routes are a lot for us to digest, knowledge on the journey by becoming a mentor. Parent to Parent (P2P) for you its innovations include health insurance (non-medicaid), known and if are onthat the A&DtheWaiver, you can get those to help another parent community. Staff include cer fied best. We don't know what the future holds, but give our language matrix, dynamic programming, clinical programs link adolescents and kids adultsour with developmental disabilities with premiums paid forAdapted for BOTHDevices you andby your child, through the HIPP program? Has to be the parents of children, Aaron Miller PATH, Intl. instructors, Occupa onal, social skill programming, and parent-training. Our None of us can be replaced, so we don't get many breaks. the day-to-day experiences of raising a experienced and informed veteran parents who understand same family policy, but they will cover theadvance insurance premiums for your entire family!! aim is toall further the effectiveness of early with needs. to Parent is offered by Ollie Webb Center, Inc., a local Physical and Mental Health Therapists. It have wears us child out,medical butspecial to help ourParent kids, we'll doOmaha whatever it takes! interventionwe through best possible treatment For us this was $1,200 in premiums, because are the self-employed, don't a corporate Alexis Verzal Children’s Rehabilitation nonprofit agency. We are seeking parent mentors who are coping well with their child’s situation and for your child and research for all children. Find out how to become a student at plan, and it was killing us. By talking with another mom, I found out about this program, and weorare view him her as a valuable and developing person. Consider becoming a mentor if you’d like to Hospital at Madonna Rehabilitation Hospital We that areour selfless, not bycope choice you see. Our kids of just have many needs. waiting on our reimbursement to arrive!! SoO. cool. 5 yearsPh.D. we were told income dictated www.HETRA.org. help parents with the joys and challenges having a child (of any age) with special needs. The IvarFor Lovaas, We're not out to change the world, but want to plant some seeds. the medicaid that our son received, for us that meantLovaas we had Institute to either stay in this littletime income box commitment involves contacting another parent (in person, -mail or telephone) once every two founded Challenger Little Leagueto cover the expenses inWe want our kidswithin accepted. our aim. weeks the fist 8That weeksreally andPremier Accredited Center by asis mutually agreed thereafter. You have the knowledge and of like $45,000 or make an additional $100,000 therapy and medical The Lovaas Institute Midwest experience. We provide as a framework share your wisdom. The next training will be held services that our sons receives on an annual basis minimum. The guidelines to be the A&D Professional Associa onal, (PATH, Intl.) When weonlook at them, we justtraining seeon of Therapeu kids. We c Horsemanship Interna hopetoyou'll do the same. 2925 Dean Parkway, Suite 300, soon and will include: Guidelines for Helping Families; Creative Coping Skills and Resiliency; Survival Children’s Respite Waiver, I do not know for sure what they Care are. IfCenter you want to know, I can find out, just email me. I Minneapolis, MN 55416 www.HETRA.org l (402) 359-8830 l 10130 S. 222nd Street, Gretna, NE 68028 Tactics for Parents of Children with Special Needs; What Helps Families in High Stress Situations and – 612.925.8365 know that my son qualifies, and if has [email protected] to do with being fed solely by g-button, -- April Vernonand being Tips for Extended Family Members and Siblings; Tips for locating Community Services; Speech Languagefor the HIPP program, just shootCrisis; non-independent. IfHeartland you want the contact&information me an email Information on Parent to Parent USA; Cultural Competence and Family Centered Care; AND www.lovaas.com on that also, or ask your Service Coordinator specifically about it. There are many programs out of Family-Professional Collaboration. To talk with someone about becoming a Principles ! there available to help families like ours out. We just need to get the word out there for familiesplease to HETRA mentor, contact Annie Anderson at 346-5220 ext. 23 or Contact us to receive an extensive review paper of the access that information. If you know of a program, thatAnalysis would families, email me. [email protected] or mail your name, address, phone number and e-mail to: research in Applied Behavior for benefit Autism. Check out any event Ollie [email protected] We outWebb to all Center, Inc | 1941 South 42nd Street | Suite 122 | Omaha, NE 68105 ? Larry Zier,publication OTwill research it and get the correct information changes, after the families. We!are!searching!for!! What's Where??? Therapy!Centers,!Music!Therapists,!Activities,! O'Hana Kids News is giving away POGO cards!! MAY THEY ARE FREE!!! additions & MORE Leaps & Bounds Pediatric Therapy OKN has leftover POGO cards from our fundraiser. Lincoln expires i6/30/2012 and Omaha expires Support!Groups,!you!name!it,!for!the!! Parent Groupat with loss our kids blog:with combined hearing & vision8/31/2012. We would love to for start Families selling the newest POGO Important Tidbits pages 2 -cards 6 but first want to get rid of the The Nebraska Technical Assistance Project on Deaf-Blindness has conducted training this year Madonna School ones we have. Therefore from here on our until they are gone, first come first served they are Central,!Western!&!Northern!Areas!of!Nebraska.!!!! State-Wide page 6 www.ohanakidsnews. specific to parents of children who have a combined hearing & vision loss. The trainingFREE!! has been Justinlet me know via email at [email protected]. We have POGO cards for partnership with theblogspot.com National Consortium on Deaf-Blindness (NCDV2.0). A total of 7 parents have Lincoln and OmahaCedar both. Do!you!know!of!any?! IfBluff you have used a POGO card, Bellevue, & never Columbus page 7 you are missing out. In just as little Nebraska Respite Network as are 1 use you can recoup & theGrand $5 you paid for thepage card, and participated in a series of training activities from May 2011 through October 2011. They now Fremont Island 8 still have a year to use the remainder of the card. My family uses a POGO card on a regular basis, but never been able to use working on their leadership goals & have another planned meeting in April 2012, as well as ongoing ! 9 hundredhave Pediatric Therapy Center Check out any event Gretna &itHastings Forfuture. more information, everything on the card, and usually saves page us several dollars a year in what we can use. meetings in the They are called the Nebraska DB Parent Leadership Team, & have provided changes, after publication Here [email protected]!!! a sample ofLincoln what you get: McDonalds's; pages 10 - 15Burger King, Runza, Many other fast food places, advertising rates lots of support or to the state deaf-blind project. It is the intent of this team to provide one-on-one Pro-Care 3 Pediatric Therapy & MORE coffee shops, Pizza Hut; Valentino's, Domino's Pizza & many other restaurants; Golf at many area additions * Norfolk pages 15 - 16 interaction either via phones, technoloty or face to-face with other parents in the state courses; who haveBig a Red Store; please contact us at: Russwood Auto Center (Lincoln); Oil Changes; Russ' Supermarket ($5 off at our blog: child birth to age 21 with a combined hearing & vision loss. If you want to be connected topurchase one of x 3, Lincoln), North Saltdogs, Platte page 16 other places to save money with I can't even list $50 & so many Stones Worth Stepping these parents, please contact Teresa Coonts at the number and email listed above. This is an them all! So how can YOU getpages YOUR POGO Just shoot us an email or leave us a message 402-227-5304 www.ohanakidsnews. Omaha 16 -card???? 24 exciting group of parents working & learnin together for the purpose of supporting other families in on front page) and we will let you know that your POGO card is on its way!! Limit of 1 (information blogspot.com [email protected] Resources for Families pages x per city per email address!! Thank You!!!! the future. FACEBOOK too!! * Classifieds page 29 For more information, or advertising rates Thanks for Reading OKN!! please contact us at: Building Better Futures 402-227-5304 Help us Expand [email protected] FACEBOOK too!! us along our Reach, Pass The Alexis Verzal Children's Rehabilitation Hospital dedicated the unique needs of children. to families you is know whoto could use this information!!! Thanks for Reading OKN!! O’Hana Kids’ News is not responsible for any events; including cancellations, or changes after print. It is your responsibility to check with each contact to verify the information that we have provided to you. Providing advanced technology and compassionate care for a variety of rehab needs, inpatient or outpatient. Learn more at www.Madonna.org When contacting our advertisers,Make pleasesure tell them foundknow them how HERE!!! to letyou people you found out about these events, activities & advertisers!! Tell ‘em, O’Hana Kids’ News pointed you their way!!! now how you found out about these events, activities & advertisers!! Independent Consultant Heather Ackman 402-227-5304 www.pamperedchef.biz/ heatherackman Now planning Wedding Showers!!! Call today for your spot!! Can be done Online Now!! Proudly serving over 8,500+ families -- NOW The Munroe Meyer Speech Department in partnership with Autism A iPad and iPod lending library. The purpose behind this library is to the opportunity to try iPads and iPods as communication devices be purchasing their own. If you have a family member or know a fami program, please have them contact me to set up a screening. Duri May 2012 the opportunity to try the Edition iPad or iPod#24 as well as several communica If one of the devices is deemed as a viable option for the child, we w device and the appropriate application. During the 30 days, the fam up/training sessions. One will be scheduled midway through the tri for the end of the trial period. During the last scheduled session, w success and will begin the process of securing funding (insurance, g This is an incredible opportunity for the community and we are exci Contact Brock at [email protected] Pageor5 402-559-6460 Across all of Jennifer Nebraska!!! NCDHH – The Nebraska Commission for the Dea ! INFORMATION Statewide May is Better Speech & Hearing Month The mission of the Nebraska Commission for the Deaf and Hard of H communication access and information to enhance awareness and s of life for all who experience hearing loss. The Vision Statement o state agency, the Commission works towards building support, coop regardless of hearing ability resulting in fairness and equality for all Study Participants NEEDED: Recruiting teachers & related service professionals check out our website at www.ncdhh.ne.gov ! May 9 is National School Nurse Day May 13 is Mother's Day ! MORE INFORMATION: Richard Simpson at 785-864-0507 or [email protected] or Stephen * Crutchfield at [email protected] Dental Research Study for Children with Di DECRIPTION: Teachers and related service professionals needed to participate in a study The Department of Pediatric Dentistry at on the Munroe-Meyer Institut intervention methods and teaching strategies used with students with autism spectrum evaluating ways in which dentists can disorders help children with disabilities dental treatment. The researchers are seeking (ASD). Interested participants should contactsduring us. We will contact respondents to give details about children betw need dental done. Children participate the study and to make sure they qualify to participate. Thework questionnaire will askwho about use of receive a $25 gift be seen at MMI or at the new dental clinic at Children’s Hospital. Th various interventions designed for use with children with ASD. It will take about 10 – 15 minutes to National Institutes of Health. Please contact Dr. Keith Allen at 4 complete the think questionnaire. Participants names, names of school districts, or other specific MS at 402-559-4498 to learn more about how to enroll your child You may us “special moms” have it pretty rough. Atidentifying ProCare3, information we treat children * will not disclosed in any way through this study (we aretough. only interested in We have no choice. Webe just manage life when things get really with many different diagnoses, group data). Study Participants MUST: statewe'd approved or full licensure Families Caregiver Day for Rural Nebraska We've made it through the days weHold thought neverprovisional make it through. including but not limited to: Newswe is looking toas putoccupational together a day where caregivers orWe've endorsement in special education or aO'Hana related service area such even impressed our own selves withKids all that can do! Developmental have a massage, seewith a chiropractor, have a great meal, maybe a m therapy; Have aDelays minimum of one year teaching experience at least one student Torticollis doing hair. Just a day where us caregivers can get done i with ASD; Have Disorder current contact with at someone leastlove one elementary age student with ASD We've gained patience beyond measure, we never dreamed of giving. Autism Spectrum something that makes us happy :). I haven't seen anything in Cas Integration (Updated 9/2013) WeSensory worry about the future but knowcaregivers. this “special” worth living! If anylife's families would be interested in something like th Speech Delays We have bad days and hurt sometimes, hold our heads up high. sendbut me we an email. I will base even doing this on how many people Cerebral Palsy ! WeSpecialized Training Of Military Parents Survey for IMilitary needmore is(S.T.O.M.P.): there. Just let me am interested in any comments feel joy and pride and thankfulness often than weknow. cry. Hypotonia Sports & Orthopedic Injuries would like in a short day like this also. Is childcare something to lo Families regarding disabilities Heather Ackman 402-227-5304 or [email protected] our kids, we aren't just SUPERMOMS, No, we do so much more :) TOFor PARTICIPATE: Go http://surveymonkey.com/s/stompmedicaid We offer WeWater are cheerleaders, nurses, and therapists who don't walk out the door. Warm Aquatic Therapy!!FAMILIES ONLY FOR MILITARY We handle rude remarks and unkind stares, with dignity and grace. DECRIPTION: S.T.O.M.P. Millard Pediatric Clinic is involved in a very important survey. We need your help to disseminate though the Ste. pain they cannotMilitary be erased. it.Even What is theRoad, survey, and105 why is bring it important? families face many challenges as part of 13336 Industrial Special Needs Mom's 68137 theirOmaha, desire toNE assist others and defend our freedoms. It is complicated further when there is a Therapies and treatment routes are a lot for us to digest, family member withfor more significant needs. Needs that can’t always be met by the military. One Contact us TODAY a tour We don't know what the future holds, but give our kids our best. or challenge a FREE Screening! such is accessing Medicaid. Since there are many ways Medicaid can support an individual Check out any event changes, after! publication additions & MORE! at our blog: ! www.ohanakidsnews. Find!us!on! blogspot.com !! For more information, Facebook! or advertising rates !At!us at: please contact Ohana!Kids!News! 402-227-5304 None of us can be replaced, so we don't get many breaks. with disabilities it Ext. is one108 resource military families try hard to access. However, because of wait (402)330-3211 It wears us out, but to help our kids, we'll do whatever it takes! listswww.procare3.com and other complications, these families can face barriers to access. STOMP has been asked to help identify some of the potential barriers as well as some possible solutions to this challenge. The We not by choice you see. Our kids just have many needs. We are are Openselfless, 6 Days a Week, Monkey Survey LinkFriday here will provide us with information in this process. We recognize it Monday through We're not out to change the world, but want to to help plant some seeds. with extended hours will take Legislative change both at the local and National We want our kids accepted. That really is our level aim.and this survey will help mold the from 7am 7pm language will beatput forth we on this We areWe not hope in this you'll alone. do We the havesame. the support of When that we look them, justissue. see kids. many from the Department of Defense and Military Caucus who are willing to move this forward. Need Saturday hours? Ask us about those However, the voice of too!! Families is essential and you have the ability to assure it is heard. Please -- April Vernon disseminate this survey to all military families you know. They can either be active duty or retired. Share the link and ask them to do so as well. Take the survey yourself and know that your voice is part of News this great Find us O’Hana Kids’ is noteffort. responsible foron FACEBOOK at STOMP – Specialized Training of any events; including cancellations, or Military Parents (Updated 9/2013) What's Where??? changes after print. It is your responsibility to check with each contact ! the Telehealth for Pediatric to verify information that we have Epilepsy Clinic When contacting to you. 308-865-7742 for information & appointments MORE provided INFORMATION: our advertisers, please tell them Important Tidbits for Families pages 2 growing -6 DECRIPTION: Telehealth offers a chance to participate in an exciting and part of this State-Wide page nation’s health care. It reduces travel hours and away time 6 from work; and brings individuals Bellevue, Cedar Bluff Columbus page 7 that together in order to provide healthcare services and& educational opportunities otherwise Make sure to let people know how youmight found out about these be inaccessible. Through technology, individuals are able to seepage and talk one another from sites Fremont & Grand Island 8 to & events, activities advertisers!! across Nebraska. Currently, allGretna pediatric & neurologists and epileptologists in Nebraska are located in Hastings page 9 Tell O’Hana Kids’ News pointed you their way!!! the urban areas at the far eastern edge‘em, of thepages state. 10 Through Lincoln - 15 telemedicine connections, patients can go to their nearest telehealth site and be linked directly with a board certified pediatric Norfolk pages 15 - 16 neurologist in Omaha. Travel time is greatly reduced and access is easier for both the patients and North Platte page 16 the healthcare provider. Omaha pages 16 - 24 Resources Exceptional Parent Magazinefor Families pages x Classifieds page 29disabilities & other special needs. You This is a magazine for parents of children with developmental [email protected] FACEBOOK too!! ! Thanks for Reading OKN!! can get a digital edition of this magazine, just go to www.eparentdigital.com type in the EMAIL: [email protected] & use the PASSSWORD: specialneeds to access editions digitally. ! O’hana!Kids!News!reports!the!events! ! The F.I.L.M. Project: Family Images for Lasting Memories and!information!as!it!was!given!to!us.!! Help us Expand our Reach, Pass us Family along to for families you know who could use this information!!! Images Lasting Memories is comprised of professional photographers worldwide who gift Please!contact!the!providers!for!the! portraits of families facing a life limiting illness. Families can request their FREE professional portrait session by visiting the website and selecting the “Request a Session” tab. Let us give you event!or!information!to!ensure!the! the gift of family images for your memories. The F.I.L.M. Project believes that in sharing our gifts information!given!is!still!100%! we can inspire healing, faith, and hope to families during their most fragile times through providing accurate.!!OKN!is!not!responsible!for! professional family portraits to those who may have a limited time left with their loved ones due to any!changes!made!to!an!event,!after! the!publication!has!gone!to!print.! This edition is FREE!!! Pass it along!! Join our mailing list, contact Thank!you!! us at www.ohanakidsnews.com TODAY!! Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! Statewide INFORMATION ! May is Better Speech & Hearing Month Parent 2 Parent Mentor’s Wanted!!! Nationally over 80% of parents of children with disabilities, who were mentoredMay by an 9experienced parent,School reported it to be the most helpful source of is National Nurse Day information o coping with the challenges of raising a child with special needs. Mentored parents report that the support of a fellow parent was so unique & personalized that it could not have come from any other source! As the mother or father of a child with developmental disabilities, you have unique parenting experiences. Through time, training, & trial & error, you have gained valuable skills. Use your knowledge to help another parent on the journey by becoming a mentor. Parent to Parent (P2P) programs link parents of children, adolescents & adults with developmental disabilities together with experienced & informed veteran parents who understand the day-to-day experiences of raising a child with special needs. Parent to Parent Omaha is offered by Ollie Webb Center, Inc., a local non-profit agency. We are seeking parent mentors who are coping well with their child’s situation & view him or her as a valuable & developing person. Consider becoming a mentor if you’d like to help parents cope with the joys & challenges of having a child (of any age) with special needs. The time commitment involves contacting another parent (in person, by mail, e-mail or telephone) once every 2 weeks within the first 8 weeks, & as mutually agreed thereafter. You have the knowledge & experience. We provide the training as a framework to share your wisdom. The next training will You may think us “special moms” have it pretty rough. be held soon & will include: Guidelines for Helping Families; Creative Skills &We Resiliency; Survival life Tactics for Parents Children Special Needs; We have Coping no choice. just manage when things of get reallywith tough. What Helps Families in High Stress Situations & Crisis; TipsWe've for Extended & Siblings; forwe Locating Community Services; Information on Parent to madeFamily it through the Tips days thought we'd never make it through. Parent USA; Cultural Competence & Family Centered Care;We've & Principles Family-Professional Collaboration. (4/2012) Towe talk todo! someone about evenofimpressed our own selves with all that can becoming a mentor, please contact Annie Anderson at 402-346-5220, ext 23 or [email protected] or you can mail your Page 5 It Is Treatable name, address, phone number & AUTISM! e-mail to: Ollie Webb Center, Inc., 1941 South 42 ndmeasure, Street, Suite Omaha,dreamed NE 68105of giving. We've gained patience beyond love 122, we never ________________________ We worry about the future but know this “special” life's worth living! ! Tech Tots & Tech Tools Programs Sponsored by days UCP * have bad and hurt sometimes, but we hold our heads up high. Proven Effectiveness We at the The Tech Tots Lending Libraries provide developmental toys, adapted toysand and ALLPlay devices and to children with developmental and physical disabilities, at no cost to Baseball formore Kidsoften with Special Needs We feel joy pride thankfulness than we cry. Lovaas Institute Midwest We are and looking for through children with disabilities to play in our The incredible ALLPLAY Miracle families. UCP of Nebraska offers over 700 adapted toys & technologies for children teens 4 locations (listed below). toys are housed in League Baseball League. Last year we have over 150 kids play baseball and we are looking for MORE!! See our ad to The Lovaas Institute Midwest is offering intensive libraries located in respite or rehab services environments. For Primary use of we the aren't program is through families that usewe services atmuch the center, also our kids, No, doatso moreand :) isYou early intervention services with behavior therapy the left forjust moreSUPERMOMS, information, and check us out www.ALLPLAY.org can also call Bruce at children autism. The Lovaas has cheerleaders, available to the general public. for The toyswith are available to Institute be taken home to reinforce learning. and We therapists have heard from families have We are nurses, who don't that walk outparticipated the door.in this 402-305-5020. been the leader in the field of intensive early program consistently and the value it hassince brought them. one family particular, hasunkind been using the program by takingand 3-4 grace. items home for their We handle rude in remarks and stares, with dignity intervention the earlyto 1970’s, and isAfter world for its study in returnthe Parent Parent Mentor's Wanted – interesting. Please Read child with Cerebral Palsy. Afterrenowned a month ofgroundbreaking using theseoutcome items, they the items they and2“refresh” them with new and It has helped Even though pain bring cannot be something erased. 1987. Since that time, Dr. Lovaas and his Nationally oversame 80% adapted of parents of children with disabilities were mentored an experienced increase the exposure and learning for that child start by numerous continually offering new tools. These toys are cost-prohibitive towho many families, as by they associates have helped behavior parent reported it to bet he most helpful source of information on coping with the challenges of therapy programs around the world, under the Therapies and treatment routes are a lot for us to digest, typically cost more than 5 timesauspices the base cost of the toy without adaptation. UCP has partnered with AT4ALL to make the entire inventory visible online. raising a child with special needs. Mentored parents report that the support of a fellow parent was so of the NIMH-sponsored replication project. As a result, we are excited byWe theArecent don't can know the future give our kids our best. unique and personalized that itbut could not from any other AT4ALL is offered by the Assistive Technology Partnership. family viewwhat the items, request holds, them for loan, andhave thencome simply pick them upsource! at the outcomes that fellow replication sites have found As the mother orAll father a childget withfor developmental disabilities, you have unique None of us can be so weofdon't many breaks. location. Simply go to www.AT4ALL.com, click onin Wisconsin “Children’s category. items available checkout from UCP of Nebraska Tech parenting as they completed studies and Equipment” in thereplaced, experiences. Through time, training, andwhatever trial and error, you have gained valuable skills. Use your California. In turn, the Lovaas InstituteIt Midwest is wears us out,the butsearch to help our kids, we'll do it of takes! Tots Partners (& a few other agency programs) will come up. You can refine by location by selecting one of the UCP Nebraska sites. Under knowledge to help another parent on the journey by becoming a mentor. Parent to Parent (P2P) known for its innovations that include the matrix, Tools dynamiclocations. programming,Children’s clinical Programs, scroll down to find thelanguage UCP Tech adaptedprograms items available through other adolescents and adults with developmental disabilities with link parents of children, social skill programming, and parent-training. Our We are selfless, experienced not by choice you see. Our kidswho just have many needs. experiences of raising a and informed veteran parents understand the day-to-day agencies can also be found on this aimwebsite! is to further advance the effectiveness of early child with special needs. Parent to Parent offeredseeds. by Ollie Webb Center, Inc., a local We're not out change the world, but want toOmaha plantissome through the(All best possible treatment Locations for Tech Tots andintervention Tech Tools: these are listed in to Resources in Back nonprofit agency. We of areOKN) seeking parent mentors who are coping well with their child’s situation and for your child and research for all children. We want our kids accepted. That really is our aim. Children’s Respite Care Center NW, 2010 N. 88th Street, OMAHA 402-496-1000 ask fororSarah view him her asTselentis a valuable and developing person. Consider becoming a mentor if you’d like to When we look athelp them, we just see We hope you'll do the (of same. parents cope with the kids. joys and challenges of having a child any age) with special needs. The O. Ivar Lovaas, Ph.D. time commitment founded Lovaas Institute Children’s Respite Care Center SW, 13336 Industrial Rd, Ste 101, OMAHA 402-895-4000 ask forinvolves Sarah contacting another parent (in person, -mail or telephone) once every two weeks within the fist 8 weeks and as mutually agreed thereafter. You have the knowledge and -April Vernon Tselentis The Lovaas Institute Midwest experience. We provide training as a framework to share your wisdom. The next training will be held May 13 is Mother's Day Special Needs Mom's IMPORTANT TIDBITS FOR FAMILIES ! Find!us!on! !! Facebook! soon and will include: Guidelines for Helping Families; Creative Coping Skills and Resiliency; Survival Madonna Rehabilitation Hospital, 5401 S. Street, LINCOLN 402-486-8617 ask for Michelle Wiggins Tactics for Parents of Children with Special Needs; What Helps Families in High Stress Situations and !At! Crisis; Tips for Extended Family Members and Siblings; Tips for locating Community Services; Information on Parent to Parent USA; Cultural Competence and Family Centered Care; AND Children’s Rehab 3004 W. Faidleywww.lovaas.com Avenue, GRAND ISLAND 308-398-5170 ask for Carole Ostdiek Check outCenter, any event Ohana!Kids!News! Principles of Family-Professional Collaboration. To talk with someone about becoming a 2925 Dean Parkway, Suite 300, Minneapolis, MN 55416 [email protected] – 612.925.8365 What's Where??? changes, after publication mentor, please Contact Services, us to receive an extensive review paper of NORFOLK the Faith Regional Health Services Rehab 1500 Koenigstein, 402-644-7348 ext.contact 7396 Annie Anderson at 346-5220 ext. 23 or [email protected] or mail your name, address, phone number and e-mail to: research in Applied Behavior Analysis for Autism. additions & MORE Ask for Nikki Fischer Ollie Webb Center, Inc | 1941 South 42nd Street | Suite 122 | Omaha, NE 68105 ? at our blog: Important Tidbits for Families pages 2 - 6 O'Hana Kids News is giving away POGO cards!! MAY THEY ARE FREE!!! ! Hearing Care Helpers State-Wide 6 www.ohanakidsnews. leftover from page fundraiser. Lincoln expires i6/30/2012 and Omaha expires www.Accessibility.net purchased the rights to use Hearing Care Helpers asOKN thehas name of itsPOGO new cards division andour I wanted to introduce you to its new 8/31/2012. We would love to start selling the newest POGO cards but first want to get rid of the Bellevue, Cedar Bluff & Columbus page 7powerful website.blogspot.com The web site is fully dedicated to AfterShokz right now but have secured distributorships for the leading products to amplified ones we have. Therefore from here on our until they offer are gone, first come first served they are & Grand page 8 FREE!!Fremont Just let me via with emailIsland at [email protected]. have POGO cards for telephones, Bluetooth headsets, amplified neckloops, mobile accessories and listening systems forknow people hearing loss and those looking for We a remarkable Lincoln andGretna Omaha both. If you have never used a POGO card, you are missing out. In just as little & Hastings page 9 For more information, listening experience. We are here to help the blind and visually impaired and deaf and hard of hearing communities www.HearingCareHelpers.com as 1 use you can recoup the $5 you paid for the card, and still have a year to use the remainder of Lincoln 10on- a15 or advertising rates the card. My family uses apages POGO card regular basis, but have never been able to use Check out any event ! Introducing LowVision.com everything on Norfolk the card, andpages it usually saves us several hundred dollars a year in what we can use. 15 - 16 please contact usNebraskaat: changes, after publication Here is a sample of what you get: McDonalds's; Burger King, Runza, Many other fast food places, http://www.nebraska-lowvision.com North Platte page 16 coffee shops, Pizza Hut; Valentino's, Domino's Pizza & many other restaurants; Golf at many area additions & MORE 402-227-5304 courses; Big Red Store; Russwood Auto-Center Omaha pages 16 24 (Lincoln); Oil Changes; Russ' Supermarket ($5 off at our blog: ! Financial Resource for Families – FirstHand Foundation $50 purchase x 3, Lincoln), Saltdogs, & so many other places to save money with I can't even list [email protected] Resources forget Families pages x Just if all! So how can for YOUindividual YOUR financial POGO card???? shoot an email This is FACEBOOK a resource for too!! families with uncovered medical needs for their children.them Families can apply assistance theyusmeet the or leave us a message www.ohanakidsnews. page 29you know that your POGO card is on its way!! Limit of 1 (information on Classifieds front page) and we will let blogspot.com Foundation’s eligibility criteria. Check it out at www.firsthandfoundation.org per city per email address!! Thank You!!!! Thanks for Reading OKN!! For more information, * or advertising rates please contact us at: Heartland Equine Therapeu c Riding Academy Help us 402-227-5304 ExpandHETRA is proud to offer equine assisted our Reach, Pass us along [email protected] ac vi es to adults and children with FACEBOOK too!! disabili es in the Omaha surrounding Thanks for Reading OKN!! community. Staff include cer fied Building Better Futures to families you could use this information!!! Theknow Alexiswho Verzal Children's Rehabilitation Hospital PATH, Intl. instructors, Occupa onal, Physical and Mental Health Therapists. O’Hana Kids’ News is not responsible for any events; including cancellations, or Find out how to become a student at changes after print. It is your www.HETRA.org. responsibility to check with each contact is dedicated to the unique needs of children. Providing advanced technology and compassionate care for a variety of rehab needs, inpatient or outpatient. to verify the information that we have provided to you. Premier Accredited Center by Professional Associa on of Therapeu c Horsemanship Interna onal, (PATH, Intl.) www.HETRA.org l (402) 359-8830 l 10130 S. 222nd Street, Gretna, NE 68028 Learn more at www.Madonna.org Make sure to let people know how you found out about these events, activities & advertisers!! Tell ‘em, O’Hana Kids’ News pointed you their way!!! Edition #24 May 2012 Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! Statewide INFORMATION May is Better Speech & Hearing Month Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! ! Radio Show byMay Adult with Asperger Syndrome 9 is National School Nurse Day Page 7 “Parents Corner” is a radio show, co-hosted by Brian King, LCSW. Brian is an adult with Asperger Syndrome, who also has 3 boys on the ASD spectrum. Brian will be sharing his parenting strategies and discussing them is with Better Speech & Hearing Month with a panel of parents. HereMay is a link all the details you’ll need to tune in & call in if you’d like. http: tinyurl.com/3gm58h7 May Check9it is outNational & pass it along. His address is: PO Box 994, Chicago, IL 60186 School Nurse Day if you’d like to write to him. May 13 is Mother's Day ! May 13 is Mother's Day Special Needs Mom's Heart Heroes Capes for kids with CHD, a Nebraska Non-Profit Every year, approximately 40,000 infants are born in the US with Congenital Heart Defects (CHD). CHD is the most frequently occurring birth defect & the leading cause of birth-related deaths. More than 50% of You may think us “special moms” have it pretty rough. children with CHD will require at least 1 invasive surgery in their lifetime. In the US, twice as many We have no choice. We just manage life when things get really tough. children die from CHD each year, than all forms of childhood cancers, combined! Needless to say, the We've made it through the days we thought we'd never make it through. survivors of CHD wear their scars, like badges of honor. They are our “Heart Heroes”. Heart Heroes, Inc., We've even impressed our own selves with all that we can do! is a non-profit organization that originated by a few Nebraska moms, who had children with CHD. After You may think through us “special moms” have it & pretty rough. trying to We've coax their children cardiology appointments heart surgeries, they tookofcomfort in the gained patienceWe beyond measure, wethings never dreamed giving. We have no choice. just manage lifelove when get really tough. wondrous We powers of “super hero” capes to comfort their children, & Heart Heroes was founded! Now worry about the future know “special” life's worth living! We've made it through thebut days we this thought we'd never make it through. hundreds We of Heart Hero capes have been draped around thebut little shoulders of CHD children everywhere. have bad days and hurt heads We've even impressed oursometimes, own selves withwe all hold that our we can do!up high. Consider donating Heart Hero Capeand to a thankfulness child with CHD by goingoften to www.heartherocapes.com to We feela joy and pride more than we cry. donate a cape. There is a perpetual wait list of children who need their capes to conquer their fears & give We've gained patience beyond measure, love we never dreamed of giving. them courage. You can about also our future Heart Facebook to see pictures of more many of For our kids, wejoin aren't just Heroes SUPERMOMS, No, we do life's so much :) the cape We worry the but know thisGroup “special” worth living! recipientsWe &We hear their stories. Contact the Co-Founders of but Heart Heroes at [email protected]. are cheerleaders, nurses, and therapists who don't walk outup the door. have bad days and hurt sometimes, we hold our heads high. “ChildrenWe hold our joy hands for a moment, but ourstares, hearts forever.” ~Anonymous handle rude remarks and unkind with dignity and grace. We feel and pride and thankfulness more often than we cry. Even though the pain they bring cannot be erased. ! Villa Marie and just School for Exceptional For our kids,Home we aren't SUPERMOMS, No, we Children do so much more :) Villa Marie Homeare andcheerleaders, School for Exceptional Children provides a loving, atmosphere up to 22 Therapies and treatment routes aretherapists a lot for us to home-like digest, We nurses, and who don't walk out thefor door. children, both day students and boarders. Students enjoy comfortable (4 students We don't know what the future holds, but give ourdormitories kids our best. We handle rude remarks and unkind stares, with dignity and grace. to a room), excellent None recreational a chapel andso spacious grounds. The Villa Marie staff provides total 24 us facilities, canthe be replaced, wecannot don't get breaks. Evenofthough pain they bring be many erased. hour-a-day Villa but Marietofollows the Lincoln Diocesan School It supervision. wears us out, help our kids, we'll doCatholic whatever it calendar. takes! The school has 3 well-equipped classrooms,and a library, up-to-date computers, a Smart in each classroom and a variety of Therapies treatment routes are a lot for usBoard to digest, audio/visual aids. Villa Marie not is approved by the Nebraska Department of kids Education and all teachers are We are selfless, bythe choice you see. but Our kids our just have many needs. We don't know what future holds, give our best. We're not outcan to change the world, but want to plant some seeds. None of us be so we don't many breaks. certified in Special Education. Thereplaced, developmental program atget Villa Marie works towards preparing students It wearsour us out, accepted. but to help ourindependently, kids, we'll do whatever takes! We want kids really is our to function effectively in social situations, to That live & aim. to use their it skills in productive When we look we just seesocial kids. hope you'll do the same. training, employment. Specific areasat of them, development include andWe emotional development, vocational areand selfless, choice involvement. you see. Our kids justfor have many needs. appearance,We health hygiene,not and by community Requirements attendance are: Children not outthe to ages change but want to than plant16some -- We're April with special needs Vernon between of 7 the & 18world, but no students older will beseeds. accepted as new We want That really is our students, Students mustour be kids on an accepted. Individual Education Plan (I.E.P. & aim. not require one-on-one WhenThree we look them, just see kids. interview, We hope2.you'll dovisit theduring same. paraprofessionals, step at process forwe entrance (1. Parent Student school, 3. Application for entrance including tuition negotiation) For More Information on Villa Marie Home and -- April Vernon School Contact Sister Peggy Kucera, Principal at 402-786-3625 or sr. pe ggy- ku ce ra@ vi llam ari e.org Special Needs Mom's Check out any event changes, after publication additions & MORE at our blog: Check out any event changes, after publication www.ohanakidsnews. additions & MORE blogspot.com at our blog: Occupational Therapy For more information, www.ohanakidsnews. Physical Therapy or advertising rates blogspot.com Speech Therapy please contact us at: Therapy ForAquatic more information, 402-227-5304 or advertising rates [email protected] Specializing in the treatment us of: at: please contact FACEBOOK too!! • Feeding Difficulties • Apraxia 402-227-5304 • Torticollisfor • CPOKN!! Thanks Reading [email protected] What's Where??? Camp Quality USA Important Tidbits Families pages - 6 and their families. Camp Quality USA, Inc., provides year-round support for programs for children with 2cancer State-Wide page 6 programs such as reunions and ski Programs include our signature week-long camp and other year-round Bellevue, Cedar Bluff Columbus page 7 a much needed rest, camps. Each camp is volunteer run and community funded. &Camp Quality gives families Fremont & Grand Island knowing that the highest quality program hasTidbits been selected for their page child –8a companion Important for Families pages 2 - 6 will be assigned to ensure the child’s safety and the finestGretna medical supervisors arepage provided & Hastings page 9 each camp to administer State-Wide 6 at medications and on-site care. Campers at Camp Quality range 10 years of age through 17 and vary in pages - 415 Bellevue,Lincoln Cedar Bluff &from Columbus page 7 stages of their treatment or remission. They are children who15 smile, laugh, play and have dreams for a Norfolk pages - 16 Fremont & Grand Island page 8 bright future. The Companions are the lifeblood of the camp. They are the around-the-clock caretaker for North & Platte page page 16 9 Gretna Hastings the campers and ensure the most enjoyable, safe, relaxing, and restoring experience possible for each child. Omaha pages 16 - -24 Lincoln pages 10 15 Each companion, at least 18 years of age, is interviewed, background checked, and trained BEFORE camp!! Resources for Families pages xThe camp is run 100% on Norfolk pages - 16 Camp Quality provides all the year-round programs at NO COST15 to families. Classifieds 2916Or know more about Camp Quality or North Platte page donations, supplies, and volunteer hours. Would you like to page volunteer? even Register for an upcoming Camp? Contact Caleb Rogers at16 712-310-8177 or via email Omaha pages - 24 [email protected] Resources for Families pages x Classifieds page 29 ! Advocacy Page for Parent’s of Children with Disabilities ! What's Where??? • Autism • Down Syndrome FACEBOOK too!! • Sensory Processing • Chromosomal •Thanks Speech Delays Disorders Nowus parents are invited to check out a page on Mosaic’s website for Reading Help us Expand ourOKN!! Reach, Pass along to families you know who could use this information!!! www.mosaicinfo.org/services/research/CollaborativeCorner.html make sure you check out this Open 6 Days a Week • No Long Wait Lists! new resource available to all our families 10791 S.us 72nd Street, Suite Help Expand our 103 Reach, Pass ! us along to families you know who could use this information!!! Sure Steps SMO Orthotics Papillion, NE 68046 (402) 932-2782 www. p tc n e . o rg Sure Steps makes tennis shoes that are made to fit SMO’s. Contact them at www.suresteps.net for more information. This edition is FREE!!! Pass it along!! Join our mailing list, contact us at [email protected] TODAY!! Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! ! Statewide INFORMATION May is Better Speech & Hearing Month May 9 is National School Nurse Day ! May 13 is Mother's Day The)Nebraska)Respite)Network) ) Do)you)know)about)the)Lifespan)Respite)Subsidy)Program?) Special Needs Mom's ! This!program!pays!for!respite!services!(someone!to!come!into!the!home!to!care!for!a! person!with!special!needs,!to!give!the!primary!caregiver!a!temporary!break).!!The!program! serves!people!of!all!ages.!!It!is!for!people!who!are!NOT!receiving!the!services!from!another! You may think us “special moms” have it pretty rough. government!program.! We have no choice. We just manage life when things get really tough. ! We've made it through the days we thought we'd never make it through. ! Pediatric!speech! language!&!feeding! therapy! ! ! Extensive!Experience! with!Deaf/Hard!of! Hearing!&!!!!!!!!!!!!!!!!!!!!!!!!!!! Cochlear!Implants! We've even impressedWho)Needs)This)Program?) our own selves with all that we can do! Caregivers!who!need!a!temporary!break!from!providing!care!to!persons!of!any!age,!with! We've gained patience beyond measure, love we never dreamed of giving. special!needs.!!Examples!of!special!needs!are!developmental!&!physical!limitations,! We worry about the future but know this “special” life's worth living! emotional!or!behavioral!disorders,!chronic!illness.!!Alzheimer’s!disease!&!related!health! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry. concerns,!or!persons!at!risk!of!abuse!&!neglect.!!Eligibility!is!based!on!income!guidelines.!! HOWEVER,!if!you!have!expenses!directly!related!to!the!disability,!these!can!usually!be! For our kids, we aren't just SUPERMOMS, No, we do so much more :) subtracted!from!the!counted!income.!!The!person!applying!must!have!a!caregiver.!!! We are cheerleaders, nurses, and therapists who don't walk out the door. The)program)will)provide)up)to)$125)per)client)per)month!!) We handle rude remarks and unkind stares, with dignity and grace. ) be erased. Even though the pain they bring cannot ! ! Specializing!in!Late! Talkers!&! Developmental!Delay! ! How)do)I)become)a)Respite)Provider?) 402$327$2500( Therapies and treatment routes are a lot for us to digest, How)do)I)get)qualified)for)the)Lifespan)Respite)Subsidy)Program?) We don't know what the future holds, but give our kids our best. What)if)I)need)help)finding)a)respite)provider,)so)I)as)a)Caregiver,)) None of us can be replaced, so we don't get many breaks. It wears us out, but to helpcan)have)a)break?) our kids, we'll do whatever it takes! 1651(North(86 th(St,(Suite(200( Lincoln,(NE(68505( ( www.heartlandspeech.com( ( Find(us(on(FACEBOOK(too!( Contact!the!Nebraska!Respite!Network!by!contacting!a!Respite!Network!Coordinator!in! We are selfless, not by choice you see. Our kids just have many needs. your!area!(see!below)!or!call!1^866^RESPITE! We're not out to change the world, but want to plant some seeds. ! We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same. Western!Service!Area! ! Check out any event changes, after publication O T/PT/ ST additions & MORE at our blog: Sp eci al iz ed th er api es in cl ude : www.ohanakidsnews. blogspot.com Sen s ory Int egr at ion For more information, Th ap eut i c Li s ten irates ng Prog rams orer advertising please contact us at: C ran ios acr al The rap y 402-227-5304 [email protected] O rt hot i cs &too!! B r aci ng FACEBOOK ! ! ! -- April Vernon Serving!Sheridan,!Garden,!Deuel,! Sioux,!Cheyenne,!Morrill,!Box!Butte,! Dawes,!Scottsbluff,!Banner!&! Kimball! !! Coordinator! Sherri!Blome! (308)432^8190! [email protected]!! ! Southwest!Service!Area! Serving!Dundy,!Hitchcock,!Red!Willow,!Furnas,!Gosper,!Dawson,!Lincoln,!Logan,! Thomas,!Grant,!Hooker,!Arthur,!Keith,!Perkins,!Chase,!Hayes,!&!Frontier! ! !Coordinator!Helena!Janousek! (308)345^4223! (308)345^4990! [email protected]!!! What's Where??? Important Tidbits for Families pages 2 - 6 State-Wide page 6 Bellevue, Cedar Bluff & Columbus page 7 ! Fremont & Grand Island page 8 Central!Service!Area! Gretna & Hastings page 9 Serving!Harlan,!Franklin,!Webster,!Clay,!Nuckolls,!Phelps,!Kearney,!Adams,!Buffalo,!Hall,!Hamilton,!Merrick,!Howard,!Sherman,! Lincoln pages 10 - 15 Custer,!Valley,!Greeley,!Blaine,!Loup,!Garfield,!Wheeler! Norfolk pages 15 - 16 ! North Platte page 16 Northern!Service!Area! Serving!Washington,!Dodge,!Colfax,!Platte,!Nance,!Boone,!Antelope,!Holt,!Rock,!Brown,!Cherry,!Keya!Paha,!Boyd,!Knox,!Cedar,! Omaha pages 16 - 24 Burt,!Dixon,!Dakota,!Thurston,!Cuming,!Stanton,!Madison,!Pierce!&!Wayne! Resources for Families pages x ! Classifieds page 29 !Coordinator!Sue!Bochart,!For!BOTH!Service!Areas! (308)745^0780!ext.!145! [email protected]!!! Thanks for BReading aby si gn s OKN!! Soc i al Gr oup s Help us Expand our Reach, Pass usEastern!Service!Area! along to families you know who could use this information!!! Southeast!Service!Area! Feedi n g Th er ap y 6 00 N. 93 rd St r eet, Su i te 1 00 O maha, NE 6 8114 402 -39 1-2001 w ww .st on esw or th s tep pi ng .c om ! Serving!Douglas!&!Sarpy! !! Coordinator! Ellen!Bennett! (402)996^8444! [email protected]!!! Serving!Thayer,!Jefferson,!Gage,!Otoe,!Cass,!Pawnee,!Richardson,!Johnson,! Nemaha,!Lancaster,!Saline,!Fillmore,!York,!Seward,!Polk,!Butler!&!Saunders! !! Coordinator!Misti!McInteer! (402)434^3494!ext.!103! [email protected]!! Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! Statewide INFORMATION ! ! Physical Therapy Occupational Therapy Speech Therapy 2 LOCATIONS To Best Serve You!! SOUTH-WEST LOCATION 7945 S. 15th St., Suite D LINCOLN, NE NORTH LOCATION 4640 Bair Ave In Superior Pointe Shopping Center LINCOLN, NE Call 402-742-7400 To schedule an appointment At either location, TODAY!! Thank You to all L&B Families for their support as we begin our 7th year of service in Lincoln! ! Check out any event If!you!know!! changes, after publication additions & MORE of!resources!in!! at our blog: other!states,!! www.ohanakidsnews. ! blogspot.com Parent May is Better Speech & Hearing Month May 9 is National School Nurse Day Group – Kids with combined hearing & vision loss Page 9 May 13 is Mother's Day The Nebraska Technical Assistance Project on Deaf-Blindness has conducted training this year specific to parents of children who have a combined hearing & vision loss. The training has been in partnership with the National Consortium on Deaf-Blindness (NCDV2.0). A total of 6 parents have participated in a series of training activities from May 2011 through October 2011. They are now working on their leadership goals. They are called the Nebraska DB Parent Leadership Team, & have provided lots of support to the state Deaf-Blind project. It is the intent of this team to provide one-on-one interaction either via phones, technology or face-to-face with other parents in the state who have a child birth to age 21, with a combined hearing & vision loss. If you want to be connected to one of the parents, please may think at us 402-595-1810 “special moms” have it pretty rough. contact You Teresa Coonts or [email protected] This is an exciting group We have&no choice. We just manage when things really tough. of parents working learning together for the purposelife of supporting other get families in the future. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do! Special Needs Mom's ! “Our Story” The Beginning of A Special Sitter As parents of four children, two with special needs, we understand your challenges in raising special needs We've gained patience beyond measure, love we never dreamed of giving. children. As parents, our God given responsibility is to train our children for life. As a parent, you We worry about the future but know this “special” life's worth living! experience highs & lows your and children grow through thebut seasons of life.our Weheads learnedup early, that these We have badas days hurt sometimes, we hold high. highs & lows youand are caring for a childmore with special You cry. want to attend your We are feelamplified joy andwhen pride thankfulness oftenneeds. than we children’s sporting events, teacher conferences, & musical performances. You want to continue to date your spouse, because a strong marriage creates strong family. Like have asked For our kids, we aren't just a SUPERMOMS, No, us, weyou doprobably so much more :)yourselves, “How do we & maintain this balance when of our time & energy devoted caring for our Wecreate are cheerleaders, nurses, andmost therapists who don't iswalk outtothe door. child withWe special needs?” Our desire is and to help you answer thatwith question so your family can experience the handle rude remarks unkind stares, dignity and grace. fullness of blessings available to your family because of your with special needs. A Special Sitter was Even though the pain they bring cannot be child erased. inspired by our ongoing journey of parenting or family & we believe our experiences can help you experience the fullness of blessings wetreatment have received as we are have araised our us family. – Kimberly and Richard Troia, CoTherapies and routes lot for to digest, our kids our best. Founders We of Adon't Specialknow Sitterwhat . Needthe anyfuture help, holds, please but call give us today at 402-697-8400 x201 or None of us can be replaced, so we don't get many breaks. [email protected] It wears us out, but to help our kids, we'll do whatever it takes! ! “Love That Goes the Distance” Providing for special needs now & into the future! Planning We for the a loved oneyou with see. specialOur needs requires thought and preparation. The arelong-term selfless,care notofby choice kids just have many needs. fact is, when it comes to the needs a family member a disability, possibility that they We're not out to future change theofworld, but wantwith to plant somethe seeds. nay outlive you is something that must be considered, especially the individual is a minor or adult child. We want our kids accepted. That really is ourwhen aim. When we estimating look at them, we just care-giving see kids. costs, We hope do the Preparations include possible future as wellyou'll as making sure same. all assets are managed properly to best benefit your loved one. Special protection when you need it most! Sometimes -- Aprilinheritance Vernon issues for special needs family members because they assume siblings or related families neglect caregivers will simply step in and take over the care giving duties should the need arise. Even if families have reached an agreement on care giving responsibilities, it is still important to address the management and division of assets and to have your preferences clearly and legally defined. You also want to be sure you understand all of the legal guidelines so that your loved one with special needs does not lose benefits from government sources. For instance, many people are not aware of that with Supplemental Security Income (SSI), a single, disabled person cannot own more than $2,000 in assets. One component you might want to consider when setting up your long-term financial plan is the establishment of a “Special Needs Important Tidbits for Families pages 2 - 6 Trust” funded with a form of life insurance. A “Special Needs Trust” is established to ensure that the State-Wide 6 disabled individual’s inheritance will supplement, not replace, page any government assistance programs they may Bellevue, Cedar Bluff & Columbus pageto7take care of your loved be eligible for. Aspects of a “Special Needs Trust” include: Appointing someone Fremont & for Grand Island page 8 of age, Integrating the one’s property and money, Designating a guardian children less than 18 years Gretna & of Hastings wishes spelled out in the trust with the remainder the parent’spage estate9plan. Get the help you need now for future peace of mind. A “Special Needs Trust” is pages just one10 tool- that Lincoln 15 can help you address financial issues making life much easier for your loved oneNorfolk and their future pagescaregivers. 15 - 16 With proper planning, your love, and your money, will be set to go the distance.North For additional Platteinformation page 16 on “Special Needs Trusts” it is important to consult with an attorney in your state of residence Omaha pages 16 who - 24specializes in special needs estate planning. For more information on preparing for your loved one with special needs’ future, Resources for Families pages x you can contact Cecilia Loose, Prudential at (402)861-3676. What's Where??? We!are!looking!to!! For put!this!information!! more information, or advertising rates up!on!the!website!! please contact us at: for!any!of!the!families!who! 402-227-5304 may!be!relocating.! [email protected] ! FACEBOOK too!! Classifieds page 29 If!you!have!any! ! Gluten Free/Casein Free Diet Website Thanks for Reading OKN!! information!to!share!.!.!.!! Just received this information that a parent went through and put their information into a website of all the diet information they have for gluten free/casein free. I haven’t checked it out, but take a look. It is ! http://www.lincolntent.com/GFCF.html Help usLet!us!know!!!!!! Expand our Reach, Pass us along to families you know who could use this information!!! ! Apps for kids on the Autism Spectrum ! http://www.educatorstechnology.com/2013/07/a:wonderful:wheel:featuring:ipad:apps.html [email protected]!!! ! Handmade Gowns, IV Covers, G-button covers & more!!! Check this out!! If you have a child who is routinely in the hospital for various things (like mine is ") then you need to check this lady out!! Go to www.tubiewhoobies.com or you can visit them on Facebook at www.facebook.com/tubiewhoobies Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! Page 10 Statewide INFORMATION May is Better Speech & Hearing Month May 9 is National School Nurse Day ! May 13 is Mother's Day ABC Signing Kids Teaching Beg inning S ign Languag e to Kids of All Abilit ie s in Sout h East Neb raska. Why Le arn Sign Langu ag e? In addition to the fun you will have discovering a new and enriching language together, there are many benefits of signing with your child. Enhances C omm u ni cati on S kills i n Bab ies and To ddle rs. Even young children can learn basic ASL vocabulary quickly Page 3 & easily with Signing Time Academy Classes & products. “Terrible Two’s” aren’t so terrible when your toddler can communicate what he wants. Im proves R eading Ski lls. Studies indicate that children who sign have an increased interest in reading & may even read early. Benefit s Children wit h Sp ec ial Ne eds. Many children with special needs have difficulty with communication & speech. Sign Language encourages connection, reinforces positive self-image & fosters inclusion & acceptance. Sign Language is an effective tool for all typestoys of learning styles: visual & kinesthetic/Tactile. Learn how to adapt to use withauditory, a switch/button/BigMac You may think us “special moms” have it pretty rough. For ismore informat ion Cert ified Inst or at 2-49 9-40 22 or abcsig ning -ki ds@ signi ngtim e.c om You c an also This workshop for ANYONE!! You willCall learnAng howie to Willey, easily & cost effectively turn ruct the toys that40 your We have no choice. We just manage life when things get really tough. child already isn't using because physical limitations, into toys that are adapted to your gohas, t o &www. ab csigni ngk of ids. wee bly.co m We've made it through the days we thought we'd never make it through. child!! You will learn how to install a jack into a single function toy & convert it into a toy that is even impressed our own selves with all that we can do! operated with a switch. You will learn how to assemble a switch. You will We've make a detachable cord Special IMPORTANT TIDBITS FOR FAMILIES ! Needs Mom's Respite Care Available for Air Force Families * FREE to them * that runs from to the switch. You will beFamily able toMember do this, Program AND you (EFMP) will go home withstationed a U.S.the Airtoy Force (USAF) Exceptional families throughout the country have children who require unique child care We've gained patience beyond measure, love we never dreamed of giving. working switch toy & switch. Best of all, your child's toy will look professionally adapted, by YOU!! considerations due to the child’s special needs. Finding & paying for quality childthe care for children with special needs can also present significant worry future but know this “special” life's worth living! challenges You have seen that the switch operated toys are sometimes 8x as much toWe order, than ifabout you could military families. U.S. Air Force EFMP program has established a quality program for familiesbut withwe children specialup needs & who are buy the toyfor & put the switch in for The a few dollars, yourself. Dates/Times willWe be determined when I respite have bad days and hurt sometimes, hold having our heads high. enrolled in the USAF EFMP. USAFThis EFMP Respite Care is specifically for Air Force who havemore children diagnosed or severe have 4 or more people interested in the class. class is FREE, however donations of any kind are We feeldesigned joy and pride and families thankfulness often thanwith we moderate cry. special needs under EFMP. This includes exceptional family member children whose medical conditions require assignment near major medical facilities in the appreciated. Contact Aaron today at [email protected] for more information! continental United States, or whose needs are complex and For require of care. What is included in the EFMP more Respite:) Care? Respite ourspecialized kids, wecommunity aren't just SUPERMOMS, No, we doUSAF so much A & D Waiver Aged & Disabled care hours–vary between 8 – 20 hoursWaiver per month based on the status and EFM’s condition (moderate or severe). Your choice anthe approved We Airman’s are cheerleaders, nurses, and therapists who don't walk of out door.inchild’s homeon or licensed Family Child Care or eligible Child Care Center. providers are background screened and have following pre-service handle rude remarks and unkind stares, withthe dignity and grace. training: CPR, Is YOUR child this? Is YOUR child toWe be(Approved on this? First Dispensation, Child Abuse Recognition & Prevention well as subject mattercannot training be in the care of children with special needs. To Even thoughas the pain they bring erased. If your child is onAid, thisMedication waiver, do you know that & it makes your income guidelines non-existent? No theJust application Childrespite Care each Aware atso1-800-424-2246 or email [email protected] for a Respite cap on yourbegin income. have to use process, the 2 hourscall minimum and toll-free every month, you don't lose your Coverage. Do instruction you know that you can toOffice your private CareA&D Step by Step form. Or add callyour thechild, EFMP at 402-294-4329 for more Therapies and treatment routes are ainfo! lot for us to digest, health insurance (non-medicaid), and if you are on the A&D Waiver,We youdon't can get thosewhat the future holds, but give our kids our best. know premiums paid ! for for BOTH you and your child, through the HIPP program? Has to be the Exceptional Advocate Newsletter None of us can be replaced, so we don't get many breaks. same family policy, they families, will cover all the insurance premiums for your family!! Mainly for but Military there is information in this resource forentire families who have with special it out. There are tips on preparing for It wears us out, but tokids help our kids,needs. we'll Check do whatever it takes! For us this was $1,200 in premiums, because we are self-employed, don't have a corporate medical the new school year, information on immunization requirements for military family members, and resources for ensuring emergency preparedness for your plan, and it was killing us. By talking with another mom, I found out about this program, and we are not by choice you see. Our kids just have many needs. family, including a Special Needs Kit and more (seeselfless, page 4). Read it at waiting on whole our reimbursement to arrive!! So cool. ForParent 5 yearsTool we were toldWe thatare our income dictated not income out tobox change the world, but want to plant some seeds. http://apps.militaryonesource.mil/efmp/book/2013/August/ the medicaid that our son received, for us that meant we had to either stayWe're in this little We want our kids accepted. That really is our aim. of like $45,000 or make an additional $100,000 to cover the expenses in therapy and medical Website Listing Accessible islook something all uswe families children, in a wheelchair, with same. braces, with a When we just who see have kids. We hope you'll do the services that our ! sons receives on an annual basis minimum. Playgrounds The guidelines to beThis on the A&Dat them, Waiver, I do not know for sure what they are. you want canlives find out, just email walker, you name it, weIf need this to toknow, make Iour easier. Wellme. hereI it is THANK YOU to a mom out there for sharing! know that my son qualifies, and if has something to do with beingOh fedand solely g-button, and being --by April Vernon http://apps.npr.org/playgrounds/ the best part? This is nationwide, not a Nebraska thing, so wherever you are, you can look it up! non-independent. If you want the contact information for the HIPP program, just shoot me an email on that also, or ask Service Coordinator about it. There are many programs out ! your Webinars about specifically Apps there available to help families like ours out. We just need to get the word out there for families to Are you interested in more information about Apps? Autism Speaks holds weekly webinars covering the technology of apps and how they can work for access that information. If youany knowevent of a program, that would benefit families, email me. Check children with out Autism. You say, but my child doesn’t have Autism! Log on anyway! Though the focus may be for children with Autism, much of what is [email protected] We will research it and get the correct information out to all changes, after publication offered can easily be adapted for children with similar or different needs. Discoveries for one area do increase the knowledge for all. the families. * What's Where??? additions & MORE http://autismspeaks.org/family-services/technology#webinars ourkids blog: Parent Group at with with combined hearing & vision loss Important Tidbits for Families pages 2 - 6 The Nebraska Technical Assistance on Deaf-Blindness conducted training this year ! Bikes andProject Trykes of Centralhas Nebraska State-Wide page 6 www.ohanakidsnews. specific to We parents who have a combined hearing &service vision loss. The training has been are of a children local chapter of AMBUCS, a national organization composed of aindiverse group of men and women dedicated to creating mobility and partnershipindependence with the blogspot.com National Consortium on Deaf-Blindness (NCDV2.0). A total of 7 parents have Bellevue, Cedar Bluff & Columbus 7 would not be able for people with disabilities. Our mission is to provide AmTrykes for area children and adults with disabilities, whopage otherwise participated in a series of training activities from May 2011 through October 2011. They are now Fremont & Grand Island page 8 is a 4 year old boy with to ride a bike or tryke. We are dedicated to “Celebrating the Abilities of People with Disabilities”. Our chapter representative working on their leadership goals & have another planned meeting in April 2012, as well as ongoing Gretna & Hastings Palsy, his name is the Jaden. JadenDBhas a twin brother,Team, Kaden,& who not have any disabilities. When theirpage family 9went on bike rides, Jaden had to For more information, meetings inCerebral the future. They are called Nebraska Parent Leadership havedoes provided be pushed in a stroller, usually many tears. didn’tone-on-one understand why Kaden got to ride a bike,10 and-he Lincoln pages 15had to be pushed in a stroller. Jaden ortheadvertising rates lots of support to state deaf-blindwhich project. It is caused the intent of this teamJaden to provide fitted forcontact an technoloty AmTryke he now gets to other ride along, soinhethe can be who just have like his The AmTryke has not interaction was either via phones, orat: face to-face with parents state a brother.Norfolk pages 15 only - 16helped Jaden’s self-esteem, but it please usand child birth to 21increased with a combined hearing & vision loss. If muscle you want to be connected to oneIf of you know of hasage also his muscle tone, coordination, strength and balance. someonePlatte who would benefit North page 16 from an AmTryke please have them these parents, please contact Teresa at thehelp number listed This children is an contact us. We are also Coonts requesting fromand youemail so we can above. help other like Jaden. Omaha When a disabled individual 402-227-5304 pages 16 24receives the gift of an AmTryke, the exciting group of parents working & If learnin together for the donating purpose of supporting other families in contact us also. We are located at 3004 West Faidley Avenue, GRAND whole family benefits. you would consider toward an AmTryke, please [email protected] Resources for Families pages x the future. ISLAND;FACEBOOK 308-398-5170too!! or [email protected] You can also check out the website www.ambucs.org Classifieds page 29 ! Learn to Adapt Toys to Use with a Switch/Button/BigMac Thanks for Reading OKN!! Help us Expand our Reach, Pass us along to This workshop is for anyone! You will learn how to easily &cost effectively turn the toys that your child already has, & isn’t using due to physical limitations, families who could this into toysyou that know are adapted to your child! use You will learninformation!!! how to install a jack into a single function toy & convert into a toy that is operated with a switch. You will learn how to assemble a switch. You will make a detachable cord that runs from the toy to the switch, and best of all your child’s toy will look professionally adapted, by YOU! This class is FREE, however donations of any kind are appreciated. Contact Aaron today at [email protected] for more information!! When contacting our advertisers, please tell them you found them HERE!!! know how you found out about these events, activities & advertisers!! Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! ! Page 11 May is Better Speech & Hearing Month Statewide INFORMATION May 9 is National School Nurse Day May 13 is Mother's Day ! ! ! Supporting our Community Classroom GRANTS!! Thanks to the amazing support for our Autism Puzzle Walk the Autism Society of Nebraska has been able Are$you$a$caregiver$for$a$loved$ to expand their community grants and create yet another innovative way to improve the lives of ALL one$with$a$disability?!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! affected by autism! We are pleased to share with you our Classroom Grants!! The Supporting our Special Needs Mom's Call!the!Nebraska!Respite!Network!to! ask!questions!about!possible!funding! for!respite!&!help!in!finding!a!respite! provider!for!your!family.! Community Classroom Grant offers funding to be used for Nebraska educators who work with an individual(s) on the Autism Spectrum Disorder. These funds are available for the purchase of classroom You may think “special have it The pretty rough.our Community Classroom Grant supplies, educational toys,us sensory itemsmoms” and technology. Supporting We have just of manage lifeSociety whenof things getAwards reallyoftough. is administered byno thechoice. NebraskaWe Chapter the Autism America. up to $75 will be We've theperson days annually. we thought we'dGrants nevermay make it through. distributed withmade a limititofthrough 1 award per Classroom not be used toward edible We'veitems, evenorimpressed our own with all we responsibility. can do! or disposable curriculum items which selves are considered thethat school’s Teachers Are$you$interested$in$working$ please go to the Autism Society of Nebraska’s webpage at www.autismnebraska.org , to gained patience measure, loveOFF we FOR never dreamed of giving. with$other$individuals$who$ print We've off a application today!! beyond PARENTS PRINT ONE YOUR CHILD’S TEACHER!!! We worry about the future but know this “special” life's worth living! have$a$disability?$$$$$$$$$$$$$$$$$$$$$$$ We have bad days and hurt sometimes, but we hold our heads up high. ! Wonderful Encouraging Blog for Parents who have kids with Special Needs The!Nebraska!Respite!Network!!!!!!!!!!!!!!!!!!!!!!!! We feel joy and pride and thankfulness more often than we cry. Notaloneparents.wordpress.com is!seeking!individuals!to!provide!!!!!!!!!!!!!!!! respite!to!individuals!with!disabilities! across!the!lifespan.$$$$$$$$$$$$$$$$$$$$$$$$$$ Contact$Us$Today!$$$$$$$$$$$ For our kids, we aren't just SUPERMOMS, No, we do so much more :) ! Community Support List We are cheerleaders, nurses, and therapists who don't walk out the door. http://65.166.193.134/IFTWSQL4/uwml/public.aspx this is a VERY old list of community We handle rude remarks and unkind stares, with dignity and grace. supports through Nebraska 2-1-1. they It has everything yoube mayerased. want for support. You do need to contact Even though the pain bring cannot them to find out if those contacts are still a provider for community help. Therapies and treatment routes are a lot for us to digest, ! Program through theholds, Statebut of give Nebraska We HIPP don't know what the future our kids our best. Statewide:$1?866?RESPITE$$$$$$ Do youNone know that you canbe then add your child, to don't your private healthbreaks. insurance (non-medicaid), and then of us can replaced, so we get many you canItget thoseus premiums paidtofor through HIPP program? As long asityour child is on Medicaid, and wears out, but help our the kids, we'll do whatever takes! SE$Nebraska:$402?434?3494$or$ if the child is on your family health insurance policy, they will cover the entire premium for your family!!! are selfless, bycontact choiceyour youDHHS see.coordinator Our kidstojust needs. If yourWe child isn’t on this, Inot would findhave out if many this is an option for your [email protected]$$$$$$$$$$$$$$$$$$$$$$$$$ not out to child change wantmore to plant seeds. child. We're I know that if your is fedthe via world, g-button,but j-button than Isome think 50% of their daily intake, want our kids That really for is our or haveWe a catheter, these areaccepted. both automatic qualifiers kids.aim. If you want more information I would we look at them,ifwe hopelet you'll do the same. Douglas$and$Sarpy$County:$$$$$$$$$$$$$$$$$$contactWhen your Services Coordinator, youjust needsee helpkids. gettingWe answers me know and we can work through it together! Let’s get the word out about this program!! Contact me at 402?996?8444$or$$$$$$$ -- April Vernon [email protected] for more information. [email protected]$$$$$$$$$$$$$$$$$$$$$$$ !Check out any event changes, after publication additions & MORE at our blog: ! www.ohanakidsnews. Find!! blogspot.com us!on! For more information,!! or advertising rates Facebook! please contact us at: !At! 402-227-5304 [email protected] Ohana!Kids!News! FACEBOOK too!! Thanks for Reading OKN!! O’Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information Help us Expand our Reach, provided through the contact information provided. You can check our Facebook page as we try to update those with any information changes that have occurred after publishing. ! HELP WITH HIPP AUDIT Call Gary Weiss at 402-471-2035 for assistance, as he is launching an investigation into this matter ! What's Where??? Special Needs toys at Toys R US Toys R Us is partnered with Special Olympics USA, and have been for many years. You can go to the website www.toysrus.com, scroll downTidbits to the bottom of the screenpages and click Important for Families 2 -on6the Special Olympics logo. After you have clicked on it, you will need to click on the button on the red banner that says State-Wide page 6 “Supporting the Special Needs Community”, it is Bluff located & allColumbus the way to thepage right.7 On this page they are Bellevue, Cedar talking about the history Toys RFremont Us has with& the special Island needs community. Grand page 8 The middle paragraph talks about a Toy Guide for Differently-Abled Kids, click on the “here” to see that guide. It is the only way I Gretna & Hastings page 9 was able to see it! Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 ! Omaha pages 16 - 24 If!you!know!of!resources!in!other!states,!! Resources for Families pages x Classifieds page 29 We!are!looking!to!put!this!information!up!on!the!website!for! any!of!the!families!who!may!be!relocating.! If!you!have!any!information!to!share!.!.!.!! ! Pass us along [email protected]!!! to families you know who could use this information!!! This edition is FREE!!! Pass it along!! Join our mailing list, contact us at www.ohanakidsnews.com Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! Page 12 Statewide SEPTEMBER WEBINARS May is Better Speech & Hearing Month May 9 is National School Nurse Day ! Ball State University Webinar #1 for Parents of Children with13 Autism Spectrum Disorders (ASD) May is Mother's Day Project #1: Web-Based Training to Improve Compliance and Parent/Child Interactions For this project, we are interested in identifying better ways of helping parents gain compliance from their children. Parents in this study will video-record themselves interacting with their child and will complete a web-based training program. If assigned to the treatment group, parents will receive individualized web-based consultation sessions with a behavior specialist. This study requires 10 hours of online training to be completed across a 6-week period. Parents who meet the following criteria may be eligible: Your child or legal dependent is between the age of 3 & 10 years of age; Your child has a diagnosis of Autism, Asperger’s Disorder, or PDD-NOS, and you can provide medical documentation; You have access to a computer to participate in web-based training; You are willing to videotape yourself with your child and upload these videos to a secure website; You have NOT completed training provided by You may [email protected] us “special moms” have it pretty rough. Autism Training Solutions. If you are interested and qualify please contact We have no choice. We just manage life when things get really tough. We've madeof it through days we thought we'dDisorders never make it through. ! Ball State University Webinar #2 for Parents Childrenthe with Autism Spectrum (ASD) We've even impressed our own selves with all that we can do! Project #2: Web-Based Training to Increase Parental Empowerment For this project, we are interested in identifying ways to equip parents to request evidence-based treatments in their child’s school. Parents in this study We've gained patience beyond measure, love we never dreamed of giving. will complete a series online regarding their ability to request evidence-based training in their child’s school. Then they will then participate in a web-based We worry about the future but know this “special” life's worth living! training program. This study requires 8 hours of training to be completed across a 6-week period. Parents who meet the following criteria may be eligible: We have bad days and hurt sometimes, but we hold our heads up high. Your child or legal dependent is between 6 & 12 years old; We Yourfeel childjoy has and a diagnosis autism, Asperger’s Disorder, or PDD-NOS andcry. you can provide medical pride of and thankfulness more often than we documentation; You have access to a computer to participate in web-based training; You have NOT completed 7+ hours of training in ABA in the past 3 years; Your child attends a traditional general, or special educational and iswe notaren't receiving full-time therapy at No, an ABA attending For school our kids, just SUPERMOMS, we clinic do so(instead much of more :) school). If you are interested and qualify please contact [email protected] We are cheerleaders, nurses, and therapists who don't walk out the door. Special Needs Mom's We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased. September 23 R.E.D.I. Project: Social Opportunities Therapies and treatment routes are a lot for us to digest, TIME: 1:00 p.m. CT & 7:00 p.m. CT We don't know what the future holds, but give our kids our best. REGISTER: http://events-na8.adobeconnect.com/content/connect/c1/1089784797/en/events/catalog.html None of us can be replaced, so we don't get many breaks. MORE INFORMATION: Kim Falk, Munroe Meyer R.E.D.I. Coordinator at 402-559-4951 [email protected] It wears us out, but to helporour kids, we'll do whatever it takes! DESCRIPTION: How can families address challenging behavior? What resources are available in our state to help? Learn the answers to these questions and more. The R.E.D.I. Project is funded by Munroe-Meyer Guild to offernot FREE information resources to families, professionals, We are selfless, byWebinars choice providing you see. Our kidsand just have many needs. and individuals with disabilities across the lifespan andWe're acrossnot the out state. willthe be presented live want twice each day and also seeds. will be archived on the to Topics change world, but to plant some Munroe-Meyer website for future viewing. Each website lastour approximately 1 hour with time reserved for aim. questions and answers. We will want kids accepted. That really is our When we look at them, we just see kids. We hope you'll do the same. -- April Vernon ! His!Kids!Camp!Fall!Retreat!2014:!!2!Weekends!to!choose!from!!! ! Check out any event October!11!&!12! changes, after publication October!18!&!19! additions & MORE at our blog: !Arrive!around!9:00!am!on!Saturday,!head!home!around!4:00!p.m.!on!Sunday! Important Tidbits for Families pages 2 - 6 Cost!$95!for!the!weekend! State-Wide page 6 www.ohanakidsnews. ! Bellevue, Cedar Bluff & Columbus page 7 blogspot.com Fremont & Grand Island page 8 Last%year%there%was%a%wait%list%for%these%weekends%so%don’t%wait!!!%%Call%today%to%get%your%registration%form!!% Gretna & Hastings page 9 ! For more information, His!Kids!Camps!are!for!individuals!with!developmental!&!intellectual!challenges,!who!need!a!safe!&!fun!place!to!come!for!Christ^centered!social! Lincoln pages 10 - 15 or advertising rates recreation.!!During!their!time!at!Camp!Luther,!they!will!grow!spiritually,!emotionally,!socially,!&!physically!while!building!confidence!&!self^esteem.! Norfolk pages 15 - 16 please contact us at: ! North Platte page 16 402-227-5304 Our!His!Kids!Campers!are!elated!to!come!to!Camp!Luther!where!they!experience!the!unconditional!love!of!Christ!through!their!one^on^one!“Buddy!”!! Omaha pages 16 - 24 [email protected] Buddies!receive!training!specific!to!the!camper!they!are!paired!with!prior!to!the!camper’s!arrival.! Resources for Families pages x FACEBOOK too!! ! Classifieds page 29 At!His!Kids!Camp!all!of!our!campers!will!experience!the!same!activities!as!typical!campers.!!We!strive!to!make!it!possible!for!everyone!to!be! Thanks for Reading OKN!! successful!in!whatever!they!choose!to!do.!!Each!buddy!will!encourage!their!camper!to!try!new!activities!&!adapt!each!activity!specific!to!their! camper’s!abilities.! What's Where??? ! Help us Expand ourAll!Camps!are!at!Camp!Luther!of!Nebraska,!1050!Road!4,!Schuyler,!Nebraska! Reach, Pass us along to families you know who could use this information!!! ! For!More!Information:! [email protected]!! for!a!registration!packet!! if!you!weren’t!at!a!summer!camp!this!year! ! www.hiskidscamp.org!!! Facebook:!His!Kids!Camp! Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! CAMP INFORMATION May is Better Speech & Hearing Month May 9 is National School Nurse Day May 13 is Camps Mother's Day Camp High Hopes Year-round Located in Sioux City, IOWA Special Needs Mom's Spring Registration: Opens November 1 st Annually Summer Registration: Opens December 1st Annually , Fall Registration: More Information at: Late Registration: May 1 st You may think us “special moms” have it pretty rough. We have nostchoice. We just manage life when things get really tough. Opens July 1 itAnnually , days Early Bird Ends 1st We've made through the we thought we'd August never make it through. We've even impressed our own selves with all that we can do! www.camphighhopes.com (CAMP) We've gained patience beyond measure,(712)224-2267 love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. Rent Camp High Hopes!! Camp High Hopes is available youth group, prom, family, wedding, rentals. We feel joy andfor pride and thankfulness more often and thanother we cry. Visit the Rental section of our website for more details. For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. Camp High Hopes offers respite waiver We approved camp sessions to waiver and non-waiver campers with disabilities. handle rude remarks and unkind stares, with dignity and grace. Each day is designed to offer a fun, safe, and adaptive recreational environment for people disabilities, their friends, and families. Even though the pain they bring cannotwith be erased. Our high quality programs include experiences in archery, canoeing, and outdoor education, amongst others, for individuals and groups with Therapies treatment routes are a lot and for us to digest, disabilities. Coming from Iowa, Nebraska, and South Dakota,and campers arrive with anticipation excitement, leaving with smiles, new We and don't know what for theyears future friends, fond memories to holds, come. but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes! Registration It’s always best to register early for Camp High Hopes programs as not spots limited and registration firsthave comemany first served. We are selfless, byare choice you see. Our kidsisjust needs. And at out change world, abut to bonus plant than some seeds. Camp High Hopes, the early bird gets We're Smiles not Bucks toto use in the the campstore, farwant better any worm!! We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same. Camp-Your-Way (Ages 4+) -- April Vernon Camp-Your-Way is perfect for first time campers or caregivers needing a night out, by offering campers the opportunity to experience Camp High Hopes outside of our regular sessions. Camp-Your-Way is scheduled on an individual basis (dependent upon staff availability), by calling our office at least 2 weeks in advance of the desired date to make a reservation. Check out any event There’s no better intro to camp than Camp-Your-Way!! changes, after publication additions & MORE Summer Sleep Away (June – August) Ages 6+ at our blog: Important for Families 2-6 Our “classic” overnight camp sessions offering youth and adults with disabilitiesTidbits a traditional, yet modern,pages camp experience. While each State-Wide pageand 6 specialized programs to offer to week may run Sunday through Friday, we break out our Youth and Adult programs into both general www.ohanakidsnews. Bellevue, Bluffneeds. & Columbus page 7 blogspot.com our campers, programs that are designed Cedar to suit their Fremont & Grand Island page 8 GretnaAges & Hastings page 9 For more information, Summer Day Camp (June – August) 6+ - 15 orchildren advertising rates For and teens with disabilities who may not be ready for a week away,Lincoln Camp Highpages Hopes 10 offers an adaptive Monday – Friday day Norfolk pages 15 - 16having to worry. please contact us at: camp program where each camper experiences some fun in the sun without mom and dad North Platte page 16 402-227-5304 Omaha 16 - 24 Spring & Fall (September – May) Ages pages 6+ [email protected] Resources forcamp Families pages x just summer fun. During At Camp High Hopes we like to keep busy the whole year round because we believe that fun is more than FACEBOOK too!! Classifieds page 29 the fall and spring we offer overnight weekend “respites” for youth and adults with disabilities who need that weekend away from home. As an added bonus, ourOKN!! sessions also include School-Break Day Camps for children and teens, along with Sleep-Away sessions for Adults. Thanks for Reading What's Where??? Travel Trips Ages 18+ For theus more experienced adventurous, campers can join High Hopes heading who out of could Siouxland for this a real information!!! getaway. From a day Help Expand ourand Reach, Pass us along toCamp families youin know use trip to Omaha to a long weekend in the Black Hills, campers have the opportunity to explore new destinations. These sessions are offered on special occasions throughout the year. Providing fun, safe, and adaptive recreational experiences for children, teens, and adults with disabilities. Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! CAMP INFORMATION May is Better Speech & Hearing Month May 9 is National School Nurse Day May 13 is Mother's Day Carol Joy Holling Camps Youth Program Events are for participants, ages 13 – 21 & Adult Program Events are for participants over age 21. Special Needs Mom's Camps Held at Camp Joy Holling Center, 27416 Ranch Road, ASHLAND More Information & Registration You Form: Contact Mary Bower [email protected] or 402may think us “special moms” haveat it pretty rough. We have no choice. We just manage life when things get really tough. 944-2544 We've made it through the days we thought we'd never make it through. www.caroljoyholling.org/camp-programs/special-needs-programs We've even impressed our own selves with all that we can do! We've gained patience beyond measure, love we never dreamed of giving. Jay Novicki Programs provide participants with special needs an opportunity to make new friends, We worry about the future but know this “special” life's worth living! enjoy the outdoor setting, & grow in faith. Participants enjoy fun camp experience including activities such asup a hayrack ride, We havewill bad daysa and hurt sometimes, but we hold our heads high. boating and fishing, a cookout, creative-arts project & sharing in prayer worship. We feel joy and pride and thankfulness more & often than we cry. An accessible golf cart, hayrack, & pontoon boat make activities available for all, For our kids, just SUPERMOMS, No, we do so much more :) including thosewe whoaren't use wheelchairs. We are cheerleaders, nurses, and therapists who don't walk out the door. Weusually handle4rude andparticipants unkind stares, with Day Camp Programs are hoursremarks long & give a taste ofdignity camp. and grace. Even though the a pain they bring be erased. Come join in the fun of boating and fishing, cooking tasty meal overcannot the campfire, studying the Bible, praying together, creative arts,Therapies and more! and Each month will bring new activities and a new theme, treatment routes are a lot for us to digest, & at only $10 per session you can’t affordWe to miss on the fun!theDeadline for camps 1 week start of camp. don'tout know what future holds, butisgive our prior kids to our best. None of us can be replaced, so we don't get many breaks. It wears us out, but tothen helpsign ourup kids, do whatever takes! Overnight Summer Camp Program If you can’t get enough of camp, for we'll the overnight camp it experience. Come join in the fellowship, laughter, and fun as we cook our own meals, make s’mores, star gaze, and worship around the campfire. Other program We are selfless, not by choice you see. Our kids just have many needs. options include a ride on the pontoon boat, fishing, a tour of camp on the accessible hayrack, or the challenge of the accessible high We're not out to change the world, but want to plant some seeds. ropes course! Overnight participants will stay in the Retreat Center, at Carol Joy Holling. WeSjogren want our kids accepted. That really is our The aim.Sjogren Center is equipped with the comforts of home including dormitory style bedrooms, restrooms, large inviting gathering and outside decks God’s When we look at them, we just see kids.spaces, We hope you'll do the overlooking same. creation. -- April Vernon COST: $210 ($50 due at registration) **T-shirt included in cost Those needing assistance with tasks of daily living (e.g. eating, showering, or using the restroom) must bring an assistant/aide. Please list specific needsevent of the participant on the registration form or attach a detailed note. Please note these facilities are not 100% Check out any changes, publication handicap after accessible. If you have questions about accessibility or activities, please call 402-944-2544 to discuss your individual needs. additions & MORE CAMP!DESCRIPTION! CAMP!LOCATION! CAMP!COST! at ourDATES! blog: Important Tidbits for Families pages 2 - 6 ! ! ! ! State-Wide! page 6 www.ohanakidsnews. ! ! ! Bellevue, Cedar Bluff & Columbus page 7 blogspot.com September!9! Day!Camp!for!Adults! Lippincott!Stagecoach!Inn! $10! FremontLippincott!Stagecoach!Inn! & Grand Island page 8 September!10! Day!Camp!for!Adults! $10! ! Gretna & Hastings page 9 Day!Camp!for!Adults! Lippincott!Stagecoach!Inn! $10! For moreSeptember!11! information, Lincoln pages ! rates ! ! 10 - 15 ! or advertising October!7! Day!Camp!for!Adults! Lippincott!Stagecoach!Inn! $10! Norfolk pages 15 - 16 please contact us at: October!8! Day!Camp!for!Adults! Lippincott!Stagecoach!Inn! $10! North Platte page 16 402-227-5304 October!9! Day!Camp!for!Adults! Lippincott!Stagecoach!Inn! $10! Omaha pages 16 - 24 [email protected] Resources for Families pages x FACEBOOK too!! Classifieds page 29 What's Where??? Thanks for Reading OKN!! Fall)2014)Registration)NOW)OPEN) ! Help us Expand our Reach, Pass us alongCamp!High!Hopes! to families you know who could use this information!!! ! Register!today!for!one!of!our!many!! Fall!Weekend!Sessions!for!youth!&!adults!in!September,!October,!November,!&!December!of!2014,!including!a!travel!weekend!for!adults!to! the!Minnesota!Renaissance!Fair.! ! Visit! http://camphighhopes.com/programs/!! to!download,!complete,!and!submit!your!2014!Fall!Registration!today!! Space!is!limited!so!be!sure!to!register!early!! See!more!information!about!all!our!!camps!that!we!offer!year!round,!on!the!previous!page.! Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! ! ! O T/PT/ ST Sp ecializ ed th erapies in clude : Sen sory Int egrat ion Th erap eut ic Listen ing Prog rams C ran iosacral The rap y O rt hot ics & Bracing Baby sign s Soc ial Group s ! ! Page 15 Alliance SEPTEMBER Events May is Better Speech & Hearing Month May 9 is National School Nurse Day May 13 is Mother's Day September X Nebraska Foster & Adoptive Parent Association Support Groups Including Foster & Adoptive Parents who have kids with special needs LOCATION: Alliance Library, Rooms A & B, 1750 Sweetwater Avenue, ALLIANCE TIME: 6:30 pm – 8:00 pm MORE INFORMATION: www.nfapa.org Special Needs Mom's You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do! Alliance UPCOMING Events October 7 gained patience beyond measure, love we never dreamed of giving. We've We about theNurturing future but this “special” life's worthwith living! Dr.worry Tom Pomeranz: theknow Development of Young Children We have bad days and hurtFrom sometimes, Developmental Disabilities: Birth to but Age we 5 hold our heads up high. We feel joy and pride and thankfulness moreAvenue, often than we cry. LOCATION: Knights Museum, 908 Yellowstone ALLIANCE TIME: 6:00 – 8:00 pm For ourFREE, kids,Snacks we aren't justare SUPERMOMS, No, we do so much more :) COST: and Drinks provided We areINFO: cheerleaders, nurses, therapists who don't walk out door. MORE Call 308-762-2384 or and Rebekka Erks at 402-397-9866 ext 120, orthe by email at We handle rude remarks and unkind dignity [email protected] you canstares, registerwith on the websiteand at grace. Even though the pain they bring cannot be erased. www.omnibehavioralhealth.com Register EARLY as attendance is limited to allow for interactive experience. Therapies and treatment routes are a lot for us to digest, Meets the criteria for an approved CEU program for mental health practice (6 CEU available) We don't know what the future holds, but give our kids our best. DESCRIPTION: Dr. Tom Pomeranz is the speaker for this event. He is a nationally recognized None of us can be replaced, so we don't get many breaks. authority, trainer, clinician, and consultant in the field of services for people with disabilities. 600 N. 93 rd St reet, Su ite 1 00 It wears us out, but to help our kids, we'll do whatever it takes! Over the last 45 years, Tom has conducted thousands of seminars and programs throughout the Edition #24 May O maha, NE 68114 United and Canada. His audiences praise Our his ability combine humor, passion We areStates selfless, not by choice you see. kids to just haveinformation, many needs. and storytelling into an informative whole that does not just present the information, but really We're not out to change the world, but want to plant some seeds. 402 -391-2001 communicates in a memorable The consensus that early interventions for children We want ouritkids accepted.fashion. That really is our is aim. with developmental have a profound impact on you'll improving of life. Dr. Tom w ww .st on esw orth step ping .c om When we look at disabilities them, wecan just see kids. We hope doquality the same. Pomeranz will discuss a variety of strategies that can easily be utilized by parents, foster and surrogate families to promote and facilitate the development of their young child --parents, April Vernon Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! with developmental disabilities. Feedin g Th erap y ! Check out any event changes, after publication additions & MORE at our blog: www.ohanakidsnews. blogspot.com For more information, or advertising rates please contact us at: 402-227-5304 [email protected] FACEBOOK too!! Thanks for Reading OKN!! October 7 Dr. Tom Pomeranz: Best Practice Strategies for Maximizing Staff Performance: In May is Better Speech & Hearing Month Place – Just In Time Training May 9 is School Day LOCATION: Knights Museum, 908National Yellowstone Avenue,Nurse ALLIANCE TIME: 9:00 – 4:00 pm Important Tidbits Families pages -6 COST: FREE, Snacks & Drinks are provided,for 1 hour lunch break on your2 own State-Wide page 6 MORE INFO: Call 308-762-2384 or Rebekka Erks at 402-397-9866 ext 120, or by email at Bellevue, Cedar & Columbus page [email protected] youBluff can register on the website at 7 Fremont & Grand Island page 8 www.omnibehavioralhealth.com Register EARLY as attendance is limited allow for interactive Gretna &toHastings page 9 experience. Meets the criteria for an approved CEU program for10 mental Lincoln pages - 15health practice (6 CEU available) DESCRIPTION: Dr. Tom Pomeranz is the speaker for15 this- event. He is a nationally recognized Norfolk pages 16 authority, trainer, clinician, and North consultant in have the field of 16 services for people with disabilities. You may think us “special moms” it pretty rough. Platte page OverWe thehave last 45 Tom has conducted thousands of- seminars and get programs throughout noyears, choice. WeOmaha just manage life really tough. the pages 16when 24 things United States and Canada. His audiences his abilitywe'd to combine information, humor, passion We've made it through the dayspraise we thought never make it through. Resources for Families pages x even impressed ourwhole own that selves all that wethe can do! and We've storytelling into an informative doeswith not just present information, but really Classifieds page 29 communicates it in a memorable fashion. In this inspiring and motivating session, Dr. Tom We've gained beyond measure, love we never dreamed of giving. Pomeranz focuses on patience the four coaching strategies (model, support, prompt, and celebrate) that worry about but know this “special” life's worth living! can We dramatically enhancethe thefuture effectiveness and productivity of Direct Support Professionals. We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry. What's Where??? May 13 is Mother's Day Special Needs Mom's Help us Expand our Reach, Pass us along to families you know who could use this information!!! For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased. Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes! We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same. -- April Vernon 2012 Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! Page 16 Chadron Information May is Better Speech & Hearing Month May 9 is National School Nurse Day Autism Parent Resource ! ! May 13 is Mother's Day Edition #24 May 2012 Joni King is a parent, who was involved in the Autism Support Group PETALS in Chadron. While the support group is no longer meeting, she has many resources available to her that would benefit families with children on the spectrum. Feel free to call her if you have any questions pertaining to your child, with Autism. Her number is 308-430-1597. Special Needs Mom's Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! A comprehensive pediatric therapy gym with private treatment rooms & a customized climbing structure. • • • • • Physical Therapy Occupational Therapy Speech & Language Therapy Feeding/Swallowing Therapy AAC Evaluations 5321 South 138th Street, Omaha, NE 68137 For more information or to request an evaluation please, Call 402.895.4000. ! Check out our website at Check out any event www.ohanakidsnews.com changes, after publication TODAY!! additions & MORE at our blog: www.ohanakidsnews. blogspot.com For more information, or advertising rates please contact us at: 402-227-5304 Check out any event [email protected] changes, after publication FACEBOOK too!! additions & MORE our blog: Thanks for at Reading OKN!! Chadron UPCOMING Events You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. May our is Better Speech Month We've even impressed own selves with & allHearing that we can do! May 9 is National School Nurse Day October 6 We've gained patience beyond measure, love we never dreamed of giving. Dr. Tom Pomeranz: of Young life's Children withliving! Developmental We worry about Nurturing the futurethe butDevelopment know this “special” worth Disabilities: Fromdays Birth to hurt Age 5sometimes, but we hold our heads up high. We have bad and LOCATION: Chadron Stateand College, Scottsbluff Room in Student 1000 Main We feel joy and pride thankfulness more often than weCenter, cry. Street, CHADRON TIME: 6:00 kids, – 8:00we pm aren't just SUPERMOMS, No, we do so much more :) For our COST: FREE, Snacks and Drinks are provided We are cheerleaders, nurses, and therapists who don't walk out the door. MORE Callrude 308-432-6000 Rebekka Erks at 402-397-9866 ext 120, by email at We INFO: handle remarks or and unkind stares, with dignity andorgrace. Even though the pain they bring cannot beon erased. [email protected] you can register the website at You may think us “special moms” have it pretty rough. www.omnibehavioralhealth.com We have choice. isWe justto manage Therapies and treatment routes are a for lotlife forwhen us tothings digest,get really tough. Register EARLY asno attendance limited allow interactive experience. made itanthrough the wefor thought we'd never through. We We've don't know the future holds, but give health our kids ourmake best. Meets the criteria forwhat approved CEU days program mental practice (6 CEUitavailable) We've impressed our with all that can do! recognized None of useven can bePomeranz replaced, soown we selves don't many breaks. DESCRIPTION: Dr. Tom is the speaker for get this event. He iswe a nationally It wears us out, but to our kids, doservices whatever it takes! authority, trainer, clinician, andhelp consultant in thewe'll field of for people with disabilities. Over We've gained patience beyond measure, love we never dreamed of giving. the last 45 years, Tom has conducted thousands of seminars and programs throughout the United We worry about the future but know this kids “special” life's many worthneeds. living! We are selfless, not by choice you see. Our just have States and Canada. His audiences praise his ability to combine information, humor, passion and Wenot have bad andthe hurt sometimes, buttowe holdsome our heads up high. We're to days change but plant seeds. storytelling intoout an informative whole world, that does notwant just present the information, but really feel joy andaccepted. pride and That thankfulness often than we cry. We We want our kids really is more our aim. communicates it in a memorable fashion. The consensus is that early interventions for children with When we look at them, we just see kids. We hope you'll do the same. developmental have just a profound impact on improving quality of life.more Dr. Tom For ourdisabilities kids, wecan aren't SUPERMOMS, No, we do so much :) Pomeranz will discuss a variety of strategies that canand easily be utilizedwho by parents, foster out parents, We are cheerleaders, nurses, therapists don't walk the and door. -- April Vernon surrogate promote and facilitate the development of their young and childgrace. with developmental Wefamilies handletorude remarks and unkind stares, with dignity disabilities. Even though the pain they bring cannot be erased. May 13 is Mother's Day Special Needs Mom's October 6 Therapies and treatment routes are a lot for us to digest, Dr. Tom Best Practice Strategies Staff In WePomeranz: don't know what the future holds,for butMaximizing give our kids ourPerformance: best. usTime can be replaced, so we don't get many breaks. Place None – JustofIn Training It wears us out, but to help our kids, we'll do whatever takes! 1000 Main LOCATION: Chadron State College, Scottsbluff Room in StudentitCenter, Street, CHADRON Important Tidbits for Families pages 2 - 6 selfless, not by choice you see. page Our kids TIME: We 9:00are – 4:00 pm State-Wide 6 just have many needs. not out to change the world, want toonplant some seeds. COST: We're FREE, Snacks & Drinks are provided, 1 hourbut lunch break yourpage own Bellevue, Cedar Bluff & Columbus 7 want our kids accepted. That really is our aim.ext 120, or by email at MORE We INFO: Call 308-432-6000 or Rebekka Erks at 402-397-9866 Fremont & Grand Island page 8 When we look at them, we just see kids. We hope you'll do the same. [email protected] you can register on the website at What's Where??? Gretna & Hastings page 9 www.omnibehavioralhealth.com -- April Vernon Lincoln pages 10 - 15 Register EARLY as attendance is limited to allow for interactive experience. pages 15 -health 16 practice (6 CEU available) Meets the criteria for an approved Norfolk CEU program for mental Platte page 16 He is a nationally recognized DESCRIPTION: Dr. Tom Pomeranz isNorth the speaker for this event. Omaha pages - 24 for people with disabilities. Over authority, trainer, clinician, and consultant in the field 16 of services Resources for Families pages x throughout the United the last 45 years, Tom has conducted thousands of seminars and programs States and Canada. His audiences praise his ability to combine Classifieds page 29 information, humor, passion and storytelling into an informative whole that does not just present the information, but really communicates it in a memorable fashion.Tidbits In this inspiring and motivating session, Important for Families pages 2 - 6Dr. Tom Pomeranz What's Where??? State-Wide page 6 Bellevue, Cedar Bluff & Columbus page 7 Fremont Grand Island page 8 information!!! Help us Expand our Reach, Pass us along to families you know&who could use this Gretna & Hastings page 9 For more information, Lincoln pages 10 - 15 or advertising rates Norfolk pages 15 - 16 please contact us at: North Platte page 16 402-227-5304 Omaha pages 16 - 24 [email protected] Resources for Families pages x FACEBOOK too!! Classifieds page 29 www.ohanakidsnews. blogspot.com Thanks for Reading OKN!! Help us Expand our Reach, Pass us along to families you know who could use this information!!! Edition #24 May 2012 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! ! Page 17 Columbus SEPTEMBER Events May is Better Speech & Hearing Month ! May 9 is National School Nurse Day May 13 is Mother's Day September X (Call as date not available at time of printing) Columbus People First: For individuals ages 18 & up with developmental disabilities LOCATION: United Methodist Church, 2710 14 th St., COLUMBUS TIME: 7:00 – 8:30 pm MORE INFORMATION: [email protected] or call 402-563-1699 You can also go to www.arcofplattecounty.com You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. September X We've made daysAssociation we thought we'd never Nebraska Fosterit&through Adoptivethe Parent Support Groupsmake it through. We've even own selves with all with that special we canneeds do! Including Fosterimpressed & Adoptiveour Parents who have kids Special Needs Mom's LOCATION: Peace Lutheran Church, 2720 28 th St, COLUMBUS We've gained patience beyond measure, love we never dreamed of giving. TIME: 7:00 – 8:30 pm We worry about the future but know this “special” life's worth living! MORE INFORMATION: www.nfapa.org or 1-877-257-0176 We have bad days and hurt sometimes, but we hold our heads up high. Childcare is Available We feel joy and pride and thankfulness more often than we cry. For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased. Columbus OCTOBER Events Therapies and treatment routes are a lot for us to digest, OctoberWe 3 or don't know what the future holds, but give our kids our best. OctoberNone 4 (Repeat Session) of us can be replaced, so we don't get many breaks. Priming for us Learning Birth – 8 years old we'll do whatever it takes! It wears out, but to help our kids, Intended Audience: Home childcare providers, center staff, early childhood educators & We are early selfless, not bycaregivers, choice youearly see. childhood Our kidsdirectors, just have&many teachers, childhood earlyneeds. childhood We'recoordinators not out to change the world, but want to plant some seeds. service We want our ThatSOUTH reallyBUILDING, is our aim.COLUMBUS LOCATION: ESU kids #7, accepted. 2356 44 th Ave, When we lookstarting at them, we am, just9:00 seeam kids. We you'll do the same. TIME: Registration at 8:30 to 4:00 pmhope both days ! Check out any event ! changes, after publication additions & MORE at our blog: A%Special%Sitter%was%% www.ohanakidsnews. inspired%by%our%ongoing% blogspot.com journey%of%parenting%our% Forfamily,%which%includes%2%kids% more information, with%special%needs,%&%we% or advertising rates please contact us at: believe%that%our%experiences% can%help%you%experience%the% 402-227-5304 fullness%of%blessings%we%have% [email protected] received%as%we%have%raised%our% FACEBOOK too!! family.% ! Thanks for Reading OKN!! COST: $15 registration fee, lunch is provided -- April Vernon Contact ESU #7, Columbus MORE INFORMATION: DESCRIPTION: Hands on! Energized workshop to demonstrate immediate implementation tools and techniques for sensory development. Sensory topics include Sight, Hearing, Taste, Tactile, Smell, and 2 more!!! What's Where??? Important Tidbits for Families pages 2 - 6 State-Wide page 6 Bellevue, Cedar Bluff & Columbus page 7 Fremont & Grand Island page 8 Gretna & Hastings page 9 Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Omaha pages 16 - 24 Resources for Families pages x Heartland Equine Therapeu c Riding Academy Classifieds page 29 HETRA is proud to offer equine assisted Services)Offered:) ac vi es to adults and children with Companionship)Services) disabili es in the Omaha surrounding Personal)Care)Services) community. Staff include cer fied use this information!!! Help us Expand our Reach, Pass us along to families you know who could Home)Helper)Services) PATH, Intl. instructors, Occupa onal, ! For)More)Information) Contact)Richard)Troia) 402Y697Y8400)x201) [email protected])) ) See)“Our)Story”)on)Page)8) Physical and Mental Health Therapists. Find out how to become a student at www.HETRA.org. Premier Accredited Center by Professional Associa on of Therapeu c Horsemanship Interna onal, (PATH, Intl.) www.HETRA.org l (402) 359-8830 l 10130 S. 222nd Street, Gretna, NE 68028