the rick hansen relay enters alberta

Transcription

Alberta’s Health & Lifestyle Magazine for People with Spinal Cord Injuries & Other Physical Disabilities
Spring 2012
THE RICK HANSEN RELAY ENTERS ALBERTA...
FIRST STOP,
MEDICINE HAT!
Publications Mail Agreement #40011327
2s
Spring 2012 Volume 28 Number 2
DEPARTMENTS
FEATURE STORY
16 Building For The Future
4
Editorial
5
Letters to the Editor
6
In the News
8
Meet the Staff
9
CPA (Alberta) Advocacy
Fitzone
12 Healthier Lifestyles
Opinion
19 From My Perspective
Editor ........................... Betty MacIsaac
Assistant Editors .........Chris Brainerd/
Zachary Weeks
Layout/Design ............Kyle Thompson
Spinal Columns is published four
times a year by the Canadian
Paraplegic Association (Alberta).
Advertising rates available upon
request. Ideas, submissions,
requests, suggestions and letters are
always welcome. Address them to:
The Editor, Spinal Columns
Canadian Paraplegic Association
(Alberta)
#305, 11010 - 101 Street
Edmonton, Alberta T5H 4B9
(780) 424-6312
Health
22 Preventing Pressure Ulcers
24 Syrinx Alert
Meeting market demand for
accessible housing.
FEATURE STORY
14 On The Right Track
Sports
30 Paralympian Walks Again
In Recognition
32 The Red Carpet Affair
Regional News
34 What’s New in Alberta
Travel
36 Travelling VIA Rail
Material printed in Spinal Columns
may not be reproduced without
written permission from the Canadian
Paraplegic Association (Alberta). We
neither endorse nor guarantee any of
the products or services advertised
within Spinal Columns. Readers
are strongly urged to thoroughly
investigate products/companies
before purchase. Spinal Columns
is available in alternate formats by
contacting our office as listed above.
Accessibility
37 Benefits of Universal Design
Library
38 I Will Teach You Everything You Need
38 Read Like Never Before
ON THE COVER
Publications Mail Agreement
#40011327
Return undeliverable Canadian
addresses to:
Canadian Paraplegic Association
(Alberta)
#305, 11010 - 101 Street
Edmonton, AB T5H 4B9
E-Mail: [email protected]
Community
26 Boyle Renaissance
27 A Home Away From Home
28 One Canadian Inspires MIllions
Larr y Buchan and his train
collection.
Duane Burr, driving his accessible
Can Am Spyder, leads a group of
over 30 medal bearers and Talon
runners.
ISSN 1195-5767
Spinal Columns
3
editorial
I
thought it would be important for
the readership to know that CPA
(Alberta) may be required to go
through some difficult transitions this year related to resources and
structure.
Over the past five years we enjoyed
an annual commitment of funds as part
of the Alberta Spinal Cord Injury Initiative which allowed us to increase our
capacity in the area of rehabilitation
support and service coordination and regional community development.
We were also able to pilot special projects related to fitness and wellness
in Calgary and Edmonton and offer a number of educational or empowerment workshops. As you will recall, the Alberta SCI Initiative was funded
by the Government of Alberta in response to the Rick Hansen 20th Anniversary proposal developed in collaboration with CPA (Alberta) and other
stakeholders.
We are very proud of the impact that this increased capacity allowed. We
participated in the development of a Rick Hansen 25th Anniversary Proposal
delivered to the Government of Alberta in 2011, however with the current
leadership race, new cabinet appointments and now a provincial election
to preoccupy decision makers, we are left with the prospect of receiving no
further funding to protect our capacity. Knowing that the five year Initiative funding was concluding in March 2012, CPA (Alberta) tried a number
of approaches to ramp up our fund development capacity, however related
to economic trends over the past five years, we have not been successful in
acquiring replacement funds. We continue to pursue sponsorship recruitment for our programs and services.
Therefore 2012 presents key challenges for us related to analyzing where
our greatest impact is, and resizing our staff structure to fit our budget for
this upcoming year. Like other organizations in the not-for-profit and charitable sector, the government sector and for profit business, we were required
to say goodbye to a few of our valued staff.
I would like to thank all our staff, volunteers and corporate supporters
for their dedication in helping us to achieve our mission in the past and in
the future!
Teren Clarke
Executive Director
CANADIAN PARAPLE
PARAPLEgIC
P
gIC ASSOCIATION (ALBERTA)
AWARDS LUNCHEON AND NOTICE OF ANNUAL gENERAL MEETINg
June 9, 2012
Awards Luncheon – 11:30 a.m.
Annual General Meeting – 1:00 p.m.
Four Points Sheraton
7230 Argyll Road, Edmonton
RSVP Deadline May 31, 2011
Contact Chantelle at 780-424-6312 or [email protected]
With respect to the Annual General Meeting and nominations to the Board of
Directors of the Canadian Paraplegic Association (Alberta), please forward
your nominations(s) to the Chair of the Nominating Committee, c/o CPA (Al
(Alberta) at the Edmonton office. Nominations must be in writing and signed
by five members of the association at large, contain the nominee’s written
consent, and be received at the Edmonton office 48 hours prior to the start
of the Annual General Meeting. For more information, contact Teren Clarke
at 780-424-6312 or [email protected]
[email protected].
4sSpinal Columns
Canadian Paraplegic Association (Alberta)
Toll Free: 1-888-654-5444
www.cpa-ab.org
Find us on Facebook and become a fan!
Watch videos on our Youtube channel:
www.youtube.com/cpaalberta
HEAD OFFICE
#305, 11010 - 101 Street
Edmonton, Alberta T5H 4B9
Telephone: (780) 424-6312
Fax: (780) 424-6313
E-mail: [email protected]
Executive Director: Teren Clarke
SOUTHERN DISTRICT OFFICE
5211 4 Street NE
Calgary, AB T2K 6J5
Telephone: (403) 228-3001
Fax: (403) 229-4271
RED DEER OFFICE
#103, 4719 - 48th Avenue
Red Deer, Alberta T4N 3T1
Telephone: (403) 341-5060
Fax: (403) 343-1630
GRANDE PRAIRIE OFFICE
10 Knowledge Way
Grande Prairie, Alberta, T8W 2V9
Telephone: (780) 532-3305
Fax: (780) 539-3567
LETHBRIDGE OFFICE
1274 3 Avenue South
Lethbridge, Alberta T1J 0J9
Telephone: (403) 327-7577
Fax: (403) 320-0269
MEDICINE HAT OFFICE
26-419 3rd Street SE
Medicine Hat, Alberta T1A 0G9
Telephone: (403) 504-4001
Fax: (403) 504-5172
ST. PAUL OFFICE
Box 653
St. Paul, AB T0A 3A0
Telephone: (780) 645-5116
Fax: (780) 645-5141
LLOYDMINSTER OFFICE
4419 52 Avenue,
Lloydminster, AB T9V 0Y8
Tel & Fax: (780) 875-1046
FORT McMURRAY
Gregoire Park Centre
194 Grenfell Crescent
Fort McMurray, AB T9H 2M6
Tel: (780) 743-0307
Fax: (780) 743-4563
WEST-CENTRAL OFFICE
PO Box 128
Wabamun, AB T0E 2K0
Tel: (780) 892-3431
Fax: (780) 892-3431
CPA (Alberta) BOARD OF DIRECTORS
Aaron Miller, Chair
Dale Williams, Past Chair
Scott Sankey, Treasurer
Maxwell Brunette
Lisa Crown
Harvey J. DeCock
Kent Hehr
Bill Hendsbee
Timothy Hill
Martin Purvis
Ray Royer
Ned Shillington
Eleanor Sugarman
inbox
LETTERS TO THE
EDITOR
A few months ago I was informed by my credit card company, Capital One, that they would be mailing me a new credit
card requiring me to enter a PIN each time I made a purchase.
I wasn’t excited about this: I use a wheelchair (I’m paraplegic)
and I didn’t want to get out of my van and into my wheelchair
in order to pay for gas. There are still a few full serve gas stations and, when I’m fortunate enough to find one, it is a real
convenience to be able to send the attendant in with my credit
card in order to pay.
Anyhow, I have wonderful news. It took some extra calling to
my credit card company (and an unwillingness to take no for an
answer!) but they agreed to issue me a “chipped” card that could
be used without entering a PIN - a message would simply appear
on the merchants terminal asking for a signature instead of requiring a PIN. I thought this might be useful information to your
readership - thank-you for the opportunity to pass this along!
Yours truly,
Martin
Dear Editor,
With the federal government pulling funding for co-op, nonprofit and public housing units, nothing new is getting built.
While I am blessed to be in an incredible accessible unit in
a great co-op, the unfortunate thing is, unless individual coops have had incredible forethought and bookkeeping, many,
many unsuspecting people with disabilities will end up on the
streets—again I am particularly fortunate here in the Yukon—
the housing authority has a sub-lease with the co-op, so I get
my subsidy directly, not through the co-op. This is, in fact, safer
for me; however I went to the training offered by the co-op housing federation a year and a half ago and it really is going to get
unpleasant. I would be worried, and I think it’s time we, as
consumers, should be demanding the feds get back into social
housing—like all those great accessible units and co-ops that
were built in the late ‘70s and early ‘80s. Now, with waiting
lists of over 10 years, it’s a scary world to my way of thinking.
Emily
Have something on your mind you’d like to talk about? Need to
let people know something important? Want to give us feedback
on a specific article, or Spinal Columns as a whole? Send us
your comments to [email protected] and we may publish it in an
upcoming issue!
Spinal Columns
5
inthenews
IN
THE
NEWS
CONgRATULATIONS MARLIN STYNER
Marlin Styner was chosen
as the recipient of the 2011
Council of Canadians with Disabilities Award. Award recipients are recognized for their
dedication and integrity in the
continuing pursuit of full participation in society by people
with disabilities in Alberta.
Marlin is a past staff member of CPA (Alberta) and past
Marlin and his wife Diane
Chair of the Premier’s Council
on the Status of Persons with Disabilities until he became ill
a few months ago. We congratulate Marlin on this award and
wish him better health in the days ahead.
JOINES WINS gOLD
Kimberly Joines is presented with her gold medal.
Kimberly Joines of Edmonton, Alberta came from behind on
Thursday, March 15, 2012 to capture gold in the super combined
at the International Paralympic Committee (IPC) World Cup
Finals in Panorama, B.C.
Joines, third after the super-G portion of the super combined
and 4.46 seconds back from the leader, the USA’s Alana Nichols,
put down a stellar slalom run to take the win with a margin of
2.04 seconds.
BARRIER-FREE DESIgN gUIDE
In partnership with the Barrier-Free Council of the Safety
Codes Council, Safety Services has developed a Barrier-Free Design Guide to provide further interpretation and understanding
of accessibility requirements under section 3.8 of the Alberta
Building Code.
Barrier-Free design allows for proper and safe access to
buildings and facilities, regardless of disability. The Guide also
makes recommendations for best practices, including residen-
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Spinal Columns
tial living spaces.
The 2008 Barrier-Free Design Guide is available for download at www.safetycodes.ab.ca by clicking Public, then Publications in the tab to the left of the screen. There, you can find a
free download or an order form for the printed book, which you
can order from the Safety Codes Council for $15.00.
VIPER POWER TRIKES
For many people there is nothing cooler than the thought
of riding a bike down a country road on a nice sunny day. Well,
now there’s the Viper. The “Viper” is an electric bike attachment
that only takes a few seconds to mount on your wheelchair and
can be done in seconds. There are now people all over the world
who won’t let using a wheelchair stop them from riding behind
a single front wheel, throttle-controlled simply by a flick of their
wrist - thanks to the folks at Team Hybrid. Dr. Mark Higgon
formed Team Hybrid Ltd. in January 2002 after researching and
trying a number of hand cycles and finding there was a gap in
the British market for reliable powered and manual hand cycle
wheelchair attachments.
Team Hybrid produce a unique range of hand cycles that
are designed to be used with a rigid frame wheelchair. Once the
docking system is in place, the freedom of cycling is available
to all! Calgarians Jay McCue, Kasey Holberton and Dom Nunya
all said they went with the Viper because it was the perfect mix
of the freedom and flexibility of a manual wheelchair with the
benefits of powered wheelchairs to cover lots of different terrain
and much longer distances without tiring themselves out. They
also liked how easy Vipers are to set up and use, and that the
equipment fits onto their own wheelchairs.
Both Jay and Kasey say they can travel and explore more
easily. By simply disconnecting the front Viper wheel from their
wheelchair, they can transfer into a car, put the Viper and wheelchair into the trunk of a vehicle and be off on their adventures.
Jay also liked the Viper’s power, its top speed of 12 miles per hour
and that the battery charges fully in under 2 hours.
Kasey, who is quadriplegic at the C6-7 level, has had her
Viper for almost 10 years and says she honestly can’t imagine
her life without it now. Her advice is if you have a disability and
have an interest in the Viper, just do it! For pictures, video, and
more information check out www.teamhybrid.co.uk or email
[email protected] for Canadian Viper sales and information.
CPA ONLINE AUCTIONS RETURN!
It’s back! CPA (Alberta) Online Auctions will run throughout the summer. For more information, check out www.campusauctionmarket.com/sites/canadianparaplegicassocab.
IN MEMORIAM
The Canadian Paraplegic Association (Alberta) would like to
recognize the following individuals who have recently passed on.
Adam Grabowski
Randy Moore
Harry Peebles
Gordon C. Richmond
Stony Plain
Calgary
Calgary
Turner Valley
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Spinal Columns
7
meetthestaff
STaff
PROfiLES
Kris Janvier, Aboriginal Client Services Coordinator working out of the Edmonton office, has been with CPA (Alberta)
since May 2011. What he likes most about his job is working with
the passionate staff and volunteers who make our community a
more inclusive place. Originally from Chipewyan Prairie First
Nation, he now calls Edmonton home with his beautiful wife of
3 years, Amy. Outside of his work, Kris really enjoys spending
his time being active. Golfing, kickboxing, and Brazilian jujitsu
are just some of the things Kris does in his spare time. Did he
mention he plays the ukulele? Some people have called him the
Eddie Van Halen of the ‘ukulele world’. However, since being a
professional musician requires a lot of time on the road, he decided it was best to just obtain his degree in Psychology. Being
a terrible liar is another one of his traits.
Heather Osmond, originally from Newfoundland, joined
CPA (Alberta)’s Fort McMurray office as both Community Development Coordinator and Client Services Coordinator in March
2011. She has a background in Employment and Training and
Office Administration, having worked in those fields for three
and five years, respectively. She also recently graduated from
Keyano College, with certificates in both Human Resources and
Business, and she is working towards her diploma. Since joining
CPA (Alberta), Heather has worked diligently to redefine Fort
McMurray as an accessible community. Heather enjoys working at CPA (Alberta) because of her love for helping people. Advocating for people with SCI and other physical disabilities has
helped her to learn and grow in many ways.
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Kasey Holberton joined CPA (Alberta)’s Calgary office as
a Client Services Coordinator in Employment Services in June
2011, though she will be moving to the position of Aboriginal
Services Coordinator (Urban), as of April 1, 2012. She sustained an incomplete spinal cord injury at the C6-7 level, due to
a snowboarding accident in Fernie, B.C. in 1999. Kasey is currently attending SAIT and will be a Certified Nutritionist upon
graduating in June 2012. She will also be a participant in the SCI
Fitness and Wellness Centre Calgary: An Initiative of the CPA
(Alberta) Calgary Office. What she likes most about working for
CPA (Alberta) is the opportunity to share her personal experiences with clients and helping them overcome obstacles. She is
passionate about food, sports such as handcycling, wheelchair
basketball, and quad rugby, as well as traveling to far-off places.
She aspires to be named to the National Para-cycling team and
represent Canada at the 2016 Games in Rio de Janeiro.
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Spinal Columns
9
onyourbehalf
ADVOCACY
Over the last few months there have been a number of new
or existing initiatives that are moving ahead. CPA (Alberta)
has been very active in trying to improve community access
for persons with disabilities. We have also been working on
the development of expanded housing options for persons with
disabilities:
BOYLE RENAISSANCE PROJECT
On March 26 the official start of construction of the Boyle
Renaissance housing project was kicked off at a ceremony on
the building site at 95th St. and 105th Avenue in Edmonton. On
hand to celebrate this momentous occasion was Mike Holmes of
the TV show Holmes on Homes. Mayor Stephen Mandel and other
dignitaries were also in attendance. This 90 suite building will
include 33 accessible suites and 57 regular suites. A highlight of
the event was the opportunity to view a mockup of one of three
suites that will be fully adapted to meet the needs of someone
with a severe disability, including the most up to date technology. Using an iPad or iPhone, people with severe disabilities will
be able to: lock, unlock and open their doors and view who is at
the door; control blinds, temperature, window openings, appliances, lighting and all entertainment devices. Individuals will
also be able to control these devices remotely. Cisco Canada,
sponsor of this up-to-date technology for the three suites was
in attendance to demonstrate this technology.
The designs, while fairly compact, make good use of floor
space and innovation. Partners in this building would be the City
of Edmonton, Métis Housing Corporation and CPA (Alberta).
Anticipated completion is late 2013. The hunt for prospective
tenants will start in early 2013.
STATION POINTE PROJECT
CPA (Alberta) continues to work with Communitas, a nonprofit housing development group that would like to develop a
property in Edmonton, close to the Belvedere LRT station. CPA
(Alberta) is proposing the development of one of the apartment
buildings into a nonprofit office/accessible affordable housing
project. We are now looking for people who would be interested
in working on this exciting project. If interested, contact Larry
Pempeit at 780-424-6312 or [email protected].
ALBERTA SCI SOLUTIONS INITIATIVES
A number of initiatives undertaken through funding from
the Alberta SCI Solutions initiative have now been, or will be,
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completed by the end of June 2012.
• CPA(Alberta)andothercommunitystakeholdershavedeveloped a Builders Award for housing developers and builders. This award will bring interest to the need for accessible
housing and hopefully encourage developers to build more
accessible housing. We are presently working with the
Home for Life Committee (chaired by Glenrose Hospital
staff), Safety Codes Council, Calgary Affordable Accessible Housing Committee and the Edmonton Home Builders
Association to determine if sponsors for the award can be
found.
• Aprovincial,residentialonlineassessmenttoolforprospective renters and sellers of homes. Prospective renters
and homeowners can go to the site to see if listings match
their needs. Calgary Accessible Housing Society will host
the site. Look for an official announcement this spring.
• Anadaptedtechnologyprogramthatwasfundedunder
the Alberta SCI Solutions initiative. Technologically-based
workstations are available in six regions of the province.
Members can contact Kris Janvier in the Edmonton CPA
(Alberta) office to learn more about the program as well
as to access this equipment on a trial basis – kris.janvier@
cpa-ab.org or 780-424-6312.
• TheUrinaryTractInfection(UTI)brochureshavebeen
printed about the treatment and prevention of UTIs, a protocol paper written, treatment table and an algorithm will
soon be posted on the CPA (Alberta) website. This committee is now in the process of developing a process to insure
information packages reach the appropriate people. They
will also be presenting at the Rick Hansen Foundation Independence Conference in May.
• Theprojectthatprovidedfundingforpressurerelief/reduction for individuals is now being assessed as to the effects
on each individual’s health, pressure sore risk and quality
of life. Data will be compared to a baseline and a report
prepared on the results. This report will be placed on the
CPA (Alberta) website.
• TheevaluationofAlbertasupportivehousingprojectshas
now been completed. This document describes and reviews
many developments across Alberta that have provided affordable, accessible housing and provides a home care component. Best practices have been reviewed and it is hoped
this document will lead to greater projects across Alberta.
EDMONTON NgO OFFICE PROJECT
CPA (Alberta) has met with a number of organizations that
represent persons with disabilities to determine if there is support for developing a nonprofit center for agencies. It appears
there is good support within this sector (22 agencies) as well
as within provincial and municipal governments. The business
case for this project should be completed by June 2012.
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11
fitzone
WORKINg TOgETHER
TO CREATE HEALTHIER LIFESTYLES
by Lorelei Maher and Amy MacKinnon
W
inter has come to an end! And with that, fitness
and physical activity moves to the forefront. This
April, SCI Action Canada teamed up with CPA
(Alberta) to promote healthy and active living
for people with spinal cord injuries (SCI). The purpose was to
educate and provide a network of resources to health care professionals and clients in Edmonton and Calgary.
Amy Latimer-Cheung, representative from SCI Action Canada, gave a presentation which focused on the newly developed
physical activity guidelines for adults with SCI’s, and how the
guidelines were developed. She highlighted a few resources and
programs that SCI Action Canada provides such as the Active
Homes guides, the Get Fit Toolkit, the Knowledge Mobilization
Training Series which is a series of online video exercise tutorials, and the Get in Motion program which is a free physical
activity counselling service for Canadians with spinal cord
injuries. Afternoon participants took part in various exercises
showcased on their online video tutorials, and tested some
sporting equipment, while both users and rehabilitation professionals networked with other physical activity and sport organizations. Peers talk about how they were able to become active
after their SCI and how it improved their quality of life. Earlier
in the day, rehabilitation professionals from the Glenrose and
the Foothills hospitals engaged in conversations around how to
connect the community better to ensure those with an SCI are
aware of and have opportunity to partake in physical activity
programming, and how we can all work better together.
In Edmonton and Calgary, the afternoon group was able to
participate in an accessibility tour of the Terwillegar Recreation Centre and the Talisman Centre. It was acknowledged that
Calgary has less access to accessible facilities that can provide
appropriate adapted exercise instruction, which is why the new
SCI Fitness Centre, located in the Calgary CPA (Alberta) office
is a welcome addition to the community. The SCI Fitness Centre
will initially open its doors as the host facility for a study looking at the benefits of exercise for those with SCI on pulmonary
function and quality of life.
It is generally recognized that improved pulmonary function
can reduce the risk of, and improve recovery from, respiratory
illnesses, and can lead to improved quality of life. There is evidence to suggest that respiratory muscle training, through an
aggressive, individually tailored exercise program can improve
pulmonary function; however evidence in the type and duration
of exercise required to achieve improvements is not available.
This study will address the gap in information. The study will
admit 28 participants, approximately half with paraplegia and
half with tetraplegia (quadriplegia) and each participant will
participate in a 36 week program. The CPA (Alberta) SCI Fitness
Centre features state of the art equipment, including standing
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SCI Action Showcase - Calgary
SCI Action Showcase - Edmonton
elliptical machines, and a ceiling track system with harnesses
which will allow participants to navigate around the gym without their chairs, and bear weight.
For those interested in participating in the study, the fee
will be $3600 for the pilot program of aggressive and repetitive exercise under supervision of an exercise physiologist and
program coordinator. Secured funding allows those admitted
to the pilot program to have the fee subsidized by $3000, for a
total of $600 payable by the participant, comparable to the cost
of a gym membership.
The initiatives by SCI Action Canada as well as the upcoming study through the CPA (Alberta) SCI Fitness Centre are very
exciting and an indicator that exercise initiatives for those with
SCI are now being developed as a result of research, and not
just the assumption that what works for those who don’t have a
spinal cord injury, will work for those who do.
If you were unable to attend the SCI Action Showcase in
Edmonton or Calgary, you are encouraged to check out the programs and services they offer (free) on their website at www.
sciactioncanada.ca, toll-free at 1-866-678-1966 or motion@
mcmaster.ca. Stay tuned for more information on how you can
become involved with the study being conducted at the Calgary
CPA (Alberta) SCI Fitness Centre.
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Spinal Columns
13
feature
ON THE RiGHT TRaCK
by Barry Lindemann
O
ver the years, we have written many stories about individuals who have different hobbies or interests. And
while we have certainly seen folks who have passionate interests, I have never met anyone as absolutely
crazy about one particular subject—trains and train-related
items and history—as Larry Buchan.
A visit to Larry’s beautiful home on the outskirts of Okotoks, Alberta is your first clue that you might be about to meet
someone who likes trains. As you descend a short hill and turn
into his property, you’ll notice that his home resembles an old
train station, reminiscent of the Prairies approximately one
hundred years ago. With a ramp at the front door and a wraparound deck, it’s a great place to enjoy the rolling landscape
that surrounds the house and the area is filled with animals,
some train tracks and the occasional piece of antique train and
farm-related machinery.
Quadriplegic as the result of a spinal cord injury at the C4
level and now in his early sixties, Larry came to love trains at an
early age. This interest was heightened by the reminiscences of
both his father and Jim Atkinson, a long-time friend of the family
who worked for the Canadian Pacific Railway (CPR). Larry’s
father rode trains during the 1920s and the early Depression
years to find work harvesting crops. He was further influenced
by the music of Jimmy Rogers, guitarist and singer from the
Depression era, who worked as a brakeman on the Texas and
New Orleans railroad. Though Rogers’ career was cut short as
a result of his death from tuberculosis in 1933, the 1960s saw a
renewal of his fame when his albums were re-released on vinyl.
Larry’s father and his friend regularly played the LPs at Saturday get-togethers. It was the coupling of this music and the
stories of life on the rails that spurred Larry into a career on
the railroad.
In the spring of 1965, a traffic accident caused Larry to miss
a lot of school. When he was finally able to return to school, he
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Spinal Columns
found the class times and schedules not to his liking and decided to drop out. This didn’t sit well with Larry’s parents who
said, “If you aren’t in school, its time to find a job.” After bouncing around various tough, manual jobs, Larry saw many of his
friends looking to the CPR. At 16 years of age, he took on the
apprentice job of “tinsmith” (sheet-metal worker), working on
all types of locomotives. After two years, he was laid off as the
CPR began discontinuing many passenger trains, and there was
a downturn in freight traffic.
After working in various industries and positions, it was
1973 when Larry decided it was time to look for a good job and
a more settled way of life. His love of trains lingering in the back
of his mind, he remembered a friend who worked as a CPR brakeman and talked about what a great job it was. He applied to the
CPR once again and was soon back on the trains working as a
switchman on the ‘spare board.’ As summer passed, and others
moved on, Larry was soon given a permanent assignment, but
not yet as brakeman. Larry moved to Medicine Hat and couldn’t
believe his luck when, after only eight months, he was placed as
a ‘tail end brakeman.’
His ‘dream job’ didn’t last long as on his third anniversary,
he had to write an exam for promotion to conductor/yard foreman. Larry says, “I was now back at the bottom of the ladder
again instead of holding cushy jobs as a switchman or helper.”
In 1977 Larry saw an ad for qualified yard foremen to train as
relief Car Retarder Operators. Larry got the job but just when it
seemed he was on his way to bigger things, an internal dispute
led to him being moved to another new role.
In 1978, Larry started the Locomotive Engineers Training
Program, saying, “It was the best decision I ever made.” After
marrying his wife Anita in 1987, he found himself working
some of the best railway jobs in Southern Alberta. Larry recalls
highlights, including working as a locomotive engineer on a special train inspection tour of the new tunnels that the CPR built
feature
1 the Rogers Pass, and in 1999 being called to work on
through
the first Christmas Train that the CPR ran for donations to the
food banks. His passion for trains by then had also extended to
steam locomotives, which came about as a result of his involvement with the Heritage Park in Calgary as a spare fireman.
Larry says he enjoyed his employment right up to the time of
a second traffic accident in 2000, which caused his spinal cord
injury. After his accident, Larry was left with limited hand use
and worried that all of the great antique train-related objects
he had collected over the years would just sit in boxes. He soon
discovered, however, that with the help of his care attendants,
family and a computer, he could still enjoy collecting and working on his passion. His commitment to the hobby has resulted in
two large spaces on his property dedicated to his love of trains.
They are filled with fascinating items and books about the trains
that moved across our great land; however his collection of train
engineer pocket and wristwatches will just blow you away. Larry
has become so knowledgeable about train-related watches that
he has his own website, www.railwayearth.com, and is a trusted
resource on the subject in many online communities.
Besides working at Heritage Park, Larry is a long time
member of the Rocky Mountain Rail Society. Larry’s advice for
others who think their disabilities may keep them from enjoying
their pre-injury hobbies and interests is quite straightforward
and can be summed up as “just do what you can and be patient
with the hands that help you do what you can’t.” His beautiful
collection is testament to what a passionate interest, combined
with love, dedication and a little outside assistance can build.
For more about Larry, check out www.
cpaabodyssey.com/video/sports_recreation_leisure/larry_buchan.wmv!
2
Larry Buchan in his home, surrounded by his collection.
3
4
Spinal Columns
15
BUiLDiNG fOR THE fUTURE
Meeting market demand
for accessible housing
by Heather Lissel
16
Spinal Columns
feature
An accessible patio entrance.
N
injury more than 30 years ago, there was virtually no wheelo one I know enjoys moving. Sure, it can be exciting
chair accessible housing available in Edmonton. What did exist
to buy a new home and make it your own, but the sellwas institutional and intended to accommodate individuals,
ing, searching, packing and purchasing can strain
not families. By necessity, Larry became an advocate, educateven the most laid-back person. So why do we move?
ing government and building industry stakeholders about the
There are a multitude of reasons, ranging from those that reflect
need for accessible family dwellings. Abby Road Housing Co-op
a basic desire (as in “I desire a better, nicer home or neighbourand Creekside (located on Millcreek Ravine) are two projects
hood”) to those that reflect a need (as in “I need more, or less,
in which he had direct involvement.
or a different kind of space in which to live”).
Both of these multi-unit housing complexes feature wheelPerhaps it’s because I’m in my 40s now, but I’m seeing more
chair accessible units. If you enter one of the modified units
and more people moving out of necessity, not desire. Sometimes
at Creekside (a Christenson Development), you’ll find that the
it’s because they need to accommodate an aging parent who can
doorways and hallways are wide, flooring is smooth (carpet is
no longer live on his/her own. Other times it’s to meet the needs
the bane of every wheelchair user), bathrooms are spacious,
of a spouse with a mobility impairment due to Multiple Sclerosis
and countertops are lowered. Kitchen cupboards are equipped
or other illness.
with sliding shelves, light switches are lowered, and electrical
All of this has me wondering, “Why do we buy homes that
outlets have been raised to a height that can be easily accessed
will only meet our needs in the short-term, foreseeable future?”
by someone in a wheelchair. Bathrooms are large, with showers
I see three reasons for this. The first is that, as a culture,
built flush to the floor. In general, the floor plans are open and
we don’t plan for misfortune. No one wants to think that their
spacious, and built for ease of movement.
spouse or child might be severely injured or fall ill, or that
The amazing thing about the
their parents will one day be unable
to live independently. The reality is
Why do we buy homes modified units at Creekside is that
unless you were told, you would never
that this happens all too often. The
that only meet our
know you were in a wheelchair accesssecond is that we aren’t aware of the
needs in the short-term, ible condominium. You’d simply think
features of a home that make it more,
you were in a modern, well-equipped,
or less, inhabitable to someone with a
foreseeable future?
cleverly-built home.
physical disability. And the third reaIsn’t that what we all need?
son is that, even if we did plan for the unknown and knew what
Adding to the appeal of an accessible home is the fact that
features to look for in a home, we wouldn’t be able to find them.
it doesn’t cost much more to build than the typical home. The
There just aren’t enough builders or developers out there who
cost is far less than renovating and the accessibility features
are building houses to meet those needs.
are useful to anyone, regardless of ability. Another attractive
This is where Larry Pempeit, Director of Community Deelement of accessible homes is that they are welcoming to all
velopment at the Canadian Paraplegic Association (Alberta)
visitors, able-bodied or not. Just knowing that you won’t be facing
[CPA (Alberta)], comes in. When Larry sustained a spinal cord
“
”
Spinal Columns
17
feature
a forced move at some point in the future is priceless.
Today, Larry continues to work alongside stakeholders in
the housing community, including builders, to expand the number and variety of accessible housing options in Edmonton. His
vast knowledge of industry standards and practices, along with
his understanding of the needs of people with mobility impairments, makes him a valuable resource in the Edmonton building community.
Larry is quick to note that he is only one of many people
who can be called upon for advice on how to build accessible
homes. People such as Ron Wickman (architect), the members
of Alberta’s Barrier Free Council, and several other staff at CPA
(Alberta) are also valuable resources to any builder wanting to
build smarter, more accessible, homes.
In the near future, CPA (Alberta) will be producing a video
series to help inform builders of the basic features of accessible homes. This video will be made available through the Canadian Home Builders’ Association – Edmonton Region website.
In addition, CPA (Alberta) will have a booth at the upcoming
Residential Construction Industry Conference, (RCIC), April
24th and 25th, 2012 at the Edmonton Expo Centre. Plans are
also underway for CPA (Alberta) to deliver short presentations
at CHBA-ER business luncheons.
For now, builders who want to learn more about accessible
home building can contact Larry Pempeit at (780) 424-6312 or
[email protected].
Heather Lissel is a writer and project coordinator with Q Project
Consulting Inc. in Sherwood Park, Alberta. She can be contacted at
[email protected].
This closet incorporates universal design.
An accessible washroom.
Larry in his adapted kitchen.
18
Spinal Columns
opinion
FROM MY PERSPECTIVE
by Larry Pempeit
T
With all these issues, you may wonder why I bother to travel.
Well, the most stressful part of the airline experience is usually
the one hour before flight and one hour after flight; the rest of the
time is fine. Once you’re out of the airport you have your vacation
to look forward to with the potential for great memories and experiences at the end.
Anyway that’s my perspective on it.
WIN A
VANCOUVER
& WHISTLER
GETAWAY!
Post and search
reviews on the
accessibility of the
places where you eat,
shop, work and play.
Submit
reviews at
planat.com for your
chance to win.
The more reviews you submit, the greater
your chances of winning.
Photo: Paul Morrison
raveling has always been an enjoyable experience
for me. It provides relief from some of the realities of
everyday life and opens the possibility for new experiences, fun and adventure!
Some elements of traveling however drive me crazy and,
for the most part, they all relate to air travel! My experience is
that if you are physically reliant on others for help, you become
a nuisance for the airlines.
I was on a recent flight to Phoenix with WestJet which has
some of the best customer service staff, both on and off the plane.
One thing I don’t like however is that they insist that I sit by the
window. This means they have to transfer me not only to the
seat but over two more seats. This is very difficult for me and
those helping as I must be lifted over the arm rests (bulkhead
seating). This increases the chance of injury to all of us. When I
asked for an explanation, I was told that it’s a safety regulation.
Is this a policy only on WestJet? I have flown with Air Canada,
US Air, Continental Air and Alaskan Airlines and none of these
airlines have such a policy.
Another problem is that some airlines take the batteries out
of the wheelchair and carry them separately. Not a big issue - except they never get them back into my wheelchair, which means
I sometimes have to wait up to an hour. And it isn’t just one airline – it seems to be random. Sometimes they take the batteries
out on the initial flight and leave them on for the return flight.
Transporting the wheelchair is another issue. I usually leave
written instructions with the wheelchair so they know how to
disengage the motors and disconnect power. Somewhere between leaving and arrival, these instructions usually get lost.
On one trip I’m looking out the window of the plane and see the
ground crew trying to push my wheelchair without disengaging
the motors. Finally in order to move it they get five people to push
and lift it onto the conveyor belt. After landing, I’m not sure how
they got it to the bulkhead as I’m sure it was too heavy to carry
that far. On another trip I looked out and saw my wheelchair
lying on its side going up the conveyor belt. Is it any wonder
chairs are damaged?
Usually, boarding a plane in Canada is not much of a problem
and flight and ground crew try to accommodate as best they can.
I don’t find the same attitude when flying in the United States
where staff are private contractors or “Red Caps” (porters etc.);
I generally find these individuals to be not very knowledgeable
and inattentive to what I say.
WestJet staff are to be commended for their attitude and helpfulness. On my last trip to Phoenix they made sure I made it to
the luggage area. On the same trip, I used US Air to San Diego.
“Every person for themselves” seemed to be their attitude. Once
I was in my chair, everyone disappeared, leaving me to find my
own way to the elevators and luggage. I found their attitude not
at all friendly or helpful. Getting help to get off the plane was
equally as stressful.
Prize courtesy of Air Canada, Vancouver’s
Fairmont Pacific Rim Hotel, Aava Whistler Hotel
and 9Lives Adventures.
“Let’s build a future where no one gets left behind.
Join me to help create a more inclusive world.”
– Rick Hansen
Visit rickhansen.com for contest details.
RickHansenFdn
Spinal Columns
19
Serious Injuries • Serious L
• Over 50 years serving Albertans with their personal injury claims.
(Left to Right)
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ACCESSIBLE
20
Spinal Columns
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• Have successfully argued Canadian precedent setting injury
cases at all Court levels, including the Supreme Court of Canada,
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• We are leaders in injury law, setting
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vary and are dependent on many factors
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Spinal Columns
21
health
TREATINg&PREVENTINg
PRESSURE ULCERS
Feasibility of an Internet Clinic: A Collaboration with
the Rick Hansen Institute Translational Research
Program.
WHAT ARE WE STUDYINg?
There is a lack of knowledge about how information technologies might be used more effectively to help persons with spinal
cord injury (SCI) better treat and prevent pressure ulcers in Canada. This multi-site pilot investigation will assess the feasibility
of integrating several information technologies, each deployed
over the internet, within the practices associated with clinical
management and prevention of pressure ulcers in persons with
SCI. Ten individuals will be participating in Calgary, out of a
total of 40 individuals across Canada.
As part of the study, participants will receive all the care
that they would normally receive, but several different technologies will be used that allow secure communications and data
transfer so participants can receive this care within their own
residences.
HOW WILL WE DO THAT?
We are seeking participants from the Calgary area to become involved in this study led by Dr. Denise Hill and Dr. Chester
Ho. Participants will complete assessments online on their home
PC using a Remote Patient Monitoring system. They will have
the opportunity to share photographs of their wound(s) and an
environmental assessment video showing the factors that might
represent risk with the study wound care team.
There will also be a real time video-consultation between the
participant in their home and the study wound care team. This
video-consultation will result in the development of a treatment
and follow-up plan that will be implemented by the care team and
research staff. The participants will complete regular follow-up
assessments on the Remote Patient Monitoring system to enable
the care team to monitor their progress.
WHO CAN PARTICIPATE?
Participants must be at least 18 years old, have a preexisting pressure ulcer of stage two severity (open wound), have
a personal computer (PC) and internet connection at home, and
live within a one-hour drive of Calgary.
WHAT ARE SOME POTENTIAL BENEFITS?
In addition to regular care through home care you will have
videoconference access to the study wound care team. You will
be provided with a high definition web cam. In addition, the
information collected will help identify possible barriers and
facilitating factors for internet supported clinics.
This information will be essential for the development of
future internet clinics, which aim to treat and prevent pressure
ulcers and improve access to health care services through the
internet for persons with SCI.
22
Spinal Columns
HOW MUCH TIME DOES IT TAKE?
The initial assessments during the first week of the study
will take approximately three hours. Follow-up assessments
will take approximately 30 minutes every other week over six
months or until the pressure ulcer is healed.
For more information, please contact:
Timothy Hill, Research Coordinator
Internet Wound Treatment Clinic Study
Office: (403) 618-8502
Cell: 403-619-0381
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e-mail: [email protected]
Spinal Columns
23
health
Reprinted courtesy of The Spin magazine, BCPA
by Cliff Bridges
T
Image courtesy of BCPA
erry LeBlanc had enjoyed enviable good health during the 33 years that had elapsed since he became a
C4 quadriplegic in a diving accident.
“During those thirty-some years I had worked at
BCIT, BC Hydro, and the GVRD in CAD and digital mapping,”
says LeBlanc. ‘Life goes on’ was my mantra post-injury and,
because I was lucky enough to be injured in Vancouver, my quality of life was excellent.”
But a blip on the radar appeared almost overnight this past
September. “Approaching my late 50s, naturally I had aches
and pains from too few muscles doing too much work,” he says.
“But suddenly I lost all strength in my right arm and developed
a very sore shoulder from the trapezius down through the shoulder blade. It was a pain I’d never felt before. All of this happened
within a couple of days.” LeBlanc remembered that a small
syrinx—a fluid-filled cavity or cyst in his spinal cord—had
been spotted in an MRI taken back in 1988. “I remembered the
doctor telling me that, if I ever had a sudden loss of function,
to get into the ER. Despite this I foolishly hesitated to go into
emergency for several days hoping against hope that it would go
away on its own. I finally took a good book and parked myself
in emergency at Vancouver General Hospital for two days. On
the second day, the MRI confirmed that the previously stable
syrinx had suddenly gotten much larger.”
What LeBlanc had developed was posttraumatic syringomyelia (sear-IN-go-my-EE-lia)—PTS for short. PTS occurs
This large syrinx at C7 is clearly visible.
at the site of the initial SCI, in an estimated three percent of
people with SCI—mainly those with
profuse sweating, spasticity, pain and
upper thoracic or cervical injuries.
autonomic dysreflexia (AD) can all
Just
like
every
person
is
It can develop any time after SCI—
More serious yet is the possibilunique, every damaged result.
sometimes in just months after injury,
ity of new levels of irreversible neurosometimes taking years to show up.
spinal cord has unique logical damage—and corresponding
It begins with formation of a syrinx,
new levels of disability.
issues as well.
usually the result of tethering—a
The only treatment option is surcondition where scar tissue binds or
gery, according to Dr. Scott Paquette, one of two spine surgeons
“tethers” the spinal cord to the dura, the soft tissue membrane
at Vancouver General Hospital who deal with the majority of
that surrounds it. A small syrinx may never become a problem,
PTS cases in BC.
or it may remain stable for years. It may grow slowly over many
“Treating a syrinx is never easy,” says Paquette. “Just like
years, or grow rapidly.
every person is unique, every damaged spinal cord has unique
The tethering prevents the spinal fluid from moving freely
issues as well. These operations are very delicate as every blood
around the spinal cord. Pressure may increase, forcing more
vessel and nerve is potentially vital. We tend to use a surgical
fluid into the cord and the syrinx. As spinal fluid leaks into the
microscope for these operations to see even the smallest detail
cavity, pressure builds and the cavity expands, damaging nearby
of anatomy. The average surgery usually lasts anywhere from
nerve fibres. The result is full-blown PTS.
four to six hours.”
The results can be devastating. Progressive deterioration
Paquette explains that current surgical practice is aimed
of the spinal cord, progressive loss of sensation or strength,
“
24
Spinal Columns
”
health
very concerned about the procedure. I have a couple of friends
who have had to have syrinxes shunted with resulting loss of
function and many complications. It crossed my mind several
times to cancel the surgery, even when I was in pre-op.”
Despite his misgivings, LeBlanc proceeded. The surgery
took place on September 29, one week after LeBlanc checked
into emergency.
“When I awoke from surgery, the shoulder pain was gone,”
says LeBlanc. “And the arm function returned to C4 level the day
after the procedure. I was told that as soon as the laminectomy
was done, ultrasound showed the spinal fluid resuming normal
flow. In total, I spent eight days on the Spine Ward at VGH.
Some four weeks later, I’m still stretching and combating muscle
stiffness but I’m euphoric at how successful the surgery was.”
Since the surgery, LeBlanc has heard of several others who
have had the same outcomes. “It was an eye-opener because,
before the procedure, I’d only heard about the ones with multiple
complications. But I’ve also heard from others who put off the
surgery too long. When the surgery was finally performed, it was
successful, but the function never returned.” For this reason,
early detection is critical. “I would advise any readers to listen
to what their body is telling them,” says LeBlanc. “Any sudden
onset of weakness shouldn’t be ignored. When presenting at
emergency, ask to speak to a neurosurgeon. Most importantly,
be patient. It’s very easy to get upset with the glacial pace at
the ER and to refuse to go or to leave prematurely.”
Paquette agrees. “Early and correct diagnosis of syringoTerry LeBlanc, BCPA board member and enthusiastic sailor
myelia can mean halting the progression of the disease and
saving neurological function. I’d like to
at restoring a fluid pathway down the
spinal canal. “Often,” he says, “this can
Sometimes the best remind readers that sometimes the best
you have for your medical care
be accomplished by opening up a naradvocate you have advocate
is yourself. Even in a very busy general
rowed spinal canal or releasing any scar
for your medical
practice, a doctor may only follow a few
tissue (un- tethering) in order to recreate
patients with SCI and, given how rare
a path for the spinal fluid to flow around
care is yourself.
PTS is, it’s likely they’ve never treated a
the cord as the first option.”
patient with it. Additionally, most syringomyelia becomes sympSurgery usually leads to stabilization, improved strength
tomatic years after the SCI. It’s not likely to be the number one
and reduced pain (although it doesn’t always bring back lost
differential diagnosis on the GP’s mind. I tell every patient to
sensory function). But Paquette concedes that the first surgery
be wary of progressive neurologic loss and to insist on an MRI
isn’t always successful.
if that ever happens. MRI is really the test of choice.”
“Sometimes the scar reforms and we need to re-operate or
Paquette offers one final piece of advice. “Being fit and
opt for other options such as shunting the spinal fluid elsewhere
healthy always helps prior to, and following surgery. And while
in the spinal canal or even diverting that fluid to another area
there’s a lack of scientific data to prove this in syringomyelia
of the body,” he says. “Also, shunts are mechanical devices that
surgery, it’s preferable for patients to quit smoking prior to surcan fail, block, break or slip out of the correct position.”
gery and to be as well-nourished as possible.”
Other possibilities during surgery may include placing a
small graft at the tethering site to fortify the dural space and
decrease the risk of re-scarring.
In LeBlanc’s case, a gradual narrowing of the spinal column at C3 was the reason his long-stable syrinx had begun to
Check into your closest emergency room if you experience the
expand. Just above his injury site, the column had begun fillfollowing symptoms:
ing in with bone and compressing the cord. This restricted the
• loss of feeling in the extremities
spinal fluid flow, and it finally infiltrated the cord itself, rapidly
• muscle weakness
leading to PTS.
• increased spasticity
“My surgeon (Dr. Paquette) told me that decompressing the
• pain that is new or different
spinal cord was the only solution,” says LeBlanc. “A laminec• changes in patterns of sweating
tomy was needed on the back of my spine to give the spinal cord
• chronic pain and headaches
some breathing room, so to speak. I’m not ashamed to say I was
“
”
PTS: KNOW THE SIgNS
Spinal Columns
25
community
BOYLE RENaiSSaNCE
A New Face to an Old Area
by Larry Pempeit
O
n March 27, 2012 after four years of hard work, sod
was turned for an exciting 90 suite apartment complex. The ceremony took place on the project site at
105 Avenue and 95th Street in Edmonton. The project is part of a downtown redevelopment focus bringing a new
face to an area long in disrepair.
On hand for the sod turning was Mike Holmes, of the TV
show Holmes on Homes, who will act as consultant and advisor
for the project, particularly in the area of energy efficiency
and construction methods. In his opening address he said “By
working with the City of Edmonton, the Province of Alberta
and affordable housing developers like the Métis Capital Housing Corporation, we’re providing sustainable and durable housing that’s also affordable,” says Holmes. “It just goes to show
what you can accomplish when you work as a team towards the
same goals. When we all step in the right direction, moving
forward is easy.”
Because of its energy saving focus, ENMAX has also taken
an interest. Charles Ruigrok, interim President and CEO, ENMAX Corporation said “Among other things, ENMAX’s vision
for corporate responsibility includes cleaner energy choices for
consumers and investing in the communities we serve.” “The
Boyle Renaissance project allows us to focus on both of these
mandates. The facility will benefit from advanced heating and
power systems that use cleaner burning natural gas and will
reduce the amount of electricity that has to be purchased from
the grid.”
All 90 units will include two bedroom affordable housing,
made up of 57 units specifically for individuals who are aboriginal and over the age of 55. The remaining 33 units will have no
age restriction and will be accessible for persons with disabil-
26
Spinal Columns
ities. “This building will have a significant impact on the lack
of accessible housing for people with disabilities. This project
will take some of the stress off a long waitlist for housing in the
downtown core,” said Larry Pempeit, Director of Community
Development, Canadian Paraplegic Association (Alberta).
Darlene Lennie, Executive Director of Métis Capital Housing Corporation told the audience this is the largest project for
the Corporation since its inception three years ago. She went on
to say. “We thank all of the project partners for supporting the
development, ensuring that we have affordable, sustainable and
quality homes for some of our most vulnerable people.”
One of the major features of this complex are three ground
floor units that will be totally adapted for individuals who have
severe disabilities As well as barrier free design, these three
units will include many environmental controls, all provided
by Cisco Canada. For example, individuals will be able to remotely control entry areas, temperature, blinds, emergency
systems, etc.
All units in the building will be ‘visitable’, including 5 foot
turning radiuses, wider doorways, lowered light switches and
electrical receptacles, laminate flooring and other equipment to
make life easier for a person with a disability. Other features of
this seven story building will be a rooftop gathering area that
may have a gardening component as well as sixth floor open atrium. The first floor will include 10,000 ft.² of commercial space
opening onto a revitalized streetscape and services.
Funding for this 22 million dollar project came from Métis
Capital Housing Corporation and other levels of government.
Construction will be done by Clark Builders. ATB Architectures
are providing the drawings etc. It is hoped the project will open
in November of 2013.
community
fiND YOURSELf
A Home Away
fROM HOME
by Barry Lindemann
I
think the Spanish say “Mi Casa Es Su Casa” which literally means “my house is your house”, and for some folks
with disabilities who like to travel, it also means saying
goodbye to staying in hotels while on the road—and instead enjoying the comfort of someone else’s accessible home
while they are away. While the idea of renting a vacation or
second home is not exactly a brand new idea, the internet has
really changed the ways in which travelers with disabilities can
find a place to rest their weary heads. If you need a wheel–in
shower, a lift, or zero-step entrance and are tired of staying in
cramped, small hotels that may not suit your individual needs,
finding a barrier-free home in which to kick back while on the
road can definitely help to make your trip better.
Finding an accessible home couldn’t be easier as long as you
have access to the internet. There are a number of websites that
dominate the online home rental business, but my favorite is
www.homeaway.com. Based in Austin, Texas, HomeAway Inc.
is the world’s leading online marketplace of vacation rentals,
with sites representing more than 625,000 paid vacation rental
home listings throughout more than 145 countries.
The company makes it easy for vacation rental owners and
property managers to advertise their properties and manage
bookings online. What’s great about almost all of their websites
is that you have the ability to search properties for wheelchair
access. It’s always wise, however, to do your homework, to ensure the property has what you need in terms of accessibility. My
advice would be to read any online reviews and/or get in touch
with the owner before your stay—just to ensure there are no
surprises and that you’ll be comfortable and safe.
CPA (Alberta) member Dennis Schulz of Edmonton became
a convert to staying in accessible homes while on the road after
his recent trip to Las Vegas. Dennis stayed in a barrier-free
condo owned by CPA (Alberta) staff member Barry Lindemann
(www.barrysvegascondo.com). Dennis said he liked staying
in the condo because it was located in a nice, quiet community and had all the accessibility features he needed. Amenities
were close by and there was even a wheelchair accessible van
available for use and parked at the unit. In fact, Dennis said he
didn’t miss anything about staying in a hotel and looks forward
to perhaps doing it again!
So next time you are thinking of traveling, consider an accessible vacation home. For more tips on renting an accessible
vacation home visit www.homeaway.com, www.VRBO.com, or
www.barrysvegascondo.com.
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Spinal Columns
27
community
ONE CaNaDiaN iNSPiRES MiLLiONS
by Colleen Wilson
Marc Ross
O
Leslie Warick
n March 21, 1985 Rick Hansen began his ‘Man in
Motion’ tour, wheeling around the world in just 26
months. Twenty-five years later, 7000 Canadians
helped to re-create Hansen’s iconic journey. The Rick
Hansen Relay began on August 24, 2011 in Cape Spear, NF and
concluded on May 22, 2012 in Vancouver, BC. Each day during
this nine-month journey, a special medal created by the Royal
Canadian Mint was carried by selected medal bearers; individuals chosen based on their ability to be ‘Difference Makers’;
champions for inclusiveness and advocates for awareness on
issues surrounding disability. Also included were individuals
who promote healthy lifestyles and those working to create a
more inclusive planet. Throughout the journey, the Relay passed
through over 600 communities and traveled over 12,000 kilometres! CPA (Alberta) and many of our clients and members
were honoured to play a role in many of the Alberta communities
in which we have offices.
On day 176, the Rick Hansen Man in Motion Relay entered
Alberta with a bang! Medicine Hat played host to the first “End
of the Day” celebration of the Rick Hansen 25th Anniversary
Relay, while McDonald’s hosted the opening celebration. Mayor Norm Boucher, along with other dignitaries, honored two
medal bearers and, in addition, small presentations were made
at Crestwood and St. Thomas Schools, educating over 600 students about the relay.
Medicine Hat Cross Country Team and the Eagle Butte
Talons Cross County teams assisted endurance wheeler Lonnie
Bissionette up the steepest and then the longest hill he encountered during his leg of the journey.
A short ceremony at city hall showcased some of the part-
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Spinal Columns
Sydney Jago
Jack Smart
nerships within the city of Medicine Hat and CPA (Alberta)
staff member, Sue Edwards spoke about how the Alberta SCI
Solutions Fund has helped so many people with spinal cord
injuries. Medal bearers were honoured in a celebration at the
Family Leisure Center. Duane Burr, driving his accessible Can
Am Spyder, led a group of over 30 medal bearers and Talon runners. The day ended at a Tigers’ hockey game, showcasing how
hockey fans come in different shapes and sizes and sometimes
use wheels instead of legs. Day number 176 was fantastic and
Medicine Hat was honoured to be the first in Alberta to witness
an amazing team in action!
The excitement and momentum continued throughout Alberta, with Calgary “Difference Makers” gearing up for their
leg of the tour at the BMO Centre within the Stampede grounds.
CPA (Alberta)’s Russ Bray was invited to be part of the Rick
Hansen Relay team, spending time on the official tour bus, taking photos and videos of those who made significant contributions within Calgary. Behind the scenes interviews took place
with participants who shared their thoughts as they prepared
to run, walk, wheel or bike.
Edmonton’s celebration included performances by integrated
dance company, iDance, and the Braille Tones Choir. Rick Hansen himself was also on hand to say a few words, and provide
inspiration. CPA (Alberta) Executive Director, Teren Clarke,
along with staff members, Edgar Jackson, Kuen Tang and Zachary Weeks were chosen as “Difference Makers”.
CPA (Alberta)’s Art Erickson provided information and assistance with the Spruce Grove, Hinton and Wabamun events,
and arranged a wheelchair challenge and wheelchair basketball
demonstration in Stony Plain.
community
These events also celebrated the “Difference Makers” who
have helped to create a more accessible world. The relay, while
capturing the spirit of the original ‘Man in Motion’ tour, was
also meant to inspire a new generation of leaders and difference
makers, in much the same way as the original tour.
We would like to congratulate and thank those involved
with the relay for their work in promoting awareness, and paving the way for those to follow in the future. CPA (Alberta) was
a proud partner and supporter of the Relay, with many of its
staff and members chosen as medal bearers. Some participants
commented on the Relay.
COMMENTS FROM PARTICIPANTS
Jack Smart said, “It was reassuring to learn about the other
“Difference Makers” in my relay group and see the power of focused efforts as many individuals I was running with shared
their experiences and reasons for participating. The Relay was
motivation to me to continue to make a difference in my community that people with disabilities have a “CAN” attitude.
A highlight for me as well, was that my kids (Sophie and
Eli) were able to join me on the relay run, so that we could be
together. Too often, I am not able to share in activities with them
fully, so this was special for me.”
Leslie Warick, another participant said, “It was cold and
windy, and difficult for those in chairs to wheel uphill but I was
honoured to even be selected... to be recognized as a “Difference
Maker”, as they call us.” When asked if what Rick did 25 years
ago resonated with her, the reply was “Oh absolutely! How much
further we’ve come (from 25 years ago) is just proof of how far
Rick Hansen and Lonnie Bissonnette
we can go in another 25 years.”
Everyone involved expressed what an honour and memorable experience it was for them. Much has changed in the past
25 years, however, as demonstrated throughout this Relay, the
spirit of the original ‘Man in Motion’ tour remains! For further
information, go to www.rickhansenrelay.com.
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Spinal Columns
29
sports
PARALYMPIAN
WALKS AgAIN
by Chris Brainerd
M
onique van der Vorst is something of a medical
miracle. For reasons unknown to medical science,
this former Paralympian is now able to walk again.
As a young teenager, van der Vorst lost the use of
her legs due to a surgery gone wrong. She was injured again in
a car accident in 2008, leaving her with an incomplete spinal
cord injury. Not letting her disability stop her, van der Vorst became an elite athlete, competing in both wheelchair racing and
handcycling, winning multiple national and European road racing championships, as well as two silver medals in handcycling
at the 2008 Paralympics in Beijing.
After being hit from behind by a cyclist in 2010 while training
for the London Paralympics, van der Vorst again found herself
in the hospital. This time, however it was different. Lying in the
hospital bed, she balled her hand into a fist and began rotating
her arm to exercise it. Suddenly she felt a tingling in her legs.
Doctors are at a loss to explain it, but just months after that first
tingle, Monique van der Vorst was walking again for the first
time in over a decade. She is no longer eligible to compete in the
Paralympics, so she has redirected her focus to the Olympics,
hoping to compete in the 2016 Games. She took another step
towards her goal when she signed with Rabobank, a top Dutch
women’s cycling team.
Through all the ups and downs in her life, Monique van der
Vorst has remained optimistic and determined to change what
circumstances she could and make the very best of those she
could not.
“I’ve had many bad situations in my life and it’s not fun,
but every time you learn from it and you get stronger because
30
Spinal Columns
Monique at the track. Photo courtesy of The Province.
you have to make the decision to fight to get out of it,” she said.
“There’s always an end as long as you keep fighting. You get
stronger from the things you learned in life. And I learned the
hard way.”
To read more about Monique van der Vorst, you can visit her personal website at www.moniquevandervorst.com/Monique_Van_
Der_Vorst/Welcome.html.
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Spinal Columns
31
recognition
Ed and Marie Stelmach, Honourary Patrons
of the Red Carpet Affair,
present the Christopher Reeve Award
to Mark Zupan
THE
Red Carpet Affair COMES Of aGE
A
by Marc Quinn
fter nine years, the 2012 Red Carpet Affair truly
came of age on March 16, 2012. Sponsored by James
H. Brown & Associates, the annual gala in support
of the CPA (Alberta) has become a very successful
fundraiser since it began in 2003, but its original mandate to
celebrate the success of persons with spinal cord injuries and
other physical disabilities has also grown exponentially. By
inviting the widest range of attendees, clients and their families, representatives from business, governments, healthcare,
social services and media, the Red Carpet Affair has become
a reunion of these communities each year and resulted in new
relationships, new understandings, and new hope for those who
deal with disabilities every day. Anything can happen at the
Red Carpet Affair and it often does - for the good of all persons
with physical disabilities.
In 2012, the event netted nearly $110,000, our best showing
ever, thanks to so many people who sponsored, bought tables
and tickets, donated auction items, bid on auction items, bought
raffle tickets and made additional donations. Christopher Reeve
Award winner, Murderball star Mark Zupan shared the experiences of his injury and recovery and new found interest in the
32
Spinal Columns
world of wheelchair rugby. Mark is very proud of his long awaited Gold medal in Beijing and hopes to regain the same colour
medal in London this summer.
Vance Milligan was honoured the same night with the Gary
McPherson Lifetime Achievement Award and wowed us with his
words of wisdom and inspiration. The Mayor of Grande Prairie,
Bill Given joined us to accept the Percy Wickman Accessibility
Award for the amazing accessibility of the new Grande Prairie
Aquatics and Wellness Multiplex (recently re-named the EastLink Centre). Finally, all hearts went out to Ken Thomas who
was presented with the annual Honourable Lois Hole Community Development Award for his amazing determination to gain
acceptance in the world of disability sport when it seemed nobody would listen.
Highlights of the evening also included the raffle for a customized adventure vacation in Maui, the live auction which
featured vacations in St. Croix and San Juan, an incredible
equipment package from Flaman Fitness and a Beef & Barbeque package. And every penny from these and other items up
for grab went directly to supporting programs for clients with
spinal cord injuries and other physical disabilities.
recognition
Our 2012 Award Winners
Christopher Reeve Award
Presented to Mark Zupan
by Ed and Marie Stelmach
Honourable Lois Hole
Community Development Award
Presented to Ken Thomas
by Jim Hole
Percy Wickman Accessibility Award
Presented to the City of Grande Prairie
for the Grande Prairie
Aquatics and Wellness Multiplex
(Newly named the EastLink Centre)
by Ceira and Jayden Wickman
(Accepting award: Mayor Bill Given)
Gary McPherson
Lifetime Achievement Award
Presented to R. Vance Milligan, Q.C., ICD.D
by Dr. Robert Steadward, O.C., A.O.E., LLD
Thank You to our 2012 Sponsors
Gala Sponsor
Milestone Sponsors
Wine Sponsor
Print Sponsor
Awards
Spoke Sponsors
Special Item Sponsors
Accommodations
Photographers
Kirsten Martin and Julie Drewniak
Media Sponsors
Lighting Features
Audio Visual Features
Spinal Columns
33
what’s new in
Alberta
CALgARY
AMA Launches Adapted Driver Training Program
The Alberta Motor Association is teaming up with the CPA
(Alberta) to deliver an adapted driver training program in Calgary for drivers with spinal cord injuries along with everyone
else who might benefit from the program. The three-year pilot
program is funded by the Alberta Spinal Cord Injury Initiative, implemented in partnership with the CPA (Alberta), and
is taught by qualified and experienced instructors from AMA
Driver Education.
AMA Driver Education will tailor the program to suit individual driver needs, specific to the level of their injuries. All participants will undergo a four to six hour driver refresher program
which will teach them the basics about driving and operating
any adaptive equipment. They can also opt to enroll in the full
Learn to Drive program, based on AMA new driver education
courses. A few students have successfully gone through the
program and have indicated they were pleased with the advice
and information. If financial need can be proven, CPA (Alberta)
may be able to provide financial assistance to pay for this new
program. Contact your local CPA (Alberta) office for more information about funding.
For more information about the Driver Education Program,
contact Sharon Grolmus at (403) 240-5478, Don Szarko at
(780) 430-5733 or check out their website at www.ama.ab.ca/
driver-education. Information such as the Adapted Driver Training Program Screening Form (for Physicians) and Adapted
Driver Training Frequently Asked Questions can also be found
on the CPA (Alberta) website at www.cpa-ab.org/resources/
resources/?resource_id=7691.
Calgary Peer Program
money!) which was then used to buy items that were auctioned
off at the end of the evening. There was great food for everyone
along with time to socialize. Thank you to those who volunteered
at the event. Thank you to Norma for arranging extra dealers
to come out and help make this event a success. And thank you
EllisDon for sponsoring this event!
On April 20, 2012 we had the opportunity to meet with Josh
Dueck, Canadian alpine skier and first paraplegic to do a back
flip in a sit-ski. With 20 people in attendance, everyone was motivated by Josh’s words of encouragement. As Rick Hansen says,
Josh is a “difference maker” and he certainly made a difference
for those who came out to meet him. Thank you to the Carewest
Dr. Vernon Fanning Centre for allowing us to host this event on
such short notice. Thank you Josh for taking the time to stop at
the Fanning Centre.
EDMONTON
Peer Program
The Edmonton Peer Program, proudly sponsored by Classic Health Supplies, continues to grow with lots of enthusiastic participants. We are excited about the formation of three
new peer groups – Wise Wheelers (males 40 and up); Young
Guns (males under 40); and Heels on Wheels (females, any
age). Regular Meet and Greets are held at the Glenrose Rehabilitation Hospital (first Wednesday of each month). Edmonton recently hosted an Incontinence Information evening
sponsored by Coloplast and a bowling night. For information
on upcoming peer events, contact Brian McPherson at 780424-6312, [email protected] or go to www.cpa-ab.
org/programs_services/peer_community/edmonton.
Equipment Donation
CPA (Alberta) staff with Bojan Paduh, president of ERA.
The Electronic Recycling Association (ERA) donated
12 refurbished laptops and 2 projectors in support of CPA
(Alberta) and our clientele. For more information, contact
Kris Janvier at 780-424-6312, ext. 2234 or kris.janvier@
cpa-ab.org.
gRANDE PRAIRIE
Josh Dueck and Terena Dunham at the Fun Money Casino night.
Thank you EllisDon for sponsoring the Calgary Fun Money
Casino and Games night on March 31, 2012! Approximately 80
people came out to the Coast Plaza Hotel & Conference Centre and had a great time playing games, meeting new people
and bidding on auction items. Guests were given $50,000 (play
34
Spinal Columns
City of Grande Prairie Recognized for New Multiplex
Newly opened in December 2011 of this year, the Grande
Prairie Aquatics and Wellness Complex, now renamed the EastLink Centre, is an outstanding example of a facility where inclusiveness is not an afterthought and is evident throughout the
facility. At the CPA (Alberta) Red Carpet Affair held on March
16, 2012, Mayor of Grande Prairie, Bill Given was on hand to
receive the Percy Wickman Accessibility Award, a provincial
award given to the owner of a facility that has exceeded build-
r egions
RED DEER
Red Deer Receives Generous Donation
Thank you to Ken Travis and the Employees of Strata Energy
Services Inc. for donating $4500 of their Golf Tournament proceeds to the Red Deer CPA (Alberta) Office.
Grande Prairie’s new EastLink Centre
ing codes in terms of wheelchair accessibility.
During the consultation phase of the project, representatives of CPA (Alberta) and the Wolverines Wheelchair Sports
Association were invited to provide input and advice on accessibility features to incorporate into construction of the $110 million structure. The consideration of access is evident throughout
the facility. The City of Grande Prairie is to be commended for
ensuring that this outstanding facility is inclusive and able to
meet the needs of all community members, including those who
may have physical, mental, and/or visual challenges.
MEDICINE HAT
$900.00 to be Applied to Client Services Programming
February was CPA (Alberta)’s month to be the recipient of
REDI Bottle Donation Program, receiving a cheque for just under
$900.00 to be applied to Client Services Programming.
Wheelchair Curling Season Winds Up
Wheelchair curling is winding up and has been a fun and
learning season. Decisions are now being made to try and put
together a competitive team for next season. If anyone is interested, please give Shirley a call 403-866-8528.
WEST CENTRAL ALBERTA
Accessibility Improvements to Happen in Near Future
The Town of Whitecourt joined the list of municipalities that
requested assistance in determining how they might improve accessibility to their public facilities. An audit of the curling rink,
skating rink, community centre, recreation centre, town hall,
library, RCMP office and information centre was conducted and
further examination of outdoor facilities will be done by CPA
(Alberta) once spring arrives.
Sailing with Disabilities
Scheduled for June 23 and 24, 2012 at the
Wabamun Sailing Club. Boats provided by the
Disabled Sailing Association of Alberta can
be sailed with quad controls or sip and puff
tubes. No charge for participants and lunch
will be provided! This event is open to anyone
with a physical disability. Participants are responsible for their own transportation and accommodation. Come dressed for the weather
and be prepared to have lots of fun! For more information, contact Art Erickson at 780-892-3431 or [email protected].
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35
travel
TRaVELLiNG
by Chris Brainerd
Are you a wannabe traveller with a disability? Have you experienced setbacks with your planning? CPA (Alberta) Manager
of Client Services, Guy Coulombe, has some advice for those who
are considering train travel.
Guy and his travel partner, Mina, along with her sister and
nephew, won tickets for their trip in an auction and made plans
to travel to Vancouver at the end of June 2011. When he talked to
a VIA agent at the station in Edmonton, Guy was told he would
be unable to take his power chair on the train (it would be stored
as checked baggage), so this was no surprise. What was a surprise, however, was just how inaccessible the train really was.
The aisles were too narrow even for a manual wheelchair, so
he had to be pushed throughout the train on an aisle chair (like
those used on airplanes). Guy transferred to a captain’s chair in
the panorama car, which he found quite comfortable, and stayed
there during the day on the way to Vancouver. He was able to
relax and enjoy the scenery, and VIA staff brought him meals
and drinks, so he did not have to be pushed to the dining car.
Another plus was the fact that he was able to bring his own wine
on board! While VIA staff were not allowed to lift Guy during
his transfers from the aisle chair to the captain’s chair, they did
provide minimal assistance in this regard.
Another problem Guy encountered, in addition to the narrow aisles, was the sleeping compartment. There was very little
storage space, so they were only able to bring minimal baggage
on board. Guy has travelled before, however, and was able to
manage, knowing exactly what he needed. The bunks folded
up to make more room, but it was still quite cramped, because
the staff put a captain’s chair into the compartment for daytime
lounging (he sat in this chair on the trip back to Edmonton). The
washroom in the room was too narrow to access, even using the
aisle chair. Guy says that perhaps a “super-strong paraplegic”
or a person who can walk a little could use this washroom, but
otherwise he suggests using the public washroom in a separate car; it is larger and includes a raised toilet and grab bars.
36
Spinal Columns
RaiL
Guy Coulombe rides the train to Vancouver.
In giving advice to future travellers with disabilities on VIA
Rail, Guy says, “Make sure you have an attendant” and when
speaking to VIA agents, “If you are unsure about something,
go down to the station and see if you can board the train while
it’s in the station to see how you could manage.” In regards to
making a round trip on the train, Guy advises against it. “I would
take the train one way and fly back. The scenery is the same
both ways,” he says with a smile.
Note: VIA Rail has a range of accommodations for travellers with
special needs. To ensure that the train in your area can accommodate
your needs, you are advised to contact VIA 48 hours in advance. To
see what accommodations can be provided, please call VIA Rail at
1 888 VIA-RAIL (1 888 842-7245) or visit their website at www.
viarail.ca/en/useful-info/special-needs.
&
ECONOMiC BENEfiTS
accessibility
UNiVERSaL DESiGN iTS
by Ron Wickman
My father always loved Las Vegas. In his mind, it was the most
wheelchair friendly city in the world. I have been to visit on
many occasions. At one hotel, I noticed visitors could take a
boat ride simulating a Venetian gondola tour. I also noticed a
vertical porch lift that would allow visitors who could not use
the stairs, gain access to the boats. Take a look at how this
hotel used universal design to ensure everyone can appreciate
the gondola tour.
An exterior view, from the hotel, of a gondola boat in the water
moving to go under a bridge.
This is a vertical porch lift which allows a visitor with a disability
to gain access to the boat entry level. The lift costs approximately
$8,000.00 to supply and install. A small amount of money spent
on this lift provides everyone a special experience. Visitors then
stay at the hotel, have fun, eat and take in a show. The lift pays for
itself over and over again.
A view of the gondola tour waterway complete with a bridge.
Spinal Columns
37
library
in our library
a NEw KiDS BOOK aBOUT
Spinal Cord injury
Reprinted from CPA (Ontario) e-Spoken, January 2012
I
Will Teach You Everything You Need to Know is a new book
published by the Christopher and Dana Reeve Foundation
for kids who have someone in their life who has sustained
a spinal cord injury. Written through the eyes of a young
boy whose father is injured, readers have the chance to see the
impact of a spinal cord injury on the family as well as identify
and better understand the changes in their lives. Author Dr. Stephen Kishblum is the Medical Director and Director of Spinal
Cord Injury Services at the Kessler Institute for Rehabilitation.
The book is available for free by filling out a form on the Foundation’s website at http://bit.ly/wDaMC7.
From their website: I Will Teach You Everything You Need to
Know is written by Dr. Steven Kirshblum who is the Medical
Director and Director of Spinal Cord Injury Services at Kessler
Institute for Rehabilitation. The book bridges a gap in the literature for children who need to understand spinal cord injury and
how it affects their family. In this case, a seven-year-old boy has
a close relationship with his father. Their relationship changes
after the father is spinal cord injured. The boy learns to support
and help his father the way his father had always done for him.
38
Spinal Columns
READ LIKE NEVER BEFORE
A
lbertans with physical disabilities have the opportunity to read like never before. The CNIB Library
Partners Program represents a huge step forward
in access to information for all people who have a
barrier to print.
Thanks to funding from the Alberta government, the CNIB
Library Partners Program is available free of charge through
all of the province’s public libraries. Albertans with print disabilities can choose from 80,000 titles in the CNIB Library
alternative format collection, including audio, Braille and described video.
CNIB is Canada’s largest producer of accessible library material and there is material for all ages and interests, in both official languages. Whether you’re looking for the latest bestseller,
a classic favourite or today’s sports section, the CNIB Library
helps you read what you want, how you want, when you want.
For people who don’t read print, the CNIB Library Partners
Program means unprecedented access to a broad collection of
accessible materials such as books, magazines and newspapers,
using a public library card.
HOW DO I DECLARE MY PRINT DISABILITY?
A print disability is the inability to read traditional print and
can result from learning disabilities, physical disabilities or visual disabilities. Signing up to receive CNIB Library material is
straightforward. Identify your particular type of print disability
(learning disability, physical, visual) in a self declaration. You
don’t need to provide documentation. Next, select the method
you prefer to receive CNIB Library material. You can choose
from online, circulating items, or both. Provide your public library card number or barcode. Don’t have a public library card?
Many public libraries will consider waiving registration fees for
their cards for patrons with print disabilities. Check at your local branch for their policies regarding waiving registration fees.
Once you have a public library card you can register by completing the online registration form at www.cnib.ca/selfregistration. Library staff may refer you using an online form, which
is available at www.cnib.ca/librarypartners. A CNIB librarian
will contact you to set up your library service. Get ready to start
reading!
stay connected
with wireless internet
Passengers requiring Wheelchair Lift
1-800-232-1958
Edmonton | Red Deer
Calgary | Fort McMurray
Spinal Columns
39
OBC - Edmonton - YPG
TM
$5,200,000 - Spinal cord injury (quadriplegia) resulting from
T
E
G
W E LT S
RESU
single vehicle rollover.
(To our knowledge this is the largest
SCI settlement ever achieved in Alberta.)
- Traumatic brain injury resulting from accident
caused by drunk driver. (To our knowledge this is the largest
TBI settlement ever achieved in Alberta.)
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