May is Mammography Month - Delaware Breast Cancer Coalition

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Del aware Bre a s t C ancer Coalition
May is Mammography Month
Take Action to Defeat Breast Cancer
DBCC Northern Lights of Life Survivor Models
Del aware Breast Cancer Coalition Vision
Create a communit y where ever y person diag nosed with
breast cancer is a sur vivor, and fear and doubt are
replaced with knowledge and hope.
WILMINGTON
111 W. 11th St.
Suite 3
Wilmington, DE 19801
1-866-312-DBCC (3222)
165 Commerce Way
Suite 2
Dover, DE 19904
672-6435
DOVER
LEWES
16529 Coastal Hwy.
Suite 116
Lewes, DE 19958
644-6844
Women’s Health
Screening
1-888-672-9647
www.debreastcancer.org
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Take ACtion Against Breast Cancer
Board of Trustees
John E.B. du Pont
President
Maureen Sierocinski
First Vice President
Marsha Barnett
Second Vice President
E. James Hynek, Jr.
Treasurer
Rena Howard
Secretary
Stacey Bacchieri
Lisa Baughman
Deloris Donnelly
Linda Drake
Tomiko Johnson
Nanci Mayer-Mihalski
Kathleen Furey McDonough, Esq.
Jeanne Mell
Kelli Meoli
Estrellita Mueller
Wendy Newell, MD, FACS
Joseph D. Purvis, MD
Lisbeth Selsor
Chen Wang, Esq.
David N. Williams, Esq.
Dennis Witmer, MD, FACS
Wilma Yu, RN, BSN, MS, CEN
B. Claire Zaragoza, RN
Emeritus Trustee
Maureen Lauterbach
Executive Director
Victoria G. Cooke
Advisory Board
The Hon. Steven Amick
The Hon. Patricia Blevins
The Hon. Catherine Cloutier
Martha Carper
Diana Dickson-Witmer, MD, FACS
The Hon. Bethany Hall-Long
The Hon. Margaret Rose Henry
The Hon. Andrew Knox
Janet Kramer, MD
Carol J. Pyle
The Hon. Liane Sorenson, Chair
The Hon. Karen G. Venezky
Talking about breast cancer can stir a variety of reactions
based upon your experience. Breast Cancer doesn’t discriminate. One in seven women in the United States will have
breast cancer in her lifetime, regardless of race, culture or
socio-economic status.
There’s a good chance you already know one of these
women. Perhaps you are one. Your reaction to the topic of
breast cancer may be one of avoidance if you’d just rather
not know, sadness if you’ve lost a loved one, anxiety if awaiting biopsy results, denial or despair if newly diagnosed, or
DBCC executive
gratitude if you’re a survivor.
director Vicky Cook,
Yet there’s another emotion we hope to touch in you as
a 15-year survivor
you read about Delaware Breast Cancer Coalition in the
pages to follow—hope.
It’s true that breast cancer is on the rise, but it’s also true that there are new reasons to
be hopeful. Early detection, new and less-debilitating treatments, ongoing research, and
participation in clinical trials have led to increased survival rates and improved quality of
life for those impacted by the disease. Advances in treatment are changing lives, and early
detection is saving them—98 percent of women diagnosed early living beyond five years.
That’s why we’re proclaiming May as Mammography Month. Mammography is still
the single most effective tool doctors have to diagnose, evaluate and follow women with
breast cancer. DBCC is removing educational, economic and cultural barriers so that
all women in Delaware over the age of 40 (and those younger who need one) will have a
mammogram every year.
We at DBCC are your advocates for good breast health. We’re here for you every step
of the way, from education and screening to patient and survivor support. But we also
need you to participate in your own care, and to support the care of others, because the
impact of breast cancer affects families, friends and our entire community.
Read on to learn the facts about breast cancer, what you can do to increase your
chances of early detection, and important information about the educational, screening and support programs and services of DBCC.
It is our vision to create a community where every person diagnosed with breast
cancer is a survivor, and fear and doubt are replaced with knowledge and hope. With
your help and participation, we can make that vision a reality.
Warm regards,
Victoria G. Cooke
Executive Director, Delaware Breast Cancer Coalition
Breast Cancer Facts
• Breast cancer is the most common type of cancer among women, accounting for more than
one in four cancers diagnosed in U.S. women.*
• One of out eight women in the United States will develop breast cancer during her lifetime.
• In 2007, approximately 560 women in Delaware were diagnosed with breast cancer and
120 will die from the disease.
• When breast cancer is found early, within the breast, the chance of survival is greatest.
• For the first time in at least five years, Delaware’s breast cancer incidence rates have fallen
below the average incidence rates for the United States. Our mortality rate, however, is still
higher than the U.S. average.
• Breast cancer in men accounts for about 1 percent of all breast cancers.
* excluding non-melanoma skin cancers
May 2008 www.DelawareToday.com
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May is mammography month
DBCC Tips on Getting a
Mammogram
See your healthcare provider for a prescription Prescriptions are required for all
mammograms. See your healthcare provider for a prescription and your yearly clinical
breast examination.
Choose a certified facility Wherever you go
for the mammogram, look for the Food and
Drug Administration certificate that should
be displayed and check its expiration date.
Pick a good time A mammogram may be
uncomfortable if you have sensitive breasts.
If you are still menstruating, plan to have your
mammogram the week after your period.
Gather your information
Be prepared to answer questions about:
• a personal or family history of breast cancer
• current breast problems
• past breast surgery
• the date(s) of your past mammogram(s)
• the name and address of your doctor
and any facility where you’ve had a
mammogram
Be sure to ask about
• How and when you will get the results
• When you’ll need to come back
Come prepared Wear a shirt that you can
take off easily. Don’t use deodorant, talcum powder, or lotion on your underarms
or breasts. If possible, obtain and take your
past X-rays with you, or provide the name
and address of the facility where the X-rays
were taken.
Get your results If you do not have your results within two weeks, call your healthcare
provider. Don’t assume your results are normal if you have not received them. If your
mammogram shows anything unusual, talk
with your doctor about what to do next.
Delaware Breast Cancer Coalition encourages you to join them in
proclaiming May as Mammography
Month. As the month of Mothers’
Day, May is a perfect time to attend
to the health of the women we love—
our mothers, grandmothers, sisters,
daughters and ourselves. Remind
them to schedule their annual mammograms, then check back with them
to be sure they’ve followed through.
Though mammography cannot
prevent or cure breast cancer, according to the National Breast Cancer
Coalition, it can detect the disease
before symptoms occur. Mammograms are still the most important
tool doctors have for diagnosing,
evaluating and following women with
breast cancer. With early detection,
98 percent of women survive a minimum of five years.
A mammogram is simply an X-ray
of the breast. It can be done quickly at
a hospital clinic, doctor’s office, imaging center or the Women’s Mobile
Health Van (see “Mammography on
the Move”). A technologist takes the
X-rays (which use little radiation),
then a radiologist reads the films
for signs of breast cancer or changes
from the past year’s films. Mammograms are not painful, but they can
cause minor discomfort for a few seconds while the technologist flattens
the breast to get a good picture.
Every woman over 40 years of age
should have a mammogram annually, in addition to a clinical breast
exam by a healthcare provider. If
Jacqueline Wallace
I was diagnosed with breast cancer in 1999 at age 56 and again
in 2003 at age 60. Breast cancer
has strengthened my spiritual
life and faith in my Savior.
The DBCC’s Peer Mentor
program and cancer awareness
outreach has been a blessing to
me and my family, giving us a
forum to help spread awareness.
your healthcare provider has not mentioned it, ask him or her about a mammogram. Make sure to let your healthcare provider know about your family
history to determine whether you should
begin screening before the age of 40.
Breast cancer is not age specific and it
does not discriminate. It affects individuals of every race, gender and culture,
making breast cancer everyone’s business. So this May make the commitment
to practice self exams and schedule your
mammogram, because early detection
can save lives.
Make it a Day to Remember
Your calendar may be filled with important reminders about
business trips, lunch dates, Little League and PTA. You may have
even scheduled some time for yourself for a facial, yoga class or
dinner with girlfriends. But there’s one critically important date
not to miss each year: your date with a mammogram.
Make it a special day to mark on your calendar and an easy
one to remember. A holiday, anniversary, child’s birthday or your
own can serve as a great reminder to schedule your annual mammogram. Make it a day to remember and be here to enjoy the
next celebration marked on your calendar.
(Remember: Most insurance companies pay for one mammogram a year,
so schedule it one day later than your mammogram of the previous year.)
May 2008 www.DelawareToday.com
B7
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Mammography on the Move
There is no reason for any woman
in Delaware not to get a mammogram.
Despite lack of insurance, lack of transportation, a language barrier or a toobusy schedule, Delaware Breast Cancer
Coalition can help. Women’s Mobile
Health Screening, LLC, a subsidiary of
the Delaware Breast Cancer Coalition,
puts women on the road to better breast
health by bringing mobile mammography and the expertise of Papastavros’
Associates Medical Imaging to women
who need it.
Women who are uninsured or underinsured may be eligible for mammograms on the van through Screening for Life, a program of the Division
of Public Health and DBCC that ensures every woman in Delaware can get
a mammogram. Call DBCC to check
eligibility and schedule an appointment at one of the nine locations visited monthly, such as Rodney Square,
Planned Parenthood in Dover and the
Georgetown CHEER Center.
If the pace at work and home makes
getting a mammogram a challenge,
the Women’s Mobile Health Screening
Van can come to you. Encourage your
employer, church or other community
organization to call Women’s Mobile
Health to schedule the van at 1-888672-9647.
Lois Wilkinson was skeptical about
mobile mammography when she heard
Above: State Representative Donna D.
Stone visits the mammography van.
Left: Women’s Health Screening Van at
Paint the Square Pink in Rodney Square.
about the van at the Women’s Health
Expo in October five years ago. “I was
under the impression that the van wasn’t
state of the art,” Lois says. “I thought I’d
just wait for my scheduled appointment
in November. But every time I passed
the table at the expo, the women asked,
‘Are you sure you want to wait?’”
Lois looked into the van. “I was surprised to see the same machine as in the
office, and everything was so clean,” she
says. The fact is, mobile units undergo
regular quality assurance testing. Employee qualifications and quality assur-
ance records are inspected annually.
Lois had her mammogram that
day—and was glad that she did. It
showed an abnormality that was breast
cancer. “I just really thank God, and
those women at the expo, that I had
that mammogram a month and a half
early,” says Lois. “Who knows how far
the cancer would have spread during
that time.”
Today Lois Wilkinson is a five-year
cancer survivor. She serves as special
programs manager with the Delaware
Breast Cancer Coalition in Dover.
About the Women’s Mobile Health Screening van
• The van can come to your place of business. Prescriptions are required for all mammograms.
• The van is staffed by health professionals from Papastavros’ Associates Medical Imaging.
• Van staff provided 1,138 women with screening mammograms during the most recent contract year (July 2006-June 2007), 736 of
which were Screening for Life mammograms (free to those who qualify).
• The van routinely visits nine locations during the month, throughout the state.
• Employee scheduling and paperwork can be handled over the phone, or the workplace coordinator can receive all of the necessary forms.
• HIPAA (Health Insurance Portability and Accountability Act) Law guarantees privacy of patient records.
• It’s best to schedule the van two months in advance to allow time to get the word out and generate interest at work, and for women to
obtain prescriptions from their physicians.
• Call 1-888-672-9647 for information or to schedule an appointment or visit to your work site.
May 2008 www.DelawareToday.com
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Delaware Breast Cancer Coalition: Who We Are
Delaware Breast Cancer Coalition, a
501c(3) non-profit agency created in 1991
by a small group of volunteers, is the only
organization in the state focused solely
on breast health issues as they affect the
women and men who live here.
The first and current executive
director, Victoria Cooke, was hired in
the year 2000. Cooke, a 15-year breast
cancer survivor, has used her non-profit management background and personal experience with breast cancer
to help shape many of the programs
DBCC offers today.
There are now eight full-time and
nine part-time paid staff at DBCC who
are supported by hundreds of volunteers from throughout Delaware and
Southeastern Pennsylvania.
Together they work to fulfill DBCC’s
mission: empowering our community
by raising awareness of breast health
issues through outreach, education
and support services in order to facilitate early detection and treatment of
breast cancer.
This team of caring staff and volunteers provides a continual cycle of support and resources to women and men
at any point on their own journey with
breast cancer, including:
• Prevention through awareness,
education and outreach programs
DBCC at the Dover Mile Walk
• Diagnosis through Women’s
Mobile Health Screening
• Peer mentoring for
newly diagnosed individuals and
survivor support
• Clinical trials information and
enrollment
• Advocacy and lobbying of local
and national policymakers
DBCC is dedicated to sharing
knowledge and hope with those filled
with fear and doubt until the day when
the vision of every person diagnosed
with breast cancer becoming a survivor
becomes a reality. To learn more about
Delaware Breast Cancer Coalition, visit
www.debreastcancer.org.
DBCC staff, board members and volunteers at Sussex office grand opening.
Tanger Outlet check presentation to DBCC
Delaware Breast Cancer Coalition, Inc. Income and Expenses
audited figures as of June 30, 2007
Expenses
Income
1%
Grants
18%
18%
14%
PartnershipsContributions
29%
Other
Educational &
Support Programs
10%
Contract Fees
Special Events (net)
20%
8%
26%
56%
Women’s Mobile
Health Screening LLC
Fundraising
Management
Investments-INterest
May 2008 www.DelawareToday.com
B11
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Advocacy in Action: Awareness, Education and Outreach Programs
“We believe the loss of one woman
to breast cancer is one too many,” says
Naya Cruz-Currington, Latina program
manager for the Delaware Breast Cancer Coalition.
Yet the sad reality is that, last year,
about 560 Delaware women were diagnosed with breast cancer, and 120
women died from the disease. That’s
why the DBCC is steadfast in its efforts
to help every woman understand the
importance of early detection and good
breast health.
DBCC reaches out to women statewide, bringing free education programs
to workplaces, churches, community
groups, health fairs and other events.
In March DBCC held its 11th annual
Breast Cancer Update, a free one-day
program where more than 250 people
heard from experts about the latest
on breast cancer and women’s health
issues. The update is one of the important ways DBCC keeps the public and
healthcare professionals informed.
Multicultural Peer
Education and Outreach
Programs
DBCC has developed culturally
competent breast health programs that
address different populations of women,
including women who partner with
women, Spanish-speaking and AfricanAmerican women, and young survivors.
Taking Care of Ourselves provides
Naya Cruz-Currington,
DBCC Latina Program
manager at Rodney Square
breast health education and support to
lesbians and educates healthcare providers on providing culturally competent care with the “Removing the Barriers” curriculum. Healthcare professionals may earn continuing education
credits while learning about barriers
to care, appropriate language, clinical
concerns and more.
Mujeres pro Salud Promotoras (Women
for Health Peer Educators) is a bilingual
education outreach program conducted by and for Spanish-speaking women.
Trained volunteers, the promotoras,
engage Latinas in conversation about
mammograms and the importance of
breast health care. “Breaking down the
language barrier helps to put them at
ease,” says Cruz-Currington.
One of the obstacles the promotoras
encounter is a belief held by some Latinas that breast cancer is a punishment.
The promotoras try to replace fear with
knowledge by presenting multi-media
breast education sessions in comfortable
settings for the women, even the privacy
of a home. They also provide resources
for low-cost or free mammograms.
The Mature African Americans for
Mammography Coalition (MAAM) is
a similar outreach program facilitated
by trained volunteer lay health advisors
who raise awareness about the importance of mammography, especially
among African-American women. The
MAAM Coalition recruits volunteers at
Esther Lovlie
At age 41, I was diagnosed with breast cancer. Breast cancer has humbled me and created a heightened sense of appreciation of friends and family who have reached out and supported me in so many
beautiful and unforgettable ways.
Cathy Holloway and Stacey Bacchieri (of DBCC) reached out to me, made time for me, and made it
easier for me to accept my breast cancer. I now not only have a great resource to help me through my
journey, but two new friends as well.”
B12 www.DelawareToday.com May 2008
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health fairs and public events. Volunteers undergo 12 hours of training that
covers the facts about breast cancer,
effective presentation skills, and how
to adapt the presentation based on the
sensitivities of the group.
The death rate from breast cancer
among African-American women is
higher than among white women, in
part, due to cultural factors.
“The strong black woman—the
mama always putting her family first—is
something we hear about beginning in
childhood,” says Ilene Whaley, MAAM
coalition coordinator. “She is considered
courageous and full of honor for focusing on her family rather than herself.
I’m not sure how it got started, but it’s so
prevalent in our community. The challenge is keeping this strong mama while
teaching her to take care of herself.”
“It’s my job to get women screened,”
Whaley continues. “If I can tell the
women how important they are to the
community, how important they are to
their families and friends, and get just
one to take the step once a year to get a
mammogram and it saves her life, that’s
what counts.”
To learn more about the DBBC outreach programs, call 1-866-312-3222, or
visit www.debreastcancer.org.
Deloris Donnelly at DBCCC’s annual
Panel Update.
proudly supports
The Delaware Breast Cancer Coalition!
Upcoming Events
The DBCC fully funds its programs through
grants, the generosity of corporate and individual donors, and funds raised through special events.
May 10 Blue Rocks Breast Cancer Awareness Night is a “Pink” night with the team.
June 26 The Third Annual Legend Classic
Golf Tournament at Deerfield Golf & Tennis
Club in Newark.
Dr. Jonathan Saunders,
Dr. Katheryn Warren
and Dr. Julia MacRae,
all board-certified plastic surgeons,
provide a full range of both cosmetic
and reconstructive services.
Complete skin care services are also
available in the office.
July 25-26 The Jersey Shore Classic—
Fishing for a Cure is a two-day, all-inclusive
®
inshore and offshore fishing tournament.
Sept. 13 Northern Lights of Life at Longwood Gardens in Pennsylvania.
Feb. 20 Southern Lights of Life at Dover
Downs Hotel & Casino in Dover.
Both Lights of Life Evenings of Living and
Giving celebrate breast cancer survivors in our
community. More than 1,400 people turned
out for these gala events last year, raising over
$200,000.
All of the money raised for the DBCC at
these events and by other means stays in the
local area, funding programs that support the
women and men who live here. For more information on events, visit www.debreastcancer.
Ask about the new FDA approval of silicon gel implants, now available!
E-62 Omega Drive, Newark, DE
Call for your skin care consultation today. (302) 368-9611
www.DEplasticsurgeons.com
org, or call 1-816-312-3222.
May 2008 www.DelawareToday.com
B13
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Peer Mentor Program
DBCC’s Peer Mentoring Program
offers one-on-one support and education by trained breast cancer survivors
to newly diagnosed patients and individuals facing a recurrence, as well as their
families and caregivers, in Delaware and
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Issue Date: DELAWARE TODAY May
2008 UltraSmooth, Account Executive: Matt L.
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breast cancer patients to spread the
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any medical advice, however,” says Cathy
Holloway, special projects manager
in DBCC’s Wilmington office. “What
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say, ‘Yes, I know about chemo. I went
through it, too, and I know what it’s like
to lose your hair.’”
DBCC’s mentors have helped over
200 newly diagnosed individuals since
the program’s inception in 2006. “Our
mentors cover a broad population:
young women, older women, people of
different cultural and ethnic groups,
and men,” Holloway says. “When anyone calls one of our three offices, there
is someone who can help them, someone they can identify with.”
Mentors and mentees are matched
by their type of cancer, treatment andor surgery, as well as by their circumstances. One woman may want to talk
with a survivor who worked while going
through treatment to learn how she
handled it. Another may talk with someone about a lumpectomy, then find
she’ll have a mastectomy and speak with
someone else about that.
DBCC offers resources that include
educational and financial information
and referrals to sources for group support, including the Wellness Community, Cancer Care Connection, and the
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Beebe, Bayhealth and Christiana Care
cancer centers.
Peer Mentoring for
Younger Women
When women in their 20s and 30s
inc.
get breast cancer, they often face a different set of concerns and challenges:
preserving fertility, pregnancy after
breast cancer and work-lifeDate
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Got it.
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Mentors Lois Wilkinson and Cheryl
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ment, or managing children and a
career while dealing with breast cancer,”
says Holloway. “These young women are
working full time, managing their families, their jobs, and going through treatment. It’s amazing, really. They’re getting through it and coming out strong.”
Many go on to become mentors. “It’s
like a sorority that you really never wanted to be a part of,” Holloway says, “but
once you’re in it, you’re really in it.”
Kathy Storm has been a mentee and
mentor. She was a 32-year-old mother
to a one- and three-year-old when first
diagnosed with breast cancer.
“At the time everything was so overwhelming,” says Storm, “and here was
my mentor, someone who had gone
through it, helping to put some perspective around it. It was very comforting and reassuring. Now, as a mentor,
it’s nice to feel I can help someone. It’s
really just about listening, but I do give
one piece of advice: It’s good if you can
just accept help from people when they
offer. It makes such a difference.”
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men get breast cancer, Too
On rare occasions, DBCC will
receive a call from a man with breast
cancer, then refer him to someone like
Carl
inc.Hilbert of Wilmington.
Carl Hilbert
“I never realized men could get
inc.
Diagnosed with breast cancer at
breast cancer,” says Carl, who was diagage 69, the experience has deepnosed in May 2004.
ened my faith in God and made
e
Who Carl had
Issue
DELAWARE
TODAY, May 2008
me aware of my responsibility to
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breast cancer too.
Client / e-mail / fax: All About Smiles / [email protected]
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that theevery
agencyweek,”
and advertiser are authorized to publish the entire contents and subject matter
representation that the agency and advertiser are authorized to publish t
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“But I think the first guy was
thereof. The agency and advertiser assume liability for any and all claims a
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Authorized
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but he’s sensitive to it when speakingAuthorized
“Without
trying to sound like a spirithrough a third party, his pastor.”
tual hero, it’s like a calling for me to help
When diagnosed, men tend to be with other men.
Carl has done a lot at his church and someone,” says Carl. “I do because I can.”
over 60. Feelings of embarrassment are
For more about the Peer Mentor
not uncommon, and some worry that in his community to raise awareness.
people will question their masculinity. He continues to offer support as a peer Program, visit www.debreastcancer.org,
or call 1-866-312-3122.
“That wasn’t an issue for me,” say Carl, mentor.
edia,
Please return within 24 hours
Today Media,
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Improving Care with Clinical Trials
“The only way we can move treatment forward is through clinical trials,”
says Vicky Tosh-Morelli, DBCC program
manager. Clinical trials are critical in
making medical advancements in prevention, screening, diagnostics, treatment and quality of life.
“They’re also a way for patients to
be more proactive in their own care by
exploring treatments that haven’t hit the
market,” Tosh-Morelli says. Yet less than
5 percent of patients eligible for trials
enroll. “I think a lot of people are suspicious of clinical trials and think they’ll
be treated like guinea pigs,” says Donna
O’Hara, who has participated in three
trials since diagnosis in February 2004.
“I believe you get a better standard of
care while going through a clinical trial,”
she says. “Because they’re trying to measure your response to the treatment, you
may have more tests done and are more
carefully watched. The protocol is that
your doctors have to monitor side effects
and rate them, so they really do take
more time with you during your visit
because they have a lot of requirements
that they need to satisfy.”
A DBCC initiative is aimed at increasing enrollment in treatment and prevention trials at cancer centers in Delaware,
including the Helen F. Graham Cancer
Center. “One of our next steps is to get
breast cancer survivors to become consumer advocates for the clinical trials,”
Tosh-Morelli says.
O’Hara, who has an aggressive form
of breast cancer, is running out of chemotherapy options. Clinical trials help
her explore new treatments. “I hope I
wake up from the nightmare of this terrible disease one day,” she says. “But right
now, this is a way for me to not feel like
a victim. I have to go through this, but
maybe other women won’t. Why not go
through this in a way that may help?”
How Can You Help?
Be an advocate for your own health
Practice breast self-exams monthly, see
your healthcare provider for a clinical
breast exam annually, and get a screening
mammogram.
Spread the Word Encourage your friends
and family members to get a mammogram, and follow up to be sure they did.
Volunteer There are many opportunities
to help the DBCC with its mission. Become
an outreach volunteer or a peer mentor,
or help with fundraising and agency functions. Call 1-866-312-DBCC to find out how
you can help.
Donate to the Cause Your donations help
fund the DBCC’s education, outreach,
support and clinical trial programs. All of
our funds stay within the local area to support the women of our community.
We can’t do it without you Make a secure online donation today by visiting www.debreastcancer.org (under “How You Can Help”), or
call 1-866-312-3222 for more information.
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