PDF - BC Children`s Hospital Foundation
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PDF - BC Children`s Hospital Foundation
children SPEAKING OF SUMMER 2015 Record-breaking Miracle Weekend Sun safety tips A baby fights cancer Care in the first year of life bcchf.ca spotlight on giving inside speaking of children features www.bcchf.ca Kirmac Cares for Kids With a 42-year track record as a successful business, Kirmac Collision is a leader in its field and a champion for the younger generations. Since the inception of its Kirmac Cares for Kids program in 2011, Kirmac and its employees, customers and business partners have contributed over $1 million to BC Children’s Hospital. Their determination and capacity to raise funds is impressive: annual contributions to the program have increased three-fold – from $120,000 to more than $360,000 – since it began. Employees at all levels of Kirmac are proud to contribute to the hospital. “When we chose BC Children’s Hospital as our charity of choice, it hit me that when we help kids, we help a whole generation with an entire life ahead of them...and all the other people they can help throughout their lives,” says Ian McIntosh, founder & CEO of Kirmac Collision Services. Thank you, Kirmac, for your extraordinary support of BC’s children! SUMMER 2015 MANAGING EDITOR Cancer strikes even the youngest. Stephen Forgacs EDITOR Winnie Tam 8 Baby Steps Fixing a heart the size of a walnut. CONTRIBUTORS Justin Beddall, Gail Johnson, Diane Haarstad, Mary Frances Hill, Bojana Nikolic 10 We Are All Unique, But . . . She’s one in seven billion. PHOTOGRAPHY Irvin Cheung, Evelyn Ford, Dave Hale, James LaBounty, Jeff Wedell Photography, Kristie Robin Photography, Raymond Ng, Sandy Ng, Mike Remek ART DIRECTOR Felice Bisby 12 20 Years of Caring The first lady pays tribute to donors. 20 2015 Miracle Weekend Over $18.8 million raised for BC’s kids! PROJECT MANAGER Casey Crawford PRODUCED BY Sean, Ian (far left and second from left), Mark and Ken McIntosh (far right and second from right) from Kirmac Collision proudly present a cheque for over $1 million to BC Children’s Hospital Foundation staff Maria Faccio, Tanya Linau, Jennifer Lau and Selina Yano. 4th Floor, 4180 Lougheed Highway Burnaby, British Columbia, Canada V5C 6A7 604.299.7311 CHAIRMAN, CEO Peter Legge O.B.C., LL.D (HON) PRESIDENT Samantha Legge MBA A million thanks to the Auxiliary to BC Children’s Hospital The dedication and compassion of the Auxiliary to BC Children’s Hospital volunteers makes the hospital an extraordinary place for children and families. Each year, the Auxiliary raises significant funds for the hospital through its gift shop, the Still Fabulous thrift shop, sale of holiday cards, clothing donation bins, silent auctions and other initiatives. Since 1982, the Auxiliary has donated more than $5 million to BC Children’s Hospital. The Auxiliary recently celebrated the completion of its remarkable $1-million pledge to the Campaign for BC Children, in support of the construction of the new hospital. The Auxiliary’s success comes from its network of volunteers, who generously donate their time to raise money and provide crucial support for patients and their families year-round. Bonnie Nelson joined the Auxiliary board two years ago and currently serves as chair. She could not be happier to be a part of this legacy that the Auxiliary is creating for BC’s children. “We’re all about doing right by the children and families – ensuring they have the support they need here at BC Children’s Hospital. The Auxiliary’s gift to the new hospital will help to lift that support to new heights.” 2 speaking of children summer 2015 6 Already a Survivor at Seven Months SENIOR VP/CUSTOM PUBLISHING Kathleen Freimond MBA For more information about the editorial content of Speaking of Children or to make a donation to BC Children’s Hospital Foundation or Sunny Hill Foundation for Children, please contact 604-875-2444, toll-free at 1-888-663-3033 or [email protected]. Charitable Business Number: 11885 2433 RR0001 BC Children’s Hospital Foundation, 938 West 28th Avenue, Vancouver, BC V5Z 4H4 Return undeliverable Canadian addresses to SOC Editor at address above. Speaking of Children is published three times annually by BC Children’s Hospital Foundation. Supporters who donate $50 or more receive a one-year subscription to the magazine, which is also distributed to government officials, public health units and libraries throughout the province. departments 2 4 13 14 15 16 18 19 spotlight on giving well said caring for the future speaking of people what’s on healthy habits what’s up, doc? children speak Publication sales agreement #40659514 A PUBLICATION OF BC Children’s Hospital Foundation raises funds for Children’s Hospital, Sunny Hill Health Centre for Children and the Child & Family Research Institute. On the Cover Baby Piper Bowman from Sidney. See pages 10-11. Want more stories? Read our new 2014-15 annual report online at www.bcchf.ca/annual-reports. summer 2015 speaking of children 3 well said Caring for children big and small The astounding total of $18.8 million revealed on Miracle Weekend May 30 and 31 shows once again the importance British Columbians attach to their children’s hospital. Thanks to a year’s worth of fundraising and awareness activities undertaken throughout our communities, and the two-day broadcast on Global BC, thousands came to better understand the impact BC Children’s has on the lives of children and their families and were moved to donate. This outpouring of support from every corner of the province makes miracles happen. It ensures the children who need it most receive the very best care from our talented caregivers. BC Children’s Hospital treats every child who is critically injured or ill in the province and the Yukon. In this issue of Speaking of Children, we introduce you to some of our youngest patients confronted with life-threatening conditions in their first year of life. Thankfully, each of these stories has a happy ending! We also include a special section to congratulate and acknowledge the individuals, organizations, families, volunteers and sponsors who reached deep into their hearts and pocketbooks to make the 2015 Miracle Weekend the biggest in its 28-year history. Almost daily, our surgeons perform procedures on infants under a year old. In fact, more than half of the 200 open-heart procedures performed last year at BC Children’s were on babies who had not yet reached their first birthday. During these times of struggle and anguish, our caregivers do everything they can to ensure the best chance of recovery and good health. At the same time, they make sure to look after the well-being of families, for they are also dealing with a new reality. Thanks to supporters like you, we can continue to be there for every patient – infant, toddler, child and teenager – who requires specialized medical care. Your support ensures our outstanding medical professionals give each child we treat the most up-to-date, personalized care. Thank you for your incredible care and commitment to the health and well-being of our children. Sincerely, BC CHILDREN’S HOSPITAL FOUNDATION Board of Directors 2015 as of January 1, 2015 Mr. David Podmore, Chair Ms. Leslie Arnold Mr. Kevin Bent Mr. David Doig Mr. Doug Gordon Mrs. Lisa Hudson Mrs. Tammi Kerzner Mr. Mike Lam Mr. Raymond Li Mr. Don Lindsay Mr. Graham MacLachlan Mr. Bjorn Moller Mr. Geoff Parkin Dr. Erik Skarsgard Ms. Andrea Southcott Mrs. Diane Zell Foundation Executive A healthy start One of the things that makes BC Children’s Hospital unique is our caregivers’ ability to care for a wide range of patients with varying needs. Our patients are infants who are only a few weeks old; they are also teenagers with complex social and developmental needs. Regardless of our patients’ age and needs, our caregivers provide each child and their families with the care they need with compassion and respect. At the end of the day, when a child needs specialized health care, BC Children’s Hospital is the place to be. In this issue of Speaking of Children, you will meet three infants who received critical, life-saving care in their first weeks and months of life. Their care reflects the wide range of expertise that exists at BC Children’s, and the support that these babies receive as they fight their way through cancer, a heart defect and a genetic condition so rare that it exists in no other child in the world. Teri Nicholas, MSW, RSW President & CEO Knut Nordlie, CFRE Vice-President & Chief Operating Officer Debora Sweeney, CFRE Vice-President & Chief Strategy Officer Maria Faccio Vice-President & Chief Philanthropy Officer David Podmore, O.B.C. Lillian Hum Chair, Board of Directors BC Children’s Hospital Foundation Vice-President & Chief Philanthropy Officer 4 speaking of children summer 2015 summer 2015 speaking of children 5 feature story (left) Terry and Allisha Heidt and their baby son Bing; (above) Dr. Amanda Li BECOMING BING A young family works through a difficult diagnosis, and moves forward with hope and optimism. by MARY FRANCES HILL Beneath the pleasant, normal life of the Heidt family, there lies a tiny scar on tender baby skin, memories of an airlift to BC Children’s Hospital and many days of turmoil. To an outsider, there’s nothing to distinguish Terry and Allisha Heidt and their baby son Bing from every other family in their Kelowna community who have welcomed a new baby into the family. They’re just as sleep-deprived, just as busy, just as thrilled to see him grow and hear his daily squeals of delight. Then every six weeks, real life shifts for Terry, Allisha and their close extended family. “We’re lucky he can live a normal life, but then we have to go to Vancouver and we’re reminded that yes, this happened to him,” says Allisha. What happened was mesoblastic nephroma, a renal mass, or kidney tumour so rare that it occurs in eight in every million newborns. The diagnosis requires that the Heidts travel every six 6 speaking of children summer 2015 weeks from Kelowna to BC Children’s Hospital in Bing’s first year to monitor his progress and check for new growth. The news of mesoblastic nephroma came within days of Bing’s birth on December 29, 2014. It was a shock to the Heidts, who had enjoyed Allisha’s calm, healthy pregnancy. Mesoblastic nephroma is often too small to see in early pregnancy ultrasounds or develops in the late weeks of pregnancy. The lives of new parents are always up-ended with the arrival of a baby. But when the baby suffers from medical complexities, it’s a huge blow for new families’ expectations and their long-held vision of what life with a baby would be like, says Dr. Amanda Li, a BC Children’s Hospital oncology fellow who treated Bing, along with Dr. Jeffrey Davis. They’re two members of a team dedicated to monitoring Bing during his first year. With Bing, and any infant who visits BC Children’s Hospital, the first year of life is critical in terms of health, motor and brain development; BC Children’s caregivers maintain communication with the family and are always attuned to their particular difficulties. “The diagnosis of cancer is never expected and always stressful and overwhelming,” says Dr. Li. “To put that in the context of brand new parents who’ve just had their first baby and are from away, I can’t imagine how overwhelming it would be. And then to be told you have something medically wrong, [it’s even tougher].” BC Children’s Hospital surgeon Dr. Sonia Butterworth led the surgery to remove Bing’s tumour. The wait for a diagnosis, during which Allisha couldn’t hold and nurse Bing, was particularly unpleasant, Allisha recalls. Three weeks after they first arrived at BC Children’s, Bing was tumour-free. He and his parents were able to return to Kelowna and resume life as normal. Studies show that 98 per cent of newborns with mesoblastic nephroma do indeed survive and thrive. “At BC Children’s Hospital, we may see a case of mesoblastic nephroma every year or less in our BC population,” says Dr. Jeffrey Davis, Bing’s oncologist. “This type of tumour is generally not metastatic [does not spread to other organs]. As long as the surgery is successful and the baby recovers well, things usually go well,” he says. The Heidts also embrace the unexpected benefits that come with the rarity of mesoblastic nephroma. Where many parents facing a child’s health crisis might lose themselves in the storm of medical websites and blogs by parents and support groups, the random occurrence of mesoblastic nephroma in their son – and the swift removal of what turned out to be an isolated tumour – gave the Heidts a perverse advantage over many families dealing with a child in medical crisis. With few online experts or families available to expound on this rare variety of nephroma, the Heidts say they were fortunate to escape the barrage of speculation and information on social media that so overwhelms families facing more common ailments. They accept the random nature that comes with a rare diagnosis, and find comfort in the fact that with the tumour gone, they don’t need to constantly obsess about health management. Rather, they’re free to enjoy their baby boy and take pleasure in his normal, healthy developmental milestones. Allisha says the family’s optimism helped them cope through the most difficult times. “We said no matter what news we heard, that when we stationed ourselves cribside for the day we wanted to emit only positive vibrations.” Daily reminders to each other helped the couple move forward, Terry adds. “Every morning when we were at Children’s, Allisha and I said to each other, ‘It’s going to be a good day.’ It helped us get through it all.” summer 2015 speaking of children 7 feature story TINY MIRACLES Life begins anew for a baby boy with a rare heart defect. by JUSTIN BEDDALL Elizabeth Van de Polder holding baby Kelso. 8 speaking of children summer 2015 Elizabeth Van de Polder felt a sense of joy and relief when she finally got to hold her baby boy Kelso for the first time without any wires or tubes attached to his tiny body. “Whenever I held him I had to be right beside his bed because he was hooked up to all these monitors,” she recalls. “But now I can just pick him up and take him over to my bed and hold him and feel normal.” On a sunny May afternoon, Elizabeth is sitting in a comfy chair inside the living room of her South Surrey home, with Kelso sleeping peacefully in her arms. It was a tumultuous first-week-and-a-half of life for Kelso and his young parents. Kelso was born on April 16, 2015, at 6:12 pm. The next morning, as his parents prepared to take him home to meet his older sister Zoey, a nurse detected an unusual heart murmur. Kelso was sent to BC Children’s Hospital for testing and later diagnosed with a rare heart defect that required surgery. “It was very scary,” says Elizabeth. Kelso was only six days old when he underwent a delicate four-hour operation to fix his heart. After watching their baby disappear into the operating room at BC Children’s Hospital, Elizabeth and her husband Steven clung to each other, and to a sense of hope. They knew Kelso was in good hands. Every year, the talented and highly trained team of cardiovascular surgeons at the hospital’s Children’s Heart Centre perform more than 300 operations on infants and children suffering from a variety of congenital and acquired heart defects. The team is led by surgeon Dr. Sanjiv Gandhi, who, since joining BC Children’s in 2010, has played a key role in expanding the Children’s Heart Centre’s programs and enhancing its reputation as a top surgical centre. Dr. Gandhi explains that Kelso’s condition is known as aortico-left ventricular tunnel, and it’s incredibly unusual. In his 20 years as a surgeon, Dr. Gandhi has only encountered three similar cases. “[It is a heart defect] in which there is a connection between the aorta, which is the blood vessel that provides blood to the body, and the left ventricle, which is the main pumping chamber of the heart,” he explains. Surgery was the only option to correct the defect. A baby’s heart is just a little larger than a walnut, so operating on an infant versus, say, a 10-year-old child, presents added challenges for the surgery team. Aside from the most obvious difference – size – Dr. Gandhi explains the other differences have to do with the heart itself. “The heart muscle, being much more immature, and hence delicate, in infancy, doesn’t tolerate stress very well – so you have to execute operations with perfection; if you don’t, the outcomes won’t be great.” The Children’s Heart Centre is one of two designated surgical centres in the Western Canadian Children’s Heart Network and it cares for sick young patients from across Western Canada. “It’s becoming a very well-known place; we care for the full range of complex congenital heart conditions, all the way from infancy to adulthood,” says Dr. Gandhi. “The people that are here are tremendously knowledgeable in all facets of pediatric heart disease.” When the Van de Polders met Dr. Gandhi for the first time, they found the surgeon’s manner both positive and reassuring. “It made us confident,” says Steven. Dr. Gandhi understands the emotional adversity parents face after receiving a jarring diagnosis like this and he tries to connect with them as parents – to build a trust beyond the typical surgeon-to-patient relationship. “To realize the stress that they are experiencing has everything to do with the fact that we’re talking about their children…the most precious things in parents’ lives,” says Dr. Gandhi. “And to establish some sort of confidence with them – that they are confident that the person who’s been entrusted to fix their child’s heart knows what he’s doing and is going to return their kid back in better shape than when they came.” After Kelso went in for surgery, the Van de Polders received a beeper that would go off when the operation was finished. To take their minds off the surgery, the anxious couple walked around nearby Queen Elizabeth Park, hand-in-hand. “We knew it was happening and there was no point to bring it up,” recalls Steven. Hours later, they returned to a waiting room for parents inside the Pediatric Intensive Care Unit when the device started beeping. Dr. Gandhi soon arrived to deliver the news: the operation to fix Kelso’s heart was a success. “My heart started pumping again. You can’t explain [the feeling],” says Elizabeth. Three days later a healthy Kelso was back at home with his parents and sister. “The [heart] murmur is gone,” says Elizabeth, running her fingers through her sleeping baby’s hair. “The best part about my job is when kids go home in great shape and live happy and normal lives, like Kelso,” says Dr. Gandhi. summer 2015 speaking of children 9 feature story PIPER’S JOU RNEY A multidisciplinary team supports a baby who’s truly one-of-a-kind. Shawnie Blinko and baby Piper. by GAIL JOHNSON When she went for her 20-week ultrasound in her hometown of Sidney, Shawnie Blinko discovered she was having a baby girl. She also learned that her daughter might have kidney complications. But no one could have foreseen just how complex baby Piper’s condition would be when she was born on September 8, 2014. Piper was born with a collapsed lung and acute kidney failure and was put on life support immediately. She and her parents were flown to Vancouver, where they found out that her thyroid wasn’t functioning properly and her heart had a small opening. Faced with high blood pressure, hypothyroidism and hearing loss, among other conditions, Piper also has what’s known simply as chromosome 7q32.2-7q31.6 deletion. She is the only person in the entire world with the abnormality. “It had never been reported in scientific literature before,” Shawnie says of the chromosomal condition. “I felt very isolated. Because no one had ever had this before, there wasn’t any information on it. There were moments when doctors weren’t sure she would make it. That’s not something you want to hear after you have your first baby.” Piper spent the first three months of her life in hospital, overcoming incredible challenges along the way. She will need care throughout her life from specialists in many different departments. The family currently goes back to Children’s every three weeks to three months, depending on her health and her circumstances. Shawnie has been documenting her family’s experiences on a Facebook page called Piper’s Journey – With Kidney Disease and a Chromosome Deletion. It’s a way to rally support for Piper, build a sense of community, and allow people to see just how exceptional this little girl is in the face of so much adversity. Shawnie and Piper’s father, Christian Bowman, have been amazed at the medical care their beloved daughter has received at BC Children’s Hospital. Not yet a year old, Piper has had several surgeries on her kidneys, which were fused together in 10 speaking of children summer 2015 a horseshoe shape. She needed a feeding tube and has worked with a physiotherapist. She will soon be operated on for a condition called metopic craniosynostosis, the premature fusion of the suture in the middle of the forehead. BC Children’s Hospital is uniquely positioned to care for babies with special needs. Dr. Colin White, a pediatric nephrologist, cared for Piper in the hospital’s Chronic Kidney Disease Clinic. With Piper’s kidneys having since stabilized, he explains that the focus now is on ensuring she keeps growing so that her kidneys continue to function well. However, having to treat very small children with dialysis can be a daunting challenge for medical experts and families alike. “We do have limits; it’s difficult to dialyze babies who are less than two kilos,” Dr. White says. “But for those we can, it’s a life-altering situation. They need to be on the machine every day, seven nights a week, for 12 to 14 hours, until they’re big enough to have a transplant around 10 kilos or two to three years of age. They also need several medications many times a day. “Technology is always advancing,” he adds. “Our ability to save lives is getting better. But what doesn’t change is the stress on families. I’m always impressed by how much parents do to support their kids. Their commitment is extraordinary.” Dr. White credits the hard work of multidisciplinary teams when it comes to ensuring sick kids get better and helping families cope. “When you’re caring for very, very young babies, it’s a very large team of physicians, nurses, social workers, dietitians, and others who do the heavy lifting,” he says. For Shawnie, Piper’s care at Children’s has and continues to go well beyond the medical. For one thing, staff members have always asked her if her family needs any help setting up travel and accommodation while in town for Piper’s treatments. They help make sure Shawnie is taking care of herself, too: nurses offer to hold Piper while Shawnie grabs a quick dinner or has a short nap. And doctors and nurses always make a point of including Shawnie and her partner in Piper’s care. “Doctors always come to me and ask me my opinion on everything before going ahead and doing something like an ultrasound or changing her medication,” Shawnie says. “They always wanted my input because they knew how involved I wanted to be with her care. I had a lot of questions, and they always have time for them. “Sometimes they would just let me have a shoulder to cry on,” she adds. “It was more of a support system than a medical team. And if they can’t give the support you’re looking for then they will refer you; they have so many resources. I trust them, and I know they will always do their absolute best for Piper.” summer 2015 speaking of children 11 feature story caring for the future Spirit of Giving CELEBRATING 20 YEARS OF PHILANTHROPY – the Children’s Circle of Care Helen Keller once said, “Alone we can do so little; together we can do so much.” That is the belief held by members of the Children’s Circle of Care, a program that brings together leading benefactors to 26 of the most esteemed children’s hospitals in Canada and the US. Through their annual contributions of $10,000 or more to their local children’s hospitals, Children’s Circle of Care members – individuals, privately held corporations and family foundations – have a tremendous impact on child health in BC and in North America. BC Children’s Hospital is one of the founding members of Children’s Circle of Care and one of only three Canadian member hospitals. When the circle began in 1995, BC Children’s had 43 members. By 2014, membership had grown to an impressive 304. In the last year alone, members contributed more than $17 million to BC Children’s Hospital. Children’s Circle of Care members support a range of initiatives and activities, such as childhood disease research, the purchase of specialized medical equipment, the construction of the new Teck Acute Care Centre and more, ensuring BC’s children continue to have access to the best possible health care. In June, Children’s Circle of Care donors were invited to the Woodmark Children’s Forum in Washington, DC, at which first lady Michelle Obama was the keynote speaker. “I have a real passion for the work that you all do,” said Mrs. Obama. “I’ve seen the impact you have in the faces of kids who are beating cancers like leukemia and who are living longer than ever before with illnesses like cystic fibrosis. We all know these advances are made possible by the research that you all fund.” Coincidentally, when Washington last hosted the conference in 1995, Hillary Rodham Clinton, who was the first lady at the time, was also the guest of honour. The calibre of individuals who decide to lend their support to the circle is testament to the tremendous importance of what members do, and reflects the value we place on contributions from our members in British Columbia. BC Children’s Hospital Foundation is grateful to each and every donor for their generous contributions. Together they help to elevate the care our children and families receive every day at the hospital. To learn more about the Children’s Circle of Care, please visit www.bcchf.ca/ccc or call 604-875-2545. 12 speaking of children summer 2015 Annelie Bloch is 90 years young. The longtime supporter of BC Children’s Hospital approaches life with a positive attitude and a can-do spirit, so it’s hardly a surprise that she approaches her estate planning the same way. When Annelie and her husband Harry sat down with their trust officer, they realized they didn’t have a beneficiary for the bulk of their estate. “Children don’t run in our families,” jokes Annelie. “Both of us would dearly have loved children but we have only distant relatives and some very special friends. We wanted to make sure they got something.” Their trust officer inquired if there was a charity they supported; Annelie immediately thought of BC Children’s Hospital Foundation. The couple decided to make the foundation a beneficiary in their will. “It is so important that children be given the best chance,” Annelie says. “They are our future.” For Annelie and Harry, getting an estate in order – with a will, a power of attorney, a health-care representation agreement and other documents – gave them peace of mind. Each knew that the other would be protected and secure if one of them had a health crisis. Sadly, this worst-case scenario happened. When Harry fell ill, Annelie nursed him tenderly until he passed. It was a terrible blow to Annelie but she remained strong. “I have to be strong,” she says. “What doesn’t kill you makes you stronger.” By leaving her estate to benefit BC’s children, Annelie knows that she is contributing to the well-being of future generations. “I do it with my whole heart,” she exclaims. Annelie is one of the original members of the Caring for the Future Society, a special group formed by BC Children’s Hospital Foundation to honour donors who have left a future gift to the hospital. Annelie Bloch and her Annelie’s infectious energy late husband Harry at the 1997 Caring for the Future and lifelong commitment to Society reception. learning is inspiring. Currently, the nonagenarian enjoys communicating on Facebook and researching her travels. “It keeps my mind sharp,” she says. First lady Michelle Obama with children’s hospital patients Rylie Richards (left) and Paul Baier at the Woodmark Children’s Forum. To learn more about how to include a gift to BC Children’s Hospital in your estate plans, please contact Ellen Schappert at 604-875-2345 Ext. 4774 or toll-free at 1-888-663-3033. You can also email us at [email protected] or visit www.bcchf.ca/legacy. summer 2015 speaking of children 13 what’s on speaking of people 1 BMO EMPLOYEES BOWL AND SING THEIR HEARTS OUT In February BMO Bank of Montreal set out to accomplish big things with its annual fundraising for BC’s kids with Lanes & Lyrics: The ‘80s Edition. The event rallied branches across the province and the Yukon – from White Rock to Whitehorse – to work together and raise funds. As a result of employees’ efforts, 36,000 blue paper hearts were sold in BMO branches and 920 employees from 12 cities showed off their bowling skills in the “Lanes” part of the event, to raise funds. And on April 11, over 500 tickets were sold for the “Lyrics” karaoke night. A total of $225,000 was raised, far surpassing employees’ original goal. BC Children’s Hospital was honoured to be one of two beneficiaries of this event. You rock, BMO! 2 [1] Bowlers from BMO. [2] BMO employees put on a show at the River Rock Show Theatre. 3 MAKING WAVES ON VANCOUVER ISLAND Thank you to the Vancouver Island community for raising $182,199 at the 13th annual Ocean 98.5’s Radiothon for Kids – the highest total in six years! Funds raised go to the Excellence in Child Health Fund to support the most urgent needs of BC Children’s Hospital. The two-day event, broadcast live from Victoria’s Hillside Centre, featured emotional and inspirational interviews with Vancouver Island families who have been supported by BC Children’s. Many thanks to the staff at Ocean 98.5 for their continued support, to Vancouver Island listeners for their generosity, and to Hillside Centre for the venue. [3] BC Children’s Hospital patient Hailey-Ann with her mother Kristina Grant (left) and Ocean 98.5 hosts Michael Forbes and Lisa Marshall. OPEN HOUSE On March 31, major donors to the Campaign for BC Children got a sneak peek at some of the patient rooms and clinical care areas in the Teck Acute Care Centre. Life-sized mockups were constructed to give caregivers the opportunity to test the configuration of the spaces and to provide a last round of feedback before construction of the areas begin. The mockups were outfitted with real medical equipment, light fixtures, patient beds and more to give caregivers an experience as close to real life as possible. The rigour applied to the design process demonstrates the hospital’s ongoing commitment to building the most effective and family-centred facility possible. 14 speaking of children summer 2015 Grind For Kids Grind For Kids is now in its sixth year and leverages the enthusiasm of thousands of people in the Lower Mainland who do the Grouse Grind on a regular basis. People sign up and ask friends, family and co-workers to pledge $1 or more for every Grind they complete by the end of the season (typically in September). This year Grind For Kids has the added support of Canadian Pacific (CP) and its CP Has Heart initiative, which will match every dollar raised. To register and for more information visit www.grindforkids.com. CP Has Heart In addition to Grind For Kids, you can also double the impact of your gift between now and August 23, 2015 – the last day of the Canadian Pacific Women’s Open LPGA tournament at the Vancouver Golf Club – if you donate online. CP will match online donations to BC Children’s Hospital with a contribution of an equal amount. To donate, please visit www.bcchf.ca/cphasheart. Dairy Queen Miracle Treat Day On Thursday, August 13, participating Dairy Queen locations in BC will hold their annual Miracle Treat Day. At least $1 from every Blizzard treat sold will be donated to BC Children’s Hospital. In 2014, Dairy Queen raised over $400,000 for the hospital. initiative benefit BC Children’s Hospital. Register today or learn more at www.miraclechallenge.ca. Tim Hortons Smile Cookies From September 14-20, visit your local Tim Hortons and purchase a Smile Cookie for $1. Proceeds from participating Lower Mainland locations support BC Children’s Hospital. Tim Hortons and its customers have raised over $1.5 million for BC Children’s since 2002. Challenge Yourself A Night of Miracles This fall, put your fitness first with the Miracle Challenge! For 27 days, starting September 1, people who sign up will receive daily challenges and fitness tips from expert coaches. Track your activity and fundraising accomplishments online to win some cool prizes. Funds raised through this Children’s Miracle Network The seventh annual A Night of Miracles gala takes place Saturday, November 7, at the Vancouver Marriott Pinnacle Downtown Hotel. This black-tie event will attract 400 guests in celebration of the South Asian community’s support for child health. Visit www.anightofmiracles.ca for more information. summer 2015 speaking of children 15 healthy habits Fun Sun UVA: UVA rays can damage DNA in skin cells and cause early aging. They are also believed to play a part in the development of some skin cancers. UVB: UVB rays directly damage the DNA of skin cells and are believed to be the direct cause of most skin cancers. UVC: UVC rays often do not pass through the Earth’s atmosphere so they are not believed to cause any skin cancers. The amount of UV radiation you are exposed to depends on the length of exposure, the strength of the rays, and how you choose to protect yourself (with sunscreen, clothing etc.). in the 16 speaking of children summer 2015 Ultraviolet (UV) radiation is an invisible energy that mainly comes from the sun. Though not dangerous in short exposures, UV rays are damaging to the DNA of our skin cells. Skin cancer can develop when this radiation tampers with the DNA of genes that control the growth cycle of skin cells. Skin cancer is not the only danger of 2. What types of UV rays are thought to cause cancer? a) UVA and UVC b) UVC c) UVA and UVB d) UVB and UVC prolonged exposure to UV rays. Other effects include sunburn, premature aging of the skin, increased risk of cataracts and other eye problems, just to name a few. Types of UV radiation There are three types of UV radiation to which we are regularly exposed and that can cause damage. Safety in the sun There are many ways you can defend yourself against the sun’s harmful rays. 1. Slap on some sunscreen. The SPF rating is a measure of the fraction of sunburn-producing UV rays that reach the skin. For example, SPF 15 means that 1/15th of the burning radiation will reach the skin. A sunscreen with 3. A sunscreen with SPF 15 can: a) Make you dance b) Block 93 per cent of damaging UV rays c) Interfere with vitamin D production d) Affect your appetite Answers: 1) d; 2) c; 3) b There are many different kinds of sunscreen with varied levels of SPF, which can make it difficult for the average person to choose the best one. First, it’s important to know approximately how long you intend to stay in the sun. A sunscreen with an SPF of at least 15 is recommended at all times. Most moisturizers and cosmetics offer this level of protection. If you plan on spending an extended amount of time in the sun, a sunscreen with an SPF of 30 to 40 is recommended. If high-intensity sun exposure is your intention, a sunscreen with an SPF of at least 50 is recommended. This SPF manages to block about 98 per cent of damaging UVB rays and offers the highest level of protection. by BOJANA NIKOLIC What is ultraviolet radiation? 1. What is the most prevalent type of cancer in Canada? a) Breast cancer b) Lung cancer c) Skin cancer d) Colon cancer Sunscreen for the soul Learn how to protect yourself and your family before heading outside. When it’s sunny and bright outside there’s nothing better than heading down to the beach or local swimming pool to enjoy the warm weather. However, too much time in the sun can lead to detrimental effects on your and your child’s health, even if the effects may not be immediately apparent. It doesn’t take as long as you may think to get your daily intake of vitamin D from the sun. According to Dr. Julie Prendiville, a pediatric dermatologist at BC Children’s Hospital, when UV radiation levels are high, most people only need a few minutes in the sun for adequate vitamin D production. Test your sun safety knowledge an SPF of at least 15 can block 93 per cent of UV rays and prevent damaging sun burns. It’s important to remember that the SPF does not refer to UVA protection. Dr. Prendiville advises using a broad spectrum sunscreen that protects against both UVA and UVB. 2. Put on a hat and cover up. The best kind of hat to wear is one with a wide brim that protects your ears, nose and forehead. You should also wear clothing that completely blocks out light, and apply sunscreen to any exposed areas. 3. Pop on your favourite shades. Sunglasses can usually block out 93 to 99 per cent of UV rays and effectively protect your eyes from the sun. 4. Limit sun time. The best way to protect yourself from the sun is to decrease the amount of time you spend at peak times of the day. The sun is strongest between 11 am and 4 pm. Pay attention to the daily UV index in your area. Based on a scale of one to 10, UV index guidelines are universal across the globe and inform about the amount of sun protection individuals need on a specific day or time. Did you know? No matter what time of the year it is and whether it is sunny, cloudy, foggy or raining, there are always UV rays in our atmosphere. Wear sunscreen and protect yourself at all times! Skin cancer is more prevalent than ever in Canada. Remember to stay safe while you have fun! summer 2015 speaking of children 17 what’s up, doc? children speak Dear Children’s Hospital . . . Taylin McGill has been a BC Children’s Hospital patient since she was 10 days old. Here, she writes about her medical journey and what she’s done to give back to the hospital that has saved her life numerous times. Dr. Megan Levings BEHIND THE MICROSCOPE HOBBIES I am an immunologist, leading a research lab that studies how one kind of white blood cell (called a regulatory T cells, or Tregs) controls immune responses. I never get tired of looking at Tregs under the microscope. My latest project is growing a Meyer Lemon tree – I am very excited because they actually turned yellow! I used to do all sorts of crafts (sewing, knitting, pottery, photography) but that is on hold while the kids are little. In the winter we also cross-country ski; this year we are working on teaching the kids how to skate ski. TRAINING I obtained a BSc in biology from Simon Fraser University, a PhD in genetics from UBC, and then moved to Milan in Italy for four years to learn how to study the white blood cells that make up our immune system. SECRET FANTASY I would really like to learn how to play the classical guitar. IF I DIDN’T HAVE TO WORK FAMILY/PERSONAL PICTURE I am married to another research scientist who also works at CFRI. Actually it works out well because lunch is one of the only times we get to talk to each other without kids interrupting! My boys are seven and nine years old; they keep us very busy and are keen to donate some blood so they can look at their white blood cells under the microscope. I would garden and cook more and definitely go back to Italy more often! PHILOSOPHY I am always advising my students (and kids!) that it is OK to make mistakes as long as you learn from them. WHAT I’M READING NOW WHAT YOU’D NEVER KNOW ABOUT ME When we lived in Italy we had the chance to hear many amazing early music concerts in churches built at the time the music was written. But I also love ’80s indie music (The Cure, The Smiths etc.) – it’s a strange combination. WHY I BECAME A RESEARCH SCIENTIST I think it was in my genes as my father is also a research scientist and I’ve had a lifelong passion for learning. I’m really happy to be working in the field of immunology because understanding how the immune system works has broad applicability to so many aspects of health. 18 speaking of children summer 2015 Lots of new cookbooks from British chefs who are introducing me to all sorts of exciting new ingredients and dishes from the Middle East. I’m also re-reading the whole Harry Potter series with my kids. Do you have a story about BC Children’s Hospital to tell? Please submit your Miracle Kid stories to [email protected]. miracle weekend MESSAGE FROM THE CHAIR This year’s Miracle Weekend was full of bright, sunny days with smiles and laughter. I believe my smile was one of the biggest when the record-breaking $18.8 million total was revealed. The hard work of all of our volunteers throughout the year, and the support of Global BC and viewers across British Columbia, helped push this number beyond what any of us expected. What makes the $18.8 million even more impressive is that it is made up of donations from thousands of individuals and organizations from across the province. Contributing events include everything from school fundraisers and golf tournaments to Jeans Day™, which had participants from every corner of the province. You’ll see from our recognition list (next page) that Miracle Weekend truly is the culmination of fundraising efforts by hundreds of diverse corporate and community groups, which have diligently raised funds for the hospital all year round. The donations made to Miracle Weekend have an impact on thousands of lives at BC Children’s Hospital. As donors and volunteers, we work hard to support the hospital because every child in BC and the Yukon deserves to have access to the very best in specialized care, and BC Children’s is the only place in the province where they can get that care. The testimonials I heard from children, families and caregivers during the weekend reaffirmed what I already knew: that BC Children’s Hospital is the best place for critically ill and injured children. The gratitude on the families’ faces is our greatest motivation to continue doing what we do – to ensure the hospital remains an invaluable resource for our children and families. Thank you to everyone who made this year a tremendous success. I look forward to leading the Miracle Weekend team again next year. Allen Bordeleau, Save-On-Foods Chair, 2015 Miracle Weekend 20 speaking of children summer 2015 Miracle Weeke nd Events 1 1 30 Years of ChildRun On May 31, a record 6,900 runners, walkers and wheelers from across the Lower Mainland enjoyed a day of exercise, family entertainment, and fresh fruits and veggies while raising money for pediatric oncology research and treatment at BC Children’s Hospital during the 30th annual ChildRun. Thanks to the support of participants, sponsors and volunteers, the event raised $1 million. Over the past three decades, ChildRun participants have raised more than $10 million for childhood cancer programs at BC Children’s. 2 Chinese-Canadian Miracle Weekend The 27th annual Chinese-Canadian Miracle Weekend raised $740,000 for the Excellence in Child Health Fund, supporting the most urgent needs of children at BC Children’s Hospital. A month-long campaign in May focused on educating the Chinese community on the importance of donations and the transformation that takes place in the lives of BC’s children as a result of donors’ generosity. The organizing committee is grateful to the corporate and media sponsors, donors, community groups and volunteers for another successful year. 3 Mining for Miracles In 2015, BC’s mining community raised $1,834,235 through the Teck Celebrity Pie Throw, the Diamond Draw, the Hooked on Miracles Fishing Tournament, Jeans Day™ and Slo-Pitch, and a variety of employee and corporate fundraising campaigns. Since 1988, Mining for Miracles has raised over $25.2 million for BC Children’s Hospital. Funds raised by Mining for Miracles in 2015 and 2016 will support the development of the CAUSES research clinic at BC Children’s Hospital to support the diagnosis of rare genetic diseases in children who would otherwise require numerous tests or who might not be diagnosed at all. 4 Jeans Day™ On April 30, thousands of supporters from across BC and the Yukon wore their jeans in celebration of the 25th anniversary of Jeans Day™. Schools and businesses ordered over 230,000 $5 buttons and over 38,000 $20 lapel pins and, with support from our School and Hockey Card Program Sponsor Odlum Brown Limited, the event raised $1,200,177 for BC’s kids! 5 Retail & Wholesale Division This year, the Retail & Wholesale Division made the largest contribution from a business group in Miracle Weekend’s 28-year history: $6,699,143. This outstanding achievement was made possible by a large number of fundraising activities, including the sale of paper icons, golf tournaments, employee giving and many other events that involved staff, customers, vendors and corporate supporters. Since 1992, this division has raised over $53 million for BC’s kids. 6 25th Annual Slo-Pitch Event Our deepest thanks to all participants who knocked it out of the park at this year’s 25th annual Slo-Pitch Event! More than $274,000 was raised May 22-24. This year, 54 teams from different industries took part; 74 participants accepted the Ledcor Challenge and raised over $500 and an additional 59 participants became Silver Sluggers by raising $250 or more. There was fun for the whole family including the Aldergrove Financial Group KidZone, a daily barbecue, silent auction and more. For photos and updates, visit www.bcchf.ca/slopitch. 7 Banks Division In 2015, the banks of British Columbia raised $2,043,914 for BC Children’s Hospital through their fundraising efforts. Over the past 25 years, the majority of banks in British Columbia have collectively contributed more than $46 million. The banking community’s 2 support comes from corporate contributions and employees and customers who support the banks’ various annual fundraising initiatives, including bake sales, barbecues, spin-athons, and karaoke and pub nights. 8 Development & Real Estate Division The Development & Real Estate Division had another successful year, raising $1,300,040. A large portion of this total is raised by RE/MAX of Western Canada, one of BC Children’s Hospital Foundation’s national partners through Children’s Miracle Network. The industry also organizes the annual Building for Kids Charity Golf Classic event and supports the Building for Kids signage program. Other initiatives such as corporate contributions and employee giving campaigns round out the support received from this generous industry. 3 4 5 6 7 8 summer 2014 speaking of children 21 Thank You, British Columbia! $18,804,361 raised for BC’s kids! MEDIA PARTNERS Thousands of British Columbians made miracles happen for BC’s children on Miracle Weekend. Thank you to our donors, sponsors and volunteers for making the weekend a record-breaking success! MIRACLE MATCH 5 $2,825,051.44 TOP CONTRIBUTING INDUSTRIES Retail & Wholesale $6,699,143.87 Banks$2,043,914.00 Mining$1,834,235.00 Real Estate & Development $1,300,040.00 Credit Unions, Insurance and Financial Services $430,241.69 South Asian Community $295,702.00 FOUNDATION EVENTS Jeans Day $1,200,177.73 ChildRun$1,000,000.00 Chinese-Canadian Miracle Weekend $740,000.00 Slo-Pitch$274,504.00 Building for Kids Charity Golf Classic $213,518.00 Ocean 98.5’s Radiothon for Kids $182,199.00 TM IN-KIND PARTNERS COMMUNITIES FOR KIDS Victoria$180,960.00 Vanderhoof$64,336.00 Upper Fraser Valley $44,700.00 Port Alberni $33,336.00 Central Vancouver Island $25,071.00 Prince George $15,000.00 MIRACLE WEEKEND SUPPORTERS NATIONAL PARTNER Miracle Weekend was made possible by the following individuals who led volunteer committees and fundraising efforts across BC. MIRACLE WEEKEND EXECUTIVE Chair Allen Bordeleau, Save-On-Foods Honorary Physician Dr. Mary Bennett, BC Children’s Hospital HANS GABRIEL RANA, cardiology patient 2014/2015 Champion Child presented by Walmart SPONSOR THE MIRACLE WEEKEND TEAM We are proud to recognize our corporate and community partners who contributed $10,000 or more to Miracle Weekend. $1 MILLION + Costco Wholesale, Employees and Members Save-On-Foods, Overwaitea Foods, PriceSmart Foods, Cooper’s Foods, Urban Fare and Bulkley Valley Wholesale $750,000-$999,999 TD Bank Group - Employees and Customers Walmart Canada & Associates $500,000-$749,999 RE/MAX of Western Canada Teck Resources Limited; Teck Highland Valley Copper Operations; Teck Metals Ltd; Teck Trail Operations; Teck Coal Limited $250,000-$499,999 Auxiliary to BC Children’s Hospital CIBC Clients and Employees Dairy Queen Canada Inc. Departments of Pediatric Anesthesia, Dentistry & Surgery of BCCH Hooked on Miracles - Mining For Miracles Charity Fishing Tournament Kirmac Collision Services Medical Departments of BC Children’s Hospital and Child & Family Research Institute RBC and RBC Employees & Clients $100,000-$249,999 Asa & Kashmir Johal & the Johal Family Balding for Dollars BMO Financial Group Employees Extra Life Event Federated Co-operatives Ltd. Goldcorp Inc. HSBC Bank Canada and Employees Ledcor Group of Companies Ocean 98.5 Safeway & Employees Scotiabank Employees & Customers Sher-e-Punjab Radio Summits of Hope Tim Hortons Wigs for Kids $50,000-$99,999 Bats for a Cause BC Hydro Power Pioneers The Brick Cadillac Fairview Corporation Limited Coast to Coast Against Cancer Foundation Copper Mountain Mining Corporation E. B. Horsman and Son Golden Girls Group Grind for Kids Huckleberry Mines Ltd. & Employees Marriott Hotels Music For Young Children - Kids Helping Kids Prospera Credit Union Spirit of Children Halloween Event sponsored by Spirit Halloween $25,000-$49,999 Aspen Custom Trailers BC Children’s Hospital Liaison Committee BC Safety Authority & Employees BMX Canada ABA Association Child’s Play Charity Endeavour Silver Corp. & Employees Envision Financial, Valley First, Enderby & District Financial and Island Savings, divisions of First West Credit Union ESSO Fresh St. Fruiticana G&F Financial Group Hannah’s Heroes Foundation ICBC IHOP BC International Longshore & Warehouse Union 502 International Longshore & Warehouse Union 514 Mining Suppliers Association of BC Procter & Gamble Inc. Provincial Employees Community Services Fund Silver Wheaton SMS Equipment Inc. Surtek Industries Inc. UBC Recreation Lace Up for Kids $10,000-$24,999 AA Wayne’s Towing - Charity Car Program Adera Foundation Society Afternoon in the Garden Air Canada Foundation Alberni Valley Charity Golf Classic Aldergrove Financial Group AMPCO Manuracturers Inc. Auguston Traditional Elementary School B.C. Road Builders & Heavy Construction Assoc. BC Ferries Refit Facilities BlueShore Financial Borden Ladner Gervais LLP Canadian Pacific Canadian Western Bank Canfor Corporation Clean Energy BC C-Lovers Fish & Chips Crazy Eights Slo Pitch Tourney Crown Packaging & Employees Deepak Binning Foundation Deer Garden Signatures Restaurant Deloitte Dental Corporation of Canada Dr. Knox Middle School Bald Falcon Day Éminence Organic Skin Care FLSmidth Knelson GCT Canada Genworth Canada Golder Associates Ltd. Integris Credit Union Interlock Industries (B.C.) Ltd. & Hatch Ltd. Jameson Development Corporation Jordan Owens Memorial Hockey Tournament Kids Can Help London Drugs Limited Long & McQuade Musical Instruments Mangia E Bevi Ristorante McMillan Mortgage Brokers Association of British Columbia Music Heals Charitable Foundation New Gold Pacific Northwest Children’s Cancer Society - Kiwanis Children’s Cancer Program Raymond James Canada Foundation Robert L. Conconi Foundation Rogers Communications Sears Canada Employee Charitable Fund SFU Dance Marathon Shaw Communications Inc. Southwest Contracting Ltd. Stephen Bros. Contracting Ltd. Strategic Charitable Giving Foundation Swing for a Cause Taiga & LP Building Products Thrifty Foods Truck Loggers Association Vancity Vancouver Police Department Dog Squad Wastech Services Ltd. - Employees Williams Sonoma, Pottery Barn, Pottery Barn Kids & West Elm Youth Helping Youth Society BC MIRACLE WEEKEND FUNDRAISING CABINET Banks Todd Shewfelt, RBC & Todd Laycraft, TD Bank Group BC Children’s Hospital Liaison Committee Debbie Cain & Jennifer Farr, BC Children’s Hospital ChildRun Connie Baechler, RBC Dominion Securities & Sheila Louis, ActiveState Software Chinese-Canadian Miracle Weekend Thomas Lee, RBC & Clara Kan Credit Unions, Insurance & Financial Services Val Mackey, Aldergrove Financial Group & Lesley Bernardin, G&F Financial Group Jeans Day™ Cynthia Curll, BC Hydro Mining for Miracles Jason Weber, Alianza Minerals & Jeff Hanman, Teck Resources Limited Real Estate & Development Roger Steers, Read Jones Christoffersen Retail & Wholesale Shawn Loftus, Save-On-Foods Slo-Pitch Kendall Andersen, Borden Ladner Gervais LLP South Asian Community Suky Cheema, BDO Canada LLP & Akash Sablok, Sablok & Sablok Notaries Public COMMUNITIES FOR KIDS Central Vancouver Island Kathy Berg & Andrea van Rossum Port Alberni Barbara-Anne & Steven Kalugin Prince George Richard Mintz & John Abbott Sooke Shanna Hamilton & Elizabeth Olsen Upper Fraser Valley Pat Johnston Vanderhoof Corleen McNolty & Michelle Roberge Victoria Cherie Caillet & Lisa Baumeler MIRACLE WEEKEND OPERATIONS CABINET Audience Leah Peden Catering Nia Vekris & David Rooney Donations Management Carolyn Davies Guest Services Christina Papadimitriou Logistics Alicia Krywaniuk, Amira Bakovic, James Smith, Meghan Glover Play Area Brina Soni Presentations A.K. Hudani & Rita Ferrera Registration John Chandler Telephones Management Carol Miller & Louise Schmiing /BCChildrens @bcchf@bcchf summer 2015 speaking of children 23 2014/2015 Annual Report Every year at BC Children’s Hospital Foundation we are inspired by the connections among our young patients, their families and our supporters—donors and volunteers alike—whose gifts of time and money lead to constant improvements in care and advances in research. Go online now to read our 2014/15 annual report and see how these connections make a difference. www.bcchf.ca/annual-reports PM 40659514