INSIDE - Vancouver United Ostomy Association
Transcription
INSIDE - Vancouver United Ostomy Association
HIGH Life Vancouver Ostomy Volume 43 - Issue 4 INSIDE Travel Insurance for Ostomates 1 Letters3 and News Insurance Checklist4 “Happy Days” 5 New Patients’ Corner 8 Universal Pharmacare10 Books11 Remaining 2011 MEETING SCHEDULE: Sept. 18 (AGM) CHRISTMAS PARTY & LUNCHEON: SUNDAY NOVEMBER 27 CHEERS RESTAURANT North Vancouver CHAPTER MEETINGS ARE HELD AT: Collingwood Neighbourhood House 5288 Joyce Street Vancouver at 1:30 PM NOTE: In the event of severe weather conditions, please call the Collingwood hotline 604-412-3845 to check if the centre is open. JULY AUGUST 2011 Do Ostomates Need Extra Travel Insurance? (Is an ostomy considered a ‘preexisting’ medical condition?) Y ou don’t necessarily need special medical insurance just because you travel and have an ostomy. But you do need to take a close look at what kind of coverage you have. Many travellers mistakenly assume that their credit card or group medical insurance is adequate; others balk at purchasing additional short-term coverage. All folks who travel, not just those with an ostomy, should have medical insurance that will protect them from a wide variety of calamities. Accidents or health issues are just as likely to happen in a foreign country as they are at home. Even a short, quick trip down to Bellingham could turn out to be financially ruinous if you suffered a heart attack or became the victim of a serious accident. Would your existing medical insurance pay for ambulance services, surgery or medical evacuation? If you were travelling with your spouse or family, how would they get home if you had to be flown back to a Canadian hospital? What if you or your spouse’s condition necessitated a lengthy stay in a foreign hospital? What is the maximum amount covered? How long can you be out of Canada and still be insured? We’ve all heard horror stories of what a few overnight stays in a foreign hospital can cost the underinsured. Is an ostomy considered a ‘pre-existing’ condition? This depends on whether or not your condition is considered stable. For instance, with BCAA Travel Insurance, you are covered if you are 59 years of age or younger, and have been stable for a minimum of 90 days after any ostomy surgery or serious ostomy-related health issue. If you are 60 or older, the stabilization period increases to 180 days prior to departure.* If for some reason it is imperative that you travel sooner after surgery or a serious health issue than either of these waiting periods you would have the option of purchasing additional coverage. These stabilization periods apply to any major health concern, not just ostomies. Take a close look at what you have, and ask your current provider questions if you’re not sure. In the end, it’s better to be over-insured than to have a disasterous medical bill. q * BCAA Travel Insurance Plan, others may vary see comparison charts, page 4 Vancouver Ostomy HighLife -July / August 2011 1 Vancouver Chapter EXECUTIVE & VOLUNTEERS PRESIDENT Debra Rooney 604-683-6774 VICE-PRESIDENT Joy Jones 604-926-9075 SECRETARY Donna Savage 604-937-5954 TREASURER Emilia Prychidko 604-874-1502 NEWSLETTER PRODUCTION & EDITOR Debra Rooney 604-683-6774 email: [email protected] MEMBERSHIP COORDINATOR Joy Jones 604-926-9075 email: [email protected] VISITING COORDINATOR Debra Rooney 604- 683-6774 VISITING COORDINATOR BACKUP Maxine Barclay 604-272-0814 YOUTH CAMP COORDINATOR Sandra Morris 604-921-8715 LIBRARY, VIDEO AND DVDs Norma Primiani 604-327-5895 NOTICE OF MEETINGS/GREETER Norma Primiani 604-327-5895 CHRISTMAS PARTY COORDINATOR Joy Jones 604-926-9075 MEETING REFRESHMENTS Chris Spencer F.O.W. COLLECTION & SHIPPING Earl Lesk 604-327-7661 Published by the Vancouver, BC Chapter of the United Ostomy Association of Canada, Inc. Box 74570, 2768 West Broadway, Vancouver, BC V6K 2G4 Anon-profitvolunteersupportgroupforostomates. Chapter website: www.vcn.bc.ca/ostomyvr/ NATIONAL OFFICE: United Ostomy Association of Canada #501-344 Bloor Street West Toronto, Ontario M5S 3A7 1-888-969-9698 http://www.ostomycanada.ca/ IMPORTANT NOTICE Articles and information printed in this newsletter are not necessarily endorsed by the United Ostomy Association and may not be applicable to everybody. Please consult your own doctor or ET nurse for the medical advice that is best for you. From Your President I received an email the other day from Di Bracken, President of the Toronto chapter. She sent me a link to their new website, which includes an Ontario edition of our Handbook for New Ostomy Patients. Our chapter has been given source credit for this publication. When I first conceived of the project 5 years ago I never dreamed You’re never too old to look silly the booklet would be circulated so widely. (And rather more widely than we really know I might add -- I’ve run across more than one ‘unauthorized’ ostomy-related website that has our handbook linked without formal permission! Hey -- it’s all good.)Thanks again to the chapter members who helped proof and shape the booklet, and all the ET nurses who have made suggestions and offered advice over the years. Do take a look at Toronto’s new website, it’s very well done. Another thing you should take a look at is the insurance checklist here on page 4. Many of us -- and I include myself here -are guilty of not paying enough attention to how well our travel medical insurance protects us when we are out of the country. Rosemary Hill, ET nurse at Lion’s Gate, gave a Purchasing temporary wide-ranging, informative and very entertaining talk at the June 26th meeting insurance just for the duration of a trip can be a wise idea although some people balk at the added cost. Why pay more for things that are unlikely to happen? Well, you pay for fire insurance on your home, don’t you? Do you feel cheated if your home doesn’t burn down? Of course not. Make sure you’re covered, folks. Please note that our chapter doesn’t necessarily promote one travel insurance company over another. The checklists in this issue were kindly supplied by Megan Hill of BCAA, (who gave a very informative talk on the ins and outs of travel medical insurance at the May 5 Education Evening sponsored by Andy Manson and her colleagues at New West Ostomy Care & Supply) There are many other insurance providers and options available; it is in your best interest to shop and compare. The subject of travel insurance is of special interest to me lately because I will be on the road again this summer . . . to CHINA!! The chapter will adjourn for the summer and we hope to see you at the AGM Sunday September 18. Have a happy, safe and healthy summer! Debra 2 Vancouver Ostomy HighLife - July / August 2011 GOOD JOB, QUESNEL! Letters & news VOLUNTARY PRODUCT RECALL Smith & Nephew Inc, is voluntarily recalling the following products because they were made in the same facility as other products that have been subject to voluntary recalls due to potential bacterial contamination. No Contamination has been revealed in testing carried out on S&N products to date; however S&N has decided to voluntarily recall the products identified below out of an ‘abundance of caution’ 1. REMOVE Universal Adhesive RemoverWipes # 403120 Lot Number OL1163 2. SKIN-PREP ProtectiveWipes # 59420425 Lot Numbers OG117, OG225, OJ146, OK78, OM198 Lot Numbers are stamped on the bottom of each foil pack inside the shelf box. Purchases could have been as far back as the beginning of January 2010. If you find any of these products with the above lot numbers in your possession, contact your retailer for further instructions. Reported in the Niagara May 2011 Newsletter” It’s in the Bag” VIA Brantford & District Ostomy News May 2011 q Hi Debra: Quesnel Ostomy Support Group still going strong. Attendance: Apr. 14, May 15, June 16. Ostomates & S.A. S. O.’s. We have recessed now until Sept. 12th. Thanks to the support of Van. High Life info. & Larry Trapp of Evansville Indiana Chapter Newsletter, we are able to keep informed of new articles regardThe College of Registered Nurses of ing Ostomies. British Columbia has announced the recipiA great deal of thanks must go to our ents of the 2011 Nurs- Hospital Administrator Margaret Sading Awards. These lon and her staff. She and three of her registered nurses have top Managerial staff attended our June demonstrated out- meeting, listened to our complaints & standing performance in the CRNBC suggestions, explained the workings Professional Standards, the foundation of the Hospital, and explained how for registered nurse and nurse prac- Ostomates might better assist them. tioner practice in British Columbia. Some Ostomates volunteered to attend Congratulations to Lauren Wolfe, RN, U.N.B.C. Nurse training sessions here ET of Richmond (Vancouver Coastal in Quesnel to answer questions for the Health) who was one of this year’s crop trainees regarding Ostomies. of recipients for Excellence in Nursing Practice! I will send you a copy of our Presentation Overview when the mail strike NOTICE OF CHANGE OF NAME is over Debra. I know the overworked staffs in your area could never attend As of June 25, ET nurse Margaret your meetings, but this cooperation Cowper will be going by her new mar- could be accommodated in smaller ried name, Margaret Chalk!! Congrat- centers. Hope you’re all enjoying a GREAT ulations from us all! Margaret will continue to serve her patients and clients summer break. in the ostomy community from both Group Leader Langely and Peace Arch Hospitals. Morris Turner LOCAL ET NURSE WINS AWARD Introducing TRIO HEALTHCARE PRODUCTS Silicone based skin care products possess inherent • Odour Control clinical benefits: • Ballooning Control • No pain, even when used on • Comfort sore or excoriated skin “It kills every odour going, & Confidence • Dries quickly for application no matter what!” • Reduces Leakage of next appliance or • Less Pouch Noise dressing • Less Emptying • Helps maintain healthy skin For more information or samples contact: 1-888-634-9367 • Harmless - even when or email: [email protected] applied frequently Also available at: OSTOMY CARE AND SUPPLY CENTRE 604-522-4265 Vancouver Ostomy HighLife -July / August 2011 3 4 Vancouver Ostomy HighLife - July / August 2011 Charts courtesy Megan Hill, BCAA Travel Insurance Are you without coverage if you plan to stay longer than expected or does your plan allow you to extend it? Are you covered by your plan if you parasail, scuba dive, bungee jump, etc...while on vacation? Will you be penalized if you don’t call the claims company right after emergency or prior to visiting hospital? Must you pay for your trip in full with your credit card in order to benefit from its coverage? Have you read your “Insurance Certificate” and do you know where it is? Do you know if you are covered for a preexisting condition and is it based on age? 5 6 7 8 9 10 If you said: How did you do? No Unsure No Unsure No Unsure No Unsure No Unsure No Unsure ❑ ❑ ❑ Yes ❑ ❑ ❑ Yes ❑ ❑ ❑ Yes ❑ ❑ ❑ Yes ❑ ❑ ❑ Yes ❑ ❑ ❑ No Unsure ❑ Unsure ❑ ❑ ❑ Yes - 59 years & under: There is a 90-day stabilization period prior to departure - 60 years & over: There is a 180-day stabilization period prior to departure - Optional Coverage is available to cover unstable pre-existing conditions up to a limit of $200,000 Every policy comes with a detailed policy wording booklet Coverage is not dependent on method of payment No penalty or co-insurance for nonnotification (some benefits must be pre-approved) Covered except if injured while scuba diving when not certified. Optional coverages are available to cover participation in professional sports or speed contests Extensions to existing coverage are available You only pay for what you need up to 365 days for those age 0-59 and up to 183 days for those 60+ Family plans are available and provide the same coverage for all immediate family members named on the policy All travelling companions may purchase coverage Accidents are just as likely to happen across the border as they are to happen Why get a quote? ✔ Yes What’s your maximum number of days for any one trip? 4 ✔ Number of days Will the coverage of the family members travelling with you be the same as yours? 3 No Unsure ❑ ❑ ❑ Yes Can you purchase coverage for other people travelling with you? 2 $ 1 Maximum coverage is $5 million Credit Card Coverage BCAA Travel Insurance What is your credit card’s maximum limit of travel insurance coverage? Question ✔ Take a few minutes to fill out these 10 questions to find out. You might be surprised to learn how little your card will cover in times of emergency and how much peace of mind a BCAA Travel Insurance policy can give you. If you said: How did you do? No Unsure No Unsure No Unsure No Unsure No Unsure No Unsure No Unsure No Unsure ❑ ❑ ❑ Yes ❑ ❑ ❑ Yes ❑ ❑ ❑ Yes ❑ ❑ ❑ Yes ❑ ❑ ❑ Yes ❑ ❑ ❑ Yes ❑ ❑ ❑ Yes ❑ ❑ ❑ Yes $ Accidents are just as likely to happen across the border as they are to happen at home. In fact, driving on unknown routes could potentially increase the odds. Even - 59 years & under: There is a 90-day stabilization period prior to departure - 60 years & over: There is a 180-day stabilization period prior to departure - Optional Coverage is available to cover unstable pre-existing conditions up to a limit of $200,000 Every policy comes with a detailed policy wording booklet BCAA Travel Insurance arranges to have a family member with you during hospitalization. Transportation and other incurred costs are also covered at $200 per day No penalty or co-insurance for nonnotification (some benefits must be pre-approved) Covered except if injured while scuba diving when not certified. Optional coverages are available to cover participation in professional sports or speed contests Provincial medical plans often have an extensive process for reimbursement. BCAA Travel Insurance will handle all paperwork, coordinate reimbursement and, when possible, directly pay hospital bills With global 24-hour toll free numbers, assistance is only a phone call away Same coverage for immediate family members if family plan is purchased BCAA offers Trip Cancellation policies which include Trip Interruption coverage Maximum coverage is $5 million Group Plan Coverage BCAA Travel Insurance Take a few minutes to fill out these 10 questions to find out. You might be surprised to learn how little your group plan will cover in times of emergency and how much peace of mind a BCAA Travel Insurance policy can give you. Why get a quote? ✔ Do you know if you are covered for a preexisting condition and is it based on age? Have you read your “Insurance Certificate” and do you know where it is? Does the plan arrange and pay for someone to stay with you if you are hospitalized during a trip? Will you be penalized if you don’t call the claims company right after emergency or prior to visiting hospital? Are you covered by your plan if you parasail, scuba dive, bungee jump, etc...while on vacation? Will the plan coordinate payment with your provincial medical plan or pay the hospital directly? Who will you call in case of an emergency? Will the plan cover family members if they are not travelling with the covered employee? Can the plan provide coverage for trip cancellation or reimbursement if you need to return early due to a family emergency? What is the maximum amount of travel insurance coverage? ✔ 10 9 8 7 6 5 4 3 2 1 Question ✔ Unless you’re self-employed or work part-time, you most likely have a very competitive group plan through your employer. But will this plan work for you in an emergency? How does your group plan stack up? How does your credit card coverage stack up? Almost everyone has a credit card that may or may not include travel insurance coverage. Whether you have a VISA, MasterCard, American Express or some other credit card, travel insurance is no doubt an option, but does it really give you the coverage you need? BCAA Travel Insurance BCAA Travel Insurance Travel Insurance Comparison Charts, cont. from page 1 “Happy Days” by Jennie David, reprinted courtesy Metro Halifax Ostomy News, June 2011 Jennie David is a native of Halifax and a second year student at Boston University. She’s 20 and has had Crohn’s since she was 11. The ileostomy was done last summer and she thanks her lucky stars every day she had it done. Makes life worth living, she says. Jennie is national chair of the youth committee of the (Canadian) Crohn’s and Colitis Foundation. T hey looked at me and smirked slightly, not believing that I wasn’t nervous. I smiled and nodded, attempted a joke, but I could see the doubt in their eyes. Understandable, I suppose, as I was minutes away from being wheeled into an OR and having a five- foot organ clipped out of me forever. But I promise that I wasn’t nervous. Okay, that’s a bit of a lie in some ways. I was nervous to wake up after the Ostomy surgery and be consumed by nausea from the anaesthesia. I was nervous that my family would have a meltdown during the 7 hour wait. But I wasn’t nervous about losing the organ. I know that sounds insane but it’s true. When you’ve had every drug and been labelled a “primary non-responder” (which I swear is GI term for loser), losing the organ that has tried to destroy your life for 7 years doesn’t seem like a huge loss to mourn. I can’t remember falling asleep exactly - whether or not I had been put under in the OR or in the holding area, I just remember waking up and rolling around in agony, moaning, as the nurses put the pain controller button in my hand and coaxed me to press it. A hefty 10 hours after my family had sobbingly left me, they rushed to my side, patting my hand and smiling. And so began my journey into the recovery, the post-surgery battle to get back on my feet. After a week of two steps forward and one back, I was finally released from the hospital, worn but smiling. They wheeled me out with my army of massive balloons and family, and for the first time in a long time I felt the August sun against my face. My Granddad stood by my side and whispered that these were happy days. I smiled at him, not mentioning the scars across my abdomen, the pain, or even the loss of my organ - because he was right, I was going home and I was on my way to health, and that means happy days. My Mom had emailed some of my doctors letting them know about the surgery. Most of the responses contained best wishes, but one also contained something that took me by surprise and slight horror - sympathy. A doctor was passing along her sympathies to me. It shocked me to say the least since there was nothing to be sorry for, only a future to be excited for. I found it almost offensive; anyone who knows what my IBD history has been would offer congratulations in a heartbeat and never sympathies. One of my roomies in the hospital, a witty older woman who served as my pseudo Grandmom for several days, offered the following advice off a magnet on her fridge: ‘With enough caffeine, anything is possible.’ While I’m sure that is true, I think that also with enough determination (and perhaps medicinal drugs), anything is possible. There isn’t a scorecard in life, no referee to blow the whistle when you fall down. But that’s okay, because what matters isn’t as much what happens to you as it is how you understand and interpret what happens to you. I lost almost my height in an organ, I will never go to the bathroom “normally” again - that could make anyone terribly upset. But - I’m giving myself a future by letting go of my colon, I’m freeing myself of the pain and that makes this experience a positive one. So, you see, my Granddad is perfectly right - these are “happy days.” Life is unfair, but that doesn’t mean that it can’t be wonderful. Crohns has changed my life - the physical changes are obvious, but it has empowered me to achieve my dreams, given me the strength to believe in myself, and I’ve been honoured to meet incredible people who deserve a cure. Step by step, penny by penny, we are part of the cure. And then one day, we will be saying “Happy Days”. cont. next page Vancouver Ostomy HighLife -July / August 2011 5 “Happy Days” cont. Closing words of Jennie’s speech at the Crohn’s Walk . . . “The best advice I received before having my permanent ileostomy surgery last year was to not look until I was ready. And although it was a good and decent suggestion, I couldn’t resist the temptation of pulling up my oversized Johnny to reveal the little bag that had saved my life. The bag was rubbery and medicinal, and beneath it was the meaty red intestine sticking out. My first thought was what did I do? How was I ever going to manage to accept my permanent internal tailoring and be happy about it? The answer: moment by moment, step by step. On my last day in the hospital, I decided to empty my bag in the toilet ‘like a big girl’ as the nurses had been emptying it bedside. As I attempted to model what I imagined it would be like, I opened the lip of the bag before pointing it towards the toilet. Needless to say, before I knew it, I had drowned myself and the bathroom with output and as I sat there laughing, I knew I was going to be okay. And that is why it’s so exciting to be here today. We can accept that we have inflammatory bowel disease, we can accept that our bodies function partially as its own enemies, but we cannot – and will not – accept that nothing can be done about it. Today we are taking the metaphorical steps to bring an end to the pain, we are raising our voices and raising awareness. We have to accept our disease before we can fight for our future. This is my pledge and this is my mission: I accept my disease, I accept my ostomy, I accept my responsibility to be a part of the cure, and I refuse to accept the limitations people think there are – because the truth is, there aren’t any. “ q MARK YOUR CALENDARS! Another Ostomy Education Day will be held this fall, on October 29. The theme of this one will be “Intimacy and Ostomies” with guest speaker none other than author, comedienne and inspirational speaker Brenda Elsagher. Many of Brenda’s articles have been reprinted in this newsletter over the years and she is one funny, wise lady. Brenda and her husband will be joined by local suppliers and product reps and by Andy Manson and her colleagues from New Westminster Ostomy Care & Supply. Details to follow in the next newsletter! Tips & Tricks Can’t get the wafer off because your stoma has swollen? Don’t panic. Get some ice cubes, put them in a washcloth and then put that inside a plastic bag. Hold all this over top your pouch -- the chill will cause the stoma to shrink and allow you to remove the wafer. (Don’t hold bare ice against a bare stoma, however -- you just want to shrink it, not freeze it!) OSTOMY CARE & SUPPLY CENTRE Wishes to invite you to our Fall Education Day! Come for the whole day or just drop in to see what’s new. When: Saturday November 7, 2009 9:00 am - 3:30 PM Is pleased to offer Physiotherapist Services for Abdominal Topic: - Flanges and Skin Care Strengthening and Hernia Prevention. Where: Hilton Hotel Metrotown, 6083 McKay Ave., Burnaby, B.C. 9:00 - 10:00 Exhibits displays from ostomy manufacturers, welcome 10:00 - 11:00 Cancer Crooner – Bret Martin-a man’s story and songs of cancer, ileostomy surgery, treatment and reconnection surgery. See www.cancercrooner.com. We are pleased to welcome Physiotherapist Martha Nils, BSc (P.T.), FCAMT. Martha spoke at our Hernia Education Day. She will offer a private one on one session to teach you how to safely strengthen your abdominal muscles to help prevent peristomal hernias. 11:00 – 12:00 Flange technology and Skin Care Convatec research scientist explains: “Everything you want to know about flanges but were afraid to ask?” Complementary Lunch and Exhibits 12:00 – 1:30 1:30 – 2:30 Andy Manson, ET and Rob Hill talk about their IBD Adventure hike up Mount Kilimanjaro 2:30 – 3:30 Tips and Tricks and Open Discussion Free admission To register call Seating is limited 604-522-4265 or 1-888-290-6313 Or www.ostomycareandsupply.com The cost per session is $120 and may be covered by your extended health care plan. Register on line Products on display from such manufacturers as Coloplast, Convatec, and Hollister, etc. See You There! Your Ostomy ET nurses; Andy, Muriel and Lisa To book a private one on one session with Martha, call 604-522-4265. 6 Vancouver Ostomy HighLife - July / August 2011 this like s!! k o lo ice may her serv u o Y using after OSTOMY CARE SPECIALISTS FOR OVER 40 YEARS CONTACT US: Unit 125 - 408 East Kent Ave. S. Vancouver, BC V5X 2X7 Call: 604.879.9101 Fax: 604.879.3342 Toll Free: 1.800.663.5111 NURSING SERVICES: [email protected] www.mycarecentre.ca Lauren Wolfe, RN, E.T. and Heather McMurtry, RN, E.T. ...our in-house Enterostomal Nurses. Available by appointment only. Call us to book now! COMPETITIVE PRICING ONE OF THE LARGEST OSTOMY SUPPLY INVENTORIES IN WESTERN CANADA KNOWLEDGEABLE, COMPASSIONATE CUSTOMER SERVICE STAFF DEDICATED TO OUR CLIENT’S NEEDS FREE DELIVERY ANYWHERE IN BC! Ostomy Care Centre - Keir Surgical Vancouver Ostomy HighLife -July / August 2011 7 NEW PATIENTS’ CORNER · Be sure to carefully read the instruction sheet included in the box or guidelines on the container for specific recommendations for a given product. Generally speaking, all ostomy supplies should be stored in a cool, dry location. Too much heat can melt or weaken many of the materials used in ostomy wafers, pouches, and accessory items. Avoid leaving supplies in a hot car or in direct sunlight. Review instructions periodically to refresh your memory and to see if any recommendations have changed over time. Keep supplies such as wafers and pouches in their original box. By doing so, you save the brand name, product identification number, and the lot and date information for those items. Perhaps you will never need this informaDO SOME RESEARCH tion, but in the event you do, the box you have saved will We often hear of patients who continue to use the exact provide the information you (or someone helping you) same pouches and wafer models they were wearing when will need for reorder or to report any quality control probthey were discharged from hospital. This is not necessarily lems. a bad thing -- if something works for you and you like it there’s no reason to change -- but sometimes folks don’t Some ostomy supplies do have a “shelf life”. Be sure to realize they have other choices if they dislike their original check for dates that may be recorded on their containers. type of appliance. It’s worth your time to learn about the If you find you have a box with an expired date, check with different companies that supply ostomy products. Most the manufacturer, your local supplier, or an ostomy nurse of us will have our ostomies for the rest of our lives, for advice on usage. therefore we owe it to ourselves to find the best possible While you do want to keep a “stock” of supplies so you combination of comfort, security and aesthetics. are always prepared to change your system, avoid the One of best ways to learn about your options is to ask practice of stockpiling too much so your reserve will be your ET nurse! Ask him or her if another model or brand as fresh as possible. This, of course depends on factors might work as well or better for you. You can also call such as the availability to a local supply house, or shipup the major companies and ask for free samples to ping issues. ‘test-drive’ different things before buying. Ostomy supply Purchase supplies from a trusted vendor – one you know companies want your business and they want you to try will provide good service as well as stock/ship current their brands! -- make use of their toll-free lines. If you stock. have a computer, make use of the internet. A single general search of ‘ostomy supplies’ will turn up pages and pages of information. A word of caution about trying Reporting defective supplies new products without input from your ET however -- if Don’t worry, it’s very rare for pouches or wafers to be you have a hard to fit stoma (irregularily shaped and/or defective. But if you determine that your supplies are recessed, uneven peristomal skin) pay extra attention to defective in spite of proper use and storage, contact how you apply the new gear as it may not perform the the manufacturer at their toll free number to report the same as what you are used to. q problem and receive product replacement or adjustment. Let your supply source know of your report to the manufacturer. They need to be aware of problems; howPROPER CARE & STORAGE OF OSTOMY ever, the complaint needs to be directed to the manufacSUPPLIES turer to ensure the defect can be addressed. * Ostomy supplies are not inexpensive, to say the least. So, From an article by Teresa Murphy-Stowers, Fort worth TX; via Dallas it is important to understand how to apply them properly (TX) Ostomatic News; April 2011; The ”O”, Ostomy Toronto June 2011; with the fewest errors possible and equally important to know how to take care of and store supplies until use. * you DON’T need to send used defective ostomy equipProper care may avert the need to discard unused sup- ment through the mail to prove your point . . . they’ll take plies and thus be as economical as possible. your word for it folks, honest 8 Vancouver Ostomy HighLife - July / August 2011 Ostomy Care & Supply Centre Lancaster SALES & RENTALS We carry all Ostomy Appliance Brands • Wheel Chairs • Walkers • Bath Safety aids • Incontinent Supplies • Support Stockings • Diabetic Supplies Medical Supplies & Prescriptions Ltd. Our commitment is to provide the best care and service possible • Free Consultations & Appliance Fitting • All brands of Ostomy Supplies & Accessories Andrea (Andy) Manson • Custom Ostomy Hernia Belts and Muriel Larsen RN, ET (Ostomy) Nurse Specialists Ostomy Care & Supply Centre 2004 - 8th Avenue New Westminster, BC V3M 2T5 873-8585 604-522-4265 1-888-290-6313 526-3331 Located in the West End Medicine Centre Pharmacy Free parking at the rear of the building and easy access from Skytrain. 601 West Broadway, Vancouver 7487 Edmonds, Burnaby 582-9181 www.ostomycareandsupply.com DELIVERY AVAILABLE 13710-94A Avenue, Surrey HANDBOOK FOR NEW OSTOMY PATIENTS: 3,000 UNITS AND COUNTING! If you have had ostomy surgery recently and have not seen or been given a copy of A Handbook for New Ostomy Patients, ask your ET nurse for one. This publication is free upon request, or available for free download on the internet. Just go to our website (www.ostomyvr.vcn.ca) and click on the link. A Handbook for New Ostomy Patients was first published in 2006 by the Vancouver UOA chapter. At that time, in the course of coordinating the Visitor Program, chapter member Debra Rooney saw that although there were a number of helpful publications regarding supplies and application of products, there was little that addressed new patients’ concerns from the point of view of ostomates themselves. She set about writing and compiling a handbook that addressed issues common to new patients; the result was proofed, revised and tweaked by chapter members, then proofed, revised and tweaked some more by local ET nurses who kindly gave their time and attention to the project. The initial press run of 600 units was distributed to local hospitals through their ET departments. Response from both nurses and patients was very favourable and a second run of 1,000 units was produced in the following year. For the first 3 printings, the handbook was funded by donations from chapter members; the fourth printing done in 2010 was kindly funded by Elaine Antifaev of ET Resources in Whiterock. To FREE delivery in the Lower Mainland FREE shipping throughout BC date, over 3,000 hard copy units have been put into circulation. Over the the last 5 years, the handbook has evolved in response to suggestions and advice, with the fourth edition featuring a new section on pelvic pouch surgery written by Shabita Teja, one of the chapter’s A Handbook younger members. Handbooks are for sent not only to hospitals but also New Ostomy to UOA chapters in BC upon rePatients quest. In 2007 the handbook was picked up by two American ostomy websites; the following year permission was granted for the University of Boston to use it as a reference tool for their enterostomal teaching units; in 2009, in collaboration with Roger Ivol of the Hamilton Chapter, an Ontario edition was published. Most recently, UOAC Toronto has added the handbook to their retooled website. The Vancouver chapter is pleased to be able to offer these handbooks free of charge to a wide variety of medical institutions, agencies, caregivers and, of course, directly to patients themselves upon request. q Vancouver Ostomy HighLife -July / August 2011 9 Universal Pharmacare could save $10.7 billion A National Public Pharmacare plan could provide everyone in Canada with prescription drug coverage. It could also save us $10.7 billion a year through bulk purchasing and similar economies of scale. A new report — the economin case for universal Pharmacare — explains how it could be done. The full study is available at www.PharmacareNow.ca. “The way we pay for prescription drugs is broken,” say Joel Lexchin, MC, professor, School of Health Policy and Management, York University. “Politicians hide behind the excuse that universal public coverage is too expensive. This study exposes that excuse as a fallacy. We can save money and cover everyone in the country. Medicare works and Pharmacare is no different,” says Dr. Lexchin. The study has also been endorsed by Dr. Robert Evans, O.C., Ph.D (Economics, Harvard), whose internationally respected work includes ground-breaking comparative studies of different health care systems and funding strategies. “Canada has an America-style system of paying for drugs, and it yields American results — inequity, waste and high costs. “Marc-Andre Gagnon (author of the report) provides a comprehensive analysis of the major benefits to Canadians from a true Pharmacare system of universal public coverage,” says Dr. Evans. “To date however, private insurers, Big Pharma, anti-tax ideologues and apathetic governments have kept this beyond our reach.” The report finds that a national Pharmacare plan would enable all Canadians to enjoy equitable access to needed medicines, and also help to control the growing cost of prescription drugs. The only thing that’s lacking is the political will to act. Ask your candidate if he or she will support universal Pharmacare for Canadians q -Source: COSCO (Council of Senior Citizens’ Organizations of B.C.) April 2011 10 Vancouver Ostomy HighLife - July / August 2011 Travel Tips Photocopy a page from an ostomy supply catalogue that has pictures of your appliances and some explanation of how they are used. One traveller reported a very positive result from carrying such photocopies. When an airport searcher asked about the items found during a hand search, he was able to explain their function without a long conversation that would hold up others in line. BOOK S Secure Start Book Club It’s In the Bag and Under the Covers: Stories of Dating, Intimacy, Sex, & Caregiving By Brenda Elsagher Will my husband and I be able to make love again? When is the right time to tell someone I’m dating about my ostomy? Will my pouch be a turnoff? Questions like these come up at conferences, in Internet open forums, and when speaking to WOC Nurses and Hollister Secure Start Coordinators. After years of volunteering in a visitor program for people new to ostomies, Brenda Elsagher has heard them all. Now she uses her wit and wisdom to pull the covers off of this delicate subject, and share the stories of real people. “I was not going for humor in this book as much as an honest telling of how people handle dating, intimacy, sex, and caregiving with their ostomies,” Brenda writes in her preface. “I wanted the inside scoop so that we can understand the tension we may face, or the relief we may find, in knowing that we are not alone.” If you have read Brenda’s other books, you know she is a master of mixing laughter and tears. This book is no exception. Stories from women include feeling attractive again, and finding the right apparel to add to the romance. For some men, the “mechanics” don’t always work quite the same after ostomy surgery, and it can be CHAPTER MEMBERS MAKE THIRD PRESENTATION AT DOUGLAS COLLEGE Earl Lesk and Debra Rooney (back of table) with some members of the afternoon class of second year nursing students at Douglas College on May 10, 2011 disconcerting. There are a few stories in this book that address that. What stands out after reading the stories in It’s In the Bag and Under the Covers is that everyone reacts to a partner with an ostomy differently. Brenda concludes that more often than not, people that are in committed, healthy relationships experience no difference except for more compassion for one another, including gratitude for the caregivers. This book is a must read for anyone searching for answers about intimate relationships, from people who have been there. Perhaps you just had ostomy surgery and are wondering how to tell your partner about your ostomy. Maybe after reading a few stories you will realize that it takes some time to adjust to your new situation, and that’s okay too. This book may just be the launching pad for the story of the rest of your life. It’s In the Bag and Under the Covers is available at Amazon.com and from Brenda’s website. Check Brenda’s website www.livingandlaughing.com, for updates. VANCOUVER, B.C. CHAPTER OF UNITED OSTOMY ASSOCIATION OF CANADA INC. NOTICE OF ANNUAL GENERAL MEETING OF MEMBERS TAKE NOTICE that the annual general meeting of the members of the VANCOUVER, B.C. CHAPTER OF UNITED OSTOMY ASSOCIATION OF CANADA INC. will be held at 1:30 p.m. on the 18th day of September, 2011 at Collingwood Neighbourhood House, 5288 Joyce Street, Vancouver, BC for the following purposes: 1. to receive the report of the Directors of the Association; 2. to receive the financial statements of the Association; 3. to waive the appointment of auditors for the Association for the ensuing year; 4. to elect directors and officers to hold office until the next annual general meeting for the Association; 5. to transact such other business as may properly come before the Meeting. Vancouver Ostomy HighLife -July / August 2011 11 FEEL SOOTHING MINT WORK ITS MAGIC Source “You Docs” Health Tips from Mehmet Oz, M.D., and Michael Roizen, M.D. The Province, May 27, 2011 W e love it when science solves the mystery of a time-honoured home remedy, because we think there is at least a bit of truth in many home ‘brews’. It’s happened again, and to one of our favourite digestion-soothers: peppermint. It turn out that this ancient herbal tummy-tamer does its thing by switching off pain-sensing nerve fibres in your digestive system. Who knew? That helps explain why pouring yourself a steaming mug of peppermint tea or just sniffing it for an upset stomach -- or popping an enteric-coated peppermint oil capsule to ease irritable bowel syndrome -- really works. GET OUT YOUR PENCILS! Ostomy Word Search - Ottawa Ostomy News, March 2011 12 Vancouver Ostomy HighLife - July / August 2011 We’ve known for a while that mint relaxes smooth muscles in your GI tract, which can tone down IBS cramps. That’s super-useful if you’re among the one in five people with this uncomfortable problem. Now we know it can mute hyper-sensitive nerves, which can trigger internal distress after a spicy meal, too much coffee, a glass of wine or during a bout of flu. Peppermint tea or even peppermint aroma may be all it takes to soothe a queasy stomach or settle one that’s gassy and bloated. But it may take a stronger dose to ease IBS. That’s where peppermint oil capsules come in. To give them a try, stick with 0.2 to 0.4 ml of oil three time daily and use only enteric-coated versions to avoid heartburn. Otherwise, the muscle-relaxing oil could relax a valve at the top of your stomach, allowing acid to backwash into your esophagus. That hurts. q Tip if you’re heartburn-prone: Skip mint chewing gum for the same reason. Macdonald’s Prescriptions #3 Kitsilano 2188 West Broadway, Vancouver – 604.738.0733 PRESCRIPTION EXCELLENCE- OSTOMY CLINIC IN STORE Central Vancouver Island’s ONLY store based Ostomy Clinic with Colette MacAskill, RN, ET (Ostomy Specialist) on staff. Long term accessibility, education and support from ET, Ostomy Specialist Free consultations and Appliance Fittings in private clinic Expert product information and Sampling Program Large Ostomy Inventory and Special Orders BC Pharmacare receipt Competitive pricing Custom Ostomy Hernia Belts FREE DELIVERY of ostomy products island-wide Store Open 7 days a week. PHARMASAVE WESTHILL CENTER NANAIMO 1816 Bowen Rd. (next to Tim Hortons) Phone: 250-740-3880 DID YOU KNOW . . .? If you are right handed, you will tend to chew your food on the right side of your mouth. If you are left handed, you will tend to chew your food on the left side of your mouth. Albert Einstein was offered the presidency of Israel in 1952, but he declined. “We’re small enough to know you, large enough to serve you” Neal Dunwoody, RN, BScN, WOCN is our Wound and Enterostomal Specialist providing expert support and all supplies through our Pharmacy clinic on Saturdays We take great pride in our specialty services and supplies Skin Care Products Custom Compounding Customized Compression Hosiery Natural and Botanical Supplements Mobility Equipment Incontinence Supplies Specialty health supplies Cardiovascular Assessments Cardiovascular Risk Assessments 24 Hour Ambulatory Blood Pressure Monitoring Lung Assessments and Smoking Cessation Registered Nurse Consultations United Ostomy Association of Canada NATIONAL CONFERENCE Toronto, Ontario August 15 - 18, 2012 “Caring in a Changing World” Astronauts can’t belch - there is no gravity to separate liquid from gas in their stomachs. In ancient times strangers shook hands to show that they were unarmed In 2011, July has 5 Fridays, 5 Saturdays, and 5 Sundays. This apparently happens once every 823 years! Vancouver Ostomy HighLife -July / August 2011 13 Davies PRESCRIPTION PHARMACY LTD. VISITOR REPORT Referrals for this reporting period came from Richmond General, Royal Columbian, Lion’s Gate and St. Paul’s hospitals, as well as from independent inquiries. Colostomy 3 Ileostomy 3 Urostomy 1 Other1 TOTAL 8 Many thanks to my excellent crew this round: Trevor Mendham, Alison Mindlin, Sandra Morris, Gordon Blad and Andrea Kardos Davies Pharmacy has been serving the North Shore with quality medical supplies and pharmaceuticals for 30 years. Our expert staff of pharmacists, nurses, and technicians can provide you with a full range of products for a healthy life style. 1401 St. Georges (opposite Lions Gate hospital) 604-985-8771 14 Vancouver Ostomy HighLife - July / August 2011 A warm welcome is extended to new chapter members Betty McEwan, Bjorn Nitting and Judy Huber Thank you to the following folks for their kind donation to the chapter: Patricia Fingarson, Bjorn Nitting and Thomas Adams E ª T ª RESOURCES ª LTD The Choice of Experience TM Ostomy Clinic and Supply Centre SERVICES ª Clinic visits by appointment with specialized E.T. Nursing Care. ª Hours of operation for clinic visits are Tuesday, Wednesday and Thursday, 11 am to 5 pm. ª Pre-operative teaching and stoma site marking ª Post-operative instruction and supplies for caring for your ostomy ª Assessments and fittings for pouching systems ª Information and care for various ostomies ª Skin care Phone:604-536-4061 toll-free:1-877-ET NURSE fax: 604-536-4018 (1-877-386-8773) email:[email protected] SUPPLIES ª ª ª ª All brands of ostomy supplies and products Expert product information Fittings for support belts Pharmanet billing Elaine Antifaev, RN, ET, CWOCN E ª T ª RESOURCES ª LTD 1 - 1381 George Street, White Rock, BC V4B 4A1 (corner of Thrift and George) STOMA CLINICS IN VANCOUVER / MAINLAND AREA Pre-surgical counselling and post-operative follow-up. Ostomy Care and Supply Centre VANCOUVER Vancouver General Hospital Deb Cutting, RN, ET Laura Jean DeVries, RN, ET 855 West 12th Avenue Tel (604) 875-5788 St. Paul’s Hospital 1081 Burrard Street Neal Dunwoody, R.N., WOCN Christina Kerekes, R.N., IIWCC, WON Tel (604) 682-2344 Local 62917 Children’s Hospital 4480 Oak Street Amie Nowak, BSN, RN, ET Macdonald’s Prescriptions Tel (604) 875-2345 Local 7658 Neal Dunwoody, RN, ET (Saturdays 9 - 4, call for appointment) 3199 West Broadway (Kitsilano) Tel: 604-738-0733 KEIR SURGICAL & OSTOMY SUPPLIES Tel 604-879-9101 Lauren Wolfe, RN, ET and Heather McMurty, RN, ET -- both by appointment only, call Keir NORTH VANCOUVER Lion’s Gate Hospital Annemarie Somerville, RN, ET (on mat leave) Rosemary Hill, RN., ET 231 East 15th Ave., N. Vancouver NEW WESTMINSTER Royal Columbian Hospital Heather McMurty, RN, ET Susan Andrews, RN, / Laurie Cox, RN, ET Lucy Innes, RN, ET WHITE ROCK/RICHMOND Elaine Antifaev, RN, ET, CWOCN Tel (604) 984-5871 Tel (604) 520-4292 Andrea (Andy) Manson, RN. ET. Muriel Larsen, RN. ET. (Saturdays 9 - 1) Lisa Hegler, RN, ET Christina Kerekes (1 day per week) SURREY Tel (604) 536-4061 Surrey Memorial Hospital Elke Bauer, RN. ET Tel (604) 588-3328 LANGLEY Katie Jensen, RN. BSN. ET Margaret Chalk, RN, ET Ostomy Outpatient Clinic ABBOTSFORD Maureen Clarke, RN. BSN. ET Paula Yakashiro, RN, BSN. ET (Sharon Fabbi retired July 1) Langley Memorial Hospital Tel (604) 534-4121 Local 7422 Abbotsford Regional Hospital Tel (604) 851-4700 Extension 642213 (Clarke) 646154 (Yakashiro) CHILLIWACK Chilliwack General Hospital WHITE ROCK Peace Arch Hospital Jacqueline Bourdages, RN Wound Care and Ostomy Resource Nurse Margaret Chalk, RN, ET RICHMOND E. T. Resources, Ltd. Tel (604) 522-4265 Lauren Wolfe, RN, ET Tel 604-795-4141 Local 614447 Tel (604) 531-5512 Local 757687 Richmond General Hospital Tel 604-244-5235 THANK YOU to the ET nurses who let me know of staffing changes at their worksite! Keep those updates comin’! Vancouver Ostomy HighLife -July / August 2011 15 MEMBERSHIP APPLICATION Vancouver Chapter United Ostomy Association Membership in the UOA of Canada is open to all persons interested in ostomy rehabilitation and welfare. The following information is kept strictly confidential. Please enroll me as a new renewal member of the Vancouver Chapter of the UOA. I am enclosing my annual membership dues of $30.00, which I understand is effective from the date application is received. I wish to make an additional contribution of $ , to support the pro- grams and activities of the United Ostomy Association of Canada. Vancouver Chapter members receive the Vancouver Ostomy Highlife newsletter, become members of the UOA Canada, Inc. and receive the Ostomy Canada magazine. Name Phone Address City Postal Code Year of Birth email (if applicable): Type of surgery: Colostomy Urostomy Ileostomy Internal Pouch All additional contributions are tax deductible. please make cheque payable to the UOA Vancouver Chapter and mail to: Membership Coordinator, 3908 Sharon Place, West Vancouver, BC V7V 4T6 16 Vancouver Ostomy HighLife - July / August 2011
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