2014 Highlights - Starlight Children`s Foundation
Transcription
2014 Highlights - Starlight Children`s Foundation
PROGRAMS: 2014 Highlights PROGRAMS 2014 HIGHLIGHTS Livewire.org.au PRESENTED TO THE UN Livewire.org.au was selected as a best practice case study of ‘digital champions’ and organisations supporting children under the age of 18. The case study was presented to the United Nations Committee for the Rights of the Child in Geneva as part of the review being undertaken of the Convention in light of the digital age. The research was undertaken by the Young and Well Cooperative Research Centre along with the Digitally Connected Network (Harvard) and UNICEF. CASTAWAYS SCULPTURE AWARDS First Place to Princess Margaret Hospital patients! In May Livewire entered the Castaways Sculpture Awards, displayed on Rockingham foreshore in Perth. Workshops were held with adolescent patients at the Princess Margaret Hospital to brainstorm and develop a sculpture concept and design. They came up with ‘Channel Surfing: Teenage patients escape the clinical environment through using their imagination to transform piles of abandoned analogue TVs into a giant wave of sea creatures’. Livewire.org.au member: “I FEEL LIKE I BELONG” “I feel different as a person. I feel like I belong, I feel accepted like I never did before the ‘Livewire Days’, and there are reasons as to why I login to Livewire everyday. I feel like there is somewhere I can go to when in need, I feel it’s an incredible and nothing but a supportive place to go for support when others would not listen to your thoughts and feelings… They’d probably think they were out of place or just plain stupid. But Livewire is a place that is the opposite and no one would ever dream or think that of you. Because of Livewire, I feel better as a person, I feel loved, supported, close friendships, I feel like there’s somewhere I belong, I feel like there’s somewhere and always somewhere to go to when I need. It’s a beautiful community of a growing family that I feel truly accepted in.” The sculpture earned them a first place prize in the ‘sculpture by community and educational art groups’ category. starlight.org.au PROGRAMS 2014 HIGHLIGHTS LIVEWIRE EXHIBITION Livewire were invited to be part of the 2014 Spring Art Exhibitions at Sydney Children’s Hospital, Randwick. This was the first year Livewire were part of this exhibition, where pieces were displayed together with professional artists who were also contributing their art to the event. RCH GRADUATION 2014 In 2014 a new initiative developed by Livewire saw the Royal Children’s Hospital’s first Graduation Ceremony. It was a great success with 150 people in attendance including hospital executives, families and health professionals. The ceremony had us joining with the Transition team and the Chronic Illness Peer support team (ChIPS) to pull together an event that would involve all key departments of the hospital. The night included a heartfelt speech made by Professor Susan Sawyer, Director of the Centre of Adolescent Health at RCH, a message from RCH CEO, Professor Christine Kilpatrick and a young person shared her story in a very inspiring and motivating speech. The night then concluded with an uplifting farewell message from Starlight’s very own CEO, Louise Baxter. The Livewire exhibition titled ‘WirED’, was made up of a compilation of artwork created during digital photography workshops facilitated by the Livewire team. After noticing the growing interest in digital photography, the Livewire facilitators decided to start creating digital imagery with the adolescent patients. It became a highly collaborative process among patients as they each contributed their ideas and creativity to a digital image in different ways. Many of the photos in the WirED exhibit were jointly created by five or more patients and after a few months many amazing images came into fruition. It was an exciting exercise and enabled everyone to be engaged in the artistic journey. The highlight of the night was seeing the young people receive their certificates – it was a real celebration and a perfect way for young people, families and clinicians to say thank you to all the people who were such a big part of their lives. STARLIGHT were granted starlight.org.au PROGRAMS 2014 HIGHLIGHTS From Captain Starlight... “5.4.3.2 ONE! BLAST OFF! Meet Julius... This little soldier has been in hospital for many weeks and has a fair journey ahead of him. He does regularly escape from the dreary ward to the Starlight Express Room where he is the ultimate Mario Kart champion. SHANE & MILO Shane is an amazing volunteer at the Randwick Starlight Express Room (SER), he is a real favourite with the kids because of his incredible balloon skills. This year he has taken it one step further by having a very special puppet made for the kids at Randwick. Milo the monkey travels all the way from Planet Starlight three days a week with the Captain Starlights to visit the kids in the SER and on the wards. Milo loves to do ward rounds, hang out in the SER doing arts and crafts, playing video games and just hanging out watching a movie with the kids. The Starlight Express Room is a great adventure for this brave explorer. However he longs to go further, to go outside, to go to the park, but his legs weren’t ready to take him there. Although this little solider is brave, he had a fear of wheelchairs – his only way of getting to the park. I am sure you noticed the use of ‘had’. He HAD a fear.... until one day Captain Starlight received a call from Julius’s nurse to convert his wheelchair into a rocket! So that is what Captain Starlight did. Julius’s mum commented that he loves his ‘rocket’ and sometimes can’t even get him out of it. What a transformation! Over and out! Captain Starlight Shane worked on a video with the Captain Starlights and the kids to introduce Milo to everyone via Starlight TV and now Milo is a huge success and the kids love him. starlight.org.au PROGRAMS 2014 HIGHLIGHTS CELEBRITY SER Visits A visit from a celebrity to the SER has a significant impact on the children. It provides important bragging rights and creates a shared experience for families to connect over. It also provides a boost to the hospital community and there is always a great buzz in the air when someone special is visiting. OLD MACDONALD HAD A Hippo Named Crystal Greetings Starlight fans! My fellow Captain Starlight and I recently blasted down to Geelong Hospital in our Starlight rocket ship (we have a primo parking spot on the roof so we don’t have to worry about my terrible parallel parking skills) for our weekly Tuesday visit. The staff were pumped and excited for our regular weekly visit, like always. As we skipped through the front door of the paediatric ward the staff started firing kids’ names at us – the ones most eager to see us first on our jam-packed ward round. After spending time with heaps of kids dancing, face painting, Uno-ing, hangman-ing, ballooning, giggling and so many other activities we met Sophia. This shy five year old was barely visible propped up on her bed underneath her thousands of stuffed toys. We could barely hear her talk as she introduced us to all her animal friends surrounding her: Henry the dragon who was very smart, Sabrina the mouse who was very kind, Gill the sheep who was very brave, and so on. Sophia then assigned Captain Starlight with a toy each to keep us company during our time in Geelong, I got teamed with Crystal, a hippo who has great dancing skills. After meeting her entourage of friends we played one of my favorite games, competitive “Old MacDonald”; we play the song on our ukulele and leave out the name of the animal and Sophia has to guess the animal. If she gets five rounds correct, she is the big winner! “Dog” she whispered after the first verse – correct. “Cow” she hesitantly spoke after the second round. “Pig” she giggled after the third. “Elephant” she triumphantly sang after the fourth. “Tiger!” she roared before we could even finish the final verse. Sophia was the big winner of the day. We then had to blast off but before we did, we said goodbye to each and every single one of her stuffed friends as Sophia danced goodbye to us on her bed with my new best friend, Crystal the Hippo. Signing out, Captain Starlight starlight.org.au Over the past 12 months, the Stars for Starlight program has attracted 59 celebrity visitors to our Starlight Express Rooms including Hi-5, Hawthorn footy players, Elmo, The Voice contestants, WWE wrestlers, The Justice Crew, Playschool and Barbie. Even The Gruffalo emerged from the deep, dark woods to spend time with us! VISITORS Starlight Express Room to the PROGRAMS 2014 HIGHLIGHTS Marvellous HOOPS GALORE! Ahoy Starlight-ers! Today was an incredible day in the Royal Children’s Hospital as we got to hang out with an amazing guy named Tyler. Tyler is completely blind and the Starlight Express Room is one of his favourite places to visit as there’s always an activity he can engage with or a fun Captain Starlight who can make him laugh. Today he blew us all away when he announced he was going to challenge the Captain Starlights to a basketball shoot out competition. To make it fair, the Captain Starlights suggested they would shoot the hoops from behind their backs. “No,” announced Tyler, “I’m going to shoot them from behind my back!” Tyler’s confidence flabbergasted us all. “Ok,” we said, “how about we film it and if you can shoot at least five baskets from behind your back we’ll put it on Starlight TV.” Tyler’s face lit up at the idea of being able to show his awesome skills on camera and a new excitement began to fill the room. Maybe it was the fun of knowing he was being filmed, the Captain Starlights cheering him on, the ecstatic crowd or just the general magic that seems to happen in the Starlight Express Room but Tyler nailed a basket on his first shot. Then another. And another. And another! Without a sweat he shot five hoops from behind his back and proceeded to shoot hoop after hoop after hoop…32 times in a row! The Starlight Express Room went absolutely ecstatic and Tyler could barely believe he had done it himself! Even better, Tyler got to take home a DVD of his amazing achievement which made his visit to the Starlight Express Room even more special. Being Captain Starlights we get to see a lot of miracles and this was definitely one of the most amazing ones! Signing out, Captain Starlight Abi was unresponsive to doctors and family until Captain Starlight found that using a puppet and making funny noises cracked her up! Now, Abi directs the puppet and story verbally which means she is able to make play happen, giving her an increased sense of control, confidence and general happiness. Positive PUPPETS Abi is a 3 year old girl who, following a serious car accident which left her with quadriplegia, was having a hard time being in hospital and adjusting to her new routine. But thanks to Captain Starlight, Abi has used her imagination and learnt to play again. The doctors at Abi’s hospital are highly skilled and dedicated people, and she has received the best possible care. But while the medical professionals are the experts in treating her injuries and meeting her physical needs, Captain Starlight is the expert in helping her just be a kid. When Captain Starlight came along, it was the first time Abi had played in months, with her only other distraction being watching movies. Abi’s Mum credited Captain Starlight and the use of puppets for a positive change in Abi, stating “we got our little girl back”. starlight.org.au PROGRAMS 2014 HIGHLIGHTS IA N A M S A T H C A E R T OU k with the & the lin Hospital Royal Children’s These are a few of MY FAVOURITE THINGS… at Women’s and Children’s Adelaide Early in 2014, a fantastic piece of artwork called ‘Favourite Things’ was created as part of an Artist in Residence project with artist Kirsty Shadiac. During visits to the hospital’s wards and within the Starlight Express Room (SER), Captain Starlight asked children to draw their favourite thing. These individual drawings were then collated to form one, large artwork. Talking with Captain Starlight about favourite things and then drawing them was a great distraction for children when in hospital and opened up lots of fun conversations. Over 100 children and their families took part, with some favourite things including: • Our puppy dog •Dolphin under the sea •Pineapples are cool •Monkey called Stinky • My favourite playschool toys •My dream house The children loved the experience with one even joking that now they were a famous artist they might need a security guard to manage all of their new fans! Captain Starlight has visited Tasmania 5 times in 2014, connecting and reconnecting with 397 children in the hospitals located in Hobart, Launceston and Burnie. Many children and families travel across the Tasman to visit the Royal Children’s Hospital so it is good to reconnect back in Tasmania. Captains Innovation Fund 2014 The Captains Innovation Fund in 2014 saw a call out to Captain Starlights across the country to come up with an idea to improve and deepen the impact of the in Hospital Program. One idea which was seen from inception through to delivery was the introduction of the Starlight Slap Band USB. The Slap Band USB is given to anyone who has created content in the Starlight Express Room and is loaded with their creation so they can take it home. The child can then wear their Slap Band around, filling it with memories they’ve made in the room and create an archive of all the fun they’ve had in the SER. starlight.org.au PROGRAMS 2014 HIGHLIGHTS SURPRISE PACKS Just in time for the September school holidays, 500 families received our Spring Surprise Pack. This year’s theme was ‘Family Games’ and each pack included a range of board and card games including Tenza, Zoo Yahtzee and Cranium cards. Starlight Wish Week 2014 ON THE GOLD COAST Starlight’s Wish Week 2014 saw 13 families and 70 individuals come together on the Gold Coast to share their child’s wish experience with other families who share a mutual understanding of the impact of having a child with a serious or chronic illness or disability. The families were flown to the Gold Coast, and for many it was their first time on a plane. They were officially welcomed at a star-studded dinner with Starlight ambassador Mick Fanning and Gold Coast Titans Mark Ioane and Kalida FaiFai. “Hi Nicola, There was a lovely ba g of surprises waiting on our doorstep when we go t home today - game s and a fantastic bag for Sarah to use as her schoolb ag next year. We can’t wa it to try the games in the school holidays. We are so grateful to be part of the Starlight family. Thank you for thinking of us and putting a sm ile on our faces today! Love Darren, Susanna, The week was adventure-packed with Starlight families visiting all of the themeparks as well as other attractions the Gold Coast has to offer, but also gave the families some downtime to just enjoy each other’s company. An important part of Wish Week is giving families the opportunity to extend their support networks with other families who know what it’s like to have a sick child. The families were grateful for the time they spent with others who share the same journey and most importantly the memories an experience like Wish Week creates for a family. Neve, Noah and Sarah ” STARLIGHT WISH REFERRALS received from health professionals EXTRAVAGANZAS Starlight’s annual Extravaganza events bring families together who are sharing similar journeys and challenges for a day of fun and relaxation. In 2014, 285 families enjoyed a Starlight Extravaganza. Tasmanian families had a great AMF bowling day, in New South Wales families enjoyed a farm experience (including helping at feeding time and a best dressed competition!) and in Queensland it was an exciting day out at Movie World. In Victoria Ten Pin bowling was a great success, families from Western Australia had a fun Christmas party and in South Australia a wonderful time was had at Beach House Water Park. starlight.org.au PROGRAMS 2014 HIGHLIGHTS CAPFEST Captain Podcasts The Captain Starlight Podcast ‘Captain Time Wow!’ was launched, providing seriously ill children and their families the opportunity to connect with Captain Starlight at any time. Podcasts have covered topics as diverse as 5 dance moves everyone should know (including the ever popular “daggy dad dancing”) and 5 things Captains have in common with Meerkats. The feedback has been fantastic and best summed up by one 8 year old who couldn’t describe his favourite podcast, as every time he tried he was overcome by a fit of the giggles as he remembered the podcast! Winter 2014 saw the national Captain Starlight team leave Planet Starlight and land in Sydney for a four day intensive focusing on developing performance skills, and exploring further how to engage children through imagination. Seventy Captain Starlights were in attendance, which made for an enthusiastic, positive, hilarious and noisy event. The workshops were facilitated by entertainment industry leaders including a national TV producer, TV presenters such as Marc Fennell, Scott Tweedie and Sam Mac, a professional magician, a NIDA lecturer, renowned artists, a music therapist and even a celebrity face painter. Captains were offered workshop electives in: • Starlight TV – creating engaging content for Starlight families on Starlight TV • Magic – learning new tricks to perform at bedsides in children’s wards • Balloon sculpting – learning new designs for those trickier requests • A rt – how to facilitate art workshops with families in hospital, in Starlight Express Rooms and on wards • Face painting – updating Captain Starlights on current trends, new designs and brush techniques CAPTAINS ACADEMY When a new Captain Starlight joins Starlight one of their first assignments is to attend Captains Academy: READY. The event is designed to ensure they are READY for their mission: brightening the lives of seriously ill children and their families. • Music – how to use iPads to get children composing music in hospitals The skills gained will help the Captain Starlights to brighten the lives of seriously ill children across Australia. In April, Starlight’s 11 new Captain Starlights arrived via the Red Rocket ship and a further 10 in November. Captains Academy prepares new Captain Starlights by building their Captain Starlight character, experimenting in a hospital simulation and learning from experienced Captain Starlights. At Starlight we take the most talented performers – actors, comedians and other artists – and develop them as experts in entertaining hospitalised children. It’s working! A child in the Princess Margaret Hospital in Perth told us: ‘We love our new Captain Starlight, she’s funny! Can we keep her?’ Yes, you can! starlight.org.au Captain Starlight with over 117,955 CHILDREN IN HOSPITAL PROGRAMS 2014 HIGHLIGHTS OF LIVE TV broadcast IN HOSPITAL ON Starlight TV Interactive Screen At the end of September we launched a trial of an Interactive Touch Screen Trolley in the QLD Hospital Program. The trolley acts like a giant 52 inch iPad that allows multiple children and their families to gather around the device to play games and enjoy media. The goal is to provide a positive distractive tool that is able to be wheeled around the hospital and enjoyed by all ages and regardless of illness or disability. The display itself is motorised so it can be positioned vertically or horizontally which is great if you want to use it as a blackboard (vertically), or if you want to play ice hockey (horizontally). So far the unit has been a complete success and we are looking forward to having more interactive screens in our SERs. Scholarships NT RECRUITMENT Strategy In 2014 we embarked on a project to develop and establish a recruitment strategy for the Captain Starlight Program in the NT. This project included the development of a video that showcases the role of Captain Starlight in the Northern Territory, the opportunities within the Top End and the impact of our Program in remote Indigenous communities. The NT Recruitment Video was officially launched on the 24th October and has been viewed over 1,660 times, generating interest amongst the national performing arts community. We received over 80 applications for the role of Captain Starlight and are now in the final stages of our recruitment process. Due to the success of the video and the associated recruitment strategy we will be able to expand our reach in the Northern Territory, enabling us to deliver our programs to more children and young people including visiting a larger number of remote Indigenous communities. AWARDED Two of our Livewire team were awarded scholarships to undertake a Graduate Certificate in Adolescent Health and Wellbeing. Offered by the Centre for Adolescent Health through the Faculty of Medicine at The University of Melbourne, the course helps to further develop knowledge of adolescent development, adolescent health issues and skills to work effectively with young people. starlight.org.au PROGRAMS 2014 HIGHLIGHTS Social Return on Investment LIVEWIRE.ORG.AU Independent consultants, ‘Social Ventures Australia’, conducted a Social Return on Investment study of livewire.org.au. The study found that since being founded in 2008, livewire.org.au had facilitated its members in experiencing multiple positive outcomes, including ‘increased well being’ as a result of members ‘feeling more understood, accepted and supported’ as well as ‘having fun’. It also found that livewire.org.au generated a net positive social return on investment with each $1 cash invested in 2012 and 2013, creating an approximate $5 of social value resulting in a social return on investment ratio of 5:1. CONFERENCES presented at in 2014 • Linking Conference 2014 • International Koorie Conference • Young and Well CRC completed •World Indigenous Health Conference CAPITAL PROJECTS Lady Cilento After much planning and hard work by many people, the brand new Starlight Express Room at Lady Cilento Children’s Hospital in Brisbane officially opened its doors to children and families on 1 December 2014. The Starlight Express Room (SER) is in a sought-after corner of the building, with natural light a feature and spectacular views of the city and the Brisbane River. The Lady Cilento Children’s Hospital is the first children’s hospital in Queensland to be developed with the needs of children, young people and their families in mind. The new hospital brings together the Royal Children’s Hospital and Mater Children’s Hospital to create one, world-class paediatric hospital for Queensland. Our new SER space is open to all children, young people and families spending time in the hospital. Open seven days a week, the innovative new space will deliver our Captain Starlight, Livewire and Starlight TV programs. The SER design incorporates the latest research on the impact of architecture, interior design and lighting on the health and wellbeing of children in hospital. With the colours and fittings reflecting natural colours and themes, the new SER will provide a warm, family-friendly and flexible environment that supports play and entertainment, as well as relaxation. starlight.org.au PROGRAMS 2014 HIGHLIGHTS MONASH Turning of the Sod The new Monash Children’s Hospital in Melbourne celebrated the start of building works with a ‘Turning of the Sod’ event in July 2014. Starlight has been invited to build a new, full-size Starlight Express Room as part of the hospital which will treat over 32,000 children every year. The new Monash Children’s Hospital is scheduled to open late 2016. gaming / performance area work / change rm change rm adolescent activity / parents area broadcast area corridor staff rm cleaner balcony comms rm shared activity entry radio lollipop hospital corridor Starlight01Express Room floor plan BUILDS We are currently building five new Starlight Express Rooms at Perth Children’s Hospital, new Monash Children’s Hospital, Royal Darwin Hospital, Sydney Children’s Hospital and The Children’s Hospital at Westmead. These new SERs will support hundreds of thousands of children and young people and provide Starlight’s unique brand of fun, joy and laughter through our Captain Starlight and Livewire programs. Our new Starlight Express Room design incorporates research on how innovative architecture, design and lighting can support childrens’ wellbeing. The new SERs are calm, multi-purpose, family-friendly environments, utilising elements of nature and garden theming to provide a true “escape” from the hospital environment. On the NT Program... “The Starlight Captains have made a huge difference to the success of the Paediatric remote clinics for Aboriginal children needing specialist review! They attract the kids into the clinic and keep them entertained whilst waiting. This has meant we have been able to see more children at these clinics. The kids are happier and the clinics are transformed into fun places!!” Dr Keith Edwards Community Paediatrician and Senior Lecturer in Child Health at Flinders University. Starlight Programs: THE EVIDENCE This study delved into the evidence underpinning Starlight’s programs. Over 150 research studies were analysed to identify the impact of Starlight’s programs on well being. The study found significant evidence for the benefits of gaming consoles, computer and online games, music, watching TV, computers and incorporation of nature elements. Additionally, the study highlighted that Starlight programs and activities contribute to well being by creating positive emotions, providing distraction, encouraging and enhancing social interaction, assisting with identity formation and by building self-esteem. starlight.org.au PROGRAMS 2014 HIGHLIGHTS SOME HEART-WARMING FEEDBACK ...after a Starlight Wish We always check in with families about their Starlight Wish experience to make sure everything is what they hoped it would be. 100% of families told us they would recommend a Starlight Wish experience to another family. A mother whose child received a Gold Coast wish: She was having trouble at school before the wish because of behavioural problems. But, now the household is just so much more happy and together, and there hasn’t been any problems at school. A bedroom makeover wish: The wish has caused a full house clean up. The girls are playing in their room more and making an effort to keep it clean and tidy. She is very proud of it, so she wants to keep it tidy. It’s lovely to see her enjoying her own space. A father of a teenage girl that received a spa: We wouldn’t have been able to afford this for at least another 20 years. Starlight has pushed us so far into the future. We just can’t wait for summer to get in and use the spa regularly. It’s going to be the best summer ever. A celebrity wish: A wish for a disability access camper trailer We can’t believe that we’re now able to go camping as a family. Before we had kids, camping was a big part of our lives and so we always thought that after we had kids we would take them with us, but with my child’s disability it was always too difficult. We would come back totally exhausted. But this just makes it possible for us to live that dream with our kids. Every time she watches Home and Away now she says, “I know those people”. She feels really special. A teenage wish recipient who toured a movie set: I’m really certain about what I want to do now. I definitely want to go into the film industry. The whole wish was beyond my dreams. It was amazing that something like this could happen to me. A mother of a teenager that swam with whale sharks: A wish to Hamilton Island: I’ve noticed a bit of a lift within her. She seems a lot happier since the wish. Her spirits have lifted a little more and she is a little more positive than she used to be. Now, she’s more accepting of having to endure tube feeding and other treatments because she can see that it means that she can get out there and do the things that she wants to do. We talk about the wish during treatment now – and it gives so much more purpose to it all. starlight.org.au Because we went to Hamilton Island and she had the opportunity to go in the hotel pool and on the reef she has now got a little more confidence in the water. So she has started swimming classes again, without us having to push her much. She is just more confident in general, and I think the swimming will make a big difference for her in years to come. Thank you for helping Starlight reach over 146,000 children and young people in 2014. We simply couldn’t do it without you... starlight.org.au