November 2009
Transcription
November 2009
INSIDE THIS ISSUE: Wi-Fi Safety 2 MCSA NEWS VOLUME 4 ISSUE 11 Questioned Walkup Talks 11 Disability MCS in 13 Toxicology Book Healthy & Sacred 15 Spaces A Warm 19 Thanksgiving Thimerosal 22 Linked to Neuro Chemical & Brain 23 Function Changes MCS Impacts Life 24 and Function CFS Linked to 25 Retrovirus SSDI Awarded 26 for Mold Aluminum Hy- 27 droxide in VacPatient 28 Resources Community 36 News Research 37 Studies Copyrighted © 2009 MCS America NOVEMBER 2009 PAGE 2 Feature Article Wi-Fi Safety Questioned “Simon’s statement is designed to elicit the belief that Wi-Fi is safe…” Scientists in the UK at the Health Protection Agency (HPA) recently completed a research project on wireless local area networks (WLAN). The HPA issued a press release which was reported by Medical News Today on September 15, 2009. Dr Simon Mann presented the team's findings and is quoted as saying, "Our findings are consistent with the HPA position that exposures to the radio waves from Wi-Fi equipment are expected to be well within internationallyaccepted exposure guidelines and less than levels from mobile phones." “There is no consistent evidence to date that exposure to RF signals from Wi-Fi and WLANs adversely affect the health of the general population”. It is muddled because it confuses two completely separate issues. 1. Is there any evidence that Wi-Fi is harmful to health? The answer to this is DEFINITELY YES. 2. Is the whole population affected? Simon’s statement is designed to elicit the belief that Wi-Fi is safe, yet being within some randomly set exposure guideline does not in any way guarantee safety or lack of human health effects. Andrew Goldsworthy BSc PhD, a retired lecturer in biology at the Imperial College London explains why. The answer to this is SEEMINGLY NOT. It is misleading because it is written in such a way as to imply that Wi-Fi is safe for EVERYONE and there is no reason why it should not be used universally in schools. What about the Comments by Andrew Golds- health of the students and staff who are affected? Do they not care? worthy on September 20, 2009 The following quote from the notes to The use of the word “consistent” in editors is muddled and deeply mis- the quote is also worrying since it suggests that physicists and engineers, posleading. sibly from the mobile phone and Wi-Fi industries, rather than biologists and health experts, are in control. No trained biologist or medical practitioner would ever expect the same level of consistency from experiments with complex living organisms as is possible with simple physical systems. MCSA NEWS Copyrighted © 2009 MCS America PAGE 3 “These guidelines are not universally agreed.” MCSA Apart from identical twins, each one of us is genetically and physiologically unique and we do not all respond in the same way to metabolic insults. Not everyone who smokes dies of cancer, and we do not all suffer the same side effects from taking a medicinal drug. Even the same person may not be equally susceptible all of the time. For example, if we are ill, our resistance to further infections is usually lowered. Anyone who says that we must all show the same response to electromagnetic radiation before its effects can be regarded as real must have a very limited knowledge of biology. They are certainly not qualified to sit in judgement on important health issues that are likely to affect billions of people worldwide, let alone the health of unsuspecting UK school children and staff who have no choice. GUIDELINES ARE NOT UNIVERSALLY AGREED and many other countries such as Russia, China, Italy, Switzerland and the USA (i.e. much of the industrialised world) are much more cautious than the UK, and set their safety limits between ten and one thousand times lower (www.bioinitiative.org ). These Guidelines Do Not Include Non-Thermal Effects The guidelines that the UK Health Protection Agency refers to are based on those proposed by ICNIRP, using research that is at least a decade out of date. In particular, they make the assumption that the only way that nonionising radiation can damage living cells is due to its heating effect. They do not include the direct electrical effects on cell membranes, which can Not Every Country Agrees On occur at radiation levels that are hundreds or even thousands of times The Safety Guidelines lower. The press release is also misleading when it says that the electromagnetic It Just Should Not Have Hapradiation from wireless laptops and pened mobile phones fall within internationally agreed Safety Guidelines. It says Many of these non-thermal effects are nothing about the fact that THESE catalogued in the Bioinitiative Report, which was drawn up by a team of expert scientists in 2007. They examined over two thousand peer-reviewed scientific papers on the effects of nonionising radiation and found that over two thirds of them showed some sort of biological effect that could not be explained by heating (www.bioinitiative.org ). Not all were directly concerned with health, but if the ICNIRP guidelines were valid, none of them should ever have occurred. We cannot therefore assume that radiation that falls within the ICNIRP guidelines is necessarily safe. NEWS Copyrighted © 2009 MCS America PAGE 4 What Causes These Thermal Electrical Effects? “Low frequency electromagne tic fields... can remove calcium ions from the membranes… of living cells.” Non- The Mechanism Of Calcium Removal Most of the non-thermal effects of electromagnetic radiation can be explained in terms of the leakage of cell membranes following the electromagnetic removal of structurally important calcium ions. It has been known since the work of Suzanne Bawin and her coworkers in 1975 (Bawin et al. 1975. Ann. N.Y. Acad Sci, 247: 74-81) that otherwise harmless radio waves could remove calcium ions from brain cell membranes when they were amplitude modulated at a low frequency; i.e. when the strength of the radio signal rose and fell in time with the low frequency. These experiments have been repeated many times and also with other tissues such as heart muscle (For a review, see Blackman 2009. Pathophysiology, 16: 205-216). The general conclusion from these and many similar experiments is that low frequency electromagnetic fields, or radio waves that are amplitude modulated at a low frequency, can remove calcium ions from the membranes of some but not all kinds of living cells. Pulses are more effective than sine waves, possibly because their sharp rise and fall times are more effective at jerking the calcium away from the membrane and also allow more time for it to be replaced by other ions before the field reverses. Pulses carried by microwaves should be particularly effective because the high frequency of the carrier permits faster rise and fall times for the pulses. MCSA Living tissues can absorb non-ionising radiation and convert it into alternating electric currents, just like the antenna of a radio set. The only real difference is that, in living tissues, these currents are carried by ions (electrically charged atoms and molecules) rather than electrons. When these currents impinge on cell membranes, which are normally negatively charged, they vibrate like miniature loudspeakers in time with the signal. This loosens some of the positive ions bound to them since they are driven in the opposite direction. If the signal is strong, all the ions bounce on and off the membrane more or less equally, but if the signal is weak, only the more strongly charged ions, such as calcium (which has a double charge) are pulled off. Ions with only one charge, such as potassium then take their place. Very little energy is needed, since the ions have only to be moved by molecular dimensions and the effect is simply to change the natural chemical equilibrium between the different ions bound to the membrane. However, the effect can be devastating. Only Weak Signals Do This Only weak signals can selectively remove calcium in this way. Even then, it can only occur in narrow ranges of signal strength called amplitude windows, above and below which there is little or no effect. The exact positions of these windows are indeterminate since they depend on the nature of the membrane, the availability of other ions to replace the calcium and how well the tissue is acting as an antenna. NEWS Copyrighted © 2009 MCS America PAGE 5 “Many of the so-called “modern illnesses” that have increased... can be linked to cell membrane leakage due to.. non-ionising electromagnetic radiation.” Cells Are Constantly Moving In have an especially strong attraction to the negatively charged membrane comAnd Out Of Their Windows. ponents on either side and bind them Living tissues are dynamic systems and together just as mortar binds together their characteristics, including their the bricks in a wall. However, the ions electrical characteristics, are constantly with only one charge that replace them changing, which means that they will do this less well, so the membrane may not always be equally efficient as anten- now develop temporary pores and nas. Also, as we go about our daily leak. This leakage can then cause all business, our exposure to electromag- sorts of harmful effects. netic fields and our orientation to them are constantly changing so that The Biological Effects Of Memindividual cells may not stay long brane Leakage enough in their windows to do signifiMany of the so-called “modern illcant harm. nesses” that have increased, sometimes However, all this changes when the dramatically, in the last few decades source and orientation of the field is can be linked to cell membrane leakage constant, such as when using a mobile due to our increasing exposure to nonphone or sleeping near a base station. ionising electromagnetic radiation. Some cells may then be in their win- More details of these, together with dows for long enough to do significant journal references, can be found at damage. The important thing to note is http://tinyurl.com/5ru6e6 but I will outthat any assertion that Wi-Fi and mo- line a selection of them here. bile phones must be safer than other forms of electromagnetic radiation just Electromagnetic hypersensitivity because the signal is weaker is both (EHS) false and dangerous. Mobile phones and Wi-Fi laptops, by leaving individual Electromagnetic hypersensitivity is a cells for prolonged periods in their am- condition in which people experience plitude widows may do more damage physical symptoms such as rashes and/ than general electromagnetic pollution. or a wide range of unpleasant sensory Under some circumstances, a weaker disturbances during or shortly after signal may even drive more cells into exposure to electromagnetic fields. It their amplitude windows and make can develop in previously healthy peomatters worse. ple after prolonged exposure and appears to be largely irreversible. It was How Calcium Loss first noticed in radar technicians, when Makes Cell Mem- it was called microwave sickness, but it branes Leak has increased dramatically in recent years in the general population. About The calcium ions lost three percent of the population are due to electromagnetic now affected in this way, and its inciexposure were impor- dence often appears to be associated tant. Because they have with prolonged exposure to microa double charge they wave based telecommunications. MCSA NEWS Copyrighted © 2009 MCS America PAGE 6 Virtually all of the symptoms can be explained by electromagneticallyinduced cell membrane leakage. Sufferers are characterised by already having unusually leaky cell membranes as measured by skin conductance. This makes them more prone to the consequences of additional electromagnetically-induced leakage. When their skin cells leak, it can result in inflammation and rashes. When their sensory cells leak, it can result in numerous unpleasant sensory disturbances. “Babies exposed to the radiation from cordless baby monitors may be particularly at risk .” MCSA We all have many different kinds of sensory cells, but they all work by “deliberately” leaking ions through their membranes when they sense whatever they are programmed to sense. This reduces the natural voltage across their external membranes, which in turn triggers the release of neurotransmitters that stimulate neighbouring nerve cells to send signals to the brain. Unscheduled leakage due to electromagnetic exposure can therefore trigger false sensations such as pins and needles, heat, pain and pressure, depending on which cells are most affected. When the hair cells of the inner ear are affected, it can cause tinnitus, which is a false sensation of sound. When it affects those concerned with balance, it can cause dizziness and trigger symptoms of motion sickness, including nausea. Prolonged exposure to the radiation seems to damage these cells permanently so they become even more inclined to leak and the person becomes sensitised for life. Brain Hyperactivity When cells of the brain and nervous system leak, free calcium ions can enter the neurons from outside. In normal circumstances, neurons require a “deliberate” brief inflow of calcium ions to trigger the release of neurotransmitters so that they can send signals to neighbouring neurons. Unscheduled steady calcium inflow due to electromagnetic radiation makes them more likely to release neurotransmitters, some of which will send false messages. This in turn can trigger brain hyperactivity leading, amongst other things, to sleep disturbances, loss of concentration (giving rise to ADHD) and stress headaches. Autism Electromagnetically-induced brain hyperactivity and confused thought during early childhood may cause autism (which has gone up 60-fold in the last thirty years). Basic social skills are learnt during the first 18-months of life, after which they become hard-wired into the child’s psyche by pruning under-used synapses. This enables them to become automatic and require very little thought. However, this mass cull of under-used synapses is a normal stage in development that occurs only once at around 18 months. If the initial learning process has been disrupted by brain hyperactivity, many social skills may remain poorly learnt by the time the synapses are pruned, and the child may become irreversibly autistic. Babies exposed to the radiation from cordless baby monitors may be particularly at risk but this has not been tested. NEWS Copyrighted © 2009 MCS America PAGE 7 Dementia “Autoimmune Diseases… These include type-1 diabetes, multiple sclerosis and Dementia in the elderly also seems to be on the increase, and some of it can be attributed to electromagnetic exposure. Salford and co-workers (Salford et al. 2003. Environmental Health Perspectives 111: 881-883) showed that extremely weak electromagnetic radiation such as that from mobile phones could disrupt the blood-brain barrier and allow unwanted materials, such as albumin from the blood stream to enter and kill neurones. Although the effect may not be immediately noticeable, prolonged exposure is likely to lead to early dementia. Allergies celiac disease, all of which are on the increase.” All of our body surfaces, both inside and out, are normally protected from unwanted materials entering by barriers similar to the blood-brain barrier, where the gaps between the cells are sealed, forming what are known as tight junctions. There is strong evidence that these too leak in response to weak electromagnetic radiation, which would allow the more rapid entry of allergens, foreign chemicals and other unwanted materials. This may account for the massive increases in asthma, allergies and multiple chemical sensitivities that have accompanied our increasing exposures to electromagnetic radiation in recent years. tes, multiple sclerosis and celiac disease, all of which are on the increase. This has been attributed to an increased leakiness of the gut barrier (also known as leaky gut syndrome) and may be exacerbated by electromagnetic exposure. It allows particles of partially digested food to enter the bloodstream. From there, they may be engulfed by body cells by endocytosis, followed by an attempt to digest them internally. However, some materials, e.g. gluten, are difficult to digest and may be mistaken for a virus. The cell responds by displaying it on its surface, which identifies it to the white blood cells of the immune system as a cell that must be killed to prevent the spread of the “infection”. This triggers inflammation, which is both painful and attracts more white blood cells to the area, which may make matters worse and results in the death of perfectly healthy cells. Celiac disease is an autoimmune response, triggered by gluten, which causes inflammation of the gut, but autoimmune diseases in other parts of the body may have a similar aetiology. Effects On Internal Membranes And DNA There are at least two mechanisms by which the leakage of the cell’s internal membranes can damage DNA. Living cells are divided into various internal compartments by membranes that are all variations of the same basic structure as the outer membrane. From our Autoimmune Diseases standpoint, the two most important compartments are the lysosomes and These include type-1 diabe- the mitochondria. MCSA NEWS Copyrighted © 2009 MCS America PAGE 8 when cultured cells have been exposed to mobile phone radiation, even for less than a day (see www.bioinitiative.org ). It can therefore account for the brain and other head cancers that we are now beginning to see in people who have been heavy users of mobile phones for ten years or The mitochondria are the cell’s more; with children being at greatest power stations. They carry out the risk (Hardell et al. 2009 Pathophysiology controlled oxidation of materials de- 16: 113-122). rived from our food to generate ATP, which is the main energy currency of Thyroid Cancer the cell. This oxidation actually goes on in groups of enzymes embedded in There has also been an unexplained their membranes and involves highly increase in thyroid cancer in recent reactive chemicals called free radicals. years (the thyroid gland is in the neck; Damage to these membranes is likely just inches from where you hold your to release of some of these free mobile phone) and may have a similar radicals that can then react with aetiology to brain cancer. and destroy other cellular components, including DNA. It’s like Mobile phones may make you fat blowing up a furnace scattering burning embers everywhere. Another consequence of DNA damage is a partial loss of function in the exThere is even some similarity to posed organ. For example, Rajkovic blowing up a nuclear power sta- and co-workers (Rajkovic et al. 2003 tion since, although no radioactiv- Tissue & Cell 35: 223–231) showed that ity is involved, the free radicals that are exposing rats to power line frequencies normally locked safely away in the mi- for over three months caused a seemtochondrial membranes, have very ingly permanent loss of thyroid funcsimilar activities to those that do most tion. If this were to occur in humans as of the damage when a cell is irradiated a result of the radiation from wireless with gamma rays. Indeed, many con- telecommunications, we would expect cerned scientists have noted the simi- to see widespread symptoms of hypolarity between the biological effects of thyroidism, which include fatigue, loss non-ionising radiation and gamma rays. of muscle tone and obesity. It may be Non-ionising radiation should there- no coincidence that about thirty perfore be treated with as much caution cent of our population is now either as ionising radiation until much more is overweight or clinically obese (with all known about its biological effects. the extra risks to health that this implies) and the number of teenagers on Brain Cancer anti-obesity drugs has gone up 15-fold in the ten years since the use of mobile DNA damage has been found in many phones, DECT cordless phones and experiments in many laboratories Wi-Fi became almost universal. The lysosomes are membrane-bound structures full of digestive enzymes that digest cellular waste ready for recycling. Membrane leakage here releases these enzymes, which can digest and damage the rest of the cell, including its DNA. MCSA NEWS Copyrighted © 2009 MCS America PAGE 9 Effects on Fertility “There have been several studies showing that mobile phone use reduces male fertility.” MCSA There have been several studies showing that mobile phone use reduces male fertility. One of the more recent, by Agarwal and co-workers (Agarwal et al. 2008 Fertil Steril 89: 124-8) showed that using a mobile phone for more than four hours a day caused a reduction in sperm numbers, motility and viability, each of around 25 percent. The prolonged use of a Wi-Fi laptop computer on or near the lap could have even more serious consequences for male fertility. Effects on female fertility have not yet been studied but, since all the eggs that a woman will ever have were already in her ovaries before she was born, the cumulative effect could be considerable. All of these effects can be attributed to electromagnetic DNA damage, which could also lead to miscarriages, deformities in the offspring and genetic mutations that may not appear for several generations. Anyone who considers Wi-Fi to be safe should think again. to carry information (Blackman 2009. Pathophysiology, 16: 205-216). This makes them much easier to solve just by changing the way in which the signals are encoded. In particular, we need to remove all vestiges of low frequency amplitude modulation or anything that might be perceived by a cell (or a simple diode) as low frequency amplitude modulation. It is well established that low frequency electromagnetic fields, including those from power lines, can have adverse biological effects. It is also clear that living cells can demodulate amplitude modulated radio signals (including microwaves) to extract the biologicallyactive low frequencies. Little work has been done on how they do this, but the most plausible mechanism is that the countless ion channels that pierce virtually all cell membranes act as electrically-biased point-contact diodes capable of rectifying and therefore demodulating the signals. The normal voltage across a typical 10nm-thick cell membrane is of the order of 100mV, giving a voltage gradient of around ten On The Brighter Side million volts per metre. This should We do not have to abandon mobile provide adequate bias. telecommunications; all we have to do is make them safer by a wiser use of An interesting example of this effect technology that takes into account the can be found at http://tinyurl.com/ vagaries of biological systems. The m4u75o , where you can see and hear problems that a complete radio set constructed from arise are not a single carbon nanotube of similar didue to the ameter to a cellular ion channel. It is heating effect capable of amplifying and demodulating of the radia- radio signals even at microwave fretion. Instead, quencies. If the analogy with the living they are largely cell is valid, the extracted, and possibly due to the way amplified, low frequency components in which the would appear across the cell memradio signals brane where they could do most dam are modulated age. NEWS Copyrighted © 2009 MCS America PAGE 10 Sources Of Low Frequency Am- ceiver is programmed to recognise as blank spaces, but still look to a cell as if plitude Modulation it were a continuous transmission, we In the case of digital transmissions, the may be well on the way to achieving a equivalent of low frequency amplitude relatively safe means of wireless telemodulation may arise from low fre- communication. quency beacons, traffic where individual packets of information are trans- One wonders why this sort of research mitted separated by long gaps, and fre- is not already under way. quency hopping where reflections may give different cancellation effects at difAndrew Goldsworthy BSc PhD ferent frequencies. Lecturer in Biology (retired) Perhaps all we need do is to take a les- Imperial College London son from DNA, where the gaps between genes are filled with DNA that Reference codes for nothing, with the beginning Scientist probe laptops Wi-Fi Emisand end of each gene denoted by a sions. Medical News Today. 15 Sep special coding sequence. In the case of 2009 - 20:00 PDT. Retrieved on Octodigital communications, if we can fill ber 18, 2009 from: http:// the gaps between transmitted pulses www.medicalnewstoday.com/ and packets with code that the re- articles/163988.php Andrew Goldsworthy was born in 1939. After a conventional Grammar School education he obtained a First Class Honors Degree in Botany followed by a PhD for research into plant physiology and biochemistry at the University of Wales. He went on to lecture at Imperial College London, where he spent the rest of his career. He has had many teaching and research interests, ranging from the biochemistry of photorespiration to the biology of space flight. He retired in 2004 but remains as an honorary lecturer. He was also a scientific advisor to the European Space Agency and is currently a scientific advisor to several European charities concerned with the environment and electromagnetic fields, including the Bio Electromagnetic Research Initiative, the Radiation Research Trust, and Electrosensitivity-UK. He has always had a strong interest in how living organisms use internally-generated electric currents to control their growth and metabolism, and in their disruption by externally-applied currents and fields. In his retirement, he pieced together nuggets of information from a wide range of scientific journals and created simple layperson’s explanations of how weak electromagnetic fields affect us all. Some of these can be found on the www.bemri.org website at: http://tinyurl.com/L7dbps, which corresponds to http://bemri.org/archive/hese-uk/en/niemr/resonance1.php. MCSA NEWS Copyrighted © 2009 MCS America PAGE 11 Column: Walkup Talks Disability Social Security Disability Re-Opening Denied Claims & SSI - Michael Walkup, Attorney at Law Re-Opening Michael Walkup is an experienced disability practitioner with over 25 years of experience in the disability law field. In 2001 he became disabled due to MCS, CFS, and FM. He is now providing a service to advise clients with potential disability claims who have MCS, CFS, and/or FM. As these programs and law are usually Federal, he is able to practice in all 50 states, so your location does not matter. Michael is a long time Sustaining Member of the National Organization for Social Security Claimants’ Representatives (NOSSCR), the only national body for disability representatives. He is also certified as a Federal Trial Lawyer and is admitted to the U.S. Court of Appeals for Veteran’s Claims. Michael would welcome the opportunity to try to help you with your legal claims. His web site may be found at www.MCSLegalHelp.com, or he may be contacted at [email protected], or at 866-880-HURT (4878). MCSA lated from the first denial letter you received on your claim, not the ALJ Many MCS sufferers have older dis- decision or Appeals Council decision. ability applications that they did not appeal, or they tried to return to work and dropped their claims. In SSI some circumstances, these earlier applications can be reopened. If In addition to or instead of benefits you file a new application for bene- under SSDI or Title II of the Social fits that is considered to be a con- Security Act, you may be entitled to structive request to re-open any Supplementary Security Income beneprior claims. If you re-file within fits, or SSI. one year of the Initial Denial decision, the claim is automatically re- SSI is basically a welfare program and opened. The prior claims can also allows people who are disabled and be re-opened if a new application is also are poor enough to fall under filed within four years of the Initial the federal poverty guidelines, to reDenial and you submit new and ma- ceive benefits if they are unable to terial evidence that was not available work. People over 65 who do not at the time of the original applica- have other income or resources tion or was not obtained and used automatically get SSI. in the decision. You can also reopen at any time if there is a severe An important difference between the mental impairment which prevented SSI benefits and the SSDI program is you from acting in your own behalf. that for SSI you do not have to have enough “current credits” in covered The advantage of re-opening is that employment or to ever have had a all of the benefits which had accrued work history. This can be an advanduring the original application can be tage to those people who may only obtained if you are successful, not have worked a short time, were just the ones that accrue after filing homemakers for many years before the new application. This can mean becoming disabled, or who did a lot a fairly large award can be obtained. of part time work or work in which they were paid in cash or were self Bear in mind that the time is calcu- employed and did not pay taxes. NEWS Copyrighted © 2009 MCS America PAGE 12 However, to get SSI benefits you have to also be poor enough, which tends to preclude people who are married with working spouses. Also, if you are receiving “in kind” support, such as having your rent covered by a friend or relative, it will reduce the amount you may receive. Another advantage of the SSI benefits is that there is no “waiting period” between the time you became disabled and first month in which benefits can be paid. However, there is also no payment for retroactive benefits prior MCSA to the month in which the SSI application is made, whereas with SSDI you can get retroactive benefits for up to a year before the month in which you applied. Medicaid is available if you are approved for SSI, but not Medicare. If your SSDI monthly payment is less than the current SSI monthly amount, you can receive enough SSI in combination with the SSDI to bring you up to the SSI payment amount if you otherwise qualify. NEWS Copyrighted © 2009 MCS America PAGE 13 Press Release Epidemic of Multiple Chemical Sensitivity A Disease Caused by Toxic Chemical Exposure Featured in Toxicology Reference Book “MCS is a Professor Martin L. Pall’s research on multiple chemical sensitivity has been featured and published as a 52 page chapter in a prestigious reference work for professional toxicologists, "General and Applied Toxicology, 3rd Edition" (John Wiley & Sons). Pall's paper, entitled Multiple Chemical Sensitivity: Toxicological Questions and Mechanisms, establishes five important facts about MCS: stunningly common disease, even more common than diabetes.” 1. MCS is a stunningly common disease, even more common than diabetes. This has been shown in a series of nine epidemiological studies from the U.S. and one study each from Canada, Germany, Sweden and Denmark. In the U.S., approximately 3.5% of the population is affected by severe MCS, with much larger numbers, at least 12% of the population, being moderately affected. MCS is, therefore, a very large international disease epidemic with major implications in terms of public health. 2. MCS is caused by toxic chemical exposure. Cases of MCS are initiated by exposure to seven classes of chemicals. These include three classes of pesticides and the very large class of organic solvents and related compounds. In addition, published studies implicate mercury, hydrogen sulfide and carbon monoxide as initiators. All seven of these classes of chemicals have been shown in animal studies to produce a common response in the body, excessive activity of a receptor in the body known as the NMDA receptor. Furthermore animal studies have demonstrated that chemicals belonging to each of these seven classes can have their toxic responses greatly lowered by using drugs that lower this NMDA response. Because excessive NMDA activity is implicated in MCS from other studies, we now have a compelling common response that explains how such diverse chemicals can produce the disease that we call MCS. Martin L. Pall MCSA NEWS Copyrighted © 2009 MCS America PAGE 14 3. The role of chemicals acting as toxicants in MCS has been confirmed by genetic studies. Four such studies have shown that genes that determine the rate of metabolism of chemicals otherwise implicated in MCS, influence susceptibility to becoming ill with MCS. These four studies have been published by three research groups in three countries, the U.S., Canada and Germany, have collectively implicated six genes in determining susceptibility to MCS. Each of these six genes has a role in determining the rate of metabolism of MCS-related chemicals. The German studies by Schnakenberg and colleagues are particularly convincing on this because of the extremely high level of statistical significance of their studies implicating four of these six genes. There is only one interpretation for the role of these six genes in determining susceptibility to MCS. It is that chemicals act as toxicants in initiating cases of MCS and that metabolizing these chemicals into forms that are either less or more active in such initiation, influences therefore, the probability that a person will become ill with MCS. It is clear, therefore, that MCS is a toxicological phenomenon, with cases being caused by the toxic response to chemical exposure. 4. We have, a detailed and generally well supported mechanism for MCS. This mechanism explains both the high level chemical sensitivity that is the most characteristic symptom of MCS, as well as many other symptoms and signs of this disease, can be generated. This mechanism is centered on a biochemical vicious cycle, known as the NO/ONOO- cycle, which interacts with other mechanisms previously implicated in MCS, notably neural sensitization and neurogenic inflammation. These act locally, in various tissues of the body, to generate local sensitivity in regions of the brain and in peripheral tissues including lungs, upper respiratory tract and regions of the skin and the GI tract. Because of this local nature, different MCS patients differ from one another in their sensitivity symptoms, because the tissues impacted differ from one patient to another. In addition to the evidence discussed above, this general mechanism is supported by various physiological changes found in MCS and in related illnesses, by studies of MCS animal models, by objectively measurable responses of MCS patients to low level chemical exposure and by therapeutic responses reported for MCS and related illnesses. 5. For over 20 years, some have falsely argued that MCS is a psychogenic disease, being generated in their view by some ill defined psychological mechanism. However this view is completely incompatible with all of the evidence discussed earlier in this release. While such incompatibility is more than sufficient reason to reject these psychogenic claims, the MCS toxicology paper lists eight additional serious flaws in the psychogenic arguments. There is a long history of false psychogenic claims in medicine, where such diseases as asthma, autism, Parkinson's disease, ulcers, multiple sclerosis, lupus, interstitial cystitis, migraine and ulcerative colitis have been claimed to be generated by a psychological mechanism. The 2005 Nobel prize in physiology and medicine was give to Drs. Robin Warren and Barry Marshall for showing that ulcers are caused by a bacterial infection, and are not of psychogenic origin. It is clear, now, that MCS is physiological disease initiated by toxic chemical exposure that has been falsely claimed to be psychogenic. Martin L. Pall is Professor Emeritus of Biochemistry and Basic Medical Science, Washington State University [email protected] 503-232-3883 Pacific Time www.thetenthparadigm.org *Reprinted and edited from a press release with permission. MCSA NEWS Copyrighted © 2009 MCS America PAGE 15 Stephen’s Healthy Housing Column Healthy and Sacred Spaces Stephen Collette, BBEC, LEED AP Stephen Collette is a Certified Building Biology Environmental Consultant (BBEC). This lengthy certification analyses the built environment and how it impacts people’s health. Stephen was a natural builder for 5 years specializing in straw bale construction. Stephen has an engineering background and training which enables him to understand the various processes occurring within the home and how they can interact. Applying these skills and knowledge to the standard home and small office enables Your Healthy House to find the reasons for poor indoor air quality and to create solutions to help create your healthy house. Stephen Collette is a Leadership in Energy and Environmental Design - Accredited Professional (LEED AP), which allows Stephen to use the Canada Green Building Council’s guidelines and method to ensure a quantitative approach to building green. MCSA NEWS Copyrighted © 2009 MCS America PAGE 16 Stephen’s Healthy Housing Column Healthy and Sacred Spaces Stephen Collette, BBEC, LEED AP “To come together in sacred spaces and share in the magic of the universe with others who share the same belief is how communities are built.” MCSA Our desire to express our religious beliefs and carry out rituals defines us as a species. To come together in sacred spaces and share in the magic of the universe with others who share the same belief is how communities are built. But what if being in that nurturing space made you sick? What if there was something so toxic to you that you would become ill in that space and it became inaccessible to you? Would that be something a community would want to resolve? People diagnosed with environmental sensitivities actually equal the number of people in Ontario with mobility disabilities at 6%. As good community stewards we spend large amounts of money to make our sacred spaces mobility barrier free (as we should). No person should be denied access to a sacred space to express their beliefs, yet it happens regularly for those with chemical sensitivities. Understanding how faith communities can help is easy, and so is the ability to open your doors to a greater community. Environmental sensitivities are a recognized disability according to the Ontarians with Disabilities Act. This is the act that looks at how to make spaces accessible to all Ontarians. Chemical sensitivities are a one form of environmental illness and it is a biological reaction to the toxicological exposure to volatile chemicals. The body’s immune system is unable to handle and process these toxins as most people can. The result is typically respiratory and neurological impacts affecting the individual enough that they must seek refuge elsewhere and may take days to recover. NEWS Copyrighted © 2009 MCS America PAGE 17 “Cleaning products are so toxic that many come with hazardous warnings on them.” MCSA The causes of such terrible events are the chemicals we use in our everyday lives. Perfumes, cleaning products, solvents, caulking, glues, and pesticides are just a short list. It is mainly petroleum based products as they are highly volatile, which means that they off gas fumes. Think of perfume. It contains approximately 75-100 volatile organic compounds (petroleum products) whose job is to off gas enough to numb the brains of the one’s you are trying to attract. That unfortunately is really what is happening! Cleaning products are so toxic that many come with hazardous warnings on them. If we were to sit back and consider this idea, it’s unimaginable that we would consider using these products with such toxic warnings. Of course one says, well it hasn’t killed me yet. That is unfortunately only partially true. Cancer rates are the highest in our history. Asthma rates in children have more than doubled since the 1980’s and children with allergies has skyrocketed as well. We are seeing childhood cancer rates manifest younger and younger. This is because we now know that these toxic chemicals that we use daily are actually passing through the placenta during pregnancy and impacting the fetus and it’s development. Our children are growing up with a weaker immune system because of the exposures we have had in our lifetimes and unknowingly exposed them to. So how do we make changes? Scent free spaces are the first step in showing your fellow community member that they too are important in your sacred space. Scent free means no perfumes, or scented fabric softeners on your clothes. This is easily achievable and will dramatically open the doors to more people. There are many organizations, companies, jurisdictions, and faith communities that have done so already, and finding them for resources is only a web search away. NEWS Copyrighted © 2009 MCS America PAGE 18 Cleaning products have a massive impact, both on the users in the faith community and those in the space. Highly volatile and toxic cleaning products are simply not necessary for most of the cleaning required in a faith community. Kitchen spaces used do require a certain level of cleanliness as public health dictates. There are a few cleaning products available that are significantly safer than chlorine bleach (chlorine gas was used in World War One as a nerve agent) such as essential oil of thyme based products and hydrogen peroxide based products. The products with a Health Canada certification can be used in place of bleach for food preparation spaces. Also remember that hot water is an acceptable solution as well according to the guidelines. Talk to your public health inspector on healthier options and they may have solutions that others in your area have used. Share with your Greening Sacred Spaces network as well about what you have learned. Educate your own people. Many times older members will use a toxic product because they always have. That doesn’t make it safe, just ill informed. No one wants to hurt others with something as simple and inexpensive as cleaning products, so educate and change. If you are getting your supplies from a cleaning company, ask them for better solutions. You can even make your own recipes with baking soda and vinegar, which is something multigenerational activities are all about. The best part about switching cleaning products to more natural based ones is that it is typically cheaper, so saving money, the environment (less toxins down the drain) and making the place healthier for others is a great solution. For some faith communities the burning of candles or incense is common. Candles are typically MCSA made from paraffin, which is petroleum, with more petroleum products to give color and smell, with a lead dipped wick to finish it off. Consider the dark black smoke that rises when you blow a candle out. Have you ever seen a transport truck pull away from the corner and the same dark black smoke? It’s the same thing. Switch to beeswax or soy based candles for a healthier option. Incense can be a sensitizer and using the higher quality incense can help, as there are many toxic additives in the cheaper kinds that could cause a reaction. Ideally there may be times or parts of the space that incense is not burned so that those with sensitivities can still attend and not be impacted. There will still be people who are more sensitive and these measures may not be enough. Solutions can be found for those communities who are inclusive and interested in reaching out to their congregation, ensuring every one of their members have the ability to attend and share in their sacred community. *Reprinted with permission. www.faith-commongood.net. Original source http:// Stephen Collette is an Environmental Building Consultant and owner of Your Healthy House. Stephen carries out indoor environmental inspections and building consulting to make spaces healthier and greener for all to enjoy. Stephen is also part of Faith and the Common Good. Stephen can be reached at www.yourhealthyhouse.ca [email protected] 705-652-5159 NEWS Copyrighted © 2009 MCS America PAGE 19 Article A Warm Thanksgiving "For an estimated 46 million Americans, chemical sensitivity throws another wrench in the works.” The holidays bring many emotions. Most people look forward to sharing joy with children and family. Some feel sad as they remember deceased relatives or a partner from a broken relationship who attended celebrations in the past. Shopping, travel, traffic, and preparations can often add extra anxiety and stress. And it doesn’t stop there. For an estimated 46 million Americans, chemical sensitivity throws another wrench in the works. Roughly 15% of the population experiences some level of sensitivity to multiple chemicals which reduces blood flow to the brain and leads to various neurological, endocrine, and immune symptoms upon exposure to common fragrances, pesticides, and other toxic chemicals. The exposure need not be great. The definition of MCS is such that symptoms occur to small amounts of chemicals normally deemed as a safe exposure level. Another person’s perfume or scented lotion, as well as a recent pesticide application, could bring on symptoms. MCSA Of the 46 million Americans who experience chemical sensitivity, approximately 9 million have been diagnosed with multiple chemical sensitivity (MCS). For those diagnosed with MCS, the condition has generally advanced to a disabling point. Many are no longer able to tolerate work, shopping, school, and church environments. Thanksgiving brings everyone joy, sadness, stress, anxiety, and other emotions. Besides all of this, a person with MCS also struggles to merely be a part of the festivities. For those with MCS, Thanksgiving may also bring profound rejection and loneliness. Rejection occurs when family and friends are not willing to make small changes to accommodate a person with MCS. If loved ones are willing to make accommodations, they are not always successful for various reasons. Loneliness occurs, as a result of rejection when person with MCS is not accommodated for one reason or another or is unnecessarily excluded from celebrations. Sometimes exclusion includes denigration and harsh accusations of making more of exposures than there really is. Many people with MCS recount being told that they just don’t want to attend. Far from the truth, most very much want to participate in life, work, school, and social gatherings. NEWS Copyrighted © 2009 MCS America PAGE 20 Ten Holiday Ideas to Accommodate People with MCS “Ask the person with MCS what you can 1. Make the gathering a fragrance free event for everyone’s health. • No perfume, cologne, scented lotions, aftershaves, and hair products. • Provide showers and unscented soap for guests in case they forget. • Provide unscented robes or cover-ups in the event clothing is scented. • Remove all air fresheners, candles, and other scented items from the home/facility. 2, Hold the even outdoors if weather permits. 3, Run an air filter to help filter chemicals out of the air. prepare 4, Open opposite windows for cross ventilation and air exchange. Turn the heat up if necessary. especially for 5. Ask the person with MCS what you can prepare especially for them with any food sensitivities in mind. You may find that everyone loves it! them with 6. Make an extra effort to include the person with MCS and make them feel welcome while treating them normally (they have MCS, but they also have other interests). any food sensitivities in mind.” 7. Do not tell a person to remove a needed mask or oxygen supply for the comfort of other guests. Allow the person with MCS to wear a mask or respirator and alert guests ahead of time so they are prepared. 8. Watch for reactions to chemicals and be careful not to misinterpret the behavior of person with MCS. Nervous appearing behavior, excessive talking, grogginess, repetitive movements, leaving the room, and other unusual behavior may be a sign of a reaction to the environment. 9. If a person with MCS does have a bad reaction, ask what you can do to help. 10. Have fun! MCSA NEWS Copyrighted © 2009 MCS America PAGE 21 Ten Holiday Ideas for Those with MCS “Speak 1. Start planning and shopping early by making a to do list. 2. Avoid the stress, crowds, exposures, and hassles of shopping by employing alternatives such as buying gifts online. to your friends and family in advance to outline your needs and make plans.” 3. Take care of yourself by sticking to your normal foods and routine. 4. When entertaining, stipulate the rules on party invitations. • If no fragrances are allowed, provide safe clothing and shower access for guests to use when arriving. • If you don’t want to entertain all night, be sure to specify the time the party ends. • Ask guests to bring a pot luck dish to reduce energy expended cooking and cleaning up. • Ask guests to help out. 5. When going to a gathering away from home: • If dietary needs may not be met, bring a dish of food that you tolerate to eat and share with others. • Bring your own vehicle and make a short appearance at a gathering if you are unable to stay for the duration or your family wishes to stay longer. • If fragrances are of concern, wear layered clothing or a cover-up and bring a mask. A paraplegic would not show up without a wheel chair. You should not show up without your medical equipment either. 6. Plan to do nothing or lighten your schedule a few days before and after an event. 7. Just say no. It’s okay to pass on activities and outings, especially if accommodations will not be made for you. Your first priority is you. 8. Speak to your friends and family in advance to outline your needs and make plans. 9. Avoid making commitments you may not be able to keep. This will lessen the pressure you feel and you’ll win more points if you say maybe and no show than if you say yes and no show. And if you happen to show up in spite of “maybe”, everyone will be delighted. 10. Pace yourself. It’s better to enjoy only one activity than be in bed for two weeks because you attempted several activities. MCSA NEWS Copyrighted © 2009 MCS America PAGE 22 Scientific Study Thimerosal in Vaccines Linked to Slowed Neurological Response Just days after receipt of a 2009 flu shot, Desiree Jennings, a Washington Redskins Ambassador, developed dystonia brought on by the vaccine according to her doctors at John’s Hopkins. Dystonia is a rare, incurable neurological condition which causes body jerks and abnormal or repetitive movements that is brought on by infections, brain trauma, or a reaction to medications. of the adverse effects of mercury on the brain, where mercury collects and stores. Previously, blood mercury level was thought to be a good indicator for whether the body cleared mercury. Since mercury leaves the blood readily, thimerosal was thought to be a safe vaccine preservative. However, studies have now shown that blood mercury may not be a good indicator Burbacher, TM, Shen, DD, Liberato, N, Grant KS, Cernichiari, E, Clarkson, T. Comparison of Blood and Brain Mercury Levels in Infant Monkeys Exposed toMethylmercury or Vaccines Containing Thimerosal. Environmental Health Perspectives. August 2005, 113(8):1015. Thomas Burbacher and colleagues cite, “Although little accumulation of mercury in the blood occurs over time with repeated vaccinations, accumulation of mercury in the brain of infants will occur. Thus, conclusion regarding the safety of thimerosal drawn from blood mercury clearance data in human inDespite repeated denials from pharmaceutical fants receiving vaccines may not be valid, given the companies, thimerosal, a mercury containing vac- significantly slower half-life of mercury in the brain cine preservative, remains suspect in autism, as observed in infant macaques." dystonia, and other neurological disorders which commonly result from the administration of vac- Just one study was done on the safety of cines. Though the public is led to believe vac- thimerosal in humans back in the 1920’s and the cines are safe, an examination of the inserts that use of thimerosal has been based on an assumption, come with vaccines from the manufacturers re- rather than a proof, that it is safe. Parents ought to veals the risks may be much greater than com- closely examine the safety and ingredients of vaccines and the availability of alternate preparations monly purported. before consenting to vaccination of their child. Full A new study has replicated previous studies, information and disclosure is paramount to inshowing that rhesus macaques monkeys given formed decisions. single neonatal dose of thimerosal containing Hepatitis B vaccines have abnormal neurological References reflexes when compared to monkeys given a sa- Hewitson, L, House, LA, Stogg, C, Sackett, G, Tomko, JL, Atwood, D, Blue, L, White, W, and line placebo or no injection. Wakefield, AJ. Delayed Acquisition of Neonatal Lower gestational age and lower birth weight Reflexes in newborn Primates receiving A both worsened the negative health effects of the Thimerosal-containing Hepatitis B Vaccine. Neutox 1068. doi:10.1016/j.neuro.2009.09.008 vaccine. MCSA NEWS Copyrighted © 2009 MCS America PAGE 23 Scientific Study Chemical Induced Brain Dysfunction Shown in Multiple Chemical Sensitivity Some of the earliest research done on people with multiple chemicals sensitivity (MCS) involved brain images taken before, during, and after chemical exposure. These early studies consistently showed lower baseline blood flow to the brain which worsened during low-level chemical challenges, leading to the conclusion that chemical exposure caused neurocognitive impairment in this population. Researchers in Spain repeated this procedure with chemical products at non-toxic concentrations and compared patients diagnosed with MCS to those without MCS. The MCS patients consistently showed reduced baseline blood flow to the brain, which worsened after the chemical challenge, again supporting the earlier findings. People with MCS experience neurological and other symptoms upon exposure to minute amounts of chemicals found in fragrances, pesticides, and other common chemicals. perfusion (blood flow). Individuals with chronic symptoms show long-term reduced blood flow to the brain and reduced ability of the brain to take up a tracer substance in the early phase of injection, indicating a pattern of neurotoxic metabolic abnormality. Over 90% of MCS patients exhibit a pattern of neurotoxic metabolic abnormalities in the brain that is consistent with toxic encephalopathy, but that is not consistent with the changes associated with previously implicated psychiatric diseases. SPECT brain scans on MCS patients with chronic symptoms following toxic exposure to various petrochemical, perfume, and related compounds have provided researchers evidence to support an organic, biological basis to MCS when compared with healthy control subjects. SPECT scans have uncovered blood flow alterations in patients with fibromyalgia, typically involving increased uptake of tracer substances, leading researchers to questions whether fibromyalgia may also be a toxicological disease of a different nature. Orriols and colleagues say these findings support the “poorer quality of life and neurocognitive function at baseline, and neurocognitive worsening after chemical exposure” experienced by people with MCS. Chemicals appear to be capable of altering brain function in a significant way. This alteration of brain function seems to be responsible for the many neurocognitive effects of MCS. The method used for the brain scans is known as SPECT (Single Photon Emission Computerized Tomography) technology. SPECT performs brain scans which record brain functioning by measuring Reference Orriols R, Costa R, Cuberas G, Jacas C, Castell J, Sunyer J. Brain dysfunction in multiple chemical sensitivity. J Neurol Sci. 2009 Oct 2. MCSA NEWS Copyrighted © 2009 MCS America PAGE 24 Scientific Study Multiple Chemical Sensitivity Greatly Impacts Life and Function “The average experience with the healthcare system is rated poorly.” MCSA Often misunderstood as suffering from an annoying allergy, people with multiple chemical sensitivity actually struggle with disabling neurological symptoms when they are exposed to small amounts of perfume, fragrance, pesticides, and other common airborne chemical products tolerated by most. Researchers have suggested that MCS is a chronic and disabling condition, unlike a mere annoyance from an allergy which most of us are able to understand more easily. Skovbjerg and colleagues were interested in the details of the impact of MCS on everyday life in men and woman who have had MCS for at least one year. symptoms by this population. “If my doctor won’t even acknowledge my symptoms,” says one woman with MCS, “how can he treat them?” Another woman says, “Since I’ve had MCS, I find that when I go to the doctor to get treatment, they always redirect the visit to something else they understand better that I didn’t come in for, like blood pressure or weight. It’s like they don’t know what to do for the MCS, so they ignore it instead of just saying they don’t know or referring me to a specialist who might know. It’s frustrating and dehumanizing. The doctor’s lack of knowledge affecting his psyche is not of my concern. He should be honest if he’s inexperienced in toxicology.” Skovbjerg says, “MCS may severely influence different aspects of everyday Skovbjerg says further research is life, including lifestyle, social relations, needed to add to professional understanding of MCS in order to provide and occupational conditions.” more satisfactory healthcare. In the The most common coping strategy is meantime, many with MCS are left to to avoid common airborne chemicals keep trying new doctors and fend for and create a chemical-free living space. themselves while in a chronically disThis involves a reduction of both work abled state. and social activities, not to mention Reference daily tasks of living such as shopping. Skovbjerg S, Brorson S, Rasmussen A, The average experience with the Johansen JD, Elberling J. Impact of selfhealthcare system is rated poorly reported multiple chemical sensitivity among people with MCS, largely due on everyday life: a qualitative study. to physician’s lack of adequate training Scand J Public Health. 2009 Aug;37 in toxicology and, thus, dismissal of the (6):621-6. Epub 2009 May 1. NEWS Copyrighted © 2009 MCS America PAGE 25 Scientific Study CFS Linked to Retrovirus “CFS/ME has been linked to a newly discovered retrovirus known as XMRV.” MCSA By now the news that chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), has been linked to a newly discovered retrovirus known as XMRV. until now has been a diagnosis of exclusion with no specific diagnostic tests. Though many tests for cytokines and chemokines, among others can point to CFS/ME, it has only recently enjoyed better recognition. Researchers from the Whittemore Peterson Institute (WPI) at the University of Nevada and the Cleveland Clinic just published their finding in the journal, Science. There have been many cases of sufferers being accused of faking and being left unable to care for themselves in the mistaken belief that when they are hungry or have to go to the bathroom, “CFS/ME is a debilitating disease that they will get up. The identification of a affects millions of people in the United virus not only holds hope for better States,” according to the National In- diagnostics and less abuse of patients, but also for a possible cause and treatstitute of Health. ment to return patients to functioning. "We now have evidence that a retrovirus named XMRV is frequently pre- Current treatments are poorly rated sent in the blood of patients with CFS. by sufferers, largely because they are This discovery could be a major step only energy management and coping in the discovery of vital treatment op- techniques and not genuine medical tions for millions of patients," said treatments. Judy Mikovits, Ph.D., director of research for On the other hand, there is concern that the identification of XMRV is just a WPI. ploy for the pharmaceutical industry to The catch is that though sell expensive retroviral drugs. While there is an association this is possible, it’s unlikely as the founbetween XMRV and der of WPI has a daughter who has CFS, it is not yet proven suffered with CFS/ME for many years. that XMRV causes CFS. Part of the reason Whittemore founded the WPI was due to the lack This news brings mixed of understanding and lack of diagnostic reviews from the com- biomarkers for CFS/ME. munity. Whittemore has clearly cautioned that Some are enthusiastic this discovery in no way assures that that it may lead to an XMRV is the cause, just that it occurs easy blood test for diag- in a significant proportion of CFS/ME nosing CFS/ME, which patients when compared to controls. NEWS Copyrighted © 2009 MCS America PAGE 26 Legal SSDI Awarded for Mold Toxicity In a landmark case, a Social Security judge granted benefits for Kristina Townsend for a mold exposure which resulted in her disability in 2007. Townsend suffered both physical and cognitive impairments as a result of toxic mold exposure and is no longer able to work in any substantial gainful activity. She was awarded benefits dating back to 2007. Townsend’s physician testified that she was colonized with mold from a contaminated residence her employer provided while she was away from home on a temporary work assignment. A mycotoxin report confirmed elevated levels of trichothecene in the residence. Toxic mold exposure resulted in mycotoxiciosis, or toxic mold poisoning. Townsend now suffers form chemical sensitivity, fatigue, cognitive dysfunction, and other related injuries. Townsend was cleared of any primary mental health disorders in an assessment. Her symptoms have improved slightly and she is scheduled for a disability review next year. MCSA NEWS Copyrighted © 2009 MCS America PAGE 27 Scientific Study Aluminum Hydroxide in Vaccines Linked to Neurological Damage “Evidence shows that aluminum hydroxide, a vaccine adjuvant, leads to motor deficits and motor neuron degeneration.” MCSA Just days after receipt of a 2009 flu shot, Desiree Jennings, a Washington Redskins Ambassador, developed dystonia brought on by the vaccine according to her doctors at John’s Hopkins. Dystonia is a rare, incurable neurological condition which causes body jerks and abnormal or repetitive movements that is brought on by infections, brain trauma, or a reaction to medications. most likely culprit appears to be aluminum hydroxide,” says Shaw and Petrik, researchers at the Departments of Ophthalmology and Visual Sciences, University of British Columbia, Canada. Aluminum-treated mice in a new study showed significant neuronal degeneration and the presence of aluminum in the spine cord and cortex after being treated with aluminum hydroxide preparations. This resulted in motor As autism and Gulf War veterans with function impairment and reduced spafatigue and ailing health also abound, tial memory capacity. Americans increasingly question vaccine safety in the face of a pharmaceu- Shaw says the treated mice showed a tical industry and government which consistent “pathological hallmark of consistently dismiss their concerns various neurological diseases, including without providing any real evidence of Alzheimer's disease and frontotemporal dementia. The demonstrated neuvaccine safety and efficacy. rotoxicity of aluminum hydroxide and Now, scientific evidence shows that its relative ubiquity as an adjuvant sugaluminum hydroxide, a vaccine adju- gest that greater scrutiny by the scienvant used to increase the response of tific community is warranted.” the immune system, leads to motor deficits and motor neuron degenera- Aluminum hydroxide is a common vaction, which may be linked to Gulf War cine adjuvant and can be found, along Syndrome and amyotrophic lateral with mercury, in some flu vaccines. sclerosis (ALS), a multi-system disorder afflicting vet- Parents ought to closely examine the erans the 1990- safety and ingredients of vaccines and 1991 Gulf War. alternate preparations before consenting to vaccination of their child. “Possible causes of GWS include Reference several of the Shaw CA, Petrik MS. Aluminum hyadjuvants in the droxide injections lead to motor defianthrax vaccine cits and motor neuron degeneration. J and others. The Inorg Biochem. 2009 Aug 20. NEWS Copyrighted © 2009 MCS America PAGE 28 Resources Patient Support & Resources MCS Nebraska http://health.groups.yahoo.com/group/MCS-Nebraska Open to the general public residing in Nebraska to discuss support, MCSA Public ideas, information, announcements, and/or share personal activhttp://health.groups.yahoo.com/group/mcsa-public/ ism. No application is required. This list is operated in part by a Open to the general public open to discuss MCS, support, ideas, state subsidiary volunteer who resides in the state. information, announcements, news and activism. or subscribe at: MCS America Forums MCS America Members Activist/Support http://health.groups.yahoo.com/group/mcs-america-members-support MCS Michigan http://health.groups.yahoo.com/group/mcs-michigan Open to the general public residing in Michigan to discuss support, ideas, information, announcements, and/or share personal activism. No application is required. This list is operated in part by a state subsidiary volunteer who resides in the state. This group also fulfills the function of discuss support, ideas, information, announcements, and/or share personal activism like the MCSA-Pubic group, only with a closed membership that requires a membership application. This group also has the added benefit of being a place where individuals and other organizations and activists can engage in collaborative efforts with MCS America and being recipient to all the news feeds (see MCSA Feeds below). Members of this group are considered associate members of MCS America. Members do not operate MCS America in any way, but rather collaborate with the organization and are privy to some internal operations, activities, and events. 4Mom http://groups.yahoo.com/group/4MOM/ MCSA Feeds According to Mt. Sinai Medical School, there are many illness' http://health.groups.yahoo.com/group/mcsafeeds caused by toxic substances such as pesticides. They are studying the The purpose of this public access group is to receive daily distribu- role other toxins play on the new childhood diseases triggered by tion of news and research studies on multiple chemical sensitivity, environmental factors. They call this the new epidemic. Mothers of chemical injury, environmental concerns, and other related environ- Many is for all parents with children who are ill and are affected by mental illnesses and disorders. Anyone can join without an applica- toxic chemicals such as Attention Deficit Disorder, Asthma, Cancer, tion. Only the moderator posts to this group. This is not a discus- Autism, Tourettes Syndrome, Multiple Chemicals Sensitivities sion group. This group distributes about 15 articles on average (MCS), Parkinson's, and any other condition affected. each day. Bay Area MCS MCS Salvage and Share http://health.groups.yahoo.com/group/bayareamcslist/ http://health.groups.yahoo.com/group/MCSA-safer-salvage-and-share Classified ads and notices for people with MCS (Multiple Chemical A public access group similar to Freecycle, except it's a free recy- Sensitivity) in the San Francisco Bay Area. cling program for safer reusable's geared towards individuals with MCS, CFS, FM, and other related disabilities correlated with the CFS CFIDS ME environment. The purpose of this program is to find, give, and recy- http://health.groups.yahoo.com/group/CFS_CFIDS_ME/ cle needed "safe" or "safer" items. All items are exchanged for free. This Group is to promote friendly discussion about places where Shipping cost are arranged between donor and recipient. Anyone people have gone and feel more or less recovered from CFS/ME/ can join without an application. CFIDS. Support Forums Outside the MCS America Network Multiple Chemical Sensitivities and Toxic Injury http://groups.google.com/group/mcs-ti This is a small non-Yahoo based group open to the general public to discuss MCS, support, ideas, information, announcements, news and activism. MCS Hawaii http://health.groups.yahoo.com/group/mcs-hawaii Open to the general public residing in Hawaii to discuss support, ideas, information, announcements, and/or share personal activism. No application is required. This group is currently recipient to all the news feeds (see MCSA Feeds above). This list is operated in part by a state subsidiary volunteer who resides in the state. MCSA Chemical Disability Australasian NETwork http://groups.yahoo.com/group/CDANET/ A Discussion/Chat/Mutual help list run by and for the chemically disabled. CMCS-EI Christian MCS, CFS, FM, and EI Group http://health.groups.yahoo.com/group/CMCS-EI/ We are a Christian group who have invisible illnesses. Creative Canaries Community http://health.groups.yahoo.com/group/CreativeCanariesCommunity This group is an online meeting place for creative artists with Chemical Sensitivities. NEWS Copyrighted © 2009 MCS America PAGE 29 Detox http://health.groups.yahoo.com/group/mcs-america-membersLive Chat at the Health and Environment Resource Center support http://www.herc.org/chat "Detox" is a group to serve chemically injured, environmentally ill, This chat room is not associated with any group. It is unmoderated multiple chemical sensitivity, and related illness such as chronic fa- and no password is required. Chat Times: Saturday - 7 pm ET, 6 pm tigue, candidiasis, hypoglycemia, lupus, and others. CT, 5 pm Mtn, 4 pm Pac; Monday - 9 pm ET, 8 pm CT, 7 pm Mtn, 6 pm Pac; Wednesday - 8 pm ET, 7 pm CT, 6 pm Mtn, 5 pm Pac. Disinissues http://groups.yahoo.com/group/Disinissues/ MCS Canada The purpose of Disinissues is to share experience and advice about http://health.groups.yahoo.com/group/MCS-Canada/ the processes of obtaining and maintaining Social Security Disability This group was formed to assist patients and concerned parties from Insurance (SSDI), Supplemental Security Income (SSI), and long-term all nationalities learn to cope with environmental injury, including disability insurance. The group is targeted mainly towards those with disorders such as MCS,ME, CFS, FM, Lyme, Lupus, GWS, PPS, as invisible disabilities, such as CFIDS and other conditions not on So- well as related and associated illnesses. cial Security's Listing of Impairments. MCS Canadian Sources EMF Refugee http://groups.yahoo.com/group/MCS-CanadianSources http://health.groups.yahoo.com/group/emfrefugee/ MCS Canadian Sources is a support, information and resource exThis ML has been created with the intent of bringing refugees to- change for those living and coping with Multiple Chemical Sensitivity gether in countries around the world to form their own EMF-free (MCS), Environmental Illness (EI), or Chemical Injury (CI). communities in natural environments where they can heal and create healing environments for the Earth and others. MCS Photography http://health.groups.yahoo.com/group/MCSphotography/ Environmental Illness 001 MCS Photography is for those with multiple chemical sensitivity who http://health.groups.yahoo.com/group/environmental_illness001/ capture and share the world and their life through photography. This group is dedicated to curing / resolving all issues related to Environmental Illness, including but not limited to: Multiple Chemical MCS Recycle Sensitivity (MCS), Multiple Food Allergy, Leaky Gut Syndrome, Can- http://groups.yahoo.com/group/MCSRecycle/ dida, Epstein Barr Virus, Chronic Fatigue, Fibromyalgia, Heavy Metal The objective of this group is to be able to share with each other Poisoning, Porphyria, endocrine system dysregulation, etc. items that are chemical free and have been used in a non-toxic environment. This group is planet-wide. eSens - Electrical Sensitivity http://health.groups.yahoo.com/group/eSens/ MCS Safe Shelter USA Do you feel ill when you're near computers, cell phones, fluorescent http://health.groups.yahoo.com/group/mcssafeshelterusa/ lights, or wireless internet? If so, you may have "electrical sensitivity". Short-term and long-term housing for people with MCS (Multiple Chemical Sensitivity). Check our database for listings by state. Find Gasslist-L (Glutaraldehyde, Aldehyde, and Solvent Sensitiv- rentals, hotels, and housing to purchase. ity) http://www.ncchem.com/snftaas/gasslist.htm MCS Singles This list has been established to serve persons interested in Glutaral- http://groups.yahoo.com/group/mcs-singles dehyde, Aldehyde, and Solvent Sensitivity, especially darkroom per- Addresses the unique challenges of living alone without help as a sonnel, radiographers, and diagnostic medical sonographers. The single with MCS. Examines solutions, provides a place for general purpose of the list is to promote internet-wide exchange of research discussion, and is a resource for peer support. and information. MCS Survivors Green Canary http://communityzero.com/mcsurvivors http://groups.yahoo.com/group/GreenCanary For those who experience environmental illness or multiple chemical This list is dedicated to a life free from toxic chemicals, and the sensitivities (MCS), here is a place to gather, exchange ideas, links to health problems that they can cause. helpful websites, even have live chats. Enjoy! Immune http://immuneweb.org/lists/immune.html This is the list for support and information about multiple chemical sensitivities, chronic fatigue syndrome, fibromyalgia, lupus, multiple sclerosis, porphyria, allergies, asthma, and other immune-related ailments. Immune Parenting http://groups.yahoo.com/group/immune-parenting/ This list is for both men and women who have Multiple Chemical Sensitivity, Chronic Fatigue Syndrome, Fibromyalgia, autoimmune disorders, or other immune system medical issues--or their partners--who are parents, pregnant, trying to conceive, or who are thinking about parenthood. MCSA MCS Toxic Injuries http://health.groups.yahoo.com/group/MCS-Toxic-Injuries/ MCS-Toxic-Injuries is a self-moderated, secular, apolitical newsgroup for toxically-injured environmentally sensitive people to support one another and exchange coping methods, treatments and experiences. MCS Village http://health.groups.yahoo.com/group/MCSVillage/ The purpose of this group is to discuss the feasibility of building a village(s) or community in which MCS/EI patients can live safely, and to provide a forum to discuss the legal, medical, geographic, architectural, social and funding issues. NEWS Copyrighted © 2009 MCS America PAGE 30 MCS Writers Group http://health.groups.yahoo.com/group/mcswritersgroup/ A place for writers who have chemical sensitivities (or chemical injury) to share their stories and articles, work on and develop public writing skills, exchange editing skills and perspective, and develop ideas in order to bring awareness and education to the published world about what it is like to live with MCS/ES/CI/EI. Midwest Oasis MCS E-mail Support http://health.groups.yahoo.com/group/MO-MCS/ Midwest Oasis MCS E-mail Support is the e-mail arm of the Midwest Oasis MCS Support Group. Although people from all geographical areas are welcome to join, a partial focus of this list will be discussion of regional issues affecting MCS (Multiple Chemical Sensitivity) in Missouri and other Midwestern states. those diseases that fall under the tenth paradigm. They include: Chronic Fatigue Syndrome (CFS/CFIDS/M.E.), Multiple Chemical Sensitivity (MCS), Fibromyalgia (FM/FMS), Post-Traumatic Stress Disorder (PTSD), and Gulf War Syndrome (GWS). The Sanctuary http://www.mcs-international.org/phpBB3/ MCS-International.Org's Holistic Support Forums For sufferers of Multiple Chemical Sensitivity and all other forms of Chemical Injury and Environmental Illness. Toxics Discussion http://groups.yahoo.com/group/ToxicsDiscussion/ If you're keen on a toxics-safe future for the planet, then this is the discussion group for you. Toxics are defined here as naturally occurring or man-made chemicals (elements/compounds/mixtures) that Multiple Chemical Sensitivity (Chemical Sensitivity, Porphy- have a toxic effect. rin & CO) http://health.groups.yahoo.com/group/MultipleChemicalSensitivity/ WSMCSN (Washington State MCS Network) Discussion group where people afflicted with Chemical Sensitivity, http://groups.yahoo.com/group/WSMCSN Chronic Carbon Monoxide Poisoning &/or Disorders of Porphyrin WSMCSN is a decentralized network of groups and individuals in Metabolism can talk about their illness, inquire with others on avoid- Washington State who share information about the issues of Multiance, methods of cleaning & products one can use for necessary ple Chemical Sensitivity. hygiene. Additional Forum Listing Webpage Old Dominion MCS-FMS_CFIDS Support Group A Vir- http://ww.mcs-america.org/forums ginia Fibro MCS CFIDS Group http://health.groups.yahoo.com/group/OldDominionMCS-FMS_CFIDSsupportgroup/ Physician & Dentist Referral Lists Too many people in Va. have Fibromyalgia, Myofascial Pain Syndrome, CFIDS, Gulf War Syndrome (GWS), ES, and Multiple Chemical Sensitivity. The group owner wanted to create an informative, Physician Referral List by State supportive group for Virginians, and others. http://mcs-america.org/doctorlist.pdf Some of the physicians on this list specialize in MCS, others in FM Planet Thrive and CFS. It is recommended that patients and doctors consult with http://www.planetthrive.com/ A dynamic online community for those activity seeking answers and one another prior to beginning any treatment to ensure understandsupport for a variety of health concerns. A place where people ing of the patient’s needs and compatibility of patient and physician. around the world help each other get well and stay well. Sick Buildings http://health.groups.yahoo.com/group/sickbuildings/ Toxic molds are running rampant in our homes, offices and schools. Exposure to mycotoxins has been linked to the death of infants, as well as immune-compromised adults. Despite increasing reports of mold-induced illness and health problems associated with mold exposure, our public health agencies offer little, if any support or funding for research into this growing problem. Dentist Referral List by State http://mcs-america.org/dentistlist.pdf Some of the dentists on this list are specifically familiar with MCS, others are not. It is recommended that patients and dentists consult with one another prior to beginning any treatment to ensure understanding of the patient’s needs and compatibility of patient and dentist. Sprayno http://groups.yahoo.com/group/sprayno/ This is a list to exchange information regarding environmental issues in the northern suburbs and NY metro area focusing especially on encouraging activism in this area and educating the public about toxic Air Now Air Quality Reports effects of pesticide/herbicide usage. http://www.airnow.gov/ Air Quality Reports Tenth Paradigm Society http://health.groups.yahoo.com/group/TenthParadigmSociety/ The Tenth Paradigm Society mailing list is for the dissemination and discussion of information concerning the NO/ONOO- cycle mechanism, a new paradigm of human disease, proposed by Martin L. Pall, Ph.D. Dr. Pall adopted the term "Multisystem Illness" to describe MCSA EPA State and Regional Indoor Environments Contact Information http://www.epa.gov/iaq/whereyoulive.html The National Association of Clean Air Agencies 4 Cleaner Air http://www.4cleanair.org/ NEWS Copyrighted © 2009 MCS America PAGE 31 American Lung Association: State of the Air http://lungaction.org/reports/stateoftheair2007.htm Current Local & National Allergy Levels http://pollen.com/Pollen.com.asp Scorecard: Pollution Index by Area http://www.scorecard.org/ Household Mold brochure from Quebec government http://publications.msss.gouv.qc.ca/acrobat/f/documentation/2002/02214-01A.pdf ILRU: Understanding & Accommodating People with MCS in Everyday Living http://mcs-america.org/ilru.pdf Indoor Air Chemistry http://mcs-america.org/indoorair.pdf Toxmap Hazardous Waste Site Locations http://toxmap.nlm.nih.gov/toxmap/main/index.jsp Interior Design and MCS http://mcs-america.org/interior.pdf USA Smoke/Fire Pollution Map http://www.firedetect.noaa.gov/viewer.htm Jill Mellum: Breathe Easier, Hold the Fragrances Brochure http://mcs-america.org/fragrancefacts.pdf Antenna Search (USA) http://mcs-america.org/index_files/www.AntennaSearch.com MCS Homebuyer’s Questionnaire http://mcs-america.org/Homebuyer'sQuestionnaire.pdf EPA Safe Drinking Water Information by State http://www.epa.gov/safewater/dwinfo/ MCS Task Force of New Mexico Brochure http://mcs-america.org/newmexico.pdf EPA Radon Zone Map http://www.epa.gov/radon/zonemap.html MCS Public Accommodations http://www.nettally.com/prusty/PUBLIC% 20ACCOMMODATIONS.pdf MCS Statistics http://www.mcs-america.org/MCSStatistics.pdf Brochures No Scents Makes Sense Brochure http://www.nb.lung.ca/pdf/NoScentsMakeSense.pdf Air Fresheners & Plug-Ins http://mcs-america.org/airfresh.pdf Chemical in Air Fresheners Reduces Lung Function http://mcs-america.org/lung.pdf Consequences of Childhood Chemical Injury Poster By Margaret S. O’Nan http://mcs-america.org/onan.pdf Electrosensitivity Brochure by Kato Yasuko http://mcs-america.org/KatoYasukoElectrosensitivityBrochure.doc Theory on the Cause of MCS: Peroxynitrite and Nitric Oxide http://www.mcs-america.org/cause.pdf Understanding Multiple Chemical Sensitivity http://www.mcs-america.org/understanding.pdf Use of Baking Soda as a Fungicide http://mcs-america.org/fungicide.pdf Vaccine Poster - Are We Poisoning Our Children? http://www.generationrescue.org/pdf/080212.pdf Fabric Softener http://mcs-america.org/fabricsoftener.pdf Visiting a Person with MCS http://mcs-america.org/visiting.pdf Fragrances http://mcs-america.org/fragrances.pdf Grandma’s Cupboard: General Cleaning Solutions http://www.mcs-america.org/general.pdf What you should know before visiting a person who has NRLA and/or MCS http://mcs-america.org/VisitingNRLA-MCS.pdf Grandma’s Cupboard: Kitchen Cleaning http://www.mcs-america.org/kitchen.pdf Signs Grandma’s Cupboard: Personal Care http://www.mcs-america.org/personal.pdf Acute Toxic Effects of Fragrances Business Card http://mcs-america.org/acutetoxiceffectsoffragrancescard.pdf Grandma’s Cupboard: Laundry http://www.mcs-america.org/laundry.pdf Chemical Awareness Ribbon http://mcs-america.org/ribbon.gif MCSA NEWS Copyrighted © 2009 MCS America PAGE 32 Electrosensitivity Sign - Please Turn Off Your Cell Phone http://mcs-america.org/ KatoYasukoElectrosensitivtySignTurnOffYourCellPhone.pdf Request for Accommodations Under the Americans with Disabilities Act http://www.mcs-america.org/RequestforAccomodation.doc Facemask on Tweety http://mcs-america.org/tweety.jpg Public Service Announcements Fragrance Free Sign: Brooks University http://www.brocku.ca/oehs/graphics/Fragrance_Free_Sign.pdf Public Service Announcement #1 Air fresheners have been pulled off thousands of shelves nation-wide! http://www.mcs-america.org/AirFreshenerPSA1.pdf No Scents Makes Sense Sign http://mcs-america.org/scentssign.pdf Public Service Announcement #2 When you use fragranced products, did you know you are wearing toxic chemicals!? http://www.mcs-america.org/ WhenYouUseFragrancedProductsPSA2.pdf No Latex Sign by Jane Sagmoe http://mcs-america.org/nolatex.JPG You Could Be Next Sign http://mcs-america.org/nextsign.pdf Want to Put Your Friends and Family in Jail? http://mcs-america.org/jail.pdf Wood Smoke Trespass Flyer 8 1/2 x 11 http://mcs-america.org/woodsmokeflyer.pdf Activist Materials Fragrances on Mail and/or Catalogs http://mcs-america.org/ FragrancedMailCatalogBillsLetterforActivists.doc Air Freshener Use http://www.mcs-america.org/customairfreshenerletter.doc Use of Fragrance, Cologne, and Perfume http://mcs-america.org/UseofFragranceLetterforActivists.doc Fabric Softener Emissions http://www.mcs-america.org/LetterAboutFabricSoftener.doc Letter to State Representatives to Ban Woodsmoke http://mcs-america.org/woodsmoke.doc Letter to Doctors and Medical Boards Supporting MCS as a biological Illness (fully cited and scientifically supported) Website: http://mcs-america.org/MCSPositionStatement.htm PDF: http://mcs-america.org/MCSPositionStatement.pdf *This work is copyrighted. Permission granted for personal use in activism provided that original copyright and authorship are maintained. For permission to reprint, mail [email protected]. MCSA Public Service Announcement #3 Secondhand Fragrances are Like Secondhand Smoke! http://www.mcs-america.org/SecondHandFragrancesPSA3.pdf Public Service Announcement #4 Scented laundry detergents and fabric softeners pollute indoor and outdoor air! http://www.mcs-america.org/ScentedLaundryDetergentsPSA4.pdf Public Service Announcement #4 (SPANISH) Scented laundry detergents and fabric softeners pollute indoor and outdoor air! http://mcs-america.org/mcsamerica/ ScentedLaundryDetergentsPSA4Spanish.pdf Public Service Announcement #5 Wood Smoke... The Other Secondhand Smoke! http://www.mcs-america.org/WoodSmokePSA5BurningIssues.pdf Public Service Announcement #6 Fragrances undermine public health! http://www.mcs-america.org/FragrancesPSA6.pdf Public Service Announcement #7 Fragranced Laundry Products Pollute Our Air http://mcs-america.org/PSA7FragrancedLaundry.pdf Clothing & Novelties for Activism MCS America Store for the Environment http://www.mcs-america.org/MCSstore..htm Zona’s T-Shirts and Stuff Zone http://members.shaw.ca/zonaszone/shop/tshirts.html NEWS Copyrighted © 2009 MCS America PAGE 33 Virtual & Work-at-Home Jobs Guide, About .com http://beaguide.about.com/ Agent, Staffing at Home http://www.staffingathome.com/ Guide, ChaCha http://www.chacha.com/ Agent, West at Home http://www.westathome.com/ Home Agent, Convergys http://www.convergysworkathome.com/ Agent, Working Solutions http://www.workingsol.com/home.htm Independent Call Center Agent, LiveOps http://tinyurl.com/5xfv7n Bolger, PayPerPost.com http://payperpost.com/blogger_signup.html Telemarketing, Intrep Sales Partners http://www.intrep.com/ Call Center Representative, Accolade Support http://www.accoladesupport.com/ Online Juror, eJury.com http://www.ejury.com/ Call Center Representative, Overflow USA http://www.overflowusa.com/ Online Juror, OnlineVerdict.com http://onlineverdict.com/ Call Center Representative, Overflow USA http://www.overflowusa.com/ Online Juror,Trial Practice Inc. http://trialpractice.com/ Caller Employee, Customer Loyalty Concepts http://www.customloyal.com/Employment.aspx Third Party Verifier, BSG Payments LLC http://tinyurl.com/4vcldx Chef Instructor, Chefs Line http://www.chefsline.com/ Virtual Assistant,Virtual Office Temps http://virtualassistantjobs.com/ Customer Care,VIP Desk http://www.vipdesk.com/info/default.asp Virtual Services, Arise Virtual Solutions http://www.arise.com/Content/default.asp Customer Service, Alpine Access http://www.alpineaccess.com/external/index.html Writer, Associated Content http://www.associatedcontent.com/ Editor, EditFast.com http://www.editfast.com/ Writer, CyberEdit Inc. http://www.cyberedit.com/ Expert, JustAnswer Corp http://www.justanswer.com/ Writer, MyEssays.com http://www.myessays.com/sell.php Freelancer,Team Double-Click http://www.teamdoubleclick.com/freelance.html MCSA National Telecommuting Institute, Inc. http://www.nticentral.org/ NEWS Copyrighted © 2009 MCS America PAGE 34 Environmentally Safer Housing Seagoville Ecology Housing 15126 Beckett Road Allergy And Environmental Health Association Of Quebec Seagoville, Texas 75159 (AEHAQ) Environmentally Adapted, Social Housing Pro- (972) 287-2059 Fax: (972) 287-7682 ject For People Suffering From Environmental Sensitivities http://www.ehcd.com/resources/ecologyhousing.html http://www.aeha-quebec.ca/bb_housingproject.htm The Natural Place Environmental Residence and Hotel Barrhaven Non-Profit Housing Inc. 1962 NE 5th St. Environmental Sensitivity Units Deerfield Beach, FL 33441 Steepleview Crossing, 954-428-5438 3001 Jockvale Road, Nepean, Ontario, K2J 4E4 http://www.thenaturalplace.com/default.htm (613) 823-6230 Fax: (613) 825-7724 http://ehaontario.ca/barrhaven-housing.htm http://www.bnphi.org/es.htm Safer Building & Regulations Canada-wide Housing Connection 1-613-278-0463 http://ehaontario.ca/interview.htm Alliance for Healthy Homes http://www.afhh.org/ Ecology House, San Rafael, California (built in 1994) 375 Catalina Blvd San Rafael, CA 94901 (415) 456-4453 http://www.tikvah.com/cc/eh [email protected] Escalante House P.O. Box 652 Escalante UT 84726 Phone/Fax: (435) 826-4778 [email protected] American Lung Association: Resources & Referrals for and from the Master Home Environmentalist program. http://tinyurl.com/5vvk9e Architectural House Plans Healthy Homes Construction Guidelines Information: http://tinyurl.com/6dteuz Booklet: http://www.architecturalhouseplans.com/products/ Assessment of the Indoor Air Quality of a Suite for an Environmentally Hypersensitive Occupant http://mcs-america.org/IAQforanEIOccupant.pdf Environmentally Friendly Housing Partnership Pride and Joy Condos -- North 5685 South A1A Highway Melbourne Beach, FL 32951 (321) 409-8233 - Phone (321) 725 4883 -- FAX http://www.prideandjoycondos.com/ [email protected] Considerations For Safer Construction And Renovation By Preston Sturgis http://www.environmentalhealth.ca/w9394safer.html Dr. Grace Ziem’s Environmental Control Plan for MCS Patients http://www.mcsrr.org/resources/articles/S3.html The Eco Building Guild http://www.ecobuilding.org/ Green Homes for Sale http://greenhomesforsale.com/ The Effect of Housing on Individuals with Multiple Chemical Sensitivities http://tinyurl.com/6gor7u Safe Haven Community Housing P.O. Box 25281 Portland, Oregon 97298 [email protected] http://www.geocities.com/safehavencommunity/#ntact Building for Health Materials Center http://www.buildingforhealth.com/ The Pandora Initiative (Canada) http://tier10.com/ Environmental Home Center http://tinyurl.com/5ssv8a Quail Haven - MCS Housing Just North of Tucson, AZ Call Diane Ensign for details: May through January call: (406) 586-3658 (Montana). January through May call: (520) 825-7276 (Tucson). http://madelinx.tripod.com/ MCSA NEWS Copyrighted © 2009 MCS America PAGE 35 Heal Your Home Center http://tinyurl.com/6dteuz U.S. Department of Housing and Urban Development National Healthy Homes Conference http://www.hud.gov/offices/lead/2008NHHC.cfm The Healthy Housing Coalition: Basic Needs for Rental Housing for Chemically Sensitive Persons http://www.herc.org/hhc/Basicrentalneeds.html U.S. Department of Housing and Urban Development Healthy Housing Reference Manual http://tinyurl.com/5apna5 Healthy Housing Practical Tips http://tinyurl.com/5bfgzd Builders and Building Material Suppliers IEQ Indoor Environmental Quality http://ieq.nibs.org/ieq_project.pdf International Institute for Building Biology and Ecology http://www.buildingbiology.net/ LEED® Canada Green Building Rating System http://www.cagbc.org/leed/systems/index.htm The Medical Perspective on Environmental Sensitivities: Building codes, regulations and guidelines http://tinyurl.com/6ztmqh Moving House - Things To Look For If You Suffer From MCS http://www.drmyhill.co.uk/article.cfm?id=147 Multiple Chemical Sensitivity (MCS): The Controversy and Relation to Interior Design http://www.idec.org/publication/JIDarticleMCS.pdf Optimum Environments for Optimum Health &Creativity: Designing and Building a Healthy Home or Office, William J. Rea, M.D. http://www.ehcd.com/books/home_building_designing.html Recommended Architectural Features for Multi-Family Housing to Better Accommodate Chemical and Electrical Sensitivities, Susan Molloy, M.A, http://www.ctaz.com/~bhima/recommcshous.htm Research House for the Environmentally Hypersensitive http://tinyurl.com/5prrv3 Safer Construction Tips for the Environmentally Sensitive http://tinyurl.com/5tgx7l Green Building Store http://www.greenbuildingstore.co.uk/naturalpaints.php Healthy Buildings, Inc (Air Quality Testing) http://www.healthybuilding.com/html/about_us.html Heating and Cooling Options for the Environmentally Sensitive http://eiwellspring.org/HeatingAndCooling.htm Resources for the Chemically Injured: Building Materials http://www.lassentech.com/eibuld.html Tad Taylor’s Healthy Homes, LLC http://www.healthy-homes.com/ Other Housing Resources Extreme Home Makeover http://abc.go.com/primetime/xtremehome/index?pn=apply Ontario Human Rights Code: Policy and Guidelines on Disability and the Duty to Accommodate Non-Evident Disabilities http://tinyurl.com/6ejep8 Residential Rehabilitation Assistance Program for Persons with Disabilities (Canada). http://www.cmhc-schl.gc.ca/en/co/prfinas/prfinas_003.cfm Understanding & Accommodating People with Multiple Chemical Sensitivity in Independent Living, Chapter 4, The Housing Challenge in MCS http://www.ilru.org/html/publications/bookshelf/MCS.html#chapter4 Disclaimer This data is for informational purposes and is not intended to replace the examination, diagnosis and treatment of a licensed physician and no such claims are inferred. MCS America will not be responsible for misuse of this information or the misuse of any information provided by it’s member organizations. Articles, citations, links and information are not necessarily the opinion of MCS America and printing does not constitute MCS America’s endorsement. MCSA NEWS Copyrighted © 2009 MCS America PAGE 36 Community News Subscribe to News & Media Articles To receive free daily news and research feeds about MCS & the environment as they happen, send an e-mail to: [email protected] Everyday chemicals gather in most people http://www.adn.com/life/health/story/977595.html US town uses goats to clear overgrown meadow through grazing, save mowing money http://www.cbc.ca/cp/Oddities/091017/K101706AU.html Petition takes aim at chemical drift http://www.pjstar.com/news/x795735041/Petition-takes-aim-at-chemical-drift Smog Tougher on the Obese http://www.cbc.ca/cp/HealthScout/091016/6101625AU.html How to Avoid PVC in Plastic Food Wrap http://thesoftlandingbaby.com/2009/10/16/how-to-avoid-pvc-in-plastic-food-wrap/ Tests on Pesticides Criticized http://www.latimes.com/news/nationworld/nation/wire/sns-dc-pesticides-omb,0,5782714,print.story UJudge Halts Flu Vaccine Mandate For Health Workers http://wcbstv.com/breakingnewsalerts/mandatory.h1n1.vaccine.2.1252672.html Momentum builds for tighter regulation of industrial chemicals http://michiganmessenger.com/27861/momentum-builds-for-tighter-regulation-of-industrial-chemicals Common Herbicides Block Important Nutrient Sensor in Humans http://www.beyondpesticides.org/dailynewsblog/?p=2559 Air Pollution Worse On One Side Of The Street http://www.sciencedaily.com/releases/2009/10/091005102643.htm Virus Is Found in Many With Chronic Fatigue Syndrome http://www.nytimes.com/2009/10/09/health/research/09virus.html?_r=1&hpw MCSA NEWS Copyrighted © 2009 MCS America PAGE 37 Featured Research Studies Low home ventilation rate in combination with moldy odor from the building structure increase the risk for allergic symptoms in children. Hägerhed-Engman L, Sigsgaard T, Samuelson I, Sundell J, Janson S, Bornehag CG. Indoor Air. 2009 Jun;19(3):184-92. Epub 2009 Mar 9. Department of Building Physics and Indoor Environment, SP Technical Research Institute of Sweden,Borås, Sweden. [email protected] There are consistent findings on associations between asthma and allergy symptoms and residential mold and moisture. However, definitions of 'dampness' in studies are diverse because of differences in climate and building construction. Few studies have estimated mold problems inside the building structure by odor assessments. In a nested case-control study of 400 Swedish children, observations and measurements were performed in their homes by inspectors, and the children were examined by physicians for diagnoses of asthma, eczema, and rhinitis. In conclusion, we found an association between moldy odor along the skirting board and allergic symptoms among children, mainly rhinitis. No associations with any of the allergic symptoms were found for discoloured stains, 'floor dampness' or a general mold odor in the room. A moldy odor along the skirting board can be a proxy for hidden moisture problem inside the outer wall construction or in the foundation construction. There are indications that such dampness problems increase the risk for sensitization but the interpretation of data in respect of sensitization is difficult as about 80% of the children with rhinitis were sensitized. Furthermore, low ventilation rate in combination with moldy odor along the skirting board further increased the risk for three out of four studied outcomes, indicating that the ventilation rate is an effect modifier for indoor pollutants. PRACTICAL IMPLICATIONS: This study showed that mold odor at the skirting board level is strongly associated with allergic symptoms among children. Such odor at that specific place can be seen as a proxy for some kind of hidden moisture or mold problem in the building structure, such as the foundation or wooden ground beam. In houses with odor along the skirting board, dismantling of the structure is required for an investigation of possible moisture damage, measurements, and choice of actions. In homes with low ventilation in combination with mold odor along the skirting board, there was even a higher risk of health effects. This emphasizes the need for the appropriate remediation as this is an ever increasing problem in poorly ventilated houses that are damp. PMID: 19298228 [PubMed - indexed for MEDLINE] MCSA NEWS Copyrighted © 2009 MCS America PAGE 38 Elevated insular glutamate in fibromyalgia is associated with experimental pain. Arthritis Rheum. 2009 Sep 29;60(10):3146-3152. Harris RE, Sundgren PC, Craig AD, Kirshenbaum E, Sen A, Napadow V, Clauw DJ. University of Michigan, Ann Arbor. OBJECTIVE: Central pain augmentation resulting from enhanced excitatory and/or decreased inhibitory neurotransmission is a proposed mechanism underlying the pathophysiology of functional pain syndromes such as fibromyalgia (FM). Multiple functional magnetic resonance imaging studies implicate the insula as a region of heightened neuronal activity in this condition. Since glutamate (Glu) is a major cortical excitatory neurotransmitter that functions in pain neurotransmission, we undertook this study to test our hypothesis that increased levels of insular Glu would be present in FM patients and that the concentration of this molecule would be correlated with pain report. METHODS: Nineteen FM patients and 14 age- and sex-matched pain-free controls underwent pressure pain testing and a proton magnetic resonance spectroscopy session in which the right anterior insula and right posterior insula were examined at rest. RESULTS: Compared with healthy controls, FM patients had significantly higher levels of Glu (mean +/- SD 8.09 +/- 0.72 arbitrary institutional units versus 6.86 +/- 1.29 arbitrary institutional units; P = 0.009) and combined glutamine and Glu (i.e., Glx) (mean +/- SD 12.38 +/- 0.94 arbitrary institutional units versus 10.59 +/- 1.48 arbitrary institutional units; P = 0.001) within the right posterior insula. No significant differences between groups were detected in any of the other major metabolites within this region (P > 0.05 for all comparisons), and no group differences were detected for any metabolite within the right anterior insula (P > 0.11 for all comparisons). Within the right posterior insula, higher levels of Glu and Glx were associated with lower pressure pain thresholds across both groups for medium pain (for Glu, r = -0.43, P = 0.012; for Glx, r = 0.50, P = 0.003). CONCLUSION: Enhanced glutamatergic neurotransmission resulting from higher concentrations of Glu within the posterior insula may play a role in the pathophysiology of FM and other central pain augmentation syndromes. PMID: 19790053 [PubMed - as supplied by publisher] MCSA NEWS Copyrighted © 2009 MCS America PAGE 39 Quantitative volatile metabolite profiling of common indoor fungi: relevancy for indoor air analysis. Schuchardt S, Kruse H. J Basic Microbiol. 2009 Aug;49(4):350-62. Institute of Toxicology and Pharmacology for Natural Scientists, University Medical School Schleswig-Holstein, Kiel, Germany. [email protected] Microorganisms such as bacteria and molds producean enormous variety of volatile metabolites. To determine whether typical microbial volatile metabolites can be used as indicator compounds for the detection of hidden mold in indoor environments, we examined 14 typical indoor fungal strains for their growth rates and their capability to produce volatile organic compounds (VOC) on standard clinical media and on agar medium made from building materials. Air samples from Headspace Chambers (HSC) were adsorbed daily on Tenax TA tubes and analyzed by thermal desorption gas chromatography and mass spectrometry. In parallel, metabolic activity was measured by determining oxygen demand, the microbial biomass was assessed by dry weighing. Profiling of the volatile metabolites showed that VOC production depended greatly on fungal strain, culture medium, biological activity, and time. The laboratory-derived maximum emission rates were extrapolated to approximate indoor air concentrations in a hypothetical moldinfested room. The extrapolated indoor air data suggest that most of the microbial-produced VOC concentrations were below the analytical detection limit for conventional indoor air analysis. Additionally, conducted indoor air analysis in mold homes confirmed these findings for the most part. The present findings raise doubts about the utility of indicator VOC for the detection of hidden mold growth in indoor environments. 2009 WILEY-VCH Verlag GmbH & Co. KGaA, Weinheim. PMID: 19219900 [PubMed - indexed for MEDLINE] This newsletter is for informational purposes and is not intended to replace the examination, diagnosis and treatment of a licensed physician and no such claims are inferred. Articles are not necessarily the opinion of MCS America and printing of others’ opinions does not constitute endorsement. MCS America, Lourdes Salvador, Directors, and associate members of MCS America will not be responsible for misuse of this information. We welcome appropriate submissions for articles, letters-to-the-editor, poetry, artwork, jokes, cartoons, photos, and whatever else is physically printable. Submissions may be sent to [email protected]. We attempt to publish monthly. Contact Us: [email protected] To subscribe to this free newsletter, send an email to: [email protected] MCSA NEWS Copyrighted © 2009 MCS America
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