The Voice, Summer 2015 - Alzheimer Society of Ireland
Transcription
The Voice, Summer 2015 - Alzheimer Society of Ireland
The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 This Issue • FORGET THE STIGMA CAMPAIGN •staff development • Autumn draw 2015 • ASI SERVICES • THE AZURE PROGRAMME • News from around the country The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 Message from the CEO Welcome to the Summer edition of The Voice. We are halfway through the year already, and the first 6 months have been extremely busy. On 1st April, we had the first meeting of the National Dementia Strategy Monitoring Group which is being coordinated by the Department of Health. The Monitoring Group, of which ASI is a member, is working to ensure the views of people living with dementia and their family carers are represented. The Forget the Stigma Campaign was launched by Minister Kathleen Lynch on 3rd June in Dublin. This great campaign included images of ASI advocates, Helen Rochford Brennan, Kathy Ryan & Sean Donal O’Shea at Bus & Dart stations in Galway, Cork & Dublin. We hope you have all signed the pledge to Learn, Listen & Link to help banish the stigma of people living with dementia. As this is my last issue of The Voice, I would like to offer my congratulations to my successor, Colette Kelleher who will be joining The ASI in September. I know you will all join me in wishing Colette the very best in her new position. Our biggest annual fundraiser, Alzheimer’s Tea Day was held on the 7th May. We were thrilled to record the largest amount of registrations to date for this year’s campaign. Thousands of events took place all around the country on the day, including one in the Orchard Day & Respite Centre with clients in attendance. We had the Corus Choir group serenading everyone and it turned out to be a really special event. A big thank you goes out to everyone who held a Tea Day. You will find lots of fantastic pictures from all parts of the country in this issue of The Voice. To all of you whom I have met during my time with The ASI, I want to thank you for your support. I have greatly enjoyed my time here and have no doubt that ASI will continue to lead the way, thanks in no small part to the incredible staff and volunteers who work so hard to improve the lives of people living with dementia and their carers. I wish you and your families the very best for now and the future. The Scheme to Support National Organisations (SSNO) funding was extended by Minister Alan Kelly on 25th May to June 2016. This resulted from extensive advocacy from ASI who worked tirelessly with The Disability Federation of Ireland and the Neurological Alliance of Ireland to highlight the importance of the funding for disability organisations. Gerry Martin, Chief Executive Officer Special visit to Bessboro The Lord Mayor of Cork, Councillor Mary Shields, paid a courtesy visit to view the purpose-built facilities at Bessboro Day Care Centre on 10th June 2015. Meeting some of the Cork City Branch Committee, staff and clients, Councillor Shields was treated to music and dancing with “The Purple Pops”, the performance group formed by the centre’s clients. L-R: Tess Hogan (Committee), Noirin Walsh (Chair), Lord Mayor of Cork, Councillor Mary Shields, Deirdre Healy (Committee), Helen Barrow (Nurse-Manager, Bessboro Day Care Centre). The Lord Mayor of Cork also visited the Arts Therapy room in session and the gardens which have been recently rejuvenated by volunteers from Novartis and VM Ware. 2 The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 Curlew Road in Drimnagh Congratulations to Curlew Road Day Care Centre in Drimnagh, Dublin 12 who were awarded the top Gold Star Award for their local area. The award was presented by the Lord Mayor of Dublin, Christy Burke to Noel Quilantang & John Kenny. L-R: John Kenny, Christy Burke (Lord Mayor) & Noel Quilantang Forget the Stigma Campaign On June 3rd, we launched a public awareness campaign called ‘Forget the Stigma’. The campaign sought to rally the public to sign up to a simple, three-step challenge to fight the stigma of dementia called ‘Learn, Listen and Link,’ via our website. The challenge asked people to agree to learn the facts of dementia, thereby debunking the myths, listen to and empathise with people with dementia and link up with them, not isolate them. Our hope was the ‘Forget the Stigma’ campaign, which featured real people; Mums, Dads, sisters and brothers, would encourage a re-examination of the value placed on people with dementia and their carers by both policy-makers and the general public. We hoped by placing people with dementia at the centre of this campaign and telling their stories, the public would understand that dementia is not a condition exclusively of older age, and it affects each person in different ways. The campaign was a resounding success with more than 4,050 signatures, which far exceeded our expectations. The campaign is the largest social movement for dementia in Ireland to date. We hope this campaign will demonstrate just how valuable a contribution people with dementia can make to society. L-R: Kathy Ryan, Sean Donal O’Shea & Helen Rochford Brennan, ASI’s wonderful advocates who fronted our Forget The Stigma Campaign. 3 The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 Alzheimer’s Autumn Draw 2015 Do you fancy driving away in a brand new car, going on a shopping spree with €5,000 cash, or being in with a chance to win a luxury holiday? The Alzheimer Society of Ireland’s inaugural Autumn Draw will launch this August. The top prize is a silver Suzuki. ASI will have volunteers selling tickets in over 40 locations around Ireland during August, September & October. Tickets will also be available nationwide in all ASI Services and from National Office in Dublin. Tickets are €5 each or a book of 5 for €20 and will be available from 1st August 2015. The draw will take place at the end of October. To be in with your chance to win, please contact the Fundraising Team on 01-2073833. Remember all money raised locally will go towards supporting local services. tea day Thank you to everyone for your fantastic support of Tea Day this year where we saw a welcome increase in the number of people hosting Tea Day’s around the country. Funds will be coming in over the next few months so please keep an eye out for the final tally for this year’s campaign in our next issue of The Voice. We are so grateful for your continued support as always, and please remember all money raised from your Tea Day will go towards supporting local services in your area. Don’t forget to include your giro number or name as reference when lodging your Tea Day funds. If you have any queries please contact Orla on 01-2073833. Mini marathon walk the camino Although the June Bank Holiday Monday was one of the wettest days we could have imagined, it did not dampen the spirits of the ASI Mini Marathon team who took part to raise money for services all across the country. This year ASI had over 600 ladies competing. Our after event in Dandelion was a huge success and funds are coming in steadily. Thank you to all of the wonderful ladies who braved the wet and windy weather to take part on behalf of ASI. It’s not too late to sign up for this amazing experience and join 20 other walkers along the route from Sarria to Santiago. ASI will have a team of walkers setting off on this journey from 19th - 26th September. To request your information pack contact Clodagh on 01-2073815 or visit www.alzheimer.ie. 4 The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 The Azure Programme Artists, educators and charities are collaborating to help make galleries dementia-friendly spaces to encourage more engagement with people with dementia. Based on the innovative Meet Me at MoMA (Museum of Modern Art) programme in New York, the Azure programme is being rolled out in Ireland by Age & Opportunity (A&O), The Alzheimer Society of Ireland (ASI), the Butler Gallery in Kilkenny and Irish Museum of Modern Art (IMMA). dementia and a member of ASI’s Irish Dementia Working Group. The course looked at how arts educators can become more dementia friendly and learn how to respond to unexpected issues that can arise when working with people with dementia. Thirty people participated in the training course from around the country representing the National Gallery, the Chester Beatty Library, the Hunt Museum in Limerick, West Cork Arts Centre, Galway Arts Centre and the Arts Council NI among others. They will bring this learning back to their galleries and arts centres around the country. The aim of Azure is to deliver specialised training to arts facilitators on making art accessible to people with dementia and their carers in Ireland’s galleries and arts centres. Meet Me at MoMA’s trained educators facilitate groups of people with dementia to engage with selected artworks for observation and discussion. ASI through its small awards fund will support six galleries / arts centres to implement the Azure programme at a local level. The Azure training was held at IMMA from the 26th to 28th of May as part of the Bealtaine Arts Festival. Laurel Humble, an educator from MoMA travelled to Ireland, to share her expertise with Azure facilitators alongside Bairbre-Ann Harkin of the Butler Gallery in Kilkenny. They were joined by Marie Brett and Kevin Shanahan, who deliver arts projects to people with dementia and Ronan Smith, Line Manager at the Gaiety Theatre and actor. Ronan was diagnosed with dementia last year and is a strong advocate for people with Back L-R, Ann Cosgrove, Catherine Folan, Maura Fahy, Bernie O Grady, Sheila O Grady and Maureen Mannion. Front L-R, Patti O Connor, Mary Thank you to Riverdale Home Residents of Blackwater, Ardnacrusha, Co. Clare who raised €991 Hogan, Des Mulligan,Nursing Honorette McNamara. for ASI over two years. 5 The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 staff development - tutor profile In each issue of The Voice we will profile our brilliant ASI staff, who are also tutors delivering a range of courses across ASI. In this issue, Jayne O’Sullivan and Sheila Gallagher reflect on their journey to becoming tutors and how they have found the experience of tutoring family carers and ASI staff. Jayne confidence each week, in their own skills and ability and they reflected this in their participation and feedback. It was a wonderful sharing experience for all who attended and once again we felt privileged and humbled to be working with such amazing people. Fergus kindly came to Wexford for the presentation of Certificates, which was really appreciated by the carers, Sheila and I. We had a great day and the participants loved meeting the person who had put the training together. Such was the popularity of the Insights into Dementia Course we plan to hold another one in Wexford in the autumn. Jayne: I have worked in ASI for the last 7 years. I was delighted when I was approached with the opportunity to become a training provider. I had already completed the Train the Trainer FETAC level 6 course some years ago and it was great to finally put this training to good use. Together with Sheila, I delivered the Dementia Awareness Training to staff in November 2014. This two-day course is part of the National Elevator Programme. It was warmly received by our care staff. Sheila and I also delivered the Insights into Dementia Course for family carers in January/February 2015. We have found that delivering these courses enhanced our own knowledge around dementia, but also the positive effect it has had on those who participated in the training. Sheila Sheila: I have over 20 years’ experience working with people with dementia and I am passionate about supporting people with dementia and their carers. All of us working for The Alzheimer Society are so privileged to meet such wonderful people every day. Fergus Timmons, ASI Training Manager presenting John O’Horan with his Certificate. My training has been vast over the years, but more recently I have completed Train the Trainer FETAC level 6, and achieved a First Class Honours Degree in Applied Social Studies Professional Practice. I have become interested in training delivery of late, and was delighted when I was approached by our Training Manager, Fergus Timmons to become a trainer for The Alzheimer Society. Jayne and I were delighted with the two courses and the response we received from participants. We worked brilliantly together both enhancing each other’s styles. The feedback from those who attended was wonderful. During the Insights Course, we could see the participants grow in 6 The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 ASI SERVICES Health & Safety Audits HElpline Results from recent Health & Safety external audits demonstrate that ASI locations are currently 84% compliant which is relatively high. More insight results show there are key areas that need more work including: staff training/induction (41 locations), premises/equipment Health & Safety issues (31 locations) and practice/staff awareness (28 locations). Calls and queries to our Helpline in 2015 have exceeded our 2014 figures month on month. ASI received 2,015 calls at the end of May, a 13% increase on 2014. As part of our ongoing efforts to increase the quality of this service, we have commenced preparing this service to apply for the International Helpline Quality Standard Mark. It is envisaged that we will be in a position to apply for this by the end of the year. The Peggy Mangan family have donated €50k for the use of a new mobile information bus. This has been put out to tender and should be in operation within a six month period. Client survey The first bi-annual client satisfaction survey was undertaken across ASI services engaging a random sample of 200 clients/carers (25% response rate). The survey found 70% were ‘very satisfied’ with general services while a further 28% were ‘satisfied’. Overall 80% were ‘very satisfied’ with staff care. The next step will be to build in focus group research to get a better insight into possible service improvements. HsE Funding Operations continue to negotiate with HSE at local level to secure additional funding for sustaining our services at their current level. To date we have experienced success in five counties. News from around the country Well done to the crew in Fore Coffee Shop, Fore, Co. Westmeath for raising €1,177.69 for their Tea Day. Tea Day cheque presentation of €1,560 at St Martha’s Nursing home in Bansha, Co. Tipperary. A big thank you to everyone involved for all your support. Emma Harrison HR Director with Lease Plan Services (l) & Clodagh Swords Community Fundraiser with ASI. L-R: Bibi & Jane O’ Reilly, Jean & Orla Fox, and Sean Comaskey presenting a Tea Day cheque to Samantha Scally of the Westmeath Branch. 7 The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 news From around the country A Tea Day party held in Ballymacelligott, Co. Kerry in May which raised €1,968.39 for the Home Care Service in North Kerry. Thank you to Ann Shine and family for raising €3,512.82 for ASI’s Adare Branch from an Easter raffle held in March. Well done to Mary Gorman, a volunteer with ASI who held two Tea Day events in Tullamore, Co. Offaly and raised over €1,000. Thank you to Matthew Gilsenan who donated €5,000 to ASI from the proceeds from an annual concert held last December. Special thanks to Trim Floral Art Club for their help with this fantastic fundraiser. L-R: Margaret Maher, Day Care Manager & Mary Gorman, volunteer. L-R: P V Dunne, Maura Howley (ASI Meath Home Care) Matthew Gilsenan & Patricia McDonnell. Very well done to Ann Thompson (left) & Christine Harnett, both carers from Galway who completed the VHI Women’s Mini Marathon on June 1st. Thanks to the staff of Aras Mhathair Phoil Nursing Home who organised a Tea Day for Castlerea Day Care and presented Marion Murphy, Nurse Manager with a cheque for €130. 8 The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 news From around the country Well done to all the ladies who participated in the VHI Women’s Mini Marathon on Monday 1st June 2015 in aid of the Drogheda Day Care Centre’s Building Fund. A Declan Nerney Fundraiser was held in the Diamond Coast Hotel, Enniscrone, Co. Sligo on 31st May 2015 organised by Mary & Carmel Gordon and Raymond Beglane. The Sligo Branch of ASI is very grateful for their generosity. Castlerea Day Care hosting their Alzheimer’s Tea Day in May. L-R: Breda McHugh, Dympna O’ Hara, Tina O’Donnell, Mary McManus, Declan Nerney, Majella O’Donnell and Maureen Hynes. ASI staff attending a tea day at Bungalow 1, Kilcornan, Clarinbridge, Co. Galway in May. Well done to STAG (South Tipperary Arts Group) who visited Le Cairde Day Care Centre in Clonmel, Co. Tipperary and painted a beautiful mural. Thank you to Maureen and Frances for all their hard work. L-R: Sheila Harty, Maureen Mannion, Trina O’Donoghue & Marion O’Flaherty. 9 The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 news From around the country Well done to the crew in Mitchelstown, Co. Cork for raising €1,830 for their Tea Day in Shapers Salon. Staff of the Village Day Care Centre Kilkenny raised €558.50 at their Tea Day on the 7th May 2015. L-R: Mary Nolan, Michael Condon, Bernie Nolan, Mary Dunleavy & Gertie Condon. Martin McDonnell held a tea morning at his home in Dromore West, Co. Sligo on 7th May and raised €865. The staff of Castlerea Day Care were presented with a cheque for €2,995 from Pulse Health & Fitness and Cahill’s Supervalu in Castlerea who organised a fundraising Fun Run in March. L-R: Martin McDonnell presenting his cheque to Majella O’Donnell, Dementia Adviser. Emma Nugent arranged a pampering evening on 4th April presents a cheque for €825 to Catherine Bartels and Bridget Crosse of Clonmel South Tipperary Branch. In a scene reminiscent of “60 Minute Makeover”, Novartis staff painted everything in sight at Bessboro Day Care Centre in June. Thank you for your support and help. 10 The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 News from around the country Thank you to actress Rose Henderson of Fair City who attended the Blackrock Social Club to entertain members on 17th June with her one woman show. A Tea Day was held in the Carrickmacross Workhouse arranged by Maeve Montgomery, Dementia Adviser and raised €311.45. Cheque presentation from Clonmel Resource Centre for €395 for a Tea Day held in May. Rose Henderson with her parents who attend Blackrock Social Club in Dublin. Amber, Liz and Tara Galwey from Castleisland, Co. Kerry at their Tea Day where they raised €2,786 in support of Liz’s mom Peggy Teahan. L-R: Naomi, Catherine and Gerard Bartels. 11 The Alzheimer Society of Ireland Newsletter / Issue 11 Summer 2015 WICKLOW The North Dublin Social Clubs went on tour in Wicklow in June visiting Avoca and Glendalough and dined in the Mountain Heather Restaurant. A great day was had by all. CORK A Tea Day was held in Seamus Healy’s office in May which raised €700 for local services. Our wonderful advocate Kathy Ryan attended. The Irish Patchwork Quilt Society has chosen ASI as its charity partner for 2015 and is donating home-made fidget quilts to Day Care Centres throughout the West of Ireland. L-R: Maureen Mannion of ASI and Annette Lohan of the Irish Patchwork Quilt Society at their exhibition in NUIG during National Quilt Week. Tea Day was held by Joe Peyton which raised €1,000 at The Hut, Gurranabraher, Cork. Bessboro’s “Purple Pops” provided the entertainment. The Voice was edited by Morag O Connor, Communications Executive, The Alzheimer Society of Ireland. Address: The Alzheimer Society of Ireland, National Office, Temple Road, Blackrock, Co. Dublin. Phone: 01-207 3800 Fax: 01-210 3772 E-mail: [email protected] Website: www.alzheimer.ie Next Issue: Deadline for Copy: November 3rd 2015. The comments and views expressed in this issue are often personal and do not necessarily represent the position of The Alzheimer Society of Ireland. 12