Janessa Decoste CAPOC Presentation 2015

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The Canadian Association of Pediatric Oncology Camps
(CAPOC)
Helping define “best practice” at cancer camp.
Janessa DeCoste RN, MSN(c)
Laurel Plewes RN, MSN(c)
The authors are affiliated with the Canadian Association
of Pediatric Oncology Camps (CAPOC) as co-chairs of
the medical standards and review committee
Goal of Presentation
This session will be led by members of the Medical Standards and Review
committee with a focus on how member camps adhere to the Standards for
Self-Assessment.
Special emphasis will be placed on the role of the peer visit nurse, pediatric
oncology camp nurse, and what is meant by “best practice”.
Objectives
• Brief history and overview of CAPOC.
• Participants will understand how CAPOC implements its Gold Star
Membership.
• Participants will understand what CAPOC means by "best practice" in the
field of oncology camping.
What is CAPOC?
Vision:
A Canadian collaboration of pediatric oncology camps that promotes and
ensures best practices in the field.
Mission:
We exist to help develop, implement, maintain, and promote standards for best
practices in Canadian pediatric oncology camp programs for our members who
are recognized by a pediatric oncology clinic and accredited members of a
provincial camp association.
History of CAPOC:
 Created in 2006
 Response to the C17 Council asking Canadian cancer camps to
share what they are doing at camp.
 Current committees.
 Currently we have 10 Gold Star Camps & 4 Provisional Camps
 The Standards for Self-Assessment is an adaptation of the
COCA-I guidelines; based on the discussions of representatives
from the Canadian oncology camps, feedback from C17 Council
members and a review of best oncology camping practices
across Canada.
Goals of CAPOC
• All camps will work collaboratively and cooperatively with local pediatric oncology clinics.
• All camps will join their provincial camping associations and will operate programs under the provincial
standards.
• All camps will adopt the current CAPOC/ACCPO standards as best practice in addressing the special
considerations of the pediatric oncology camper.
• All camps will participate in a peer review process.
• All camps will be actively involved in educating families, communities and corporate stakeholders regarding
the special service provided by member camps and to promote national member camps.
• Develop and strengthen the children’s oncology camping movement in Canada by pooling resources,
supporting peers and creating a strong national camping voice.
• To enhance the programming of pediatric oncology camps thereby promoting health and improving the
cancer camp experience for children with cancer and their families.
CAPOC
Standards for Self
Assessment
CAPOC would like to acknowledge the
work that was done by member camps
and the Children’s Oncology Camping
Association – International who began
the work of developing oncology
camping guidelines more than 15 years
ago.
Broken down into 5 key areas:
1. General: Accreditation & Affiliation
2. Administration
3. Staff & Volunteers
4. Healthcare
5. Camp Programs & Activities
CAPOC’s Gold Star Peer Accreditation:
(THE PROCESS)
Provisional Member & Gold Star Member
Provisional Member: Organizations are committed to becoming a Gold Star Member, but
may not yet meet all of the standards.
Gold Star Member: As a Gold Star member, you have met the standards for self-assessment
through a peer review visit and have agreed to complete an Annual Compliance Package.
*Each year Gold Star Members must also complete an Annual Compliance Package which indicates that even
though they are not up for a visit each year, that they are maintaining the Standards for Self-Assessment, and are aware
of and are complying to any changes that may have been updated/changed in the last year.
Map of Canada
Gold Star Member
Provisional Member
Standards Review
Camp Visitor
(aka “peer review nurse”)
Medical committee pushed for an
experienced nurse to be part of all of
the camp visits starting in 2012.
By 2014 this was a reality!
Requirements:
Pediatric oncology experience.
Understanding of nursing within the
summer camp environment.
Registered nurse in Canada.
“
All camp directors were prepared with binders that were flagged to highlight
the information pertinent to each guideline. The camps were extremely
welcoming! They allowed myself and the additional camp visitor to be
involved in programs and shared new and exciting ideas while being very
open to feedback and recommendations for changes.
Heather Fleming
Peer Review Nurse – CAPOC (2014 & 2015)
On the experience of visiting cancer camps undergoing the peer visit Gold Star process.
”
Medical Standards & Review Committee

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
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Who are the members?
What is the commitment?
How do we share resources?
What is the committee working on?
What have we done so far?
(Poster Presentations at APHON / SIOP)
Current Practices of Pediatric
Oncologists Supporting Patients’ Camp
Experience: A Canadian Perspective
Poster presentation that was accepted the APHON
Conference and the SIOP Conference.
Pediatric Oncologists were sent a survey asking about their
current practices when sending children to camp. No further
research has been done since this poster presentation.
Working together:
Camps are required to obtain “signed letters of support” from
their local cancer center.
Why?
The C17 Council is an organization composed of the institutionally appointed heads of the
sixteen pediatric hematology, oncology, and stem cell transplant programs across Canada.
http://www.c17.ca/
CAPOC Letter of Support ‐ TEMPLATE {DATE} Dear ACCPO/CAPOC Membership Committee, Please accept this letter of support for the {YOUR ORGANIZATION HERE} as they fulfill their documentation requirements of membership for the Association Canadienne des Camps Pédiatriques d'Oncologie (ACCPO)/Canadian Association of Pediatric Oncology Camps (CAPOC) (ACCPO/CAPOC). {YOUR ORGANIZATION HERE} has been providing oncology camps and community recreation programs to {YOUR PROVINCE} families for {NUMBER OF YEARS}. {YOUR ORGANIZATION HERE} is also actively involved in our local community providing funding for {INSERT KEY AREAS OF FUNDING}. The {CANCER PROGRAM NAME} fully support the efforts of {YOUR ORGANIZATION HERE} to provide safe programs for children and families affected by childhood cancer. Our clinic supports {YOUR ORGANIZATION HERE} in many ways including {INSERT HOW YOUR CLINIC SUPPORTS YOUR ORGANIZATION}. Nurses from the {LOCAL HOSPITALS} assist at camps and many medical staff in our program ensure that the camper’s medical evaluations are completed and forwarded to {YOUR ORGANIZATION HERE} prior to the start of camps. Primary nurses and clinic managers play a key role in coordinating visits and completing paper work to ensure that camp nurses have recent and accurate information to provide care and treatment for patients attending camps. I am pleased that the {YOUR ORGANIZATION HERE} has demonstrated leadership in the oncology camping field by choosing to become involved in this association. We support their efforts in establishing and maintaining best practice in the support of children and families. Sincerely, C17 Oncologist / Oncology Program Pediatric Oncology
Camp Nurses
 What should they know?
 Building relationships
 Training
What does CAPOC
mean by “Best
Practice”?
Best Practice can be defined in many
ways, it varies amongst disciplines.
So what does this mean?
What are we
Currently Working
on?
Developing “Road Maps” to help
camps going through the peer review
process, understand all facets of the
CAPOC Standards.
Reviewing the Standards to determine
what needs to be updated and/or what
is missing.
Future
Research Ideas:
 Risk assessments
 Late Effects & Mental Health
 Swimming & Central Lines /
Neutropenic Status
 Platelets & Camp Activities
 Environmental Scans of Cancer Camp
Practices
Interested in being a part of the
CAPOC Medical Standards &
Review Committee?
Time Commitment: Monthly
conference calls for approximately 1
hour, annual CAPOC Summit, and
independent work on projects and
initiatives within the organization.
Questions?
References
• Canadian Association of Pediatric Oncology Camps (CAPOC)
• C17 Council Website: http://www.c17.ca/
• Martinuk, A., Silva, M., Amylon, M., & Barr, R. (2014) Camp programs for
children with cancer and their families. Pediatric Blood Cancer 61: 778-787.