A window on the mind and brain
Transcription
A window on the mind and brain
2012/2013 A window on the mind and brain The Prince of Wales International Centre for SANE Research Special thanks Introduction Time to wake up I We extend our thanks to all of SANE’s supporters. Without their generosity, kindness and commitment to mental health, none of what we achieve would be possible. (P) = SANE Partner Board of Directors Chairman - Charles Bracken MBE John Bowis OBE David Gladstone CMG Ian Hay Davison CBE Patrick MacDougall Rob Matthews The Hon Mrs Victoria Russell Contents 1. Front view of POWIC at Warneford Hospital, Oxford 2. Brain imaging 3. Interior atrium with olive tree 4. From left, HRH Princes Turki and Khalid al-Faisal with Marjorie Wallace 5. Garden of Healing at POWIC. 03 Introduction 04 -07 Campaigns 08 Black Dog Campaign 09 - 11 Research 12 - 13 Services 14 - 15 Cyber news 16 Fundraising 17 Celebrity friends The building was designed by award-winning architect Dr. Demetri Porphyrios. 18 Achievements 19 Special thanks 20 Appeal The vision POWIC was designed to be a flagship centre of excellence dedicated to establishing the causes of and better treatments for mental illness. As an international centre it hosts teams of scientists from different disciplines and acts as a forum to stimulate new ideas, disseminate information and provide training. SANE Registered Charity Number: 296572 Registered address: 1st Floor Cityside House, 40 Adler Street, London, E1 1EE T: 020 7375 1002 F: 020 7375 2162 W: www.sane.org.uk Editor: Sara Zmertych Designer: Kevin Coward © SANE 2012 2 Front cover main image The stained glass window in the Prince of Wales International Centre for SANE Research (POWIC) is the creation of artist Anthony Cleyndert who finds that art carries him through periods of severe mental illness. The window is a representation of the journey Anthony made in his search for health and greater happiness. It recalls the wonderful memories of childhood and arriving at his grandparents’ house for summer holidays. “I hope that someone looking at the window will see something beautiful.” Meeting the challenge of mental illness Knowledge heals POWIC was opened in February 2003 by HRH The Prince of Wales, founding patron of SANE. The centre was funded by the late King Fahd bin Abdulaziz Al-Saud, matched by a gift from the Xylas family, owners of the Greek shipping business through Nicolas and Matti Egon, and a donation from His Majesty The Sultan of Brunei. Individuals Organisations Yet despite all our efforts,Partner and those of many others, we still do not t amazes me that when we Caroline considerHiller the number of people Rob Truefitt Priya Acharya Bobbie Hindman Dr Gillian Waldron Black Dog Tribe know the causes of most mental illnesses - let alone cures. Our progress affected by mental illness and its capacity to destroy lives, I see Lara Adams (P) Clare Hine Joesphine Waley-Cohen 42nd Street in developing medications has been slower than expected and many a tragic absence of a global response. Missing is the arresting Anna Albright Jessica Irfan Max Walford Get Connected Felicity Amber Chris Jack Audrey Wallrock NHS City and Hackney Community Health drugs used in psychiatry still have debilitating side effects. call to action on the scale warranted by the urgency of the challenge. Eddie Aydon Ceri James Patrick Walsh Services The Government’s Improved Access to Psychological Therapies David Barrere Sir Simon Jenkins (P) Thomas Edward Walter Oxford Mindfulness Centre has made some headway The World Health Organisation predicts that depression will be the Mrs & Mr H Beatty Stuart & Kate Jessup Mr & Mrs Dprogramme Ward Youthnet UK Ltdwith talking treatments but the different kinds of therapies still need to be assessed for their leading global burden of disease by 2030,Jones overtaking cancer, heart Paul Warren Susan Bedack Darren Verity Bengough Lees on life expectancy andMr & Mrs Watson and Groupslong. effectiveness and waitingOrganisations lists remain disturbingly disease and all other conditions inAdrian its impact Sir & Lady Michael & Christine Bett Sam Levine Dan Wayte All Saints Holbrook years of living with disability. Mr & Mrs M Bicknell Karen Levy Patricia Weisz Aviva Health It is for these reasons we Barts urgeStudents’ you to support our on-going campaigns, Rosie Birch Mildred Loss Clare Whately Association particularly the Black DogLeeds Campaign which offers a visibleTrust symbol of Mrswhy A Mdon’t & J B Blacklock Annie Macdonald Gerry Wildman Partnership NHS Foundation So we have a Bono singing this message? Why are we not M Bond Charlie MacQuaker Rachel Williams St Mary’s School the power of what remains mainly invisible suffering. having more mental health summits attended by presidents and prime Diana Boulter Tony Malcolm D T Wilson Westminster Abbey movers and shakers with the sameZakia worldwide Ann Bowtell Malcolmcoverage as climate O R Wilson Yorkshire Law Society Mental(P) illness can be isolating and distressing and tarnished with change? talk about ‘battling’ cancer, heart disease, Dr Paul Woolley Elizabeth We Boyling George‘conquering’ Materna Charles Bracken MBEbut (P) when it comes JohnnytoMcGlynn Lady CarolaWoolton Foundations legacy of unwarranted Trusts blameand for the individual, family or society. ‘eliminating’ malaria mental illness, we use much Charles Bracken Jnr (P) Caroline Mclaren Emma Worthington 29th May 1961 Charitable Trust our backs, the However, the more we shrug our shoulders and turn more weasel words such as ‘managing the condition’, ‘debating the Mr T B Bramley Mr & Mrs C & G McMinn A.D. Charitable Trust on whether it is a biochemical, social issues’ ‘reducing Mr R Cor Brewer (P) stigma’. Jonathan Miller (P) Legacies more polarised our viewsAremain H J Charitable Trust or simply human condition (it isHunt of course Susan Brooks John Mills (P) Robert Abraham Albert Trust likely a mix of all three) and Susannah Barrythere Mitchell Albert becomes. Van Den Bergh Charitable Trust the more diluted our message When AIDSBrough was first detected in 1981 was no knowledge of Ms A M Bandsma Marie Brown D Moore Anton Jurgens Charitable Trust its cause and it was only through aMrcollective cry for awareness andMartin Barraclough Tim Cadbury Mr W Nagel Jean Garside Big Lottery Fund One of the consequencesArnold of these polarised views is that education research and ten years later effective Mrs B V Carrthat funds poured into Mr Eddie Nestor John Greenwood Burton 1998 Charitable Trustwe drive pharmaceutical firms away from developing newTrust drugs and treatments began to emerge. Hayley Clay-Smith Shaun Nicholls Walter Handley Cecil Pilkington Charitable Patricia Coles Ms M Nolan Mrs J Holland Charitable Trust discourage GovernmentsChalcroft from putting in the huge research resources Chris Colley Maria Oinn Mrs F Holmes Chapman Charitable Trustwhy some people needed to understand the mind and brain and InDrthe UK we have one of the best Kamal research communities yet mental Mark Collins Oomerjee Elsie Vera Howden Cheruby Trust are susceptible to mentalCoutts breakdown while others ride the same life health still attracts only 6.5% of theMichael medical research is T Leatham Carlo Colombotti Palin CBE (P)budget. That D Charitable Trust stresses less scathed. Dinning Charitable Trust SiskaSANE Concannon Kim Parkash Lady Caroline Maitland why is proud of its own research portfolio, mainly based at the Kevin Corrigan Mrin RM S Parsons Mrs V H Moore Dischma Charitable Trust Prince of Wales (P) International Centre Oxford which was opened nine Mr M F Daniel Jonathan Paul Cynthia Ann Peterson Donald Forrester Charitable Trust If mental illness is not to be a major threat to the health of mankind, years ago. Ian Hay Davison CBE (P) Jenny Perrins Mrs J F C Pirie Dudley & Geoffrey Cox Charitable Trust as has been predicted, weFitton mustTrust broker our differences and campaign Damon De Laszlo Dr Jeremy Pfeffer Edna Rumsey Colin Dix Mrs J M Punton Vera Smithtogether for innovative research, Garfield Weston Foundation more effective treatments (both Mrs C Dolman Michael Quinlan Betty Tyrrell Guiting Trust awareness and with this more medical and psychological), enhanced Stephen Donnolly Steven Real Harris Charitable Trust understanding and compassionate care. Trust Diana Dutton Michael Redwood Companies Ian Askew Charitable Dr Elza Eapen Dr Hilary Reid Evans Agnes B UK Ltd Inge Trust Mr & Mrs A F Eastwood Astrid Renaud Aviva Plc Marjorie Wallace CBE, Chief J and Executive C Bonham Christie Charitable Trust Michael Eaton (P) Ann Reynolds Barclays J M Charitable Trust Sue Edyvean Clare Rice Chandler Chicco James Weir Foundation Jane Ellwood Hena Rohman Citibank James Wentworth - Stanley Memorial Fund Katherine Evans Dr Michael Rowlands Clifford Chance Laura Ashley Foundation Aims andFamily objectives Helen Fay The Hon Mrs Victoria Russell Deloitte LLP MacCabe Charitable Trust Miss L Fluker Gillian Saunders ecourier Materna Foundation SANE is a UK-wide charity set up in 1986 to improve the quality of Jim Foley Alexandra Scott-Heyes Eli Lilly & Co Ltd Norman Family Trust life for people affected by mental illness. It has three objectives: Renee Forsyth Mrs A M Sebba Instinet Pewterers Worshipful Company Charlotte Franklin Alison Mary Segenschmid Intersteels Ltd Mr & Mrs Pye Charitable Settlement 1. Ltdto raise awarenessRhododendron and combat stigma Angela Fuller David Selves Janssen-Cilag Trust about mental illness, educating and campaigning to improve Mr & Mrs A Furlong George Shirley John Lewis Rolfe Charitable Trust mental health services Mr J N Gammon Mr J F Sidgreaves Lakin McCarthy Entertainment Sobell Foundation 2. to provide support for people with mental health David Gladstone (P) Sacha Skarbek Legal & General Group Plc care andSouter Foundation problems, their families and carers as well Miss C K Grew Joan Starkie Lundbeck Limited Thames Wharf Charity Ltd as information for other organisations and the public Colleen Gruenwald Carole Stone MEC Global Van Den Bosch Charitable Trust David Grundy Dr Nina Storms Ryden Property Consultants WNC Scott Will Trust Brian Harden Lionel Stride 3. to initiate research into the causes and treatments of serious The Small Removal Company Ltd Zhorida Carder Charitable Trust Amanda Head Lady Juliet Tadgell Tronos Aviation mental illness such as schizophrenia and depression and the We would also like toof thank our anonymous donors, and those who have Michael Hewson Mary Taylor ZBI Europe psychological and social impact mental illness. advised us of their decision to leave a Gift of Hope to SANE in their Will. Mrs C E Hillas Jacqueline Tomlinson www.sane.org.uk www.sane.org.uk 319 Campaigns Counting the Costs The association between psychological distress and mortality It has already been shown that severe mental illness can reduce a person’s life expectancy by up to 20 years. The reasons range from people neglecting their physical health and smoking, to taking their own lives. It worsens the prognosis for other potentially life-threatening conditions such as diabetes, cancer and heart disease. found that more serious mental health conditions raised the risk by two-thirds. These increased risks came after lifestyle factors such as smoking and drinking had been taken into account. But an arresting piece of new research has been published in the British Medical Journal which followed the medical records of 68,000 people over a period of 10 years, matching those records with ones relating to premature deaths from physical illness. The reality is complex and not yet sufficiently understood. The figures should not be a cause for alarm but they do highlight the importance of attending to the physical health of people with mental health problems. This is an area where symptoms can still be sorely overlooked or misinterpreted when a person with a diagnosis of mental illness seeks medical help. This study found that even moderately severe mental health problems, such as anxiety and depression, increased the risk of dying earlier than the rest of the population by 16 per cent. It also It is clear that it is vital to treat both mental and physical symptoms with equal care and to support people with mental health conditions to adopt and sustain healthier lifestyles. Lord Milo Douglas – a preventable death Why was Lord Milo Douglas not admitted to hospital when he said he was in an acute state of mental distress? Instead he was caught in the interlocking wheels of community treatment teams which, despite frequent visits, collectively failed to assess the gravity of his deteriorating state of mind and spiralling despair. In the last fortnight of his life, Milo persistently asked to see a consultant psychiatrist but was denied the opportunity. In fact, throughout his last breakdown, he never encountered a consultant. After speaking with the nurse at his GP surgery, she contacted the crisis team who failed to respond as they were in a meeting. A few days later, Milo went to the fifth floor of a nearby block of flats in Bayswater, London and took his own life. Lord Milo Douglas suffered from bipolar disorder for ten years until his death at the age of 34. He worked as a teacher and a charity worker and was considered by everyone who knew him as a kind, charming and caring young man. This article appeared in The Telegraph magazine, 28th May 2011 4 Meeting the challenge of mental illness At the inquest, which SANE attended to support the family, the NHS Trust said that there had been no ”key omissions” in terms of his care: psychiatrists did not have to see every patient and Milo had been assessed as not in imminent danger and treatable at home. His mother Alexa, Marchioness of Queensberry, disagrees. She is convinced that the lack of care Milo received reveals fatal flaws in NHS psychiatric services. “How much more do you have to do to prove that you desperately need help and are at risk of killing yourself?” she says, ”I know his death could have been avoided.” SANE has attended scores of inquests and independent inquiries and witnessed the same catalogue of failures. Families continue to be sidelined and when the worst happens the Trust has a phalanx of lawyers, PR consultants and professionals closing ranks to protect each other, while those closely affected can be brickwalled in their attempts to find out the truth. Campaigns No health without mental health Some figures • At least one in four people will experience a mental health problem during their life. • One in six adults has a mental health problem at any one time. • Almost half of adults will experience at least one episode of depression during their lifetime. • One in ten children aged between 5 and 16 has a mental health condition. The government’s new strategic vision, No Health Without Mental Health, pledges to tackle the personal, social and economic costs of mental ill-health and give equal weight to mental and physical health – now enshrined in the Act giving effect to the health reforms. An Implementation Framework sets out detailed plans. This is an ambitious blueprint, and there has been a welcome £400 million allocated to promote psychological therapies. But without a price tag on future investment, the framework remains an unattainable aspiration, particularly in the face of current cuts and reports that people are struggling to find consistent, specialist help. It is as though we are being given the design and scaffolding for the new structure without the funds for the ‘bricks and mortar’ necessary for the fundamental care of people in crisis and those with long-term and enduring mental illness. Your Personal Best We are delighted to have been part of the Your Personal Best campaign developed by GlaxoSmithKline (Official Laboratory Services Provider for London 2012) in association with NHS London to coincide with the Olympics. SANE and other partner organisations attended the launch with Len Goodman and Arlene Philips of Strictly Come Dancing Fame, who were encouraging people over 55 with long-term conditions including mental ill-health to lead a more active lifestyle. Suicide prevention strategy The facts • Suicide is one of the three leading causes of mortality for people aged between 15 and 44. • There are more than 4,000 deaths from suicide each year in England – more than those killed on the road. • There has been a slight increase in the number of people taking their lives in the last two years. To complement the mental health strategy, the government has published a new suicide prevention strategy identifying six key areas for action including: • reducing access to harmful websites • improving support for people with mental health problems and those who self-harm • providing better help to families • giving support to those bereaved by suicide. SANE has welcomed the strategy, in particular inclusion of the needs of families. Our experience is that families, carers and close friends are often best placed to help prevent suicides, but can feel unsure about how to intervene. They also frequently find themselves excluded from discussions about an individual’s care plan due to concerns about confidentiality. We hope the new measures will mean that families can turn to doctors and others for guidance and strategies so that they have more understanding and confidence in their ability to help in preventing tragic outcomes. www.sane.org.uk 5 Campaigns Campaigns Does cannabis damage the developing adolescent brain? The debate about the dangers of cannabis has in recent years focused increasingly on the dangers to people’s mental health, specifically the question of whether cannabis use in adolescence can lead to both short term and long term mental illnesses such as schizophrenia. But startling new research indicates that cannabis can also cause irreversible cognitive decline in those who smoke it frequently when they are in their early teens. Around 1,000 people in the New Zealand Dunedin Longitudinal Study were tested periodically from birth to 38 years old. They were asked about their cannabis use and given a range of psychometric tests to ascertain their mental functioning, such as IQ, arithmetic and verbal reasoning. The disturbing finding was that those who used cannabis four or more times a week from the age of 13 experienced an average 8-point drop in their IQ and a reduction in other cognitive abilities. More worryingly, those who took the drug in adolescence but then gave up showed no reversal in this decline (unlike those who took it during adulthood and subsequently gave up). While not without its limitations, this study adds to existing evidence that the harmful chemicals in cannabis can have a drastic effect on the development of the brains How did you come to be involved with the charity and become a Director? What do you see as SANE’s main strengths and the challenges facing charities at the moment? Interview with John Bowis OBE, SANE Board Director 6 I got to know and to value SANE when I was a Health Minister with responsibilities that included mental health. Marjorie’s campaigning vision and SANEline’s practical support for people with mental health problems were both impressive and helpful to me as we wrestled with the policy Meeting the challenge of mental illness of some young people and lead to lasting problems in later life, including reduced career prospects and broken relationships. SANE has long campaigned about the specific dangers of cannabis, especially in its more toxic forms such as skunk, to the developing brain. Not everyone is affected – as Professor Sir Robin Murray of the Institute of Psychiatry has noted – the drug may be responsible for around 10 per cent of new cases of schizophrenia. But for the significant minority who are susceptible, it can mean years of mental anguish – and to their families relentless worry and despair. We accept that certain chemical compounds in cannabis, such as Tetrahydrocanchallenges in government. (I also knew Lord Mottistone, who was a fountain of good advice in the field and devoted to SANE’s work.) It was a time when public confidence in the Care in the Community policy was shaken by a number of violent incidents and by the unacceptable gaps in the spectrum of care and discharge proceedings. The challenges were awesome but so was the determination of people like Marjorie and the team to join in the debate and help us find solutions. SANE’s nabinol (THC), can be useful in medicine: for alleviating the symptoms of multiple sclerosis, providing relief from pain and acting as a vital relaxant. (But this is in a controlled medical setting). Another compound, Cannabidiol (CBD), appears to have antipsychotic properties and it may be telling that there is very little of this compound in modern varieties of skunk. This study and others show there needs to be more research to find out who is vulnerable to the toxic effects of cannabis. Until we know more, we must give strong and realistic messages to young people of its potential to harm and rob them of their futures. To read about further research, refer to page 9 for work at POWIC. strengths are its practical support through the unique helpline, the pioneering research work of POWIC, the way it has kept close to policymakers and practitioners. So I was really pleased when, after my decade in the House of Commons, I was invited to join the Board. As President of Health First Europe and a former MEP, what are the main areas of importance now in the provision of help for those with mental health problems both in the UK and Europe? Historic day at the House of Commons Parliament held the first full Commons debate on mental health with cross -party support in June of this year. Seven MPs were responsible for requesting the debate, chief amongst them Nicky Morgan, MP for Loughborough and Charles Walker MP, Co -Chair of the All -Party Parliamentary Group on Mental Health and supporter of SANE’s Black Dog Campaign. The debate offered a no holds barred account of the state of mental health and was notable for the brave confessions of four MPs who spoke candidly about their own experiences of mental illness. A big Thank You We’d like to take this opportunity to thank all the people who have contacted SANE and volunteered to use their stories for media case studies, thereby supporting SANE and our campaigns. If you would like to be a media case study, please email [email protected] with the subject title ‘Media case study’, or phone 020 7422 5564. “On occasions it [obsessive compulsive disorder] is manageable and on occasions it becomes quite difficult. It takes one to some quite dark places. I operate to the rule of four, so I have to do everything in evens. I have to wash my hands four times and I have to go in and out of a room four times.” Conservative MP Charles Walker has suffered from Obsessive Compulsive Disorder for the last 31 years. He has kindly agreed to be a SANE Ambassador. At a time of economic difficulty across the world but certainly in Europe, the fact is that more people will have mental health needs and budgets are inevitably restricted and scaled back. Cuts in mental health services are a false economy. You cannot have healthy economies without healthy people and that means healthy in body and in mind. I don’t think Finance Ministers understand this. Do you notice differences of approach between the UK and Europe in combating stigma and prejudice? When I visit other countries in Europe and beyond I find many of the same problems we face at home. My friends in Greece are desperately trying to save the progress they made, with European Union help, after the scandal of the inhumane incarceration on the island of Leros. In the Czech Republic they have yet to consign their caged beds to history without resorting to other forms of physical restraint and seclusion. In Bulgaria and Ukraine I have visited hospitals which are Special thanks go to: Caitlin Haigh, Natalie Wood, Sheila Rothwell, Cecilia Levy, Daniel Levy, Lorna Lake, Caroline Fish, Sophia Gill, Sandra Waddington, Wendy Ward, Zena Marshall, Daniel Lane, Philip Wood, Alex Jacobs, Julia Salmon, Caroline Carr, David and Barbara Gale. insanitary and overcrowded. In Africa I think I have visited more countries where people look at you blankly when you ask about their mental health services than ones where they have limited provision. I do not make judgements on any of these countries, because I know they are struggling with limited resources to reform past policies and because I know our own system is by no means up to the standard we should expect - too much seclusion, too many powerful drugs, too little empowerment of patients. What areas of mental health policy are you most passionate about? Let me pick out three: the defeat of stigma, which is such a cruel added burden to that of living with the disorder and the side effects of its treatment; the involvement of individuals in decisions that affect them; and the provision of services, with which and in which I should be comfortable if I or a member of my close family were to be in need of treatment and care. www.sane.org.uk 7 Research Black Dog Campaign Black Dog goes to work SANE’s anti-stigma and mental health initiative: Black Dog Campaign is helping to raise awareness of depression and other mental illnesses, reduce stigma and encourage people to seek emotional support from SANE Services. Our eye-catching sculptures have been on display throughout the UK and serve as enduring symbols of acceptance, hope, understanding and compassion. The Black Dog Campaign has now moved into the workplace, and has been adopted by leading firms including Deloitte, Citibank, Clifford Chance, Legal & General and Ryden. Stress is the biggest cause of long-term absence from work, and sadly six out of ten employees wouldn’t feel comfortable disclosing a problem to their employer. Taking the campaign into the workplace is helping to change this culture and serves as an important focal point for organisational mental health, wellbeing, diversity programmes and initiatives. “We recognise the stigma that can be attached to mental illness and we are proud to be partnering with SANE on the Black Dog Campaign to show that we are as committed to supporting those who experience mental illness as much as those who suffer any physical illness or condition.” David Bickerton, Managing Partner, Clifford Chance As part of their CSR outreach with a local school, Clifford Chance encouraged children to get involved with the campaign by painting a coat for their Black Dog sculpture. Deloitte held a design competition amongst their staff and this included choosing a compelling name. SANE is now looking into providing mental health training; our view is that this training is most effective when conducted in the context of a wider mental health programme. This can then be supported by creative engagement tools such as Send a Text Save a Life that reinforce the training experience and lead to lasting, positive results in culture, climate and practice. Unlocking the secrets of the mind and brain Prince of Wales International Centre for SANE Research (Powic) POWIC now hosts five teams of researchers. Besides Professor Tim Crow, SANE’s Honorary Scientific Director who continues his neuroscientific research into the origins of psychosis, there are Professor Mark Williams, Director of the Oxford Mindfulness Centre; Professors Guy Goodwin and John Geddes who together run the OXTEXT Project; Professor Daniel Freeman, a leading expert in paranoia and Outi Benson, Manager of SANE’s Psychosocial Research Team currently working on our suicide prevention programme both in Oxford and London. Paranoia at POWIC Daniel Freeman is a Professor of Clinical Psychology who moved from King’s College London to POWIC in 2011. On moving into the premises, Daniel said, “I’m absolutely delighted to have the opportunity to carry out research in the first class facilities of POWIC.” David Bickerton with pupil Harvey Cantrill Baker from Thomas Tallis School, who won the competition for the best Black Dog coat design – Cogs of the Mind We’re also working with Citibank on a joint event to recognise International Day of Persons with Disabilities; this year the Citi theme is mental health. In preparation for Citibank’s involvement in the Black Dog Campaign we are also facilitating mental health strategy workshops with their management and business leaders. Find out more: www.sane.org.uk/what_we_do/black_dog/bd_partners/ Black Dog Down Under SANE is working with the Black Dog Institute: a research, educational and clinical facility based in Australia specialising in mood disorders, with which Matthew Johnstone is associated. The institute undertakes research into the prevention, early intervention, treatment and recovery of depression and bipolar disorder. E-mental health web applications are a specialism of Black Dog Institute, and we are keen to incorporate this into our approach. We are looking at ways to bring myCompass – an online application for managing mental health - to a UK audience via SANE’s website and social media. Over the past ten years there has been increased awareness of the prevalence of paranoia in the general population. There is a spectrum of severity, ranging from suspicious thoughts easily dismissed to the kind of persecutory delusions often experienced by people with schizophrenia. Alongside recognition of the nature and extent of paranoia, great strides have been made in understanding the causes. A participant wears a virtual reality headset, which is connected to a computer, with a simulated environment played out before their eyes. For this particular study, the simulated ‘neutral’ environment is a tube carriage. Daniel Freeman has written extensively on mental health for the general public. You Can Be Happy is his latest book co-authored with Jason Freeman. It draws on three of the most significant currents in psychology today: Cognitive Behaviour Therapy (CBT), mindfulness and positive psychology. The effects of cannabis on the brain In one study Professor Freeman and his team are researching whether cannabis can lead directly to paranoid experiences and, if so, why. They are using a state of the art virtual reality laboratory, funded by the Medical Research Council to aid this investigation. After extensive assessments participants in a randomised controlled trial are either injected with tetrahydrocannabinol (THC), the psychoactive chemical in cannabis, or given a placebo. They then enter the virtual reality setting, in this case a tube carriage, and report on their perceptions of the computer characters in the train and how, in an apparently neutral environment, they can seem hostile and threatening. The study will lead to a greater understanding of why some people become paranoid. Professor Freeman and his team also believe that virtual reality can be used in the future for treatment. As patients learn to feel safer in computer-generated environments, they can take that new found confidence into the real world. Refer to page 6 for SANE’s campaign position on cannabis. For more information on paranoia and relevant books, visit www.paranoidthoughts.com 8 Meeting the challenge of mental illness www.sane.org.uk 9 Research Research Recent research on psychosis by Professor Crow “To take a further step in research, I have recently summarised what we know about psychosis. Some things have been known for a long time, for example that psychoses occur across all populations probably at about the same rate. This was certainly the opinion of psychiatrists at the end of the 19th century. It is also clear that the range of features of psychosis are relatively similar across the societies of the world. Indeed, there are a series of syndromes ranging from those described as schizophrenic, mainly including hallucinations and delusions, to those that are more mood related such as manic depression or bipolar disorder. Another well-known fact is the age of onset. Psychosis may occur throughout adult life from late teenage onwards and is partly dependent on gender. Onsets are earlier in males than in females, probably by two or three years on average. This is one of the best established findings. In the last few decades, research has found that many illnesses are preceded by similar symptoms, characterised by fleeting delusions and hallucinations, often relatively short lasting and experienced during the course of childhood or adolescence. It seems, therefore, there is a predisposition waiting to be expressed and researchers are interested in whether it is possible to prevent the development of psychosis. Opinion is growing that psychosis does not exist as discrete categories of illness but rather as a spectrum with one pattern of symptoms merging into another; for example some illnesses are described as schizoaffective rather than schizophrenic. There is substantial evidence that there are structural changes in the brain, a fact established over 30 years ago with the use of computerised tomography at Northwick Park Hospital. More recently, research has shown that the nature of the change is significant. The structural changes may be both lateralised i.e, favouring one side of the brain and different according to gender. The lateralisation suggests it is related to language, something that may identify Homo sapiens as a species. We also know that symptoms respond up to a point to medication, but the reason for this is unclear. You could take the view that given we understand so little about psychosis we are fortunate to have medications at all. A recent problem for the pharmaceutical industry, however, is their uncertainty over ways to improve existing medications. SANE’s psychosocial research team are currently conducting pioneering research into suicide prevention funded by the BIG Lottery Research Programme and by the James Wentworth-Stanley Memorial Fund. 10 Meeting the challenge of mental illness Work on mindfulness continues at POWIC. Spending a little time each day practicing mindfulness has proved to bring about an ease of being which people find surprisingly liberating. SANE is working with Mark Williams to bring the method to a wider audience. At the Oxford Mindfulness Centre within POWIC, the team are training clinicians, health workers and members of the general public. They are also continuing to research the psychological mechanisms underlying mindfulness therapy and have started new projects which include applying its approaches to childbirth and parenting. A book in mind Professor Mark Williams’ latest book: Mindfulness. A Practical Guide to Finding Peace in a Frantic World reveals how training the mind and body can help anyone through the chaos and complexity of modern life. The book is based on Mindfulness-based Cognitive Therapy (MBCT). The method, which was co-developed by Although there has been considerable focus on suicide rates and associated risk factors, until now very little research has been conducted into the personal experience of those who have attempted suicide and the people closest to them. As many people who die by suicide are not in contact with mental health services, it is ordinary people who stand the most chance of preventing suicides; the friends, colleagues, neighbours and family members of those whose lives are at risk. Currently there isn’t enough support True Colours and the OXTEXT Programme OXTEXT postcards designed by Neil Hamilton made available to both patient and their clinician as a coloured graph which means they can be viewed at any time and can be acted upon quickly if symptoms are seen to increase in intensity. and information to help members of the public spot the danger signs. The intention is that the findings of this new research will enable more people to prevent suicide by recognising and responding to indications that someone may be suicidal. Health care professionals will also benefit from increased insight into the process of suicide, for example, by helping them respond more empathically to people in suicidal distress and their families. We are currently looking for participants to help with this research. If you have attempted suicide in the last five years and are interested in taking part, please contact Outi at: [email protected] or on 020 7422 5537. Professor Mark Williams, Director of the Oxford Mindfulness Centre, POWIC Professor Mark Williams, is recommended by the National Institute for Health and Clinical Excellence and can be as effective as drugs for preventing depression. MBCT is also effective for people who aren’t diagnosed as depressed but who struggle to keep up with the constant demands of the modern world. Everyone agrees that genetics is somehow relevant to the causation of psychosis, but exactly how and what genes might be involved is highly controversial. Perhaps we are dealing with a type of variation not hitherto adequately investigated. The main focus has been on the possibility that the sequence of the genetic code is changed in some people and this predisposes them to psychosis. An alternative view is that we are dealing with variation in people that modifies the expression of genes rather than changes in the gene sequence itself. Perhaps we need to understand the basic genetic mechanisms in order to make progress.” Suicide prevention Outi Benson Research Manager Disentangling the mind Professor John R. Geddes is the Director of the Oxford Cognitive Health and Neuroscience Clinical Trials Unit where he leads the OXTEXT project with Guy Goodwin, Professor of Psychiatry at the University of Oxford. OXTEXT is a research programme which is developing and evaluating low cost systems for helping people with bipolar disorder manage their condition, together with their clinician. The aim is to assess the impact of mood monitoring using a system called True Colours and to see its effect on health outcomes. The True Colours mood monitoring system uses text messaging and emails to collect patient reports in which patients themselves give ratings for their depression and mania. These ratings are promptly “There is a critical window of time, perhaps even hours, between a person becoming aware of the early warning signs of deterioration in their mood and major relapse”, says Professor Geddes. True Colours could help prevent the delays in accessing a GP and other services which would help avoid severe episodes and may even be life saving. Results to date have shown that people with bipolar disorder, using the True Colours service, achieve better mood stability and the service is more acceptable than standard approaches to treatment. By identifying the precipitants of mood changes through the True Colours chart, patients can achieve a better understanding of their condition and gain control over distressing symptoms. www.sane.org.uk 11 Services Services An SMS from SANE to you Textcare will be run by our counsellors and therapists using, for the first time, text messages as an extra dimension of our on-going emotional support. People who contact us, either by phone or by email, are currently offered the option of a Call Back Service from our professional team. Now, in addition they will be able to receive text messages which will arrive at agreed times “hot spots” when they may feel particularly isolated or distressed. This could be weekends or evenings when friends and family are busy and other sources of help are not available. The texts will be sent not only to people with mental health problems but carers who may be anxious or isolated. The advantage of the Textcare Service is that it is flexible and accessible. A text can be received without the individual having to leave home, or make any special arrangements to be available, and can be accessed via the most basic of mobile phones. The service offers personal care messages relevant to people of all ages, which can be sent at times agreed with the individual, i.e. reminders for medication to be taken, appointments to be kept or a simple encouragement to use self-help strategies during difficult encounters and meetings. The overriding message is that people are valued and that they are being ‘held in mind’ – an accepted practice in therapeutic relationships. The new Textcare Service will enable the Services Team SANE’s Textcare Service is a distinct therapeutic part of our existing services and is another way in which we are extending our reach using modern technologies. Send a Text Save a Life... ...is an initative to encourage and guide people to take action when they are concerned about the welfare of someone they care about, before problems escalate. The simple act of sending a short text message to let a person know they are not alone may reduce distress, signpost them to further sources of help or even save a life. to reach an estimated 1,500 more people in the first year alone, who may otherwise feel lonely, adrift, rejected or misunderstood. Often when we notice that someone we care about is uncharacteristically withdrawn, sad or troubled an initial reaction is to feel nervous as if treading on egg shells and we don’t quite know how to express our concern. Send a Text Save a Life gives an easy way to show that we care, and it could be just the right message at a difficult time. We k is a now th d day ifficul is t for you . How you can help: Sending a text message can save a person from unnecessary suffering. It can be the step that helps them realise that others care about their wellbeing and help is available. Here are some scenarios when Send a Text Save a Life can be most effective: 1. T o connect with a friend, colleague or loved one who you know is ill or going through a difficult time even if the person may live far away. 2. When somebody doesn’t seem ‘quite themselves’, they may appear tired all the time or they may have lost their sparkle. 3. When somebody displays warning signs of mental ill-health such as: Image specially designed for SANE by Matthew Johnstone Receiving a message, for example, on the anniversary of a bereavement, can help a person feel remembered and cared for. 12 Meeting the challenge of mental illness “I’ve noticed you’ve been a bit quiet lately. If there’s anything you’d like to have a chat about, I’m here and willing to listen or you may like to call SANE for free confidential emotional support.” Examples of signs used with kind permission from The Charlie Waller Memorial Trust For more information on Send a Text Save a Life go to www.sane.org.uk/what_we_do/send_a_text/ www.sane.org.uk 13 Cyber news SANE widens the net Harnessing the power of the internet By harnessing the power of the internet and developing our use of social media -Twitter, Facebook and You Tube - SANE has quickly established a thriving online community fuelled by the Black Dog Campaign. Susie posted her art work and wrote, “another ‘black dog’ whose leash I’m trying to hold on to”. The community now has 8,000 members, all connected by an interest in sharing experiences, offering encouragement and bringing mental health to an even wider audience. It offers an additional and immediate way to show support for SANE and allows for feedback on the work we do. In turn, we refer to contributions and posts shared through the website to help inform our services, campaigning and research initiatives. A favoured activity for members is sharing creative experiences. Channelling difficult thoughts and emotions into drawing, painting, Garlic and Sapphires screenshot Daniel Lane Daniel Lane is a graphic designer and a photographer. He was diagnosed with bipolar disorder a few years ago. In learning ways to cope, he took inspiration from artists who use their life stories to inform their art and went on to produce a short film entitled Garlic and Sapphires. Daniel says of his work, “This project represents how I see the world when I’m experiencing paranoia, elation, anxiety, rapid thoughts, delusions – and how these feelings co-exist in a broken cadence. With the subject in mind, I have projected my world onto the streets of London and into something I hope others can relate to.” The film is available to watch on our website: www.sane.org.uk/resources/video_gallery/189/1, and has been shared via our social media channels. 14 Meeting the challenge of mental illness photography and writing serves an important part in helping to manage mental health and support recovery. Self expression has the potential to open a new world of emotional support and the responses from others can be an invaluable companion in the often lonely journey through mental illness. Acknowledging each others’ contributions helps cultivate a spirit of acceptance and validation. Amyc [username] posted the following message on the SANE website “I have started this blog to document my journey as a way to share with others the ups and downs of borderline [personality disorder] and a way of helping myself through.” A message in response, “I am very touched by your blog...I find writing has really helped me to express myself too, I will look forward to reading your posts and poems.” Cyber news Black Dog Tribe SANE is expanding its online reach by acquiring ownership of the popular social media platform Black Dog Tribe (BDT) inspired by comedian and actress Ruby Wax and internet entrepreneur Dr Nina Storms. SANE’s website and the BDT site together attract 60,000 unique visitors a month, making it one of the most dominant social networking sites of its kind. The ‘marriage’ of the two sites has the potential to reach and help many more people both nationally and internationally. BDT was founded in 2011 as a social networking platform for those affected by depression and other mental health conditions, in which like minded people can find their own ‘tribe’ and share experiences in a supportive online community. The site consists of forums, blogs, daily news and mental health information. From the beginning, BDT collaborated with SANE in the development of web content and professional support. The possibility of extending the reach of SANE’s online community through BDT is an exciting development. Looking to the future, with the sophisticated technology already invested, SANE will enable people with mental health problems to connect with each other, access videocounselling, keep up to date with global mental health news and combine monitored peer group support with speedy access to professional help such as SANE’s Services. “Marjorie and I toast the betrothal of SANE’s Black Dog Campaign and our Black Dog Tribe. We hope that they will have a family of thousands, whom we will welcome to our new home.” Ruby Wax www.blackdogtribe.com “You are the only charity for which I’ve written more articles without being asked, because I think your campaigns have a real chance of fighting stigma” Misty, SANE supporter and blogger. Follow CharitySANE on Twitter and connect to us via Facebook and You Tube where you can share ‘links’ and ’likes’. If you haven’t done so already, please register with the SANE Community and encourage your friends to do so as well. www.sane.org.uk/how_you_can_help/sane_community/ “We are delighted that we have been able to give our site to a charity like SANE. They have been pioneers in providing a telephone helpline and are experienced in giving trustworthy, knowledgeable and caring contact for people in need of advice, support and direction. They offer a truly welcoming environment and share our vision in being independent, objective and pragmatic.” Dr Nina Storms www.sane.org.uk 15 Fundraising Celebrity friends Get motivated SANE has a wonderful community of inspiring fundraisers who support mental health in a range of imaginative ways. Here are some highlights... Friends, vice patrons and ambassadors Adam Ant’s coat design ‘Helping Hands.’ Pupils at City of London Academy Islington complete 5K walk 8 months, 2,600 miles... and Poppy the Springer Spaniel MEC Global get ‘Motivated’ Staff at media agency MEC Global raised £2,515 for SANE by organising a day of fundraising activities. Fitness guru Mr Motivator helped prepare staff for the day, which included riding an eight-seater human powered vehicle around Hyde Park! SANE supporter Stuart Jessup and his dog Poppy completed a 2,600 mile walk around the edge of England, raising over £10,000 for mental health, and promoting awareness along the way. Supported by his wife Kate, Stuart described the challenge: “In some ways I’d be quite happy to carry on with the walk, it’s almost become my life over the past eight months or so ...it’s been tremendous and a far more positive experience than I expected. I keep a mood diary which I’ve done for years, as a way of managing my depression. I score moods out of five and for the past year along the walk it’s been mainly fours and fives.” Adam Ant During the Summer, musician Adam Ant unveiled a Black Dog sculpture, sporting a colourful coat of ‘Helping Hands’ with uplifting messages. Named Elvis after his own pet dog, and situated in Island Gardens on the banks of the River Thames, Adam’s interest in mental health and supporting the Black Dog Campaign is rooted in his own experiences of depression. Dame Judi Dench CH Between Skyfall, The Best Exotic Marigold Hotel, and the other calls on her goodwill, Judi Dench finds time to encourage us. SANE has been chosen as the John Lewis Corporate Partners’ Charity of the Year for 2012-2014. A staff vote secured this wonderful result, which will see partners involved in lots of exciting fundraising activities, including a 340 mile London to Dusseldorf cycling challenge. Eddie Nestor – BBC presenter “I have worked with SANE and the magnificent Marjorie Wallace to ‘normalize’ mental health since I joined BBC London 94.9 in 2002. Here’s to the next decade”. Incoming and outgoing resources Raising money in memory TV writer Paul Coates, and his brother-in-law Paul Johnson, completed a 210 mile coast to coast walk in memory of Mr Coates’ brother, Colin. Paul told us: “I try to find positives in life, and one of the few positives I can say that came from Colin’s decision was that, in my grief, I discovered walking. I find such calm and personal reward in a long day’s walk. “I am lucky enough to have a brother-in-law, Paul Johnson, who is the perfect walking partner. He too found pleasure in walking following the death of his father, Pete, of a heart attack, in 2008. Together, we walk, talk, view the amazing country we live in, and ignore blisters as we become walking robots. “To give ourselves a much needed push, and to do something in memory of Colin, we chose to walk for SANE.” Thank you to both Pauls for raising £2,500. SANE’s income comes mainly from voluntary donations – from people like you – who support us through single and regular donations, fundraising initiatives and legacies. We spend 87% of our income on our core aims: providing help, conducting research and campaigning. If you would like to fundraise for SANE, we’d love to hear from you! Please contact 0207 422 5544 or [email protected] 16 Meeting the challenge of mental illness Known for his innovative and individual style, Adam first came to prominence during the late 70s and early 80s as the flamboyant lead singer of the post punk band Adam and the Ants. Now enjoying a revival of his musical career, SANE and Adam’s fans were thrilled when he brought his artistry to providing this fabulous design for a Black Dog. After his stint in Island Gardens, Elvis will take up residence in Soho Square in the West End, London. We would like to extend a thank you to our friends, vice-patrons and ambassadors. Clive Anderson Adam Ant Jane Asher Rowan Atkinson Lynda Bellingham Professor Colin Blakemore FRS Hon FRCP Cherie Booth QC Frank Bruno MBE Sally Brampton Rory Bremner Michael Buerk Alastair Campbell Stephanie Cole OBE Dr Mark Collins Barry Cryer OBE Ray Davies CBE Dame Judi Dench Jenny Eclair Edward Fox OBE Sir David Frost Hattie Hayridge Marie Helvin Ian Hislop Barry Humphries AO CBE Virginia Ironside Sir Jeremy Isaacs Matthew Johnstone Gary Kemp Ross Kemp Rt Hon Lord Kinnock Beverley Knight MBE Joanna Lumley OBE Nick Mason Ian McShane Sir Jonathan Miller CBE David Mitchell James Naughtie Eddie Nestor Judith Owen Michael Palin CBE Trevor Phillips OBE Tim Pigott-Smith Griff Rhys Jones Nick Ross Gerald Scarfe CBE Ian Shaw Harry Shearer Timothy Spall OBE Juliet Stevenson CBE Alastair Stewart OBE Carole Stone KT Tunstall Ruby Wax Fay Weldon CBE Victoria Wood CBE www.sane.org.uk 17 Achievements A farewell, an Honour and a link with the past Board of Directors Chairman - Charles Bracken MBE John Bowis OBE David Gladstone CMG Ian Hay Davison CBE Patrick MacDougall Rob Matthews The Hon Mrs Victoria Russell Contents Front cover main image The stained glass window in the Prince of Wales International Centre for SANE Research (POWIC) is the creation of artist Anthony Cleyndert who finds that art carries him through periods of severe mental illness. The window is a representation of the journey Anthony made in his search for health and greater happiness. It recalls the wonderful memories of childhood and arriving at his grandparents’ house for summer holidays. “I hope that someone looking at the window will see something beautiful.” 1. Front view of POWIC at Warneford Hospital, Oxford 2. Brain imaging Charles Bracken MBE 3. Interior atrium withCharles olive tree December 16 1920 - 24 November 2011 Bracken, Chairman of SANE, was awarded an MBE in the 04 -07 Campaigns 4. From Turki Khalidfor al-Faisal withservice Marjorie SANE would like to take this opportunity to record the left, HRH Princes New Yearand Honours voluntary to Wallace mental healthcare. 5. Garden of Healing at POWIC. remarkable contribution of Lord Mottistone who died in Charles has been a Board Director since it was formed in 1986 08 Black Dog Campaign November 2011. He was the founding Chairman and presided and took over the Chair role in 2006. 09 - 11 Researchas one of the UK’s major Knowledge heals over our development mental health POWIC was opened in“It’s February HRH The ”Prince of Wales, founding patrona of charities from 1986 to 1999. been a2003 terrificbyexperience, he said. “Hopefully we’ve made 12 - 13 Services SANE. The centre was significant funded by contribution the late KingtoFahd bin Abdulazizabout Al-Saud, matched doing something mental health.by 14 - 15 Wallace, Cyber news a gift from the Xylas family, owners therewarding. Greek shipping business through Nicolas and Marjorie Chief Executive said, “He taught me so much I find my workof very ” Egon, about the values, integrity and stoicism needed toMatti face all the and a donation from His Majesty The Sultan of Brunei. 16 Fundraising challenges of pioneering a then unpopular cause. Despite his The building formality andCelebrity dignity he was surprisingly rebellious when he was designed by award-winning architect Dr. Demetri Porphyrios. 17 friends believed that any policy or actions were in the wrong. Part of him 18 Achievements The vision will always live on in SANE.” POWIC was designed to be a flagship centre of excellence dedicated to establishing the 19 Special thanks causes of and better treatments for mental illness. As an international centre it hosts teams of scientists from different disciplines and acts as a forum to stimulate new ideas, 20Victoria Appeal Tryon information and provide training. Victoria Tryon, daughter of the late Lady Dale disseminate Due to the ring’s concave shape, she Tryon, has followed in her mother’s footsteps says, it was somewhat challenging and is supporting the work of SANE. She is to set the diamonds and achieve the SANE tunnel effect. an award winning jeweller and for our 25th Registered Charity Number: anniversary volunteered to 296572 design a bespoke Registered address: ring to mark the occasion. “I find Proceeds from the sale of the ring 1st Floor Cityside House, which their work very inspiring, will be donated to SANE. 40 Street, ledAdler to the creation of the London, E1 .1EE For more information visit ‘SANE ring’ T: 020 7375 1002 www.victoriatryon.com F:Made 020 7375 and to view or purchase from 2162 18kt white W: www.sane.org.uk the ring which is priced at gold and with circles of £2,500 you can arrange an black pave and white Editor: SarainZmertych appointment by contacting diamonds the centre, the Designer: Kevin symbolises Coward Victoria: Email design concept ©‘light SANEat2012 [email protected] or the end of the tunnel’. call on 020 7839 7961. 03 The BaronIntroduction Mottistone CBE 2 18 Meeting the the challenge challenge of of mental mental illness illness Meeting Special thanks We extend our thanks to all of SANE’s supporters. Without their generosity, kindness and commitment to mental health, none of what we achieve would be possible. (P) = SANE Partner Individuals Priya Acharya Lara Adams (P) Anna Albright Felicity Amber Eddie Aydon David Barrere Mrs & Mr H Beatty Susan Bedack Verity Bengough Sir & Lady Michael & Christine Bett Mr & Mrs M Bicknell Rosie Birch Mrs A M & J B Blacklock M Bond Diana Boulter Ann Bowtell Elizabeth Boyling Charles Bracken MBE (P) Charles Bracken Jnr (P) Mr T B Bramley Mr R C Brewer (P) Susan Brooks Susannah Brough Marie Brown Tim Cadbury Mrs B V Carr Hayley Clay-Smith Patricia Coles Chris Colley Dr Mark Collins Carlo Colombotti Siska Concannon Kevin Corrigan (P) Mr M F Daniel Ian Hay Davison CBE (P) Damon De Laszlo Colin Dix Mrs C Dolman Stephen Donnolly Diana Dutton Dr Elza Eapen Mr & Mrs A F Eastwood Michael Eaton (P) Sue Edyvean Jane Ellwood Katherine Evans Helen Fay Miss L Fluker Jim Foley Renee Forsyth Charlotte Franklin Angela Fuller Mr & Mrs A Furlong Mr J N Gammon David Gladstone (P) Miss C K Grew Colleen Gruenwald David Grundy Brian Harden Amanda Head Michael Hewson Mrs C E Hillas Caroline Hiller Bobbie Hindman Clare Hine Jessica Irfan Chris Jack Ceri James Sir Simon Jenkins (P) Stuart & Kate Jessup Darren Jones Adrian Lees Sam Levine Karen Levy Mildred Loss Annie Macdonald Charlie MacQuaker Tony Malcolm Zakia Malcolm George Materna Johnny McGlynn Caroline Mclaren Mr & Mrs C & G McMinn Jonathan Miller (P) John Mills (P) Barry Mitchell Mr D Moore Mr W Nagel Mr Eddie Nestor Shaun Nicholls Ms M Nolan Maria Oinn Kamal Oomerjee Michael Palin CBE (P) Kim Parkash Mr R M S Parsons Jonathan Paul Jenny Perrins Dr Jeremy Pfeffer Mrs J M Punton Michael Quinlan Steven Real Michael Redwood Dr Hilary Reid Evans Astrid Renaud Ann Reynolds Clare Rice Hena Rohman Dr Michael Rowlands The Hon Mrs Victoria Russell Gillian Saunders Alexandra Scott-Heyes Mrs A M Sebba Alison Mary Segenschmid David Selves George Shirley Mr J F Sidgreaves Sacha Skarbek Joan Starkie Carole Stone Dr Nina Storms Lionel Stride Lady Juliet Tadgell Mary Taylor Jacqueline Tomlinson Rob Truefitt Dr Gillian Waldron Joesphine Waley-Cohen Max Walford Audrey Wallrock Patrick Walsh Thomas Edward Walter Mr & Mrs D Ward Paul Warren Mr & Mrs Watson Dan Wayte Patricia Weisz Clare Whately Gerry Wildman Rachel Williams D T Wilson O R Wilson Dr Paul Woolley (P) Lady Carol Woolton Emma Worthington Legacies Robert Abraham Ms A M Bandsma Martin Barraclough Jean Garside John Greenwood Walter Handley Mrs J Holland Mrs F Holmes Elsie Vera Howden D T Leatham Lady Caroline Maitland Mrs V H Moore Cynthia Ann Peterson Mrs J F C Pirie Edna Rumsey Vera Smith Betty Tyrrell Companies Agnes B UK Ltd Aviva Plc Barclays Chandler Chicco Citibank Clifford Chance Deloitte LLP ecourier Eli Lilly & Co Ltd Instinet Intersteels Ltd Janssen-Cilag Ltd John Lewis Lakin McCarthy Entertainment Legal & General Group Plc Lundbeck Limited MEC Global Ryden Property Consultants The Small Removal Company Ltd Tronos Aviation ZBI Europe Partner Organisations Black Dog Tribe 42nd Street Get Connected NHS City and Hackney Community Health Services Oxford Mindfulness Centre Youthnet UK Ltd Organisations and Groups All Saints Holbrook Aviva Health Barts Students’ Association Leeds Partnership NHS Foundation Trust St Mary’s School Westminster Abbey Yorkshire Law Society Trusts and Foundations 29th May 1961 Charitable Trust A.D. Charitable Trust A H J Charitable Trust Albert Hunt Trust Albert Van Den Bergh Charitable Trust Anton Jurgens Charitable Trust Big Lottery Fund Arnold Burton 1998 Charitable Trust Cecil Pilkington Charitable Trust Chalcroft Charitable Trust Chapman Charitable Trust Cheruby Trust Coutts Charitable Trust Dinning Charitable Trust Dischma Charitable Trust Donald Forrester Charitable Trust Dudley & Geoffrey Cox Charitable Trust Fitton Trust Garfield Weston Foundation Guiting Trust Harris Charitable Trust Ian Askew Charitable Trust Inge Trust J and C Bonham Christie Charitable Trust J M Charitable Trust James Weir Foundation James Wentworth - Stanley Memorial Fund Laura Ashley Foundation MacCabe Family Charitable Trust Materna Foundation Norman Family Trust Pewterers Worshipful Company Mr & Mrs Pye Charitable Settlement Rhododendron Trust Rolfe Charitable Trust Sobell Foundation Souter Foundation Thames Wharf Charity Ltd Van Den Bosch Charitable Trust WNC Scott Will Trust Zhorida Carder Charitable Trust We would also like to thank our anonymous donors, and those who have advised us of their decision to leave a Gift of Hope to SANE in their Will. www.sane.org.uk 19 From Juliet Stevenson to you D o you know anyone who has suffered from dark times in their lives? I am sure all of us do. So many people experience depression in its various forms, and feel utterly isolated by it. In a world where mental illness is still feared, and prejudice reigns, sufferers along with their families and friends endure feelings of vulnerability and loneliness while living with an invisible condition. It is this invisibility that SANE’s excellent Black Dog Campaign was launched to tackle. Sculptures have been on display around the UK and are visiting businesses, schools, shopping centres and public parks. The Black Dog offers a form to mental illness that can be seen, touched (and occasionally sat on!) and provides a symbol of how powerful and unpredictable mental illness can be. The campaign is not solely aimed at those living with depression but reaches out to all those affected by conditions such as bipolar disorder, anxiety and schizophrenia to let them know they are not alone - they do have a voice and there is help out there. I greatly admire SANE for raising public awareness and helping to shift our attitudes and perceptions. But more than challenging these problems, SANE and the Black Dog Campaign offer hope through the possibility of help. Each dog wears a collar of hope and carries the message of where to go to get support. It is in spreading this message of hope that I am asking you to donate today. Whatever someone is going through, SANE’s trained volunteers and professionals are there to provide a contact through its helpline, email and online support forum. All around us we see beds closing down and mental health services being cut – so charities like SANE that rely on voluntary donations are fighting ever harder to meet this growing need. So please give a Gift of Hope – whatever you can afford – and make sure that many more people will be able to find comfort and guidance from SANE. Thank you. Juliet Stevenson CBE Please give a Gift of Hope A single donation allows vulnerable people to receive free emotional support in confidence. Please complete this form and return in the Freepost* envelope provided. 1. Your personal details Title: First Name: Surname: Address: Postcode: Telephone: Mobile: Email: 2. Your Gift of Hope Please make your cheque/postal order/CAF voucher payable to SANE OR please debit the above amount from my: My Gift of Hope is: £ Visa/Delta MasterCard Maestro CAF Card Card No: (Security Code) Valid From: M M / Y Y Expiry Date: M M / Signature: Y Y Issue No: Date: D (Maestro only) D / M M / Y Y 3. Gift Aid – Making your Gift of Hope go even further I want SANE to treat this donation, all donations I have made in the past 4 years, and all future donations from today as Gift Aid donations. Signature: I confirm I am paying an amount of Income Tax and/or Capital Gains Tax that is at least equal to the tax that all the charities or Community Amateur Sports Clubs (CASCs) I donate to will reclaim on my donations for that tax year. I understand that other taxes such as VAT and Council Tax do not qualify. Other ways to get involved. There are other important ways that you can support people affected by mental health problems. However you choose to give, please remember that your support is truly valued. Gift in your Will Every legacy brings us a step closer to a future in which mental illness is free from stigma and shame. To find out how to leave a gift to SANE in your Will, please tick here: Donate in celebration Make a celebration even more special by asking people to donate to SANE. The thoughtfulness of those who remember us in this way also brings our work to the attention of a wider audience. Raise money Organise a fundraising activity and raise money for mental health. You’ll be helping to reduce stigma, increase understanding and acceptance. To receive a fundraising pack full of ideas, tick here: Find out more: www.sane.org.uk/how_you_can_help/fundraise/ / Date: / giftaid it Your questions answered What is Gift Aid? If you are a UK taxpayer, SANE can reclaim 25p on every £1 you donate – at no extra cost to you. That means, on a donation of £40, we receive an additional £10 to use wherever the need is greatest. How will I know that I’m making a difference? You’ll never doubt it. We promise to keep you regularly updated on how your contribution helps people affected by mental health problems. How can I find out more? Please visit our website: www.sane.org.uk for more information on our work. If you’d prefer to give us a call then our team will be happy to help. Telephone: 020 7422 5544 or email: [email protected] Our promise to you s7Erespect your privacy and will never pass your details onto another organisation. s)TSYOURchoice how often we contact you, and whether it’s by post, telephone or email. Call 020 7422 5544 and let us know your preferences. s7EPROMISETOSPENDYOURMONEYWISELY7EAREaccountable, and for every £1 donated we dedicate £0.87 to helping people. The balance is used to find new supporters and for administration and governance. s7EARE committed to making life better for people affected by mental illness. Our guiding principles are: sAcceptance sHope sCompassion sRespect sDignity *SANE’s Freepost address is: SANE, FREEPOST WD528, London E1 1BR SANE Registered Charity Number: 296572 19 Please give a regular Gift of Hope A regular gift will ensure that people affected by mental illness always have somewhere to turn – during a crisis and throughout their recovery. Please complete this form. Tear off the bottom part and send to your bank for processing. Please return the top part to SANE in the Freepost* envelope. Thank you. 1. Your personal details Title: First Name: Surname: Address: Postcode: Telephone: Mobile: Email: 2. Standing Order – Your regular Gift of Hope for mental health Your donation allows vulnerable people to receive free emotional support, in confidence. Thank you. My regular Gift of Hope is: £ I would like to pay Start date: monthly annually / / quarterly Yes This replaces all existing Standing Orders to SANE No N/A 3. Gift Aid – Making your Gift of Hope go even further I want SANE to treat this donation, all donations I have made in the past 4 years, and all future donations from today as Gift Aid donations. Signature: Date: / / giftaid it I confirm I am paying an amount of Income Tax and/or Capital Gains Tax that is at least equal to the tax that all the charities or Community Amateur Sports Clubs (CASCs) I donate to will reclaim on my donations for that tax year. I understand that other taxes such as VAT and Council Tax do not qualify. Instructions to your Bank or Building Society To: The Manager Bank/Building Society: Address: Postcode: I would like to pay SANE £ monthly annually quarterly Name(s) of Account Holder(s) Branch Sort Code: Start date: / – / – Account Number: Signature: This replaces all existing Standing Orders to SANE Date: Yes BANK USE ONLY Please pay SANE: National Westminster Bank PLC, Cavendish Square Branch, PO Box 4NU, 1 Cavendish Square, London W1A 4NU Sort Code: 60 – 40 – 02 Account No. 24712590 No / / N/A *SANE’s Freepost address is: SANE, FREEPOST WD528, London E1 1BR SANE Registered Charity Number: 296572
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