2012 Spring Newsletter - Hospice Care of the Lowcountry
Transcription
2012 Spring Newsletter - Hospice Care of the Lowcountry
Spring/Summer 2012 Words from our Executive Director Dear Friends and Neighbors of Hospice Care of the Lowcountry, PO Box 3827 Bluffton, SC 29910 NON-PROFIT ORG. U.S. POSTAGE PAID HILTON HEAD, SC PERMIT # 132 When I tell someone I work for hospice, they frequently ask “How can you do that? It must be so sad and depressing.” Yes, death can be sad at times, but it is a normal process of life and can be a truly beautiful journey; a journey that a hospice caregiver has the privilege to share. What we receive from the patient far outweighs what we do for them. We walk away better people for knowing them, keeping a piece of their wisdom, humanity, life experience and humor – it is a gift we receive. This is the most rewarding and important work I have ever done. What is...? HOSPICE CARE - a special type of palliative care offered to those with chronic illness and less than a 6 month life expectancy. The focus is pain and symptom management, not curing the disease. This is an acknowledgement that the patient has exhausted all medical treatment or has decided to stop treatment. PALLIATIVE CARE - a type of care designed to relieve the symptoms of a disease rather than cure it. The focus is based on improving the patient’s quality of life by reducing distressing symptoms. PALLIATIVE HOME HEALTH CARE—Hospice Care of the Lowcountry, Inc. is one of three agencies in the state that have this special license. We care for patients with life limiting illnesses that are in the midst of treatment such as chemotherapy, radiation or blood transfusions. These patients are frequently suffering from debilitating symptoms such as pain, nausea, insomnia and anxiety. The patient, family and the RN Case Manager design a personalized plan of care. We provide nursing care and oversight, a CNA to deliver personal care, a social worker, and if required, physical, speech and occupational therapy. Our goal is to improve one’s quality of life. HOSPICE CARE OF THE LOWCOUNTRY, INC. HOSPICE CARE MISSION STATEMENT To give comfort and honor dignity for end of life patients and their families through compassionate physical, emotional and spiritual care, regardless of their financial circumstances VISION STATEMENT To be the “Gold Standard” of hospice care in the Lowcountry. Some people come into our lives and quickly go. Some stay awhile, leave footprints on our hearts, and we are never the same. - Flavia Weedn Let me share a story with you…. Diane was a beautiful, kindhearted 62 year old woman with ovarian cancer. She battled it for 7 years. She was knowledgeable of her disease, not afraid to discuss it and knew what was ahead for her journey. She was a woman who loved life. She was thankful and so proud of her husband and son. She knew and valued the meaning of friendship; she was a friend you wanted to have in your corner. Even on her worst day, her first question would be, “How are you?” She never complained, ever. She loved nature, the water and lighthouses. She knew her time was limited. She wanted to plan her memorial service so not to burden her family with the task. She wanted her ashes spread at sea. Hop Aboard is a service provided by volunteer boat owners who take our patients out on the beautiful waters of Hilton Head. Diane wanted to choose a spot to have her ashes spread. She found her spot on a lovely July afternoon with her husband at her side. Diane was under our care for almost a year until cancer won the battle. Her memorial service was truly orchestrated by Diane. Ten chosen family members, friends, and the hospice chaplain went out on the boat ride for her send off. Later that evening a fabulous celebration of her life was attended by her wonderful family, friends and hospice team. The evening was full of love, inspiration and the memory of the divine lady she was. Poems were read, songs were sung and her rock collection that she had inscribed with words of inspiration - were tossed into the water…peace, courage, happiness, faith, honesty, friendship, family, love… by attendees of the service. Good bye Diane, we will certainly miss you. Please know you will live in our hearts, our thoughts and in our lives for your qualities are never ending. Sincerely, HOSPICE CARE OF THE LOWCOUNTRY, INC. PALLIATIVE HOME HEALTH CARE MISSION STATEMENT To give comfort and symptom control to patients diagnosed with a terminal illness who wish to continue life-prolonging treatment through compassionate, physical and emotional care, regardless of their financial circumstance. Jenny Brasington, RN, CHPN Executive Director VISION STATEMENT To be the “Gold Standard” of palliative home health care in the Lowcountry. HOSPICE CARE OF THE LOWCOUNTRY • 843-706-2296 • www.hospicecarelc.org Our Amazing Staff Words from a Hos-Pet Volunteer Administrative Chrissena Cohen Anne Lane Syndi Perry Kendall Brinkmann, RN-C, OCN Jenny Brasington, RN, CHPN Nickie and I were contacted to do in-home visits for a gentleman with Parkinson's. On our first visit, I realized that he and his wife were pretty down but Nickie made them smile and laugh. They asked for visits twice weekly and I decided to make each visit extra fun by dressing Nickie in different outfits and taking pictures with them. I made cards out of the pictures for them and brought balloons tied to Nickie's collar for special occasions like Certified Nursing Assistants birthdays. Mr. M loved to give her treats and once, the treats dropped between his legs Gwynetta Blathers, CNA and Nickie dove in for it creating quite a stir and much laughter! Arlene Clatt, CNA, CHPNA Takesha Garrett, CNA Showanna Hugue, CNA Patricia Robinson, CNA Kizzy Williams, CNA Registered Nurses Jodi Beil, RN Margo Capucini, RN, APRN Candace Coggins, RN, APRN Beth DeFraine, RN Susan Hackett, RN Sarah Greene, RN, CHPN Joni Gruber, RN, CHPN Debi Malool, RN, BSN, CHPN Sandy Mecca, RN Thelma Noble, RN, CHPN Brenda Peters, RN Sandy Ploszaj, RN, AS Mary Anne Richardson, RN, CHPN Darlene Valet, RN Tamara Watson, RN Chaplain Rev. Ward Scovel, Ph.D I forwarded pictures to their children living in different states to let them see the happiness on their parents’ faces during this tough time. Their children appreciated it so much because they worried about their parents, but couldn’t be with them as much as they would have liked due to work requirements. I didn't realize how much the parents looked forward to the visits until their granddaughter told me Mr. M insisted on going to bed early the night before and getting up early the day, so everything would be ready for us! — Dorothy Hundley, a volunteer Did you know?.... National Averages in 2011 • 41.9% of all deaths had hospice services • 82.7 % were 65 years or older, of that number 1/3 were over 85 years • 35.6% of all patients had the diagnosis of Cancer • 14.3% of all patients had the diagnosis of Heart Disease • 13.0% of all patients had the diagnosis of Dementia • 13.0% of all patients had the diagnosis of Debility/Failure to Thrive • Other diagnoses covered were Lung, Liver, and Kidney Disease, Stroke/Coma, Neurological Disorders and HIV/AIDs • Average Length of Stay is 36 Days • The majority, (58%) of hospices remain independent and non-profit– as we are! I was asked if I would have lunch every week with an Alzheimer's patient who lived at a local nursing home. Apparently, the gentleman was surrounded by women in the dining room and wanted some male companionship. I agreed to do it—Free Lunch! At our first lunch, we exchanged pleasantries with minimal conversation until he asked me how sales results were for the month. I had known he was an executive at a major corporation in the Midwest during his working years. I quickly said sales were good. He immediately challenged me. “I saw the results and sales were NOT on plan!” Apparently, Mr. B thought he was still working. I did not want to upset him so I told him I would try harder and sales would improve. I returned the next week for lunch and Mr. B proceeded to ask again about sales. I told him “Very good,” thinking he would not remember last week and I would get off easy. No such luck. He again told me that he read the sales report and sales were down. I told him I would try harder and results would improve. Mr. B said “That is unacceptable. You’re FIRED!!” I was dismissed from the table and left. Next week I was prepared. You guessed it— I was fired again and again for several more weeks until Mr. B passed. It’s amazing what a hospice volunteer will do for a free lunch. — Art Smith, a volunteer Bob Gregory, President Bob McCoy, Vice President Mike Hagen, Treasurer Jan Geraghty Secretary Sharon F. Beasley Charlie Durkee Sue Kerr Karen Kirby Mike Kristoff Ray Oleson Maxene Rogers Rick Smith Marc Stuckart Many Thanks Jack O. Williams, MD Hospice Community Thrift, thank you for your continued support! Your funding allows us to continue our mission. We are so grateful for all you do! Heather Witherspoon Thank you to everyone who supported our 8th Annual Yacht Hop! It was our most successful event yet! We couldn’t do it without such a generous, giving community! Directors Emeritus Rev. Manuel Holland Anna Painter, RN Porter Thompson Words from our Board President Dear Friends, The #1 comment we receive from patient families is “We wish we would have involved you sooner.” Medicare states that one is appropriate for hospice service when diagnosed with a Music Therapy terminal illness, has a life expectancy of 6 months or less, and is no longer seeking Mary Scovel, M.M. curative treatments. By providing pain and symptom management and oversight by the Social Workers hospice team, both patient and family can benefit. Earlier admission allows for more Jonell Allen, MSW time to plan and make informed decisions; more time to learn and prepare for the Maggie Clark, BSW difficulties ahead. Education is provided for what to expect as the end approaches, how to ensure advance directives are properly in place, and provides a better understanding Community Relations Lindsay Daly of the grieving process that will follow. Darlene Schuetz With earlier care provided by our professional staff, patients and their families can have enhanced quality of life, in comfortable surroundings, for a longer period of Medical Director time. Dr. Scott Condie Please feel free to share this perspective with others you know who may come to Associate Medical Director benefit from our services at Hospice Care of the Lowcountry, Inc. Dr. Gary Thomas Cordially, Bob Gregory, HCL Board President Bereavement/Volunteer Coordinator Renee Woodruff, MPH, CT Board of Directors Words from a Volunteer Annalou Thomas Founder The staff and volunteers of Hospice Care of the Lowcountry would like to thank all who have supported and made donations to our organization. If you would like to make a donation, our mailing address is PO Box 3827, Bluffton, SC 29910 Or visit www.hospicecarelc.org 119 Palmetto Way Post Office Box 3827 Bluffton, SC 29910 843.706.2296 phone Upcoming Events 843.706.4095 fax Memorial Picnic At Jarvis Creek Park August 8th Final Dress Rehearsal of September 29th www.hospicecarelc.org Saturday, October 20th 9 am-3 pm For ages 6-16 Sgt. Jasper Park November 2012 For more information, call Renee Woodruff at 843.706.2296 [email protected]