File - Dorset Kidney Fund

Dorset Kidney Fund
Newsletter Spring 2013
Kidney Care Team
CONTENTS
Kidney Care Team
Contacts
New Committee
Member
Cake Stall
Presentations
Owermoigne
Flower Festival
Puzzle Solutions
Puzzle Page
EVENTS
Cream Teas at
Minton Magna
House
May 5th & 6th
May 26th & 27th
Race Night
Days Hotel
Bournemouth
9th June 2013
1940‘s 1950’s
Dance at
Heathlands Hotel
Bournemouth
27th July 2013
Quiz Night
Stratton Village
Hall
28th September
2013
In July of last year, the Renal Nurse Specialists went through a re structure of the
service. In order to provide a more seamless journey for the patient and to prevent
numerous appointments with different staff members, the Nurse Specialists amalgamated to form “The Kidney Care Team”. The team split in to two, one based at
Dorset County Hospital to cover West Dorset and one based at Poole Dialysis Unit
to cover the East.
This meant that the Peritoneal Dialysis team, anaemia management and pre dialysis service became one team. Therefore instead of possibly 3 appointments to see:
the anaemia nurse, pre- dialysis and peritoneal dialysis nurse, this would all happen at one appointment. The transplant team also come under the Kidney Care
Team umbrella and work closely with us.
A key part of our role is education and it became evident in the early days that one
patient sharing their dialysis experience with a potential future dialysis patient,
adds a dimension that the health care professional cannot provide. As a result we
have held two Patient Information Days, advising patients with declining renal
function, of possible treatments. It gave patients the opportunity to share concerns
with their fellow renal patients and to chat on a one to one with either a patient established on peritoneal dialysis or haemodialysis. The feedback was extremely
positive and we hope to run more information days in the future.
In addition we will be starting “Healthy Kidney” information days whereby we
will advise kidney patients on ways that they can help preserve their kidney function. This is predominantly aimed at patients who have only a slight decline in
their kidney function and are some way off needing dialysis.
So far the feedback we have had so far has been positive. There is a more speedy
response to enquiries as one nurse can address many different issues. Hopefully
there is now less chance of you speaking to an answerphone!
If you would like to know more about your own blood results and renal function
and have not yet started dialysis, or would like to meet with one of our team,
please contact us. If you would like to discuss kidney transplantation, please contact the team on the number below.
Kidney Care Team
(West) 01305 255349
(East) 01202 307433
Transplant Nurse Specialists
01305 254546
Angela Ridge Kidney Care Team Manager March 2013
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E MAIL NEWSLETTER
We are looking for ways of saving money on printing and postage and are considering sending copies of the Newsletter by e mail.
If you would like an e mail copy of the Newsletter rather than a hard copy please
send your e mail details to [email protected] and your next copy of the
newsletter will arrive in PDF format on your computer, which you can print off if
you so wish, or indeed can read on the DKF website at
www.dorsetkidneyfund.org.uk
You can also follow us on Facebook.. Search. www.dorsetkidneyfund.org.uk
Contacts & Helplines
Chairperson
Steph Vincent
Tel 01305 813839
Mobile 07971471530
E-Mail [email protected]
Committee Member
Simon Bishop
Mobile 07747710361
E-Mail [email protected]
Vice Chairperson/Patient Rep:
Paul Bithell
01305 269293
E-Mail [email protected]
Events Organiser
Sue Bithell
Tel: 01305 269293
E-Mail [email protected]
Treasurer
Ben Vincent
Mobile: 07811801542
E-Mail [email protected]
Events Organiser
Diana Crowder
Tel 01305 834954
E-Mail [email protected]
Newsletter Editor
Alan Crowder
Tel: 01305 834954
Mobile: 07811691096
E-Mail [email protected]
Committee Member
Nicola Dench
Tel 01305 776667
Mobile: 07921919655
E-Mail [email protected]
General Enquiries
E-Mail [email protected]
Committee Member
Michael Andrew
Tel 07745811837
E-Mail [email protected]
Committee Member
Neil Murray
Tel 07934303436
E– Mail [email protected]
2
NEW COMMITTEE MEMBER
My name is Neil Murray; I was diagnosed with chronic renal disease in June 2012. My medical issues first started in 2006 with chronic hypertension, where I was diagnosed as being at stage 3 renal failure. Fortunately at that
time I was treated with the appropriate drugs and care to allow me to resume a normal life. Prior to my medical
issues, I lead a very healthy and active life, serving in the British forces for thirteen years seeing active service
in many of the worlds, troubled locations. I left the forces in 1997 and decided to join the Dorset Police, before
making the decision to go full time I decided to spend a year as a Special Constable, that year soon become six
years after attending and undergoing specialist courses and training. During my time in the Police Force I experienced most of the challenges there was to experience as a front line Police officer, leaving the force in 2004,
after a very traumatic incident.
During my time, after leaving the British Forces and working part time as a Police Constable, I maintained the
profession of a Quality, Environment, Health, Safety & Training Manager, working for companies in the UK,
Europe, Australasia, and the Middle & Far East. At present I am still managing to work in this profession as
much as my condition allows.
On my return for the Middle East in May 2012 I become unwell and admitted to Dorset County Hospital with
chronic hypertension again, the end game had finally arrived. I will never forget being told that my Kidney
function had reached stage five and beyond, my whole world had folded in around me, I just couldn’t accept
what I was hearing, I was forty six years old to me at that stage it was the end. The next few weeks were a
rollercoaster I was an emotional wreck, I didn’t know if I was coming or going. I started Haemodialysis via a
line. I had to take stock of what all this meant and tried to listen to all the medical jargon I was being told, but it
wasn’t going in, I wasn’t receiving it, no matter what was being said I couldn’t cope with it, after all I had to
endure and see in my life, I couldn’t accept or cope with this. I was too young and this couldn’t happen to me,
so I tried to convince myself.
It didn’t take long to realise that there were people who had been through this, and not only had they been
through the turmoil and emotions I was going through, but for a lot longer than I had. People in a much more
dire situation than me, I started to listen and look and take stock of the whole situation and realise that there was
help and light at the end of this gloomy tunnel, listening to other peoples experiences and the way they coped
and managed through treatment, I soon realised that not all was lost and in fact there was help and guidance
available in all quarters, whether it was Doctors, Dialysis nurses, Advice groups, family or most valid of all,
those people who had, and were, experiencing the same feelings and emotions, and had done for far longer than
me. In the last year I have met so many Renal Failure Kidney Patients that my concerns and questions have been
answered. Doctors can give you the care and the technical answers, but it takes a real person dealing themselves
with a disease or a condition to answer your most inner questions.
I am currently on APD after undergoing Haemodialysis and PD. I am also currently live on the Kidney Transplant list.
I have spent most of my adult life fighting, helping and advising others in some area or another and now I have
found myself in this situation, it is only natural and right that I give something back to those people that are going through what I have. I recently attended a dialysis awareness seminar at Dorset County Hospital, where I
have been asked to give a talk on several occasions. It was there that I become aware of the Dorset Kidney
Fund. I learnt very quickly through Paul & Sue Bithell what the Fund did and represented. I further researched
the fund and felt that I would like to help and support this excellent fund in any way I possibly could.
Neil.
3
CREAM TEAS AT MINTERNE MAGNA HOUSE
Join us at Minterne Magna House , visit the beautiful gardens then join us on the terrace for
a truly delicious cream tea.
Bank Holiday Sunday 5th & Monday 6th of May 2013, also on Bank Holiday Sunday 26th
& Monday 27th May 2013, all weather permitting.
4
DORSET KIDNEY FUND
Race Night
At
Days Hotel
Bournemouth
‘Terrace Ballroom’
Sunday 9th June 2013
Hot Supper Included
From 7pm - First Race 7.30pm
Entry £7.50
Reserve your place
Contact: Diana Crowder 01305 834954
Sue Bithell
5
01305 269293
CHRISTMAS PARTY
Once again DAYS HOTEL, formally Marsham Court Hotel, did
us proud, with courteous and
friendly staff and wonderful food
for our Christmas Party.
Everybody enjoyed the evening,
we were entertained by ‘Goldie
Rox’ band, which was a touch on
the loud side, it didn't stop people
from dancing and enjoying the
evening.
A toast was given in memory of
Bryan Rand, who was a good
friend to the DKF and always managed to get his friends to come along to the Christmas party, he will be sorely missed.
————————————————————————————————————————-
CAKE STALL
The cake stall, which took place on the 10th December at Dorset County Hospital
raised the sum of £120, the stall was manned by Steph Vincent, Sue & Paul Bithell &
Diana & Alan Crowder.
We would like to thank everybody who donated and made cakes for the occasion, it is
very much appreciated.
6
Marks & Spenser Retired Staff Association
Steph Vincent and Diana Crowder again visited
the Ocean View Hotel in Bournemouth on the 7th
February2013 to receive a cheque for £1000 from
the Marks & Spenser retired staff association,
Steph gave a short speech on the Dorset Kidney
Funds activities and what the funds are used for,
Diana also gave a talk on her experiences on dialysis and her transplant.
Steph and Diana were also asked many questions
afterwards, a lot of interest was shown by the
M&S retired staff that were present, our thanks to
the M&S retired staff for their generosity it is very much appreciated.
—–—–-———————————————————————————————–———Presentation From Gaggle of Geese
Steph Vincent Diana Crowder and Paul Bithell attended Dorset County Hospital Renal Unit to
be presented with a cheque for £2750 by Mark Hammick from the Gaggle of Geese, Buckland
Newton.
Mark and his wife Emily held a poultry auction each
year in the grounds of the Gaggle of Geese pub, all
proceeds from this event are donated to local charities.
Over the last two years the Dorset Kidney Fund along
with Julia's House have benefited from this event. We
are very grateful to Emily and Mark and thank them on
behalf of the renal patients of Dorset and South Somerset.
This donation will go towards the implementation of
the Home Haemo programme, currently being set up
by DCH and the DKF.
__________________________________________________________________________
Easter Cake Stall
A cake stall was held at DCH outpatients department on the 25th March 2013, a total of
£128.32p was made from the sale of cakes, £111.14p of this was spent on replacing the fish
tank in the renal unit waiting room, the old tank was leaking and the air pump was not working.
Thanks to all those that contributed cakes also to those that assisted on the stall
7
Owermoigne Flower Festival at Athelampton House
This year we were thrilled to celebrate our 20th Annual Festival, the title being “The Roaring
20’s”. This was a 5 day event.
We are very privileged to be able to hold our big event in Athelhampton House. Members love
having a chance to decorate spaces much larger than usual.
Most members take part in helping. All the tips and training gleaned from club meetings are
used in the displays we use to decorate the house. We start to plan our arrangements several
months in advance. This year’s theme made quite a few of us scratch our heads and dig deep into
the internet, libraries etc. to research possible titles. It always amazes me that a common theme
can be portrayed in so many different ways using a variety of all different styles of arranging
from traditional to modern and with worldwide influences.
There is a terrific atmosphere whilst we are staging the show.
Over the years we have collected over £17,250 for local charities.
The charity collection this year has been donated to ‘The Dorset Kidney Fund’.
Alison Chick
Philippa Louden
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1940’s to 1950’s
DANCE TO THE PURBECK
BIG BAND
At
Heathlands Hotel
Bournemouth
BH1 3AY
Saturday July 27th 2013
7.30PM TIL LATE
WHY NOT DRESS FOR THE OCCASION
BUFFET SUPPER INCLUDED
Tickets £17.50
All PROCEEDS TO THE DORSET KIDNEY FUND
Contact: Diana Crowder 01305834954
Sue Bithell
01305 269293
9
Stratton Village Hall
The Square Stratton
Quiz Night
Saturday 28th September 2013
7pm for 7.30 Start
Everybody Welcome
Teams of six Maximum
£5.50 per person
To include supper
All proceeds to
Dorset Kidney Fund
Bring your own drink
Contact:-
Sue Bithell
01305 269293
Diana Crowder 01305 834954
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PUZZLE SOLUTIONS
NICOLL WORLD TRAVEL
Dr Jo Rose
23 High East Street
Is still available from:
Dorchester
Fryers Nursery Ltd
Dorset
Manchester Road
DT1 1HB
Knutsford
For all your travel needs
Cheshire
Tel: 01305 263575
WA16 0SX
e-mail [email protected]
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PUZZLE PAGE
AL FRESCO, BANQUET, BARBECUE, BARS, BISTRO, BRASSERIE,
BREAKFAST, BUFFET, CAFE, CAMPFIRE, CANTEEN, CLUB,
COFFEE HOUSE, COLLATION, DINER, DINNER, DRINK,
EATING HOUSE, FEAST, FOOD, GRILL, HOTEL, LUNCH, MEAL,
MOTEL, PICNIC, PUBS, REPAST, RESTAURANT, ROTISSERIE,
SANDWICH, SNACK, SUPPER, TAVERN, TEA SHOP.
12
Across
Down
1. African equine (5)
1. Avid (7)
3. Artery (5)
2. Shrewd (6)
5. Part of a circle (3)
3. Slightly open (4)
7. Farm vehicle (7)
4. Atmosphere (3)
9. Embellished (6)
6. Yield (7)
10. Break suddenly (4)
8. Well-founded (7)
13. Plant support (4)
11. Depict (7)
14. Lumber (6)
12. Stringed instrument (6)
16. Household implement (7)15. Catch sight of (4)
17. Make a mistake (3)
16. Large vase (3)
18. Awful (5)
19. Cacophonous (5)