Health Datapalooza

HEALTH
®
DATAPALOOZA 2016
MAY 8 - 11, 2016 | GRAND HYATT | WASHINGTON, DC
A Hybrid Conference &
Internet Event
HOSTED BY
www.HealthDatapalooza.org
CONTINUING EDUCATION CREDITS:
ACHE, AHIMA, AMA PRA Category 1 Credits™,
CHIME, Health IT Certification & NASBA.
See page 12.
Diamond Sponsor:
Silver
Sponsors:
Platinum
Sponsors:
Bronze
Sponsors:
Gold
Sponsors:
®
Health Datapalooza is the gathering place for
people and organizations creating knowledge
from data and pioneering innovations that
drive health policy and practice, and generate
market value.
Who Will You Meet at
Health Datapalooza?
Dear Colleagues,
We’re excited to invite you to join us for the 2016 Health Datapalooza – the meeting that
brings data to life in ways that matter in health and health care. This year’s meeting finds
us even closer to the reality of using data, analytics, and technology to re-define how
we deliver and pay for health care. Come hear how data sharing, use, and transparency
fuels innovative applications and business models that are building momentum towards
a vibrant health information economy that drives high value health care.
Health Datapalooza draws a diverse range of public,
private, healthcare, technology, academic and non-profit
industries. Your days will be spent growing your network,
building relationships with prospective collaborators and
learning from experts with real world experience using
data to improve health and health care.
Looking for that controversial viewpoint, and the ‘what’s next’ for policies and
innovation? Datapalooza sessions can challenge your assumptions, generate new
connections, and facilitate engagement across diverse perspectives and topics.
A Sample of 2015 Attendee Titles Includes:
Chief Executive Officer
Chief Information Officer
Chief Data Officer
Chief Medical Officer
Chief Research Officer
Chief Technology Officer
App Developer/Software Developer
Data Analyst/Data Scientist
Health Policy Expert
Health Services Researcher
Venture Capital
Private Equity
Health Data Entrepreneur
Patient Advocate
Conceived as part of a public/private movement to liberate and use health data,
the Datapalooza continues its tradition of engaging patient and consumer voices,
and bringing national and international leaders from the C-levels of business and
government together for engaging discussions. And with the new leadership of
AcademyHealth, a nonprofit, nonpartisan membership organization working to improve
health and the performance of the health system, the 2016 meeting brings a sharpened
focus to the real world, actionable uses of data to drive value, improve care, and help
people lead healthier lives. Don’t miss out. Register today and come away with deep
and practical insights on how health plans, entrepreneurs, patients, and providers
are leveraging data and information technologies to improve services, enhance user
experiences, and model population health outcomes. Bring your ideas, engage in
spirited discussion, and help change health care for the better, for all.
CHAIR:
Kavita Patel, MD, Nonresident Senior Fellow,
Brookings Institution; Former Director of Policy,
The White House; Former Senior Advisor,
Senator Edward Kennedy
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VICE CHAIR:
Niall Brennan, MPP, Chief Data Officer and Director, Office of Enterprise Data and Analytics; Centers
for Medicare & Medicaid Services; US Department of
Health and Human Services
About AcademyHealth
As the national organization working with the
producers and users of evidence to improve health
and the performance of the health system, and the
home of the EDM Forum, AcademyHealth has long
been a champion for data liberation and a catalyst for
its use in decision making and quality improvement.
Together with our members, we offer programs and
services that support the development and use of
rigorous, relevant and timely evidence to increase
the quality, accessibility, and value of health care,
to reduce disparities, and to improve health.
www.academyhealth.org
2016 Themes and Tracks: Exploring
Value-Creation Through the Uses of Data
Amid revolutionary changes in the health care economy, innovative data applications drive strategies to address
high impact health care outcomes and lower cost. The 2016 agenda offers deep and practical insights on how
health plans, entrepreneurs, providers, and patients are leveraging data and information technologies to improve
services, enhance patient experiences, and model population health outcomes.
Consumer Track:
In just the past couple of years, we’ve seen a steady flow of health data released to help consumers make better decisions
for themselves and their families. As the trickle of data becomes a flood, key questions remain: What tools do consumers
need to actually understand the data? How should we rate doctors and hospitals based on the data? How can we speed
the pace of medical research using patient-provided data? What about privacy concerns? This year’s consumer track at
Health Datapalooza seeks answers to these questions and others with thoughtful experts and consumer voices.
International Track:
Vast differences in health care delivery systems exist around the globe. Yet, uses of health and health care data
represent important business, research, and technology development opportunities. Government, public health,
and health care executive leaders from the top agencies in Canada, United Kingdom, Israel, and the Organisation for
Economic Co-operation and Development will engage with the audience on key facets of data transparency, information
technology, analytics and applications of data to public health applications and health care transformation. The
audience will hear and engage in discussions that range from quality improvement, open data initiatives, national
data priorities and strategies, public-private partnerships, and business development opportunities.
Life Science Track:
In a health data economy driven by a new era of payment and delivery system reforms as well as advancements in
technology (everything from lower data storage costs, less costly genome sequencing, wider adoption of EMRs), life
sciences is at an important inflection point. How will life sciences adjust to opportunities and challenges that will be
created by rapidly growing data stores, and availability of novel data sources? Join us to hear from industry leaders as
they provide critical information and first hand experiences.
Payer Track:
Once upon a time plans had large group commercial populations with years of consistency and providers simply delivered
services for a fee. But changing populations and dynamic payment models may make it tough to predict and achieve
member outcomes in a financially sustainable way precisely as providers are getting in the game to take on risk. These
sessions explore how to use publicly available data and internal resources to more effectively leverage analytic approaches
to manage risk; accurately assess risks and project costs; and effectively align providers and incentivize care delivery.
Provider Track:
System administrators and Provider Managers report data ingestion, translation and visualization as a top issue for
their organizations, yet there are still a myriad of ways to both effectively organize the approach to data and the
ability to best leverage the data for care improvement and migration to a value-based environment. This track will
not only tackle these issues but also explore how organizations and entrepreneurs can work with providers and
improve business models for success.
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Saturday, May 7 – Sunday, May 8, 2016
PRE-CONFERENCE EVENTS
Please turn to page 13 for a description.
Monday, May 9, 2016
MORNING OPENING PLENARY SESSION
8:00 am –8:10 am
Welcome and Introductions
Kavita Patel, MD, Nonresident Senior Fellow,
Brookings Institution; Former Director of Policy,
The White House; Former Senior Advisor,
Senator Edward Kennedy, Washington, DC
(Chair)
8:10 am – 8:40 am
Niall Brennan, MPP, Chief Data Officer and
Director, Office of Enterprise Data and Analytics,
Centers for Medicare & Medicaid Services, US
Department of Health and Human Services,
Washington, DC (Vice Chair)
A Dialogue on How Public and Private Healthcare Data
Can Drive Healthcare Innovation
L. John Doerr, MBA, Venture Capitalist,
Kleiner Perkins Caufield & Byers, Member,
President’s Economic Recovery Advisory Board,
Menlo Park, CA
8:40 am – 9:00 am
Todd Park, Technology Advisor, Silicon
Valley; Special Advisor to the President,
Executive Office of the President; Former US
Chief Technology Officer and Assistant to the
President; Co-founded athenahealth and
Castlight Health, Palo Alto, CA (Moderator)
HHS Secretary’s Keynote Address
Sylvia Mathews Burwell, Secretary, US Department of Health
and Human Services; Former Director, Office of Management and
Budget; Former President, Walmart Foundation; Former President,
Global Development Program, Bill & Melinda Gates Foundation,
Washington, DC
Agenda at a Glance
8:00 am
9:00 am
10:00 am
11:00 am
12:00 pm
Sunday
Finding Untapped Value Through Sharing
and Use of Multi-Sector Data
Networking
Break
Opening Plenary
Slurp, Scrub, Push and Scale: Enhancing
the Lifecycle of Electronic Health Data
The Debate Over How to Rate Doctors and Hospitals
Networking
Lunch
The Opioid Epidemic: Data Driven Solutions
Monday
Open Data Initiatives
Social Determinants and What to Do with Them . . .
How States and Others Are Using
Medicare Data to Manage Populations
Entrepreneurship, Healthcare Delivery and
the Tesla — What Do They All Have in Common?
Speeding Up the Pace of Medical Research
Using Patient-Provided Data
Tuesday
Wednesday
4
Pilot Efforts to Connect Across Agencies:
What’s Next to Further Open Data Science
Innovation in Major U.S. Health Care
Delivery Systems: Reality Versus Rhetoric
Networking
Break
Hackers, Snoopers, Data Miners and
Mistakes in Medical Records . . .
Awards Luncheon
Making Data Work for the Public’s Health:
Telling the Story Behind the Numbers
A New Model for Discovery: Open Science
from Research to Care, and Back
Postconference: Healthcare Privacy and Security Summit at the HHS Great Hall
How Access to Public and Private Healthcare Data Can Empower Consumers
9:00 am – 9:30 am
Vivian S. Lee, PhD, MD,
MBA, Senior Vice President
for Health Sciences and Dean,
School of Medicine, University
of Utah; Chief Executive Officer,
University of Utah Health
Care, Salt Lake City, UT
9:30 am – 9:45 am
Jeremy Stoppelman,
MBA, Chief Executive Officer,
Yelp; Former Vice President
of Engineering, PayPal,
San Francisco, CA
Charles Ornstein, Senior
Reporter, ProPublica; Past
President, Association of Health
Care Journalists; Awardee,
Pulitzer Prize for Public Service,
Washington, DC (Moderator)
Making Health IT Work For Consumers and Providers
Karen DeSalvo, MD, MPH, Acting Assistant Secretary for Health,
National Coordinator for Health Information Technology,
US Department of Health and Human Services, Washington, DC
9:45 am – 10:05 am
The Congressional Perspective I
10:05 am – 10:20 am
Lessons from the UK
Senator William Morgan “Bill” Cassidy, MD (R/LA) (Invited),
United States Senate; Former US Representative, Louisiana’s 6th
Congressional District, Washington, DC
George William Freeman, Member of Parliament,
Under-Secretary of State for Life Sciences, London, UK
10:20 am – 10:30 am
Open Science Prize Announcement
The Open Science Prize is a partnership between the Wellcome Trust, the US National Institutes of Health (NIH) and the
Howard Hughes Medical Institute to unleash the power of open content and data to advance biomedical research and its application for health benefit. For more information see box on page 14.
Philip E. Bourne, PhD,
Associate Director for Data
Science, National Institutes of
Health, Washington, DC
1:00 pm
2:00 pm
Clare Matterson,
Director of Strategy, Wellcome
Trust, London, UK
3:00 pm
4:00 pm
Preconference I: International Health Innovation: Investor Perspective
Preconference II: Merit Based Incentive Payment System (MIPS) App Challenge Bootcamp
Creating a Virtuous Cycle: Designing Networks
to Create Value-Based Wins . . .
Tower of Babel: Understanding and
Integrating Big Health Data
Innovation Showcase
We’re Swimming in Data; Now How Do We Build
Business Models that Allow Us to Use It?
Closing the Divide Between Big Data and Life Sciences
Quality Indicators
5:00 pm
Networking Reception
Banking on Disruption: New Delivery Models
Networking
Break
Beyond The Glitz, The Grit: Transforming Claims
Into Actionable, Reliable, and Valid Inferences on
Quality and Cost, Not Just Pretty Pictures
CMS Blue Button on FHIR in Action
The New Health Data Economy: Strategic
Partnerships with Life Science Companies
Networking
Reception
International Health IT Policy Priorities
From Policy to Warehouse to Bedside: Using Public
and Private Data to Improve Triple Aim Goals
Managing Clinical, Population and Financial Risk as a
Provider: Diverse Perspectives on Novel Uses of Data
Data-Driven Innovations for Invisible Illness,
Mental Health and Suicide Prevention
Break
Closing Plenary
How States are Using New Data Sources
for Systems Transformation
Perils, Paradigms, and Promise —
Our Nation’s Evolving Health Info Infrastructure
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10:30 am –11:00 am
11:00 am –12:30 pm
BREAK
MINI SUMMITS I
1) PAYER: Finding Untapped Value Through Sharing and Use of Multi-Sector Data
As data systems in health care catch up to the 21st century, we are also (finally) coming to terms with the fact that the biggest
drivers of individual and population health are social, environmental and cultural; access to and use of data from those sectors is
therefore vital to health optimization and cost containment. Come and engage in discussion with panelists who are pushing the
boundaries to support and build cross sector data sharing efforts at both the national and local levels.
• Peter Eckart, Illinois Public Health Institute (Co-moderator)
• Alison Rein, AcademyHealth (Co-moderator)
• Craig Brammer, HealthBridge
• Martin Love, North Coast Health Information Network
• Amanda Tinsley-Mathias, Data Across Sectors for Health (DASH)
• Chief J. Scott Thomson, Camden County Police Department
2) SPECIAL FOCUS: Slurp, Scrub, Push and Scale: Enhancing the Lifecycle of Electronic
Health Data
The opportunities for electronic health data and analytics to transform health and care are profound, yet significant practical
challenges make it difficult for systems and individuals to produce and digest these data as usable information. Hear from thought
leaders at the helm of collaborative efforts to address key challenges such as ensuring that 1) patients are informed about the uses
of their data; 2) data are high quality; 3) data are used to drive and improve quality measurement; and 4) the community of innovators has support to scale and spread data and analytic tools.
• Erin Holve, AcademyHealth
• Michael Kahn, University of Colorado
• Daniella Meeker, University of Southern California
• Philip Payne, Ohio State University
• John Wilbanks, Sage
3) CONSUMER: The Debate Over How To Rate Doctors And Hospitals
With the release of ProPublica’s Surgeon Scorecard last year and a more detailed hospital report card from U.S. News and World Report,
the debate of doctor and hospital ratings was rekindled. This session will explore how far health care ratings can and should go.
• Ben Harder, US News & World Report (Moderator)
• Donna Cryer, Global Liver Institute
• Mark Friedberg, RAND Corporation
• Jerry Lin, DocSpot
• Olga Pierce, ProPublica
4) SPECIAL FOCUS: The Opioid Epidemic: Data-Driven Solutions
This session will address data and technology solutions for a public health problem that the CDC has declared a national epidemic:
abuse, overdose, and death from prescription painkillers. Specifically, this panel will explore how use of data analytics and tools can
support providers at the point of care when treating patients at risk of opioid and other controlled substance addiction.
• Kristin Torres Mowat, Castlight Health (Moderator)
• Miya R. Gray, SureScripts
• Christopher Powers, Centers for Medicare & Medicaid Services
• Dana Quesinberry, Kentucky Injury Prevention and Research Center
5) INTERNATIONAL: Open Data Initiatives
This session will discuss open data initiatives and priorities in several countries, including government efforts to release data, and
subsequent use by entrepreneurs to create novel applications and services. Key insights derived from secondary uses of health data
will also be discussed.
• Tim Kelsey, Telstra Health, Australia (Co-moderator)
• Elizabeth Kittrie, US Department of Health and Human Services (Co-moderator)
• Damon Davis, US Department of Health and Human Services
• Emma Doyle, National Health Service (NHS), England
• Ronny Sapir, Ministry of Health, Israel
• Nir Yanosky, Ministry of Health, Israel
• Public Health Agency of Canada (Invited)
12:30 pm –2:00 pm
NETWORKING LUNCHEON/INNOVATION SHOWCASE
Innovation Showcase — New and Noteworthy on the Main Stage
Health Datapalooza 2016 is shining the stage lights on new and noteworthy developments from across the health data space. These
micro presentations of 5-7 minutes will highlight tools, data, apps and campaigns that embody the ethos of the data liberation
movement and drive value and innovation.
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2:00 pm –3:30 pm
MINI SUMMITS II
1) PAYER: Creating a Virtuous Cycle: Designing Networks to Create Value-Based Wins
for both Payers and Providers Using CMS Benchmark Data
High-performing networks are not enough to succeed in value based arrangements and classic triple aim measures miss a major key
to success: reducing low-value care. Thirty cents of every dollar paid goes to low-value care, or procedures and prescriptions that do
not produce any additional positive outcomes. Low-value care accounts for roughly 3% of GDP and drove billing in Fee-for-Service
economic arrangements. The key to succeeding in value based programs and risk arrangements is identifying and reducing lowvalue care. Newly released CMS data allows anyone to determine design and curate a network of providers to succeed in value based
programs. Join this session to see real-world, operational examples of a virtuous cycles where payers and providers successfully
reduce low value services and share the positive results.
• Joshua Rosenthal, RowdMap (Moderator)
• Jonathan Blum, CareFirst Blue Cross BlueShield
• Sachin Jain, CareMore
• Steve Ondra, Health Care Service Corporation
2) PROVIDER: Tower of Babel: Understanding and Integrating Big Health Data
Variability in how clinical information is defined, transported and stored across electronic data sources such as EHRs and registries
is a key barrier to the interoperable and seamless exchange, collection and analysis of health data. This hampers clinicians’ ability
to coordinate care and research to track long-term outcomes and to inform public policy.
• Josh Rising, Pew Charitable Health Trusts (Moderator)
• Sanket Baralay, American College of Cardiology
• Julia Skapik (Invited), US Department of Health and Human Services
• James Tcheng, Duke University School of Medicine
• Russell Waitman, University of Kansas Medical Center
3) CONSUMER: We’re Swimming in Data; Now How Do We Build Business Models that
Allow Us to Use It?
This session looks at the various flows of data on health providers and how it can be made the most useful for consumers. We now
have provider services data, prescription data, referral data, DME data, demographic data, etc. What should we be doing with it.
Can it talk to one another? How do we make it useful?
• Charles Ornstein, ProPublica (Moderator)
• Niall Brennan, Centers for Medicare & Medicaid Services
• Robert Krughoff, Consumer Checkbook
• Jayodita Sanghvi, Grand Rounds
• Fred Trotter, Open Source Health Corporation, CareSet; DocGraph
• David Vivero, Amino, Red Swan Ventures
4) LIFE SCIENCES: Crossing the Divide between Big Data and Life Sciences
The generation and use of large amounts of data is not novel to the life sciences industry; however, the era of big data provides new opportunities and challenges for industry and its collaborators. Panelists will explore practical issues related to how industry and decision-makers use
big data and analytics including efforts to improve the efficiency and transparency of observational research, how large datasets can be used
to determine whether changes in provider reimbursement (e.g., ACOs) alter the use of high cost therapies and diagnostics, and regulations
(e.g. FDAMA Section 114) that may limit the sharing of real world information.
• Jennifer Graff, National Pharmaceutical Council (Moderator)
• Peter J. Neumann, Tufts Medical Center
• Jerry Penso, American Medical Group Association
• Patrick Ryan, Janssen Research and Development
5) INTERNATIONAL: Quality Indicators
This session will address recent advances in the development and implementation of quality indicators in different countries.
Panelists will present case studies and lessons learned from using quality indicators to improve overall health.
• Tim Kelsey, Telstra Health, Australia (Moderator)
• Ran Balicer, Israel Society for Quality in Healthcare
• Mo Dewji, National Health Service, United Kingdom
• Kevin Larsen, US Department of Health and Human Services
• Public Health Agency of Canada (Invited)
3:30 pm –4:00 pm
BREAK
7
4:00 pm –5:30 pm
MINI SUMMITS III
1) PAYER: Banking on Disruption: New Delivery Models as Competitive Advantage in a
Pay for Value World
Traditional relationships between payers and providers can be antagonistic, with each stepping on the other’s toes. This session
explores the ways payers and providers are using public and private data as a foundation for working together to improve the
delivery of care. Coordinating care through shared data as a foundation is proving to solid foundation from which to structure new,
value based economic models.
• Maureen Sullivan (Invited), BCBS (Moderator)
• Lynn Banaszak Brusco, Health Technology Institute
• Jonathan Mathieu, Center for Improving Value in Health Care
• Elizabeth Mitchell, Network for Regional Healthcare Improvement
• Farzad Mostashari, Aledade, Inc.
2) PROVIDER: Beyond The Glitz, The Grit: Transforming Claims Into Actionable,
Reliable, and Valid Inferences on Quality and Cost, Not Just Pretty Pictures
In this panel, stakeholder leaders will discuss what payers and providers really need to succeed. This view from the field will highlight what
happens when analytical results meet front line clinicians and the attributes that reports must have to be credible and actionable.
• François de Brantes, Health Care Incentives Improvement Institute (Moderator)
• Ariel Bayewitz, Provider Analytics at Anthem
• Marc Berg, Department of Health Policy and Management of Erasmus University Rotterdam
• Robin Gelburd, Fair Health
• Mark McAdoo, HealthQX
• Simeon Schwartz, WESTMED Medical Group
3) CONSUMER: CMS Blue Button on FHIR in Action
This panel will build on the BlueButton on FHIR presentation given by CMS’ Entrepreneur-in-Residence, Mark Scrimshire. The
presentation will explain the “what” of the BlueButton on FHIR project. This panel will bring to life the “how” — featuring several
third party organizations that developed applications to use the BlueButton FHIR data. This will be one of the first times the public
will have an opportunity to see the various ways that Medicare beneficiaries can use their own data thanks to the BlueButton on
FHIR framework. The panel will spark the imagination of the audience, who will be called to develop their own new uses for this
data, or adapt their existing tools to work with the FHIR framework.
• Lori Pettebone Maatta, Centers for Medicare & Medicaid Services (Moderator)
• Erika Hanson Brown (Invited), Clever Community (Colontown)
• Neil Evans (Invited), Office of Information and Analytics, Veterans Health Administration
• Charles Jaffe (Invited), HL7
• Mark Scrimshire, US Department of Health and Human Services
4) LIFE SCIENCES: The New Health Data Economy: Strategic Partnerships with
Life Science Companies
We have seen most of the major technology companies and some Silicon Valley venture capital firms make significant investments
in healthcare with a strong focus on life sciences. This session will cover current data driven efforts along with a broad view on how
major tech sector efforts are impacting the life sciences from novel partnerships to dramatically altering the talent landscape.
• Aman Bhandari, Merck (Moderator)
• Pravin Jadhav (Invited), Otsuka Pharmaceuticals
• Jessica Mega (Invited), Verily
• Pascale Witz (Invited), Sanofi
• Jessica Richman (Invited), uBiome
• John Brownstein, Boston Children’s Hospital
• Emily Drabant (Invited), 23andMe
5) INTERNATIONAL: International Health IT Policy Priorities
In this session, participants will discuss using health IT to address national health priorities. Topics will include interoperability, addressing challenges faced by aging populations, and healthy living surveillance focusing on physical activity, sedentary behavior, and sleep.
• Tim Kelsey, Telstra Health, Australia (Moderator)
• Julie A. Schneider, US Department of Health and Human Services
• Helen Caton-Peters, US Department of Health and Human Services
• Diarmaid Crean, Public Health England
• Nir Kaidar, Ministry of Health, Israel
• Representative, Public Health Agency of Canada
5:30 pm – 7:00 pm
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NETWORKING RECEPTION
Tuesday, May 10, 2016
8:15 am – 9:45 am
MINI SUMMITS IV
1) PAYER: How States and Others Are Using Medicare Data to Manage Populations
This session will provide insight into how states and other organizations are working to integrate Medicare data with Medicaid and
other payer data to provide a more comprehensive understanding of the populations they serve. States participating in CMS’s Financial
Alignment Waiver and its Medicaid Innovation Accelerator Program along with a Qualified Entity will be featured as they speak about
how the integrated data collection, analysis, and dissemination process has worked.
• Sharon Donovan, Centers for Medicare & Medicaid Services (Moderator)
• Mylia Christensen, Oregon Health Care Quality Corporation
• Doris Lotz, New Hampshire Department of Health and Human Services
• Patricia Murphy (Invited), Illinois Department of Healthcare and Family Services
2) PROVIDER: Entrepreneurship, Healthcare Delivery and the Tesla — What Do They All
Have in Common?
Moving through the various stages of health care entrepreneurship can be extremely risky and rewarding; practical lessons from
industry leaders as well as perspectives from provider clients can offer insights for attendees in any stage of growth-whether you are a
seasoned clinician trying to better understand how to vet companies or a data nerd with a dream, this session is for you!
• Glen Tullman (Invited), Livongo Health (Moderator)
• Erdin Beshimov, User Innovation
• Jay Bhatt, Illinois Health & Hospital Association
• Steve Wedig, Lingospot, Inc.
3) CONSUMER: Speeding Up the Pace of Medical Research Using Patient-Provided Data
Empowered by digital media, patients for the first time in history are connecting with each other across space and time, igniting a
movement that is changing the face of research. Patients, no longer passive participants as they are studied, are suggesting areas for
research and are contributing data from medical records and from their own experience to speed up the trajectory of progress and
discovery. Will this in fact work faster and better — overall or in some cases, as in rare disease — or just differently?
• Casey Quinlan, Patients for Clinical Research (Moderator)
• Amy P. Abernathy, Flatiron Health
• Kathy Hudson, National Institutes of Health
• Jennifer King, FDA’s Big Data for Patients
• Vanessa Rangel Miller, Genetic Services, PatientCrossroads.com
4) SPECIAL FOCUS: Pilot Efforts to Connect Across Agencies: What’s Next to Further Open
Data Science
Given the rapid pace of emerging advanced technologies and associated explosion of data generation, current computational models and
visualization approaches are quickly becoming obsolete. This panel will offer diverse insights from stakeholders involved with interagency
pilots to address individualized predictive analytical needs to support the next generation of care — utilizing new tools, models and approaches for intractable diseases such as cancer, to provide a shift from observe and treat to predict and prevent.
• Michelle Berry-Lang (Invited), National Cancer Institute
• Louis Fiore (Invited), Massachusetts Veterans Epidemiology Research and Information Center
• Elizabeth Hsu, National Cancer Institute
• Peter Kuhn, University of Southern California
• Connie Lee (Invited), US Department of Veterans Affairs
• Jennifer Lee, Stanford University
• Jeannine Walston (Invited), Integrative Cancer Care
9:45 am –10:15 am
10:15 am –11:45 am
BREAK
MINI SUMMITS V
1) PAYER: Social Determinants and What to Do with Them: Improving Cost Projections and
Nailing Resource Allocation
Quantifying and projecting costs is crucial to successfully managing a population, but it is tricky business. Claims have been a
traditional source of data to project risk and disease burden, but often lag behind. Electronic health and medical records offer another
source of data but like claims reflect only those who interact with the system, whereas often the poorest and sickest have the least access. To get a better handle on how to estimate and manage a population’s costs, this session looks outside traditional clinical data and
explores social determinants and behaviors of populations. Join this session and learn how to improve your projections and pro forma,
especially with the trickiest populations.
• Dianne Munevar, Avalere Health (Moderator)
• Jim Sorace, US Department of Health and Human Services
• Sandeep Wadhwa, Noridian Healthcare Solutions
• Eric Williams, Omada Health
• Gui Woolston, NunaHealth
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2) PROVIDER: Innovation in Major U. S. Health Care Delivery Systems: Reality versus Rhetoric
Hear from cutting edge leaders at major U.S. health systems about how they are leveraging technology to drive change in their care models.
• Lloyd Dean (Invited), Dignity Health
• Rod Hochman (Invited), Providence Health & Services
• Janice Nevin (Invited), Christiana Care
• Ankit Patel, Clover Health
3) CONSUMER: Hackers, Snoopers, Data Miners and Mistakes in Medical Records: Privacy
Fears and Other Worries Slowing Down Expanded Data-Sharing and the Tremendous Good
it Can Do
Expanded, widespread digitization and sharing of medical records could usher in amazing insights for doctors, patients, medical
research and public health — but to make that happen, we’ve first got to confront privacy issues and assorted bogeymen scaring
patients, providers and others away from expanded data-sharing: hackers, snoopers, data miners and mistakes in medical records,
propagating unseen and unchecked through miles of databases. How real are the risks, and what can we do about them?
• Francie Grace, Social Media Strategist (Moderator)
• Daniel Barth-Jones, Mailman School of Public Health
• Neal Eggeson, Indiana University
• Len Lichtenfeld, American Cancer Society, Inc.
• Jocelyn Samuels, US Department of Health and Human Services
4) PROVIDER: Making Data Work for the Public’s Health: Telling the Story Behind the Numbers
This presentation will explore methods for creating stories that build bridges between health data and the audiences who
can act on those data to improve individual and population health.
• Doris Peter (Invited), Consumer Reports (Moderator)
• Anjali Jain, The Lewin Group
• Andy Krackov, California Health Care Foundation
• Amy Max, Public Health Institute
• Diane Stollenwerk, Patient Voice Institute
5) SPECIAL FOCUS: A New Model for Discovery: Open Science from Research to Care, and Back
As our appreciation for the complexity of people and systems increases, and as new data streams and opportunities for discovery abound,
a critical transformation is taking root. Both producers and end users of research are realizing that they will get further, faster by working
together, by involving non-traditional partners in the process, and by making their work (and data!) more transparent and accessible. Join
this exciting panel as discussants involved in this new era of open science share their insights and experiences across the full spectrum, and
challenge us all to do more.
• Bradley Crotty, Beth Israel Deaconess
• Bray Patrick Lake, Duke University
• Jerry Sheehan, White House Office of Science and Technology Policy
11:45 am –1:15 pm
NETWORKING AND AWARDS LUNCHEON
1:15 pm –2:45 pm
MINI SUMMITS VI
1) PAYER: From Policy to Warehouse to Bedside: Using Public and Private Data
to Improve Triple Aim Goals
Often data is considered apart from the policy that created it or the impact its use has on a patient. To successfully create virtuous cycles
where payers, providers and patients benefit from liberating data and using it to improve outcomes and experience, various parties must
have visibility into the impact each has on the other. Join this session to explore how public data and its liberation moves from policy to
integration with private data and service delivery, leading to improved patient outcomes and experiences.
• Paul Wallace, Optum Labs (Moderator)
• Paul Bleicher, Optum Labs
• Kate Goodrich, Centers for Medicare & Medicaid Services
• Helen Burstin, The National Quality Forum
2) PROVIDER: Managing Clinical, Population and Financial Risk as a Provider: Diverse
Perspectives on Novel Uses of Data
From care of the chronically ill to managing alternative payment models, providers are now being asked to think differently about their
use of data and systems to manage individuals and populations. This has had significant impact on their workflows, tools, and engagement with patients, payers and other providers. This panel will highlight initiatives underway that integrate data, analytics, optimal
actions, and measurement to provide enhanced patient and population management — discussing challenges to these efforts as well as
lessons learned related to managing high risk patients, big data, the delivery of care in Silicon Valley and more.
• Basit Chaudhry, Tuple Health (Moderator)
• Stuart Levine, Medical Innovations Inc.
• Divyes Patel, Blue Cross Blue Shield of Tennessee
• Douglas Popken, NextHealth Technologies
10
3) CONSUMER: Data-Driven Innovations for Invisible Illness, Mental Health, and
Suicide Prevention
Data and open APIs are being used to strengthen awareness of mental illness, identify new opportunities for treatment and share
emerging data-driven innovations for invisible illness, mental health, and suicide prevention. Among them was an open API developed at the 2015 MentalHealthHackathon, which sought to develop an open database of mandatory reporting tools for organizations that offer mental health and emergency services.
• Kristen Honey, White House Office of Science and Technology Policy (Moderator)
• Bob Filbin, Crisis Text Line
• Andrea Ippolito, Veteran’s Administration
• Eric Liu, Bayes Impact
• Richard McKeon, Center for Mental Health Services
• Nevena Zubcevik, Harvard University
4) PAYER: How States are Using New Data Sources for Systems Transformation
This session will feature the efforts of several states to use claims and clinical data to support a variety of health care transformation
initiatives including population health improvement and accountable health communities; advancing multi-payer Patient-Centered
Medical Home models; and development of measures for state-level total health care costs. The panel will address policy and
governance issues, stakeholder engagement, and data infrastructure and operations relating to each state’s models.
• Rachel Block, Milbank Memorial Fund (Moderator)
• Áron Boros, Massachusetts Center for Health Information and Analysis
• David Mancuso, Services and Enterprise Support Administration, Washington State Department of Social and Health Services
• Richard Shonk, The Health Collaborative, HealthBridge, Greater Cincinnati Health Council
5) SPECIAL FOCUS: Perils, Paradigms, and Promise — Our Nation’s Evolving Health
Information Infrastructure
This spotlight discussion with the leadership from the Office of the National Coordinator is designed to offer an interactive audience
discussion about the shared responsibility to achieve better care, smarter spending, and healthier people and communities. The ONC
team will share insights into the opportunities and challenges to achieve ONC’s strategic goals and key initiatives such as addressing
privacy and security concerns to accelerate and ease the adoption of APIs, new and emerging standards, and safety and usability
within the clinical workflow.
• Liz Fowler (Invited), Johnson & Johnson (Moderator)
• Andrew Gettinger, Office of the National Coordinator
• Tom Mason, Office of the National Coordinator
• Lucia Savage, Office of the National Coordinator
• Steve Posnack, Office of the National Coordinator
• Vindell Washington, Office of the National Coordinator
2:45 pm –3:15 pm
TRANSITION BREAK
DATAPALOOZA AWARDS AND PRIZES
The Open Science Prize
The Open Science Prize is a partnership between the Wellcome Trust, the US National Institutes of Health (NIH) and the Howard Hughes Medical Institute to unleash the power
of open content and data to advance biomedical research and its application for health benefit. The Prize provides funding to encourage and support the prototyping and
development of services, tools or platforms that enable open content — including publications, datasets, codes and other research outputs — to be discovered, accessed and
re-used in ways that will advance discovery and spark innovation. It also aims to forge new international collaborations that bring together open science innovators to develop
services and tools of benefit to the global research community. This first round of the Prize consists of a two-phase competition. For the first phase, international teams will
compete for funding to take new ideas for products or services to the prototype stage, or to further develop an existing early-stage prototype. Up to six prizes of $80,000 each will
be awarded to successful teams to develop their innovation over an eight to nine-month period. In the second phase, the phase I prize recipient judged to have the prototype with
the greatest potential to advance open science will receive a prize of $230,000. Learn more about the Open Science Prize at www.OpenSciencePrize.org.
The 2016 Optum/HHS Health Code-A-Thon Challenge Prize
The integration of data from EMR/EHR systems and claims processing provides the opportunity to develop new methods for healthcare understanding while at the same
time enabling us to test established paradigms. Being able to analyze a more complete picture of the patient journey enables healthcare professionals to identify and
intervene with patients before their health issues spiral out of control. However, due to the newness and complexity of these assets, organizations continue to struggle with
deploying analytic methods that are straightforward for healthcare practitioners to implement at the point of care. The 2016 Optum/HHS Health Code-A-Thon Challenge
will develop point-of-care apps/algorithms that leverage integrated data to predict certain health factors and provide a potential means for dissemination at the POC in the
area of Rheumatoid Arthritis. Join us at the Health Datapalooza for the full announcement, including code-a-thon dates, timelines, and prize money.
Health Data Liberator Award
The Health Data Liberator Award recognizes extraordinary contributions and leadership in the liberation of health data, helping to accelerate the pace and multiply the
volume of data available to innovators in order to foster the creation of products and services to improve health and health care.
11
3:15 pm – 4:00 pm
CLOSING PLENARY SESSION
Consumer Pitch-Fest
We’re mixing things up in the closing plenary with a rapid-fire pitch-fest for organizations with market ready applications that
turn health data into meaningful and useful tools for consumers and patients. Participants will have 5-7 minutes to convince
the judges, and you, our voting audience, that theirs is the winning innovation. Come see where innovation is made manifest in
consumer-facing products — and send one team home a winner!
Judges:
• Andre Blackman (Invited), Strategist for Health Care Innovation
• Hugo Campos (Invited), ePatient Advisor
• Donna Cryer (Invited), Patient Advocate; President and CEO Global Liver Institute
• Wen Dombrowski (Invited), Resonate Health LLC
• Francie Grace, Patient Advocate, Social Media Strategist
• Lisa Latts (Invited), University of California and LML Health Solutions
• Halle Tecco (Invited), Rock Health
4:00 pm – 4:20 pm
Keynote
Andy Slavitt, MBA, Acting Principle Deputy Administrator,
Centers for Medicare & Medicaid Services, US Department of
Health and Human Services, Washington, DC
4:20 pm –4:50 pm
4:50 pm –5:10 pm
How Providers and Plans are Using Data: Pursuing the Triple Aim and ROI
David T. Feinberg, MD, MBA, President and
Chief Executive Officer, Geisinger Health System;
Former Chief Executive Officer, UCLA Hospital
System, President, UCLA Health System and
Associate Vice Chancellor, UCLA Health Sciences,
Danville, PA
James L. Madara, MD, Chief Executive Officer,
American Medical Association; Former Chief
Executive Officer, University of Chicago Medical
Center and Thompson Distinguished Service
Professor and Dean, Pritzker School of Medicine,
University of Chicago, Chicago, IL
Joseph R. Swedish, MHA (Invited), President
and Chief Executive Officer, Anthem, Inc.; Former
Chief Executive Officer, Trinity Health, Dallas, TX
Patrick Conway, MD, MSc, Deputy Administrator
for Innovation and Quality & CMS Chief Medical
Officer; Director, Center for Clinical Standards and
Quality (CCSQ) and Center for Medicare and Medicaid Innovation (CMMI), Center for Medicare & Medicaid Services (CMS), Washington, DC (Moderator)
The Congressional Perspective II
Senator Sheldon Whitehouse, JD (D/RI), United States
Senate; Former United States Attorney, Rhode Island; Former
Director of Business Regulation, Rhode Island, Washington, DC
5:10 pm –5:30 pm
IBM Watson
5:30 pm
Adjournment
EXHIBIT & SPONSORSHIP
OPPORTUNITIES: Take
advantage of this unique
opportunity to expand your
reach! Health Datapalooza is
attended by highly influential
and experienced professionals.
Sponsorship offers you strategic
positioning as an industry
leader. For more information
call 206-673-4815 or email
[email protected].
12
Deborah DiSanzo, MBA, General Manager, Head of
Watson Health, IBM; Former Executive Vice President and
Chief Executive Officer, Philips Healthcare, Boston, MA
CONTINUING EDUCATION CREDITS
Accounting Professionals: Approved for up to 24.15 NASBE CPE credits.
AHIMA: Approved for up to 58.0 AHIMA credits.
Chief Information Officers: Approved for up to 13.50 CHIME Certified Healthcare CIO (CHCIO) CPE credits.
Health IT Certification: Approval for 24.15 Health IT Certification CPE credits.
Physicians:
Accreditation Statement: This activity has been planned and implemented in accordance with the accreditation requirements and policies of the
Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of Amedco and Health Care Conference Administrators
(HCCA). Amedco is accredited by the ACCME to provide continuing medical education for physicians.
Credit Designation Statement: Amedco designates this live activity for a maximum of 22.25 AMA PRA Category 1 CreditsTM. Physicians should claim only
the credit commensurate with the extent of their participation in the activity.
Pending: Health Datapalooza is currently pending approval to offer ACHE credits.
Pre- and Post-Conference Events:
Complete Your Datapalooza Experience
8:00 am –5:00 pm
Saturday, May 7
HealthCa.mp is partnering with
#HealthDataPalooza to bring you another
exciting HealthCa.mp/dev. Join keynote speaker Aneesh Chopra and fellow developers, entrepreneurs, and
innovators from across health care to discuss the hottest APIs and interoperability solutions in health care during
this one day un-conference. For information and to register, visit http://healthca.mp/dev/.
1:00 pm –5:00 pm
Sunday, May 8 Grand Hyatt
PRECONFERENCE I: INTERNATIONAL HEALTH INNOVATION: INVESTOR PERSPECTIVE
(No Cost; Capacity Limited)
HHS IDEA Lab and the Office of the National Coordinator for Health IT (ONC) invite you to join a panel discussion
with leaders from the health technology venture capital community, to learn more about how investors think
strategically about international emerging markets, the qualities they are looking for in founders and startup
teams, and their strategic advice for the types of technologies and business models that are going to drive
innovation and disruption in health care.
In 2014, the U.S. and U.K. signed a Memorandum of Understanding to collaborate around innovation in health
care. As part of this agreement, ONC and IDEA Lab worked together with our partners at the National Health
Service (NHS) England and UK Trade & Investment to create online educational content for startups about the
UK health system, including payment, patient access, and privacy and security. This year, we are broadening our
focus to include other international emerging markets that are building robust startup and health innovation
ecosystems. For additional information on last year’s event, please visit: http://www.hhs.gov/idealab/2015/06/03/
uk-us-startup-bootcamp-expert-advice-health-entrepreneurs-international-innovation/
1:00 pm –5:00 pm
PRECONFERENCE II: MERIT BASED INCENTIVE PAYMENT SYSTEM (MIPS)
APP CHALLENGE BOOTCAMP
(No Cost; Capacity Limited)
With the passage of the MACRA legislation, a new Merit Based Incentive Payment System (MIPS) program has been
authorized to assist CMS in accelerating the transition from the traditional fee-for-service payment model to a system
that rewards health care providers for giving better care not just more care. How can CMS improve communication and
access to information that will educate eligible physicians about this new program? The first phase of the challenge
will focus on creating an app that will integrate multiple knowledge sources and provide multi-media educational
materials customized to each type of user and their preferences. The next phase will work with integrating the
CMS user portal into the app. This workshop will provide more details around user requirements for the MIPS App
challenge. It will also provide an opportunity for attendees to interface with multi-faceted customers of the app where
you can gain feedback on wireframes or prototypes to kick off your design work.
5:00 pm – 6:00 pm
NETWORKING RECEPTION
HOTEL AND TRAVEL INFORMATION: The 2016 Health Datapalooza will be held at the Grand Hyatt Washington DC. A group rate of $299.00
single/double per night (plus tax) has been arranged for Health Datapalooza Attendees.
RESERVE YOUR ROOM EARLY FOR THE BEST RATE
To make reservations online and receive the group rate please visit our website at http://healthdatapalooza.org/hotel/ . You may also book your room in advance by calling Central
Reservations at 1-888-421-1442. When you call, please reference HEALTH DATAPALOOZA to receive the group rate. Reservations at the group rate will be accepted while rooms are available or
until the cut-off date of Friday, April 15, 2016. After this date, reservations will be accepted on a space-available basis at the prevailing rate.
GRAND HYATT WASHINGTON • 1000 H Street NW • Washington, DC 20001 USA
The Health Datapalooza 2016 Conference does not contract with any third party organizations to make hotel reservations for attendees of the Conference. All attendees should
make their hotel reservations using the link provided or by calling the hotel directly, and not with a third party vendor.
13
Wednesday, May 11
PRIVACY AND SECURITY SUMMIT at the HHS Great Hall
8:00 am – 9:00 am
9:00 am – 9:20 am
9:20 am – 10:20 am
Registration Open/Coffee Served
10:20 am – 11:00 am
Panel II: Whose Law Applies and How to Find Out?
11:00 am – 11:10 am
11:10 am – 12:00 pm
Break
12:00 pm – 1:00 pm
1:00 pm – 1:35 pm
1:35 pm – 2:15 pm
Opening & Welcome
Panel I: Planning for Health Information Privacy and Security in a Global Context
This session will focus on privacy and security considerations for companies operating in a global economy. Private sector speakers
will lay out some of the key challenges of operating globally given differences in laws. Country representatives will then engage in a
broader moderated discussion.
• Stanley W. Crosley, Drinker Biddle (Moderator)
• Talia Agmon, MoH Israel
• Krysten Jenci (Invited), US Department of Commerce
• Sheila Colclasure, Acxiom Corporation
Privacy and Security are transnational and mobile, and not always well understood. In this session, FTC, ONC and OCR will share
resources for mobile developers in the U.S. economy — noting the app developer scenarios on the developer portal and providing
examples of when an app is and is not a Business Associate. An app developer and consumer rep will join the conversation, sharing
experiences and noting challenges.
• Lygeia Ricciardi, ClearVoice (Moderator)
• Loran Cook (Invited), Billians
• Cora Tung Han, Federal Trade Commission
• Lucia Savage, Office of the National Coordinator for Health IT, US Department of Health and Human Services
• Linda Sanches, Office for Civil Rights, US Department of Health and Human Services
• Bakul Patel (Invited), Food and Drug Administration
Panel III: Pragmatic Approaches to Breach Prevention and Management
Representatives from Federal agencies will share examples of what they are seeing in investigations, and note possible lessons/
strategies for the private sector. They also will share resources available (e.g., NIST framework, FTC guidance, risk assessment guidance)
and, where relevant, correlate to international standards.
• Jodi Daniel (Invited), Crowell & Moring LLP
• Nick Heesters, Office of Civil Rights
• Kevin Stine, National Initiative for Cybersecurity Education
Lunch on your Own (at HHS cafeteria)
Panel IV A: Focus on Interoperability
This session will focus on the critical role of interoperability – both among health care providers and health plans, for appropriate
reasons (treatment, payment, care coordination), and between providers and plans and patients.
• Susannah Fox, US Department of Health and Human Services (Moderator)
• Aja Brooks, US Department of Health and Human Services
• Lucia Savage, Office of the National Coordinator for Health IT, US Department of Health and Human Services
Panel IV B: Staying in the Lines While Out of Bounds — Best Practices for Building
Public Trust in Consumer Tools
This session will feature best practices for privacy to build trust in consumer tools, and will include the FTC as well as ONC describing
their efforts. Participants — including a consumer and vendor to health care with both HIPAA covered and non-HIPAA covered
clients — will then engaged in moderated Q&A/discussion.
• Marc Groman, Office of Management and Budget (Moderator)
• Cora Tung Han, Federal Trade Commission
• Jules Polenetsky, Future of Privacy Forum
2:15 pm – 3:15 pm
Panel V: From Hotel California to Free Bird: In Search of Privacy Constructs that will
Liberate Data
Despite years of constant policy movement in favor of data reporting and sharing, the actual flow of shared data remains thin. Not
only does data sharing involve a shift in power and control away from traditional players (and toward decentralized networks of
participants and data scientists), but it also requires shifts in our conceptions of how privacy risk relates to data beneficence. This
session will push discussants to think about how to evaluate balance between existing models for protection and benefit in the age
of big data, and to consider models that facilitate the uses we value and need.
• John Wilbanks, Sage (Moderator)
• Christy Collins, Mother and M-CM Patient Advocate
• Deven McGraw, Office of Civil Rights
• Andy Faucett (Invited), Geisinger Health System
• Halle Tecco (Invited), Rock Health
3:15 pm – 3:30 pm
14
Short Closing Remarks and Adjournment
HOW TO REGISTER: Fully complete the form (one form per registrant, photocopies acceptable). Payment must accompany each
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ONLINE: Secure online registration at www.HealthDataPalooza.org.
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six months of continued archived Internet access, available 24/7. FHIP Code-a-thon and
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PRE-CONFERENCES: ❏ Pre-Conference I: Int’l Health Innovation
❏ Pre-Conference II: MIPS App Challenge
no cost/capacity limited
no cost/capacity limited
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GROUP REGISTRATION (Includes Pre-Conference):
Group registration offers the substantial volume discounts set forth below.
Group registration permits the organizational knowledge coordinator either to share conference access with colleagues or to assign and track employee conference participation.
Conference Access:
❏ 5 or more $395 each ❏ 10 or more $295 each ❏ 20 or more $195 each
❏ 40 or more $95 each
See INTELLECTUAL PROPERTY POLICY, under Terms and Conditions on website.
CONFERENCE ELECTRONIC MEDIA:
GROUP REGISTRATION DISCOUNT (Rates are per person):
Five or more registrations submitted from the same organization at the same time receive
the following discounted rates for conference registration only. To qualify, all registrations
must be submitted simultaneously:
Conference:
❏ Through Friday, March 25, 2016* ❏ Through Friday, April 15, 2016** ❏ After Friday, April 15, 2016
$ 595
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REGISTRATION FOR PRE- AND POST-CONFERENCES
Both pre and post-conference sessions have limited capacity. To attend, you must mark
the pre and/or post conference session(s) above that you wish to attend. Registration is
first-come, first-serve. You will receive notice if your registration has been accepted.
SELECT YOUR MINI SUMMITS (One from each group):
Monday, May 9 — 11 am: Group I ❏ I-1
❏ I-2
2 pm: Group II ❏ II-1
❏ II-2
4 pm: Group III ❏ III-1 ❏ III-2
Tuesday, May 10—8:15 am: Group IV ❏ IV-1 ❏ IV-2
10:15 am: Group V ❏ V-1
❏ V-2
1:15 pm: Group VI ❏ VI-1 ❏ VI-2
Webcast attendees — Following the Conference, the video and presentations are made
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reserve media WITH your Conference registration:
❏ Flash Drive ($129 + $15 shipping) $144
(All Webcast attendees automatically receive 6 months access on web.)
POST-CONFERENCE: Healthcare Privacy & Security Summit At HHS Great Hall — Wednesday, May 11
❏ Onsite, In-person Attendance
$ 50
❏ Online, Webinar Attendance
$ 25
* This price reflects a discount for registration and payment received through Friday, March 25, 2016.
** This price reflects a discount for registration and payment received through Friday, April 15, 2016.
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Registration (whether online or by this form) constitutes a contract and all of these terms
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available in the following formats. To take advantage of the discounted prices below, you
must reserve media WITH your Conference registration:
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