Turtle Scoop Winter 2009.indd

A Camper’s Story
A Publication of The Painted Turtle; A Member of the Association of Hole in the Wall Camps ©2010
Medical Advisory Board
Robert Adler, M. D., MSE.d
Judie Boehmer, RN, MN
James Cappon, M.D.
Tempe K. Chen, M.D.
Pamelyn Close, M.D., M.P.H.
Wendy Cook, M.D.
Ken Cox, M.D.
Marla C. Dubinsky, M.D.
Lorry Frankel, M.D.
Alan Gianotti, M.S. M.D.
Roberto Gugig, M.D.
Sam Hawgood, M.B., B.S., M.D.
Sam Ho, M.D.
Amy Houtrow, M.D. MPH
Adam Jonas, M.D.
Irvin A. Kaufman, M.D.
Neal Kaufman, M.D., M.P.H
Robert B. Kelly, MD, FAAP
Gary Lerner, M. D.
John Mace, M.D.
Mohammad Malekzadeh, M.D.
Melvin Marks, M.D.
Clarice Marsh, R. N.
Edward R. B. McCabe, M.D., Ph.D.
Sue McDiarmid, M.D.
Maria Minon, M.D.
Mark Morocco, M.D. FACEP
Larry Opas, M.D.
Anthony Philipps, M.D.
Charles Simmons, M.D.
Feizal Waffarn, M.D.
THE PAINTED TURTLE
Inaugural CAMP CHALLENGE RIDE
CHALLENGE
Yourself...
Change
The
Life
Of
A
Child
2010
Founding Hospitals
Cedars-Sinai
Children’s Hospital and Health Center, San Diego
Children’s Hospital and Research Center at Oakland
Children’s Hospital Central California
Children’s Hospital of Orange County
Childrens Hospital Los Angeles
Harbor-UCLA Medical Center
Loma Linda University Children’s Hospital
Los Angeles County Hospital + USC Medical Center
Lucile Packard Children’s Hospital at Stanford
Mattel Children’s Hospital at UCLA
Miller Children’s Hospital
UC Davis Children’s Hospital
UCSD Medical Center
UCSF Children’s Hospital
University Children’s Hospital, UCI Medical Center
SUMMER 2010 A Publication of The Painted Turtle; A Member of the Association of Hole in the Wall Camps ©2010
The Founders
Page and Lou Adler
Lani and Herb Alpert
Shelly and Larry Brown
Janet Crown
Gil Friesen
Jami Gertz and Tony Ressler
Joan and John Hotchkis
Martha and Bruce Karsh
Nancy and Howard Marks
Sue Ann and Richard Masson
Ann and Jerry Moss
Paul Newman
Carolyn and Bill Powers
The Board of Directors
SUNDAY, SEPTEMBER 12, 2010
REGISTER NOW by visiting: www.teamholeinthewall.org/RidePaintedTurtle
For more information: Call (310) 451-1353 ext. 100 or email [email protected]
Page Adler
Lou Adler
Tom Amster
Mary Brown
Shelly Brown
Larry Brown
Melanie Cook
Janet Crown
Dr. Lorry Frankel
Gil Friesen
Steve Gaggero
Jami Gertz
James Griffiths
Ken Grouf
Jim Guerinot
Laurentius Harrer
David Hernand
John Hotchkis
Matthew Jones
Bruce Karsh
Nancy Marks
Sue Ann Masson
Carolyn Powers
Bill Powers
Tony Ressler
Joseph Rice
Dr. Cynthia Telles
Roger Wittlin
The Painted Turtle Staff
Michael House, CEO
Chris Butler
Robyn Casey
Petina Cole
Corinne Dorfman
Evelyn Fees
Kristin Friedersdorf
Jim Genardi
Nicholas Holden
Gina Jansheski, M.D. FAAP
Amanda Johnson
Scott Liloia
Blake Maher
Allen McBroom
Ben Meisel, M.D. FAAP
The Painted Turtle
1300 4th Street
Suite 300
Santa Monica, CA 90401
Address Service Requested
NON-PROFIT ORGANIZATION
U.S. POSTAGE PAID
LOS ANGELES, CA
PERMIT NO. 33
When she was 16, Painted Turtle camper
Michelle Flude wrote in her diary: “I cannot wait
to come back and be staff. I can’t wait…” And…
she did just that.
Michelle, one of our very first campers the
year our gates opened, returned as part of our
Leader-In-Training Program and eventually
became a Summer Staff Cabin Counselor AND
a volunteer…
Michelle had been diagnosed with Crohn’s
disease when she was seven. Crohn’s is an
irritable bowl condition severely affecting the
gastrointestinal (GI) tract. The illness can cause
severe chronic pain, discomfort, and can inhibit
natural childhood recreation, schooling, and diet.
Common steroids used to treat the condition can
also cause behavioral challenges such as
hyperactivity, aggression, and disturbed sleep.
After nine years of coping with her illness, Michelle describes her first summer at The Painted
Turtle as a life-changing experience: “Coming
to camp means you have the freedom to forget
your illness, be the kid you always knew you
were, but didn’t feel you could be…you can let
loose and have fun. I finally understood who I
was in the world and who I wanted to be.”
The Leader-In-Training (LIT) program at The
Painted Turtle mentors 17 and 18 year olds who
are too old to be campers and coaches them to
become future counselors. LITs are assigned to
a younger camper cabin to assist with counselor
responsibilities. They also work with a program
counselor to gain valuable programming and
guidance skills. “Being an LIT was a great
transition period into discovering the behindthe-scenes magic at camp. You experience
both sides of camp. While an LIT (and later a
counselor), I would think back to those moments
as a camper that felt magical; those times where
I felt as if I truly mattered.”
Imagine being a counselor, walking into the
same cabins where you once felt the empowering feeling of camp as a young child, “I definitely
had the ‘insider perspective.’ My experience
inspired me to become the best counselor.
Michelle is a recent
college graduate, and has
just accepted a job offer at
the Starlight Children’s
Foundation. Despite her
illness, Michelle, an inexperienced runner, recently
finished a 5K along with
her dad at the 2010 Los Angeles Marathon to
raise awareness for The Painted Turtle. Michelle
plans to run a half-marathon in Boston to raise
money for our health partner, The Crohn’s and
Colitis Foundation of America.
In Michelle’s words: “Magic. To live the magic
is really what it’s all about. If I can tell you one
reason to get involved with camp: Be involved in
something bigger than you.”
An innovative camp and family care center
for children with life-threatening illnesses.
Turtles on the Run!
The Los Angeles Marathon selected The Painted
In February 2010 The
Turtle to be a part of its official charity program for
Painted Turtle was
2010. The 5K and marathon proved to be a great
unexpectedly
fundraising opportunity as well as an exhilarating
confronted with a
experience for everyone involved. The ninety-six 5K
difficult challenge. Due
participants included board members Matt Jones,
to the condition of the
Melanie Cook, and Page and Lou Adler, as well as
economy and its impact
Painted Turtle staff, volunteers, and donors. As they
on fundraising, the
ran the course, they were greeted by a familiar face
possibility of canceling summer camp for children
half-way through: Pun - one of the camp’s most
with kidney disease and transplant was suddenly
recognized and loyal volunteers - blew bubbles,
becoming a reality. This was heartbreaking news.
gave high-fives, and cheered on Team Painted
This community of children had been coming to The
Turtle. The next morning, nine Painted Turtle
Painted Turtle since it first opened in 2004.
supporters took on the incredible feat of running
The idea of not holding this camp seemed out of
26 miles to increase exposure and raise funds for
the question—so many children consider this week
The Painted Turtle. A running “Ooo”vation to Team
the highlight of their year. And so The Painted Turtle
Painted Turtle!
immediately began a search for a means of making
We are deeply grateful for the
their summer camp session possible. Yet securing
generous dedication of our
the funding to support a specialized medical camp
partner OneLegacy, which
of this type—one that makes it possible for children
has sponsored our Liver
undergoing dialysis to have their medical treatment
Transplant Summer Sessions
right on the camp site—seemed highly unlikely,
two years in a row. OneLegacy is dedicated to
especially in a struggling economy.
saving lives through organ and tissue donation in
But then on the horizon appeared a champion
the seven-county greater Los Angeles area. With
of children with kidney disease! It was the Ann and
more than 200 hospitals, 12 transplant centers and
George Lopez Foundation, a new nonprofit
a diverse population of 19 million, OneLegacy is
dedicated to improving the quality of life for children the largest organ and tissue recovery organization
and adults through medical care and education.
in the world. To learn more about becoming an
Comedian George
organ donor, please visit: www.onelegacy.org. You
Lopez and his wife Ann can also register to be an organ donor at: www.
had visited The Painted donatelifecalifornia.org. OneLegacy, thank you
Turtle in past
for creating one truly amazing camp legacy! Other
summers during the
generous 2009 supporters of our liver transplant
kidney session, gener- campers and families included: Astellas, Genentech/
ously sharing their time Roche, Sun Shine on You Foundation, and UCLA.
with the campers. With Special thanks to Dr. Sue McDiarmid (UCLA) and
his trademark humor
Tom Mone (CEO & EVP OneLegacy).
and boundless energy, Mr. Lopez, the recipient of a
Open House
kidney transplant himself, shared his personal story
and showed the children at The Painted Turtle first
What better way to
hand how to meet a challenging medical condition
know and to love camp
with courage and spirit. Over the course of their
than to be THERE!
visits he and Ann spent hours visiting and talking
On March 14, 150
with the children, true role models of compassion
prospective campers,
and caring.
returning campers,
Through their generous support of the kidney
families, friends and supporters of The Painted Turtle
disease and transplant session at The Painted Turtle explored the wonder and magic of camp during its
this summer, Ann and George Lopez and their
annual Open House. The Open House is a great
foundation again provide another summer of hope
opportunity for prospective campers and families
and laughter for over 100 remarkable children,
to see what camp is all about, to gain comfort in
children who want nothing more than to have the
the experience, and to hopefully apply and attend.
chance to be kids at a summer camp and in the
Activities that day included
process discover all that is possible in their lives.
arts and crafts, fun with
The Painted Turtle thanks the Ann and George
Pun, singing and dancing,
Lopez Foundation for joining us in making this
refreshments, camp tours,
dream come true.
and slideshows of past
Camperships change lives. Please
sessions. Yahoo!
give a gift to help more campers
“Ranen says he likes TPT better than Disneyland.
experience life the way children
Thank you to the WONDERFUL volunteers and
should. An envelope is enclosed for
staff. You will never know just how much this
your convenience, or please visit our
means to us. Thank you thank you thank you!
website at: www.thepaintedturtle.org/
TPT Rocks!” ~Camper Parent
Please visit us at our website online at www.thepaintedturtle.org
For more information, please call 310-451-1353 or email: [email protected]
Compassion & Caring
Mandy Melton
Donna Payne
Michelle Plasse
Jackie Ramirez
Rosalyn Sayer
Cassidy Skelton
Lindsay Standish
Julie Swanson
Alma Toribio
Sean Torres
Emily Unnerstall
Dave Ur
April Uyehara
Shayla Webb
Claire White
SAVE THE DATE
OCTOBER 28, 2010
When you’re at The Painted Turtle, there’s no denying it’s a wonderful world. Where else are you encouraged
to eat spaghetti with no-hands, douse your counselors with pudding, fly through the air on a zip-line, sing songs at
every waking moment, have a marshmallow fight with your bunk mates, paint horses, dance under rainbows, and
make the best friends of your life all in one short week?
But what’s described above and so much more happens every day of every week at The Painted Turtle when
each summer over 800 children with a variety of chronic and life-threatening illnesses enter a world that allows
them to discover the power and promise of what lies within them.
This summer as part of our theme we will explore the world—its wonders, its imagination, its diversity, and its
shared humanity—as we embark on seafaring adventures, go on a U.S. road trip, hopscotch the continents, and
travel by rocket ship to places both in and out-of-this world. What connects not only our travels throughout the
summer but each day and every hour is that the campers always find reason to celebrate what they find waiting
for them. The Painted Turtle and its unique program help the children who visit us each summer to find that which
is truly sustaining and valuable in their lives: a sense of belonging, respect, trust, friendship, self-esteem, and
independence.
What’s pretty amazing about any journey at The Painted Turtle is how much distance almost every single child
covers in a week. Most campers begin the session at one place in their personal development and by the end of
the week have traveled so far in their self-discovery that parents are stunned by the transformation. “She’s like a
different person,” parents often tell us with tears in their eyes. “Thank you!”
It doesn’t matter what mode of transportation campers take when they spend a week of “travel” at The Painted
Turtle. Be it a pirate ship, magic carpet, horseback, or just a plain old pair of sneakers, the important thing is that
they do travel. The journey at camp is life changing and affirming and our campers go away knowing—believing—
that it is indeed a wonderful world.
A Letter From
Our CEO
It was the summer of 2003.
Dr. Tempe K. Chen, a physician at Miller
Children’s Hospital in the Department
of Pediatric Infectious Diseases and
Assistant Clinical Professor at UC
Irvine, was volunteering at The Hole
in the Wall Gang Camp. It was there
that she heard and learned about The
Painted Turtle, a camp that was being
built in California.
During the summer of 2006, she
found herself at The Painted Turtle
volunteering as a camp doctor for a
muscular dystrophy summer session. “My first session was incredible.” “I was
looking forward to seeing the wheelchair
accessible ropes course at The Painted
Turtle. It was amazing! The sense of
freedom these kids experienced was
remarkable. At camp, they finally felt
like they were just like everyone else.
They had formed strong bonds, they
were able to talk and share with others
going through the same experiences.
In addition, these kids were able to do
things they never thought they could
do. It’s also amazing to see their
bravery, their sense of empowerment,
and increased self-confidence as they
perform at a stage night. “Overall, I am so amazed at how
advanced the Well Shell medical facility
is and am impressed with the Well
Shell’s access to numerous medicines
and antibiotics to support the campers.
Once parents see how many medical
volunteers are there to help and they
see the support of physical therapists,
respiratory therapists, top physicians,
etc, they instantly become comfortable. “Personally, I’m inspired by these
kids and how
brave they are. I
am in awe of how
mature they are
and what they
deal with. On my
drive home after
volunteering at a
camp session, I always think about how
lucky I am to be a part of it all!”
Medical volunteers make the camp
experience at The Painted Turtle
possible. We are truly grateful to Dr.
Chen for the many sessions for which
she has volunteered and the invaluable
support and guidance she has provided
as a member of our Medical Advisory
Board.
~Michael L. House, PhD, CEO
INTRODUCING...Dr. Gina Jansheski
Volunteer Days
Medical Director
The mission of The PaintedTurtle is to bring happiness and fulfillment to the
lives of children with chronic and life-threatening diseases. I feel that everything I
had experienced before prepared me for this work. It is a special change, the
opportuniny to be with children so similar to those I cared for in the hospital but
now they are having the time of their lives, and I am too.
I completed my Pediatric residency in Tucson and was accepted to a fellowship in Developmental and
Behavioral Pediatrics at The Children’s Hospital in Denver. I loved working as a developmental fellow. The
clinic was set up as a multidisciplinary center and we worked together as a team to evaluate children with
autism, fetal alcohol syndrome, Fragile X, Prader-Willi syndrome and many other conditions. Our team was
made up of a child psychologist, physical and occupational therapists and feeding specialists. I learned
about the very complicated lives of families who must care and advocate for their children with special
needs.
I didn’t set out to be a hospitalist; it was just a part-time position that led to an 8-year career path. I
became Medical Director of the hospitalists when the founding director left. Our group grew from 4 to 12
providers and admitted almost 3000 pediatric patients per year along with over 1800 newborns. Over the
years it took its toll, as I missed so much time with my own children who were growing up quickly. I began to
look for a different kind of life. This led to an enlightening and rewarding journey into Palliative Care, and I
formed a team at our hospital focused on children with chronic medical conditions. We worked with families
that were facing tremendous losses and began to learn how to provide support and hope. I was humbled
by the unwavering love and dedication they exhibited in the most difficult moments. Last year, I attended a
formal course in Palliative Care Education and Practice at Harvard, one of the few pediatric courses in the
country. Through these studies I was lead to the concept of Hole in the Wall Camps.
I never dreamed I would have the opportunity to come and be part of the magic that is clearly happening
here at The Painted Turtle.
INTRODUCING...Allen McBroom
General Manager
When I discovered the new General Manager position at The Painted Turtle, I
became very excited about potentially being a part of such an extraordinary
organization. It wasn’t until I arrived at camp that I realized the significant impact
The Painted Turtle has on these children dealing with chronic medical conditions.
Prior to arriving at The Painted Turtle, I served as Director of Operations for GNC overseeing the LA and
Nevada market and managing up to 40 stores. There are 22 regions in the company and my region was
ranked in the top 5 for 6 months. Before taking over this region, it had been in the bottom 5. I also opened
several new stores in my region managing the entire project.
In addition, my wife and I have owned and operated two businesses in the Antelope Valley for the past
eight years. We recently relocated one of our businesses and completed the construction of a 10,000 sq ft.
facility. I managed the entire project, hiring and overseeing all subcontractors and project budget.
I have seen some remarkable improvements here at camp. With the guidance and support from CEO
Michael House and hard work from the facilities department, we have been able to implement structure to
maintain and enhance the beauty of the camp facility. I have felt completely at home and welcomed with
open arms by my camp colleagues.
Being a native of the Antelope Valley, I am very thrilled and honored to be a part of this great camp haven
for seriously ill children in my backyard. I eagerly anticipate exploring new and innovative ways to make our
camp grounds thrive.
Introducing...Evelyn Fees
Development Assistant
Coming from Wyoming, Los Angeles is a bit of a culture shock, but I have felt
nothing but welcomed since the day I started at The Painted Turtle. I have loved
working at both a health-related non-profit program and at a summer day camp
in Wyoming, but being able to combine the two seems too good to be true! I love
being part of a team whose goal it is to make kids feel accepted, happy and like
part of a much larger community, despite the obstacles they are facing. For me,
this is an exciting new beginning.
“This camp was awesome! It exceeded our expectations… It is certainly our silver lining in our
experience with her illness. The caring nature of all the volunteers was very sincere and
heartfelt. Thank you a million times over.” ~Camper Parent
Program Volunteer
profile: Joshua Hart
Volunteering
is good for the
heart and the
soul! VolunTurtle
Joshua Hart
knows this first
hand, as he has
been a volunteer
since camp opened in 2004. Over the last seven
years, Joshua has volunteered for 25 different family
weekend, summer, day program, and Hospital
Outreach programs and sessions, and the number
keeps growing. In addition, he serves as a cochair on The Painted Turtle’s Los Angeles Regional
Advisory Board to help raise important funds and
awareness for our campers and camp programs.
Joshua first heard and became involved with
The Painted Turtle very early on, in fact, before The
Painted Turtle even opened. Through his affiliation
with the Crohn’s and Colitis Foundation of America,
Joshua was a volunteer at The Painted Turtle’s first
CCFA summer session and family weekend.
For Joshua, camp is that feel-good atmosphere
where kids with the same or similar medical
conditions can meet, know they aren’t alone, and
develop a real sense of camaraderie. Joshua’s
favorite parts about camp are the smiles and the
laughter. “You hear all the laughter, true laughter
that shows all these kids have put all their stresses
aside. And what makes the camp experience
so much greater is hearing from the parents and
campers who look forward to The Painted Turtle all
year long.”
Joshua says volunteering at camp is a good
reminder to keep things in perspective. “No matter
what, you always get more out of camp than you
give. Camp has the longest days, but the shortest
weeks, and they are so worth every second.”
After all these years, Joshua has recruited many
volunteers, including his mother, and he spreads The
Painted Turtle news whenever and wherever he can.
Hats Off
To Pun...
for the
laughs,
smiles and
magic you bring to The
Painted Turtle camp and
campers...
The Painted
Turtle has already
kicked off another
great year of
volunteerism! On
both February 7 for
General Volunteer
Day and May 15 for Corporate Volunteer Day,
The Painted Turtle hosted 200 volunteers during
workdays at camp to prepare for spring and summer
programs. Stuffing turtle pillows, cleaning cabins,
organizing costumes, working in the orchard, and
assembling summer staff manuals were just a few of
the helpful tasks that volunteers undertook!
These dedicated
volunteers made
sure that camp was
clean and beautiful
for the thousands
of campers and
family members
who will join us this year. The Painted Turtle relies
tremendously on the dedication of our volunteers
and not just during the spring sessions alone, The
Painted Turtle has already welcomed over 100
program and medical volunteers to make camp
happen. Thank you to all of our volunteers who
help make camp a magical place for our deserving
campers! A special round of applause to the following
companies that participated in Corporate
Volunteer Day: Affinity Group, Baxter BioScience,
DaVita, Deluxe Corporation Foundation, Disney
VoluntEARS, GE Energy GSCM/NBC Universal,
KB Home, Krispy Kreme, Lockheed Martin,
MBI Media, RPA, Sony Pictures Entertainment,
UnitedHealthcare, and the Yahoo! Employee
Foundation. The Painted Turtle is leaps and bounds
ahead of schedule, so THANK YOU!
Volunteering
During the summer, volunteers work as Volunteer
Cabin Counselors, in collaboration with our full-time
summer cabin counselors, to supervise, support and
care for campers throughout every aspect of their
camp life. Family weekend volunteers work as either
Family Pals or Program Pals. The Family Pal is
assigned to work with a family for the duration of the
weekend and act as a host, tour guide and friend.
Program pals work in a specific program area such
as Woodshop, Arts & Crafts, Boating & Fishing or
Ropes Course. All program volunteers must be at
least 19 years old.
Medical professionals may also volunteer their
services in our Well Shell medical facility to provide
care for our campers and staff. If you are unable to
be a program or medical volunteer, you may
volunteer your services around the campsite and at
The Painted Turtle Santa Monica Office as a Turtle
Helper by assisting with special projects and
administrative needs.
For more information on volunteering, please visit:
http://thepaintedturtle.org/turtle /volunteer_opportunities/.
Carving & Caring 4
Campers
While surfing
the Internet,
Mark Neal,
a woodshop
teacher at East
Bakersfield High
School, came across The Painted Turtle after
trying to search for painted horses. Little did he
know that the fortuitous introduction would be a
relationship in the making.
In the spring of 2004, Mark contacted The
Painted Turtle with an idea to introduce camp
to his kids in his woodshop classes. Mark had
learned that there would be a woodshop at the
camp for the children who would attend, and he
wanted his students to get involved.
His idea was for them to make wooden cut
outs of shapes such as turtles, hearts, and
stars. These cut outs would then be sent to The
Painted Turtle where the campers could choose
a cut out and paint, wood burn, mod podge and
more. “Doing the cut outs is a win-win deal
because my students get time on all the tools,
and get a lot more experience, and The Painted
Turtle campers have an abundance of projects to
choose from,” says Mark.
Six years later, the woodshop students of
East Bakersfield High School are still going
strong! With the use of The Painted Turtle
camp video especially for Mark’s woodshop
classes, students get an introduction to the
mission of The Painted Turtle and the children it
serves. As a result, Mark says, “Students always
seem to want to get involved.” Each year, about 100 to 150 students
participate in the project, totaling 500-750
students during the course of the growing
relationship. “The students at East Bakersfield
High cut out these projects over five to six periods
a day for four weeks and then are kind enough to
assist in loading the van on pickup day. “My last year at East High I figured that we
could double the number of projects by splitting
the lumber on the bandsaw. The school bought
the woodshop a huge 26-inch bandsaw that was 8
feet tall. In the first year we did that we increased
the numbers from 2200 to 3800 projects. In
addition new shapes have evolved: a surf board,
a whale, a shark, a T-shirt and more. It’s a lot
more work bandsawing the wood, but well worth
the time when my students can get more projects
into the hands of more kids.” “They are truly
making a difference,” says Scott Liloia, Program
Coordinator at The Painted Turtle.
“My favorite part
about camp
is woodshop!”
~Camper, 2009
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The Painted
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nounce
the launch of
our
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700 online
supporters,
including ma
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Painted Turt
parents, volu
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The page will
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and events,
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to connect.
BINGO! at
On March 11, Painted Turtle friends and supporters
gathered at The Roxy Theatre for the 7th Annual
Bingo event. With fantastic prizes,
host Ricki Lake, Bingo
callers, Cisco
Adler, Jami
Gertz, Daryl
Hannah, Lakers
Cheerleaders
Bria and
Suzanne, Isaiah
Mustafa, Norman
Nixon and
“The Young and
the Restless”
cast members
Elizabeth
Hendrickson,
Billy Miller,
and Greg Rikaart
rocked the house.
Kudos to the
outstanding
event committee;
Lisette Ackerberg, Eve
Gerber, Simone Harrer,
Susan Mazzoni and
Carolyn Powers!
2010 CAMP CALENDAR
SUMMER SESSION
Liver Transplant: June 12-16
Kidney Disease and Transplant: June 20-26 Muscular Dystrophy: June 29-July 3
Crohn’s and Colitis #1: July 7-13
Rheumatic Disease: July 17-22
Crohn’s and Colitis #2: July 27-August 2 Hemophilia/vWF and Thalassemia: August 6-11
Skeletal Dysplasia: August 15-20
FALL SESSION
Primary Immunodeficiency Diseases: September 24-26 Asthma and Allergy: October 8-10
Crohn’s and Colitis: October 22-24 Kidney Disease and Transplant: November 5-7
Diabetes Family Day: November 20
Camper Holiday Gathering: December 4
VOLUNTEER DAYS
Aerospace Volunteer Day: September 11
If you would like to schedule a visit to camp,
please contact Amanda Johnson at 310-451-1353 ext. 101 or [email protected]