Unwrapping Blessings and Miracles
Transcription
Unwrapping Blessings and Miracles
www.ololchildrens.org e We Holiday Edition 2013 Unwrapping Blessings and Miracles Do you Believe in Miracles? M any parents will tell you miracles abound at Our Lady of the Lake Children’s Hospital. Our caregivers will often tell you that in return, they are blessed by their interactions with courageous children and families who sometimes l a i c e p A S essing Bl Lord as we gather this Christmas season, We thank You for the present of Your Son. We thank You for the many WHO help us care for Your children: Our team members, medical staff, cling to hope when there is seemingly little to and those WHO give of their time and financial support. hope for - when all that is medically possible May this Christmas Season BE filled with your love, has been done. Our wish is that this issue of Wee Believe will leave you inspired this holiday and believing in the magic of the season, perhaps even contemplating your own gifts and blessings, both peace and blessings upon each of them. We ask all this in Your name in hope and expectation. Wishing you and your family a very Merry Christmas those you have received and those you might share with others. Fr a ncis ca n Mis s iona r ie s of Our Lady Celebrating 100 years of Faith and Service —Jon Bon Jovi & e L ittle M iracle E Miracles happen every day. Change your perception of what a miracle is and you’ll see them all around you. g n i pp a r w n s g U essin s e Bl iracl M table of contents 4 6 7 9 11 13 15 e k illensbec —C. S. Lewis E Br oc kH Miracles are a retelling in small letters of the very same story which is written across the whole world in letters too large for some of us to see. Miracle in Bed 3 Brock’s Story Blessings Received From a Nurse’s Perspective Miracle of Medical Research Haley’s Hope Miracle of Modern Medicine Kory- The Man of Steel Blessings of Paying-it-Forward Battling Obesity Blessings from Giving Marla’s Experience A Message from the Foundation President/CEO All information provided on diagnosis and therapy reflects the care environment of Our Lady of the Lake Children’s Hospital and related physician practices. It is not a substitute for the professional judgment of a qualified healthcare provider based upon actual examination of a patient’s condition and history. Therefore, it should not be construed as medical advice for any particular patient’s condition, and may not be altered in different care environments. On the cover and this page: Brock Hillensbeck, OLOL Children’s Hospital patient Cover Photography: Jeannie Frey Rhodes 3 T f Brock’s Story his particular Sunday morning started out fairly normal for the Hillensbeck family. Mother Shonda was in New Orleans with her daughter for a talent audition. Two-year-old Brock went to church with his grandmother who sings in the choir. During choir practice, to occupy the toddler’s attention, someone handed Brock a wooden drumstick. Brock, as any curious toddler would, carried the stick with him as he explored church property. What happened next would be the beginning of a long mystery. A church member discovered Brock lying on the ground. He had fallen and bloodied his nose. The drumstick lay beside him. When Brock’s dad called his wife to report the accident, Shonda, a registered nurse, asked all the right questions. Is he sleepy? Vomiting? Worried about a concussion, Shonda hurried home that afternoon. Brock in critical condition in the pediatric intensive care uni t Shonda walked into her house to be greeted with a hug from Brock. He seemed to be acting like his usual self and even playing. After an hour, Shonda heard “an odd, weird cry that I had never heard before.” She found Brock in a living room chair unable to move his right side, parts of his face seeming to droop. What would on any given day be a 20-minute drive, took the Hillensbecks half that time as they rushed to Our Lady of the Lake Children’s Hospital. Once there, the pediatric emergency medical team ordered a CT scan, a computerized picture of Brock’s brain. To everyone’s surprise, Brock’s brain looked fine. With his symptoms only getting worse, doctors admitted Brock to the hospital for further observation. Dr. Matei Petrescu was the pediatric critical care specialist on duty. Shonda says, “If it hadn’t been for Dr. Matei, I know Brock wouldn’t still be here.” Dr. Petrescu and his trescu team ordered another Dr. Matei Pe e 4 3f Miracle in Bed CT scan, this time of Brock’s brain and neck. The results shocked even the most experienced caregiver. “I had never seen this before; there have been few cases reported in children,” recalls Dr. Petrescu. Remember that drumstick Brock was walking around with? Without anyone realizing it at the time, the drumstick was in Brock’s mouth when he fell. The stick perforated the back of his throat and clipped one of Brock’s carotid arteries that carries blood to the head and brain. A clot then traveled to Brock’s brain, causing a stroke. Shonda remembers 12 to 15 people rushing Brock to surgery where a pediatric neurosurgeon removed part of Brock’s skull to relieve pressure on the brain. The next few days would be critical. The Hillensbecks were told everything possible had been done medically. With the pressure in Brock’s brain being monitored by special equipment and a machine breathing for him, the family could only watch and wait. As is often Bless a child with a miracle. Donate at ololchildrens.org. E e the case with brain injury, so the brain can rest, specialists ordered minimal stimulation for Brock. This meant the Hillensbecks had to speak in whispers and Shonda couldn’t rock and hold her baby when she needed and wanted to the most. Shonda says, “I kept praying that God would not take my baby home with Him, because I needed him here.” After several days, the medical team then told Shonda it was time to go ahead and hold Brock. “I knew that what they were telling me was there was nothing else that could be done,” Shonda recalls, adding, “I am looking at signs that say ‘Minimal Stimulation, Do Not Touch, Don’t Talk Loudly.’ I knew this might be the end.” Dr. Petrescu says, “Brock was in critical condition. We were all very worried I kept praying that God would not take my baby home with Him, because I needed him here. Shonda holding her ba by for what she thoug ht might be the last tim e about his prognosis. The magnitude of his injury had me concerned that he may not survive. During my discussions with Brock’s family, I was deeply touched by their strength, faith and spirituality.” What happened next defied all odds. “I’ve said from the beginning, Brock is my miracle baby. There’s only one explanation and that’s God’s healing —Shonda Hillensbeck Shonda and Brock today 5 Blessings Received From a Nurse’s Perspective John Gaines, Registered Nurse: Sometimes in the Children’s Hospital, things can be rough. Although working with children is one of the biggest blessings in my life, sometimes the things I see are heartbreaking. I am often told by parents and family members of patients, they can’t believe what I and my colleagues do for a living; that they could never imagine having to see what we see and do what we do. Although I see more positive outcomes than negative, I had not seen a miracle in a long time. In April, I had the unbelievable opportunity to take care of Brock Hillensbeck. Although surgery was a success, doctors feared the worst. Even if he survived, it was believed the stroke had caused damage extensive enough that he would not lead a normal life. It’s never easy when doctors are telling family members that their child possibly could not pull through. Nevertheless, the family pressed on with prayer and support, believing their miracle would come. I do not want to exaggerate, but I believe this family’s Facebook page got tens of thousands of hits and prayers/condolences sent to the family not just from local people but nationally and even internationally. I can remember staying at his bedside. At this point, the toddler still was not responding to pain (not a good sign) and had little to no movement in all extremities. This beautiful child had the entire PICU staff hoping for something medicine could not do alone. I remember leaving early on a Saturday, saying goodbye to the family, wondering if this would be the last time I talked to them or saw their son. I called to check a few times and not much happened over the weekend. That next week when I came back to work, I entered the PICU and as I walked by bed 3 expecting a ventilator, I discovered a child in his mother’s arms without a breathing tube. Immediately a smile appeared on my face and tears entered my eyes. Over the next two weeks I would be blown away as he continued to improve. Within a month of the accident, Brock was well enough to go to a rehab facility. I remember in July, to my surprise, seeing the patient’s mother in the hallway of Peds4. A little boy in a leg brace was walking with her, holding her hand and even talking. It was Brock! 6 hand on my son,” says Shonda. Within 24 hours of taking her son in her arms for what she thought might be the last time, Brock began to improve. Brock’s parents were originally told that if Brock survived, he might spend two months in the Pediatric Intensive Care Unit (PICU), another month in a step-down unit and two to four months in outpatient rehabilitative therapy. As it turned out, Brock spent four days in the step down unit and six weeks in therapy. “Brock walked out holding my hand,” says Shonda, adding, “Not only is he alive, he is walking and talking.” Dr. Petrescu says he and the team in the PICU never cease to be amazed at what they often witness firsthand, adding, “We have the privilege to attend to the needs of extremely sick children and their families. We do our best to help them get better. Sometimes we forget how much we are also touched in return by their strength and resilience.” The Hillensbeck family will tell you they believe in miracles, the kind that happen at a children’s hospital they never thought they would need or have to visit. Shonda says, “God does work miracles. If you need reassurance that He is still working miracles, come take a look at my son.” E See Brock take some of his first steps at ololchildrens.org/miracleinbed3. Although I give all glory to God for this miracle, I could not help but feel joy, happiness, pride and humbleness at the same time, and gratification that the care we provided led to this. Always remember, you never know what situation you are about to get into and you never know why you were chosen for it, but always embrace it. It’s there for a reason. Although I had little part in the events that took place, I am forever grateful and blessed to have had the honor to take care of this patient and his family. Bless a child with your gift. Donate at ololchildrens.org. Miracle of Medical Research Haley’s hope f “ T f ry holding your nose and breathing through a straw for 60 seconds. It’s not pleasant. You can stop. I can’t.” That’s how Haley Troia describes living with cystic fibrosis. Haley was diagnosed with the disease as an infant and doctors at the Haley Troia durin g a recent stay at OLOL Children’s Hospital time told her mother, Treylynn Troia, that she wouldn’t live past age 10. Today Haley is 17. Mine are just different,” rationalizes Cystic fibrosis (CF) is a hereditary, Haley, who is inspirationally upbeat and genetic disease that affects the way positive with everyone who meets her. mucus is processed and eliminated from Pediatric pulmonologist Dr. Raphael the body. Thick mucus tends to build Cilloniz specializes in treating CF at Our up in the lungs leading to infection and Lady of the Lake Children’s Hospital. He damage. Likewise, mucus can block the confirms Haley is one special kid, saying, digestive tract and pancreas, inhibiting “She simply enlightens my day when I see her. No matter how difficult my day digestion. Patients like Haley suffer from has been, she always makes me laugh.” frequent serious lung infections, trouble Haley sees specialists in seven breathing and poor growth and weight subspecialties at OLOL Children’s gain. There is no cure for CF. Hospital. The Troias live in Oak A typical day for Haley consists of Grove, Louisiana, near Monroe. The inhalers, nebulizers, pills with every family makes the 400-mile roundtrip meal to help her digest food, finger drive to Baton Rouge once a month, pricks to monitor blood sugar and sometimes more frequently when 20-minute stints with a vibrating vest Haley is hospitalized. Treylynn says that helps clear congestion. “I have it the drive is well worth it, adding, “You for a reason. I always told myself that want to be in the best place. Whatever people have hard times, and so do I. your illness is, if it’s short-term or long-term, chronic or just something that happens, you want the best care possible.” Dr. Cilloniz, as any good doctor does, stays current on the latest treatments for diseases he sees in his practice. Recently, he came upon a research study that showed promise in a new CF drug. The catch was the drug is only effective in CF patients with a specific genetic mutation of the disease. Dr. Cilloniz immediately began running tests on Haley, but the odds were stacked against her. “Kalydeco (the new drug) works only for CF patients with at least one copy of the G511D mutation, which is found in only four percent of CF patients in the United States,” Dr. Cilloniz observes. He says, “The prevalence of CF is about one in 4,000 people. That means that the chance of having CF with this particular genetic mutation is about one in 100,000.” “It’s truly a miracle and blessing from God is all I can say,” Haley says, recalling the day she learned that her tests had come back positive; she did in fact have the genetic mutation and 7 !! “The fact that she was given to us by God has been a blessing to us.” —Treylynn Troia —Treylynn Troia Miracle of Modern Medicine Kory-The Man of Steel Dr. Cilloniz listens to H aley’s breathing E g function Haley’s lun d so im has prove her lly, dramatica pist thera respiratory uring a d s ile sm is all recent visit. Little Blessings “I know families are scared, tired, frustrated- yet they still remain hopeful. I feel blessed to be a part of their journey and I am grateful for the wonderful doctors who save these precious lives.” —Madison Dumas, Child Life Specialist 8 f f “ Whatever your illness is, if it’s short-term or longterm, chronic or just something that happens, you want the best care possible. “ was a candidate for treatment with the new drug. The results have been astounding. Since beginning Kalydeco over the summer, Haley’s lung function has dramatically improved, she has gained 30 pounds and her feeding tube has been removed. Treylynn remembers Dr. Cilloniz saying to her, “If he did not know she had CF, he would say her pulmonary function was normal.” Until recently the life expectancy for a patient with cystic fibrosis was 30 years but through the miracles of modern medicine, improvements in treatment and care are advancing the lives of CF patients. Haley has high hopes for her future and wants to attend beauty school, get married and have children one day. The little girl whose family was told she might never make it through grade school, emphatically says, “We’re proving them wrong every day!” Haley continues with regular visits to Dr. Cilloniz and other specialists at OLOL Children’s Hospital who will be with her for the long haul. For that, Treylynn says she is most thankful because, “It’s having doctors that care. They’re not just treating you; it’s not just a job - they care. They go above and beyond.” Bless a child with a miracle. Donate at ololchildrens.org. Left: An exam ple of pectus exca va Right: Kory tum shows off his new phys ique Y ou might find it surprising that a teenager would be excited about having surgery. But as Kory Moranto waits to be taken to the operating room, he is beaming with enthusiasm and talks about how long he has waited for this day. Kory is about to have a fairly new procedure that only a few pediatric surgeons in Louisiana perform. Three of these doctors belong to the team of pediatric surgical specialists at Our Lady of the Lake Children’s Hospital. Kory was born with a condition called The sign Kory’s father made for him pectus excavatum, which is Latin for “hollowed chest.” His breastbone never formed properly and instead of bowing out, his sternum curves inward, making his chest look sunken, hollowed or scooped out. The condition occurs in one in 1,000 children and if severe, can affect the heart and lungs. It is usually noticeable at birth but can worsen in adolescence, just at a time when body image means everything. “I’ve dealt with getting bullied and picked on my whole life about this and how they could see my bones because my chest was sunken in so badly,” says Kory adding, “I’ve been invited to 9 E —Kory Moranto swimming parties where I would just talk and hang on the side. I wouldn’t swim or take my shirt off. I was always embarrassed.” Pediatric surgeon Dr. John Lopoo believes pectus excavatum can have a devastating effect on a teenager’s psyche, “so they won’t go swimming or play shirts and skins with their friends. They have a posture that tries to hide their chest all the time” and can ultimately affect their interactions with other people and relationships. Dr. Lopoo, along with his partners, performs what is now known as the Nuss Technique, named after the doctor who developed it. Prior to this procedure, the only surgical treatment involved a longer, more invasive operation and an incision that spanned the entire chest, leaving more visible Dr. John Lopoo and Dr. Faith Hansbrough bend and cut the steel bar to fit Kory’s chest the steel bar It changed the way I think about myself. It’s helped me realize a whole new perspective on life. Blessings of Paying-it-Forward W E scarring and removing important cartilage that Dr. Lopoo says is meant to act as a shock absorber for internal organs. The Nuss Technique involves making two tiny incisions on each side of Kory’s chest. With the aid of a special video camera, a guide wire of sorts is threaded through the sternum. Dr. Lopoo takes careful measurements; one size doesn’t fit all here. He uses a press next to the operating table to bend, shape and size a metal bar on the spot which he will then insert into Kory’s sternum using the thread wire as a guide. Once in place, he pops the bar into an upward position. Kory now has a chest and his incisions are minimal and hidden. Because Kory has to take a six week break from activity for recovery, his family, like many, opted to have the surgery over the summer. The bar will stay Kory with his family prior to surgery in place two to three years as his chest heals and ‘remodels’ into its new shape. At that point the bar will be removed. It might not surprise you that Kory’s friends now lovingly call him the “Man of Steel.” When Kory returned home from the hospital, his father surprised him with a Superman sign he made himself. Kory has taken it one step further, sporting a Superman backpack at school these days. Kory says his new chest is “Amazing! I love it! I walk around with my shirt off all the time now. It changed the way I think about myself. It’s helped me realize a whole new perspective on life.” Bless a child with your gift. Donate at ololchildrens.org. Battling Obesityf f Surgeons view vid eo monitors in th e OR to place 10 f f hen most people are calling it a day, you can find Dr. Patrice Tyson maneuvering a weight scale onto an elevator outside her office. She’s headed to a special clinic that helps obese children free of charge. She is passionate about what she thinks of as a calling because she knows how it feels to be obese. “You know you are different,” Dr. Tyson says. She was obese as a child herself. Dr. Tyson Dr. Patrice Tyson as an adolescent is a pediatric gastroenterologist at Our Lady of the Lake Children’s Hospital. Joined by Angelle Pate, a registered dietitian, the two operate a clinic for pediatric obesity called Our Lifestyles, Our Lives. The clinic is offered to children whose body mass index (BMI) is above the 95th percentile for their age (the official definition of obesity) and to children who are suffering from serious health problems associated with too much extra weight. “Their weight is outpacing their height,” as Dr. Tyson puts it. The clinic, which just completed its change her life.” Kourtney started eating a healthy breakfast, replacing soda with water and exercising more. She has lost 10 pounds. This is typical of the children who attend, says Dr. Tyson, explaining, “They are not necessarily Kourtney Janeau and Angelle Pate at a recent 5K run dropping a huge amount of weight, but they start to not gain eighth session, takes 10 children for 10 weight so rapidly. Mostly it’s about weeks and educates them on healthy changing behavior that will help them eating and how to exercise. The class lose more weight in the long term.” even involves trips to local grocery Kourtney says hearing that encouraged stores and restaurants to learn how to her because, “I was stressing about select and order healthy food. Dr. Tyson my weight but when I stopped paying says, “I know that they will go on and attention to it and focused more on just help someone else, a pay-it-forward getting healthy, I felt much better.” type of thing. Eventually, if we all payAngelle has acted as a mentor for it-forward, we can get this [pediatric Kourtney beyond the clinic confines. obesity] under control.” Kourtney recently took what she Fourteen-year-old Kourtney Janeau is learned and ran with it, literally. She a perfect example of how the concept shared with Angelle that she wanted is working. Kourtney came to the clinic to run in a 5K race, a little over three overweight, unhealthy and unhappy. miles. Angelle was right by her side at a She remembers, “Sometimes, I would race last December and another one in cry and cry. I felt like it was too hard the spring. Angelle says, “She opened to even try to do anything about it.” my eyes. Everyone needs a little push, After meeting Dr. Tyson and Angelle, including myself. These kids can make all that changed. Angelle says “We just an impact on all of us as well.” connected. She was very motivated, Natasha Johnson, Kourtney’s mother, interested in nutrition and wanting to says, “We have started eating things 11 Blessings from Giving f f E Marla’s Experience Dr. Tyson loading up a weight scale to bring to one of her free clinics A program participant learning about healthy food choices with Angelle at a local grocery store we never thought we would eat. We have more vegetables in our house. I eat spinach now! We have a water cooler in the house so the kids can have easy access to more water. I stopped buying sodas and we have more fruit for snacks. I’ve even been able to decrease my blood pressure medication.” Paying forward what she has learned is extremely rewarding for Kourtney who shares, “I want to help people that feel like me and show them that you can’t rush anything with your body. I want them to know that they are not alone and someone is always there with them.” According to Natasha, the real blessing in all this comes not only with a healthier, happier, more confident Kourtney but, “it brought our family closer together. We’re not just sending the kids outside to play. Now we are all doing it as a family.” It’s hard to say who is more inspirational: the child who has turned her life around and paid-it-forward to others, the pediatric gastroenterologist who turned adversity as a child into a gift for the community or the nutritionist at OLOL Children’s Hospital who recently was awarded ‘Louisiana Dietitian of the Year’ for her work. Angelle will readily tell you that award was special, but nothing like the award Kourtney would bestow upon her when she named Angelle as her hero for a class presentation. “To hear her say that was so inspiring,” says Angelle. Go to ololchildrens.org/myhero to hear some of Kourtney’s presentation. More research to come in the battle against pediatric obesity E Announcing the newly named recipient of the Sister Marie Edana Corcoran Endowed Chair in Pediatric Obesity at Pennington Biomedical Research Center funded by OLOL Foundation (L to R) William Cefalu, M.D., Executive Director of Pennington Biomedical Research Center; Peter Katzmarzyk, Ph.D., Marie Edana Corcoran Endowed Chair in Pediatric Obesity and Diabetes at Pennington Biomedical; John Finan, President and CEO of the Franciscan Missionaries of Our Lady Health System; Jerry Jolly, Chairman of the Pennington Biomedical Research Foundation Board of Directors; and Sister Kathleen Cain, OSF, Provincial of the Franciscan Missionaries of Our Lady. 12 Bless a child with a miracle. Donate at ololchildrens.org. f B ig gifts sometimes come in small packages. Marla Aronson may only be 14 years old, but she is having a huge impact on Our Lady of the Lake Children’s Hospital. After touring the hospital last spring, Marla noticed something was missing. Until now, the playroom at OLOL Children’s Hospital has been mainly geared toward younger children. But one-fourth of the children hospitalized every year at OLOL Children’s Hospital are adolescents age 12 to 17. Staying in a hospital bed for days, even months at a time, can be difficult. Therapeutic play can help kids forget about, even if only momentarily, the illness or injury that brought them to the hospital in the first place. Child Life Specialist Sharon Wesberry says that’s important, “because they are focused on normal activity rather than their illness, which not only lifts their spirits but actually helps them heal faster.” Knowing her Bat Mitzvah, a Jewish coming of age ritual for girls, was just around the corner, Marla had an idea that would snowball. Instead of asking for gifts for her celebration, she would ask her guests to donate money to create a new teen lounge at the hospital. Donations came in from across the country. Marla raised almost $10,000 for the project. Marla’s efforts were compounded by donations to the 2013 Radiothon hosted by 96.1 The River’s Murphy, Marla Aronson at the Teen Lounge grand opening with Melissa Anderson, Director Community Relations those children.” Teenagers hospitalized at OLOL Children’s Hospital for everything from car accidents to cancer will now reap the benefit of Marla’s caring heart. As is often the case, those who give back receive many unexpected blessings in return. Marla says, “I feel so great about it! I had no idea how good it would make me feel to be involved with a charity. I feel so blessed.” Sam and Jodi. A generous grant from the Alicia Rose Victorious Foundation, which funds similar teen rooms across the country, helped as well. Finally, this August, the new Teen Lounge at OLOL Children’s Hospital held its grand opening. Now teens can choose from a variety of teen-geared activities: arts and crafts, hoops, foosball, video games and movies - all housed in a space with signage that gives all who enter notice -‘Teens Only’. “I hope they will look forward to that quiet time in an environment made just for them,” Marla adds. Marla’s mother Laurie Aronson couldn’t be prouder saying, “It’s hard to resist wanting to help a child in need. OLOL Children’s Hospital is a top-notch facility with a fabulous staff. We must all New Teen Lo un support its efforts because and grand op ge at OLOL Children’s Hos pital ening festiviti es. they are taking care of our future in 13 f Your destination for pediatric specialty care. Now with more than 60 pediatric specialists in over 20 subspecialties, we are here when your child needs that next level of medical expertise. Adolescent Medicine Karen Simpson, MD Child and Adolescent Psychiatry John deBack, Jr., MD Joseph Grizzaffi, MD Warren Trask, MD Melissa Watson, MD Pediatric Allergy & Immunology Sandhya Mani, MD Theron McCormick, MD Pediatric Emergency Medicine Shannon Boudreaux, MD Richard Lasseigne, MD Ashley Saucier, MD Brian Stout, MD Chris Woodward, MD Cristina Zeretzke, MD Pediatric Endocrinology James Gardner, MD Chantal Lutfallah, MD Pediatric Gastroenterology Pediatric Anesthesiology J. Brannon Alberty, MD Patrice Tyson, MD Tiffany Bourgeois, MD Abe Reddy, MD Pediatric Genetics Pediatric Cardiology Michael Brumund, MD Michael Crapanzano, MD Wesley Davis, MD R. Lester Hixon, MD Pediatric Critical Care Brian Binck, MD Kelechi Iheagwara, MD Firdous Laique, MD Stephen Papizan, MD Matei Petrescu, MD Pediatric Developmental Medicine Steven Felix, MD Duane Superneau, MD Pediatric Hematology/ Oncology L. Vandy Black, MD Catherine Harris Boston, MD Jeffrey Deyo, MD, PhD Sheila L. Moore, MD Pediatric Hospital Medicine Lynzie Boudreaux, MD Angela Byrd, MD Natalie Evans, MD Erin Hauck, MD Shaun Kemmerly, MD Kacie L. Sims, MD Pediatric Infectious Disease Michael Bolton, MD Karen Williams, MD Pediatric Nephrology Scott Williams, MD Pediatric Neurology Charlotte A. Hollman, MD Lalania K. Schexnayder, MD Pediatric Neurosurgery Allen S. Joseph, MD Scott Soleau, MD Pediatric Ophthalmology Andrew Black, MD Bradley Black, MD Candace Collins, MD Stephen Sessums, MD Pamela Williams, MD Pediatric Orthopedics Brad Culotta, MD Michael A. Frierson, MD Pediatric Pulmonology Rafael Cilloniz, MD Thomas Horsman, MD Pediatric Radiology Allison M. Vitter, MD Pediatric Surgery Faith Hansbrough, MD John B. Lopoo, Jr., MD J. Robert Upp, Jr., MD A Message from the Foundation’s President/CEO I f you are anything like me, after you read the inspiring stories in this issue of Wee Believe, you gain an appreciation for and understanding about the difficult and daunting challenges our doctors, nurses, therapists and caregivers face on a daily basis. Yet they do so willingly. This vocation is a choice, a calling. They have dedicated their lives to making things better for our children. Everyday, these special people respond to a call for action when they walk into our children’s hospital or their clinics. They often have no clue what they will face in the coming hours, but years of training and education along with their unfailing commitment and strong faith, transform them into an extension of God’s healing powers. One of our PICU nurses, John Gaines, provides his perspective by saying, “Always remember, you never know what situation you are about to get into and you never know why you were chosen for it, but always embrace it. It’s there for a reason”. Thank you, John and the entire team at OLOL Children’s Hospital for responding to the call to action for our children. With the holiday season upon us, many things will surface and distract us and it will be difficult to prioritize what should be addressed first. My request to you is to focus throughout the season on every blessing you have been given and to give thanks to the Lord and to every person who has helped provide those blessings to you. My call to action for you is to consider honoring someone you love with a gift to OLOL Children’s Hospital by taking the envelope inserted in this magazine, making your gift and mailing it back to us. You may also make your gift online at ololchildrens.org. By doing this, you are blessing, in turn, the children we serve; helping ensure we continue to save and change the lives of children throughout Louisiana and beyond. Our community was recently blessed with a life lesson from a nineyear-old boy who had been a patient in our Children’s Hospital. In the midst of a terminal cancer diagnosis, Trevor Sims led an incredibly successful food drive inspired by the simple desire that no person go hungry in our community. Trevor even visited pediatric cancer patients here to cheer them on in their fight at the very time his body was losing its battle with cancer. Trevor is in Heaven now but his spirit lives on forever and the children in our hospital have a new angel. May the Lord continue to bless you and your family. Merry Christmas and Happy Holidays! John Paul Funes Our Lady of the Lake Foundation Little Blessings “This child spent many months in the PICU after swallowing a caustic substance. We all fell in love with him because of his sweet demeanor and strong will. He had many bumps along the way but has made a remarkable recovery. He is a true miracle!” —Megan Daboval - Registered Nurse “A baby came to PICU very ill with many complications and stayed for many months. Everyone who took care of her fell in love with her beautiful smile and wonderful foster family. It is a miracle to see her thriving and well today; you would never know she spent the majority of her first year of life with us!” —Kelli David - Registered Nurse Trevor Sims (R) visiting with a pediatric cancer patient at OLOL Children’s Hospital f Our Lady of the Lake Foundation 5000 Hennessy Blvd. P.O. Box 84357 Baton Rouge, LA 70884 Non-Profit Org. U.S. Postage PAID Baton Rouge, LA Permit No. 753 Address Service Requested f Events 'Like' Our Lady of the Lake Children’s Hospital on Facebook! Cortana Kiwanis Downtown Baton Rouge Christmas Parade December 14 • Downtown Baton Rouge Holiday Book Drive - Barnes & Noble Citiplace Now through January 1, 2014 Our Lady of the Lake Children’s Hospital Radiothon February 13-14, 2014 • Broadcast by Murphy, Sam, and Jodi on 96.1 The River For more information on Our Lady of the Lake Children’s Hospital or Wee Believe magazine, please contact: Dance Marathon at LSU benefiting Our Lady of the Lake Children’s Hospital February 21-22, 2014 • John M. Parker Coliseum, Louisiana State University RE/MAX Professional Miracle Luncheon and Silent Auction March 21, 2014 • The Renaissance Hotel, Baton Rouge This Holiday Season... Melissa Lewis Anderson Director Community Relations and Business Development Our Lady of the Lake Children’s Hospital 7777 Hennessy Blvd., Suite 406, Plaza 1 Baton Rouge, LA 70808 Phone (225) 765-5016 [email protected] Wee Believe is published by OLOL Foundation Copyright 2013 Our Lady of the Lake Hospital, Inc. Bless a child with a miracle. Donate at ololchildrens.org. OLOL Foundation is grateful for the support we receive from our friends in the community. If you wish to no longer receive requests for charitable support, please let us know by calling 225-765-5951 or writing to us FOU-438(11/13)BRP using the enclosed prepaid envelope.