Spring - Lupus Foundation of Minnesota

M I N N E S O TA
spring 2009
Volume 33, Number 2
A PUBLICATION OF THE LUPUS FOUNDATION OF MINNESOTA FOR INDIVIDUALS WITH LUPUS, THEIR FAMILIES, THEIR FRIENDS AND THE MEDICAL COMMUNITY
Lupus News
Features:
The Only Constant . . . . . . . . . . . . . . page 3
Spring Evening Fundraiser. . . . . . . . . page 3
Walk for Hope at New Location . . . . page 4
Looking FOREward to Lupus
Golf Classic 2009 . . . . . . . . . . . . . . . page 4
Living with Pain but
Standing with Courage
By Heidi Stokes
HCMC Announces New Clinic . . . . . page 5
The other day as our family was sitting down to dinner, the TV
was on and we were discussing (you guessed it) our troubled
economy. My husband clicked off the television, and as we
reached for one another’s hands to pray he said, “Well, at
least we’ve got our health.”
Survery to Help Reach
Patients Outside Twin Cities . . . . . . . page 5
We all burst into laughter because health is in short supply in
our family. But thankfully, joy and laughter isn’t.
Burau Family Hosts Fundraiser . . . . . page 6
Let me tell you a little bit about the Stokes family.
Support Group
Facilitator Training . . . . . . . . . . . . . . page 6
Student Summer Fellows Sought. . . . page 7
My talented husband Brad is currently disabled with a rare
liver disease called primary sclerosing cholangitis. He is on a
waiting list for a second liver transplant. Fourteen years ago he was given a new chance at life when a family
courageously and graciously looked beyond their own grief and donated their child’s organs so Brad and several
others could live.
Former Student Fellow,
Rhodes Scholarship Recipient . . . . . . page 7
My vibrant and robust son, Christian, who just turned 18, was diagnosed with Type 1 diabetes at 15 months old –
a toddler. He is alive today because of a miracle liquid called insulin.
Recruiting a Virtual
Walk Committee . . . . . . . . . . . . . . . . page 5
Lupus CDs Available . . . . . . . . . . . . . page 7
Outreach Volunteers Wanted . . . . . . page 7
Lupus and the Heart/
Lupus y el Corazón . . . . . . . . . . . . . . page 8
Support Groups. . . . . . . . . . . . . . . . . page 9
And I was diagnosed with lupus at 17. A teenager, I was told I might have only four years to live given the rapid
and destructive progression of my disease. But due to high doses of prednisone, prayer, a loving family, and good
medical care, I’m writing to you today.
Do you believe the saying “When you have your health, you have everything,” is true? Does that mean the Stokes
family has nothing? Or does it mean we carry an extra burden that many others don’t bear, and don’t understand?
Contributors. . . . . . . . . . . . . . . . page 10-11
LFM Staff . . . . . . . . . . . . . . . . . . . . . page 11
LFM Schedule of Events . . . . . . . . . page 12
Schedule Pickup Service . . . . . . . . . page 12
You may also hear “health is wealth.” Does that mean we are destined to be poor?
I can say, without a doubt, my life is richer (though certainly not easier) because of the illnesses our family has
endured. Pain, a constant companion, has completely changed my world, but it has also added a dimension so
deep that it is beyond words. I believe you truly understand joy when you also know pain.
LFM Board of Directors . . . . . . . . . page 12
Continued on page 2…
Lupus News
LUPUS FOUNDATION OF MINNESOTA
2626 East 82nd Street, Suite 135
Bloomington, MN 55425
MISSION STATEMENT: We serve those affected by lupus, raise awareness and fund
research in an ongoing effort to improve the lives of others.
CHANGE SERVICE REQUESTED
Nonprofit Org.
U.S. Postage
PAID
Minneapolis, MN
Permit No. 1019
featured story
Continued from front page…
There is one thing I have observed over the past years
and it continues to ring true: Absence of pain in one’s
life does not guarantee happiness. And pain in one’s
life doesn’t necessarily mean you are destined to
be unhappy.
I remember when I was first diagnosed I wished people
could understand how I felt. The pain (you know the
type—the throbbing, radiating muscle and joint pain
that refuses to give up) and the deadening fatigue
people with lupus experience can be profoundly
isolating. If others only understood, I thought, I might
not feel so distant from them. There was so little of
lupus to see on the surface and looking fine while
feeling like hell was a confusing combination for
everyone. I know there were times when friends
thought I was faking, conveniently becoming “too
tired” to attend their event. When people don’t
understand you at that level, it creates a whole
different type of pain.
The year my husband’s liver began to fail, he also slipped
into that profound knowledge of fatigue. He finally
understood. Brad gave me the perfect description.
“Fatigue is a terrible tormentor, it robs you of hope. You
wonder if you will ever be well enough to get anything
done. It’s like driving an old, beat-up car, you never
know if you are going to make it to your destination,
and that plays games with your confidence.”
He learned that fatigue is not just being tired. When
you are tired and lay down your tiredness is quenched.
With fatigue, even lying down can sometimes be just
too much work.
Sometimes I feel that living with lupus is like running
a race with a cement overcoat, while wearing tiny,
slippery, patent-leather shoes two sizes too small. (Oh,
and don’t forget your wide-brimmed hat to keep the
sun off your face!) Clearly, you are at a disadvantage.
But still, you are expected to run the race and finish on
time like your peers. The worst part is when you look
over at those other contestants to see that they are
sporting perfectly coordinated, moisture-wicking,
running outfits, and properly fitted athletic shoes.
Managing pain and the disappointment of lupus can be
a fulltime job. It requires practice, courage and then
more patience. It is not a disease for wimps and it may
be the most difficult task you will ever undertake. We
didn’t choose to get lupus, but we can choose how we
react to this diagnosis. (Note to self: Choosing a
positive reaction may be a little more difficult while
on large doses of steroids!)
Lupus News
— Heidi Stokes, pictured above with husband Brad and son Christian
Here are the things I’ve learned over the years:
I learned that while I couldn’t change my circumstances
I could choose the way I would react to them. My body
might be sick, but my soul, mind, and spirit would
stay healthy.
I didn’t choose to have lupus, I didn’t choose to have
my husband suffer from liver disease, and I didn’t
choose to have my son be afflicted with diabetes. But
I can choose how I react to them.
I have chosen to limit my complaints because living
with someone who complains is not any fun.
I have chosen to try to not top anyone’s complaint –
even though I could.
I have chosen joy over pain.
spring 2009
I have chosen to recognize that no one but God knows
how deep my pain is, as well as how great my joy is.
I have also chosen to celebrate whenever possible,
which includes drinking Diet Coke out of a crystal
wine glass.
I don’t always succeed at making these choices and
often I clearly make bad ones, like choosing chocolate
over vegetables, or the recliner over stretching.
It’s also important to keep in mind that you can’t
always trust your circumstances. When Brad was first
diagnosed with his liver disease, we were told that it
was a terminal disease. Liver transplantation was still
a concept, not a technique. Fortunately, his disease
progressed very slowly and by the time he went into
liver failure, he was the 523rd liver transplant
completed at the Mayo Clinic.
I have chosen life over death.
I have chosen to be a victor rather than a victim.
I have chosen to focus on beauty rather than pain.
I have chosen to forgive myself for being sick, my
husband for being sick and my son for being sick.
I have chosen to forgive my friends for being well.
I have chosen to forgive my friends or relatives if they
say something completely insensitive.
I have chosen to embrace all of what life offers which
includes pain as well as joy.
I have chosen to trust God, despite my circumstances,
and walk by faith.
ARGH!
2
“Absence of pain in one’s life does not guarantee happiness.
And pain in one’s life doesn’t necessarily mean
you are destined to be unhappy.”
When I was 17, I was told my life would be cut short.
I’m now a middle aged lady with an 18-year-old son!
When my son was diagnosed with diabetes at 15
months old we were told he would probably be small
and chances were very good that he could have
learning disabilities. Instead he wrestled on the varsity
team as an eighth grader, played varsity football as a
sophomore and took college math and science courses
all through high school. He’s been offered college
scholarships. He’s as tall as his father. The future was
much brighter than we were told.
So, when you are slogging through life in your cement
overcoat and your tiny, pointy shoes, you feel as if you
aren’t making any progress and the race doesn’t seem
fair, remember who wins the race. It’s slow and steady.
It’s the tortoise, not the hare.
I have chosen not to be angry.
I have chosen not to keep score.
I have chosen to discipline my thinking and not allow
myself to compare myself with others.
I have chosen to be challenged by my circumstances
rather than being devastated by them.
Remember too, that you are not alone. There is an
entire organization committed to you and your
struggles, an organization that understands and is here
waiting to help.
what’s happening
The Only Constant…
Current Examples of Change
By Jennifer Monroe, President
I’m genuinely excited about joining the Lupus
Foundation of Minnesota (LFM). As an organization
that has a long and deep commitment to its mission,
I feel privileged to have the opportunity to work with
board, staff and volunteers to lead the organization
forward in implementing its new strategic direction.
The term that is used in organizational development
to describe the role of this task would be that of a
“change agent.” According to Wikipedia, a change
agent is “someone who intentionally or indirectly
causes or accelerates change.” In our case, that change
is toward a wonderfully articulated vision statement
that arose out of a desire to continue to improve how
LFM can more effectively and efficiently support those
with lupus. The statement reads:
It is the strategic vision of LFM to provide a web-based
community in which those affected by lupus and those
working towards a cure can unite. Through this
unification, the LFM portal will promote an environment
emphasizing research, research funding, facilitating life
with lupus and scientific and clinical exchange. We
expect that by acting on this vision LFM will inspire
hope among patients, caregivers, scientists and donors
until our commitment is ultimately rewarded with a cure!
In these challenging economic times, change can be
dictated by external factors. How we adapt to the times
and how we respond to the challenges that confront us
can be the key to our future health, viability and
strength. While our new strategic plan is there to help
guide decisions about how we use our precious human
and financial resources, donors and volunteers can
determine our success as an organization. We have
been lucky in the past to be strengthened by a wide
network of committed individuals that support our
efforts. You, our volunteers, are the real change agents,
without whom we could not and cannot succeed – that
fact is constant and will never change.
Please look for ways to get involved! This issue is
sprinkled with an array of new and interesting
volunteer opportunities that go way beyond just writing
a check such as: planning or participating in our firstever 5K run; joining a virtual development committee;
joining in our efforts to explore ways to reach the
hard-to-reach; or attending an enjoyable evening
fundraiser out at the Arboretum to usher in spring!
You can…
There is more to come! Current examples of
changes we are implementing are sprinkled
throughout this newsletter and include:
• Conducting web-based focus groups aimed
at identifying barriers (and identifying
technology to over-come) those living
‘out state’ face in accessing client education,
information and support services. (See story
on page 5.)
• Hosting a series of social networking
fundraisers to share news about our work
and mission with the broader community,
aimed at expanding our volunteer and donor
base. (See Spring Evening Fundraiser below.)
• Providing group facilitation workshops in
order to more effectively support those
volunteers who facilitate lupus support
groups throughout the state and region.
(See story on page 6.)
• Expanding on the success of our Walks for
Hope by adding a 5K run to the event to
increase awareness of the disease and
expand participation. (See story on page 4.)
“Be the change you seek in
the world.” — Gandhi
www.lupusmn.org
Spring Evening Fundraiser
Tuesday, April 21
Featuring Master Gardner Rebecca Kolls
Minnesota Landscape Arboretum
Join LFM for a fundraiser featuring dinner and a gardening
talk hosted by Rebecca Kolls at the beautiful Minnesota
Landscape Arboretum.
3675 Arboretum Drive, Chaska MN 55318
(located nine miles west of I-494 on
State Highway 5 in Chanhassen, MN)
R.S.V.P. by April 13
Cost
$25 per person includes buffet dinner, presentation,
Arboretum admission and parking
Schedule
5:30 - 7:00 p.m. Social and Buffet Dinner
Arboretum Tours on your own
Rebecca Kolls
(The Bonsai Exhibit & Spring Trunk Display
are both open to guests.)
7:00 - 8:00 p.m. Rebecca Kolls Presentation
Rebecca will be speaking on digging in to the
treasures found in your backyard. She’ll share tips
on saving money through frugal gardening,
growing bigger flower gardens for free, increasing
your harvest and making the most with your space
– even if you don’t have a yard.
Call Sara at LFM at 952-746-5151 or email to
[email protected] to reserve your spot.
About Rebecca Kolls
Master Gardener Rebecca Kolls (www.RebeccaKolls.com)
hosted NBC’s nationally syndicated show “Rebecca’s
Garden” for 11 years and has been the lifestyle and
gardening contributor for ABC’s Good Morning
America since 1998. She authored the book,
“Rebecca’s Garden: Four Seasons to Grow On,” and
now publishes her own magazine, “Seasons by
Rebecca.” She’s appeared on Oprah, CNN, Regis and
Kathy Lee, NBC’s Weekend Today Show, and many
more and celebrated the Tournament of Roses Parade
as HGTV’s host 1999–2003.
3
events
We Need YOU More Than Ever…
Volunteer your time and talents, donate used items or attend a fundraising event…
there is something in here for anyone and everyone who wants to make a difference.
Walk and Run for Hope
New Event, New Location
Looking FOREward to the
Lupus Golf Classic 2009
12th Annual Twin Cities Lupus Walk for Hope
Moves to a New Location and Adds 5K Trail
Run/Walk
Mark your Calendars for SEVEN, EIGHT, NINE…
Spring has not yet sprung, but it’s never too early to cast a gaze
toward the summer that is to come… and that means the 11th Annual
Lupus Golf Classic.
The Twin Cities and Rochester Lupus Walks for Hope will take place
on Saturday, September 12 and 19, respectively. And the Twin Cities
event is undergoing some exciting changes and additions!
The 2009 18-hole scramble golf tournament will take place on
Wednesday, July 8 at the beautiful StoneRidge Golf Course in
Stillwater.
The Twin Cities event is moving! This year’s event will be held at
French Regional Park in Plymouth. The park is easily accessible (on
Teams and individuals are encouraged to participate. There are a
number of sponsorship opportunities available. All proceeds will
be dedicated to lupus research.
County Road 9, between I-494 and Hwy. 169,) has plenty of parking
and will provide a beautiful one-mile walk along the north shore of
Medicine Lake on a paved path.
We added a new 5K Trail Run/Walk! The 5K (3.1 miles) will provide
a bit more of a challenge for those interested, covering the park’s turf
trails through the woods and marshlands.
Golfers will tee off with a shotgun start at 12:00 Noon. Golf will be
followed by a short program, fantastic dinner, live auction and
awards. Registration begins at 10:00 a.m. All participants receive
an assortment of gifts and are in for a great day on the links.
The one-mile Walk and 5K will occur simultaneously and will be
followed by entertainment, snacks and silent auction, similar to
past Walks.
You’ll enjoy a fabulous day out of the office and will be helping those
with lupus in Minnesota and throughout the world by supporting
research to find the cause, treatment and cure for this disease.
Watch for more details on the Lupus Foundation of Minnesota’s
website (www.lupusmn.org) and in the next issue of Lupus News.
For further information, please contact
Sara Otto at (952) 746-5151 or
[email protected].
In the meantime, make sure to mark your calendar for the Twin Cities
Lupus Walk for Hope and 5K Trail Run/Walk on September 12. And
the Rochester Walk for Hope on September 19.
Support the Lupus Foundation of Minnesota
If you can’t attend either the Walk or Golf events and still wish to support
the Lupus Foundation of Minnesota, use this form to indicate your donation.
My gift is enclosed for:
$25
$50
$75
$100
Visa
MasterCard
$250
$500
Other_________
I have enclosed a check for the amount noted above.
I’m authorizing my gift be charged to my credit card.
Card No._______________________________________
Expiration Date_____________________
Signature_______________________________________
Email address_______________________________________________________
Name (please print)___________________________________________________________________
Phone_______________________
Address_________________________________________ City/State/Zip_____________________________________________________
Contributions are tax deductible as provided by law. Please enclose this form with completed credit card information or your check in an envelope and mail to us
at: Lupus Foundation of Minnesota, 2626 East 82nd Street, Suite 135, Bloomington, MN 55425-1380.
4
Lupus News
spring 2009
events/news briefs
Recruiting a Virtual Walk Committee
In addition to your attending the Walk and Run in the
Twin Cities or the Walk in Rochester yourself, LFM is
asking you to share your time and talents to assist in
event planning and development. Consider joining our
Virtual Walk Committee as we plan the 12th Annual
Twin Cities Lupus Walk for Hope and 5K Trail
Run/Walk and the Rochester Walk for Hope.
In lieu of the formal event planning committee of the
past and at the request of some, we’re looking to this
format. It will be a little less time-consuming,
eliminating the formal meetings and travel. But at
the same time, we’re hoping to make the most of
volunteer’s talents and efforts. You can take the time
you would have spent in a meeting and traveling to
and from, and put it to good use, on your own to help
in a variety of ways.
MARKETING AND PUBLICITY
We’re looking for folks with connections to media
sources to blanket the city with promotional materials
or explore other ideas about how best to spread the
word about this fundraising event.
OTHER DONATIONS
The Walk for Hope has traditionally relied upon the
donation of other products that enhance the event –
bottled water, snacks, registration gifts and more.
Become a part of this and help connect LFM with
sources for gifts, snacks, entertainment, kids games, etc.
Sarah Delaney, a graduate student in the
Master of Business Communication Program
at the University of St. Thomas is completing
VOLUNTEERS
AUCTION
Without volunteers, Walk day will not be a success.
We have need for reliable folks to help with set-up,
registration, auction set-up and check-out, food and
beverage, etc. Help recruit and organize volunteers
or simply volunteer yourself. LFM staff has resources,
marketing materials, forms, letters, etc. to assist all
committee members in the virtual volunteer efforts.
A silent auction is conducted in conjunction with the
annual Walk event. LFM solicits local businesses for
auction items, but we could use your help to find
additional items, merchandise, certificates, etc.
Volunteers are also sought to run the auction on-site
with the help of LFM staff.
Contact Sara Otto, Vice President of Development,
at [email protected] or (952) 746-5151 to learn
more or to commit to a task committee. Please know
that anything you can contribute, any contacts you
can make, any publicity you can garner is much
appreciated and will go a long way to building hope!
We’ve outlined a few areas where we’re hoping you as
a committee member can help us out:
Seeking Survery
Participants to Help
LFM Better Reach
Lupus Patients Outside
the Twin Cities
her Spring Semester 2009 practicum with us
here at the Lupus Foundation of Minnesota.
Sarah is developing and conducting an online
survey aimed at assessing how LFM can better
reach those affected by lupus, that live out of
the Twin Cities, through technology.
The research project will identify barriers
individuals that live in rural or remote counties
face in accessing adequate information about
the diagnosis, management and treatment of
the disease, as well as assessing the impact that
existing web-based resources offered by LFM
have on providing necessary information and
Hennepin County Medical Center
Announces a New Clinic for Lupus Patients
support to lupus patients and families. The
survey will identify key questions and facilitate
a web-based questionnaire among existing
and potential clientele aimed at evaluating
education, support and information needs in
Drs. Peter Schlesinger, Barbara Segal and Ronald
Molony, Rheumatologists at Hennepin County Medical
Center, recently announced the opening of a new clinic
dedicated to the care of patients with lupus. Although
lupus is a relatively common autoimmune disorder,
diagnosis is often delayed; and care in the community
tends to be fragmented, making it difficult for patients
who have a complex multi-system disease to receive
the timely care that is optimal to prevent complications.
Located at Hennepin County Medical Center, the clinic
provides streamlined access to patients with lupus as
well as any patient with sicca (dry eyes and dry mouth
symptoms which are often a feature of Sjogren’s
syndrome). Clinic hours are Tuesdays from
8 a.m. to 4 p.m.; Thursdays from 1 p.m. to 5 p.m.;
and Fridays from 1 p.m. to 3 p.m.
Because people with lupus face possible kidney failure,
strokes, heart attacks, disabling pain, disfiguring skin
rashes and other serious health problems, multiple
specialists can be required for treatment. Lupus
sufferers are at risk of increased mortality from renal
failure, infections and cardiovascular disease. Yet the
outlook for most lupus patients has improved
dramatically over the past several decades, and the vast
majority of lupus patients live normal life spans.
Substantial challenges and perplexing problems still
exist. Despite the improvements in treatment for lupus,
a very high percentage of lupus patients, possibly as
many as 50 percent, will suffer loss of a job and
disability within 15 years of the diagnosis of lupus.
Additionally, new data presented at the American
College of Rheumatology annual meeting this fall,
highlighted the fact that over the past 10 years the
incidence of new lupus cases per year rose 30 percent.
The cause of this dramatic increase in the incidence of
lupus is unknown.
order to inform a technology delivery redesign
within the context of the organization’s new
strategic vision.
Since lupus is primarily a disease affecting young
woman of childbearing age, the disease often impacts
families. Data from the U.S. Renal Data System and the
2000 U.S. Census suggests that the burden of coping
with severe kidney disease falls disproportionately
upon African American women, suggesting that
minority racial and ethnic groups in the United States
may not be receiving adequate health care for lupus
and lupus nephritis, and/or they are not responding to
treatment the same ways as Caucasians.
The goal of the survey is to provide detailed
recommendations on how LFM can utilize
new technological opportunities available in
the health promotion arena to better reach
and serve our clientele. Once the survey is
completed, Sarah will provide a detailed
analysis of questionnaire results, identifying
specific information, communication and
support-needs recommendations from
The Lupus Clinic has three goals:
participants that will be used in implementing
• Coordination of care among specialists to provide
comprehensive service and maximum convenience
for patients.
LFM’s strategic plan implementation.
HOW TO PARTICIPATE
If you have lupus and live in outstate Minnesota
• Access to investigational clinical trials for patients
with challenging problems that have been resistant
to conventional treatments.
and you want to participate in this survey, a
direct link can be found on the front page of our
website at www.lupusmn.org. Or if you do not
• Providing a comprehensive program of needs
assessment and support for patients who may be
suffering from pain, fatigue, and stress of chronic
illness.
have access to the web and wish to have a
paper copy of the survey, contact Cheryl Como
at (952) 746-5151 or [email protected]. If
you know of someone who has lupus and has
For more information about clinical trials and research
into autoimmune disease please contact Dr. Segal
at (612) 873-2704. For appointments, please call
(612) 873-2700.
not previously accessed LFM services, please
invite them to participate as well.
5
news briefs
LUPUS NEWS BRIEFS
Burau Family Hosts Fundraiser for LFM
Family and friends of Anne Burau hosted a fundraising
dinner for the Lupus Foundation of Minnesota, in
Anne’s honor, on February 28 at Rockwoods Grill in
Otsego. The event raised over $4,000 for LFM and
included a sit-down dinner, silent auction, program
and collection of clothing for the Lupus Pickup
Service as well as deejayed music to cap off the night.
Anne’s sister-in-law Celeste Burau was the force
behind this event. Thankful that Anne herself wasn’t in
need of funds for lupus-related treatments, Celeste was
driven to create this event.
“Anne is an inspiration to me on a daily basis to keep
faith, rely not only on experts but also prayer, and to
stay strong,” Celeste said. “Lupus was not something I
was familiar with until Anne came into my life five
years ago. I personally cannot imagine going through
what she is fighting. I want the Lupus Foundation of
Minnesota to continue to encourage others, who do
not have a strong network of family and friends to
keep up the fight, like our Anne.”
Both Anne and LFM’s Director of Client Services
Timberly Williams shared their stories of living with
lupus with the 60 people in attendance.
The Lupus Foundation of Minnesota appreciates the
work of Celeste and the families of both Anne and
her husband Ross. A special thanks too Burau family
members and other employees of Edward Jones
Mortgage who contributed to the cause by paying
$20 in exchange for wearing jeans at work.
All monies raised will further support LFM’s work of
serving those affected by lupus, raising awareness
and funding research.
“I want the Lupus Foundation of Minnesota
to continue to encourage others, who do not have a strong
network of family and friends to keep up the fight,
like our Anne.”
ABOVE
Anne Burau (far right) with her sisters-in-law
Kelli Burau (left) and Celeste Burau (middle) at
the fundraising dinner for LFM in Anne’s honor
— Celeste Burau, Anne’s sister-in-law and Event Coordinator
Support Group Facilitator
Training Conducted
In an on-going effort to improve and expand the support given to those affected by lupus,
the Lupus Foundation of Minnesota recently conducted a Support Group Facilitator
Certification Training.
Seven current and new support group facilitators attended the sessions that were conducted
over two days by Cheryl Como, LFM’s Vice President of Client Programs. The trainings
defined the role of a community support group leader, addressed key topics of concern,
offered an orientation to community resources and established connections with LFM’s
Client Services Team.
At the conclusion of the sessions, group leaders were awarded certificates that established
them as Certified LFM Community Support Group Leaders.
LFM continues to develop support groups in an effort to reach more people – not just in the
metro area, but also outstate Minnesota and beyond – and even specific populations.
If you are interested in becoming a group leader or have any questions or concerns, please
contact Cheryl Como at (952) 746-5151 or (800) 645-1131.
LEFT TO RIGHT
Recent graduates of LFM’s Support Group Facilitator Certification Training:
Anne Barnwell, Debra Turner, Steve Sarrazin, Patricia Brown, Maria Buchholz
and Wanda Gross
6
Lupus News
spring 2009
The complete list of Community Support Groups, with some recent additions, is found on
Page 9 or online at www.lupusmn.org.
news briefs
LUPUS NEWS BRIEFS
Student Summer Fellows Sought
Lupus CDs Available at
Down In The Valley
Store Locations
The Lupus Foundation of Minnesota is currently accepting applications until the end of
May for 2009 Student Summer Research Fellowships.
For 29 years, LFM has worked to foster an interest in SLE and research by providing
stipends to students who have strong interests in science, medicine and research. Students
spend the summer months working in a lab under the supervision of scientists researching
autoimmunity at the U of M and other research facilities.
Down In The Valley, the local music and lifestyle outfitters,
is now selling “From a Whisper to a Roar” CDs. The CD,
produced by Patrick McDonough, was released in 2007.
It features local artists who gave of their time and talents
in hopes of raising awareness and ultimately finding a cure
Close to 100 students have participated in this program since its inception, which has
helped to inspire a new generation of researchers. (See next article below.)
For information on how to apply, contact Jennifer Monroe at (952) 746-5151 or
[email protected].
for lupus.
All proceeds from the sale of the CD go to the Lupus
Foundation of Minnesota for that exact purpose. As the
CD cover says “Together we can take this cause to all
people and rise from a whisper to a roar.”
The compilation album features a range of original songs
Former Student Summer Fellow,
Rhodes Scholarship Recipient
Compiled with information from University of Minnesota news release
from local talent, both established and emerging. Highlights
include Kevin Bowe’s track ‘My Favorite Pain,’ a love/loss
Katie Lee, a 2004 Lupus Foundation of Minnesota Summer Research Fellow and University
of Minnesota student later went on to receive a prestigious Rhodes Scholarship.
rock ballad hiding beneath gritty alternative country vocals
separated by lap steel loops, and Alison Scott’s contribution
from her acclaimed debut album Wish on the Moon
At the time of the scholarship award, Lee, who received bachelors degrees in biochemistry
and chemistry in May 2007, planned to earn a doctoral degree in biochemistry at Oxford
and to pursue a career in academic medicine as a physician scientist.
‘Babymama.’ Other notable tracks include the electronic
opener ‘The Score’ from Emmaline Muchmore; the acoustic
reggae blended ‘Really Worth It’ from Overdue; and ‘Moon,’
In order to gain research experience at the University of Minnesota, she conducted research
on lupus and the metabolism of nicotine. She also has conducted research at Harvard
Medical School on the human papilloma virus, a cause of cervical cancer.
a jazzy tune from Bruce Henry.
The CD is available at all Down In The Valley locations –
Crystal, Golden Valley and Maple Grove.
Not surprisingly, Lee’s CV includes other prestigious awards. She declined a Marshall
scholarship offered the week before to accept the Rhodes invitation. Her other credits
include a two-year Goldwater Scholarship for undergraduates, a Maroon and Gold
Leadership award and the L.M. Henderson Biochemistry Scholarship.
The Lupus Foundation of Minnesota is proud to cultivate the work and interest of young
promising researchers like Katie Lee and other student summer fellows.
Calling for Outreach
Event Volunteers
The Lupus Foundation of Minnesota’s Client Services Team is looking for volunteers to
partner with LFM staff on seasonal events occurring spring through fall. If you are interested
in learning more about this opportunity, please contact Gustavo Taberna at (952) 746-5151
or [email protected] for more information or to request an application.
7
support/asistencia
Lupus and the Heart
Lupus y el Corazón
Reprinted with permission from the Brigham and Women’s Hospital (www.brighamandwomens.org)
Reimpreso con permiso de Brigham and Women’s Hospital (www.brighamandwomens.org)
Systemic Lupus Erythematosus is an autoimmune disease in which the body can react to itself
causing inflammation in blood vessels. Lupus can affect many systems in the body including
the heart, lungs, kidneys, nervous system and skin.
El lupus sistémico eritematoso es una enfermedad autoinmune, en la cual el cuerpo puede
reaccionar contra si mismo, causando inflamación en los vasos sanguíneos. El lupus puede afectar
varios sistemas en el cuerpo incluyendo el corazón; pulmones; riñones; el sistema nervioso y la piel.
Words used when talking and lupus and the heart:
Palabras usadas cuando hablamos del lupus y el corazón:
• Cardiovascular – Having to do with the heart (cardio) and blood vessels (vascular).
• Cardiovascular – Relacionado al corazón (cardio) y vasos sanguíneos (vascular).
• Endothelial cells – Cells that form the inside wall of a blood vessel.
• Células endoteliales – Células que recubren la pared interior de los vasos sanguíneos.
• Coronary Artery Disease – Coronary arteries supply blood to the heart muscle. A decrease in
the blood supply to the heart is usually caused by atherosclerosis and is considered a
disease.
• Enfermedad de la Arteria Coronaria – Las arterias coronarias suministran sangre al músculo
cardiaco (corazón). Una disminución en el suministro de sangre al corazón es usualmente
causado por la ateroesclerosis y es considerado una enfermedad.
• Atherosclerosis – Narrowing and hardening of blood vessels caused by too much cholesterol
or other fatty materials in the blood vessel. This build up forms blockages called plaques that
decrease the flow of blood. A plaque can also break off and travel to another blood vessel in
your heart, lungs, brain or leg.
• Aterosclerosis – Endurecimiento y estrechamiento de vasos sanguíneos causado por exceso
de colesterol u otros materiales grasos en los vasos sanguíneos. Esta acumulación forma
obstrucciones llamadas placas que disminuyen el flujo sanguíneo. Una placa puede también
fragmentarse y viajar a otro vaso sanguíneo en su corazón, pulmones, cerebro o pierna.
• Cholesterol – A fat-like substance (also called lipid) that comes from foods, such as meat,
poultry, eggs, dairy products, fried foods and fats. There are two types of cholesterol:
• Colesterol – Una sustancia que luce como grasa (también llamado lípido) que proviene de
las comidas tales como carnes; aves de corral; huevos; productos lácteos; alimentos fritos y
grasas. Hay dos tipos de colesterol:
1. HDL (high-density lipoprotein) is the good cholesterol. Good cholesterol can be
increased by weight loss and exercise.
2. LDL (low-density lipoprotein) is the bad cholesterol that forms plaques.
• Statin – A category of medicines used to lower cholesterol levels in the blood.
• Cardiologist – A doctor who specializes in the treatment of heart problems.
• Pleurisy – Inflammation of the covering around the lungs.
• Pericarditis – Inflammation of the covering around the heart.
• Costochondritis – Inflammation of the cartilage of the chest wall.
1. HDL (lipoproteína de alta densidad) es el colesterol bueno. El colesterol bueno puede
ser incrementado por perdida de peso y ejercicio.
2. LDL (lipoproteína de baja densidad) es el colesterol malo que forma placas.
• Estatina – Una categoría de medicinas usadas para bajar los niveles de colesterol en la sangre.
• Cardiólogo – Un doctor que se especializa en el tratamiento de los problemas del corazón.
• Pleuresía – Inflamación del tejido que cubre los pulmones.
• Pericarditis – Inflamación del tejido que cubre el corazón.
• Costocondritis – Inflamación del cartílago del esternón.
How common is heart disease in the United States?
Heart disease is the #1 cause of death in Americans. In general, heart disease is more common
in men than in women before the age of 55. Premenopausal women (women still having a
period before menopause) have lower risks of heart disease. Over the age of 55, men and
women have equal risks of heart disease. Heart disease is more common in black women than
in white women and it often is a more serious problem. Heart disease is the #1 cause of death
in women of color.
¿Cuan común es la enfermedad cardíaca en los Estados Unidos?
La enfermedad cardíaca es la causa #1 de muerte en americanos. Es generalmente más común
en hombres que en mujeres menores de 55 años. Las mujeres en periodo de Premenopausia
(mujeres que todavía tienen su período antes de la menopausia) tienen menor riesgo. Tanto
hombres como mujeres, mayores de 55, tienen igual riesgo de enfermedad cardíaca. Es más
común en mujeres de color que en las mujeres caucásicas y es a menudo un problema más
serio. La enfermedad cardíaca es la causa #1 de muerte en mujeres de color.
Are people with lupus at greater risk for heart disease?
¿Las personas que padecen lupus tienen mayor riesgo de enfermedad cardíaca?
Yes, if you have lupus you have a greater risk of having heart disease. Studies show that the
endothelial on the inside of blood vessels are damaged in lupus and repair is slow. This leads
to plaques, atherosclerosis and coronary artery disease earlier than in people without lupus.
Premenopausal women with lupus are NOT protected against heart disease as are other
women. Young women with lupus have a much greater risk of having a heart attack than do
young women without lupus.
Sí, si usted tiene lupus usted tiene un mayor riesgo de tener enfermedad cardíaca. Los estudios
demuestran que el endotelio en el interior de los vasos sanguíneos es dañado y la reparación
es lenta en quienes padecen lupus. Esto conduce a la producción de placa, aterosclerosis y a
enfermedad de la arteria coronaria a más temprana edad que en personas sin lupus. Las
mujeres en premenopausia con lupus, no están protegidas contra enfermedades cardíacas al
igual que otras mujeres. Las mujeres jóvenes con lupus tienen un riesgo mucho mayor de tener
un ataque al corazón que las mujeres jóvenes sin lupus.
How do my lupus medicines affect my heart?
Steroids, such as prednisone and medrol, can cause high blood pressure, high cholesterol, and
diabetes mellitus, all of which increase the risk of heart disease. The higher the dose and the
longer the time period, the higher the risk of heart disease becomes.
Can a flare of my lupus affect my heart?
Yes. Some people with lupus develop pericarditis (fluid around the heart) during a flare.
The symptoms are sharp chest pain with breathing and a shortness of breath. The treatment
is usually non-steroidal medications, such as ibuprofen and naproxen, or short courses of
steroids, like prednisone. Rarely, individuals with lupus will have involvement of their heart
muscles themselves. Lupus itself increases the risk of atherosclerosis and coronary artery
disease.
Do I need to see a cardiologist?
Not every person with lupus needs to see a cardiologist, but in some cases it is a good idea.
A cardiologist may order special tests to see how well the heart is working. Together with the
rheumatologist, they decide if you need any medicines to prevent or treat heart disease.
They may suggest that you take a statin to lower and maintain your cholesterol level.
Rheumatologists and cardiologists agree that it is very important that you have good eating
and exercise habits and that you control your blood pressure.
¿Cómo afectan a mi corazón, mis medicinas para el lupus?
Los esteroides, tales como prednisona y medrol, pueden causar presión arterial alta, colesterol,
y diabetes, los cuales aumentan el riesgo de enfermedad cardíaca. Cuanto mayor es la dosis y
cuanto más largo es el período de ingesta de estos medicamentos, más alto es el riesgo de
enfermedad cardíaca.
¿Puede un brote de mi lupus afectar mi corazón?
Sí. Algunas personas con lupus desarrollan pericarditis (líquido alrededor del corazón)
durante el brote. Los síntomas son dolor de pecho al respirar profundamente y falta de aire.
El tratamiento es generalmente medicinas no esteroidales, por ejemplo ibuprofeno y naproxeno,
o esteroides como la prednisona, por periodos cortos de tiempo. Los individuos con lupus rara
vez, tendrán implicación directa de su músculo cardiaco (corazón). Padecer lupus aumenta el
riesgo de aterosclerosis y de enfermedad de la arteria coronaria.
¿Necesito ver a un cardiólogo?
How can I decrease my chances of developing heart disease?
No todas las personas con lupus necesitan ver a un cardiólogo, pero en algunos casos seria una
buena idea. Un cardiólogo puede pedir pruebas especiales para ver como está trabajando el
corazón. Junto con el reumatólogo, deciden si usted necesita cualesquiera medicinas para prevenir
o tratar enfermedades cardíacas. Pueden sugerir que usted tome una estatina para bajar y mantener
su nivel de colesterol. Los reumatólogos y los cardiólogos coinciden en que es muy importante que
usted tenga buenos hábitos alimenticios, se ejercite y que controle su presión arterial.
You should take an active part in contrÏolling the following risk factors:
¿Cómo puedo disminuir mis probabilidades de desarrollar enfermedad cardíaca?
• Stop smoking and encourage others to stop because their smoking affects the air you breathe.
Usted debe tomar parte activa en controlar los siguientes factores de riesgo:
• Aim to get at least 30 minutes or more of exercise or continual activity such as walking seven
days a week.
• Deje de fumar y anime a otros que hagan lo mismo pues afecta el aire que usted respira.
• Read food labels and eat more fruits, vegetables and foods with less fat.
• Determínese a realizar por lo menos 30 minutos o más de ejercicio o de actividad continua
tales como caminar los siete días a la semana.
• If you are having problems with your weight, talk to a nutrition counselor who can help you
with a plan that will work for you. Lose weight slowly by combining your diet with activity.
• Lea las etiquetas de los alimentos y coma más frutas, vegetales y alimentos con menos grasa.
• Control your blood pressure.
• Manage your stress.
• Si usted está teniendo problemas con su peso, consulte a un consejero de nutrición que
puede ayudarle con un plan que trabaje para usted. Pierda peso lentamente combinando
su dieta con actividad.
• Lupus patients should be followed closely for their lupus disease activity, as well as their
cholesterol, blood pressure, and blood sugar, which increase the risk of heart disease if too high.
• Controle su presión arterial.
What else should I know?
• Los pacientes que padecen lupus deben monitorear frecuentemente la actividad de la
enfermedad de lupus, así como su colesterol, la presión arterial, y el azúcar en la sangre,
que aumentan el riesgo de enfermedad cardíaca si están demasiado altas.
• Learn more about symptoms and treatments:
• Maneje su tensión (stress).
– American Heart Association 1-800-242-8721, www.americanheart.org
– Lupus Foundation of New England 1-877-NO LUPUS, www.lupusne.org
¿Qué más debo saber?
• Aprenda más sobre síntomas y tratamientos:
• Know the warning signs of a heart attack and know what to do if you have these symptoms.
– Asociación americana del corazón 1-800-242-8721 www.americanheart.org
– Fundación de de Lupus Nueva Inglaterra 1-877-NO LUPUS www.lupusne.org
• Conozca las señales de peligro de un ataque al corazón y sepa que hacer si usted tiene
estos síntomas.
8
Lupus News
spring 2009
support
Community Support Groups
Support groups have been shown to have a positive effect on the wellness of a lupus patient. It is a
way to share personal stories, be introduced to educational materials and resources, and socialize
with others who understand the challenges of living with lupus. The following is a list of groups
that are being conducted around the state as well as out state.
This symbol
denotes groups that are conducted by a certified LFM Support Group Leader
and occur in consultation and in collaboration with the Lupus Foundation of Minnesota.
(See page 6 story for details.)
Groups in Development
The following lists groups that are in development. If you
are interested in joining or offering support to one of these
groups, or have questions, please contact Cheryl Como at
(952) 746-5151 or (800) 645-1131.
Telephone Support
Telephone Support Volunteers have a personal interest in
and/or experience with lupus and are available for those
times you need to talk.
Please take note it is important that
you consult a medical professional for any
concerns regarding symptoms, medication or care.
Support services are neither staffed nor
supervised by medical professionals.
9
contributors
Thank You to Our Contributors
DECEMBER 16, 2008 – FEBRUARY 28, 2009
Contributors:
Karin Hanson
Leland and Norma Raske
Suellen Hanson
Kathy Reimler
Helen Hartmann
Robyne Robinson
Rebecca Haug
John Roedel
E. Herness
Dennis and Carol Ryan
America’s Charities on behalf of
Tamara Connell
Honeywell Hometown Solutions on behalf of
Jaime M. Bell
Robert and Ann Ryan
Diana Amluxen
Sally Husnik
Beverly Anderson
IBM Donor Choice
Jody Anderson
Barb and William Johnson
Krista L. Anderson
James Johnson and Julianne Norwall
APOGEE Retail, LLC
Richard and Joyce Johnson
Ronda J. Bandy
Ruth Kise
E.C. Battaglia
Jocelyn Knoll
Teri Bennis
Michael and Ann Koblyarczyk
Angela and Jonathan Bohmann
Robin Kohl
Marvin Bookin
KPMG on behalf of Jodie Scott
Kari Brey
Robert and Audrey Lind
Jolene Butzke
Janet Loughlin
Arlene Campion
David and Ann Maass
Daniel Cashman
Kim Maass
Julie Clifford
Edward and Judith Malecki on behalf of
the Malecki family
Carol Tressel
Christine McCarter
Barbara Victorson
Men’s Warehouse on behalf of
Troy Guhde and store employees
Dean and Elizabeth Walker
Glenda Aaland
Terry and Linda Adams
America’s Charities on behalf of the
McKesson Corporation
Jill Schmaedeke
Eric Schned
Christopher Schoonover
Louis and Diane Schweizer
Larry and Marge Severson
Mark Shelendich
Genevieve Simanovich
Michelle Sjoquist
Brian and Shirley Snyder
Paul Sommer
Warren and Marjorie Spannaus
Bill and Renate Sperber
William and Mary Sullivan
Kathleen S. Swanson
Judy Thompson
David and Martha Cook
Amy Dahl
Myris Dierlich
Joseph and Eugenia Dixon
Ron Weeks
Ted and Eileen Weinberg
Ryan Dobson and Jane West
Microsoft Giving Campaign on behalf of
Nancy Petersen
Jan Dougherty
Sarah Moon
Wells Fargo Community Support on behalf of
Ronda J. Bandy
Eleanore Erickson
Fuzu Moy
Mary Jo Fischer
Michael and Janis Nash
Karen R. Franzen
Jane Nays
Gloria Freeman
Nestle on behalf of Christine Amundson
Erika Gallagher
Joan and Dick Niemiec
Shane Geng
John and Ann Paat
GMAC ResCap on behalf of Julie Sample
Lawrence and Eleanor Paluck
Maria and George Gorbatenko
Amy Peterson
Marguerite J. Grams
Carole J. Pfenning
Patricia Grazzini
Sara Portner
Sarah Groskreutz
Kathy Poulos
David Hahn
Dr. and Mrs. Ben Rank
10
Lupus News
spring 2009
Western Construction, Inc.
Don and Karen Wolf
Judith Yesnes
Steven and Karen Ytterberg
contributors
Thank You to Our Contributors
DECEMBER 16, 2008 – FEBRUARY 28, 2009
Community Funds:
In Memory of:
Aetna Foundation
Art Bendiske
Judy Lidtke on behalf of the Lidtkes
and the Bussells
Fraternal Order of Eagles #4456
Greater Kalamazoo United Way
Lafayette Township United Fund, Inc
Microsoft Giving Campaign matching funds
given by Nancy Petersen
Nestle matching funds given by
Christine Amundson
Nicollet Fund Drive
James Boll
Marcia J. Schultz
Donald E. Burch
Marian Olson Babcock
Marilla Burch
M. Cavara
Eileen Holz
Reva Knightly
John and Barbara Martens
Dennis and Lynn Quinn
Gary and Janice Williams
Thomas and Jeanne Witty
In Honor of:
Amy Field
Delores and Virgil Goebel
Caroline A. Gort
Edward Neuschler
Edward Horst
John and Therese Cosgrove
Bev Kieffer
Mr. and Mrs. Ronald Goren
Sarah Moon
Charles Boyer
Chrissie Paden
Jeffrey Pearo
Tina (Ameter) Peterson
Gloria and Craige Farwick
Katie Santjer
Douglas and Marilyn Bergloff
Diane Zimmerman
Pamela Wieczorek
Dr. Earl Carter
Gerald and Marjorie Oxley
Mazel (Zoe) Hanson
Dennis and Elizabeth Ahlers
The Anderson Family
Dennis and Fern Arne
Mary Beltrand-Nylen
Joyce Carlson and Susan Traxler
Julie A. Carlson
Kevin and Kim Dickison
Scott and Lisa Dongoske
Margery Dubbelde
Janelle M. Erikson
Darleene Griffiths
Kay Griffiths
Paul and Debra Griffiths
Harold and Dorothy Hansen
Earl and Phyllis Hanson
Todd and Cindy Hanson
Helen Hebzynski
John and Sandra Helling
Dorothy A. Henriksen
Robert and Karin Herman
Barbara M. Johnson
Patricia Ann Koester
Richard and Karen Kok
Laurence and Cheryl Loftus
Anthony O’Brien and Kimberly Anne Sharp
Thirza Olson
Nilla Osten and Family
Daniel L. Peterson and Mark A. Nelson
Signy Petrach
Tim Schaefer
Walter Seidlitz, Jr. and Carol Riggle
Donald and Dinah Sexter
Beverly Shupe
Anne H. Smith and Linda Cusick
David Streif and Michelle Beltrand
Erma Taillifer
John and Madelon Thiede
Richard Wangen
Elizabeth Wolverton
Lisa Wrabek
Olivia Irvine Dodge
John and Therese Cosgrove
Janis M. Isaacson
Mae D. Isaacson
Dorothy McFarland
Harlen and Grace Skjefte
Mrs. McGuire
John and Therese Cosgrove
Susan Merkel
William Merkel
Edwin “Pete” Otto
Bill and Darlene Jenison
Kent Edward Patet
John and Therese Cosgrove
Margaret Mary Revoir
John and Therese Cosgrove
Jeni Lee Rolfsrud
Roland and Carol Freeburg
Roberta (Bobbie) J. Schultz
Datalink on behalf of Ryan Miesen and family
Franklin and Sandra Johnson
Don and Sharon McElmury
Karen Snyder
Colleen Seltz
John and Therese Cosgrove
Martha Smeby
John and Therese Cosgrove
LUPUS FOUNDATION
OF MINNESOTA STAFF
Jennifer Monroe
President
[email protected]
Cheryl Como
Vice President of Client Programs
[email protected]
John Haffner
Intern
[email protected]
Sara Otto
Vice President of Development
[email protected]
Gustavo Taberna
Outreach Representative
[email protected]
Lina Wade
Office Services Coordinator
[email protected]
Timberly Williams
Director of Client Services
[email protected]
11
For the most up-to-date information, please refer to the NEW Lupus
Foundation of Minnesota website, www.lupusmn.org. Check it out!
spring 2009 Volume 33, Number 2
To Schedule
Pickup Service
UPCOMING EVENTS
Monthly Buddy Lunches
Your generous contributions will enhance
the service mission of the LFM!
Second Wednesday of Each Month (April 8, May 13, June 10, July 15)
11:30 AM – 1:30 PM
Lupus Foundation of Minnesota Office (Third Floor Conference Room)
The Atrium, 2626 E 82nd St., Bloomington, MN 55425
STORE LOCATIONS that accept
contribution items designated for LFM:
The purpose of the buddy lunch is to connect clients and supporters in a relaxed setting with discussion centering
on lupus-related topics. This is an open-ended service. For more information or to RSVP, contact a member of the
Client Services Team at (952) 746-5151 or (800) 645-1131.
Call (651) 748-0400 or
go online to www.lupuspickup.org
1) Unique Thrift Store
1657 Rice Street
Roseville
(651) 489-5083
2) Unique Thrift Store
2201 37th Ave NE
Columbia Heights
(763) 788-5250
3) Unique Thrift Store
4471 Winnetka Ave N
New Hope
(763) 535-0200
4) Unique Thrift Store
14308 Burnhaven Drive
Burnsville
(952) 898-0988
5) Valu Thrift
2145 Hudson Road
St. Paul
(651) 702-5920
Thank you to all of our faithful contributors
who use the pickup service to make donations
to the Lupus Foundation of Minnesota!
As a helpful reminder, we aren’t able to
take your computer monitors or TV’s bigger
than 25" or those having turn style knobs,
and no console TV’s, please. Again, we’re
grateful for your generous donations!
Monthly Support Group Meetings
16 monthly meetings conducted throughout Minnesota, North Dakota and South Dakota
Refer to Page 9 for the complete listing and further details.
Health and Wellness Expo
Tuesday, April 21, 2009
10:00 AM – 2:00 PM
Hennepin Technical College, Brooklyn Park Campus, 9000 Brooklyn Boulevard, Brooklyn Park
The Lupus Foundation of Minnesota Client Services Team will have a booth and will be providing education,
information and support to helth fair attendees. This event is free and is open to the general public.
2008 LFM Annual Meeting and Spring Evening Fundraiser
Tuesday, April 21, 2009 (Please R.S.V.P. by April 13)
5:00 PM Annual Meeting; 5:30 – 7:00 PM Social and Buffet Dinner, Arboretum Tours;
7:00 – 8:00 PM Presentation by Master Gardener Rebecca Kolls
Minnesota Landscape Arboretum, 3675 Arboretum Drive, Chaska, MN 55318
Cost: $25 per person includes buffet dinner, presentation, Arboretum admission and parking. For more details,
call the Lupus Foundation of Minnesota at (952) 746-5151 or (800) 645-1131 or [email protected].
Fifth Annual Women’s Health Fair for Women of All Ages
Saturday, April 25, 2009
10:30 AM – 1:30 PM
West Seventh Community Center, 265 Oneida Street, St. Paul
The Lupus Foundation of Minnesota Client Services Team will have a booth and will be providing education,
information and support to helth fair attendees. This event is free and is open to the general public.
LFM
BOARD OF DIRECTORS
Chris McPartland
Chair
Lynn Clarey
Past Chair
SAVE THESE DATES
2009 Lupus Golf Classic
Lupus Walk for Hope 2009
Wednesday, July 8, 2009
Noon Shotgun Start
StoneRidge Golf Club, Stillwater
TWIN CITIES: French Regional Park, Plymouth
Saturday, September 12, 2009
ROCHESTER
Saturday, September 19, 2009
Rick Dahlin
Treasurer
Pat Pauls
Secretary
Jennifer Monroe
President
Shreyasee Amin, M.D.
Robert Kratzke, M.D.
Renee Sayles
Ron Weeks
LUPUS NEWS
The William Flies family dedicates this issue of
Lupus News to the memory of their daughter Marette.
Marette was committed to educating others about this disease.
We honor her for her determination to make a difference in the world.
We miss her dedication, her resolve… and her smile.
Lupus News is published quarterly by the Lupus Foundation of Minnesota. Please keep us informed of
address changes. The Lupus Foundation’s phone numbers are (952) 746-5151 and (800) 645-1131.
Our web address is www.lupusmn.org.
If you’re interested in receiving an electronic copy of this newsletter, please send a request via email
to [email protected].
© 2009 Lupus Foundation of Minnesota. All rights reserved.