berita MPA•July 2005 - Malaysian Paediatric Association
Transcription
berita MPA•July 2005 - Malaysian Paediatric Association
Berita MPA•October 2006 1/29/07 11:52 AM Page 1 THE MALAYSIAN PAEDIATRIC ASSOCIATION Editorial Board Dr Zulkifli Ismail Dr Noor Khatijah Nurani OCTOBER 2006 FOR MEMBERS ONLY ASEAN Paediatric Surgeons Meet MPA 2005/2006 EXECUTIVE COMMITTEE 17th – 20th August 2006 President Dr Zulkifli Ismail Vice-President Dr Soo Thian Lian Hon Secretary Assoc Prof Tang Swee Fong Asst Hon Secretary Dr Noor Khatijah Nurani Treasurer Dr Musa Mohd Nordin Committee Members Dr Koh Chong Tuan Dr Thiyagar Nadarajan Dato’ Dr Jimmy Lee Dr Hung Liang Choo Assoc Prof Dr Koh Mia Tuang Dr Zilfalil Alwi Co-opted Committee Members Prof Datuk Mohd Sham Kasim Dr Hussain Imam Haji Mohd Ismail Dato’ Dr Zakaria Zahari Affiliated to: • Malaysian Council For Child Welfare • ASEAN Pediatric Federation • Asian Pacific Paediatric Association – APPA (Previously Association of Paediatric Societies of the South East Asian Region – APSSEAR) • International Paediatric Association (IPA) The Berita MPA is published for members to keep them informed of the activities of the Association. The views & opinions in all the articles are entirely those of the authors unless otherwise specified. We invite articles and feedback from readers – Editor ASEAN Paediatric Surgeons (from L to R): Anne Rachel John, Malaysia; Rangsan Niramis, Thailand; Beda Espineda, Phillipines; Zakaria Zahari, Malaysia; Nguyen Thanh Lieu, Vietnam; Anette Jacobsen, Singapore; Mahmud Mohd Nor, Malaysia; Qamaruddin Bausat, Indonesia; Sar Vuthy, Cambodia; Htoo Han, Myanmar The 1st ASEAN Congress of Paediatric Surgery held in conjunction with MPA's 28th Annual Congress and MAPS' (Malayslan Association of Paediatric Surgeons) 2nd Congress started with a symposium presented by all the ASEAN countries except Brunei and Laos. It was heartening to see the difficult conditions under which paediatric surgery has developed over the years in these countries including our own. It was a real eye-opener for most of us here, finding out that almost every other ASEAN country has at least one children's hospital. The first plenary was an overview of paediatric surgery in Malaysia by President of MAPS, Dato' Dr Mahmud Mohd Nor. He showed some slides that have great historical value as he traced the history of paediatric surgery. His appeal for a national children's hospital was answered by the Minister of Health, Dato' Dr Chua Soi Lek in the latter's speech during the opening ceremony and the press conference that followed. Hitches Our congress this year did not go without a hitch. We had electricity disruption during the second plenary lecture by Prof. Lewis Spitz but he carried on and still maintained the Continued on page 3 3rd Floor (Annexe Block), National Cancer Society Building, 66, Jalan Raja Muda Abdul Aziz, 50300 Kuala Lumpur. Tel: 603-2691 5379/2698 9966 Fax: 603-2691 3446 E-mail: [email protected] Web page: www.mpaeds.org.my BERITA MPA – OCTOBER 2006 1 Berita MPA•October 2006 1/29/07 11:52 AM Page 2 From The President OPV vs IPV Debate Continues role for IPV. Our Ministry of Health follows this dictum to the letter. Live virus vaccines require complete safety, genetic stability and lack of transmission. However, OPV can cause polio indistinguishable from natural disease. The recent outbreak of poliomyelitis in Girijaya Village, Sukabumi District in West Java showed just how small the world is and how easily a virus can travel around the globe. The first case in March 2005 was a 20-month old boy infected with the wild polio virus (WPV) P1. Despite mopping up exercises and National Immunisation Days throughout 2005 and 2006, the outbreak claimed 305 cases in 47 districts and 10 provinces. There were six deaths. VAPP, cVDPV & iVDPV With a vision of a world that is completely free of polio, there still looms disease caused by the live vaccine. Vaccine-derived polio viruses (VDPV) and vaccine associated paralytic polio (VAPP) are two of the problems associated with Sabin's live attenuated oral polio vaccine. India and South America together have 200 to 250 vaccine polio per year with a global estimate of 400 to 800. VDPVs can cause outbreaks, the largest documented ones being in the Hispaniola Islands in 2000 and in Indonesia in 2005 while the longest-lasting one was in Egypt lasting 10 years from 1983. Although community acquired VDPV (cVDPV) is less neurovirulent than wild type virus, it can cause alarming major outbreaks as stated above. VDPV cases occured in East Java in August 2005 affecting children aged 1-5 years in numbers that exceeded WPV cases (46 VDPV from an initial two cases compared with 11 WPV infections). The WPV that caused the outbreak in Java had found its way from Nigeria through Yemen and Saudi Arabia to West Java and then spread to Central Java and Madura Island and then to Sumatra. How could this occur when the Western Pacific Region is declared polio-free? There was a documented drop in poliovaccine coverage in Indonesia from >90% to 77.6% in 2005. Without looking at the map, we know that Sumatra is across the Straits of Melaka from us! With daily travel between Penang and Sumatra made easy, we have to be vigilant regarding polio infection and we should never let our polio vaccination programme falter. Our healthcare delivery system is where it is at now because of our relentless endeavour to provide health for all. VAPP risk has been estimated at 1 per million OPV doses given (some estimate 1 case per 750,000 primary vaccinees). The cost of VAPP is not counted in the eradication programme and there is no compensation for Despite the worldwide availability of the polio vaccine, parts of India (Western Uttar Pradesh and Bihar), Pakistan, Afghanistan and Nigeria still have endemic transmission of wild viruses. In addition, importation occurs in many countries that had earlier eliminated the disease like Namibia in 2006, and Angola, Somalia, Yemen and Indonesia in 2005. Twenty-three countries victims. We have an active acute flaccid paralysis (AFP) surveillance system in place. In the reported AFP cases nationwide, not one was confirmed by MOH as VAPP. In an apparently sensitive AFP reporting, at least 1 AFP case per 100,000 children aged <15 years would be detected and fecal excretion must be obtained within 14 days of have reported imported cases. WHO made a decision to use OPV exclusively with no BERITA MPA – OCTOBER 2006 2 Berita MPA•October 2006 1/29/07 11:52 AM Page 3 From The President onset. Could this be the reason our cases were not confirmed? (Also read AFP surveillance on page 4.) Continued from page 1 delegates' attention sans LCD projector and microphone. A few more blackouts testified to Johor Tenaga Nasional Berhad's ability to cope with our power usage but no major damage was done. A small communication breakdown caused the last day's symposium to be slightly disrupted because the break-up rooms were not ready. Other than these hiccups, the congress went smoothly and the scientific content was excellent. Immunodeficient VDPV or iVDPV occurring among hypogammaglobulinaemics will lead to chronic excretion and spread of the virus. With such chronic excretors, how can we ever hope to see 'eradication' of the poliovirus? IPV Proponents The main argument against the use of IPV amongst most IPV opponents is 'the absence of herd immunity'. Looking at the success of European countries (the Netherlands since 1957, France since 1983), Canada (since 1998) and others, no new polio cases have been documented except for outbreaks amongst the Amish communities in 1978 and 1992 in Holland. South Korea, Australia, New Zealand, Japan and USA are other countries that have switched to IPV within the last decade. Social events The social events were also enjoyable. Starting with the welcome dinner to the industry sponsored dinner on a ship off Danga Bay and our Congress Dinner, the excellent entertainment kept people on their seats unless called up by the emcee to 'perform'. And perform they did! For the first time, we had one of the dinners on a ship courtesy of Wyeth Pharmaceuticals. The cruise along the Johore Straits provided a different mood for delegates and the final entertainment on board was a real surprise. The song-and-dance show by ‘The Paper Dolls’ was absolutely out of character of a paediatric conference – no wonder children were not allowed on board! WHO recommends discontinuation of OPV use as soon as possible after global certification of eradication. We are now six years beyond that target date. Most of the economically developed nations as stated above have switched to IPV in their national immunisation programmes to avoid vaccine polio. IPV has no neurovirulence and no transmissibility whereas OPV is genetically unstable, can revert to virulence reacquiring The venue, Hyatt Regency Hotel, was alright with adequate facilities but the exhibition areas were rather cramped. Food, as usual, was aplenty. Although a paediatric surgery congress, there was more than enough of medical paediatric input to keep the interest of non-surgeons. Definitely another MPA congress worth attending. wild-like characteristics, and long-term excretors exist. OPV or IPV? Despite the imminent and possible dangers associated with OPV use, many countries including our own will continue to use it rather than change. Almost all private practitioners here use IPV for fear of vaccine polio and Our surgical colleagues are now planning the next ASEAN congress in Manila, Philippines. We can congratulate ourselves for getting the regional paediatric surgeons together and organising the very FIRST ASEAN Paediatric Surgery Congress. Let’s hope the congress continues for as long as there are dedicated paediatric surgeons, the ‘paediatricians who can operate’ rather than ‘surgeons who operate on children’. also because of convenient combination vaccines that include IPV as a component. Internationally, the choice is clear but the debate continues within our shores... Zulkifli Ismail President 2005-7 [email protected] – See pictures on pages 6 & 7 3 BERITA MPA – OCTOBER 2006 Berita MPA•October 2006 1/29/07 11:52 AM Page 4 Report The Need to Intensify the National AFP Surveillance System October 29, 2000 is a significant date. It was on this day when Malaysia was officially certified a polio-free country by WHO and the country has yet again achieved an important milestone in its healthcare delivery system. The last outbreak of polio cases in the country was in 1977 when 121 cases were reported. There was a ten year lull before a further five cases were reported amongst the indigenous tribes in 1984. In 1992 two cases of imported cases due to the wild polio were reported, linked apparently to a missionary group who traveled through the state of Pahang and then Johore causing the last case of polio in the country in Kota Tinggi. In 1993 the National AFP (Acute Flaccid Paralysis) Surveillance system was implemented and this subsequently led to the declaration in 2000 of Malaysia as a polio-free country in the Western Pacific Region. From 1993 till the current time there have been no cases of polio detected in the country. However, this does not mean that we can afford to be complacent as certification as being a polio-free country needs an ongoing surveillance to detect AFP cases. It has to be acknowledged that polio can be eradicated but cannot be eliminated. Likewise, the importation of wild poliovirus from another country cannot be prevented. This is especially so with globalization and ease of international travel. Hence the importance of continuous active surveillance to detect AFP cases among children below 15 years of age as required by WHO. The recent detection of a case of polio in an 18-month old unimmunised child on 21 April 2005 in West Java was the result of the surveillance system in Sakabumi District in West Java. The isolate was identified to be a type 1 wild polio virus imported into Indonesia from a country in West Africa. Since then the disease had spread to neighbouring islands and the number of polio cases in Indonesia BERITA MPA – OCTOBER 2006 had escalated to 271 cases as of 4 th October 2005. MOH request In the light of this potentially explosive situation, the Disease Control Division (DCD) of the Ministry of Health (MOH), Malaysia called for a meeting with various public and private professional health care organizations to discuss the issue of intensification of the AFP Surveillance. Among those present were representatives from the public universities, the Association of Private Hospitals of Malaysia, Primary Care Doctor's Organisation Malaysia and MPA. The meeting was chaired by Dr Nirmal Singh, Timbalan Pengarah Kawalan Penyakit. Following a short presentation by Dr Devan Kurup on the polio situation globally, in Indonesia and Malaysia, the meeting was centred around a plea from MOH to other non-governmental health care institutions to carry out active surveillance on non-traumatic AFP cases. In the past, notification and follow-up of AFP cases were mainly from MOH hospitals with a very small number of cases from university hospitals and private hospitals. To continue enjoying a polio-free status MOH must show evidence to WHO that the country is detecting (non-traumatic) AFP cases at the rate of at least 1 per 100,000 population below the age of 15 years. Notification procedure All AFP cases must be notified immediately once the case is identified and two moist stool samples (collected within14 days of onset of paralysis and 24-48 hours apart between stool samples) sent to IMR for virus isolation and identification. The clinician managing the case will carry out other laboratory investigations deemed necessary (eg. CSF examination to diagnose GuillainBarre syndrome) as part of the management. The patient is then followed up for 60 days to assess for residual paralysis and report these findings on a prescribed form. The 4 cases notified are then reviewed periodically by a panel of experts who will then determine cases of AFP as either polio or non-polio based on the clinical and other information provided by the clinician. It is for this reason that the meticulous and detailed documentation of AFP cases is so crucial. Prompt notification of AFP cases will enable the public health experts to carry out investigations and measures to contain and to avert a potential polio outbreak. Problems with notification Amongst the problems faced by the DCD are failure to notify cases of AFP promptly, failure to collect adequate amount of stool sample (5-8 Gm) within the 14 days of onset of paralysis, only one sample is collected or the second sample was collected more than 48 hours following the first collection. The case from Kota Tinggi was notified to the state health office only 6 weeks after the AFP was identified! Fortunately this delay had not created an outbreak of polio in the district. Other areas of intensification that the MOH would like to see are the proper and adequate documentation of immunization rates by the private health care sectors as well as proper maintenance of the cold chain, in particular the storage of vaccines in the proper place in the refrigerator. Let us all commit ourselves to ensure the success of the National AFP surveillance system so that we can be proud to continue to be accorded a polio-free status. Most importantly let us all, as responsible health professionals, play our parts so that we will not see a resurgence of polio in this country again. Note: A template of the AFP notification form (Ms Excel format) will be made available for downloading from the MPA website. Koh Mia Tuang UMMC Berita MPA•October 2006 1/29/07 11:52 AM Page 5 Letter The Paradigm Shift In Paediatric Practice Dato’ Dr N. Paramaesvaran from Penang has decided to migrate to be with his children in Australia. As a parting gift to the younger generation of paediatricians, he agreed to write this article that he sent through Dato’ Dr Iean Hamzah Sendut. We still hope to see him at our annual congresses in the future. Having practised Paediatrics since 1960, first as a house doctor, then as a medical officer, later as a registrar and finally as a consultant. I am truly amazed at how much the practice of Paediatrics has changed over the last 45 years. One cannot but marvel at the impact immunization has had in this changing pattern of childhood diseases. In 1960, if I saw a child with a stridor, my diagnosis would be diphtheria until proven otherwise and we would immediately prepare for an emergency tracheostomy. Dato’ Dr N. Paramaesvaran with his wife in Lumut Today, a child with a stridor is often a viral croup and a single dose of Dexamethasone would result in an excellent outcome. This change has been brought about by our excellent coverage for diphtheria immunization. preparation had no place in managing acute gastroenteritis (AGE) and the immense impact of ORS soon revolutionised acute gastroenteritis treatment. TB meningitis was another common disease in the 60s and we as house doctors had to instill directly intrathecal Streptomycin. This is how we learned and improved our technique for lumbar puncture. Some of us even did cisternal punctures when a spinal block prevented instituting Streptomycin via a spinal route. We are also now at the brink of further break-through as Rotavirus vaccine is being launched. We have to wait to see the impact this will have on the incidence of AGE in the future. Pneumococcal vaccine is already in the market and how this and Hib vaccine will help reduce the incidence of respiratory infection and meningitis will be an exciting scenario to observe. Then in the early 60s, BCG immunization was introduced and this had a dramatic effect on the incidence of TB meningitis. I remember by the late 60s that there were hardly any cases of TB meningitis in the wards. In 1962, Penang saw the first epidemic of dengue haemorrhagic fever, I was fortunate to be around to report and help manage this epidemic, but after over forty years, we are still sadly lacking a vaccine. Polio was an endemic problem and though polio vaccine was by then available, it was not part of the routine immunization programme. In 1971, without warning, we had a nationwide epidemic of poliomyelitis affecting hundreds of children. It was only then that polio immunization was introduced and this brought the terrible epidemic to an end. Today, thanks to the excellent polio vaccine coverage, we can proudly say Malaysia is polio-free. Malaria is another disease that has been around for a long period and we still have not been successful in finding a vaccine. Hopefully, our younger Paediatricians would move into vaccine research and maybe help find a solution to these two diseases. The two other common diseases we had to deal with were gastroenteritis and respiratory tract infection. As I reach the twilight of my Paediatric career, I am grateful that I have been around to see the paradigm shift in Paediatric Practice. Gastroenteritis used to be treated with antibiotics, antidiarrhoeal preparation with kaolin and intravenous fluids were often set up by a cut down. Doctors then were all skilled in the art of cut downs and sometimes I have had to do up to five cut downs in a day! My only hope is that I will still be around when we finally find a vaccine for dengue, a disease I reported in 1964, and have been waiting forty years to see it eradicated. We soon began to see butterfly needles introduced for intravenous infusions and today we have branullas. Setting up a drip now is no more a challenge. Dato’ N. Paramaesvaran We at MPA wish him good health and happiness in his retirement years. Studies also showed that antibiotics and anti-diarrhoeal 5 BERITA MPA – OCTOBER 2006 Berita MPA•October 2006 1/29/07 11:52 AM Page 6 Congress Pictures © Congress opening ceremony with Dato’ Dr Chua Soi Lek Minister tours exhibition Ä The gong marks the start of three remark Snapshots from the Congress & 1st ASE Paediatric ¶ A productive Meet-The-Expert Breakfast Session at 7 am! ¶ Informal discussion ¶ On way to dinner – cosy speedboat ¶ Attentive audience § A full turnout at the Lunch Symposium § MAPS Annual General Meeting § A sneak peek behind the scenes © The kids were kept busy with a programme of their own BERITA MPA – OCTOBER 2006 ¶ Some speakers on board the ship 6 Berita MPA•October 2006 1/29/07 11:53 AM Page 7 Congress Pictures § Applause for the ones who made it all happen: the Organising Committee Young Investigator Award winner – Dr Wang May Kay Ä art of three remarkable days the 28th MPA Annual ASEAN Congress of tric Surgery ¶ MPA Vice-President Dr Soo hard at ‘work’ ¶ A scrumptious feast while ‘sailing on the high seas’ in a ship off Danga Bay ¶ A little something for dessert The great foosball challenge © ¶ Siti Nurhaliza in the making – Hilltop performers. ¶ Dr Amin Tai displays his assets © The stage was all a-buzz with entertainment at the Congress Dinner § Dato’ Zakaria and Datin on stage 7 BERITA MPA – OCTOBER 2006 Berita MPA•October 2006 1/29/07 11:53 AM Page 8 Activity MPA’s ‘Mummy & Me’ Weekend Thousands of Malaysian parents thronged the Midvalley Convention Centre with their young children in tow during the weekend of Sept 1 to 3, 2006 for the Mummy & Me exhibition. Hosted by MPA and organised by Espifokus, the event was officially launched by Deputy Minister of Information, Datuk Ahmad Zahid bin Hamidi. Parents were treated to a wide range of activities – from exhibition booths packed with some of the latest parenting products in the market to lively stage activities and prizes galore. But it wasn’t all just fun and games. Parents had the opportunity to listen to paediatricians and psychologists Parents listen attentively as Dr Lim Wei Ling talks about common childhood illnesses Dr Zulkifli delivers his opening message Dr Yong Junina talks about newborn care on a variety of topics too. Among the six topics featured were Behavioural Problems in Children by Ms Cheong Sau Kuan, Newborn Care by Dr Yong Junina Fadzil and Maximising Your Child’s Potential by Dr Teoh Hsien Jin. Held under the banner of the Positive Parenting Programme, and true to the tradition of all Positive Parenting Seminars, the talks were a success and brought great benefit to all who attended. Parents waiting for the next talk to begin Interested parents crowd the exhibition booths Fun stage activities keep the crowd streaming in 28th AGM Update – Two-year Exco Term MPA's 28th Annual General Meeting was held on Saturday 19th August 2006 at the Hyatt Regency Hotel, Johor Bahru. Many years ago at an AGM, a resolution was made by Dr Nazeli Hamzah for the duration of each committee to be for two (2) years. A letter to the effect was sent to the Registrar of Societies and we received a reply dated 25 July 2006 (ref. no. PPP/WKL000092/78 JLD.2(10)) stating that we can implement the resolution. With this official letter, MPA elections will be held every two years and it was agreed that the current committee continues and the next election will be in 2007. Hence, election year for MPA will be every odd year. BERITA MPA – OCTOBER 2006 8 Berita MPA•October 2006 1/29/07 11:53 AM Page 9 Activity 6-in-1 and adult booster vaccines here The launch of the 6-in-1 *DTaP-IPV-HepB/Hib (InfanrixHexa®) and **dTpa (Boostrix®) was held at the Le Meridien Hotel on 13th July 2006 followed by entertainment by the 'man with a thousand voices' Leonard Tan. The talks that were co-hosted by MPA and the Wilayah Persekutuan & Selangor branch of MMA had a near-capacity attendance of more than 200. Unlike other talks in which the chairman makes a short introductory remark and then introduces the speaker, the organisers had asked the chairman, MPA President Dr Zulkifli Ismail, to give a short talk on the history of vaccination in Malaysia. He introduced the new MOH immunisation schedule that was due to start in August 2006 and showed that the infant will get two injections less with the use of the new combination vaccine Tritanrix® (DTPw-HepB/Hib with OPV) but each child will get 4 hepatitis B vaccines instead of the current three. Overall, two injections less would definitely improve compliance. He also made some remarks about combination vaccines, setting the stage for the invited speaker. L-R: Drs. Nazeli, Schmitt, Zulkifli and Teoh Yee Leong fielding questions 6-in-1 Vaccine The main speaker for the evening, Prof Heinz-Josef Schmitt, spoke at great length and in detail on combination vaccines especially InfanrixHexa® consisting of DTaP-IPV-HepB/Hib combination. Being a member of the German Immunisation Implementation Committee, he could commit with authority everything that he says. He also shared immunogenicity and reactogenicity data on the combination vaccine above. There was also evidence comparing the two 6-in-1 vaccines in the market, viz. InfanrixHexa® from GSK and Hexavac® from Sanofi-Pasteur. The important thing about combination vaccines is the efficacy of all components when combined with each other. He also showed the national immunisation schedules of a number of countries worldwide stressing that it does not matter which schedule is used as long as the vaccines reach the children. Group photo with entertainer Leonard Tan (4th from left) Adult Vaccine for Pertussis Large audience Dr Nazeli Hamzah then came on to talk on pertussis in adults, a problem that had been under-recognised and underdiagnosed. A new adult booster vaccine, Boostrix®, was introduced. Made up of **dTpa vaccine, it is a booster vaccine for adults consisting of lower diphtheria and pertussis antigens (note that this is not DTPa that is given to babies, the capital and lower case letters differentiating the two. See differences in table below). The emergence of pertussis in adults is worrying especially when they are not diagnosed, hence spreading Bordetella pertussis to others especially the yet unimmunised young infant. Boostrix® every 10 years given to adults is the solution, and we should start with healthcare workers, and medical and nursing students. Components Boostrix (for age>4yrs) Infanrix (for age<6yrs#) Pertussis toxin 8 ug 25 ug Filamentous haemagglutinin 8 ug 25 ug Pertactin 2.5 ug 8 ug Diphtheria toxoid 2 IU 30 IU Tetanus toxoid 20 IU 40 IU Vaccine # Infanrix-IPV for age<13yrs *DTaP-IPV-HepB = Diphtheria +Tetanus + acellular pertussis + Inactivated / killed / injectable polio + Hepatitis B combination Hib = Haemophilus influenzae lyophilized powder preparation vaccine Written and oral questions for all three speakers followed with most being fielded by Prof Schmitt. Drs Nazeli and Zulkifli were not spared questions too. Most questions revolved around the two new vaccines and the new MOH schedule. *DTaP = Diphtheria+Tetanus+acellular Pertussis vaccine (DTPw consists of whole cell pertussis component) **dTpa = Lower dose Diphtheria and acellular Pertussis components + Tetanus combination used as a booster for adults aged >4 years 9 BERITA MPA – OCTOBER 2006 Berita MPA•October 2006 1/29/07 11:53 AM Page 10 News Dignity and Services For and With Persons with Intellectual Disabilities (Learning Disabilities) Much of the service provision for persons with disabilities in Malaysia in the past has been for persons with disabilities rather than of or by persons with disabilities themselves. With this in mind, Dignity & Services set out in 1991 to create an organization that focused on the rights of persons with disabilities, based on a developmental approach rather than a charity perspective which tends to promote dependency. For Dignity & Services, this meant the full participation of people with learning disabilities and their families at all levels of decision making, in the planning and implementation of programmes designed to benefit them. attempting to organize families in order to enhance family support through mutual support in the form of family linked shared care. Dignity & Services, in collaboration with two other organizations, is also in the process of setting up an education service in the Cameron Highlands Public Awareness Promoting meaningful partnerships with all sections of the wider community and raising public awareness on disability through newsletters and a monthly column in the Star newspaper called `One Voice` is an important aspect of our work. This column has been running for about five years and is coordinated by Dignity & Services. The articles published are contributions from parents, teachers and service providers who have inspiring stories to share about learning disability. Policy advocacy with the government sector when we are able to give feedback and suggestions on policy issues, is a vital part of our work As an advocacy movement, Dignity & Services strives to assist people with learning disabilities in securing their basic rights as full citizens leading meaningful lives as active members of their communities. To achieve this, the organization focuses its efforts in three main areas, namely the individual with a disability, the family, and the community. As a member of the Malaysian Coalition for the Prevention of Child Sexual Abuse, we are currently working in joint collaboration with other NGO’s and the Ministry of Health in developing a curriculum and teaching module for those working with persons with learning disabilities. We have also been facilitating in the Training of Trainers’ workshops. United Voice and Future Plans The principle of full participation of the individual with a disability has made the formation of effective selfadvocacy groups, a priority for people with learning disabilities. One such group is now running its own organization. This group of young persons with learning disabilities called United Voice was first formed in 1995. It is now an independent society, the first of its kind to be run by persons with learning disabilities in Malaysia. This participatory emphasis at the level of the individual, family and community, it is felt, is the most holistic and effective way of utilizing available resources, and enhancing the quality of life of persons with disabilities. Most adults with disabilities continue to live with their families and currently there are very few opportunities for them to live a more independent life if parents are no longer able to offer the support their son or daughter might need. With this in mind, we are planning to implement a project on Supported Living in the Klang Valley before the end of the year. We are also BERITA MPA – OCTOBER 2006 For further enquiries about our service please contact us at 03-77255569 or email us at [email protected] Mettilda John Dignity & Services 10 Berita MPA•October 2006 1/29/07 11:53 AM Page 11 Announcements EUROPEAN ACADEMY OF PAEDIATRICS FRATERNITY : October 7-10, 2006 : Barcelona, Spain : Kenes International / European Academy of Paediatrics, 17 Rue du Cendrier PO Box 1726, CH-1211, Geneva 1, Switzerland Tel : +41 22 908 0488 Fax : +41 22 732 2850 E-mail: [email protected] To register, kindly visit the Congress website: www.kenes.com/europaediatrics/registration.asp Date Venue Congress NEW LIFE MEMBERS Dr Teh Kin Hock 18 Jalan Bunga Tanjung 7 Jalan Raja Uda 12300 Butterworth Pulau Pinang Dr Tan Ying Beih @ Oh Ying Beih A3340, Lorong Kubang Buaya 66 25250 Kuantan Pahang 1ST ASIA-PACIFIC CONGRESS OF PAEDIATRIC CARDIOLOGY AND CARDIAC SURGERY “TOWARDS THE OPTIMAL CARE FOR CHILDREN WITH HEART DISEASES IN ASIA-PACIFIC” Date Venue Dr Lee Tong Yeow 21 Jalan Rumbia 38 Taman Daya 81100 Johor Bahru Johor : November 1-4, 2006 : Bangkok Convention Centre, Bangkok, Thailand : www.pccs2006.com Website THE 1 CONFERENCE ON PAEDIATRIC INFECTIOUS DISEASES IN PAKISTAN : : : : November 18-19, 2006 Pearl Continental Hotel, Lahore, Pakistan www.pidc2006.com. [email protected] 44TH ANNUAL CONFERENCE OF INDIAN ACADEMY OF PAEDIATRICS Date Venue Conference Secretariat Tel Website Email Fax Email Tel Fax Website Dr Chiah Cheun Hui 27, Jalan Saujana 1/5 Taman Saujana Indah 14000 Bukit Mertajam Pulau Pinang Dr Tan Cheow Heng 33-G-1 Lorong Delima 20 11700 Pulau Pinang Dr Intan Juliana Abd Hamid 2530 Taman Lumba Kuda 0520 Alor Setar, Kedah Dr Choong Tet Choo 14 Jalan Jati 1 Taman Nusa, Bestari Jaya 81300 Johor Bharu Johor Dr Ooi Cheong Pheng 28 Jalan Legenda 20 Legenda Heights 08000 Sungai Petani Kedah 12TH APCP IN SRI LANKA POSTPONED The 12th Asia Pacific Congress of Paediatrics or Asian Congress of Pediatrics scheduled to be held in Sri Lanka has been postponed due to the security situation in Colombo and the rest of the island. The Asian Pacific Pediatric Association (APPA) is looking for alternative venues for the congress. Those who have paid for the registration can obtain a refund from the organisers. For more information on the new venue, please log on to www.appassoc.org or www.apcp2006.slt.lk. : May 5-8, 2007 : Toronto, Ontario, Canada, American Academy of Pediatrics, 141 Northwest Point Blvd, ELK Grove Village, IL 600071098 847/434-4000 800/433-9016 : 847/434-8000 : [email protected] The Executive Committee wishes all Muslims “Selamat Berpuasa” and “Selamat Hari Raya” 5TH WORLD CONGRESS OF THE WORLD SOCIETY FOR PEDIATRIC INFECTIOUS DISEASES Date Venue Dr Gururaj Aithala 11 Jalan Prima Pelangi 1 Bukit Prima Pelangi Segambut Dalam 51200 Kuala Lumpur CHANGE OF ADDRESS : January 11-14, 2007 : Renaissance Mumbai Hotel & Convention Center, Powai, Mumbai. : Pedicon 2007, C/O Dr Bharat Agarwal Paediatric Hem/Onc Centre 63, Gandhi Nagar Bandra (East) Mumbai 400051, India : 022-2643 0142/2643 1902/2642 6846 : www.pedicon2007.in : [email protected] or [email protected] PAEDIATRIC ACADEMIC SOCIETIES ANNUAL MEETING 2007 Date Venue Dr Soe Soe Aye Faculty of Medicine Universiti Teknologi Mara Aras 20, Menara 1 Kompleks Sains & Teknologi 40450 Shah Alam Selangor NEW ORDINARY MEMBERS ST Date Venue Website Email Dr Alam Sher Malik Professor of Paediatrics Faculty of Medicine Universiti Teknologi Mara Aras 20, Menara 1 Kompleks Sains & Teknologi 40450 Shah Alam Selangor : November 15-18, 2007 : Queen Sirikit National Convention Center, 60 New Rachadapisek Road, Klongtoey 10110, Bangkok, Thailand : +662 229 3000 : +662 229 3001 : www.kenes.com/wspid 11 BERITA MPA – OCTOBER 2006 Berita MPA•October 2006 1/29/07 11:53 AM Page 12 ad
Similar documents
Berita MPA April 2005 (English - pdf - 1652 Kb)
Prof Zulkifli Ismail Vice-President Dr Soo Thian Lian Hon Secretary Assoc Prof Tang Swee Fong Asst Hon Secretary Dr Noor Khatijah Nurani Treasurer Dr Musa Mohd Nordin Committee Members Dr Koh Chong...
More informationBerita MPA July 2007 (English - pdf - 1663 Kb)
Prof Zabidi Azhar Mohd Hussain Hon Secretary Assoc Prof Tang Swee Fong Asst Hon Secretary Dr Noor Khatijah Nurani Treasurer Dr Musa Mohd Nordin Committee Members Dr Koh Chong Tuan Dr Nazeli Hamzah ...
More information