Immigrants Access to Healthcare Report
Transcription
Immigrants Access to Healthcare Report
LATINO IMMIGRANTS AND ACCESS TO HEALTHCARE IN THE GREATER RICHMOND AREA Research Study Report Prepared by: Saltanat Liebert, Carl Ameringer, Cynthia Cors, and Mona Siddiqui Virginia Commonwealth University Submitted to the Richmond Memorial Health Foundation November 2012 CONTENTS: 1 INTRODUCTION ................................................................................................................ 4 2 BARRIERS TO ACCESS TO SAFETY-NET FACILITIES FACED BY THE IMMIGRANT POPULATION .................................................................................................... 4 3 4 5 THE IMMIGRANT POPULATION AND SAFETY-NET FACILITIES ...................... 7 3.1 Immigrant Population in the Greater Richmond Region....................................... 7 3.2 Overview of Safety Nets ..................................................................................... 12 3.3 Free Clinics ......................................................................................................... 12 3.4 Federally Qualified Health Centers ..................................................................... 14 APPROACH AND CONDUCT OF STUDY.................................................................... 15 4.1 Research questions .............................................................................................. 15 4.2 Methodology ....................................................................................................... 15 4.3 Targeted locations and choice of facilities .......................................................... 16 QUESTIONS ASKED AND SUMMARY OF RESPONSES.......................................... 16 5.1 Country of origin ................................................................................................. 17 5.2 Respondents’ Gender and Marital Status ............................................................ 18 5.3 Health Status of Respondents.............................................................................. 18 5.4 What was the problem? ....................................................................................... 19 5.5 Did you see a doctor, nurse, dentist, or another specialist?................................. 20 5.6 Where do respondents turn for health care.......................................................... 21 5.7 Did anyone take you there? ................................................................................. 22 5.8 How did you know where to go?......................................................................... 22 5.9 What did the doctor do for you?.......................................................................... 23 5.10 Did the doctor explain why you were sick? ....................................................... 24 5.11 Were you given any drugs/prescriptions? Did you get them filled? ................... 27 5.12 Were any tests or procedures performed when you went to see the doctor?....... 29 5.13 Did you see anyone else for the problem?........................................................... 29 2 6 7 5.14 Do you have a chronic condition? ....................................................................... 30 5.15 Do you get treatment for chronic condition?....................................................... 31 5.16 How often do you go to the doctor? .................................................................... 32 5.17 Are you happy with the care that you receive when you go to the doctor?......... 34 5.18 Do you ever go to the emergency room?............................................................. 37 5.19 Which hospital do you go to for emergency care? .............................................. 37 5.20 Why do you go to that emergency room? ........................................................... 38 DISCUSSION OF FINDINGS........................................................................................... 39 6.1 Language Barrier................................................................................................. 39 6.2 Financial Barrier.................................................................................................. 41 6.3 Barriers Due to Administrative Bureaucracy and Immigration Status................ 42 6.4 Transportation Barrier ......................................................................................... 43 CONCLUSION ................................................................................................................... 43 3 1 INTRODUCTION This report contains the findings and results of a three-month survey of the Hispanic/Latino immigrant population in the Greater Richmond area conducted between June 22, 2012 and September 30, 2012. The primary purpose of the survey was to determine the nature and extent to which Hispanic/Latino immigrants currently use the healthcare facilities that comprise the Greater Richmond Patient Centered Medical Home Collaborative (the “Collaborative”). Financial support for the survey was provided by the Richmond Memorial Health Foundation (the “Foundation”) on behalf of the Collaborative. Members of the Collaborative include Capital Area Health Network, CrossOver Ministry, Daily Planet, Free Fan Clinic, Goochland Free Clinic and Family Services, Love of Jesus Clinic, and Virginia League for Planned Parenthood. The researchers initially met with administrators and providers from each of the Collaborative members (with the exception of VLPP) in order to determine the nature and extent of healthcare services that members provided to the Hispanic/Latino immigrant community and the best way to proceed with the survey. Based on the knowledge gained in these initial meetings, the researchers focused their efforts on four clinic sites—Goochland Free Clinic, CrossOver Clinic’s Hull Street location, the Fan Free Clinic, and the Daily Planet. Under the direction of Dr. Saltanat Liebert, two Spanish-speaking VCU students recruited and interviewed a total of 101 uninsured Hispanic/Latino immigrants (1) from the four clinic sites; (2) from Spanish-language churches; (3) from fairs and festivals that Hispanic/Latino immigrants commonly attended, (4) from CrossOver clinic’s Lay Health Promoter Program; and (5) from Bon Secours’ Care-a-Van sites. The findings set forth in this report reflect the first-hand accounts, detailed descriptions, and perceptions of the persons interviewed. Those interviewed related the healthcare they received, where they went for care and why, the types of illnesses or conditions they suffered, the nature and extent of the treatment they received, the barriers to care that they faced, and their perceptions of the people they met and cared for them. Every attempt has been made in this report to let those interviewed tell their own stories, to let them describe what they’ve experienced without detailed comment or explanation. 2 BARRIERS TO ACCESS TO SAFETY-NET FACILITIES FACED BY THE IMMIGRANT POPULATION Immigrants face several barriers in accessing healthcare, including immigration status, lack of health insurance, lack of information, cultural/linguistic barriers, fear of detection and deportation, and fear of bureaucratic hurdles and of exorbitant fees charged by healthcare providers. Immigration status. Immigrants in the United States can be categorized into two large groups: legal immigrants, who arrived in the United States with valid visas or for 4 permanent residency, and undocumented migrants, who arrived with valid visas but overstayed them (remained in the country after their visas expired) or entered the United States surreptitiously without appropriate visas. Legal immigrants typically include the following individuals: 1) foreign nationals with US citizen family members who sponsored them for legal permanent residency (LPR) for purposes of family reunification; 2) highly skilled foreign workers who are sponsored for H1-B or other types of employment visas (such as H1-C, H-3, L-1, O-1, P-1, P-3) by American employers; and 3) unskilled or lesser-skilled foreign workers sponsored for H-2A and H2B visas. Permanent immigrants are barred from federal means-tested public assistance for five years after their arrival (which coincides with when most 1 are typically eligible for US citizenship), while foreigners on employment and other types of non-immigrants visas are not eligible for public assistance at all. Undocumented immigrants are barred from all types of public assistance with the exception of a narrow set of specified emergency services and programs 2 . The Personal Responsibility and Work Opportunity Reconciliation Act (PRWORA) of 1996 states that undocumented immigrants are ineligible for most state and locallyfunded benefits. The restrictions on these benefits parallel the restrictions on federal benefits. However, the PRWORA allows the states to provide undocumented migrants with state and local benefits that otherwise are restricted. Respective state legislatures would need to pass laws allowing this population to access specific state-funded public benefits. Public assistance that is co-funded by the federal government can not be included though, as it’s considered federal benefit under the law. 3 Lack of health insurance. Employment circumstances of legal and undocumented immigrants vary significantly. Highly-skilled immigrants typically hold jobs that provide (or enable them to purchase) health insurance for themselves and their families. Lesserskilled and undocumented immigrants often work in lower-paying or hourly jobs that do not provide health insurance. Regardless of employment circumstances, immigrants tend to be insured at much lower rates than the native-born Americans, whose rate of healthcare coverage is estimated at 1 Foreign nationals who became legal permanent residents based on marriage to US citizens are eligible to apply for US citizenship after 3 years of LPR status. 2 These services and programs include “treatment under Medicaid for emergency medical conditions (other than those related to an organ transplant); short-term, in-kind emergency disaster relief; immunizations against immunizable diseases and testing for and treatment of symptoms of communicable diseases; services or assistance (such as soup kitchens, crisis counseling and intervention, and short-term shelters) designated by the Attorney General as (1) delivering inkind services at the community level, (2) providing assistance without individual determinations of each recipient’s needs, and (3) being necessary for the protection of life and safety; and to the extent that an alien was receiving assistance on the date of enactment, programs administered by the Secretary of Housing and Urban Development, programs under title V of the Housing Act of 1949, and assistance under Section 306C of the Consolidated Farm and Rural Development Act,” Congressional Research Service. (2012). Unauthorized Aliens’ Access to Federal Benefits: Policy and Issues. Washington: Congressional Research Service, p.9. 3 Congressional Research Service. (2012). Unauthorized Aliens’ Access to Federal Benefits: Policy and Issues. Washington: Congressional Research Service. 5 87.8 percent in one study 4 and at 85 percent in another 5 . A recent nationallyrepresentative survey 6 showed that only one-third of recent legal immigrants had health insurance. An earlier study 7 estimated 46 percent of legal immigrants and 59 percent of undocumented immigrants to be uninsured in 2009. Uninsured undocumented immigrants are thus essentially confined “to the bottom of the health hierarchy.” 8 Lack of information. Previous research demonstrates that the migrant population in general is unaware of free or low-cost health care providers. Free clinics and FQHCs do not generally advertise, relying on word of mouth 9 . In contrast, emergency rooms are highly visible advertising their services on highway billboards and elsewhere. Consequently, some uninsured immigrants turn to emergency rooms even in nonemergencies, resulting in significant costs that they are often unable to pay. At the other end of the spectrum are immigrants who, frightened by such costs, avoid emergency rooms even in life-threatening health situations. An example from a recent study illustrates this point: The director of a community clinic in north San Diego relates the case of a Mexican boy suffering from a brain haemorrhage. His parents took him to a distant clinic – the only place they knew would provide free care – driving past the emergency rooms of several hospitals. By the time the boy arrived at the clinic, it was too late – he died on the spot. 10 Linguistic and cultural barriers. Lack of proficiency in English and cultural differences present significant obstacles for immigrants’ access to healthcare. Many hospitals and clinics do not have bilingual staff and/or interpreters and some do not have American Telephone and Telegraph (ATT) Translation Service even though “by law, hospitals and community clinics must provide medical translation.” 11 Linguistic problems in medical setting can result in serious and, sometimes fatal, mistakes. A recent report states, 4 Portes, A., Fernandez-Kelly, P., & Light, D.(2012). Life on the edge: immigrants confront the American health system. Ethnic and Racial Studies, 35(1), 3-22. 5 Kaiser Family Foundation. (2009). Immigrants’ Health Coverage and Health Reform: Key Questions and Answers. Menlo Park, CA: Henry J Kaiser Family Foundation. 6 Portes, A., Fernandez-Kelly, P., & Light, D.(2012). Life on the edge: immigrants confront the American health system. Ethnic and Racial Studies, 35(1), p. 9. 7 Kaiser Family Foundation. (2009). Immigrants’ Health Coverage and Health Reform: Key Questions and Answers. Menlo Park, CA: Henry J Kaiser Family Foundation. 8 Portes, A., Fernandez-Kelly, P., & Light, D.(2012). Life on the edge: immigrants confront the American health system. Ethnic and Racial Studies, 35(1), p. 4. 9 Portes, A., Fernandez-Kelly, P., & Light, D.(2012). Life on the edge: immigrants confront the American health system. Ethnic and Racial Studies, 35(1), 3-22 10 Portes, A., Fernandez-Kelly, P., & Light, D.(2012). Life on the edge: immigrants confront the American health system. Ethnic and Racial Studies, 35(1), p. 10. 11 Portes, A., Fernandez-Kelly, P., & Light, D.(2012). Life on the edge: immigrants confront the American health system. Ethnic and Racial Studies, 35(1), p. 9. 6 We learned of terrible cases, such as that of an adolescent girl suffering from stomach pains who was taken to the emergency room where neither she nor her parents could properly explain her symptoms in English. The attending doctor gave her some pills and sent her home where she died of appendicitis. 12 In this study, when asked whether they understood everything that the doctor said, one respondent recounted her experience, “my husband interpreted for me. He speaks a little English. I still don’t understand everything though.” Another respondent had a similar experience “Sometimes I understand, sometimes I don’t. Sometimes when the doctor speaks Spanish, they only speak a little bit, so I don’t understand everything.” Fear of bureaucratic paperwork and detection of undocumented status. Some undocumented migrants are reluctant to turn to clinics and hospitals for needed care because of fear that their immigration status will be detected and they will be deported. Such fears are justified. When presented with a plethora of forms to fill out before seeing a medical professional, immigrants might fear detection based on a lacking or invalid Social Security number or ID. Law enforcement agencies target areas with high concentration of immigrants. In San Diego, for instance, agents of the Immigration and Customs Agency (ICE) “have been known to monitor Spanish radio stations to learn the location of mobile medical units in migrant neighborhoods.” 13 Fear of enormous bills from healthcare providers. Healthcare bills can be daunting for many Americans, but they can be particularly insurmountable for uninsured immigrants, most of whom work in low-wage jobs. As a result, uninsured immigrants delay seeing a doctor until the problem becomes unbearable, which is often a point when the cost of treating such a person is exponentially higher. A candid remark from a director of an emergency room in Florida reported in another study aptly illustrates that fear, “Every patient who arrives here carries a dollar sign on his forehead… One way or another, he or she will be billed.” 14 One of the respondents in this study, having received a substantial bill from the hospital where he was treated, declared “If I don't die from the sickness, I’ll die from the bill.” 3 3.1 THE IMMIGRANT POPULATION AND SAFETY-NET FACILITIES Immigrant Population in the Greater Richmond Region The composition of the immigrant population is difficult to ascertain because of problems in accurately counting individuals in this population. However, national surveys and other data sources provide some basic measures of the composition and country of origin of the immigrant population in the United States. Current estimates from the Migration 12 Portes, A., Fernandez-Kelly, P., & Light, D.(2012). Life on the edge: immigrants confront the American health system. Ethnic and Racial Studies, 35(1), p. 9. 13 Portes, A., Fernandez-Kelly, P., & Light, D.(2012). Life on the edge: immigrants confront the American health system. Ethnic and Racial Studies, 35(1), p. 10. 14 Portes, A., Fernandez-Kelly, P., & Light, D.(2012). Life on the edge: immigrants confront the American health system. Ethnic and Racial Studies, 35(1), p. 10. 7 Policy Institute indicate that the foreign-born population in Virginia was 911,119 in 2010, representing 11.4% of Virginia’s population. From this population, 39.7 % of the immigrants came from Asia; 37.1% from Latin America (South America, Central America, Mexico, and the Caribbean); 11.7% from Europe; 9.8% from Africa; 1.7% from Northern America (Canada, Bermuda, Greenland, and St. Pierre and Miquelon); and 0.4% emigrated from Oceania. The top ten countries of origin were El Salvador, India, Mexico, Korea, Philippines, Vietnam, China (including Taiwan), Caribbean, United Kingdom, and Germany. 2010 Total Population of Virginia Foreign Born Population of Virginia Origin Africa Origin Asia Origin Europe Origin Latin America (South America, Central America, Mexico, and the Caribbean) Origin North America (Canada, Bermuda, Greenland, and St. Pierre and Miquelon) Origin Oceania Number 8,024,617 911,119 Percent 100.0 11.4 9.8 39.7 11.3 37.1 1.7 0.4 The Greater Richmond Partnership estimates the population of the Greater Richmond region was 936,597 in 2011. American Community Survey (“ACS”) provides some basic estimates of the foreign born population in the Greater Richmond region. The ACS 2011 one-year estimate indicates that 40,300 immigrants resided in Henrico County, 24,722 immigrants resided in Chesterfield County, 15,449 immigrants resided in Richmond City, and 590 immigrants resided in Goochland County. Map 1 shows that the majority of Latinos in Richmond live in the city’s south side. The heaviest concentration of Latinos is in the area between Midlothian Turnpike and Hull Street Road, north of Chippenham Parkway. Immigrants residing in the Greater Richmond region are in close vicinity to many of the areas free clinics and federally qualified health centers. The immigrant population residing in Chesterfield County has free or low cost health care access to the CrossOver Health Care Ministry, Care-A-Van mobile clinic, and Capital Area Health Network’s Southside Medical Center (located between Chesterfield County and the City of Richmond). The immigrant population residing in Richmond City has free or low cost health care access to the Daily Planet, the Fan Free Clinic, CrossOver Health Care Ministry, Care-A-Van mobile clinic, and Capital Area Health Network’s Main Street Medical Center, Northside Medical Center, Vernon J. Harris Medical Center, and Southside Medical Center. The immigrant population residing in Henrico County has free or low cost health care access to CrossOver Health Care Ministry, Care-A-Van 8 mobile clinic, and Capital Area Health Network’s Glenwood Medical and Dental Center. The immigrant population residing in Goochland County has free or low cost health care access to the Goochland Free Clinic & Family Services. Foreign Born Population of Virginia Country of Origin El Salvador India Mexico Korea Philippines Vietnam China Caribbean United Kingdom Germany 2010 Number Percent 86,413 9.5 65,926 7.2 64,685 7.1 55,764 6.1 46,014 5.1 43,215 4.7 39,115 4.3 28,635 3.1 22,705 2.5 20,533 2.3 Source: Migration Policy Institute 9 10 11 Map 2 above illustrates a high density of not naturalized (non-citizen) immigrants in areas where there are high densities of Latinos. Free clinics and FQHCs are located at or near the perimeter of these areas. 3.2 Overview of Safety Nets In the U.S. health care system, a “safety net” is a locally organized system of health care delivery intended to fill gaps in access to health care services for the uninsured, lowincome, and other vulnerable populations in medically underserved communities. Safety net providers are largely comprised of free clinics, community health centers, including federally qualified health centers (“FQHC”), hospitals, and local health departments. These providers depend on funding from a variety of sources, including federal, state, and local government; private corporations; foundations; local health systems; civic and social groups; faith-based communities; and/or others. The Greater Richmond region’s 15 safety net is an essential part of the local medically underserved community, “catching those who would otherwise not have access to care.” 16 Despite limited resources, safety net providers are striving to meet the needs of individuals with barriers to accessing health care, such as homelessness, immigrant status, and language and cultural differences. More than 40,000 individuals in the Greater Richmond region area benefit from safety net providers every year from services through local free clinics, FQHC, hospitals, the Virginia Department of Health (“VDH”), and Virginia League for Planned Parenthood. 17 This study included safety net facilities that are part of the RMHF Collaborative. In addition, study participants were recruited and interviewed at Bon Secours’ Care-A-Van mobile free clinic sites. 3.3 Free Clinics Free clinics are non-profit community healthcare providers for low-income, uninsured, or underinsured patients at little or no charge to the patient. Free clinics depend on volunteer medical professionals, including doctors, dentists, nurse practitioners, nurses, dental hygienists, mental health professionals and others, to donate their time and expertise and deliver the majority of health care services. Free clinics do not receive any federal funding, and instead rely on community based or faith based financial and other support from private individual donors, foundations, and corporations. Free clinics also cannot bill insurance companies, Medicaid or Medicare for services rendered. Some well established free clinics in the Greater Richmond region include CrossOver Health Care Ministry (“CrossOver”), the Fan Free Clinic, Bon Secours Care-A-Van, and the Goochland Free Clinic & Family Services. 15 For purposes of this study, the Greater Richmond region is identified as the cities of Colonial Heights, Hopewell, Petersburg and Richmond; and the counties of Chesterfield, Goochland, Hanover, Henrico, Prince George and Powhatan. 16 Richmond Enhancing Access to Community Healthcare [REACH]. (2007). Bridging the healthcare gap: A community health services plan for the greater Richmond region. Richmond, VA. 17 Richmond Memorial Health Foundation. (2009). The greater Richmond patient centered medical home initiative. Richmond, VA. 12 CrossOver, a faith-based safety net provider, is Virginia's largest free health care clinic, operating in three different locations throughout the Greater Richmond region to provide comprehensive health care and wellness services to more than 6300 uninsured patients a year. 18 Services are provided to individuals who are at or below 200% of the federal poverty line, a majority of whom are the working poor, but do not have enough money to pay for necessary health care. Approximately fifty percent of CrossOver’s clientele consists of the Hispanic/Latino population, served by bilingual Spanish-English volunteers. Services provided include family medicine, primary care, obstetrics and pediatrics, podiatry, dental and vision care, mental health care, HIV diagnosis and treatment, and critical medications. CrossOver is also the only free clinic with a licensed volunteer pharmacist on-site providing free medication for CrossOver patients as well as patients being serviced at other free clinics in the Greater Richmond region. CrossOver’s funding comes primarily from individuals, businesses, foundations, churches, associations, schools, and social groups. In addition to medical services, CrossOver offers a Lay Health Promoter (LHP) program. The LHP program offers free health care education classes in English and Spanish at local community centers, churches, and the Richmond City Jail. The LHP program is designed to meet the low income and uninsured community’s need for basic health knowledge on preventing diseases, chronic disease management, health related complications, and accessing and navigating health care resources. Individuals who participate in the program and complete the required number of classes graduate as Lay Health Promoters, providing health education for their family, friends, and neighbors. The Fan Free Clinic in Richmond also provides medical treatment for individuals who are at or below 200% of the federal poverty line. 19 Approximately 22% of their clientele consists of the Hispanic/Latino population and other immigrants. Services provided include adult general medicine, chronic disease management, specialist referrals, gynecology/birth control, pregnancy testing, pediatrics/immunizations, sexuallytransmitted disease testing and treatment, HIV testing and treatment, mental health counseling, and a transgender clinic. In addition to medical services, this clinic also offers social services, advocacy services, and health education and outreach such as Hispanic/Latino family events. Contributions from individuals, organizations, businesses, civic groups, and faith communities are a vital source of funding for the Fan Free Clinic’s clients and services. Bon Secours Care-A-Van (“Care-A-Van”) is a unique mobile free clinic that partners with local churches and community services in twenty-two different locations to provide primary health care to uninsured adults and children in medically underserved communities in the greater Richmond region. 20 Each Care-A-Van provides walk-in 18 CrossOver Health Care Ministry. (2012). About us. Richmond, VA: Retrieved from http://www.crossoverministry.org/. 19 Fan Free Clinic. (2012). Home. Richmond, VA: Retrieved from www.fanfreeclinic.org. 20 Bon Secours Virginia Health System. (2012). Care-A-Van mobile health services. Richmond, VA: Retrieved from http://richmond.bonsecours.com/about-us-mission-and-outreach-outreach-care-a-van.html. 13 service on a first come, first served basis for about eighteen to twenty-two individuals a day, serving in total, approximately 14,000 individuals a year. Care-A-Van performs routine evaluation and treatment of common acute illnesses, including gastritis and heartburn, minor skin rashes, minor musculoskeletal pains, respiratory infections, urinary tract and bladder infections, headaches, ear aches, and pink eye, chronic conditions such as diabetes and hypertension, immunizations for schools, pregnancy tests, sports physicals, children’s health insurance enrollment, health education services, and referrals to specialists. Care-A-Van providers also refer patients requiring additional services by appointment to the St. Joseph’s outreach clinic at St. Joseph’s Villa. The Care-A-Van team is a English/Spanish bilingual team consisting of an attending medical director, nurse practitioners, registered nurses, patient care technicians, licensed practical nurses, drivers, registrars, and outreach workers. There is always a Spanish speaking trained medical interpreter on site to provide access for many of the Hispanic/Latino patients who may not speak English. Care-A-Van is funded by Bon Secours Richmond Health System and donations through the Bon Secours Richmond Health Care Foundation. The Goochland Free Clinic & Family Services is a private non-profit corporation providing health care and basic human services to Goochland community residents in need of assistance. 21 Services provided include medical care, dental care, housing assistance, clothing, and food. This clinic is financially supported by individual donations, and donations by foundations, local businesses, churches, government, corporations, other non-profit organizations. 3.4 Federally Qualified Health Centers FQHC are designated health care safety net providers receiving some federal funding from the Health Resources and Services Administration under the Public Health Service Act to deliver comprehensive primary health care to individuals in medically underserved communities, regardless of their ability to pay. FQHC provide uninsured patients low cost health care services on a sliding fee scale, taking into consideration income and household size. FQHC’s also bill insurance companies for patients eligible or enrolled in Medicaid or Medicare. In order to maximize limited resources, FQHC may collaborate with other private and public providers, pharmacies, nursing homes, and local businesses. Two well established non-profit FQHCs in the Greater Richmond region include the Capital Area Health Network (“CAHN”) and the Daily Planet. CAHN provides health care to the underserved, uninsured, Medicaid, and Medicare patients in five locations throughout the Greater Richmond region, including the Vernon J. Harris Medical Center, Main Street Medical Center, Northside Medical Center, Glenwood Medical and Dental Center, and Southside Medical Center. Services provided at the five CAHN medical centers range from primary adult and pediatric medical and dental services, mental health care, social services support, HIV/AIDS care, medication services, specialty referrals, patient education, and free transportation. 21 Goochland Free Clinic & Family Services. (2011). 2011 Annual report of philanthropy. Richmond, VA: Retrieved from www.goochlandfreeclinicandfamilyservices.org. 14 The Daily Planet provides comprehensive health care services to those who are homeless, or at risk of homelessness. Services at the Daily Planet include a full range primary health care clinic for adults and children; behavioral health clinic for assessment, evaluations, counseling and therapy; routine and preventative dental health treatment, eye care services; and case management to address barriers in resolving homelessness. 4 APPROACH AND CONDUCT OF STUDY Under the direction of Dr. Saltanat Liebert, two Spanish-speaking VCU students interviewed 101 uninsured Latino immigrants in the Greater Richmond Area to understand their healthcare needs and how their needs are being met. 4.1 Research questions A number of research questions guided the study: 1. Where do Hispanic/Latino immigrants go for care? 2. What factors determine where Hispanic/Latino immigrants go for care? 3. What are the most commonly occurring illnesses or needs (acute or chronic) for which Hispanic/Latino immigrants seek healthcare services from clinics in the PCMH collaborative? 4. How are their needs being met? 5. How much and what type of care do they get? (This last question is necessarily broad and includes services such as prenatal care, specialty referrals, prescription drugs, etc.) 4.2 Methodology Mixed methods. The research team conducted a qualitative study comprising in-depth semi-structured interviews with Hispanic/Latino immigrants. The team also conducted interviews with clinic personnel, primarily with directors or managers. The research team worked through clinic staff and clinical care coordinators to determine a recruitment approach consistent with snowball sampling. Snowball sampling. Participants were recruited primarily via a snowball sampling method based on referrals beginning with those identified by clinics and other organizations who serve this Richmond population. The selection of persons to interview was purposive: only potential participants who were born in Mexico or countries in Central or South America and who self-reported having no health insurance could participate. Interviews were conducted until a point of data saturation was reached, which means the point at which researchers receive no new information. Interview questions. The team prepared a list of questions to guide the interviews and two Spanish-speaking research assistants were recruited. Interviews were either recorded or research assistants documented participants’ answers during or after the interview. 15 Ethical considerations. In order to protect respondents’ privacy, the research team did not ask about immigration status, and did not propose to obtain data or clinical information of a personal nature. Researchers did not collect identifiable information from research participants (including name, date of birth, telephone numbers, social security numbers, address, etc.) If such information did arise during the course of the interview, it was not recorded and not used in subsequent portions of the research. With interviewees’ permission, the interviews were recorded. If study participants did not want the interviews to be recorded, the interviewers took detailed notes during and after the interviews. Study participants did not receive any compensation for their participation in the study. IRB approval. The Institutional Research Board (IRB) protocol was submitted on April 12, 2012. It contained detailed information about the study, a research plan, and a list of interview questions and information sheet in both English and Spanish. The protocol qualified for exemption and was approved by the VCU IRB on May 29, 2012 (VCU IRB#: HM14370). In the approval memo, the IRB asked that researchers document receipt of informed consent after potential participants were informed of foreseeable risks and possible benefits. The team edited the survey to include a checkbox documenting that informed consent was received. 4.3 Targeted locations and choice of facilities The clinics targeted are members of the Collaborative. The researchers met with clinic leaders to gain a better understanding of the nature and extent of the services they provide to the immigrant community as well as any specific barriers or challenges involved in providing such services. Researchers discussed the PCMH model of care and care coordination with Collaborative members. One purpose of facility interviews was to understand appropriate communities and geographical neighborhoods of immigrants to be used to obtain the interview sample. Among the members of the PCMH, several clinics were thought to be better sources of participant interviews than others. Those clinics that self-reported in the facility interviews as having a large group of patients of Hispanic/Latino origin were contacted first. These included Goochland Free Clinic and CrossOver Clinic’s Hull Street location. In order to receive a complete picture of how uninsured immigrants access healthcare, it was necessary to recruit and interview at non-clinic (and non-Collaborative) settings. Therefore, in addition to interviewing patients of the Collaborative clinics, researchers recruited study participants at Spanish-language churches, fairs and festivals targeting the Latino population, and Bon Secours’ Care-a-Van sites. 5 QUESTIONS ASKED AND SUMMARY OF RESPONSES The interviewees were asked the following questions: 1. Country of origin? 2. Insurance status? 16 3. Have you ever been sick in the US? 4. What was the problem? 5. Did you see a doctor (dentist, nurse, other type of provider)? 6. Where did you go to see the doctor? 7. Did anyone take you there? Was anyone with you? 8. How did you know where to go? 9. What did the doctor do for you? 10. Did the doctor explain why you were sick? Did you have any trouble understanding what the doctor told you? Did the doctor speak Spanish? Did anyone else help (explain things to you)? 11. Did you return to the doctor for care? Were you supposed to? (Why not go?) 12. Were you given any drugs/prescriptions? Did you get them filled? Take them? Need any help in taking your medications? 13. Any tests/procedures? 14. Did you see anyone else for the problem? (If so, what type of doctor/provider and how long wait for appointment?) 15. Do you have a chronic condition (interviewer explains what that is and provides examples of common conditions)? 16. Do you get treatment for that condition? What type of treatment do you get? 17. How often do you go to the doctor (clinic)? Why? Why not? 18. Would you go more often if you could? Explain. 19. Are you happy with the care that you receive when you go to the doctor (clinic)? 20. Do you have to pay for the doctor's services? 21. Do you ever go to the emergency room? 22. What hospital do you go to for emergency care? 23. Why do you go there? 24. Gender? 25. Age? 26. Race? 27. Ethnicity? 28. Marital Status? What follows is a summary of the interviewees’ responses to the questions asked. 5.1 Country of origin Country of Origin El Salvador Mexico Guatemala Honduras Dominican republic Ecuador Peru Frequency Percent 35 33 18 7 2 2 2 34.7 32.7 17.8 6.9 2.0 2.0 2.0 17 Colombia Nicaragua Total 1 1 101 1.0 1.0 100.0 The respondents’ countries of origin mirror the demographic composition of immigrants in Virginia. Over 37 percent of the immigrant population in Virginia is Latino, and the majority comes from El Salvador and Mexico. Among respondents, the largest share – 34.7 percent -- came from El Salvador. The next largest group – 32.7 percent -- was immigrants from Mexico. Guatemalans made up 17.8 percent of the sample. Other countries of origin included Honduras, Peru, Colombia, Dominican Republic, and Ecuador. 5.2 Respondents’ Gender and Marital Status Gender Female Male Total Frequency Percent 72 29 101 71.3 28.7 100 The majority of respondents, 71.3 percent, were women. It is likely that the sample had a larger proportion of females than their share in the general Latino population because research shows that women are more likely than men to seek medical care. Marital status Married Single Other* Separated Widow No answer Divorced Total Frequency Percent 47 46.5 32 31.7 14 13.9 3 3 3 3 1 1 1 1 101 100.1 *Other typically meant that an interviewee is living with someone. 5.3 Health Status of Respondents More than three quarters of respondents (78.2 percent) reported having been sick or seeking medical care for other reasons, such as pregnancy, during their stay in the United States. The following sections of the study are based on interviews with 83 respondents who reported having been sick or seeking medical care since their arrival in the United States. 18 Have you ever been sick? Frequency No No but Yes Total 5.4 Percent 18 4 79 101 17.8 4 78.2 100 What was the problem? Health complaint/condition Frequency Percent* Pregnancy/delivery Hypertension Diabetes Headaches Stomach aches Flu Gastritis Kidney infection Car accident Check up Chest pain Declined to answer High cholesterol Migraines Multiple unnamed problems 7 6 5 4 4 3 3 3 2 2 2 2 2 2 2 8.4 7.2 6.0 4.8 4.8 3.6 3.6 3.6 2.4 2.4 2.4 2.4 2.4 2.4 2.4 Occupational injury Ovarian cysts Sore throat Throat infections Uti Vision Abdominal pain Alcohol abuse Anemia Back pain Breast cancer Broken hand Colon Cysts Dentist Dizziness Eyes Family planning Fever Fractured arm 2 2 2 2 2 2 1 1 1 1 1 1 1 1 1 1 1 1 1 1 2.4 2.4 2.4 2.4 2.4 2.4 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 19 Gall bladder Half the face is paralyzed Hemorrhoids Infections Inner ear infection Instantaneous abortion Intestinal issue Kidneys (kidney failure) Knee replacement due to occupational injury 1 1 1 1 1 1 1 1 1 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 Lost vision Lupus Respiratory Sleeplessness Spontaneous abortion Surgery on cervix and breasts Thyroid Traumatic brain injury due to occupational accident 1 1 1 1 1 1 1 1 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 Tubal pregnancy 1 1.2 Tumor in stomach 1 1.2 Tumor in the head 1 1.2 Undiagnosed 1 1.2 Vaccines 1 1.2 Vaginal infections 1 1.2 Vaginal prolapse 1 1.2 Virus 1 1.2 Vomiting 1 1.2 *Some respondents mentioned more than one condition; thus the sum of percentages adds up to more than 100 Respondents’ health concerns (or reasons for seeking medical assistance) vary significantly. Common issues include pregnancy/child birth, hypertension, and diabetes. It is also likely that due to language barrier and/or low level of education, respondents may not know their diagnosis, only the original symptoms. Some of the respondents interviewed were unable to explain their diagnoses. One respondent, for instance, said “They operated on my cervix and on my breasts.” Even when the diagnosis is translated into Spanish, some individuals might not be able to understand/remember the condition. Another respondent reported, “They had to take this thing of out my head. They had to open my head up. It was big, the size of a lemon.” 5.5 Did you see a doctor, nurse, dentist, or another specialist? Study participants were asked whether they were seen by a doctor, nurse, or other type of provider. The vast majority of respondents reported being seen by a doctor. Yet, some clinics only have nurse practitioners as full-time staff. It is, therefore, likely that respondents didn’t know they were seen by a nurse. 20 Seen by “Yes” Frequency “No” frequency Doctor 75 3 Nurse 0 n/a Dentist 2 n/a Specialist 4 n/a No response 5 n/a Three respondents reported being sick but did not see a medical specialist. One respondent reported not seeking medical care despite being sick “Because I don’t have medical insurance” (Interviewee #1). Another self-medicated: “I have no insurance, so I went to the pharmacy... I took over the counter medicine from the pharmacy.” (Interviewee # 105) The third interviewee who said that he/she had not been seen by a doctor was in line at a Care-a-Van clinic at the time of an interview hoping to be seen by a doctor for stomach pain. 5.6 Where do respondents turn for health care Facility Free clinic Care-a-van Hospital Chippenham Emergency room Health department Patient First No response MCV Private doctor Bon Secours (Patient First refused him) Bon Secours via 911 Hospital in Iowa Mechanicsville Pharmacy Total Frequency Percent 29 15 7 5 5 5 4 3 3 2 1 34.9 18.1 8.4 6.0 6.0 6.0 4.8 3.6 3.6 2.4 1.2 1 1 1 1 83 1.2 1.2 1.2 1.2 100.0 21 5.7 Did anyone take you there? Over half of immigrants rely on their social network (friends and family) to accompany them to medical care facilities. In the case of occupational injuries, coworkers took the respondents to hospitals. Did anyone take you? Frequency Percent Friend Myself Family member 23 22 20 27.7 26.5 24.1 No answer Ambulance Myself/need ride 7 4 3 8.4 4.8 3.6 Coworker 2 2.4 1 1 83 1.2 1.2 100 Boss Clinic interpreter Total Three respondents also stated that without a personal vehicle or reliable public transportation, they had a hard time getting to healthcare facilities for urgent or routine care. My friend told me where it was and I went. Sometimes though I can’t get to my appointments. Poor people sometimes can’t get to the clinic because they can’t drive. Or they have to work. And they don’t have insurance. When I need to go to the clinic I ask someone for a ride, but if I can’t find a ride I walk. (Interviewee #3) ###### When I need to go to the clinic I pay for a ride. Sometimes it is cheap, sometimes it is expensive. It depends on who is driving. (Interviewee #7) 5.8 How did you know where to go? How did you know where to go? Frequency 35 9 8 6 5 4 2 Friend Family member Close to home Church No answer Health dept told me Community 22 Percent 42.2 10.8 9.6 7.2 6.0 4.8 2.4 Employer took me Neighbor Ambulance took me Care-a-van referral Free clinic referral Hospital Medicaid* I passed by the hospital Referral from MCV Other The only hospital there I went where I thought no SSN was required Total 2 2 1 1 1 1 1 1 1 1 1 1 83 2.4 2.4 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 100.0 *While the patient’s Medicaid application was being processed, a staff member at Medicaid recommended she use a free clinic for her immediate healthcare needs. As originally hypothesized, migrants’ social networks are important in directing them where to go for care. A large share – 58 percent – of respondents decided where to turn for care based on the advice of their friends, neighbors, or family member. Another 7.2 percent received advice from their church. 5.9 What did the doctor do for you? In response to the question “What did the doctor do for you?” respondents provided a variety of answers. The most common – 25 percent – said they were examined by a doctor. Another ten percent were also given medications or prescription for medications. What the doctor did Exam No answer Exam/medicine* Exam/prescription Exam/tests Referral to specialist Referral to ER Attended to me Referral for surgery Routine care/physical Vaccines Birth Birth control Blood pressure Blood test C-section Cast Cured my finger Frequency 21 8 5 5 4 4 3 2 2 2 2 1 1 1 1 1 1 1 23 Percent 25.3 9.6 6.0 6.0 4.8 4.8 3.6 2.4 2.4 2.4 2.4 1.2 1.2 1.2 1.2 1.2 1.2 1.2 Dental work Diagnosed breast cancer Discussed treatment options Glasses HIV test Hospitalized Mammogram Mammogram/PAP Physical Pregnancy test Put in apparatus on my chest** Put screws in Referral but didn't go b/c of money Relieved pain Removed cockroach from ear Stabilized after accident Stitches Treatment stopped due $ Waiting to be seen X-rays Total 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 83 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 1.2 100.0 *The difference between exam/medicine and exam/prescription responses is that in the former, doctors (nurses) actually gave patients medications; in the latter response patients received prescriptions that needed to be filled elsewhere. ** the respondent was not sure what that apparatus did 5.10 Did the doctor explain why you were sick? Did you understand what the doctor told you? Frequency Yes Yes, through interpreter No answer Yes, doctor spoke Spanish No I brought someone to translate Yes, I speak English I don't understand everything If interpreter is there Yes, I speak a little English I don't understand the doctor Other Sometimes I don't understand Total 25 18 7 7 6 5 4 3 3 2 1 1 1 83 24 Percent 30.1 21.7 8.4 8.4 7.2 6.0 4.8 3.6 3.6 2.4 1.2 1.2 1.2 100.0 Most respondents – 59 percent -- understood what the doctor said because interpretation was available (either on the phone or in person), or because they spoke English, or the doctors spoke Spanish. Respondents, understandably, were happiest when the doctor they saw spoke Spanish and seemed likely to achieve better health outcomes as a result. As one respondent stated, The doctor examined me. She speaks Spanish. When I go into the exam room it is just her and I. No one else is there. Well, sometimes another doctor sees me, but he speaks only a little Spanish. So then they have someone to interpret. But I don’t like that. If my doctor isn’t there, I would rather just come back. I think he [another doctor] is a good doctor, but because he doesn’t speak much Spanish he can’t understand me. My doctor speaks Spanish very well. She explains everything to me. She told me about cholesterol and how to lower my cholesterol with changes in my diet. I used to have my cholesterol at 230 and now it is 209. She was really happy with the changes I made to lower my cholesterol so much. She told me that was really good. (interview #3) Another respondent simply reported his satisfaction, “They [doctors] treat me really well. They speak my language and that makes me really happy.” (Interviewee #11)” At least six percent of respondents brought their friends or family members to interpret at medical appointments. Presumably, such interpreters were not medical professionals and were not familiar with medical terminology and medical practice in the U.S. Moreover, their level of education/literacy may have been insufficient to convey complete and accurate medical information as illustrated by the following statement: “At Stony Point my husband interpreted for me. He speaks a little English. I still don’t understand everything though” (Interviewee #54). It is also common for recent immigrants to bring their minor bilingual children to appointments to interpret. That is problematic on many grounds (psychological stress on the children, their lack of understanding of medical terminology, an unhealthy power balance between a bilingual child and a non-English proficient parent, etc). Some doctors, justifiably, object to minors interpreting at medical appointments. The doctors at the free clinic don’t speak Spanish. This is our problem. They don’t speak Spanish. Well, I speak a little English. I can talk about my teeth, and I understand. When I need to talk about other things I have trouble. I have a daughter who is 15. She is a great translator. She speaks Spanish and English. But when I want to bring her to the free clinic to help me translate, they say I can’t bring her because she is a minor. I say, I only am bringing her because she is going to help me. But they don’t listen to me. I want to bring my daughter to help me, I trust her and I want her to help. She can translate really quickly. She speaks both languages, she is bilingual. Thank God she is! (Interviewee #6) In clinics where interpretation is not always available, limited English proficient patients can have significant difficulties as illustrated by the following respondent’s experience: 25 The doctors do explain everything, but always in English. Sometimes I leave the clinic with many doubts. I try to understand everything, but I can’t. I understand, but sometimes I don’t understand everything. I sometimes can follow along, but then don’t understand a word. “What could it be?” but I don’t know, so I have many doubts. It is really difficult for me. I know that there are others who don’t understand anything. It must be really hard for them. (Interviewee #6) ###### Q: Did the doctor explain why you were sick? A: When you don't speak English they don't explain. You can ask. They just translate a little bit. (Interviewee 143) Quotations below demonstrate the range of experiences that respondents reported with regard to understanding doctors: They [doctors] explain everything to Viola 22 , and she explains it all to me. The doctors don’t speak Spanish, so she has to help. None of the doctors at the clinic speak Spanish, so she has to interpret for us. When I am sick and need to go to the clinic, and she is not there to interpret, I don’t go because it is not worth it. They won’t even understand what I am saying, and I won’t understand them. They will not understand me. (Interviewee #4) ###### Viola interprets when she is there. There are others who speak Spanish. I don’t know why they don’t get more people who speak Spanish. There are a lot of people who could help when Viola can’t. Many people in our community could help out. (Interviewee #6) ###### Most of the doctors I see use interpreters. Sometimes in person. Sometimes over the phone. I like the interpreters that are in person better than over the phone. Sometimes when I have trouble hearing on the phone they are short and don’t want to repeat what they said. It is also hard when they deliver very heavy news. When that happens it makes you think, Am I going to die? What does this mean? It takes a little while to think about it, and by then you haven’t heard what the interpreter on the phone has said. They sometimes don’t like to repeat themselves, but they can’t see that I am thinking myself. I also don’t like it much when it is a man interpreting. It is a little embarrassing to talk about all of the issues I am having. Especially if the problems are about my vagina or something like that. But I ask anyways because I know I have to. But it can be very embarrassing. If I don’t ask, I will not get the information that I need. (Interviewee #22) 22 Viola is a bilingual (Spanish-English) part-time staff member at one of the clinics. Her name has been changed in this report to protect her identity. 26 5.11 Were you given any drugs/prescriptions? Did you get them filled? Medication/prescription received Yes No No answer No, vaccines Pain medication only Pharmacy refused to dispense b/c of immigration status Self-medicated Total Frequency 63 11 5 1 1 1 Percent 75.9 13.3 6.0 1.2 1.2 1.2 1 83 1.2 100.0 Three quarters of the respondents (75.9 percent) who reported having been sick since their arrival in the United States reported receiving either medication or prescription from doctors they saw. Thirteen percent did not receive medication or prescription at their visit to the doctor. One respondent, who reported not seeking medical care for lack of insurance, self-medicated: “I took over the counter medicine from the pharmacy.” (Interviewee #105) One interviewee reported that the pharmacy where she usually received her prescription was no longer dispensing medication to her because of her undocumented immigration status: The social worker normally fills out a form she turns into the pharmacy and I pick up the medicine at DaVita Dialysis. But now the social worker told me I could no longer get the medicine because the pharmacy found out about my immigrant status. (Interviewee #104) The quotations below illustrate various experiences that respondents have had receiving medication and filling their prescriptions: The doctor gave me a prescription. And I always take my medicine. I used to get my prescription filled at K-Mart, but now it is closed. So I go to Krogers. That is the closest place. When I went to Wal-Mart they told me that I had to fill out more paperwork. I have to pay for my medicines. I pay 10 dollars for each medicine, every 3 months. I have one high blood pressure medicine and another medicine that I pay 10 dollars every 3 months. I take my blood pressure medicine once a day. I have always had my medication. I can’t miss taking this medicine. (Interviewee #3) ###### I need to go to the pharmacy to get my medicine. I give them my prescription, and 27 they give me my medicine. I need to pay 5 dollars for every prescription. The free clinic doesn’t have a pharmacy, but there are 3 different pharmacies I can go to. At each of them all of my medicine is only 5 dollars for every prescription. When I had surgery at the hospital they gave me a prescription. I tried to get my medicine at the pharmacy there but it was really expensive. They told me to bring my prescriptions to the free clinic, and that they would give me other prescriptions so I could pay for my medicine. Otherwise they were too expensive and I wouldn’t have been able to get them. (Interviewee #4) ###### At the Care-A-Van they have medicine, but they sent me to CrossOver to get one prescription that they didn’t have…I also get medications filled at Wal-Mart. (Interviewee #16) ###### “Yes, I was given a prescription for a pill and a cream. I got them at CVS. I like to go to CVS because they have the discount card. (Interviewee #47) Another respondent apparently receives phone calls from a nurse who checks up on her. The respondent asks her questions about medication, as reported below: Q: Do you need any help in taking your medications? A: No, I now know how or the nurse calls to check on me. If I need something I call her.” (Interviewee #110) [It was unclear from which clinic the nurse is because the respondent has been to several clinics, a specialist, and a hospital.] Some respondents also order medication online. This is problematic because the medication is not prescribed by a medical professional and it’s unclear whether it helps to improve a patient’s condition or whether it may actually harm him or her. The medicine I used to get was getting too expensive. So I started ordering medication on the internet. I have one pack of powder I take with orange juice everyday. It has to be with orange juice. This helps with my memory. It helps my brain cells grow. I order that from Canada. It is 101 dollars for 30 packets. I also order a vitamin from Canada. That helps when I am not feeling well and calms me down. It is good for my brain. Since I have been taking these two things I haven’t had as many convulsions. The vitamins also help with my cholesterol. It is a little high, but it is more or less under control now with the vitamins.” (Interviewee #33) Another interviewee reported that his cholesterol level is high. In response to the question whether he gets treatment, he reported: “Yes, I take a vitamin I order from Canada on the internet.” (Interviewee #33) This phenomenon is likely to be more widespread as there is a perception in the community that vitamins are a cure-all and people take them for conditions that require actual medication. 28 5.12 Were any tests or procedures performed when you went to see the doctor? Tests done Frequency Percent* All “Yes” responses including: 59 Yes 39 47.0 Blood test 6 7.2 PAP smear 5 6.0 X-rays 5 6.0 Mammogram 4 4.8 Blood pressure 2 2.4 Ultrasound 3 3.6 Colonoscopy 1 1.2 Dental x-rays 1 1.2 Dialysis 1 1.2 Thyroid test 1 1.2 HIV test 1 1.2 Blood exam and panel 1 1.2 Urine test 1 1.2 No 15 18.1 No answer 9 10.8 *Total does not add up to 100% because some respondents had more than one test Almost half of respondents, 47 percent, reporting receiving a test(s) during their visit to the doctor (clinic) but most of them could not specifically identify what the test was. Eighteen percent of respondents did not have tests when they saw a doctor. 5.13 Did you see anyone else for the problem? Saw anyone else for the problem No No but went for another issue No b/c of cost Yes Clinic referral MCV for delivery No answer Total Frequency Percent 42 2 1 24 4 1 9 83 50.6 2.4 1.2 28.9 4.8 1.2 10.8 100.0 While over half of respondents did not see any other medical professional for the health problem they reported, one third did. In some cases the free clinics or the Care-a-Van clinic gave them a referral to see a specialist, while in others respondents went to other clinics or hospitals. At least one respondent did not seek further medical care fearing the 29 high cost. The real number of individuals postponing a visit to a doctor is likely to be higher, because many respondents did not specify whether they did not see a doctor because the health problem they experienced was successfully treated or for other reasons, such as costs or availability of timely appointments. Some patients also reported going to different clinics depending on where the specialists they needed were located: I am here for the dentist because I need to have my molars taken out. They hurt a lot. I normally go to another CrossOver to see the doctor, this is my second time here because I need to see the dentist. (Interviewee #34) ###### I used to have insurance and I would see a private doctor. Now I am here because I have a pain in my back. Normally I go to CrossOver in Chesterfield, but the bone doctor is here today. (Interviewee #29) ###### I sometimes want to go because my throat or ears hurt, but to go to a private doctor is too expensive. I have to wait for the Care-a-Van. (Interviewee #55) ###### I see a diabetes specialist all the way in Henrico. They give me the appointment at the Care-a-Van. I have not been in a while because the last time I had an appointment I had no one to take me and I lost the appointment. (#110) 5.14 Do you have a chronic condition? Chronic condition No Yes Diabetes High blood pressure Kidney issues Migraines Undiagnosed intestinal issue Don't know No answer Total Frequency 54 17 1 1 1 1 1 2 5 83 Percent 65.1 20.5 1.2 1.2 1.2 1.2 1.2 2.4 6.0 100.0 One quarter of respondents, 22 individuals, reported that they have a chronic condition. It is likely that many respondents are unaware whether or not they have a chronic condition because most do not get a regular physical exam. 30 5.15 Do you get treatment for chronic condition? Receive treatment for chronic condition No answer No Not yet Occasionally Frequency Take a vitamin Yes Total with chronic condition Percent 4 2 1 1 18.2 9.1 4.5 4.5 1 13 22 4.5 59.1 100.0 Of the 22 respondents who reported having a chronic condition (including one respondent who reported having an undiagnosed condition), thirteen receive treatment. Two respondents with chronic conditions do not receive treatment, and one has registered with a free clinic to seek treatment. One respondent stopped taking medication for her chronic condition as stated below: I took pills [for high blood pressure] but felt worse, so I stopped taking them. It's been five years. (Interviewee 141) At least one of the respondents self-medicates, as illustrated in an excerpt below: Q: Do you have a chronic condition? A: Yes. I have a little high cholesterol. Q: Do you get treatment for that condition? What type of treatment do you get? A: Yes, I take a vitamin I order from Canada on the internet. (Interviewee #33) Some respondents receive some type of treatment but do not seem to change their behavior to effectively manage their chronic conditions. For instance, respondents with hypertension and high cholesterol said they took medication but only one respondent reported changing her diet and exercising: At the Love of Jesus clinic they helped me lose weight. I had to change my diet and now I walk 30 minutes to an hour everyday. This has helped a lot. (Interviewee #19) Other respondents regularly take their medication but do not appear to have made other life style changes, such as exercise and diet. They told me that I have to walk everyday, but I don’t do it. They also talked to me about changing my diet. I can’t eat so much fatty foods. I am fat, but it is a lot of work to lose weight. So far I have lost 7 pounds. (Interviewee 29) ###### Q: Do you get treatment for that condition [high cholesterol]? A: Yes. I get pills that I need to take for everything. I am also supposed to change my diet. (Interviewee #50) 31 ###### Q: Do you have a chronic condition? A: Diabetes. Q: Do you get treatment for that condition? What type of treatment do you get? A: I check my sugar every three to six months. At home I take insulin and a pill. (Interviewee 110) 5.16 How often do you go to the doctor? How often do you go to the doctor? Frequency Percentage Regularly: Every 2 weeks Monthly Every 2 months Every 3 months Every 3 to 6 months Every 6 months Yearly Often b/c I am pregnant 24 2 4 2 6 3 2 3 2 28.9 2.4 4.8 2.4 7.2 3.6 2.4 3.6 2.4 Rarely: 5 or more years ago If doctor tells me to More than once Once Only during pregnancy Only if emergency Not often 24 3 1 2 5 1 6 6 28.9 3.6 1.2 2.4 6 1.2 7.2 7.2 Never: Never, couldn't get an appointment Never No b/c of no insurance As needed No answer Total 4 1 2 1 25 6 83 4.8 1.2 2.4 1.2 30.1 7.2 100.0 About 29 percent of respondents reported going to see a doctor regularly: from every two weeks to once a year. The same share of respondents go to see a doctor rarely: their answers ranged from “I only go if it’s an emergency” to “More than 5 years ago” to “I only went during pregnancy.” While respondents were not asked if they get a regular physical exam, several mentioned that they did: “When they give me an appointment. I have to come back in 8 weeks for the 32 gastritis. Otherwise my exam is every year.” (Interviewee #41) The paperwork required by clinics deters some patients from seeking treatment as reported by the following interviewee: “Before I was at Fan Free. But they were asking for a notarized letter. So I didn't get it notarized so I stopped going.” (Interviewee #143) Several respondents said that it took so long to be seen by a doctor (2 months or more), that by the time their appointment date approached, they were no longer experiencing symptoms. One interviewee’s story is typical: I went to CrossOver to get an appointment for my cough. I filled out the paperwork and then I was given an appointment almost 2 months later. By then my cough was gone so I didn’t go. I am not a patient there now. I have never seen a doctor there. #48) Quotations below demonstrate the variation in the frequency with which respondents utilize clinics/medical facilities: Q: How often do you go to the doctor (clinic)? A: When I need to. When I can’t take it anymore, I call them up and say “I can’t take it any more. I need an appointment.” Q: Would you go more often if you could? A: Yes. When Viola isn’t there to interpret for me, I do not go. I would like to be able to go all of the time when I need to. (Interviewee #4) ###### Q: How often do you go to the doctor (clinic)? A: I only went because I had a problem, now I will go back for the follow-up visit. Other than that, I don’t go. (Interviewee #7) ###### Q: How often do you go to the doctor (clinic)? A: Only when I have to. But when I was pregnant I went to the doctor here at CrossOver sometimes three times a month. I had a lot of problems during my pregnancy. Once the whole side of my body went numb. I also had a vaginal infection. I vomited a lot during my pregnancy too. Now I only go when I have to. (Interviewee #13) ###### Q: How often do you go to the doctor (clinic)? A: I go to the dentist about once a month. I have a lot of problems with my teeth. I have gone to the Care-A-Van for my teeth too, but they don’t have all of the equipment and things they need. At the Daily Planet they do. That is why I go there for my teeth. (Interviewee #40) 33 ###### It has been a year [since I saw a doctor]! I am not sick, I go when I am sick. (Interviewee #52) ###### I just see the dentist every six months. I am not fifty-sixty years old to be seeing the doctor, but I do get pap smears done. (Interviewee #109) ###### Q: Would you go to the doctor/clinic more often if you could? A: Yes, but it’s expensive and it’s a bureaucratic process. You have to apply for the help, wait for the visit and for them to accept you. You miss work. By that time you're not sick anymore. (Interviewee #123) ###### Q: How often do you go to the doctor (clinic)? A: The truth is I just come when I am sick, so not too often. I go to the Ob/Gyn every two years. To come to the Care-a-Van is to difficult. I have three kids I cannot leave them at home from 4AM. The Care-a-Van comes at 8:30AM. They take ten out of thirty, or take another ten in the afternoon. Respondents who rarely see a doctor (or not at all) reported they do not go because of lack of insurance: A: The last time I went was five years ago. Q: Why not? A: I didn't need to go. I have gone to an Ob/Gyn twice. Q: Would you go more often if you could? A: Yes, if I could. But I can’t without insurance. (#111) ###### Q: “How often do you go to the doctor (clinic)? A: When it hurts a lot enough to spend the money. There is no money. (Interviewee #138) 5.17 Are you happy with the care that you receive when you go to the doctor (clinic)? Patient satisfaction Yes No No answer Not sure Frequency 65 7 6 4 34 Percent 78.3 8.4 7.2 4.8 Mostly Total 1 83 1.2 100.0 Most interviewees, 78.3 percent, were happy with the care they received. Many were quite emphatic and emotional: Very happy. I have a really good doctor that speaks Spanish. They do really good exams, and make sure I have everything done that I need. If I need a blood test, I get a blood test. They do every thing. I have no problems speaking with the doctor and I feel comfortable to tell her everything. She knows my whole record and has made sure everything is under control. I don’t need to ask for things because they make sure I have everything. My doctor is a woman who has a lot of humility. She has a nice way of doing things. She is a good person. She treats everyone really well. This is why I keep going back to her. (Interviewee #3) ###### Yes. More than happy. More than happy because they have helped me so much. If it wasn’t for them I wouldn’t be here with you. I wouldn’t be able to be here to talk about this. For this reason. I am thankful. They do so much for me, and I can’t even pay them back. They have done so much for me and my family. Not only for me and my family, but for many families. (Interviewee #4) ###### Yes. At Chippenham they saved my life. I was in a coma for 2 weeks. (Interviewee #50) ###### Well, yes. They are the only people that help me. (Interviewee #51) Excerpts from interviews below demonstrate the respondents’ level of satisfaction with the care they received: Yes. They treat me really well. They speak my language and that makes me really happy. (Interviewee #11) ###### Yes. They treat people well here. I feel that they have really helped me out. I also was able to go to St. Mary’s where they have more equipment. If it wasn’t for them I wouldn’t have been able to go there for tests. I am not sure yet about CrossOver because I just started coming here for the medications they didn’t have at the Care-A-Van. (Interviewee #16) ###### Yes. They help me here. I don’t go to the Care-a-Van because they have very long 35 lines. Some people arrive at 6:00 am and wait until 2 to see someone. That is a very long wait. Here I get an appointment, and the most I wait is about an hour or hour and a half. (Interviewee #20) It should be noted though that when participants were interviewed at a clinic location, they may have been reluctant to say anything other than “yes” in response to the question “Are you happy with the care you receive?” Eight percent of study participants reported being unhappy with care received. For example, participant 112 said, “No, they told me what I needed but could not help me. They could not cover my expenses at the hospital.” Other participants unsatisfied with medical care they received said the following: Q: Are you happy with the care that you receive when you go to the doctor (clinic)? A: Not really. I have had to wait a long time, and they can’t help me here. Now I am waiting to talk to someone about an appointment at a hospital. I liked the care in Fairfax because they took good care of me. (Interviewee #23) ###### “I still have the problem. No one tells me what is going on. It affects my life. Everyone tells me nothing is going on. It bothers me. I went to a doctor close by but he didn't give me anything. The respondent added that he does not see doctors for that health problem any more because “I come out more confused.” (Interviewee # 128) ###### No. At the hospital they can’t take care of me. They told me to fill out an application when I went to MCV to get services, but I don’t have a social security number, so I didn’t qualify. Now the only option that I have is CrossOver. Here they are a lot of people that really don’t need service and they make others wait who really need to be here. (Interviewee #27) Some respondents were somewhat ambivalent about their experience at the clinics. One study participant stated, Q: Are you happy with the care that you receive when you go to the doctor (clinic)? A: I guess so, but there are a lot of things that they are lacking. First, if they have doctors that are available they should be able to see everyone. Second, they need more help for people who don’t speak English. It would be nice to use the translation services on the phone. This is better than a person to interpret because it is more private. (Interviewee #4) 36 5.18 Do you ever go to the emergency room? Gone to ED No Yes No answer Total Frequency 39 38 6 83 Percent 47.0 45.8 7.2 100.0 Almost half of the respondents have gone to Emergency Departments at least once. Some respondents go to EDs repeatedly: I have gone to Chippenham around 5 times for pain. I go because I don’t know if the pain is serious or not. I have had convulsions. I once was fully paralyzed. It was terrible. When I was paralyzed I began to vomit and almost died. I needed to go to the emergency room. (Interviewee 33) Another respondent, in response to “Where did you go to see the doctor?” responded “I go to Chippenham. I usually go to the emergency room there.” Similarly, a respondent with frequent throat infections said, “I have gone to the emergency room three times at Chippenham for throat infections. I can’t get an appointment at CrossOver quick enough.” (Interviewee #21) These responses suggest that some uninsured individuals use EDs as their primary provider of medical care. 5.19 Which hospital do you go to for emergency care? ED visited Chippenham MCV No answer Saint Francis Saint Mary's Henrico Doctors Johnson Willis Maryland Patient First Total* Frequency 20 7 3 3 3 2 1 1 1 41 Percent 48.8 17.1 7.3 7.3 7.3 4.9 2.4 2.4 2.4 100 *Some patients went to more than one ED, therefore the total is higher than 38 – the number of respondents who reported having gone for emergency care. Out of 38 respondents who reported going to EDs, almost half – 48.8 percent -- went to Chippenham, 17 percent went to MCV, and other respondents went to Saint Francis, Saint Mary’s, Henrico Doctors, Johnson Willis, and Patient First. 37 One patient reported going to two different EDs for the same problem: I went to Johnson Willis because I had pain in my bones and in my feet. This is from the lupus, but I didn’t know that and they didn’t know what I had. At Chippenham I had the same symptoms, and they didn’t figure out what I had either. I went to one and then the other because the first one didn’t help so I wanted to try a different place. (Interviewee #32) 5.20 Why do you go to that emergency room? Why did you go to that ED? Frequency Percent Near my home No answer Ambulance took me CrossOver referral Friend Care-a-van Goochland referral B/c another ER didn't help with pain B/c of unpaid bills elsewhere Cheaper than hospital* My doctors are there No answer Passed by it Thought I'd get financial aid I just thought of it Wait was shorter than elsewhere Went there before Total 9 6 3 3 3 2 2 1 23.7 15.8 7.9 7.9 7.9 5.3 5.3 2.6 1 1 1 1 1 1 1 1 1 38 2.6 2.6 2.6 2.6 2.6 2.6 2.6 2.6 2.6 100 *respondent went to Patient First because her friend told her it would be cheaper than going to ED. Twenty-three percent of respondents who reported having gone to emergency room decided where to go based on the hospital’s proximity to their residence. Interestingly, very few respondents – 3 – decided which emergency room to go to because of their social network (friends, family, church, etc.) This is in stark contrast with their decision on non-emergency care, where 58 percent of respondents turned to specific healthcare providers because their friends, family, and neighbors’ recommendation. One respondent went to MCV because he thought he could get financial assistance there: I was told that I could qualify for help there, and it is the closest to where I live and work. I filled out the application and talked to the social workers about the requirements for the services, but I didn’t meet the requirements. I don’t have a social security number. I also went there because I heard that they had more services, and better services. (Interviewee #27) 38 Another went to two different EDs because she had unpaid bills at one of them: After I went to MCV I went to Chippenham cause I didn’t want them to turn me away because they knew I didn’t pay my bills. I owe a lot of money. (Interviewee #34) 6 DISCUSSION OF FINDINGS An overwhelming majority of the study participants – 78 percent – reported to be happy with the quality of health care services they receive at free clinics, federally qualified health centers (“FQHC”), hospitals, and health departments. It is very clear from this study that free clinics and FQHCs are the only facilities where uninsured immigrant patients can turn for routine medical care and for managing chronic conditions. In the absence of free and low-cost clinics, these patients will most likely postpone necessary treatment and preventative care, which will undoubtedly result in higher levels of ER utilization. Specific obstacles that participants reported as impediments to their access to quality health care include: language barriers, financial barriers, administrative-bureaucratic, and transportation barriers. In general, participants utilized free clinics for a wide variety of general medical needs such as diabetes, hypertension, and cholesterol. Other participants utilized EDs for more acute or severe medical emergencies, or medical issues arising over the weekend when the clinics were closed. Also, many free clinics referred patients to specialists when the need arose, such as a gastroenterologist or gynecologist; hospitals for acute medical condition and surgeries; and health departments for HIV testing and immunizations. From the interviews, it appears that many of the participants did follow up with the referral for more specialized services. For example, a few participants reported that Goochland Free Clinic referred them to St. Mary’s Hospital for acute conditions. Likewise, participants utilizing CrossOver reported that CrossOver referred patients to Chippenham Hospital for more acute medical concerns. There also appears to be a noteworthy difference between how females and males utilize health care services. Among the participants in this study, a greater number of females than males utilized free clinics, emergency rooms, and local health departments. Some of the males who completed the interview reported that they were at the clinic or hospital because they were accompanying someone else. Some men did report that they utilized these services, but more so when it appeared to be an extremely grave situation (serous injury or acute chronic condition). 6.1 Language Barrier Many participants reported a positive experience at free clinics and hospitals providing in person Spanish speaking medical interpreters (“interpreters”). However, if there was no interpreter, then it was generally not a positive experience; and in some cases, not worth going at all, as many participants said. Some participants reported an increased amount 39 of frustration at hospitals, hospital clinics, and other free clinics that did not have regular interpreters. In those cases, participants reported using hand signals and gestures, but many times left frustrated with a lack of understanding of their medical condition and/or inability to accurately express their medical concerns. Some participants perceived a discriminatory attitude from health care service administrators who were not able to communicate effectively with the participants. Other participants had negative experiences with telephone interpreters (available at some hospitals), and preferred in person interpreters. From all the interviews, it appears that CrossOver Health Care Ministry (“CrossOver”) and Care-A-Van are the two free clinics that consistently have an in-person interpreter and/or Spanish speaking medical health care provider available. Thus, the popular free clinics among the Latino/Hispanic participants seemed to be CrossOver, Care-A-Van, and Goochland Free Clinic and Family Services (which employs a Spanish-speaking parti-time staff member). Most participants also reported a positive rapport with the inperson interpreter and/or Spanish speaking medical health care provider at these facilities. “Sometimes when the doctor speaks Spanish they only speak a little bit, so I don’t understand everything. When there is an interpreter it is much more clear and I understand better.” “If my doctor [who speaks Spanish] is not there, I would rather just come back. I think he is a good doctor, but because he doesn’t speak much Spanish … he can’t understand me.” “…now when I go, they explain everything to [Spanish speaking clinic staff member], and she explains it all to me. The doctors don’t speak Spanish, so she has to help…When I am sick and need to go to the clinic, and she is not there to interpret, I don’t go because it is not worth it. They don’t even understand what I am saying, and I won’t understand them….” “Sometimes they use really big medical words in English, and I don’t understand. It really weighs on me when I can’t understand.” “Every time I go to the hospital all of the paperwork is in English, and I don’t know how to fill it out. I ask for help, but they don’t know how to help.” “Sometimes [Spanish speaking staff member] is there and she interprets for us…If she is not there, I just try. Now my daughter speaks English so she can help me. But before when she didn’t speak English I really didn’t understand much.” “The doctors at the free clinic don’t speak Spanish. This is our problem…The doctors do explain everything, but always in English. Sometimes I leave the clinic with many doubts….I sometimes can follow along, but then don’t understand a word. ‘what could it be?’ but I don’t know, so I have many doubts. It is really difficult for me. I know that there are others who don’t understand anything. It must be really hard for them.” “The doctor I go to for my kidney infection doesn’t speak Spanish. I use an interpreter …If I think an interpreter isn’t going to be there, I try to bring someone who can do it. Can you imagine? Just me and the doctor and we don’t speak each other’s languages? I would never understand!” 40 “The receptionist looked at me and yelled- ‘What? You don’t speak English?’ She was very rude with me but I didn’t know what to do…I called my boyfriend ….He explained why I was there and everything, but that was a terrible experience.” “Many people are intimidated to speak English, and then people say, ‘you are in the United States, you need to learn English’ It is not that easy. They need to have the resources to hire people who are patient and provide the best services to those who don’t speak English…At St. Mary’s they didn’t speak Spanish, but I brought a friend to interpret. At Fan Free they have a translator on the telephone…The doctors at [Henrico Doctors] spoke Spanish, and that is why I went to them. At CrossOver people speak Spanish.” “I like the interpreters that are in person better than over the phone. Sometimes when I have trouble hearing on the phone they are short and don’t want to repeat what they said. It is also hard when they deliver very heavy news. When that happens it makes you think. Am I going to die? What does this mean? It takes a little while to think about it, and by then you haven’t heard what the interpreter on the phone has said.” “I prefer in person rather than on the phone because you can talk face to face with them.” However, in-person interpretation has its drawbacks. One of the clinics relies exclusively on “Viola,” a part-time staff member, for interpretation. She also happens to know practically everyone in the small Latino community, so for some clinic patients this means lack of privacy, which some interviewees lamented. It also appears that due to a language barrier and/or low level of education, some respondents do not know their diagnosis, only the original symptoms. One respondent, for instance, described “They had to take this thing of out my head. They had to open my head up. It was big, the size of a lemon.” 6.2 Financial Barrier In general, participants preferred going to free clinics over hospitals because of free health care services at the free clinics. In acute cases requiring emergency services, specialists or surgeries at hospitals, participants reported utilizing VCU/MCV, Chippenham, St. Mary’s, St. Francis, and Henrico Doctors Hospital. For some of the patients, the hospital bills seemed to be almost worse than the injury. Some participants expressed frustration at large hospital bills that they are unable to afford. A few participants reported using home remedies or herbal medications and vitamins ordered from the internet because it is less costly than obtaining medical services at hospitals. It is likely that many more individuals self-medicate with questionable substances because of the high cost of real medication and a perception in the Hispanic/Latino community that vitamins are a cure-all and people take them as an alternative remedy for conditions that require actual medication. Excerpts from the interviews below illustrate the respondents’ frustration with large 41 medical bills they receive: 6.3 “…I went to Lab Corps for tests that the doctor sent me to. They didn’t speak Spanish there either, and told me if I couldn’t pay they couldn’t do the tests. They were very rude to me…I had a clot in my lung, and they couldn’t do the test I needed. I showed them my Access Now card, and they laughed at me. They laughed as if I was stupid. I am very sick. The cancer I have is very aggressive…” “At first I saw a doctor at MCV…I saw him for about 8 months or so, but then he said he couldn't see me anymore because I couldn’t pay. He abandoned me. Now I go to CrossOver and I see a doctor at Chippenham.” “I took my son for a nodule in his nose, which they removed at Chippenham Hospital. I was charged $12,000…I got a letter. I think what it was financial assistance of something but it seemed as if it was only for people with legal status, so I didn’t fill it out. I went to the hospital and talked to the social worker…the worker filled out the form for me. She said I would have to pay at least $2,000, which I paid installments of $10 a month.” “After I went to MCV I went to Chippenham cause I didn’t want them to turn me away because they knew I didn’t pay my bills. I owe a lot of money.” “For the first time I was at the hospital I paid some and got some help. If I don’t die from the sickness, I die from the bill.” “I need surgery for a ligament but I have not done it due to what they charge.” Question: How often do you go to the doctor? “When it hurts a lot enough to spend the money. There is no money.” Barriers Due to Administrative Bureaucracy and Immigration Status Some participants expressed difficulty in filling out forms at some hospitals and clinics. For example, a few participants reported difficulty in filling out the forms only available in English, notarizing signatures, and the inability to provide a social security number as requested. In one case, a participant had English-speaking family members accompany her to fill out forms in English. In another case, a participant left one clinic and went to another because the second location required less paperwork. A few participants complained about the length of time involved in applying for services and the length of time required to get an appointment. Others complained of the long lines at Care-A-Van and inability to obtain their services if they do not arrive very early in the morning. “At the hospital…They told me to fill out an application when I went to MCV to get services, but I don’t have a social security number, so I didn’t qualify.” Question: would you go more often if you could? A: Yes, but it’s expensive and it’s a bureaucratic process. You have to apply for the help, wait for the visit and for them to accept you. Miss work. By that time you’re not sick anymore…In Maryland their cities are much faster not like here.” “Before I was at Fan Free. But they were asking for a notarized letter. So I didn’t get it notarized so I stopped going.” 42 One respondent reported that she is no longer able to fill a prescription to manage chronic kidney disease because the subsidized pharmacy found out about her undocumented immigration status. The social worker normally fills out a form she turns into the pharmacy and I pick up the medicine at DaVita Dialysis. But now the social worker told me I could no longer get the medicine because the pharmacy found out about my immigrant status. (Interviewee #104) Staff at some clinics also reported that some volunteer specialists to whom they typically refer their patients refuse to treat undocumented immigrants. 6.4 Transportation Barrier The participants in this study were able to get transportation considering the fact that many were interviewed at the clinics or Care-a-Van sites. However, several participants mentioned that they had to ask friends or family members or pay others for rides to clinics. If they could not find a ride, they’d miss their appointments. Several respondents talked about the difficulties they experience getting to their appointments: My friend told me where it was and I went. Sometimes though I can’t get to my appointments. Poor people sometimes can’t get to the clinic because they can’t drive. Or they have to work. And they don’t have insurance. When I need to go to the clinic I ask someone for a ride, but if I can’t find a ride I walk. (Interviewee #3) ###### When I need to go to the clinic I pay for a ride. Sometimes it is cheap, sometimes it is expensive. It depends on who is driving. (Interviewee #7) ###### Another issue is transportation. There are places where they are services, but no one can get there. Lack of reliable transportation probably also explains why some Latino patients miss their appointments, as the clinic staff reported in some of our interviews. There may also be a category of Latino/Hispanic individuals (not captured in this study) who may need medical services, but have transportation barriers impeding their ability to access clinics or hospitals. 7 CONCLUSION This report summarizes the results of 101 interviews of uninsured Hispanic/Latino immigrants who use healthcare services from safety-net providers in the Greater 43 Richmond area. The findings indicate that the majority of immigrants primarily utilize only a handful of safety-net facilities for several reasons. Specifically, immigrants go to facilities that employ Spanish-speaking providers or interpreters, provide care that is free, limit the amount of paperwork or bureaucratic red tape, and are within reasonable proximity of their residences and communities. Immigrants’ needs thus constrain the nature and type of facility that they can and will use. As this survey shows, many immigrants rightly or wrongly perceive that certain safety-net providers in the Greater Richmond area will not care for them. For many immigrants, the hospital emergency room is their primary source of care; many others, however, view the hospital emergency room as their back-up. Based on the findings in this report, it appears that the Bon Secours Care-A-Van provides a good substitute for the emergency room and that immigrants frequently use it. Unfortunately, the Care-A-Van cannot satisfy all immigrants’ needs. The lines at Care-A-Van locations form early and are quite long. Many immigrants know that they will not be able to obtain care because of their place in line. As the literature in this area consistently shows, the healthcare safety net is fragile. Free clinics, in particular, depend upon community support, philanthropic support, and providers (doctors, nurse practitioners, nurses, dentists, and many others) who volunteer their time and expertise. Substantial changes to the environment in which safety-net facilities operate can jeopardize the limited resources available to uninsured immigrant communities. The Patient Protection and Affordable Care Act (ACA) is a prominent example. While the implementation of the ACA substantially will increase the number of the U.S. residents who have health insurance, more than 11 million undocumented immigrants will not be included under the new laws’ provisions. The effect that the ACA eventually will have on the healthcare safety net in Richmond and elsewhere is potentially problematic and largely uncertain. There are signs, for instance, that the new law may hamper immigrants’ access to safety-net providers in the near future: first, by barring them from purchasing health insurance through state health insurance exchanges; second, by preventing them from gaining access to insurance through their employers (including those with existing employer-based insurance); and third, by extending Medicaid coverage to U.S. citizens but not to undocumented immigrants. Should a sizeable portion of individuals currently uninsured obtain insurance coverage in 2014, thus providing additional federal funding to qualified health centers (FQHCs) and ultimately changing the insurance status of many free-clinic patients, free clinics that presently serve the immigrant population may choose to pursue FQHC status. According to ECHO (Empowering Church Healthcare Outreach): “One of the major impacts on free and charitable clinics is the increase in Medicaid eligibility to 133% of the poverty level. A large number of patients seen at a clinic will now be eligible for coverage. Clinics will need to determine how this will impact their target population and what changes need to be made.” Because those clinics that convert to FQHCs will have to comply with the provisions of 44 the ACA and other federal laws regarding disclosure of citizenship status, the presumed effect will be to constrain immigrants’ healthcare options even further than currently exists. As this survey indicates, facilities that provide services to the Hispanic/Latino immigrant community already are few and far between. Should CrossOver convert to a FQHC, for example, the loss to the immigrant community would be significant. 45