Spring - Arthritis Victoria

Transcription

Spring - Arthritis Victoria
Update
Spring 2012
The official publication of
Arthritis Victoria and
Osteoporosis Victoria
ISSN 1446-6570
PRINTPOST 330747/00059
‘Living Longer’, but are you ‘Living Better’?
The changing picture of ‘older Australians’
Did you know that by the year 2050, the number of Australians
aged over 65 is expected to double from 13.5% of the
population to approximately 22.7%*? Did you also know
that the number of Australians aged over 85 is expected
to quadruple from 1.8% of the population to approximately
5.1%*? The Australian Government recently announced ‘Living
Longer. Living Better’ - a set of major reforms aimed at helping
our aged care system prepare for these increases.
The ‘Living Longer. Living Better’ reforms aim to reinforce two
key messages. First that older Australians are an invaluable
part of the community, and second, that with the right support,
ageing can be a positive, fulfilling and enjoyable period of
life. In other words, it’s not just about living longer, it’s about
ensuring quality of life.
What does ‘Living Better’ mean?
We know that many Australians will be ‘Living Longer’,
but the Minister for Ageing Mark Butler has spent the past
12 months asking older Australians what ‘Living Better’
means to them. Older Australians have explained that their
expectations are different from their parents’ generation. They
particularly emphasised a desire to stay in their homes and
local communities for as long as possible supported by flexible
services, which can meet their changing needs. They also
want easier ways to access information about what help is
available, and more control over choices affecting their health.
Starting points
Arthritis Victoria has listened to similar themes from people
who have arthritis (including osteoporosis and other
musculoskeletal conditions) via our ‘consumer needs survey’,
as well as via direct conversations with you over the last
few months. We understand that accessing appropriate
information and support can be particularly challenging for
people with arthritis, osteoporosis and other musculoskeletal
conditions, particularly as they are often managing pain and
other chronic symptoms.
Arthritis Victoria has developed a range of services and
programs specifically designed for people with arthritis,
osteoporosis and other musculoskeletal conditions, which
can help you at each stage of life. Whether you are working
full-time or are retired, we encourage you to think about what
‘Living Better’ means to you and to take action today!
Some starting points might include:
•Contact the Rheumatology Help Line
The Arthritis Victoria Rheumatology Help Line is a free
service that operates between 10am and 3pm weekdays
and can be accessed by calling 1800 263 265 or by emailing
[email protected]. Calls are taken by registered nurses,
who can provide immediate, expert health advice and assist
you in navigating the complex health, disability and social
services systems.
•Visit the Arthritis Map
The Arthritis Map www.arthritismap.com.au is a practical
online tool which helps you locate a range of appropriate
services relevant to your condition. The map contains useful
information, including ‘Waves’ warm water exercise classes,
Tai Chi for Arthritis, Nordic walking groups, peer support
groups and rheumatology clinics.
Continued on page 4
Active living, informed living, living well...for musculoskeletal health
Spring 2012
In this issue
2
Acting on your feedback
4
From the doctor’s desk
6
Advocating for better public transport access
7
Take our new website for a spin
8
Widening ‘our web’
11
Let the Arthritis Map…‘do the walking’!
12-13
My Story – Allan Stewart
14
Ask the Rheumatology Help Line
17
Coming up in October – December 2012
20
Volunteer Celebration
23
Christmas Card Order Form
24
4
8
12
Arthritis Victoria
Directors
263 Kooyong Road Elsternwick 3185
PO Box 130 Caulfield South 3162
Phone:
03 8531 8000
Toll free: 1800 011 041
Fax:
03 9530 0228
Email:
[email protected]
Website:www.arthritisvic.org.au
President: Vice President:
Hon Treasurer: Judge Philip Misso
Noel Smith
Jim Dixon
Opportunity Shop
Naomi Creek
Stephen Fitzpatrick
CEO:
Update editor:
Janine Fisher
Dr Ian Relf
Linda Martin
Gabriele Massey
© Copyright Arthritis Victoria 2012
Advertising policy statement
All agencies or organisations must seek
written permission from Arthritis Victoria
before reproducing any material. The
views and opinions expressed in Update
are not necessarily those endorsed by
Arthritis Victoria.
Advertisements for products and
services featured in Update are included
for information purposes only. Arthritis
Victoria does not recommend, endorse,
check or approve any products. Arthritis
Victoria recommends that you speak with
your doctor or health professional before
using any advertised products or services.
1428 High Street Malvern
Phone 03 9509 6263
Arthritis Foundation of Victoria
ABN 26 811 336 442
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Active living, informed living, living well...for musculoskeletal health
7
From the desk of the CEO
As we enthusiastically move into the warmer
months of Spring, I am very pleased to share
some of what’s happening at Arthritis Victoria.
It’s a great time of year to participate in our many
activities and events.
The Arthritis Victoria community certainly knows that the best quality of life comes from an active and generous approach to
life. This was amply demonstrated recently when I sadly attended a funeral for one of our treasured members. Rae Johnson
led the Cranbourne Arthritis Support Group for nearly 30 years. Rae and her tireless and devoted team have rallied people
with musculoskeletal conditions to get active and support each other for many years. Rae also spread her influence across
the whole community and gained the support of her local Council. Rae has influenced generations of people to be proactive
contributors, and we will miss her.
Peer Support Groups are critical to people with musculoskeletal conditions. Support Groups require strong leadership
and commitment, drawing upon the skills of members. Our recent ‘Leader Lunch’ gave these Arthritis Victoria ‘stars’ an
opportunity to share their experiences and learn from each other. Good connections between people with musculoskeletal
conditions, health, transport and disability service providers are what make a difference to quality of life.
We recently helped a number of Peer Support Groups write applications for the Federal Government Volunteer Grants 2012
which recognises the valuable work of Australia’s volunteers. Fingers crossed that they are all successful.
We are very pleased to have received some Victorian government funding for Arthritis Victoria to develop a training program
for Home and Community Care (HACC) Assessment Workers. We are thrilled to have a chance to teach these health
professionals about musculoskeletal conditions. We have also run a Webinar on chronic pain management for health
professionals, which received 58 registrations – people are listening to what we have to say. If you know someone with
a musculoskeletal condition or who has trouble accessing a HACC or Disability service – make sure you log this on our
Advocacy Register and ring our Help Lines for advice.
Arthritis Victoria’s staff are taking an active role in Health Professional forums and training. We look forward to increasing this training
and our webinars. Geraldine McDonald, General Manager Policy, Strategy and Partnerships, recently presented our Arthritis Map to
the HISA (Health Informatics Society of Australia) Conference and the Arthritis Map received the Don Walker Award for Access.
We hope you enjoy our new website – you told us what you wanted and it is now available for you to explore.
Linda Martin
Chief Executive Officer
Update Spring 2012
3
Acting on your feedback
In our last issue of Update magazine we asked you to tell us
what you need from our services. And tell us you did! We got
an amazing 1000 responses. These stories will be invaluable
in helping us plan and advocate for all Victorians with arthritis,
osteoporosis or another musculoskeletal condition.
We have now finished collecting survey responses and have
started analysing the data. We intend to have the results
available by the end of the year, so keep an eye on our
website for updates.
The next step will be the development of our 2013-2015
Policy Platform. The Policy Platform is a document that we
develop every two years to highlight our advocacy priorities.
Our last Policy Platform was also developed following a
consumer survey and identified issues such as better access
to health and disability services, and increased workforce
participation as two major advocacy goals. The next Policy
Platform will be an important tool to help us lobby and
advocate for more inclusive government planning and policy
development.
Another important tool in helping us better engage with our
consumers is the Arthritis Victoria Consumer and Community
Engagement Strategy. Arthritis Victoria has always been
committed to working with our consumers and has
traditionally carried out consumer engagement in a number
of ways, from meeting with support groups, to consumer
conferences and to regional forums. The Consumer and
Community Engagement Strategy will make sure we are
listening and have a continuing dialogue with you the
consumer to ensure you get the most out of our services.
Everything we do needs your input.
If you’d like to read more about the Strategy, please see the
Policy section of our website
www.arthritisvic.org.au
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‘Living Longer’, but are you ‘Living Better’? (Continued)
•Explore the Arthritis Victoria website
The Arthritis Victoria website www.arthritisvic.org.au
provides a central point of information about the support and
services available for people with arthritis, osteoporosis and
other musculoskeletal conditions (including downloadable
print resources).
•Contact the Aged Care Information Line
The National Aged Care Information Line (1800 200 422)
provides comprehensive information about the Australian
aged care system and is a helpful starting point to find out
what services or supports might be relevant for you. Similar
information is also available in written format via the website
www.agedcareaustralia.gov.au
4
Keeping up to date
If you would like further information on Minister Butler’s
‘Conversations on Ageing’ meetings or the ‘Living Longer.
Living Better’ reforms, please visit the COTA Australia
website (go to www.cota.org.au then click on the ‘Achieving
Change’ link and choose ‘Current Major Activities’). Additional
information about the National Aged Care Reforms is also
available from www.yourhealth.gov.au
* Data Source: Department of Treasury 2010, Intergenerational
Report 2010, Commonwealth of Australia, Canberra.
Active living, informed living, living well...for musculoskeletal health
Tribute to “a real woman of substance”
One of our longest serving supporters
and President of the Cranbourne
Arthritis Support Group sadly passed
away in July at the age of eighty four.
Rae Johnson was a tireless advocate
for Arthritis Victoria and for all people
with musculoskeletal conditions,
and has left a lasting legacy in her
community.
Centenary medal, ‘Fit for Life’ Victorian
Senior Citizen, just to name a few.
Rae made a huge difference to the
lives of those around her, and was
passionate about her local community.
As an Arthritis Victoria warm water
exercise leader she was responsible for
having a hydrotherapy pool installed at
“Rae was absolutely inspirational,” says
her friend of over 50 years, Naree Ide.
“She was a born leader and she just
cared about people. She was always
helping someone - picking them up
from hospital, making cups of tea,
helping and supporting them in one way
or another.”
“Even at her service on 24 July, she
and her family requested donations to
Arthritis Victoria instead of flowers - it
was just the kind of thing she would do”
said Naree.
Not only was she named Arthritis
Victoria’s Grandparent of the Year for
raising funds for Camp Limber Up,
she also received many awards for
her community work. An Australian
a local aquatic centre, and last year the
City of Casey named the pool the ‘Rae
Johnson Warm Water Pool’ - what an
honor.
“She made up her mind a long time ago
that she was never going to grow old,
sit in a corner and feel sorry for herself that wasn’t for her.”
“She just knew how to get the best of
everyone - she pushed me to do things
I never thought I could do, and she had
a love of life," says Naree.
Articles have appeared in the local
newspapers about her life and her
tireless efforts to improve services
and facilities in the local area, which
will continue to benefit people for
decades to come. Local Councillor,
Amanda Stapleton, was quoted in the
local paper as saying she was ‘a real
woman of substance’, which Naree felt
summed her up perfectly.
Rae is survived by her husband, two
children and her grandchildren. She
will be sadly missed, but her valuable
contribution to her community lives on.
Indulge at Peninsula Hot Springs with 30% off!
… and soothe away those winter chills! As a member of
Arthritis Victoria you are entitled to a 30% discount off the
entry fee to the Peninsula Hot Springs public bathing area.
Just one hour’s drive from Melbourne the bath house
boasts a:
•cave pool
•reflexology walk
•Turkish steam bath
•sauna
•cold plunge pools
•family pools
•massaging thermal
mineral showers
•evening star viewing
pools
So why not make a day of it and experience the many
benefits of the Hot Springs?
The 30% discount offer is valid on presentation of your
Arthritis Victoria membership details (which you will find
on your membership payment receipt) and is available at
off-peak times on Tuesdays, Wednesdays and Thursdays
(excluding public and school holidays).
If you’d like more information on the Peninsula Hot Springs,
call on 5950 8777 or visit www.peninsulahotsprings.com
Remember to take your Arthritis Victoria membership
identification!
Update Spring 2012
5
From the doctor’s desk
Times are always “a changing” but it’s easy to feel as
though the pace of change in life now is faster than ever.
For young people, the pace of technological change is a part
of everyday life, but for older Australians coping with changes
in the way everyday things are done can be more difficult.
Contemporary medicine is also a technologically based
industry, in the clinic and the hospital, as well as in research
laboratories and pharmaceutical companies. As a result, a visit
to the doctor today looks and feels different to how it used to,
and the treatments offered are also changing fast. This can
be confronting for those of us who remember, ‘how it used to
be’.
In arthritis, a lot of big changes have happened and will
continue to happen. First, patients with the most common
inflammatory arthritis diseases, like rheumatoid arthritis, have
benefited from a range of new medicines. Now, some patients
are treated with drugs unimaginable 20 years ago, and even
the use of these drugs involves automatic pen-injectors, webbased information centres, and so on.
It is likely that these technology-sourced medicines will
increase in use in the coming years, so doctors have a duty
to ensure that they are communicating effectively to all their
patients. But there are also things that you can do as a patient
to ensure you are maximising your own understanding of any
illnesses you may be living with.
Many younger patients attend the doctor having already
‘Googled’ their symptoms on the internet, and respond to
advice about a diagnosis or treatment recommendation with
information of their own. Older patients who haven’t grown
up with these technologies may be missing out on sources
of information that other
patients take for granted.
While it can seem daunting,
the very best technology
now makes access to
information easier, not
harder. Children as young as
3 can work out how to use a
device like an iPad because
it is designed to be userfriendly, not intimidating, and
I think many older patients
can embrace these tools to
empower them in managing Professor Eric Morand their own health. While there PHD FRACP MBBS (HONS)
is plenty of misinformation out
there on the world-wide-web, reputable sources of excellent
health information are easily available, so long as you know
where to look. Websites like that of Arthritis Victoria is just
one example. After all, times are not going to be “a changing”
back, so we might as well go forward together.
Professor Eric Morand - PHD FRACP MBBS (HONS)
Head, Southern Clinical School
Monash University Faculty of Medicine, Nursing & Health Sciences
If you have been recently diagnosed with arthritis,
osteoporosis or another musculoskeletal condition or would
like information on what Arthritis Victoria can do for you,
please call our free Telephone Information Service on
03 8531 8000 or 1800 011 041 or call our
Rheumatology Help Line on 1800 263 265.
Great online resources
Ageing well: Jean Hailes for Women’s Health
www.ageingwell.org.au
This is a guide to living a longer and healthier life. It’s never too
late to improve your physical and emotional wellbeing, or to
take control of your eating habits and get active. Ageing well
also provides ‘My health tools’, which includes information
about health checks, a weekly activity diary and information
about medical research.
COTA Victoria
www.cotavic.org.au
COTA is the primary organisation representing the interests
of older Victorians. This site provides information about
upcoming seminars and workshops, senior’s rights, advocacy
work and more.
National Institute on Aging - US Department of Health &
Human Services
www.nia.nih.gov
This is a great site with lots of information related to ageing,
including news, current research, and information on specific
health conditions.
Healthy Aging - Centers for Disease Control and Prevention
(USA)
www.cdc.gov/aging
This American Government site provides useful information
and tools for health ageing.
Seniors Online Victoria - Victorian Government
www.seniorsonline.vic.gov.au
An online community filled with useful information for older
people in Victoria, this site has information on the Seniors
Card, festivals, information on healthy and active ageing, and
services and resources for older Victorians.
6
Active living, informed living, living well...for musculoskeletal health
Advocating for better public transport access
What is the Public Transport
Access Committee?
The Public Transport Access
Committee (PTAC) has been formed
by the Victorian Minister for Transport,
Terry Mulder, to provide advice to
government on issues involving equality
of access to public transport for people
with disability issues.
Who is on the Committee?
The membership is made up of a
mixture of people from a diverse range
of disability sectors and includes the
Vice President of Arthritis Victoria,
Noel Smith, who has been appointed
interim chairman of PTAC until a full
appointment is made by the Minister for
Transport. Previously Noel represented
Arthritis Victoria on the committee.
Nominations for membership were
advertised seeking individual members,
not organisational members.
What does PTAC do?
PTAC examines barriers encountered
by people with disabilities and mobility
difficulties when accessing public
transport.
The Committee has the opportunity to
affect the planning of future transport
infrastructure, and to advocate for
equipment that is fully accessible. It
does this by providing relevant strategic
advice to the Minister so that it is
included in the future decision making
of all forms of public transport.
community. The people that Arthritis
Victoria represent make up one of the
largest groups of people with mobility
difficulties who use and depend on
fair access to public transport and
transport infrastructure, which is why
we have been represented on the
Committee over the past 10 years.
The Committee is a wonderful example
of the influence that consumers
can have over current and future
issues affecting the entire disability
What has the PTAC achieved?
Over the decade that Noel Smith and
Arthritis Victoria has been involved
in PTAC, there have been many
improvements made to public transport
access.
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Arthritis Victoria was a prime mover
in the incorporation of distance
information being added to directional
signage, which can be seen throughout
the public transport system with most
directional signage now inclusive of
distance to destination. For example,
signage directing people to accessible
entrances accompanied by a distance
indicator (600 metres to Elevator).
Noel Smith was sponsored by the
Department of Transport and the
Minister for Transport to present a
paper on this issue at an international
conference in Hong Kong in 2010. This
paper also encouraged the conference
secretariat to include consumer
representation as an integral part
of future conferences, and the next
conference in Berlin in 2013 will have
consumer issues as a full topic for the
conference.
If you have an issue with transport
accessibility give one of our Advocacy
team members a call on 03 8531 8000
or 1800 011 041 or email
[email protected]
Update Spring 2012
7
Take our new
website for a spin
www.arthritisvic.org.au
8
Members, consumers, rheumatologists,
staff and volunteers have combined
their thoughts and experiences to help
us build a completely new website – a
website that’s all about you.
research at Arthritis Victoria,
we have the latest statistics,
as well as information on how
you can get involved in other
research projects.
By clicking on the drop-down box in the
centre of homepage you can access
information about musculoskeletal
conditions and the ways you can
manage your condition.
We also have a featured items
section where we will promote
new courses, products, news
stories, or anything we want to share
with you.
You can also access information about
your condition by clicking on the
Conditions & Symptoms tab at the top.
Beside this tab is one for Courses &
Events. You can see all of the events
that are coming up, as well as the
important stuff like cost, location and
times. And now you can book your
place online!
At the bottom of every webpage is
a grey footer, where you can access
information about Arthritis Victoria, our
programs and services, information
on how to visit us, information in
languages other than English, a form to
complete if you would like to send us
some feedback or ask a question, or
subscribe to our online newsletter.
The final tab at the top is Research.
When we ran our focus groups,
research came up again and again as
something people wanted to see on our
site. As well as information on current
You may also notice that some words
on the pages will appear in blue and are
underlined. By rolling your mouse over
these words, you will see a definition
appear in a small box.
On all pages there is a panel to enable
you to
•access the Arthritis Map
•become a member
•contact the library
•access the Telephone Information
Service and Rheumatology Help Line,
as well as links to other useful sites.
Above all, we hope that the new site
reflects the needs of our community
and we will be continually working to
improve it. So let us know what you
think. We value your input.
Active living, informed living, living well...for musculoskeletal health
Policy
Our say on the Victorian State Disability Plan
Many of you may have heard about a National Disability
Insurance Scheme (NDIS) in the media recently. In the May
Federal budget the Commonwealth Government committed
$1billion (over four years) to the first stage of an NDIS. The
initial rollout has been scheduled to commence from July
2013 (for the latest information, visit www.ndis.gov.au). In
the meantime, Arthritis Victoria is pleased that the Victorian
Government has been thinking about other, more immediate,
disability reforms for our state. Improvements to the state
disability system could mean that you are able to access
services more easily or that you might be eligible for more
financial support.
In June, the Department of Human Services released a
Draft Victorian State Disability Plan 2013-16 (copies of
the Plan and latest information are available from
www.dhs.vic.gov.au/statedisabilityplan). The Plan outlines
a four year vision to create “an inclusive Victorian society
that enables people with a disability, their families and
carers to fulfil their potential as equal citizens”. Six principles
were selected for the plan, including ‘fairness’, ‘certainty’,
‘sustainability’, ‘simplicity’, ‘choice’ and ‘self determination’.
Arthritis Victoria recently attended a consultation on the
Plan and submitted a written response, based on the
common things people with arthritis, osteoporosis and other
musculoskeletal conditions talk to us about. We thought
the Plan was good overall, but we had feedback on some
important areas that we felt needed more consideration.
The main issue we focused on was expanding the new
definition of ‘disability’ across all government departments,
so people with ‘episodic disability’ don’t miss out. We are
concerned that several other government departments still
use older definitions of ‘disability’, which are often based
on confusing and inconsistent lists about what is (or is not)
considered a ‘disability’.
Arthritis Victoria is pleased with the new ‘disability’
definition put forward by the Plan “a person who has an
impairment that affects their physical, mental, intellectual
or sensory function; who may encounter barriers to using
the mainstream system in the same way as everyone else”.
We like the fact that the new definition focuses more on the
person (not which conditions they have) and thinks about
how well they can function when doing their day-to-day
activities.
Arthritis Victoria realises that many people with arthritis,
osteoporosis and other musculoskeletal conditions have
periods where they feel quite well, then other periods when
their pain or other symptoms are worse (i.e. ‘episodes’ of
increased disability). It can be difficult to continue working
or to stay involved in social activities during these periods,
and access to extra help could make a big difference. We
encouraged the Victorian Government to embrace the new
definition of disability across the whole of government,
so that people experiencing an episode of ‘disability’ can
access the right supports and services at the right time and
keep active.
To read our submission, a full copy is available for download
on our website (go to www.arthritisvic.org.au and search
for ‘state disability plan submission’). We would love to
hear your thoughts and comments so that we can keep
representing you at the various policy forums coming up.
Call us on 03 8531 8000 or 1800 011 041 to speak to one
of our Advocacy team members.
Research
Reducing falls through exercise
Could taking regular Pilates classes reduce falls as people
age? A new Monash University research project, which will
work with 80 community-dwelling participants, aims to find
out.
Previous research has shown 25% of people in their 60’s
and 40% in their 70’s, suffer at least one fall each year. The
good news is that frequent challenging exercise can reduce
the rate of falling by up to 42%.
The Monash research project aims to determine the impact
of a physiotherapist-delivered Pilates program on falls,
standing balance and bone mineral density (BMD) in older
people identified as being at high risk of falls.
The university is seeking participants for the study with low
bone mineral density. All participants will be required to
attend three physical assessments over a six month period
at The Alfred Centre. Some participants will also be required
to have a DEXA (Dual Energy X-ray Absorptiometry) scan.
We will be following the study and reporting back on the
findings when they are released. If you are interested in
taking part in the study, please contact Monash directly on
03 9903 0999.
Update Spring 2012
9
Getting to know our staff
Left to right: Christine Pappon and Genevieve Nolan
Genevieve Nolan, Programs Manager, Arthritis Victoria
Christine Pappon, Programs Manager, Arthritis Victoria
Genevieve has been in the thick of community issues and
education throughout her career. She's been a primary
school teacher, a policy officer with BreastScreen Victoria,
and a manager with the Department of Health. Since starting
with Arthritis Victoria one year ago, she has worked to
enhance our training programs and increase the information
and support provided to health professionals and consumers.
Here, she tells us why she feels chronic disease and pain
need to be higher on everyone's agenda.
Chris has had many roles in the health and human service
fields throughout her career. She started her career as a
nurse which then led to many years working as a podiatrist,
followed by post graduate qualifications in professional
education and training. Her vast experience in the community
sector has included working for Community Health and the
Housing and Homelessness sectors. This has given Chris
firsthand experience of how musculoskeletal conditions can
impact people's lives. She has met many of our volunteers
since joining us late last year and is helping to continue to
improve our peer support programs.
The prevalence of musculoskeletal conditions in our
community is a big issue. About one-third of the population
suffers from them, yet the level of disability and pain and the
impact on people's quality of life isn't always well understood.
The more we increase the knowledge that health
professionals have of what people face when they have these
conditions, the better.
In my role I've noticed how the community seems to accept
arthritis as a natural part of ageing, when it doesn't have to
be. We shouldn't just accept the idea that, "I'm getting old
and I have to put up with pain".
One of the challenges we have in educating health
professionals and the community about musculoskeletal
conditions is that they are often accompanied by other
chronic health issues. When a person goes to a community
health service or doctor, they may not just have one health
problem (high blood pressure etc) they are often suffering
from multiple chronic illnesses. So, we have to acknowledge
that this is a challenge for health professionals. Therefore,
part of my role is to improve the working relationships with
other chronic disease organisations so that we are not just
all pushing our own barrows. We need to establish improved
working relationships with these other organisations so
we can have some combined chronic disease approaches
via better partnerships and collaboration. We are a small
organisation so we need to be strategic in the way that we
undertake programs.
In my ideal future, I'd like to see health professionals and
service providers with the necessary skills and knowledge
to better meet the needs of people with musculoskeletal
conditions and chronic disease more broadly. I believe
this will be achieved by chronic disease organisations
collaborating more so that we get the best overall approach
to chronic disease and pain management.
10
In December 2011 I started work with Arthritis Victoria. I
oversee the management of our 65 peer support programs
across the state, which have well over 2000 members. I also
manage the volunteer programs including the Telephone
Information Service and Community Speakers Program, as
well as our library and print resources.
Our Rheumatology Help Line, which is staffed by registered
nurses, is a fantastic resource for people – especially those
who are isolated by distance or an inability to travel. I'm
also involved in our health inequalities program, which was
established to ensure that programs across Arthritis Victoria
address inequalities such as language or cultural barriers.
We work in the youth and family services space as well, and
part of my job is to review what we do here and determine
how we can best help children with juvenile arthritis and their
families.
As with any not-for-profit organisation, we are working with
fewer resources than we'd like. Our challenge is to develop
more partnerships with organisations to look for opportunities
to work together to improve our range of services to help
families.
I am constantly astounded by the commitment of our
many volunteers – some of them have given an enormous
amount of their time over decades. On top of this, many of
our volunteers are living with a musculoskeletal condition
themselves or have a significant person in their lives who is.
Yet, this doesn't hold them back.
I think that's pretty inspirational.
Active living, informed living, living well...for musculoskeletal health
Widening ‘our web’
We all know health professionals and service providers
have heavy workloads, so it is not always easy for them
to take time away from their work commitments to attend
conferences, seminars and other training opportunities.
Devising different ways to reach the people in our health and
community care workforce is important if we are to convey
key messages around the issues faced by people with
arthritis, osteoporosis and other musculoskeletal conditions.
For this reason, Arthritis Victoria was pleased to conduct
its first webinar (web-based seminar) in July with Professor
Michael Nicholas, a clinical psychologist and the Director of
the ADAPT Pain Management Program at Royal North Shore
Hospital in Sydney. The webinar was titled ‘Confronting
Chronic Pain: Self Management Is Easy To Say, But What
Works?’
In the webinar, Professor Nicholas outlined how teaching self
management skills to people with chronic health conditions is
frequently harder than it looks for health care providers. While
the idea of self management sounds easy, implementing
it is often difficult and there are obstacles to overcome.
Professor Nicholas reviewed evidence for the importance of
self management on health outcomes and outlined strategies
that have proved effective in enhancing self management in
practice.
The webinar was viewed by over 50 people from as far afield
as Tasmania, Queensland and Western Australia. Participants
and staff at Arthritis Victoria are already in the process of
considering other topics for future webinars. If you have a
topic you would like us to explore, please send us an
email [email protected] or call us on 03 8531 8000 or
1800 011 041.
What is a webinar?
A webinar is a presentation, lecture, workshop or seminar that is transmitted over the Web or Internet. A webinar
allows communication between one presenter and many participants, many of whom may be spread over a very
broad geographical area (for example, throughout Australia or even the world).
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Update Spring 2012 11
Need information, advice and ideas
about how to age well? Let the Arthritis
Map…‘do the walking’!
The Arthritis Map of Victoria is a practical, interactive online
tool that can assist in preventing or managing chronic
musculoskeletal conditions by helping you to quickly locate
the programs and services you require. You are also able to
print door-to-door directions to help find these services.
To see what the Arthritis Map of Victoria can offer, why not
try it now through
www.arthritisvic.org.au
You will be amazed at just how much information is available
to you.
‘Waves’ Classes
We conduct warm water exercise classes at 19 locations
around metropolitan Melbourne.
Warm Water Pools
Warm water exercise is highly beneficial for people with
arthritis and many other musculoskeletal conditions and is
available at many local pools.
Tai Chi for Arthritis (TCA)
TCA is effective in decreasing pain, stiffness and fatigue, as
well as improving functioning in everyday activities.
Strength Training
Strength training (or resistance or weight training, as it
is sometimes called) involves the use of weights to build
muscle strength and endurance.
Community Health Services (CHS)
With over 120 locations around Victoria, CHS offer a
range of programs covering physical activity, nutrition, self
management and many other key health and social issues.
Neighbourhood Houses
Neighbourhood houses provide a range of communityrun activities that will allow you to meet other people in a
relaxed and friendly atmosphere. You can find your local
Neighbourhood house by visiting the Map.
Public Internet Locations
Need access to the Internet? There are over 300 public
internet locations around Victoria, including local libraries.
Allied Health Services
Do you need to visit a physiotherapist, exercise physiologist,
nutritionist, dietitian, social worker or other allied health
worker? Their locations and contact details are available via
the Map.
Medicare Offices
More than 55 Medicare offices are located in various parts of
metropolitan Melbourne and regional Victoria.
12
Active living, informed living, living well...for musculoskeletal health
The Arthritis Map will help
you find doctors, support
groups, community health
services and anything else you
can think of to make living with a
musculoskeletal condition easier.
Once you select the service you
are looking for, the locations
across the state will
be marked with
coloured dots.
Update Spring 2012 13
My Story: Age is no barrier
He has been a member of Arthritis Victoria
for almost three decades, and a leader in our
'Waves' warm water exercise program for most
of that time. He may be nearing his 90th birthday,
but nothing can dampen Allan Stewart’s passion
for living a full life and helping others.
Allan’s story
About 28 years ago I started having health problems and I
went to doctors to find out what was wrong. They thought I
had shingles! In the end, the only thing that came up in my
blood tests was rheumatoid arthritis, but the doctor didn’t
think this was a problem. It was only when I was on holiday in
Adelaide that I saw some information about Arthritis Week and
thought that I needed to look into it further.
That’s how I became involved with Arthritis Victoria and began
to educate myself about looking after my health. Once I got
the information I needed, I got involved in the warm water
exercise program and never looked back.
As a leader in the Waves program since 1986, and a volunteer
on the Telephone Information Service, I see that the exercise
programs have both physical and social benefits. You speak with
people of all ages and share stories and tips about managing
your health. The classes are just great for the community and
helping people connect and support each other.
Most of the Waves program leaders have some kind of
musculoskeletal condition themselves, so they understand
what participants are managing in their day-to-day lives.
Often, when people first attend a Waves class they are really
surprised what a difference it makes to their mobility.
I noticed a major improvement as soon as I got in the warm
water. You can move so much easier and the pain factor
immediately goes down. We’ve got some people who come
in a wheelchair and they will get in the pool and after a few
weeks you just notice a huge improvement. This is what keeps
me going with it - seeing the difference it makes to people.
It can be really difficult to start off, and our leaders understand
this. People can be in a pain cycle, and the warm water
makes it easier to start breaking that cycle.
My advice to people is to take it a bit easy first off. You need
to build up your mobility over the weeks and our leaders’
personal experiences will help you do this.
Over the 28 years I’ve seen a lot of change in the program.
We have better pools and facilities and the classes are now
very widely available for people of all age groups. I see myself
doing this well into my 90’s!
If you’d like to find out about Waves classes in your area and
to receive an enrolment form, please give us a call on 03 8531
8000 or 1800 011 041.
Learn how to manage your arthritis
or musculoskeletal condition
Stay healthy and keep active by attending an
Arthritis Victoria course or seminar.
You can access our community programs and
activities calendar at www.arthritisvic.org.au
or by calling 1800 011 041
14
Active living, informed living, living well...for musculoskeletal health
Improving Training for Home and Community Care
We are delighted to be undertaking a project for the Home
and Community Care (HACC) program within the Department
of Health, Victoria. The purpose of the project is to develop
and trial a training resource for HACC assessment staff that
will improve their awareness and knowledge of arthritis,
osteoporosis and other musculoskeletal conditions.
The Victorian HACC program provides services to support
frail older people, younger people with disabilities, and
their carers. These services provide basic support and
maintenance to people living at home and whose capacity
for independent living is at risk of premature or inappropriate
admission to long-term residential care.
The HACC program is funded jointly by the Australian and
Victorian governments. Local government, health services,
community health centres and district nursing services
represent most of HACC service providers in Victoria.
The assessment staff within the HACC program play a vital
role in connecting people in the community to the services
and supports they require to live as independently and
autonomously as possible. In this way, the assessment
staff are at the ‘frontline’ of the HACC program and it is
important that they have a good basic knowledge of the
needs and issues affecting the lives of people with arthritis,
osteoporosis and other musculoskeletal conditions. This is
especially important given the high number of people with
musculoskeletal conditions in the Victorian community.
We are very pleased that the Department of Health has
shown their trust in Arthritis Victoria by contracting us to
develop this training program.
Arthritis Victoria is bringing the consumer perspective and its
extensive training experience to the task of developing and
trialling a training resource for the HACC assessment staff.
We have been consulting with HACC assessment staff to
ensure that the training resource provides comprehensive
information about musculoskeletal conditions, and that it
meets the ‘on the job’ needs of HACC assessment staff.
If HACC workers don’t understand our consumer needs,
then people can miss out on essential services.
The current project is expected to be completed in
December and it is hoped that the Department of Health will
then roll-out the recommended training in 2013.
What’s on
Sowing the Seeds
On 17-19 September, the annual Farmer Health Conference will be held in
Hamilton, Victoria. The theme of this year’s conference is Sowing the Seeds
of Farmer Health, which aims to educate and engage health and agriculture
professionals to raise awareness and develop strategies to improve farmer
health, well-being and safety. Gavin McDonald, Senior Policy and Planning
Advisor at Arthritis Victoria, will be attending the conference and presenting
on the Arthritis Victoria scoping study of Rheumatology Services in Rural and
Remote Victoria project.
of
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Victo est
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rang
To find out more about farmer health, or to attend the conference, visit
www.farmerhealth.org.au
Raising awareness: Elmore Field Days
To raise awareness of musculoskeletal conditions, one of the leading causes
of pain and disability for Victorians, Arthritis Victoria will take part in the 2012
Elmore Field Days which will be held from the 2 - 4 October. Reaching people
across Central Victoria and Southern New South Wales, Elmore is one of
Australia’s premier agricultural Field Day events. Our presence over the three
days will provide people across the region with information about arthritis,
osteoporosis and other musculoskeletal conditions, as well as services available
at Arthritis Victoria.
Celebrating seniors
The 30th annual Victorian Seniors Festival is coming up from the 7 - 10 October,
again celebrating the inspiring contribution of older Victorians. This year, Arthritis
Victoria will take part in the Opening Day at Federation Square, where we will
provide a broad range of information about musculoskeletal conditions, as
well as the services we offer and helpful tips to help those living with these
conditions. Festival events include ‘Nordic Walking’ at both Caulfield Park and
Rippleside Park in Geelong, and a ‘Living Well with Arthritis’ seminar at the
Melbourne Town Hall.
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For more information on the Festival, visit www.seniorsonline.vic.gov.au
Update Spring 2012 15
Giving Back – Fundraising
Putting the ‘fun’ into fundraising!
Over the past few months we have had a number of our members, peer
support groups, retailers and supporters fundraising for us. They have
shown that donating to Arthritis Victoria can be fun, interesting and a great
social outlet. Here are just a few of the ways people and organisations
have raised money for us recently. From all of us here a big thank you for
their huge effort in making a difference!
Grill’d Burgers Elsternwick
Throughout April, customers who purchased a burger received a token to
put into a jar of their nominated charity – Arthritis Victoria was one of the
charities nominated. This was a ‘tasty’ way to not only raise money but
also raise Arthritis Victoria’s profile amongst the local community.
kikki.K Knox
Customers were recently treated to Swedish cookies and refreshments at
the kikki.K store at Knox City and kikki.K Knox generously donated 20%
of all sales made during a four hour sales blitz on a Thursday afternoon.
Thanks to kikki.K Knox and to all that mentioned Arthritis Victoria when
making a purchase!
Aveo Veronica Gardens Retirement Village
After hearing a Community Speaker, the residents of Aveo Veronica
Gardens decided to donate the proceeds from the entry fee of the ‘In
Bloom’ art exhibition to Arthritis Victoria. Money was also raised through
a raffle and collection tins. Thanks to everyone that participated!
Mullet Impossible?
Alec, a 20 year old supporter of Arthritis Victoria, certainly took fashion
and fundraising to another level - by reshaping his locks into the
shape of a 1970’s mullet. His family, friends and retailers sponsored
this transformation. A fantastic effort in raising funds for people with
musculoskeletal conditions.
Gloria Jean’s Coffees and guests unite to support
Arthritis Victoria!
During the month of July, Gloria Jean’s Coffees in Caroline Springs
participated in With Heart Local by hosting events to raise funds to help
support Arthritis Victoria. Living with arthritis became an every-day reality
for Fiona (the franchise partner) when her son, Tyson, was diagnosed with
juvenile arthritis at just two years old.
Some of the fun activities included face painting, plaster mould painting,
biscuit decorating and a lucky raffle draw. What a fantastic effort to
support Arthritis Victoria and raise much needed awareness.
If you are considering fundraising activities and have any questions on how
to go about it, please give Gabi Massey a call on 03 8531 8011 or 1800
011 041 and she will be happy to give you some advice and possibly
provide some additional resources to help in your fundraising efforts.
16
Active living, informed living, living well...for musculoskeletal health
Ask the Rheumatology Help Line
How can it help me?
Who can help?
Our nurses on the Rheumatology Help Line get lots of
calls from people with arthritis, osteoporosis and other
musculoskeletal conditions in need of assistance with the
activities of daily living - for example, how to remove lids from
jars or turning taps on and off.
An Occupational Therapist can do home visits to provide
education and make recommendations on increasing home
safety and independence . You can also visit an Independent
Living Centre. They have a range of equipment on display
and you can get information on where to purchase what you
need. Occupational Therapists are available for advice but it
is best to call the telephone enquiry service first. Telephone
03 9362 6111 or email [email protected]. Centres are
located in Brooklyn and Blackburn.
Being diagnosed with a musculoskeletal condition can be
life changing. Simple daily tasks can become difficult and
painful, while managing family life and juggling work can be
exhausting.
Adjusting isn’t always easy. But there are many people,
services, products and benefits that can help. Some practical
changes to your home and lifestyle can make managing at
home much easier.
Disability varies depending on the condition you have. For
some people their grip weakens and it becomes hard to
do fine movements such as doing up buttons or tying shoe
laces. Turning on taps and opening jars and bottles can be
difficult as can bending down to reach things.
Sometimes, by doing things another way, you can reduce
the pain in your hands. You might use two hands to pick up
items or use a tap turner to make it easier to grip the tap.
Other people may change the taps that they use frequently
to mixer taps. These are examples of ‘joint protection’. It
doesn’t mean you should stop using your joints. It just means
that you should use them differently to reduce the amount of
stress on them.
It is important to remember to look after yourself – take
regular breaks during an activity, use larger, stronger joints.
For example, carry shopping over your shoulder rather than
in your hands. Use labour-saving tools and equipment or
buy pre-cut vegetables and meat to make cooking easier.
Let your family know what tasks you find manageable and
difficult, and spread the load if necessary.
There are many innovative products to assist people who
have arthritis or disability due to ageing. Some can make
gripping and holding objects easier such as jar, bottle and
can openers as well as large grip can openers, vegetable
peelers, long handled shoe horns and easy grip scissors for
cutting toe nails. Many are available for sale from Arthritis
Victoria. See our website www.arthritisvic.org.au for more
information, or phone on 03 8531 8000 or 1800 011 041.
What is SWEP?
The State Wide Equipment Program (SWEP) provides people
with a permanent or long-term disability with subsidised aids,
equipment, oxygen, continence aids and vehicle and home
modifications.
SWEP aims to enhance the independence of people with a
disability in their own home, facilitate their participation in the
community and support families and carers.
Who is eligible for assistance under SWEP?
You may be eligible for assistance under SWEP if you:
•have a permanent or long-term disability, are frail aged, and
are living independently in the community
•require aids and equipment, or home and vehicle
modifications from the aids availability list on a permanent
or long-term basis
•are a permanent Victorian resident
For more information about the eligibility criteria contact:
State Wide Equipment Program
PO Box 1993
Bakery Hill Vic 3354
Phone 1300 747 937 or 03 5333 8100
Fax 03 5333 8111
Between 8.30am to 5.00pm Monday to Friday
To discuss your requirements call the Rheumatology Help Line
on 1800 263 265 to speak to one of our nurses.
Our nurses can provide you, your carers or health
professionals with the following information and can help
with:
•General medical information about arthritis, osteoporosis
and musculoskeletal conditions and treatments
•Assistance with navigating health, disability and social
service systems
•Support and advice regarding the diagnosis of a
musculoskeletal condition
•Information on local community services
•Information and support to health professionals providing
care for people with musculoskeletal conditions
Our Rheumatology Help Line nurse Anne using the Arthritis Map
Update Spring 2012 17
Speaking the language of health
It can sometimes be difficult to understand the information
provided by health professionals – and when you add to this
the inability to speak English, the problem becomes even
more complex.To spread our health messages far and wide,
we have been working in partnership with the Multicultural
Centre for Women’s Health. Together, we created the Bilingual
Health Educator project, which has delivered musculoskeletal
health information sessions to people from culturally and
linguistically diverse communities across Melbourne.
information sessions to several groups at the Moorleigh
Multicultural Senior Citizens Centre in East Bentleigh. The
Centre provides a range of fantastic services for seniors from
various cultural and linguistic backgrounds, including:
We have now completed the two-day training program for
five ‘Bilingual Health Educators’ who are fluent in Russian,
Mandarin, Italian, Vietnamese and Greek.
There has been high interest in the sessions
so far, and the educators have enjoyed
broadening the reach of our health information
and support networks.
Since completing the training, the educators have delivered
•Activity Groups
•A Chinese Elderly Social Support Program
•English Classes
•Strength Training Exercise Classes
The importance of peer support
Peer support can significantly improve wellbeing for people
with arthritis, osteoporosis and other musculoskeletal
conditions, as well as their families, friends and carers. We
know how important peer support is to our networks, which
is why we’re conducting a review of the 65 Peer Support
Groups that we currently facilitate across the State. The aim
of the project is to identify ways to provide the best possible
support, advice, information and activities.
As a starting point, we will be looking at the composition
and activities of the Peer Support Groups currently affiliated
with us, and obtaining feedback from participants. At the
end of the process we hope to make recommendations to
improve support for, and resourcing of, Peer Support Groups,
including what should be contained in the ‘Peer Support
Group Guide’.
Sharon Clifford, a research student who is currently studying
for a Diploma of Community Development at Chisholm
Institute is assisting us with this project.
Peer Support Group Leader Lunch 2012
Sixty people from 22 Support Groups across Victoria came
together at Arthritis Victoria to hear about what’s happening
in other Peer Support Groups, to share ideas and learn from
each other. The day was a great success with overwhelmingly
positive feedback. Our leaders are looking forward to coming
back again next year.
Peer Support Group Leaders enjoying lunch at Arthritis Victoria
18
Active living, informed living, living well...for musculoskeletal health
When opportunity knocks
Our dedicated volunteers are enjoying the “new look”
Opportunity Shop which opened just after Easter. The Shop
has been freshly painted, has new carpet but it has the same
hard working and cheerful staff.
Many items have been reduced by 50% so why not call in
and grab a bargain!
You’ll find the Shop at 1428 High Street Malvern and it is
open between 10am to 4pm Monday to Friday and 9am to
1pm on Saturdays (closed public holidays).
If you have saleable items in good condition, please bring
them over to the Shop – we appreciate your generosity. Your
pre-loved items can make someone else’s life a bit easier!
Would you like to help? We are always looking for volunteers
to staff the Shop, so if you think you can lend a hand, please
call Sarah-Jane Blunt on 03 8531 8046 or 1800 011 041.
Dedicated volunteers Elsa, Renate (shop manager) and Jane
Memorial gifts
The family and friends of the following people have marked their passing by
making donations in their name to support the work of Arthritis Victoria.
Mrs June Tanner
Mr Eric Anderson
Mrs Cassie Westlake
Mrs Carolyn Ford
Mrs Lib Morrison
Mrs Gertrude Tiley
Mrs Joyce Fletcher
Mr Vincenzo Tortomano
We gratefully acknowledge this support and join in the commemoration of the
lives of these valued members of the community.
For more information on memorial gifts, contact Laraine Shea on 03 8531
8014 or [email protected]
THE ABRECHT HINGED RING®
At last there is a really practical solution for those many people who have been unable to wear their rings due
to finger swelling. Abrecth Bird Jewellers have developed a ring with a special unobtrusive clasp which opens
the ring, thus allowing it to be fitted around the f inger and then closed, it actually bypasses the knuckle. An
inbuilt safety catch ensures reliability. Unlike other methods, this system is specially designed not to snag or
stand like a hinge.
Level 2, 227 Collins Street, Melbourne, 3000
Phone: (03) 9650 3830 Fax: (03) 9650 0695
Email:[email protected]
Name
Address
Postcode
Phone
Update Spring 2012 19
Coming up in October – December 2012
If you would like information on any of our programs, courses and events or would like to register, please call us
on 03 8531 8000, 1800 011 041, email [email protected] or visit www.arthritisvic.org.au
Community Programs
and Activities
Cost: $75.00 ($10 for an accompanying
support person)
Seniors Week - Arthritis
Victoria’s Events
This course is for you if you have one
or more chronic conditions and would
like to develop skills to better manage
your health, such as managing your
symptoms, working with your health
care team, goal-setting and problemsolving. A support person is welcome
to attend the course with you.
When: Monday 8 October – Thursday
11 October
Time: 11:00am – 12 Noon
Where: Caulfield
Cost: Free
When: Friday 12 October
Time: 1:00pm – 3:00pm (on the hour)
Where: Geelong
Cost: Free
‘Come and Try’ Nordic Walking
sessions. Originating in Scandinavia,
Nordic Walking is a form of physical
activity that involves the use of
specially designed poles and a walking
technique to engage the upper body.
Incorporating the upper body in walking
has many benefits including increased
muscle tone of the upper body,
improved posture and balance and an
increase in kilojoule burning making it
ideal for people with musculoskeletal
conditions.
Regional Seminars
When: Saturday 13 October
Time: 1:00pm – 4:00pm
Where: Geelong
Cost: $5.00
When: Wednesday 24 October
Time: 1:00pm – 4:00pm
Where: Yarra Junction
Cost: $5.00
Arthritis Victoria engages with
rural and regional communities to
provide public seminars to help
people with arthritis, osteoporosis
and other musculoskeletal
conditions and their support
people to better manage their
health. These seminars are often
arranged in conjunction with the
Arthritis Victoria Peer Support
Groups and other community
groups.
Better Health Self
Management
When: Thursday 18 October –
Thursday 22 November
Time: 6:00pm - 8:30pm
Where: Elsternwick
20
Nordic Walking
Peer Leader Training
Warm Water & Chair-based
Exercise Leader Training
When: Friday 26 October – Sunday 28
October (9:30am – 4:00pm) and
Sunday 9 December
(9:30am – 3:30pm)
Where: Elsternwick
Cost: $580.00 (combined) $484 (warm
water or chair-based)
Our course allows participants to
master the basic Nordic Walking
technique. It is suitable for people who
are able to walk for at least 10 minutes
without a walking aid.
Suitable for health professionals,
human movement and sports science
graduates and fitness instructors.
This program enables participants to
develop their skills and knowledge to
run safe and effective warm water
and/or chair-based exercise classes for
people with chronic musculoskeletal
conditions. Participants may enrol in
either one or both components of the
program.
‘People of Working Age’
Seminar
Warm Water and Chair-Based
Exercise Leader Update
When: Saturday 17 November
Time: 1:00pm – 5:00pm
Where: Melbourne
Cost: $15.00
Where and when:
Hamilton: Tuesday 16 October
(10:00am – 3:30pm)
Sale: Tuesday 20 November
(10:00am – 3:30pm)
Elsternwick: Sunday 2 December
(10:00am – 3:30pm)
Cost: $150 (combined) $100
(warm water or chair-based)
When: Thursday 1 November –
Thursday 6 December
Time: 2:00pm - 3:00pm
Where: Elsternwick
Cost: $75.00 (inclusive of pole hire)
Each year, Arthritis Victoria holds a
seminar specifically for people with
musculoskeletal conditions and of
working age. Apart from covering
a range of topics of interest, the
seminar provides an opportunity to
meet other people and share common
experiences.
Trained leaders are required to attend
a leaders’ update every two years to
advance their knowledge and skills in
running safe and effective warm water
and/or chair-based exercise classes
for people with musculoskeletal
conditions. Participants need to
have completed the initial three-day
leader training program.
Tai Chi for Osteoporosis
Leader Training
Where and when:
Elsternwick: Saturday 13 October –
Sunday 14 October
(9:00am – 5:00pm)
Wodonga: Saturday 1 December –
Sunday 2 December
(9:00am – 5:00pm)
Cost: $412
Active living, informed living, living well...for musculoskeletal health
Limbering Up!
Tai Chi for Arthritis Leader
Training
Where and when:
Geelong: Saturday 27 October –
Sunday 28 October
(9:00am – 5:00pm)
Elsternwick: Saturday 24
November – Sunday 25
November (9:00am – 5:00pm)
Cost: $412
These courses enable
participants to learn how to
safely and effectively conduct
Tai Chi for Osteoporosis
(TCO) classes for people
with osteoporosis and other
musculoskeletal conditions.
Tai Chi for Arthritis Leader
Update Training
Where and when:
Geelong: Friday 26 October
(9:00am – 5:00pm)
Wodonga: Friday 30 November
(9:00am – 5:00pm)
Cost: $195
Nordic Walking Leader
Training
When: Tuesday 30 October –
Wednesday 31 October
(9:30am – 5:00pm) and
Tuesday 4 December
(9:30am – 3:30pm)
Where: Shepparton
Cost: $350
To train people who are
working in the community or
are associated with community
and self help groups with the
necessary knowledge to lead
successful Nordic Walking
groups.
Better Health Self
Management Leader
Update
When: Thursday 15 November
Time: 10:00am – 3:30pm
Where: Elsternwick
Cost: $103
Our annual Camp Limber Up was held
at Camp Wilkin in Anglesea during April,
and this year 81 family members along
with three volunteers and four staff
attended.
and Environment team were a big hit
with both kids and parents. We all learnt
about the incredible creatures living
along our Great Ocean Road coastline,
and the importance of protecting this
unique environment.
The camp was made possible with the
help of our three dedicated volunteers
Stu, Fiona and Monique, and we
hope that the friendships and support
networks developed over the weekend
continue on for many years to come.
Camp Limber Up 2012 was supported
financially by:
•Challengers 623 Group
Kids learning about the coastline environment
The weekend was a great mix of
activity and discussion, with our CEO
sharing a BBQ dinner with the families
to hear their stories. We were also
joined by Dr Roger Allen, a Paediatric
Rheumatologist from the Royal
Children’s Hospital, who delivered two
informative sessions on Juvenile Arthritis
- one for kids and their siblings, and a
separate session for parents.
The mountain bike rides, picnics, bush
walks and a hands-on beach discovery
session led by the Eco Logic Education
•Cranbourne Arthritis Support Group
•Latrobe Valley Self Help Arthritis
Group
•The Marian & E H Flack Trust
•Warragul Arthritis Self Help Group
Our thanks to all of these groups for
making Camp Limber Up 2012 such a
success!
If you would like to contribute towards
Camp Limber Up 2013 you can make a
donation by calling us on 03 8531 8000
or 1800 011 041 or on line at
www.arthritisvic.org.au
Winter raffle 2012 results
Congratulations to the winners of our
Winter raffle which was drawn on 13 July.
1st prize
Ticket no 228091 – Choice of car or
Travel Voucher valued at $34,000
2nd prize
Ticket no 288370 - Holiday voucher
valued at $2,000
3rd prize
Ticket no 15493 - Electrical goods Gift
Cards valued at $1,000
Early bird prizes
Early bird prizes were drawn on 22 June
and were won by:
Miss Jan King of Werribee
50% Coles Fuel Cards and 50% Coles &
Myer Group Gift Cards worth $1,000
Mr Michael Martin of Tarneit
Coles Group & Myer Gift Cards worth
$1,000
Mrs Jill McIntyre of Reservoir
Coles Group & Myer Gift Cards worth
$1,000
Spring raffle 2012
Our Spring raffle will be drawn on Friday
19 October 2012; and 3 Early Bird prizes
will be drawn on 28 September 2012.
This course provides an
opportunity for leaders to update
their knowledge of contemporary
practice in self management.
To buy your book(s) of tickets, call 03
9222 2928 or email your request to
[email protected]
Tickets cost only $2 each!
Linda Martin CEO, presenting the car to the lucky
raffle winner Marjory Miller and husband Wayne
Update Spring 2012 21
Library Resources
Ageing well
•Awerbuch, Mark 2001, Live stronger
live longer: An exercise and lifestyle
program for over 40’s, McGraw-Hill,
Inc. Sydney.
•Chopra, Deepak 1993, Ageless body,
timeless mind: A practical alternative to
growing old, Rider, London.
•Cooke, Giselle 2000, Blooming: The
complete Australian guide to healthy
living for women over 40, Lansdowne
Publishing, Sydney.
•Fries, James F 2004, Living well:
Taking care of yourself in the middle
and later years, Da Capo Lifelong,
Cambridge.
New library
resources
•Blaine, Sandy 2005, Yoga for healthy
knees: What you need to know for pain
prevention and rehabilitation, Rodmell
Press, Berkeley.
•Borenstein, David c2011, Heal your
back: Your complete prescription for
preventing, treating, and eliminating
back pain, M Evans and Company Inc,
Lanham.
•Carrick, Gill 2011, Arthritis: The
essential guide, Need-2-Know,
Peterborough.
•Craggs-Hinton, Christine 2010, Coping
with gout, Sheldon Press, London.
•Craggs-Hinton, Christine 2011, Natural
treatments for arthritis, Sheldon Press,
London.
•DiNubile, Nicholas A. c2011,
Framework for the shoulder: A 6-step
plan for preventing injury and ending
pain, Rodale Inc, Emmaus.
•Evenson, Dean & Evenson, Dudley
2011, A sound sleep: Guided
meditations with relaxing music and
nature sounds, Soundings of the
planet, Bellingham. [CD]
•Fink, Brett Ryan c2012, The whole
foot: A complete program for taking
care of your feet, Demos Health, New
York.
•Greaves, Alan c2011, Going straight:
Living with ankylosing spondylitis,
AuthorHouse, Bloomington.
22
•Greenberg, Tamara McClintock
c2011, When someone you love has
a chronic illness: Hope and help for
those providing support, Hegemony
Press, Springville.
•Hannafin, Jo A & Betancourt, Marian
c2007, Say goodbye to knee pain,
Pocket Books, New York.
•Hecht, M. E c2011, A practical
guide to hip surgery: From pre-op to
recovery, Sunrise River Press, North
Branch.
•Henderson, Kathy c2011, The stages
of ME: A journey of chronic illness
turned inside out, WestBow Press,
Bloomington.
•Isaacs, John D & Moreland, Larry
W c2011, Fast facts: Rheumatoid
arthritis, Health Press, Oxford.
•Jenner, Chris 2011, Arthritis: A
practical guide to getting on with your
life, How To Books, Oxford.
•Kolasinski, Sharon L. (ed) 2011,
Complementary and alternative
medicine in rheumatology, Saunders,
Philadelphia.
•Matousek, Mark 2009, When
you’re falling, dive: Using your pain
to transform your life, Hay House,
Alexandria.
•Nicholls, Gemma K 2011, Fighting
rheumatoid, YouWriteOn.com, [Ilford]
•O’Neill, Daniel Fulham c2008, Knee
surgery: The essential guide to total
knee recovery, St. Martin’s Griffin,
New York.
•Olderman, Rick 2010, Fixing you:
Shoulder and elbow pain, Boone
Publishing, Denver.
•Olderman, Rick 2011, Fixing you: Hip
and knee pain, Boone Publishing,
Denver.
•Rose, Jonathan D c2011, The foot
book: A complete guide to healthy
feet, John Hopkins University Press,
Baltimore.
•Rouse, James & Davis, Benjamin
2006, Sleep: Guided relaxation
and musical harmonies, Gaiam Inc,
Boulder. [CD]
•St. John, Walter c2011, Solace: How
caregivers and others can relate, listen,
and respond effectively to a chronically
ill person, Bull Publishing, Boulder.
•Taylor, Martin T. 2010, My neck hurts!:
Nonsurgical treatments for neck and
upper back pain, Johns Hopkins
University Press, Baltimore.
•Wallace, Daniel J (ed) 2011, The
Sjogren’s book, Oxford University
Press, Oxford.
•Wolf, Penny B c2009, I still dream big:
Stories of teens living with chronic
illness, AuthorHouse, Bloomington.
Online library
catalogue
Don’t forget you can now access the
library catalogue from home. To access
the library catalogue, simply visit our
website www.arthritisvic.org.au.
In the footer click on "Our Service", then
select Library. On the Library page is a
link to the catalogue. Click on it, and you
can start searching.
How to borrow
To borrow from the library you can
call our Librarian on 03 8531 8031
or 1800 011 041 or email
[email protected] and
your selected items will be posted to
you. You can also visit the library on
weekdays between 9am and 5pm, but
please call beforehand to ensure that the
Librarian will be available to assist you.
•Sanford, Laurie c2011, Gentle yoga
for osteoporosis, Hatherleigh Press,
Hobart.
Active living, informed living, living well...for musculoskeletal health
Volunteer Celebration
Saying thank you to our volunteers
What would we do without our volunteers? They work
tirelessly to support our education and support programs,
and to say thank you we invited them to the Amora Hotel in
Richmond for our annual celebration. Eighty three attendees
came from a range of service areas, including our Telephone
Information Service, Opportunity Shop, our Community
Speaker Program, as well as our Peer Support Groups.
Participants said it was “great to renew friendships and chat”
and “a wonderful opportunity for the volunteers to catch up
with staff”.
We also took the opportunity to present Long Service and
Outstanding Service Awards on the day. Following is a list of
the recipients who received awards for their contribution to
Arthritis Victoria.
Five Years’ Service
Robyn Bate
Gail Bevan
Sue Brown
Yvonne Brown
Jo’Ann Carell
Beverley Ednie
Margaret Hallam
Colleen Hanbury
Lois Miles
Barbara Mowat
Lisa Smith
Judy Wexler
Yvette Cayzer
Barbara Prouse
Tonya Morris
Annie McPherson
Catherine Congerton
Bill Hunter
Leonie Cartledge
Jill Martin
Margaret (Min) Rossell
Waves Leader
Waves Leader
Waves Leader
Waves Leader
Waves Leader
Waves Leader
Waves Leader
Waves Leader
Waves Leader
Waves Leader
Waves Leader
Waves Leader
Malvern Opportunity Shop
Malvern Opportunity Shop
Moonee Ponds Opportunity Shop
Community Speaker
Youth and Family Services
Office
Melbourne Osteoporosis Support
Group
South East Melbourne
Osteoporosis Support Group
South East Melbourne
Osteoporosis Support Group
Twenty Years’ Service
Jill Foley
Lena Rodger
Dorothy Singe
Judith Steele
Di Hey
Edith Irvine
Waves Leader
Waves Leader
Waves Leader
Waves Leader
Eltham & District Arthritis
Self Help Group
Eltham & District Arthritis
Self Help Group
Twenty Five Years’ Service
Irene Kayler-Thomson
Waves Leader
Thirty Years’ Service
Kath Dight
Noreen Hassett
Malvern Opportunity Shop
Malvern Opportunity Shop
Outstanding Service Awards
Robyn Bate
Irene Kayler-Thomson
Allan Stewart
Robyn Talbot
Kath Dight
Renate Kupfer
Gerry Black
June Slater
June Yourell
Marion Crombie
Bev Dow
Joan Reynolds
Helen Cunningham
Marie Sheahan
Waves Leader
Waves Leader
Waves Leader
Waves Leader
Malvern Opportunity Shop
Malvern Opportunity Shop
Office
Healesville Arthritis
Self Help Group
Healesville Arthritis
Self Help Group
Narre Warren Support Group
Narre Warren Support Group
Narre Warren Support Group
Melbourne Osteoporosis Support
Group
Melbourne Osteoporosis Support
Group
Ten Years’ Service
Marion Cummins
Pauline O’Brien
Bruce Harvey
Dorothy Scanlan
Waves Leader
Waves Leader
Telephone Information Service
Narre Warren Support Group
Fifteen Year’s Service
Beryl Logie
Margaret Moyle
Beryl Gaffney
Owen Fitzsimons
Ann White
Community Speaker
Waves Leader
Eltham & District Arthritis
Self Help Group
Yarra Ranges Lupus
Support Group
Narre Warren Support Group
Showing our thanks to volunteers at the recent annual celebration
Update Spring 2012 23
Christmas Card Selection
2012
Card 3 STOCKINGS
Square format 127mm x 127mm
Pack of 10 $8.00
Message: Best wishes for the Festive Season
Card 1 TWELVE DAYS OF CHRISTMAS
Landscape format 120mm x 170mm
Pack of 10 $8.00
Message: Christmas Greetings and
every good wish for the New Year
Card 2 BEACH SANTA
Portrait format 180mm x 117mm
Pack of 10 $8.00
Message: Season’s Greetings and Best
Wishes for the New Year
Card 4 DOVE
Landscape format 127mm x 182mm
Pack of 10 $8.00
Message: Wishing you peace and joy at Christmas
Card 5 THREE KINGS
Square format 127mm x 127mm
Pack of 10 $8.00
Message: Wishing you peace and
happiness at Christmas
Card 6 TREE WITH BAUBLES
Card 7 SANTA IN SNOW
Square format 127mm x 127mm
Pack of 10 $8.00
Message: Merry Christmas and a
Happy New Year
Portrait format 170mm x 120mm
Pack of 10 $8.00
Message: Wishing you a Merry
Christmas and a Happy New Year
Card 8 GIFT TAG COLLECTION
Square format 70mm x 70mm
Pack of 10 assorted designs.
No message
$2.00 per pack
order form
Card
no.
Description
Card 10 MIXED PACK
Card 9 BEACH COLLECTION
$7.00 per pack
All card prices include GST
Number
of packs
Unit price
per pack
1.
Twelve Days of Christmas
$8.00
2.
Beach Santa
$8.00
3.
Stockings
$8.00
4.
Dove
$8.00
5.
Three Kings
$8.00
6.
Tree with Baubles
$8.00
7.
Santa in Snow
$8.00
8.
Gift Tag Collection
$2.00
9.
Beach Collection
$7.00
Mixed Pack
$7.00
10.
A pack of 10 assorted cards. Cards
may vary from those shown
A pack of 10 assorted beach themed cards
$7.00 per pack
Total $
Mail your order form and payment to:
Arthritis Victoria, PO Box 130 Caulfield South Vic 3162
I enclose my  Cheque
please debit my
 Money order or
 Visa
 MasterCard
Card no __ __ __ __/__ __ __ __/__ __ __ __/__ __ __ __
Expiry date __ __/ __ __
Signature Mr / Mrs / Miss / Ms (Circle)
First name Sub total
$
Postage - 1 pack $4.00, 2 or more $8.00
$
Last name I enclose my DONATION (A tax deductible receipt will be issued)
$
Address Total
$
Arthritis Victoria and Osteoporosis Victoria will not onsell your personal details to any other
organisation and complies with the Privacy Amendment (Private Sector) Act 2000. If you wish
your name to be removed from our database please write to us and indicate this.
Postcode Tel
Email Update Spring 2012 24