Spring - Arthritis Victoria
Transcription
Spring - Arthritis Victoria
Update Spring 2012 The official publication of Arthritis Victoria and Osteoporosis Victoria ISSN 1446-6570 PRINTPOST 330747/00059 ‘Living Longer’, but are you ‘Living Better’? The changing picture of ‘older Australians’ Did you know that by the year 2050, the number of Australians aged over 65 is expected to double from 13.5% of the population to approximately 22.7%*? Did you also know that the number of Australians aged over 85 is expected to quadruple from 1.8% of the population to approximately 5.1%*? The Australian Government recently announced ‘Living Longer. Living Better’ - a set of major reforms aimed at helping our aged care system prepare for these increases. The ‘Living Longer. Living Better’ reforms aim to reinforce two key messages. First that older Australians are an invaluable part of the community, and second, that with the right support, ageing can be a positive, fulfilling and enjoyable period of life. In other words, it’s not just about living longer, it’s about ensuring quality of life. What does ‘Living Better’ mean? We know that many Australians will be ‘Living Longer’, but the Minister for Ageing Mark Butler has spent the past 12 months asking older Australians what ‘Living Better’ means to them. Older Australians have explained that their expectations are different from their parents’ generation. They particularly emphasised a desire to stay in their homes and local communities for as long as possible supported by flexible services, which can meet their changing needs. They also want easier ways to access information about what help is available, and more control over choices affecting their health. Starting points Arthritis Victoria has listened to similar themes from people who have arthritis (including osteoporosis and other musculoskeletal conditions) via our ‘consumer needs survey’, as well as via direct conversations with you over the last few months. We understand that accessing appropriate information and support can be particularly challenging for people with arthritis, osteoporosis and other musculoskeletal conditions, particularly as they are often managing pain and other chronic symptoms. Arthritis Victoria has developed a range of services and programs specifically designed for people with arthritis, osteoporosis and other musculoskeletal conditions, which can help you at each stage of life. Whether you are working full-time or are retired, we encourage you to think about what ‘Living Better’ means to you and to take action today! Some starting points might include: •Contact the Rheumatology Help Line The Arthritis Victoria Rheumatology Help Line is a free service that operates between 10am and 3pm weekdays and can be accessed by calling 1800 263 265 or by emailing [email protected]. Calls are taken by registered nurses, who can provide immediate, expert health advice and assist you in navigating the complex health, disability and social services systems. •Visit the Arthritis Map The Arthritis Map www.arthritismap.com.au is a practical online tool which helps you locate a range of appropriate services relevant to your condition. The map contains useful information, including ‘Waves’ warm water exercise classes, Tai Chi for Arthritis, Nordic walking groups, peer support groups and rheumatology clinics. Continued on page 4 Active living, informed living, living well...for musculoskeletal health Spring 2012 In this issue 2 Acting on your feedback 4 From the doctor’s desk 6 Advocating for better public transport access 7 Take our new website for a spin 8 Widening ‘our web’ 11 Let the Arthritis Map…‘do the walking’! 12-13 My Story – Allan Stewart 14 Ask the Rheumatology Help Line 17 Coming up in October – December 2012 20 Volunteer Celebration 23 Christmas Card Order Form 24 4 8 12 Arthritis Victoria Directors 263 Kooyong Road Elsternwick 3185 PO Box 130 Caulfield South 3162 Phone: 03 8531 8000 Toll free: 1800 011 041 Fax: 03 9530 0228 Email: [email protected] Website:www.arthritisvic.org.au President: Vice President: Hon Treasurer: Judge Philip Misso Noel Smith Jim Dixon Opportunity Shop Naomi Creek Stephen Fitzpatrick CEO: Update editor: Janine Fisher Dr Ian Relf Linda Martin Gabriele Massey © Copyright Arthritis Victoria 2012 Advertising policy statement All agencies or organisations must seek written permission from Arthritis Victoria before reproducing any material. The views and opinions expressed in Update are not necessarily those endorsed by Arthritis Victoria. Advertisements for products and services featured in Update are included for information purposes only. Arthritis Victoria does not recommend, endorse, check or approve any products. Arthritis Victoria recommends that you speak with your doctor or health professional before using any advertised products or services. 1428 High Street Malvern Phone 03 9509 6263 Arthritis Foundation of Victoria ABN 26 811 336 442 This magazine is printed on 90 gsm Soverign Silk derived from well-managed forests and other controlled sources certified against Forest Stewardship Council ® standards, a non-profit organisation devoted to encouraging the responsible management of the world’s forests Active living, informed living, living well...for musculoskeletal health 7 From the desk of the CEO As we enthusiastically move into the warmer months of Spring, I am very pleased to share some of what’s happening at Arthritis Victoria. It’s a great time of year to participate in our many activities and events. The Arthritis Victoria community certainly knows that the best quality of life comes from an active and generous approach to life. This was amply demonstrated recently when I sadly attended a funeral for one of our treasured members. Rae Johnson led the Cranbourne Arthritis Support Group for nearly 30 years. Rae and her tireless and devoted team have rallied people with musculoskeletal conditions to get active and support each other for many years. Rae also spread her influence across the whole community and gained the support of her local Council. Rae has influenced generations of people to be proactive contributors, and we will miss her. Peer Support Groups are critical to people with musculoskeletal conditions. Support Groups require strong leadership and commitment, drawing upon the skills of members. Our recent ‘Leader Lunch’ gave these Arthritis Victoria ‘stars’ an opportunity to share their experiences and learn from each other. Good connections between people with musculoskeletal conditions, health, transport and disability service providers are what make a difference to quality of life. We recently helped a number of Peer Support Groups write applications for the Federal Government Volunteer Grants 2012 which recognises the valuable work of Australia’s volunteers. Fingers crossed that they are all successful. We are very pleased to have received some Victorian government funding for Arthritis Victoria to develop a training program for Home and Community Care (HACC) Assessment Workers. We are thrilled to have a chance to teach these health professionals about musculoskeletal conditions. We have also run a Webinar on chronic pain management for health professionals, which received 58 registrations – people are listening to what we have to say. If you know someone with a musculoskeletal condition or who has trouble accessing a HACC or Disability service – make sure you log this on our Advocacy Register and ring our Help Lines for advice. Arthritis Victoria’s staff are taking an active role in Health Professional forums and training. We look forward to increasing this training and our webinars. Geraldine McDonald, General Manager Policy, Strategy and Partnerships, recently presented our Arthritis Map to the HISA (Health Informatics Society of Australia) Conference and the Arthritis Map received the Don Walker Award for Access. We hope you enjoy our new website – you told us what you wanted and it is now available for you to explore. Linda Martin Chief Executive Officer Update Spring 2012 3 Acting on your feedback In our last issue of Update magazine we asked you to tell us what you need from our services. And tell us you did! We got an amazing 1000 responses. These stories will be invaluable in helping us plan and advocate for all Victorians with arthritis, osteoporosis or another musculoskeletal condition. We have now finished collecting survey responses and have started analysing the data. We intend to have the results available by the end of the year, so keep an eye on our website for updates. The next step will be the development of our 2013-2015 Policy Platform. The Policy Platform is a document that we develop every two years to highlight our advocacy priorities. Our last Policy Platform was also developed following a consumer survey and identified issues such as better access to health and disability services, and increased workforce participation as two major advocacy goals. The next Policy Platform will be an important tool to help us lobby and advocate for more inclusive government planning and policy development. Another important tool in helping us better engage with our consumers is the Arthritis Victoria Consumer and Community Engagement Strategy. Arthritis Victoria has always been committed to working with our consumers and has traditionally carried out consumer engagement in a number of ways, from meeting with support groups, to consumer conferences and to regional forums. The Consumer and Community Engagement Strategy will make sure we are listening and have a continuing dialogue with you the consumer to ensure you get the most out of our services. Everything we do needs your input. If you’d like to read more about the Strategy, please see the Policy section of our website www.arthritisvic.org.au 22) IF PLE YOU ASE HA TIC VE KA NO Eve LLT TU nts are HATAP SEDA Se PLY too NY rvic . OF exp esa Tra AV e ret nsp ’SS ooe nsive ort ER No xpe VIC serv issue nsiv ES s ice No e ,W s AST s in ervic my HE No lan esf SGIVEN? RE WA s (S) gua orp erv ON AR ge ice Ve eop ATREAS EAS WH s G, n f le ues orp ON LOWIN ofm an Wa eop WH THEFOL y d OF a NY t it le Y? ge ime No ing 23) FORA tim th sare ofmy IFY ECLINED e ED c s ER no Did appyw for UW FAM OUH tco ulture n’tk cou ithA 14)IFYO AVE IL n on: Y rs ve IF no Vse nsi Oth ’SN US YO esa nie U rvic er(p wserv SupportPe nt ret Cam HAVEN EEDS EDAN esin Disability ice oolo lea ? 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(Continued) •Explore the Arthritis Victoria website The Arthritis Victoria website www.arthritisvic.org.au provides a central point of information about the support and services available for people with arthritis, osteoporosis and other musculoskeletal conditions (including downloadable print resources). •Contact the Aged Care Information Line The National Aged Care Information Line (1800 200 422) provides comprehensive information about the Australian aged care system and is a helpful starting point to find out what services or supports might be relevant for you. Similar information is also available in written format via the website www.agedcareaustralia.gov.au 4 Keeping up to date If you would like further information on Minister Butler’s ‘Conversations on Ageing’ meetings or the ‘Living Longer. Living Better’ reforms, please visit the COTA Australia website (go to www.cota.org.au then click on the ‘Achieving Change’ link and choose ‘Current Major Activities’). Additional information about the National Aged Care Reforms is also available from www.yourhealth.gov.au * Data Source: Department of Treasury 2010, Intergenerational Report 2010, Commonwealth of Australia, Canberra. Active living, informed living, living well...for musculoskeletal health Tribute to “a real woman of substance” One of our longest serving supporters and President of the Cranbourne Arthritis Support Group sadly passed away in July at the age of eighty four. Rae Johnson was a tireless advocate for Arthritis Victoria and for all people with musculoskeletal conditions, and has left a lasting legacy in her community. Centenary medal, ‘Fit for Life’ Victorian Senior Citizen, just to name a few. Rae made a huge difference to the lives of those around her, and was passionate about her local community. As an Arthritis Victoria warm water exercise leader she was responsible for having a hydrotherapy pool installed at “Rae was absolutely inspirational,” says her friend of over 50 years, Naree Ide. “She was a born leader and she just cared about people. She was always helping someone - picking them up from hospital, making cups of tea, helping and supporting them in one way or another.” “Even at her service on 24 July, she and her family requested donations to Arthritis Victoria instead of flowers - it was just the kind of thing she would do” said Naree. Not only was she named Arthritis Victoria’s Grandparent of the Year for raising funds for Camp Limber Up, she also received many awards for her community work. An Australian a local aquatic centre, and last year the City of Casey named the pool the ‘Rae Johnson Warm Water Pool’ - what an honor. “She made up her mind a long time ago that she was never going to grow old, sit in a corner and feel sorry for herself that wasn’t for her.” “She just knew how to get the best of everyone - she pushed me to do things I never thought I could do, and she had a love of life," says Naree. Articles have appeared in the local newspapers about her life and her tireless efforts to improve services and facilities in the local area, which will continue to benefit people for decades to come. Local Councillor, Amanda Stapleton, was quoted in the local paper as saying she was ‘a real woman of substance’, which Naree felt summed her up perfectly. Rae is survived by her husband, two children and her grandchildren. She will be sadly missed, but her valuable contribution to her community lives on. Indulge at Peninsula Hot Springs with 30% off! … and soothe away those winter chills! As a member of Arthritis Victoria you are entitled to a 30% discount off the entry fee to the Peninsula Hot Springs public bathing area. Just one hour’s drive from Melbourne the bath house boasts a: •cave pool •reflexology walk •Turkish steam bath •sauna •cold plunge pools •family pools •massaging thermal mineral showers •evening star viewing pools So why not make a day of it and experience the many benefits of the Hot Springs? The 30% discount offer is valid on presentation of your Arthritis Victoria membership details (which you will find on your membership payment receipt) and is available at off-peak times on Tuesdays, Wednesdays and Thursdays (excluding public and school holidays). If you’d like more information on the Peninsula Hot Springs, call on 5950 8777 or visit www.peninsulahotsprings.com Remember to take your Arthritis Victoria membership identification! Update Spring 2012 5 From the doctor’s desk Times are always “a changing” but it’s easy to feel as though the pace of change in life now is faster than ever. For young people, the pace of technological change is a part of everyday life, but for older Australians coping with changes in the way everyday things are done can be more difficult. Contemporary medicine is also a technologically based industry, in the clinic and the hospital, as well as in research laboratories and pharmaceutical companies. As a result, a visit to the doctor today looks and feels different to how it used to, and the treatments offered are also changing fast. This can be confronting for those of us who remember, ‘how it used to be’. In arthritis, a lot of big changes have happened and will continue to happen. First, patients with the most common inflammatory arthritis diseases, like rheumatoid arthritis, have benefited from a range of new medicines. Now, some patients are treated with drugs unimaginable 20 years ago, and even the use of these drugs involves automatic pen-injectors, webbased information centres, and so on. It is likely that these technology-sourced medicines will increase in use in the coming years, so doctors have a duty to ensure that they are communicating effectively to all their patients. But there are also things that you can do as a patient to ensure you are maximising your own understanding of any illnesses you may be living with. Many younger patients attend the doctor having already ‘Googled’ their symptoms on the internet, and respond to advice about a diagnosis or treatment recommendation with information of their own. Older patients who haven’t grown up with these technologies may be missing out on sources of information that other patients take for granted. While it can seem daunting, the very best technology now makes access to information easier, not harder. Children as young as 3 can work out how to use a device like an iPad because it is designed to be userfriendly, not intimidating, and I think many older patients can embrace these tools to empower them in managing Professor Eric Morand their own health. While there PHD FRACP MBBS (HONS) is plenty of misinformation out there on the world-wide-web, reputable sources of excellent health information are easily available, so long as you know where to look. Websites like that of Arthritis Victoria is just one example. After all, times are not going to be “a changing” back, so we might as well go forward together. Professor Eric Morand - PHD FRACP MBBS (HONS) Head, Southern Clinical School Monash University Faculty of Medicine, Nursing & Health Sciences If you have been recently diagnosed with arthritis, osteoporosis or another musculoskeletal condition or would like information on what Arthritis Victoria can do for you, please call our free Telephone Information Service on 03 8531 8000 or 1800 011 041 or call our Rheumatology Help Line on 1800 263 265. Great online resources Ageing well: Jean Hailes for Women’s Health www.ageingwell.org.au This is a guide to living a longer and healthier life. It’s never too late to improve your physical and emotional wellbeing, or to take control of your eating habits and get active. Ageing well also provides ‘My health tools’, which includes information about health checks, a weekly activity diary and information about medical research. COTA Victoria www.cotavic.org.au COTA is the primary organisation representing the interests of older Victorians. This site provides information about upcoming seminars and workshops, senior’s rights, advocacy work and more. National Institute on Aging - US Department of Health & Human Services www.nia.nih.gov This is a great site with lots of information related to ageing, including news, current research, and information on specific health conditions. Healthy Aging - Centers for Disease Control and Prevention (USA) www.cdc.gov/aging This American Government site provides useful information and tools for health ageing. Seniors Online Victoria - Victorian Government www.seniorsonline.vic.gov.au An online community filled with useful information for older people in Victoria, this site has information on the Seniors Card, festivals, information on healthy and active ageing, and services and resources for older Victorians. 6 Active living, informed living, living well...for musculoskeletal health Advocating for better public transport access What is the Public Transport Access Committee? The Public Transport Access Committee (PTAC) has been formed by the Victorian Minister for Transport, Terry Mulder, to provide advice to government on issues involving equality of access to public transport for people with disability issues. Who is on the Committee? The membership is made up of a mixture of people from a diverse range of disability sectors and includes the Vice President of Arthritis Victoria, Noel Smith, who has been appointed interim chairman of PTAC until a full appointment is made by the Minister for Transport. Previously Noel represented Arthritis Victoria on the committee. Nominations for membership were advertised seeking individual members, not organisational members. What does PTAC do? PTAC examines barriers encountered by people with disabilities and mobility difficulties when accessing public transport. The Committee has the opportunity to affect the planning of future transport infrastructure, and to advocate for equipment that is fully accessible. It does this by providing relevant strategic advice to the Minister so that it is included in the future decision making of all forms of public transport. community. The people that Arthritis Victoria represent make up one of the largest groups of people with mobility difficulties who use and depend on fair access to public transport and transport infrastructure, which is why we have been represented on the Committee over the past 10 years. The Committee is a wonderful example of the influence that consumers can have over current and future issues affecting the entire disability What has the PTAC achieved? Over the decade that Noel Smith and Arthritis Victoria has been involved in PTAC, there have been many improvements made to public transport access. suit your o t h c t e r t f s oot y e ! Th Comfort Shoes Insoles (off the shelf / custom made) Compression Stockings Custom Footwear DVA Approved Supplier Shoe Modification Professional service Ankle & Knee braces, Orthotics Heidelberg Orthopaedics 88 Bell Street, Heidelberg Heights VIC Ph: 03 9458 2006 Mon-Fri 10am - 4pm Sat 10am - 2pm Arthritis Victoria was a prime mover in the incorporation of distance information being added to directional signage, which can be seen throughout the public transport system with most directional signage now inclusive of distance to destination. For example, signage directing people to accessible entrances accompanied by a distance indicator (600 metres to Elevator). Noel Smith was sponsored by the Department of Transport and the Minister for Transport to present a paper on this issue at an international conference in Hong Kong in 2010. This paper also encouraged the conference secretariat to include consumer representation as an integral part of future conferences, and the next conference in Berlin in 2013 will have consumer issues as a full topic for the conference. If you have an issue with transport accessibility give one of our Advocacy team members a call on 03 8531 8000 or 1800 011 041 or email [email protected] Update Spring 2012 7 Take our new website for a spin www.arthritisvic.org.au 8 Members, consumers, rheumatologists, staff and volunteers have combined their thoughts and experiences to help us build a completely new website – a website that’s all about you. research at Arthritis Victoria, we have the latest statistics, as well as information on how you can get involved in other research projects. By clicking on the drop-down box in the centre of homepage you can access information about musculoskeletal conditions and the ways you can manage your condition. We also have a featured items section where we will promote new courses, products, news stories, or anything we want to share with you. You can also access information about your condition by clicking on the Conditions & Symptoms tab at the top. Beside this tab is one for Courses & Events. You can see all of the events that are coming up, as well as the important stuff like cost, location and times. And now you can book your place online! At the bottom of every webpage is a grey footer, where you can access information about Arthritis Victoria, our programs and services, information on how to visit us, information in languages other than English, a form to complete if you would like to send us some feedback or ask a question, or subscribe to our online newsletter. The final tab at the top is Research. When we ran our focus groups, research came up again and again as something people wanted to see on our site. As well as information on current You may also notice that some words on the pages will appear in blue and are underlined. By rolling your mouse over these words, you will see a definition appear in a small box. On all pages there is a panel to enable you to •access the Arthritis Map •become a member •contact the library •access the Telephone Information Service and Rheumatology Help Line, as well as links to other useful sites. Above all, we hope that the new site reflects the needs of our community and we will be continually working to improve it. So let us know what you think. We value your input. Active living, informed living, living well...for musculoskeletal health Policy Our say on the Victorian State Disability Plan Many of you may have heard about a National Disability Insurance Scheme (NDIS) in the media recently. In the May Federal budget the Commonwealth Government committed $1billion (over four years) to the first stage of an NDIS. The initial rollout has been scheduled to commence from July 2013 (for the latest information, visit www.ndis.gov.au). In the meantime, Arthritis Victoria is pleased that the Victorian Government has been thinking about other, more immediate, disability reforms for our state. Improvements to the state disability system could mean that you are able to access services more easily or that you might be eligible for more financial support. In June, the Department of Human Services released a Draft Victorian State Disability Plan 2013-16 (copies of the Plan and latest information are available from www.dhs.vic.gov.au/statedisabilityplan). The Plan outlines a four year vision to create “an inclusive Victorian society that enables people with a disability, their families and carers to fulfil their potential as equal citizens”. Six principles were selected for the plan, including ‘fairness’, ‘certainty’, ‘sustainability’, ‘simplicity’, ‘choice’ and ‘self determination’. Arthritis Victoria recently attended a consultation on the Plan and submitted a written response, based on the common things people with arthritis, osteoporosis and other musculoskeletal conditions talk to us about. We thought the Plan was good overall, but we had feedback on some important areas that we felt needed more consideration. The main issue we focused on was expanding the new definition of ‘disability’ across all government departments, so people with ‘episodic disability’ don’t miss out. We are concerned that several other government departments still use older definitions of ‘disability’, which are often based on confusing and inconsistent lists about what is (or is not) considered a ‘disability’. Arthritis Victoria is pleased with the new ‘disability’ definition put forward by the Plan “a person who has an impairment that affects their physical, mental, intellectual or sensory function; who may encounter barriers to using the mainstream system in the same way as everyone else”. We like the fact that the new definition focuses more on the person (not which conditions they have) and thinks about how well they can function when doing their day-to-day activities. Arthritis Victoria realises that many people with arthritis, osteoporosis and other musculoskeletal conditions have periods where they feel quite well, then other periods when their pain or other symptoms are worse (i.e. ‘episodes’ of increased disability). It can be difficult to continue working or to stay involved in social activities during these periods, and access to extra help could make a big difference. We encouraged the Victorian Government to embrace the new definition of disability across the whole of government, so that people experiencing an episode of ‘disability’ can access the right supports and services at the right time and keep active. To read our submission, a full copy is available for download on our website (go to www.arthritisvic.org.au and search for ‘state disability plan submission’). We would love to hear your thoughts and comments so that we can keep representing you at the various policy forums coming up. Call us on 03 8531 8000 or 1800 011 041 to speak to one of our Advocacy team members. Research Reducing falls through exercise Could taking regular Pilates classes reduce falls as people age? A new Monash University research project, which will work with 80 community-dwelling participants, aims to find out. Previous research has shown 25% of people in their 60’s and 40% in their 70’s, suffer at least one fall each year. The good news is that frequent challenging exercise can reduce the rate of falling by up to 42%. The Monash research project aims to determine the impact of a physiotherapist-delivered Pilates program on falls, standing balance and bone mineral density (BMD) in older people identified as being at high risk of falls. The university is seeking participants for the study with low bone mineral density. All participants will be required to attend three physical assessments over a six month period at The Alfred Centre. Some participants will also be required to have a DEXA (Dual Energy X-ray Absorptiometry) scan. We will be following the study and reporting back on the findings when they are released. If you are interested in taking part in the study, please contact Monash directly on 03 9903 0999. Update Spring 2012 9 Getting to know our staff Left to right: Christine Pappon and Genevieve Nolan Genevieve Nolan, Programs Manager, Arthritis Victoria Christine Pappon, Programs Manager, Arthritis Victoria Genevieve has been in the thick of community issues and education throughout her career. She's been a primary school teacher, a policy officer with BreastScreen Victoria, and a manager with the Department of Health. Since starting with Arthritis Victoria one year ago, she has worked to enhance our training programs and increase the information and support provided to health professionals and consumers. Here, she tells us why she feels chronic disease and pain need to be higher on everyone's agenda. Chris has had many roles in the health and human service fields throughout her career. She started her career as a nurse which then led to many years working as a podiatrist, followed by post graduate qualifications in professional education and training. Her vast experience in the community sector has included working for Community Health and the Housing and Homelessness sectors. This has given Chris firsthand experience of how musculoskeletal conditions can impact people's lives. She has met many of our volunteers since joining us late last year and is helping to continue to improve our peer support programs. The prevalence of musculoskeletal conditions in our community is a big issue. About one-third of the population suffers from them, yet the level of disability and pain and the impact on people's quality of life isn't always well understood. The more we increase the knowledge that health professionals have of what people face when they have these conditions, the better. In my role I've noticed how the community seems to accept arthritis as a natural part of ageing, when it doesn't have to be. We shouldn't just accept the idea that, "I'm getting old and I have to put up with pain". One of the challenges we have in educating health professionals and the community about musculoskeletal conditions is that they are often accompanied by other chronic health issues. When a person goes to a community health service or doctor, they may not just have one health problem (high blood pressure etc) they are often suffering from multiple chronic illnesses. So, we have to acknowledge that this is a challenge for health professionals. Therefore, part of my role is to improve the working relationships with other chronic disease organisations so that we are not just all pushing our own barrows. We need to establish improved working relationships with these other organisations so we can have some combined chronic disease approaches via better partnerships and collaboration. We are a small organisation so we need to be strategic in the way that we undertake programs. In my ideal future, I'd like to see health professionals and service providers with the necessary skills and knowledge to better meet the needs of people with musculoskeletal conditions and chronic disease more broadly. I believe this will be achieved by chronic disease organisations collaborating more so that we get the best overall approach to chronic disease and pain management. 10 In December 2011 I started work with Arthritis Victoria. I oversee the management of our 65 peer support programs across the state, which have well over 2000 members. I also manage the volunteer programs including the Telephone Information Service and Community Speakers Program, as well as our library and print resources. Our Rheumatology Help Line, which is staffed by registered nurses, is a fantastic resource for people – especially those who are isolated by distance or an inability to travel. I'm also involved in our health inequalities program, which was established to ensure that programs across Arthritis Victoria address inequalities such as language or cultural barriers. We work in the youth and family services space as well, and part of my job is to review what we do here and determine how we can best help children with juvenile arthritis and their families. As with any not-for-profit organisation, we are working with fewer resources than we'd like. Our challenge is to develop more partnerships with organisations to look for opportunities to work together to improve our range of services to help families. I am constantly astounded by the commitment of our many volunteers – some of them have given an enormous amount of their time over decades. On top of this, many of our volunteers are living with a musculoskeletal condition themselves or have a significant person in their lives who is. Yet, this doesn't hold them back. I think that's pretty inspirational. Active living, informed living, living well...for musculoskeletal health Widening ‘our web’ We all know health professionals and service providers have heavy workloads, so it is not always easy for them to take time away from their work commitments to attend conferences, seminars and other training opportunities. Devising different ways to reach the people in our health and community care workforce is important if we are to convey key messages around the issues faced by people with arthritis, osteoporosis and other musculoskeletal conditions. For this reason, Arthritis Victoria was pleased to conduct its first webinar (web-based seminar) in July with Professor Michael Nicholas, a clinical psychologist and the Director of the ADAPT Pain Management Program at Royal North Shore Hospital in Sydney. The webinar was titled ‘Confronting Chronic Pain: Self Management Is Easy To Say, But What Works?’ In the webinar, Professor Nicholas outlined how teaching self management skills to people with chronic health conditions is frequently harder than it looks for health care providers. While the idea of self management sounds easy, implementing it is often difficult and there are obstacles to overcome. Professor Nicholas reviewed evidence for the importance of self management on health outcomes and outlined strategies that have proved effective in enhancing self management in practice. The webinar was viewed by over 50 people from as far afield as Tasmania, Queensland and Western Australia. Participants and staff at Arthritis Victoria are already in the process of considering other topics for future webinars. If you have a topic you would like us to explore, please send us an email [email protected] or call us on 03 8531 8000 or 1800 011 041. What is a webinar? A webinar is a presentation, lecture, workshop or seminar that is transmitted over the Web or Internet. A webinar allows communication between one presenter and many participants, many of whom may be spread over a very broad geographical area (for example, throughout Australia or even the world). Independent Living and Rehabilitation Centre Arthritis Victoria Members receive a FREE GIFT with purchase Your one stop shop for Arthritic Aids and Appliances Household Gadgets Aluminium Reachers, Tap turners, Door handle Covers, Long Handled Combs, Kneeling Aids, Key Turners, Jar Openers, etc. Eating and Drinking Accessories, Dressing and Grooming Aids. Heat Therapy Thermic Supports Heat Retaining Neoprene supports for Wrists, Ankles, Knees, Elbows, Calves, Thighs and Back. Provide warmth and support during those cold winter months. Goodgrips Range of Kitchen and Gardening Utensils Winner of the 1993 Tylenol/American Arthritis Foundation Design Awards. “These products have truly made a difference to people with arthritis because they enable them to manage their illness and perform daily activities.” Stated Armin U. Esq American Arthritis Foundation Chairman, October 5, 1993. 501 NEPEAN HIGHWAY, BRIGHTON 3186 PHONE: (03) 9591 6234 FAX: (03) 9591 62292 www.shhc.com.au Update Spring 2012 11 Need information, advice and ideas about how to age well? Let the Arthritis Map…‘do the walking’! The Arthritis Map of Victoria is a practical, interactive online tool that can assist in preventing or managing chronic musculoskeletal conditions by helping you to quickly locate the programs and services you require. You are also able to print door-to-door directions to help find these services. To see what the Arthritis Map of Victoria can offer, why not try it now through www.arthritisvic.org.au You will be amazed at just how much information is available to you. ‘Waves’ Classes We conduct warm water exercise classes at 19 locations around metropolitan Melbourne. Warm Water Pools Warm water exercise is highly beneficial for people with arthritis and many other musculoskeletal conditions and is available at many local pools. Tai Chi for Arthritis (TCA) TCA is effective in decreasing pain, stiffness and fatigue, as well as improving functioning in everyday activities. Strength Training Strength training (or resistance or weight training, as it is sometimes called) involves the use of weights to build muscle strength and endurance. Community Health Services (CHS) With over 120 locations around Victoria, CHS offer a range of programs covering physical activity, nutrition, self management and many other key health and social issues. Neighbourhood Houses Neighbourhood houses provide a range of communityrun activities that will allow you to meet other people in a relaxed and friendly atmosphere. You can find your local Neighbourhood house by visiting the Map. Public Internet Locations Need access to the Internet? There are over 300 public internet locations around Victoria, including local libraries. Allied Health Services Do you need to visit a physiotherapist, exercise physiologist, nutritionist, dietitian, social worker or other allied health worker? Their locations and contact details are available via the Map. Medicare Offices More than 55 Medicare offices are located in various parts of metropolitan Melbourne and regional Victoria. 12 Active living, informed living, living well...for musculoskeletal health The Arthritis Map will help you find doctors, support groups, community health services and anything else you can think of to make living with a musculoskeletal condition easier. Once you select the service you are looking for, the locations across the state will be marked with coloured dots. Update Spring 2012 13 My Story: Age is no barrier He has been a member of Arthritis Victoria for almost three decades, and a leader in our 'Waves' warm water exercise program for most of that time. He may be nearing his 90th birthday, but nothing can dampen Allan Stewart’s passion for living a full life and helping others. Allan’s story About 28 years ago I started having health problems and I went to doctors to find out what was wrong. They thought I had shingles! In the end, the only thing that came up in my blood tests was rheumatoid arthritis, but the doctor didn’t think this was a problem. It was only when I was on holiday in Adelaide that I saw some information about Arthritis Week and thought that I needed to look into it further. That’s how I became involved with Arthritis Victoria and began to educate myself about looking after my health. Once I got the information I needed, I got involved in the warm water exercise program and never looked back. As a leader in the Waves program since 1986, and a volunteer on the Telephone Information Service, I see that the exercise programs have both physical and social benefits. You speak with people of all ages and share stories and tips about managing your health. The classes are just great for the community and helping people connect and support each other. Most of the Waves program leaders have some kind of musculoskeletal condition themselves, so they understand what participants are managing in their day-to-day lives. Often, when people first attend a Waves class they are really surprised what a difference it makes to their mobility. I noticed a major improvement as soon as I got in the warm water. You can move so much easier and the pain factor immediately goes down. We’ve got some people who come in a wheelchair and they will get in the pool and after a few weeks you just notice a huge improvement. This is what keeps me going with it - seeing the difference it makes to people. It can be really difficult to start off, and our leaders understand this. People can be in a pain cycle, and the warm water makes it easier to start breaking that cycle. My advice to people is to take it a bit easy first off. You need to build up your mobility over the weeks and our leaders’ personal experiences will help you do this. Over the 28 years I’ve seen a lot of change in the program. We have better pools and facilities and the classes are now very widely available for people of all age groups. I see myself doing this well into my 90’s! If you’d like to find out about Waves classes in your area and to receive an enrolment form, please give us a call on 03 8531 8000 or 1800 011 041. Learn how to manage your arthritis or musculoskeletal condition Stay healthy and keep active by attending an Arthritis Victoria course or seminar. You can access our community programs and activities calendar at www.arthritisvic.org.au or by calling 1800 011 041 14 Active living, informed living, living well...for musculoskeletal health Improving Training for Home and Community Care We are delighted to be undertaking a project for the Home and Community Care (HACC) program within the Department of Health, Victoria. The purpose of the project is to develop and trial a training resource for HACC assessment staff that will improve their awareness and knowledge of arthritis, osteoporosis and other musculoskeletal conditions. The Victorian HACC program provides services to support frail older people, younger people with disabilities, and their carers. These services provide basic support and maintenance to people living at home and whose capacity for independent living is at risk of premature or inappropriate admission to long-term residential care. The HACC program is funded jointly by the Australian and Victorian governments. Local government, health services, community health centres and district nursing services represent most of HACC service providers in Victoria. The assessment staff within the HACC program play a vital role in connecting people in the community to the services and supports they require to live as independently and autonomously as possible. In this way, the assessment staff are at the ‘frontline’ of the HACC program and it is important that they have a good basic knowledge of the needs and issues affecting the lives of people with arthritis, osteoporosis and other musculoskeletal conditions. This is especially important given the high number of people with musculoskeletal conditions in the Victorian community. We are very pleased that the Department of Health has shown their trust in Arthritis Victoria by contracting us to develop this training program. Arthritis Victoria is bringing the consumer perspective and its extensive training experience to the task of developing and trialling a training resource for the HACC assessment staff. We have been consulting with HACC assessment staff to ensure that the training resource provides comprehensive information about musculoskeletal conditions, and that it meets the ‘on the job’ needs of HACC assessment staff. If HACC workers don’t understand our consumer needs, then people can miss out on essential services. The current project is expected to be completed in December and it is hoped that the Department of Health will then roll-out the recommended training in 2013. What’s on Sowing the Seeds On 17-19 September, the annual Farmer Health Conference will be held in Hamilton, Victoria. The theme of this year’s conference is Sowing the Seeds of Farmer Health, which aims to educate and engage health and agriculture professionals to raise awareness and develop strategies to improve farmer health, well-being and safety. Gavin McDonald, Senior Policy and Planning Advisor at Arthritis Victoria, will be attending the conference and presenting on the Arthritis Victoria scoping study of Rheumatology Services in Rural and Remote Victoria project. of One ia's r Victo est larg es rang To find out more about farmer health, or to attend the conference, visit www.farmerhealth.org.au Raising awareness: Elmore Field Days To raise awareness of musculoskeletal conditions, one of the leading causes of pain and disability for Victorians, Arthritis Victoria will take part in the 2012 Elmore Field Days which will be held from the 2 - 4 October. Reaching people across Central Victoria and Southern New South Wales, Elmore is one of Australia’s premier agricultural Field Day events. Our presence over the three days will provide people across the region with information about arthritis, osteoporosis and other musculoskeletal conditions, as well as services available at Arthritis Victoria. Celebrating seniors The 30th annual Victorian Seniors Festival is coming up from the 7 - 10 October, again celebrating the inspiring contribution of older Victorians. This year, Arthritis Victoria will take part in the Opening Day at Federation Square, where we will provide a broad range of information about musculoskeletal conditions, as well as the services we offer and helpful tips to help those living with these conditions. Festival events include ‘Nordic Walking’ at both Caulfield Park and Rippleside Park in Geelong, and a ‘Living Well with Arthritis’ seminar at the Melbourne Town Hall. CHLORINE RESISTANT FLAMINGO SWIMWEAR Lasts 5 times longer than regular bathers! MAIL ORDER WELCOME 100% SATISFACTION GUARANTEE 10% DISCOUNT FOR SENIORS 314 CENTRE ROAD BENTLEIGH VIC 3204 Mel Ref 68 D12 Phone 03 9557 9812 www.flamingoswimwear.com.au For more information on the Festival, visit www.seniorsonline.vic.gov.au Update Spring 2012 15 Giving Back – Fundraising Putting the ‘fun’ into fundraising! Over the past few months we have had a number of our members, peer support groups, retailers and supporters fundraising for us. They have shown that donating to Arthritis Victoria can be fun, interesting and a great social outlet. Here are just a few of the ways people and organisations have raised money for us recently. From all of us here a big thank you for their huge effort in making a difference! Grill’d Burgers Elsternwick Throughout April, customers who purchased a burger received a token to put into a jar of their nominated charity – Arthritis Victoria was one of the charities nominated. This was a ‘tasty’ way to not only raise money but also raise Arthritis Victoria’s profile amongst the local community. kikki.K Knox Customers were recently treated to Swedish cookies and refreshments at the kikki.K store at Knox City and kikki.K Knox generously donated 20% of all sales made during a four hour sales blitz on a Thursday afternoon. Thanks to kikki.K Knox and to all that mentioned Arthritis Victoria when making a purchase! Aveo Veronica Gardens Retirement Village After hearing a Community Speaker, the residents of Aveo Veronica Gardens decided to donate the proceeds from the entry fee of the ‘In Bloom’ art exhibition to Arthritis Victoria. Money was also raised through a raffle and collection tins. Thanks to everyone that participated! Mullet Impossible? Alec, a 20 year old supporter of Arthritis Victoria, certainly took fashion and fundraising to another level - by reshaping his locks into the shape of a 1970’s mullet. His family, friends and retailers sponsored this transformation. A fantastic effort in raising funds for people with musculoskeletal conditions. Gloria Jean’s Coffees and guests unite to support Arthritis Victoria! During the month of July, Gloria Jean’s Coffees in Caroline Springs participated in With Heart Local by hosting events to raise funds to help support Arthritis Victoria. Living with arthritis became an every-day reality for Fiona (the franchise partner) when her son, Tyson, was diagnosed with juvenile arthritis at just two years old. Some of the fun activities included face painting, plaster mould painting, biscuit decorating and a lucky raffle draw. What a fantastic effort to support Arthritis Victoria and raise much needed awareness. If you are considering fundraising activities and have any questions on how to go about it, please give Gabi Massey a call on 03 8531 8011 or 1800 011 041 and she will be happy to give you some advice and possibly provide some additional resources to help in your fundraising efforts. 16 Active living, informed living, living well...for musculoskeletal health Ask the Rheumatology Help Line How can it help me? Who can help? Our nurses on the Rheumatology Help Line get lots of calls from people with arthritis, osteoporosis and other musculoskeletal conditions in need of assistance with the activities of daily living - for example, how to remove lids from jars or turning taps on and off. An Occupational Therapist can do home visits to provide education and make recommendations on increasing home safety and independence . You can also visit an Independent Living Centre. They have a range of equipment on display and you can get information on where to purchase what you need. Occupational Therapists are available for advice but it is best to call the telephone enquiry service first. Telephone 03 9362 6111 or email [email protected]. Centres are located in Brooklyn and Blackburn. Being diagnosed with a musculoskeletal condition can be life changing. Simple daily tasks can become difficult and painful, while managing family life and juggling work can be exhausting. Adjusting isn’t always easy. But there are many people, services, products and benefits that can help. Some practical changes to your home and lifestyle can make managing at home much easier. Disability varies depending on the condition you have. For some people their grip weakens and it becomes hard to do fine movements such as doing up buttons or tying shoe laces. Turning on taps and opening jars and bottles can be difficult as can bending down to reach things. Sometimes, by doing things another way, you can reduce the pain in your hands. You might use two hands to pick up items or use a tap turner to make it easier to grip the tap. Other people may change the taps that they use frequently to mixer taps. These are examples of ‘joint protection’. It doesn’t mean you should stop using your joints. It just means that you should use them differently to reduce the amount of stress on them. It is important to remember to look after yourself – take regular breaks during an activity, use larger, stronger joints. For example, carry shopping over your shoulder rather than in your hands. Use labour-saving tools and equipment or buy pre-cut vegetables and meat to make cooking easier. Let your family know what tasks you find manageable and difficult, and spread the load if necessary. There are many innovative products to assist people who have arthritis or disability due to ageing. Some can make gripping and holding objects easier such as jar, bottle and can openers as well as large grip can openers, vegetable peelers, long handled shoe horns and easy grip scissors for cutting toe nails. Many are available for sale from Arthritis Victoria. See our website www.arthritisvic.org.au for more information, or phone on 03 8531 8000 or 1800 011 041. What is SWEP? The State Wide Equipment Program (SWEP) provides people with a permanent or long-term disability with subsidised aids, equipment, oxygen, continence aids and vehicle and home modifications. SWEP aims to enhance the independence of people with a disability in their own home, facilitate their participation in the community and support families and carers. Who is eligible for assistance under SWEP? You may be eligible for assistance under SWEP if you: •have a permanent or long-term disability, are frail aged, and are living independently in the community •require aids and equipment, or home and vehicle modifications from the aids availability list on a permanent or long-term basis •are a permanent Victorian resident For more information about the eligibility criteria contact: State Wide Equipment Program PO Box 1993 Bakery Hill Vic 3354 Phone 1300 747 937 or 03 5333 8100 Fax 03 5333 8111 Between 8.30am to 5.00pm Monday to Friday To discuss your requirements call the Rheumatology Help Line on 1800 263 265 to speak to one of our nurses. Our nurses can provide you, your carers or health professionals with the following information and can help with: •General medical information about arthritis, osteoporosis and musculoskeletal conditions and treatments •Assistance with navigating health, disability and social service systems •Support and advice regarding the diagnosis of a musculoskeletal condition •Information on local community services •Information and support to health professionals providing care for people with musculoskeletal conditions Our Rheumatology Help Line nurse Anne using the Arthritis Map Update Spring 2012 17 Speaking the language of health It can sometimes be difficult to understand the information provided by health professionals – and when you add to this the inability to speak English, the problem becomes even more complex.To spread our health messages far and wide, we have been working in partnership with the Multicultural Centre for Women’s Health. Together, we created the Bilingual Health Educator project, which has delivered musculoskeletal health information sessions to people from culturally and linguistically diverse communities across Melbourne. information sessions to several groups at the Moorleigh Multicultural Senior Citizens Centre in East Bentleigh. The Centre provides a range of fantastic services for seniors from various cultural and linguistic backgrounds, including: We have now completed the two-day training program for five ‘Bilingual Health Educators’ who are fluent in Russian, Mandarin, Italian, Vietnamese and Greek. There has been high interest in the sessions so far, and the educators have enjoyed broadening the reach of our health information and support networks. Since completing the training, the educators have delivered •Activity Groups •A Chinese Elderly Social Support Program •English Classes •Strength Training Exercise Classes The importance of peer support Peer support can significantly improve wellbeing for people with arthritis, osteoporosis and other musculoskeletal conditions, as well as their families, friends and carers. We know how important peer support is to our networks, which is why we’re conducting a review of the 65 Peer Support Groups that we currently facilitate across the State. The aim of the project is to identify ways to provide the best possible support, advice, information and activities. As a starting point, we will be looking at the composition and activities of the Peer Support Groups currently affiliated with us, and obtaining feedback from participants. At the end of the process we hope to make recommendations to improve support for, and resourcing of, Peer Support Groups, including what should be contained in the ‘Peer Support Group Guide’. Sharon Clifford, a research student who is currently studying for a Diploma of Community Development at Chisholm Institute is assisting us with this project. Peer Support Group Leader Lunch 2012 Sixty people from 22 Support Groups across Victoria came together at Arthritis Victoria to hear about what’s happening in other Peer Support Groups, to share ideas and learn from each other. The day was a great success with overwhelmingly positive feedback. Our leaders are looking forward to coming back again next year. Peer Support Group Leaders enjoying lunch at Arthritis Victoria 18 Active living, informed living, living well...for musculoskeletal health When opportunity knocks Our dedicated volunteers are enjoying the “new look” Opportunity Shop which opened just after Easter. The Shop has been freshly painted, has new carpet but it has the same hard working and cheerful staff. Many items have been reduced by 50% so why not call in and grab a bargain! You’ll find the Shop at 1428 High Street Malvern and it is open between 10am to 4pm Monday to Friday and 9am to 1pm on Saturdays (closed public holidays). If you have saleable items in good condition, please bring them over to the Shop – we appreciate your generosity. Your pre-loved items can make someone else’s life a bit easier! Would you like to help? We are always looking for volunteers to staff the Shop, so if you think you can lend a hand, please call Sarah-Jane Blunt on 03 8531 8046 or 1800 011 041. Dedicated volunteers Elsa, Renate (shop manager) and Jane Memorial gifts The family and friends of the following people have marked their passing by making donations in their name to support the work of Arthritis Victoria. Mrs June Tanner Mr Eric Anderson Mrs Cassie Westlake Mrs Carolyn Ford Mrs Lib Morrison Mrs Gertrude Tiley Mrs Joyce Fletcher Mr Vincenzo Tortomano We gratefully acknowledge this support and join in the commemoration of the lives of these valued members of the community. For more information on memorial gifts, contact Laraine Shea on 03 8531 8014 or [email protected] THE ABRECHT HINGED RING® At last there is a really practical solution for those many people who have been unable to wear their rings due to finger swelling. Abrecth Bird Jewellers have developed a ring with a special unobtrusive clasp which opens the ring, thus allowing it to be fitted around the f inger and then closed, it actually bypasses the knuckle. An inbuilt safety catch ensures reliability. Unlike other methods, this system is specially designed not to snag or stand like a hinge. Level 2, 227 Collins Street, Melbourne, 3000 Phone: (03) 9650 3830 Fax: (03) 9650 0695 Email:[email protected] Name Address Postcode Phone Update Spring 2012 19 Coming up in October – December 2012 If you would like information on any of our programs, courses and events or would like to register, please call us on 03 8531 8000, 1800 011 041, email [email protected] or visit www.arthritisvic.org.au Community Programs and Activities Cost: $75.00 ($10 for an accompanying support person) Seniors Week - Arthritis Victoria’s Events This course is for you if you have one or more chronic conditions and would like to develop skills to better manage your health, such as managing your symptoms, working with your health care team, goal-setting and problemsolving. A support person is welcome to attend the course with you. When: Monday 8 October – Thursday 11 October Time: 11:00am – 12 Noon Where: Caulfield Cost: Free When: Friday 12 October Time: 1:00pm – 3:00pm (on the hour) Where: Geelong Cost: Free ‘Come and Try’ Nordic Walking sessions. Originating in Scandinavia, Nordic Walking is a form of physical activity that involves the use of specially designed poles and a walking technique to engage the upper body. Incorporating the upper body in walking has many benefits including increased muscle tone of the upper body, improved posture and balance and an increase in kilojoule burning making it ideal for people with musculoskeletal conditions. Regional Seminars When: Saturday 13 October Time: 1:00pm – 4:00pm Where: Geelong Cost: $5.00 When: Wednesday 24 October Time: 1:00pm – 4:00pm Where: Yarra Junction Cost: $5.00 Arthritis Victoria engages with rural and regional communities to provide public seminars to help people with arthritis, osteoporosis and other musculoskeletal conditions and their support people to better manage their health. These seminars are often arranged in conjunction with the Arthritis Victoria Peer Support Groups and other community groups. Better Health Self Management When: Thursday 18 October – Thursday 22 November Time: 6:00pm - 8:30pm Where: Elsternwick 20 Nordic Walking Peer Leader Training Warm Water & Chair-based Exercise Leader Training When: Friday 26 October – Sunday 28 October (9:30am – 4:00pm) and Sunday 9 December (9:30am – 3:30pm) Where: Elsternwick Cost: $580.00 (combined) $484 (warm water or chair-based) Our course allows participants to master the basic Nordic Walking technique. It is suitable for people who are able to walk for at least 10 minutes without a walking aid. Suitable for health professionals, human movement and sports science graduates and fitness instructors. This program enables participants to develop their skills and knowledge to run safe and effective warm water and/or chair-based exercise classes for people with chronic musculoskeletal conditions. Participants may enrol in either one or both components of the program. ‘People of Working Age’ Seminar Warm Water and Chair-Based Exercise Leader Update When: Saturday 17 November Time: 1:00pm – 5:00pm Where: Melbourne Cost: $15.00 Where and when: Hamilton: Tuesday 16 October (10:00am – 3:30pm) Sale: Tuesday 20 November (10:00am – 3:30pm) Elsternwick: Sunday 2 December (10:00am – 3:30pm) Cost: $150 (combined) $100 (warm water or chair-based) When: Thursday 1 November – Thursday 6 December Time: 2:00pm - 3:00pm Where: Elsternwick Cost: $75.00 (inclusive of pole hire) Each year, Arthritis Victoria holds a seminar specifically for people with musculoskeletal conditions and of working age. Apart from covering a range of topics of interest, the seminar provides an opportunity to meet other people and share common experiences. Trained leaders are required to attend a leaders’ update every two years to advance their knowledge and skills in running safe and effective warm water and/or chair-based exercise classes for people with musculoskeletal conditions. Participants need to have completed the initial three-day leader training program. Tai Chi for Osteoporosis Leader Training Where and when: Elsternwick: Saturday 13 October – Sunday 14 October (9:00am – 5:00pm) Wodonga: Saturday 1 December – Sunday 2 December (9:00am – 5:00pm) Cost: $412 Active living, informed living, living well...for musculoskeletal health Limbering Up! Tai Chi for Arthritis Leader Training Where and when: Geelong: Saturday 27 October – Sunday 28 October (9:00am – 5:00pm) Elsternwick: Saturday 24 November – Sunday 25 November (9:00am – 5:00pm) Cost: $412 These courses enable participants to learn how to safely and effectively conduct Tai Chi for Osteoporosis (TCO) classes for people with osteoporosis and other musculoskeletal conditions. Tai Chi for Arthritis Leader Update Training Where and when: Geelong: Friday 26 October (9:00am – 5:00pm) Wodonga: Friday 30 November (9:00am – 5:00pm) Cost: $195 Nordic Walking Leader Training When: Tuesday 30 October – Wednesday 31 October (9:30am – 5:00pm) and Tuesday 4 December (9:30am – 3:30pm) Where: Shepparton Cost: $350 To train people who are working in the community or are associated with community and self help groups with the necessary knowledge to lead successful Nordic Walking groups. Better Health Self Management Leader Update When: Thursday 15 November Time: 10:00am – 3:30pm Where: Elsternwick Cost: $103 Our annual Camp Limber Up was held at Camp Wilkin in Anglesea during April, and this year 81 family members along with three volunteers and four staff attended. and Environment team were a big hit with both kids and parents. We all learnt about the incredible creatures living along our Great Ocean Road coastline, and the importance of protecting this unique environment. The camp was made possible with the help of our three dedicated volunteers Stu, Fiona and Monique, and we hope that the friendships and support networks developed over the weekend continue on for many years to come. Camp Limber Up 2012 was supported financially by: •Challengers 623 Group Kids learning about the coastline environment The weekend was a great mix of activity and discussion, with our CEO sharing a BBQ dinner with the families to hear their stories. We were also joined by Dr Roger Allen, a Paediatric Rheumatologist from the Royal Children’s Hospital, who delivered two informative sessions on Juvenile Arthritis - one for kids and their siblings, and a separate session for parents. The mountain bike rides, picnics, bush walks and a hands-on beach discovery session led by the Eco Logic Education •Cranbourne Arthritis Support Group •Latrobe Valley Self Help Arthritis Group •The Marian & E H Flack Trust •Warragul Arthritis Self Help Group Our thanks to all of these groups for making Camp Limber Up 2012 such a success! If you would like to contribute towards Camp Limber Up 2013 you can make a donation by calling us on 03 8531 8000 or 1800 011 041 or on line at www.arthritisvic.org.au Winter raffle 2012 results Congratulations to the winners of our Winter raffle which was drawn on 13 July. 1st prize Ticket no 228091 – Choice of car or Travel Voucher valued at $34,000 2nd prize Ticket no 288370 - Holiday voucher valued at $2,000 3rd prize Ticket no 15493 - Electrical goods Gift Cards valued at $1,000 Early bird prizes Early bird prizes were drawn on 22 June and were won by: Miss Jan King of Werribee 50% Coles Fuel Cards and 50% Coles & Myer Group Gift Cards worth $1,000 Mr Michael Martin of Tarneit Coles Group & Myer Gift Cards worth $1,000 Mrs Jill McIntyre of Reservoir Coles Group & Myer Gift Cards worth $1,000 Spring raffle 2012 Our Spring raffle will be drawn on Friday 19 October 2012; and 3 Early Bird prizes will be drawn on 28 September 2012. This course provides an opportunity for leaders to update their knowledge of contemporary practice in self management. To buy your book(s) of tickets, call 03 9222 2928 or email your request to [email protected] Tickets cost only $2 each! Linda Martin CEO, presenting the car to the lucky raffle winner Marjory Miller and husband Wayne Update Spring 2012 21 Library Resources Ageing well •Awerbuch, Mark 2001, Live stronger live longer: An exercise and lifestyle program for over 40’s, McGraw-Hill, Inc. Sydney. •Chopra, Deepak 1993, Ageless body, timeless mind: A practical alternative to growing old, Rider, London. •Cooke, Giselle 2000, Blooming: The complete Australian guide to healthy living for women over 40, Lansdowne Publishing, Sydney. •Fries, James F 2004, Living well: Taking care of yourself in the middle and later years, Da Capo Lifelong, Cambridge. New library resources •Blaine, Sandy 2005, Yoga for healthy knees: What you need to know for pain prevention and rehabilitation, Rodmell Press, Berkeley. •Borenstein, David c2011, Heal your back: Your complete prescription for preventing, treating, and eliminating back pain, M Evans and Company Inc, Lanham. •Carrick, Gill 2011, Arthritis: The essential guide, Need-2-Know, Peterborough. •Craggs-Hinton, Christine 2010, Coping with gout, Sheldon Press, London. •Craggs-Hinton, Christine 2011, Natural treatments for arthritis, Sheldon Press, London. •DiNubile, Nicholas A. c2011, Framework for the shoulder: A 6-step plan for preventing injury and ending pain, Rodale Inc, Emmaus. •Evenson, Dean & Evenson, Dudley 2011, A sound sleep: Guided meditations with relaxing music and nature sounds, Soundings of the planet, Bellingham. [CD] •Fink, Brett Ryan c2012, The whole foot: A complete program for taking care of your feet, Demos Health, New York. •Greaves, Alan c2011, Going straight: Living with ankylosing spondylitis, AuthorHouse, Bloomington. 22 •Greenberg, Tamara McClintock c2011, When someone you love has a chronic illness: Hope and help for those providing support, Hegemony Press, Springville. •Hannafin, Jo A & Betancourt, Marian c2007, Say goodbye to knee pain, Pocket Books, New York. •Hecht, M. E c2011, A practical guide to hip surgery: From pre-op to recovery, Sunrise River Press, North Branch. •Henderson, Kathy c2011, The stages of ME: A journey of chronic illness turned inside out, WestBow Press, Bloomington. •Isaacs, John D & Moreland, Larry W c2011, Fast facts: Rheumatoid arthritis, Health Press, Oxford. •Jenner, Chris 2011, Arthritis: A practical guide to getting on with your life, How To Books, Oxford. •Kolasinski, Sharon L. (ed) 2011, Complementary and alternative medicine in rheumatology, Saunders, Philadelphia. •Matousek, Mark 2009, When you’re falling, dive: Using your pain to transform your life, Hay House, Alexandria. •Nicholls, Gemma K 2011, Fighting rheumatoid, YouWriteOn.com, [Ilford] •O’Neill, Daniel Fulham c2008, Knee surgery: The essential guide to total knee recovery, St. Martin’s Griffin, New York. •Olderman, Rick 2010, Fixing you: Shoulder and elbow pain, Boone Publishing, Denver. •Olderman, Rick 2011, Fixing you: Hip and knee pain, Boone Publishing, Denver. •Rose, Jonathan D c2011, The foot book: A complete guide to healthy feet, John Hopkins University Press, Baltimore. •Rouse, James & Davis, Benjamin 2006, Sleep: Guided relaxation and musical harmonies, Gaiam Inc, Boulder. [CD] •St. John, Walter c2011, Solace: How caregivers and others can relate, listen, and respond effectively to a chronically ill person, Bull Publishing, Boulder. •Taylor, Martin T. 2010, My neck hurts!: Nonsurgical treatments for neck and upper back pain, Johns Hopkins University Press, Baltimore. •Wallace, Daniel J (ed) 2011, The Sjogren’s book, Oxford University Press, Oxford. •Wolf, Penny B c2009, I still dream big: Stories of teens living with chronic illness, AuthorHouse, Bloomington. Online library catalogue Don’t forget you can now access the library catalogue from home. To access the library catalogue, simply visit our website www.arthritisvic.org.au. In the footer click on "Our Service", then select Library. On the Library page is a link to the catalogue. Click on it, and you can start searching. How to borrow To borrow from the library you can call our Librarian on 03 8531 8031 or 1800 011 041 or email [email protected] and your selected items will be posted to you. You can also visit the library on weekdays between 9am and 5pm, but please call beforehand to ensure that the Librarian will be available to assist you. •Sanford, Laurie c2011, Gentle yoga for osteoporosis, Hatherleigh Press, Hobart. Active living, informed living, living well...for musculoskeletal health Volunteer Celebration Saying thank you to our volunteers What would we do without our volunteers? They work tirelessly to support our education and support programs, and to say thank you we invited them to the Amora Hotel in Richmond for our annual celebration. Eighty three attendees came from a range of service areas, including our Telephone Information Service, Opportunity Shop, our Community Speaker Program, as well as our Peer Support Groups. Participants said it was “great to renew friendships and chat” and “a wonderful opportunity for the volunteers to catch up with staff”. We also took the opportunity to present Long Service and Outstanding Service Awards on the day. Following is a list of the recipients who received awards for their contribution to Arthritis Victoria. Five Years’ Service Robyn Bate Gail Bevan Sue Brown Yvonne Brown Jo’Ann Carell Beverley Ednie Margaret Hallam Colleen Hanbury Lois Miles Barbara Mowat Lisa Smith Judy Wexler Yvette Cayzer Barbara Prouse Tonya Morris Annie McPherson Catherine Congerton Bill Hunter Leonie Cartledge Jill Martin Margaret (Min) Rossell Waves Leader Waves Leader Waves Leader Waves Leader Waves Leader Waves Leader Waves Leader Waves Leader Waves Leader Waves Leader Waves Leader Waves Leader Malvern Opportunity Shop Malvern Opportunity Shop Moonee Ponds Opportunity Shop Community Speaker Youth and Family Services Office Melbourne Osteoporosis Support Group South East Melbourne Osteoporosis Support Group South East Melbourne Osteoporosis Support Group Twenty Years’ Service Jill Foley Lena Rodger Dorothy Singe Judith Steele Di Hey Edith Irvine Waves Leader Waves Leader Waves Leader Waves Leader Eltham & District Arthritis Self Help Group Eltham & District Arthritis Self Help Group Twenty Five Years’ Service Irene Kayler-Thomson Waves Leader Thirty Years’ Service Kath Dight Noreen Hassett Malvern Opportunity Shop Malvern Opportunity Shop Outstanding Service Awards Robyn Bate Irene Kayler-Thomson Allan Stewart Robyn Talbot Kath Dight Renate Kupfer Gerry Black June Slater June Yourell Marion Crombie Bev Dow Joan Reynolds Helen Cunningham Marie Sheahan Waves Leader Waves Leader Waves Leader Waves Leader Malvern Opportunity Shop Malvern Opportunity Shop Office Healesville Arthritis Self Help Group Healesville Arthritis Self Help Group Narre Warren Support Group Narre Warren Support Group Narre Warren Support Group Melbourne Osteoporosis Support Group Melbourne Osteoporosis Support Group Ten Years’ Service Marion Cummins Pauline O’Brien Bruce Harvey Dorothy Scanlan Waves Leader Waves Leader Telephone Information Service Narre Warren Support Group Fifteen Year’s Service Beryl Logie Margaret Moyle Beryl Gaffney Owen Fitzsimons Ann White Community Speaker Waves Leader Eltham & District Arthritis Self Help Group Yarra Ranges Lupus Support Group Narre Warren Support Group Showing our thanks to volunteers at the recent annual celebration Update Spring 2012 23 Christmas Card Selection 2012 Card 3 STOCKINGS Square format 127mm x 127mm Pack of 10 $8.00 Message: Best wishes for the Festive Season Card 1 TWELVE DAYS OF CHRISTMAS Landscape format 120mm x 170mm Pack of 10 $8.00 Message: Christmas Greetings and every good wish for the New Year Card 2 BEACH SANTA Portrait format 180mm x 117mm Pack of 10 $8.00 Message: Season’s Greetings and Best Wishes for the New Year Card 4 DOVE Landscape format 127mm x 182mm Pack of 10 $8.00 Message: Wishing you peace and joy at Christmas Card 5 THREE KINGS Square format 127mm x 127mm Pack of 10 $8.00 Message: Wishing you peace and happiness at Christmas Card 6 TREE WITH BAUBLES Card 7 SANTA IN SNOW Square format 127mm x 127mm Pack of 10 $8.00 Message: Merry Christmas and a Happy New Year Portrait format 170mm x 120mm Pack of 10 $8.00 Message: Wishing you a Merry Christmas and a Happy New Year Card 8 GIFT TAG COLLECTION Square format 70mm x 70mm Pack of 10 assorted designs. No message $2.00 per pack order form Card no. Description Card 10 MIXED PACK Card 9 BEACH COLLECTION $7.00 per pack All card prices include GST Number of packs Unit price per pack 1. Twelve Days of Christmas $8.00 2. Beach Santa $8.00 3. Stockings $8.00 4. Dove $8.00 5. Three Kings $8.00 6. Tree with Baubles $8.00 7. Santa in Snow $8.00 8. Gift Tag Collection $2.00 9. Beach Collection $7.00 Mixed Pack $7.00 10. A pack of 10 assorted cards. Cards may vary from those shown A pack of 10 assorted beach themed cards $7.00 per pack Total $ Mail your order form and payment to: Arthritis Victoria, PO Box 130 Caulfield South Vic 3162 I enclose my Cheque please debit my Money order or Visa MasterCard Card no __ __ __ __/__ __ __ __/__ __ __ __/__ __ __ __ Expiry date __ __/ __ __ Signature Mr / Mrs / Miss / Ms (Circle) First name Sub total $ Postage - 1 pack $4.00, 2 or more $8.00 $ Last name I enclose my DONATION (A tax deductible receipt will be issued) $ Address Total $ Arthritis Victoria and Osteoporosis Victoria will not onsell your personal details to any other organisation and complies with the Privacy Amendment (Private Sector) Act 2000. If you wish your name to be removed from our database please write to us and indicate this. Postcode Tel Email Update Spring 2012 24