Beyond DNR (Do-Not-Resuscitate): age
Transcription
Beyond DNR (Do-Not-Resuscitate): age
SERVICES FOR ADULTS STAYING IN THEIR HOMES Non-Profit Org. U.S. Postage cares PAID SERVICES FOR ADULTS STAYING IN THEIR HOMES www.SASIathome.org Evanston, IL 60201 Permit No. 78 FALL 2013 1123 Emerson Street, #200 Evanston, IL 60201 www.SASIathome.org Established in 1975, Services for Adults Staying in Their Homes (SASI) is a 501(c)(3) nonprofit organization serving adults who, due to aging, illness or injury, need help to be safe and comfortable at home. SASI serves Chicago and the north/northwest suburbs. SASI is licensed as a Home Services Agency and a Home Services Placement Agency by the Illinois Department of Public Health. SASI’s mission is to support the efforts of older adults to remain in their homes: we make living easier. Save the Date! Saturday, October 18, 2014 • 5:30 p.m. The 2014 Ruby Slipper Event SASI’s festive annual benefit features dinner, live & silent acutions, and a raffle at the Evanston Golf Clulb. To receive an invitation or inquire about sponsorships or donations, call 847-864-7274, or visit www.SASIathome.org. Leave a Lasting Legacy A meaningful way to support SASI is to make a bequest. An individual can make a provision in her/his will that names Services for Adults Staying in Their Homes (SASI) to receive a percentage, an actual dollar amount, or residue of one’s estate. A bequest to SASI is not subject to taxation, and the value of one’s bequest is deductible in determining one’s taxable estate. To make a bequest or to learn more about this option, please contact Jeanie Ramsey, Executive Director, at 847-864-7274 or [email protected]. Go Green! Go green, cut the clutter, and be the first to read the news at SASI! To receive your SASIcares newsletter via e-mail, please send your name and e-mail address to [email protected]. We would be glad to add you to our e-mail newsletter mailing list! PAGE 8 The SASI Advantage Among caregiving agencies, SASI stands out above the rest. Just consider how our standards, services, and fees compare: • Higher caregiver standards. The State of Illinois requires 8 hours of caregiver training; SASI provides 16 hours of training annually. • No minimum service hour requirement. Other caregiving agencies require a minimum of 4-hour caregiving appointments; SASI allows clients to schedule whatever number of hours they need. • Exceptional caregiver retention rate. The annual rentention rate in the home care industry is 30%; SASI’s rate is 85%. • Client well-being visit within the first 30 days. SASI exceeds state standards: the Illinois Department of Public Health (IDPH) requires visits at 90 days. We cannot provide these exceptional services without your support. Please consider giving generously to SASI. To make a donation, use the enclosed envelope or visit our website at www.SASIathome.org and click on “Donate Now.” We thank you in advance! SASIcares • Fall 2013 SERVICES Home Care Assistance In-Home Administrative Assistance Home Readiness Service Caregiver Screening Service BOARD OF DIRECTORS Officers William A. Gifford, Jr., President Ben Gerber, Vice President Priscilla Wilkins Stevens, Secretary Peter Morris, Treasurer Directors Ellen Browne Mary Ellen Cherry Amy Claver John Disterhoft Susan Kamp Peggy King Edward Rabe, Jr. Ann Searles BOARD OF ADVISORS Dale Bradley Ellen Browne Suzanne Calder Marilyn Hennessy Mark Heyrman Karen Hunt Sandi Johnson Julie Kaufman, Ph.D. Michael Kerns Adina Romain Beyond DNR (Do-Not-Resuscitate): The New Physician Orders for Life-Sustaining Treatment (POLST) By Evelyn Hoffmann, Attorney at Law, Law Office of Evelyn Hoffmann, LLC wishes in the event of a terminal illness or permanent unconsciousness may prove inadequate, as well. A social worker friend has often remarked, “Americans are the only people who think dying is optional.” She didn’t mean this literally. Rather, she was commenting on her patients’ and their families’ lack of understanding about life-sustaining medical treatments, and when such treatments are beneficial versus when they serve only to extend suffering and delay death. For example, let’s say you experience chest pains and your spouse calls an ambulance. The paramedics come and stabilize you, but in the emergency room, your heart stops. The doctors restore your heartbeat and ask whether you want a DNR Order placed in your chart. By agreeing to and signing such an order, you are instructing your doctor not to perform CPR if you go into full cardiac arrest; i.e., you are without a pulse and are not breathing. Faced with such a situation, it would be critical to know what your “POLST can be thought chances were for surviving the procedure, any downsides, of as a roadmap to and how surviving CPR would initiate a dialogue affect your quality of life. Between the courageous, costly, and life-saving feats of Grey’s Anatomy doctors and the arsenal of life-sustaining tools in doctors’ tool chests today, it is understandable that patients and their between the physician families have an unrealistic Additionally, agreeing to a view of the effectiveness of DNR order does not mean that and patient, and as treatment options, and, more you do not want less aggressive importantly, their outcomes. a guide to informed measures taken, such as IV Such life-sustaining measures fluids, cardiac medications, decision-making.” can include CPR (cardiocardiac monitoring, or pulmonary resuscitation), intubation and mechanical artificial nutrition and ventilation if your heartbeat becomes irregular. hydration, intubation and mechanical ventilation, Furthermore, a DNR does not address the potential miracle drugs to treat infections, and ever-evolving benefits or burdens of choosing such measures. chemotherapy options. To better address these issues, Illinois has joined Even if you have completed a power of attorney for 42 other states that have or are developing what is health1 and have spoken referred to as the “POLST (Physician Orders for Lifeto your health care agent Sustaining Treatment) Paradigm.” POLST is a set of about your wishes in the orders, signed by the physician, that are immediately event of hospitalization, actionable. To meet the POLST standards used in you, your family, and/ other states, the Illinois Department of Public Health or health care agent may has revised the Do-Not-Resuscitate Advance Directive be faced with treatment Form that has been in use since 2006. The new form decisions, which, because is known as the “Uniform Do-Not-Resuscitate of their complexity, fall (DNR) Advance Directive/Physician Orders for Lifeoutside the scope of Sustaining Treatment (POLST).” [See http://www.idph. your legal documents state.il.us/public/books/dnrform.pdf] or prior conversations Evelyn Hoffmann, and directives. A living will that addresses your Attorney at Law (continued on page 4) Message from the Executive Director Having a caregiver in your home to help you maintain your independence and dignity is a positive and affirming choice, but it represents a transition of sorts. You may be sick or you may be recovering from an illness or surgery. Or you may find you need a little extra help a few hours a week to cook and do the laundry. For whatever reason, there has been a change. You are required to establish a new comfort level with a new situation. Many good things can come from transition and change: new ideas, new ways of doing things, and new efficiencies can all contribute to positive attitudes and good health. During times of transition, it’s good to know that as an established home care provider, SASI is a reliable institution that continues to deliver the highest quality services to our clients and to our community. Jeanie Ramsey Executive Director Contact Us Services for Adults Staying in Their Homes (SASI) 1123 Emerson Street, #200 Evanston, IL 60201 Phone: 847-864-7274 www.SASIathome.org [email protected] Fax: 847-864-7295 www.facebook.com/sasiathome Jeanie Ramsey, Executive Director Alexa Hand, Marketing & Communications Director Torry Hickey, Program Coordinator Aminat Kolawole, Program Assistant Amanda Pink, Administrative Assistant Sarah Van Huis, Program Director Sheila Zerwer, Bookkeeper Congratulations and Thank You, Dr. Ben! Highlights Farewell and Welcome, Staff and Board SASI bids a fond farewell to Marie O’Connor, who served with distinction as SASI’s Executive Director for nearly seven years. Under Marie’s leadership, SASI became a licensed direct provider of home care services, more than doubled its caregiver service hours, and launched several communications and program initiatives, including a new website and unique single fee home care programs. SASI’s Board of Directors has established a fund in Marie’s honor to improve SASI’s technology. Marie will be sorely missed by the entire SASI community—caregivers, staff, volunteers, board members, and many more. We all thank Marie for her years of dedicated service. Replacing Marie as executive director is former SASI Program and Services Supervisor Jeanie Ramsey. New also to SASI’s staff is Program Assistant Aminat Kolawole. [See page 3 for profiles of Jeanie and Aminat.] SASI is pleased to welcome Amy Claver and Peter Morris to our Board of Directors. Amy Claver Amy Claver is a seasoned professional in healthcare administration with a background in sponsorship sales, fundraising, project management, and communications. She currently serves as the senior manager for exhibition and sponsorship sales at the International Society for Stem Cell Research in Skokie. Amy has held leadership positions at numerous organizations, including the International Psychogeriatric Association, the American Society of Bioethics and Humanities, and The Million Dollar Round Table. In addition to her work experience, Amy holds credentials in nonprofit management and elder care. Peter Morris Peter Morris brings 30+ years of experience in organizational and business development to SASI’s Board. Peter is the former senior vice president & managing director at BMO Harris Bank, Harris Nesbit in Chicago, where he directed numerous programs and initiatives in marketing, technology, and client coverage. An active leader on community nonprofit boards, Peter has served as board chair for both the Midwest Palliative & Hospice Care Center and the Evanston McGaw YMCA. He currently chairs the McGaw Board’s Marketing Committee and serves as a member of the Evanston Community Foundation. SASI thanks former SASI Board Vice President and Treasurer Stan Leimer and Phyllis B. Mitzen, who are stepping down from the Board of Directors and Advisory Board, respectively. Their commitment to SASI’s mission has increased our agency’s capacity to serve older adults. “Superagers” SASI was proud to host a free community program, “What Do We Know about SuperAgers?” for an audience of more than 60 guests at the Winnetka Community House in November. Dr. Emily Rogalski, a researcher at Northwestern University Feinberg School of Medicine’s Cognitive Neurology and Alzheimer’s Disease Center (CNADC), shared fascinating new findings from her research on “SuperAgers”—individuals over age 80 who have SASI Executive Director Jeanie Ramsey, Dr. M. exceptional memory and other cognitive abilities. Dr. M. Marsel Mesulam, CNADC Director and the Feinberg Marsel Mesulam, Dr. Emily Rogalski, and SASI Board member Dr. John Disterhoft [L to R] School’s Ruth Dunbar Davee Professor of Neuroscience, was also on hand to comment and answer questions. [Read our interview with Dr. Rogalski on page 5.] SASI is proud to congratulate Board of Directors Vice President Ben Gerber, M.D., M.P.H., for his spectacular finish in October at the 2013 Bank of America Chicago Marathon. “Dr. Ben” ran an amazing race: not only did he run his personal best, clocking in at 3:27:45 for his third Chicago Marathon, but he also raised nearly $4,000 for SASI, just $1,000 short of his $5,000 goal! In addition to saluting Ben for his achievement and for dedicating his run to SASI, we are very grateful to the many supporters who donated to SASI in Ben’s honor. We especially thank Ben’s ten-year-old daughter, Daphna, who made and sold friendship bracelets at her summer camp and contributed all of her earnings to her dad’s SASI Chicago Marathon fund. If you’d like to help Ben make his $5,000 goal, it’s not too late! Just go to the “Donate” page on SASI’s website www.SASIathome.org, or mail your gift to SASI at 1123 Emerson, Suite 200, Evanston, IL 60201, c/o “Dr. Ben’s Marathon Fund.” Printed on the right are excerpts from Ben’s letter to the many individuals who generously contributed to SASI in his honor. Dear Fellow SASI Supporters, This year, as you know, I dedicated my Chicago Marathon run to SASI. My goal was to raise $5,000. I am very happy to report that thanks to your generous support, I have raised nearly $4,000! Thank you, one and all, for donating to this exceptional organization. I can assure you that your contributions are much needed and appreciated. SASI Board of Directors Vice President and Chicago Marathoner Dr. Ben Gerber Ever since I first became involved at SASI, I have been very impressed with the agency’s staff, board, volunteers, and especially SASI’s caregivers. As many of you are aware, SASI’s mission is to support the efforts of older adults to remain in their homes. Their motto is: “We make living easier.” SASI provides nonmedical and nonfinancial home care services to help adults remain in their homes safely and with dignity. This may include personal care, mobility assistance, homemaker tasks, errand and appointment assistance, transportation, and companionship. If someone you know might benefit from SASI’s services, I would encourage you to call 847-864-7274 or visit www.SASIathome.org. Consider contacting SASI with a question about home care. Or feel free to contact me. Again, thank you for generously supporting SASI. Sincerely, Sporting their special “Go, Dr. Ben!” marathon t-shirts, a SASI caregiver and staff members root for Dr. Ben Ben Gerber Second Sense Provides Training This fall, SASI caregivers had the opportunity to attend an informative in-service program presented by Polly Abbott, Director of Rehabilitation Services and Certified Vision Rehabilitation Therapist (CVRT) at Second Sense, a Chicago-based community nonprofit that provides client-centered support and training to help individuals move beyond vision loss. Abbott gave two two-hour trainings about how to work with individuals who are visually impaired, including an introduction to adaptive equipment and an interactive simulation of the experience of functioning with impaired vision. Second Sense is a valuable resource for anyone learning to live with decreased vision. In addition to an extremely informative website (www.secondsense.org) that includes information on finding a support group, information and referrals, weekly educational programs, links to adaptive equipment, and ways to adapt to vision loss, Second Sense offers individual career counseling and training. Second Sense can be reached at 312-236-8569. SASI caregivers responded enthusiastically to this opportunity to expand their knowledge and skill set. Both sessions were well-attended and more than 20 caregivers participated. SASI offers its caregivers 16 hours of in-service training annually, twice the number of hours mandated by the State of Illinois. Other in-service credits offered at SASI in recent months include Bereavement Training and The Art of Jewish Caregiving. Starting in January 2014, several new training opportunities will be on SASI’s calendar, including programs on elder abuse, disaster preparedness, infection control, and client dignity. “Vision loss and decreased vision are common reasons for people to call SASI,” says SASI Program Director Sarah Van Huis. “Educating our caregivers to work with older adults who have vision loss will enable them to better understand and assist these clients.” A lively Q and A and refreshments followed Dr. Rogalski’s presentation. Several SASI Board of Directors and Advisory Board members were present, including Ellen Browne, Amy Claver, John Disterhoft, Sue Kamp, Karen Hunt, Edward Rabe, and Ann Searles. Polly Abbott, CVRT Director, Second Sense Thank You, Volunteers! SASI appreciates the generous assistance of volunteers Kurt Flechisig and Karen Jensen. SASI especially thanks John Disterhoft for making this memorable community program possible. (continued on page 4) PAGE 2 SASIcares • Fall 2013 www.SASIathome.org PAGE 7 “Ruby Slipper 2013” Marks a Milestone The year 2013 marks a milestone for friends of SASI. “The Ruby Slipper Event,” SASI’s annual benefit—held on October 19 at the Evanston Golf Club—grossed an all-time high of $90,000. Ruby Slipper 2013 Co-Chairs Ellen Browne and Ann Searles planned the event, assisted by Benefit Committee members Karen Hunt, Naja Maltezos, Diane Rosen, and Jeff Siegel. Among the Committee’s many successes this year was doubling the number of event sponsors, which included the Louise Ruby Slipper Co-Chairs Ellen Browne H. Landau Foundation, the Dale and Ann Searles plan the menu at the Bradley Financial Center, Evanston Evanston Golf Club [L to R] First Bank & Trust, Sage Products, Cole Taylor Bank and North Shore Community Bank. In addition, Make It Better served as the benefit’s media sponsor—a Ruby Slipper first-time achievement. Auctioneer Don Crost, Ruby Slipper Co-Chair Ellen Browne, Benefit Committee member Karen Hunt, SASI Executive Director Jeanie Ramsey, Ruby Slipper Honoree Joan Esposito, Benefit Committee member Naja Maltezos, Ruby Slipper Co-Chair Ann Searles, and Benefit Committee member Jeff Siegel [L to R] Joan Esposito, co-founder of J2 Strategic Communications and an award-winning news anchor, was event Honoree, and Julie Hamos, Director of the Illinois Department of Healthcare and Family Services, served as Honorary Chair. Both Esposito and Hamos gave eloquent remarks about the vital and growing need for home care services in our communities. One hundred forty-five guests enjoyed cocktails and dinner, silent and live auctions, a video presentation, and a raffle. A highlight of the evening was the live auction’s $15,000 matching grant. Thanks to SASI’s many generous supporters and the talents of auctioneer Don Crost, the match brought in more than $22,000, for a total of more than $37,000 in matching grant contributions alone. Live auction prizes included accommodations at Wisconsin lakeside vacations homes, behind-the goal tickets to a Chicago Blackhawks game, and a one-on-one conversation with nationally-renowned market analyst and personal finance expert Terry Savage. This year’s silent auction was another of the evening’s stand-outs. Featuring fabulous get-aways such as an overnight with brunch at the Four Seasons, round-trip airline tickets to any continental U.S. destination, and seats at some of Chicagoland’s finest theaters and restaurants—Chicago Shakespeare, Frontera/Topolobampo, Steppenwolf, the Goodman, and the Pump Room, to name just a few— the silent auction raised more than $12,000. Ruby Slipper raffle winners were pleased to take home $500 cash and a gift certificate for an overnight with breakfast for two at the DoubleTree by Hilton Hotel Chicago–Magnificent Mile. SASI was fortunate to engage once again talented videographer Katie Wrobel (Optimus) in the PAGE 6 SASI Spotlight production of a new video that premiered at the event. This year’s video illustrated the critical role SASI caregivers play in helping older adults remain in their homes safely and with dignity. [Katie is profiled in this issue on page 5.] Numerous in-kind donors helped make Ruby Slipper 2013 an unprecedented fundraising success. SASI was fortunate to have received contributions from Evanston and throughout the North Shore and greater Chicagoland area, including: Al Johnson’s Restaurant, Alchemy Coffee, Apollo Chorus of Chicago, Apollo Theater Chicago, Ars Viva!, Artisanal Wilmette, Belgian Chocolatier Piron, Bennison’s Bakery, Celia Berdes, Billie Simic Hair Salon, Birchwood Lodge, Dale Bradley, Jennifer Brennan, Ellen Browne, John Searles [L] with Ruby Slipper Sue Calder, Campagnola, Catch 21, Chalet, Mary Ellen Cherry, Chicago Sponsor and Advisory Board member Dale Bradley and his wife, Tracy a capella, Chicago Master Singers, Chicago Shakespeare Theater, Chicago Sky, Amy Claver, Crêperie St. Germain, Michele Daniels, Kina Denton, John Disterhoft, DoubleTree by Hilton Hotel Chicago–Magnificent Mile, Judy Elsass, Ergo Salon & Spa, Evanston Golf Club, Evanston Symphony Orchestra, Farmhouse, Food for Thought, Found, Four Seasons Hotel & Allium Restaurant, Frontera/ Topolobampo, Haymarket Opera, Marilyn Hennessy, Ivy Herman, Hilton Garden Inn, Karen Hunt, Karen Jensen, Sandi Johnson, Sue Kamp, Julie Kaufman, Michael Kerns, Buffy LaBahn, Leslie Stern Interior Design Service, Lettuce Entertain You, Libertad, Stan Leimer, Light Opera Works, Little Mexican Café, Lookingglass Theater, Lulu’s, John Lynch, Naja Maltezos, Maria’s Nail Spa at Mita’s Salon, Marriott Theater in Lincolnshire, Peter McGuire, Mercury Theatre, Music Box Theatre, Music Institute of Chicago, Next Theatre, North Pond Restaurant, North Shore Country Club, Northlight Theatre, Northwestern University Athletics, Oceanique, Marie O’Connor, Pete Miller’s, Piccolo Theatre, Premier Fitness, Pump Room, Jeanie & Tim Ramsey, Adina Romain, Roti, Royal George Theatre, Sage Products, Terry Savage, Ann Searles, Ann Seyfried, Shahla European Skin Care, Siam Splendor, Jeff Siegel, Sister Bay Bowl, Skydeck Chicago, Steppenwolf Theatre, Priscilla Wilkins Stevens, Taco Diablo, Timeline Theatre, Trump Hotel & Tower, Utility Dynamics, Wilmette Theater, Writers Theatre, and Katie Wrobel (Optimus). We are also fortunate to have had ten hard-working volunteers assist us at the event: Andrew Burke, Kurt Flechsig, Christina Gaafar, James Gaafar, Debbie Mazanek, John Mick, Brooke Ramsey, Peter Ray, Helen Rysemus, and Bill Zerwer. Proceeds from the Ruby Slipper will be used to enhance SASI’s programs and services. As the nonprofit agency’s main source of fundraised revenue, the Ruby Slipper is essential to enabling SASI to continue to provide exceptional services at affordable rates. SASI Board members and staff are looking forward to building on this year’s success at next year’s Ruby Slipper, to be held on Saturday, October 18, 2014, at the Evanston Golf Club. Mark your calendars now so you will be sure not to miss the fun! Pat Taylor of the Louise H. Landau Foundation and Ruby Slipper Honorary Chair Julie Hamos, Director of the Illinois Department of Healthcare and Family Services [L to R] Photo by Helena Rafeyan *Editor’s Note: Look for articles and photos of the Ruby Slipper 2013 event in the January issues of NS Modern Luxury–Evanston/North Shore or www.modernluxury.com/ns/scene; and Make It Better or www. makeitbetter.com/magazine. SASIcares • Fall 2013 Meet Executive Director Jeanie Ramsey Q and A with Jeanie We thought our readers might be interested in learning more about Jeanie and her thoughts about SASI’s future. The following are excerpts from our interview: SASI was pleased to welcome Jeanie Ramsey as the agency’s new executive director this past summer. A member of SASI’s staff since 2010, Jeanie is well-known to the SASI community as a dedicated and SASI Executive Director compassionate professional with a Jeanie Ramsey wealth of experience and a passion for providing our clients exceptional care. As SASI’s former program and services supervisor, Jeanie worked closely with clients and caregivers, among other responsibilities. Her resume includes successful tenures as office manager at the Urban Libraries Council, Literacy Project coordinator in Evanston Township High School’s Adult Education Department, and administrative positions in several other local nonprofit organizations. Jeanie is a member of the American Society on Aging. “I am honored to lead SASI,” Jeanie says. “It is a privilege to have the opportunity to contribute to the life of this agency which [former Executive Director] Marie O’Connor led with such care and conviction. SASI takes seriously its nonprofit mission; our staff, caregivers, volunteers, and Board work hard to advance our shared goal of providing exceptional and affordable home care services that enable older adults to ‘age in place’ safely and with dignity.” “Jeanie’s expertise in the field of home care services and her devotion to our mission make her the ideal individual to guide SASI as the agency continues to grow its programs and client base,” SASI Board of Directors President Bill Gifford says. “Her intellect, energy, and vision will tap the enthusiasm and commitment of all of SASI’s constituencies.” Q: Many of our readers have no idea about how you came to be involved in the field of home care services. Your resume highlights your work in libraries, literacy, and education. What drew you to SASI? A: My previous position lacked as much direct people contact as I have enjoyed at other jobs. In the process of investigating different fields, I realized that working with older adults would be fun and rewarding, and that there probably was a future in it, given the huge numbers of baby boomers! I met with [former Executive Director] Marie [O’Connor] to discuss volunteer opportunities and she told me about an open position at SASI. One thing led to another, and here I am! Q: What challenges and opportunities do you envision for SASI in the future? A: SASI is a unique organization that provides very personalized service. We will strive to continue to offer extraordinary care to as many people as possible without losing our personal touch. We have an excellent staff of professional caregivers who work hard to meet a high standard of compassionate, individualized care—a service that allows our clients to maintain their dignity and independence at home for as long as possible. Q: Are there specific initiatives or programs that you plan to undertake in the coming year? A: Together with the Board of Directors and Advisory Board, we will be working hard to ensure that SASI will be the provider of choice for people who want to stay at home as they get older. We will be offering more programs in different communities and will be preparing to celebrate our 40th anniversary in 2015. Meet Program Assisant Aminat Kolawole This past summer, Aminat Kolawole joined SASI’s staff as our new program assistant. Her responsibilities include scheduling, client assessments, taking calls, and assisting with hiring caregivers. While looking for part-time work to supplement her income, Aminat heard good things about SASI from a friend who works as a SASI caregiver, so she decided to apply for a job. As luck would have it, SASI needed a program assistant, a position that perfectly fit Aminat’s skills and experience, and she was hired. A native of Nigeria, Aminat began her college studies at the School of Pharmacy at the University of Lagos, Nigeria. Her greatest ambition was to get an American education, however, and in 2003, she immigrated to the United States. After taking several courses at Truman College in Chicago, Aminat transferred to Loyola “SASI takes its caregivers University Chicago, where in 2012 she earned a B.B.A. very seriously…. in human resources and international business. It’s remarkable that Reflecting on what she’s learned since she began working at SASI Program Assistant SASI, Aminat is quick to praise Aminat Kolawole the agency’s professionalism and its focus on supporting exceptional caregivers. To help fund her education, Aminat worked for more [Executive Director] than eight years as a direct support professional Jeanie knows every at the Anixter Center, a social service agency that “SASI takes its caregivers seriously,” Aminat says. “The caregiver by name. That assists persons with developmental disabilities. At agency nurtures its caregivers and the staff works very would never happen at a Anixter, she discovered her calling as a social service hard to maintain an excellent relationship with them. larger organization.” professional, gaining invaluable hands-on experience The atmosphere here is caring, personal, and hardand earning her certification as a Qualified Intellectual working. It’s remarkable that [Executive Director] Jeanie Development Professional/Direct Support Professional (QIDP), a knows every caregiver by name. That would never happen at a larger credential granted by the Illinois Department of Human Services. organization. I feel very lucky to work here.” www.SASIathome.org PAGE 3 Beyond DNR, continued The POLST Form The new, two-sided form has five parts—A through E—on the front, and directions on the reverse side. Parts A, B, and C address primary treatment orders and list treatment options. The form’s parts are as follows: • Part A, “Cardiopulmonary Resuscitation/CPR,” provides the choice of whether or not to attempt CPR in the event a patient has no pulse and is not breathing; i.e., is in full cardiac arrest. • Part B, “Medical Interventions,” is a newly added section and addresses the intensity of measures to be taken when a patient has a pulse and/or is breathing. The three options are: full treatment, i.e., life support measures, including intubation in the ICU; limited treatment, i.e., provision of basic medical treatment; and comfort only, i.e., maximization of comfort through symptom management to allow a natural death. • Part C, “Artificially Administered Nutrition,” is another new section. It lists three treatment options: no artificial nutrition by tube, defined trial period of artificial nutrition, and long-term artificial nutrition by tube. • Part D, “Documentation of Discussion,” identifies the party or parties who took part in the POLST discussion, e.g., patient, parent of minor, agent under a power of attorney for health care, and/or surrogate decision-maker. This part must be witnessed and signed by a person who is not a direct care provider, power of attorney, or surrogate. • Part E, “Signature of Attending Physician.” Once signed and dated by the attending physician who took part in the discussion, the POLST is immediately actionable. Health Care Powers of Attorney and POLST The Health Care Power of Attorney and POLST each serve a discrete function in a continuum of health care orders. A Health Care Power of Attorney designates whom you want to serve as your surrogate decision-maker or “agent” in the event of a catastrophic injury or illness that renders you unable to make medical decisions. Sick or healthy, young or old: everyone should complete a Health Care Power of Attorney. The POLST form is completed in collaboration with your physician as part of an end-of-life decision-making process. It is designed to be used for patients facing life-threatening conditions and serves to encourage physician-patient discussions about treatment options, likely outcomes, and patient preferences. POLST can be thought of as a roadmap to initiate a dialogue between the physician and patient, and as a guide to informed decisionmaking. 1See Evelyn Hoffmann’s article, “Sidney Greenspan’s Legacy,” SASICares (Summer 2012), posted on www.sasiathome.org. [Editor’s note: SASI is grateful to Evelyn Hoffmann for continuing to share with our readers her legal expertise on the important issue of end-of-life decision-making. Ms. Hoffmann is an attorney whose practice is focused on guardianship of disabled adults. She served as General Counsel to the Illinois Department of Rehabilitation Services from 1992–1997 and as Deputy General Counsel to the Illinois Department of Human Services from 1997–2002.] PAGE 4 Community Spotlight SASI Highlights, continued What Do We Know about “SuperAgers”? An Interview with Dr. Emily Rogalski “MUSIC AT MALLINCKRODT” More than 45 guests enjoyed another successful SASI “Music at Mallinckrodt” concert in November at the Mallinckrodt Center in Wilmette. This season’s concert featured a variety of contemporary and international classical guitar compositions performed by Evanston Music Club 2013 Scholarship winner An Tran. Pianist Ann C. Schmidt, Young at Heart Artistic An is a senior at North Park Director Guy Riendeau, featured soloist An Tran, and University in Chicago and SASI Executive Director Jeanie Ramsey [L to R] has earned numerous awards and competitions, including first prize in the 2013 Society of American Musicians Guitar Competition and the 39th Student Laureate Award of the Lincoln Academy of Illinois. Following his riveting performance, Tran responded to several questions from the audience and obliged them with an encore. Guests then enjoyed conversation and refreshments. SASI co-sponsored this free concert with the Young at Heart Project of Illinois, a nonprofit that provides quality musical programs of several genres to older adults in residential care facilities and in their homes. Young at Heart’s Artistic Director Guy Riendeau and Ann C. Schmidt opened the program with a popular music medley performed on flugelhorn and piano, respectively. “BOOMERS AND BEYOND” SASI Executive Director Jeanie Ramsey represented SASI at “Boomers and Beyond,” a community resource fair hosted in November by the Skokie Commission on Family Services at the Oakton Community Center. Featuring more than 40 exhibitors who provide health, fitness and nutrition, home care, and technology services to older adults, the event offered free wellness screenings, Senior Health Insurance Program (SHIP) consultations, and a variety of educational programs and services. The free three-hour event brought over 400 visitors and was a wonderful opportunity to introduce SASI to the community. COMMUNITY GRANTS AND CONTRIBUTIONS This past year, SASI was the proud recipient of grants from the Elizabeth Beidler Tisdahl Foundation, New Trier Township, and the Wilmette Rotary. SASI also received funds from a special offering made in SASI’s honor at the “Alice Millar Birthday Celebration” hosted by the Northwestern University Henry and Leigh Bienen School of Music at the Alice Millar Chapel in Evanston. Foundation and community grants and contributions help SASI continue to provide exceptional and affordable adult caregiving services. We thank the Elizabeth Beidler Tisdahl Foundation, New Trier Township, the Wilmette Rotary, and Northwestern’s Bienen School of Music for their generous support. ANNUAL BOARD/STAFF RETREAT SASI’s Board of Directors and staff met in November for their annual Board/ Staff retreat. Following the election of Board member Peter Morris, Executive Director Jeanie Ramsey outlined SASI’s future challenges and opportunities. Staff and Board members then collaborated on plans for a special event to commemorate SASI’s 40th anniversary in 2015. Stay tuned for more details! SASIcares • Fall 2013 SASI was fortunate to follow up with Dr. Emily Rogalski about her study on SuperAgers and the rapidly expanding field of research on aging and dementia. Dr. Rogalski and her colleagues at Northwestern University’s Cognitive Neurology and Alzheimer’s Disease Center (CNADC) are making important discoveries about the factors that enable some individuals over age 80 to maintain exceptional memory and other cognitive Dr. Emily Rogalski abilities, and are seeking to apply these findings to understanding how we can enhance memory and cognition in the general population. Here’s is what we learned from our interview: Q: How did you become interested in the field of neuroscience, and more specifically, aging and dementia? A: My interest in the brain began in grade school, when I met and worked with brilliant children with developmental delays. You see, my mother has been teaching students with learning disabilities for over 40 years. In fact, Magic Johnson was in one of her classes. My mothers’ students taught me so much and also sparked my curiosity about the brain. I was inspired by their talents and wanted to better understand how the brain could be responsible for different learning styles. I always thought I would end up working with kids. During my research rotation at Northwestern’s CNADC more than ten years ago, something clicked and I have been focused on research in aging and dementia ever since. Q: What can we do on a daily basis to keep our minds sharp? Much is made of brain exercises like Sudoku and crossword puzzles, but what about diet, exercise and social interaction? A: There are no direct data from the SuperAging study yet with respect to diet, social interaction or physical/mental fitness. However, research from the aging literature suggests each of these factors is important. Q: What role does genetics play in one’s memory capacity? Are certain individuals destined to become SuperAgers, while others will experience significant cognitive decline, no matter how actively they attempt to prevent it? A: We are just beginning to understand how genetics may play a role in becoming a SuperAger. Stay tuned….Hopefully there will be more news in the coming years. Q: Can we actually improve our brain function with use, or even reverse cognitive decline? A: The healthy aging literature suggests that we are able to learn even as we age. Exercising our brains as well as our muscles seems to be a good recipe. The exact type of brain exercise is not necessarily important—as long as the individual finds it challenging and enjoyable. Q: What do you envision for future research on SuperAging? Do you foresee a time when most individuals who live to age 80 or beyond can look forward to maintaining excellent cognitive function? A: We hope to eventually identify modifiable factors that can help individuals avoid disease and disability as they age. Q: What do SuperAgers have to teach us about maintaining memory and cognitive function? Q: What resources can you recommend if we want to learn more about the newest developments in this field? A: The SuperAger cohort shows us that it is possible to have outstanding memory even over age 80. It suggests that memory loss is not an inevitable consequence of aging. A: The National Institute of Aging provides funding for aging research and updates on the latest findings (http://www.nia.nih.gov/). We also provide updates on CNADC’s website, www.Brain.northwestern.edu. Saluting Katie Wrobel, SASI Videographer SASI would like to recognize Katie Wrobel of Optimus, Inc. for the outstanding videos she has created for SASI. Since 2009, when Katie’s first video premiered at the Ruby Slipper benefit, her stories about the agency have consistently provided persuasive testimony about SASI’s valued caregivers and services and have received rave reviews. “Katie’s video is always a highlight of the Ruby Slipper program,” Executive Director Jeanie Ramsey says. “Those familiar with SASI and those who don’t know us are equally moved by her work and they connect with her message. Katie’s videos are posted on our website, www. sasiathome.org, and are an important part of our marketing collateral.” An accomplished editor of television commercials for clients such as Aveeno, Suave, McDonald’s, and, more locally, NorthShore University Hospitals, Katie credits SASI with giving her the opportunity to branch out into writing and directing. www.SASIathome.org “Having the chance to produce SASI’s videos has been amazing,” Katie says. “Six years ago, when I first talked to [former SASI Marketing Director] Judith Greifer about creating a video, I hadn’t directed anything. Now I’ve Katie Wrobel and her mother, done close to 20 videos, including five Ruth Wrobel [R to L] for SASI, and I am currently directing a suite of videos for the Shedd Aquarium’s Great Lakes Initiative—all because SASI gave me the opportunity.” While Katie continues to edit professionally at Optimus, her goal is to make a living creating issues-based content. Given her impressive track record, we predict she will succeed brilliantly. SASI’s boards, staff, caregivers, clients, and friends thank Katie for her contributions to SASI and wish her every success! PAGE 5 Beyond DNR, continued The POLST Form The new, two-sided form has five parts—A through E—on the front, and directions on the reverse side. Parts A, B, and C address primary treatment orders and list treatment options. The form’s parts are as follows: • Part A, “Cardiopulmonary Resuscitation/CPR,” provides the choice of whether or not to attempt CPR in the event a patient has no pulse and is not breathing; i.e., is in full cardiac arrest. • Part B, “Medical Interventions,” is a newly added section and addresses the intensity of measures to be taken when a patient has a pulse and/or is breathing. The three options are: full treatment, i.e., life support measures, including intubation in the ICU; limited treatment, i.e., provision of basic medical treatment; and comfort only, i.e., maximization of comfort through symptom management to allow a natural death. • Part C, “Artificially Administered Nutrition,” is another new section. It lists three treatment options: no artificial nutrition by tube, defined trial period of artificial nutrition, and long-term artificial nutrition by tube. • Part D, “Documentation of Discussion,” identifies the party or parties who took part in the POLST discussion, e.g., patient, parent of minor, agent under a power of attorney for health care, and/or surrogate decision-maker. This part must be witnessed and signed by a person who is not a direct care provider, power of attorney, or surrogate. • Part E, “Signature of Attending Physician.” Once signed and dated by the attending physician who took part in the discussion, the POLST is immediately actionable. Health Care Powers of Attorney and POLST The Health Care Power of Attorney and POLST each serve a discrete function in a continuum of health care orders. A Health Care Power of Attorney designates whom you want to serve as your surrogate decision-maker or “agent” in the event of a catastrophic injury or illness that renders you unable to make medical decisions. Sick or healthy, young or old: everyone should complete a Health Care Power of Attorney. The POLST form is completed in collaboration with your physician as part of an end-of-life decision-making process. It is designed to be used for patients facing life-threatening conditions and serves to encourage physician-patient discussions about treatment options, likely outcomes, and patient preferences. POLST can be thought of as a roadmap to initiate a dialogue between the physician and patient, and as a guide to informed decisionmaking. 1See Evelyn Hoffmann’s article, “Sidney Greenspan’s Legacy,” SASICares (Summer 2012), posted on www.sasiathome.org. [Editor’s note: SASI is grateful to Evelyn Hoffmann for continuing to share with our readers her legal expertise on the important issue of end-of-life decision-making. Ms. Hoffmann is an attorney whose practice is focused on guardianship of disabled adults. She served as General Counsel to the Illinois Department of Rehabilitation Services from 1992–1997 and as Deputy General Counsel to the Illinois Department of Human Services from 1997–2002.] PAGE 4 Community Spotlight SASI Highlights, continued What Do We Know about “SuperAgers”? An Interview with Dr. Emily Rogalski “MUSIC AT MALLINCKRODT” More than 45 guests enjoyed another successful SASI “Music at Mallinckrodt” concert in November at the Mallinckrodt Center in Wilmette. This season’s concert featured a variety of contemporary and international classical guitar compositions performed by Evanston Music Club 2013 Scholarship winner An Tran. Pianist Ann C. Schmidt, Young at Heart Artistic An is a senior at North Park Director Guy Riendeau, featured soloist An Tran, and University in Chicago and SASI Executive Director Jeanie Ramsey [L to R] has earned numerous awards and competitions, including first prize in the 2013 Society of American Musicians Guitar Competition and the 39th Student Laureate Award of the Lincoln Academy of Illinois. Following his riveting performance, Tran responded to several questions from the audience and obliged them with an encore. Guests then enjoyed conversation and refreshments. SASI co-sponsored this free concert with the Young at Heart Project of Illinois, a nonprofit that provides quality musical programs of several genres to older adults in residential care facilities and in their homes. Young at Heart’s Artistic Director Guy Riendeau and Ann C. Schmidt opened the program with a popular music medley performed on flugelhorn and piano, respectively. “BOOMERS AND BEYOND” SASI Executive Director Jeanie Ramsey represented SASI at “Boomers and Beyond,” a community resource fair hosted in November by the Skokie Commission on Family Services at the Oakton Community Center. Featuring more than 40 exhibitors who provide health, fitness and nutrition, home care, and technology services to older adults, the event offered free wellness screenings, Senior Health Insurance Program (SHIP) consultations, and a variety of educational programs and services. The free three-hour event brought over 400 visitors and was a wonderful opportunity to introduce SASI to the community. COMMUNITY GRANTS AND CONTRIBUTIONS This past year, SASI was the proud recipient of grants from the Elizabeth Beidler Tisdahl Foundation, New Trier Township, and the Wilmette Rotary. SASI also received funds from a special offering made in SASI’s honor at the “Alice Millar Birthday Celebration” hosted by the Northwestern University Henry and Leigh Bienen School of Music at the Alice Millar Chapel in Evanston. Foundation and community grants and contributions help SASI continue to provide exceptional and affordable adult caregiving services. We thank the Elizabeth Beidler Tisdahl Foundation, New Trier Township, the Wilmette Rotary, and Northwestern’s Bienen School of Music for their generous support. ANNUAL BOARD/STAFF RETREAT SASI’s Board of Directors and staff met in November for their annual Board/ Staff retreat. Following the election of Board member Peter Morris, Executive Director Jeanie Ramsey outlined SASI’s future challenges and opportunities. Staff and Board members then collaborated on plans for a special event to commemorate SASI’s 40th anniversary in 2015. Stay tuned for more details! SASIcares • Fall 2013 SASI was fortunate to follow up with Dr. Emily Rogalski about her study on SuperAgers and the rapidly expanding field of research on aging and dementia. Dr. Rogalski and her colleagues at Northwestern University’s Cognitive Neurology and Alzheimer’s Disease Center (CNADC) are making important discoveries about the factors that enable some individuals over age 80 to maintain exceptional memory and other cognitive Dr. Emily Rogalski abilities, and are seeking to apply these findings to understanding how we can enhance memory and cognition in the general population. Here’s is what we learned from our interview: Q: How did you become interested in the field of neuroscience, and more specifically, aging and dementia? A: My interest in the brain began in grade school, when I met and worked with brilliant children with developmental delays. You see, my mother has been teaching students with learning disabilities for over 40 years. In fact, Magic Johnson was in one of her classes. My mothers’ students taught me so much and also sparked my curiosity about the brain. I was inspired by their talents and wanted to better understand how the brain could be responsible for different learning styles. I always thought I would end up working with kids. During my research rotation at Northwestern’s CNADC more than ten years ago, something clicked and I have been focused on research in aging and dementia ever since. Q: What can we do on a daily basis to keep our minds sharp? Much is made of brain exercises like Sudoku and crossword puzzles, but what about diet, exercise and social interaction? A: There are no direct data from the SuperAging study yet with respect to diet, social interaction or physical/mental fitness. However, research from the aging literature suggests each of these factors is important. Q: What role does genetics play in one’s memory capacity? Are certain individuals destined to become SuperAgers, while others will experience significant cognitive decline, no matter how actively they attempt to prevent it? A: We are just beginning to understand how genetics may play a role in becoming a SuperAger. Stay tuned….Hopefully there will be more news in the coming years. Q: Can we actually improve our brain function with use, or even reverse cognitive decline? A: The healthy aging literature suggests that we are able to learn even as we age. Exercising our brains as well as our muscles seems to be a good recipe. The exact type of brain exercise is not necessarily important—as long as the individual finds it challenging and enjoyable. Q: What do you envision for future research on SuperAging? Do you foresee a time when most individuals who live to age 80 or beyond can look forward to maintaining excellent cognitive function? A: We hope to eventually identify modifiable factors that can help individuals avoid disease and disability as they age. Q: What do SuperAgers have to teach us about maintaining memory and cognitive function? Q: What resources can you recommend if we want to learn more about the newest developments in this field? A: The SuperAger cohort shows us that it is possible to have outstanding memory even over age 80. It suggests that memory loss is not an inevitable consequence of aging. A: The National Institute of Aging provides funding for aging research and updates on the latest findings (http://www.nia.nih.gov/). We also provide updates on CNADC’s website, www.Brain.northwestern.edu. Saluting Katie Wrobel, SASI Videographer SASI would like to recognize Katie Wrobel of Optimus, Inc. for the outstanding videos she has created for SASI. Since 2009, when Katie’s first video premiered at the Ruby Slipper benefit, her stories about the agency have consistently provided persuasive testimony about SASI’s valued caregivers and services and have received rave reviews. “Katie’s video is always a highlight of the Ruby Slipper program,” Executive Director Jeanie Ramsey says. “Those familiar with SASI and those who don’t know us are equally moved by her work and they connect with her message. Katie’s videos are posted on our website, www. sasiathome.org, and are an important part of our marketing collateral.” An accomplished editor of television commercials for clients such as Aveeno, Suave, McDonald’s, and, more locally, NorthShore University Hospitals, Katie credits SASI with giving her the opportunity to branch out into writing and directing. www.SASIathome.org “Having the chance to produce SASI’s videos has been amazing,” Katie says. “Six years ago, when I first talked to [former SASI Marketing Director] Judith Greifer about creating a video, I hadn’t directed anything. Now I’ve Katie Wrobel and her mother, done close to 20 videos, including five Ruth Wrobel [R to L] for SASI, and I am currently directing a suite of videos for the Shedd Aquarium’s Great Lakes Initiative—all because SASI gave me the opportunity.” While Katie continues to edit professionally at Optimus, her goal is to make a living creating issues-based content. Given her impressive track record, we predict she will succeed brilliantly. SASI’s boards, staff, caregivers, clients, and friends thank Katie for her contributions to SASI and wish her every success! PAGE 5 “Ruby Slipper 2013” Marks a Milestone The year 2013 marks a milestone for friends of SASI. “The Ruby Slipper Event,” SASI’s annual benefit—held on October 19 at the Evanston Golf Club—grossed an all-time high of $90,000. Ruby Slipper 2013 Co-Chairs Ellen Browne and Ann Searles planned the event, assisted by Benefit Committee members Karen Hunt, Naja Maltezos, Diane Rosen, and Jeff Siegel. Among the Committee’s many successes this year was doubling the number of event sponsors, which included the Louise Ruby Slipper Co-Chairs Ellen Browne H. Landau Foundation, the Dale and Ann Searles plan the menu at the Bradley Financial Center, Evanston Evanston Golf Club [L to R] First Bank & Trust, Sage Products, Cole Taylor Bank and North Shore Community Bank. In addition, Make It Better served as the benefit’s media sponsor—a Ruby Slipper first-time achievement. Auctioneer Don Crost, Ruby Slipper Co-Chair Ellen Browne, Benefit Committee member Karen Hunt, SASI Executive Director Jeanie Ramsey, Ruby Slipper Honoree Joan Esposito, Benefit Committee member Naja Maltezos, Ruby Slipper Co-Chair Ann Searles, and Benefit Committee member Jeff Siegel [L to R] Joan Esposito, co-founder of J2 Strategic Communications and an award-winning news anchor, was event Honoree, and Julie Hamos, Director of the Illinois Department of Healthcare and Family Services, served as Honorary Chair. Both Esposito and Hamos gave eloquent remarks about the vital and growing need for home care services in our communities. One hundred forty-five guests enjoyed cocktails and dinner, silent and live auctions, a video presentation, and a raffle. A highlight of the evening was the live auction’s $15,000 matching grant. Thanks to SASI’s many generous supporters and the talents of auctioneer Don Crost, the match brought in more than $22,000, for a total of more than $37,000 in matching grant contributions alone. Live auction prizes included accommodations at Wisconsin lakeside vacations homes, behind-the goal tickets to a Chicago Blackhawks game, and a one-on-one conversation with nationally-renowned market analyst and personal finance expert Terry Savage. This year’s silent auction was another of the evening’s stand-outs. Featuring fabulous get-aways such as an overnight with brunch at the Four Seasons, round-trip airline tickets to any continental U.S. destination, and seats at some of Chicagoland’s finest theaters and restaurants—Chicago Shakespeare, Frontera/Topolobampo, Steppenwolf, the Goodman, and the Pump Room, to name just a few— the silent auction raised more than $12,000. Ruby Slipper raffle winners were pleased to take home $500 cash and a gift certificate for an overnight with breakfast for two at the DoubleTree by Hilton Hotel Chicago–Magnificent Mile. SASI was fortunate to engage once again talented videographer Katie Wrobel (Optimus) in the PAGE 6 SASI Spotlight production of a new video that premiered at the event. This year’s video illustrated the critical role SASI caregivers play in helping older adults remain in their homes safely and with dignity. [Katie is profiled in this issue on page 5.] Numerous in-kind donors helped make Ruby Slipper 2013 an unprecedented fundraising success. SASI was fortunate to have received contributions from Evanston and throughout the North Shore and greater Chicagoland area, including: Al Johnson’s Restaurant, Alchemy Coffee, Apollo Chorus of Chicago, Apollo Theater Chicago, Ars Viva!, Artisanal Wilmette, Belgian Chocolatier Piron, Bennison’s Bakery, Celia Berdes, Billie Simic Hair Salon, Birchwood Lodge, Dale Bradley, Jennifer Brennan, Ellen Browne, John Searles [L] with Ruby Slipper Sue Calder, Campagnola, Catch 21, Chalet, Mary Ellen Cherry, Chicago Sponsor and Advisory Board member Dale Bradley and his wife, Tracy a capella, Chicago Master Singers, Chicago Shakespeare Theater, Chicago Sky, Amy Claver, Crêperie St. Germain, Michele Daniels, Kina Denton, John Disterhoft, DoubleTree by Hilton Hotel Chicago–Magnificent Mile, Judy Elsass, Ergo Salon & Spa, Evanston Golf Club, Evanston Symphony Orchestra, Farmhouse, Food for Thought, Found, Four Seasons Hotel & Allium Restaurant, Frontera/ Topolobampo, Haymarket Opera, Marilyn Hennessy, Ivy Herman, Hilton Garden Inn, Karen Hunt, Karen Jensen, Sandi Johnson, Sue Kamp, Julie Kaufman, Michael Kerns, Buffy LaBahn, Leslie Stern Interior Design Service, Lettuce Entertain You, Libertad, Stan Leimer, Light Opera Works, Little Mexican Café, Lookingglass Theater, Lulu’s, John Lynch, Naja Maltezos, Maria’s Nail Spa at Mita’s Salon, Marriott Theater in Lincolnshire, Peter McGuire, Mercury Theatre, Music Box Theatre, Music Institute of Chicago, Next Theatre, North Pond Restaurant, North Shore Country Club, Northlight Theatre, Northwestern University Athletics, Oceanique, Marie O’Connor, Pete Miller’s, Piccolo Theatre, Premier Fitness, Pump Room, Jeanie & Tim Ramsey, Adina Romain, Roti, Royal George Theatre, Sage Products, Terry Savage, Ann Searles, Ann Seyfried, Shahla European Skin Care, Siam Splendor, Jeff Siegel, Sister Bay Bowl, Skydeck Chicago, Steppenwolf Theatre, Priscilla Wilkins Stevens, Taco Diablo, Timeline Theatre, Trump Hotel & Tower, Utility Dynamics, Wilmette Theater, Writers Theatre, and Katie Wrobel (Optimus). We are also fortunate to have had ten hard-working volunteers assist us at the event: Andrew Burke, Kurt Flechsig, Christina Gaafar, James Gaafar, Debbie Mazanek, John Mick, Brooke Ramsey, Peter Ray, Helen Rysemus, and Bill Zerwer. Proceeds from the Ruby Slipper will be used to enhance SASI’s programs and services. As the nonprofit agency’s main source of fundraised revenue, the Ruby Slipper is essential to enabling SASI to continue to provide exceptional services at affordable rates. SASI Board members and staff are looking forward to building on this year’s success at next year’s Ruby Slipper, to be held on Saturday, October 18, 2014, at the Evanston Golf Club. Mark your calendars now so you will be sure not to miss the fun! Pat Taylor of the Louise H. Landau Foundation and Ruby Slipper Honorary Chair Julie Hamos, Director of the Illinois Department of Healthcare and Family Services [L to R] Photo by Helena Rafeyan *Editor’s Note: Look for articles and photos of the Ruby Slipper 2013 event in the January issues of NS Modern Luxury–Evanston/North Shore or www.modernluxury.com/ns/scene; and Make It Better or www. makeitbetter.com/magazine. SASIcares • Fall 2013 Meet Executive Director Jeanie Ramsey Q and A with Jeanie We thought our readers might be interested in learning more about Jeanie and her thoughts about SASI’s future. The following are excerpts from our interview: SASI was pleased to welcome Jeanie Ramsey as the agency’s new executive director this past summer. A member of SASI’s staff since 2010, Jeanie is well-known to the SASI community as a dedicated and SASI Executive Director compassionate professional with a Jeanie Ramsey wealth of experience and a passion for providing our clients exceptional care. As SASI’s former program and services supervisor, Jeanie worked closely with clients and caregivers, among other responsibilities. Her resume includes successful tenures as office manager at the Urban Libraries Council, Literacy Project coordinator in Evanston Township High School’s Adult Education Department, and administrative positions in several other local nonprofit organizations. Jeanie is a member of the American Society on Aging. “I am honored to lead SASI,” Jeanie says. “It is a privilege to have the opportunity to contribute to the life of this agency which [former Executive Director] Marie O’Connor led with such care and conviction. SASI takes seriously its nonprofit mission; our staff, caregivers, volunteers, and Board work hard to advance our shared goal of providing exceptional and affordable home care services that enable older adults to ‘age in place’ safely and with dignity.” “Jeanie’s expertise in the field of home care services and her devotion to our mission make her the ideal individual to guide SASI as the agency continues to grow its programs and client base,” SASI Board of Directors President Bill Gifford says. “Her intellect, energy, and vision will tap the enthusiasm and commitment of all of SASI’s constituencies.” Q: Many of our readers have no idea about how you came to be involved in the field of home care services. Your resume highlights your work in libraries, literacy, and education. What drew you to SASI? A: My previous position lacked as much direct people contact as I have enjoyed at other jobs. In the process of investigating different fields, I realized that working with older adults would be fun and rewarding, and that there probably was a future in it, given the huge numbers of baby boomers! I met with [former Executive Director] Marie [O’Connor] to discuss volunteer opportunities and she told me about an open position at SASI. One thing led to another, and here I am! Q: What challenges and opportunities do you envision for SASI in the future? A: SASI is a unique organization that provides very personalized service. We will strive to continue to offer extraordinary care to as many people as possible without losing our personal touch. We have an excellent staff of professional caregivers who work hard to meet a high standard of compassionate, individualized care—a service that allows our clients to maintain their dignity and independence at home for as long as possible. Q: Are there specific initiatives or programs that you plan to undertake in the coming year? A: Together with the Board of Directors and Advisory Board, we will be working hard to ensure that SASI will be the provider of choice for people who want to stay at home as they get older. We will be offering more programs in different communities and will be preparing to celebrate our 40th anniversary in 2015. Meet Program Assisant Aminat Kolawole This past summer, Aminat Kolawole joined SASI’s staff as our new program assistant. Her responsibilities include scheduling, client assessments, taking calls, and assisting with hiring caregivers. While looking for part-time work to supplement her income, Aminat heard good things about SASI from a friend who works as a SASI caregiver, so she decided to apply for a job. As luck would have it, SASI needed a program assistant, a position that perfectly fit Aminat’s skills and experience, and she was hired. A native of Nigeria, Aminat began her college studies at the School of Pharmacy at the University of Lagos, Nigeria. Her greatest ambition was to get an American education, however, and in 2003, she immigrated to the United States. After taking several courses at Truman College in Chicago, Aminat transferred to Loyola “SASI takes its caregivers University Chicago, where in 2012 she earned a B.B.A. very seriously…. in human resources and international business. It’s remarkable that Reflecting on what she’s learned since she began working at SASI Program Assistant SASI, Aminat is quick to praise Aminat Kolawole the agency’s professionalism and its focus on supporting exceptional caregivers. To help fund her education, Aminat worked for more [Executive Director] than eight years as a direct support professional Jeanie knows every at the Anixter Center, a social service agency that “SASI takes its caregivers seriously,” Aminat says. “The caregiver by name. That assists persons with developmental disabilities. At agency nurtures its caregivers and the staff works very would never happen at a Anixter, she discovered her calling as a social service hard to maintain an excellent relationship with them. larger organization.” professional, gaining invaluable hands-on experience The atmosphere here is caring, personal, and hardand earning her certification as a Qualified Intellectual working. It’s remarkable that [Executive Director] Jeanie Development Professional/Direct Support Professional (QIDP), a knows every caregiver by name. That would never happen at a larger credential granted by the Illinois Department of Human Services. organization. I feel very lucky to work here.” www.SASIathome.org PAGE 3 Message from the Executive Director Having a caregiver in your home to help you maintain your independence and dignity is a positive and affirming choice, but it represents a transition of sorts. You may be sick or you may be recovering from an illness or surgery. Or you may find you need a little extra help a few hours a week to cook and do the laundry. For whatever reason, there has been a change. You are required to establish a new comfort level with a new situation. Many good things can come from transition and change: new ideas, new ways of doing things, and new efficiencies can all contribute to positive attitudes and good health. During times of transition, it’s good to know that as an established home care provider, SASI is a reliable institution that continues to deliver the highest quality services to our clients and to our community. Jeanie Ramsey Executive Director Contact Us Services for Adults Staying in Their Homes (SASI) 1123 Emerson Street, #200 Evanston, IL 60201 Phone: 847-864-7274 www.SASIathome.org [email protected] Fax: 847-864-7295 www.facebook.com/sasiathome Jeanie Ramsey, Executive Director Alexa Hand, Marketing & Communications Director Torry Hickey, Program Coordinator Aminat Kolawole, Program Assistant Amanda Pink, Administrative Assistant Sarah Van Huis, Program Director Sheila Zerwer, Bookkeeper Congratulations and Thank You, Dr. Ben! Highlights Farewell and Welcome, Staff and Board SASI bids a fond farewell to Marie O’Connor, who served with distinction as SASI’s Executive Director for nearly seven years. Under Marie’s leadership, SASI became a licensed direct provider of home care services, more than doubled its caregiver service hours, and launched several communications and program initiatives, including a new website and unique single fee home care programs. SASI’s Board of Directors has established a fund in Marie’s honor to improve SASI’s technology. Marie will be sorely missed by the entire SASI community—caregivers, staff, volunteers, board members, and many more. We all thank Marie for her years of dedicated service. Replacing Marie as executive director is former SASI Program and Services Supervisor Jeanie Ramsey. New also to SASI’s staff is Program Assistant Aminat Kolawole. [See page 3 for profiles of Jeanie and Aminat.] SASI is pleased to welcome Amy Claver and Peter Morris to our Board of Directors. Amy Claver Amy Claver is a seasoned professional in healthcare administration with a background in sponsorship sales, fundraising, project management, and communications. She currently serves as the senior manager for exhibition and sponsorship sales at the International Society for Stem Cell Research in Skokie. Amy has held leadership positions at numerous organizations, including the International Psychogeriatric Association, the American Society of Bioethics and Humanities, and The Million Dollar Round Table. In addition to her work experience, Amy holds credentials in nonprofit management and elder care. Peter Morris Peter Morris brings 30+ years of experience in organizational and business development to SASI’s Board. Peter is the former senior vice president & managing director at BMO Harris Bank, Harris Nesbit in Chicago, where he directed numerous programs and initiatives in marketing, technology, and client coverage. An active leader on community nonprofit boards, Peter has served as board chair for both the Midwest Palliative & Hospice Care Center and the Evanston McGaw YMCA. He currently chairs the McGaw Board’s Marketing Committee and serves as a member of the Evanston Community Foundation. SASI thanks former SASI Board Vice President and Treasurer Stan Leimer and Phyllis B. Mitzen, who are stepping down from the Board of Directors and Advisory Board, respectively. Their commitment to SASI’s mission has increased our agency’s capacity to serve older adults. “Superagers” SASI was proud to host a free community program, “What Do We Know about SuperAgers?” for an audience of more than 60 guests at the Winnetka Community House in November. Dr. Emily Rogalski, a researcher at Northwestern University Feinberg School of Medicine’s Cognitive Neurology and Alzheimer’s Disease Center (CNADC), shared fascinating new findings from her research on “SuperAgers”—individuals over age 80 who have SASI Executive Director Jeanie Ramsey, Dr. M. exceptional memory and other cognitive abilities. Dr. M. Marsel Mesulam, CNADC Director and the Feinberg Marsel Mesulam, Dr. Emily Rogalski, and SASI Board member Dr. John Disterhoft [L to R] School’s Ruth Dunbar Davee Professor of Neuroscience, was also on hand to comment and answer questions. [Read our interview with Dr. Rogalski on page 5.] SASI is proud to congratulate Board of Directors Vice President Ben Gerber, M.D., M.P.H., for his spectacular finish in October at the 2013 Bank of America Chicago Marathon. “Dr. Ben” ran an amazing race: not only did he run his personal best, clocking in at 3:27:45 for his third Chicago Marathon, but he also raised nearly $4,000 for SASI, just $1,000 short of his $5,000 goal! In addition to saluting Ben for his achievement and for dedicating his run to SASI, we are very grateful to the many supporters who donated to SASI in Ben’s honor. We especially thank Ben’s ten-year-old daughter, Daphna, who made and sold friendship bracelets at her summer camp and contributed all of her earnings to her dad’s SASI Chicago Marathon fund. If you’d like to help Ben make his $5,000 goal, it’s not too late! Just go to the “Donate” page on SASI’s website www.SASIathome.org, or mail your gift to SASI at 1123 Emerson, Suite 200, Evanston, IL 60201, c/o “Dr. Ben’s Marathon Fund.” Printed on the right are excerpts from Ben’s letter to the many individuals who generously contributed to SASI in his honor. Dear Fellow SASI Supporters, This year, as you know, I dedicated my Chicago Marathon run to SASI. My goal was to raise $5,000. I am very happy to report that thanks to your generous support, I have raised nearly $4,000! Thank you, one and all, for donating to this exceptional organization. I can assure you that your contributions are much needed and appreciated. SASI Board of Directors Vice President and Chicago Marathoner Dr. Ben Gerber Ever since I first became involved at SASI, I have been very impressed with the agency’s staff, board, volunteers, and especially SASI’s caregivers. As many of you are aware, SASI’s mission is to support the efforts of older adults to remain in their homes. Their motto is: “We make living easier.” SASI provides nonmedical and nonfinancial home care services to help adults remain in their homes safely and with dignity. This may include personal care, mobility assistance, homemaker tasks, errand and appointment assistance, transportation, and companionship. If someone you know might benefit from SASI’s services, I would encourage you to call 847-864-7274 or visit www.SASIathome.org. Consider contacting SASI with a question about home care. Or feel free to contact me. Again, thank you for generously supporting SASI. Sincerely, Sporting their special “Go, Dr. Ben!” marathon t-shirts, a SASI caregiver and staff members root for Dr. Ben Ben Gerber Second Sense Provides Training This fall, SASI caregivers had the opportunity to attend an informative in-service program presented by Polly Abbott, Director of Rehabilitation Services and Certified Vision Rehabilitation Therapist (CVRT) at Second Sense, a Chicago-based community nonprofit that provides client-centered support and training to help individuals move beyond vision loss. Abbott gave two two-hour trainings about how to work with individuals who are visually impaired, including an introduction to adaptive equipment and an interactive simulation of the experience of functioning with impaired vision. Second Sense is a valuable resource for anyone learning to live with decreased vision. In addition to an extremely informative website (www.secondsense.org) that includes information on finding a support group, information and referrals, weekly educational programs, links to adaptive equipment, and ways to adapt to vision loss, Second Sense offers individual career counseling and training. Second Sense can be reached at 312-236-8569. SASI caregivers responded enthusiastically to this opportunity to expand their knowledge and skill set. Both sessions were well-attended and more than 20 caregivers participated. SASI offers its caregivers 16 hours of in-service training annually, twice the number of hours mandated by the State of Illinois. Other in-service credits offered at SASI in recent months include Bereavement Training and The Art of Jewish Caregiving. Starting in January 2014, several new training opportunities will be on SASI’s calendar, including programs on elder abuse, disaster preparedness, infection control, and client dignity. “Vision loss and decreased vision are common reasons for people to call SASI,” says SASI Program Director Sarah Van Huis. “Educating our caregivers to work with older adults who have vision loss will enable them to better understand and assist these clients.” A lively Q and A and refreshments followed Dr. Rogalski’s presentation. Several SASI Board of Directors and Advisory Board members were present, including Ellen Browne, Amy Claver, John Disterhoft, Sue Kamp, Karen Hunt, Edward Rabe, and Ann Searles. Polly Abbott, CVRT Director, Second Sense Thank You, Volunteers! SASI appreciates the generous assistance of volunteers Kurt Flechisig and Karen Jensen. SASI especially thanks John Disterhoft for making this memorable community program possible. (continued on page 4) PAGE 2 SASIcares • Fall 2013 www.SASIathome.org PAGE 7 SERVICES FOR ADULTS STAYING IN THEIR HOMES Non-Profit Org. U.S. Postage cares PAID SERVICES FOR ADULTS STAYING IN THEIR HOMES www.SASIathome.org Evanston, IL 60201 Permit No. 78 FALL 2013 1123 Emerson Street, #200 Evanston, IL 60201 www.SASIathome.org Established in 1975, Services for Adults Staying in Their Homes (SASI) is a 501(c)(3) nonprofit organization serving adults who, due to aging, illness or injury, need help to be safe and comfortable at home. SASI serves Chicago and the north/northwest suburbs. SASI is licensed as a Home Services Agency and a Home Services Placement Agency by the Illinois Department of Public Health. SASI’s mission is to support the efforts of older adults to remain in their homes: we make living easier. Save the Date! Saturday, October 18, 2014 • 5:30 p.m. The 2014 Ruby Slipper Event SASI’s festive annual benefit features dinner, live & silent acutions, and a raffle at the Evanston Golf Clulb. To receive an invitation or inquire about sponsorships or donations, call 847-864-7274, or visit www.SASIathome.org. Leave a Lasting Legacy A meaningful way to support SASI is to make a bequest. An individual can make a provision in her/his will that names Services for Adults Staying in Their Homes (SASI) to receive a percentage, an actual dollar amount, or residue of one’s estate. A bequest to SASI is not subject to taxation, and the value of one’s bequest is deductible in determining one’s taxable estate. To make a bequest or to learn more about this option, please contact Jeanie Ramsey, Executive Director, at 847-864-7274 or [email protected]. Go Green! Go green, cut the clutter, and be the first to read the news at SASI! To receive your SASIcares newsletter via e-mail, please send your name and e-mail address to [email protected]. We would be glad to add you to our e-mail newsletter mailing list! PAGE 8 The SASI Advantage Among caregiving agencies, SASI stands out above the rest. Just consider how our standards, services, and fees compare: • Higher caregiver standards. The State of Illinois requires 8 hours of caregiver training; SASI provides 16 hours of training annually. • No minimum service hour requirement. Other caregiving agencies require a minimum of 4-hour caregiving appointments; SASI allows clients to schedule whatever number of hours they need. • Exceptional caregiver retention rate. The annual rentention rate in the home care industry is 30%; SASI’s rate is 85%. • Client well-being visit within the first 30 days. SASI exceeds state standards: the Illinois Department of Public Health (IDPH) requires visits at 90 days. We cannot provide these exceptional services without your support. Please consider giving generously to SASI. To make a donation, use the enclosed envelope or visit our website at www.SASIathome.org and click on “Donate Now.” We thank you in advance! SASIcares • Fall 2013 SERVICES Home Care Assistance In-Home Administrative Assistance Home Readiness Service Caregiver Screening Service BOARD OF DIRECTORS Officers William A. Gifford, Jr., President Ben Gerber, Vice President Priscilla Wilkins Stevens, Secretary Peter Morris, Treasurer Directors Ellen Browne Mary Ellen Cherry Amy Claver John Disterhoft Susan Kamp Peggy King Edward Rabe, Jr. Ann Searles BOARD OF ADVISORS Dale Bradley Ellen Browne Suzanne Calder Marilyn Hennessy Mark Heyrman Karen Hunt Sandi Johnson Julie Kaufman, Ph.D. Michael Kerns Adina Romain Beyond DNR (Do-Not-Resuscitate): The New Physician Orders for Life-Sustaining Treatment (POLST) By Evelyn Hoffmann, Attorney at Law, Law Office of Evelyn Hoffmann, LLC wishes in the event of a terminal illness or permanent unconsciousness may prove inadequate, as well. A social worker friend has often remarked, “Americans are the only people who think dying is optional.” She didn’t mean this literally. Rather, she was commenting on her patients’ and their families’ lack of understanding about life-sustaining medical treatments, and when such treatments are beneficial versus when they serve only to extend suffering and delay death. For example, let’s say you experience chest pains and your spouse calls an ambulance. The paramedics come and stabilize you, but in the emergency room, your heart stops. The doctors restore your heartbeat and ask whether you want a DNR Order placed in your chart. By agreeing to and signing such an order, you are instructing your doctor not to perform CPR if you go into full cardiac arrest; i.e., you are without a pulse and are not breathing. Faced with such a situation, it would be critical to know what your “POLST can be thought chances were for surviving the procedure, any downsides, of as a roadmap to and how surviving CPR would initiate a dialogue affect your quality of life. Between the courageous, costly, and life-saving feats of Grey’s Anatomy doctors and the arsenal of life-sustaining tools in doctors’ tool chests today, it is understandable that patients and their between the physician families have an unrealistic Additionally, agreeing to a view of the effectiveness of DNR order does not mean that and patient, and as treatment options, and, more you do not want less aggressive importantly, their outcomes. a guide to informed measures taken, such as IV Such life-sustaining measures fluids, cardiac medications, decision-making.” can include CPR (cardiocardiac monitoring, or pulmonary resuscitation), intubation and mechanical artificial nutrition and ventilation if your heartbeat becomes irregular. hydration, intubation and mechanical ventilation, Furthermore, a DNR does not address the potential miracle drugs to treat infections, and ever-evolving benefits or burdens of choosing such measures. chemotherapy options. To better address these issues, Illinois has joined Even if you have completed a power of attorney for 42 other states that have or are developing what is health1 and have spoken referred to as the “POLST (Physician Orders for Lifeto your health care agent Sustaining Treatment) Paradigm.” POLST is a set of about your wishes in the orders, signed by the physician, that are immediately event of hospitalization, actionable. To meet the POLST standards used in you, your family, and/ other states, the Illinois Department of Public Health or health care agent may has revised the Do-Not-Resuscitate Advance Directive be faced with treatment Form that has been in use since 2006. The new form decisions, which, because is known as the “Uniform Do-Not-Resuscitate of their complexity, fall (DNR) Advance Directive/Physician Orders for Lifeoutside the scope of Sustaining Treatment (POLST).” [See http://www.idph. your legal documents state.il.us/public/books/dnrform.pdf] or prior conversations Evelyn Hoffmann, and directives. A living will that addresses your Attorney at Law (continued on page 4)