Community self-help in Switzerland

Transcription

Community self-help in Switzerland
13 -16 May 2015, Chania, Greece
13th European Expert Meeting on Self-Help support
13th European Expert Meeting on Self-Help
Support, Chania (Crete)
2027 self-help groups
300 guided self-help
groups
Community self-help in
Switzerland
20 self-help clearinghouses
170 self-help organisations
self-help in the virtual space
44 online forums
13th European Expert Meeting on Self-Help Support, Chania (Crete)
Definition of self-help in Switzerland
Self-help is based on values such as increasing the level
of trust in one's own personal resources, selfdetermination and assuming responsibility for oneself.
The term "community self-help" comprises all forms of
self-help where people with the same problem, a
common concern or experiencing the same situation
come together to learn from one another, support each
other and practice solidarity.
13th European Expert Meeting on Self-Help Support, Chania (Crete)
Trends and changes from 2012 to 2014
Sensitization about “community self-help”
• public authorities, politicians
• self-help organisations
• giving self-help a FACE
Numbers of groups
Somatic issues
Psychic issues
Social issues
Self-help goes13thtoEuropean
self-management
Expert Meeting on Self-Help Support, Chania (Crete)
National research project 2014-2016 about
community self-help in Switzerland:
Significance, development and its contribution to
health care and social services
13th European Expert Meeting on Self-Help Support, Chania (Crete)
National research project about community self-help
in Switzerland
project | setting | planning/financing
outline:
1) research project
goals -- organisation
2) setting
modules -- content/proceeding
3) planning/financing
13th European Expert Meeting on Self-Help Support, Chania (Crete)
National research project about community self-help
in Switzerland
project | setting | planning/finance
goals :
The current situation of the community self-help in Switzerland needs to be
examined. In particular…
the significance et the benefit of community self-help
its limits
its promotion conditions and perspectives.
These aspects are examined on three levels:
micro level: individual-related context – activities in the «groups»
meso level: institutional context – self-help centres and networking
macro level: general significance for health care and social services
13th European Expert Meeting on Self-Help Support, Chania (Crete)
National research project about community self-help
in Switzerland
project | setting | planning/financing
organisation:
foundation council
supervision
project steering group:
Jürgen Stremlow, «University for social work», Lucerne
René Knüsel, University of Lausanne
Carmen Rahm, management, Selfhelp Switzerland
Bettina Haefeli, project officer, Selfhelp Switzerland
scientific supporting group:
representatives of the self-help centers
representatives of the science and research system/hospital
representatives of the mental health and disability field
13th European Expert Meeting on Self-Help Support, Chania (Crete)
decisional
power
input/
sounding
board
National research project about community self-help
in Switzerland
project | setting | planning/financing
content/proceeding: 5 modules /work packages
module 1: foundations – current extension and development
module 2: activities, effects and limits (micro and macro levels)
module 3: structure and networking of the self-help centers (meso
level)
13th European Expert Meeting on Self-Help Support, Chania (Crete)
National research project about community self-help
in Switzerland
project | setting | planning/financing
content/proceeding: 5 modules /work packages
module 4: comparison with international context
module 5: conclusion and recommandations :
→ evaluation of current provision and promotion conditions
→ identification of benefits and limits of community self-help
→ conclusions for further development and promotion
→ recommandations to promote community self-help for politicians,
institutions, experts/specialists, scientists and researchers
13th European Expert Meeting on Self-Help Support, Chania (Crete)
National research project about community self-help
in Switzerland
project | setting | planning/financing
planning/funds
 pre-project (research design, fundraising etc.): 2014
 project start: january 2015, project end: 3rd/4th
quarter of 2016
 planned funding target for research work : approx.
250’000. budget available at project start : 155’000. further planning : fundraising continues, review of all
funds available in autumn 2015
 autumn 2015 : final definition of working packages
13th European Expert Meeting on Self-Help Support, Chania (Crete)
‫תודה‬
Ευχαριστού ε
13th European Expert Meeting on Self-Help Support, Chania (Crete)
13 -16 May 2015, Chania, Greece
13th European Expert Meeting on Self-Help support
13th European Expert Meeting on Self-Help
Support, Chania (Crete)
Self-help goes to self-management
13th European Expert Meeting on Self-Help Support, Chania (Crete)
Chronic diseases, the epidemic of the
21. century
Institut für Hausarztmedizin Prof. Dr.med. Claudia Steurer-SteyLeiterin Chronic Care, Institut für Hausarztmedizin der Universität Zürich
13th European Expert Meeting on Self-Help Support, Chania (Crete)
• 1986 Ottowa Charta centers the ability of people to
influence and improve their health.
• 2014 Health2020 > But even more people will have to
learn to live with chronical diseases and to manage
them theirselves with the support of health
professionals. Therefore is a need for the
strengthening of the health competences
• […]promotion of health and prophylaxis is to be
intensified […] Therefore shall the self-responsibility
get strengthened, but also demanded [...]
13th European Expert Meeting on Self-Help
Support, Chania (Crete)
The promotion
For the development of the healthcare in the future,
there must be more thinking from the position of the
patient. […] The part of the patient and the population
as actors in the health system must become stronger. It
is time to promote their competence for selfmanagement, […]
13th European Expert Meeting on Self-Help Support, Chania (Crete)
self-help becomes selfmanagement
Old fashion?
Empowerment and autonomy and capability and selfdetermination and self-competence
Trendy?
Caretaker, patient advocates, self-manager
competencies & expert capacity
13th European Expert Meeting on Self-Help Support, Chania (Crete)
The powerful patient
13th European Expert Meeting on Self-Help Support, Chania (Crete)
How
to get a powerful patient
Education
Education of patients:
- Envivo http://www.evivo.ch from Stanford USA,
now also in Switzerland
- Eupati (European Patients' Academy)
http://www.patientsacademy.eu/index.php/en/ all
over Europe
Education of professionals
- Advanced training for health-professionals
(University)
13th European Expert Meeting on Self-Help Support, Chania (Crete)
And…
Particapation in seminaries under the motto „patient in
the center“
13th European Expert Meeting on Self-Help Support, Chania (Crete)
Or being involved academically....
- Medical and pharmaceutic sciences claim to weigh
the interest of the patient by involving patients,
creating rules of action or references
13th European Expert Meeting on Self-Help Support, Chania (Crete)
colorful example:
Verantwortliche Subkommission für die Richtlinien «Patientenverfügung»
Vertr. Medizinalberufe / Vertr. Gesundheitsberufe / Vertr. Ethik + Recht / Vertr. Patienten
lic. theol. P. L., Basel, Vorsitz
S. B.r, PhD, Zürich
Dr. med. M. C., Basel
Dr. med. A. G., Bern
Prof. Dr. med. B. G.,Lausanne
Prof. Dr. med. C. K., St. Gallen, Präsident ZEK
Dr. iur. J. M., Basel
Prof. Dr. med. C. R., Fribourg, Präsident ZEK
Prof. Dr. med. B R, Genf
M S., Pflegefachfrau, cand. MNS, Brünisried
lic. iur. M. S.́, Basel, MAE, SAMW
Dr. med. U. W., Subingen
13th European Expert Meeting on Self-Help Support, Chania (Crete)
self-management needs self-help
Empowerment, automomy, capability,
self-determination and self-competence
construct the basis
for the trendy caretaker, patientadvocate and self-manager
13th European Expert Meeting on Self-Help Support, Chania (Crete)
Our part?
13th European Expert Meeting on Self-Help Support, Chania (Crete)