MindTech HTC

Introduction to MindTech and Today
Jen Martin
NIHR Healthcare Technology Co-operatives (HTCs)
Bradford: Wound
Prevention & Treatment
Leeds: Colorectal Therapies
Sheffield: Devices for Dignity
Nottingham: Mental Health
Cambridge: Brain Injury
Birmingham: Trauma
Management
Bart’s: Gastrointestinal Disease
Guys: Cardiovascular
Disease
Aims of the NIHR Healthcare Technology Co-operatives:
 act as a catalyst for NHS “pull” for the development of new medical
devices, healthcare technologies and technology-dependent
interventions
 focus on clinical areas and/or themes of high morbidity which have
high potential for improving quality of life of NHS patients and
improving the effectiveness of healthcare services that support them
 work collaboratively with patients and patient groups, charities,
industry and academics.
 Funded for 4 years (2013-2017) £200k pa
Why Mental Health?

Mental health problems affect 1 in 4 people

Greatest cause of health-related disability in UK

High unmet need with little technological innovation

Subjective clinical assessment dominates practice

Lack of historical engagement with SMEs

Huge economic cost to UK - £105bn per year
Clinical Landscape
Current prevalence of mental
health disorders in Europe
Mental retardation
 Mood Disorders
 Unipolar depression
 Bipolar depression
 Neurodevelopmental disorder
 Autism spectrum disorder (ASD)
 Tourette syndrome
 Attention Deficit Hyperactivity
Disorder (ADHD)
 Dementia
1.0
opiate dependence
0.4
OCD
0.7
Eating disorder
0.9
Cannabis dependence
1.0
Psychotic disorder
1.2
Personality dis.
1.3
PTSD
2.0
Conduct disorder
3.0
Alcohol dependence
3.4
Somatoform disorders
4.9
ADHD
5.0
Dementia
5.4
Unipolar depression
6.9
Insomnia
7.0
Anxiety disorders
14.0
0
2
4
6
8
10
12
14
MindTech is all
about Partnerships
Users
Industry
Service users, clinicians, NHS
Trusts, charities & the public
MindTech
University Research
Behavioural Science, Psychiatry,
Computer Science, Human Factors,
Clinical Trials, Bio-engineering
The NHS: from
practice to policy
Aims
Today
• Introduce 3 clinical areas:
• Bring together a wide range of people with complementary
knowledge and skills
• Work together to identify a variety of unmet needs
• Start to build partnerships to work on solutions
What’s next?
• We’ll circulate all material produced today
• We’ll identify some needs that MindTech would like to explore
• Link up individuals and organisations who want to work together
• Future Medilink & MindTech events
Ways of working:
• Today is all about working together, generating ideas and sharing:
• Everything created today will be shared and can be used freely
• We’ll circulate everything to all attendees
• We may use the material produced today on our website and in
presentations, etc. Please feel free to do the same
Please remember:
• Be respectful
• Be thoughtful
• Be open
“It’s OK to disagree, but not to be disagreeable…”
Attention Deficit Hyperactivity Disorder
Zoe Young: Research Assistant
Scott Angle: UX Strategist and Designer
www.mindtech.org.uk
ADHD
• Attention Deficit-Hyperactivity Disorder (ADHD) is
characterised by three core behaviours; inattention,
hyperactivity and impulsivity.
• It affects around 3-5% of the general population and is
usually diagnosed in childhood.
• Approximately two-thirds of children with ADHD will
continue to experience symptoms in adulthood (2.5% adult
population; Simon et al., 2009).
ADHD
• ADHD associated with other conditions; autism, Tourette
syndrome, anxiety, depression, conduct disorder.
• Heightened risk of substance misuse and offending.
• Wider social and economic impact such as social
relationships, independent living and sustaining
employment.
• Diagnosis can have a significant positive impact for the
individual and help to direct appropriate treatment and
support including pharmacological and nonpharmacological interventions.
ADHD
• “Making Sense of Adult ADHD” video made by Dr Alinda
Gillott, Consultant Clinical Psychologist, Nottinghamshire
Healthcare Trust
http://vimeo.com/64790626
Dementia
Alison Pitt: Alzheimer’s Society
Mike Craven: Senior Research Fellow
www.mindtech.org.uk
Dementia films
• What do you see? Film about a women with
dementia in a care home
• Stories of User Appropriation (SoUP)
• Number 1 – mobile phone
• Number 2 – kitchen
• Number 3 - heating
Mood disorders
Lucy Simons: Research Fellow
Mat Rawsthorne: Academy for Recovery Coaching CIC
www.mindtech.org.uk
World wide
disability
Rank order
1. Low back pain
11. Osteoarthrosis
2. Major depressive disorder
12. Drug use disorders
3. Iron deficiency anaemia
13. Hearing loss
4. Neck pain
14. Asthma
5. COPD
15. Alcohol use disorders
6. Other musculoskeletal
16. Schizophrenia
7. Anxiety
17. Road injury
8. Migraine
18. Bipolar disorder
9. Diabetes mellitus
19. Dysthymia
10.Falls
20. Epilepsy
Depression
2 weeks of depressed mood or loss of interest and
pleasure almost every day and all day plus 3 or 4:
•
•
•
•
•
•
•
•
change in sleep pattern and unrefreshed
change in appetite/weight
loss of energy
slowed down or agitated
poor concentration/ ability to decide
decreased confidence, self-worth
excessive guilt
thoughts of death or suicide
Depression
• Major depression 2 weeks, more severe
• Dysthymia 2 years persistent, mild (2-5 symptoms).
• Melancholia Most severe, slowed down/agitated,
worse in morning, early morning waking, weight loss.
• Bipolar depression
• Post natal depression up to 4 years after having a
baby
• Depression with psychosis
• Atypical depression Sleep more, eat more, worse in
evening.
• Seasonal affective disorder Seasonal pattern
• Adjustment disorder to life change.
• Bereavement
Bipolar
disorder
• Bipolar disorder is an episodic, potentially life-long,
disabling mood disorder
• It can get worse in more than one way e.g. mania,
depression or a mixture of both
• More difficult to diagnose and measure outcome
• Need to improve recognition, reduce poor care and
improve long-term outcomes
• However most people with bipolar disorder make a full
recovery between episodes of illness.
Nottinghamshire?
• 13.9% national population have depression,
some mixed with anxiety (ONS survey 2000)
• Nottinghamshire population is 1.09 million
(2011 census)
• Likely that over 120,000 people living with
this condition locally
• http://www.youtube.com/watch?v=XiCrniLQ
GYc
• Mat’s experience of trying to access services
Issues in the management of
depression
1.
2.
3.
4.
5.
6.
High-volume, repeat business
People prefer to self-manage
Knowing when to ask for help
Expectation of prompt help
Power of peers
Services are crisis, not prevention, focused
Group Work: Building Personas
• Personas: Fictional characters used by developers to represent the
different people that may use (or interact with) a product or service
• They focus on the major needs and expectations of the most important
user groups
• For any product a number will be produced
• They describe real people with detailed backgrounds, goals, and values
• As they develop, will include behaviour patterns, goals, skills, attitudes…
I’d like to be able to…
My dream is
to…
I don’t want this
to stop me…
It would be better if I
could…
We are still
looking forward
to…