Winter - Hospice of Cincinnati
Transcription
Winter - Hospice of Cincinnati
122945 122945-Bethesda $DOCPAGE 1/24/2011 7:38:07 PM Volume 17 • Number 1 • Winter 2011 Hospice of Cincinnati Experience. Compassionate. Caring.SM IN THIS ISSUE Respectful, honest care fitting for a veteran Helping patients, families, meet end-of-life goals Gary Johnson is able to spend precious time with his wife, Sonya, and grandchild, Maci, 3 months, in the comfort of his home with the help of Hospice of Cincinnati. Page 1 End-of-Life Partnership supports community education Page 3 Experienced Caring: Timing is everything Page 4 SAVE THE DATE Hospice of Cincinnati Summertime Classic May 22-23, 2011 Kenwood Country Club Call 513-865-1616 for more information Hospice of Cincinnati is sponsored by Bethesda Inc. in a collaborative community partnership with TriHealth and Mercy Health Partners. I t started so innocently. Gary Johnson was helping his wife hang curtains in their dining room. When he held the hammer up to hit the nail he was holding in place, his fingers went numb and the nail fell to the floor. After several more episodes of experiencing numbness in his fingers, Johnson had a CT scan that showed multiple lesions on his brain. Further testing revealed tumors throughout his body. Diagnosed with melanoma in June, Johnson was referred to Hospice of Cincinnati after radiation therapy failed to halt the progress of the disease, which had spread throughout his body. Johnson was barely eating and had lost a great deal of weight when Hospice of Cincinnati nurse case manager Jennifer Kremer, RN, first started overseeing his care in his Norwood home. “Mr. Johnson is a veteran and was a very active man before he got sick,” Kremer explains. She manages his symptoms to keep him as comfortable and content as possible. continued on page 4 Improving end-of-life care conversations M ore than 90 million Americans live with at least one chronic illness, such as cancer, congestive heart failure or Alzheimer’s disease. And seven out of 10 will die from one of these illnesses, according to the Dartmouth Atlas Project, which tracks health care trends. In a study on end-of-life care, the Dartmouth Atlas also reports that more than 80 percent of patients say they want to avoid hospitalization and intensive care during their end of life. Unfortunately, many families are not having these difficult conversations until it is too late, so patient wishes are not being met. Clearly, a gap exists between the kind of experiences patients and families desire at the end of life and what actually happens. To help ensure everyone in our community receives the kind of care they prefer at the end of life, the recently formed Greater Cincinnati End-of-Life Partnership is supporting the use of the MOLST (Medical Orders For Life Sustaining Treatment) medical order form. This is an actual physician order specifying what treatment a patient does and does not want at the end of life. continued on page 7 122945 122945-Bethesda $DOCPAGE 1/24/2011 7:38:13 PM Message from the CEO T he chaos of the holidays has passed. Massive to-do lists have given way to less frenzied moments. It’s the time of year when we slow down to ponder events from our past and goals for the year ahead. As I reflect on the past few years, it’s easy to recall the dayto-day business of our work. But when I think more deeply about what matters most, I’m reminded of several poignant stories. What stands out in each of them is the heartfelt gratitude of patients and families for the personalized care they received. Frances is one of these patients. Shortly after arriving at Hospice of Hamilton’s inpatient care center, she told her nephew she was in the “nicest place” she’d ever been. Frances was so appreciative of the care she received that she asked friends to sell all her possessions, and she donated the proceeds to Hospice of Hamilton. The staff graciously accepted Frances’s $350 donation. For Tyler, gratitude came in the form of a smiling, tearfilled face, knowing his mother was there when he received his high school diploma. Hospice of Cincinnati staff arranged for school officials to hand-deliver Tyler’s diploma so his bedbound mother could watch him graduate. And there was Judy, whose gratitude surfaced when she saw her brother finally let go as one of our music therapists played a soft and caring song, specially selected for him, to provide a peaceful passing. Most recently, the Johnson family experienced the difference Hospice of Cincinnati’s compassionate care can make. (See front page.) None of these stories would be possible without the incredible dedication of our employees and volunteers. I am grateful that so many have made Hospice of Cincinnati’s trademark compassionate care their mission. I’m equally grateful to our many volunteers and community supporters who help us through their generous donations of time, talent and treasure every day (see page 6). This includes our newest volunteers from the Fernside PIT Crew (page 8). I never cease to be amazed at the simple things that can make such a difference to terminally ill patients and their families when the end is near. I am honored to be part of a community that so generously gives so Hospice of Cincinnati can continue to help families create positive and meaningful endof-life experiences. Warmest Regards, Employee of the Quarter Extraordinary nurse gives extraordinary care M any terminally ill people want to die at home. With the help of Hospice of Cincinnati’s extensive and caring support team, most patients get this wish to spend their last days in the comfort of their own homes. However, sometimes it takes extraordinary efforts by Kim Green, RN extraordinary people to make this possible. Kim Green, RN, case manager with the West Home Care Team, is one of these people. Known for going above and beyond, Green was named the most recent Employee of the Quarter. Green was nominated by Melody Losey, RN, a fellow Hospice of Cincinnati nurse, who had moved her mother to a long-term care facility close to her home. “As my mother’s life was nearing the end, she requested to be moved back to Indiana to die at home,” remembers Losey. “Kim understood the problem of staying in Ohio and did everything she could to facilitate the move. Although this may seem like part of her job, she took it a step further. She helped us find a nearby hospice to continue the care and arranged for transport from Ohio to Indiana.” Losey continues, “Kim stayed in contact with us and helped us coordinate care by contacting therapy support and other services that we were able to initiate on our own. She gave us clues of things to look for and what kind of care to anticipate. Kim gave me the confidence I needed to care for my mother right up until she died. It gave me comfort to know that I did everything I could to make my mother comfortable.” Green’s supervisor, Vyneta Barnett, RN, couldn’t agree more. “Whether it’s her co-workers, patients or families, Kim goes out of her way to make her patients and families comfortable and to back up her co-workers.” A hospice nurse since 1995 and a Hospice of Cincinnati employee for the past five years, Green says she gets great satisfaction helping patients manage their symptoms so they have the best quality of life possible. “They learn that a referral to hospice is not a death sentence—it’s just the opposite,” she explains. “Many times I can help them feel better so they are able to enjoy the time they have left with their family.” Losey concludes, “Kim took the time to make sure everyone was comfortable and knowledgeable and went above and beyond our expectations. We will be forever grateful for her care of my mother and of us.” If you do not wish to receive future issues of Hospice of Cincinnati’s quarterly newsletter, or any other future fundraising communications from Hospice of Cincinnati of Cincinnati, Ohio, you may request to be deleted from our mail list. Please send a letter to the below address requesting to be deleted from the Hospice of Cincinnati mail list. Sandra Lobert President and CEO ATTN: Hospice of Cincinnati List Manager Bethesda Foundation Inc. 10500 Montgomery Road, Cincinnati, Ohio 45242 2 122945 122945-Bethesda $DOCPAGE 1/24/2011 7:38:19 PM End-of-Life Partnership supports community education program M ore than 100 health care professionals and community members learned about palliative and hospice care at “End-of-Life: Healthy Living, Grieving and Dying” at Duke Energy Center Nov. 6. Sponsored by the Union Institute & University in partnership with the Academy of Medicine, the symposium featured local and internationally known experts in end-of-life care. The event provided an opportunity for Hospice of Cincinnati’s End-ofLife Partnership to become involved in a community education program focused on the many complex issues surrounding end-of-life care. Hospice of Cincinnati President and CEO Sandra Lobert discussed “What, How, When and Why Hospice Works.” Beloved therapy dog rests forever among those she loved Hospice of Cincinnati President and CEO Sandra Lobert discusses the benefits of hospice care. Photo courtesy of Brandon Farmer David Wiltse, MD, chairman, Hospice of Cincinnati Board of Directors, and chairman, Program Committee, Academy of Medicine of Cincinnati, welcomes everyone to the “End-of-Life: Healthy Living, Grieving and Dying” symposium. Tracing the roots of hospice care, Lobert quoted Dame Cicely Saunders, best known for her role in the birth of the hospice movement: “You matter to the last moment of your life, and we will do all we can, not only to help you die peacefully, but to live until you die.” Lobert also reported that hospice care can in some instances actually extend patients’ lives. According to a 2007 Journal of Pain and Symptom Management report, patients who chose hospice care lived on average 29 days longer than similar patients who did not chose hospice care. Joanne Lynn, MD, bureau chief, Cancer and Chronic Diseases, Community Health Administration, U.S. Department of Health and Human Services, discussed the importance of knowing how to recognize the end of life and the difference it can make for patients and families. Joanne Lynn, MD, U.S. Department of Health and Human Services, provides information on how to better identify end-of-life patients. R escued at 5 ½, Devon—a Doberman—was born to be a therapy dog. “She loved me, but her heart was at Hospice of Cincinnati’s Inpatient Care Center in Anderson,” says her owner, Robin Zoller. “As soon as she got out of the car, she’d start pulling on her leash to get inside the door,” Zoller explains. “The staff called her the ‘miracle on a leash,’ ” Zoller recalls. Devon would joyfully greet patients and staff alike. Even non-responsive patients seemed aware of her presence whenever Devon nestled her soft head under their hands. Sadly, Devon passed away this summer from cancer. “I thought the right place for her was at the unit, so I asked if I could spread her ashes around the garden and pond.” Devon’s caring spirit will forever comfort those who enjoy the beauty of the gardens. 3 122945 122945-Bethesda $DOCPAGE 1/24/2011 7:38:26 PM Experienced Caring Timing is everything A friend recently stopped me while I was shopping at her business and passionately told me the details of her father's death. He was referred to Hospice of Cincinnati Rebecca Bechhold, MD, but very late in his illness. Once Chief Medical Officer, Hospice of Cincinnati took over Hospice of Cincinnati his care, his symptoms were addressed, and he was profoundly grateful for the relief and comfort. Unfortunately, he passed away just two days later. My friend was angry that her father had not been referred earlier and told me emphatically that I should be getting the word out to the medical community about the benefits of Hospice of Cincinnati services. So noted. At a Christmas party, another friend was telling everyone within earshot about the fabulous services her mother received from Hospice of Cincinnati. Her mother had been referred when her chemotherapy for lung cancer was no longer effective. At the time she started hospice services, she was active, driving and socializing, albeit with a little more fatigue. Her mother slowly required more services: a home health aide to help her with personal care, a social worker to help organize important papers and make certain her financial affairs were properly arranged, and a chaplain was available for her spiritual needs. She had excellent symptom control thanks to the nurse who had time to get to know her and was on top of changes in her clinical situation. Her mother died peacefully at home with her family who — though sad about her death — had no regrets and felt that everything possible had been done to make her last months more comfortable and peaceful. When patients receive an earlier referral like in the second example, better end-of-life experiences result. Timing is everything. And when the timing is right, it can mean a world of difference to patients and families. “Experienced Caring” provides a closer look into how Hospice of Cincinnati’s clinical expertise and care philosophies benefit patients and families. VETERAN continued from cover “Jen’s an excellent nurse,” Johnson says. “She orders my meds, tells me what I should and shouldn’t do…she’s like a Gary Johnson recently was recognized for his service to America by Hospice of Cincinnati as part of the Veterans Administration Hospice and Palliative Care Initiative. He is surrounded by family and Hospice of Cincinnati staff. mother hen,” he notes with a grin. His appreciation of her is evident. “She came to the benefit event my brothers and sisters organized for me. She even cooked us dinner one night,” he says, amazed. “I mentioned that spaghetti and meatballs sounded good, and she showed up at my door with it.” 4 In addition to medication, Kremer arranged for a hospital bed, wheelchair and other medical equipment to make it as easy as possible for Johnson to remain at home. The services also have benefitted his wife, Sonya. “If I need a break, Jen will arrange to get someone in to help,” she notes. “They’ve told me if I want spiritual help or someone to talk to, they can help with that, too.” Recently, Johnson was honored by Hospice of Cincinnati as part of the Veterans Administration Hospice and Palliative Care Initiative. As one of 28 Hospice of Cincinnati patients who are veterans, his service was acknowledged on Veterans Day with a pinning ceremony, an appreciation certificate and a patriotic-themed bear made by a Hospice of Cincinnati volunteer. To the Johnsons, one of the most important things the Hospice of Cincinnati staff has provided is honesty. “Jen’s been really upfront about what is going on and what to expect,” Gary Johnson says. “That’s helped me come to accept the situation and make sure everything is planned for.” Johnson spent eight years in the Army infantry travelling from New Zealand to Alaska to Hawaii. Today, his world is much smaller and his wish very simple: To spend his final days at home surrounded by his loving family and friends. Hospice of Cincinnati is helping make that possible. 122945 122945-Bethesda $DOCPAGE 1/24/2011 7:38:32 PM From the Foundation Financial philosophies for families T he seeds of charitable giving are not automatically planted at birth. People learn, usually over a long period of time, the values that inspire their donations. Often, the values we learn at home and through our faith eventually grow into a philosophy in life. Most important, a family financial philosophy starts with the care of family members and addressing such basic needs as the mortgage, medical costs and tuition bills. But most of us – and we rarely take the time to ponder this issue – actually do earn or possess more than we need. Though the definition of "need" is highly personal, the value system we learn as we grow prompts our desire to help others. After all, not all wealthy people are charitable, and not all charitable people are wealthy. The difference then is clearly not the amount of available money. Instead, it is the measure of compassion for others – those whom charitable organizations like Hospice of Cincinnati serve – that makes the difference. Gary Algie Director, Planned Giving/Major Gifts Interim President If you would like to discuss opportunities for making a difference to Hospice of Cincinnati patients and families or ways to include Hospice of Cincinnati in your will, please call me for more information at 513-865-1622 or send e-mail to [email protected]. You may also visit www.BethesdaFoundation.com and click on gift planning. Plant your charitable seedlings One Annual gifts ensure that Hospice of Cincinnati will be able to provide much-needed services to the community every year. Two A major gift to Hospice of Cincinnati this year lets us apply those funds to support immediate projects. Three A bequest in your will demonstrates your commitment to future generations. Be part of 10th annual Volunteers honored at golf classic May 22-23 Caregiver Mass S oon the winter-time “white stuff” will give way to lush fairways and richly colored greens as the 10th annual Hospice of Cincinnati Summertime Classic gets underway. The event once again will feature a dinner and silent auction Sunday night followed by golf Monday afternoon on Kenwood Country Club’s two courses. Last year’s Summertime Classic netted more than $120,000 for Fernside, an affiliate of Hospice of Cincinnati that supports children and families through grief. Many opportunities exist for corporate/individual sponsorship, dinner tickets, team play and volunteering. Come out and help Hospice of Cincinnati celebrate 10 years of support to Fernside! Please contact Bethesda Foundation at 513-865-1616 for more information. D orothy Luebbers and Rosemary Meyer are tireless volunteers helping to comfort the bodies and souls of patients at Hospice of Cincinnati’s Blue Ash Inpatient Care Center. They were honored recently at a Caregiver Recognition Mass for this devotion to helping those in their church and the community. Held at The Cathedral of St. Peter in Chains, the Mass was sponsored by Catholic Charities of Southwestern Ohio and The Order of Malta. “We are fortunate to have such stellar, committed caregivers serving our patients and families,” remarks Jo Ann Ropp, manager, Hospice of Cincinnati Volunteer Services. Hospice of Cincinnati volunteers Rosemary Meyer (left) and Dorothy Luebbers were honored at a Caregiver Recognition Mass for their dedication and service to Hospice of Cincinnati and their church. 5 122945 122945-Bethesda $DOCPAGE 1/24/2011 7:38:38 PM Community gives back For more information on how to host a thirdparty fundraiser for Hospice of Cincinnati or Hospice of Hamilton, please contact Diana Fogel at 513-865-1617 or [email protected]. Local employees choose Hospice of Cincinnati T hank you to the employees of GKN Aerospace who chose Hospice of Cincinnati as the recipient of $2,500 from their Foundation. GKN Aerospace employees are given the opportunity to choose a non-profit charity to benefit from their Foundation each year. Several GKN Aerospace employees had loved ones cared for by Hospice of Cincinnati. Pictured are Hospice of Cincinnati President and CEO Sandra Lobert with a group of GKN Aerospace employees. Hospice of Cincinnati President and CEO Sandra Lobert accepts a check from GKN Aerospace Foundation for $2,500. Footwork for Hospice D ancers and tumblers at the Fabulous Talent dance studio raised $400 for Hospice of Hamilton with a dance-athon, organized by instructor Paula CuppRomer. Held the week before the Hike for Hospice of Hamilton, “Footwork for Hospice” was held in loving memory of Cupp-Romer’s mother, who was a patient at the Hospice of Hamilton Inpatient Care Center. 6 Feet forward for Hospice Cincinnati Hike The 29th Hike for Hospice of Cincinnati took place Oct. 3 with more than 950 walkers who helped net $43,000. Jazzercise of Blue Ash warmed up the crowd, and Cammy Dierking, Local 12 WKRCTV, served as master of ceremonies. Presenting sponsor for Hike for Hospice of Cincinnati was Claire B. Phillips. Additional sponsors included The Kaplan Foundation, Dr. and Mrs. Edmund W. Jones, Fort Washington Investment Advisors, Inc. and Therapy More than 950 walkers hit the pavement Support. Other key Oct. 3 in the annual Hike for Hospice of sponsors were Fleet Feet, Cincinnati, which netted $43,000. John Morrell, Caribou Coffee, Tradewinds Beverage Company, United Dairy Farmers, Viox Services and the Cincinnati Chapter of the GE Elfuns. Hamilton Hike More than 500 hikers came out Oct. 3 for the 12th annual Hike for Hospice of Hamilton, which netted more than $42,000. Robbie’s Song, a team organized in memory of Robbie Dalton and sponsored by Harry’s Corner, was the premier sponsor. Mike’s Livestrong Team and Weintraub Advertising were the Platinum Sponsors. Other major sponsors included: Heritage Health Alliance, Mercy Health Partners, Dr. and Mrs. Edmund W. Jones, Lifespan, Rik Saylor Financial, Miller Coors, MH Equipment Company, Fairfield Jazzercise, the Timeline Band, Ohio Casualty/LibPaula Cupp-Romer takes a break with her erty Mutual, Pella Corporafamily at the Hike for Hamilton. tion, Colonial Foundation and Chaco Credit Union. Special thanks to Rib City for its donation of delicious pulled pork sandwiches! Join us for the 2011 Hikes in Cincinnati on Oct. 15 and Hamilton on Sept. 24. For more information, please contact Jerri Spurlock at 513-865-1618 or [email protected]. CORPORATE PARTNERS Also contributing to the success of these events are the following Bethesda Foundation Corporate Partners who generously support our fundraising events: American-Mercy Home Care, Amerimed, Auxiliary of Bethesda Hospital, Bethesda Inc., CornerStone Medical Services, Fifth Third Bank, Fort Washington Investment Advisors, Harry’s Corner Flooring, HealthSpan, Mercy Health Partners, Patient Transport Services, Claire B. Phillips, Therapy Support and TriHealth. 122945 122945-Bethesda $DOCPAGE 1/24/2011 7:38:45 PM IMPROVING CONVERSATIONS continued from cover “We want to be part of the catalyst that changes the dialogue between patients and their physicians and normalizes end-of-life planning,” explains Hospice of Cincinnati President and CEO Sandra Lobert. “Our goal is to help people have a better understanding of their choices.” Bernard J. Hammes, PhD, a clinical ethicist for the Gundersen Lutheran Health System in La Crosse, Wis., developed MOLST as part of the Respecting Choices program (www.respectingchoices.org). Hammes was called on for ethics consultation with family members of hemodialysis patients who had become incapacitated. His job was to help the families work through the decision of whether to continue dialysis treatments. He discovered that in each and every case, the family had no idea what the patient's values and goals were in terms of treatment because they had never previously discussed care at this stage. While more than 50 percent of Americans have advance directives, they are typically very vague. The MOLST medical order form includes very specific details about a patient’s wishes for life-sustaining treatment, including: cardiopulmonary resuscitation (CPR), mechanical ventilation, future hospitalizations, feeding tubes and antibiotic use. Because of the level of detail, the form prompts the kind of in-depth conversations that can help patients work through their values and goals. “It’s our duty to provide this kind of guidance, context and knowledge,” notes Bob Collins, MD, president for Medical Affairs at Bethesda North Hospital. “We should approach treatment of the dying with the same dedication and focus we apply to the process of being born. After all, it is the one subsequent life event that will touch us all.” Victor Lee, MD, medical director, Mercy Health Partners Long Term Care, explains that staff members talk with all patients and families about DNR forms as part of the admission process to their facilities. “The MOLST form can help expand the conversation so we really know what the patient wants at the end of life,” he says. “We investigated the Respecting Choices program, and thought training front-line staff—registered nurses, social workers and chaplains—would help make them more comfortable and knowledgeable about having these conversations,” Dr. Lee continues. Hospice of Cincinnati is providing financial support to the Health Improvement Collaborative of Greater Cincinnati’s End-of-Life Care Initiative, which is bringing trainers from Respecting Choices to Greater Cincinnati. Doug Smucker, MD, University of Cincinnati Department of Family Practice, is leading the training effort. Hospice of Cincinnati education specialist Deana Birkkenheuer, RN, will become one of the trainers. “We want to make sure everyone is treated the way they want to be at the end of their life,” Lobert says. Grief Support Guiding families back to life after loss Grief support groups are available at our Anderson, Blue Ash, Hamilton and Western Hills locations. For information about these programs and other Hospice of Cincinnati bereavement services, please call: Alan Gruber at 513-686-8120, Vivian Jones at 513-686-8139, Claire Peasley at 513-686-8121, or Polly Peterson at 513-686-8122. Please call the number listed for each group for more information and to register. BLUE ASH Afternoon Support Groups • Tuesdays, 1 to 2:30 p.m.; call Polly Peterson at 513-686-8122 for more information or to register. Evening Support Group • Thursday evenings for seven consecutive weeks; call Alan Gruber at 513-686-8120 for more information or to register. HAMILTON Grief Support Group Thursdays, 1 to 2:30 p.m.; call Polly Peterson at 513-686-8122 for more information or to register. WEST Afternoon Support Group • Thursdays, 1 to 2:30 p.m.; call Vivian Jones at 513-686-8139 for more information or to register. Evening Support Group • Thursdays, 7 to 8:30 p.m.; call Vivian Jones at 513-686-8139 for more information or to register. Become a Hospice of Cincinnati volunteer! Become a Hospice of Cincinnati volunteer! 2011 training dates are scheduled for: Feb. 26, May 21, Aug. 13, and Nov. 5. All training sessions will be held at the Blue Ash Inpatient Care Center, 4310 Cooper Ave. Pre-registration is required. Please contact Judy Russell, volunteer services office coordinator, at 513-792-6989 or [email protected] for more information and to register. 7 122945 122945-Bethesda $DOCPAGE 1/24/2011 7:38:51 PM Non-profit Org. U.S. Postage PAID Cincinnati, Ohio Permit No. 9177 Experience. Compassionate. Caring. SM Published by Hospice of Cincinnati 4360 Cooper Road, Suite 300 Cincinnati, OH 45242 (513) 891-7700 © 2011 Hospice of Cincinnati, Inc. All rights reserved. HospiceofCincinnati.org Printed on Recycled Paper Fernside alumni give back through PIT Crew W hen 4-year-old Sam came running out to the car after his first Fernside group session, his eyes were as big as saucers, remembers his mother, Theresa Norman. “He was so excited because all the other kids in the group had lost a mom or dad, too,” she says. “Fernside helped me so much after my dad died,” remembers Sam. “I realized I wasn’t alone having a parent die.” Ten years later, Sam still remembers going to Fernside and how much it meant to him. So when he received a letter from Fernside asking if he would be interested in joining the new “Philanthropists in Training” (PIT) Crew, he jumped at the opportunity to give back. “The PIT Crew was launched about a year ago to engage teens in our community with an interest in our cause, ” explains Mary McCutchen, volunteer coordinator. “In particular, teens who have been through our program see the Crew as a way to stay connected with Fernside.” Sam says he and the other teens in the group have helped out with several Fernside events since they started meeting. “We helped serve ice cream at Fernside’s Camp Erin and helped at the Hike for Hospice with set up and clean up, face painting and blowing up balloons.” Long-term, Sam says the PIT Crew is working on ideas to help promote Fernside. “It really makes me feel good about myself giving back to an organization that helped me so much,” he says. Theresa agrees. “Fernside was a venue we needed to help us get through our grieving. I think it is wonderful Sam is able to give back.” Philanthropists in Training (PIT) Crew members have helped out at several Fernside fundraising events, including Hike for Hospice. Sam Maciejewski and fellow PIT Crew member Ellie Brown offered face painting to hikers. Celebrating 25 years of supporting families Fernside begins a year-long celebration of its 25th anniversary in 2011. Look for events in future issues of this newsletter.