LIVING LIFE AT THE END OF LIFE - Nanaimo Community Hospice
Transcription
LIVING LIFE AT THE END OF LIFE - Nanaimo Community Hospice
Community Newsletter Fall/Winter 2013/14 NANAIMO HOSPICE HAS MOVED – WE ARE IN OUR NEW HOME Grand Opening A Success $1,010,500 Raised – Thank you Nanaimo! Hundreds of people enjoyed a tour of our new home and light refreshments on September 27th. Our Donor Reception in the evening was also packed. It was a day of celebration and a time to say thank you to our community for helping us to create a new home for Hospice with twice the space and room to grow! The campaign to raise $1,25Million was launched in February 2012 and we want to thank our community for the wonderful support provided. In addition to the actual money raised, over $300,000 in donated goods and services were also gifted to the campaign. Thank you for caring and thank you for sharing your time, money, and expertise. We aren’t done yet – we still have $200,000 left to raise to be mortgage free by April 2015. We know we can count on our community to help make that happen. The Children’s Therapeutic Garden (left) is a wonderful addition to our Child & Youth Program (more on page 4). “Transitions” stained glass window (right) created and donated by Chris Aronson (Hospice Volunteer). Exterior of Hospice House (below left) was completely updated and has created a bright and beautiful appearance for our new Hospice Home. The Reception Area (lower right) provides a warm and welcoming space where you can browse through the Hospice library and enjoy a cup of tea. Already this space provides comfort when people arrive at Hospice for support. Thank you Nanaimo! We couldn’t have done it without you! Helping Hospice Help Others OTHER WAYS TO SUPPORT US COMING EVENTS Visit www.nanaimohospice.com for details At Hospice House 2013 Advance Care Planning Session – Nov 29th (Full) Hospice House Christmas Market – Dec 2nd Celebrate a Life Tree at Hospice House – Dec 2-24th GIFTS ELIGIBLE FOR TAX RECEIPTS In The Community 2013 Gathering to Remember – Dec (St. Pauls Anglican) Celebrate a Life Trees at Country Club – Dec 7-21st New Years at Fire House Grill – Dec 31st 1st In 2014 KC’s Boutique Fashion Show – April 27, 2014 VIREB Charity Hockey Game – TBA 2014 Redliner’s Charity Car Show – July 13, 2014 To view this newsletter in full colour go to www.nanaimohospice.com - click on About Us Collect UPC Codes from Island Farms Dairy Products Designate Your Returns for Hospice at Bottle Depot 10% of purchases at the Soap Company to Hospice 3% on Amazon orders at www.nanaimohospice.com 2% purchases at Husky/Mohawk with card Go to our website - click on Canada Helps and give Donate by mail or by phone (credit card) Join our Monthly Giving Program Leave a Legacy through estate planning Name Hospice as owner of life insurance policy Attend fundraising events or have one of your own Donate to honour birthdays/anniversaries Instead of Christmas presents give to Hospice CAMPAIGN GIFTS ON VIRTUAL DONOR WALL Go to www.nanaimohospice.com and click on support us/ capital campaign to see our virtual donor wall and many photos of those who gave. List of all who gave is included in this newsletter. 1080 St. George Crescent, Nanaimo, BC V9S 1X1 Tel: 250-591-8811 Fax: 250-591-1858 www.nanaimohospice.com www.teensanddeath.com Email: [email protected] Two locations to service you! #5 - 4286 Departure Bay Rd #35 – 1925 Bowen Rd (Bowen Centre) 250-758-8886 www.nanaimohospiceshoppe.com Email: [email protected] Jeanne Fahlman (staff), Mayor John Ruttan, MP Jean Crowder, Karen Boudreau (Campaign Chair) and MLA Leonard Krog cut the ceremonial ribbon at the Official Opening of Hospice House. When You Give to Hospice You Help Create a Healthier and Stronger Community Programs & Services Our Services are free – But you must register Hospice Programs To register, or to get more information, Call Hospice at 250-591-8811 Volunteer Home Visiting Program - Volunteers support palliative individuals and family members in their own home. Surviving Widowhood – Drop-in group for individuals 60 years of age and under who have lost a spouse. Volunteer Support on PCU at NRGH – Volunteer support for patients and family members on the Palliative Care Unit in hospital (volunteers on duty minimum of 8 hours per day) Adult Counselling – Free palliative and grief counselling for individuals and families. Child/Youth Program – Counselling and support for children (12 and under) and teens. Also offer education in the schools, support for parents, library resources, and a specially designed teen website at www.teensanddeath.com. Saturday Morning Walking Group – Walk the seawall, have a coffee or tea, and join with others experiencing loss and grief. Finding My Way: Coping With Grief – An 8 week grief support program for adults who are at least 6 months into their grief. Companions Through Grief – A Friday morning drop-in adult grief support group at Hospice House. Caregiver Support Group – For those actively caring for a loved one at the end of life. Call for information. Self Care Clinic – Reiki and relaxation restricted to Hospice palliative and grief clients and caregivers. Drop-in Scents of Comfort – Gentle aromatherapy hand massage and support – by appointment only. Bereavement Follow-up – Follow up letters are sent at regular intervals for first year of loss NEW - Suicide Bereavement Group - for individuals impacted by loss as a result of suicide - on 1st Wednesday of month. Comfort Cushions & Shawls – These soft cushions and plush shawls provide warm and comforting support. Hospice Library – Open to the public Mon to Fri (9-4) at Hospice House. Comprehensive resources – books, CDs and more. Partners in Compassion – Caregivers in Nanaimo reaching out to support caregivers in Nepal. Sharing My Story – An opportunity to leave an audio legacy for your family. Tell your story – leave a reading for your grandchild. Elders in Transition – Hospice Shoppe support for seniors who are downsizing or families dealing with loss and the need to dispose of family possessions often within a short period of time. Hope - Strength Resilience: Beyond Surviving New – Suicide Bereavement Group At Hospice House On October 2nd the transitioning process began for Nanaimo Hospice to take over facilitation of the Nanaimo Suicide Bereavement Support Group. For the past seven years, the Crisis Society has facilitated this much needed group and Hospice is pleased to partner with the Crisis Society in welcoming all current group participants into our new space and our new program. Bereavement resulting from a suicide can be prolonged. Shock, social isolation, anger and guilt are all normal in the grieving process. For many, suicide bereavement support is an important part of grief and mourning and the knowledge that others have experienced similar physical, emotional, mental, social and spiritual challenges can be comforting. The Nanaimo Community Hospice Suicide Bereavement Support Group will meet the first Wednesday of every month between 6 and 8 p.m. at Hospice House. This on-going, drop-in group offers facilitated peer support for adults who have lost a loved one to suicide. Registration for the group will be through Hospice House (250-591-8811). Prior to attending, new participants will have the opportunity to meet with one of the Hospice staff to discuss the role of both the participants and the facilitators in the Suicide Bereavement Support Group. Within the group, participants are invited to share as little or as much as they want about their loss with equal time provided for mutual learning and sharing. Group facilitators, including Hospice staff and volunteers, offer a comfortable, safe, organized environment with a focus on the sharing of feelings, not on the retelling of traumatic events around the death. Hospice invites all participants into an atmosphere of caring and confidentiality where everyone can share their personal stories while respecting everyone’s right to their own unique grief experience. To find out more about Hospice programs visit our website or drop in to Hospice House. We’re only a phone call away at 250-591-8811. Children - Youth Children’s Garden – Huge Success! After a tremendous number of volunteer hours on the part of the Lantzville Rotary and many gifts from the community including the Rotaries and the Nanaimo Hospital Foundation, the Children’s Therapeutic Garden at Hospice was completed in Sept of 2013. When Shaun arrived to see Judi, the Children’s Coordinator, he was so excited to see the mess in the garden was finally gone and in its place was an exciting new area – he asked immediately if he could go out into the garden and Judi agreed they should. Shaun busily explored – he raked, drew on the chalk board, and provided musical entertainment for Judi on the African Drum. He even created an outdoor “sand tray” on the lawn. When Dad arrived Shaun declared ”We need to make another time to see Judi! How about tomorrow after school!” The garden definitely got Shaun’s seal of approval and it was equally as popular with other children who visited this magical space in the months to come. This is a unique addition to our program that we are now able to offer to children in grief. www.teensanddeath.com Teens often feel disconnected and alone when they experience loss as a result of the death of someone who is important to them. They may feel there is something wrong with them. It’s important to normalize their experience. Hospice has designed a website for teens to help them in their grief. It is filled with information and ideas as well as videos of teens who tell their story to help others. Remembering Grandma … When Alex’s grandma died on PCU, she decided that she wanted her birthday money this year to go to Hospice. In July she and her grandfather, Ron Berry and father, Ron, visited Hospice House to give $300. These gifts from children truly touch our hearts. Thank you Alex. What a wonderful and generous way to honour your Grandmother, Bonnie Berry. Books for Children / Teens / Parents The Next Place (Warren Hanson) This delightful book is, above all, a celebration of life. Hear the music. Feel the warmth. And be carried away along life’s everlasting flight. Gentle Willow (Joyce C Mills) A book for children who may not survive their illness. This story about a tender-spirited tree and her friends in the forest will also help children with the death of a friend or family member or a pet. When a Pet Dies (Fred Rogers) Filled with warmth and reassurance for youngsters that no matter how badly they feel their hurt will ease. Straight Talk about Death for Teenagers (E. Grollman) How to cope with losing someone you love. The Grieving Teen (Helen Firtzgerald) A guide for teens and their friends. When a Friend Dies (Marilyn E. Gootman) A book for teens about grieving and healing. Healing Your Grieving Heart for Kids (Alan Wofelt) Someone you loved has died – it’s a hard time for you. This book will help you feel better and live a happy full life again after loss. After Suicide – Living with Questions (E. Kuehn) A very readable book that tackles a very difficult subject. You Are Not Alone (Lynne B Hughes) The loss of a parent has been called “the loss that is forever” and young people who have suffered this loss feel especially different than those around them. In this book teens talk about life after the loss of a parent. Around & About Hospice House WELCOMING OUR NEW BOARD Hospice Library The Hospice Library in dedicated to the memory of Founding Member Clifford Shoop and Volunteer Jeannine Gawthrop. This well-resourced program is open to everyone in our community. Please drop by and spend some time sitting in our sunny library area and browsing through what we have to offer. Monday to Friday, 9:00 am to 4:00 pm Dave Sherstone, Janice Vawter, Dianne Magor (Vice Chair), Christina Fogerty, Simona Sebastian, Karen Boudreau (Chair) Absent: Anne Michaud (Treasurer) Support Hospice - Purchase Amazon Books Online at www.nanaimohospice.com 2% of purchase price goes to Hospice A LEGACY OF SOUND Many Thanks to our Campaign Cabinet Jon Lampman, Dave Hammond, Jim Stewart, Chris Erb, Dave Sherstone, Anne Judson, Moira Jenkins, Cindy Koutecky, Karen Boudreau Gathering To Remember – December 1st Terry Mack will be playing the song she has composed for Hospice on our new Hospice Flute at this year’s Gathering to Remember at St. Paul’s Anglican Church, Sunday, Dec 1. New Locations for Celebrate a Life Trees – This year our trees will be at Country Club Mall and at Hospice House. A Flute For Hospice - Tranquillity, Serenity and the Re-Awakening of old Hopes In 2011 a giant redwood was removed from the back yard of the old Hospice House on Boundary. At the time we didn’t know we would be moving to a new location but something magical happened and the spirit of that tree followed us and has created a legacy of sound that will live on forever at our new Hospice House. Inspired by volunteer Terry Mack, an intuitive player of the Native American flute, some of the wood from the tree was saved and made into a flute designed especially for Hospice – the colours are our blue/green, there is a Hospice Heart and a carved Loon, symbolic of peace and hope. 2 years in the making, this flute was presented to Hospice at the Language of Light Concert in October that raised over $900 in support of our Expand the Heart of Hospice campaign. This beautiful flute will be used at our Gatherings to Remember each December to provide those who attend this beautiful afternoon of music and candlelight remembrance with the soft and soothing sounds of the flute. It will also sit in a place of honour on our memory mantle above the fireplace as a reminder of where we have come from as we settle into our new home. Terry Mack is in the process of creating a special piece of music for Hospice to be played on the flute. This is a very special gift to Hospice and one that truly has touched our hearts. Gathering to Remember this year will be held at St. Paul’s Anglican Church on December 1st at 2:30 pm. Thank you to the contributors of the Flute Project, Terry Mack, Mitzi Arthur, Hugh Cortland, Deborah Miville, and Guy and Kim Prouty. Special thanks to Jamie Woodland of Woodland Song who crafted the flute, and to his wife Lisa for the beautiful painted design. Volunteers – The Heart of Hospice Congratulations - Fall 2013 Volunteer Trainees Margaret Saam (right) seen here with Shannon Farahbakhsh, Program Coordinator at Nanaimo Community Hospice, on November 4th when Hospice took the time to honour Margaret for her 31 years of dedicated service to the work of Hospice in our Community. From The Heart: Front Row (L to R): Sara Smith, Kathy Obad, Bev Yates, Shannon Farahbakhsh (Program Coordinator/VolunteerTrainer), Mary Abbott Middle Row: Bev Brezik, Janet Guthrie, Faye Lutz, Margaret Saam (Volunteer Mentor), Carol Pelletier Back Row: Judith Chapman, Marilyn Riendl, Susan Ward, Larissa Coser, Cathy Evans-O’Rourke, Katherine Pepper, Colin Bakker, Pat Gardiner, Anita Brideau Margaret Saam, Lifetime Member and Volunteer Nanaimo Hospice opened in 1981 and the next year Margaret Saam trained as a volunteer even though she was still working as an RN and raising a family. Her nursing experience, both in England and Canada, provided her with valuable insight into the journey of the dying and, as she says, she always felt these patients were “short changed”, observing at that time that “dying could be a prolonged, scary, lonely journey that often isolated the ‘traveller’ from their loved ones”. As a Hospice volunteer she felt she could make a difference and for 31 years she has done just that, offering compassionate support, insight, and a non-judgmental listening ear to dying patients, their caregivers, and those suffering the loss of a loved one in our community. Over the years Margaret has filled many roles at Hospice including one-to-one volunteer support to the dying and their families in their homes, facilitating grief and caregiver support groups, providing education to nursing students, LPN’s, Care Aides and more at VIU, Sprott Shaw College and other local educational institutions. She has facilitated supportive sharing circles for professional staff in care facilities and in hospital, and provides back up to Hospice staff for home assessments. As a wise and experienced mentor, Margaret plays a very valuable role in our initial 40 hours of volunteer training program. She is a committed team player and provides on-going mentoring and support to both volunteers and staff at Hospice House. On Monday’s Margaret provides reiki/relaxation on the palliative care unit to patients/family/hospital staff, and on Thursdays she does the same for hospice clients and caregivers at Hospice House. With everything she does one might think that Margaret would be worn out, but instead she exudes a sense of calm and caring no matter where she goes, accompanied by a mischievous sense of humour evidenced by her smile and the twinkle in her eye. A beautiful glow radiates from within and her confidence and inner strength are evident in all that she does. Margaret remains humble despite the various awards she has received over the years including a Super Volunteer Award in 2004 from the Nanaimo Daily News/Volunteer Nanaimo, two Volunteer Awards of Excellence from the BC Hospice Palliative Care Association and from Volunteer Vancouver in 2005, and the Queen’s Diamond Jubilee Award in December 2012. On November 4th Nanaimo Hospice recognized Margaret once again for her 31 years of dedicated service and for all the ways that she has contributed to the health and strength of our community through her compassionate care as a Hospice Volunteer. Our community is a better place to live … and die …. because of Margaret . Thank you Margaret and bless you! A Trip Down Memory Lane –“You Matter Because You Are You” Cicely Saunders – 1918-2005 - Founder of the Modern Hospice Movement On November 3rd Nanaimo Hospice was pleased (and very proud) to host the premiere performance of the Story Theatre piece “You Matter Because You Are You – The Life and Work of Dame Cicely Saunders”. Hospice Volunteers, Margaret Murphy, Professional Storyteller, and her colleague Dr. Wendy Potter researched, created, and presented this very special piece that portrays the life and work of Dame Cicely Saunders, Founder of the modern hospice movement. Hospice House was pleased to offer Sunday afternoon and Monday evening performances to a packed audience. At the Sunday performance, Lynn Greene, founding member of Nanaimo Hospice, was present and said “I thought I knew everything there was to know about (Cicely Saunders) but today I learned about things I had never heard before.” A lively discussion followed. On Monday evening June Clark (picture left) attended and was very moved as she shared that she had worked at the Royal Victoria Hospital in Montreal under Dr. Balfour Mount, a pioneer of hospice palliative care in Canada. June remembered Dame Cicely visiting the Royal Vic in 1978 and how impressed she was as she watched Cicely’s caring and compassion at the bedside with dying patients. Never doubt it! One person can make an incredible difference in the world and Dame Cicely Saunders is proof of that. It was her desire to provide compassionate care for the dying that launched a worldwide hospice movement that focused on improving end of life care not only for patients but for their families as well. Although she originally trained as a nurse, back problems led her into the field of social work, but she never lost her desire to be at the bedside with dying patients. It was when she was strongly urged by a colleague that Cicely made a decision to train as a medical doctor. She did most of her studying flat on her back due to persistent back problems throughout her life. It didn’t change her determination to bring the best care possible to the dying and to their families. Throughout this journey Cicely developed a ground breaking approach to pain control. She also initiated an innovative and holistic approach to caregiving for terminally ill patients and their families that focused on the “whole person” and not just their disease. “We have to concern ourselves with the quality of life as well as its length,” declared Dame Cicely. As a woman Cicely faced many challenges. It wasn’t easy in those days to challenge the “medical establishment” made up almost entirely of men, but she never gave up and in 1967 opened St. Christopher’s Hospice in London. Over the doors of St. Christopher’s are the words: “You matter because you are; you matter to the last moment of your life; and we will do everything we can, not only to help you die peacefully, but to help you to LIVE until you die.” The dying need the best that medicine has to offer. They also need the care of the heart. Neither, on its own, is enough. Over the years we have always stressed that Hospice is not just a place, it is also a philosophy of care. Community based hospices, such as ours, contribute much to this model of care. Our volunteers work alongside our professional care partners in people’s homes, in care facilities, in hospital on the palliative care unit, and through a variety of programs at Hospice House. Our volunteers and staff also provide support and education in the schools and in the workplace. We are truly blessed to have so many giving and caring people in our community who come to us to train to do this work. We couldn’t do it without them. What Will End-of-Life Care be Like in the Future? By Wendy Potter PhD, Hospice Volunteer In late 2012, Margaret Murphy and I represented Nanaimo Hospice at the 19th International Palliative Care Congress in Montreal. We were doing research in the creation of a story/theatre piece on the life and work of Dame Cicely Saunders and knew that the senior executives of St. Christopher’s Hospice in London (founded by Cicely) would be in attendance. We interviewed these people who had had the privilege of working with Cicely and our project began to take shape. As part of our interviews with these and other people at the conference a larger discussion began to emerge that focused on the question “What will End of Life Care be Like in the Future?” Here are some of the comments from the St. Christopher’s crowd who said that what triggered their thinking along these lines included the following: Most people say they want to die at home, but most don’t; most die in hospitals or care homes. Only a few die in hospices (in England) – because there are not enough hospice beds, because people aren’t well enough informed about hospices, and because many people fear hospices and resist going to them. Demographics have changed - families split and move – there many more one-person households. The “baby boom” has become an “elder boom,” and the number of deaths will increase. People are living longer, with one or more chronic diseases – end of life needs are more complex and last longer. From these notions, they moved towards their conclusions: (remember this is from the British perspective) If we continue what we are doing now, there will never be enough money in the health/social care system to serve all those who need and deserve quality end of life care. We must look for new models of care that draw on the collective experience and continue to enhance and expand individuals’ choices about how and where they are cared for at the end of life. We must do this at the same cost as today’s services even though the numbers are growing. At first I thought – well it’s the same over there as it is locally - but then they started sharing an exciting new approach called Hospice as Hub. St. Christopher’s has designed an Anniversary Centre where patients, family, community members, in fact anybody, is welcome to this huge new social space. What it offers is dizzying! You can see your doctor, nurse, spiritual counselor, therapist, social worker. You can have a massage, assisted bath, haircut, mani/pedicure. You can work out in the gym (the physios see almost no patients in private practice any more). You can have Sunday lunch, with live music, or attend the monthly concert. Or just hang out, because the food, the coffee, and the art on the walls are great. St. Christopher’s training programs have also changed. They have always attracted students from around the world. Dr. Balfour Mount, one of the first pioneers of hospice palliative care in Canada, was one of the first. The 2013 course catalogue is 42 pages with the emphasis now heavily on generalists, especially in care homes. When Dr. Nigel Sykes, St. Christopher’s Medical Director, spoke at the Nova Scotia Hospice Palliative Care Association Conference in May 2011, he reported that 120 care homes had been accredited after completing a two year training program delivered by St. Christopher’s. Since then, deaths in these facilities have increased by 20%, due to better access and better care at the end of life. St. Christopher’s is also targeting the general public, aiming to create healthier attitudes towards death and dying. Opening up the Anniversary Centre, with its gourmet food, coffee, Sunday lunches and more is part of this. So is the emphasis on Advance Care Planning in the Care Home accreditation program, as is their Schools Project where groups of 30 school kids are invited to pay 4 visits to St. Christopher’s to meet patients and work with them on a variety of arts and craft projects. To date they have completed over 60 of these school projects. We couldn’t help but think that all of this was quite possible in our own community. Our new Hospice House is already a huge improvement and a wonderful resource in our community. We talked to others and they agreed – we need to start the conversation. Clearly there are lots of exciting ideas to contemplate and there is definitely more work to be done! How do you want end of life care to look like – for you and for your community? Hospice believes that starting this vital conversation is important not only on an individual basis but on a community basis as well. Over the next year Hospice will be hosting information sessions on Advance Care Planning – These sessions will provide a good first step towards educating yourself around ACP. We also believe a public forum with other care partners (including family caregivers) would be valuable in looking at the bigger picture. Watch our website for ACP events. The Winds of Change Welcome Back to Deb Ribeyre Recently, Deb Ribeyre re-joined the team at Hospice House, taking on the role of Adult Bereavement Counsellor. Deb originally came to Hospice as a practicum student when she was studying for her Masters in Clinical Counselling at the University of Victoria in 2006. In 2008 she joined our team, counselling 3 days a week. She ventured out on her own for a period of time, doing private practice and some very exciting work with the Altzheimer’s Society around dementia and end of life care, but says coming back is like “coming home”. We couldn’t agree more! As we look to the future it is our hope that we will be able to tap into Deb’s experience and deep passion for working with caregivers of people with dementia at the end of life to plan for more supportive programs. No matter how that unfolds, we know that Deb’s return brings something special back to Hospice. Welcome back Deb! Deb Ribeyre (above) looks at home in her counselling office at the new Hospice House. Remembering & Celebrating Neal McCormick (left) passed away on June 17, 2013. After years of serving the community as an educator and coach, Neal trained as a Hospice volunteer in 2010 and became the Saturday evening volunteer on the palliative care unit at NRGH. Neal’s gentle, compassionate approach was a support to patients, family and staff. Gerry Ruddick (right) passed away August 14, 2013. Gerry began volunteering in 2003. During his ten years of service Gerry was a home visiting volunteer, a Caregiver’s Support Group facilitator and a PCU volunteer. Gerry also helped fundraise at Christmas in the Mall. With his gentle wit and kind soul Gerry offered support to all and was a mentor to many. Nanaimo Hospice and the community at large, were indeed blessed to have these two gentlemen in their midst. Rita sends a card of appreciation ….. Thank you so very much to everyone at NCHS. We are so grateful for all the love, support, and services you offer. Our dear Mother/Motherin-law passed away 2 years ago today at the PCU. The staff and volunteers helped and supported us so very much during this very sad and difficult time. We cannot speak highly enough about all of them. The Definition of a Hospice Hug My own Mother passed away exactly 1 week later at Wexford Creek in Nanaimo. It was a time of great loss for me and my family. It personally has taken me awhile to manoeuvre through the grieving process. After a year and a half I have now met with (a hospice counsellor) a number of times and she has helped me so much in the grieving process. I am so thankful and grateful for the help and support given to me. You are all "True angels". Thank you for everything you do – (Rita N. Oct 2013)) And K.G. wrote ….. I would love to tell the world how wonderful you all are at Nanaimo Community Hospice. I’ll never forget you. Advance Care Planning – For the Future Have you had ‘the talk’? AGAINST EXTRA SUFFERING (By Bonnie Eaton) NEW WEBSITE LAUNCHED IN NOVEMBER My husband, Gari, died in November 2012, just days before his 65th birthday, only months before retirement, and way too soon for our dreams and plans for growing old together. The Vancouver Federation of Hospices (made up of the 10 hospices across Vancouver Island) has recently developed a new Advance Care Planning website filled with all of the information you will ever need to get started on your own plan and to find out about ACP events and programs in your area. Highly recommended! Unable to get to the Cancer Agency in Victoria for a definitive diagnosis, we bounced from crisis to crisis like balls in a pinball machine. In July he was working; by mid-November he was gone. When we finally got a diagnosis in late August, his aggressive lung cancer had already metastasized to his bones and he was in significant pain. http://www.advancecareplanningvi.ca/ In September, a pain crisis sent Gari to Emergency. The care in the ER was swift but clobbering. A deep fear gripped this man of even temperament and clear judgement. “So what now?” he said, “I close my eyes and that’s it? I’m gone?” Later the same morning he was transferred to the Palliative Care Unit (PCU) for pain management. Once on intravenous meds he was not entirely painfree but he felt a sense of comfort and safety. We were surrounded by a deeply caring group of medical professionals and Hospice volunteers, committed to their work and steeped in respect for the patient. As isolating as the experience of dying was, we were in good company. STARTING THE CONVERSATION ….. Have you ever thought about what would happen if an illness or injury left you unable to express your wishes for health care? New legislation enacted in 2011 makes planning for such an eventuality much simpler and less expensive. But to be effective, planning and documents need to be in place before you need them. "Making End of Life Choices: The Advance Care Planning Process" is a presentation offered by Nanaimo Community Hospice to help adults of all ages start the process of putting legal protections in place to ensure that you receive the health care you want and avoid measures that you don’t want. If you’ve found the “legalese” confusing in the past, this presentation created and presented by Hospice Volunteers will help you understand the terminology and guide you to the simplified forms you can use to make your wishes known. You’ll leave with the knowledge and confidence to start the conversation with your loved ones and get things in writing for them. A time of crisis is never easy, but having an advance care plan in place means less uncertainty and stress for everyone involved - you, and your loved ones. Get the process started now, while you’re well. To Book a Presentation for your Group Call Hospice at 250-591-8811 Pain control in bone cancer is challenging. After two weeks, the staff urged discharge. We were stunned. I had been prepared to do anything to keep him at home, but I felt that the “system” and I had failed him. To us, the discharge policy ignored our psychoemotional needs. We felt abandoned and betrayed. And then Gari took a turn for the worse. This pattern of bouncing between discharge and medical complications continued for nearly two months. Looking back, fighting for Gari to stay where he felt safest and best cared for was the worst part of all. Dying is hard enough, but this “extra suffering” caused extreme distress for us both. Just because Gari was dying didn’t guarantee him the care he needed from start to end. I promised myself I would work to change this. I reached out to Hospice. A recent CBC program called “Last Rights” claims that only 30% of those dying receive any kind of good care. We need hospice beds in our community but the “political will” is not there. We need to make care for the dying better. I invite others to contact me at [email protected] if you have similar stories to share. Only a united voice can achieve improvement. Thank You – Expand The Heart of Hospice Donors! Legacy of Commitment Anonymous (1) Estate Delores Mason (Logan) Legacy of Compassion KIym, Stephen Nanaimo Community Fdtn Nanaimo Port Authority Nelson, Jim Rotary Clubs of Nanaimo Shoop, Clifford Legacy of Caring Nanaimo & Dist Hospital Fdtn Pratt, Wendy SupErb Construction Watercress Developments Anonymous (2) Legacy of Change Addison, Walker & Laura Brennan, Marlene Cagney, Estate of Catherine Chilo Transport Coastal Community Credit Union Earl, Rick Hub City Paving Lampman, Lynn & Jon Mid-Island Co-op Milner Group Nan. Dragonboat Festival Soc. Ramsay Lampman Rhodes Regional District of Nanaimo Vanderlaan, Estate of Alice Woodwards Foundation Anonymous (1) Legacy of Comfort Blair McKinnon Foundation Blattgerste Family Burke-Gaffney Family Susan Hargraves Design Hub International Barton Ins. Martin, Beverly Menzies, Susan Michael Pepler Design Phillips, Estate of Ron Phillips Family Raise the Roof Dance Vining Senini Group Western Financial Group West Coast Shutters & Blinds Anonymous (1) Legacy of Celebration Aronson, Chris Stained Glass Abbott, Max & Thelma Abba Floors ABC Concrete J.E. Anderson Surveyors Angels Abreast Dragonboat Tm. Blake Erickson Roofing Booth, Derek Boudreau, Karen Bromage, Doug & Carolyn Noel Brown/Bruce Clark BC Coastal Architects Calderwood, Lorna Challenger , Auren City Tile Country Club Centre Calvin, Dr. Brian Drakeford, V Landscape Architect M.J. Chahley Construction Ltd Clayton Consulting Coast Wholesale Appliances Colonial Countertops Country Club Centre Crankshaw Holdings Crystal Pacific Glass Czerny, Norma & Edward Dawson, Frances Diner’s Rendezvous Durnin, Mike & Sheila ENS Corp Victoria Fahlman, Larry & Jeanne Gregory, Gabrielle Gregory, Jane Gould, Alan Hammond, Dave Harper, Sue (50’s Dance) Hub City Lions Club Ion, Carolyn Archie Johnstone Plumbing Kotow, Elaine KC Boutique Fashion Show Lanson’s Drywall Systems Love, Deirdre & Dr. Robin Mazzei Electric Maartman, Susan & William McIntyre, Ben & Lois Hawryluk MacLaren’s Lighting Michaud, Ann Miri Piri Darbar Sikh Gurduw Meyers Norris Penny Mosaic Info Technologies Newcastle Engineering Nanaimo North Town Center Newcastle Nissan Order of St. Lazarus Victoria Parmar, Narindar & Kulwant Erin O’Reilly Communications Provincial Employees Services Randy’s Drywall Installation Redliner’s Charity Car Show RBC (Beer & Burger Night) Reid, Douglas & Carol Robinson, Gord Ross, Helen Semple, Nairn R Semple Painting Smith, Eileen St. Phillips by the Sea Church Stewart, Jim Stuart, Helen Stelling, Joan Supreme Self Storage Scotia Bank /Scott Tisdall Slegg Lumber Team Telus Cares Unity Business Systems Van Gogh Furniture VIREB / Hockey Tournament Wells Concrete Placement Widston Property Mgmt Windsor Plywood Zone 4 Realtors Group Zonta Club Nanaimo Legacy of Companionship Alderdice-Herten, M&B Appleton, B Arbutus Music Artez Photography Bams, Johanna & Robert Baker, Judy Banerd Enterprises Batten, Ron Barr, Dr. Margaret Beerman, Dr. Stephen Benoit, Suzanne Best, Margaret Beta Sigma Phi Gamma Lambda Blanaru, Charles Brennan, Diane & Jamie BC Ferries/Marine Union BCAA Staff BC Nurses Union BCS Agencies Cadorin, Gary Cameron, Joy Can. Western Bank Centric Health Church Pickard Classic Care Cleaners Cliff, Lorna Clifford, Wendy Cloverdale Paints Cluchey/Soderstrom G&A Coleman, Lynda Connolly, Pat/Dave Coast Claims Serv. Constable Furniture Costco Coast Appliance CCCU Insurance Creative Concepts Carpentry Dagenais, Jean David's Gutters Dhami, Dr. Mandeep K. Dick, Sandra Downie, James & Janice Drew, Gail Eastman, Nola & Terrance Edwards, Alan Erb, Marianne Evans, Beatrice ENCO Plumbing Express Employment Feltrin, Mario & Betty-Ann Ferstel, Mike Foley, Albert Forster, Violet Foxy Lady Quilters Froese, Violet & Raymond Frost, Dennis & Daphne Fyfe, Carolyn Gagnon, Josephine Gallant, Cyril Gill, Michael Golightly, Tyler Green, Leona Greene, Scott Great Canadian Casinos Green Thumb Nursery Hamilton, Todd Harnish, Gloria Head, Clint & Ona Henry, Fay Hofman, John Holley, Herbert & Beverley Hooyberg, Eileen Hughes, Trish Huntjens, Johannes Hussey, Kimo Husky Stn (Terminal) Idema, Wendy Inland Kenworth Intercraft Railing Intraworks I.T. Jando, Tibor Johnson, Richard/Gail Johnstone, Bruce/Eleanor Joshi, Balvir Joynson, Sharon Judson, Anne Kandert, Debbie Koutecky, Cindy / Kel Krog, Leonard & Sharon Kulai, Georgina Kuntz, Donna-Lee/ Richard Language of Light Concert Layton, Andrew Legrow Dagmar Cleaning Little Valley Restorations Lovely, Leana Lyons, Terry Mabey, Munro MacKenzie, Ruth MacMillan, Doug Madden, Signy Maldonado, Mirta /Herman March, Jeffrey McGown, Frances McGregor Krastel Dougan McGregor Thompson McKnight, Linda McRae, Gaylle & Allen Merner, Erik Molyneu, Christopher The Monroes Mont, Rod & Heather Murphy, Margaret Murphy, Bob and Susan Murray, Monica & Murray Muse & Merchants Nanaimo Business Exch Newcomers 21st Century NEDCO Olleck, Vince Oranga, Vera Origins Retirement Grp PacifiCare Pakozdy, Steve Penman, Margeurite Pike, John Piquette, Brenda Ptarmigan Projects Radcliffe, Dr. Patricia Redpath, Gillian Rideout, William & Adrienne Robertson, Bill Robertson, Jeanne Routley, Eleanor Roworth, Carol Royle, Sven & Susan Roto Router Rubenstein, Geo. Ruddick, Gerry Ruckledge, John Ruttan, Eliz. Sahota, Bachittar Savoie, Kathryn Seaton, Jean Securco Services Inc. Semple, David Shasta Signs Sheckleton-Alexander, K. Shelton, JoAnn Sherstone, Dave/Barb Simmons, Renata Slusarchuk, Mary Smiley, Doug Smith, Joan Smith, Eugene Smith,Marilyn & Bud Smith, Marilyn & Gord Smith, Hal Source Signs Spry, Dr. Geoff Staight, Rae/Randy Steve Marshall Ford Stupich, Marjorie Swift, Edwin & Diane Symbaluk, Nelson & Robert Tanasichuk, Ingrid The Purples Quilters The Bay Thomas, David & Maureen Thompson, C. Thompson, Claud & Phyllis Torrie, Dr. Kathleen Tucker, Andrew Tyce Family Tim Horton's Timber Tec United Rental Valleau, Howie Vipond,Jane Vipond, Garry Wabisca, Caroline Waddell, Norma Walker, Christine Walker, Dr. Joseph John Ward Electrical Webber, Olive Wells Concrete Placement Wenner Electric Western Canada Fire Prevention Westwood Metals Whiteaker, Sue Wilson, Betty Wilson, Galt Wolesley Co Plumbing Worth, Joan K.Wyman Young, Jerry & June Ziemanski, John 466031 BC (J. Malteson) Anonymous (x 8) The Hospice Shoppes – Helping Hospice Help Others Two Locations to Serve You! #5 - 4286 Departure Bay Rd - #35 – 1925 Bowen Rd (Bowen Centre) ALL DECKED OUT FOR CHRISTMAS CHRISTMAS SHOPPING MADE EASY! The staff and volunteers at our two thrift stores are feeling the holiday spirit! Come and enjoy the Christmas displays and purchase stocking stuffers, party frocks, lounge wear, house accessories (pillows, stockings, lights, trees) and so much more! Start the New Year off by Volunteering at one of our thrift stores – You’ll have lots of fun, make new friends, and come away from each shift knowing you are helping your community. Letter of Appreciation Thanks to Hospice Shoppe Staff (Sept) I’m writing to express our appreciation for Daphne’s (at the Hospice Shoppe) service. My husband has MS and can’t transfer to his wheelchair without assistance. Because we are on Daphne’s email list we have been able to purchase things to assist us. Recently we were able to purchase a hospital bed (at a greatly reduced price) for my husband. He sleeps so much better now and it is saving my back. We feel good that we can buy from the Hospice Shoppe, helping you and helping us. So please pass on this “bouquet” of thanks to Daphne and her crew. They are doing an amazing job of helping others! Bowen Centre – Christmas Displays YES! I Want to Help Hospice Help Others! I wish to support the Expand the Heart of Hospice Capital Campaign – A New Home For Hospice $1,000 $500 $250 Other _________________ I would like to Support Existing Programs being offered at Hospice $50 $100 $500 Other ___________________ I have made provision for Hospice in my estate planning I want to know more about estate planning I would like to join the Monthly Giving Program and donate $____________________ a month*. I would like to help Hospice become mortgage free by 2015 with a donation of $_________________ I am interested in exploring “naming opportunities” and provide a major gift to your campaign of $_________________ I wish to make my payment by: Cheque Cash or Credit Card MasterCard/Visa (Circle One) Credit Card Type & No:___________________________________________________ Expiry Date: ____________/___________ Name on Credit Card (please print):____________________________________Signature_________________________________ Name (if different from above):________________________________________________________________________________ Address: ______________________________________________________________________________________________ Telephone:______________ Fax: _______________ Email:_________________________________________________________ My Donation is in Memory of:________________________________Please Notify: _____________________________________ (Address)_________________________________________________________________________________ of my remembrance. Reg. No: BN133194043RR0001 – NOTE: Donations of $20 or more are eligible for a charitable receipt for tax purposes. Thank you to the United Way and to BC Gaming for supporting Hospice in Our Community.