Scleroderma :
Transcription
Scleroderma :
National Scleroderma Conference Scleroderma : Hard Word. Harder Disease. Great Conference. “As hard as it is, it can be easier,” says Michelle Richard, president of the Scleroderma Society of Canada. “Making it easier starts by becoming personally engaged, educated and empowered. A great place to do that is the National Scleroderma Conference.” S C LE R O D E R M A It’s hard to pronounce and harder to live with. This progressive, connective-tissue disease can scar internal organs, harden skin, cause stiff joints, damage lungs and cause kidney failure. At its worst, scleroderma leads to severe disability and disfiguring, and even death. It has no known cause and no cure. Scleroderma is a hard disease. It’s hard for researchers to understand and for healthcare professionals to treat. It’s hard on caregivers and families. It’s especially hard on the people living with the disease. Michelle Richard, President Scleroderma Canada The 2016 Bilingual National Scleroderma Conference offers the chance to engage the way you want to, the way that helps you most and in ways that allow you to contribute to the scleroderma community. You can absorb the newest information, learn from the experience of others, and gain insight from researchers, physicians and professional caregivers. This is a great opportunity to be part of Canada’s supportive scleroderma community. The 17th annual Bilingual Scleroderma Conference takes place on September 16 and 17, 2016 at the Hotel Bonaventure Montréal. Everyone is welcome – healthcare professionals, researchers, advocates, volunteers, care providers, friends and family and, of course, people living with scleroderma. Several keynote speakers have already confirmed their attendance. Workshops covering various topics such as lung disease, Raynaud’s phenomenon and digital ulcers, the medication component, dental care and Scleroderma, will provide an opportunity for participants to exchange with experts. Dr. Jean-Luc Senécal Dr. Mervyn Gornitsky Holder of the Scleroderma Research Chair University of Montreal Research Director, Department of Dentistry McGill University Dr. Arthur Bookman, Dr. Marie Hudson, Dr. Alena Ikic, Dr. Dinesh Khanna, Dr. Maureen Mayes, Dr. Janet Pope, Dr. Steeve Provencher, Dr. Ronald Laxer, Dr. Ariel Masetto, Dr. Éric Rich and Mrs. Marie-Eve Prince. National Scleroderma Conference 17th Annual National SCLERODERMA Conference September 2 0 1 6 16 - 17 Hotel Bonaventure Montréal For the National Scleroderma Conference related inquiries or registration: Please contact Scleroderma Quebec Toll free: 1 844 990-6789 Email: [email protected] Online at : www.sclerodermafoundation.ca Registration fees include admission to all conference sessions, refreshments breaks, Saturday continental breakfast and lunch. Conference Registration Rates Early Bird: $75.00 (Adult Rate until July 15, 2016. This ticket type will change to $95.00 after July 15) Accommodations A limited number guest rooms are on hold for conference participants at a preferred rate of $179/night plus tax per night for a single or double room. To book please call 514-878-2332 or Toll Free 1-800-267-2575 and mention “Scleroderma Conference 2016”. Once the block of rooms is booked, rates and reservations cannot be guaranteed. Hotel Bonaventure Montréal 900 Rue de la Gauchetière W Montreal, QC H5A 1E4 Tel: 514.878.2332 Toll free: 1.800.267.2575 www.hotelbonaventure.com A full description of the program is available at www. sclerodermafoundatio n.ca
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