An invitation to the

An invitation
to the
Bus Tansportation to the Conference
for Quebec Residents
National Scleroderma
Bilingual Conference
On September 16 and 17, 2016 will be held the National Scleroderma Bilingual Conference
at the Bonaventure Hotel located in downtown Montreal. Scleroderma Quebec is pleased
to present, in collaboration with the Scleroderma Society of Canada, this great gathering of
patients, families and researchers who share an interest in the understanding and treatment of
Scleroderma, a severe disfiguring autoimmune disease of unknown cause.
Experienced specialists whose multidisciplinary work contribute to improve the quality of life
of scleroderma patients will be present and share the latest advances in their disciplines.
Many breakout sessions will be given by experts on topics of interest to scleroderma
patients, their families or caregivers and health professionals affected by this disease. We are
committed to ensuring that scleroderma patient will have on hand the best possible
information on how to best cope with the disease. We hope to bring together as many
participants as possible to share about this disease and its impacts on people’s lives.
We are pleased to inform attendees that free buses will be provided
at various points throughout the province of Quebec to take them to
and from the conference in Montreal. Bus schedules for designated
departure and arrival points will be set on an as needed basis.
Please do not hesitate to ask for your free bus transportation by
contacting: Mr. André Viens of Scleroderma Quebec by email at
[email protected] or by phone at 1 844-990-6789.
For registration-related inquiries or to register:
To register, please complete the registration form below and mail it with
your payment using the return envelope.
Mr. André Viens, Scleroderma Quebec
040-550 chemin Chambly, Longueuil, QC, J4H 3L8
Toll free: 1 844 990-6789
Email: [email protected]
Registration Online at www.sclerodermafoundation.ca
Accommodations
A limited number of guest rooms are on hold for conference participants
at a preferred rate of $179 plus tax per night for a single or double room.
To book a room, please call 514-878-2332 or toll free 1-800-267-2575
and mention “Scleroderma Conference 2016”. Once the block of rooms is
booked, rates and reservations cannot be guaranteed.
The National Scleroderma
Bilingual Conference
is an event that no scleroderma patients
or their families will want to miss!
National and international speakers*
Patient participation
Marketplace
Yoga and makeup workshops
Youth program.
Hotel Bonaventure Montreal
900 de la Gauchetière W.
Montreal, Quebec H5A 1E4
Phone : 514 878-2332
Toll free : 1 800 267-2575
www.hotelbonaventure.com
"
*See Conference Program on the back cover
"
Registration Form at the National Scleroderma Bilingual Conference
q
q
q
q
q
Early Bird
Rate Until July 15, 2016
$75.00
Regular Rate
after July 15, 2016
$95.00
Youth Rate
5 – 18 years of age
$35.00
Professional Rate
for health professionals
$245.00
Family Rate
(2 adults, 2 youths)
$195.00
"
Scleroderma Quebec has decided to maintain their rate of $75.00 after July 15 for the residents of Québec.
Note: Registration fees include admission to all sessions, refreshment breaks, continental breakfast and lunch on Saturday.
Personal Information (All fields required. One per person.)
First Name:
Last Name:
Street:
City:
Province:
Postal Code:
Email:
Date of Birth (dd/mm/yyyy)
Phone:
____ /____ /_____
Are you living with Scleroderma ?
q Yes
Are you aged between
5 and 18 years old ? q Yes
Are you a caregiver ? q Yes
Are you a parent or guardian of a young participant ? q Yes
Please specify the name(s):
The Scleroderma Society of Canada and Scleroderma Quebec
use electronic, social media, and traditional media to include,
but not limited to: photographs, video, audio footage, and
testimonials during the Scleroderma National Conference. All
attendees, visitors, speakers and guests are advised that during their
attendance at the conference there will be photographs taken as well as
audio/video recordings made of various activities, events and sessions. Each
registrant grants the conference permission to photograph participants in any
session, and to use such photographs and the names of attendees in any
materials which either represent the proceedings of the conference or discuss
future conferences.
q I agree
q I do not want to be photographed or videotaped
Bus Transportation to the
Conference for Quebec Residents
q I am a first-time attendee at the conference
q I am a health care professional
Payment Method:
Please check the appropriate box(es):
q I am paying by cheque (please make cheque payable to Scleroderma Quebec)
I wish to take one of the free buses to travel to the National
Conference in Montreal
I am paying by credit card:
q VISA
q MasterCard
Credit Card #:
Expiration Date:
If billing address different than above, please provide address:
Return Saturday evening
Return Sunday morning
Name as it appears on credit card:
Signature (required) :
Departure Friday morning
Date :
The free bus schedule will be announced soon.
Friday,
september
2016
16
12:00
-
17:00
Onsite Registration
13:00
-
15:30
Opening Panel Discussion*
Breakout Sessions
«Your Optimal Health and Well-Being»
15:30
-
15:45
Refreshment Break
15:45
-
16:30
Breakout Session 1
Saturday,
september
2016
Breakout Comment vivre avec la sclérodermie * * *
Session
- Marie Hudson, M.D., Physician-Scientist,
1
17
18:00
-
10: 00
Onsite Registration
18:30
-
19: 30
Breakfast
19:30
-
10: 00
Opening Ceremony
10: 00
-
11: 00
Keynote Speaker*:
11:15
Refreshment Break
11:15
-
12: 00
Guest Speaker* :
Uro-Gynecological Conditions *
- Marie-Ève Prince, Physiotherapist, Cigonia
or
Living with Scleroderma * * * *
- Susan Barlett, Ph.D., Clinical Psychologist, McGill University
or
Relationships * * * *
- Ghassan El-Baalbaki, Ph.D., Psychologist, McGill University
2 or
or
or
Jean-Luc Senécal, M.D., rheumatologist
Holder of the Scleroderma Research Chair
at the Université de Montréal
-
or
Breakout Sclérodermie: manifestations cliniques et traitements * * *
Session
- Ariel Masetto, M.D., Rheumatologist, Université de Sherbrooke
Scleroderma Research:
from patients to the lab and back
11:00
SMBD - Jewish General Hospital
or
Scleroderma 101 * *
- Maureen Mayes, M.D., Rheumatologist
Elizabeth Bidgood Chair in Rheumatology
Interstitial Lung Disease * * * *
- Shane Shapera, M.D., Respirologist, Toronto Western Hospital
and Toronto General Hospital
Patient Decision-making * * * *
- Brett Thombs, Ph.D., SMBD - Jewish General Hospital
Visiting the Emergency Room * * * *
- Carys Massarella, M.D., McMaster University
Breakout Gastro-Intestinal Issues: GERD and small bowel * *
- Dinesh Khanna, M.D., Rheumatologist, University of Michigan
Session
3
Mrs. Danièle Henkel,
President and founder of Daniele Henkel inc.
Scleroderma Program
12:00
-
13:00
Lunch
or
13:00
-
14: 00
Marketplace, makeup workshops,
university student’s research
project poster presentations
or
14:00
-
14:45
Breakout Sessions 2
Managing Pain * * * *
- Linda Kwakkenbos, Ph.D., SMBD - Jewish General Hospital
14:45
-
15:00
Refreshment Break
or
Men-Only Issues * * * *
- Ghassan El-Baalbaki, Ph.D., Psychologist, McGill University
15:00
-
15:45
Breakout Sessions 3
15:45
-
16:00
Refreshment Break
16:00
-
16:45
Breakout Sessions 4
16:45
-
17:00
Refreshment Break
17:00
-
17:45
Roundtable Discussions physicians and patients
17:45
-
18:15
Closing Ceremony
or
or
Transplantation de cellules souches * * *
- Eric Rich, M.D., Rheumatologist,
Centre hospitalier de l’Université de Montréal
Stem Cell/Research * * * *
- Janet Pope, M.D., Rheumatologist, St. Joseph’s Health Centre
Support Groups * * * *
- Vanessa Delisle, MSc, SMBD - Jewish General Hospital
Stephanie Gumuchian, BSc, SMBD - Jewish General Hospital
Breakout Le phénomène de Raynaud et les ulcères digitaux * * *
- Alena Ikic, M.D., Rheumatologist, CHUL-CHU de Québec
Session
4 or
and 16:00.
or
LEGEND
* In French, with simultaneous interpretation provided in English
* * In English, with simultaneous interpretation provided in French
* * * In French
* * * * In English
or
or
Please note that schedule is subject to change without notice.
MARKETPLACE
In addition to Scleroderma Quebec’s onsite booth,
where we will be featuring our support services,
as well as a variety of reading material on a wide
range of scleroderma-related topics, there will also
be onsite booths offering a large selection of services and items designed to make life easier, including
heating aids, etc.
2016 SCLERODERMA NATIONAL
CONFERENCE HOST ORGANIZATION:
a
Scleroderma Quebec
or
Oral Manifestations * *
- Mervyn Gornitsky, Dental Surgeon
Director of Research, Department of Dentistry
McGill University
L’hypertension artérielle pulmonaire associée à la sclérodermie * * *
- Steeve Provencher, M.D., Pulmonologist, Centre de recherche
de l’Institut universitaire de cardiologie et de pneumologie de Québec
Advocacy * * * *
- Ryan Clarke, B.A., M.A., LL.B, President, Advocacy Solutions
Body Image * * * *
- Lisa Jewett, MSc, SMBD - Jewish General Hospital
Sjögren’s * * * *
- Arthur Bookman, M.D., Rheumatologist,The Toronto Western Hospital
Division of Rheumatology
Youth Program will be held Saturday, September 17 between 10:00