MGA Through the Years - Myasthenia Gravis Association of Western
Transcription
MGA Through the Years - Myasthenia Gravis Association of Western
SPRING • 2015 of MGA Through the Years By Donna Kalisek, Administrative Coordinator George Sayenga presents a check to Dr. Frances Foldes for support of the Myasthenia Gravis Treatment Center -1957 In 1955, Pittsburgh resident George Sayenga was trying to find help for his young daughter, Carol, who had just been diagnosed with something called Myasthenia Gravis. Mr. Sayenga put an ad in the Pittsburgh Press inviting others who had it to come to a meeting. Little did that first small gathering realize how strong they would become. What started with a father’s loving concern would grow into one of the oldest and largest organizations of its kind in the country – the Myasthenia Gravis Association of Western PA. Continued on Page ❷ Anniversary Event: Saturday, March 28. See Page ❷ for more details and ticket information. MGA Laughter is the Best Medicine for a MG Association News Page ❶ MGA is kicking off the celebration of our 60th anniversary with a new event – Comedy for a Cause. Join us on Saturday, March 28th at the Morningside VFW for a night of good food, good fun and good company. The evening will also feature silent and live auctions of signed sports memorabilia that many of our supporters enjoy, along with the popular basket raffle, and many more surprises. These three acclaimed comedians will have you laughing the night away: Mistress of Ceremonies Lisa Dapprich is best known as the former host of WPXI’s Date Night TV. She has performed in comedy clubs all over the country, and was a finalist in the Bud Light Ladies of Laughter competition. Feature Comic Tom Musial has been performing stand-up in western PA for five years. His comedy turns the trials of a typical suburban life (hyperactive children, broken down minivan, crushing debt, a receding hairline and an advancing waistline) into comedy gold. Headliner David Kaye has enjoyed a comedy career spanning three decades, including appearances on Comedy Central and ABC-TV. He has performed all over the country, and specializes in corporate and nonprofit events. Only 150 tickets will be sold, and they are going fast, so call us now to reserve yours, or buy tickets online at www.mgawpa.org and click on the link. MGA Through the Years Continued from Page ❶ As Mr. Sayenga’s group grew, it was clear there was a need for accurate diagnosis and treatment of this little known chronic muscle weakness disease. In 1957, the MG Clinic finally opened its doors at Mercy Hospital of Pittsburgh (now UPMC Mercy). Dr. Francis Foldes served as Director of the MG Clinic/Treatment Center, saw the first patients and administered the medical, educational and research programs for those with myasthenia gravis. Many, but not all, of the patients were referred to the center by ophthalmologists, since an early onset symptom can be ocular, as in a drooping eyelid or double vision. In 1958, MGA, which had been an ❷ Page all-volunteer organization, began receiving limited financial operating support from the United Way of Allegheny County due to the increasing number of patients being diagnosed in the area. In 1962, Dr. Pearl Gertrude McNall became the next Treatment Center Director. Dr. McNall was very committed to the cause and treatment of myasthenia gravis and for many years was involved with the Association as part of the Board of Directors, the Medical Board, and always with a kind smile for every patient she encountered. Then in 1964, a very talented and eager physician followed her as Treatment Center Director, Dr. Robert P. Blume. He was well known for his diagnostic prowess, his Dr. Bob Blume with a patient. MG Association News MGA Through the Years By Donna Kalisek, Administrative Coordinator George Sayenga, Carol Lynn, Tony Randall, Tom Foerster and other counsel members for proclamation up-to-date treatments, medical knowledge, and dedication to helping those coping with this illness. During this time MGA operated on a very limited budget, receiving rent subsidies from Mercy Hospital, small payments from insurances, United Way monies, sponsoring periodic fundraisers, donations, and relying on a multitude of dedicated volunteers. In 1969, MGA hired its first employee, Lois Wright, as coordinator of Treatment Center Services with payroll support provided by Mercy Hospital. In 1972, with a growing influx of patients being diagnosed with myasthenia and other physicians needing consults for a definite diagnosis, another physician, Dr. Guy Corsello, was added to the staff. It wasn’t until 1977 that a full time Executive Director, Patricia Buck, MSW, was hired along with a part–time bookkeeper and secretary. Dr. Thomas Ulicny would also be added as the third physician for the Treatment Center, and MGA of WPA would be incorporated as an independent organization. Then in SPRING ● 2015 1978, a social worker, Judy Schiffbauer, joined the staff to help provide social and emotional support for the patients, and in 1983, Sylvia Danehy, RN was hired as Treatment Center Coordinator. Many more changes would occur over the years both in location and personnel. After 51 years with Mercy Hospital, in 2008 the MG Association moved its base of operation to the Allegheny Professional Building, next to Allegheny General Hospital. MGA is a proud partner of the Allegheny Health Network and the Treatment Center is staffed by Dr. George Small, Medical Director, and Dr. Sandeep Rana. Even though many changes have been made in all areas, the overall mission of the organization has stayed the same: to provide medical, educational, and social support to those affected by this chronic neuromuscular disorder. From the very beginning the focus was always on coordinated patient care – and it still is today. Thank you to everyone involved over the years for helping MGA of WPA help those in need of our services. Without the constant involvement of the volunteer Board of Directors, the volunteer staff, and the substantial amount of volunteers that helped cut and paste the newsletters, address over 3,000+ envelopes, collating and stuffing envelopes, zip-coding and preparing bulk mailings (no small feat), coordinating and working the fundraisers, sitting on committees, doing general office duties, and just being there to support the patients, MGA would not be here today. Our hope is that someday a cure will be found for myasthenia gravis and MGA won’t be needed. Until then, the continued support, commitment, and generosity of dedicated people like you will help us continue our work – sixty years strong, and beyond! Editor’s Note: We’d love to share your stories and memories of MGA through the years in our Fall issue. Please send them to us, either by mail or email [email protected]. Page ❸ Meet MGA’s New Patient Care Coordinator PATTY ZURAWSKI, RN The Myasthenia Gravis Association of Western Pennsylvania graciously welcomed me as a new staff member in November, 2014. After a short retirement that was preceded by over four decades of work in health care and legal settings, I was thrilled when the MGAWPA Patient Care Coordinator position became available. It represented a wonderful opportunity to work with people who have a condition that has intrigued me and followed me since my student years at Presbyterian-University Hospital School of Nursing during the late 1960’s. I learned about Myasthenia Gravis when two of my patients were tested for MG, one of whom was subsequently diagnosed with MG. I shall never forget that experience. Many physicians and nurses at that time never heard of myasthenia gravis or ever saw a patient with MG – something that is still true today. Totally intrigued by this rare health disorder, I was determined to learn as much as I could about MG and the challenges patients with the condition face. I was so young at that time, and so eager to be a part of what I considered a new frontier in medicine. In fact, it was a new era for MG– during the 1960’s and 1970’s the proposition that myasthenia gravis is an autoimmune disease was solidified. That is something so important to the treatment options that are available to patients with myasthenia gravis today –over forty years later. Despite the rarity of myasthenia gravis, I continued to have experience with patients with MG. During part of the next two decades, while working as a nursing supervisor and staff development instructor at Mercy Hospital, I met many more patients with MG. It was there that I first learned about the Myasthenia Gravis Association of Western Pennsylvania. And it was there that I developed education programs for nurses to help them understand the complex care requirements of hospitalized patients who have MG. Those courses included information to help the nurses and patients manage the medications that are so vital for control of MG – something that is still important today. During that period, and much to my amazement, my great-uncle ❹ Page developed myasthenia gravis, and I became intimately grateful for everything I had learned about MG. Imagine my surprise, about ten years ago, when his wife –my great-aunt – also developed MG! As I think about how I may help you with MG issues, I’d like to tell you about one of my personal experiences with health care. Not too long ago, I visited a new physician, and one of the first questions he asked me was “who is in charge?” I laughed to myself. (Most nurses have long known the answer to this question, and it seems that finally, physicians are selecting the correct answer – although MGAWPA doctors got it right all along!!!) Of course, as the patient, I said “I am.” But I added, “And you are my important team member.” So, I was pleased when I saw the article in MGAWPA’s Newsletter from Fall, 2014 by Donna Kalisek, our wise Administrative Coordinator. She proclaimed, “…when it comes to making decisions about your care and quality of life: You are in charge.” In fact, over many years, the staff of MGAWPA has historically supported the importance of patient-centered/ patient-managed care. Once you are able to recognize and acknowledge your symptoms, your physicians and staff at MGAWPA will work with you to find options to help you manage MG. An important part of MG treatment is medication management, and a critical aspect of medication management is assuring that you always have an adequate supply of the medications you use to treat your MG. It is important to request refills on your prescriptions at least a week before you are down to your last pill. Sometimes pharmacies are not able to fill prescriptions on the day requested, either due to insurance reasons, or supply issues. Allowing more lead time for both doctor and pharmacist to fill medication requests will ensure you are never without medicine. As I continue to think about how I can best serve you, I realize that each of you has an individual interest, concern, or charge to better the lives of patients with MG. Please let me know your areas of greatest concern, and aspects of MG that are most challenging to you by making a call to me at the MGAWPA (412-566-1545). MG Association News MG ALLIANCE OF GREATER NEW YORK NEWS In our last newsletter we announced that the MG Alliance of Greater New York was closing its doors, and that their board voted to ask MGA of WPA to continue serving their members, which we are honored and thrilled to do. Debra Santulli-Barone, former MG Alliance Executive Director, reported that the MG Alliance board voted to use their organization’s remaining resources to make donations to both MGA of WPA and also to Dr. Robert Fairclough, who conducts MG research at the University of California, Davis. “Dr. Fairclough and his crew of fellowship students have been dedicated to MG research for many years,” said Ms. Santulli-Barone. “Hopefully, the MG Alliance donation can help him continue his research to find a cure for MG.” MGA of WPA is grateful for the generous donation from the MG Alliance of Greater New York, and also for the opportunity to continue their good work. We are also grateful for the tremendous response to our holiday appeal by our new members in the greater New York area. Like everyone else, we love New York! SUPPORT MGA AT THE HIGHMARK WALK FOR A HEALTHY COMMUNITY SAVE THE DATE! SATURDAY, MAY 16, 2015 STAGE AE PITTSBURGH, PA Online Registration Opens Monday February 2 WalkForAHealthyCommunity.org SPRING ● 2015 MGA will be one of 79 local nonprofits to participate in this year’s Highmark Walk for a Healthy Community on May 16th, beginning at Stage AE on the North Shore, not very far from the MGA Treatment Center. Form a team and walk in honor of a loved one with MG, or register as an individual walker. All walkers who raise at least $25 for MGA will get a Highmark Walk t-shirt. Plus there are fabulous raffles and giveaways during the walk. The best part is - this event is perfect for our friends and supporters who live far away, especially our new friends from New York and New Jersey. If you live far away or you can’t make it in person for whatever reason, you can register as a virtual walker! Walk in spirit with us here in Pittsburgh! We have set a goal to sign-up at least 60 walkers (in honor of our 60th Anniversary) and 40 virtual walkers. Please join us! Page ❺ MGA Partners with Vehicles for Charity MGA was recently notified by Goodwill, our former partner for vehicles donations, that they were discontinuing their auto auction program. We are now partnering with an organization called Vehicles for Charity, which we believe will result in MGA receiving more funds from your donated vehicles. Donating your old vehicle to MGA is convenient, easy, and may qualify you for a tax deduction. And best of all, your donation of a used car or truck will make a big difference in supporting MGA. All you need to do is call 1-866-628-2277 and tell them you are donating your vehicle to MGA and Vehicles for Charity will take care of the rest. They will pick up your vehicle, arrange for towing, and provide you with a tax-deductible receipt, all at no charge to you. MGA is grateful to all who supported our 6th Annual Pooch Parade on October 26, 2014. It was another great success! FREQUENTLY ASKED QUESTIONS: What can I donate? You can donate most any vehicle, including cars, trucks, boats, motorcycles and recreational vehicles. They do not have to be currently running. Your vehicle donation will be sold at an auction or to salvage depending on condition. Is my donation tax-deductible? Yes, the Myasthenia Gravis Association of Western PA (MGA) is a non-profit organization and all donations qualify as a charitable deduction on your federal income tax return. What do I need to donate my car? The title to the car must be in your name. We will also need some information about where the car is located and the condition of the car. This will assist us in scheduling appropriate towing arrangements. Will you pick up my car? A towing company will call you to schedule the pick-up of your vehicle. You will need to give the driver the keys to the vehicle as well as your signed title. How is the value of my car determined? The IRS allows you to take a charitable tax deduction on your federal income tax form equal to the amount the vehicle sells for at auction unless it sells for less than $500. If your vehicle sells for less than $500 you may deduct no more than $500. If your vehicle sells for more than $500, you will need to include the IRS form 1098C. Vehicles for Charity will supply this documentation after your vehicle sells. We recommend you consult your tax advisor with questions about your deduction. ❻ Page MG Association News SPONSORS: Bethel Park Animal Clinic ComDoc Frank DeAndrea/Highmark Dee’s Doggy Boutique/Dee Carmichael Design Image Salon—Laura Katlubeck Dick Landowners Grp, LLC Dunkin’ Donuts Furry Friends Carol Golden Gullborg Insurance Co Light Brothers Ooh La La Boutique /JoBeth Barr Susan’s Travel United Dairy Upper St Clair Lions Lawrence R. Victor, CPA SUPPORTERS Annie’s Nails & Spa Applelicious Bob Evans Restaurant Bower Hill Swim club Bravo Ristorante Bronze Body Mobile Camp Bow Wow Cracker Barrel Crystal Springs Dave & Buster’s DoTerra Oils & Soaps Eat’n Park Fifth Third Bank French Quarter @ Quail Acres SPRING ● 2015 GetGo by Giant Eagle GlamEarth Hudson Group/Pittsburgh Airport Jerry’s Salon Jewish Community Center John’s “A Taste of China” Restaurant Laurie Katlubeck Monster Mini Golf Paintball USA Panera Bread Papa Gallo Cucina Pittsburgh Improv Pittsburgh PetExpo Pittsburgh Magazine Practice Golf Center Principessa Boutique Rick Tocchet Rivers Edge Canoe & Kayak Subway Texas Roadhouse TGI Fridays The Improv The Retreat Suite The Shoppes at Quail Acres The Sun Club SPECIAL THANKS: Jo Beth Barr Laurie Benkovich Joe Carson Art & Ann Cipriani Patricia Collins Bob Cribbs DJ Darlene Marilyn Weisburg Deutsch Rebecca Friedrich Dan Gallagher Kristen Geary Herk & Jeanie Hamm James & Joann Hockenberry Judy Hough Mary Howe Justin Huffman IUP WPH School/Respiratory Care Students Joan Kacik Terry McNelis Sharon Mulac Michael Orie Greg Palmer Mary Linda Panasko Jim Riley Daniel Schrage Matthew Schrage Ryan Schrage Karen Shastri Dr. & Mrs. Robert Shogry Tim & Jamie Stivers Marilyn Sullivan Kathy Thomas Louise Vuono David & Arlene Weintraub Doug Williams Pooch Parade photos courtesy JUDY HOUGH. Please accept our apologies for any errors/omissions to the listing of supporters. Page ❼ Welcome• New Board Members At the annual meeting in November, MGA elected MITCHELL ROBBINS and BILL MURTHA to the board. MITCH ROBBINS was diagnosed with MG when he was 17. He served as chairperson of the MG Alliance of Greater New York, Inc. for fifteen years and was very involved with the organization for many years before that. He still leads the MG support group in Kingston, NY which he has done for more than fifteen years. He lives in Rosendale, NY, and will attend MGA board meetings via conference call. BILL MURTHA served on the MGA board for nine years and after a year off, MGA is glad to welcome him back. Bill’s mother suffered with myasthenia Mark your calendar for a very special concert which will benefit MGA as part of national MG Awareness Month in June. Who’s Your Daddy will feature local musician dads performing with their talented offspring. As MGA was created out of a father’s concern for his daughter with MG, what could be more fitting than this Who’s Your Daddy concert on June 19 (Father’s Day weekend) at the Pittsburgh Winery, 2815 Penn Avenue in the Strip district. www.pittsburghwinery.com More details soon! ❽ Page gravis. Because of his appreciation for the unmatched education, care and support given to her and the family, Bill's service on the MGA board of directors is his way of giving back to an organization that has given so much. At this time, we also say farewell and thanks to Sylvia Danehy and Ray Beeson, who each served nine years on the MGA board, and must step down for at least a year. We are so grateful for their service! WHO’SYOURDADDY? MG Association News Keep a Symptom Diary: Be your own HEALTH ADVOCATE! By Michelle Dulashaw, Medical & Social Support Specialist A very helpful and important patient resource, (which happens to be one of my favorites) is what I like to refer to as a “Symptom Diary.” Whether it is someone just newly diagnosed that I am counseling or someone sharing an ongoing issue during our Support Group, I try to stress the importance of keeping track of any ongoing symptoms. This is especially useful for those who take Mestinon/Pyridostigmine. As long as you experience no negative effects from this medicine, doctors can tailor the dosage to meet your specific needs. The diary can also help with paper work needed to initiate Disability claims through the state. If you plan on applying for Disability, it’s important to be as detailed as possible. The questions that they ask sometimes require knowing how long you can do an activity such as mopping the floor, vacuuming or walking your dog. Also, they may ask how long you can do it before you became fatigued or disabled. So what should you write down? For instance, I suggest to patients that they use a diary to keep track of their MG symptoms throughout the day (i.e. trouble standing or reaching, picking things up or walking steps, slurring speech or drooping eyes), any strenuous activities and what medicines were taken and when (even over the counter meds like aspirin, vitamins or antacids). Tracking this information will not only help with insurance claims but also with talking to your doctors. It can also help create what we like to refer to as your “New Normal.” You can be as detailed as you like and even go as far as tracking what foods you eat! Here at MGA, I created a basic “Myasthenia Gravis Symptom Diary” to hand out to those who would like them. It is also available at mgawpa.org on the Patient Information page. SPRING ● 2015 Page ❾ Thank you to all of our generous donors The following donations were received between July 1 and December 31, 2014 A & S Federal Credit Union Michael & Marlene Abrams Carl Acquaviva Amazon Smile Carmine Amelio Stacy Anderson Harold Anfang Brian & Beth Ansell Linda Bacheller Al & Nancy Balas Ron Balog Jo Beth Barr Thomas Barr Jacqueline Bauer Katherine Baurnes Raymond Beeson Terrie Berhalter Bethel Park Animal Clinic Barbara Billman Blackhawk Federal Credit Union Lester Blayney Toby Blender John & Norene Block Diane Bloom Irene Blum & Ronald Wasserman Louis Bonasso Danielle Brosnan Tony Buba Susan Byrd Casper & Rosemary Caceci Caliente Pizza & Draft House Jill & David Carr Susan Cavanaugh James Christy Lena Colasurdo James & Carol Cole Tim & Courtney Cole Viola Cole Robert Colon Margaret Conners Michael & Nina Connor Kim Corcoran Carol Cordner James & Kathleen Cordner Rebecca Courtad Barbara Crame Robert Cribbs Sylvia & Bob Danehy Kenneth & Deborah Dick Stanwood & Harriet Dickman Morris & Eleanor Dickter Hazel & David Dods Sara Doktofsky Thomas Donahue Suzanne Doppelheuer ❿ Page Margit Dorr Double Eagle Foundation Bernard Dougherty Gerald Dudas Marilyn Duffy Patrick & Janet Duffy Jim & Belinda Dunlap Lois Dykeman Constance Elen Michael & Kathryn Elphinstone Judy Ermlick JoAnne Ferlazzo Theresa Findle Nick & Melissa Fleming Joel & Melissa Folman Steven & Cynthia Franceschi Flo Franz Freedon United Federal Credit Union Rebecca Friedrich Thomas & Diane Gaither Gary & Deborah Geis Emily Glass Michael W. Glass Carol Golden Tom Golden Deniis & Jennifer Goldenson Tracy & Barbara Greenholt Alice Gregg Garth Grey Christine Griffith Joseph Grskovich Fred & Kathryn Guenther Abigail Gwin Erin Hamm Harry & Jean Hamm Carol Hendzel Daniel Hershberger Brenda Hill James & JoAnn Hockenberry Lauren Hoag Terri Hoey William Hollowood Rosina Holsing Bob & Anne Hornick Kathy Horosko Mary Howe Robert & Metaxia Hubbard Joan Hudachek & Mike DiCicco Tracy Hyatt & Jim Caslo Joyce Irr Katherine Izzo Janelle Smith Jones Mary Beth, Bill & Meredith Jones Wade & Eleanor Jones William Jones Bessie Kalick Len & Gloria Kaminer Robert & Jean Kelley Melinda Kidder Pauline Kitchen Larry Klos Fred & Susan Krawchick Susan Krevel William & Darlene Kuban Catherine Kudla Robert & Alice Kushner William & Delores Laska Veronica Laughlin & Family John & Janet Laukaitis Gene & Elizabeth Lavin Frank & Annamarie Lazzara August Lewandowski Theresa Lukaesko Donna Lutz Scott Lynn & Emily Morrison Robert & Nancy MacLachlan Patricia Makara Caroline Malanga Sheryl Maletic Richard Mandera Maple Restaurant/Thomas Pappas Don & Judith Markstein Ed & Susan Maziarz Jack McCarthy Barbara McLaughlin Amy McMullen Janet McNall Russell McQuiston Esther Meek Stan & Christine Mersand MG Alliance of Greater New York, Inc. James Mikrut Richard Miller Sharon Mulac J William Murtha Bill Neofes Jr New Alliance Federal Credit Union Deborah Newman Nancy Nitzberg William & Marilym Nizinski James Nusser Jacki O'Brien Carolyn O'Malley J Lee O'Nan Order of AHEPA Thomas & Olga Panowicz Robert & Barbara Park George Perkins Edward & Evelyn Pivarnik Gordon Plancon Mark Poljak Joseph Puglisi Thomas Quinn C R Radigan Daniel Reed Florence Rehders Bonnie Repasky John Ritchie Amy Robertson Marilyn Rosenblatt Elizabeth Roskovich Andrew & Margery Rubin James Sadowski Frieda Safyan Noel & Nora Lee Sallie Domenic Santia Debra Santulli-Barone Harold Saver Sharon Sayer Mary Scalone Karl & Bonnie Schapira Donald Schneider Louis & Judy Schrecker Alan Schultz Wesley Scott John & Laurie Seaborn Karen Shastri Harold & Julia Shaw Shenango China Area FCU Michael & Coleen Sill Robert Simon Bob & Marie Skaggs Alden Small Clarissa Smith Kathy Smith & Mark Shuler Nathan & Janice Smith Gertrude Sopher Joe & Sharon Spano William & Amy Spitzner Sheila Stauffer Francine & Burt Steinberg Cassandra Steverson Nancy & Reese Stigliano Jamie Barr Stivers Cheryl Sudano Gail Sunderland Herbert & Barbara Sweet Dona Taccino Natalie Tack Kathryn Thomas Mary Thompson Bernadetta Tobin Patricia Treskovich Geraldine Tyson United Way of Beaver County MG Association News donors continued... United Way of Butler County United Way of Erie County Karen Urbanowicz Chuck & Lori Varady John & Linda Vuono Louise Vuono Joan Wallisch Maureen Walz Emily Elizabeth Wasel Irving Weinberger Andrew & Jennifer Weintraub Arlene & David Weintraub Deborah Weintraub Fay Weleski West Penn Allegheny Health Network West Penn P & P Federal Credit Union West-Aircomm Federal Credit Union William & Esther Whalen William & Sanya Whitaker Patrick & Eileen White Joe & Suzanne Wiedder Carolyn Wilson Ann Winkelstein Kenneth Winters Hilary, Dutch & Brad Wright Sarah G Writt Brenda Ziemkiewicz Vivian Zuccher is published twice a year by The Myasthenia Gravis Association of Western Pennsylvania and direct mailed to donors, patients and friends. It is also available at the MGA website www.mgawpa.org. Editor: Maree Gallagher, MGA Executive Director Editorial Assistant: Donna Kalisek, MGA Administrative Coordinator Contributors: Michelle Dulashaw, MGA Medical & Social Support Specialist Patricia Zurawski, RN - Patient Care Coordinator Designer: PilarDesigns Printing: Courtesy of Highmark Print Shop PERPETUAL DONATION In Memory of Ronald Claire Grafton By Doris Grafton & Family MEMORIALS Concetta Black By Ronalynn C. Munnell Lillian & Joseph Buchko By Patricia Zurawski John Caldwell By Tom & Denise Blasko Cheryl Cernuto By Bruce & Helen Arrigo Ann Claypoole By Georgia & Don Ging Russell E. Duffy, Sr. By Mary Jo & Ben Cares Anne & David Johnston Anthony & Mary Palangio Hollie By Andrew Weintraub Arlene & David Weintraub Dr. Carol Hudacheck By Susan Hudacheck Joseph F. Hudacheck By Susan Hudacheck Joseph M. & Edna Hudacheck By Susan Hudacheck Jack Hyatt By Cynthia Hyatt & Family Lee Ann Petrozzi Lillian Jones By Erica Jones Carmen Justiniano By Carmen Garcia Ed & Dolores Kalisek By Donna Kalisek David Kruszka By Valerie Dussich Elaine & Donald Hein Carol Ann Kruszka Robert Leighton & Family Harry & Mary Jo Lindback Holly & Greg Locke Timothy McGee Virg Mitchell Ronald & Brenda Shabluk Carol Sayenga Lynn By Patricia Addis Ed & Julianne Biehl Erica Jones Toni Merlo By Erica Jones Ray Offner By Donald Vogel Ruth Pelo By June M. Pelo, Trustee Flossie & Jim Quinlan By Monica Vitkay Jerome Rheiner By Ruth Rheiner Henry Santicola By Clarence & Judith Leger George Sayenga By Ed & Julianne Biehl Erica Jones Sanford Specter By Wallace Specter Jane Specter By Wallace Specter Bernadette Squeglia By Elizabeth Klimchock Patricia Palmer Carl Squeglia Martin A. Stecki By Linda J. Marts Joan Weinstein By Jacob & Miriam Gzesh Lois Wright By Thomas & Cathy Wright Vivian Zuccher By Donna Kalisek HONORARIUMS Cele Braverman’s 90th birthday By Arlene & David Weintraub Tracy & Barbara Greenholt By Lawrence & Ina Gumberg Daniel Schrage By Arthur Schrage Kent “Teke” Tekulve By Donna Kalisek Arlene Weintraub By Toby Blender Carol Golden Arlene & David Weintraub By Dr. Henri & Marilyn Weisberg Deutsch Please note: Every Effort has been made to ensure the accuracy of this list of donors. If you an error or omission, please let us know. 490 East North Avenue, Suite 410 Pittsburgh, PA 15212 412-566-1545 • www.mgawpa.org SPRING ● 2015 Page ⓫ Myasthenia Gravis Association of Western Pennsylvania Non-Profit Org. U.S. Postage PAID Pittsburgh, PA Permit No. 442 at Allegheny General Hospital 490 East North Avenue, Suite 410 Pittsburgh, PA 15212 Comedy for a Cause March 28, 2015; 7:00 pm LOOK for more meeting dates: May 16, 2015 Aug. 15, 2015 June 20, 2015 Sep. 19, 2015 July 18, 2015 Oct. 17, 2015 Kingston, New York - Support Group Email Mitch Robbins: [email protected] ⓬ Page National MG Awareness Month June 19, 2015; 7:00 pm Morningside VFW $35 includes buffet, comedy show, & more! Call 412-566-1545 for tickets. Space is limited MGA Support Group Meetings April 18, 2015; 1 pm to 2:30 pm Allegheny General Hospital Singer Library JUNE MAY MARCH APRIL SAVE THE DATE RETURN SERVICE REQUESTED SAVE THE DATE Highmark Walk for a Healthy Community May 16, 2015 Stage AE, North Shore Support MGA in person or as a virtual walker! WalkForAHealthyCommunity.org Who’s Your Daddy? A benefit concert at the Pittsburgh Winery $15 in advance/$20 at the door Watch for details on facebook and mgawpa.org MGA Butterfly of Hope Campaign (All month long) SPRING ● 2015
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