A look at the past. A vision of the future.

Transcription

2008 Annual Report Edition
Our patients
really tell our story.
Meet children like
Ty and Austin inside.
Rady Children’s Magazine is published twice a year for the friends of Rady Children’s
Hospital-San Diego. Its goals are to provide information on past and upcoming events of
interest, to update readers on significant news, programs and research, and to show how
community support and involvement are making a difference in the lives of the children
and families in our care. We value your comments and suggestions — (858) 966-4955.
Chair, Board of Trustees
John G. Davies, Esq.
President & Chief Executive Officer
Kathleen A. Sellick.
Chief, Medical Staff
Alvin H. Faierman, M.D.
Rady Children’s Magazine is published
by the Creative Services Department at
Rady Children’s Hospital-San Diego,
3020 Children’s Way, San Diego, CA
92123-4282
What’s Inside
8
1 Why We Do What We Do…
A Message from the 2008 Board Chairs
3 The Heart of the Hospital
A Message from the CEO
4 Volunteer Leadership
6 2008 Financial Report
9 The Year in Review
19 Medical Excellence: Autism
23 Medical Excellence: Dermatology
25 Medical Excellence: Heart Institute
27 Medical Excellence: Hematology/Oncology
29 Medical Excellence: Orthopedics
32 Better Care Through Research
34 Looking Ahead
10
37
INSERT
Rady Children’s Directory of Care and Services
PHILANTHROPY AND VOLUNTEERISM
35
36
39
42
45
46
47
51
52
53
55
69
44
Rady Children’s Hospital Foundation: Financial Overview
Reaching New Heights
Children’s Circle of Care
Rady Children’s Legacy Circle
Corporate Support
Community Involvement
Rady Children’s Miracle Makers
Rady Children’s Hospital Auxiliary
Charity Ball
Volunteer Services
Our Most Generous Donors
Calendar of Events
Editorial Board:
David B. Gillig, FAHP
Senior Vice President & Executive Director,
Rady Children’s Hospital Foundation
Judy Minich
Editor
Sybilla Green Dorros
Ben Metcalf
Judy Minich
Lisa Petrillo
Joyce Prichett
Diane Yohe
Writers
Susan Bailey
Creative Services Team Leader
Mike Carnevale
Designer
David Hebble
Bob Ross
Photographers
Visit our website at: www.rchsd.org
2008 Annual Report Edition
Our patients
really tell our story.
Meet children like
Ty and Austin inside.
58
Throughout this Annual Report, look for the
Did You Know? symbol. It offers a quick look
at some of our most noteworthy achievements
and year-end facts.
On the cover: Ty Tuminello was treated
at Rady Children’s for a rare genetic
disorder. Learn more about Ty’s
recovery on page 44.
Why We Do What We Do A Message from the 2008 Board Chairs
T
his Annual Report does what an Annual Report should do: It reports on our 2008 fiscal year (July 1, 2007-June 30, 2008). It was, in
fact, an amazing year for Rady Children’s Hospital-San Diego. Rady Children’s achieved its best operating performance ever in fiscal
year 2008. We have come into these challenging economic times with a strong financial foundation and solid plans for growth.
Throughout these pages, you’ll review our fiscal performance (pages 6-7), see highlights from throughout the year (pages 9-17), and
celebrate the power of philanthropy and volunteerism on nearly every page. You’ll also get an insider’s glimpse of our new Patient Care
Pavilion in progress (pages 36-37).
But we know that our accountability extends beyond our responsibility to report to our donors and our community. Our real accountability
is to the children and families who come to us every day for care.
That’s why the faces of these children really take center stage in this report. We hope that the facts will inform you. We know that the
patient stories will inspire you.
Thank you for all you do.
James F. Vargas
Chair
Rady Children’s Hospital and
Health Center
Rady Children’s Hospital-San Diego
Chair
OURMISSION
To restore, sustain and enhance the health and developmental potential
of children through excellence in care, education, research and
advocacy.
OURVISION
We will be a leader, recognized nationally and internationally, for
excellence in patient care, education, research and advocacy.
Rady Children’s Magazine 1
In his nearly three-year battle
against Acute Lymphoblastic
Leukemia (ALL), 12-year-old
Austin Gatus has dealt with
chemotherapy and severe
complications. He has had
seven surgeries and spent
months at a time in a hospital
bed at Rady Children’s. He still
has a long road ahead of him,
including another year of
chemotherapy, but his life
should be relatively normal
when his treatment ends.
Austin touches the hearts of
everyone he meets, even
performing with Kenny G at
the Children’s Circle of Care
and Miracle Makers Fall
Receptions.
Hi Everyone,
October 8, 2008
2 Rady Children’s Magazine
Rady Children's
has truly been
the core of Austi
forever grateful
n's care. We ar
to all the docto
e
rs and staff for
Austin's needs
being there for
and giving him
the
be
st possible chan
his life-threatenin
ces of beating
g illness. As yo
u know, it has
home with Austi
been our second
n living there for
ma
ny months and
being in and ou
continually still
t of the hospita
l. I will never for
quick thinking an
get the Hospita
d dedication wh
l's
en
Austin was in cri
ICU in June 20
tical condition in
06 and the unex
pected major su
as well. Rady Ch
rgeries that follow
ildren's dedicate
ed,
d doctors and
Blood Bank do
staff and the SD
nors saved his
life numerous tim
es.
Thankfully, Austi
n is doing so mu
ch better… As
still ride the rolle
you all know, we
r coaster, but,
thankfully, the
more tolerable.
bumps have be
Austin still has
en
under a year to
He has been ta
go of treatment
king continual
left.
or
al chemo daily
monthly chemo
, tons of meds
injections since
and
April 2006 (so
will be 3 1/2 ye
when he is done
ars of treatment
it
for leukemia).
Thank you ever
yone for all your
continued pray
for all your cons
ers for Austin
ideration and su
and
pport for our fa
appreciate all yo
mily. We truly
ur thoughtfulne
ss and love.
Hugs, Smiles an
d "Godwinks" to
all,
Eva (Austin’s mo
m)
The Heart of the Hospital A Message from the CEO
Just a few months ago, I met a young man – and I heard him tell his story – and I saw that he forever changed the people he met.
Pretty impressive for a 12-year-old!
When Austin Gatus and his family share their story (see page 2), people truly understand that Rady Children’s commitment to research,
treatment and care has a real impact on the lives of children: Real lives of real kids who will grow up to make a difference in this world.
I believe that his optimism and courage epitomize everything that is important to us to achieve as an institution.
We must expand, as to never turn a child away because of lack of space. We must commit to research so every child has access to the latest
and most effective treatments. We offer comprehensive medical and family care to all who come to us; this is our covenant with our
community. This is our promise to you.
Children like Austin – in fact, EVERY child who needs us – are at the heart of our Hospital.
Your support keeps that heartbeat strong. Thank you for continued compassion and generosity.
With Warm Regards,
Kathleen A. Sellick
President and Chief Executive Officer
During fiscal year 2008, Rady Children’s treated 14,354 children as inpatients and
recorded 215,542 visits to our outpatient and specialty clinics.
Rady Children’s Hospital and Health Center
Rady Children’s Hospital-San Diego Board of Trustees 2008
Trustees
2008 Ex-Officio with Vote
John G. Davies, Esq. (Chair)
Attorney
Allen, Matkins, Leck, Gamble & Mallory
David A. Brenner, M.D.
Vice Chancellor and Dean, School of Medicine
University of California, San Diego
Kurt Benirschke, M.D.
Professor Emeritus of Pathology &
Reproductive Medicine
Alvin H. Faierman, M.D.
Chief of Staff
Margareta E. Norton
Sr. Vice President and COO
Rady Children’s Hospital
and Health Center
Penny A. Dokmo (Vice Chair)
Civic Leader
Marye Anne Fox, Ph.D.
Chancellor
Marjorie Peck, R.N., Ph.D.
Designated Nurse Executive
John M. Gilchrist, Jr.
Partner
The Corti Gilchrist Partnership
William H. Gurtner
Vice President- Clinical Services Department
University of California
Cathy C. Polk
Civic Leader
David F. Hale
Chairman
Hale BioPharma Ventures, LLC
Gail R. Knight, M.D.
Medical Staff Member-at-Large
Lucy L. Killea, Ph.D.
Civic Leader
James F. Vargas
(2008 Chair, Rady Children’s Hospital
Foundation)
Vice President, Chief Human
Resources Officer
Copley Newspapers, Inc
Catherine J. Mackey, Ph.D.
Sr. Vice President
Pfizer Global Research & Development
(PGRD)
Harry M. Rady
CEO
Rady Asset Management
Theodore D. Roth
Managing Director
Roth Capital Partners
Scott N. Wolfe, Esq.
Partner-in-Charge
Latham & Watkins
2008 Ex-Officio (Non-voting)
Gabriel G. Haddad, M.D.
Physician-in-Chief
Chair, Department of Pediatrics
Herbert C. Kimmons, M.D.
President
Children’s Specialists of San Diego
Anthony E. Magit, M.D.
Chief of Staff Elect
Kathleen A. Sellick
President & CEO
Rady Children’s Hospital and Health Center
2008 Officers
John G. Davies, Esq., Chair
Penny A. Dokmo, Vice Chair
Kathleen A. Sellick, President & CEO
Margareta E. Norton, Sr. Vice President &
Secretary
Roger G. Roux, Treasurer, Sr. Vice President
& CFO
David B. Gillig, Sr. Vice President & Executive
Director, Rady Children’s Hospital Foundation
Irvin A. Kaufman, M.D., Sr. Vice President &
CMO
Belinda Santos, Assistant Secretary
Leonard M. Kornreich, M.D.
President Emeritus
Children’s Primary Care Medical Group
Last year, a total of 20,454 surgeries were performed in the Warren Surgical Suites. That averages more than 76
surgeries every day. Among the surgeries were 476 neurosurgeries, 14 percent of which involved brain tumors.
Rady Children's Hospital Foundation
Board of Trustees 2008
James F. Vargas, Chair
Vice President and Chief Human
Resources Officer
Copley Newspapers, Inc.
Carlee Harmonson
Senior Vice President
Personal Trust
Union Bank of California
Trish L. Alessio
Civic Leader
Ronald D. Harper, Sr.
President
Harper Construction, Inc.
Marla B. Black
Senior V.P. and Division Manager
Union Bank of California
Betsy Boaz
Civic Leader
Julie Bronstein
Civic Leader
Nancy G. Henderson, Esq.
Partner
Henderson, Caverly, Pum & Charney
Paul J. Hering
CEO
Barney & Barney
Barbara J. Brown
Civic Leader
A. George Kavner, Ph.D.
Chairman
OTC Holdings, LLC
Edgar D. Canada, M.D.
Pediatric Anesthesiologist
Doug Holmes
President and CEO
Holmes Land Development Corporation
Daniel T. Carter, C.P.A.
Consultant
Richard M. Libenson
Director
COSTCO Wholesale
Richard Chen
President & CEO
Paxanic
Mary A. Crowley
Healthcare Advocate
Darlyn Davenport
Civic Leader
Attorney
Allen, Matkins, Leck, Gamble & Mallory
Alison Gildred
Civic Leader
David B. Gillig, FAHP
Sr. Vice President
& Executive Director
Mark A. Grant
Channel 4 Padres Broadcaster
Cox Communications, San Diego
William R. Hamlin, Jr.
Executive Vice President
Ayres Advisors
Scott J. Mubarak, M.D.
Director of Orthopedic Institute
Craig Nichols
Vice President & General Manager
Channel 4 San Diego
James E. Olson, CLU, ChFC
Senior Agent
Northwestern Mutual Financial Network
Michael P. Peckham
Partner
SENTRE Partners, Inc.
Kathleen A. Sellick
President and CEO
Phyllis Snyder
Civic Leader
Chris F. Tresse
Principal
Bernstein Global Wealth Management
Stacey Valencia
Civic Leader
Angela Wachtmann
2007-2008 President
Ray Warren
General Manager
San Diego Marriott Hotel & Marina
James W. Weipert
Senior Vice President
San Diego National Bank
Lisa Wilcox-Cassidy
President and Co-Founder
Youreeeka!
Jill N. Young
Civic Leader
Anne Zouvas
Civic Leader
Honorary Trustees
Jean E. Hahn Hardy
Civic Leader and Philanthropist
Paul D. Harter
Philanthropist
Matthew A. Peterson, Esq.
Partner
Peterson & Price
Joyce F. Klein
Philanthropist
Cathy C. Polk
Civic Leader
Joan Waitt
Philanthropist
Sally L. Manchester Ricchiuti
Civic Leader
William B. Sailer, Esq.
Vice President, Legal Counsel
QUALCOMM, Inc.
Daniel J. Schreiber
President
Granite Financial Group, Inc.
2008 Financial Report
R
ady Children’s achieved its best operating performance ever in fiscal year 2008. With an operating margin of 6.6 percent, this
performance met and exceeded financial targets set for the year. As a not-for-profit organization, Rady Children’s re-invests income
generated into patient care delivery and other programs to advance its mission.
The number of patients admitted to the Hospital increased
by nearly 5 percent in fiscal year 2008 to the highest level
ever, and overall volume grew by 3 percent.
Philanthropy and investment income contribute to overall
financial performance. Contributions of $17.7 million in
2008 will help make possible the expansion of the Rady
Children’s campus to care for the children of our
community. Investment performance suffered in 2008,
which is reflective of the overall tumultuous conditions in
the securities markets.
Strong financial performance is essential to facilitate
continued investments in patient care, research, information
technology and facilities, to strengthen the organization’s
balance sheet, and to position Rady Children’s to address
economic challenges that arise.
Income Statement years ended June 30, 2008 and 2007 (amounts in thousands of dollars)
For fiscal years 2008 and 2007
2008
2007
Sources of revenue to deliver quality healthcare services:
Revenue for inpatient and outpatient healthcare services provided:
$403,730
$358,953
Since we provide care to uninsured, low-income patients and
families unable to pay their full bill, we did not collect:
(20,367)
(19,184)
Additional revenue from other sources, including research grants,
restricted contributions, management of physician practices and
interest received on our reserved funds:
65, 979
104,377
Capitation revenue:
33,609
34,220
Unrestricted contributions from our friends in the community
who understand and support our mission to care for children:
6,982
12,115
$489,933
$490,481
Uses of our revenue:
Salaries and benefits for our clinical, professional and support staffs:
238,709
216,556
Operating supplies and services:
147,709
137,574
Professional fees and other expenses:
68,085
51,450
Depreciation and interest on plant and equipment:
18,681
17,064
Provision for future programs and capital needs:
16,749
67,837
$489,933
$490,481
Total revenue available to care for children:
Total uses of revenue:
Balance Sheets as of June 30, 2008 and 2007 (amounts in thousands of dollars)
Assets
2008
2007
Cash on hand
$22,951
$680
Amounts owed by insurance companies,
government agencies, patients and others
69,706
73,793
6,509
5,718
Property, plant and equipment
199,455
155,390
Investments to support patient care, research and
education activities and to address capital needs
545,137
421,334
44,517
50,407
Total assets, the financial base to provide patient care
$888,275
$707,322
Liabilities
2008
Amounts owed to vendors, employees and others
469,127
311,810
The difference between what we own (our assets) and
what we owe (our liabilities), representing the community's interest
419,148
395,512
Our liabilities, plus the community's interest,
equals our total assets
$888,275
$707,322
Inventory on hand to meet the needs of our patients
Other assets
2007
Community Benefit
Rady Children’s is committed to improve the health status of the community. Through providing a variety of programs that
address the top health concerns of the community, Rady Children’s provided $61.8 million in quantifiable community
benefit services in 2008. The following table summarizes estimated costs in providing to the community medical care
services and other benefits for vulnerable population; community health services and benefits for the broader community;
and health research, education and training.
2008
2007
Services provided to those in need
Unpaid costs of public programs
Medi-Cal
Charity care
Other benefits for vulnerable population
Total quantifiable benefit to those in need
$39,536
5,676
6,729
$51,941
$44,955
2,229
6,087
$53,271
Other benefits
Benefits for the broader community and research and education
Total community benefit
9,897
$61,838
8,401
$61,672
Rady Children’s provides a Financial Assistance Program to the families of patients who cannot afford to pay for medically
necessary healthcare and meet certain Financial Assistance Program criteria. Charity care includes services provided to
patients who met the Program criteria.
Eleven-year-old Hannah Fulston was born with Down syndrome.
She has had many medical challenges associated with Down
syndrome, including heart and lung problems and developmental
delays. She had cardiac surgery when she was 8 months old.
Hannah’s mother had to quit her job to coordinate Hannah’s care.
Today, Hannah, who now attends fifth grade, is a very active little
girl. She has many friends at school, played for three seasons in a
Miracle League Baseball team and loves to swim.
The Year in Review A look back at the highlights of fiscal year 2008.
New Research Partnership
In July 2007, Rady Children’s, the University of California, San Diego and St. Jude Children’s
Research Hospital began a collaborative alliance to expand critical research in childhood
cancers and provide children in San Diego with access to clinical trials sponsored by St. Jude,
an institution known worldwide for cancer research.
WELCOME
Robert Mak,
M.D., Ph.D.,
Division Chief,
Nephrology
“This alliance provides a unique opportunity for us to not only continue with the work we are
doing here in San Diego, but also expand it with the addition of St. Jude’s innovative
therapies and unique studies,” says Dr. William Roberts, director of Hematology/Oncology at
Rady Children’s.
New Down Syndrome Care Center
A collaboration between DS Action and Rady Children’s led to the opening of the Down
Syndrome Center at Rady Children’s. With the only comprehensive, multidisciplinary Down
syndrome clinic in Southern California, Rady Children’s continues to position itself as an
international leader in pediatric care and specialty services. Down syndrome is the most
common genetic cause of cognitive and developmental disabilities, occurring in about 1 in
800 births. For more about DS Action, please see page 46.
Special Gifts:
$100,000 from Paige and Joe Bezdek to benefit the Neonatal
Intensive Care Unit in the new Patient Care Pavilion.
Special Gifts:
$150,000 from Friends of Scott to benefit the Wellness Center and
Bone Marrow Transplant Playroom in the new Patient Care Pavilion.
Congratulations to Gabrielle Cerda, M.D., 2007
American Academy of Child and Adolescent Psychiatry
winner of the National Norbert and Charlotte Rieger
Service Program Award.
WELCOME
Mamata
Sivagnanam, M.D.,
Gastroenterology
Setting Sail for Adventure
Every August for the past 17 years, the Little Race for Little People
has made quite a splash to help Rady Children’s Neonatal Intensive
Care Unit. The Little Race, San Diego’s wackiest inflatable boat
race, is hosted by the Chula Vista Yacht Club at the California Yacht
Marina in Chula Vista. Armed with only inflatable dinghies and
sheets as sails, the teams race (read: get drenched) to help Rady
Children’s tiniest and most fragile patients. Over the years, the
Little Race has made a big impact, raising more than $500,000.
Recruiting the finest physicians from across the country is a
priority for Rady Children’s. Bringing the best here means
offering the best to our patients.
WELCOME
Kirtida Mistry, M.D.,
Nephrology
Happy Birthday,
Mr. Rady
A celebration for Ernest Rady’s 70th
birthday raised more than $860,000
for our new Patient Care Pavilion
(see page 36-37).
Burt Yaszay, M.D.,
Orthopedics
For more information on the
Orthopedics Division, please see
pages 29-31.
Miracle Makers Celebration
Every September, Rady Children’s honors those corporations and community groups who raise more than $5,000
annually for the Hospital. Last year’s celebration featured Frankie Valli; this September, Kenny G performed, including
an inspirational duet with patient Austin Gatus (see page 2). For more information on the Miracle Makers program,
please see pages 46-49.
Special Gifts:
$150,000 from Aflac to benefit Rady Children’s Hematology/Oncology Fund. In April, Aflac
contributed an additional $3,850 from the sale of Aflac Holiday Ducks!
Congratulations to George Kaplan, M.D. for receiving the prestigious
2007 Pediatric Urology Medal from the Section on Urology. In January
2008, Dr. Kaplan was also given the Lifetime Achievement Award from
the Society of Government Service Urologists.
Congratulations to Martin Stein, M.D. for receiving the C. Anderson
Aldrich Award for life-long contributions in child development from the
American Academy of Pediatrics.
Walking the Walk
October means a whale of a good time for those who want to take extra steps to help kids.The firstever Shamu and You Family Walk was held in fiscal year 2008, raising more than $92,000. For
more information on this year’s event, please see page 45.
Through a joint application with the UCSD adult Blood and Marrow
Transplant Program, Rady Children’s pediatric Blood and Marrow
Transplant Program was successfully accredited by the Foundation for the
Accreditation of Cellular Therapy (FACT).
FACT establishes standards for high quality medical and laboratory practice in cellular
therapies. Accredited facilities have met rigorous standards, as defined by the leading experts
in the field, and based on the latest knowledge of the field of cellular therapy product
transplantation and in compliance with governmental regulations. For more information about
FACT and our Hematology/Oncology programs, please see page 27.
Falls into Action
November is a busy month for Rady Children’s Hospital Auxiliary with its Holiday Gala. Last year, the theme
was “Holiday on Broadway,” and the results were a real show stopper: More than $50,000 was raised for
Pediatric Cancer Research at Rady Children’s.
From Gala to Ice Rink, the 11th Annual Fantasy on Ice event at Horton Square raised $162,645 for the Cancer
Center. To learn about how you can get involved with this enthusiastic and creative group of volunteers, please
see page 51.
Special Gifts:
$100,000 from the Epstein Family Foundation to benefit the new Patient Care Pavilion.
Special Gifts:
$500,000 from Jim Greenbaum to benefit the new Patient Care Pavilion.
Union-Tribune Kids’ NewsDay
Originally scheduled for October 23, 2007, the 18th Annual Union-Tribune Kids’ NewsDay was
rescheduled to December 4 due to the San Diego wildfires. A city still reeling from the tragedies caused
by the fires rallied to give Rady Children’s more than $125,000. More than 170 schools participated;
major sponsors included: The San Diego Union-Tribune, NBC 7/39, RCP Block and Brick, WaMu,
Oliver McMillan, Sunbow, Wal*Mart and Charlotte Russe.
Breaking New Ground. Reaching
New Heights.
December 5, 2007 was an historic day at Rady Children’s as
we broke ground on our new 279,000-square-foot Patient Care Pavilion. Due to be completed in 2010,
this incredible building will allow Rady Children’s to offer the latest advances in medical care in a warm
and inviting family-centered facility. Today, the Pavilion is progressing on time and on budget. For more
information, please see page 36-37.
Ricardo (Ricky) Calderon-Rivera, shown here
with his mother, Ivette, was admitted to Rady
Children’s Ernest Hahn Critical Care Center
after a seizure last April. He was so sick that
a priest baptized him at Scripps Hospital
before he was transferred to Rady Children’s.
Ricky is now back at home and doing well.
Rady Children’s Annual Meeting
Each January, senior staff gathers with volunteer leaders and community members to celebrate Rady Children’s
accomplishments and look, together, toward the future. The 2008 Annual Meeting honored excellence in teaching,
clinical care, quality and research, as well as the importance of volunteerism and philanthropy.
Special Gifts: $26,000 from Las Patronas to purchase a state-of-the-art ventilator for the Ernest Hahn Critical
Care Center.
Special Gifts: $111,060 from The California Endowment to support the Chadwick Center for Children and
Families. For more information about this gift, please see page 64.
Special Gifts: More than $400,000 from the 99th
WELCOME
Kimberly Newton, M.D.,
Advanced Hepatology,
Gastroenterology
Anniversary Charity Ball, benefiting Rady Children’s
Surgical Services.
Special Gifts: $150,000 from Karla J. Hertzog to
benefit the new Patient Care Pavilion.
The Ernest Hahn Critical Care Center (Pediatric
Intensive Care Unit) at Rady Children’s has
consistently been ranked #1 in the nation for
pediatric survival rates, based on the Pediatric
Risk Mortality Program (PRISM). The Pediatric Intensive Care Unit
Evaluations (PICUEs) project software enables the Center to enter
descriptive, physiologic, therapeutic, and outcome data for all patients
admitted to our PICU, then use PRISM algorithms to display and
print severity-adjusted probabilities of death and lengths of stay for
each patient.
Using PRISM analysis for the years 2005-2007, we were predicted to
have 220 deaths; however, only 121 deaths occurred (an 8.4 standard
deviation to the good side). This data drives the Center to even
higher levels of excellence. And that means saving more lives.
Eleven-year-old Jesus was a
snorer. For several years, he was
robbed of a good night’s sleep. He
was recently diagnosed with
obstructive sleep apnea, causing
blockage of the upper airway and
cessation of breathing for several
seconds. When left untreated, it can
lead to heart problems, high blood
pressure, behavioral problems and
poor performance in school. Jesus’
adenoids were surgically removed,
with life-changing results. His parents
are hopeful that his grades will
improve now that he is sleeping better.
WELCOME
Kerri Boutelle, Ph.D., Clinical Psychologist
in Behavioral Weight Intervention,
Gastroenterology
Bonny J. Forrest, J.D., Ph.D., Director,
Clinical Programs, Developmental Services
For more information on Dr. Forrest and her work here in
Autism treatment and research, please see pages 18-21
Congratulations to Kenneth Lyons Jones,
M.D. for receiving the March of Dimes
Colonel Harland Sanders Lifetime
Achievement Award in Genetics.
Congratulations to Seth Pransky, M.D. for
receiving the Gabriel F. Tucker Award for
contributions in Pediatric Laryngology
from the American Laryngological
Association.
Seventh Annual Radiothon: Tuning into Community Awareness
Each spring, Rady Children’s teams with Clear Channel radio stations, Kiwanis of San Diego and Imperial Counties and
the Foresters to bring our patient stories to the San Diego airwaves. The March 2008 event raised awareness throughout
the community – and more than $418,000 for the Hospital.
East County Urgent Care Reopens
In March, a new Urgent Care Center reopened in East County, adjacent to Sharp Grossmont Hospital. This was an
important step in providing easier access to families in the East County and helping to reduce the volume of patients
coming to the Sam S. and Rose Stein Emergency Care Center at Rady Children’s main campus. For more information
on all our Urgent Care Centers, including phone numbers, hours and information on when to go to an Urgent Care
Center, please see the center insert of this report.
Special Gifts:
$200,000 from Rest Haven Children’s Health Fund to name the waiting and play area in the
new Patient Care Pavilion’s Neonatal Intensive Care Unit.
Special Gifts:
$200,000 from the Emilio Nares Foundation to name four living spaces in the
Hematology/Oncology Unit in the new Patient Care Pavilion.
New Eczema Center: Care That’s More Than Skin Deep
The first of its kind in the country, the Eczema Center practices comprehensive patient care and
is committed to integrating basic and clinical research for prevention and improved treatment of
atopic dermatitis. Education of patients and families is a central part of the Eczema Center's
mission.
For more information on the Eczema Center and Rady Children’s groundbreaking work in Dermatology,
please see pages 23- 24.
Congratulations to Gabriel G. Haddad, M.D. on being elected to the American Association
of Physicians.
Congratulations to Victor Nizet, M.D. for receiving the E. Mead Johnson Award for Research
in Pediatrics at the 2008 Annual Meeting of Pediatric Academic Societies.
New Pediatric Unit at Sharp Grossmont
Above and beyond the new East County Urgent Care Center (see page 15 and center insert), expanded pediatric medical
services are now available in East County through a partnership between Rady Children’s and Sharp Grossmont
Hospital to operate an 11-bed pediatric unit at the East County hospital. The new unit, known as Rady Children’s at
Sharp Grossmont Hospital, opened its doors on May 12.
Epic Changes: New Electronic Medical Records System
In changes that will ultimately affect the entire Children’s Health Network and the way we deliver healthcare, Rady
Children’s officially launched a new multi-year computer system implementation with Epic Systems, introducing a
full-blown Electronic Medical Record and new tools to support our Clinical Care Providers, Revenue Cycle and Health
Information Management teams.
Why the change? Epic allows Rady Children’s to offer a more efficient, effective health records system. It safely
shares patient data across all entities – from the primary physician to the emergency room to the operating room. With
no redundancy, patient care is easier for the families and gives doctors all the information they need to develop the best
treatments. There’s less paper, too, and, from a business perspective, provides a healthier revenue recovery cycle.
The end result? Higher-quality patient care. And that’s an Epic reward!
Miracle Makers Gala: Miracolo Carnivale!
Each year, the Miracle Makers Gala honors corporations and organizations that have each raised $15,000 or more
annually. This year’s Gala transported guests to a Venetian-style celebration – all in honor of the miracles in healthcare
made possible each year by those who make it part of their business to help kids. We recognized $9.3 million in gifts
and raised an additional $103,000 that night through table sales and outright gifts.
Special Gifts:
$1.1 million from COSTCO Wholesale to support Rady Children’s highest and most urgent
needs. For more information about COSTCO, please see page 45.
Special Gifts:
More than $300,000 from Rite Aid to support Rady Children’s highest and most urgent needs.
In fiscal year 2008, Rite Aid became one of our special corporate donors who has reached the million-dollar milestone,
raising more than $1.1 million since 1998.
Best-Ever Operating Results
Certainly, one of the highlights of fiscal year 2008 was the financial success of the Hospital. For a complete financial
overview, please see pages 6-7.
$8 Million to CASRC for Advanced Center
In an impressive step to advance research at Rady Children’s, the Child and Adolescent Services Research Center
(CASRC) received its largest grant ever. CASRC was awarded $8 million by the National Institute of Mental Health to
support an Advanced Center to Improve Pediatric Mental Health Care. The Center, founded in 1989, is the only
federally funded research center in the nation focusing on children’s mental health services research. The Advanced
Center will focus on effectiveness and equity for mental health care delivered in the public mental health and child
welfare sectors. The aim is to translate evidence-based treatments into real-world settings, and to develop interventions
that fit better in community care.
Neonatal Care: Among the Best in the Country
The June 9, 2008 issue of U.S. News & World Report ranked Rady Children’s neonatology program among the top
neonatal care programs in the country for its excellent reputation and care provided. In its annual rankings of the best
children’s hospitals and specialty programs in the country, our neonatal care program ranked 28th out of the 113
children’s hospitals included in the survey. This accomplishment places our NICU among the very best.
Special Gifts:
$1.2 million from Ledcor Construction, Inc. toward the purchase of a cardiac-capable MRI.
Special Gifts:
$25,000 from Cardinal Health to promote patient safety programs.
Special Gifts: $500,000 from Patti and Doug Holmes to name the Hematology/Oncology Playroom and
Classroom in the new Patient Care Pavilion. For more information about this gift, please see page 62.
Special Gifts:
$100,000 from Dave Lede for lifesaving equipment for the Neonatal Intensive Care Unit.
Special Gifts: $1 million from the Hervey Family Fund to support the new Patient Care Pavilion.
For more
information on this gift, please see page 60.
Special Gifts:
$6.9 million from Rady Children’s Hospital Auxiliary. For more information on the
Auxiliary and how its gift was used, please see page 51.
In the 2006 Fall Issue of Rady Children’s Magazine, we introduced you to 2-yearold Alexa Ortiz, diagnosed with autism at 14 months and attending Rady
Children’s Toddler School. Her father, Dr. Ariel Ortiz, and mother, Cynthia
(shown here with Alexa in October), tell of their family’s journey:
“We were chosen to have a special child with special needs. How and where
would we meet those needs? What would be the outcome? We asked these
questions as we held hands and prayed. The response to our prayers was
almost immediate, as we received a call from the Toddler School at Rady
Children’s. The first few weeks were tough, but a couple of months
passed, and we got to know the whole staff – warm and compassionate
experts teaching our child to learn.
“Rady Children’s has not only touched us; it has profoundly changed
our lives forever. It has opened our minds to fulfill our duty to serve
and our spiritual need to give, thereby fulfilling one of God’s most
important rules: Love others as you love yourself.
“For Alexa, we are proud to say that she has graduated Toddler
School, acing every test and exceeding every expectation… even
ours.”
The Ortiz’s were so touched by their experience with Rady
Children’s that they have become members of Children’s Circle
of Care (see pages 38-41), ensuring that other children will
always have access to the same level of care.
Medical Excellence and Research
Our Five Programs of Distinction
E
very area of care offered at Rady Children’s – every specialty – is vitally important. The breadth of these programs is impressive, as
you’ll see in our Directory of Care and Services (see center insert).
As we look to the future and enhancing our commitment to patient care, research and teaching, five programs have been selected for special
focus. In the Spring 2008 issue of Rady Children’s Magazine, we introduced you to these areas: Autism, Dermatology, the Heart Institute
(Cardiology and Cardiovascular Surgery), Hematology/Oncology and Orthopedics.
For this Report, we are pleased to give you an overview of 2008 accomplishments for each of our Programs of Distinction.
Autism
A
utism spectrum disorders (ASD) are the fastest growing serious developmental disabilities in the United States.
They are more prevalent than childhood cancers, juvenile diabetes and pediatric AIDS combined.
The incidence of autism is increasing dramatically. Across California, approximately 18,000 children have been
diagnosed with ASD and nationally one in 150 children will be diagnosed. In San Diego, with current incidence
rates, approximately 267 children will be born each year with ASD.
“Think about the things that are the most precious in our lives – the smile of a loved one or the look of joy in a
child’s face – those social connections that bind us together as humans,” says Bonny Forrest, J.D., Ph.D., director
of Clinical Programs, Developmental Services. “Those moments of connection are most at risk in families of
children with autism. It is very exciting to think that the Hospital is taking the initiative to meet a need that has
reached epidemic proportions in this area and across the country.”
Dr. Forrest says Rady Children’s is perfectly positioned to build a comprehensive, world-class program for families
of children with autism spectrum disorder that uses the Hospital’s clinical expertise to investigate some of the most
critical research questions of our time.
Autism Intervention Center
An autistic spectrum disorder (ASD) is a developmental disorder that affects many aspects of a child’s functioning.
The disorder is characterized by delays in communication skills, difficulty with social interaction and imaginative
play and other behavioral symptoms that involve repetitive behaviors and a limited range of interests.
To assist children with ASD and their families as well as other professionals working in this area, psychologists and
developmental specialists at the Autism Intervention Center employ a variety of intervention strategies in both the
clinic and natural settings (such as classrooms or homes). Because each child with ASD is different and each family
will have different needs, the developmental specialists create individualized treatment plans for each child
and their parents.
During the past year, the Autism Intervention Center provided more than 1,668 visits to
children with autism and their families, working with 139 families.
(AUTISM continued on next page)
(continued from previous page)
Toddler School
The Toddler School is an educational program for children 18 months to 3 years of age that is designed to integrate typically developing
toddlers and toddlers at high risk for autism or related disorders. The Toddler School curriculum focuses on teaching communication and
cognitive and social skills, while fostering independence in daily activities for all children involved. The Toddler School works in
partnership with California Early Start, a component of San Diego Regional Center, which supports a portion of the costs for children at
high risk for autism.
Teachers are trained in a variety of methodologies currently used to facilitate the development of young children with autism. An incidental
teaching approach supports children’s learning as they play naturally in a nurturing environment.
“This year we are very proud of our Toddler School outcome data indicating that about 60 percent of children are mainstreamed into typical
elementary school classrooms,” says Aubyn Stahmer, Ph.D. “We are also very excited about the expansion of our toddler and preschool
inclusion programs through collaboration with the excellent team at the Child Care Center.”
Child Care Center and Inclusion Program
In addition to providing an enriching childcare experience, the program is designed to provide inclusive learning opportunities for toddlers
and preschoolers with special needs. The Inclusion Program has received support from a generous donor to employ a full-time inclusion
teacher who supports children with special needs, provides guidance to classroom teachers and assists with curriculum development. The
Center also collaborates with special education providers through the San Diego Unified School District by providing an inclusion
environment for children with individualized education plans.
Developmental Evaluation Clinic
Rady Children’s Developmental Evaluation Clinic offers developmental evaluation services for infants, preschoolers and school-age
children. These services include:
• Identifying developmental, learning and social delays.
• Determining the significance of delays and behavior problems.
• Determining the need for further assessment/intervention.
• Recommending participation in educational or therapeutic programs.
• Linking children and families to needed services.
• Providing comprehensive reports to parents and providers.
This clinic provides diagnostic assessments for children suspected of having an ASD and is the only provider south of Los Angeles to
provide comprehensive evaluations of this nature for children under the age of 5 on Medi-Cal.
In the past year, 1,356 children were evaluated at the Development Evaluation Clinic. More than 90 percent
were identified as having developmental or behavior needs and 20 percent were diagnosed with an autistic
spectrum disorder.
Children’s Care Connection (C3)
C3 is a free program offered by Rady Children’s to identify and treat developmental and behavioral concerns in children ages 0 months to
five years (or kindergarten entry, whichever comes first). The C3 program, funded by the First 5 Commission of San Diego (Proposition 10
– the tobacco tax), is free to qualified families in San Diego County. Children receive a developmental and behavioral assessment at one of
the C3 sites (located in Oceanside, San Diego and San Marcos).
Autism Research
Toddler School
A recent study examined predictors of long-term outcome and service utilization, stability of diagnosis and parental stress related to child
characteristics of children with autism spectrum disorders who attended the Toddler School. Children were tested for cognitive and adaptive
behavior skills at entry, exit and at a follow-up period of one to five years after exit from the Toddler School. The majority of children
(60%) were in regular classroom placement at elementary school.
Parent Intervention Training
Rady Children’s has collaborated with Drs. Sally Rogers and Laurie Vismara at the MIND Institute on a project examining distance learning
of the Early Start Denver Model for parents and therapists working with very young children with autism.
Intervention Projects in Collaboration with UCSD
Rady Children’s has conducted a variety of research examining different behavioral interventions for children with autism with researchers
at UCSD. We are currently collaborating with Dr. Laura Schreibman to provide the intervention component of Dr. Eric Courchesne’s
Autism Center for Excellence grant.
Welcome to Dr. Bonny Forrest
Dr. Bonny J. Forrest, Director, Clinical Programs, Developmental Services joined Rady Children’s in March 2008
to oversee developmental, evaluation and treatment programs for children.
“I was recruited specifically to help with the autism effort and joined Rady Children’s because I so believed in what
the Hospital is doing – it is an exciting time here,” says Dr. Forrest.
After practicing law for a decade, she received her Ph.D. in psychology from Columbia University with a
specialization in pediatric neuropsychology. She completed her specialty internship at the Yale Child Study Center
and Yale School of Medicine. Subsequently, she received a National Institute of Mental Health post-doctoral fellowship, gaining additional
experiences in pediatric brain imaging, research and treatment of childhood disorders. Dr. Forrest teaches, consults, writes and lectures
extensively on autism spectrum disorders and other neurological issues of childhood.
Cazz Trisby has suffered since he was born with a severe form
of atopic dermatitis, more commonly known as eczema.
Eczema affects about 15 percent of all children under the age 9,
with symptoms such as chronic itching, rashes, weeping lesions
and dry skin. The causes are both genetic and environmental.
Cazz’s condition is further complicated by multiple allergies. He
frequently had to wear thick mittens taped on his hands and feet
to discourage him from scratching and hurting himself. The
mittens allow special ointments to do their work uninterrupted,
moisturizing his skin and helping to suppress the itching.
Dermatology
T
he Dermatology Division at Rady Children’s is growing in every way possible. Throughout the last year, it has
experienced active growth physically, with new and expanded services at satellite locations in the community
and on the main hospital campus. The Division has also seen an increase in the number of patients seen in the
clinics and the number of surgeries and other procedures performed.
In addition to growth in the number of patients treated and physical space, the Division’s reputation continues to
grow on local, national and international levels. Physicians from the division have been responsible for multiple
presentations, as well as published articles and studies which have been featured in national news publications and
medical journals, including the New England Journal of Medicine and XM Satellite Radio.
Eczema Center Celebrates Year of Successes
As the only center of its kind in the United States, the Eczema Center at Rady Children’s is dedicated to clinical
care, family education, and research on atopic dermatitis and other inflammatory skin diseases.
Atopic dermatitis or eczema affects up to 20 percent of all children. That’s about 300 times the number of
children affected a few decades ago.
“Eczema is a complex disease with significant impact on children and their families,” says Dr. Lawrence F.
Eichenfield, who directs the Eczema Center along with Dr. Magdalene Dohil. “We believe that innovative
education plays a crucial role in its treatment.”
The Eczema Center provides comprehensive patient care, with access to the Dermatology Division’s active research
program, including clinical trials for new treatment modalities for atopic dermatitis and other skin conditions.
Patient and family education are central to the Eczema Center’s concept of treating the “whole child.” The center
offers Eczema School on weekends and evenings to help families learn more about eczema, treatment options,
triggers and hands-on demonstrations for different therapies.
The Eczema Center also recently launched a website for eczema patients, and caregivers – www.eczemacenter.org.
The web site provides extensive information on etiology, treatment, research, available resources and upcoming
Center events.
In the last year alone, the Dermatology Division’s work has led to approval of three new
topical corticosteroids for eczema designed to treat children 3 months and older. The
Division is also looking at Vitamin D and how it may help boost the skin’s immune system.
(DERMATOLOGY continued on next page)
Focus on Research Yields New Treatment Options
The Division also actively pursues new therapies for atopic dermatitis and other skin disorders. Evaluating the safety and efficacy of new
products for treating young children is the focus of much of the division’s research.
“The body is protected by the skin, which is both a physical barrier and a place where the immune system does battle,” said Dr. Eichenfield.
“Part of the ‘innate immune system’ is present in the skin and helps to protect the body from bacteria and other microbes. Current research
has shown that, in eczema patients, certain parts of this innate immune system are deficient. We are trying to determine if Vitamin D can
help boost the skin’s immune system, especially for patients with atopic dermatitis.”
Other research being conducted by the division includes a study on a common birthmark known as a hemangioma. Seen in approximately
10 percent of children, these growths of blood vessels can be associated with significant deformity and organ damage. Dr. Sheila Fallon
Friedlander, a Rady Children’s Dermatologist, is conducting research in conjunction with The Scripps Research Institute and Sharp Mary
Birch Hospital for Women, looking at the etiology of these birthmarks and how they may relate to placental abnormalities.
The division is also conducting clinical trials for treatment of acne, diaper rash, eczema/atopic dermatitis, psoriasis, epidermolysis bullosa,
and new formulations of sunscreens.
Welcome to Dr. Wynnis Tom
The Dermatology Division also welcomed a new physician to the group. Dr. Wynnis Tom completed her residency at
Saint Louis University in 2007 and her fellowship at Rady Children's/UCSD. She was recently awarded the Society
for Pediatric Dermatology’s Pilot Program Award for a research project on systemic therapies for atopic dermatitis.
Heart Institute
O
ver the last fiscal year, Rady Children’s Heart Institute
has treated a record number of children. As highlighted
in the Summer Issue of Rady Children’s Magazine (available
online at www.rchsd.org), the Institute, operated in
partnership with UCSD, is the second busiest cardiology
department in California – and more growth is on the way.
And it’s growth that is vitally needed. Despite dramatic
advances made in medical science over the last half-century,
nearly 1 child in 100 is born with a heart defect. Rady
Children’s Heart Institute not only serves San Diego and
Imperial Counties, but also treats referral patients from
Arizona, New Mexico, Hawaii and the Pacific Rim.
Life-Saving Research
The research portfolio is also growing, with 22 approved
clinical research studies in progress. Among the newest
studies is COAST, the Coarctation of the Aorta Stent Trial.
Rady Children’s is one of only 15 medical centers nationwide
selected to be part of this study, which uses the CheathamPlatinum stent in youths with chronic coarctation of the aorta.
Why platinum? It is the latest wave of interventional devices:
light and durable – and the patients can still have MRIs, an
important diagnostic tool that can’t be used as easily on
patients with stents of other metals.
And in a move destined to aid our community far into the
future, we began the multi-year process to become a
pediatric heart transplant center – to become one of only
five in California.
New Technology
Staying on the front lines of medicine, the Institute has added
impressive new technology – tools as small as the newest
platinum catheterization stents and as massive as a new
cardiology MRI.
Among the newest technologies are 20 new digital Holter
Monitors. These portable EKGs are worn on the bodies of
kids during normal activity, generally over a 24-hour period,
to measure for abnormal heart rhythm and other danger signs.
When you’re small, a monitor the size of a paperback novel,
as the old models were, can be uncomfortable. The new
digital devices aren’t much bigger than iPod media players.
The Cath Lab in the International Spotlight
Rady Children’s was in the spotlight this summer when John
Moore, M.D., Director, Division of Cardiology, performed
three procedures in our cardiac catheterization lab that were
broadcast live to cardiologists gathered in Las Vegas for the
Pediatric and Adult Interventional Cardiology
Symposium (PICS).
One of the procedures was performed on Angela Zules, a
17-year-old from Ecuador, providing a tremendous learning
opportunity for PICS attendees. Angela told the media
covering the live procedure that, once she gets past the
medical challenges caused by her congenital heart defect, she
has her now-repaired heart set on becoming a doctor herself.
By the Numbers: Heart Institute in 2008
8,919 cardiology outpatient clinic visits • 38,287 cardiac diagnostic tests and scans
675 cardiac catheterizations • 317 closed and open-heart surgeries
The Hybrid Procedure: A Better Way to Help Kids
The “Hybrid Procedure” combines a relatively minor surgical procedure with an interventional catheterization procedure for high-risk
infants with Hypoplastic Left Heart Syndrome. The Hybrid is an alternative to the standard surgery (Norwood-Sano Procedure), which
requires use of the heart-lung machine and often circulatory arrest. The Hybrid Procedure is much less invasive, has lower risk and
improved outcomes. Rady Children’s is one among only a small number of centers performing Hybrids in the United States.
When Carson Cloyd was 6, he had to battle two
life-threatening conditions simultaneously. Four
months after his 6th birthday, he was diagnosed
with Acute Lymphatic Leukemia (ALL). While
undergoing chemotherapy, Carson ’s weakened
body was attacked by a virulent fungal infection
known as Mucor. He underwent five surgeries
and ended up losing his spleen, one kidney and
parts of his bowel and pancreas. He was
hospitalized at Rady Children’s for 98 days,
including more than a third of that in the intensive
care unit. Carson is now 7. His cancer is in
remission and he is scheduled to have his last
maintenance cancer treatment on July 1, 2009.
Hematology/Oncology
P
artnerships and support have been central themes around
Hematology/Oncology at Rady Children’s this year, such
as the collaborative alliances between Rady Children’s, UCSD
and St. Jude Children’s Research Hospital (see page 9).
New Accreditations Solidify
Hem/Onc’s Reputation
The Hematology/Oncology Division, in conjunction with the
University of California, San Diego received accreditation
from the Foundation for the Accreditation of Cellular Therapy
(FACT) for the Bone Marrow Transplant Program.
The Division was also recently accredited by the
Accreditation Council for Graduate Medical Education
(ACGME ) for a hematology/oncology fellowship program.
By training the next generation of physicians, the
Hematology/Oncology division will be able to continue its
work on behalf of San Diego’s children.
“In everything we do, our intentions are to gain a better
understanding of the disease processes, which helps us to
design better treatment plans and results in increased survival
rates and more positive outcomes for patients and their
families,” says Dr. William Roberts, Director of
Hematology/Oncology at Rady Children’s.
Oncology Unit In Tijuana Helps Kids
with Cancer
The recent opening of the Pediatric Oncology Unit at the
Hospital General de Tijuana is a perfect example of Rady
Children’s reaching out to the community as a whole to assure
that children with cancer receive the best possible opportunity
for healthy lives. Dr. Roberts was instrumental in providing
advice and expertise to the staff at General Hospital in getting
the unit up and running.
While Rady Children’s has no role in operating the program,
nor are any Rady Children’s physicians seeing patients at the
hospital, the alliance between Rady Children’s and St. Jude
Children’s Research Hospital made the Oncology Unit in
Tijuana possible.
“With support and resources from St. Jude, we were able to
assist in providing a good infrastructure at the Hospital
General de Tijuana to help improve outcomes for pediatric
cancer patients living in Mexico,” says Roberts.
Many children with cancer who live in Baja California didn’t
have access to the specialized care they need to improve their
health outcomes. With this new oncology unit open the
children have access to quality care in a clean and safe
environment close to home. Additionally, the General Hospital
has met the necessary standards to offer “Seguro Popular,”
Mexico’s health insurance program.
Impact of Research Projects
on Future Treatments
The staff of the Hematology/Oncology Division is
participating in several research projects that will provide
better understanding and better treatment options for pediatric
cancer patients.
Dr. Jennifer Willert is working on a project to study the role
of integrins and caspase 8 in progression of neuroblastoma in
patients in collaboration with Dr. Dwayne Stupak of the
UCSD Moores Cancer Center.
Dr. Eric Anderson is working on a project regarding the
molecular basis of metastasis in the Ewing’s Sarcoma Family
of Tumors with Dr. Roberts and Dr. Jing Yang, from UCSD.
This project is supported by a $30,000 donation from the
Hyundai Hope on Wheels Tour.
Dr. Deborah Schiff is the Physician Coordinator of the St.
Jude Children’s Research Hospital/Rady Children’s Alliance.
In conjunction with the St. Jude Children’s Research Hospital,
she is the principal investigator at Rady Children’s for two
studies of therapy for relapsed or refractory acute
lymphoblastic leukemia.
Thanks to an extraordinary gift from the Peckham Family, the Hematology/Oncology program at Rady
Children’s is now known as the Peckham Center for Cancer and Blood Disorders. For more information
about the Peckhams, please see page 54.
In December 2007, Victoria
Huerta, now 7, was sidelined by
the diagnosis of congenital
scoliosis. This condition, which is
an abnormal curvature of the
spine, would ultimately require
three surgeries performed by Dr.
Peter Newton of the Pediatric
Orthopedic and Scoliosis Center
at Rady Children’s. In the future,
Victoria may have limited trunk
motion (flexibility) when it comes
to certain types of sporting
activities, but otherwise should
have no limitations. So, despite
her recent surgeries, Victoria ’s
forecast for fun looks bright.
Orthopedics
ady Children’s Orthopedic Division was recognized by
Child Magazine as among the top five pediatric
orthopedic departments in the United States. The department
is also the largest pediatric orthopedic department with the
highest number of pediatric orthopedic physicians in the state
of California.
R
“Recent studies demonstrated that one out of 278 people in
the United States has cerebral palsy,” says Dr. Henry
Chambers, director of the Center. “The partnership between
Rady Children’s and Children’s Specialists has made a
national and international impact for the families who are
challenged with this disorder.”
“We’re honored to be recognized nationally for the top care
we provide patients who often travel here from across the
nation and around the world,” says Scott Mubarak, M.D.,
Director of Orthopedics at Rady Children’s. “The top ranking
reflects the clinical expertise, top notch research and surgical
innovations that have been developed by our orthopedic team.”
The Center also received a $1 million grant from the National
Institutes of Health to study the effects of medication on
spasticity in children.
New Growth for 2008
The Division opened a 2,600-square-foot pediatric
orthopedic office in Escondido in May 2007 to
accommodate North County patients and their families. The
Escondido office is growing, and all members of the Rady
Children’s orthopedic staff provide patient care there,
including physicians, nurse practitioners and physician
assistants.
In addition to Escondido, patients are seen at the orthopedic
office at 3030 Children’s Way and at the Care Team 4 Clinic
inside the main Hospital. A multi-disciplinary team of
orthopedic specialists provide individualized assessment, early
diagnosis, appropriate treatment and follow-up care.
According to Dr. Mubarak, outpatient volume increased by 8
percent at all three orthopedic treatment centers. The total
number of visits logged in 2008 for all Rady Children’s
orthopedic offices was 49,462.
“We serve 3 million people in San Diego County as well as
thousands more from Riverside, Orange and Imperial
Counties who regularly use Rady Children’s Orthopedics as
their base for orthopedic care,” says Dennis Wenger, M.D.,
Director of the Pediatric Orthopedic Training Program at
Rady Children’s.
Due to increasing patient care, two new staff physicians have
been hired and the nurse practitioner/physician assistant group
continues to grow, allowing us to meet significant patient care
demand (see page 31).
The Spine Program is part of Rady Children’s Scoliosis
Center, nationally recognized for its patient care, education
and research in the field of scoliosis, kyphosis,
spondylolisthesis and other spine conditions.
The Sports Medicine Program (CHAMPS): Children’s
Health, Athletic Medicine and Performance. It covers all
aspects of health practices as well as treatment and prevention
of sports injuries.
“The CHAMPS program continues to grow as we added a
new sports physician, Dr. Eric Edmonds,” says Dr. Chambers,
director of CHAMPS. “Innovative procedures, national
educational events and new research in the field of sports
medicine have marked a very successful year in the
management of sports injuries in children and adolescents.”
The Center for Human Performance, under the leadership
of Arnel Aguinaldo, has been very active in the Motion
Analysis Laboratory to improve athletic performance in
amateur and professional athletes as well as to prevent
injuries. Several research grants from Major League Baseball
were awarded to the Orthopedics Division in the past few
years to study the effect of pitching on young athletes.
The Southern California Cerebral Palsy Center was
established last year to serve children and young adults with
cerebral palsy through improved clinical, education and
research studies.
(ORTHOPEDICS continued on next page)
Training Programs
Four new orthopedic fellows were added to the orthopedic training
program on August 1, 2008, as well as two international fellows
who study at Rady Children’s. The residency program includes
residents from the University of California, San Diego; the San
Diego Naval Training Center; and the Wilford Hall Air Force
orthopedic program in San Antonio, Texas.
Endowed Fellowship in Pediatric Orthopedics
Lena Sefton Clark, one of the earliest supporters of Rady Children’s
through the Charity Ball, passed away in 1964. In her honor, her
family established the Lena Sefton Clark Endowed Fellowship in
Pediatric Orthopedics in 2007, which provides a perpetual source of
funding to support education, training and research in Orthopedics
at Rady Children’s.
Vineeta T. Swaroop, M.D., is the first Lena Sefton Clark Fellow. Dr.
Swaroop graduated from Duke and Georgetown University School
of Medicine. Before coming to Rady Children’s as a fellow, she
completed her residency at Northwestern University Feinberg
School of Medicine.
Reflecting on her fellowship, Dr. Swaroop commented, “What I
liked most about my fellowship was the opportunity to be involved
in many different aspects of patient care, education and research.”
The result is increased research interest and productivity. Of the 90
podium presentations at the recent Pediatric Orthopaedic Society of
North America (POSNA) meeting in Albuquerque, six were from
Rady Children’s Orthopedic Research Program.
Tracy Bastrom, Orthopedic Research Program manager, said the
past year in research has been a great success.
“We managed to surpass our 2006 publication rate with 30
manuscripts printed in peer-reviewed journals,” says Bastrom. “Our
2006-2007 fellows were extremely active and many of their studies
were featured at this year’s Pediatric Orthopaedic Society of North
America meeting in Albuquerque.”
The Orthopedic Biomechanics Research Center (OBRC) at Rady
Children’s was founded in November 1998 with an initial research
focus towards adolescent idiopathic scoliosis. Tucker Tomlinson,
director of OBRC, is a UCSD orthopedic resident on a two-year
research rotation in Rady Children’s research laboratories.
Other orthopedic research efforts include:
• Center for Spinal Deformities
Rady Children’s is the primary site for a multicenter, international
study on the outcome of thoracoscopic scoliosis surgery. This study
contains one of the most advanced databases on scoliosis in the world.
• Motion Analysis Laboratory
Orthopedic Division Research
Dr. Peter Newton continues the direction of orthopedics
comprehensive research program. All eight orthopedists in the
Orthopedics Division participate in clinical trials and research
activities.
According to Dr. Wenger, Rady Children’s research program
benefits from the legacy of University of California, San Diego’s
research philosophy, whose orthopedic efforts, initiated by Dr.
Wayne Akeson, continue to guide the research program’s intellectual
inquiry. Dr. Steve Garfin, current Chair of Orthopedics at UCSD,
continues a team approach to pediatric orthopedic research.
Analysis of pitching motion to understand causes of injuries and to
train young pitchers in proper body mechanics to avoid injury.
Analysis of the effects of trunk motion before and after spinal fusion
operations.
Evaluation of gait in patients with cerebral palsy to make surgical
analysis based on the findings.
• Center for Orthopedic Outcomes
Studies on outcomes of surgical correction of residual hip dysplasia.
Analysis of the epidemiology of a variety of fracture patterns.
Study of surgical treatment of foot and spinal deformity in
Duchenne muscular dystrophy patients.
Research Leads to Development of New Surgical Methods for Complex Cases
One study in the Biomechanics Lab Research Center was the development of a surgical procedure to maintain an important ligament within
the hip joint to assure successful reduction in children with complex developmental dislocation of the hip. This procedure has been applied
in more than 30 hips at Rady Children’s and was presented as the lead-off scientific paper at the Pediatric Orthopedic Society of North
America’s meeting.
“The academic achievements of Rady Children’s Orthopedic Department have reached new heights in 2007,” says Dr. Newton. “Our
orthopedic surgeons made over 55 scientific research presentations at national and international meetings, while publishing 30 manuscripts
in leading orthopedic journals covering a variety of hip, knee, foot, spine and traumatic conditions.”
He explains that two papers led off the national pediatric orthopedic meeting this year with our results of ultrasound aided treatment of
dislocated hips the best ever reported. A study investigating the use of novel coatings on spinal screws to improve their holding power was
awarded the best presentation at a Hong Kong meeting, while a long-term project to develop a growth modifying method to correct scoliosis
without fusing the spine with rods has been presented to the FDA to begin clinical trials.
“We remain committed to making discoveries that will advance orthopedic care for the children and adolescents of San Diego, but we also
realize we have the expertise and responsibility to share that knowledge with our colleagues around the world,” says Dr. Newton.
Welcome Dr. Burt Yaszay
Dr. Yaszay earned his undergraduate degree from UCSD and his medical degree from Stanford University. He completed orthopedic
residency training at the University of Washington and Children’s Hospital of Seattle. In addition, he completed a pediatric and adult
spine fellowship at New York University/Hospital for Joint Diseases. He joined Rady Children’s Orthopedic Department in September
2007.
He plans to build a practice that will manage all pathologies of the pediatric spine: cervical instability, trauma, tumor and infection. He
is devoted to better understanding of the treatment of scoliosis and has already received a grant to build a database at Rady Children’s
that will produce an outcome tool for scoliosis secondary to cerebral palsy.
Welcome Dr. Eric W. Edmonds
A native of Fresno, California, Dr. Edmonds attended Johns Hopkins University for his undergraduate education. He returned to
California to earn his medical degree from the University of California, Davis. He completed an orthopedic residency at the Carolinas
Medical Center in Charlotte, North Carolina and recently finished a pediatric orthopedic fellowship here at Rady Children’s. He joined
the orthopedic staff on August 1, 2008. He has a broad interest in all of pediatric orthopedics, but also has a special interest in sports
medicine.
Better Care Through Research
You may not think research matters – until a child you love needs a lifesaving new therapy.
Rady Children’s partnership with the University of California, San
Diego (UCSD) is vitally important to the children in our community
– and to others across the country and around the world. Because
we’re partners – not competitors – children here benefit from access
to a comprehensive team of physicians, all working together to
investigate new treatments and protocols. Shared information from
the lab and the bedside create a powerful dynamic. Through
laboratory studies, we look far into the future to create new
advances. Through clinical trials, we help children today.
Sharing our work nationally and internationally is an important part
of Rady Children’s Vision (see page 1). Through publications and
presentations, our physicians are making an impact on pediatric
healthcare on a national level (see full publication information,
below and right).
You’ll find more about important research with Rady Children’s and
UCSD on Autism (pages 19-21), Dermatology (pages 23-24), the
Heart Institute (page 25), Hematology/Oncology (page 27) and
Orthopedics (pages 29-31).
And there’s so much more, including:
Dr. John Bradley authored three important publications on
pediatric infectious diseases and Dr. Anthony Horner and
coauthors published two articles in the Division of Allergy and
Immunology on allergenic response to house dust – both topics
important to families everywhere.
Drs. Jane Burns, John Bastian, John Kanegaye and Audrey
Tremoulet have worked together to publish five articles on
Kawasaki Disease. Rady Children’s/UCSD is a national leader in
this field.
Dr. Gabriel Haddad and coworkers have published four important
articles on hypoxia and ischemic injury and survival in low oxygen,
while Dr. Henry Krous and coworkers made a presentation at the
SIDS 10th International Conference in Portsmouth, UK.
Dr. Michael Levy published two significant articles on Pediatric
Neurosurgery, helping children here (see page 4) and across the
country.
In a topic that’s extremely important to American families every
day, Drs. Robb Newfield and Ken Jones have published articles on
obesity and diabetes.
Dr. Victor Nizet and coauthors have published four articles in the
area of infectious diseases in the prestigious journals Science,
Nature and Nature Medicine, reaching both physicians and parents.
Research really means more effective treatments, less pain and better outcomes. Each study is meticulously
reviewed and monitored to help researchers understand pediatric conditions and develop safe and successful
treatments.
It is with pride that we share just few highlights from the many respected publications
and presentations that have showcased Rady Children’s and UCSD physicians.
American Academy of Pediatrics, Committee on Infectious
Diseases. Antiviral Therapy and Prophylaxis for Influenza in
Children. Pediatrics 2007;119;852-860.
Bradley JS, Arguedas A, Blumer JL, Saez-Llorens X, Melkote R,
Noel GJ. Comparative study of levofloxacin in the treatment of
children with community-acquired pneumonia. Pediatr Infect Dis J.
2007 Oct;26(10):868-78.
Bradley JS, Sauberan JB, Ambrose PG, Bhavnani SM, Rasmussen
MR, Capparelli EV. Meropenem Pharmacokinetics,
Pharmacodynamics, and Monte Carlo Simulation in the Neonate.
Pediatr Infect Dis J. 2008 Jul 21.epub.
Batzer G, Lam DP, Paulus P, Boasen J, Ng N, Horner AA. Using
house dust extracts to understand the immunostimulatory activities
of living environments. Immunobiology, 212:491-498, 2007
(PMCID: PMC1950943)
Lam D, Ng N, Lee S, Batzer G, Horner AA. Airway house dust
extract exposures modify allergen induced airway hypersensitivity
responses by TLR4 dependent and independent pathways, J.
Immunol, 181:2925-2932, 2008.
Wilder MS, Palinkas LA, Kao AS, Bastian JF, Burns JC. Delayed
diagnosis by physicians contributes to the development of coronary
artery aneurysms in patients with Kawasaki syndrome. Ped Inf Dis
J. 2007;26: 256-260.
Popper SJ, Shimizu C, Shike H, Kanegaye JT, Newburger JW,
Sundel RS, Brown PO, Burns JC, Relman DA. Gene-expression
patterns reveal underlying biological processes in Kawasaki disease.
Genome Biology 2007;8:R261 [Epub ahead of print].
Kurio G, Zhiroff K, Jih L, Fronek A, Burns JC. Non-invasive
determination of endothelial cell function in the microvasculature in
Kawasaki syndrome. Pediatric Cardiology. 2008;29:121-125.
Tremoulet AH, Best BM, Song S, Wang S, Corinaldesi E,
Eichenfield J, Burns JC. Resistance to intravenous immunoglobulin
in children with Kawasaki Disease. J Pediatr. 2008;153:117-121.
Onouchi Y, Gunji T, Burns JC, Shimizu C, Newburger JW, Yashiro
M, Nakamura Y, Yanagawa H, Wakui K, Fukushima Y, Kishi F,
Hamamoto K, Terai M, Sato Y, Ouchi K, Saji T, Narai A, Kaburagi
Y, Yoshikawa T, Suzuki K, Tanaka T, Nagai T, Cho H, Fujino A,
Sekine A, Nakmuchi R, Tatsuhiko T, Kawasaki T, Nakamura Y, Hata
A. IPTKC functional polymorphism associated with Kawasaki
disease susceptibility and formation of coronary artery aneurysms.
Nature Genetics 2008 Jan;40(1):35-42.
Zhou D, Wang J, Zapala MA, Xue J, Schork NJ, Haddad GG. Gene
expression in mouse brain following chronic hypoxia: role of
sarcospan in glial cell death. Physiol Genomics. 2008 Feb
19;32(3):370-379.
Yao H, Sun X, Gu X, Wang J, Haddad GG. Cell death in an
ischemic infarct rim model. J Neurochem. 2007 Nov;103(4):16441653.
Zhou D, Xue J, Chen J, Morcillo P, Lambert JD, White KP, Haddad
GG. Experimental selection for Drosophila survival in extremely
low O2 environment. PLoS ONE. 2007 May 30;2(5):e490.
Jandial R, Singec I, Duenas VJ, Ho AL, Levy ML, Snyder EY:
Central nervous system repair and stem cells, Int. Congr. Ser. 2007
Park MS, Nguyen AD, Aryan HE, U HS, Levy ML, Semendeferi K:
Evolution of the human brain: changing brain size and the fossil
record. Neurosurgery. 60(3):555-562, March 2007.
Newfield RS, Dewan AK , Jain S. Dyslipidemia in children with
type 2 diabetes vs. obesity. Pediatr Diabetes. 2008 Apr;9(2):115-21.
Epub 2008 Jan 19. PMID: 18221437 [PubMed - indexed for
MEDLINE]
Jones KL. Role of obesity in complicating and confusing the
diagnosis and treatment of diabetes in children. Pediatrics. 2008
Feb;121(2):361-8. Review. PMID: 18245428 [PubMed - indexed for
MEDLINE]
Walker MJ, Hollands A, Sanderson-Smith M, Cole JN, Kirk JK,
Henningham A, McArthur JD, Dinkla K, Aziz RK, Kansal RG,
Simpson AJ, Buchanan JT, Chhatwal GS, Kotb M, Nizet V. DNase
Sda1 provides selection pressure for a switch to invasive group A
streptococcal infection. Nature Medicine 2007 13:981-985.
http://www.sciencedaily.com/releases/2007/07/070716133210.htm
Liu C-I, Liu GY, Song Y, Yin F, Hensler ME, Jeng WY, Nizet V*,
Wang AH*, Oldfield E*. A cholesterol biosynthesis inhibitor blocks
Staphylococcus aureus virulence. Science 2008; 319:391-394.
*share senior authorship
McNamara CW, Zinkernagel AS, Macheboeuf P, Cunningham MW,
Nizet V, Ghosh P. Coiled-coil irregularities and instabilities in
Group A Streptococcus M1 are required for virulence functions.
Science 2008; 319:1405-1408.
Rius J, Guma M, Schachtrup C, Akassoglou K, Zinkernagel AS,
Nizet V, Johnson RS, Haddad GG, Karin M. NF-kB links innate
immunity to the hypoxic response through transcriptional regulation
of HIF-1. Nature 2008 454:807-811.
Yao H, Shu Y, Wang J, Brinkman BC, Haddad GG. Factors
influencing cell fate in the infarct rim. J Neurochem. 2007
Mar;100(5):1224-1233.
If you’d like more details about research throughout Rady Children’s and UCSD, we’d be happy to send
you a copy of the Rady Children’s/UCSD Physicians Annual Report. For your copy, please contact Jodi
Bengel at (858) 966-8536.
LOOKING AHEAD
All parents who bring a child to Rady Children’s share one common question:
“Do you have everything you need to help my child?”
At the very core of Rady Children’s Mission is the dedication to always answer, “yes.” Every hour of the day. Every day of the year.
Although our country is facing uncertain economic times, Rady Children’s stands ready – and able – to continue to take care of every child
who comes to us and to offer every child excellence in medical care.
The Hospital’s best-ever operating performance in fiscal year 2008 is providing a solid foundation for this current fiscal year as we continue
our commitment to meet the needs of the community, now and in the future.
We remain committed to completing our new Patient Care Pavilion (see pages 36-37). The Pavilion construction is on time and on budget
and is absolutely crucial to our ability to meet the needs of the children and families in our care.
From great to world-class.
We look forward, as well, to continuing our work to take Rady Children’s from the great hospital we are today to a world-class institution –
one of the top children’s hospitals in the United States.
The future of Rady Children’s is filled with possibilities. Our Board has approved moving forward on planning a new research facility right
on the main campus that will strengthen our commitment to research and innovation. At the same time, we are committed to teaching the
next generation of pediatric healthcare professionals and to continue our efforts to attract and retain the best and brightest physicians,
nurses and staff.
And it’s all for one simple reason: This is what’s best for the children of our region.
At Rady Children’s, we take pride in our present accomplishments. We also are looking to the future so that we may always answer:
“Yes, we do have everything we need to take care of your child.”
Philanthropy and Volunteerism
Make a difference in the life of a child.
There is special joy in knowing that you’ve helped a critically ill child. Our donors and volunteers have – in a real and profound way –
touched the lives of the patients and families at Rady Children’s.
Why Your Help Matters
Does Rady Children’s really need your support? Yes! As a free-standing, not-for-profit hospital, we rely on community support. We want to
ensure that we will always be here to care for the children who need us, reaching new heights in pediatric healthcare. Philanthropy provides:
• Life-saving technology and research.
• Support for the amazing new Patient Care Pavilion (see pages 36-37).
• A safety net for children with little or no private medical insurance.
• A healing environment designed to enrich the experience of patients and their families,
covering vital programs and services not reimbursed by insurance.
Rady Children’s Hospital Foundation: Financial Overview
Designations for Gifts
Types of Gifts
10%
25%
22%
44%
58%
3%
9%
21%
5%
3%
PATIENT CARE
INDIVIDUALS
BUILDING
AUXILIARY
TECHNOLOGY
CORPORATE / BUSINESSES
ENDOWMENT
FOUNDATIONS
DISCOVERY
OTHER SUPPORT ORGANIZATIONS
In fiscal year 2008, Rady Children’s Hospital Foundation raised $17,696,840. Of that, $12,625,346 was
from cash donations, $4,981,494 represents pledges and $90,000 represents new irrevocable planned gifts.
Reaching New Heights
Keeping our covenant of hope and healing for children.
R
ady Children’s Hospital-San Diego has embarked on a bold new course to keep its covenant of hope and healing for our region’s
children and families and to contribute even more to the practice and science of pediatric medicine worldwide.
It’s a vision that calls for the highest levels of philanthropy and volunteer service ever realized by Rady Children’s.
It’s a vision that depends on you.
We are proud to share with you our priorities, our goals, and an update of our progress.
Our Priorities
Building
Breaking new ground. Reaching new heights.
To keep our covenant to care for our region’s children and families through the construction of
a new state-of-the-art Patient Care Pavilion.
Discovery
Our commitment:
To contribute to the discovery of cures and treatments for childhood disease and injury
through research and teaching — making a difference in our region, across the country and
around the world.
Technology
Our responsibility:
To ensure life-saving technology and equipment are always available for our
region’s children.
Patient Care
Our promise:
To provide medical care and services for needy children and support critically needed programs
that rely on philanthropy.
Our Goal
To raise critically needed funds to meet the current and future healthcare needs of the children in our community in these four crucial areas.
To learn more about any of these areas or to make a gift, please contact Rady Children’s Hospital Foundation at (858) 966-5804
or visit www.HelpSDKids.org.
Building Update
Our New Patient Care Pavilion
I
t is more than just a building. It is a promise – the promise of a healthier future for kids. Due to be completed in 2010, our new 279,000square-foot Patient Care Pavilion will help us keep our covenant with our region’s children. And we cannot wait.
Each year, more than 140,000 children are cared for at Rady Children’s or at one of our satellite facilities. This ever-increasing demand has
pushed our physical facilities beyond capacity. Without this new Patient Care Pavilion, funded significantly through philanthropy, children
may need to go outside our community — to Los Angeles and beyond — to receive care.
More than 50 percent of the children cared for at Rady Children’s have little or no medical insurance. The vast majority of these patients are
from working families where no private medical insurance is available. Rady Children’s provides safety net care for these children and the
most advanced care imaginable when a serious illness or injury occurs.
2007-2010: A Glance Back – A Vision of the Future
History in the making: On December 5, 2007, Rady Children’s broke ground on
the new Pavilion, here (from left) with Blair Sadler, President and CEO of Rady
Children’s from 1980-June 2006; current President and CEO Kathleen Sellick;
Ernest Rady; and our founding Executive Director and CEO from 1954-1980,
Richard Johnston.
A bird’s eye view: The Pavilion is progressing
on time and on budget. This is a look at the
progress in September 2008.
A great future for kids: What the new Patient Care Pavilion will look
like when it opens in 2010.
sm
Jessica Roel enjoyed a moment in the spotlight at the Children’s
Circle of Care Fall Reception in September. Surrounded by her
parents and some of the many caregivers who have helped her
throughout the years, Jessica shows that, when a family comes to
Rady Children’s, they are surrounded – literally and figuratively – by
a circle of caring support.
When Jessica was born – only 4 lbs., 1 oz. – her doctors struggled
to find out why she could not seem to hold down food. When she
came to Rady Children’s at age 2, they finally had a diagnosis:
Congenital Villous Atrophy, a condition that meant her intestines
were unable to process food. Jessica could not eat solid foods or
even drink from a bottle.
In fact, Jessica was not able to eat solid foods at all until she was 18
years old.
The team who helped Jessica came from nearly every area of the
hospital: HomeCare, Nursing, Infectious Diseases,
Gastroenterology, Allergy and Immunology, Otolaryngology, Pediatric
Intensive Care, Social Work, Child Life, Surgical Services, and
Emergency Services – all working together to help give a child not
just a life, but a lifetime.
Children’s Circle of Care is a part of the team, as generosity from
this extraordinary group of philanthropists funds equipment, research
and family services that are an integral part of this circle.
Today, Jessica is a wonderful, independent young woman. She has
been free from any sort of feeding tube for many years. She
graduated from Point Loma Nazarene University in 2002 and is a
professional writer. Her future is filled with promise.
Jessica’s story is dramatic and inspiring. But it’s important to know
that, no matter how simple or complex the diagnosis, Rady
Children’s builds a circle of compassion and hope around every child
who comes to us. Children’s Circle of Care’s vision is to ensure that
we are there for every child who needs us.
sm
T
he name really says it all: Children’s Circle of Care is a very special group of philanthropists who donate generously to form a ring of
support to help the patients and families at Rady Children’s.
Through annual gifts of $10,000 or more, Children’s Circle of Care members support a common mission: To advance the work of pediatric
healthcare, research and education to benefit children.
Although Children’s Circle of Care membership has international presence (see North American Leadership Conference information,
below), it is most meaningful to our members to know that all gifts benefit children right here in San Diego.
Children’s Circle of Care ensures that Rady Children’s is ready to help every child who needs us with the finest in medical services and
compassionate care.
North American Leadership Conference • Seattle: May 6-8, 2009
C
hildren’s Circle of Care has international importance, as well. Each year, members meet to hear from leading physicians and
researchers and to celebrate philanthropy in support of children’s hospitals.
The North American Leadership Conference in Seattle in 2009 promises to be an incredible opportunity for our 2008
members. Tom Brokaw is the honorary chair, and the entertainment is always amazing. San Diego members will join
with those from other Children’s Circle of Care hospitals to learn more about the difference we make, and to be
inspired by the children we help.
While our highest attention must be paid to the children in our hospital and – even wider – to our community, we can
also take pride that the work we do here will help children across the nation and around the globe.
Founding Sponsors
Rady Children’s gratefully recognizes
these North American Leadership
Conference and Gala sponsors:
Signature Sponsors
Phipps/McCarthy
The Ponzio Family
RE/MAX International, Inc.
Cille and Ron Williams
Silver Sponsors
Bard, Rao & Athanas Consulting Engineers, LLC
Goldman Sachs
The H.N. and Frances C. Berger Foundation
For more information about Children’s Circle of
Care, please call Katie Ward at (858) 966-8510.
When Ty Tuminello was born in January 2006, he had a
mysterious “inborn error of metabolism,” says Dr. Bruce A.
Barshop of Rady Children’s Biochemical Genetics and
Metabolic Diseases. He was eventually diagnosed with a
disorder named guanidinoacetate methyltransferase
(GAMT) deficiency. It is treatable with a prescription liquid
formula along with a low protein diet. With alteration of his
diet and supplementation, he made the transition from an
infant who could not raise his head to a happy, normally
developing and active toddler.
Corporate Support
Making compassion company policy.
San Diego businesses have always had a heart for children – and for Rady Children’s.
And for good reason.
Companies find that supporting Rady Children’s increases employee morale, enriches business opportunities and strengthens community
awareness. And there are so many ways to get involved. Business and corporations – large and small – can:
• Make a direct contribution.
• Develop an employee giving program.
• Form a walk team for the Shamu & You Family Walk (see below and page 10).
• Hold fundraising events.
• Sponsor Hospital events.
By raising at least $500 a year for Rady Children’s, companies become a part of our Miracle Makers Program, and those contributing
$5,000 or more annually are honored as members of our Miracle Makers Council (see pages 46-49).
For more information about how your business can take part, call (858) 966-5988.
COSTCO Wholesale: Miracle Millions
COSTCO Wholesale has raised millions of
dollars since they began fundraising for Rady
Children’s – more than $1 million in May 2008
alone. Not only do they sponsor events, such
as golf tournaments and business shows and
sell miracle balloons, the company matches a
portion of all gifts.
“Raising funds for Rady Children’s is a special
honor for all of us at COSTCO because it truly
is a team effort. Everyone – employees and
customers – is reaching out to make a
difference in the lives of children,” says Bob
Hicok, Senior Vice President.
The Second Annual SeaWorld Shamu & You Family Walk for Rady Children’s was a whale of a good time:
More than 2,000 participants (nearly triple from last year’s event!) gathered in October to benefit Rady
Children’s. Walkers came from every part of our community, including 122 members of the team from
presenting sponsor San Diego County Credit Union. Nearly 90 teams helped raise more than $86,000 to
help the children and families here at the Hospital.
Community Involvement
Friends helping friends.
It feels so good to know you’ve made a difference in the life of a child. That’s why it’s no surprise that individuals, clubs and groups of
friends help raise money for Rady Children’s.
Making Fundraising… FUN!
The impact of support on the Hospital is serious, but getting there is the fun part! Events range from bake sales and dance marathons to toy
drives. Best of all, community groups love the way events bring everyone closer together, joined in a new spirit of philanthropy that makes
everyone feel good!
By raising at least $500 a year for Rady Children’s, individuals and community groups also become members of our Miracle Makers
Program (see pages 47-49).
For more information about how you can help, call (858) 966-5988.
So Many Ways to Help!
Here are just a few examples of how members of our community are stepping up to help kids:
Max & Jake’s Big Race
Max and Jake’s Big Race was started by Jerilyn Hammerstrom and Paula Cook, the mothers of Max and Jake. They were inspired by the
care their boys received at Rady Children’s Heart Institute and are grateful for the opportunity to give back. The 2nd Annual Max and
Jake’s Big Race 5k Trail Run and 1-Mile Walk will be held on February 22, 2009 at Mission Trails Park. Proceeds benefit Rady Children’s
Heart Institute. The 2008 race had more than 500 runners and raised more than $38,000 for the Heart Institute.
DS Action
DS Action includes parents, grandparents, doctors, educators, registered nurses, social workers and other business professionals interested in
improving the quality of life of all people with Down syndrome. DS Action worked to establish the Down Syndrome Center at Rady
Children’s (see page 9), where all children with Down syndrome would have equal access to recommended evaluations, referrals and
intervention services.
Friends of Scott
The Friends of Scott Foundation raises funds and offers programs to help children with cancer and their families. They donate arts and
craft projects, volunteer to read to patients, and support the parent support group: Lechey Café and the teen support group: SOMBFAB
(Some Of My Best Friends Are Bald). They also host the SOMBFAB Prom and made a $150,000 gift to support the Bone Marrow
Transplant Playroom and the Wellness Center in the new Patient Care Pavilion (see page 9).
Dale Donnelly Memorial Golf Tournament
The 5th Annual 2008 Dale Donnelly Memorial Golf Tournament was held on August 21 at the Riverwalk Golf Club to celebrate the life of
Dale Donnelly, a friend and icon in the San Diego marine industry. Businesses and organizations partner to raise funds for the H.O.P.E.S.
(Hematology/Oncology Parents Extending Support) program in the Cancer Care Center at Rady Children’s.
You can specify that the funds you raise go to a specific area of the Hospital (like all of the wonderful
community groups profiled above) OR simply donate to our Patient Care Fund. That means that your gifts
go to support the highest and most urgent needs of the Hospital.
Rady Children’s Miracle Makers
Raising funds. Raising awareness. Raising hope.
A partnership between Rady Children’s Hospital Auxiliary and Corporate and Community Development, the Miracle Makers program helps
Rady Children’s honor those of you who give so generously of your time and resources.
Miracle Makers are individuals, clubs, businesses or even groups of friends who hold fundraising events for Rady Children’s, raising at
least $500 annually.
Miracle Makers Council: Going the Extra Mile
Can you do more? Miracle Makers who raise $5,000 or more become a part of the Miracle Makers Council and enjoy some extra-special
complimentary benefits:
• Institutional membership in the Miracle Makers Council.
• Invitations to Miracle Makers events and Rady Children’s Annual Meeting.
• Mention in Union-Tribune Kids’ NewsDay and Enlace recognition ads.
• Rady Children’s Annual Report recognition.
• Listing in the credits of annual telethon broadcast.
And there’s more. Corporations and organizations that have each raised $15,000 or more annually are honored at our yearly Miracle
Makers Gala.
Miracle Maker Council Members are shown here in COLOR.
Abbott Fund Matching Grant Plan
Ace Hardware
Ace Parking, Inc.
ACI Sunbow, LLC
American Legion Auxiliary Unit #853
American Legion Post #853
Amgen Pac-Match Gift Program
Barnes & Noble
Barona Band of Mission Indians
Brigantine Family of Restaurants
Bumbleride, Inc.
Baskin Robbins
AMN Healthcare
Bassett Furniture Direct
Bayview Rebels Miracle Makers
Ben Ziri Caravan #218
Benchmark Commercial
Insurance Services, Inc.
Bernstein Global Wealth Management
Bill Blass New York
Burger Construction
Bycor General Contractors
Adelaide's Florists and Decorators
AdoptMe2000
Advanced Bionics
Aetna Foundation, Inc.
Aetna Giving Campaign
Anesthesia Service Medical Group
Aflac
AJ's Playhouse - CHANNEL 933
M.R. Aron Company, Inc.
Anheuser-Busch Companies, Inc.
Anshen+Allen
API Software, Inc.
ARINC Incorporated
Alignment Express
Alliance Bernstein
Alliance Bernstein Foundation Fund
Allstate Giving Campaign
Alpine Squares
Altrusa International, Inc. of San Diego
American Academy of Child &
Adolescent Psych
American Academy of
Dermatology
Associated General Contractors
of America
AT&T Services, Inc.
Auntie Anne's Soft Pretzels
Auto Anything
Bimbo Bakeries USA
AVID-Mount Carmel High School
Ayres Advisors
Blue For Kids, Inc.
Blue Ocean Imports
Bluewater Pool-Spa
Bonita Optimist Club
Az Pac
Bacardi
The Bahia Resort Hotel
American Dairy Queen
Corporation
Baja Pump USA, Inc.
Bakbone Software, Inc.
Bank of America Matching Gifts Program
Banning, Micklow & Bull, L.L.P.
American Legion Auxiliary Post #149
Barefoot Wine and Bubbly
American Bathtub Refinishers
BioMarin Pharmaceutical, Inc.
The Bishop's School
The Blanchard Foundation
Blockbuster Video
Bonsall Petroleum Construction, Inc.
Booz Allen Hamilton, Inc.
Borders Book Store
Bosa Development California, Inc.
The Brees Dream Foundation
Cabrillo Credit Union
Café Valley
Calico Brands
California Coast Credit Union
California Credit Union League,
San Diego Chapter
Capital Growth Properties
Cardinal Health
Cardinal Health Foundation
Carley Copley's Angels
Carlsbad Strawberry Company
CarMax Auto Superstores, Inc.
Cars 4 Causes
Cary & Cary
Casa Blanca Salon and Spa
Cass Construction, Inc.
Castle/Breckenridge Management, Inc.
Casual Crafters
Cathedral Catholic High School
CB Richard Ellis
Brierton, Jones & Jones, LLP
The Miracle Makers Mission is to encourage, support and recognize individuals, organizations and
community groups who demonstrate philanthropy in support of Rady Children’s Hospital-San Diego.
Celgene
Celmol, Inc.
Centara Capital
Charity Ball
Charlotte Russe Holding, Inc.
Chehab & Friends
CHERS
Chick-Fil-A
CHIfund
Children's Specialists Foundation, Inc.
Chula Vista Police Department
Church of Latter-Day Saints
Redhawk Laurels
Circus Vargas
City National Bank Private
Banking Services
Clark Realty Builders, LLC
Clear Channel San Diego
CO-OP Financial Services
Coast Highway Photography
Coastal Die Cutting
Cochlear Americas
Cognex Corporation
Coldwell Banker, Ocean Beach,
Point Loma
Community Service
Association/SD City Schools
ConAgra Foods
Concepts Insurance
Consistent Tee
Constant Companions In-Home, Inc.
Contract Services
Control Contractors
Cornerstone Machining, Inc.
Corporate Logo Wear
Corporate Management Inc.
COSTCO Wholesale
The Country Friends, Inc.
County of San Diego
DJO, Inc.
Domino's Pizza of San Diego
The Dale Donnelly Memorial
Golf Tournament
Dreams Do Come True
Dreyer's Grand Ice Cream
DS Action
Duke Energy Foundation
Dynalectric Company
DZ Pharmacy Management, Inc.
East County Juniorz
East Lake Optimist Club
Eastlake Petroleum
ECHO of Northrop Grumman
ECP Commercial Distribution
Electronic Control Systems
Eli's Food & Wine Marketplace
Employees Charity Organization
of Northrop Grumman
Energy For Others
Escondido Recreation On Track Program
Essential Consulting, LLC.
Express Personnel Services
Extra Point Foundation
Farwest Insulation Contracting
Favorite J
FBI Recreation Association
FedEx Corporation
A Few of Our Favorite Things
Fidelity National Title
Fitness Together Del Mar
Fleming's Prime Steakhouse & Wine Bar
Cubic Corp.
CUSO Financial Services
Galderma Laboratories, L.P.
Arthur J. Gallagher & Company
Cycle Visions
Cymer Inc.
Garden Communities
GE Capital Solutions
Genentech
General Mills
Georgia-Pacific
Del Mar Thoroughbred Club
Girl Scout Troop 6044
Del Sol
Deloitte & Touche, LLP
Delta Delta Delta Alumnae Chapter San Diego
Desert Auto
Glaceau
Health Care Group
Heinz North America
Hereford Quality Food Products
The Hershey Company
Hitachi Home Electronics
(America), Inc.
Hoehn Motors, Inc.
Hotel Del Coronado
HUGS
Huish Detergent, Inc.
Humphrey's by the Bay
Hyundai Motor America
Ikaria
Imperial Beach Fire Department
Imperial Capital Bank
India Equity Partners
Management Subsidiary
Infantino, LLC
Inland Federal Credit Union
Intero Corp Holdings dba
Texas Apt Buyers
Friendship Quilters of San Diego
Frost Hardwood Lumber Co.
Fuller Ford & Honda
Disguise
Divine Pasta Company
Dixieline Lumber Home Centers
HD Supply
First Future Credit Union
Fish & Richardson P.C.
Credit Union Car Club
Credit Unions for Kids
Creststone Group Baking Company
Diageo
Diageo North America-Arizona
Dimon Foods
Discount Tire Co., Inc.
The Haunted Trail
The Firehouse Brewing Company
Crafty Productions, Inc.
Credit Suisse Securities (USA) LLC
Davidson Communities
Davis Elen Advertising
Del Mar Jockey and Thoroughbred Club
Harley Owners Group Toy Invasion
Integrated Pain Specialists
Integrated Sports Marketing
IHOP
Financial 21 Community
Credit Union
Foresters
Foster Farms
Frazee Enterprises
Freedom Voice Systems
FreeLife International, LLC
Friends of Scott Foundation
Cox Communications San Diego
Cox Kids Foundation
Grubb & Ellis, BRE Commercial
H.G. Fenton Company
H2A Architects Hawkins Hawkins
Anderson, LLP
Haight, Brown & Bonesteel, LLP
Halomates
Harbor Island Yacht Club
Golden Corral #2415
Golden State Foods
Goldman Sachs Asset Management
Golf Galaxy
Good Guys Ace Home Center
Goodrich Rohr Employees'
Will-Share Club
Graphic Communications, Inc.
The Grand Del Mar
Granite Hills High School
Grossmont Schools Federal Credit Union
Intuit Foundation
Invitrogen Corporation
Irell & Manella Foundation
The Irvine Company
Irving Hughes Inc.
Isabella's Gift
Island Staffing
Island Tat
It's A Love Thing
J. H. Cohn LLP
The Jack in the Box Foundation
The Jackman Group
Jacquelin B Sweats
JAX Scaffold Systems, LLC
JBM Properties, LLC
John Russell Construction
Johnson & Johnson
Joy Charlotta Design
JTF Enterprises
Julez Bryant
JW Floor Covering, Inc.
Kay Jewelers
KB Toys Viejas Outlet
Keystone Roofing Inc.
Killion Industries, Inc.
Kiwanis Clubs of San Diego County
KMA Architecture & Engineering
Knightsbridge Asset
Management, LLC
Kobrand Corporation
Kohl's Cares for Kids
KPRI 102.1
Kraft Foods
L3 Communications Telemetry-West
La Costa Canyon Pop Warner Football
La Costa Heights Elementary School
La Costena Jumex Sun Vista
La Jolla Country Day School
La Lace
La Mesa Fire Department
La Mesa Village Merchants Association
La Playa Loving One Another
Lakeside Firefighters' Association
Lakeside Poultry Ranch
Lapides Asset Management, LLC
The Lapin Company
Las Manos del Artesano
Las Patronas
Laser Clinique
Ledcor Construction, Inc.
Legacy Building Services, Inc.
Legacy Partners Commercial, LLC
Leo Hamel Fine Jewelers
Liam's Fund for Neurosurgery
Libs Chiropractic Center, Inc.
Lightbulbs Unlimited
Lincoln, Gustafson and Cercos
Little Race for Little People
Lockheed Martin
The Lomas Santa Fe Group
Lombardi Contracting Corporation
Love's Country Stores & Travel
Stops #349
Luce Forward
Luce, Forward, Hamilton & Scripps, LLP
Lysinski & Associates PC
Macy's Inc.
MADCAPS 7th Grade Class
Madison Leather
Magnus Construction
Marriott Businesses
Matt's Caddy Shack
Max and Jake's Big Race
MBE, A UPS Company
McCarthy Building Companies, Inc.
The McGraw-Hill Companies - Employee
Giving
MD7, LLC
MediciNova, Inc.
Medicis Global Services Corporation
MedImpact Healthcare Systems, Inc.
Meketa Investment Group
Mellace Family Brands
Menish Productions
Merck Partnership for Giving
Merrill Lynch & Co. Foundation, Inc.
Microsoft Giving Campaign and
Matching Gifts
Mesa Distributing Co., Inc.
Midland Credit Management
Mike's Hard Lemonade
The Mikey Show - Rock 105 FM
The Paul Miller Company
Milton's
Miramar Federal Credit Union
Mission Federal Credit Union
Mission Valley Self Storage
Mission Ventures
Mog and Rue
Moms in Motion
Money Mailer, LLC
Montclare Painting and Decorating
Montgomery Middle School
Morrison & Foerster
Mount Carmel High School
Muscleman of Technology, LLC
Musicians On Call
Musick, Peeler & Garrett
National Charity League,
San Dieguito Chapter
Navy Federal Credit Union
NBC 7/39
Nestle - Power Bar
New Cars, Inc.
New City America
Porsche Club of America,
San Diego Region
Positive Adventures, LLC
Pout
Poway Valley Collision, Inc.
Powertrip, LLC
San Diego Wine Guild
San Diego Wine Storage
San Elijo Middle School
San Miguel Firefighters
Procopio, Cory, Hargreaves &
Savitch, LLP
San Pasqual Band
of Mission Indians
Project Linus/Altrusa
International-San Diego
Provide Commerce
Prudential California Realty
Pueblo Bonito Ocean Front Resort & Spa
Santee Lakeside Rotary
QUALCOMM Incorporated
Quick Dry Flood Services
Scrapbook Royalty
Scripps Memorial Hospital
Mothers of Twins
Quiring & Associates
Nicholas-Applegate Capital Management
Nielsen Construction Ca., Inc.
Rancho Financial Inc.
Rangoni Firenze Shoes
Nordson Corporation
North Island Credit Union
Northern Lights Coffee Company
Northern Trust Bank
Raymert Press, Inc.
RCP Block and Brick, Inc.
Odwalla, Inc.
OliverMcMillan, LLC
Origin Properties, LLC
Ortho-McNeil Pharmaceutical
Pacific Athletic Club
Pacific Carpets
Pacific Marine Credit Union
Palermo's
Panda Express
Panda Restaurant Group, Inc.
Par Electric
Park Haven Apartments
Francis Parker School
Pedal to the Park
Lance Pelky & Associates, Inc.
Pellegrino Properties
Penny Arcade, Inc.
Pepsi
Perini Building Company
Pernod Ricard
Peter Barron Stark & Associates, Inc.
Pfizer La Jolla
Pharmaceutical Research &
Manufacturers of America
A.L. Pheasant, Inc.
Phi Delta Epsilon
Phonak Hearing
Pillsbury Winthrop LLP
PIMCO
Pink Lagoon
Pioneer Porsche
Point Loma Credit Union
The San Diego Union-Tribune
Prematic Service Corporation, Nevada
Presidential Limousine
Price Enterprises, Inc.
Newman's Own, Inc.
Next Level Sailing
Neyenesch Printers, Inc.
Notre Dame Academy
NRG Music and Productions
Nth Generation Computing, Inc.
OC Design
Ocean Shores High School
Virtual Enterprise
San Diego Police Department
911 Dispatchers
San Diego Sockers
San Diego Unified School District
The Ralphs/Food 4 Less Foundation
Sara Lee Food and Beverage
Schreiber
Scott and Cronin CPAs
Scott Cameron Golf Designs
Scripps Ranch High School
SD Medical Federal Credit Union
SDA Security
San Diego Gas & Electric
SeaWorld of California, Inc.
Teammates for Kids Foundation
TGIC/RMDC of Arizona
Thurgood Marshall Middle School
The Thursday Club
Time Warner Cable
Tobin Landscaping, LLC
Todd Family Trust
Touching Lives Holiday Program
Tower Glass, Inc.
Trappings
TRE
Treasured Accessory
Tri West Healthcare Alliance
Triple-S Power Cleaning
Turner & Maasch
Tyson Foods
The US Grant Hotel
UBS Securities
Union Bank of Calif. Employee
Workplace Campaign
Union Bank of California Foundation
Unique Treasures by Alice
United Nurses of Children's Hospital
US Bancorp Foundation
SEIU/NAGE Local 5000
Charitable Foundation
USA Federal Credit Union
RE/MAX Associates
RE/MAX International
RE/MAX RB Ranch & Beach
Reckitt Benckiser
Sempra Energy
SENTRE Partners, Inc.
Shalom Baby of San Diego
Valero Energy Corporation
A.O. Reed & Company
Regency Realty Group, Inc.
Regents Bank
Sigma Alpha Epsilon - CA Alpha Gamma
Sigma Chi Fraternity – SDSU
Regional Law Enforcement
Teddy Bear Drive
Relaxx Dry Cleaning
RFT Management and Development
Rice Hall James & Associates, LLC
Rite Aid Corporation
Ro Ultratec USA, Inc.
Rohr School
Roll Giving
Rotary Club of Del Mar
SkinMedica, Inc.
Skyway Luggage
The SoCo Group Inc.
Sons of the American Legion #149
Sony Computer
Entertainment America
Sorrento Valley Children's Center
Souplantation
Southern Wine & Spirits of AZ/CA
USA Freestyle Karate
Valhalla High School
Van Kampen Investments, Inc.
Vanier Industries
Verizon Foundation Matching
Incentive Program
ViaSat
Victory Pharma, Inc.
Viejas Enterprises
Vista Optimist Club Foundation, Inc.
Vocational Training Institutes, Inc.
Wachovia Corporation
Wal-Mart Stores and SAM'S Club of
San Diego and Imperial Counties
Southwest Airlines
Spinner Toys and Gifts
Sprites
Starbucks
StarRise Creations
Step Up Theatre
Wall Décor
Steren
Stiefel Laboratories, Inc.
Wellpoint Foundation/Assoc.
Giving Campaign
Saks Fifth Avenue
Salomon Construction, Inc.
Subway
Wells Fargo Bank
Sullivan Moving and Storage
San Diego Association of
Health Underwriters
San Diego Chargers
San Diego Charity Cup
San Diego County Credit Union
Summers Laboratories, Inc.
Sunnyside School - Kids Giving
to Kids
Wells Fargo Community
Support Campaign
Wescom Credit Union's
WeCare Foundation
Sunroad Enterprises
The Westin Horton Plaza
Sunset Parking Services, LLC
Supercuts
Willis M. Allen Company
Wilson Creek Winery & Vineyard
Wiz Marketing
XE Capital Management, LLC
Round Table Pizza
Roy's Restaurant San Diego
Russell's Jewelers
S.M.I Santourian Manufacturing, Inc.
Sacred Heart Academy of Ocean Beach
Sahale Snacks
San Diego Fire-Rescue Station 10
San Diego Fire-Rescue Station 17
San Diego Harley Davidson
Sushi On A Roll
Sutherland Management Group
San Diego Ice Arena
SweetPea Baby, Inc.
San Diego Junior Theatre
Sycuan Band of Kumeyaay Indians
San Diego Metropolitan
Credit Union
San Diego National Bank
San Diego Padres
Tali G
Talking Rain Beverage Company
San Diego Police Department
WaMu, now part of Chase
WaMu, now part of Chase,
Employee Giving Program
Watson Wyatt and Company
WD-40 Company
Young's Market Company, LLC
YTB Travel Network
Zale UTC
Zouvas Investment Group
Tarantino Gourmet Sausage
Tasta Group, Inc.
Taybear, Inc.
When you meet 2-year-old Amelia,
what you notice is that she likes to
wear mismatched shoes. What you
don’t see is that she was born with a
rare congenital heart defect called
Truncus Arteriosus. She had openheart surgery at Rady Children’s
when she was 5 days old. She spent
six weeks in the Neonatal Intensive
Care Unit (NICU) recovering while
her twin sister, Sophia, who had a
less serious heart defect (Tetralogy of
Fallot), was at home. Sophia had her
own open-heart surgery at 5 months.
Both girls are doing well – with
energy to spare. Only the scars that
run the length of their small chests
hint at their medical history.
For more on Rady Children’s Heart
Institute, please see page 25.
Rady Children's Hospital Auxiliary
Rady Children’s Hospital Auxiliary actually began a full year before the Hospital opened its doors in 1954. Ever since, this dedicated group
of volunteers has strived to help Rady Children’s meet each new challenge.
Units: The Heart of the Auxiliary
Keeping the beat of this diverse group is the Auxiliary’s 22-unit membership, which spans all San Diego County and Southern Riverside.
Every year, the units work independently on an amazing array of creative fundraisers and advocacy issues. Together, they orchestrate
citywide events, such as Union-Tribune Kids’ NewsDay, Fantasy on Ice and a winter gala.
The Auxiliary is also a vital component of the Miracle Makers program (pages 47-49), helping groups of all sizes to reach out and help kids.
Rady Children’s Hospital Auxiliary Board
of Directors 2007-2008
*President
*President Elect
*Secretary
*Treasurer
*Education VP
*Fund Development VP
*Membership VP
*Unit Council VP
*Ways & Means VP
*Miracle Maker VP
Past President &
Auxiliary Gala Co-Chair
Advocacy
Assistant Treasurers
Norma Rascon de Yates
Angela Wachtmann
Joyce Knott
Lynn Nunez
Harriet Bossenbroek
Judy Carlberg
Eileen Edwards
Kathy Sullivan
Natalie Emerson
Heidi DeBerry
Auxiliary Meeting Coordinator
Chaux Talk
Leadership Development
Hospital Liaison
Historian
Publicity/Website Director
Fantasy on Ice
Union-Tribune Kids’ NewsDay
Auxiliary Gala Co-Chair
Marilyn Tobin
Margaret Todd
Meighan Gallavan
Kierstin Cahill
Sherry Beckhart
Karin Whiteley
Janis Takahashi
Rina Podolsky
Karen Haak
Catherine Harman
Sooz Noll
Michele Prescott
Maureen Sage
Rady Children’s Hospital Auxiliary Board of
Directors 2008-2009
*President:
*President Elect
*Secretary
*Treasurer
*Education/Advocacy VP
*Membership VP
*Unit Council VP
*Ways & Means VP
*Miracle Maker VP
*Communications VP
Past President
Auxiliary Gala
Assistant Treasurer
New Unit Coordinators
Auxiliary Meeting Coordinator
Leadership Development
Hospital Liaison
Historian
Fantasy on Ice Chair
Union-Tribune Kids’
NewsDay Chair
Angela Wachtmann
Michele Prescott
Maureen Sage
Lynn Nunez
Rina Podolsky
Sherry Beckhart
Sue Fledderjohn
Harriet Bossenbroek
Karen Haak
Karin Whiteley
Rowena Treitler
Meighan Gallavan
Natalie Emerson
Heidi DeBerry
Amanda Ecoff
Kathy Sullivan
Pam Caldwell
Joyce Knott
Vivienne Adibi
Jo Evans
* Executive Committee
*Executive Committee
2007-2008 President
Angela Wachtmann
2008-2009 President
For more information on joining Rady Children’s Hospital Auxiliary, please call (858) 966-5887 or visit www.rchsd.org.
Making a Real Difference: 2007-2008 Areas of Designation
Funds raised by Rady Children’s Hospital Auxiliary helped patients and families throughout the Hospital. In fiscal year 2008, the nearly $7
million raised was designated to the following areas:
Autism Intervention Center • Cancer Care Center • Chadwick Center for Children and Families • Craniofacial Division
Diabetes/Endocrinology Division • Ernest Hahn Critical Care Center • Heart Institute • Highest and Greatest Needs
Orthopedics Division • Pediatric Cancer Research • Trauma Department
Charity Ball
Raising more than $400,000 to benefit Surgical Services at Rady Children’s, the 99th
Anniversary Charity Ball lived up to its theme. It was, in a word, “Unforgettable.”
We honor those who led this extraordinary event:
The 99th Anniversary Charity Ball Committee
Phyllis Snyder – Ball Chairman
Leslie Dupree
Kathy Kim
David Siccardi
Clarice Perkins – Co-Chairman
Mari Fink
Wendy Ledford
Michael Taylor
Dulie Ahlering
Chris Fontana
Roxi Link
Marilyn Tobin
Carol Berardino
Joy Frye
David Nelson
Carrie Vilaplana
Betsy Boaz
Nancy Garrett
Chris Ong
Sandy Walrod
Betty Brayshay
Alison Gildred
JoEllen Parsons
Nell Waltz
Deni Carpenter
David Gillig
Marcia Piper
Carol Webb
Carol Chang
Bonnie Hage
Lauren Root
Cathy Webster
Liz Copley
Susan Houser
John Rush
Judy Willoughby
Marilyn Cornwell
Amy Huth
Marilyn Sawyer
Jane Wilson
Carol Damon-Scherer
Linda Katz
Mary Schrubbe
Penny Dokmo
Debi Kelly
Kathleen Sellick
Charity Ball Turns 100!
The 100th Anniversary Charity Ball, “A Centennial Celebration,” will be held Valentine’s Day, February 14, 2009. It’s quite an
anniversary for San Diego’s longest-running and most prestigious philanthropic event. This is a formal, black-tie event held each
year at the Hotel del Coronado, attended by more than 800 generous San Diegans each year.
This year, rather than having one Chair, the event will be hosted by all the past Chairmen. Look for all the details in our next issue
of Rady Children’s Magazine.
Volunteer Services
Volunteers give the most precious gift of all: Their time. Rady Children’s is proud to honor
this year’s Volunteers of Excellence – and every volunteer who made the time to help the
children and families at Rady Children’s.
For 37 years, Carmen Ratner
has stood in the Orthopedics
Department hallways ready to
help. Even now, at age 86, as
one of Rady Children’s
longest-serving active
volunteers, she’s there for
families in need.
Volunteers of Excellence
President’s Award
Jane Peterson
The Tom Lafleur Junior Volunteer Award
Eric Rubenacker and Sarah Shearer
She stood ready during a
recent clinic when 10-year-old
patient Francisco Varela
needed her.
New Volunteer
Mallory Highhouse
“He wants to know when he
can play soccer again.”
Ratner translates the boy’s
question for the physician,
and then delivers the bad
news: Not yet. Though the
exchange seems simple, the
medical staff and the patient
are both delighted Francisco
and his family understand.
Volunteers of Excellence
Joshua Luskin, Erin Yeates and Terry Powell
Team Spirit Award
Karen Collica, Michelle Chen, Sasha Ducey
and Kia Gaither
Corporate and Community Volunteers
National Charity League – del Norte Chapter.
Carmen, a native San Diegan, grew up bilingual and learned medical terms from her
physician mother, who trained in Guadalajara. Her family was deeply involved in the
community especially the arts, she played viola for San Diego County Symphony.
With her husband, Seymour, she raised three daughters, and after they left home she
started volunteering full-time, she explains, “I wanted something to keep me busy.”
Rady Children’s honors Carmen for her selfless gift to the cause of healthier children.
Rady Children’s Volunteer Services Department Mission
The Mission of the Volunteer Services Department is to enhance and support the services of Rady Children’s Hospital through the
contributions of trained volunteers in a caring environment. Volunteer Services is dedicated to providing the highest possible quality of
service while at the same time respecting the dignity, individual differences and cultural diversity of our patients, families, staff and the
communities we serve.
Volunteers donated 41,284 hours of time in fiscal year 2008. That’s the equivalent of a $774,901 gift to
Rady Children’s (based on the dollar amount established by the Independent Sector).
The Peckham Family at the opening of 2006-2007 Fantasy on Ice. Nancy
Peckham (center) is flanked by her two sons, Michael (left) and Bruce. At
the far left is Michael’s wife, Lisa, and their two younger children, Bradley
and Amy. Eldest son, Matthew (below) was away at college.
Gifts that Inspire
The Peckham Family
The Peckham family has been a part of the Rady Children’s family
for many years. Now, with their latest gift, the Peckham legacy will
touch the lives of new generations of children and their families.
Gifts from the Peckman family totaling $10 million will support cancer
and blood disorder programs and construction of the new Patient
Care Pavilion. In recognition of the Peckham family’s extraordinary
generosity, the Hematology/Oncology program at Rady Children’s
will be named the Peckham Center for Cancer and Blood Disorders.
The Peckham family spans four decades of caring for and about the
children of San Diego, beginning with Nancy and Peter Peckham’s
involvement in 1966. But perhaps their most personal experience
occurred when their grandson, Matthew (left), was diagnosed with
cancer in 1994. Matthew is now a junior at Santa Clara University.
Matthew’s parents, Michael and Lisa, have made an incredible
difference in their own right. Lisa founded the Parent Liaison
program in our Cancer Care Center and later began H.O.P.E.S.
(Hematology/Oncology Parents Extending Support) and Michael has
become a dedicated leader through his role as a trustee of Rady
Children’s Hospital Foundation Board.
Beyond providing needed funds, the Peckham family’s gifts
represent an enduring commitment to bettering the lives of children.
They are a shining example of what makes up the heart and soul of
Rady Children’s.
Gifts that Inspire
The Viterbi Family
“What makes Andrew and Erna Viterbi
so remarkable is their profound
dedication to making the world a better
place for children,” says Kathleen
Sellick, President and CEO of Rady
Children’s. “The Viterbis continue to
demonstrate that their passion for
children truly comes from the heart. We
are deeply grateful for their generosity.”
This generosity has come in the form of
$6 million in gifts from the Viterbi Family
Foundation of the Jewish Community
Foundation of San Diego that will help
fund construction of the new Patient
Care Pavilion at Rady Children’s and
development of the new
Hematology/Oncology Care Center. In
recognition of this generous
philanthropy, the outpatient clinic in the
new Hematology/Oncology Care Center
will be named in honor of the Viterbi
family.
The co-founder of Qualcomm, Inc.,
Andrew J. Viterbi is perhaps best known
for inventing the Viterbi Algorithm, the
basis of all of today’s cell phone
communications. Last year, Dr. Viterbi
received the National Medal of Science,
the nation's highest honor for science
and technology.
Dr. Viterbi married Erna Finci in 1958.
Among other commonalities, they
shared a dramatic entry into a new land.
During World War II, Erna, her brother
and parents fled Sarajevo, Yugoslavia
as the German army invaded. The Finci
family escaped to Parma in Italy, then
Switzerland until they finally set out for
California in 1950. The couple has three
children, Audrey, Alan and Alexander.
“Erna and I hope that, by contributing to
the construction of the Patient Care
Pavilion and the Cancer Care Center at
Rady Children’s, we can improve the
lives of the children in our community
who need it most,” says Andrew, “Those
who require expert medical care to not
only survive, but thrive.”
Gifts that Inspire
Fresh Start
Teenager Bryttany Armstrong got – in every
way – a Fresh Start last year. Born with a rare
syndrome that severely disfigured her face and
skull, Bryttany was ready for a new beginning.
She was ready to bloom.
It is for children like Bryttany that Fresh Start
Surgical Gifts volunteer physicians and medical
professionals open their hearts. They offer topnotch medical care, regardless of the patient’s
ability to pay, to free kids from the physical
shadows of disease, abuse, birth defects or
traumatic accidents.
Now, Fresh Start itself is blossoming. Through
a gift of nearly $2 million, the non-profit has
teamed with Rady Children’s to operate a clinic
near the Hospital. Leading Fresh Start’s efforts
is prominent plastic surgeon Dennis Nigro, M.D.
Bryttany’s transformation began with her first
surgery at age 5 with Steven Cohen, M.D,
Rady Children’s Director of Craniofacial
Services and chief of Plastic Surgery. By age
14, her condition had worsened, so Dr. Cohen
enlisted Fresh Start. Her surgery was long and
complex, her recovery painful and extensive.
What didn’t take long at all was for Bryttany to
blossom. She’s eager to start high school and
to be, as she says, “Just one of the girls.”
Gifts that Inspire
The Hervey Family
Matthew Hervey happily gives away money to
nonprofits in San Diego.
He considers it his duty to his parents’ legacy
and an honor to have the opportunity to give
away millions through the Hervey Family Fund at
The San Diego Foundation. Since 2000, Hervey
has helped steer support to hundreds of local
nonprofits – including $1 million to Rady
Children’s new Patient Care Pavilion.
“When you give your own money, you have
invested more of yourself. You make sure your
goals, and what you’ve worked for, become
reality,” says Hervey.
His parents, Jean Jessop Hervey and her
husband, prominent attorney James Edgar
Hervey, raised their five children to understand
that when people invest time and money into
their community, it strengthens the social fabric
for everybody.
“It wasn’t that Mom sat us down at the table and
said ‘You’re going to learn a lesson,’ it was
instead seeing what they did as an example for
what social responsibility is and can achieve,”
explains Hervey of his late parents’ legacy.
One of the Fund’s newest investments in the
region’s future is a $187,000 grant in conjunction
with Price Charities to Rady Children’s for a
healthcare workforce training program. The
program will build a job pipeline connecting
students from City Heights with career
opportunities in healthcare, and at the same time
fulfill the great need of all San Diegans for quality
medical workers in the future.
“These are grants that have a direct impact on
the lives of kids,” says Hervey of his family’s
many gifts to the Hospital, “That’s the advantage
of giving while you’re still alive, you get to see
the results and share the joy and celebration of
completion.”
Jean Jessop Hervey and James Hervey passed
on their passion for philanthropy (Photo courtesy
of San Diego Historical Society).
Gifts that Inspire
Patti and Doug Holmes
For Patti and Doug Holmes, their recent
$500,000 donation to the new Patient Care
Pavilion is really a gift to their children.
“It’s exciting to see the new building going up and
to know that all of our kids – my kids and
everybody’s kids – are going to be taken care of
because of all this progress,” says Patti, a
member of Children’s Circle of Care along with
her husband, Doug, President and CEO of
Holmes Land Development Corporation.
Gillian Copley and Mackenzie Holmes
When Rady Children’s Pavilion opens in 2010,
the Hematology/Oncology Playroom and
Classroom will be named in celebration of their
daughters, Stephanie, 15, an accomplished
equestrian, and Mackenzie, 12, a talented
actress.
The family first experienced the monumental
work that goes on inside the Hospital in the mid90s through the brave battle against leukemia
fought by Stephanie’s first best friend, Carley
Copley (the two girls are pictured here together
in 1995). Carley ultimately lost her fight, but her
name and her inspiring spirit live on through
Carley’s Magical Gardens and other vital parts of
the Hospital that aid and inspire others.
For the families lucky enough to have known and
loved Carley, the legacy of her friendship remains
vibrant in their lives. Stephanie and Mackenzie
remain great friends with the Copley family and
their children (pictured above are Gillian Copley
and Mackenzie in 2007).
The Holmes family continues to devote their time
and energy as well to the future of all San
Diego’s children. Doug sits on the Foundation
Board and serves as Stewardship Committee
Chair. “We are absolutely passionate about the
place,” he says.
Carley Copley and Stephanie Holmes
Gifts that Inspire
The California Endowment
The story is horrifying: Masked gunmen kicked down the door and kidnapped Michelle Renee and her 7-year-old
daughter, Breea. And, even when they were rescued, the nightmare continued. Although the legal process marched
on, Michelle and Breea were held hostage by the emotional trauma.
It was nine days later when a counselor from the Chadwick Center for Children & Families at Rady Children's
happened to see Michelle in a hallway, and they finally got the help they needed. “The Chadwick Center saved my
life,” says Michelle. “I will shout from the rooftops about what Chadwick has done for my life.”
Michelle and Breea’s story shows just why work of the Chadwick Center is so vital, and why the $111,060 grant from
The California Endowment is so important.
The funds will allow the Chadwick Center to expand access to quality mental health and child and family services by
using evidence-based practices. The Center already has a strong foundation with its comprehensive web-based
forum, the California Evidence-Based Clearinghouse for Child Welfare (www.cachildwelfareclearinghouse.org).
The Clearinghouse was worth investing in, explains Gwen Foster of the California Endowment, “They wanted to take
it to the next level, to really put this information into the field.”
Now with their attackers imprisoned, Michelle has become a public speaker and victims’ advocate. Her book, Held
Hostage, highlights the life-saving aid they received from the Chadwick Center and is being made into a movie.
Fantasy on Ice
Now through Sunday, January 4, 2009
The Ice Rink at Horton Square is presented by the Auxiliary to benefit Rady Children’s Cancer Care Center. Hours: 10 a.m. to
10 p.m. daily (except Thanksgiving and Christmas Day).
Contact the Auxiliary at (858) 966-5887 or visit www.fantasyonice.kintera.org
100th Anniversary Charity Ball: A Centennial Celebration
Saturday, February 14, 2009, Hotel del Coronado
Hosted by its former Chairmen, San Diego’s longest-running and most prestigious philanthropic event, is celebrating its 100th
anniversary on Valentine’s Day.
Contact Dawn Ivy at (858) 966-7793 or [email protected]
11th Annual Women’s Financial Symposium and Luncheon
Thursday, March 5, 2009, Hyatt Regency La Jolla at Aventine
This symposium, presented by Rady Children’s Hospital Auxiliary Mabel Jessop Endowment Fund, focuses on financial and
investment issues of particular interest to women.
Contact the Auxiliary (858) 966-5887 or email: [email protected]
Miracle Mile of Quarters
Saturday, May 2, 2009, 7 a.m. – all day, in front of Rady Children’s
Join the Kiwanis Clubs of San Diego County for their annual red-carpet event, including pancake breakfast and barbecue
lunch. Open to the public.
Contact Dawn Ivy at (858) 966-7793 or [email protected]
Miracle Makers Gala
June 6, 2009, 6 p.m. to midnight, Hilton San Diego Bayfront
The Miracle Makers Gala is a San Diego tradition – a great party for a great cause.
The Faces of Rady Children’s
The Heart of a Hospital
This special Annual Report edition of Rady Children’s Magazine
provides a picture of our last fiscal year – the facts and figures,
activities and accomplishments, medicine and mission.
But the real story of Rady Children’s is told in the faces of the
children who come here, children like Amelia and Sophia,
both of whom had open-heart surgery before they were
6 months old. Looking at their shining faces, it’s easy to
understand why we do what we do. The best people, the
latest advances, excellence in care. At the very heart of
Rady Children’s, there is a child – and the knowledge
that to save a life at Rady Children’s is to give a child
a lifetime.
For more about Amelia and Sophia, please see
page 50. For more about Rady Children’s Heart
Institute, please see page 25.
Non-Profit
Organization
U.S. Postage
PAID
San Diego, CA
Permit #22
3020 Children’s Way
MC 5005
San Diego, CA 92123-4282
If you receive an extra copy of Rady Children’s Magazine,
please call Donor Services at (858) 966-7749
so we can reduce our mailing costs.

A look at the past. A vision of the future.

Transcription

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