EPI Matters - Epilepsy

EPI Matters
COMPASSIONATE
DEDICATED
PROGRESSIVE
LIFE SOLUTIONS
A successful partner for all individuals with developmental or acquired brain conditions
Vol. III Issue II
Fall/Winter 2015
You
Made It
Happen!
Salt City Walk | Over 300 walkers supported epilepsy awareness
and epilepsy services for Central NY in Long Branch Park, Syracuse
on July 11th. Together we raised nearly $24,000! Family-friendly
activities included face painting, inflatable skee ball, a DJ, Otto the
Orange, a team t-shirt contest, and more. Thank you for bringing
these smiles!
Camp EAGR and COAST | Children with epilepsy and their siblings
joined us at the YMCA’s beautiful Camp Weona from August 9th-15th
for another memorable year of Camp EAGR. At Camp, kids build
confidence, make friendships, and just have FUN! Camp COAST
also returned, which provides pre-vocational education as well as
traditional camp activities to young adults with epilepsy ages 18-25.
From the President
entrances into nursing homes and
to help individuals leave nursing
homes and live in the community.
Jeff Sinsebox, President, holds a
chicken after it had provided some
pet therapy to individuals with
traumatic brain injuries in our
Structured Day Program.
Significant changes are on the
horizon for people with brain
injuries in New York State. The
service system designed 20 years
ago is scheduled for termination
at the end of next year. Individuals
who receive services under the
current system will be folded into
Managed Long Term Care (MLTC).
There is great fear across the State
that these changes will have a
detrimental impact on this complex
and vulnerable population. Losing
the gains of community access,
choice, and deinstitutionalization
would be devastating.
Twenty years ago the New York
Department of Health (DOH)
created a waiver for people with
Traumatic Brain Injuries (TBI).
Its design was a comprehensive
strategy to prevent unnecessary
The program has been highly
successful assisting participants
to live in community-based
settings and achieve maximum
independence. These services
are used in combination with
traditional Medicaid services. The
successes of this program cannot
be overstated. Decades ago many
people were trapped in nursing
homes or out-of-state institutions
that were not well suited to the
needs of this population and were
a tremendous burden to tax payers.
This small but effective program
offers highly customized services,
specialized training, counseling,
and rental subsidies for people with
brain injuries.
New York State has proposed
many changes to the way it delivers
Medicaid services to specialized
populations. Over the past few
years, a gradual move towards
MLTC has occurred with the
intent being that improvements
in healthcare outcomes will result
through better coordination of
services.
The problem is that the change
as proposed offers no specialized
training, assessment, rent subsidy,
and accommodation for those
with brain injuries. The risk of
homelessness, nursing home
placement, and out of state
institutional placement will grow.
The risk of returning to the darker
places this population faced years
ago is very real.
What are we doing about it?
Our strategy as an agency is twofold. First, we are advocating on
a statewide level for people with
brain injuries. We have successfully
been a part of the slowdown of the
conversion through engagement in
conversations, in order to prevent
negative outcomes regardless of the
changes to the Waiver. The second
part of our approach is on a local
level. We have entered into the
delivery of MLTC services. If and
when the TBI Waiver folds into
MLTC, we will be able to continue
to serve the same individuals
through the new funding stream.
We will maintain the TBI specific
portion of our training and support
so that the transition to MLTC will
be as seamless as possible for the
people we serve.
The proposed changes are not
yet finalized. We will continue to
advocate on behalf of all individuals
with brain injuries in New York
to generate positive outcomes. We
believe regardless of how funding
streams change, individuals with
TBI need specialized services and
care. The staff that work with them
need specific trainings. We are
committed to continuing this effort.
For more information regarding
changes to the TBI Waiver or how
our Agency is responding, please
call Paul Akers, VP of Community
Services at (585) 442-4430 x2736.
to the following donors who have made a gift of $25 or greater during 2014 to Epilepsy-Pralid, Inc. This
list does not include special event donations. 2015 contributions will be published in the spring of 2016.
2014 3RD PARTY FUNDRAISER
EMC Corporation
Big Steps Enterprises LLC
APW Elementary PTSA
2014 ANNUAL CAMPAIGN
Al Sigl Community of Agencies
Mr. & Mrs. John R. Armbruster
Ms. Elizabeth S. Bagnardi
Mr. & Mrs. Barry Barone
Mr. & Mrs. James and Lisa Bianchi
Dr. & Mrs. James Burk
Mr. & Mrs. Michael T. Burns
Mr. Robert Celmer
Cleary Family Fund
Mr. Donald Cook
Cornell Construction Design
Mr. & Mrs. Alan Crouse
Mr. & Mrs. Donald Culeton
Mr. Brian W. Dahl
Mr. & Mrs. Robert A. Daitz
Dulinski Family Trust
El Rayess Architects
Mr. & Mrs. Herbert Erhardt
Mr. Lawrence Farrell
Mr. & Mrs. Tim and Karen Fay
Mr. Shawn Fischer
Mr. Scott Forsyth, Esq.
Ms. Peggy Fortune
Mr. & Mrs. Jason and Debra Garlock
Agnes Griffith, Ph.D.
Mr. & Mrs. Terence Griswold
Mr. & Mrs. James Grossman
Mr. & Mrs. David & Frances Hall
Ms. Carol Hammond
Dr. & Mrs. Joshua Hollander
Holley Pharmacy
Mr. & Mrs. Mark S. Janis
Dr. & Mrs. Robert Krall
Mr. & Mrs. Earl Kratzenberg
Mr. & Mrs. Kenneth R. Kraus
Mr. Donald Kusak
Mr. Troy W. Lafler
Dan and Jennifer Lesinski
Lockheed Martin
Mr. Robert Mack
Mr. & Mrs. Archilles Mafilios
Mrs. Carol Mandour
Mr. & Mrs. W. John Maxey, II
Ms. Jennifer O. Mayo
MediSked, LLC
Mr. & Mrs. William Mehls
Gary and Barbara Meiklejohn
Mr. & Mrs. Michael Mendick
Ms. Rosemarie Milliman
Daniel and Cheryl Moreno
Ms. Nancy Morrison
Ms. Linda Mosley,RN
Mr. & Mrs. Angelo Nole
Ms. Lisa Noonan
Mrs. Joan Norton
Mark and Barbara O’Brien
Mr. & Mrs. James & Barbara Peak
Ms. Samu Raj
Mr. & Mrs. David A. A. Ridings
Robert & Deborah Rosenfeld
Ms. Laura Sadowski
Mr. Gregory Sak
Mr. & Mrs. Karl Schwach
Mr. Rocca Segar
Mr. & Mrs. Elmer & Barbara Shuck
Mr. R. Judson Sloman
Robert and Norma Snyder
Synergy
Mrs. Shawn Tedesco
Thomas & Carolyn Langfitt Family Foundation
Thomson Reuters - Corporate Office
Mr. & Mrs. William Torpey
Ms. Lisa Towers
William and Laurie VanAllen
Ms. Lois Warney
Mr. & Mrs. Gerard Wenzke
Mr. & Mrs. Earl Westerlund
WWMM Associates
Dr. & Mrs. Thomas and Maura Wychowski
2014 BOARD DESIGNATED FUND
Mr. & Mrs. Michael T. Burns
Mr. & Mrs. Robert Danesh
2014 ROC THE DAY
Mr. & Mrs. Paul and Rosa Akers
Matt & Bernadette Barber
Ms. Meg Bertini
Mr. & Mrs. James and Lisa Bianchi
Bond Financial Network
Mr. & Mrs. Christopher Cebula
Mr. & Mrs. Robert Danesh
Mr. & Mrs. Stuart Gebell
Mr. & Mrs. Michael Goonan
Mr. & Mrs. Sean and Corinne Nicholas
Ms. Lisa Noonan
Ms. Erin O’Gorman
Ms. Theresa Panipinto
Ms. Carolyn Parr Slack
Mr. & Mrs. Jeffery Pettrone
Mrs. Stephanie Reh
Ms. Michele Stokes
2014 STEPHEN A. SEGAR SCHOLARSHIP
Mr. & Mrs. Gary Acker
Martino Flynn, LLC
Segar & Sciortino
2014 UNITED WAY DESIGNATION
Anonymous
Ms. Elizabeth Ansuini
Mr. Bernard Bakos
Mr. David Beato
Mr. & Mrs. Robert J. Bergin Esq.
Mr. & Mrs. Kenneth Bersani
Ms. Sandra Boening
Ms. Elizabeth Bower Thulin
Mrs. Virgina A. Braveman
Ms. Ann Buck
Mr. & Mrs. Philip Burrows
Ms. Jennifer M. Camp
Ms. Christine Caracci
Ms. Pam Carbone
Mr. Scott J Catlin
Mrs. Kimberly A. Chichelli
Ms. Danielle R Chiesi
Mrs. Heidi J. Colf
Ms. Sarah A. Coons
Ms. Brandy L. Coppini
Ms. Elizabeth S Curry
Ms. Victoria A DeLeon
Ms. Danielle R Dwyer
Mr. & Mrs. Steven H. Epping
Mr. & Mrs. Lawrence J. Fischer
Ms. Deborah Foster
Mr. Peter Lewis Gabak
Mrs. Kimberly W. Gangi, CPA
Drs. Lynn Liu & John Gassler
Mr. & Mrs. Stuart Gebell
Mr. & Mrs. Russell L. Godshalk
Dr. & Mrs. Robert Gross
Ms. MaryEllen Hall
Ms. Jennifer Harman
Mrs. Anne Hayes-Penner
Ms. Kim M. Huffer
Ms. Pamela J. Hunter
Mr. & Mrs. Paul Intini
Ms. Beth C Jackson-Dobbs
Mr. John Johnson
Ms. Kathleen Klaiber
Nicholas & Sarah Korba
Christopher and Julie Kulawy
Mr. Richard Lagiewski
Ms. Angela May Liberatore
Mr. Lawrence Lindsey
Mrs. Colleen J Lombardi
Ms. Karen J. MacDonald
Mr. & Mrs. William Magee
Mr. & Mrs. Paul F. Magliocco
Mr. & Mrs. Jason R. Maitland
Mr. Kenneth F. Mason
Mr. & Mrs. Robert Matthews
Mr. & Mrs. Paul & Janet Mawhinney
Ms. Nicole A. McArdle
Mr. & Mrs. Stephen McDonald
Ms. Grace McGregor
Mrs. Teresa A McMahon
Mrs. Colleen M. McWilliams
Mr. David C. Miller
Ms. Sarah Morey
Mr. & Mrs. Carl Morris
Mr. & Mrs. Tim Mykins
Mr. Kyle M. Norsen
Mr. & Mrs. Timothy O’Keefe
Mr. Robert J Parmele
Dr. & Mrs. Jeff Pelz
Ms. Johanna N. Perconti
Mrs. Maria L Perez
Ms. Judy Pfeifer
Ms. Nicole L Piegzik
Mrs. Jan Poletta
Mr. & Mrs. Ralph Privitere
Mr. David Rhein
Mr. David A. Richards
Mr. Michael J. Ritchie
Mr. & Mrs. Chad Roberts
Mrs. Donna Roessel
John and Patricia Rogers
Ms. Lori A. Salerni
Ms. Ada N. Santiago
Mr. David Shields
Ms. Sharon L. Smith
Mr. Timothy Stone
Mr. & Mrs. Greg and Alicia Tenbus
Mrs. Patricia W. Thompson
Mr. Kevin T Truax
Mr. David A. Tyler
Ms. Debbie Vecka
Rene P. Vecka
Mr. Christopher R. Wall
Dr. David D. Wang
Mr. & Mrs. Philip Warney
Mr. James Watters
Ms. Tammie Woody
Mr. Steve Wowk
Mr. & Mrs. Ronald Zauski
Ms. Joanne Zimmerman
2014 CAMP PROGRAMS
Anonymous
Al Sigl Community of Agencies
Annunciation Greek Orthodox Church
Matt & Bernadette Barber
Ms. Ann Buck
Dr. & Mrs. James Burk
Mr. Richard Calabrese, Jr.
Cornerstone Christian Academy
Mr. & Mrs. Donald Culeton
Cyberonics
Mr. & Mrs. Robert Danesh
Mr. Tom Davis
Ms. Gina M. DeCoste
El Rayess Architects
Mr. & Mrs. Albert & Charlotte Ellis
Epilepsy Foundation of Northeastern New York
Mr. Barney Eredia
Excellus Blue Cross Blue Sheild
Mr. Lawrence Farrell
Mr. & Mrs. Lawrence J. Fischer
Ms. Peggy Fortune
Mr. Mark Friedman
Dr. Marc Gaudette
Mr. Paul Gottlieb
Agnes Griffith, Ph.D.
Mr. & Mrs. John Himmelberg
Mr. & Mrs. Byron Horak
Mr. & Mrs. Mark S. Janis
Robert & Deborah Johnson
Ms. Tajuana L. Jones
Mr. & Mrs. Christopher Kane
Mr. & Mrs. Ronald Krukowski
Mr. & Mrs. Lewis Lamb
Ms. Patricia Landry
Lewis Tree Service Incorporated
Lundbeck
Mr. Michael J. Luton CPA, AAMS
M&T Charitable Foundation
Mr. & Mrs. Allan L. MacIntyre
Mrs. Carol Mandour
Mr. & Mrs. W. John Maxey, II
Ms. Jennifer O. Mayo
Dr. & Mr. Margaret & John McBride
Mr. Gary Mead
Mr. Andrew Meches
Mr. & Mrs. Michael Mendick
National Epilepsy Foundation
Ms. Anita Olsson
Mr. & Mrs. Paul Osborne
Dr. & Mrs. Jeff Pelz
Mrs. Carol Plotkin
Mrs. Elizabeth M. Pytlak
Mr. & Mrs. Thomas & Judith Reilly
Mr. & Mrs. David A. A. Ridings
Rochester Businessman’s Charitable Organization
Dr. Gerald & Maxine Rosen
Mr. & Mrs. Eric Samuels
Mr. John Schanbacher
Mr. Eric Schiff & Dr. Nancy Mudrick
Ms. Cynthia Shannon
Mr. & Mrs. Elmer & Barbara Shuck
Mr. Jeff Sinsebox
Mr. Allan Skerker
Mr Jeffrey Stage
Mr. John J. Stina
Mr. & Mrs. Larry Stuck
Mr. & Mrs. Joe Swiatkowski
Mr. & Mrs. Bill & Pat Ladd Thurston
Times Square Abstract
Upsher-Smith Laboratories
Mr. & Mrs. Paul Virkler
Ms. Stephanie Walker
Wegmans
STRUCTURED DAY KITCHEN
West Fire Systems, Inc.
YOUTH CONFERENCE
Birk Family Foundation
Segar & Sciortino
The Metzger Family
Mr. & Mrs. Robert Metzger
Dylan Parmele
Ms. Megan DeTaeye
Paige Graham
Loretta’s Salon and Spa
Eva Mae Sinsebox
Dr. & Mrs. James Burk
Sue Agat
Mr. Jeff Sinsebox
Frank Militello
Ms. Ruth M. Moody & Michelle M. Griffin
Terry Hooper
Ms. Jean M Zecher
Gina Scalzo
Ms. Kathy England
Tristan Hanna
Mr. & Mrs. Barry Ingalsbe
Jeanette Marie Greenwood
Steven and Laurie Berkowitz
William and Susan Brown
Jack and Marianne Cavallo
Dr. & Mrs. James and Donna Dispenza
Mr. & Mrs. Robert Graf
Mr. & Mrs. Larry & Yuk Ki Hayman
Ms. Maureen P. Hickey
Mr. & Mrs. John and Barbara Kopf
Ms. Rose Mary Kuppiewski
Daniel and Deborah Labulis
Mr. & Mrs. Joe & Diane Noffey
William and Kathleen Rodgers
Bruce and Antonina Ruppert
Ms. Margaret M. Ryan
Ms. Christine Sobotka
Ms. Marianne Trivison
Mr. George Suflita
Jeannette Suflita and Mike Buckley
KETO WELCOME KITS
Greater Rochester Health Foundation
Vincent Ognibene
Mr. & Mrs. Charles T. Ognibene
EEP Quality Group
In honor of
Walter F. & Patricia A. Rabitz
Ms. Lindsay Rabitz
Alex Acquino
Ms. Lori Facinelli
Mr. Thomas Noonan
Annabel Rider
Mr. Robert E. Capucilli
Callie Craik
CJ Irwin Company, Inc.
Randy Havens
Mr. & Mrs. James & Dana Payne
William Stone, Tom Duane,
Don Rogers, Stef Cugno,
Brian Hackleman, Gary Bell,
Rob Cady, and Chuck Weir
EMC Corporation
Charley and Don Cook
Tracy Williams
In memory of
Daniel Bayardi
Armand & Elizabeth Bayardi
Andrew Holynski
Mr. Lawrence Perras
David Lee
Mr. & Mrs. Joseph Lee
Ann Verostek
Mr. & Mrs. James Verostek
Dr. Michael Giordano
Mr. & Mrs. Eric Rennert
Barbara J. Mann
Mr. & Mrs. Ninyo Avram
Mr. & Mrs. Philip & Corrine Galuppi
Ms. Linda Tiff
Emily L. Osborne
Mr. & Mrs. Donald D. Osborne
Mr. & Mrs. Paul Osborne
Holly Mai & Cheryl Knowlton
Mrs. Sharon Andrews
Jane O’Dell Kotasek, Dr. Piltcher
and Dr. Erba
Ms. Elisabeth O’Dell
Jason Garlock
Ms. Barbara Garlock
Jeff Sinsebox
Ms. Laura Sadowski
Jill K. LeVesque
Mr. Warren H. Heilbronner
Julia Emerson
Steve & Colleen Goldstone
Kristyn Robertson
Postler & Jaeckle Corp.
Laura Hoh
Mr. & Mrs. Thomas Hoh
Libby Simson
Robert & Deborah Rosenfeld
Lindsay Randall
Mr. & Mrs. Randall
Lindsey Fraser & Carrie Morris
Mr. & Mrs. Donald Fraser
Mr. & Mrs. Carl Morris
Camp EAGR Counselors
Mark Williams
Mr. & Mrs. Alvin & Joan Williams
Charles Nagel
Ms. Katie Rahr
Chris Shea
Mr. & Mrs. Heath Gebell
Cody Makitra
Ms. Nancy A. Boyett
David and Kathleen Bruzee
Ms. Darla Christiaansen
Ms. Mary L. Clyde
Ms. Julie Foisy
Mr. & Mrs. Albert & Joan Foose
Ms. Norma Frarey
Michael & Marlene Garman
Mr. George Herren
Mr. & Mrs. Larry & Linda Mosher
Mr. & Mrs. Jeffrey & Deborah North
Ms. Kimberly Rouland
Ms. Bonnie Thomas
Ms. Carina Palmkvist
Mr. Rocco Fiannopollo
David Hooper
Mr. & Mrs. Charles Harste
David Burns, Jr.
Mr. Kevin Grooms
Ms. Roberta Jones
James and Margaret Lane
Ms. Sheila Quinn
Mr. & Mrs. Frederick and Ellen West
Ms. Valarie Evans
Mr. Stephen L. Johnson
Bruce and Carol Pietraszek
Ms. Karen M. Quinn-Cole
Mr. & Mrs. Daniel & Sandra Sopchak
Jeff Rolfe
Mr. & Mrs. Robert and Patricia McIlroy
Joanne Betrus
Mr. & Mrs. Michael and Marian Betrus
Mr. Charles Green
John A. Lester
Ms. Catherine Blackwell
Ms. Barbara Weidmann
Joseph Christopher Graffeo
Mr. Donald Pecor
Judith A. Speziale
Miss Frances Di Mitro
Mr. & Mrs. Charles Miller
Ms. Mary Ann Palozzi
Leslie J. Luddington Kelly
Thomas and Michele Barone, Jr.
Mr. & Mrs. James & Donna Carmichael
Mr. David Cooney
Ms. Margaret Costello
Mr. & Mrs. Joseph Gerthoffer
Ms. Ann B. Goss
Ms. Aileen Rita Harte
Dr. Donald M. Haswell
Ms. Shannon M. Heffron
Mr. & Mrs. James & Anita Heffron
William and Sally Holland
Miss Joan Kearney
Mr. David Kelly
Ms. Barbara Neukum
Ms. Barbara V. Stack
Mr. Terry Weston
Mr. Arthur Kelly
Suzanne & Everett Thorne
Louise Bongiovanni
Mr. & Mrs. Charles T. Ognibene
Makayla Van Dusen
Mr. & Mrs. Mahlon and Sandra Burroughs
Mary Anne Trouskie
Ms. Gina Herbert
Ms. Concetta R. Sanderson
Mary Gottlieb
Mr. Paul Gottlieb
Mary Michaud
Ms. Mary N. Angelotti
Mr. Roland Michaud
Mr. & Mrs. John & Karen Reed
Ms. Helen Staskus
Mr. J.O. Wright
The Word Christian Center, Inc.
Mildred & Bernard Siebert and
James Perry, Sr.
Mr. & Mrs. John C. Perry
Frank Rubino
Ms. Lucille Paliani
Patrick Osborn
Richard and Kristin Anderson
Pearl Cornelius
Mr. Ralph Palmer
Phillip Craig Gupton
Edwin & Geraldine Oftedahl, Jr.
Richard Calabrese, Sr.
Ms. Lisa Noonan
Robert Norton
Mr. & Mrs. H. Perry Bradley, III
Robert and Dianne Flaherty
Timothy and Robin Flaherty
Dr. & Mrs. Patrick and Clare Grisdale
Ms. Clarice Harvey
Mr. G. William Herbst
Ms. Eleanor W. Jones
Mr. Raymond W Klem
Ms. Esther H. Kubus
Thomas and Geraldine Lyons
Mr. & Mrs. David Merkel
Ms. Kathleen Michniewicz
Mr. Steven Smith
Ms. Marjorie Tellier
Mr. & Mrs. James and Judith Vaeth
Mr. & Mrs. Jeffrey & Lisa Wood
Roger Lamb
Mr. & Mrs. Larry & Lynda Munson
Sarah McKeown
Mr. & Mrs. Robert Johnson
Sheila Appleby
Mr. Henry McCartney
William Pfiffer
Francis and Joyce Budney
Iannuzo Memorial for Camp EAGR &
In Memory of Joan Tersegno
Ms. Virginia Alaimo
Brendan and Mary Hagan
Mr. & Mrs. Bruce Iannuzo, Esq.
Mr. & Mrs. Babak & Behnaz Kaypour
Mr. & Mrs. F.K. and G. Mc Alpin
Ms. Rosemarie Milliman
Mr. & Mrs. Mark Nunn
Mr. Lawrence Tuttobene
Mr. & Mrs. Paul L. Tuttobene, Sr.
We have made every effort to list names correctly. If there is an omission or error,
please accept our apology and let us know by calling Shaunta Collier-Santos, Director of
Development at (585) 442-6420 x2227 or by emailing her at [email protected].
ng
You Are Generous; We Are Accountable
How your 2014 contributions helped others!
2014 Expenses
General and Administrative
Population Served
2014 Revenue by Source
n $11,978,582 89%
Program costs to serve people
n $12,698,374
Medicaid
n $1,194,771 8.9%
General and Administrative
n $406,312
3.0%
Government Grants
n $280,458
Fundraising
n $382,114
Fundraising
2.8%
n $136,898
Other
1.0%
n $69,322
Other Grants
0.5%
Program costs to serve people
2.1%
92.7%
n 6,893 67.7%
Epilepsy Only Support
n 2,398 23.5%
Developmental
Disabilities
n 598
5.9%
Health Homes/Managed Care
n 294
2.9%
Traumatic Brain Injury and Nursing Home Eligible
Your support of EPI is not something we take lightly. We work diligently to make
every gift go where it’s needed most –to the people who turn to us for help.
General and administrative costs: 8.9% (*target 7%-12%).
Fundraising: 2.1% (*target 1-3%) of total expenses.
Surplus: $236,465, 1.7% of revenue.
Revenue Growth: 1.2 million due to the building and opening of the Slocum group home.
*Target range used is from the recommendation of auditors, and is based on local
benchmarks with similar sized non-profit agencies.
Growth in 2015
Number of employees: We currently have over 400 employees, and are expecting
to have at least 430 by the end of 2015. We began 2014 with 330 employees.
Broome County
•Opened a group home and day program in August of 2015.
•Next group home will open in December of 2015.
•Support group re-launch.
Managed Long Term Care
•EPI is a lead provider in Managed Long Term Care (MLTC), which involves
considering the needs of the whole person. Care managers can also provide
support in non-medical areas such as housing, legal assistance, and becoming
involved in social or community activities.
•Our MLTC program started in September of 2014 and we served 598 people by
the end of 2014. We currently serve over 1500 people through this program,
with continuous growth expected.
Home Services
•EPI accepts private pay for services such as home health aides, specialized
home care nursing, and more. We have added Personal Care Aides through our
Licensed Home Care Service Agency and give free nursing assessments to find
out exactly what services are appropriate. We are also exploring the possibility
of providing Consumer Directed Personal Assistance Services (CDPAS). For
more information, please contact Kathy Benner, Director of Home Services, at
(585) 442-6420 x2277.
Expect in 2016
•New creative community-based housing alternatives to expand services to those who need it.
•We are also exploring the expansion of several different services to various service areas.
Now Available!
EPI appreciates the support you give to
our Agency. Whether you lend your time,
your talent or your treasure, we can’t do
what we do without you. We’ve made giving even easier. Consider
becoming a sustaining member today by
setting up a recurring gift, and support
EPI year-round!
Recurring gift
Helping others live the life of their choosing
Here’s how it works:
1) Go to www.epiny.org/donate.php.
Choose the amount, and this amount
will be debited from your credit card
every month, quarterly, semi-annually, or
annually, depending on what frequency
you choose. Just $10/month could fund
an outing for adults with traumatic brain
injuries. $20/month could sponsor a day
at Camp EAGR for a child with epilepsy.
OR
2) Set up a recurring gift directly through
your bank by arranging a check to be mailed
to us at a frequency of your choice. Contact
us to receive a form by mail or download
the form from www.epiny.org today. If you have any questions about this NEW
way to make a donation, please contact
Shaunta Collier-Santos, Director of
Development at (585) 442-6420, ext. 2227.
30th Annual
Chocolate Ball
February 6, 2016
Join us for an enchanted evening
of chocolate as we celebrate
The City of Chocolate
2 Townline Circle
Rochester, NY 14623
Non-Profit Org.
US Postage
PAID
Rochester, NY
Permit No. 1414
Individual tickets and sponsorships
are now available at www.epiny.org.
Get involved and meet
other supporters at these
upcoming events!
Al Sigl Community
WalkAbout
October 25th, Eastview Mall
Join the Al Sigl Community of
Agencies for a family-friendly event!
There will be over 25 entertainers
and trick-or-treat tables. Each
registrant will get a t-shirt, breakfast,
and entry into the costume contest! Register or donate at
www.crowdrise.com/epilepsy-pralid.
Epilepsy Awareness Month
November, 2015
EPI will be celebrating Epilepsy
Awareness Month on Facebook, and
we hope you will join us and
participate! We encourage you to share
your epilepsy awareness on our page.
ROC the Day
December 1, 2015
Please consider giving to EPI
through United Way donor #2215.
One Door Closes and
Another One Opens
For many years, Kirk Matthews spent his life in the
Monroe Developmental Center (MDC), a state-run facility with many restrictions in place designed for people with complex needs.
In 2013, Kirk moved into the Slocum residential group
home with EPI. At first, many of the restrictions were
Kirk and staff Keisha
Pringle-Boykins celebrating
kept in place, but his success with us ultimately led to
his move to our Pinnacle group home. This was a the holidays
significant step toward independence and less restrictions.
Since the initial transition from the MDC to EPI, Kirk has held a job, joined sports
teams, and become an active participant in the community. When asked about the
changes, Kirk recalled, “When I first moved to Pinnacle, it was really hard…It took
some time to adjust, I felt like I wanted everything to be about me. I have adjusted
to others needing staff attention too. Moving here helped me meet new people and
new staff. I like it because I am closer to my family, no more 45 minute drives. I’ve
accomplished a lot of goals here at Pinnacle, like having portion control. I still have
goals to work on, like budgeting my money. My favorite part of living at Pinnacle is
staff taking me to softball and basketball practice, they cheer me on. Staff talked to
me when I needed help adjusting to Pinnacle and I am very happy here.”
As more institutions shut down, the doors to community integration, freedom of
choice, and increased opportunity will continue to open up. EPI will be here to
support this change and will continue to help the transition in New York State.