2009-2010 - Aphasia Institute

A N N U A L
R E P O R T
2 0 0 9 / 2 0 1 0
R e b u i l d i n g C o m m u n i c at i o n
Aphasia (uh-fay’-zhuh) is a devastating disorder caused by damage
to areas of the brain that affect communication. Aphasia is usually the result
of a stroke or brain injury but it can also be caused by other neurological
conditions such as the development of a brain tumour or dementia.
Not well-known or understood, aphasia is an invisible disability that affects
more than 100,000 Canadians, including one in three stroke survivors.
People with aphasia can lose their ability to read, speak, write, and understand the speech of others – effectively isolating them from their friends,
family and community. Without proper support, aphasia can be a very
lonely and frustrating experience. All too often these intelligent, competent
adults who know what they want and are capable of making their own
decisions, are simply not heard.
The Aphasia Institute is a community-based centre of excellence,
pioneering programs and practices that help people with aphasia learn
how to communicate in new ways so they can step back into life, express
themselves and make meaningful connections with others.
Synergy of service
Solid Foundation.
Bright Future.
This year marked the Aphasia Institute’s 30th year of delivering
service to people with aphasia and their families. It is a
milestone that speaks to the collective accomplishments of
our community and the value of the Aphasia Institute as
an evidence-based learning centre, where people with
aphasia, volunteers and health care professionals co-create
best practice interventions and life skills development.
This value is compounded by the Institute’s continued
commitment to undertake meaningful research and share
knowledge for the benefit of people with aphasia across Canada and around
the world. The Aphasia Institute is internationally recognized as a major
contributor to the field.
Without question, ours is a history grounded in three decades of helping
people live successfully with aphasia – close to home through direct services
and community outreach, and far away through our research and education
programs. We have built a solid foundation and now must turn our attention
to meeting the challenges ahead.
As the global population ages, we expect the number of people living with
aphasia to increase. Evidence suggests that changing health policy and limited
resources will likely mean that more and more people will be looking for
support within their community. The services, skills and knowledge of the
Aphasia Institute will be in demand like never before.
Jane Brenneman
Gibson, Board Chair
This year, our Board of Directors and staff launched a four-year strategic
plan designed to ready the organization to meet this increasing demand, and
to expand the impact of the Institute’s work. Over the coming years, we will:
• Broaden the range of solutions offered by the Institute;
• Build new partnerships with local health providers to ease
the way for people with aphasia;
• Expand applied research, along with aphasia content and
distribution channels; and,
• Build sustainable organizational and financial capacity.
Our direction is clear and we remain focused on what we do best –
helping, learning and sharing. We look forward to the new opportunities,
partnerships and experiences that await us.
Aura Kagan, Ph.D.
Executive Director
Jane Brenneman Gibson, Board Chair
Aura Kagan, Ph.D., Executive Director
APHASIA | ANNUAL REPORT
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Helping
Delivering direct service to people with aphasia and their
families is the heart of what we do. Our purpose is to empower
and enable people to develop the skills they need to live as
independently as possible.
The impact of aphasia should not be underestimated – it is
associated with severe disability, increased mortality and
depression. It can be an isolating experience that has a significant
impact on one’s quality of life.
The services provided by the Aphasia Institute help individuals
and families better understand the disability and the challenges it
presents. They learn to cope and to communicate in news ways.
Most importantly, they are embraced by a non-judgmental community of peers who understand
their experience and can help them build skills and confidence.
This year, the Institute delivered a range of services to
1900 people with aphasia and their families, including
information support to those beyond our immediate
community through tele-contact and e-mail. Our clients
range in age from 30 to 80 years. Our commitment is to
serve them with passion and to leverage what we learn
to help thousands more each year.
“
“The Aphasia Institute is a perfect
example of a successful partnership
between research and practice. The
innovative programs and services
have made it a leading centre
within Canada and worldwide.”
– Katie Lafferty, Executive Director
Canadian Stroke Network
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Learning
The Aphasia Institute exists, in part, to harness the experience and knowledge of people who are
learning to live successfully with aphasia. Ours is an ‘incubator’ setting where ideas can be tested
and improved, then shared.
This year, the Institute completed psychometric testing for a new assessment tool, Assessment for
Living with Aphasia. This tool will have direct benefit to people with aphasia by identifying the
factors that impact the quality of life and exacerbate or reduce disability.
Our team completed questionnaires titled Communicative Access Measures for Stroke that will
be used to evaluate communicative access in health care organizations at system, frontline and
patient levels.
Getting on with the Rest of Your Life After Stroke, a four-year national study looking at reintegration
of stroke survivors into daily life and community activity, has been an exciting project for us. To align
with the study methodology, we have expanded our Introductory Program, doubling the number
of sessions and adding an
exercise component.
The Institute is rooted in a
synergistic blend of applied
research and knowledge
exchange – observing what
happens within on-site
programs, exploring critical
questions about the aphasia
experience, and testing ideas
about how to deliver better
care and support.
““
“The Aphasia Institute has consistently addressed some of the most
challenging issues in aphasiology by generating innovative studies
that acknowledge and reflect the perspective of the person with
aphasia. The relevance of this psychosocial model has stimulated
research by others around the globe, attesting to its importance.”
– Martha Taylor Sarno, M.A., M.D., CCC-SLP, BC-NCD
New York University, School of Medicine
Founder & President Emeritus, National Aphasia Association
Founding Member, Academy of Aphasia
APHASIA | ANNUAL REPORT
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Sharing
The Aphasia Institute is committed to elevating the understanding of best practice care and support
amongst the Canadian and international communities of health care professionals. We do this through
education and training workshops, presentations, and articles, by developing clinical tools for assessment
and care, and by creating linkages across health, social and academic sectors.
As a Continuing Education Provider with the American Speech-Language-Hearing Association, we
deliver annual workshops about the essential principles and practice of Supported Conversations for
Adults with Aphasia (SCA™). This year, we trained health care professionals from 10 countries, along with
Intake and Referral staff from 15 agencies within the Central Local Health Integration Network.
The impact of the Institute’s education work goes
far beyond the sessions facilitated by Institute staff.
Through our Train the Trainer program, trained
professionals go on to educate their staff. As just one
example, a speech language pathologist from Finland
attended the Full Institute training in Spring 2009
and has since trained over 70 Finnish health care
workers in SCA™.
“
“The Aphasia Institute represents the
hockey equivalent of a hat-trick –
internationally known and respected
for 1) exemplary clinical service, 2)
a teaching and written material source
for the world, and 3) a leading source
of relevant cutting edge research.
The model serves as an example to
the world on improving the lives
of persons with aphasia.”
– Travis Threats, Professor
Chair, Communication Sciences and Disorders
Saint Louis University, Missouri
ASHA liaison to the World Health Organization
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APHASIA | ANNUAL REPORT
Looking Ahead
The Institute has built a reputation as a world leader in aphasia
care and research with a small team of professional staff, limited
funding and very tight budgets. Dedicated volunteers and
committed donors play an integral role and we are endlessly
grateful for their willingness to give their time, talent and
resources to help realize our shared vision.
To maximize the opportunities ahead, we have prioritized
building organizational capacity and financial stability as the
building blocks essential to implementing our strategic plan.
Work is already underway.
Fundraising initiatives are showing promising results. On
November 4, 2009, over 300 members of our community
gathered for Giving Voice, an event to celebrate our anniversary
and to honour Aphasia Institute member, Howard Matthews,
and his wife, Jazz legend Salome Bey. The evening raised
$30,000 in proceeds. On June 13, 2010, Walk, Talk n’ Roll set
a new record with more than 100 participants raising a total
of $70,000 – almost doubling funds raised at the 2009 event!
We are expanding existing partnerships and attracting new
donors, foundations and corporate supporters. The impact
of aphasia is significant – our job is to make the work of the
Institute relevant to those most likely to partner with us.
“
“The Aphasia Institute has
led the international aphasia
community. People with
aphasia and their families
throughout the world have
benefited from the Institute’s
influence and have hope
for a better future.”
– Linda Worrall, Professor
Director, Centre for Clinical Research
Excellence in Aphasia Rehabilitation
Australia
We are pursuing new research grants. Just recently, the
Aphasia Institute was awarded a grant of $99,840 to link
the ‘Assessment for Living with Aphasia’ to an economic quality
of life measure for the purpose of better understanding and
quantifying the true impact of aphasia.
And finally, we are utilizing technology to expand our reach
and maximize the work of the Institute. A new web site is in
development to better serve the needs of people with aphasia
and their families, as well as health professionals interesting
in expanding their knowledge and accessing
aphasia resources and tools.
5
Financial Statements
A word from our auditor
To the Directors of the Aphasia Institute:
The accompanying condensed statements of financial position, revenues, expenditures, and net assets are derived
from the complete financial statements of the Aphasia Institute as at March 31, 2010, and for the year then ended
on which I expressed an opinion without reservation in my Auditor’s Report dated May 27, 2010.
The fair summarization of the complete financial statements is the responsibility of the Institute. My responsibility,
in accordance with the applicable Assurance Guideline of The Canadian Institute of Chartered Accountants, is to
report on the condensed financial statements.
In my opinion, the accompanying condensed financial statements fairly summarize, in all material respects, the
related complete financial statements in accordance with the criteria described in the Guideline referred to above.
Since these are condensed financial statements, readers are cautioned that these statements may not be appropriate
for their purposes. For more information on the Institute’s financial position, results of operations and cash flow,
reference should be made to the related complete financial statements.
Peter Tsui, CA
Copies of the complete audited financial statements are available upon request.
STATEMENT OF FINANCIAL POSITION
As at March 31
2010
2009
$ 19,307
45,138
7,265
71,710
$ 79,848
84,306
17,285
181,439
186,109
254,093
68,636
24,277
92,913
44,060
24,277
68,337
350,732
503,869
48,384
29,188
77,572
97,987
13,410
111,397
15,408
23,246
53,228
150,000
54,524
257,752
20,814
170,000
178,412
369,226
$ 350,732
$ 503,869
ASSETS
Current Assets
Cash
Accounts receivable
Prepaid expenses and sundry assets
Investments
Capital Assets
Intellectual Property
LIABILITIES
Current Liabilities
Accounts payable and accrued liabilities
Deferred income
Non-Current Liabilities
Deferred capital contributions
NET ASSETS
Net Assets Invested in Capital Assets
Research Fund
General Fund
Commitments
See accompanying notes to financial statements.
Approved on behalf of the Board
6
STATEMENT OF NET ASSETS
For the Year Ended March 31
Balance, beginning of year
Deficiency of revenues
over expenditures
Invested in Research
Capital Assets
Fund
Internally funded acquisitions
Balance, end of year
Total
2010
Total
2009
$ 20,814
$ 170,000
$ 178,412
$ 369,226 $ 364,309
(6,066)
–
(105,817)
(111,883)
14,401
(20,000)
20,000
–
–
–
409
409
(9,484)
–
–
Inter-fund transfer
Increase (decrease) in the
fair value of available-for-sale
investments during the year
General
Fund
–
38,480
–
(38,480)
$ 53,228
$ 150,000
$ 54,524
$ 257,752 $ 369,226
See accompanying notes to financial statements.
STATEMENT OF REVENUES AND EXPENDITURES
For the Year Ended March 31
Revenues
Government and other grants
Donations and fundraising
Expense recoveries
Client service fees
Resource material
Professional training and education
Investment income
Amortization of deferred capital contributions
Expenditures
Salaries and employee benefits
Occupancy costs
Office expenses
Projects
Client services
Fundraising
Amortization of capital assets
Staff development and travel
Audit and legal fees
Professional training and resource materials
Excess (deficiency) of revenues over expenditures
2010
2009
$ 1,026,477
137,254
68,255
55,858
40,078
37,629
14,046
7,838
$ 1,069,786
103,443
11,709
58,919
58,385
55,710
19,195
7,979
1,387,434
1,385,126
869,160
219,259
177,721
135,939
33,426
27,190
13,904
11,211
10,048
1,459
784,436
212,035
136,736
163,451
31,139
2,621
14,830
11,623
6,059
7,795
1,499,317
1,370,725
$ (111,883)
$
14,401
See accompanying notes to financial statements.
NOTES TO THE CONDENSED FINANCIAL STATEMENTS
The Institute prepares its financial statements in conformity with Canadian generally accepted accounting principles.
Unrestricted contributions are recognized as revenue when received or receivable if the amount to be received can
be reasonably estimated and collection is reasonably assured. Restricted contributions are recognized as revenue in
the year in which related expenses are incurred. Capital assets are recorded at cost and are depreciated over their
estimated useful lives. Funds received for the acquisition of capital assets are deferred and amortized on the same
basis as the related capital assets.
The investments held by the Institute as of March 31, 2010 are classified as available-forsale. They are carried at
fair value on the statement of financial position, with changes in fair value recorded in unrestricted net assets.
Some amounts in these statements are based on estimates and assumptions made by the Institute. By their nature,
such estimates are subject to measurement uncertainty, although all of them are believed to be reasonable.
APHASIA | ANNUAL REPORT
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Donor & Volunteer Recognition
T H A N K Y O U... to the many people who give their time talent and resources to the Aphasia
Associate
$5,001 – $10,000
Marquest Investment
Council Inc.
Sprucegrove Investment
Management Ltd.
Fellow
$1,001 – $5,000
Bank of Nova Scotia
BMO Bank of
Montreal Financial
Group
Dennis Brans
Paul Bussiere
Janice K. Carlisle
Sybil Geller
Jane Brenneman
Gibson
Harmonize
for Speech Fund
Steve Hobbs
Trish Krause
Marjorie E. Lea
Gary W. Ryan
Mary Deanne Shears
SNC –
Lavalin O & M Inc.
Cynthia Webb
Eyre D. Welland
Partner
$501 – $1,000
M. Assaad
Bank of Nova Scotia,
Greater Toronto Estate
Lending Group
Donna Brown
Cameco Corp.
Rochelle
Cohen-Schneider
Anne Ferguson
Sophia Hibbeln
Dan L. Hill
Aura Kagan
Thiam H. Lim
Lyn McDonell
Karl E. Parnoja
Denham Patterson
Pamela Phillips
Marquerite Redman
Ultimate Software
8
Companion
$251 – $500
Costas Andreou
Bell Canada –
Employee Giving
Program
Terry Borer
Mary R. Botterell
Philip C. Brown
Veronica Branigan
Sheena Branigan
Jane E. Brissenden
Frank Ciccolini
Colliers International
Hotels – Toronto
Downtown Office
Michelle Cohen
Lynne Czutrin
Bernie Dans
Diane Davies
Patricia DiNicolantonio
James Fyshe
Gordon Goldschleger
Ruth Grant
Guta Grushka
Erin HawkerBudlovsky
Irene F. Hewitt
Jonathan Hellmann
Margaret Hobbs
Ian Epstein
Elizabeth Johnson
John Burghardt
Robert L. Jones
June M. McDonald
Mannie Kagan
Mary Lewis
Sandra Leggat
Patrick McCarthy
Donald Meeks
Barbara Missen
Karen Millar
Motorola Canada
Limited
Karen O’Leary
Hugh M. Pattison
Gabriella Pataki
William Pacey
Margaret A. Pattison
Lorraine Podolsky
Cecilia Ryan
Gregory Steele
Robert Stewart
Jerome Stephens
Anna Taylor
Hope Thomsom
Carolyn Vesely
Frances Washer
Christine Wong
Michael Wright
Friends
$100 – $250
Gerrald Abercrombie
Lisa Adams
Nora Adamson
Giles Ardiel
Nona Ardiel
Rona Armel
Deanne Atkinson
John H. Baldwin
David Baskin
Ted W. Baxter
Jeffrey Beach
Joyce Beaven
Dave Beda
Lorrain Beech
Marilyn Berger
Lorraine Berk
Steve Binder
Nancy Bishop
Hans Blom
Sandra Black
BMO Employee
Charitable Foundation
Geoff Bobb
Fabio Bonaccorso
Riccardo Bonalumi
Dale Bradley
James A. Bradshaw
Cristopher Bredt
David Brown
Barbara L. Brockington
Michael Bunston
Connie Caisse
Nino Calafiore
Nancy Campbell
Mary Canade
Wo Keung Cheng
Michelle Christian
James H. Clarke
Rebecca Coates
Colledge of
Physiotherapists of
Ontario
Mary Couch
Marion Crewe
Jeff Crothers
Hilary Currer
Robert Dale
Barbara Davy
Craig Daniel
Glenn Daurio
John De Goey
Luc De Nil
Nancy Deakon
Lisa Debow
Mariam Dewar
Patrick Di Lauro
Carol Donnelly
Alison Dyer
Eleanor L. Ellins
Raefie Epstein
Philip Epstein
Nancy Evans
Kenneth R. Ferguson
Robert H. Fern
Anita Ferrari
James Fish
Anne Fithern
John Fitzmaurice
Mark Fletcher
Sally Forrest
Jane French
Joan H. Garson
Jack Geller
Georgian College
Ken Gibson
Erla Glesby
Sandra Goren
Marianne Gocker
Gowling Lafleur
Henderson LLP
Granite Club
Brian Greenspan
Anne Marie Gutierrez
Eugenia Haba
Ken Hagerman
Elizabeth Hain
Ada Hainey
Bonnie Hall
Elizabeth Hanna
Peter Heinke
Hewlet Packard
(Canada) –
Spectrum/Master
Michael Hughes
Katherine Hill
Shannon Hill
Robert Hirschel
Jeffrey Hoffman
John Honderich
Maria Huijbregts
Ian M. Hull
David Humphrey
Jill Hutcheon
Hugh Hyndman
Julio Iribarne
Joy Isaacs
Teresa Jarvis
Dixie Jones
Brad Johnston
Colleen Johnston
Scott Jollyffe
Birthe Jorgensen
Barbara Kane
Nathan Kaufman
Anna Kaufman
William Kelgour
Joyce E. Kellough
Donald Kerr
Donna Kerr
Tom Kerr
Martin Kingston
Michael King
Danny Klempfner
George P. Kopulos
Tili Kosziwka
Henry Kosziwka
Melissa Kotton
Marta I. Krywonis
Gregory Kuperstein
Elaine Witt LaJeneusse
On-Fai Lam
Dana Lampe
William Landy
Robert Langille
Institute and the people we serve.
Estella Leung
Michael Levick
Sheldon Lifshen
Susan Light
Jean Loch
Barbara Lowe
Erica Luty
Barbara Maclean
Herbert L. Macharius
Tanis MacLaren
Mary Mahoney
Marek Hospitality Inc
Barbara Marshall
Kimberly Marshall
Emerson Mascoll
Sandra Matheson
George McElroy
Lorna Mckay
Robert McClure
Ria McMurtry
Barry McQuillan
Christina McSkimming
Antony H. Melcher
Kathleen Metcalfe
W.A. Derry Millar
Woolau DD &
MM Mok
Hon Kwong Mok
Yiu Kwong Mok
Vincent Mok
Barbara Moses
Jean Mutrie
Llana Nakonechny
Nancy Naylor
Nancy Neale
Karen Necpal
Stan Neil
Andrew Obee
Kathleen O’Neil
Chris G. Paliare
Leon J. Palvetzian
Loeland W. Parliament
John Pattison
Marney Pearen
Cheryl Perera
Mary Petroff
Austin Pope
Nikolas Poppenk
Ari Posner
Gerry Posner
Carol Pratap
Mark Pritzker
Cynthia Pryor
Jullie Quiring
Ilona Rappaport
Shai Rappaport
Anne Rawson
John A. Reeve-Newson
Sally Remus
Sandra Remus
Ken Richards
Lori Richardson
Morris Robinson
Gabriela Rubinger
Barbara Rueckel
Angela RyanRappaport
Bente Rybinski
Nancy Sampson
Julia Sax
Wilda Scott
Per Scott
Judy Shanks
Patricia J. Shield
Elyse Shumway
Melinda Sinclair
Ola Skankas
Timothy Skelton
Helen Skrow
Skyview Business Core
Trena Slovenski
R.Bruce Smith
Joan E. Smith
Strategic Analysis
Corporation
Mark Steiner
Dorothy Sutherland
Catherine K. Takaoka
Ushi Tanna
Gaetan Tardif
Daniel Taylor
William Taylor
Allison Tedesco
Robert Tartaglia
The Fairlawn
Neighbourhood Centre
The Graig Stewart
Esplen Family
Foundation
Eric Thompson
Jane Thorson
Andy Tiedemann
Helen Tiedemann
Peter Tsui
Bettie Tullis
Robert Tune
James Turner
Jan van Velzen
Harold W. Ward
Susan Watt
Wayne Roberts
Joyce Webb
Robin Weir
Ruth Weinstock
Wesley Slater
(Sports for a Cause)
Cheryl Wetstein
Suzanne Whittamore
Judith Wiesenfeld
ONTARIO VOLUNTEER SERVICE AWARDS
In June 2010, six of our volunteers were recognized
with Ontario Volunteer Service Awards, recognizing
volunteers for continuous years of commitment and
service to an organization. The Honourable Eric
Hoskins, Ontario’s Minister of Citizenship and
Immigration handed out the awards.
Lynne Wilkinson
Linda Wise
Raymond R. Wong
Raymong Wong
Joe Kwong Woo
Dianne Woods
Bill Woolford
Janice Woolford
E. Gail Worth
David Worrell
Susan Wright
Doris Yee
Esther Zdolec
Years of
Volunteer Service
2 – 4 Years
Maria Andriano
Lynne Czutrin
Christina Lockerby
Cheryl Morris
Les Olson
Dean Parker
Khaled Aziz
Carol Pratap
Marilyn Shama
Jessica Vernon
Joyce Ostler
John Tonus
George Kopulos
Sybilla Mannsfeldt
Anne Neidhardt
Gabriella Pataki
Shai Rappaport
Karen Necpal
Clementine Grant
Noorin Mair
Gillian Cockwell
Sophia Hibbeln
Paul Donnelly
Marilyn Berger
Dana Hudon
Justin Leung
Ken Seetaram
Eric Thompson
5 – 9 Years
Diane Mulholland
Ruth Grant
Donna Kerr
Norma McVicar
Christina McSkimming
Anita Lovisek
Judy McNeilly
Michael Wright
Steve Gahbauer
Jane Hughes
Mary-Deanne Shears
10 – 14 Years
Judy Moore
Mary Botterell
Jean Cameron
Myriam Shechter
Urvashi Tanna
Barbara Kane
John Warden
Mintrude Bullen
15 – 19 Years
Veronica Branigan
Sylvia Goldman
Bruce King
Anna Taylor
20 – 25 Years
Johanna Cook
Jane Thorson
Murray Higgins
Bobbie Missen
25 +
Rona Armel
Volunteers from the Aphasia Institute were recognized
as part of this special ceremony:
20 Years: Johanna Cook
15 Years: Barbara Kane
15 Years: Mintrude Bullen
5 Years: Ruth Grant
5 Years: Donna Kerr
2 Years (Youth recipient):
Maria Andriano
APHASIA | ANNUAL REPORT
9
“
“
“
“It is both an honour and a privilege for North York General Hospital to
partner with the Aphasia Institute in the common goal of improving patient
care. The leadership at Aphasia is impressive and their expertise makes
a significant difference to the health of community members.”
– Bonnie Adamson, President and CEO, North York General Hospital
“The Aphasia Institute, and their dedicated staff, have demonstrated
their ongoing commitment to improving the lives of people dealing with
the impacts of aphasia through their efforts to develop and share evidence
informed training and tools. Congratulations and keep up the great,
and very important work!”
– Deirdre Luesby, Executive Director, Senior Health Research Transfer Network
“I am very proud of my association with the Aphasia Institute. Among the
many things I admire the most are the genuine commitment to engage all
members and respond to their individual interests and concerns, the spirit
of innovation, the commitment to research and knowledge exchange and
the effective advocacy on behalf of everyone living with aphasia.”
– Mary Lewis, Director Government Relations and Health
Partnerships, Heart and Stroke Foundation of Ontario
Our Funders
• Central Local Health Integration Network
• City of Toronto
• Human Resources and Social Development Canada
• Fees, Donations and Bequests
Our Research Program is funded through
research grants from:
• Ministry of Health and Long-Term Care
Aphasia Institute
The Pat Arato Aphasia Centre
73 Scardsale Road
Toronto, ON M3B 2R2 Canada
(416) 226-3636
For more information, or to make a
donation to support the work of the
Aphasia Institute, visit www.aphasia.ca.
• Heart and Stroke Foundation of Ontario –
Ontario Stroke Network